Gelişimsel yetersizliği olan çocuk annelerinin aile yaşam kalitesi algılarının incelenmesi
The examination of the family quality of life perceptions of mothers who have children with disabilities
Yazar: BEKİR FATİH MERAL
Danışman: DOÇ. DR. ATİLLA CAVKAYTAR
Anadolu Üniversitesi / Eğitim Bilimleri Enstitüsü / Özel Eğitim Ana Bilim Dalı
Derece: Doktora, 2011
Konu: Eğitim ve Öğretim = Education and Training
Dizin: Aile desteği = Family support ; Aile eğitimi = Family education ; Aile hayatı = Family life ; Aile sorunları = Family problems ; Aile tutumu = Family attitude ; Büyüme bozuklukları = Growth disorders ; Gelişim = Development ; Sosyal destek = Social support ; Yaşam kalitesi = Quality of life ; Çocuk gelişimi = Child development ; Çocuk gelişme bozuklukları = Child development disorders ; Çocuklar = Children ; Özel eğitim = Special education

Özet:
Araştırmanın amacı, gelişimsel yetersizliği olan çocuk annelerinin aile yaşam kalitesi algılarının incelenmesidir. Tarama araştırmasına uygun şekilde yürütülen bu araştırmada, ilişkisel araştırma türünün bir alt boyutu olan ?Nedensel-Karşılaştırmalı Model? kullanılmıştır. Araştırma, amaçlar doğrultusunda dört farklı grupla gerçekleştirilmiştir. Dilsel eşdeğerlik aşamasında 31 anne baba ve ön uygulama/görünüm geçerliliği aşamasında 31 anne katılımcı olmuştur. Beach Center Aile Yaşam Kalitesi Ölçeği'nin geçerlik ve güvenirlik çalışması için 368 anne; aile yaşam kalitesi algısı ile ilgili yordayıcı ilişkilerin incelenmesi aşamasında ise 3009 gelişimsel yetersizliği olan çocuk annesi katılımcı olmuştur.Araştırmanın sosyo-demografik verileri ?Sosyo-Demografik Aile Bilgi Formu?, annelerin aile yaşam kalitesi algılarına ilişkin veriler ?Beach Center Aile Yaşam Kalitesi Ölçeği?, ölçüt bağıntılı geçerlik verileri ?Çok Boyutlu Algılanan Sosyal Destek Ölçeği? ve sosyal destek verileri ?Aile Sosyal Destek Ölçeği? ile toplanmıştır.Araştırma bulguları, BCAYKÖ Türkçe Formu'nun gelişimsel yetersizliği olan çocuk ailelerinin aile yaşam kalitesini ölçmek için güvenilir ve geçerli bir değerlendirme aracı olarak kullanılabileceğini göstermektedir.Gelişimsel yetersizliği olan çocuk annelerinin aile yaşam kalitesi ve alt alan algılarının ortalamanın üzerinde olduğu, en yüksek algısının `aile etkileşimi' alt alanında, en düşük algının ise `fiziksel/materyal/finansal yeterlik' alt alanında olduğu belirlenmiştir.Annelerin aile yaşam kalitesi ve alt alan algılarının yordanmasında, toplam varyansı en çok açıklayan değişkenin ?aile sosyal desteği? olduğu gözlenmiştir. Aylık hane geliri, hane sosyo-ekonomik statü (SES) grubu, gelişimsel yetersizliği olan çocuğun yaşı ve yetersizlik türü değişkenlerinin, annelerin aile yaşam kalitesi ve alt alan algısını yordama gücünün zayıf olduğu görülmüştür. Ancak, fiziksel/materyal/finansal yeterlik alt alanında toplam varyansın açıklanmasında aile sosyal desteğinden sonra aylık gelirin önemli bir yordayıcı olduğu belirlenmiştir. Anne yaşı ve annenin çalışma durumu değişkenlerinin ise annelerin aile yaşam kalitesi ve alt alan algısının önemli bir yordayıcısı olmadığı belirlenmiştir.Anahtar Kelimeler: Aile Yaşam Kalitesi, Aile Sosyal Desteği, Anne Algısı, Gelişimsel Yetersizliği Olan Çocuk.

Abstract:
The purpose of this study is to examine family quality of life perceptions of mothers who have children with disabilities in Turkey. The research group consists of four participant groups who have children with developmental disabilities. In this research ?casual comparative model? is used. In the process of linguistic equalince, the data is gathered from 31 parents and in the process of pilot study/face validity, the data is gathered from 31 mothers. In the process of validity and reliability of Beach Center Family Quality of Life Scale, the data is gathered from 368 mothers. At last, to research the percection of family quality of life and relevent predictive relations, the data is gathered from 3009 mothers who have children with disabilities in Education and Intervention Schools and Autistic Children Education Centers in Turkey.The data were collected by using Socio-demografic Family Information Form for socio-demografic datas, Beach Center Family Quality of Life Scale (BSFQOLS) for family quality of life perceptions of mothers who have children with disabilities, Multidimensional Scale of Perceived Social Support (MSPSS) for criterion validity and Family Supports Scale for social support datas.It is observed that, the Turkish Form of BCFQOLS can be used as a reliable and valid assessment tool to assess Family Quality of Life of parents of indviduals with developmental disabilities in Turkey.It is determined that the family quality of life and sub-domains perceptions of mothers who have children with developmental disabilities is higher than avarage while highest perception in `family interaction? sub-domain and lowest perception in `physical/material/financial? sub-domain were found.In the prediction of family quality of life and sub-domains perceptions of mothers, it is observed that the variable which mostly explaines total variance is family social support. It is seen that family income, socio-economic status (SES), the age of children with developmental disabilities and type of children disability the ability to prediction of family quality of life and sub-domains perceptions of mothers are weak. However, it is determined that family income is a more important prediction factor than family social support while explaining total variance in physical/material/financial well-being sub-domain. It is determined that the age of mother and labour situation of mother are not important prediction in family quality of life and sub-domains perceptions of mothers.Key Words: Children with Developmental Disabilities, Family Quality of Life, Family Social Support, Mother Perception.The purpose of this study is to examine family quality of life perceptions of mothers who have children with disabilities in Turkey. The research group consists of four participant groups who have children with developmental disabilities. In this research ?casual comparative model? is used. In the process of linguistic equalince, the data is gathered from 31 parents and in the process of pilot study/face validity, the data is gathered from 31 mothers. In the process of validity and reliability of Beach Center Family Quality of Life Scale, the data is gathered from 368 mothers. At last, to research the percection of family quality of life and relevent predictive relations, the data is gathered from 3009 mothers who have children with disabilities in Education and Intervention Schools and Autistic Children Education Centers in Turkey.The data were collected by using Socio-demografic Family Information Form for socio-demografic datas, Beach Center Family Quality of Life Scale (BSFQOLS) for family quality of life perceptions of mothers who have children with disabilities, Multidimensional Scale of Perceived Social Support (MSPSS) for criterion validity and Family Supports Scale for social support datas.It is observed that, the Turkish Form of BCFQOLS can be used as a reliable and valid assessment tool to assess Family Quality of Life of parents of indviduals with developmental disabilities in Turkey.It is determined that the family quality of life and sub-domains perceptions of mothers who have children with developmental disabilities is higher than avarage while highest perception in `family interaction? sub-domain and lowest perception in `physical/material/financial? sub-domain were found.In the prediction of family quality of life and sub-domains perceptions of mothers, it is observed that the variable which mostly explaines total variance is family social support. It is seen that family income, socio-economic status (SES), the age of children with developmental disabilities and type of children disability the ability to prediction of family quality of life and sub-domains perceptions of mothers are weak. However, it is determined that family income is a more important prediction factor than family social support while explaining total variance in physical/material/financial well-being sub-domain. It is determined that the age of mother and labour situation of mother are not important prediction in family quality of life and sub-domains perceptions of mothers.Key Words: Children with Developmental Disabilities, Family Quality of Life, Family Social Support, Mother Perception.??