Birth Defects and Developmental Disabilities Prevention Act of 2003

Bill: 108-hr-398
Sponsor: Rep. Ferguson, Mike [R-NJ-7]
Introduced: 2003-01-28 in the House
Policy area: Health
Subjects: Authorization
Birth defects
Child development
Child health
Civil Rights and Liberties, Minority Issues
Communication in medicine
Conferences
Congress
Congressional reporting requirements
Department of Health and Human Services
Disabled
Economics and Public Finance
Education
Elementary and secondary education
Epidemiology
Executive reorganization
Families
Federal advisory bodies
Federal aid to health facilities
Federal aid to research
Government Operations and Politics
Government paperwork
Government publicity
Health education
Health information systems
Health promotion
Higher education
Medical records
Medical research
Medical statistics
Preventive medicine
Quality of life
Right of privacy
Science, Technology, Communications
Student records

Summary:
action_date: 2003-01-28
text: Birth Defects and Developmental Disabilities Prevention Act of 2003 - Amends Public Health Service Act provisions concerning the National Center on Birth Defects and Developmental Disabilities to add disabilities and health to categories of data with regard to which the Secretary of Health and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect. 
Removes certain provisions regarding data collection, including one requiring the Secretary to collect and analyze data by gender and ethnic and racial group. Modifies reporting requirements. Declares that certain data and information collected under the Act shall be subject to a specified provision of the General Education Provisions Act pertaining to privacy.
Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health shall be transferred to the National Center on Birth Defects on the date of the enactment of this Act.
action_date: 2003-02-13
text: 
Birth Defects and Developmental Disabilities Prevention Act of 2003 - Amends Public Health Service Act provisions concerning the National Center on Birth Defects and Developmental Disabilities to add disabilities and health to categories of data with regard to which the Secretary of Health and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect.

Removes certain provisions regarding data collection, including one requiring the Secretary to collect and analyze data by gender and ethnic and racial group. Modifies reporting requirements. Declares that certain data and information collected under the Act shall be subject to a specified provision of the General Education Provisions Act pertaining to privacy.
Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health shall be transferred to the National Center on Birth Defects on the date of the enactment of this Act.

Legislative actions:
action_date: 2003-02-13
text: Placed on the Union Calendar, Calendar No. 8.
action_date: 2003-02-13
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 108-14.
action_date: 2003-02-13
text: Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 108-14.
action_date: 2003-01-29
text: Ordered to be Reported by Voice Vote.
action_date: 2003-01-29
text: Committee Consideration and Mark-up Session Held.
action_date: 2003-01-28
text: Referred to the House Committee on Energy and Commerce.
action_date: 2003-01-28
text: Introduced in House
action_date: 2003-01-28
text: Introduced in House