title: Engaging Māori in Biobanking and Genetic Research: Legal, Ethical and Policy Challenges

authors: Beaton, Angela

subjects: Indigenous

abstract: Publically funded biobanking initiatives and genetic research should contribute towards reducing inequalities in health by reducing the prevalence and burden of disease. It is essential that Maori and other Indigenous populations share in health gains derived from these activities. The Health Research Council of New Zealand has funded a research project (2012-2015) to identify Maori perspectives on biobanking and genetic research, and to develop cultural guidelines for ethical biobanking and genetic research involving biospecimens. This review describes relevant values and ethics embedded in Maori indigenous knowledge, and how they may be applied to culturally safe interactions between biobanks, researchers, individual participants, and communities. Key issues of ownership, privacy, and consent are also considered within the legal and policy context that guides biobanking and genetic research practices within New Zealand. Areas of concern are highlighted and recommendations of international relevance are provided. To develop a productive environment for "next-generation" biobanking and genomic research,"‘next-generation" regulatory solutions will be required.

text: Engaging Māori in Biobanking and Genetic Research: Legal, Ethical and Policy Challenges Publically funded biobanking initiatives and genetic research should contribute towards reducing inequalities in health by reducing the prevalence and burden of disease. It is essential that Maori and other Indigenous populations share in health gains derived from these activities. The Health Research Council of New Zealand has funded a research project (2012-2015) to identify Maori perspectives on biobanking and genetic research, and to develop cultural guidelines for ethical biobanking and genetic research involving biospecimens. This review describes relevant values and ethics embedded in Maori indigenous knowledge, and how they may be applied to culturally safe interactions between biobanks, researchers, individual participants, and communities. Key issues of ownership, privacy, and consent are also considered within the legal and policy context that guides biobanking and genetic research practices within New Zealand. Areas of concern are highlighted and recommendations of international relevance are provided. To develop a productive environment for "next-generation" biobanking and genomic research,"‘next-generation" regulatory solutions will be required.

year: 2015

title: "Takahi ngā takahanga o ngā tūpuna" - Tramp the pathways of our ancestors

authors: Williams, Taniwha

subjects: Māori health and wellbeing

abstract: The rise of reconnecting to holistic approaches to health to improve wellbeing outcomes for Māori has become increasingly prominent in recent years. Such developments have highlighted the need to introduce traditional Māori concepts, values and practices within whānau, hapū and iwi as vehicles for promoting and improving Māori health. This research had two objectives. Firstly, it aimed to explore the process of reclaiming mātauranga Māori (Māori knowledge systems) with my whānau who had limited access to te ao Māori (the Māori world). The second objective sought to explore the experiences of my whānau reconnecting with te reo me ōna tikanga (Māori language and culture). Using the Whiti Te Rā as a guide informed the design and structure of the wānanga (workshops). The Whiti Te Rā is a therapeutic model designed to improve health and wellbeing outcomes for Māori by developing and enhancing a cultural identity. Central to this model are six Māori customary practices and values that provide pathways to wellbeing and flourishing mauri. These dimensions also have synergies with other models of health – Te Whare Tapa Whā, Te Wheke. Four tāne (men) from my whānau took part in this research. We used the Pūrākau Method to record, explore, and analyse the narratives that emerged following each wānanga. The key findings from this research included connection to history, whakapapa and wairua; connection to pepeha and cultural practices; connection to self as a Māori; connection through whanaungatanga; and connection to taiao (the environment). This study showed that Māori models of health and wellbeing are consistent in demonstrating their effectiveness in connecting Māori to their language and culture. Despite the impact of colonisation, reconnection to customary practices and values was meaningful and valuable to my whānau. Future research is needed to revitalise, regenerate and reclaim a thriving Māori identity.

text: "Takahi ngā takahanga o ngā tūpuna" - Tramp the pathways of our ancestors The rise of reconnecting to holistic approaches to health to improve wellbeing outcomes for Māori has become increasingly prominent in recent years. Such developments have highlighted the need to introduce traditional Māori concepts, values and practices within whānau, hapū and iwi as vehicles for promoting and improving Māori health. This research had two objectives. Firstly, it aimed to explore the process of reclaiming mātauranga Māori (Māori knowledge systems) with my whānau who had limited access to te ao Māori (the Māori world). The second objective sought to explore the experiences of my whānau reconnecting with te reo me ōna tikanga (Māori language and culture). Using the Whiti Te Rā as a guide informed the design and structure of the wānanga (workshops). The Whiti Te Rā is a therapeutic model designed to improve health and wellbeing outcomes for Māori by developing and enhancing a cultural identity. Central to this model are six Māori customary practices and values that provide pathways to wellbeing and flourishing mauri. These dimensions also have synergies with other models of health – Te Whare Tapa Whā, Te Wheke. Four tāne (men) from my whānau took part in this research. We used the Pūrākau Method to record, explore, and analyse the narratives that emerged following each wānanga. The key findings from this research included connection to history, whakapapa and wairua; connection to pepeha and cultural practices; connection to self as a Māori; connection through whanaungatanga; and connection to taiao (the environment). This study showed that Māori models of health and wellbeing are consistent in demonstrating their effectiveness in connecting Māori to their language and culture. Despite the impact of colonisation, reconnection to customary practices and values was meaningful and valuable to my whānau. Future research is needed to revitalise, regenerate and reclaim a thriving Māori identity.

year: 2024

title: A structural isomer of the [CoFe3(CO)13]− anion

authors: Evans, Cameron

subjects: Cluster

abstract: The crystal structure of [Et4N][CoFe3 (CO) 13] has been determined, and shown to contain an anion with the CO ligands adopting a very different arrangement about the tetrahedral CoFe3 core to that found for the same anion, reported previously for the PPN+ salt. The relationship between the two structures can be understood in terms of Johnson's Ligand Polyhedral Model. In contrast the anion in [Et4N][CoRu3 (CO) 13] has the same geometry as that described in the corresponding PPN+ salt.

text: A structural isomer of the [CoFe3(CO)13]− anion The crystal structure of [Et4N][CoFe3 (CO) 13] has been determined, and shown to contain an anion with the CO ligands adopting a very different arrangement about the tetrahedral CoFe3 core to that found for the same anion, reported previously for the PPN+ salt. The relationship between the two structures can be understood in terms of Johnson's Ligand Polyhedral Model. In contrast the anion in [Et4N][CoRu3 (CO) 13] has the same geometry as that described in the corresponding PPN+ salt.

year: 2002-02-01