Title: Expressing support for a month to be known as Cystic Fibrosis Awareness Month, and for other purposes.
Policy area: Health

Summary:
Supports the designation of Cystic Fibrosis Awareness Month. (Cystic fibrosis is an inherited disease that causes persistent lung infections and limits the ability to breathe over time.)
Congratulates the cystic fibrosis community for their dedication to patients.
Recognizes that the care delivery system for cystic fibrosis can be a model for care coordination.
Acknowledges the investments and scientific achievements that have improved the lives of cystic fibrosis patients.
Urges researchers, developers, patients, and providers to do everything possible to find a cure for this deadly disease.

[Congressional Bills 115th Congress]
[From the U.S. Government Publishing Office]
[H. Con. Res. 58 Introduced in House (IH)]

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115th CONGRESS
  1st Session
H. CON. RES. 58

Expressing support for a month to be known as Cystic Fibrosis Awareness 
                     Month, and for other purposes.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              May 19, 2017

   Mr. Marino (for himself and Mr. McGovern) submitted the following 
 concurrent resolution; which was referred to the Committee on Energy 
                              and Commerce

_______________________________________________________________________

                         CONCURRENT RESOLUTION


 
Expressing support for a month to be known as Cystic Fibrosis Awareness 
                     Month, and for other purposes.

Whereas cystic fibrosis, commonly referred to as ``CF'', is a genetic disease 
        affecting more than 30,000 children and adults in the United States and 
        nearly 75,000 children and adults worldwide;
Whereas a defective gene causes the body to produce an abnormally thick, sticky 
        mucus that clogs the lungs, and these secretions produce life-
        threatening lung infections and obstruct the pancreas, preventing 
        digestive enzymes from reaching the intestines to help break down and 
        absorb food;
Whereas there are approximately 900 new cases of CF each year in the United 
        States;
Whereas infant blood screening to detect genetic defects is the most reliable 
        and least costly method to identify individuals likely to have one of 
        1,800 different CF mutations;
Whereas early diagnosis of CF permits early treatment and enhances quality of 
        life, longevity, and treatment;
Whereas CF impacts families as well as patients because of the intense daily 
        disease management protocols patients must endure;
Whereas there are more than 120 world-class treatment centers with highly 
        trained and dedicated providers in the United States that specialize in 
        delivering high-quality, coordinated care for CF patients and their 
        families;
Whereas the number of adults with CF has steadily grown and the median age of 
        survival for a person with CF is now nearly 40 years of age in the 
        United States;
Whereas innovative precision medicines and treatments have greatly improved and 
        extended the lives of CF patients; and
Whereas May would be an appropriate month to establish as ``Cystic Fibrosis 
        Awareness Month'': Now, therefore, be it
    Resolved by the House of Representatives (the Senate concurring), 
That the House of Representatives--
            (1) supports the designation of ``Cystic Fibrosis Awareness 
        Month'';
            (2) congratulates the CF community for their unrelenting 
        dedication to patients;
            (3) recognizes that the CF care delivery system can be a 
        model for building better care coordination in the larger 
        health care system;
            (4) acknowledges the tremendous investment and scientific 
        achievements that have significantly improved CF patients' 
        lives;
            (5) urges researchers, developers, patients and providers 
        to do everything possible to find a cure for this deadly 
        disease; and
            (6) encourages the people of the United States to observe 
        ``Cystic Fibrosis Awareness Month'' with appropriate ceremonies 
        and activities that promote awareness of the disease.
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