Title: Supports the designation of "ALS Awareness Month".
Policy area: Health

Summary:
This resolution supports the designation of ALS Awareness Month. Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease, also known as Lou Gehrig's disease, that affects nerve cells in the brain and spinal cord.

[Congressional Bills 117th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 434 Introduced in House (IH)]

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117th CONGRESS
  1st Session
H. RES. 434

          Supports the designation of ``ALS Awareness Month''.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              May 25, 2021

 Mr. Crow (for himself, Mr. Fitzpatrick, Ms. Sewell, Mr. Calvert, Mrs. 
 Axne, Mr. Keating, Ms. Dean, Ms. Velazquez, Mr. Cole, Mr. Posey, Mr. 
 Thompson of Pennsylvania, Mr. Larson of Connecticut, Mr. Raskin, Mr. 
  Neguse, Mr. Quigley, Mr. Deutch, Mr. Van Drew, Mr. O'Halleran, Mr. 
 Brendan F. Boyle of Pennsylvania, Mr. Danny K. Davis of Illinois, Mr. 
Lamb, Ms. Bass, Mr. Grijalva, Mr. Keller, Mr. Garbarino, Mr. Cohen, Mr. 
Sires, Mr. Vela, Ms. Schakowsky, Mr. Foster, Ms. Jacobs of California, 
    Mr. Bishop of Georgia, Mr. Auchincloss, Mrs. Lee of Nevada, Mr. 
Moulton, Ms. Norton, Ms. Chu, Mr. Carson, Mr. DeFazio, Ms. Williams of 
 Georgia, and Mr. Swalwell) submitted the following resolution; which 
          was referred to the Committee on Energy and Commerce

_______________________________________________________________________

                               RESOLUTION


 
          Supports the designation of ``ALS Awareness Month''.

Whereas amyotrophic lateral sclerosis (referred to in this preamble as ``ALS'') 
        is a progressive neurodegenerative disease that affects nerve cells in 
        the brain and the spinal cord;
Whereas the life expectancy for an individual with ALS is between 2 and 5 years 
        after the date on which the individual receives an ALS diagnosis;
Whereas ALS occurs throughout the world with no racial, ethnic, gender, or 
        socioeconomic boundaries;
Whereas ALS may affect any individual in any location;
Whereas the cause of ALS is unknown in up to 90 percent of cases;
Whereas approximately 10 percent of cases have a strong known genetic driver;
Whereas on average, the period between the date on which an individual first 
        experiences symptoms of ALS and the date on which the individual is 
        diagnosed with ALS is more than 1 year;
Whereas the onset of ALS often involves muscle weakness or stiffness, and the 
        progression of ALS results in the further weakening, wasting, and 
        paralysis of--

    (1) the muscles of the limbs and trunk; and

    (2) the muscles that control vital functions, such as speech, 
swallowing, and breathing;

Whereas ALS can strike individuals of any age but predominantly strikes adults;
Whereas it is estimated that tens of thousands of individuals in the United 
        States have ALS at any given time;
Whereas based on studies of the population of the United States, slightly more 
        than 5,600 individuals in the United States are diagnosed with ALS each 
        year, and 15 individuals in the United States are diagnosed with ALS 
        each day;
Whereas, between 2015 and 2040, the number of ALS cases around the world is 
        expected to increase nearly 70 percent;
Whereas the majority of individuals with ALS die of respiratory failure;
Whereas military veterans may be up to twice as likely to be diagnosed with ALS 
        than the general public in the United States;
Whereas as of the date of introduction of this resolution, there is no cure for 
        ALS;
Whereas the spouses, children, and family members of individuals living with ALS 
        provide support to those individuals with love, day-to-day care, and 
        more; and
Whereas an individual with ALS, and the caregivers of such an individual, can be 
        required to bear significant costs for medical care, equipment, and home 
        care services for the individual as the disease progresses: Now, 
        therefore, be it
    Resolved, That the House of Representatives--
            (1) supports the designation of ``ALS Awareness Month'';
            (2) affirms the dedication of the House of Representatives 
        to ensuring people with ALS have access to effective treatments 
        as soon as possible and identifying risk factors and causes of 
        ALS to prevent new cases;
            (3) affirms the dedication of the House of Representatives 
        to empowering people with ALS to engage with the world in the 
        way they want;
            (4) affirms the dedication of the House of Representatives 
        to reducing physical, emotional, and financial burdens of 
        living with ALS;
            (5) affirms the dedication of the House of Representatives 
        to ensuring all people with ALS and their caregivers receive 
        high-quality services and supports that benefit them; and
            (6) commends the dedication of the family members, friends, 
        organizations, volunteers, researchers, and caregivers across 
        the United States that are working to improve the quality and 
        length of life of ALS patients and the development of 
        treatments and cures that reach patients as soon as possible.
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