Birth Defects and Developmental Disabilities Prevention Act of 2003

Bill: 108-s-286
Sponsor: Sen. Bond, Christopher S. [R-MO]
Introduced: 2003-02-04 in the Senate
Policy area: Health
Subjects: Authorization
Autism
Birth defects
Child development
Child health
Civil Rights and Liberties, Minority Issues
Communication in medicine
Conferences
Congress
Congressional reporting requirements
Department of Health and Human Services
Disabled
Economics and Public Finance
Education
Elementary and secondary education
Epidemiology
Executive reorganization
Families
Federal advisory bodies
Federal aid to health facilities
Federal aid to research
Government Operations and Politics
Government paperwork
Government publicity
Health education
Health information systems
Health promotion
Higher education
Medical records
Medical research
Medical statistics
Preventive medicine
Quality of life
Right of privacy
Science, Technology, Communications
Student records

Summary:
action_date: 2003-02-04
text: 
Birth Defects and Developmental Disabilities Prevention Act of 2003 - Amends Public Health Service Act provisions concerning the National Center on Birth Defects and Developmental Disabilities to add "disabilities and health" to categories of data with regard to which the Secretary of Health and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect.
 
Modifies reporting requirements, including to require the Secretary to report to Congress on the incidence and prevalence of individuals living with developmental disabilities and the health status of such individuals. Declares that certain data and information collected under the Act shall be subject to a specified provision of the General Education Provisions Act pertaining to privacy. 
 
Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health shall be transferred to and shall advise the National Center on Birth Defects on the date of the enactment of this Act.
action_date: 2003-11-06
text: 
Birth Defects and Developmental Disabilities Prevention Act of 2003 - Amends Public Health Service Act provisions concerning the National Center on Birth Defects and Developmental Disabilities to add "disabilities and health" to categories of data with regard to which the Secretary of Health and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect.
 
Modifies reporting requirements, including to require the Secretary to report to Congress on the incidence and prevalence of individuals living with developmental disabilities and the health status of such individuals. Declares that certain data and information collected under the Act shall be subject to a specified provision of the General Education Provisions Act pertaining to privacy. 
 
Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health shall be transferred to and shall advise the National Center on Birth Defects on the date of the enactment of this Act.
action_date: 2003-12-03
text: 

(This measure has not been amended since it was reported in the Senate on November 6, 2003. The summary of that version is repeated here.)

 
Birth Defects and Developmental Disabilities Prevention Act of 2003 - (Sec. 2) Amends the Public Health Service Act concerning the National Center on Birth Defects and Developmental Disabilities (Center) to add &quot;disabilities and health&quot; to categories of data which the Secretary of Health and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect.
 
Modifies Center reporting requirements, including requiring such report to contain information on: (1) individuals living with birth defects and disabilities or developmental disabilities, and recommendations for improving the health and quality of life of such individuals; and (2) recommendations from all birth defects research conferences sponsored by the Centers for Disease Control and Prevention, including conferences related to spina bifida.
 
Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health be transferred to and advise the Center.
 
Authorizes appropriations through FY2007 for the Center.
 
(Sec. 3) Amends the Developmental Disabilities Assistance and Bill of Rights Act of 2000 to revise appropriation allotment provisions for State developmental disabilities councils.
 
(Sec. 4) Directs the Secretary and the Secretary of Education to jointly report on specified surveillance activities under the Children's Health Act of 2000 respecting autism and other developmental disabilities.


Legislative actions:
action_date: 2003-12-03
text: Became Public Law No: 108-154.
action_date: 2003-12-03
text: Became Public Law No: 108-154.
action_date: 2003-12-03
text: Signed by President.
action_date: 2003-12-03
text: Signed by President.
action_date: 2003-11-21
text: Presented to President.
action_date: 2003-11-21
text: Presented to President.
action_date: 2003-11-20
text: Motion to reconsider laid on the table Agreed to without objection.
action_date: 2003-11-20
text: On motion to suspend the rules and pass the bill Agreed to by the Yeas and Nays: (2/3 required): 415 - 1 (Roll no. 646). (text: CR 11/19/2003 H11577-11578)
action_date: 2003-11-20
text: Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by the Yeas and Nays: (2/3 required): 415 - 1 (Roll no. 646).(text: CR 11/19/2003 H11577-11578)
action_date: 2003-11-20
text: Considered as unfinished business. (consideration: CR H11665-11666)
action_date: 2003-11-19
text: At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
action_date: 2003-11-19
text: DEBATE - The House proceeded with forty minutes of debate on S. 286.
action_date: 2003-11-19
text: Considered under suspension of the rules. (consideration: CR H11577-11580)
action_date: 2003-11-19
text: Mr. Bilirakis moved to suspend the rules and pass the bill.
action_date: 2003-11-12
text: Held at the desk.
action_date: 2003-11-12
text: Received in the House.
action_date: 2003-11-12
text: Message on Senate action sent to the House.
action_date: 2003-11-11
text: Passed Senate with an amendment by Unanimous Consent. (text: CR S14461)
action_date: 2003-11-11
text: Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.(text: CR S14461)
action_date: 2003-11-11
text: Measure laid before Senate by unanimous consent. (consideration: CR S14459-14461; text of measure as reported in Senate: CR S14459-14461)
action_date: 2003-11-06
text: Placed on Senate Legislative Calendar under General Orders. Calendar No. 369.
action_date: 2003-11-06
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Gregg with an amendment in the nature of a substitute. With written report No. 108-188.
action_date: 2003-11-06
text: Committee on Health, Education, Labor, and Pensions. Reported by Senator Gregg with an amendment in the nature of a substitute. With written report No. 108-188.
action_date: 2003-02-12
text: Committee on Health, Education, Labor, and Pensions. Ordered to be reported without amendment favorably.
action_date: 2003-02-04
text: Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
action_date: 2003-02-04
text: Sponsor introductory remarks on measure. (CR S1888-1889)
action_date: 2003-02-04
text: Introduced in Senate

Enacted as: number: 108-154