She lives in Sydney, Australia. Along with her wonderful brother and beautiful young niece, she too has Usher syndrome. Life is difficult, no question of that, but it can also be good as Annmaree has the best husband and children ever invented or created! Annmaree has had to change paths in her career many times, as a result of her worsening sensory limitations due to Usher syndrome, and growing up in a climate where support was not readily available. Annmaree hopes the forces that made her retreat into the "closet" are no longer as pressing or prevalent. She is currently embarking on a PhD by researching deaf blind health care communications. Her hope is to engage the Usher community in contributing their experiences in hospitals for her thesis.