She obtained her DPhil from the University of Oxford in 1997 and BA from the University of Waterloo in 1989. Her research focuses on developing, validating and using patient-reported outcome measures to assess health and well-being in clinical and population-based studies. This research has involved studies of adults (cosmetic and reconstructive surgery patients), children (NICU graduates, ADHD, cancer) and informal family caregivers (NICU, cancer). Another focus is developing conceptual frameworks and performance indicators for use by planners, managers, providers, and researchers to track from a health system perspective, how well services are delivered, and what relationships exist between key process variables and patient and family outcomes. This research is specific to children with disabilities and children with cancer.