Title: Advancing FASD Research, Prevention, and Services Act
Policy area: Health

Summary:
Advancing FASD Research, Prevention, and Services Act
This bill reestablishes and expands programs for fetal alcohol spectrum disorders (FASD). The Department of Health and Human Services must establish a research agenda on FASD, facilitate and disseminate findings on public health surveillance and research to prevent FASD, and establish multiple grant programs.
Depending on the specific grant program, eligible grantees may include states, tribes and tribal organizations, public and private nonprofits, and educational institutions. Among other purposes, the grants support research on the diagnosis, intervention, and prevention of FASD; expand and coordinate surveillance; and foster collaboration to provide integrated services to individuals with FASD.
The bill also directs the Department of Education and the Department of Justice to develop and disseminate trainings and best practices related to FASD.

[Congressional Bills 116th Congress]
[From the U.S. Government Publishing Office]
[S. 2879 Introduced in Senate (IS)]

<DOC>






116th CONGRESS
  1st Session
                                S. 2879

 To amend the Public Health Service Act to reauthorize and extend the 
 Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
                          for other purposes.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           November 18, 2019

Ms. Murkowski (for herself and Ms. Klobuchar) introduced the following 
  bill; which was read twice and referred to the Committee on Health, 
                     Education, Labor, and Pensions

_______________________________________________________________________

                                 A BILL


 
 To amend the Public Health Service Act to reauthorize and extend the 
 Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
                          for other purposes.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Advancing FASD Research, Prevention, 
and Services Act''.

SEC. 2. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.

    (a) In General.--Part O of title III of the Public Health Service 
Act (42 U.S.C. 280f et seq.) is amended by striking section 399H and 
inserting the following:

``SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.

    ``(a) Definition.--In this part, the terms `fetal alcohol spectrum 
disorders' and `FASD' mean the range of effects that can occur in an 
individual who is prenatally exposed to alcohol. Such effects may 
include physical, mental, behavioral, and learning disabilities, with 
possible lifelong implications.
    ``(b) Research on Fetal Alcohol Spectrum Disorders and Related 
Conditions.--
            ``(1) In general.--The Secretary, acting through the 
        Director of the National Institutes of Health and in 
        coordination with the Interagency Coordinating Committee on 
        Fetal Alcohol Spectrum Disorders under section 399H-1, shall--
                    ``(A) establish a research agenda for FASD; and
                    ``(B) award grants, contracts, or cooperative 
                agreements to public or private nonprofit entities to 
                pay all or part of carrying out research under such 
                agenda.
            ``(2) Types of research.--In carrying out paragraph (1), 
        the Secretary, acting through the Director of the National 
        Institute of Alcohol Abuse and Alcoholism (referred to in this 
        part as the `Director of the Institute'), shall continue to 
        conduct and expand national and international research in 
        coordination with other Federal agencies that includes--
                    ``(A) the most promising avenues of research in 
                FASD diagnosis, intervention, and prevention;
                    ``(B) factors that may mitigate the effects of 
                fetal alcohol exposure; and
                    ``(C) other research that the Director of the 
                Institute determines to be appropriate with respect to 
                conditions that develop as a result of in-utero 
                substance exposure.
    ``(c) Surveillance, Public Health Research, and Prevention 
Activities.--
            ``(1) In general.--The Secretary, acting through the 
        Director of the National Center on Birth Defects and 
        Developmental Disabilities of the Centers for Disease Control 
        and Prevention, shall facilitate surveillance, public health 
        research, and prevention of FASD in accordance with this 
        subsection.
            ``(2) Surveillance, public health research, and 
        prevention.--In carrying out this subsection, the Secretary 
        shall--
                    ``(A) integrate into clinical practice the 
                evidence-based standard case definition for diagnosis 
                of fetal alcohol syndrome and, in collaboration with 
                the Director of the Institute, the Director of the 
                Centers for Disease Control and Prevention, the 
                Interagency Coordinating Committee on Fetal Alcohol 
                Spectrum Disorders established under section 399H-1, 
                researchers, and other experts in the field, develop 
                standard, evidence-based clinical diagnostic 
                guidelines, and criteria for all other fetal alcohol 
                spectrum disorders;
                    ``(B) conduct applied public health prevention 
                research to identify evidence-based strategies for 
                reducing alcohol-exposed pregnancies in women at high 
                risk for alcohol-exposed pregnancies;
                    ``(C) disseminate and provide the necessary 
                training and support to implement evidence-based 
                strategies developed under subparagraph (B) to--
                            ``(i) hospitals, Federally-qualified health 
                        centers, residential and outpatient substance 
                        use treatment programs, and other appropriate 
                        health care providers;
                            ``(ii) educational settings;
                            ``(iii) social work and child welfare 
                        offices;
                            ``(iv) foster care providers and adoption 
                        agencies;
                            ``(v) State offices and other agencies 
                        providing services to individuals with 
                        disabilities;
                            ``(vi) mental health treatment facilities; 
                        and
                            ``(vii) other entities that the Secretary 
                        determines to be appropriate;
                    ``(D) conduct activities related to risk factor 
                surveillance, including the biannual monitoring and 
                reporting of alcohol consumption among pregnant women 
                and women of childbearing age;
                    ``(E) disseminate and evaluate brief behavioral 
                intervention strategies and referrals aimed at 
                preventing alcohol-exposed pregnancies among women of 
                childbearing age in special settings, including 
                clinical primary health centers, outpatient clinics, 
                child welfare agencies, and correctional facilities and 
                recovery campuses;
                    ``(F) disseminate comprehensive alcohol and 
                pregnancy and FASD information, resources, and services 
                to families and caregivers, professionals, and the 
                public; and
                    ``(G) coordinate with affiliated State and local 
                systems and organizations on activities with respect to 
                the prevention of FASD and related conditions for 
                pregnant mothers.
    ``(d) Building State FASD Systems.--
            ``(1) In general.--The Secretary, acting through the 
        Administrator of the Health Resources and Services 
        Administration, shall award grants, contracts, or cooperative 
        agreements to States for the purpose of developing and 
        implementing a statewide FASD strategic plan, establishing or 
        expanding statewide programs of surveillance, screening and 
        diagnosis, prevention, and clinical intervention and support 
        for individuals with FASD and their families.
            ``(2) Eligibility.--To be eligible to receive a grant, 
        contract, or cooperative agreement under paragraph (1), a State 
        shall prepare and submit to the Secretary an application at 
        such time, in such manner, and containing such information as 
        the Secretary may require. The application shall include--
                    ``(A) evidence of the establishment of a State 
                advisory group composed of State agencies, local 
                governmental entities, and Indian Tribes and Tribal 
                organizations; and
                    ``(B) private sector stakeholders whose purpose is 
                to develop a statewide strategic plan and make 
                recommendations for the prevention of FASD, screening 
                and diagnosis, and clinical intervention and support 
                for individuals with FASD and their families.
            ``(3) Strategic plan.--The statewide strategic plan 
        required under paragraph (1) shall include--
                    ``(A) identification of existing State and local 
                programs and systems that could be used to identify and 
                assist individuals with FASD, related conditions, and 
                prevent alcohol consumption during pregnancy;
                    ``(B) identification of barriers to access to FASD 
                diagnostic services or to programs to assist 
                individuals with FASD or women at risk for substance 
                abuse and alcohol-exposed pregnancies; and
                    ``(C) proposals to eliminate barriers to prevention 
                and treatment programs.
            ``(4) Restrictions on and use of funds.--Amounts received 
        under a grant, contract, or cooperative agreement under 
        paragraph (1) shall be used for one or more of the following 
        activities:
                    ``(A) Providing educational and supportive services 
                to families of individuals and families with FASD.
                    ``(B) Establishing a statewide surveillance system.
                    ``(C) Including FASD education in State, medical, 
                and health care (including mental health care) 
                university programs.
                    ``(D) Collecting, analyzing, and interpreting data.
                    ``(E) Developing, implementing, and evaluating 
                population-based and targeted prevention programs for 
                FASD, including public awareness campaigns.
                    ``(F) Referring individuals with FASD to 
                appropriate support services.
                    ``(G) Implementing recommendations from relevant 
                agencies and organizations, including the State 
                advisory group, on the identification and prevention of 
                FASD, and intervention programs or services for 
                individuals with FASD.
                    ``(H) Providing training to health care (including 
                mental health care) providers on the prevention, 
                identification, and treatment of FASD.
                    ``(I) Disseminating information about FASD and the 
                availability of support services to families and 
                individuals with FASD.
                    ``(J) Other activities, as the Secretary determines 
                appropriate.
            ``(5) Other contracts and agreements.--A State may carry 
        out activities under paragraph (4) through contracts or 
        cooperative agreements with public and private nonprofit 
        entities with a demonstrated expertise in FASD prevention and 
        intervention services.
    ``(e) Promoting Community Partnerships.--
            ``(1) In general.--The Secretary, acting through the 
        Administrator of Health and Resource Services and 
        Administration, shall award grants, contracts, or cooperative 
        agreements to eligible entities to enable such entities to 
        establish, enhance, or improve community partnerships for the 
        purpose of collaborating on common objectives and integrating 
        the services available to individuals with FASD such as 
        surveillance, screening, prevention, treatment, and support 
        services.
            ``(2) Eligible entities.--To be eligible to receive a 
        grant, contract, or cooperative agreement under paragraph (1), 
        a entity shall--
                    ``(A) be a public or private nonprofit entity, 
                which may be--
                            ``(i) a health care provider or health 
                        professional;
                            ``(ii) a primary or secondary school;
                            ``(iii) a social work or child welfare 
                        office;
                            ``(iv) an incarceration, detainment 
                        facility, or judicial system for juveniles and 
                        adults;
                            ``(v) an FASD organization, parent-led 
                        group, or other organization that supports and 
                        advocates for individuals with FASD;
                            ``(vi) an Indian Tribe or Tribal 
                        organization;
                            ``(vii) an early childhood intervention 
                        facility;
                            ``(viii) any other entity the Secretary 
                        determines to be appropriate; or
                            ``(ix) a consortium of any of the entities 
                        described in clauses (i) through (viii); and
                    ``(B) prepare and submit to the Secretary an 
                application at such time, in such manner, and 
                containing such information as the Secretary may 
                require, including assurances that the entity 
                submitting the application does, at the time of 
                application, or will, within a reasonable amount of 
                time from the date of application, include substantive 
                participation of a broad range of entities that work 
                with or provide services for individuals with FASD.
            ``(3) Activities.--An eligible entity shall use amounts 
        received under a grant, contract, or cooperative agreement 
        under this subsection to carry out one or more of the following 
        activities:
                    ``(A) Integrating FASD services into existing 
                programs and services available in the community.
                    ``(B) Conducting a needs assessment to identify 
                services that are not available in a community.
                    ``(C) Developing and implementing community-based 
                initiatives to prevent, screen, diagnose, treat, and 
                provide support services to individuals with FASD and 
                their families.
                    ``(D) Disseminating information about FASD and the 
                availability of support services.
                    ``(E) Developing and implementing a community-wide 
                public awareness and outreach campaign focusing on the 
                dangers of drinking alcohol while pregnant.
                    ``(F) Providing mentoring or other support to 
                families of individuals with FASD.
                    ``(G) Other activities, as the Secretary determines 
                appropriate.
    ``(f) Development of Best Practices and Models of Care.--
            ``(1) In general.--The Secretary, in coordination with the 
        Administrator of Health Resources Services Administration, 
        shall award grants to States, Indian Tribes and Tribal 
        organizations, nongovernmental organizations, and institutions 
        of higher education for the establishment of pilot projects to 
        identify and implement best practices for--
                    ``(A) providing early childhood intervention or 
                educating children with FASD, including--
                            ``(i) activities and programs designed 
                        specifically for the identification, treatment, 
                        and education of such children; and
                            ``(ii) curricula development and 
                        credentialing of teachers, administrators, and 
                        social workers who implement such programs and 
                        provide early childhood intervention;
                    ``(B) educating judges, attorneys, probation 
                officers, social workers, child advocates, law 
                enforcement officers, prison wardens, alternative 
                incarceration administrators, and incarceration 
                officials on how to screen, identify, treat, and 
                support individuals with FASD within the child welfare, 
                juvenile, and criminal justice systems, including--
                            ``(i) programs designed specifically for 
                        the identification, treatment, and education of 
                        individuals with FASD; and
                            ``(ii) curricula development and 
                        credentialing within the justice and child 
                        welfare systems for individuals who implement 
                        such programs;
                    ``(C) educating adoption or foster care agency 
                officials about available and necessary services for 
                children with FASD, including--
                            ``(i) programs designed specifically for 
                        screening and identification, treatment, and 
                        education of individuals with FASD; and
                            ``(ii) education and training for potential 
                        adoptive or foster parents of a child with 
                        FASD; and
                    ``(D) educating health and mental health, and 
                substance use, providers about available and necessary 
                services for children with FASD, including--
                            ``(i) programs designed specifically for 
                        screening and identification, and both health 
                        and mental health treatment, of individuals 
                        with FASD; and
                            ``(ii) curricula development and 
                        credentialing within the health and mental 
                        health and substance abuse systems for 
                        individuals who implement such programs.
            ``(2) Application.--To be eligible for a grant under 
        paragraph (1), an entity shall prepare and submit to the 
        Secretary an application at such time, in such manner, and 
        containing such information as the Secretary may reasonably 
        require.
    ``(g) Transitional Services.--
            ``(1) In general.--The Secretary, in coordination with the 
        Administrator of the Health Resources and Services 
        Administration, shall award demonstration grants, contracts, 
        and cooperative agreements to States, Indian Tribes and Tribal 
        organizations, and nongovernmental organizations for the 
        purpose of establishing integrated systems for providing 
        transitional services for adults affected by prenatal alcohol 
        exposure and evaluating the effectiveness of such services.
            ``(2) Application.--To be eligible for a grant, contract, 
        or cooperative agreement under paragraph (1), an entity shall 
        prepare and submit to the Secretary an application at such 
        time, in such manner, and containing such information as the 
        Secretary may reasonably require, including specific 
        credentials relating to education, skills, training, and 
        continuing educational requirements relating to FASD.
            ``(3) Allowable uses.--An entity shall use amounts received 
        under a grant, contract, or cooperative agreement under 
        paragraph (1) to carry out one or more of the following 
        activities:
                    ``(A) Provide housing assistance to, or specialized 
                housing for, adults with FASD.
                    ``(B) Provide vocational training and placement 
                services for adults with FASD.
                    ``(C) Provide medication monitoring services for 
                adults with FASD.
                    ``(D) Provide training and support to organizations 
                providing family services or mental health programs and 
                other organizations that work with adults with FASD.
                    ``(E) Establish and evaluate housing models 
                specially designed for adults with FASD.
                    ``(F) Other services or programs, as the Secretary 
                determines appropriate.
    ``(h) Authorization of Appropriations.--There are authorized to be 
appropriated to carry out this section, such sums as may be necessary 
for each of fiscal years 2020 through 2025.''.
    (b) Services for Individuals With Fetal Alcohol Spectrum 
Disorders.--Subpart 2 of part B of title V of the Public Health Service 
Act (42 U.S.C. 290bb-21 et seq.) is amended by inserting after section 
519B the following:

``SEC. 519C. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL SYNDROME.

    ``(a) In General.--The Secretary may make awards of grants, 
cooperative agreements, or contracts to public and nonprofit private 
entities, including Indian tribes and tribal organizations, to provide 
services to individuals diagnosed with fetal alcohol syndrome or 
alcohol-related birth defects.
    ``(b) Use of Funds.--An award under subsection (a) may, subject to 
subsection (d), be used to--
            ``(1) screen and test individuals to determine the type and 
        level of services needed;
            ``(2) develop a comprehensive plan for providing services 
        to the individual;
            ``(3) provide mental health counseling;
            ``(4) provide substance abuse prevention services and 
        treatment, if needed;
            ``(5) coordinate services with other social programs 
        including social services, justice system, educational 
        services, health services, mental health and substance abuse 
        services, financial assistance programs, vocational services 
        and housing assistance programs;
            ``(6) provide vocational services;
            ``(7) provide health counseling;
            ``(8) provide housing assistance;
            ``(9) parenting skills training;
            ``(10) overall case management;
            ``(11) supportive services for families of individuals with 
        Fetal Alcohol Syndrome and other prenatal alcohol-related 
        disorders;
            ``(12) provide respite care for caretakers of individuals 
        with Fetal Alcohol Syndrome and other prenatal alcohol-related 
        disorders;
            ``(13) recruit and train mentors for individuals with Fetal 
        Alcohol Syndrome and other prenatal alcohol-related disorders;
            ``(14) provide educational and supportive services to 
        families of individuals with Fetal Alcohol Spectrum Disorders; 
        and
            ``(15) provide other services and programs, to the extent 
        authorized by the Secretary after consideration of 
        recommendations made by the Interagency Coordinating Committee 
        on Fetal Alcohol Spectrum Disorders.
    ``(c) Requirements.--To be eligible to receive an award under 
subsection (a), an applicant shall--
            ``(1) demonstrate that the program will be part of a 
        coordinated, comprehensive system of care for such individuals;
            ``(2) demonstrate an established communication with other 
        social programs in the community including social services, 
        justice system, financial assistance programs, health services, 
        educational services, mental health and substance abuse 
        services, vocational services and housing assistance services;
            ``(3) show a history of working with individuals with fetal 
        alcohol syndrome or alcohol-related birth defects;
            ``(4) provide assurance that the services will be provided 
        in a culturally and linguistically appropriate manner; and
            ``(5) provide assurance that at the end of the 5-year award 
        period, other mechanisms will be identified to meet the needs 
        of the individuals and families served under such award.
    ``(d) Relationship to Payments Under Other Programs.--An award may 
be made under subsection (a) only if the applicant involved agrees that 
the award will not be expended to pay the expenses of providing any 
service under this section to an individual to the extent that payment 
has been made, or can reasonably be expected to be made, with respect 
to such expenses--
            ``(1) under any State compensation program, under an 
        insurance policy, or under any Federal or State health benefits 
        program; or
            ``(2) by an entity that provides health services on a 
        prepaid basis.
    ``(e) Duration of Awards.--With respect to an award under 
subsection (a), the period during which payments under such award are 
made to the recipient may not exceed 5 years.
    ``(f) Evaluation.--The Secretary shall evaluate each project 
carried out under subsection (a) and shall disseminate the findings 
with respect to each such evaluation to appropriate public and private 
entities.
    ``(g) Funding.--
            ``(1) Authorization of appropriations.--For the purpose of 
        carrying out this section, there are authorized to be 
        appropriated such sums as may be necessary for each of fiscal 
        years 2020 through 2025.
            ``(2) Allocation.--Of the amounts appropriated under 
        paragraph (1) for a fiscal year, not less than $300,000 shall, 
        for purposes relating to fetal alcohol syndrome and alcohol-
        related birth defects, be made available for collaborative, 
        coordinated interagency efforts with the National Institute on 
        Alcohol Abuse and Alcoholism, the Eunice Kennedy Shriver 
        National Institute of Child Health and Human Development, the 
        Health Resources and Services Administration, the Agency for 
        Healthcare Research and Quality, the Centers for Disease 
        Control and Prevention, the Department of Education, and the 
        Department of Justice.''.
    (c) Prevention, Intervention, and Services in the Education 
System.--
            (1) General rule.--The Secretary of Education shall be the 
        lead Federal official with responsibility over education-
        related issues with respect to children with fetal alcohol 
        spectrum disorders.
            (2) Specific responsibilities.--The Secretary of Education 
        shall direct the Office of Special Education and Rehabilitative 
        Services to--
                    (A) conduct and disseminate training on a 
                nationwide fetal alcohol spectrum disorders 
                surveillance campaign to local educational agencies (as 
                defined in section 8101 of the Elementary and Secondary 
                Education Act of 1965 (20 U.S.C. 7801)) and early 
                childhood education providers in collaboration with the 
                National Center on Birth Defects and Developmental 
                Disabilities under section 399H(b) of the Public Health 
                Service Act (as amended by subsection (a));
                    (B) collect, collate, and disseminate (through the 
                internet website of the Department of Education, at 
                teacher-to-teacher workshops, and through other means) 
                evidence-based practices that are effective in the 
                education and support of children with fetal alcohol 
                syndrome disorders (including any special techniques on 
                how to assist children with fetal alcohol spectrum 
                disorders in both special and traditional educational 
                settings, and including such practices that incorporate 
                information concerning the identification, behavioral 
                supports, teaching, and learning associated with fetal 
                alcohol spectrum disorders) to--
                            (i) education groups such as the National 
                        Association of School Boards, the National 
                        Education Association, the American Federation 
                        of Teachers, the National Association of 
                        Elementary School Principals, and the National 
                        Association of Secondary School Principals;
                            (ii) recipients of a grant under the 21st 
                        Century Community Learning Center program 
                        established under part B of title IV of the 
                        Elementary and Secondary Education Act of 1965 
                        (20 U.S.C. 7171 et seq.) and other after school 
                        program personnel; and
                            (iii) Parent Teacher Associations, Parent 
                        Information and Training Centers, and other 
                        appropriate education organizations;
                    (C) ensure that, in administering the Individuals 
                with Disabilities Education Act (20 U.S.C. 1400 et 
                seq.), parents, educators, and advocates for children 
                with disabilities are aware that children with fetal 
                alcohol spectrum disorders have the right to access 
                general curriculum under the least restrictive 
                environment;
                    (D) collaborate with other Federal agencies to 
                include information or activities relating to fetal 
                alcohol spectrum disorders in programs related to 
                maternal health, health education, and sex education;
                    (E) collaborate with the Secretary of Health and 
                Human Services to ensure that fetal alcohol spectrum 
                disorders prevention grants under section 399H of the 
                Public Health Service Act (as amended by subsection 
                (a)) include education concerning fetal alcohol 
                spectrum disorders in the sexual and health education 
                curricula of schools; and
                    (F) support efforts by peer advisory networks of 
                adolescents in schools to discourage the use of alcohol 
                while pregnant or considering getting pregnant.
            (3) Definition.--For purposes of this subsection, the term 
        ``fetal alcohol spectrum disorders'' has the meaning given such 
        term in section 399H(a) of the Public Health Service Act, as 
        amended by subsection (a).
    (d) Prevention, Intervention, and Services in the Justice System.--
The Attorney General shall direct the Office of Juvenile Justice and 
Delinquency Prevention to--
            (1) develop screening procedures for juveniles who violate 
        laws as described in section 5031 of title 18, United States 
        Code, juveniles with chronic truancy, and other individuals, 
        and conduct training on a nationwide fetal alcohol spectrum 
        disorders surveillance campaign for the Department of Justice 
        in collaboration with the efforts of the National Center on 
        Birth Defects and Developmental Disabilities under section 
        399H(b) of the Public Health Service Act (as amended by 
        subsection (a));
            (2) introduce training curricula on how to most effectively 
        identify and interact with individuals with fetal alcohol 
        spectrum disorders in both the juvenile and adult justice 
        systems, and investigate incorporating information about the 
        identification, prevention, and treatment of the disorders into 
        justice professionals' credentialing requirements;
            (3) promote the tracking of individuals entering the 
        juvenile justice system with at-risk backgrounds that indicates 
        them as high probability for having a fetal alcohol spectrum 
        disorder, especially individuals whose mothers have a record of 
        heavy or binge drinking during pregnancy as reported by the 
        appropriate child protection agency;
            (4) educate judges, attorneys, probation officers, child 
        advocates, law enforcement officers, prison wardens, 
        alternative incarceration administrators, and incarceration 
        officials on how to treat, respond to, and support individuals 
        suffering from fetal alcohol spectrum disorders within the 
        juvenile and adult justice systems, including--
                    (A) programs designed specifically for the 
                identification, treatment, and education of such 
                children;
                    (B) curricula development and credentialing of 
                teachers, administrators, and social workers who 
                implement such programs; and
                    (C) how fetal alcohol spectrum disorders impact an 
                individual's interaction with law enforcement and 
                whether diversionary sentencing options or fetal-
                alcohol-spectrum-disorder-informed interventions and 
                programs for such individuals are appropriate;
            (5) conduct a study on the inadequacies of how the current 
        system processes children with certain developmental delays and 
        subsequently implement alternative methods of incarceration and 
        treatment that are more effective for youth offenders 
        identified to have a fetal alcohol spectrum disorder; and
            (6) collaborate with fetal alcohol spectrum disorders 
        professionals and implement transition programs for juveniles 
        and adults with fetal alcohol spectrum disorders who are 
        released from incarceration.
    (e) Sunset Provision.--Section 399K of the Public Health Service 
Act (42 U.S.C. 280f-3) is amended--
            (1) by striking ``National Task Force have been appointed 
        under section 399H(d)(1)'' and inserting ``Interagency 
        Coordinating Committee on Fetal Alcohol Spectrum Disorders 
        under section 399H-1(c)''; and
            (2) by adding at the end the following: ``Not later than 
        the date that is 4 years after all such members have been 
        appointed, the Secretary shall issue to Congress 
        recommendations on whether the programs under this part should 
        be extended.''.

SEC. 3. INTERAGENCY COORDINATING COMMITTEE ON FETAL ALCOHOL SPECTRUM 
              DISORDERS.

    Part O of title III of the Public Health Service Act (42 U.S.C. 
280F et seq.), as amended by section 2(a), is further amended by 
inserting after section 399H the following:

``SEC. 399H-1. INTERAGENCY COORDINATING COMMITTEE ON FETAL ALCOHOL 
              SPECTRUM DISORDERS.

    ``(a) In General.--The Secretary, acting through the Director of 
the National Institute of Alcohol Abuse and Alcoholism, shall maintain 
the `Interagency Coordinating Committee on Fetal Alcohol Spectrum 
Disorders' (referred to in this section as the `Committee') with both 
Federal and non-Federal members and a chairperson appointed by the 
Director, to coordinate and recommend efforts within the Department of 
Health and Human Services and other relevant Federal departments and 
agencies concerning FASD.
    ``(b) Responsibilities.--In carrying out its duties under this 
section, the Committee shall--
            ``(1) monitor FASD research and services and, to the extent 
        practicable, services and support activities across all 
        relevant Federal departments and agencies, including 
        coordination of Federal activities with respect to FASD;
            ``(2) develop a summary of advances in FASD research 
        related to prevention, treatment, early screening, diagnosis, 
        and interventions;
            ``(3) make recommendations for the FASD research agenda to 
        the Director of the National Institute of Alcohol Abuse and 
        Alcoholism, as described in section 399H(b)(1)(A);
            ``(4) review the 2009 report of the National Task Force on 
        FAS entitled, `A Call to Action', and other reports on FASD and 
        make recommendations on a national strategic plan to reduce the 
        prevalence and the associated impact of FASD and improve the 
        quality of life for individuals living with FASD, which shall 
        include--
                    ``(A) proposed Federal budgetary requirements for 
                FASD research and related services and support 
                activities for individuals with FASD;
                    ``(B) recommendations to ensure that FASD research, 
                and services and support activities to the extent 
                practicable, of the Department of Health and Human 
                Services and of other Federal departments and agencies 
                are not unnecessarily duplicative;
                    ``(C) identification of gaps or barriers for 
                individuals living with, or impacted by, FASD in 
                accessing diagnostic, early intervention, and support 
                services;
                    ``(D) identification of prevention strategies, 
                including education campaigns and options, such as 
                product warnings and other mechanisms to raise 
                awareness of the risks associated with prenatal alcohol 
                consumption;
                    ``(E) identification of best practice approaches to 
                reduce the incidence of FASD; and
                    ``(F) identification of best practice approaches 
                and models of care to increase support and treat 
                individuals with FASD, and their families; and
            ``(5) submit to Congress and the President--
                    ``(A) an update on the summary of advances 
                described in paragraph (3), one year after the date of 
                enactment of the Advancing FASD Research, Prevention, 
                and Services Act;
                    ``(B) an update to the national strategic plan 
                described in paragraph (4), including any progress made 
                in achieving the objectives outlined in such strategic 
                plan, one year after the date of enactment of the 
                Advancing FASD Research, Prevention, and Services Act; 
                and
                    ``(C) a final report that provides a summary of 
                advances described in paragraph (3) and an update to 
                the national strategic plan described in paragraph (4), 
                not later than September 30, 2025.
    ``(c) Membership.--The Committee shall be composed of 
representatives as described in paragraphs (1) and (2).
            ``(1) Federal membership.--Members of the Committee shall 
        include representatives of the following Federal agencies:
                    ``(A) The National Institute on Alcohol Abuse and 
                Alcoholism.
                    ``(B) The Centers for Disease Control and 
                Prevention.
                    ``(C) The Health Resources and Services 
                Administration.
                    ``(D) Other agencies with responsibilities for 
                FASD, substance use prevention and treatment, maternal 
                health, child health and welfare, and rehabilitative 
                services, which may include Federal agencies that 
                interact with individuals with FASD in the educational 
                and correctional systems.
            ``(2) Non-federal members.--Additional non-Federal public 
        and private sector members of the Committee shall be appointed 
        by the Director of the National Institute on Alcohol Abuse and 
        Alcoholism, including--
                    ``(A) one individual with FASD or a parent or legal 
                guardian of an individual with FASD;
                    ``(B) one representative of the National 
                Organization on Fetal Alcohol Syndrome and one 
                representative of a leading statewide advocacy and 
                service organization for individuals with FASD;
                    ``(C) one representative of the FASD Center of 
                Excellence established under section 399H-2, and one 
                representative of a State advisory group engaged in 
                building a State FASD system pursuant to section 
                399H(d); and
                    ``(D) multiple individuals with expertise on FASD 
                who will serve as representatives of private sector 
                organizations that engage on FASD issues on behalf of 
                pediatricians, obstetricians and gynecologists, mental 
                health care providers, family court judges, juvenile 
                judges and justice programming and services, and 
                special education and social work professionals.
    ``(d) Authorization of Appropriations.--There are authorized to be 
appropriated to carry out this section such sums as may be necessary 
for each of fiscal years 2020 through 2025.''.

SEC. 4. FASD CENTER OF EXCELLENCE.

    (a) In General.--Part O of title III of the Public Health Service 
Act (42 U.S.C. 280f et seq.), as amended by section 3, is further 
amended by inserting after section 399H-1 the following:

``SEC. 399H-2. FASD CENTER OF EXCELLENCE.

    ``(a) In General.--The Secretary, in consultation with the 
Assistant Secretary for Mental Health and Substance Use, the 
Administrator of the Health Research and Services Administration, and 
the Director of the Centers for Disease Control and Prevention, shall 
make an award of a grant, cooperative agreement, or contract to a 
public or nonprofit entity with demonstrated expertise in FASD 
awareness, prevention and intervention services. Such award shall be 
for the purpose of establishing an FASD Center of Excellence to build 
local, State, and national capacities to prevent the occurrence of 
FASD, including disorders and birth defects related to combined abuse 
of alcohol and other substances, and to respond to the needs of 
individuals and their families that carry out the following:
            ``(1) Initiating or expanding diagnostic capacity of FASD 
        by increasing screening, identification, and diagnosis of 
        individuals with FASD in clinical practices, educational 
        settings, child welfare, and juvenile and correctional systems.
            ``(2) Providing an internet-based resource center that 
        disseminates ongoing technical assistance, resource 
        development, and peer and cross-State training on FASD.
            ``(3) Conducting media outreach and media training to raise 
        public awareness of the risks associated with alcohol 
        consumption during pregnancy with the purpose of reducing the 
        prevalence of FASD.
            ``(4) Acting as a clearinghouse on FASD prevention and 
        intervention practices and services and maintaining a national 
        resource directory.
            ``(5) Developing and disseminating information and 
        resources for training community leaders, mental health and 
        substance abuse professionals, families, law enforcement 
        personnel, judges, health professionals, persons working in 
        financial assistance programs, social service personnel, child 
        welfare professionals, and other service providers on the 
        implications of FASD and the early identification of and 
        referral for such conditions.
            ``(6) Building capacity for State and local affiliates 
        dedicated to FASD awareness and prevention efforts.
            ``(7) Supporting a speakers bureau and other public 
        awareness activities, including social media, for enhanced FASD 
        awareness and prevention efforts.
            ``(8) Providing technical assistance to communities for 
        replicating exemplary comprehensive systems of care for 
        individuals with FASD developed under section 399H(e).
            ``(9) Providing technical assistance to communities for 
        replicating best practice pilot projects developed under 
        section 399H(f).
            ``(10) Providing technical assistance to States in 
        developing statewide FASD strategic plans, establishing or 
        expanding statewide programs of surveillance, screening and 
        diagnosis, prevention, and clinical intervention and support 
        for individuals with FASD and their families under section 
        399H(d).
            ``(11) Developing a comprehensive FASD database of clinics 
        across the United States, in accordance with applicable privacy 
        requirements.
            ``(12) Carrying out other functions, to the extent 
        authorized by the Secretary, after consideration of 
        recommendations of the Interagency Coordinating Committee on 
        Fetal Alcohol Spectrum Disorders in the national strategic plan 
        under section 399H-1(b)(4).
    ``(b) Application.--To be eligible for a grant, contract, or 
cooperative agreement under paragraph (1), an entity shall prepare and 
submit to the Secretary an application at such time, in such manner, 
and containing such information as the Secretary may reasonably 
require, including specific credentials relating to FASD resource 
development and dissemination, care coordination and the coordination 
of clinical services, technical assistance, administration of partner 
networks, and other such FASD-specific expertise.
    ``(c) Subcontracting.--A public or private nonprofit may carry out 
the activities under subsection (a) through contracts or cooperative 
agreements with other public and private nonprofit entities with 
demonstrated expertise in FASD prevention and intervention services.
    ``(d) Authorization of Appropriations.--There are authorized to be 
appropriated to carry out this section such sums as may be necessary 
for each of fiscal years 2020 through 2025.''.
    (b) Conforming Amendment.--Section 519D of the Public Health 
Service Act (42 U.S.C. 290bb-25d) is repealed.

SEC. 5. AUTHORIZATION OF APPROPRIATIONS.

    Section 399J of the Public Health Service Act (42 U.S.C. 280f-2) is 
amended--
            (1) in subsection (a), by striking ``$27,000,000 for each 
        of the fiscal years 1999 through 2003'' and inserting 
        ``$42,000,000 for fiscal year 2021 and such sums as may be 
        necessary for each of fiscal years 2022 through 2025''; and
            (2) by amending subsection (b), to read as follows:
    ``(b) Interagency Coordinating Committee on Fetal Alcohol Spectrum 
Disorders.--From amounts appropriated for a fiscal year under 
subsection (a), the Secretary may use not to exceed $2,000,000 of such 
amounts for the operations of the Interagency Coordinating Committee on 
Fetal Alcohol Spectrum Disorders under section 399H-1.''.
                                 <all>