Short Title Short title 1 This Act may be cited as the  National Framework on Sickle Cell Disease Act . National Framework on Sickle Cell Disease National framework 2 (1) The Minister of Health must develop a national framework on sickle cell disease. Content (2) The national framework must (a) include measures to address the training, education and diagnostic and treatment tool needs of health care professionals relating to sickle cell  disease ; (b) provide for the creation of a national research  network  to advance research, improve data collection and establish a national registry on sickle cell disease; (c) set evidence-based national standards for the diagnosis and treatment of sickle cell disease; (d) include measures to ensure equitable access to neonatal screening, to diagnosis and to the provision of results for affected individuals and organizations; (e) include measures to support public awareness campaigns on sickle cell disease; and (f) include an analysis respecting the implementation of a tax credit for individuals with sickle cell disease and their caregivers. Consultations (3) For the purpose of developing the national framework, the Minister of Health must consult with (a) the minister responsible for diversity, inclusion and persons with disabilities, the minister responsible for families, children and social development and any other minister who, in the Minister’s opinion, has  relevant  responsibilities; (b) representatives of the provincial and territorial governments, including those responsible for health, persons with disabilities, mental health and addictions; (c) relevant stakeholders, including self-advocates, caregivers, support persons, service providers, representatives of the medical and research communities, and organizations that the Minister considers to have relevant expertise and experience relating to sickle cell disease; and (d) any other person or entity that the Minister considers appropriate. Reports to Parliament Tabling of national framework 3 (1) Within one year after the day on which this Act comes into force, the Minister of Health must prepare a report setting out the national framework on sickle cell disease and cause it to be tabled in each House of Parliament on any of the first 15 days on which that House is sitting after the report is completed. Publication (2) The Minister must publish the report on the Department of Health website within 10 days after the day on which the report is tabled in Parliament. Report 4 Within three years after the day on which the report referred to in section 3 is tabled in Parliament, the Minister of Health must cause to be tabled in each House of Parliament a report setting out (a) the measures from the national framework that have been implemented and their effectiveness in  supporting  individuals with sickle cell disease, their families and their caregivers; and (b) with respect to any measure included in the  national  framework that has not been implemented, the reason it has not been implemented and the timeline for doing so.