# Development of a MyData Platform Based on the Personal Health Record Data Sharing System in Korea
## 2 Related Work  
The UK government announced the MIDATA action plan along with a consumer empowerment strategy called 'Better Choices, Better Deals' [8]. The goal of the MIDATA initiative is to allow consumers to control their own data and allow them to find companies supplying the best services using specific types of data. In the field of healthcare, it has been suggested that individuals could share their health indicators such as blood pressure and blood sugar using the MIDATA platform [9]. This type of data sharing was also developed and demonstrated in 'Mi-Health', which supports long-term care and telemedicine. Mi-Health also provides various recommended services based on health data analysis [10].  
Sweden provides a variety of services required for long-term care through a patient-accessible electronic health records (EHRs) system called Journalen. In this system, patients can access their EHRs and share EHRs with entities of their choice [11].  
Australia has developed a personally controlled EHR system that shares EHRs as component of health services, which later evolved into the My Health Record' system (MHS) [12]. The MHS allows patients and medical providers to check patient health records. Australians who do not opt out can retain their health information within the MHR system and can also select medical institutes that can access their MHRs online and manage uploaded data items [13].  
A wide range of medical health data can be used to prevent and manage diseases and contribute to the development of the medical industry. However, such data have not been sufficiently utilised based on legal and institutional issues. The lack of information exchange between institutions in South Korea has also hindered development. Additionally, it has been reported that there is resistance to disclosing medical data to other individuals or institutes. This difficulty in accessing medical data has prevented the effective utilization of medical health data [14].  
The personal health record (PHR) is recognised as a solution for the enhanced management of individual health and as a tool for empowering patients in correlation with healthcare providers by providing accurate medical histories [15]. However, despite these expectations, there is insufficient evidence that PHRs increase patient engagement and improve clinical outcomes [16]. In South Korea, several PHR systems that allow individuals to access their medical data have been developed. However, it is still difficult to identify tangible achievements related to the utilization of PHRs [17].  
Previous studies have reported that increasing the utilization of patient health data requires an interconnected architecture and patient-centric design [18; 19]. It is also important to establish an efficient infrastructure to manage and share data to generate tangible value by making the most effective use of individual medical data [20]. Therefore, data utilization measures should be considered based on consent to use personal information and data usability. It is necessary to provide personalized service architecture based on individual health data in the Mydata system.  
This research project aimed to establish and demonstrate a system in which individuals can select data-sharing institutions and control a range of data utilization parameters under the MyData system. It was designed to identify the usage status of individual health data through PHR scenarios in the MyData system. Additionally, user satisfaction and intention-to-use analyses were performed with a focus on various benefits provided through data ownership. The presented results are expected to contribute to baseline data when developing future PHR-related systems.