EU health programme - 2012 call for proposals : abstracts of the actions selected for EU co-funding.
Date: 2014-03-31
Institutions: Consumers, Health, Agriculture and Food Executive Agency
Subjects: activity report, disease prevention, health policy, information policy, invitation to tender, organisation of research, public health, research programme, research project

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EU Health Programme:

2012 Call for Proposals

Abstracts of the actions selected 
for EU co-funding 

Consumers 
Health and Food 
Executive Agency 

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European Commission; Executive Agency for Health and Consumers (EAHC)

Programme of Community action in the ﬁeld of Public Health; 

Projects funded under call for proposal 2012

2014 – 152 pp. – 21.0 × 29.7 cm

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ISBN 978-92-9200-031-8
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Reproduction is authorised, except for commercial purposes, provided the source  
is acknowledged.
Printed in Italy

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Table of contents

Introduction  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .   3

1. HEALTH PROMOTION  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .   5

  1.1  Health promotion projects  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .   7

  1.2  Health promotion conferences  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  43

  1.3  Health promotion joint actions  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  51

2. HEALTH INFORMATION  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  57

  2.1  Health information conferences  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  59

3.  HEALTH SECURITY  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  73

  3.1  Health security projects  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  75

  3.2  Health security joint actions  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  81

4. OPERATING GRANTS  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  89

  4.1  Health promotion operating grants  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  91

  4.2  Health information operating grants  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  113

  4.3  Health security operating grants  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  129

Main beneficiaries by country of establishment  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  135

Index  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  141

  1. Project list  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  142

  2. Keywords list  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  146

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Introduction

Important  factors  in  public  health  range  from  the 
food we eat, the life-styles we lead, the efficiency 
– and availability – of health services to the levels 
of  expertise  in  diagnosing  and  tackling  diseases 
and caring for patients.

sis, or strengthening the capacities of occupational 
health  professionals  to  improve  the  health  of  the 
ageing  workforce.  It  also  supports  awareness  of 
the rights of patients

This  brochure  offers  an  overview  on  some  of  the 
projects that the European Commission is currently 
backing  to  help  improve  the  health  of  its  citizens 
in these areas.

The  projects  are  funded  under  the  Programme  of 
Community Action in the Field of Public Health bet-
ter known as the EU Health Programme. 

With  a  budget  of  321.5  million  euro  for  2008–
2013,  the  programme  touches  on  a  wide  variety 
of  actions:  from  discouraging  the  use  of  tobacco 
or the abuse of alcohol to refining the care of pa-
tients  with  Alzheimer’s  disease,  from  deploying 
TeleHealth  services  to  strengthening  Europe’s  de-
fences against epidemics.

The  programme  aims  to  overcome  inequalities 
across  Europe  by,  for  instance,  promoting  healthy 
eating and physical activity in local communities or 
by providing facilities for children with major organ 
disease.  It  promotes  research  and  treatment  on 
rare diseases and on widespread health challenges 
such  as  cardiovascular  disease  or  cancer.  It  as-
sists in finding responses to specific health issues 
such  as  HIV  among  men  who  have  sex  with  men, 
or  easing  the  lives  of  people  with  multiple  sclero-

The  projects  presented  in  this  brochure  have  all 
been  funded  in  the  second  phase  of  the  Health 
Programme.  Approximately  13  million  euro  were 
provided  under  the  2012  call  for  proposals.  Con-
ferences  and  operating  grants  to  health-related 
organisations are included. 

All  projects  aim  to  improve  citizens’  health  secu-
rity,  promote  health,  reduce  health  inequalities,  
or  generate  and  disseminate  health  information 
and  knowledge,  and  all  of  them  have  a  European 
level,  bringing  together  partners  from  European  
countries.

A  high  level  of  human  health  protection  is  one  of 
the European Union’s objectives and its role in sup-
porting Member States in this task was reinforced 
by the Treaty of Lisbon.

The  projects  highlighted  in  this  brochure  are  an 
important  part  of  how  the  EU  is  carrying  out  its 
duties.

More  information  is  available  from  the  Consum-
ers  Health  and  Food  Executive  Agency  –  Chafea 
(http://ec.europa.eu/Chafea),  which  manages  the 
programme for the Commission. 

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C H A P T E R  1

Health

Promotion

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C H A P T E R  1

1 .1 H E A LT H P RO M OT IO N P ROJEC T S

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H E A L T H   (cid:24)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 01

AN EU RARE DISEASES REGISTRY FOR NIEMANN—PICK 

DISEASE TYPE A, B AND C. ™NPDRš 

Abstract 

 General objectives
Accurate  and  timely  diagnosis,  treatment,  and  re-
search  are  vital  for  Niemann-Pick  disease  (NPD) 
type  A,  B  &  C.  An  EU  registry  containing  clinical, 
genetic  diagnostic  and  outcome  data  will  help  to 
establish  the  characteristics,  management  and 
outcomes of these overlapping but distinct diseas-
es, and to assess effectiveness and quality of care. 
It  will  ease  recruitment  to  interventional  studies, 
establish  genotype-phenotype  correlations,  and 
assure  links  to  rapid  biochemical  testing,  improv-
ing information and education.

Strategic relevance and contribution to the  
public health programme
The registry will provide access to biochemical and 
genetic testing, as well as education of health pro-
fessionals  and  empowerment  of  patients.  The  in-
ventorying  of  rare  diseases  will  support  research 
and  clinical  development  in  European  centres  of 
expertise,  and  empower  patient  organisations  as 
partners.  Over  time  it  can  contribute  to  sustaina-
bility, underpinning a European Reference Network 
for  NPD  diseases,  and  improving  health  outcomes 
and  Healthy  Life  Years,  in  line  with  the  Lisbon 
Strategy.

It will contribute to the Second Health Programme 
through  increased  knowledge  on  these  diseases, 
as  a  result  of  pooling  data  on  larger  number  of 
patients. It will support research and the effective 
dissemination  of  results.  And  it  will  support  advo-
cacy  at  European  and  national  level  for  improved 
quality of services.

Methods and means
Validated,  quantitative  questionnaires  and  focus 
groups  of  health  professionals  will  identify  what 
support centres will require for submitting data to 
the registry. Consensus on a core dataset will per-
mit  development  of  a  multifunctional  web-based 
registry  with  user-friendly  access.  Testing  oxidised 
cholesterol  samples  from  patients  with  known  di-
agnosis  will  make  it  possible  to  validate  a  new, 
fast,  and  sensitive  biochemical  diagnostic  test  for 
NPD type C. At the same time, the project will har-
monise  sphingomyelinase  assay  for  NPD  type  A 
&  B  throughout  Europe.  Questionnaires  and  focus 
groups  for  patients  and  health  professionals  will 
help identify their learning and information needs, 
leading  to  high-quality  educational  material  and 
patient information. 

Expected outcomes
The  volume  and  quality  of  clinical  research  in  NP 
diseases  will  grow  significantly,  and  the  registry 
will  also  assist  exploration  of  the  mechanisms 
underlying  common  neurodegenerative  disorders, 
transforming understanding and prognosis of these 
rare  diseases.  Increased  visibility  for  NPD  among 
the research and health provider communities will 
drive increased clinical effectiveness of services for 
patients. Data will also help refine assessments of 
the clinical effectiveness and cost-effectiveness of 
standard  care,  high  cost  drugs  and  new  interven-
tions,  and  identify  disparities  between  health  care 
outcomes at different European centres, leading in 
turn to improved quality of care.

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Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicable diseases

•	 Health	system	within	Healthcare
•	 Treatment	within	Methods
•	 Diagnostic	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

MAIN BENEFICIARY:
University Hospitals Birmingham NHS Foundation 
Trust 
Queen Elizabeth Hospital, Queen Elizabeth 
Medical Centre, 
PO-Box 
UK – B15 2TH Birmingham 
United Kingdom 
Tel: +44 7979127826 
Fax: +44 121551925 

PROJECT LEADER: 
Tarekegn Hiwot 
E-mail: tarekegn.hiwot@uhb.nhs.uk 

ASSOCIATED PARTNERS: 
•	 Children’s	University	Hospital,	Ireland
•	 European	section	of	the	International	Niemann-

Pick Disease Alliance, United Kingdom

•	 Fundació	Clínic	per	a	la	Recerca	Biomèdica,	

Spain

•	 Fundación	Niemann	Pick	de	España,	Spain
•	 Niemann-Pick	Disease	Group	(UK),	 

United Kingdom

•	 Niemann-Pick	Selbsthilfegruppe	Deutschland,	

Germany

•	 Pitie-Salpetriere	Hospital,	France
•	 University	Hospital	“Santa	Maria	della	

Misericordia”, Italy

•	 University	Hospital	of	Heidelberg,	Germany
•	 Univerzita	Karlova	v	Praze,	Czech	Republic

MAXIMUM EC CONTRIBUTION: 
1,199,597.73€

DURATION: 
42 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 2

EUROPEAN NETWORK AND REGISTRY FOR 

HOMOCYSINURIAS AND METHYLATION DEFECTS ˜E™HODš 

Abstract 

 General objectives
This  network  aims  to  reduce  variation  between 
countries  and  allow  patients,  wherever  they  live, 
to  access  the  necessary  expertise  and  services. 
Collecting  clinical  data  in  a  registry  will  improve 
knowledge,  and  will  permit  the  development  of 
recommendations  on  diagnosis  and  clinical  care. 
Recommendations will also be developed for eval-
uating the newborn screening (NBS) programme.

Strategic relevance and contribution to the  
public health programme
E-HOD,  the  first  registry  covering  these  rare  dis-
eases,  adds  value  to  EU  reflections  on  reference 
networks  and  registries  and  on  NBS  programmes 
–  fields  currently  marked  by  diverse  national 
methodologies.  It  is  also  a  pioneering  approach 
to  building  a  registry  with  improved  sustainability 
and bringing together researchers, regulators, and 
payers,  promoting  orphan  drug  follow-up  through 
developing  public/private  partnerships.  Its  adverse 
events  reporting  mechanism  will  also  provide  a 
service  that  is  feasible  only  at  Europe-wide  level, 
given the low number of patients and the complex-
ity of the diseases. 

Methods and means
The new registry will take advantage of the E-IMD 
registry IT and experience, and add new data sets 
to it that are specific to these diseases, contributed 
by partners at country or regional level. Data anal-
ysis will focus on natural history and outcome, and 
differences  between  centres  and  countries,  and 
consensus  care  protocols  will  be  developed  to  ad-
dress  inequalities.  The  accuracy  and  methodology 
of  NBS  programmes  in  7  European  countries  will 
be assessed, and a public website will be created. 

Expected outcomes
The  intended  impact  is  improved  access  to  rapid 
diagnosis  and  care  for  patients  with  HCUs  and 
MDs;  the  E-HOD  philosophy  is  that  all  patients  in 
all  member  states  should  have  an  equal  right  to 
the  best  up-to-date  care.  E-HOD  will  help  make 
this  happen  by  measuring  and  evaluating  current 
management  strategies  and  outcome  of  patients 
in at least 11 European countries, to better under-
stand these diseases, to optimise current treatment 
strategies,  and  to  initiate  cohort  clinical  studies. 
Evidence-based  and  consensus-agreed  diagnostic 
and  management  protocols  will  increase  trans-
parency  for  patients  and  experts,  and  harmonise 
current approaches. Patients and patient organisa-
tions  will  be  empowered  through  the  provision  of 
up-to-date information in their own language.

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Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicable diseases

•	 Health	system	within	Healthcare
•	 Diagnostic	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

ACTION WEBSITE: 
http://www.e-hod.org/

MAIN BENEFICIARY:
VU University medical center, part of Stichting 
VU-VUmc 
De Boelelaan 1117 
PO-Box 
1081 HV Amsterdam 
Netherlands 
Tel: + 31 204442416 
Fax: + 31 204440305 

PROJECT LEADER: 
Henk Blom 
E-mail: h.blom@vumc.nl 

ASSOCIATED PARTNERS: 
•	 Assistance	Publique	–	Hôpitaux	de	Paris,	France
•	 Centro	de	Investigación	Biomédica	En	Red	de	

Enfermedades Raras, Spain

•	 Children’s	University	Hospital,	Ireland
•	 Faculdade	de	Farmácia	da	Universidade	de	

Lisboa, Portugal

•	 Landeskrankenhaus	Bregenz,	Austria
•	 Orphan	Europe,	France
•	 Ospedale	Pediatrico	Bambino	Gesù,	Italy
•	 Sveučilište	u	Zagrebu,	Medicinski	fakultet,	

Croatia

•	 The	University	of	Manchester,	United	Kingdom
•	 UMC	St	Radboud,	Netherlands
•	 Universitätsldinikum	Heidelberg,	Germany
•	 Univerzita	Karlova	v	Praze,	Czech	Republic

MAXIMUM EC CONTRIBUTION: 
690,793.00€

DURATION: 
39 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 4

PROMOTING HEALTHY EATING AND PHYSICAL ACTIVITY 

IN LOCAL COMMUNITIES •HEPCOM–

Abstract 

 General objectives
The  long  term  aim  is  to  contribute  to  preventing 
overweight and obesity among children and young 
people in the EU. It is widely acknowledged to en-
gage  local  communities  in  a  more  structured  way 
in  order  for  them  to  be  more  active  and  compe-
tent in this area. Therefore it is important to raise 
awareness  and  provide  easy  access  to  good  prac-
tice  on  promoting  healthy  eating  and  physical 
activity  interventions.  This  will  assist  local  com-
munities  and  schools  to  apply  more  strategic  ap-
proaches and use innovative tools and whole com-
munity  approaches  which  are  already  available. 
The overall objective is to increase the quality and 
level  of  local  community  and  school  interventions 
all  over  Europe  on  promoting  healthy  eating  and 
physical activity among children and young people, 
by up scaling good practice and results from previ-
ous  and  current  PHP  and  other  European  projects, 
based  on  networking  and  dissemination,  through 
the  development  of  a  sustainable  European  web 
based learning platform.

Strategic relevance and contribution to the  
public health programme
The  strategic  relevance  of  HEPCOM  is  that  it  will 
network a broad range of former and existing PHP 
and  other  European  projects,  proposing  a  struc-
tured and common way of gathering and dissemi-
nating  valuable  learning  and  good  practice  tools 
from  these  projects.  The  High  Level  Group  on  Nu-
trition  and  Physical  Activity  and  the  Platform  for 
Action  on  Diet,  Physical  Activity  and  Health  will 
benefit from the project and the web based learn-
ing platform, as it will give easy and structured ac-
cess to good practice results, and will at the same 
time serve as a good information channel towards 
local  communities  and  schools.  In  the  future  the 
web based learning platform will be a valuable and 
sustainable  tool  to  reach  regional  authorities  and 
local communities with good practice tools.

Methods and means
HEPCOM  starts  with  a  needs  analysis  in  order  to 
get an overview of local communities and school’s 
needs concerning interventions on reducing obesity 
among  children  and  young  people.  An  update  will 
be  made  of  the  EU-wide  overview  of  community-
based initiatives to reduce childhood obesity, which 
will  provide  a  solid  basis  for  monitoring  results 
and  learning  aspects  from  other  projects.  Next, 
a  GAP  analysis  will  demonstrate  missing  links. 
With  this  information  the  first  version  of  the  web 
based learning platform will be developed, contain-
ing  online  good  practice  tools  for  developing  and 
evaluating interventions. This version will be tested 
within  45  local  community  pilots  in  15  European 
countries. Based on the evaluation the final version 
of the learning platform will be developed. Through 
national seminars and a final European conference 
the  final  version  of  the  web  based  learning  plat-
form  will  be  presented  to  a  broader  audience  and 
launched for future use.

Expected outcomes
The  expected  outcome  will  be  to  support  through 
the  web  based  learning  platform  a  substantial  up 
scaling  of  good  practice  tools  from  former  and 
existing  European  projects.  HEPCOM  will  support 
important  qualification  processes  on  local  level, 
which will lead to a substantial increase in the lev-
el of community and school based health promot-
ing interventions on promoting healthy eating and 
physical activity for children and young people. The 
learning platform will provide a solid basis for sus-
tainable  networking  between  projects  and  experts 
and a better uptake, exploitation and up scaling of 
initiatives among local communities around Europe 
that have already been proven successful.

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Keywords and portfolio

KEYWORDS:
•	 Obesity	within	Nutrition	within	Lifestyle
•	 Children	within	Target	groups
•	 Adolescents	within	Target	groups
•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Nutrition	and	physical	activity	within	Fostering	

good health

ACTION WEBSITE: 
http://hepcom.eu/

MAIN BENEFICIARY:
CBO B.V. 
Churchilllaan 11 
PO-Box 
3527 GV Utrecht 
Netherlands 
Tel: + 31 302843900 
Fax: + 31 302943644 

PROJECT LEADER: 
Goof Buijs 
E-mail: g.buijs@cbo.nl 

ASSOCIATED PARTNERS: 
•	 Aarhus	University,	Denmark
•	 Bergen	University	College,	Norway
•	 Business	Solutions	Europa	Belgium	Ltd,	

Belgium

•	 Croatian	National	Institute	of	Public	Health,	

Croatia

•	 Institouto	Ygeias	tou	Paidiou,	Greece
•	 Istituto	Superiore	di	Sanit,	Italy
•	 Leuphana	Universität	Lüneburg,	Germany
•	 Ludwig	Boltzmann	Gesellschaft	GmbH,	Austria
•	 Maastricht	University,	Netherlands
•	 Mykolas	Romeris	University,	Lithuania
•	 National	University	of	Ireland,	Galway,	Ireland
•	 P.A.U.	Education	S.L.,	Spain
•	 South	Denmark	European	Office,	Belgium
•	 Steno	Diabetes	Centre	Ltd.,	Denmark
•	 Stichting	euPrevent	EMR,	Netherlands
•	 Universidade	do	Minho,	Portugal
•	 University	Blaise	Pascal	Clermont-Ferrand	2,	

France

•	 University	College	Syddenmark,	Denmark
•	 University	of	Brighton,	United	Kingdom
•	 University	of	Eastern	Finland,	Finland

MAXIMUM EC CONTRIBUTION: 
1,000,000.00€

DURATION: 
42 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 5

INNOVATING CARE FOR PEOPLE WITH MULTIPLE 

CHRONIC CONDITIONS IN EUROPE ™ICARE4EUš

Abstract 

 General objectives
ICARE4EU  aims  at  increasing  knowledge  about 
models  of  integrated  health  and  social  care  for 
people  with  multiple  chronic  conditions  –  most  of 
whom  are  elderly.  By  describing  and  evaluating 
current  programmes  in  30  European  countries,  it 
will  identify  best  practices  and  conditions  for  suc-
cessful management. It will also design a template 
for  future  monitoring  of  developments  in  the  care 
of chronic multimorbidity. 

Strategic relevance and contribution to the  
public health programme
Its  focus  on  quality  care  and  more  sustainable 
management  for  older  Europeans  fits  the  2012 
work  plan  of  the  European  Innovation  Partnership 
on  Active  and  Healthy  Ageing,  which  notes  that 
innovative  models  of  integrated  care  are  needed 
for people with multiple chronic conditions. The EU 
added value of the project is that its comprehensive 
analysis and regular updating of best practices will 
benefit countries facing the same challenges of an 
ageing population and limited financial and human 
resources for care – as all Member States do.

Methods and means
An  overview  of  European  integrated  care  initia-
tives  addressing  multimorbidity  will  be  provided 
in  a  report.  The  programmes  will  be  evaluated  in 
terms of their focus on patients, their management 
practices and professional competences, the use of 
e-health  technology,  and  their  financing  systems. 
Best  practices  in  terms  of  efficient  use  of  finan-
cial and human resources will be identified. And a 
template  will  be  developed  –  in  collaboration  with 
national institutions – for monitoring developments 
in integrated care for people with multimorbidity. 

Expected outcomes
The information about the state of the art will help 
policy-makers  and  stakeholders  to  plan,  decide 
and  advocate  integrated  care  for  (older)  people 
with  multiple  chronic  conditions.  The  knowledge 
on  key  characteristics  of  effective  and  sustain-
able care that meets the integral needs of people 
with  multiple  chronic  conditions  will  contribute  to 
a  better  understanding,  improved  design,  a  wider 
applicability  and  more  effective  implementation 
of  integrated  care  innovations.  The  best  practices 
identified can serve as exemplary programmes for 
successful  management  of  multimorbidity  among 
(older) European citizens. The template can be used 
by  the  European  Observatory’s  network  for  ongo-
ing updates of multimorbidity chronic illness care.

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15

Keywords and portfolio

KEYWORDS:
•	 Collection	of	Best	Practices	within	Methods
•	 Health	promotion	within	Methods
•	 Prevention	within	Methods
•	 Healthcare
•	 Lifestyle

PORTFOLIO:
•	 Population	groups	within	Health	in	Society

ACTION WEBSITE: 
www.icare4eu.org

MAIN BENEFICIARY:
Netherlands Institute for Health Services 
Research 
Otterstraat 118–124 
3513 CR Utrecht 
Netherlands 
Tel: +31 302729763 

PROJECT LEADER: 
Mieke Rijken 
E-mail: m.rijken@nivel.nl 

ASSOCIATED PARTNERS: 
•	 Istituto	Nazionale	di	Ricovero	e	Cura	per	

Anziani, Italy

•	 Technische	Universität	Berlin,	Germany
•	 University	of	Eastern	Finland,	Finland
•	 University	of	Warwick,	United	Kingdom

MAXIMUM EC CONTRIBUTION: 
1,214,321.03€

DURATION: 
38 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 6

EUROPEAN SURGICAL REGISTRY FOR RARE ENDOCRINE 

TUMOURS ”EUROCRINE• 

Abstract 

 General objectives
EUROCRINE  will  use  a  pan-European  database  to 
decrease  the  morbidity  and  mortality  of  rare  en-
docrine  tumours.  The  extreme  rarity  of  these  tu-
mours  means  that  best  practice  can  be  identified 
only at European level. Comparison of practice and 
outcomes  will  raise  clinical  standards  and  reduce 
differences in practice between member states.

Strategic relevance and contribution to the  
public health programme
The increased theoretical and practical experience 
on collecting data on rare diseases and on dissemi-
nating  results  will  boost  the  impetus  for  pan-Eu-
ropean  recommendations.  The  analysis  could  also 
show whether some of the diseases might be bet-
ter  managed  within  a  European  context,  through 
greater centralisation, and even a European Refer-
ral  Centre  –  an  exercise  that  could  be  of  interest 
for  other  diseases.  The  project  will  contribute  to 
the public health programme because it will accu-
mulate Europe-level knowledge on these tumours, 
so  rare  that  no  single  member  state  can  acquire 
sufficient  experience  to  develop  novel  methods  in 
diagnosis or treatment. 

Methods and means
Interviews  with  key  persons  within  existing  regis-
tries and networks will contribute to the design of 
the registry. A workshop will review variables to be 
captured  and  the  design  of  the  database,  leading 
to  a  specification,  and  to  a  pilot  phase  with  three 
countries.  Information  will  be  provided  through 
congresses, printed material, advertisements and a 
web-site. After 18 months, a statistical evaluation 
of  data  will  be  performed,  including  comparative 
data for participating countries, and results will be 
presented  at  a  specific  conference.  A  statement 
will be published and widely disseminated. And an 
administration and finance plan will be drafted for 
making the database sustainable.

Expected outcomes
By  including  all  major  university  surgical  depart-
ments from the associated countries, the web-site 
will  be  a  node  for  patients,  patient  organisations, 
doctors  and  specialist  departments.  It  will  offer 
web-based  data  entry  for  registry  of  rare  endo-
crine  tumours  across  Europe,  and  public  informa-
tion  about  these  diseases  and  about  participat-
ing  surgical  departments.  It  will  help  in  recruiting 
sufficient numbers of patients with rare endocrine 
tumours, and will allow quantification of individual 
pathologies,  joint  analysis  of  comparable  health 
data and outcomes at European and national level, 
and recommendations for best practice.

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Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicable diseases

•	 Health	system	within	Healthcare
•	 Treatment	within	Methods
•	 Diagnostic	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

ACTION WEBSITE: 
http://www.eurocrine.eu/

MAIN BENEFICIARY:
Region Skåne 
Getingevägen	4	
PO-BOX 0 
SE 221 85 Lund 
Sweden 
Tel: +46 46 17 10 00 

PROJECT LEADER: 
Anders Bergenfelz 
E-mail: anders.bergenfelz@med.lu.se 

ASSOCIATED PARTNERS: 
•	 Association	Francophone	de	Chirurgie	

Endocrinienne, France

•	 Belgian	Section	of	Endocrine	Surgery,	Belgium
•	 British	Association	of	Endocrine	and	Thyroid	

Surgeons, United Kingdom

•	 Deutsche	Gesellschaft	für	Allgemein-	und	

Viszeralchirurgie e. V., Germany

•	 Jagiellonian	University	Medical	College,	Poland

MAXIMUM EC CONTRIBUTION: 
700,000.00€

DURATION: 
39 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 7

EUROPEAN TREATMENT & REDUCTION OF ACUTE 

CORONARY SYNDROMES COST ANALYSIS ›EUROTRACSœ 

Abstract 

 General objectives
The main objective is an analysis of cost-effective-
ness in terms of cost per Quality-Adjusted Life Year 
(QALY)  saved  by  distinct  approaches  to  coronary 
artery  disease.  The  project  will  assess  the  utility 
of  preventive  interventions  with  the  public  aimed 
at reducing smoking, dyslipidaemia, and hyperten-
sion,  and  of  optimal  use  of  coronary  angiography 
and  percutaneous  intervention  procedures,  in  the 
management of patients with acute coronary syn-
drome, with special emphasis on the elderly.

Strategic relevance and contribution to the  
public health programme
Policy  makers  will  be  helped  to  design  national 
and  international  public  health  actions  aimed  at 
decreasing  coronary  artery  disease  morbidity  and 
mortality in the most cost-efficient manner. These 
actions  will  in  turn  increase  Europeans’  quality  of 
life  and  longevity.  In  addition,  obtaining  10-year 
estimates of mortality and associated costs will al-
low a more rational allocation of health resources 
in European countries. 

Methods and means
The project will develop a predictive internet-based 
model  to  analyse  10-year  coronary  artery  dis-
ease  event  incidence  obtained  by  modifying  the 
population  prevalence  of  the  targeted  risk  factors 
through public interventions aimed at prevention. It 
will  also  explore  potential  sex-related  differences 
in  the  cost-effectiveness  of  these  interventions. 
In  addition,  an  evaluation  of  in-hospital  coronary 
angiography  and  percutaneous  interventions  to 
treat  acute  coronary  syndrome,  taking  account  of 
prognosis  in  patients  aged  35–64,  65–74,  75–84 
and older than 84 years, will estimate the cost per 
QALY  of  decreasing  in-hospital  case-fatality,  par-
ticularly in patients older than 64 years.

Expected outcomes
The  results  from  this  cost-effectiveness  analysis 
will  ultimately  decrease  disease-related  mortal-
ity,  morbidity  and  costs  and  improve  survival  and 
quality of life for patients in Europe. Identification 
of  the  acute  coronary  syndrome  procedures  as-
sociated  with  the  minimum  in-hospital  mortality 
will  provide  urgently-needed  evidence  to  update 
current guidelines, especially regarding the elderly. 
Successful  implementation  of  the  interventions  to 
reduce  the  prevalence  of  classic  coronary  artery 
disease risk factors will help to eliminate sex-relat-
ed and socioeconomic inequalities in mortality. The 
project will deliver longer-term benefits by contrib-
uting to reduce coronary artery disease morbidity, 
mortality and direct costs.

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Keywords and portfolio

KEYWORDS:
•	 Lifestyle
•	 Methods;	Economic	analysis
•	 Healthcare;	Financing	healthcare
•	 Non	communicables	diseases;	Chronic	 

diseases; Cardiovascular diseases

PORTFOLIO:
•	 Taking	Action	against	Diseases
•	 Major	and	chronic	diseases

ACTION WEBSITE: 
http://www.eurotracs-project.eu/

MAIN BENEFICIARY:
Consorci Mar Parc de Salut de Barcelona 
Legal Address: PSMAR. Passeig Maritim 25–29
Postal Address: IMIM. c/ Dr. Aiguader 88 
PO-Box 
08003 BARCELONA 
Spain 
Tel: +34 933160710 
Fax: +34 933160796 

PROJECT LEADER: 
Jaume Marrugat 
E-mail: jmarrugat@imim.es 

ASSOCIATED PARTNERS: 
•	 Association	pour	l’aide	et	la	prévention	des	

maladies	donatives	du	système	cardio-
vasculaire	–	“Projet	MONICA”,	France

•	 CINECA	Consorzio	Interuniversitario,	Italy
•	 Department	of	Epidemiology	Lazio	Regional	

Health Service ASL RME, Italy

•	 E.S.	Health	Science	Foundation,	Italy
•	 European	Hospital	and	Healthcare	Federation,	

Belgium

•	 Helmholtz	Zentrum	München	GmbH,	Germany
•	 Istituto	Superiore	di	Sanit,	Italy
•	 The	Hellenic	College	of	Cardiology,	Greece
•	 University	of	Porto	Medical	School,	Portugal

MAXIMUM EC CONTRIBUTION: 
1,198,693.32€

DURATION: 
24 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 8 

EMPOWERING THE YOUTH SECTOR WITH A BETTER 

OVERVIEW OF EVIDENCE•BASED ALCOHOL 

INTERVENTION PROGRAMMES –LET IT HAPYN!˜

Abstract 

 General objectives
The  main  aim  of  the  project  is  to  obtain  an  over-
view of good and bad practices of alcohol interven-
tion  programmes  that  are  taking  place  in  or  are 
designed for youth organisations in Europe. Better 
understanding  of  the  youth  sector  should  allow 
more  evidence-based  best  practices  of  alcohol  in-
terventions  to  be  put  in  place.  By  including  youth 
organisations  in  the  process,  the  project  aims  at 
conferring  permanent  added  value  on  the  whole 
youth sector. 

Strategic relevance and contribution to the 
public health programme
The project matches the health programme’s ambi-
tion to reduce harmful alcohol consumption among 
young people – an ambition also  expressed in the 
EU  Alcohol  Strategy.  Operationally,  the  project’s 
integration  of  evidence-based  alcohol  policies  and 
interventions  in  the  activities  of  youth  organisa-
tions  will  involve  them  in  actions  and  research, 
and  increase  their  advocacy  capacity,  so  they  can 
lobby  more  effectively  for  policies,  measures  and 
programmes at European and Member State level.

Methods and means
In  a  first  phase,  the  project  will  conduct  analyses 
of  current  interventions  and  practices  and  report 
on  good  practices.  It  will  also  prepare  strategies 
for  implementing  good  practices  in  youth  organi-
sations. Subsequently, toolkits will be prepared for 
different types of youth organisation, and tested in 
the  field  through  pilot  alcohol  interventions,  with 
appropriate training and evaluation. The final stage 
will be the preparation of a dissemination plan and 
the  dissemination  of  project  results  among  net-
work partners. 

Expected outcomes
By  empowering  the  youth  sector  in  Europe,  the 
project  will  contribute  to  better-informed  youth 
policies,  and  better  understanding  within  youth 
organisations that alcohol is not an ordinary com-
modity.  The  youth  and  NGO  sector  will  be  provid-
ed  with  tools  for  use  in  a  range  of  environments. 
Trained  individuals  among  the  partners  will  help 
youth  organisations  to  influence  the  development 
of more effective alcohol policies. And the range of 
manuals, toolkits and other dissemination methods 
will enrich the NGO sector with fresh and evidence-
based  innovative  approaches  to  support  healthy 
choices. There will be EU added-value in the close 
cooperation  among  partners  and  networks  across 
the diverse countries participating, and in the fine-
grained  analysis  of  interventions  which  would  not 
be possible at the level of a single member state.

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Keywords and portfolio

KEYWORDS:
•	 Alcohol	within	Lifestyle
•	 Collection	of	Best	Practices	within	Methods

PROJECT LEADER: 
Jan Peloza 
E-mail: jan.peloza@apyn.org 

PORTFOLIO:
•	 Alcohol	within	Fostering	good	health

ACTION WEBSITE: 
http://www.eurocare.org/eu_projects/let_it_hapyn

ASSOCIATED PARTNERS: 
•	 European	Alcohol	Policy	Alliance,	Belgium
•	 Institute	for	Research	and	Development	“Utrip”,	

Slovenia

•	 Nederlands	Institut	voor	Alcoholbeleid,	

Netherlands

MAIN BENEFICIARY:
Alcohol Policy Youth Network 
Celovška	cesta	185	
1000 Ljubljana 
Slovenia 
Tel: +386 40732212 

MAXIMUM EC CONTRIBUTION: 
236,284.09€

DURATION: 
36 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 210 

STRENGTHENING OCCUPATIONAL HEALTH 

PROFESSIONALS’ CAPACITIES TO IMPROVE THE HEALTH 

OF THE AGEING WORKFORCES. –E—CAPACIT8™ 

Abstract 

 General objectives
The  project  aims  to  strengthen  the  capacities  of 
occupational health professionals to help maintain 
health  among  the  ageing  European  workforce.  It 
will  analyse  and  review  training  curricula,  enrol  a 
wide range of stakeholders, develop training mate-
rial, and launch an e-learning platform.

Strategic relevance and contribution to the  
public health programme
The  Europe  2020  Strategy  explicitly  refers  to  the 
promotion of active and healthy ageing, and main-
tenance  of  good  health  is  critical  to  the  extension 
of  people’s  ability  to  continue  working  later.  Im-
proved  capacities  among  occupational  health  pro-
fessionals  are  strategically  relevant  to  that  objec-
tive.  By  its  position  at  the  intersection  of  employ-
ment  and  health,  the  project  also  corresponds  to 
the  inclusive  growth  agenda,  and  to  its  objectives 
of  promoting  health  and  disseminating  health  in-
formation and knowledge. 

Methods and means
The project will examine training curricula through 
reviews of literature, national legislative provisions 
and  initiatives,  and  good  practices,  and  identify 
and  recruit  end-users  via  web-based  searches  of 
national  actors  and  liaison  professional  asso-
ciations.  Educational  materials  will  be  developed 
through brainstorming sessions, consultations with 
experts,  and  feedback  from  end-users  during  na-
tional workshops.  A  beta  version of the e-learning 
platform will be launched, and once its functional-
ity  is  tested,  materials  will  be  uploaded  and  the 
resource will be fine-tuned.

Expected outcomes
The main outcome will be to integrate occupational 
health professionals into contemporary health pro-
tection practices for older workers (50+). The trans-
ferable nature of the project’s deliverables will al-
low  professionals  from  across  13  EU  countries  to 
benefit,  particularly  through  context-specific  edu-
cational  materials.  The  project  is  also  expected  to 
attract  interest  among  national  and  international 
stakeholders,  and  to  stimulate  cross-border  ex-
changes of ideas and experiences, leading eventu-
ally  to  sustainable  improvements  in  the  health  of 
older  workers.  In  the  longer  term,  the  project  may 
also  contribute  to  modifications  of  training  cur-
ricula  or  the  development  of  similar,  web-based 
resources for use in relation to other groups, such 
as vulnerable workers.

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Keywords and portfolio

KEYWORDS:
•	 Elderly	within	Target	groups
•	 Prevention	within	Methods
•	 Non	communicable	diseases
•	 Socio	economic	factors
•	 Lifestyle

PORTFOLIO:
•	 Health	in	Society

ACTION WEBSITE: 
http://www.imp.lodz.pl/home_en/dep/department_
of_health_policy/dhp_pro/e_capacit8/

MAIN BENEFICIARY:
Nofer Institute of Occupational Medicine 
Swietej Teresy od Dzieciatka Jezus 8 
PO-Box 
PL	91-348	Łódź	
Poland 
Tel: +48 426314502 
Fax: +48 426568331 

PROJECT LEADER: 
Piotr Sakowski 
E-mail: psak@imp.lodz.pl 

ASSOCIATED PARTNERS: 
•	 Akademia	Górniczo-Hutnicza	im.	Stanislawa	

Staszica w Krakowie (AGH University of Science 
and Technology), Poland

•	 Croatian	National	Institute	of	Public	Health,	

Croatia

•	 D.	Linos	Medical	Company,	Greece
•	 Institute	of	Occupational	Medicine,	 

United Kingdom

•	 Institute	of	Preventive	Medicine,	Environmental	

and Occupational Health, Greece

•	 Kooperationsstelle	Hamburg	IFE	GmbH,	

Germany

•	 National	Centre	of	Public	Health	and	Analyses,	

Bulgaria

•	 National	Institute	of	Public	Health,	 

Czech Republic

•	 Partner	HR,	Denmark
•	 Prevent,	Belgium
•	 Universitat	Pompeu	Fabra,	Spain
•	 University	of	Medicine	and	Pharmacy	Iuliu	

Hațieganu, Romania

•	 University	of	Milan,	Italy
•	 VU	University	Amsterdam,	part	of	the	legal	

entity Stichting VU-VUmc, Netherlands

MAXIMUM EC CONTRIBUTION: 
513,707.30€

DURATION: 
40 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 211 

BENCHMARKING COMPREHENSIVE CANCER CARE 

THAT PROVIDES INTERDISCIPLINARY TREATMENT FOR 

PATIENTS, AND YIELDS EXAMPLES OF BEST PRACTICE IN 

COMPREHENSIVE CANCER CARE “BENCH”CAN•

Abstract 

 General objectives
BENCH-CAN  aims  to  benchmark  comprehensive 
cancer  care  and  to  yield  best  practice  examples 
to  improve  the  quality  of  interdisciplinary  patient 
treatment.  It  will  compare  standards,  recommen-
dations  and  accreditation  criteria  in  selected  Eu-
ropean  countries,  and  refine  a  benchmarking  tool 
covering  operations  management  and  best  clini-
cal  practice,  ensuring  it  is  compatible  with  exist-
ing tools for evaluating cancer care resources and 
services.

Strategic relevance and contribution to the  
public health programme
Divergences in national performance in cancer care 
show  room  for  improvement.  Disease-  and  symp-
tom-free  survival  after  primary  treatment  and 
prolonged  symptom-free  metastatic  disease  will 
result  from  state-of-the-art  comprehensive  care 
provision  and  enhancements  of  oncologic  care  in-
frastructure. Patients will benefit in terms of well-
being  and  economic  productivity,  and  there  could 
be added value in exploring use of the tool across 
other  clinical  specialisms  as  co-morbidity  rises 
in  ageing  populations.  BENCH-CAN  contributes 
the  priorities  of  the  health  programme  in  reduc-
ing  health  inequalities,  preventing  major  and  rare 
diseases,	respecting	the	principles	of	“Together	for	
Health”;	 and	 supporting	 the	 “care	 and	 cure”	 ele-
ment  of  the  European  Innovation  Platform  for  Ac-
tive and Healthy Ageing.

Methods and means
All  partners  will  use  agreed  methods  throughout, 
and  internal  and  external  evaluations  will  be  con-
ducted.  Benchmark  development  will  be  informed 
by EU-wide mapping and pilot-site scanning across 
11 sites in three areas. Best practice examples will 
have  an  agreed  format  to  allow  optimal  diffusion. 
Dissemination  will  be  achieved  by  active  and  pas-
sive methods, using established websites and other 
tested tools. Budget impact analysis will boost or-
ganisational  strengths  and  impact  of  comprehen-
sive  cancer  care  and  tumour  services.  A  bench-
marking  manual  will  be  produced,  and  available 
through  open  access,  along  with  tools,  formulae, 
case summaries and best practice examples. 

Expected outcomes
The results will include maps of existing standards, 
and  better  understanding  of  internal  and  external 
factors  influencing  benchmarking  and  quality  im-
provement.  Reports  on  benchmarks  from  peer  re-
view  of  pilots,  and  recommendations  for  improve-
ment  and  action  plans  identifying  best  practice 
examples and management processes.  Knowledge 
generated  by  the  project  will  inform  local  action 
to  improve  interdisciplinary  treatment  of  patients, 
and will be cascaded across the EU, taking account 
of local sensitivities.

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25

Keywords and portfolio

KEYWORDS:
•	 Cancer	within	Chronic	diseases	within	Non	

communicable diseases

•	 Health	system	within	Healthcare
•	 Benchmarking	within	Methods
•	 Quality	evaluation	within	Methods

PORTFOLIO:
•	 Major	and	chronic	diseases	within	Taking	Action	

against Diseases

ACTION WEBSITE: 
http://www.oeci.eu/Benchcan

MAIN BENEFICIARY:
Organisation of European Cancer Institutes – 
European Economic Interest Grouping 
Rue d’Egmont, 11 
PO-Box 
1000 Brussels 
Belgium 
Tel: +32 25120146 
Fax: +32 25136411 

PROJECT LEADER: 
Claudio Lombardo 
E-mail: oeci@oeci.eu 

ASSOCIATED PARTNERS: 
•	 Alleanza	contro	il	Cancro,	Italy
•	 Health	CLusterNET,	United	Kingdom
•	 Institut	Gustave	Roussy,	France
•	 National	Institute	of	Oncology,	Hungary
•	 Netherlands	Kanker	Instituut/Antoni	van	
Leeuwenhoek	Ziekenhuis,	Netherlands

•	 Panaxea	B.V.,	Netherlands

MAXIMUM EC CONTRIBUTION: 
473,276.98€

DURATION: 
36 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 21 2

INHERITED NEUROMETABOLIC DISEASES INFORMATION 

NETWORK •INNERMED–I–NETWORK—

Abstract 

 General objectives
Data on NeuroMetabolic Diseases (NMDs) are lim-
ited, and often badly disseminated, and experts are 
poorly connected. It is a challenge to increase gen-
eral  and  medical  awareness  of  these  rare  genetic 
rare diseases, and of how prompt therapy can slow 
neurodegeneration  and  increase  life  expectancies 
by replacing the missing enzyme or detoxifying cell 
metabolism. The network envisaged by this project 
is  designed  to  provide  information  targeted  on  di-
agnosis  and  treatment  based  on  exchange  of  in-
formation among experts, collections of standard-
ised data, and the dissemination of validated data 
among patients and other interested parties. 

Strategic relevance and contribution to the  
public health programme
The  project  is  intended  to  create  a  critical  mass 
of  information  to  be  exchanged  and  disseminated 
among  stakeholders  active  in  the  field  of  NMDs, 
and  to  promote  biomedical  research.  The  network 
reflects  one  of  the  main  objectives  of  the  health 
programmes:  to  generate  and  disseminate  health 
information  and  knowledge,  and  responds  to  the 
2012	 call	 for	 “Support	 for	 European	 rare	 diseases	
information  networks”  –  including  for  rare  neuro-
logical  disorders.  InNerMeD-I-network  also  sup-
ports  European  policies  promoting  the  develop-
ment  of  drugs  tailored  for  patients  affected  by 
rare  diseases  and  for  paediatric  patients,  notably 
the  provisions  encouraging  research  into  orphan 
medicinal products. 

Methods and means
A core network of partners will be set up that can 
be enlarged to include others interested in NMDs. IT 
platform development will include a publicly avail-
able  infrastructure  and  user-friendly  access,  with 
easy  exchange  of  information  among  users.  This 
will provide a project web portal; an electronic re-
pository;  and  interactive  systems  for  sharing  data 
and  files.  The  electronic  repository  will  be  popu-
lated using existing scientific validated information 
on  NMD  diagnosis  and  treatment;  a  database  of 
orphan  drugs;  and  a  library  containing  scientific 
information on orphan active substances available 
for NMDs. All information collected and integrated 
will be assessed for scientific evidence and assem-
bled in guidelines and recommendations.

Expected outcomes
The  project  should  improve  conditions  for  NMD 
patients,  with  timely  and  adequate  diagnosis  and 
treatment  before  neurodegenera-
appropriate 
tion  becomes  irreversible.  This  should  establish  a 
critical mass of competences and increase current 
knowledge,  helping  in  the  development  of  clinical 
trials,  and  in  boosting  research,  particularly  in  the 
use of biomarkers and personalised approaches. It 
will also provide information for patients and gen-
eral public.

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Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicable diseases

•	 Health	system	within	Healthcare
•	 Treatment	within	Methods
•	 Diagnostic	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

ACTION WEBSITE: 
http://www.innermed.eu/index.php/cms/en/home

MAIN BENEFICIARY:
Brains for Brain Foundation 
c/o Dept. of Pediatrics University of Padova Via 
Giustiniani 3 
PO-Box 
35128 Padova 
Italy 
Tel: +39 3480330390 
Fax: +39 0498213502 

PROJECT LEADER: 
Maurizio Scarpa 
E-mail: maurizio.scarpa@unipd.it 

ASSOCIATED PARTNERS: 
•	 Espace	Ethique	Méditerranéen,	France
•	 Fondazione	Per	La	Ricerca	Farmacologica	

Gianni Benzi Onlus, Italy

•	 Hospital	Sant	Joan	de	D,	Spain
•	 Region	Hovedstaden	(Capital	Region	of	

Denmark), Denmark

•	 Sveučilište	u	Zagrebu,	Medicinski	fakultet,	

Croatia

•	 Universitaetsmedizin	der	Johannes	Gutenberg-

Universitaet Mainz, Germany

MAXIMUM EC CONTRIBUTION: 
1,000,000.00€

DURATION: 
30 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 21 3

ECONOMICS OF CHRONIC DISEASES –ECONDA— 

Abstract 

 General objectives
The project will help Member  States to  implement 
cost-effective  policies  for  chronic  disease  preven-
tion,  with  a  positive  impact  particularly  on  pre-
mature  deaths  from  chronic  diseases  and  health 
inequalities.  It  will  seek  agreement  on  measure-
ment  methods  among  experts,  policy  makers  and 
international organisations, and will develop an in-
tegrated  approach  as  a  model  for  addressing  the 
cost-effectiveness of preventive interventions, par-
ticularly among population sub groups. 

Strategic relevance and contribution to the  
public health programme
Because  chronic  diseases  (such  as  cardiovascular 
and  respiratory  disease  and  type  2  diabetes)  ac-
count  for  86%  of  all  deaths  and  77%  of  DALYS 
in  the  WHO  European  Region,  they  drive  up  
health care costs. The 2010 WHO global report on 
chronic  diseases  provides  guidelines  for  reversing 
this upward trend. The project is designed to make 
recommendations  on  interventions  and  evaluate 
the  investment  required  and  expected  outcomes, 
which offers the possibility for scaling up/transfer-
ring experiences across Europe. And rates vary be-
tween  and  within  countries  due  to  stark  inequali-
ties in health.

Methods and means
The  project  will  bring  together  international  ex-
perts  to  debate  the  divergences  in  methodology 
for  measuring  cost-effectiveness  of  integrated 
approaches to chronic disease prevention. Consen-
sus  will  be  sought  on  the  best  methods,  using  a 
microsimulation  model  to  estimate  the  evolution 
of  the  costs  of  chronic  diseases  in  at  least  seven 
EU  countries.  The  focus  will  be  on  cardiovascular 
disease, diabetes, respiratory diseases and the risk 
factors of obesity and tobacco. The model can eas-
ily be adapted to include other diseases. 

Expected outcomes
Consensus  on  methodologies  will  be  the  chief 
outcome.  But  there  will  also  be  development  and 
implementation of a demonstration model of cost-
effectiveness  of  integrated  approaches  to  chronic 
disease prevention, based on a widely applied and 
internationally  validated  model  that  is  applicable 
to  other  risk  factors  and  diseases.  The  results  of 
the project will be published and disseminated.

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Keywords and portfolio

KEYWORDS:
•	 Chronic	diseases	within	Non	communicable	

diseases

•	 Economic	analysis	within	Methods
•	 Lifestyle

PORTFOLIO:
•	 Major	and	chronic	diseases	within	Taking	Action	

against Diseases

ACTION WEBSITE: 
http://www.econdaproject.eu/index.php

MAIN BENEFICIARY:
National Heart Forum 
Victoria House, 7th Floor, Southampton Row 
PO-Box 
WC1B 4AD London 
United Kingdom 
Tel: +44 2078317420 
Fax: + 44 2030775964 

PROJECT LEADER: 
Tim Marsh 
E-mail: tim.marsh@heartforum.org.uk 

ASSOCIATED PARTNERS: 
•	 European	Heart	Network,	Belgium
•	 European	Society	of	Cardiology,	France
•	 Heart	of	Mersey	Partnership	CIC,	 

United Kingdom

•	 Instituto	Nacional	de	Saúde	Dr.	Ricardo	Jorge,	

Portugal

•	 International	Diabetes	Federation	Europe,	

Belgium

•	 Lietuvos	sveikatos	mokslu	universitetas	

(Lithuanian University of Health Sciences), 
Lithuania

•	 University	of	Groningen,	Netherlands

MAXIMUM EC CONTRIBUTION: 
791,466.37€

DURATION: 
30 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 214

EUROPEAN REGISTRY OF PATIENTS WITH MCARDLE 

DISEASE AND VERY RARE MUSCLE GLYCOGENOLYTIC 

DISORDERS ŽMGD‘ WITH EXERCISE INTOLERANCE AS 

THE MAJOR SYMPTOM ŽPR”MDMGD‘ ŽEUROMAC‘ 

Abstract 

 General objectives
The creation of a registry is the principal technical 
objective,  but  it  will  also  be  supported  with  a  web 
portal, allowing public access and promoting wider 
information on these rare diseases. But the real aim 
is to improve health outcomes, while reducing health 
and  social  care  costs.  Better  knowledge  of  these 
conditions can support improved medical care, and 
thus  help  to  avoid  delayed  diagnosis  and  incorrect 
advice,  with  all  the  risks  of  debilitating  symptoms 
and  of  life-threatening  crises  that  require  admis-
sion  to  critical  care.  Access  and  quality  of  care  for 
patients across Europe will be improved.

Strategic relevance and contribution to the  
public health programme
The  project  addresses  the  current  lack  of  data  at 
EU level on treatment and care of McArdle disease 
and  other  muscle  glycogenolytic  disorders.  Regis-
tering  patient  data  across  at  least  eight  European 
countries as a step towards a global patient regis-
try coincides with the ambitions of the EU strategy 
on rare diseases. Developing a patient registry with 
wide  geographic  and  social  coverage,  along  with 
innovative  dissemination  tools,  will  offer  an  ap-
proach that could be reproduced for other diseases. 
Adoption  by  key  stakeholders,  future  partners  and 
government bodies will demonstrate how a registry 
with an adequate web portal can be sustainable.

Methods and means
The  registry  will  be  based  on  the  principle  of  
“indirectly	 identifiable	 data	 collection”,	 in	 which	 
all data will be anonymised for research purposes, 
but  linked  to  patient  sources  through  encryption 
that  can  be  broken  only  under  specific  conditions 
described  in  the  consent  form.  An  ethics  commit-
tee  will  be  set  up  to  deal  with  issues  of  anonym-
ity  and  confidentiality,  and  to  establish  specific 
instructions  to  ensure  compliance  with  all  legal 
requirements. 

Expected outcomes
An  EU-wide  database  will  be  generated  incorpo-
rating  patient  groups  and  professionals,  with  data 
provided  in  the  languages  of  the  participating 
countries. Improving access to specialised care will 
be  one  result.  Another  will  be  to  create  a  pool  of 
patient data that will help physicians and research-
ers  in  the  field.  It  will  also  engage  local  govern-
ments,  regulatory  agencies,  and  the  pharmaceuti-
cal industry in the creation of training courses and 
patient support groups. 

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31

Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicable	diseases

•	 Health	system	within	Healthcare
•	 Treatment	within	Methods
•	 Diagnostic	within	Methods
•	 Patients	registries	within	Methods

PoRTfolio:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

AcTioN	WebsiTe:	
http://euromacregistry.eu/

MAiN	beNeficiARy:
fundacio	Hospital	Universitari	Vall	d’Hebron-	
institut	de	Recerca	
passeig	vall	d’hebron	119–129	
Po-boX	
08035	barcelona	
spain	
Tel:	+34	934894013	

PRojecT	leADeR:	
Marti	Ramon	
e-mail:	ramon.marti@vhir.org	

AssociATeD	PARTNeRs:	
•	 Τμημα	Ιατρικησ	–	Σχολη	Επιστημων	Υγειασ	–	

Πανεπιστημιο	Θεσσαλιασ	–	Ελλαδα	faculty	of	
Medicine	school	of	Health	sciences	University	
of	Thessaly,	Greece

•	 Assistance	Publique	–	Hopitaux	de	Paris,	france
•	 Association	for	Glycogen	storage	Disease	(UK)	

ltd,	United	Kingdom

•	 berufsgenossenschaftliches	

Universitätsklinikum	bergmannsheil	GmbH,	
Germany

•	 centre	Hospitalo-Universitaire	de	Nice	
(University	Hospital	of	Nice),	france

•	 fundación	biomédica	del	complejo	hospitalario	

Universitario	de	Vigo,	spain

•	 institut	catala	de	la	salut,	spain
•	 institute	of	Neurology,	University	college	

london,	United	Kingdom

•	 iRccs	e.Medea	–	Ass.ne	la	Nostra	famiglia,	

italy

•	 iRccs	Giannina	Gaslini,	italy
•	 Rigshospitalet,	University	of	copenhagen,	

Denmark

•	 servicio	Galego	de	saúde,	spain
•	 servicio	Madrileño	De	la	salud,	spain
•	 Università	degli	studi	di	Messina,	italy

MAXiMUM	ec	coNTRibUTioN:	
911,578.00€

DURATioN:	
40	months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 217

NEW E”HEALTH SERVICES FOR THE EUROPEAN 

REFERENCE NETWORK ON RARE ANAEMIAS ™E”ENERCAš 

Abstract 

 General objectives
The  project  aims  to  provide  professionals  and  pa-
tients  with  e-health  tools  that  will  permit  equal 
access  across  Europe  to  services  for  rare  anae-
mias.  It  will  improve  information  about  centres  of 
expertise  and  epidemiology,  and  boost  continuing 
medical education and best practices. In addition, it 
will create a telemedicine platform on health care 
and  medical  advice,  reducing  the  need  for  physi-
cal  travel.  Other  objectives  are  to  promote  the 
profile of ENERCA as the European Reference Net-
work  for  rare  anaemias,  and  to  promote  the  use 
of  new  tools  among  the  scientific  community  and 
patients’ associations.

Strategic relevance and contribution to the  
public health programme
Health  professionals,  patients,  health  authorities 
and  other  stakeholders  from  Member  states  will 
be  engaged  in  the  design,  validation  and  imple-
mentation  of  new  e-health  services  for  tackling 
rare  anaemias,  thus  ensuring  the  proposed  tools 
and  services  match  the  social,  cultural  and  policy 
context,  in  line  with  the  Directive  on  Cross-Border 
Health  Care  (2011/24/EU).  Collaboration  in  creat-
ing  a  unique  European  registry  in  this  field  will 
contribute to the health programme by easing the 
flow of information, samples and patients between 
Member  States,  thus  helping  remedy  inequalities 
of access. 

Methods and means
Three  new  platforms  will  be  developed  on  the 
ENERCA  website  (www.enerca.org):  an  e-Registry 
for epidemiological surveillance, e-learning for dis-
tance medical education, and telemedicine to bring 
diagnosis  and  clinical  advice  to  distant  locations. 
Legal  issues  related  to  e-health  services  will  be 
explored and applications for smartphones/tablets 
will  be  developed.  Two  European  on-site  training 
courses  will  be  held,  and  European  symposiums 
will  be  co-organised  with  national  patients  asso-
ciations every year. Recommendations for recogni-
tion of centres of expertise will be presented to na-
tional stakeholders in at least ten Member States, 
and  a  survey  will  assess  the  implications  of  the 
transposition of Directive 2011/24/EU

Expected outcomes
New communication channels through e-platforms 
will  reach  the  widest  geographical  coverage  and 
reduce  inequalities  across  Europe  in  tackling  rare 
anaemias.  The  e-registry  will  allow  active  surveil-
lance  of  epidemiological  data.  Continuing  medical 
education  will  be  improved  independently  of  the 
country of practice. Inequalities will be reduced by 
bringing  healthcare  services  to  distant  locations, 
allowing earlier diagnosis and maximising the cost-
effective use of resources. 

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33

Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicable diseases
•	 Treatment	within	Methods
•	 Diagnostic	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

ACTION WEBSITE: 
http://www.enerca.org/index.html

MAIN BENEFICIARY:
Consorci	Institut	d’Investigacions	Biomèdiques	
August Pi i Sunyer 
Rosselló,	149–153	
PO-Box 
E-08036 Barcelona 
Spain 
Tel: +34 934515950 
Fax: +34 932271764 

PROJECT LEADER: 
Joan Lluis Vives Vives Corrons 
E-mail: jlvives@clinic.ub.es 

ASSOCIATED PARTNERS: 
•	 CHU	de	Montpellier,	France
•	 Cliniques	Universitaires	de	Bruxelles	Hôpital	

Erasme, Belgium

•	 European	School	of	Haematology,	France
•	 Foundation	IRCCS	Cà	Granda	Ospedale	

Maggiore Policlinico Milan, Italy

•	 King’s	College	London,	United	Kingdom
•	 Medical	Exchange	Medting	Limited,	Ireland
•	 Thalassaemia	International	Federation,	Cyprus
•	 The	Cyprus	Foundation	for	Muscular	Dystrophy	

Research, Cyprus

•	 Universidad	del	País	Vasco/Euskal	Herriko	

Uniberstitatea, Spain

•	 University	Medical	Center	Utrecht,	Netherlands
•	 University	of	Cyprus,	Cyprus
•	 West	Hertfordshire	Hospitals	NHS	Trust,	United	

Kingdom

MAXIMUM EC CONTRIBUTION: 
1,163,274.82€

DURATION: 
36 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 21 8

OBESITY PREVENTION THROUGH EUROPEAN NETWORK 

›OPENœ

Abstract 

 General objectives
By the end of 2016, this project aims to strength-
en the methodology available to community based 
programmes and initiatives or public organisations 
that  wish  to  put  in  place  strategies  and  actions 
to  prevent  obesity  at  local  and  national  level.  The 
project  will  scale-up  and  increase  the  capacity  of 
the  coordination  teams  and  support  them  in  wid-
ening  their  target  groups,  particularly  to  include 
adolescents  living  in  deprived  areas.  This  could 
accelerate  behavioural  and  environmental  change 
to reduce overweight and obesity-related diseases 
among young Europeans. 

Methods and means
Symposiums  will  build  capacity  and  share  best 
practice and recent research findings, and tailored 
coaching  will  be  provided  through  on-site  visits.  A 
database  will  classify  and  share  methodological 
and communication documents. To assess progress 
with  methodology,  evaluations  will  take  place  at 
the beginning and at the end of the project, using 
the WHO good practice appraisal tool. On-site vis-
its will also allow needs assessments, and progress 
goals  will  be  defined  and  monitored  to  motivate 
coordination  teams,  and  to  mobilise  resources  to 
improve their impact on communities. 

Strategic relevance and contribution to the  
public health programme
The  project  helps  meet  the  objectives  of  health 
programme  in  promoting  health  and  reducing 
health  inequalities.  It  capitalises  on  existing  poli-
cies  in  public  health  and  beyond,  including  educa-
tion, physical activity, urban policy and agriculture, 
and encouraging local authorities to work together 
so  that  civil  society  benefits  from  obesity  preven-
tion strategies on a long-term basis. It will help to 
apply  recent  research  findings  about  children  and 
adolescents’  attitudes  to  nutrition  and  health  (e.g. 
ENERGY,  TEMPEST  and  HEALTH25)  in  concrete  ac-
tions.  And  its  dissemination  of  health  information 
and best practice across the EU will support refer-
ence networks such as IDEFICS and EEN.

Expected outcomes
At the end of the project, progress can be expected 
among  coordination  teams  in  terms  of  scaling-up, 
design,  implementation  and  evaluation,  with  per-
formance increased by at least 15% over the pro-
ject’s duration. Coordination teams will also benefit 
from sharing of experience and best practices, and 
sustainable actions based on the evidence and on 
practice-based  recommendations  will  be  in  place 
at  local  level,  targeting  adolescents  living  in  de-
prived areas.

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35

Keywords and portfolio

KEYWORDS:
•	 Nutrition	within	Lifestyle
•	 Children	within	Target	groups
•	 Adolescents	within	Target	groups
•	 Lifestyle

PORTFOLIO:
•	 Physical	Activity	within	Nutrition	and	physical	

ASSOCIATED PARTNERS: 
•	 Agencia	de	Formacion,	Investigacion	y	Estudios	

Sanitarios de la Comunidad de Madrid  
“Pedro	Laín	Entralgo”,	Spain

•	 Centro	de	Estudos	e	Investigação	em	
Dinâmicas	Sociais	e	Saúde,	Portugal

•	 Communauté	de	Communes	Flandre	Lys,	

France

activity within Fostering good health

•	 Convenant	Gezond	Gewicht	(Convenant	 

•	 Nutrition	within	Nutrition	and	physical	activity	

on Healthy Weight), Netherlands

within Fostering good health

•	 Nutrition	and	physical	activity	within	Fostering	

good health

•	 Fostering	good	health

MAIN BENEFICIARY:
Proteines SAS 
rue Galvani 11 
PO-BOX 
75017 Paris 
France 
Tel: +33 142128181 
Fax: +33 142120185 

PROJECT LEADER: 
Jean-Michel Borys 
E-mail: jmborys@gmail.com 

•	 Fundatia	Prais,	Romania
•	 LCA	Consulting,	United	Kingdom
•	 Ministry	for	Health,	the	Elderly	and	Community	

Care, Malta

•	 Nostus	Communications	&	Events	Ltd,	Greece
•	 Občianske	združenie	“PRE	zdravie	našich	detí”	
(Foundation for the Health of Our Children), 
Slovakia

•	 Polska	Federacja	Producentów	Żywności	

Związek	Pracodawców,	Poland

•	 Protein	Health	Communications,	Belgium
•	 Stichting	VU-VUmc,	Netherlands
•	 Universiteit	Gent,	Belgium
•	 Vrije	Universiteit	Amsterdam,	Netherlands

MAXIMUM EC CONTRIBUTION: 
1,053,428.86€

DURATION: 
36 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 219

EUROPEAN YOUTH TACKLING OBESITY –EYTO—

Abstract 

 General objectives
Partners  across  the  UK,  Spain,  Portugal  and  the 
Czech Republic plan to develop peer-led social mar-
keting  campaigns  to  promote  healthy  eating  and 
physical activity amongst people aged 13–16 who 
are  vulnerable  to  obesity.  The  campaign  should 
reach  over  a  million  young  people  across  cultural 
barriers, and improve motivation for healthier life-
styles,  thus  helping  reduce  childhood  obesity  and 
the  associated  negative  outcomes  in  the  partici-
pating  Member  States.  The  project  aims  to  fill  a 
gap in innovative work targeted at adolescents, by 
using  learning  from  successful  social  marketing 
campaigns.

Strategic relevance and contribution to the  
public health programme
By  supporting  authorities  within  each  partner 
country,  the  project  will  contribute  to  the  health 
programme  priorities  set  out  in  the  annual  work 
plan.  It  will  also  take  forward  actions  that  have 
been  recommended  in  policy  and  research  initia-
tives  across  Europe,  notably  the  ‘Strategy  for  Eu-
rope  on  Nutrition,  Overweight  and  Obesity  related 
health issues’, building on outcomes of previous EU 
projects  including  ENERGY,  SPOTLIGHT,  TEMPEST 
and TICD.

Methods and means
The  first  step  will  be  to  collate  evidence  on  social 
marketing  approaches  to  tackle  obesity.  Building 
on  this,  groups  of  young  ‘campaign  creators’  will 
be  recruited  in  each  country  to  work  with  social 
marketing experts to develop localised campaigns. 
Digital  and  social  media  elements  will  be  used 
alongside events such as road-shows. Partners will 
meet  to  share  and  compare  campaigns  and  test 
successful interventions in other countries. A com-
prehensive evaluation process will monitor the im-
pact  of  the  interventions  and  provide  an  evidence 
base  to  support  wider  replication.  A  suite  of  rep-
licable  tools  and  resources  will  be  produced  and 
disseminated to support the wider implementation 
of the campaign across Europe.

Expected outcomes
Partners, policy makers and planners at a local, na-
tional and European level will gain increased under-
standing of successful social marketing approaches 
to  tackling  obesity  amongst  disadvantaged  young 
people.  Young  people  and  practitioners  across  the 
four  partnerships  will  gain  increased  skills  and 
confidence  in  applying  participatory  social  mar-
keting  techniques.  At  least  80  per  cent  of  young 
people  who  engage  in  the  campaign  should  report 
increased  motivation  to  eat  more  healthily  and  be 
more physically active. And at least 60 per cent of 
them should increase their levels of physical activ-
ity and their consumption of fruit and vegetables.

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Keywords and portfolio

KEYWORDS:
•	 Nutrition	within	Lifestyle
•	 Children	within	Target	groups
•	 Health	promotion	within	Methods

PROJECT LEADER: 
Ellie Lewis 
E-mail: elewis@ncb.org.uk 

PORTFOLIO:
•	 Nutrition	and	physical	activity	within	Fostering	

ASSOCIATED PARTNERS: 
•	 Centre	Tecnologic	en	Tecnologies	de	la	Nutricio	

i la Salut, Spain

good health

•	 Companhia	de	Ideias	Anónimas	–	Media,	Lda.,	

ACTION WEBSITE: 
http://www.ncb.org.uk/health/promoting-healthy-
lifestyles/european-youth-tackling-obesity

MAIN BENEFICIARY:
National Children’s Bureau 
8 Wakley Street 
PO-Box 
EC1V 7QE London 
United Kingdom 
Tel: +44 2078436000 
Fax: +44 2072789512 

Portugal

•	 Komunikujeme	o.s.,	Czech	Republic

MAXIMUM EC CONTRIBUTION: 
253,522.00€

DURATION: 
30 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 3

ACTIVE AGEING WITH TYPE 2 DIABETES AS MODEL 

FOR THE DEVELOPMENT AND IMPLEMENTATION OF 

INNOVATIVE CHRONIC CARE MANAGEMENT IN EUROPE 

’MANAGE“CARE” 

Abstract 

 General objectives
The  project  aims  to  prevent  costly  complications 
and  frailty  in  older  people  with  type  2  diabetes, 
enabling them to live independent, healthy and ac-
tive lives as long as possible. Innovation will be en-
couraged in current treatment approaches, shifting 
from a disease-specific care trajectory of diabetes 
management to chronic care management not fo-
cused on a specific disease.

Methods and means
Based on a review of current disease management 
models and on the needs of older people with dia-
betes  mellitus,  a  new  chronic  care  model  will  be 
developed. Training programmes for health profes-
sionals  and  patients  will  be  developed  to  comple-
ment  the  model  and  ensure  a  patient-centred  ap-
proach. A toolkit and possible transfer of the model 
to other chronic diseases will be delivered.

Strategic relevance and contribution to the  
public health programme
Shifting from disease management to chronic care 
management  matches  the  second  objective  of 
the  annual  work  plan  to  promote  health,  through 
change in care delivery and through partnering for 
change, particularly for older patients with multiple 
chronic  conditions,  and  using  innovative  business 
modelling.  The  use  of  diabetes  as  a  test-case  for 
developing  this  model  coincides  with  the  Danish 
Presidency  focus  on  chronic  diseases  with  diabe-
tes as a model. Prevention of costly complications, 
hospitalisation  and  frailty  in  older  people  with 
chronic  diseases  is  directly  in  line  with  the  imple-
mentation  plan  of  the  EIP  on  active  and  healthy 
ageing.  So  too  are  the  patient  empowerment  and 
telemedicine aspects of the project.

Expected outcomes
A  new  chronic  care  management  model  will  help 
improve  the  health  of  EU  citizens.  Wide  imple-
mentation  of  the  model  across  the  EU  will  help 
to  reduce  health  inequalities  between  and  within 
Member States. The project will also build capacity 
for effective public health policies in areas of high 
need.  Better  quality  of  life  outcomes  will  enable 
patients  to  stay  independent,  healthy  and  active, 
reducing the burden on family members and other 
informal  carers.  And  cooperation  and  communica-
tion  will  be  improved  between  health  profession-
als and stakeholders who play a key role in chronic 
care management, with clarity on roles within the 
care team allowing more efficient working.

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Keywords and portfolio

KEYWORDS:
•	 Elderly	within	Target	groups
•	 type	II	within	Diabetes	within	Chronic	diseases	

within Non communicable diseases
•	 Innovation	initiatives	within	Healthcare
•	 Health	system	within	Healthcare
•	 Survey	within	Methods

PORTFOLIO:
•	 Ageing	within	Health	in	Society

ACTION WEBSITE: 
http://www.manage-care.eu/

MAIN BENEFICIARY:
Technische Universitaet Dresden
Fetscherstrasse 74 
PO-Box 
01307 Dresden 
Germany 
Tel: +49 3514582715 
Fax: +49 3514587319 

PROJECT LEADER: 
Peter Schwarz 
E-mail: peter.schwarz@uniklinikum-dresden.de

ASSOCIATED PARTNERS: 
•	 Alexandrovska	University	Hosp.,	Medical	

University Sofia, Bulgaria

•	 Associação	Protectora	dos	Diabéticos	de	

Portugal, Portugal

•	 Bundesverband	Managed	Care	e.	V.,	Germany

•	 Department	of	Chronic	Disease	Prevention	–	 

National Institute for Health and Welfare (THL), 
Finland

•	 Department	of	Internal	medicine	I	oat	the	

Paracelsus Medical University, Salzburg, Austria

•	 Dr.	Scholl	Prevention	First	GmbH,	Germany
•	 Generalitat	de	Catalunya	–	Departament	de	

Salut, Spain

•	 German	Diabetes	Center	at	Heinrich-Heine-
University, Leibniz Institute for Diabetes 
Research, Germany

•	 Heart	and	Diabetes	Center	NRW,	Germany
•	 Hochschule	Niederrhein,	Germany
•	 Instruct	AG,	Germany
•	 International	Diabetes	Federation	Europe	 

(IDF Europe),Belgium

•	 Jagiellonian	University	Medical	College,	Poland
•	 Katholieke	Universiteit	Leuven,	Belgium
•	 Lithuanian	University	of	Health	Sciences,	

Lithuania

•	 National	and	Kapodistrian	University	of	Athens,	

Greece

•	 Suomen	Diabetesliittory,	Finnish	Diabetes	

Association, Finland

•	 University	of	Ulm,	Germany
•	 University	of	Antwerp	Faculty	of	Medicine	and	

Health Sciences, Belgium

MAXIMUM EC CONTRIBUTION: 
692,441.40€

DURATION: 
36 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

P R O J E C T   N O  2 01 21 2 0 9

ADVANCING CARE COORDINATION & TELEHEALTH 

DEPLOYMENT PROGRAMME ’ACT“ 

Abstract 

 General objectives
This is the first programme to explore coordinated 
care and telehealth services in line with EIP objec-
tives of deploying integrated care for chronically ill 
patients. It aims to exploit the potential for deliver-
ing quality care and maximising delivery of clinical 
support  while  reducing  the  economic  burden  and 
palliating  the  shortage  of  skilled  professionals  in 
European healthcare systems. It aims to go further 
than  the  current  range  of  pilots  and  test  installa-
tions, and to explore the new behaviours, routines 
and  ways  of  working  that  will  be  required  to  im-
prove  health  outcomes,  administrative  efficiency, 
cost  effectiveness  and  the  experience  of  patients 
and health professionals. 

Strategic relevance and contribution to the  
public health programme
The  programme  addresses  the  ageing  population 
and the related burden of chronic disease, and im-
proves the effective deployment of services and the 
responses  to  related  organisational  and  structural 
issues.  Bringing  together  innovative  healthcare  re-
gions  and  clinical  experts  allows  the  hurdles  to  be 
evaluated  across  EU  healthcare  systems,  and  per-
mits validation of best practice results among large 
cohorts of patients, with the possibility of findings 
being replicated in other EU health regions. 

Methods and means
The  baseline  phase  will  specify  survey  methods, 
and  will  be  followed  by  an  initial  assessment  of 
healthcare systems and services in each participat-
ing region. A further phase will evaluate the provi-
sion of services in each region, in line with a defined 
agreed  with  regions.  A  final  phase  will  specify  an 
ACT  ‘CookBook’,  and  will  roll  out  coordinated  care 
and telehealth modules into EU regions.

Expected outcomes
The  principal  outcome  of  will  be  the  evaluation  of 
the drivers of effective deployment of coordinated 
care and telehealth services in the five participat-
ing  regions.  Out  of  this  will  come  a  best  practice 
‘Cook  Book’  manual  specifying  how  those  driv-
ers  can  be  leveraged,  to  expedite  deployment  of 
services in other European healthcare regions. The 
manual  will  provide  explicit  recommendations  and 
examples, taking into account the regional/national 
boundary conditions & other diversity aspects. 

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Keywords and portfolio

KEYWORDS:
•	 Elderly	within	Target	groups
•	 Chronic	diseases	within	Non	communicable	

ASSOCIATED PARTNERS: 
•	 Agència	d’Informació,	Avaluació	i	Qualitat	en	

Salut, Spain

diseases

•	 Aristotle	University	of	Thessaloniki	Greece,	

•	 Innovation	initiatives	within	Healthcare
•	 eHealth	+	telemedecine	within	Healthcare
•	 Health	system	within	Healthcare

PORTFOLIO:
•	 Ageing	within	Health	in	Society

ACTION WEBSITE: 
http://www.act-programme.eu/

MAIN BENEFICIARY:
Philips Medizin Systeme Böblingen GmbH 
Hewlett-Packard-Str. 2 
PO-Box 
71034 Böblingen 
Germany 
Tel: +49 70314632913 

PROJECT LEADER: 
Christoph Westerteicher 
E-mail: christoph.westerteicher@philips.com

Greece

•	 Asociacion	Centro	de	Excelencia	Internacional	

en Investigacion sobre Cronicidad, Spain
•	 City	University	London,	United	Kingdom
•	 Institut	d’investigacions	Biomèdiques	August	Pi	

i Sunyer, Spain

•	 Guy’s	&	St	Thomas’	NHS	Foundation	Trust	(part	

of King’s Health Partners), United Kingdom

•	 NHS	24,	United	Kingdom
•	 Philips	Electronics	Nederland	B.V.,	Netherlands
•	 Servicio	Vasco	de	Salud-Osakidetza,	Spain
•	 Telbios	SpA,	Italy
•	 University	Medical	Center	Groningen,	

Netherlands

•	 University	of	Hull,	United	Kingdom
•	 Universitätsklinikum	Würzburg,	Germany

MAXIMUM EC CONTRIBUTION: 
1,596,383.63€

DURATION: 
32 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

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C H A P T E R  1

1 . 2 H E A LT H P RO M OT IO N  CO N F E R E N C E S

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H E A L T H   (cid:24)   2 0 1 2   A N N U A L   R E P O R T

C O N F E R E N C E   N O  2 01 24 2 01

8TH GLOBAL CONFERENCE ON HEALTH PROMOTION 

(cid:8)GCHP2013(cid:6)

Abstract 

 General objectives
The  conference  aims  to  clarify  the  concept  of 
Health  in  All  Policies,  and  explore  the  links  be-
tween  health  goals,  government  strategies,  and 
other sectoral policies. It also plans to examine the 
links between economics and health and wellbeing, 
and  to  define  capacity  needs  for  its  implementa-
tion. Possible methodologies include sharing expe-
riences among countries and from different levels 
of governance, giving guidance on structures, tools 
and processes for implementation, and giving voice 
to sectors beyond health. It will make use of a con-
ference background paper, a tool kit and book, and 
a policy brief. 

Expected achievements
The expected attendance is 800, by invitation only, 
with significant representation from each WHO Eu-
rope  region  country,  and  some  participation  from 
each  of  the  countries  in  the  other  WHO  regions 
around  the  world.  Non-governmental  and  interna-
tional  organisations,  including  the  European  insti-
tutions,  will  also  be  invited.  The  participants  will 
mainly  be  from  the  health  sector,  but  also  other 
sectors  will  be  invited,  such  as  agriculture,  plan-
ning,  transportation,  education,  foreign  policy  and 
development.  The  main  focus  will  be  on  national 
public  administration,  but  other  levels  of  govern-
ment will also be invited.

Target audience
Participants will be invited not only from the health 
sector  but  also  from  policy  sectors  that  have  an 
impact on health. WHO headquarters and regional 
offices will be invited, along with other UN organi-
sations  and  the  OECD  and  financing  Institutions. 
Other  participants  will  be  invited  from  academia, 
and  from  the  health  promoting  community  and 
foundations. 

Conference programme
Issues  to  be  discussed  include  implementation, 
policy  making  and  health,  closing  the  health  ineq-
uity  gap,  the  economics  of  health  and  wellbeing, 
and social change for health. There will be 36 par-
allel sessions in total, and emphasis will be placed 
on  speakers  from  beyond  the  health  sector.  As  a 
separate  but  key  part  of  the  overall  conference, 
there  will  be  a  Europe  Day  focusing  on  European 
policies, and particularly the challenges and oppor-
tunities of Health in All Policies in a time of auster-
ity.  One  evening  session  will  be  dedicated  to  local 
field trips, with visits to work places, schools, nurs-
ery schools, elderly care centres, health centres, lo-
cal communities and major governmental research 
institutions.

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Keywords and portfolio

KEYWORDS:
•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Health	in	all	policies	within	Steering	EU	Public	

Health

PROJECT LEADER: 
Outi Kuivasniemi 
E-mail: outi.kuivasniemi@stm.fi 

MAXIMUM EC CONTRIBUTION: 
75,000.00€

ACTION WEBSITE: 
http://www.healthpromotion2013.org/

DATE AND PLACE OF THE CONFERENCE: 
2013/01/01 in Helsinki

MAIN BENEFICIARY „CONFERENCE HOLDER…:
Sosiaali- ja terveysministeriö
Meritullinkatu 8 
00170 Helsinki 
Finland 
Tel: +358 916 073 296 

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

C O N F E R E N C E   N O  2 01 24 2 0 2 

EQUITY IN HEALTH THROUGH EDUCATION: THE FOURTH 

EUROPEAN CONFERENCE ON HEALTH PROMOTING 

SCHOOLS šHPS CONFERENCE›

Abstract 

 General objectives
The  project  aims  to  increase  awareness  among 
policy  makers  of  the  role  that  school  life  plays 
in  promoting  health  and  wellbeing  and  in  ensur-
ing  equity  in  health.  It  should  help  develop  ef-
fective  strategies,  strengthen  the  evidence  base, 
and  encourage  exchange  of  good  practice  among 
politicians,  health  and  education  practitioners,  re-
searchers,  non-governmental  organisations,  and 
youth  organisations  across  Europe.  Links  between 
school-based  health  promotion  and  the  develop-
ment of citizenship competencies, children’s rights 
and health literacy will be explored, and reinforce-
ment given to addressing 

Expected achievements
National coordinators from EU member states and 
the  Eastern  European  and  Central  Asian  countries 
will be brought together with policy makers at na-
tional, regional and municipal levels in Europe and 
with  researchers  and  consultants  in  school  and 
community  health  promotion  and  health  educa-
tion. The attendance will also include professionals 
working with disadvantaged and/or socially margin-
alised children and young people and children with 
diverse cultural and ethnic backgrounds, as well as 
school doctors, psychologists, school nurses, social 
care  organisations,  sport  and  physical  activity  or-
ganisations, and representatives of youth and par-
ent organisations and teachers. 

Target audience
The conference targets policy makers, practitioners, 
researchers and evaluators working within the field 
of  school  health  and  wellbeing.  Both  the  health 
and education sector are in focus, but also sectors 
such as social care and integration. The conference 
aims  at  300  participants,  of  whom  200  will  come 
from  EU  member  states,  the  EEA  countries  and 
EU candidate countries; 50 from states in Eastern 
Europe and Central Asia. Additionally, international 
specialists, including experts from other continents 
are  expected  to  attend.  Representatives  from  the 
World  Health  Organization,  the  European  Com-
mission,  the  Council  of  Europe,  European  Centre 
for  Disease  Control,  International  Union  of  Health  
Promotion and  Education, the  International  School 
Health  Network,  the  Northern  Dimension:  Partner-
ship  in  Public  Health  and  Social  Well-being,  other 
related  networks,  such  as  Eurohealthnet,  Europe-
an  Youth  Forum,  Learning  for  Well-being  Consor-
tium  and  similar  organisations  and  projects  will  
be invited.

Conference programme
The  Conference  will  be  organised  in  Odense,  Den-
mark, and will feature discussions on Education as 
a Determinant of Health and Health as a Determi-
nant of Education, Children’s Health and Wellbeing 
and  Educational  Attainment,  Health  Behaviour  in 
School  Aged  Children,  and  Current  European  Poli-
cies and Strategies towards Equity in Health.

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Keywords and portfolio

KEYWORDS:
•	 Lifestyle;	Nutrition;	Obesity
•	 Target	groups;	Children
•	 Methods;	Health	promotion

PORTFOLIO:
•	 Fostering	good	health;	Nutrition	and	physical	

activity 

ACTION WEBSITE: 
http://schools4health.dk/conference/

MAIN BENEFICIARY ƒCONFERENCE HOLDER…:
University College Southern Denmark, Research 
Centre for Health Promotion 
Degnevej 16 
6705 Esbjerg 
Denmark 
Tel: +45 7266 2000 

PROJECT LEADER: 
Birge Koch 
E-mail: bfko@ucsyd.dk 

MAXIMUM EC CONTRIBUTION: 
100,000.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/11/30 in Odense

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

C O N F E R E N C E   N O  2 01 2 0 0 01

HEALTHY AGEING ACROSS THE LIFECYCLE  

•CYPRIOT PRESIDENCY–

Abstract 

 General objectives
The conference aims at presenting an initiative on 
Health  Promotion  and  Disease  Prevention  from 
the  early  years  of  life  and  throughout  the  lifecy-
cle, with a view to offering draft conclusions to the 
EPSCO (Health) Council, based on Healthy Lifestyle 
from  early  age:  It  will  explore  the  links  between 
healthy lifestyles from an early age and preventive 
and health promotion programmes, as well as with 
empowerment and active involvement of individu-
als, families, organised groups and the community. 
It will also take account of environment and child-
hood  seeds  of  respiratory  diseases.  Health  issues 
of  childhood  and  adolescence  will  be  examined  in 
relation with public health policy interventions and 
with  compiling  data  on  cardiovascular  diseases 
and cancer. The health of working age people: and 
links  between  health  and  workplace  performance 
will also be discussed, as will wellbeing in later life, 
with a focus on early intervention through popula-
tion risk assessment for specific diseases in combi-
nation with innovative therapeutic approaches.

Expected achievements
Approximately 150 participants will be drawn from 
EU Member States, Iceland, Norway, Liechtenstein, 
CION, the EU Council Secretariat, WHO, staff from 
national  ministries  and  local  authorities,  and  uni-
versities and NGOs active in the area.

Target audience
The  conference’s  target  participants  are  public 
health professionals at senior level from EU Mem-
ber  States,  responsible  for  policy  making  and  im-
plementation  in  the  area  of  health  determinants 
and  healthy  ageing,  NGOs  and  academic  institu-
tions active in the area of public health and health 
services, related health professional organisations, 
and the European Commission and WHO.

Conference programme
The programme of the conference will feature key-
note  presentations  on  Healthy  Ageing  Across  the 
Lifecycle: A Public Health Issue, Health Promotion in 
Childhood  and  Adolescence  (including  Healthy  En-
vironment,  allergies,  respiratory  diseases),  Health 
Promotion for Working Age People (including health 
and  work  performance,  Cancer  Screening,  alcohol 
consumption),  Wellbeing  in  Later  Life  (including 
Neurodegenerative  Diseases  and  intervention  pro-
cesses through stem cells and biomarkers), Health 
Promotion in Childhood and Adolescence (including 
School  Health  Services,  Health  Promotion  through 
School  education,  Prevention  of  smoking),  Health 
Promotion for Working Age People (including popu-
lation risk assessment for cardiovascular diseases), 
Wellbeing in Later Life (Tackle Physical Frailty, geri-
atric medicine, medical care of elderly), and Effec-
tive  Funding  Tools  –  The  Way  Forward  (including 
addressing  risk  factors  and  chronic  diseases  and 
Healthy Cities Network)

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Keywords and portfolio

KEYWORDS:
•	 Elderly	within	Target	groups
•	 Chronic	diseases	within	Non	communicable	

diseases

•	 Health	system	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods
•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Ageing	within	Health	in	Society

ACTION WEBSITE: 
http://www.cy2012.eu/index.php/en/political-calendar/
areas/employment-social-policy-health-consumer-
affairs/healthy-ageing-across-the-lifecycle

MAIN BENEFICIARY ŠCONFERENCE HOLDERŒ:
Ministry of Health Cyprus 
Corner 1 Prodromou & 17 Chilonos Street 
1448 Nicosia 
Cyprus 
Tel: + 357 22605300/301 
Fax: +357 22772238 

PROJECT LEADER: 
Olga Kalakouta 
E-mail: okalakouta@moh.gov.cy

MAXIMUM EC CONTRIBUTION: 
58,685.33€

DATE AND PLACE OF THE CONFERENCE: 
2012/09/06 in Nicosia

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C H A P T E R  1

1 . 3 H E A LT H P RO M OT IO N JOI N T AC T IO N S

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

J O I N T   A C T I O N   N O  2 01 2 2 2 01

EUROPEAN HEALTH WORKFORCE PLANNING AND 

FORECASTING ™EUHWFORCEš

Abstract 

 General objectives
This  action  is  intended  to  help  Member  States 
prepare  the  future  of  the  health  workforce,  by 
promoting  collaboration  and  supporting  them  in 
measures to address supply and demand of health 
workers.  It  aims  to  clarify  terminology,  improve 
data  collection  on  the  workforce  and  on  mobility 
and  migration  trends,  deliver  guidelines  on  plan-
ning methodologies, and estimate future needs for 
skills  and  competences.  It  should  influence  plan-
ning and policy making

Methods and means
To  promote  knowledge  sharing  and  identify  needs 
at  national  and  EU  level,  a  platform  for  collabo-
ration  and  partnership  will  be  created,  based  on 
dialogue between experts, stakeholders and target 
groups. Workforce data (especially on mobility) will 
be  analysed,  and  pilot  studies  will  boost  capacity 
for quantitative and qualitative planning and fore-
casting  in  several  countries.  Guidelines  and  best 
practices  will  be  created,  and  recommendations 
will be made to assure sustainability of the action.

Expected outcomes
A consolidated network for health workforce plan-
ning  and  forecasting  will  support  EU  and  Member 
State preparations for a health system that is bet-
ter prepared for the future challenges. The action’s 
improved  data  collection  will  give  better  insight 
into  gaps,  and  allow  more  evidence-based  policy 
making.  Ultimately,  it  will  enrich  the  health  sys-
tems  in  the  Member  States  and  strengthen  soli-
darity within the EU.

Strategic relevance and contribution to the  
public health programme
The subject features firmly on the European agenda 
– in the European Commission’s 2008 Green Paper 
on  the  European  Workforce  for  Health,  policy  dia-
logues and a ministerial conference in 2009–2010; 
and  the  2010  Commission  Communication  on  an 
agenda for new skills and jobs. Member States also 
requested  a  platform  in  2010  Council  Conclusions 
on investing in Europe’s health workforce of tomor-
row.  The  action  is  in  line  with  the  item  on  devel-
oping  effective  health  workforce  forecasting  and 
planning in the 2011 Health Programme. This pro-
posal  directly  brings  together  18  countries,  with  a 
further seven collaborative partners, and umbrella 
organisations of health professions and structures.

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Keywords and portfolio

KEYWORDS:
•	 Health	workforce	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods

PORTFOLIO:
•	 Health	workforce	within	Improving	healthcare

ACTION WEBSITE: 
http://www.euhwforce.eu/

MAIN BENEFICIARY:
Federal Public Service Health, Food Chain Safety 
and Environment (BE_FPS) 
Place Victor Horta Plein 40 box 10 
PO-Box 
1060 Brussels 
Belgium 
Tel: +32 25249797 

PROJECT LEADER: 
Lieve Jorens 
E-mail: lieve.jorens@health.belgium.be 

ASSOCIATED PARTNERS: 
•	 Agenzia	Nazionale	per	i	Servizi	Sanitari	

Regionali, Italy

•	 Babes-Bolyai	University	Cluj-Napoca,	Romania
•	 Capaciteitsorgaan,	Netherlands
•	 Central	Administration	of	the	Health	System,	

Portugal

•	 Council	of	European	Dentists,	Belgium
•	 Department	of	Health,	England,	United	Kingdom
•	 European	Federation	of	Nurses	Associations,	

Belgium

•	 European	Health	Management	Association	Ltd,	

Ireland

•	 Fédération	européenne	des	hôpitaux	et	des	

soins	de	santé,	Belgium

•	 Katholieke	Universiteit	Leuven,	Belgium
•	 Medical	University	of	Varna,	Bulgaria
•	 Ministerio	de	Sanidad,	Servicios	Sociales	e	

Igualdad, Spain

•	 Ministerstwo	Zdrowia,	Poland
•	 Ministry	of	Health,	Italy
•	 Ministry	of	Health	in	France	–	Direction	

Générale	de	l’Offre	de	Soins	–	DGOS,	France

•	 Ministry	of	Health	of	the	Slovak	Republic,	

Slovakia

•	 Ministry	of	Health,	the	Elderly	and	Community	

Care, Malta

•	 Ministry	of	Health,	Welfare	and	Sport,	

Netherlands

•	 Ministry	of	Social	Affairs	and	Health,	Finland
•	 Ministry	of	Welfare,	Iceland
•	 National	Center	of	Public	Health	and	Analyses,	

Bulgaria

•	 National	Institute	of	Public	Health	Slovenia,	

Slovenia

•	 National	School	of	Public	Health,	Greece
•	 Pharmaceutical	Group	of	the	European	Union,	

Belgium

•	 Semmelweis	University,	Hungary
•	 Standing	Committee	of	European	Doctors,	

Belgium

•	 Union	européenne	des	médecins	specialistes	–	
European Union of Medical Specialists, Belgium

•	 Universitaet	Bremen	(University	of	Bremen,	

Germany), Germany

•	 University	of	Eastern	Finland,	Finland

MAXIMUM EC CONTRIBUTION: 
2,964,749.00€

DURATION: 
39 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

J O I N T   A C T I O N   N O  2 01 2 2 2 0 2

MENTAL HEALTH AND WELLŠBEING ŽMHŠWB‘

Abstract 

 General objectives
This  joint  action  aims  to  promote  mental  health 
and well-being, the prevention of mental disorders, 
and the improvement of care and increased social 
inclusion  of  people  with  mental  disorders  in  Eu-
rope.  It  intends  to  set  up  structured  collaboration 
among Member States and other relevant players, 
in  particular  the  WHO  and  the  OECD,  in  the  hope 
of developing a common framework on promoting 
mental health in the workplace and schools, coun-
tering  depression  and  suicide,  developing  commu-
nity  mental  health  care  and  integrating  mental 
health in all policies.

Methods and means
National  and  European  working  groups  will  evalu-
ate  progress  through  SWOT  analysis,  literature 
review, questionnaires, and interviews. Recommen-
dations  to  improve  the  effectiveness  of  mental 
health  policies  will  be  made  in  collaboration  with 
EU  agencies,  WHO  and  other  international  organi-
sations,  and  widely  disseminated.  Meetings  of  na-
tional and European networks will build consensus 
and  promote  engagement,  and  a  final  conference 
will support endorsement of the recommendations 
by  Member  States  and  the  EU,  and  promote  com-
mitment for follow-up.

Strategic relevance and contribution to the  
public health programme
Mental  health  and  well-being  has  not  always  re-
ceived  attention  in  proportion  to  its  weight  as  a 
public  health  priority.  The  action  will  help  achieve 
the  Europe  2020  vision  of  smart,  sustainable  and 
productive  growth,  by  ensuring  that  the  subject 
is  taken  into  account  in  partnerships  at  EU  level 
and in Member States between health policies and 
other  social,  educational  and  economic  policies.  It 
will also have EU added value because of its con-
tribution  to  realising  EU  policy  objectives  in  public 
health and other fields.

Expected outcomes
The  results  will  include  a  more  rigorous  and  com-
prehensive  knowledge  base  on  mental  health  and 
well-being in EU countries, particularly on prevention 
of  depression  and  suicide,  development  of  commu-
nity  based  approaches  and  social  inclusion,  mental 
health at the workplace, mental health and schools, 
and  integration  of  mental  health  in  all  policies.  An 
inventory  will  emerge  of  existing  evidence,  best 
practices  and  available  resources,  and  national  and 
European  networks  will  be  strengthened.  Recom-
mendations  will  help  build  capacity  among  national 
leaders on mental health in policy development, and 
structured cooperation will be put in place with other 
European  projects  and  key  actors  in  the  implemen-
tation of mental health policies in Europe.

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Keywords and portfolio

KEYWORDS:
•	 Suicide	within	Mood	anxiety	disorders	within	
Mental diseases and disorders within Non 
communicable diseases

•	 Mood	anxiety	disorders	within	Mental	diseases	
and disorders within Non communicable diseases

•	 EUROGIP,	France
•	 Finnish	Institute	of	Occupational	Health,	Finland
•	 Health	Insurance	institute	of	Slovenia,	Slovenia
•	 Health	Services	Executive,	Ireland
•	 Ministerstvo	zdravotníctva	SR	(MZ	SR)	Ministry	

of Health of the Slovak Republic, Slovakia

•	 Mental	diseases	and	disorders	within	Non	

•	 Ministry	of	Health	–	Health	Directorate	General,	

communicables diseases

•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Mental	health	within	Fostering	good	health

ACTION WEBSITE:
http://www.mentalhealthandwellbeing.eu/

MAIN BENEFICIARY:
Faculdade	de	Ciências	Médicas	–	Universidade	
Nova de Lisboa 
Campo	Mártires	da	Pátria,	130	
1169-056 Lisboa 
Portugal 
Tel: 351 218803000 

PROJECT LEADER: 
José	Miguel	Caldas	de	Almeida	
E-mail: caldasjm@fcm.unl.pt 

ASSOCIATED PARTNERS: 
•	 Azienda	Ospedaliera	Universitaria	Integrata	

Verona, Italy

•	 Azienda	USL	Bologna,	Italy
•	 BKK	Bundesverband	(Federal	Association/

Portugal

•	 Ministry	of	Health	of	the	Republic	of	Croatia,	

Croatia

•	 Ministry	of	Health,	Elderly	&	Community	Care,	

Malta

•	 Ministry	of	Health,	Social	Services,	and	Equality,	

Spain

•	 National	Institute	for	Health	and	Welfare,	

Finland

•	 Pécsi	Tudományegyetem,	Hungary
•	 Republic	of	Slovenia	Ministry	of	Health,	Slovenia
•	 Scottish	Executive,	United	Kingdom
•	 Semmelweis	University	Budapest,	Hungary
•	 Slimibu	profilakses	un	kontroles	centrs	(The	
Centre for Disease Prevention and Control of 
Latvia, Latvia

•	 South	London	and	Maudsley	NHS	Foundation	

Trust, United Kingdom

•	 Stichting	Trimbos-Instituut,	Netherlands	
Institute of Mental Health and Addiction, 
Netherlands

•	 Suomen	Mielenterveysseura	r.y.	(Finnish	
Association for Mental Health), Finland

•	 The	National	Board	of	Health	and	welfare,	Sweden
•	 The	Norwegian	Institute	of	Public	Health,	Norway
•	 TNO:	Netherlands	Organisation	for	Applied	

Company Health Insurance Fund), Germany
•	 Bulgaria,	National	Center	of	Public	Health	and	

Scientific Research TNO, Netherlands

•	 University	of	Leipzig,	Germany

Analyses, Bulgaria

•	 Danish	Health	and	Medicine	Authority	(Danish	
Legal name: Sundhedsstyrelsen), Denmark

•	 Directorate	of	Health	in	Iceland	(DOHI),	Iceland
•	 Eesti-Rootsi	Vaimse	Tervise	ja	Suitsidoloogia	

Instituut, Estonia

MAXIMUM EC CONTRIBUTION: 
1,492,188.00€

DURATION: 
36 months

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C H A P T E R  2

Health

Information

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C H A P T E R  2

2 .1 H E A LT H I N FO R M AT IO N  CO N F E R E N C E S

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

C O N F E R E N C E   N O  2 01 24 3 01 

THE SECOND EUROPEAN COLORECTAL CANCER PATIENT 

CONFERENCE	“THE	POWER	OF	PATIENT	VOICE	–	 

THE CHALLENGES, COLLABORATION AND CHANGE”  

“CCPC 2013”

Abstract 

 General objectives
The  aims  include  raising  the  profile  of  colorectal 
cancer  across  Member  States,  highlighting  the 
benefits of control and prevention through healthy 
lifestyles, diet and screening, so as to help ensure 
a healthier European ageing population and work-
force. The conference is also intended to strength-
en  motivation  for  creating  alliances  and  exchang-
ing  knowledge,  and  to  support  patients  in  making 
informed treatment and care choices, as well as to 
build  their  advocacy  capacity  and  their  influence 
on policy. 

Expected achievements
Approximately  300  participants  will  comes  from 
EuropaColon’s  affiliates,  partners  and  patient 
groups  from  across  Europe,  to  hear  some  30 
speakers  and  meet  patients.  The  European  Com-
missioner for health will also be invited.

Target audience
EuropaColon’s  affiliate  and  associate  patient 
groups  will  bring  representatives  and  participants 
proportionate  to  the  size  of  their  populations,  and 
the  reach  will  be  extended  by  engagement  with 
national  health  authorities  in  all  Member  States. 
Partnerships and collaborations with NGOs, patient 
groups  and  medical  organisations  throughout  20 
countries  globally  will  furnish  participants.  Family, 
friends  and  colleagues  of  patients  will  also  be  in-
vited.  A  recent  alliance  with  Colon  Cancer  Alliance 
to form the Global Colon Cancer Alliance will allow 
effective  debate  of  issues  and  provision  of  infor-
mation to clinicians, patients and caregivers across 
the  globe.  Media  will  be  involved  to  ensure  atten-
tion and awareness of the challenges and to high-
light the power of the voice of patients. 

Conference programme
The  conference  will  review  recent  and  future  ad-
vances in treatment, particularly in relation to per-
sonalised  therapies,  biomarkers,  biosimilars,  and 
extending  survival  times.  Examples  of  best  prac-
tice and the benefit for patients will be explored in 
terms of making the most of national cancer plans 
to  improve  patient  outcomes,  the  use  of  effective 
cancer  registries  to  improve  healthcare,  and  inno-
vation for active and healthy ageing. Challenges in 
access  to  best  treatment  and  care  will  be  exam-
ined  through  discussion  of  the  importance  of  lob-
bying and the potential of the cross-border health 
directive.  Other  sessions  will  include  discussion 
of  whether  society  can  afford  innovative  cancer 
therapies, how far clinical trials benefit the patient, 
and the challenges of formal population screening.

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Keywords and portfolio

KEYWORDS:
•	 Related	to	cancer	within	Risks	Factors	and	

determinants not already in the list

•	 Colorectal	within	Cancer	within	Chronic	diseases	

within Non communicables diseases

•	 Health	education	within	Methods
•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Major	and	chronic	diseases	within	Taking	Action	

against Diseases

ACTION WEBSITE: 
http://www.europacolon.com/ccpc.php?Action=Ccpc

MAIN BENEFICIARY ‡CONFERENCE HOLDER‰:
EuropaColon 
94 Wilton Road 
SP2 7JJ Salisbury 
United Kingdom 
Tel: +44 1722790151 

PROJECT LEADER: 
Jolanta Gore-Booth 
E-mail: Jola@europacolon.com 

MAXIMUM EC CONTRIBUTION: 
70,922.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/07/06 in Barcelona

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C O N F E R E N C E   N O  2 01 24 3 0 2

ORGAN TRANSPLANTATION: ETHICAL, LEGAL AND 

PSYCHOSOCIAL ASPECTS. OUTREACH FROM THE 

EUROPEAN PLATFORM •ELPAT 2013—

Target audience
The conference addresses scientists in the field of 
transplant medicine, ethics, law and psychology, as 
well  as  transplant  physicians,  clinicians  and  other 
medical practitioners, and professionals in the field 
of public health, governance and health policy. The 
aim is to establish links between scientific experts 
and policy-makers, so that information vital to im-
provement  in  organ  donation  policy  reaches  those 
that influence it. 

Conference programme
The  programme  will  review  cultural  and  religious 
aspects of donation, organ trafficking and paid do-
nation,  diverse  populations  and  ethnic  minorities, 
end of life care, psychosocial care, patient empow-
erment,  and  donor  recruitment,  public  issues  such 
as  campaigns  and  communication,  questions  of 
justice in terms of legal responsibility of transplant 
societies,  and  health  economics,  with  its  issues  of 
prioritising  care,  outsourcing  transplantation,  and 
the price of life and fair trade.

Abstract 

 General objectives
This  third  ELPAT  conference  aims  to  exchange 
knowledge and best practices on improving access 
to transplant care in countries with low organ do-
nation rates, extending beyond the EU to the Black 
Sea  and  Balkan  regions.  It  will  emphasise  the  im-
portance  of  those  ethical,  legal  and  psychosocial 
considerations that are vital for the implementation 
of  safe  and  sustainable  transplant  programmes. 
It  reflects  the  priority  in  the  public  health  pro-
gramme  of  ensuring  better  access  to  transplant 
care.  Wide  representation  of  transplant  profes-
sionals,  from  countries  with  low  or  high  donation 
rates,  is  planned,  and  the  strong  international  di-
mension  will  benefit  countries  across  Europe.  The 
conference  should  also  help  sustain  longer-term 
collaboration  and  cooperation  between  countries, 
and be followed up by widespread dissemination of 
deliverables  to  participants  and  non-participants 
and joint study projects.

Expected achievements
The  forecast  number  of  participants  is  250,  and 
will  include  delegates  from  as  far  as  the  USA, 
Canada,  Australia,  Middle  Eastern  states,  South 
America  and  Asia.  Participants  will  include  re-
searchers  from  universities,  academic  hospitals 
and other academic institutions, with backgrounds 
including  philosophy,  biomedical  ethics,  law,  gov-
ernance,  health  economics,  psychiatry,  anthropol-
ogy, criminology and psychology. Others will come 
from health ministries and organ allocation organi-
sations, from the European Commission, the WHO, 
international  medical  and  human  rights  organisa-
tions, and professional transplantation societies.

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Keywords and portfolio

KEYWORDS:
•	 Tissue,	cell	and	organ	transplants	within	

Healthcare

•	 Tissues	and	Cells	within	Substances	of	Human	

Origin within Health safety & security

PORTFOLIO:
•	 Organ	Transplantation	within	Substances	of	
Human Origin within Ensuring health security

ACTION WEBSITE: 
http://www.esot.org/Elpat/Content.aspx?item=22

MAIN BENEFICIARY ŠCONFERENCE HOLDER‹:
European Society for Organ Transplantation 
CORRESPONDING ADDRESS’s-Gravenwijkwal 230 
(Internal Medicine, Kidney Transplant Unit, Room 
D-408) 
3015 CE Rotterdam 
Netherlands 
Tel: +31 107033002 
Fax: +31 104366372 

PROJECT LEADER: 
Willem Weimar 
E-mail: j.ambagtsheer@erasmusmc.nl 

MAXIMUM EC CONTRIBUTION: 
100,000.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/04/23 in Rotterdam

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

C O N F E R E N C E   N O  2 01 24 3 0 3 

WORKPLACE HEALTH PRACTICES FOR EMPLOYEES WITH 

CHRONIC ILLNESS. ™PH WORK CONFERENCEš

Target audience
The focus is on companies with more than 50 em-
ployees (medium-size and larger enterprises) from 
the  public  and  private  sector,  in  any  field.  Work-
ers and their families are targeted, as well as em-
ployee representatives, human resource managers, 
occupational safety and health experts and repre-
sentatives. 

Conference programme
The  conference  agenda  will  cover  the  impact  of 
chronic conditions and diseases on the labour mar-
ket  and  working  life,  effective  job  retention  and 
workplace-based  return-to-work  strategies  and 
interventions, the role of workplace health promo-
tion  in  supporting  employees  with  chronic  illness, 
and  collaboration  between  healthcare  profession-
als and the workplace.

Abstract 

 General objectives
In  line  with  the  Community  action  in  the  field  of 
health  (2008–1013),  the  conference  aims  to  raise 
awareness  about  the  impact  of  chronic  diseases 
on  the  labour  market  and  social  security,  and  to 
improve knowledge and cooperation among stake-
holders  about  retaining  workers  with  a  chronic 
disease,  or  facilitating  their  return-to-work.  The 
conference will help wider dissemination of strate-
gies and interventions to assure job retention/early 
intervention/return-to-work. Research findings and 
guidance  are  to  be  presented,  and  the  conference 
will  explore  the  role  of  policymakers  and  other 
stakeholders from the public health and workplace 
health field. 

Expected achievements
The expected number of participants is 250, from a 
range of organisations, countries and backgrounds, 
so  as  to  address  the  public  health  and  workplace 
health aspects. Member State healthcare providers 
and  intermediaries  will  include  physicians,  hospi-
tals  and  rehabilitation  centres,  patient  groups,  oc-
cupational  safety  and  health  services,  insurance 
companies, social services, employment assistance 
centres,  as  well  as  researchers  in  public  health, 
and  decision-makers  in  companies.  European  par-
ticipants  will  come  from  social  partners,  the  Eu-
ropean Commission and European Parliament, and 
health-relevant  networks,  business  networks,  and 
social security associations.

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Keywords and portfolio

KEYWORDS:
•	 Ageing	workforce	within	Employment	within	

Socio economic factors

•	 Employment	within	Socio	economic	factors
•	 Workers	within	Target	groups
•	 Chronic	diseases	within	Non	communicables	

diseases

•	 Collection	of	Best	Practices	within	Methods

PORTFOLIO:
•	 Major	and	chronic	diseases	within	Taking	Action	

against Diseases

ACTION WEBSITE: 
http://www.workadaptedforall.eu/

MAIN BENEFICIARY …CONFERENCE HOLDER‡:
Prevent, Institute for Occupational Safety and 
Health 
Rue Gachardstraat 88/4 
1050 Brussels 
Belgium 
Tel: +32 26434492 

PROJECT LEADER: 
Veronique De Broeck 
E-mail: veronique.debroeck@prevent.be 

MAXIMUM EC CONTRIBUTION: 
73,175.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/10/23 in Brussels

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H E A L T H   (cid:24)   2 0 1 2   A N N U A L   R E P O R T

C O N F E R E N C E   N O  2 01 24 3 0 4 

23RD AE CONFERENCE: LIVING WELL IN A  

DEMENTIA™FRIENDLY SOCIETY œ23 AECž

Target audience
The  programme  is  targeted  at  health  care  pro-
fessionals,  researchers,  academics  and  people 
involved  in  Alzheimer  associations,  but  also  pub-
lic  health  professionals,  policy  makers  and  people 
with dementia and their carers. The involvement of 
people with dementia as speakers and participants 
is a feature of the conference, and a bursary sys-
tem encourages their participation. 

Conference programme
Representatives  of  the  European  Commission  and 
the  Maltese  government  will  present  their  respec-
tive  priority  programmes  in  dementia.  The  ses-
sion  on  integrated  care  will  feature  presentations 
from  the  Joint  Programming  Initiative,  the  FP7 
Programme  and  the  Innovative  Medicines  Initia-
tive.  On  prevention,  presentations  will  come  from 
the  Joint  Action  work  on  care  approaches  and  the 
Ambient  Assisted  Living  activities  in  the  field  of 
dementia.  The  session  on  a  dementia-friendly  so-
ciety will have presentations of Alzheimer Europe’s 
European  Dementia  Ethics  Network  and  the  Joint 
Action  work  on  capacity  assessment.  The  session 
on innovative solutions will explore implementation 
and progress  of selected national Alzheimer plans 
and strategies.

Abstract 

 General objectives
The  Conference  will  organise  an  exchange  of  in-
formation  and  best  practices  on  key  aspects  of 
the  European  Innovation  Partnership  on  Active  and 
Healthy Ageing in the fields of integrated care, pre-
vention,  dementia-friendly  society  and  innovative 
solutions.  It  is  in  line  with  the  Commission  Com-
munication  on  a  European  initiative  on  Alzheimer’s 
disease  for  greater  EU  collaboration  in  relation  to 
acting early to diagnose dementia, shared European 
efforts in research, national solidarity and exchange 
of best care practices, and respecting the rights of 
people  with  dementia.  The  conference  will  accord-
ingly  focus  on  post  diagnostic  support,  care  in  the 
community, carer training, residential care; prevent-
ing  dementia,  behavioural  problems,  carer  burnout 
and hospitalisation; dementia-friendly communities, 
dementia  strategies,  perceptions  and  image  of  de-
mentia, and ethical and legal aspects; and assistive 
technologies, dementia and the arts, new psychoso-
cial approaches, and involvement of people with de-
mentia. Collaboration with EU-funded initiatives will 
ensure  effective  sharing  of  the  results  of  relevant 
research programmes and projects. 

Expected achievements
Between  300  and  400  participants  are  expected. 
To  encourage  participation  from  Eastern  Europe, 
reduced  registration  fees  will  be  offered  to  par-
ticipants  from  lower  and  middle-income  countries 
and  from  some  member  organisations  who  might 
otherwise not be able to attend. Collaboration with 
other relevant European networks will help to tar-
get  participants,  and  to  disseminate  information 
on  the  conference  to  the  different  professional 
networks and nationalities.

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Keywords and portfolio

KEYWORDS:
•	 Patient’s	rights	within	Socio	economic	factors
•	 Elderly	within	Target	groups
•	 Alzheimer	within	Dementia	within	Mental	

diseases and disorders within Non 
communicables diseases

•	 Dementia	within	Mental	diseases	and	disorders	

within Non communicables diseases

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society

MAIN BENEFICIARY ‡CONFERENCE HOLDER‰:
Alzheimer Europe 
145, route de Thionville 
2611 Luxembourg 
Luxembourg 
Tel: +352 297970 
Fax: +352 297972 

PROJECT LEADER: 
Jean Georges 
E-mail: jean.georges@alzheimer-europe.org 

ACTION WEBSITE: 
http://www.alzheimer-europe.org/Conferences

MAXIMUM EC CONTRIBUTION: 
80,000.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/10/03 in Malta

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C O N F E R E N C E   N O  2 01 24 3 0 5 

SIXTH EUROPEAN PUBLIC HEALTH CONFERENCE 

›BRUSSELS 2013ž

Target audience
The  conference  will  bring  together  public  health 
professionals,  researchers,  training  professionals, 
students,  policy  makers,  and  representatives  from 
international  and  European  networks  and  organi-
sations. Efforts will be made to allow public health 
experts  from  low  income  countries  and  coun-
tries  in  Central  and  Eastern  Europe  to  attend  the  
conference. 

Conference programme
The sub-themes of the conference are health in an 
ageing Europe; better public health for less money 
– economic crisis and health; health inequalities in 
public  health  and  health  services  research;  health 
information systems within Europe; capacity build-
ing,  manpower  planning  and  education.  Working 
groups will explore innovative solutions for improv-
ing health promotion, non-communicable diseases, 
health  systems  research,  infectious  diseases  con-
trol,  the  quality  of  healthcare,  healthy  lifestyles, 
food,  nutrition  and  obesity,  migration  and  health, 
public  health  core  competences  and  public  health 
education accreditation.

Abstract 

 General objectives
The  aim  is  to  strengthen  the  capacity  of  public 
health  professionals,  researchers  and  policy  mak-
ers through exchanging knowledge, policy and best 
practice  across  Europe.  It  is  designed  to  share  re-
search  outcomes,  encourage  collaboration  among 
networks,  organisations  and  schools  of  public 
health,  and  to  promote  discussion  on  how  public 
health  can  contribute  to  meeting  the  economic 
and demographic challenges in Europe. It will also 
boost  the  capacity  of  EUPHA  and  ASPHER  mem-
ber associations and support the objectives of the 
second EU Health Programme and the new Health 
for  Growth  Programme.  The  focus  is  on  ‘Health 
in  Europe:  are  we  there  yet?’,  and  topics  include 
twenty  years  of  public  health  mandate  in  the  Eu-
ropean Union, and new challenges in public health 
and health services research in a rapidly changing 
Europe.  It  will  look  at  population  changes  and  the 
impact  on  health,  the  limits  to  the  evidence-base 
for  public  health,  and  how  to  develop  people  and 
institutions in public health. 

Expected achievements
There  will  be  an  estimated  1,200  participants 
from over 50 countries worldwide. Participants will 
come from all EU Member States, EU-neighbouring 
countries  and  countries  outside  the  European  re-
gion. Representatives from international organisa-
tions  like  the  European  Commission,  WHO  Europe 
and  headquarters,  ECDC,  OECD  and  the  European 
Observatory will attend the conference

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Keywords and portfolio

KEYWORDS:
•	 Collection	of	Best	Practices	within	Methods
•	 Health	promotion	within	Methods
•	 Prevention	within	Methods
•	 Healthcare
•	 Lifestyle

PORTFOLIO:
•	 Population	groups	within	Health	in	Society

ACTION WEBSITE: 
http://www.eupha.org/site/upcoming_conference.
php?conference_page=341

MAIN BENEFICIARY ˆCONFERENCE HOLDERŠ:
European Public Health Association 
Otterstraat 118–124 
NL – 3513 CR Utrecht 
Netherlands 
Tel: +31 302729719 
Fax: + 31 302729729 

PROJECT LEADER: 
Dineke	Zeegers	Paget	
E-mail: office@eupha.org 

MAXIMUM EC CONTRIBUTION: 
100,000.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/11/16 in Brussels

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C O N F E R E N C E   N O  2 01 2 0 0 0 2

HIGH–LEVEL E–HEALTH MINISTERIAL CONFERENCE 2013 

™IRISH PRESIDENCY›

Abstract 

 General objectives
The  Irish  Minister  for  Health  considers  eHealth 
to  be  an  increasingly  vital  component  in  deliver-
ing  better  and  more  cost  effective  healthcare  to 
citizens and, therefore, an important consideration 
for  Europe  in  shaping  healthcare  systems  for  its 
future.  The  conference  aims  to  further  the  devel-
opment of eHealth.

Expected achievements
The 2013 World of Health IT Conference & Exhibi-
tion will kick off with an opening reception on the 
exhibition  floor  for  all  delegates.  Related  policies 
will be discussed. An EU-US eHealth Business Mar-
ketplace  will  be  held  to  create  new  business  rela-
tionships,  research,  innovation  and  collaborations 
leading  to  innovative  health  improvements,  job 
creation  and  economic  developments.  The  ‘Mar-
ketplace’  is  inspired  by  the  EU-US  MOU  on  Coop-
eration  Surrounding  Health  Related  ICT.  An  EU-US 
eHealth/Health  IT  Cooperation  Assembly  will  dis-
cuss current & future perspectives of the EU & US 
cooperation on eHealth matters & related policies.

Target audience
The  primary  purposes  of  the  conference  are  to 
heighten  Member  States  awareness  of  the  role 
and  potential  of  eHealth  and  to  provide  opportu-
nities  for  networking  and  exchange  of  experience 
between  delegates  and  with  the  eHealth  industry. 
It  is  also  intended  that  an  eHealth  ‘hot  topic’  will 
be introduced and debated at the high-level work-
ing lunch and that any conclusions reached will be 
widely  circulated.  After the Conference, a final  re-
port  on  the  implementation  of  the  action  and  the 
final financial statement will be provided as stated 
in the Grant Agreement.

Conference programme
The Minister for Health will invite high level delega-
tions from each Member State to Dublin to further 
the  development  of  eHealth  through  the  medium 
of a conference, exhibition, workshops and related 
activities.

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Keywords and portfolio

KEYWORDS:
•	 Healthcare	costs	within	Financing	healthcare	

within Healthcare

•	 eHealth	+	telemedecine	within	Healthcare

PORTFOLIO:
•	 eHealth	within	Improving	healthcare

ACTION WEBSITE: 
http://www.eu2013.ie/media/eupresidency/
content/documents/eHealth-Irish-Presidency-
Declaration-13.05.13.pdf

MAIN BENEFICIARY ŠCONFERENCE HOLDER‹:
Minister for Health of Ireland 
Hawkins House, Hawkins Street 
2 Dublin 
Ireland 
Tel: 01-635 4000 

PROJECT LEADER: 
Kevin Conlon 
E-mail: kevin_conlon@health.gov.ie

MAXIMUM EC CONTRIBUTION: 
100,000.00€

DATE AND PLACE OF THE CONFERENCE: 
2013/05/13 in Dublin

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C H A P T E R  3

Health

Security

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C H A P T E R  3

3.1 H E A LT H S EC U R I T Y P ROJEC T S

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P R O J E C T   N O  2 01 21101 

EUROPEAN CHEMICAL EMERGENCY NETWORK 

—ECHEMNET˜ 

Abstract 

 General objectives
The aim is to strengthen and test the outputs from 
previous  projects  funded  by  the  European  Com-
mission’s  Executive  Agency  for  Health  and  Con-
sumers,  notably  the  Alerting  System  for  Chemical 
Health  Threats  (ASHT),  Chemical  and  Radiological 
Inventory  of  Medical  Countermeasures(CARIMEC), 
and  the  Chemical  and  Radiation  Risk  Assessment 
Network(CARRA-Net).  Consultation  with  end-users 
(the  Health  Security  Committee  and  the  Chemical, 
Biological, Radio-Nuclear working group) and multi-
sectoral stakeholders at the EU and Member State 
level will be central to the project, and a network of 
risk-assessors/managers  will  be  further  developed 
for activation during a transboundary chemical inci-
dent with potential public health implications.

Strategic relevance and contribution to the  
public health programme
There is a need for a coherent EU-level framework 
to  manage  action  against  a  cross  border  public 
health crisis. The project will add value to EU poli-
cies  by  setting  up  a  pilot  network  and  preparing 
a  mechanism,  guidance  documents  and  test  exer-
cises to be implemented by any future legislation.

Methods and means
The  project  seeks  to  standardise  Member  State 
responses  to  cross-border  chemical  events  with 
a  public  health  impact.  A  pilot  network  of  poison 
centres  and  health  authorities  will  apply  tools  de-
veloped  by  previous  projects,  and  a  standardised 
approach  will  be  developed  and  tested  –  on  live 
events,  if  the  situation  arises.  Multi-sectoral  or-
ganisations  involved  in  responding  to  chemical  in-
cidents, such as the World Health Organisation and 
the EU, will be engaged.

Expected outcomes
Experiences  and  best  practices  will  be  shared  be-
tween  Member  States,  and  will  make  possible  an 
efficient and coherent EU-level response to poten-
tially  devastating  cross-border  events.  This  will  be 
built  on  the  pilot  network,  consistent  use  of  RAS-
CHEM  (e.g.  in  assigning  alert  levels),  and  use  of 
standardised operating procedures and guidance on 
chemical  incident  management.  This  approach  will 
be of particular value for countries with less capac-
ity and expertise. The standardised mechanism will 
also make it possible to assess health impacts and 
coordinate actions between Member States. 

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Keywords and portfolio

KEYWORDS:
•	 Chemical	agents	within	Environmental	factor
•	 Early	warning	systems	(EWRS,	RAS…)	within	

PROJECT LEADER: 
Raquel Duarte-Davidson 
E-mail: Raquel.Duarte-Davidson@hpa.org.uk 

Healthcare

•	 Pilot	testing	within	Methods
•	 Screening	within	Methods
•	 Benchmarking	within	Methods

PORTFOLIO:
•	 Risk	management	within	Preparedness	and	
response within Ensuring health security

ACTION WEBSITE: 
http://www.echemnet.eu/

MAIN BENEFICIARY:
Health Protection Agency 
HPA, CRCE, Chilton 
PO-Box 
OX11 0RQ Didcot 
United Kingdom 
Tel: +44 1235831600 
Fax: +44 1235822614 

ASSOCIATED PARTNERS: 
•	 Empresa	Publica	de	Emergencias	Sanitarias,	

Spain

•	 National	Institute	for	Public	Health	and	the	

Environment, Netherlands

•	 Swedish	Defence	Research	Agency,	Sweden
•	 Universitaetsmedizin	Goettingen,	Georg-

August-Universitaet, Stiftung Oeffentlichen 
Rechts, Germany

MAXIMUM EC CONTRIBUTION: 
447,600.00€

DURATION: 
36 months

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P R O J E C T   N O  2 01 2110 2

COORDINATED ACTION IN THE AVIATION SECTOR TO 

CONTROL PUBLIC HEALTH THREATS ŽAIRSAN‘ 

Abstract 

 General objectives
The project aims to ensure an efficient multi-sector 
EU  response  to  public  health  threats  in  air  trans-
port.  It  will  create  a  network  comprising  national 
public health and civil aviation authorities, ten air-
port  authorities,  airport  managers  responsible  for 
public  health  events,  and  at  least  eight  major  Eu-
ropean airlines. Standard operating procedures and 
guidelines  will  be  developed,  and  training  tools, 
along with a website for information gathering and 
information exchange. 

Strategic relevance and contribution to the  
public health programme
Variations  in  preparedness  compromise  the  deliv-
ery of harmonised information, potentially delaying 
interventions, and no formal arrangements exist to 
coordinate response to public health threats in the 
aviation sector. AIRSAN takes account of the rapid 
increase  air  travel  and  the  related  growing  risk  of 
cross-border health threats and will support Mem-
ber States in implementing new regulations and in 
coordinated information exchange.

Methods and means
Based on survey results from airports, airlines and 
health  authorities,  the  network  will  be  built  and  a 
review conducted of existing procedures. New pro-
cedures  will  be  developed  where  necessary,  and 
field-tested. Communication and dissemination will 
be  effected  through  existing  reporting  systems, 
and training tools will be developed.

Expected outcomes
The intended outcome is a coordinated network of 
all  those  involved  in  public  health  and  civil  avia-
tion  across  the  EU,  with  agreed-upon  actions  in 
the  event  of  cross-border  threats.  Sustainability 
beyond  the  life  of  the  project  will  be  ensured  by 
cooperation  with  the  key  stakeholders  and  agen-
cies.  International  cooperation  among  partner  or-
ganisations  will  promote  further  cooperation  and 
assistance in the response to public health threats 
in air transport.

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Keywords and portfolio

KEYWORDS:
•	 Biological	agents	within	Environmental	factor
•	 Migration	within	Globalisation,	travel,	trade	

PROJECT LEADER: 
Tim Eckmanns 
E-mail: AIRSAN@rki.de

within Socio economic factors

•	 Respiratory	tract	infections	within	

Communicable diseases

ASSOCIATED PARTNERS: 
•	 Federal	Public	Service	of	Public	Health,	Food	

•	 Early	warning	systems	(EWRS,	RAS…)	within	

Chain Safety and Environment, Belgium

Healthcare

•	 Survey	within	Methods

PORTFOLIO:
•	 Cross-border	Health	Threats	within	EU	in	the	

•	 Fraport	AG	Germany,	Frankfurt/M.,	Frankfurt-

Airport, Germany

•	 Koninklijke	Luchtvaart	Maatschappij	NV,	

Netherlands

•	 National	Institute	for	Public	Health	and	the	

world within Steering EU Public Health

Environment, Netherlands

ACTION WEBSITE: 
http://www.airsan.eu

MAIN BENEFICIARY:
Robert Koch-Institut 
Nordufer 20 
13353 Berlin 
Germany 
Tel: +49 30187540 
Website: http://www.airsan.de

•	 National	Institute	of	Public	Health,	National	

Institute of Hygiene, Poland
•	 University	of	Thessaly,	Greece

MAXIMUM EC CONTRIBUTION: 
598,566.00€

DURATION: 
24 months 

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C H A P T E R  3

3. 2 H E A LT H S EC U R I T Y  JOI N T AC T IO N S

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

J O I N T   A C T I O N   N O  2 01 2 2101 

FACILITATING EXCHANGE OF ORGANS DONATED IN EU 

MEMBER STATES ˜FOEDUS™

Methods and means
The consortium will perform analyse existing bilat-
eral  and  multilateral  agreements  on  cross-border 
organ  exchanges.  At  the  same  time  a  common 
form to be used for international cross-border ex-
changes will be developed with necessary medical 
information  for  speeding  up  the  evaluation  pro-
cedures  of  donors  and  organs.  This  will  be  tested 
during  a  pilot,  using  the  IT  tool  developed  under 
a  dedicated  work-package.  A  strategy  for  tackling 
communication  issues  on  cross-border  exchanges 
as a part of a general approach to increasing pub-
lic awareness for organ donation will be defined.

Expected outcomes
The expected outcome is an EU-wide common ap-
proach to the issue of organ exchanges, along with 
better knowledge of current barriers and obstacles 
(financial,  logistic,  legal).  This  would  also  give  the 
European  Commission  correct  inputs  for  address-
ing these issues at EU level.

Abstract 

 General objectives
This action aims at improving practice on exchange 
of  donor  organs  across  national  borders.  Not  only 
is  the  number  of  organ  donors  still  insufficient  in 
all Member States, but the number of organs that 
are used per donor is often sub-optimal. Where it is 
difficult  to  find  compatibility  in  some  patient  cat-
egories, some organs are not allocated at national 
level,  because  there  is  no  suitable  recipient  on 
the  national  waiting  list.  These  organs  are  there-
fore  sometimes  wasted  although  they  could  be 
used in another country. The number of exchanges 
could grow substantially. This action is designed to  
increase  the  number  of  bilateral  agreements,  and 
to  promote  awareness  raising  and  appropriate 
communications.

Strategic relevance and contribution to the  
public health programme
Consensus  on  essential  tools  for  increasing  organ 
exchange  could  complement  Member  State  poli-
cies  in  this  field.  Guidelines,  clinical  data  require-
ments,  IT  platforms,  communication  to  the  public 
can  all  benefit  from  a  common  approach.  This 
matches  the  ambition  of  the  Public  Health  Pro-
gramme  2008–2013  and  priorities  of  the  Action 
Plan  2009–2015,  particularly  the  aim  to  have  a 
system  or  a  structure  for  the  exchange  of  organs 
for  urgent  patients  and  difficult-to-treat  patients, 
and the priority of improving knowledge and com-
munication  skills  of  health  professionals  and  pa-
tient support groups on organ transplantation.

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Keywords and portfolio

KEYWORDS:
•	 Primary	care	within	Health	system	within	

•	 Deutsche	Stiftung	Organtransplantation,	

Germany

Healthcare

•	 Eurotransplant	International	Foundation,	

•	 Tissue,	cell	and	organ	transplants	within	

Netherlands

Healthcare

PORTFOLIO:
•	 Organ	Transplantation	within	Substances	of	
Human Origin within Ensuring health security

ACTION WEBSITE: 
http://www.foedus-ja.eu/

MAIN BENEFICIARY:
Centro Nazionale Trapianti, Istituto Superiore di 
Sanit 
Viale Regina Elena, 299 
PO-Box 
00161 Rome 
Italy 
Tel: +39 649904040 
Fax: +39 649904101 

PROJECT LEADER: 
Alessandro Nanni Costa 
E-mail: centronazionale.trapianti@iss.it 

ASSOCIATED PARTNERS: 
•	 Agence	de	la	Biomedecine,	France
•	 Bulgarian	Executive	Agency	for	Transplant,	

Bulgaria

•	 Centrum	Organizacyjno	Koordynacyjne	ds.	

Transplantacji	“Poltransplant”,	Poland

•	 Hellenic	Transplant	Organization,	Greece
•	 Institute	for	Transplantation	of	organs	and	

tissues of the Republic of Slovenia – Slovenija 
Transplant, Slovenia

•	 Instituto	Português	do	Sangue	e	da	

Transplantação,	Portugal

•	 Institutul	Clinic	Fundeni,	Romania
•	 Koordinacni	stredisko	transplantaci,	Czech	

Republic

•	 Mater	Dei	Hospital,	Malta	Ministry	of	Health,	

Malta

•	 Ministry	of	Health	of	the	Republic	of	Croatia,	

Croatia

•	 National	Transplant	Bureau	under	the	Ministry	
of Health of the Republic of Lithuania, Lithuania

•	 NHS	Blood	and	Transplant	Department	of	

Health, United Kingdom

•	 Országos	Vérellátó	Szolgálat,	Hungary
•	 Public	Federal	Service	–	Health,	Food	Chain	

control and Environment, Belgium
•	 Slovak	Medical	University,	Slovakia

MAXIMUM EC CONTRIBUTION: 
1,149,902.30€

DURATION: 
36 months

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J O I N T   A C T I O N   N O  2 01 2 210 2 

IMPROVING QUALITY IN HIV PREVENTION ˜QHP™

Abstract 

 General objectives
To  increase  the  effectiveness  of  HIV  prevention 
using  practical  quality  assurance  and  quality  im-
provement  tools,  this  Joint  Action  aims  to  train  at 
least 60 experts in participating Member States to 
provide  capacity  building  and  technical  assistance 
to programmes/projects applying quality assurance 
and quality improvement tools adapted to HIV pre-
vention.  It  will  also  ensure  that  experts  have  the 
skills to provide necessary support; and liaise with 
participating  programmes  and  projects  in  support 
of  at  least  80  applications  of  these  tools.  Collect-
ing and analysing data on the process and results 
will permit the creation of a Charter for Quality in 
HIV  Prevention  and  policy  statements  and  recom-
mendations at the European, regional and Member 
State levels.

Strategic relevance and contribution to the  
public health programme
The  Joint  Action  responds  to  the  interim  report 
on the EU Communication and Action Plan and its 
recommendations  for  quality  assurance  and  qual-
ity  improvement  to  improve  effectiveness.  This 
will  reduce  new  HIV  infections,  discrimination  and 
social  exclusion,  and  address  health  inequalities 
by  targeting  vulnerable  populations.  Transferable 
knowledge for the region will be disseminated by a 
network of experts. 

Methods and means
Methods  include  adult  education,  e-learning  and 
practice-based  learning,  and  demonstration  pilots 
for  practical  application  of  the  tools.  Document 
analysis, theme identification and consultative dis-
cussions will articulate quality principles and crite-
ria.  A  desk/literature  review  will  assess  the  policy 
impact. Stakeholder analysis, stakeholder platform, 
project brochure, presentations and fact sheets will 
support  dissemination.  An  evaluation  plan  will  in-
clude  details  of  the  methodology  for  each  evalu-
ation  component,  driven  by  the  project’s  process, 
output and outcome indicators and including elec-
tronic  collection  of  quantitative/qualitative  data, 
focus groups and document review.

Expected outcomes
Effectiveness  requires  a  combination  of  test-
ing  and  treatment,  condoms  and  sterile  injecting 
equipment,  safe  sex  and  safe  injecting,  human 
rights and reducing stigma, discrimination, poverty 
and  criminalisation.  The  Joint  Action  will  promote 
a  quality  policy  that  follows  epidemiology  and  re-
sponds with strategically sound and well-resourced 
programmes.  At  the  intervention  level,  it  will  im-
prove  planning,  implementation  and  evaluation, 
maximising  impact  on  priority  populations  to  im-
prove health.

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Keywords and portfolio

KEYWORDS:
•	 Harm	reduction	within	Drugs	and	substance	

misuse within Lifestyle

•	 Disadvantaged	groups	within	Target	groups
•	 HIV/AIDS	within	HIV,	STIs	&	Blood	borne	
infections within Communicable diseases

•	 Accessibility	within	Healthcare
•	 Quality	evaluation	within	Methods

PORTFOLIO:
•	 Cross-border	Health	Threats	within	EU	in	the	

•	 Deutsche	AIDS-Hilfe	e.	V.,	Germany
•	 Društvo	ŠKUC,	Slovenia
•	 EuroHealthNet,	Belgium
•	 Health	Protection	Agency,	United	Kingdom
•	 Health	Service	Executive,	Ireland
•	 Hellenic	Centre	for	Disease	Control	and	

Prevention, Greece

•	 Utlruga	za	pomoć	mladima	HELP,	Croatia
•	 Lega	Italiana	per	la	Lotta	contro	l’Aids,	Italy
•	 Ministerio	de	Sanidad,	Servicios	Sociales	e	

Igualdad, Spain

world within Steering EU Public Health

•	 National	Institute	for	Health	Development,	

ACTION WEBSITE: 
http://www.qualityaction.eu

MAIN BENEFICIARY:
Federal Centre for Health Education, Germany 
Ostmerheimer Str. 220 
PO-Box 
51109 Cologne 
Germany 
Tel: +49 22189920 
Website: http://www.bzga.de 

PROJECT LEADER: 
Caren Wiegand 
E-mail: caren.wiegand@bzga.de 

ASSOCIATED PARTNERS: 
•	 Aids	Hilfe	Wien,	Austria
•	 Centre	for	Communicable	Diseases	and	AIDS,	

Lithuania

•	 Croatian	National	Institute	of	Public	Health,	

Croatia

•	 Croix-Rouge	luxembourgeoise,	Luxembourg

Estonia

•	 National	Institute	for	Infectious	Diseases,	

Romania

•	 National	Institute	for	Infectious	Diseases	

Lazzaro Spallanzani, Italy

•	 Prins	Leopold	Institute	for	Tropical	Medicine,	

Belgium

•	 Sensoa	not	for	profit	organisation,	Belgium
•	 Sida-studi,	Spain
•	 Slovak	Medical	University,	Slovakia
•	 Smittskyddsinstitutet	(Swedish	Institute	for	
Communicable Disease Control), Sweden
•	 Spoleczny	Komitet	ds.	AIDS	–	Social	AIDS	

Committee, Poland

•	 Stichting	Aids	Fonds	Stop	Aids	Now	Soa	Aids	

Nederland, Netherlands

•	 The	Sexual	Health	Centre	Ltd,	Ireland

MAXIMUM EC CONTRIBUTION: 
1,493,180.00€

DURATION: 
36 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

J O I N T   A C T I O N   N O  2 01 2 210 3 

THE IMPACT ON MARITIME TRANSPORT OF HEALTH 

THREATS DUE TO BIOLOGICAL, CHEMICAL & 

RADIOLOGICAL AGENTS, INCLUDING COMMUNICABLE 

DISEASES ’SHIPSAN ACT“

Methods and means
Questionnaires  will  be  used  for  data  collection, 
and  internet  and  web  based  software  for  network 
development  and  for  e-learning.  Interviews  and 
statistical  analysis,  train-the-trainer  course,  and 
advanced  training  for  port  health  officers  and  the 
shipping  industry  will  also  be  used.  Coordination, 
dissemination,  sustainability  and  evaluation  strat-
egies  will  be  implemented  ensuring  outputs  and 
sustainability.

Expected outcomes
Competences  of  staff  in  authorities  and  industry 
will  be  improved  on  prevention/control/response 
to  chemical,  biological,  radiological  and  nuclear 
health  threats.  Information  tools  will  allow  risk 
assessment,  standard  response,  rapid  informa-
tion  sharing,  and  follow-up  of  events  related  to 
maritime transport. Improved governance in public 
health  risk  management  will  result,  and  a  better 
coordinated  and  balanced  response  to  cross-bor-
der health threats. 

Abstract 

 General objectives
This action is designed to support an integrated EU 
strategy  for  safeguarding  the  health  of  maritime 
passengers  and  crew  and  preventing  cross-border 
spread of disease, so as to improve citizens’ health 
security.  Response  coordination  to  serious  cross 
border  threats  to  health  caused  by  chemical,  bio-
logical,  radiological  and  nuclear  agents  will  cover 
prevention,  identification,  assessment,  and  links 
with  existing  mechanisms.  It  will  also  facilitate 
implementation  of  EU  and  international  legisla-
tion  and  develop  the  outline  of  a  risk  assessment 
tool  for  occupational  health  on  ships.  Training,  in-
spections, contingency planning guidance and Ship 
Sanitation Certificates will all be explored.

Strategic relevance and contribution to the  
public health programme
Issues of a transnational nature – including actions 
that  contribute  to  protecting  the  EU  population 
against health threats, and improve citizens’ health 
security  –  will  be  tackled  by  this  action.  Member 
States  will  be  better  able  to  prevent,  conduct  risk 
assessment,  respond  to  and  control  cross-border 
health threats, whether from deliberate or acciden-
tal release. They will improve governance in public 
health  risk  management  and  a  better  coordinated 
and  balanced  response  to  cross-border  health 
threats.  New  channels  will  be  developed  linking 
existing  arrangements  for  seafarers’  occupational 
health, citizens’ public health, consumer protection, 
and health security. 

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Keywords and portfolio

KEYWORDS:
•	 Migration	within	Globalisation,	travel,	trade	

within Socio economic factors

•	 Living	and	working	environment	within	Socio	

economic factors

•	 Food	and	waterborne	diseases	within	

Communicable diseases

•	 Early	warning	systems	(EWRS,	RAS…)	within	

Healthcare

•	 Implementation	within	Methods

PORTFOLIO:
•	 Cross-border	Health	Threats	within	EU	in	the	

world within Steering EU Public Health

ACTION WEBSITE: 
http://www.shipsan.eu/

MAIN BENEFICIARY:
University of Thessaly 
Papakyriazi, 22 
PO-Box 
41221 Larisa 
Greece 
Tel: +30 2410565007 
Fax: +30 2410565051 

PROJECT LEADER: 
Christos Hadjichristodoulou 
E-mail: xhatzi@med.uth.gr 

ASSOCIATED PARTNERS: 
•	 Association	of	Port	Health	Authorities,	United	

Kingdom

•	 Directorate	of	Health,	Iceland
•	 Health	Protection	Agency,	United	Kingdom
•	 Health	Service	Executive,	Ireland
•	 Klaipeda	Public	Health	Centre,	Lithuania
•	 Ministry	of	Health,	Italy
•	 National	Institute	of	Public	Health,	Slovenia
•	 National	School	of	Public	Health,	Greece
•	 Organisation	legal	name	Instituto	de	Salud	

Carlos III, Spain

•	 Regional	Health	Inspection,	Bulgaria
•	 Regional	Health	Inspection,	Bulgaria
•	 Robert	Koch-Institut,	Germany
•	 Universitaetsklinikum	Hamburg-Eppendorf,	

Germany

MAXIMUM EC CONTRIBUTION: 
1,799,942.00€

DURATION: 
42 months

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H E A L T H   (cid:24)   2 0 1 2   A N N U A L   R E P O R T

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C H A P T E R  4

Operating

Grants

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

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C H A P T E R  4

4 .1  H E A LT H P RO M OT IO N   

O P E R AT I NG G R A N T S

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 01 

SANL_FY2013 ›SANL_FY2013œ

Abstract 

Mission and vision of the operating grant holder
The mission of the AIDS Action Europe network is to 
unite civil society to work towards a more effective 
response  to  the  HIV  epidemic  in  Europe  and  Cen-
tral Asia, seeking better protection of human rights, 
universal access to prevention, treatment, care and 
support,  and  a  reduction  of  health  inequalities.  Its 
vision  is  of  a  world  where  people  living  with  and 
affected by HIV and AIDS can be free from stigma, 
discrimination,  and  persecution,  with  universal  ac-
cess  to  prevention,  treatment,  care  and  support. 
Stichting Aids Fonds – STOP AIDS NOW – Soa Aids 
Nederland  (SANL)  is  host  organisation  of  the  net-
work.  SANL  is  a  national  organisation  that  aims  to 
prevent  sexually  transmitted  infections,  including 
HIV,  and  improve  the  quality  of  control  of  sexually 
transmitted infections control in the Netherlands. 

Strategic objectives and specific activities
In Europe and Central Asia the aim is to strengthen 
civil  society’s  contribution  to  a  more  effective  re-
sponse to the HIV epidemic by influencing regional 
and national policies, promoting exchange of good 
practices and developing a more effective network. 
The  work  focuses  on  the  groups  most  affected: 
men having sex with men, people using drugs, and 
migrants.  But  it  is  an  inclusive  network,  facilitat-
ing learning, exchange and cooperation among civil 
society  in  the  wider  European  and  Central  Asian 
region.  Advocacy  aims  to  raise  awareness  about 
challenges including legal issues; early testing and 
treatment; limitations in access to treatment, spe-
cifically  for  key  populations;  treatment  interrup-
tions and stock-outs; underfunding of HIV preven-
tion; human rights abuse; and HIV & co-infections. 

Expected outcomes
NGOs  and  stakeholders  will  be  better  informed 
about  policy  developments  and  the  Civil  Society 
Forum  will  be  involved  in  evaluation  of  and  input 
to relevant policy documents. Civil society concerns 
will  be  more  effectively  presented  in  international 
policy forums. Greater use will be made of commu-
nication  channels  between  NGOs,  and  fundraising 
and donor relations will be improved.

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Keywords and portfolio

KEYWORDS:
•	 Patients’	rights	within	Socio	economic	factors
•	 Disadvantaged	groups	within	Target	groups
•	 HIV/AIDS	within	HIV,	STIs	&	Blood	borne	
infections within Communicable diseases

•	 Accessibility	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods

PORTFOLIO:
•	 Social	determinants	and	health	inequalities	

within Health in Society

ACTION WEBSITE: 
http://www.aidsactioneurope.org

MAIN BENEFICIARY:
Stichting Aids Fonds – STOP AIDS NOW! – Soa 
Aids Nederland 
Keizersgracht 392 
1016 GB Amsterdam 
Netherlands 
Tel: +31 206262669 
Website: http://www.aidsactioneurope.org/ 
about-us/background 

PROJECT LEADER: 
Maria M. de Schutter 
E-mail: mdeschutter@aidsactioneurope.org 

MAXIMUM EC CONTRIBUTION: 
250,000.00€

DURATION: 
12 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 2 

EPHA_FY2013 (cid:10)EPHA_FY2013(cid:9)

Expected outcomes
Collaboration  will  be  closer  with  civil  society  or-
ganisations, non-traditional health actors (eg envi-
ronmental groups, poverty groups, social services), 
philanthropic  foundations,  local  and  regional  au-
thorities,  researchers  and  stakeholders  working 
on  economic  policies,  social  affairs,  development 
cooperation,  transparency  and  good  governance, 
environment,  urban  planning  and  transport.  Rec-
ommendations will be produced on key health fac-
tors of diet, alcohol consumption, physical activity, 
smoking,  mental  health  and  agriculture.  Work  will 
continue  with  MEPs  and  Member  States  to  assess 
health inequalities and the sustainability of health 
systems by monitoring relevant legislative process-
es. EPHA will also monitor EU initiatives on the dig-
ital agenda, eHealth, and pharmaceutical policies. 

Abstract 

Mission and vision of the operating grant holder
EPHA is a leading NGO advocating better health that 
brings together the public health community to de-
velop  thought  leadership  and  to  build  public  health 
capacity  to  deliver  equitable  solutions  to  European 
public  health  challenges.  The  vision  is  of  a  Europe 
with universal good health and well-being, where all 
those living within its borders have access to a high 
quality health system. Within the political and eco-
nomic  environment  of  the  EU  it  brings  the  voice  of 
public health and the public interest into the policy-
making  arena,  contributing  to  the  delivery  of  the 
Health Strategy, and the Europe 2020 Strategy. 

Strategic objectives and specific activities
EPHA’s objective for 2011–2015 is to promote good 
health  and  well-being,  and  to  reduce  disease  and 
health inequalities. It is aiming at improved overall 
population health and healthy life years, increased 
equity  and  access  in  health  and  reduced  health 
inequalities,  and  a  health-promoting  European  in-
stitutional  and  policy  framework.  It  also  aims  to 
strengthen  public  health  capacity.  Activities  are 
pan-European,  but  focusing  on  geographic  areas 
of  greatest  need,  and  vulnerable  groups  or  those 
suffering  discrimination.  Building  cooperation  and 
partnerships, supporting networks of public health 
academics  and  practitioners,  and  supporting  EU 
and  national  advocacy  on  issues  affecting  public 
health  are  among  the  principal  activities.  Regular 
information  is  provided  to  members  and  stake-
holders through alerts, press releases, newsletters, 
adding European value to those working at nation-
al and local level. Training is provided in advocacy 
and on EU and health issues.

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Keywords and portfolio

KEYWORDS:
•	 Healthcare
•	 Non	communicables	diseases
•	 Socio	economic	factors
•	 Lifestyle

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society

ACTION WEBSITE:
http://www.epha.org/

MAIN BENEFICIARY:
European Public Health Alliance 
Rue de Treves 49 51 Box 6 
B 1040 Bruxelles 
Belgium 
Tel: +32 22303056 
Fax: +32 22333880 

PROJECT LEADER: 
AGATA PETCOV 
E-mail: a.petcov@epha.org 

MAXIMUM EC CONTRIBUTION: 
549,232.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 3

IUHPE_FY2013 (cid:16)IUHPE_FY2013(cid:15)

Abstract 

Mission and vision of the operating grant holder
The Health Promotion Competencies and Workforce 
Development  Working  Group  (CWDG)  is  a  special-
ised network of IUHPE, comprising experts from 16 
EU member States and other 13 international advi-
sors. It aims to improve the effectiveness of health 
promotion  at  practice,  policy  and  academic  levels, 
both  within  the  EU  and  globally,  recognising  that 
a  competent  workforce,  with  the  necessary  knowl-
edge,  skills  and  abilities  to  translate  policy,  theory 
and  research  into  effective  action  is  critical  to  the 
development  of  health  promotion  and  the  reduc-
tion of health inequalities. It urges implementation 
of  competency-based  standards  and  an  accredi-
tation  system  for  health  promotion  practice,  edu-
cation  and  training  in  Europe.  This  is  a  reflection 
of  IUHPE’s  mission:  to  promote  global  health  and 
contribute  to  the  achievement  of  equity  in  health 
between and within countries of the world. 

Strategic objectives and specific activities
It aims at promoting the establishment of accredi-
tation  mechanisms  for  health  promotion  practice, 
education  and  training  and  the  implementation  of 
agreed  competency-based  standards  for  health 
promotion  practice.  It  also  seeks  to  promote  dia-
logue  and  coordination  between  practitioners, 
policy  makers  and  education  providers  to  improve 
the  competence  and  effectiveness  of  the  health 
promotion  workforce,  and  to  implement  capac-
ity  building  activities  for  health  promotion  profes-
sionals.  Specific  goals  are  to  obtain  investment  in 
health  promotion  and  education,  to  contribute  to 
the development of knowledge that furthers health 
promotion and education, to disseminate evidence-
based  knowledge  in  health  promotion  and  educa-
tion,  and  build  alliances  based  on  agreed  ethical 
principles, mutual understanding and respect.

Expected outcomes
Implementation  of  an  accreditation  framework  at 
EU level, with IUHPE as the European Accreditation 
Organisation is among the chief outcomes expect-
ed.  This  also  entails  identifying  where  specialist 
advice  is  required  to  support  decision-making  on 
the accreditation process, and ensuring that sound 
advice  is  available  to  support  decisions.  Online 
tools  and  an  online  database  of  European  health 
promotion professionals will be developed. 

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Keywords and portfolio

KEYWORDS:
•	 Inequalities	within	Socio	economic	factors
•	 Health	system	within	Healthcare
•	 Health	workforce	within	Healthcare
•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Social	determinants	and	health	inequalities	

within Health in Society

•	 Health	workforce	within	Improving	healthcare

ACTION WEBSITE:
http://www.iuhpe.org/index.php/en/ 
the-accreditation-system

MAIN BENEFICIARY:
International Union for Health Promotion and 
Education (IUHPE), on behalf of the Health 
Promotion Competencies and Workforce 
Development Working Group (CWDG), a 
specialised network under its umbrella 
42	Boulevard	de	la	Libération	
FR – 93203 Saint Denis Cedex 
France 
Tel: +33 148137120 

PROJECT LEADER: 
Margaret Barry 
E-mail: Margaret.barry@nuigalway.ie 

MAXIMUM EC CONTRIBUTION: 
97,463.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 4

AE_FY2013_FY2013 (cid:19)AE_FY2013(cid:18)

Expected outcomes
An inventory and comparison of national dementia 
strategies  and  policies  will  be  created,  highlight-
ing  those  countries  which  have  not  yet  developed 
formal  strategies.  It  will  cover  medical  and  scien-
tific  issues  (research,  early  diagnosis,  treatment, 
prevention, guidelines and medical education), and 
social and care aspects (care standards, independ-
ent  living,  dementia-friendly  communities,  training 
of  care  staff  and  carer  support).  Work  on  ethical 
issues  will  focus  on  societal  attitudes  to  demen-
tia  and  the  portrayal  of  dementia,  and  how  they 
contribute to social exclusion, stigma and discrimi-
nation. User involvement will be developed further, 
to  ensure  user  representation  and  involvement  in 
all  activities.  Alzheimer  Europe  will  continue  to 
gather and disseminate all information on demen-
tia  at  both  a  European  and  national  level  and  will 
collaborate  closely  with  the  European  Innovation 
Partnership  on  Active  and  Health  Ageing,  and  the 
Joint Action and Joint Programming on Alzheimer’s 
disease. It will also update the figures on the prev-
alence  of  dementia  and  provide  national  reports 
on  the  numbers  of  people  with  dementia  in  all  
EU countries.

Abstract 

Mission and vision of the operating grant holder
The	mission	of	Alzheimer	Europe	is	“changing	per-
ceptions, practice and policy in order to improve the 
access of people with dementia and their carers to 
treatment  options  and  care  services”.  Its  guiding 
philosophy	 is	 “promoting	 the	 autonomy	 and	 self-
determination  of  people  with  dementia  and  their 
carers  throughout  the  course  of  the  disease”.  Its 
strategic  plan  for  2011–2015  envisages  making 
dementia  a  European  priority,  improving  informa-
tion  exchange  through  a  European  Dementia  Ob-
servatory, and promoting a rights-based approach 
to dementia. 

Strategic objectives and specific activities
In  line  with  its  objectives,  Alzheimer  Europe  has 
developed ties with European institutions, including 
creating  the  European  Alzheimer’s  Alliance  com-
posed  of  Members  of  the  European  Parliament, 
and actively participated in the preparation of suc-
cessive  EU  Presidency  conferences  on  Alzheimer’s 
disease,  dignified  ageing  and  mental  health  of  el-
derly people. It contributed to European policy dis-
cussions  on  information  to  patients,  cross-border 
health care and transparency, and to the agendas 
programmes  on  neurodegeneration  and  the  Euro-
pean Innovation Partnership for Active and Healthy 
Ageing. It continued to monitor national legislation 
affecting  people  with  dementia  and  their  carers, 
and it set up a European Dementia Ethics Network, 
which  published  recommendations  on  end-of-life 
care for people with dementia, the use of advance 
directives  by  people  with  dementia,  and  the  ethi-
cal  implications  of  assistive  technologies  and  of 
dementia research.

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Keywords and portfolio

KEYWORDS:
•	 Patients’	rights	within	Socio	economic	factors
•	 Elderly	within	Target	groups
•	 Alzheimer	within	Dementia	within	Mental	

diseases and disorders within Non 
communicables diseases

•	 Dementia	within	Mental	diseases	and	disorders	

within Non communicables diseases

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society

MAIN BENEFICIARY:
Alzheimer Europe 
145, route de Thionville 
2611 Luxembourg 
Luxembourg 
Tel: +352 297970 
Fax: +352 297972 

PROJECT LEADER: 
Jean Georges 
E-mail: jean.georges@alzheimer-europe.org 

ACTION WEBSITE: 
http://www.alzheimer-europe.org/

MAXIMUM EC CONTRIBUTION: 
190,000.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 5 

PREVENT_FY2013 (cid:17)PREVENT_FY2013(cid:16)

Abstract 

Mission and vision of the operating grant holder
The  members  of  the  European  Network  of  Work-
place Health  Promotion work together  towards the 
vision ‘healthy employees in healthy organisations’. 
They  are  committed  to  the  mission  of  developing 
and  promoting  good  workplace  health  practice, 
which  in  turn  contributes  to  a  high  level  of  health 
protection and sustainable economic and social de-
velopment in Europe. Workplace health promotion is 
part of the concept of quality in work with impacts 
on  productivity,  employment  and  social  cohesion. 
Healthy work impacts on the quality of working life 
and non-working life, and contributes to the level of 
health  protection  of  communities  and  populations. 
It  also  impacts  on  microeconomic  performance 
(productivity  and  innovation)  and  macroeconomic 
performance  (efficiency  of  the  health  care,  wel-
fare and education sector, competitiveness of busi-
nesses  at  company,  national  and  European  level). 
Healthy  work  also  contributes  to  social  cohesion. 
With its vision and mission, the network contributes 
especially to the reduction of health inequalities, to 
the development of a European health information 
system and to improving important health determi-
nants with impacts on all relevant settings in work-
ing and non-working life.

Strategic objectives and specific activities
The  network  has  two  core  goals:  access  in  all 
member  countries  to  supportive  workplace  health 
promotion  infrastructures  at  national  level,  and 
higher numbers of European employees working in 
enterprises  and  other  organisations  committed  to 
practices  and  policies  for  promoting  health.  Activi-
ties  aim  to  disseminate  the  knowledge-base  with 
national platforms open to all interested stakehold-
ers  –  institutional  (governmental  bodies,  institutes 
for  social  security,  social  partner  organisations) 
and  non-institutional  (enterprise  owners,  manage-
ment,  employees,  occupational  physicians,  human 
resources managers).Information and tools are pro-
vided to companies, providing advice and stimulat-
ing  initiatives  at  company  level  across  Europe.  A 
further strand focuses on setting up campaigns to 
promote workplace health by increasing the aware-
ness of companies and the general public.

Expected outcomes
Outcomes  will  include  enlarged  networks  and 
greater  visibility  at  national  and  European  level, 
more effective scientific input to events, strength-
ened  campaigning/dissemination,  research  and 
education/training. 

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Keywords and portfolio

KEYWORDS:
•	 ageing	workforce	within	Employment	within	

Socio economic factors

•	 Workers	within	Target	groups
•	 Health	at	work	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods
•	 Disabilities

PORTFOLIO:
•	 Ageing	within	Health	in	Society

ACTION WEBSITE: 
http://www.prevent.be/

MAIN BENEFICIARY:
Prevent 
Gachardstraat 88 
1050 Brussels 
Belgium 
Tel: +32 26434444 
Website: http://www.prevent.be/en 

PROJECT LEADER: 
Veronique De Broeck 
E-mail: veronique.debroeck@prevent.be 

MAXIMUM EC CONTRIBUTION: 
93,898.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 6

ENSP_FY2013 (cid:19)ENSP_FY2013(cid:18)

Abstract 

Mission and vision of the operating grant holder
The  European  Network  for  Smoking  and  Tobacco 
Prevention  aims  to  reduce  tobacco  consumption 
and to develop a common strategy on tobacco con-
trol  throughout  Europe  by  sharing  information  and 
experience  and  creating  synergies  among  public 
health advocates. Its vision is the elimination of the 
suffering  of  European  citizens  caused  by  ill  health 
and  early  death  due  to  tobacco-related  diseases. 
It  wants  children  and  young  people  to  be  able  to 
grow  up  without  being  targets  of  tobacco  industry 
marketing  seeking  to  lure  them  into  a  lifetime  of 
addiction.  It  wants  clean  air  unpolluted  by  tobacco 
smoke  for  all  European  citizens.  The  strategic  goal 
is  a  continent  completely  smoke-free  by  2040. 
Members  work  together  to  agree  on  a  common 
policy  and  speak  with  one  voice.  It  believes  that 
all  European  countries  should  implement  compre-
hensive  tobacco  control  strategies,  including  high 
taxes,  comprehensive  bans  on  direct  and  indirect 
advertising of tobacco, smoking bans in public and 
in the workplace, and strong and large text and pic-
torial warnings on standardised tobacco packages. 

Strategic objectives and specific activities
The  network  supports  European  Commission  ef-
forts  to  improve  and  promote  health,  and  in  line 
with the public health programme’s priority of pro-
moting  health,  including  the  reduction  of  health 
inequalities,  and  action  on  tobacco  and  chronic 
disease, it aims to reduce tobacco consumption. It 
has  a  focus  on  coordination  and  consensus  build-
ing,  education,  prevention  and  cessation.  It  stimu-
lates  and  participates  in  projects  at  national  and 
international level, including for the collection, dis-
tribution and exchange of information relevant for 
tobacco  control,  and  for  education  and  training  or 
exhibitions on matters relevant to smoking and to-
bacco prevention and cessation. 

Expected outcomes
Particular attention is being given to action relating 
to  price  and  taxes,  smoke-free  workplaces,  cessa-
tion,  communication,  and  industry  influence.  Sup-
port  will  be  provided  to  EU  priorities  in  addressing 
health determinants to promote and improve health, 
healthy working environments, and mental health. 

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Keywords and portfolio

KEYWORDS:
•	 Tobacco	within	Lifestyle
•	 Health	education	within	Methods
•	 Health	promotion	within	Methods
•	 Prevention	within	Methods
•	 Risks	Factors	and	determinants	not	already	in	

the list

PORTFOLIO:
•	 Tobacco	within	Fostering	good	health

ACTION WEBSITE: 
http://www.ensp.org/

MAIN BENEFICIARY:
European Network for Smoking and Tobacco 
Prevention aisbl 
Chaussée	d’Ixelles	144	
B-1050 Brussels 
Belgium 
Tel: +32 22306515 

PROJECT LEADER: 
Francis Grogna 
E-mail: francis.grogna@ensp.org 

MAXIMUM EC CONTRIBUTION: 
201,385.85€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 7

EUROCARE_FY2013 (cid:16)EUROCARE_FY2013(cid:15)

Abstract 

Mission and vision of the operating grant holder
The  European  Alcohol  Policy  Alliance  (Eurocare) 
brings together 50 public health organisations from 
23 European countries dedicated to the prevention 
and reduction of alcohol-related harm. Member or-
ganisations are involved in advocacy and research, 
as well as in the provision of information and train-
ing on alcohol issues, and the provision of services 
for peoples whose lives are affected by alcohol-re-
lated problems. Eurocare’s vision is a Europe where 
alcohol related harm is no longer one a leading risk 
factor  for  ill-health,  early  death,  violence  and  dis-
ability, where innocent third parties no longer suffer 
from the drinking of others, and where the EU and 
its  Member  States  acknowledge  the  harm  done  by 
alcohol  and  implement  effective  and  comprehen-
sive policies to tackle it. The mission of Eurocare is 
to  raise  awareness  among  decision  makers  of  the 
harm  caused  by  alcohol  and  to  ensure  that  this  is 
taken  into  consideration  in  relevant  EU  policy  dis-
cussions,  as  well  as  to  promote  the  development 
and implementation of evidence-based policies. 

Strategic objectives and specific activities
Eurocare  aims  to  persuade  the  European  institu-
tions  and  Member  States  to  acknowledge  and 
challenge  the  problem.  It  wants  total  alcohol  con-
sumption  to  come  down  by  20%  between  1990 
and 2020, better public understanding of the risks 
linked to alcohol consumption, minimum age limits 
of  18  for  purchasing  alcoholic  beverages,  no  mar-
keting of alcoholic beverages affecting young peo-
ple, blood alcohol concentration level for driving at 
0.2  and  properly  enforced,  and  accurate  product 
information and health warnings on labels. It moni-
tors policy developments and marketing practices, 
disseminates  information  and  knowledge,  and  en-
gages in dialogue with decision makers. 

Expected outcomes
Higher  profile  will  be  given  to  labelling  (ingredient 
listing  and  kcal),  health  and  safety  warning  la-
bels  (no  alcohol  during  pregnancy,  don’t  drink  and 
drive),  reduced  volume  of  alcohol  advertising  and 
marketing (a snapshot of online advertising will be 
produced),  and  minimum  pricing  of  alcohol.  A  se-
ries of alcohol policy debates among Member State 
representatives, policy and decision-makers, public 
health experts and other stakeholders will be held 
to  boost  cooperation  and  exchange  of  knowledge 
and good practices.

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Keywords and portfolio

KEYWORDS:
•	 Harm	reduction	within	Drugs	and	substance	

misuse within Lifestyle
•	 Alcohol	within	Lifestyle
•	 Chronic	diseases	within	Non	communicables	

diseases

•	 Policy	recommendation	within	Methods

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society
•	 Alcohol	within	Fostering	good	health

ACTION WEBSITE:
http://www.eurocare.org/

MAIN BENEFICIARY:
European Alcohol Policy Alliance 
Rue Archimede 17 
1000 Brussels 
Belgium 
Tel: +32 27366782 

PROJECT LEADER: 
Mariann Skar 
E-mail: Mariann.Skar@eurocare.org 

MAXIMUM EC CONTRIBUTION: 
99,000.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 8

HAI_FY2013 (cid:19)HAI_FY2013(cid:18)

Abstract 

Mission and vision of the operating grant holder
Health  Action  International  Europe’s  mission  is  to 
increase access to essential medicines, by ensuring 
that  medicines  meeting  priority  healthcare  needs 
are  available,  accessible  and  affordable  to  all.  It 
also aims to improve the rational use of medicines; 
by  ensuring  that  all  licensed  medicines  meet  real 
medical  needs,  have  therapeutic  advantages,  are 
acceptably safe, offer value for money and are ap-
propriately prescribed, in tailored doses, for an ad-
equate time at the lowest cost to citizens and their 
community.  It  seeks  to  promote  the  participation 
of  citizens  in  medicines  policy,  by  encouraging  in-
volvement  of  patients  and  consumers  in  decisions 
that  will  affect  their  health  and  well-being,  whilst 
advocating  the  highest  levels  of  transparency,  in-
dependence  and  accountability  in  all  aspects  of 
medicines  policy.  It  monitors  EU  policy-making, 
generates  data,  publishes  commentary  and  pro-
motes knowledge exchange on the impact of medi-
cines  policy  on  public  health.  HAI’s  vision  is  a  just 
and equitable society where people can participate 
in  decisions  affecting  their  health  and  well  being, 
including the allocation of resources. 

Strategic objectives and specific activities
To  promote  essential  innovation,  research  and 
development  and  access  to  medicines,  HAI  con-
tributes  to  the  development  of  models  that  dis-
sociate  the  cost  of  R&D  from  medicines  prices.  It 
explores  alternative  models  through  pilots  or  fea-
sibility  studies,  and  seeks  partnerships  with  other 
health stakeholders to promote equitable licensing 
principles  in  publicly  funded  R&D.  It  comments  on 
developments  in  anti-competitive  practice  in  the 
pharmaceutical  sector,  and  presents  the  citizens’ 
perspective  to  policy  makers  on  the  basis  of  evi-
dence-based policy materials. 

Expected outcomes
Results will include a feasibility study on advocacy 
in  new  member  states,  monitoring  of  EU  intellec-
tual property policies and other practices that can 
hamper medicines competition, and exchanges with 
policymakers on strategies to promote the sustain-
ability of public finances, access and health equity 
in the EU. New innovation models will be developed 
to  maximise  the  benefit  from  EU  investments  in 
health  research,  and  safety  data  collection  tools 
will  be  monitored.  Ultimately  there  should  be  en-
hanced  health  outcomes  through  improved  treat-
ment  outcomes,  reduced  morbidity  and  mortality, 
and (cost-)effective health services.

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Keywords and portfolio

KEYWORDS:
•	 Patients’	rights	within	Socio	economic	factors
•	 Safety	within	Pharmaceuticals	within	

Healthcare

•	 Pharmaceuticals	within	Healthcare
•	 Socio	economic	factors

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society

ACTION WEBSITE: 
http://www.haiweb.org/

MAIN BENEFICIARY:
Stichting Health Action International 
Overtoom 60-2 
1054HK Amsterdam 
Netherlands 
Tel: +31 206833684 
Fax: +31 206855002 

PROJECT LEADER: 
Katrina Perehudoff 
E-mail: katrina@haieurope.org 

MAXIMUM EC CONTRIBUTION: 
218,000.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 2 0 9

ESPNREG_FY2013 (cid:16)ESPNREG_FY2013(cid:15)

Expected outcomes
The  registry  is  planning  to  continue  prospective 
data collection, expand data collection with respect 
to  specific  treatment  policies,  implement  an  auto-
mated  direct  feed-back  function  to  members  and 
contributors  and  carry  out  and  publish  scientific 
data analyses on specific topics of interest. Individ-
ual patient data will be obtained from all contribut-
ing countries, and combined into a single database 
to  provide  national  reports  to  the  countries,  an 
annual  report,  and  patient  information  to  assist  in 
the research projects. Direct feed-back will provide 
information  on  the  prevalence  and  patient-specific 
degree  of  growth  failure,  malnutrition,  overweight/
obesity  and  hypertension.  Outputs  will  include  sci-
entific publications in peer reviewed journals.

Abstract 

Mission and vision of the operating grant holder
The  European  Society  for  Paediatric  Nephrology 
(ESPN)  and  the  European  Renal  Association  and 
European  Dialysis  and  Transplantation  Association 
(ERA-EDTA) have initiated the ESPN/ERA-EDTA Reg-
istry,  with  a  mission  to  provide  high-quality  infor-
mation on children across 35 European countries on 
dialysis  or  with  a  kidney  transplant.  This  will  high-
light  transnational  differences  in  paediatric  treat-
ment of end-stage kidney disease, with the aim of 
reducing health inequalities. The vision is to provide 
access to high quality, evidence-based clinical care 
to all European children. 

Strategic objectives and specific activities
The registry contributes substantially to studies of 
the  consequences  of  relative  wealth  on  the  level 
of  health,  and  differences  in  health  as  related  to 
ethnicity.  It  also  aims  to  increase  knowledge  on 
health care quality, and determine best practice in 
organ donation, transplantation and dialysis in Eu-
ropean children. Activities include annual collection 
of  comprehensive  clinical,  treatment-related  and 
biochemical  data  from  children  on  dialysis  or  with 
a  kidney  transplant,  provision  of  demographic  in-
formation,  and  execution  of  specific  research  pro-
jects.  Investigations  into  transnational  differences 
in  medical  management  and  outcomes  are  aimed 
at  defining  uniform  treatment  quality  standards 
to reduce practice variation, but also at determin-
ing  cost-efficient  utilisation  of  resources  in  this 
resource-intense  field  of  high-end  medicine.  The 
relationship  of  transplantation  practices  and  poli-
cies with long-term patient outcomes is studied, so 
as  to  determine  best  practices  in  organ  donation 
and transplantation. 

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Keywords and portfolio

KEYWORDS:
•	 Children	within	Target	groups
•	 Chronic	kidney	diseases	within	Chronic	diseases	

within Non communicables diseases
•	 Rare	diseases	and	disorders	within	Non	

communicables diseases
•	 Treatment	within	Methods
•	 Socio	economic	factors

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

MAIN BENEFICIARY:
Academic Medical Center, Amsterdam 
Meibergdreef 9 
1100DE Amsterdam 
Netherlands 
Tel: +31 205664605 

PROJECT LEADER: 
Karlijn van Stralen 
E-mail: k.j.vanStralen@amc.uva.nl 

MAXIMUM EC CONTRIBUTION: 
150,189.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 210

CBO_FY2013 (cid:20)CBO_FY2013(cid:19)

Abstract 

Mission and vision of the operating grant holder
The  Schools  for  Health  in  Europe  network  aims  to 
make  school  health  promotion  an  integral  part  of 
policy development in the health and education sec-
tor	in	the	EU.	A	“health	promoting	school”	is	a	school	
that  implements  a  systematic  plan  for  the  health, 
well-being and the development of social capital of 
all  pupils  and  staff,  with  the  entire  school  environ-
ment viewed as an area for promotion of health and 
for  learning  about  health.  Members  of  the  network 
recognise  that  health  promoting  schools  support 
educational  and  social  goals,  in  that  healthy  stu-
dents  learn  better,  and  healthy  teachers  work  bet-
ter.	CBO	NIGZ,	which	has	taken	over	the	work	of	the	
Netherlands  Institute  for  Health  Promotion,  hosts 
the management of the network.

Strategic objectives and specific activities
The network’s objective is to improve the health of 
children and young people in Europe, reduce health 
inequalities,  and  provide  a  European  platform  for 
school  health  promotion.  It  meets  a  need  for  ex-
change  of  experiences  and  strengthened  partner-
ship  skills.  Members  provide  case  studies  and  of-
fer  training  and  research  skills,  offering  technical 
support to countries in Eastern Europe and Central 
Asia. The network offers capacity building, empow-
erment and training to its members through work-
shops,  country  visits  and  summer  schools.  It  en-
courages research on school health promotion and 
disseminates  results  through  its  research  group 
and  the  yearly  European  Conference  on  Education 
and Research. 

Expected outcomes
Outcomes  include  stronger  national  networks  on 
school  health  promotion,  through  training  in  man-
agement skills and planning and evaluation for na-
tional  coordinators.  An  online  manual  available  in 
3  languages  will  be  developed  on  how  to  become 
a  health  promoting  school,  giving  increased  vis-
ibility  and  access  to  user  friendly  tools  on  school 
health  promotion.  Information  sharing  will  be  en-
hanced  through  a  website,  helpdesk,  social  media 
and electronic newsletters. 

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Keywords and portfolio

KEYWORDS:
•	 Obesity	within	Nutrition	within	Lifestyle
•	 Children	within	Target	groups
•	 Health	promotion	within	Methods

PORTFOLIO:
•	 Nutrition	and	physical	activity	within	Fostering	

good health

ACTION WEBSITE: 
http://www.schools-for-health.eu/she-network

MAIN BENEFICIARY:
CBO B.V. 
Houttuinlaan 16 
3447 GM Woerden 
Netherlands 
Tel: +31 348437601 
Fax: +31 348437666 

PROJECT LEADER: 
Goof Buijs 
E-mail: gbuijs@nigz.nl 

MAXIMUM EC CONTRIBUTION: 
149,906.00€

DURATION: 
12 months

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

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C H A P T E R  4

4 . 2  H E A LT H I N FO R M AT IO N   

O P E R AT I NG G R A N T S

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O P E R AT I N G   G R A N T   N O  2 01 2 3 3 01

EURORDIS_FY2013_FY2013 (cid:15)EURORDIS_FY2013(cid:14)

Abstract 

Mission and vision of the operating grant holder
EURORDIS  is  a  patient-driven  alliance  of  patient 
organisations  and  individuals  active  in  the  field  of 
rare  diseases,  representing  approximately  30  mil-
lion EU citizens. Its mission is to build a strong pan-
European  community  of  patient  organisations  and 
people  living  with  rare  diseases,  to  be  their  voice 
at the European level, and to fight against the im-
pact  of  rare  diseases  on  their  lives.  It  empowers 
patient groups, and works to make rare diseases a 
public health priority, to raise public awareness, and 
to  improve  access  to  information,  treatment,  care 
and support. It participates in the EU Committee of 
Experts  on  Rare  Diseases,  the  drafting  of  national 
plans or strategies, and in discussions on EU initia-
tives and regulation. 

Strategic objectives and specific activities
Key aims include consolidating the EU rare disease 
community and voice, supporting the implementa-
tion of relevant EU legislation and strategies, pro-
moting  national  plans,  evaluating  the  impact  on 
patients of legislation and strategies, and support-
ing  therapeutic  development,  information  and  ac-
cess.  Activities  include  providing  patient  expertise 
as  participants  in  EMA  committees,  contributing 
to  patient  information,  training  members/volun-
teers  in  therapeutic  activities,  facilitating  dialogue 
between  patient  groups,  experts,  companies,  and 
regulators, and supporting the participation of pa-
tients in research and ethics committees. Eurordis 
also  promotes  scientific  and  clinical  research  on 
rare diseases, and the development of treatments. 
It  supports  patient  involvement  in  research  and 
promotes  good  practice  relations  between  patient 
organisations and sponsors on clinical trials. 

Expected outcomes
Communication will take the form of a website and 
weekly e-news in seven languages, the preparation 
of the annual conference, production of brochures 
and fact sheets, and engagement in Rare Diseases 
Day.  Capacity  building  for  patient  representatives 
will  be  delivered  through  outreach  to  members, 
country visits, and organisation of workshops. Sup-
port services to patients will include Help Lines and 
shared  tools  and  training.  The  EURORDIS  Thera-
peutic  Action  Group  brings  together  rare  disease 
patient  representatives  at  EMA  to  exchange  infor-
mation and coordinate actions.

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Keywords and portfolio

KEYWORDS:
•	 Patients’	rights	within	Socio	economic	factors
•	 Rare	diseases	and	disorders	within	Non	

communicables diseases

•	 Accessibility	within	Healthcare
•	 Health	system	within	Healthcare
•	 Pharmaceuticals	within	Healthcare

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society
•	 Rare	diseases	within	Taking	Action	against	

Diseases

ACTION WEBSITE: 
http://www.eurordis.org/it

MAIN BENEFICIARY:
European Organisation for Rare Diseases 
Plateforme Maladies Rares – 96 rue Didot 
75014 Paris 
France 
Tel: +33 156 53 52 10 

PROJECT LEADER: 
Yann Le Cam 
E-mail: opera@eurordis.org 

MAXIMUM EC CONTRIBUTION: 
579,999.00€

DURATION: 
12 months

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O P E R AT I N G   G R A N T   N O  2 01 2 3 3 0 2 

EMSP_FY2013 (cid:9)EMSP_FY2013(cid:8)

Strategic objectives and specific activities
Key  objectives  are  to  promote  equity  and  access 
to  high  quality  health  and  social  care,  and  to 
strengthen  EMSP  as  the  representative  European 
voice working in partnership with other stakehold-
ers and empowering member organisations. It also 
aims  to  promote  the  empowerment  of  persons 
with multiple sclerosis at individual, organisational 
and policy level to represent and advance their col-
lective interests, acknowledging their unique expe-
rience and expertise as persons with multiple scle-
rosis  and  co-deciders  in  their  care.  Another  goal 
is  to  encourage  the  research  agenda  at  European 
level  and  promote  European  data  collection  and 
comparison  that  puts  patients  at  the  centre  and 
provides  the  evidence  base  for  advancing  policy 
and practice across Europe. 

Expected outcomes
The visibility of EMSP will be strengthened through 
increased  partnerships,  effective  advocacy  and 
proactive  policy  setting.  There  will  be  increased 
involvement  of  patients  as  an  evidence  base.  The 
communications strategy will be improved.

Abstract 

Mission and vision of the operating grant holder
EMSP  is  the  umbrella  organisation  representing 
38  national  multiple  sclerosis  societies  from  34 
European  countries.  It  represents  their  interests 
at  European  level  and  works  with  its  members  to 
achieve  its  goals  of  high-quality  equitable  treat-
ment  and  support  for  persons  with  multiple  scle-
rosis throughout Europe. Its vision is to move from 
high-quality  treatment  and  support  for  all  persons 
with multiple sclerosis in Europe to a world without 
multiple  sclerosis!  Its  mission  is  to  ensure  the  de-
velopment  and  the  implementation  of  high-quality 
standards  of  treatment  and  support  for  patients, 
their  families  and  their  carers  in  Europe,  to  allow 
them  to  lead  their  lives  independently  and  to  rec-
ognise them as equal members of society. Priorities 
to achieve this mission are to influence EU institu-
tions and other decision-making bodies to improve 
quality of life for persons with multiple sclerosis, to 
network  with  other  European  organisations  which 
share the vision of a patient-centred approach, and 
to  provide  member  organisations  with  information 
on relevant EU legislation and how to influence it at 
draft stage. EMSP also promotes recommendations 
for improved medical treatment and rehabilitation, 
encourages  coordinated  research,  and  implements 
cross-border projects in the field of therapies, em-
ployment, social security, infrastructure, to improve 
living conditions. It acts as an information platform 
by  exchanging  knowledge  and  best  practices  rel-
evant  to  the  work  of  the  national  MS  member  or-
ganisations. And it enhances general awareness by 
informing and educating external audiences. 

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Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicables diseases

•	 Accessibility	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods
•	 Health	education	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO:
•	 Rare	diseases	within	Taking	Action	against	

Diseases

ACTION WEBSITE:
http://www.emsp.org

MAIN BENEFICIARY:
European Multiple Sclerosis Platform aisbl 
Rue Auguste Lambiotte 144/8 
1030 Brussels 
Belgium 
Tel: + 32 2305 80 12 
Fax: + 32 2305 80 11 

PROJECT LEADER: 
Christoph THALHEIM 
E-mail: christoph.thalheim@emsp.org 

MAXIMUM EC CONTRIBUTION: 
279,858.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 3 0 3

EPF_FY2013_FY2013 (cid:20)EPF_FY2013(cid:19)

Abstract 

Mission and vision of the operating grant holder
The  mission  of  EPF  is  to  be  the  collective  voice  of 
patients at EU level, manifesting the solidarity, pow-
er  and  unity  of  the  EU  patients’  movement  to  put 
patients at the centre of EU health policy and pro-
grammes. The vision is patient-centred, high-quali-
ty, equitable healthcare for all patients throughout 
the EU. It is rights-based, and combats discrimina-
tion  on  the  grounds  of  illness.  It  addresses  health 
inequalities  from  the  perspective  of  patients  and 
advocates  a  holistic  approach  to  healthcare  is-
sues  that  includes  the  social,  economic,  cultural, 
environmental  and  mental  health  agenda  for  pa-
tients, carers and families. It fosters empowerment 
of  patients,  carers  and  their  families  by  breaking 
down  attitudinal  barriers  and  prejudice  regarding 
patients’ place in society as equal citizens. 

Strategic objectives and specific activities
The objectives are equal access to best-quality in-
formation and healthcare for EU patients, their in-
formal carers and families, and meaningful patient 
involvement  in  EU  health-related  policy-making, 
programmes  and  projects  to  ensure  the  patients’ 
perspective is heard in developments at the EU lev-
el on health economics and health efficacy. It aims 
to  encourage  inclusive,  effective  and  sustainable 
representative  patient  organisations  and  to  pro-
mote  solidarity  and  unity  across  the  EU  patients’ 
movement. No patient organisation is too small to 
contribute  to  its  work.  Activities  include  advocacy/
campaign  work,  exchange/dissemination  of  good 
practice and building alliances and partnership, de-
velopment of an evidence base on patients’ expe-
rience,  identification  of  and  monitoring  the  needs 
and expectations of patients to feed into EU health 
policy, and presence and constructive input at ma-
jor external health events.

Expected outcomes
Capacity of EU patients is reinforced through semi-
nars  and  conferences  on  patient  advocacy,  and 
support  creates  better  understanding  and  aware-
ness of key EU directives/policies. Particular atten-
tion  to  young  people  builds  their  engagement  in 
health  policy  and  patients’  rights.  The  EPF  mem-
bership  is  strengthened  by  contacts  with  national 
patient  coalitions  and  engagement  in  European 
Patients  Rights  Day.  A  position  paper  on  eHealth 
and  contributions  to  personalised  medicine  initia-
tives and the debates over sharing of patient data 
are  other  concrete  outcomes,  along  with  further 
promotion  of  health  literacy  and  follow-up  of  the 
outcomes of the EC initiative on corporate respon-
sibility in pharmaceuticals. 

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Keywords and portfolio

KEYWORDS:
•	 Patients’	rights	within	Socio	economic	factors
•	 Vulnerable	groups	within	Target	groups
•	 Chronic	diseases	within	Non	communicables	

diseases

•	 Health	system	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods

PORTFOLIO:
•	 Interest	groups	within	Health	in	Society

ACTION WEBSITE:
http://www.eu-patient.eu/

MAIN BENEFICIARY:
European Patient’s Forum 
rue du Commerce 31 
1000 Brussels 
Belgium 
Tel: +32 22740864 

PROJECT LEADER: 
Peter Windey 
E-mail: peter.windey@eu-patient.eu 

MAXIMUM EC CONTRIBUTION: 
568,488.00€

DURATION: 
12 months

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O P E R AT I N G   G R A N T   N O  2 01 2 3 3 0 4

FRG_FY2013_FY2013 (cid:21)FRG_FY2013(cid:20)

Abstract 

Mission and vision of the operating grant holder
The  mission  of  the  Correlation  Network  is  to  re-
duce  health  inequalities  and  improve  the  quality 
of life of marginalised groups in Europe – drug us-
ers, sex workers, migrants, men who have sex with 
men,  and  young  people  in  risk  situations,  including 
people  living  with  HIV/AIDS  and  other  communica-
ble  diseases.  The  aim  is  to  improve  access  to  and 
quality  of  medical  and  social  services  in  a  social 
Europe,  in  which  these  groups  have  a  safe  place 
with the same rights as everyone else. The network 
cooperates  with  health  professionals,  researchers, 
policy makers, activists and others. Activities of the 
network  are  based  on  general  principles  of  public 
health and human rights, respecting the diversities 
of  race,  religion,  gender,  sexual  orientation  or  life-
style of target populations. 

Strategic objectives and specific activities
The  network  aims  to  facilitate  the  exchange  of 
information,  experience  and  skills  between  health 
and  social  service  providers,  policy  makers,  re-
searchers  and  community  members.  It  wants  to 
strengthen  the  capacities  of  health  and  social 
service  providers,  policy  makers,  researchers  and 
community  members,  and  contribute  to  evidence-
based  policy  making  in  the  field  of  blood-borne 
infectious  diseases.  It  will  set  up  thematic  expert 
groups  in  the  field  of  outreach,  eHealth,  peer  in-
volvement, sex work, and policy. And to boost pol-
icy  advice  it  will  stimulate  the  exchange  between 
policy  makers,  service  providers,  researchers  and 
target group representatives. 

Expected outcomes
Results  will  include  transformation  of  its  partner-
ships  into  a  stronger  and  more  proactive  network, 
a consolidated and extended network with a focus 
on  South  East  Europe  that  will  respond  more  ef-
fectively to the needs of its members. There will be 
capacity  building,  and  links  with  service  providers, 
policy  makers,  researchers  and  community  mem-
bers, ensuring input on European policies. Outreach 
will take the form of collecting materials and infor-
mation for the establishment of an online resource 
centre  and  a  repository  of  best  practice  examples 
in the field of peer involvement.

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Keywords and portfolio

KEYWORDS:
•	 Harm	reduction	within	Drugs	and	substance	

misuse within Lifestyle

•	 Inequalities	within	Socio	economic	factors
•	 Vulnerable	groups	within	Target	groups
•	 HIV/AIDS	within	HIV,	STIs	&	Blood	borne	
infections within Communicable diseases
•	 Collection	of	Best	Practices	within	Methods

PORTFOLIO:
•	 Social	determinants	and	health	inequalities	

within Health in Society

•	 Communicable	diseases	within	Taking	Action	

against Diseases

MAIN BENEFICIARY:
Foundation De Regenboog Groep 
Droogbak 1d 
1013 GE Amsterdam 
Netherlands 
Tel: +31 205317600 
Website: http://www.deregenboog.org/

PROJECT LEADER: 
Eberhard Schatz 
E-mail: eschatz@correlation-net.org 

MAXIMUM EC CONTRIBUTION: 
100,581.00€

ACTION WEBSITE:
http://www.correlation-net.org

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 3 0 5

BIOEF_FY2013 (cid:19)BIOEF_FY2013(cid:18)

Expected outcomes
Expected  outcomes  are  an  assessment  of  health 
care  process  and  outcome  results  between  par-
ticipating  units  over  time.  Knowledge  of  clinical 
variability of care process and outcomes could pro-
vide  insights  into  better  ways  to  deliver  care  and 
to  promote  wide-scale  consensus  in  policies  and 
strategies. Reports from data collected will also be 
disseminated to health authorities, neonatologists, 
obstetricians,  paediatric  and  paediatric  sub-spe-
cialists, nurses and personnel involved in neonatal/
child  care  as  well  as  interested  parties  in  perina-
tal/neonatal sociology, epidemiology, public health, 
child  education,  social  services,  representatives  of 
parental associations. Data that could direct or in-
directly  identify  patients  will  remain  within  units. 
All  procedures  will  adhere  to  international  protec-
tion  data  and  personal  identity  procedures  and 
legislation.  Partners  are  guarantors  of  safety  of 
database,  which  will  only  be  used  to  achieve  the 
project’s aims. 

Abstract 

Mission and vision of the operating grant holder
EuroNeoNet  provides  a  networking  tool  to  Euro-
pean  neonatologists  and  other  stakeholders  to 
perform quality assurance and benchmarking, and 
a framework to facilitate the development of high-
quality outcome epidemiological research and ran-
domised  clinical  trials.  Its  mission  is  to  promote  a 
culture  for  quality  of  care  and  patient  safety,  to 
interventions,  and 
disseminate  evidence-based 
to  conduct  academically-driven  clinical  trials  and 
studies.  The  vision  is  for  all  Very  Low-Gestational 
Age  and  Very-Low-Birth-Weight  infants  to  receive 
the  best  possible  health  care  no  matter  where  in 
Europe they are born. 

Strategic objectives and specific activities
The  strategic  aim  is  a  standardised  set  of  health 
indicators  to  assess  the  quality  of  health  care  de-
livered  to  very  premature  infants  by  European  in-
stitutions,  regions  and  countries.  The  targets  are  a 
reduction  in  neonatal  morbidity  and  mortality,  im-
proved  health  status  at  2  years,  and  the  detection 
of  any  inequalities  that  might  exist.  Data  include 
perinatal  risk/protective  factors,  neonatal  interven-
tions  and  adverse  events,  as  well  as  short-term 
mortality and morbidity and long-term follow-up on 
health and neurodevelopment outcomes. A compre-
hensive  annual  report  is  prepared  and  distributed, 
anonymously  ranking  participating  units  on  their 
performance  on  interventions,  diagnoses  and  mor-
bi-mortality outcomes, adjusted for case-mix. 

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Keywords and portfolio

KEYWORDS:
•	 Newborn	&	perinatal	health	within	Target	

groups

•	 Tertiary	care	within	Health	system	within	

Healthcare

•	 Benchmarking	within	Methods
•	 Quality	evaluation	within	Methods

PORTFOLIO:
•	 Data	collection	within	Indicators	and	data

ACTION WEBSITE: 
http://www.bioef.org/

MAIN BENEFICIARY:
Fundación	Vasca	de	Innovación	e	Investigación	
Sanitarias 
Plaza Asua, 1 
48150 sondika 
Spain 
Tel: +34 944538500 
Website: http://www.bioef.org/

PROJECT LEADER: 
Adolf Valls i Soller 
E-mail: adolfo.vallssoler@osakidetza.net 

MAXIMUM EC CONTRIBUTION: 
100,000.00€

DURATION: 
12 months

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 3 3 0 6

I.A.A.S._FY2013 (cid:18)I.A.A.S._FY2013(cid:17)

Expected outcomes
There  will  be  sustainable  growth  of  ambulatory 
surgery  in  countries  with  potential  for  this,  and 
stronger  relations  with  Eastern  European  mem-
bers.  Innovative  day  surgery  models  and  related 
management  styles  will  be  introduced,  along  with 
training  opportunities,  and  professional  exchanges 
among  health  managers  and  surgeons.  Capacity 
building  will  focus  on  health  managers  and  clini-
cians  in  management  positions,  with  training  ac-
tivities  in  Hungry,  Romania,  Poland  and  Slovakia. 
Research  activities  will  be  stimulated  through 
dissemination  of  research  findings  and  network-
ing  and  benchmarking  activities.  A  training  needs 
assessment  will  be  carried  out,  based  on  a  sur-
vey  of  participants  from  new  Member  States  and 
candidate and associate countries. The survey that 
IAAS  carries  out  every  two  years  will  be  extended 
to  East  European  countries,  producing  information 
valuable for trend analysis. 

Abstract 

Mission and vision of the operating grant holder
‘Day  Surgery:  Making  it  Happen’  represents  the  vi-
sion of the International Association for Ambulatory 
Surgery,  which  is  committed  to  working  through 
education,  consultation  and  communication,  with 
national  societies,  governmental  organisations  and 
service  providers  to  further  understanding  of  the 
benefits  and  advantages  of  day  surgery.  The  mis-
sion  of  the  IAAS  is  to  promote  the  worldwide  de-
velopment  and  growth  of  high  quality  ambulatory 
surgery  worldwide,  since  day  surgery  has  proven 
itself  to  be  a  high-quality,  safe  and  cost-effective 
approach to surgical health care. 

Strategic objectives and specific activities
The  objectives  are  to  stimulate  the  formation  of 
national  associations  for  ambulatory  surgery  and 
promote  education  and  training  for  surgeons, 
anaesthetists  and  nurses.  Encouraging  multi-dis-
ciplinary  working  and  stimulating  research  in  am-
bulatory surgery are also goals, along with the in-
ternational exchange of knowledge and experience. 
Activities range from publishing and networking to 
research  and  training.  Research  activities  include 
regular international benchmarking exercises every 
two  years  to  measure  the  rate  of  day  surgery  (as 
a  percentage  of  all  surgery  and/or  as  a  percent-
age of all elective surgery) in one country for com-
parison with day surgery activity in other countries. 
The  Train  the  Trainers  educational  plan  aims  at 
providing  health  care  professionals,  hospital  man-
agers and policy makers, particularly from Eastern 
Europe,  the  essential  notions  for  capacity  building 
in the area of day surgery.

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Keywords and portfolio

KEYWORDS:
•	 Patients’	rights	within	Socio	economic	factors
•	 Innovation	initiatives	within	Healthcare
•	 Accessibility	within	Healthcare
•	 Health	system	within	Healthcare
•	 Treatment	within	Methods

PORTFOLIO:
•	 Improving	healthcare

ACTION WEBSITE: 
http://www.iaas-med.com/

MAIN BENEFICIARY:
International Association for Ambulatory Surgery 
(I.A.A.S.) 
Via Giustiniani 2 
35128 Padova 
Italy 
Tel: +39 3489660146 
Website: http://www.iaas-med.com/

PROJECT LEADER: 
Silva Mitro 
E-mail: silva.mitro@ulss10.veneto.it 

MAXIMUM EC CONTRIBUTION: 
99,300.00€

DURATION: 
12 months

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O P E R AT I N G   G R A N T   N O  2 01 2 3 3 0 7 

UNEW_FY2013 (cid:18)UNEW_FY2013(cid:17)

Abstract 

Mission and vision of the operating grant holder
TREAT-NMD  is  an  international  network  for  rare 
inherited  neuromuscular  disorders,  with  a  mission 
to  increase  collaboration  between  clinicians,  sci-
entists,  and  patients,  accelerate  therapy  develop-
ment  for  these  incurable  conditions,  improve  pa-
tient  care  through  publication  and  dissemination 
of  best-practice  consensus  guidelines,  and  provide 
reliable information for patients and professionals. 
The  vision  is  of  enhanced  European  excellence  in 
this field, increased visibility for and recognition of 
neuromuscular  disorders  in  national  health  policy, 
and  extended  networking  activities  and  resources 
to new experts worldwide.

Strategic objectives and specific activities
The overarching objective is to be an international 
platform  for  improving  care,  advancing  research 
and collaboration and providing information to the 
neuromuscular  stakeholder  community.  The  alli-
ance contributes to the development and dissemi-
nation  of  knowledge  from  basic  research  through 
to support of healthcare professionals and empow-
erment  of  patients,  contributing  to  improvements 
in  access  to  quality  services  and  care.  Its  critical 
mass of expertise is focused on the publication of 
consensus  guidelines  and  standards  covering  ba-
sic and translational research and care. It has also 
become  a  catalyst  for  new  research  projects  that 
take advantage of the translational research plat-
form  offered  by  the  alliance.  The  outputs  include 
a  developed  communication/dissemination  infra-
structure  with  extensive  website  and  newsletter, 
a  network  of  over  270  care  and  trial  sites,  global 
patient  registries  for  several  forms  of  the  disease 
with  more  than  20,000  patients,  and  a  range  of 
preclinical  resources  and  tools  to  support  transla-
tional and clinical research. 

Expected outcomes
The  results  are  expected  to  include  international 
harmonisation  (additional  collaborations,  less  du-
plication  of  effort,  improved  cross  talk  between 
separately  funded  projects),  additional  patient 
registries  and  more  patients  linked  within  exist-
ing registries, and a level playing field for patients 
linked  in  a  better  informed  patient  community. 
There should be a stronger voice for the field, and 
greater trial readiness and accelerated clinical trial 
development for patients.

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Keywords and portfolio

KEYWORDS:
•	 Rare	diseases	and	disorders	within	Non	

communicables diseases

•	 Health	system	within	Healthcare
•	 Collection	of	Best	Practices	within	Methods
•	 Research	within	Methods
•	 Patients	registries	within	Methods

PORTFOLIO: (cid:1)

ACTION WEBSITE: 
http://www.treat-nmd.eu/organisations/newcastle.
university/

MAIN BENEFICIARY:
University of Newcastle upon Tyne 
King’s Gate 
NE1 7RU Newcastle upon Tyne 
United Kingdom 
Tel: +44 1912226000 

PROJECT LEADER: 
Volker Straub 
E-mail: volker.straub@ncl.ac.uk 

MAXIMUM EC CONTRIBUTION: 
199,681.00€

DURATION: 
12 months

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H E A L T H   (cid:22)   2 0 1 2   A N N U A L   R E P O R T

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C H A P T E R  4

4 . 3  H E A LT H S EC U R I T Y   

O P E R AT I NG G R A N T S

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O P E R AT I N G   G R A N T   N O  2 01 2 3101 

SSI_FY2013 (cid:21)SSI_FY2013(cid:20)

Abstract 

Mission and vision of the operating grant holder
The  mission  of  the  EuroMOMO  network  is  to  rein-
force EU preparedness to respond to potential risk. 
The  vision  is  to  extend  the  collaboration  by  add-
ing  new  countries  to  the  network.  Through  train-
ing  activities,  partners  will  learn  best  practice  on 
applying data from real-time mortality monitoring 
for risk assessment, in particular as regards cross-
border  threats  and  the  management  of  the  pub-
lic  health  response  to  emergencies.  Until  recently 
there has been little tradition of conducting timely 
monitoring of mortality, which is a limitation when 
assessing the health impact of events such as epi-
demics,  extreme  temperatures  or  release  of  bio-
logical or chemical agents. 

Expected outcomes
Results should include more Member State officials 
trained  in  the  operation  of  the  algorithm  used  for 
mortality monitoring as well as in the use of mor-
tality monitoring outputs for risk assessment. This 
will  make  use  of  a  detailed  curriculum  developed 
by  network experts  under the lead of the  network 
hub  and  in  consultation  with  the  networks  coordi-
nation  team.  Individual  long  distance  training  will 
also  be  available  to  any  partner  should  the  need 
arise.  The  support  includes  advice  and  training 
in  the  analysis  and  assessment  of  mortality  out-
puts  as  well  as  in  facilitating  risk  communication 
between  member  states  and  relevant  European 
agencies, such as ECDC and WHO Europe.

Strategic objectives and specific activities
The general aim of this project is to operate coordi-
nated  real-time  mortality  monitoring  and  analysis 
across as many European countries as possible, in 
order  to  improve  the  capacity  to  assess  risks  as-
sociated  with  major  health  threats.  The  system  is 
ready to be applied among countries that meet the 
minimal requirements for mortality monitoring, and 
currently, the weekly mortality bulletin is based on 
data  submitted  from  only  15  countries.  Routine 
activities include producing quality-checked weekly 
reports of crude mortality, expected mortality, de-
lays  in  reporting,  sustained  excess  mortality  pat-
terns for each studied country and age group and 
a comparison of European mortality patterns with 
influenza-  and  climate-related  patterns.  Planned 
activities  include  training  further  national  officials 
in the operation of mortality monitoring.

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Keywords and portfolio

KEYWORDS:
•	 Survey	within	Methods
•	 Modeling	within	Methods
•	 Non	communicables	diseases
•	 Communicable	diseases
•	 Risks	Factors	and	determinants	not	already	in	

the list

MAIN BENEFICIARY:
Statens Serum Institut, Department of Infectious 
Disease Epidemiology 
Artillerivej 5 
2300 Copenhagen 
Denmark 
Tel: +45 32683268 
Fax: +45 32683874 

PORTFOLIO:
•	 Improving	healthcare

ACTION WEBSITE: 
http://www.euromomo.eu/

PROJECT LEADER: 
Anne Mazick 
E-mail: maz@ssi.dk 

MAXIMUM EC CONTRIBUTION: 
130,219.00€

DURATION: 
12 months

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H E A L T H   (cid:22)   2 0 1 2   A N N U A L   R E P O R T

O P E R AT I N G   G R A N T   N O  2 01 2 310 2 

ED_FY2013 (cid:11)ED_FY2013(cid:10)

Abstract 

Mission and vision of the operating grant holder
The  EU  Breast  Cancer  Coalition  –  Europa  Donna  – 
is a coalition of grassroots groups whose mission is 
to ensure that all women have access to  accurate 
information  and  the  highest  quality  breast  cancer 
screening, diagnosis and treatment. The vision is of 
increased early detection and drastically decreased 
mortality, quality of treatment to the highest level 
for  all  women,  and  increased  prevention,  through 
education about healthy lifestyle practices. 

Strategic objectives and specific activities
ED’s general objectives are to promote the dissem-
ination  and  exchange  of  factual,  up-to-date  infor-
mation on breast cancer throughout Europe and to 
promote  breast  awareness.  The  aims  also  include 
emphasis  on  the  need  for  appropriate  screening 
and early detection, and effective campaigning for 
the provision of optimum treatment and supportive 
care.  Appropriate  training  for  health  professionals 
and promotion of good practice are other key goals, 
along  with  regular  quality  assessment  of  medical 
equipment.  And  EuropaDonna  aims  to  ensure  that 
all  women  understand  fully  any  proposed  treat-
ment options, including entry into clinical trials and 
their  right  to  a  second  opinion.  Activities  address 
the EU Partnership for Action Against Cancer pillar 
of identification and promotion of good practice in 
cancer-related healthcare. They include training on 
scientific  aspects,  mammography  screening,  and 
capacity  building,  the  biennial  EU  breast  cancer 
conference  for  5,000  participants,  and  the  annual 
breast  health  day,  which  uses  media,  social  net-
working  and  digital  tools  to  disseminate  informa-
tion concerning the health determinants that influ-
ence breast cancer. 

Expected outcomes
EuropaDonna  fora  will  be  provided  with  accurate, 
up-to-date  information  and  proven  strategies  to 
lead  their  countries  in  campaigns  for  improved 
breast  health  services  and  in  direct  education  of 
women  and  girls  about  breast  health.  There  will 
also  be  direct  education  of  women  about  the  im-
portance  of  breast  cancer  screening,  early  detec-
tion, breast cancer issues and services, and breast 
health.  The  result  should  be  reduced  inequalities 
in  services  and  public  health  knowledge  and,  ulti-
mately,  decreased  mortality,  and  greater  preven-
tion.  The  46  member  countries  will  receive  atten-
tion, with a focus on those experiencing difficulties, 
so as to remedy inequalities. 

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Keywords and portfolio

KEYWORDS:
•	 Women	within	Target	groups
•	 Breast	within	Cancer	within	Chronic	diseases	

within Non communicables diseases

•	 Collection	of	Best	Practices	within	Methods

MAIN BENEFICIARY:
EUROPA DONNA The EU Breast Cancer Coalition 
Piazza Amendola, 3 
I-20149 Milan 
Italy 
Tel: +39 236592280 

PORTFOLIO:
•	 Taking	Action	against	Diseases

ACTION WEBSITE: 
http://www.europadonna.org/

PROJECT LEADER: 
Susan Knox 
E-mail: susan.knox@europadonna.org 

MAXIMUM EC CONTRIBUTION: 
270,680.00€

DURATION: 
12 months

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H E A L T H   (cid:22)   2 0 1 2   A N N U A L   R E P O R T

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Main beneﬁciaries by country  
of establishment

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H E A L T H   (cid:22)   2 0 1 2   A N N U A L   R E P O R T

Belgium
Organisation of European Cancer Institutes – European Economic Interest Grouping
Project No 20121211 

Federal Public Service Health, Food Chain Safety and Environment (BE_FPS) 
Joint Action No 20122201

Prevent, Institute for Occupational Safety and Health
Conference No 20124303 

European Public Health Alliance
Operating Grant No 20123202 

Prevent 
Operating Grant No 20123205 

European Network for Smoking and Tobacco Prevention aisbl 
Operating Grant No 20123206 

European Alcohol Policy Alliance 
Operating Grant No 20123207

European Multiple Sclerosis Platform aisbl 
Operating Grant No 20123302 

European Patient’s Forum
Operating Grant No 20123303 

Cyprus
Ministry of Health Cyprus 
Conference No 20120001

Denmark
University College Southern Denmark, Research Centre for Health Promotion
Conference No 20124202 

Statens Serum Institut, Department of Infectious Disease Epidemiology
Operating Grant No 20123101 

Finland
Sosiaali- ja terveysministeriö 
Conference No 20124201

France
Proteines SAS
Project No 20121218 

International Union for Health Promotion and Education (IUHPE),  
on behalf of the Health Promotion Competencies and Workforce Development Working Group (CWDG),  
a specialised network under its umbrella
Operating Grant No 20123203

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European Organisation for Rare Diseases
Operating Grant No 20123301

Germany
Technische Universitaet Dresden
Project No 20121203

Philips Medizin Systeme Böblingen GmbH 
Project No 20121209

Robert Koch-Institut 
Project – 2012 – 20121102

Federal Centre for Health Education, Germany
Joint Action No 20122102 

Greece
University of Thessaly 
Joint Action No 20122103 

Ireland
Minister for Health of Ireland 
Conference No 20120002

Italy
Brains for Brain Foundation 
Project No 20121212 

Centro Nazionale Trapianti, Istituto Superiore di Sanit
Joint Action No 20122101

International Association for Ambulatory Surgery (I.A.A.S.) 
Operating Grant No 20123306

EUROPA DONNA The EU Breast Cancer Coalition
Operating Grant No 20123102 

Luxembourg
Alzheimer Europe 
Conference No 20124304 
Operating Grant No 20123204 

Poland
Nofer Institute of Occupational Medicine 
Project No 20121210 

Portugal
Faculdade	de	Ciências	Médicas	–	Universidade	Nova	de	Lisboa	
Joint Action No 20122202

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H E A L T H   (cid:22)   2 0 1 2   A N N U A L   R E P O R T

Slovenia
Alcohol Policy Youth Network 
Project No 20121208 

Spain
Consorci Mar Parc de Salut de Barcelona
Project No 20121207 

Fundacio Hospital Universitari Vall d’Hebron- Institut de Recerca 
Project No 20121214

Consorci	Institut	d’Investigacions	Biomèdiques	August	Pi	i	Sunyer
Project No 20121217 

Fundación	Vasca	de	Innovación	e	Investigación	Sanitarias
Operating Grant No 20123305

Sweden
Region Skåne 
Project No 20121206

The Netherlands
VU University medical center, part of Stichting VU-Vumc
Project No 20121202 

CBO B.V
Project No 20121204 
Operating Grant No 20123210 

Netherlands Institute for Health Services Research
Project No 20121205 

European Society for Organ Transplantation 
Conference No 20124302 

European Public Health Association 
Conference No 20124305 

Stichting Aids Fonds – STOP AIDS NOW! – Soa Aids Nederland
Operating Grant No 20123201 

Stichting Health Action International
Operating Grant No 20123208 

Academic Medical Center, Amsterdam 
Operating Grant No 20123209

Foundation De Regenboog Groep 
Operating Grant No 20123304 

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United Kingdom
National Heart Forum
Project No 20121213 

University Hospitals Birmingham NHS Foundation Trust 
An EU rare diseases registry for Niemann-Pick Disease type A, B and C. (NPDR) 

National Children’s Bureau
Project No 20121219 

EuropaColon
Conference No 20124301 

Health Protection Agency 
Project No 20121101 

University of Newcastle upon Tyne 
Operating Grant No 20123307 

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H E A L T H   (cid:22)   2 0 1 2   A N N U A L   R E P O R T

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Index

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H E A L T H   (cid:25)   2 0 1 2   A N N U A L   R E P O R T

1. Project list

8th Global Conference on Health Promotion (GCHP2013)
Conference No 20124201  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 44

23rd AE Conference: Living well in a dementia-friendly society (23 AEC)
Conference No 20124304  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 66

Active Ageing with Type 2 Diabetes as Model for the Development and Implementation of  
Innovative Chronic Care Management in Europe (MANAGE-CARE)
Project No 20121203  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 38

Advancing Care Coordination & TeleHealth Deployment Programme (ACT)
Project No 20121209  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 40

AE_FY2013_FY2013 (AE_FY2013)
Operating Grant No 20123204  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 98

An EU rare diseases registry for Niemann-Pick Disease type A, B and C. (NPDR)
Project No 20121201  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  8

Benchmarking comprehensive cancer care that provides interdisciplinary treatment for patients,  
and yields examples of best practice in comprehensive cancer care (BENCH-CAN)
Project No 20121211  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 24

BIOEF_FY2013 (BIOEF_FY2013)
Operating Grant No 20123305  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  122

CBO_FY2013 (CBO_FY2013)
Operating Grant No 20123210  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 110

Coordinated action in the aviation sector to control public health threats (AIRSAN)
Project – 2012 – 20121102  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 78

Economics of Chronic Diseases (EConDA)
Project No 20121213  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 28

ED_FY2013 (ED_FY2013)
Operating Grant No 20123102   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  132

Empowering the Youth Sector with a better overview of evidence-based  
Alcohol intervention programmes (Let it hAPYN!)
Project No 20121208  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 20

EMSP_FY2013 (EMSP_FY2013)
Operating Grant No 20123302  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 116

ENSP_FY2013 (ENSP_FY2013)
Operating Grant No 20123206  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  102

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EPF_FY2013_FY2013 (EPF_FY2013)
Operating Grant No 20123303  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 118

EPHA_FY2013 (EPHA_FY2013)
Operating Grant No 20123202  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 94

Equity in Health Through Education:  
The Fourth European Conference on Health Promoting Schools (HPS Conference)
Conference No 20124202  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 46

ESPNreg_FY2013 (ESPNreg_FY2013)
Operating Grant No 20123209  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  108

Eurocare_FY2013 (Eurocare_FY2013)
Operating Grant No 20123207  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  104

European Chemical Emergency Network (ECHEMNET)
Project No 20121101  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 76

European Health Workforce Planning and Forecasting (EUHWforce)
Joint Action No 20122201  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 52

European network and registry for homocysinurias and methylation defects (E-HOD)
Project No 20121202  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10

European registry of patients with McArdle disease and very rare muscle glycogenolytic  
disorders (MGD) with exercise intolerance as the major symptom (PR-MDMGD) (EUROMAC)
Project No 20121214  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 30

European Surgical Registry for Rare Endocrine Tumours (EUROCRINE)
Project No 20121206  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16

EUROpean Treatment & Reduction of Acute Coronary Syndromes cost analysis (EUROTRACS)
Project No 20121207  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 18

European Youth Tackling Obesity (EYTO)
Project No 20121219  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 36

EURORDIS_FY2013_FY2013 (EURORDIS_FY2013)
Operating Grant No 20123301  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 114

Facilitating exchange of organs donated in EU member states (FOEDUS)
Joint Action No 20122101   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 82

FRG_FY2013_FY2013 (FRG_FY2013)
Operating Grant No 20123304  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  120

HAI_FY2013 (HAI_FY2013)
Operating Grant No 20123208  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  106

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H E A L T H   (cid:23)   2 0 1 2   A N N U A L   R E P O R T

Healthy ageing across the lifecycle (healthy ageing)
Conference No 20120001  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 48

High-Level E-Health Ministerial Conference 2013 (Irish Presidency)
Conference No 20120002  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 70

I.A.A.S._FY2013 (I.A.A.S._FY2013)
Operating Grant No 20123306  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  124

Improving Quality in HIV Prevention (QHP)
Joint Action No 20122102   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 84

Inherited NeuRoMetabolic Diseases INFORMATION NETWORK (InNerMeD-I-Network)
Project No 20121212  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 26

Innovating care for people with multiple chronic conditions in Europe (ICARE4EU)
Project No 20121205  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  14

IUHPE_FY2013 (IUHPE_FY2013)
Operating Grant No 20123203  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 96

Mental health and well-being (MH-WB)
Joint Action No 20122202  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 54

New e-Health services for the European Reference Network on Rare Anaemias (E-Enerca)
Project No 20121217  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32

Obesity Prevention through European Network (OPEN)
Project No 20121218  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 34

Organ Transplantation: Ethical, Legal and Psychosocial Aspects.  
Outreach from the European Platform (ELPAT 2013)
Conference No 20124302  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 62

Prevent_FY2013 (Prevent_FY2013)
Operating Grant No 20123205  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  100

Promoting healthy eating and physical activity in local communities (HEPCOM)
Project No 20121204  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12

SANL_FY2013 (SANL_FY2013)
Operating Grant No 20123201  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 92

Sixth European Public Health Conference (Brussels 2013)
Conference No 20124305  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 68

SSI_FY2013 (SSI_FY2013)
Operating Grant No 20123101   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  130

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Strengthening occupational health professionals’ capacities to improve  
the health of the ageing workforces. (e-CAPACIT8)
Project No 20121210  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 22

The impact on maritime transport of health threats due to biological,  
chemical &radiological agents, including communicable diseases (SHIPSAN ACT)
Joint Action No 20122103   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 86

The Second European Colorectal Cancer Patient Conference  
“The	Power	of	Patient	Voice	–	The	Challenges,	Collaboration	and	Change”	(CCPC	2013)
Conference No 20124301  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 60

UNEW_FY2013 (UNEW_FY2013)
Operating Grant No 20123307  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  126

Workplace health practices for employees with chronic illness. (PH Work Conference)
Conference No 20124303  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 64

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2. Keyword list

Accessibility  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  85, 93, 115, 117, 125
Adolescents  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  13, 35
Ageing workforce  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  65, 101
Alcohol  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  21, 105
Alzheimer  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  67, 99

Benchmarking  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  25, 77, 123
Biological agents  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 79
Breast  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  133

Cancer . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25
Cardiovascular diseases   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19
Chemical agents   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 77
Children   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  13, 35, 37, 47, 109, 111
Chronic diseases   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  19, 29, 41, 49, 65, 105, 119
Chronic kidney diseases  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  109
Collection of Best Practices   . . . . . . . . . . . . . . . . . .  15, 21,49, 53, 65, 69, 133, 93, 101, 117, 119, 121, 127
Colorectal   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61
Communicable diseases . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 131

Dementia  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  67, 99
Diagnostic  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9, 11, 17, 27, 31, 33
Disabilities  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 101
Disadvantaged groups  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  85, 93
Disorders  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  55, 99

Early	warning	systems	(EWRS,	RAS…)	 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 77, 79, 87
Economic analysis  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  19, 29
eHealth + telemedecine  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  41, 71
Elderly  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  23, 39, 41, 49, 67, 99
Employment   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 65

Food and waterborne diseases   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 87

Harm reduction   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  85, 105, 121
Healthcare  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  15, 69, 95
Healthcare costs   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 71
Health at work  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 101
Health education  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  61, 103, 117
Health promotion  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13, 15, 37, 45, 47, 49, 55, 61, 69, 97, 103, 111
Health system   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  9, 11, 17, 25, 27, 31, 39, 41, 49, 97, 111, 119, 125, 127
Health workforce  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  53, 97
HIV/AIDS  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  85, 93, 121

Implementation  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 87
Inequalities  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  97, 121
Infections  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  85, 93, 121
Innovation initiatives  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  39, 41, 125

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Lifestyle  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15, 19, 23, 29, 35, 47, 69, 95
Living and working environment  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 87

Mental diseases and disorders   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 55
Migration  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  79, 87
Modeling   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 131
Mood anxiety disorders  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 55

Newborn & perinatal health  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  123
Non communicable diseases   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19, 23, 95, 131
Nutrition  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 35, 37, 47

Obesity  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13, 47, 111

Prevention  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 69
Patients registries  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  9, 11, 17, 27, 31, 33, 117, 127
Patient’s rights  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 67, 93, 99, 107, 115, 119, 125
Pharmaceuticals   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  107, 115
Pilot testing  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 77
Policy recommendation  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  105
Prevention  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  15, 23, 103
Primary care  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 83

Quality evaluation  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  25, 85, 123

Rare diseases and disorders  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9, 11, 17, 27, 31, 33, 109, 111, 117, 127
Related to cancer  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61
Research   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  127
Respiratory tract infections  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 79
Risks Factors and determinants not already in the list  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 103, 131

Safety  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  107
Screening  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 77
Socio economic factors   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 23, 95, 107, 109
Substance misuse  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 105, 121
Suicide   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 55
Survey  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  39, 79, 131

Tertiary care  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  123
Tissue, cell and organ transplants   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  63, 83
Tissues and Cells  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 63
Tobacco   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  103
Trade  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  79, 87
Travel   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  79, 87
Treatment   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  9, 17, 27, 31, 33, 109, 125
Type II  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 39

Vulnerable groups  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  119, 121

Women  . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  133
Workers   . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  65, 101

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European Commission; Executive Agency for Health and Consumers (EAHC)

Programme of Community action in the ﬁeld of Public Health; 
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2012 Call for Proposals

Abstracts of the actions selected 

for EU co-funding 

Consumers 

Health and Food 

Executive Agency 

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