During her four-year journey to a diagnosis of Hypermobile Ehlers-Danlos syndrome (hEDS) she thought a lot about how to help people who were having similar experiences – she wanted diagnosis to be sooner so that symptoms could be controlled early on to prevent or at least delay disability. Before onset of disabling symptoms, she ran cross country at NHTI and so naturally a 5K was the first awareness event she organized. With the support of family, friends, former cross country coaches and new connections, NH EDS Coalition was formed.