also be saved for follow-up or statistical purposes. Personal data such as
contact name or contact e-mail will never be communicated outside the
Regions4PerMed project. Any communication to the Regions4PerMed distribution
list will be handled directly by all the partners. Appropriate observation of
European (EU General Data Protection Regulation 2016/679) and national data
privacy regulations will be ensured. Interviews will be conducted with
selected individuals to further develop specific survey findings or to
complete information gaps;

  * Participatory workshops and conferences (responsible all partners): Data collected on the participants attending workshops will be limited to required registration data (name, organisation, position, etc.). Participants authorisation will be sought before listing publicly their names as attendees to a workshop. This information will be kept until the end of the project. Appropriate observation of European (EU General Data Protection Regulation 2016/679) and national data privacy regulations will be ensured; 

  

  * Outreach, dissemination and exploitation (responsible TLS): The project’s dissemination and communication activities may lead to a set of public and private deliverables. 

  

**4\. Data Management Plan**

#  4.1 Data set references

In accordance with the Article 13 of Regulation EU / 679/16, Regions4PerMed
project partners as independent Data Controllers will collect information
regarding the processing of personal data (name, surname, professional mail
address, professional e-mail, phone number, photo) of participants to surveys
and/or events that are project-related.

Hori

zon

2020  
  
<table>  
<tr>  
<th>

**Responsibility for the data**

</th> </tr>  
<tr>  
<td>

Toscana Life Sciences Foundation (TLS, coordinator)

</td>  
<td>

services@toscanalifesciences.org.

</td> </tr>  
<tr>  
<td>

Regional Foundation for Biomedical Research (FRRB)

</td>  
<td>

privacy@frrb.it

</td> </tr>  
<tr>  
<td>

Sächsisches Staatsministerium für Wissenschaft und Kunst (SMWK)

</td>  
<td>

datenschutzbeauftragter@smwk.sachsen.de

</td> </tr>  
<tr>  
<td>

Axencia de Coñecemento en Saúde (ACIS)

</td>  
<td>

innovacion.acis@sergas.es

</td> </tr>  
<tr>  
<td>

Wroclaw Medical University (WMU)

</td>  
<td>

IOD@umed.wroc.pl

</td> </tr>  
<tr>  
<td>

Urząd Marszałkowski Województwa Dolnośląskiego (UMWD)

</td>  
<td>

umwd@dolnyslask.pl

</td> </tr> </table>

The partners agree to manage their respective data within the aims of Grant
Agreement and

Consortium Agreement, and in compliance with EU Regulation 679/2016. They
mutually

##  D1.6 – ORDP

authorize the data processing necessary to achieve the project deliverables.
The type of data that may be collected to properly manage the project related
activities, are limited to:

  1. financial information of the project parties strictly limited to the project-related expenditure; 

  

  2. personal data of the parties‘ employees, colleagues; 

  

  3. personal data of participants and speakers of the project related activities. In this perspective the data that are concerned by the data management plan are related to personal data of participants and speakers of the project related activities (including newsletter subscription); 

  

  4. the management of the results of the surveys; 

  

  5. the deliverables submitted to the European Officer of the project. 

  

  

The data are collected only to guarantee a proper implementation of the
project as described in the Grant Agreement and Consortium agreement, included
but not limited to, administrative, reporting, dissemination and publication
purposes, organisation of conferences, workshops and in situ visits.

#  4.2 Dataset description

The Regions4PerMed partners have identified the dataset that will be produced
during the different phases of the project.

Hori

zon

2020  
  
<table>  
<tr>  
<th>

**#**

</th>  
<th>

**Dataset Name**

</th>  
<th>

**Responsible Partner**

</th>  
<th>

**Related WP**

</th> </tr>  
<tr>  
<td>

1

</td>  
<td>

DS1: Newsletter subscribers

</td>  
<td>

TLS

</td>  
<td>

7

</td> </tr>  
<tr>  
<td>

2

</td>  
<td>

DS2: Survey/interviews respondents

</td>  
<td>

TLS

</td>  
<td>

7

</td> </tr>  
<tr>  
<td>

3

</td>  
<td>

DS3: Contact list for events (conference and workshop)

</td>  
<td>

All

</td>  
<td>

2-6

</td> </tr>  
<tr>  
<td>

4

</td>  
<td>

DS4: Project deliverables

</td>  
<td>

TLS

</td>  
<td>

7

</td> </tr> </table>

##  4.2.1 Dataset 1

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zon

2020  
  
<table>  
<tr>  
<th>

**DS1 Newsletter subscribers**

</th> </tr>  
<tr>  
<td>

**Data identification**

</td> </tr>  
<tr>  
<td>

Description

</td>  
<td>

This dataset includes the names and mailing list of partners, advisory boards
committee and

Regions4PerMed newsletters recipients.

</td> </tr>  
<tr>  
<td>

Source

</td>  
<td>

The dataset is generated by the subscription to the website of visitors that
sign up for newsletter and by all people that contact the members of the
consortium.

</td> </tr>  
<tr>  
<td>

**Partner responsibilities**

</td> </tr>  
<tr>  
<td>

In charge of the collection

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

In charge of storage

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

**Standards**

</td> </tr>  
<tr>  
<td>

Info about metadata

</td>  
<td>

N/A

</td> </tr>  
<tr>  
<td>

Format and data volume

</td>  
<td>

This dataset will be imported as txt or excel file

</td> </tr>  
<tr>  
<td>

**Data exploitation**

</td> </tr>  
<tr>  
<td>

Main use of the data

</td>  
<td>

The mailing list will be used to disseminate the project newsletter to a
targeted audience.

</td> </tr>  
<tr>  
<td>

Dissemination level

</td>  
<td>

The access to the mailing list will be available to the consortium members
only

</td> </tr>  
<tr>  
<td>

Sharing and re-use

</td>  
<td>

None

</td> </tr>  
<tr>  
<td>

Personal data protection: have you gained (written) consent from data subjects
to collect this information?

</td>  
<td>

The mailing list contains personal data (names and email addresses of
newsletter subscribers, partner and advisory board committee). People
interested in the project voluntarily register, through the project website,
or were directly contacted by the Regions4PerMed partners to receive the
project newsletter with the subscription, they will be asked for consent to
use and store their data.. They can unsubscribe at any time.

</td> </tr>  
<tr>  
<td>

**Archiving and storage**

</td> </tr>  
<tr>  
<td>

Data storage: where? How long?

</td>  
<td>

The dataset will be preserved on the Regions4PerMed reserved area of the
website. The data will be stored for 5 years after the end of the project.

</td> </tr> </table>

D1.7 – Advisory Board

##  4.2.2 Dataset 2

Hori

zon2020  
  
<table>  
<tr>  
<th>

</th>  
<th>

**DS2 Survey/Interviews**

</th> </tr>  
<tr>  
<td>

**Data identification**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Description

</td>  
<td>

This dataset includes results of the surveys

</td> </tr>  
<tr>  
<td>

Source

</td>  
<td>

The survey will be distributed via email to all people that have registered to
the website or participate in Regions4PerMed events.

</td> </tr>  
<tr>  
<td>

**Partner responsibilities**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

In charge of the collection

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

In charge of storage

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

**Standards**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Info about metadata

</td>  
<td>

N/A

</td> </tr>  
<tr>  
<td>

Format and data volume

</td>  
<td>

This dataset will be imported as txt or excel file.

</td> </tr>  
<tr>  
<td>

**Data exploitation**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Main use of the data

</td>  
<td>

This data will be used to assess the progress of the project and help the
consortium planning and tailoring actions to be taken for the achievement of
the expected project results.

</td> </tr>  
<tr>  
<td>

Dissemination level

</td>  
<td>

The access to the mailing list will be available to the consortium members
only.

</td> </tr>  
<tr>  
<td>

Sharing and re-use

</td>  
<td>

None

</td> </tr>  
<tr>  
<td>

Personal data protection: have you gained (written) consent from data subjects
to collect this information?

</td>  
<td>

In the survey the participants will be asked to to share their details and
they will be asked for consent to store and use their data.

</td> </tr>  
<tr>  
<td>

**Archiving and storage**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Data storage: where? How long?

</td>  
<td>

The dataset will be preserved on the Regions4PerMed reserved area of the
website. The data will be stored for 5 years after the end of the project.

</td> </tr> </table>

##  4.2.3 Dataset 3  
  
<table>  
<tr>  
<th>

**DS3 Contact list for events**

</th> </tr>  
<tr>  
<td>

**Data identification**

</td> </tr>  
<tr>  
<td>

Description

</td>  
<td>

This dataset includes information of people who will participate at the
Regions4PerMed events: conferences and workshops, capacity building.

</td> </tr>  
<tr>  
<td>

Source

</td>  
<td>

The dataset includes all members of the interregional committee and all people
registered to the events (website or directly to the events) that will be
invited for the next conference and/or workshop.

</td> </tr>  
<tr>  
<td>

**Partner responsibilities**

</td> </tr>  
<tr>  
<td>

In charge of the collection

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

In charge of storage

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

**Standards**

</td> </tr>  
<tr>  
<td>

Info about metadata

</td>  
<td>

N/A

</td> </tr>  
<tr>  
<td>

Format and data volume

</td>  
<td>

This dataset will be imported as txt or excel file.

</td> </tr>  
<tr>  
<td>

**Data exploitation**

</td> </tr>  
<tr>  
<td>

Main use of the data

</td>  
<td>

This dataset will be used to invite interested participants to the events.

</td> </tr>  
<tr>  
<td>

Dissemination level

</td>  
<td>

The access to the mailing list will be available to the consortium members
only.

</td> </tr>  
<tr>  
<td>

Sharing and re-use

</td>  
<td>

None

</td> </tr>  
<tr>  
<td>

Personal data protection: have you gained (written) consent from data subjects
to collect this information?

</td>  
<td>

The dataset contains personal data (names and email addresses) of people
interested in our events. People interested in the project voluntarily
register, through the project website or are directly contacted by the
Regions4PerMed consortium members. With the subscription, they will be asked
for consent to use and store their data. They can unsubscribe at any time.

</td> </tr>  
<tr>  
<td>

**Archiving and storage**

</td> </tr>  
<tr>  
<td>

Data storage: where? How long?

</td>  
<td>

The dataset will be preserved on the Regions4PerMed reserved area of the
website. The data will be stored for 5 years after the end of the project

</td> </tr> </table>

##  4.2.4 Dataset 4  
  
<table>  
<tr>  
<th>

</th>  
<th>

**DS4 Project deliverables**

</th> </tr>  
<tr>  
<td>

**Data identification**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Description

</td>  
<td>

This dataset includes all the deliverables planned in the Grant Agreement and
submitted via Participant Portal.

</td> </tr>  
<tr>  
<td>

Source

</td>  
<td>

The list of deliverables will be updated by the project coordinators as long
as the deliverables are submitted.

</td> </tr>  
<tr>  
<td>

**Partner responsibilities**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

In charge of the collection

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

In charge of storage

</td>  
<td>

TLS

</td> </tr>  
<tr>  
<td>

**Standards**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Info about metadata

</td>  
<td>

N/A

</td> </tr>  
<tr>  
<td>

Format and data volume

</td>  
<td>

This dataset will be imported as txt or excel file.

</td> </tr>  
<tr>  
<td>

**Data exploitation**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Main use of the data

</td>  
<td>

This data will be used to assess the state of the art of the project.

</td> </tr>  
<tr>  
<td>

Dissemination level

</td>  
<td>

The access to the list of deliverables will be available to the consortium
members only. The public deliverables will be made available on the project
website.

</td> </tr>  
<tr>  
<td>

Sharing and re-use

</td>  
<td>

The public report will be used to disseminate the project on the
Regions4PerMed website and social.

</td> </tr>  
<tr>  
<td>

Personal data protection: have you gained (written) consent from data subjects
to collect this information?

</td>  
<td>

N/A

</td> </tr>  
<tr>  
<td>

**Archiving and storage**

</td>  
<td>

</td> </tr>  
<tr>  
<td>

Data storage: where? How long?

</td>  
<td>

The dataset will be preserved on the Regions4PerMed reserved area of the
website. The data will be stored for 5 years after the end of the project

</td> </tr> </table>

**5\. Conclusion**

This DMP provides an overview of the data that the Regions4PerMed project will
produce and the measures that will be taken to protect the ‘personal data” and
securely store it.

All consortium members agree to manage their respective data, within the aims
of Grant Agreement and Consortium Agreement, and in compliance with EU
Regulation 679/2016.

Personal data will be organized in the private area of the website. in
compliance with the provisions of the EU Regulation 679/16. In particular,
technical and organizational security measures suitable to guarantee the
confidentiality and security will be in place. Exclusively authorised persons
specifically appointed by the individual partners will process the personal
data. For this reason no personal data will be made available outside the
consortium. The data will be kept for the period necessary to achieve the
purposes listed above, and in any case for a period not exceeding 5 years
after the closure of the project.