The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care. conditions: Epilepsy conditions: Seizure Disorder conditions: Neurologic Disorder conditions: Rare Diseases studyType: OBSERVATIONAL observationalModel: COHORT timePerspective: CROSS_SECTIONAL count: 1000 type: ESTIMATED name: Clinical care and quality improvement measure: Seizure Frequency measure: Seizure Freedom measure: Quality of Life documentation sex: ALL stdAges: CHILD stdAges: ADULT stdAges: OLDER_ADULT facility: Barrow Neurological Institute Comprehensive Epilepsy Center status: RECRUITING city: Phoenix state: Arizona zip: 85013 country: United States name: Malinda Brooks-Busch, MPH role: CONTACT phone: 602-406-3443 email: Malinda.Brooks-Busch@dignityhealth.org name: Sue Herman, MD role: PRINCIPAL_INVESTIGATOR lat: 33.44838 lon: -112.07404 facility: University of Southern California status: RECRUITING city: Los Angeles state: California zip: 90032 country: United States name: Alissa Maier, MPH role: CONTACT phone: 937-545-2627 email: Alissa.Maier@med.usc.edu name: Christi Heck, MD role: PRINCIPAL_INVESTIGATOR lat: 34.05223 lon: -118.24368 facility: Epilepsy Foundation status: RECRUITING city: Bowie state: Maryland zip: 20716 country: United States name: Kathleen Farrell, MB BCh BAO role: CONTACT phone: 732-832-5983 email: kfarrell@efa.org name: Saniya Griffin role: CONTACT email: elhs@efa.org name: Brandy Fureman, Ph.D role: PRINCIPAL_INVESTIGATOR lat: 38.94278 lon: -76.73028 facility: Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH) status: RECRUITING city: Boston state: Massachusetts zip: 02114 country: United States name: Jason Raymond Smith role: CONTACT phone: 617-726-3311 email: JSMITH114@PARTNERS.ORG name: Daniel Hoch, MD, Ph.D role: PRINCIPAL_INVESTIGATOR lat: 42.35843 lon: -71.05977 facility: Beth Israel Deaconess Medical Center's Comprehensive Epilepsy Program status: NOT_YET_RECRUITING city: Boston state: Massachusetts zip: 02215 country: United States name: Jennifer Sabbagh role: CONTACT phone: 617-975-8545 email: jsabbagh@bidmc.harvard.edu name: Bernard Chang, M.D., M.M.Sc. role: PRINCIPAL_INVESTIGATOR lat: 42.35843 lon: -71.05977 facility: Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC) status: NOT_YET_RECRUITING city: Cincinnati state: Ohio zip: 45229 country: United States name: Naima Griffin role: CONTACT phone: 513-636-9933 email: naima.griffin@cchmc.org name: Katie Holland role: PRINCIPAL_INVESTIGATOR lat: 39.12713 lon: -84.51435 facility: University of Cincinnati Gardner Neuroscience Institute Epilepsy Center status: NOT_YET_RECRUITING city: Cincinnati state: Ohio zip: 45267 country: United States name: Lucy Mendoza, CCRP role: CONTACT phone: 513-558-3020 email: mendozlc@UCMAIL.UC.EDU name: David Ficker, MD role: PRINCIPAL_INVESTIGATOR lat: 39.12713 lon: -84.51435 facility: Penn State Hershey status: NOT_YET_RECRUITING city: Hershey state: Pennsylvania zip: 17033 country: United States name: Jessica Beiler, MPH,CCRC role: CONTACT phone: 717-531-5656 email: jbeiler@pennstatehealth.psu.edu name: William Trescher, MD role: PRINCIPAL_INVESTIGATOR lat: 40.28592 lon: -76.65025 facility: Children's Hospital of Philadelphia (CHOP) status: NOT_YET_RECRUITING city: Philadelphia state: Pennsylvania zip: 19104 country: United States name: Nicholas Abend role: CONTACT email: abend@email.chop.edu name: Nicholas Abend, MD, MSCE role: PRINCIPAL_INVESTIGATOR lat: 39.95233 lon: -75.16379 facility: UT Southwestern Children's Dallas status: RECRUITING city: Dallas state: Texas zip: 75063 country: United States name: Bonnie Jenkins, LCSW role: CONTACT phone: 214-456-0614 email: bonnie.jenkins@childrens.com name: Deepa Sirsi, MD role: PRINCIPAL_INVESTIGATOR lat: 32.78306 lon: -96.80667 hasResults: False