Steven is originally from Long Island, New York and graduated from the New York Institute of Technology. Steven and his wife, Patty, moved to Texas in 1999 and currently reside in Aledo, Texas where their son, Colby, and daughter, Taylor, were born. Colby was diagnosed with 17Q21.31 Microdeletion, now Koolen-de Vries Syndrome, in October 2007 at the age of 4. At that time, when no information was available, the internet was fairly new and Facebook was not widely used, Steven and Patty had the good fortune and luck to connect with one other family after posting on Askthegeneticist.com. The original Chromosome 17 Yahoo group was then formed in February 2008. From there, it’s grown from two families into what it is now, including the Facebook page and website.