Title: A resolution designating September 4, 2022, as "National Polycystic Kidney Disease Awareness Day", and raising awareness and understanding of polycystic kidney disease.
Policy area: Health

Summary:
This resolution designates September 4, 2022, as National Polycystic Kidney Disease Awareness Day and recognizes the need for additional research to find a cure.

[Congressional Bills 117th Congress]
[From the U.S. Government Publishing Office]
[S. Res. 816 Agreed to Senate (ATS)]

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117th CONGRESS
  2d Session
S. RES. 816

Designating September 4, 2022, as ``National Polycystic Kidney Disease 
Awareness Day'', and raising awareness and understanding of polycystic 
                            kidney disease.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           September 29, 2022

    Mr. Blunt (for himself and Mr. Cardin) submitted the following 
             resolution; which was considered and agreed to

_______________________________________________________________________

                               RESOLUTION


 
Designating September 4, 2022, as ``National Polycystic Kidney Disease 
Awareness Day'', and raising awareness and understanding of polycystic 
                            kidney disease.

Whereas designating September 4, 2022, as ``National Polycystic Kidney Disease 
        Awareness Day'' will raise public awareness and understanding of 
        polycystic kidney disease, one of the most prevalent genetic kidney 
        disorders;
Whereas autosomal dominant polycystic kidney disease (ADPKD) is the more common 
        type of polycystic kidney disease and affects approximately 200,000 to 
        600,000 people in the United States and an estimated 12,400,000 people 
        worldwide;
Whereas autosomal recessive polycystic kidney disease (ARPKD) is a rare form of 
        polycystic kidney disease that occurs in 1 in 20,000 live births in the 
        United States;
Whereas National Polycystic Kidney Disease Awareness Day will help to foster an 
        understanding of the impact polycystic kidney disease has on individuals 
        and their families;
Whereas polycystic kidney disease is a progressive, genetic disorder of the 
        kidneys that causes damage to the kidneys and the cardiovascular, 
        endocrine, hepatic, and gastrointestinal organ systems;
Whereas, though polycystic kidney disease equally affects individuals of all 
        ages, races, ethnicities, and sexes, gaps in kidney treatment and care 
        disproportionately affect racial and ethnic minorities, especially Black 
        and Hispanic populations;
Whereas Black and Hispanic patients with ADPKD reach kidney failure earlier and 
        are less likely to receive a kidney transplant compared with non-
        Hispanic White patients;
Whereas, of the individuals diagnosed with ADPKD, approximately 10 percent have 
        no family history of the disease, with the disease developing as a 
        spontaneous mutation;
Whereas there are very few treatments and no cure for polycystic kidney disease, 
        which is 1 of the 4 leading causes of kidney failure in the United 
        States;
Whereas almost 50 percent of individuals with ADPKD develop end-stage kidney 
        disease by age 60;
Whereas friends, loved ones, spouses, and caregivers of individuals with 
        polycystic kidney disease can assist with the challenges created by 
        polycystic kidney disease, including by helping such individuals 
        maintain a healthy lifestyle and make regular visits to their health 
        care providers;
Whereas the severity of the symptoms of polycystic kidney disease and limited 
        public awareness of the disease may cause individuals to forego regular 
        visits to their physicians or avoid following the health recommendations 
        of their doctors, which experts suggest could help prevent further 
        complications should kidney failure occur;
Whereas individuals who have chronic, life-threatening diseases like polycystic 
        kidney disease may experience depression;
Whereas the PKD Foundation and its more than 35,000 patient and family advocates 
        around the United States are dedicated to--

    (1) conducting research to find treatments and a cure for polycystic 
kidney disease;

    (2) fostering public awareness and understanding of polycystic kidney 
disease;

    (3) educating individuals and their families about the disease to 
improve their treatment and care; and

    (4) providing support, including by sponsoring the annual ``Walk for 
PKD'', to raise funds for polycystic kidney disease research, education, 
advocacy, and awareness; and

Whereas, on September 4, 2022, the PKD Foundation is partnering with sister 
        organizations in Canada, Australia, and other countries to increase 
        international awareness of polycystic kidney disease: Now, therefore, be 
        it
    Resolved, That the Senate--
            (1) designates September 4, 2022, as ``National Polycystic 
        Kidney Disease Awareness Day'';
            (2) supports the goals and ideals of National Polycystic 
        Kidney Disease Awareness Day to raise public awareness and 
        understanding of polycystic kidney disease;
            (3) recognizes the need for additional research to find a 
        cure for polycystic kidney disease; and
            (4) encourages all people in the United States and 
        interested groups to support National Polycystic Kidney 
        Awareness Day through appropriate ceremonies and activities to 
        promote public awareness of polycystic kidney disease and to 
        foster an understanding of the impact of the disease on 
        individuals and their families.
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