ment and Health Disparity Elimination Act; 
and 
‘‘(F) update such plan and report on 
progress in meeting established goals and objec-
tives incorporating recommendations from the 
Institute of Medicine as described in section 
303(b) and (c) of the Minority Health Improve-
ment and Health Disparity Elimination Act not 
less than every 2 years and include in annual 
performance budget submissions, an update of 
progress in meeting plan goals and objectives; 
‘‘(G) ensure coordination and integration 
with the National Plan to Improve Minority 
Health and Eliminate Health Disparities, as de-
scribed in section 1707(c) and other Depart-
ment-wide initiatives, as feasible; and 
‘‘(H) report the plan to the Congress and 
make available to the public in print and elec-
tronic format. 
‘‘(2) ESTABLISHMENT OF GRANTS.—The Sec-
retary, acting through the Director, and in collabo-
ration with the Deputy Assistant Secretary for Mi-
nority Health, may award grants or contracts to eli-
gible entities for research to improve the health of 
racial and ethnic minority groups. 
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‘‘(3) APPLICATION; ELIGIBLE ENTITIES.— 
‘‘(A) APPLICATION.—To receive a grant or 
contract under this section, an eligible entity 
shall submit to the Secretary an application at 
such time, in such manner, and containing such 
information as the Secretary may require. 
‘‘(B) ELIGIBLE ENTITIES.—To be eligible 
to receive a grant or contract under this sec-
tion, an entity shall be a health center, hospital, 
health system, community clinic, university, 
community-based organization, or other health 
entity determined appropriate by the Secretary, 
that— 
‘‘(i) by legal mandate or explicitly 
adopted mission, provides patients with ac-
cess to services regardless of their ability 
to pay; 
‘‘(ii) provides care or treatment for a 
substantial number of patients who are un-
insured, are receiving assistance under a 
State program under title XIX of the So-
cial Security Act, or are members of vul-
nerable populations, as determined by the 
Secretary; 
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‘‘(iii) serves a disproportionate per-
centage of patients from racial and ethnic 
minority groups; 
‘‘(iv) provides an assurance that 
amounts received under the grant or con-
tract will be used to implement strategies 
that address patients’ linguistic needs, 
where necessary, and recruit and maintain 
diverse staff and leadership; and 
‘‘(v) include a focus on community- 
based participation in research and dem-
onstrations, as well as research analysis, 
interpretation, solutions and partnerships 
for patients from racial and ethnic minor-
ity groups. 
‘‘(C) PREFERENCE.—Consortia of 3 or 
more eligible entities, particularly those entities 
that partner with health plans, shall be given a 
preference for grant or contract funding. 
‘‘(4) RESEARCH.—The research funded under 
paragraph (2), with respect to racial and ethnic mi-
nority groups, shall— 
‘‘(A) prioritize the translation of existing 
research into practical interventions for improv-
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ing health and healthcare and reducing dispari-
ties; 
‘‘(B) target areas of need as identified in 
the strategic plan pursuant to subsection (a)(1), 
the National Healthcare Disparities Report 
published by the Agency for Healthcare Re-
search and Quality, the Unequal Treatment: 
Confronting Racial and Ethnic Disparities in 
Health Care Report, and other relevant reports 
by the Institute of Medicine, and other reports 
issued by Federal health agencies; 
‘‘(C) include a focus on community-based 
participatory research solutions and partner-
ships as appropriate; 
‘‘(D) expand practice-based research net-
works (primary care and larger delivery sys-
tems) to include networks of delivery sites serv-
ing large numbers of minority and health dis-
parity populations including— 
‘‘(i) public hospitals and private non- 
profit hospitals; 
‘‘(ii) health centers; 
‘‘(iii) health plans; 
‘‘(iv) an Indian tribe, tribal organiza-
tion, or urban Indian organization; and 
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‘‘(v) other sites as determined appro-
priate by the Director. 
‘‘(5) DISSEMINATION
OF
RESEARCH
FIND-
INGS.—To ensure that findings from the research 
described in paragraph (4) are disseminated and ap-
plied promptly, the Director shall— 
‘‘(A) develop outreach and training pro-
grams for healthcare providers with respect to 
the practical and effective interventions that re-
sult from research programs carried out with 
grants or contracts awarded under this section; 
and 
‘‘(B) provide technical assistance for the 
implementation of evidence-based practices that 
will improve health and healthcare and reduce 
disparities. 
‘‘(b) REALIZING THE POTENTIAL OF DISEASE MAN-
AGEMENT.— 
‘‘(1) PUBLIC-PRIVATE
SECTOR
PARTNERSHIP 
TO ASSESS EFFECTIVENESS OF EXISTING DISEASE 
MANAGEMENT STRATEGIES.— 
‘‘(A) IN
GENERAL.—The Secretary shall 
establish a public-private partnership to iden-
tify, evaluate, and disseminate effective disease 
management strategies, tailored to improve 
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healthcare and health outcomes for patients 
from racial and ethnic minority groups. Such 
strategies shall reflect established healthcare 
quality standards and benchmarks and other 
evidence-based recommendations. 
‘‘(B) PARTNERSHIP
COMPOSITION.—The 
partnership’s members shall include the fol-
lowing: 
‘‘(i) Representatives from the fol-
lowing: 
‘‘(I) The Office of Minority 
Health. 
‘‘(II) The Centers for Disease 
Control and Prevention. 
‘‘(III) The Agency for Healthcare 
Research and Quality. 
‘‘(IV) The Centers for Medicare 
and Medicaid Services. 
‘‘(V) The Health Resources and 
Services Administration. 
‘‘(VI) The Indian Health Service. 
‘‘(VII) The Substance Abuse and 
Mental Health Services Administra-
tion. 
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‘‘(VII) Other interventions as 
identified by the Secretary. 
‘‘(2) REPORT.— 
‘‘(A) IN GENERAL.—Not later than Sep-
tember 30, 2010, the partnership shall submit 
to the Secretary and the relevant committees of 
Congress a report that describes the extent to 
which the activities and research funded under 
this section have been successful in reducing 
and eliminating disparities in health and 
healthcare in targeted populations. 
‘‘(B) AVAILABILITY.—The Secretary shall 
ensure that the report is made available on the 
Internet websites of the Office of Minority 
Health, the Agency for Healthcare Research 
and Quality, and other agencies as appro-
priate.’’. 
(b) ANNUAL
REPORTS.—The Secretary, acting 
through the Director of the Agency for Healthcare Re-
search and Quality, shall continue to carry out the report-
ing requirements of sections 903(a)(6) and 913(b)(2) of 
the Public Health Service Act. 
SEC. 302. GENETIC VARIATION AND HEALTH. 
(a) IN GENERAL.—The Secretary shall ensure that 
any current, proposed, or future research and pro-
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grammatic activities regarding genomics include focus on 
genetic variation within and between populations, with a 
focus on racial and ethnic minority populations, that may 
affect risk of disease or response to drug therapy and 
other treatments, in order to ensure that all populations 
are able to derive full benefit from genomic tests and 
treatments that may improve their health and healthcare. 
The Secretary shall encourage, with respect to racial and 
ethnic minority populations, efforts to— 
(1) increase awareness, access, availability, and 
utilization of genomic tests and treatments; 
(2) determine and monitor appropriateness of 
use of genomic tests and treatments; 
(3) increase awareness of the importance of 
knowing one’s family history and the relationships 
between genes, the social and physical environment, 
and health; and 
(4) expand genomics research that would help 
to— 
(A) improve tests to facilitate earlier and 
more accurate diagnoses; 
(B) enhance the safety of drugs, particu-
larly for drugs that pose an elevated risk for 
adverse drug events in such populations; 
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(C) increase the effectiveness of drugs, 
particularly for diseases and conditions that dis-
proportionately affect such populations; and 
(D) augment the current understanding of 
the interactions between genomic, social and 
physical environmental factors, and their influ-
ence on the causality, prevention, control, and 
treatment of diseases common in such popu-
lations. 
(b) GENETIC
VARIATION, ENVIRONMENT, 
AND 
HEALTH SUMMIT.— 
(1) SUMMIT.—Not later than 1 year after the 
date of enactment of this Act, the Director of the 
National Human Genome Research Institute, in col-
laboration with the Director of the Office of 
Genomics and Disease Prevention at the Centers for 
Disease Control and Prevention, the Director of the 
Office of Behavioral and Social Science Research at 
the National Institutes of Health, and the Deputy 
Assistant Secretary of the Office of Minority Health, 
shall convene a Summit for the purpose of providing 
leadership and guidance to Secretary, Congress, and 
other public and private entities on current and fu-
ture areas of focus for genomics research, including 
translation of findings from such research, relating 
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to improving the health of racial and ethnic minority 
populations and reducing health disparities. 
(2) PARTICIPATION.—The Summit shall in-
clude— 
(A) representatives from the Federal 
health agencies, including the National Insti-
tutes of Health, the Centers for Disease Control 
and Prevention, the Office of Minority Health, 
the Food and Drug Administration, the Health 
Resources and Services Administration, the 
Centers for Medicare & Medicaid Services, the 
Substance Abuse and Mental Health Services 
Administration, and additional agencies and de-
partments as determined appropriate by the 
Secretary; 
(B) independent experts and stakeholders 
from relevant industry and academic institu-
tions, particularly those that have demonstrated 
expertise in both genomics and minority health 
and serve a disproportionate number of racial 
and ethnic minority patients; and 
(C) leaders of community organizations 
and Indian tribal epidemiology centers that 
work to reduce and eliminate health disparities. 
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(3) REPORT.—Not later than 90 days after the 
conclusion of the Summit, the Director of the Na-
tional Human Genome Research Institute shall sub-
mit to Congress and make available to the public a 
report detailing recommendations on— 
(A) an appropriate description of human 
diversity, incorporating available information on 
genetics, for use in genomic research and pro-
grams operated or supported by the Federal 
Government; 
(B) guiding ethics, principles, and proto-
cols for the inclusion and designation of racial 
and ethnic minority populations in genomics re-
search, particularly clinical trials programs op-
erated or supported by the Federal Govern-
ment; 
(C) ways to increase awareness of, access 
to, and utilization of effective pharmacogenomic 
and other genetic screening and services for ra-
cial and ethnic minority populations; 
(D) research opportunities and funding 
support in the area of genomic variation that 
may improve the health and healthcare of mi-
nority populations; 
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under paragraph (2)(B) prior to the development of 
the report by the Secretary as described under para-
graph (6). 
(6) REPORT.—Not later than 180 days after 
the date of enactment of this Act, the Secretary— 
(A) shall, acting through the Commissioner 
of Food and Drugs and in consultation with the 
Director of the National Institutes of Health, 
and taking into consideration the recommenda-
tions of the Advisory Committee submitted 
under paragraph (5), submit to the Committee 
on Health, Education, Labor, and Pensions of 
the Senate and the Committee on Energy and 
Commerce of the House of Representatives, a 
report 
on 
the 
evolving 
science 
of 
pharmacogenomics as it relates to racial and 
ethnic minorities, including a review of the 
guidance of the Food and Drug Administration 
on the participation of racial and ethnic minori-
ties in clinical trials; and 
(B) shall ensure that such report is made 
publicly available in both paper and electronic 
formats. 
SEC. 303. EVALUATIONS BY THE INSTITUTE OF MEDICINE. 
(a) HEALTH DISPARITIES SUMMIT.— 
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(1) IN
GENERAL.—Not later than 270 days 
after the date of enactment of this Act, the Institute 
of Medicine shall convene a summit on health dis-
parities (referred to this section as the ‘‘Summit’’). 
(2) PURPOSE.—The purposes of the Summit in-
clude— 
(A) reviewing current activities of the Fed-
eral Government in addressing health and 
healthcare disparities as experienced by racial 
and ethnic minority populations, and the out-
comes of those activities, as practicable; and 
(B) assessing progress made since the 
2002 Institute of Medicine National Healthcare 
Disparities Report and the 2002 Institute of 
Medicine Unequal Treatment: Confronting Ra-
cial and Ethnic Disparities in Health Care. 
(3) AREAS OF FOCUS.—The Summit shall ex-
amine the activities of the Federal Government to 
reduce and eliminate health disparities, with a focus 
on— 
(A) education and training, including 
health professions programs that increase mi-
nority representation in medicine, the health 
professions, and health-related research careers; 
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(B) aggregated and disaggregated data col-
lection and analysis, including successful strate-
gies to collect and report data on minority small 
or sub-populations for whom data are limited; 
(C) coordination among agencies and de-
partments in addressing healthcare disparities; 
(D) research into the causes of and strate-
gies to eliminate health disparities; and 
(E) programs that increase access to care 
and improve health outcomes for health dis-
parity populations. 
(4) PARTICIPATION.—Summit participants shall 
include— 
(A) representatives of the Federal Govern-
ment; 
(B) experts with research experience in 
identifying and addressing healthcare dispari-
ties among racial and ethnic minority groups; 
and 
(C) representatives from community-based 
organizations, Indian tribal epidemiology cen-
ters, and nonprofit groups that address the 
issues of racial and ethnic minority groups. 
(5) SUMMIT
PROCEEDINGS.—Not later than 
180 days after the conclusion of the Summit, the 
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Secretary shall offer to enter into a contract with 
the Institute of Medicine to publish a report summa-
rizing the discussions of the Summit and review of 
current Federal activities to address healthcare dis-
parities for racial and ethnic minority groups. 
(b) NATIONAL PLAN TO ELIMINATE DISPARITIES.— 
(1) PLAN.—Not later than 2 years after the 
date of enactment of this Act, the Institute of Medi-
cine shall develop an evidence-based, strategic, na-
tional plan to eliminate disparities which shall— 
(A) include goals, interventions, and re-
sources needed to eliminate disparities; 
(B) establish a reasonable timetable to 
reach selected priorities; 
(C) inform and complement the National 
Plan to Improve Minority Health and Eliminate 
Health 
Disparities, 
pursuant 
to 
section 
1707(c)(2) of the Public Health Service Act (as 
added by section 501 of this Act); and 
(D) inform the development of criteria for 
evaluation of the effectiveness of programs au-
thorized under this Act (and the amendments 
made by this Act), pursuant to subsection (c). 
(2) REPORT.—The Secretary shall offer to 
enter into a contract with the Institute of Medicine 
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to publish the National Plan to Eliminate Dispari-
ties. 
(c) INSTITUTE OF MEDICINE EVALUATION.— 
(1) IN GENERAL.—Not later than 3 years after 
the date of enactment of this Act, the Secretary 
shall offer to enter into a contract with the Institute 
of Medicine to evaluate the effectiveness of the pro-
grams authorized under this Act (and the amend-
ments made by this Act) in addressing and reducing 
health disparities experienced by racial and ethnic 
minority groups. In making such an evaluation, the 
Institute of Medicine shall consult— 
(A) representatives of the Federal Govern-
ment; 
(B) experts with research and policy expe-
rience in identifying and addressing healthcare 
disparities among racial and ethnic minority 
groups; and 
(C) representatives from community-based 
organizations and nonprofit groups that address 
racial and ethnic minority health disparity 
issues. 
(2) REPORT.—Not later than 2 years after the 
Secretary enters into the contract under paragraph 
(1), the Institute of Medicine shall submit to the 
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Secretary and relevant committees of Congress a re-
port that contains the results of the evaluation de-
scribed under such subparagraph, and any rec-
ommendations of such Institute. 
(3) RESPONSE.—Not later than 180 days after 
the date the Institute of Medicine submits the report 
under this subsection, the Secretary shall publish a 
response to such recommendations, which shall be 
provided to the relevant committees of Congress and 
made publicly available through the Internet Clear-
inghouse under section 270 of the Public Health 
Service Act (as added by section 101). 
(d) HEALTH INFORMATION TECHNOLOGY.— 
(1) IN
GENERAL.—Not later than 180 days 
after the date of enactment of this Act, the Sec-
retary, acting through the Director of the National 
Library of Medicine and the head of the Office of 
the National Coordinator for Health Information 
Technology and in consultation with the Director of 
the Office of Mental Health and the Director of the 
Agency for Healthcare Research and Quality, shall 
offer to enter into a contract with the Institute of 
Medicine to study and make recommendations re-
garding the use of health information technology 
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100 
and bioinformatics to improve the health and 
healthcare of racial and ethnic minority groups. 
(2) STUDY.—The study under paragraph (1), 
with respect to increasing access and quality of 
healthcare for racial and ethnic minority groups, 
shall assess and make recommendations regarding— 
(A) effective applications of health infor-
mation technology, including telemedicine and 
telepsychiatry; 
(B) status of development of health infor-
mation technology standards that will permit 
healthcare information of the type required to 
support patient care; 
(C) inclusion of organizations with exper-
tise in minority health and health disparities in 
the development and implementation of health 
information technology policies, standards, ap-
plications, and monitoring; 
(D) priority areas for research to improve 
the dissemination, management, and use of bio-
medical knowledge that address identified and 
unmet needs; 
(E) educational and training needs and op-
portunities to assist health professionals under-
stand and apply health information technology; 
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101 
(F) ways to increase recruitment and re-
tention of racial and ethnic minorities into the 
field of medical informatics; and 
(G) ways to increase and ensure the pri-
vacy of health information technology. 
(3) REPORT.—Not later than 2 years after the 
Secretary enters into the contract under paragraph 
(1), the Institute of Medicine shall submit to the 
Secretary and relevant committees of Congress a re-
port that contains the findings and recommendations 
of this study. 
SEC. 304. NATIONAL CENTER FOR MINORITY HEALTH AND 
HEALTH DISPARITIES REAUTHORIZATION. 
Section 485E of the Public Health Service Act (42 
U.S.C. 287c–31) is amended— 
(1) by striking subsection (e) and inserting the 
following: 
‘‘(e) DUTIES OF THE DIRECTOR.— 
‘‘(1) INTERAGENCY COORDINATION OF MINOR-
ITY
HEALTH
AND
HEALTH
DISPARITIES
ACTIVI-
TIES.—With respect to minority health and health 
disparities, the Director of the Center shall plan, co-
ordinate, and evaluate research and other activities 
conducted or supported by the agencies of the Na-
tional Institutes of Health. In carrying out the pre-
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102 
ceding sentence, the Director of the Center shall 
evaluate the minority health and health disparity ac-
tivities of each of such agencies and shall provide for 
the timely periodic re-evaluation of such activities. 
‘‘(2) CONSULTATIONS.—The Director of the 
Center shall carry out this subpart (including devel-
oping and revising the plan and budget required in 
subsection (f)) in consultation with the Directors of 
the agencies (or a designee of the Directors) of the 
National Institutes of Health, with the advisory 
councils of the agencies, and with the advisory coun-
cil established under section (j). 
‘‘(3) COORDINATION OF ACTIVITIES.—The Di-
rector of the Center shall act as the primary Federal 
official with responsibility for coordinating all minor-
ity health disparities research and other health dis-
parities research conducted or supported by the Na-
tional Institutes of Health and shall— 
‘‘(A) represent the health disparities re-
search program of the National Institutes of 
Health including the minority health disparities 
research program at all relevant executive 
branch task forces, committees, and planning 
activities; 
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103 
‘‘(B) maintain communications with all rel-
evant Public Health Service agencies, including 
the Indian Health Service and various other de-
partments of the Federal Government, to en-
sure the timely transmission of information con-
cerning advances in minority health disparities 
research and other health disparities research 
between these various agencies for dissemina-
tion to affected communities and healthcare 
providers; 
‘‘(C) undertake research to further refine 
and develop the conceptual, definitional, and 
methodological issues involved in health dispari-
ties research and to further the understanding 
of the cause of disparities; and 
‘‘(D) engage with national and community- 
based organizations and health provider groups, 
led by and serving racial and ethnic minorities, 
to— 
‘‘(i) increase education, awareness, 
and participation with respect to the Cen-
ter’s activities and areas of research focus; 
and 
‘‘(ii) accelerate the translation of re-
search findings into programs including 
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104 
those carried out by community-based or-
ganizations.’’; 
(2) in subsection (f)— 
(A) by striking the subsection heading and 
inserting the following: 
‘‘(f) COMPREHENSIVE PLAN FOR RESEARCH; BUDG-
ET ESTIMATE; ALLOCATION OF APPROPRIATIONS.—’’; 
(B) in paragraph (1)— 
(i) by striking the matter preceding 
subparagraph (A) and subparagraph (A) 
and inserting the following: 
‘‘(1) IN GENERAL.—Subject to the provisions of 
this section and other applicable law, the Director of 
the Center, in consultation with the Director of 
NIH, the Directors of the other agencies of the Na-
tional Institutes of Health, and the advisory council 
established under subsection (j) shall— 
‘‘(A) annually review and revise a com-
prehensive plan (referred to in this section as 
‘the Plan’) and budget for the conduct and sup-
port of all minority health and health dispari-
ties research and other health disparities re-
search activities of the agencies of the National 
Institutes of Health that includes time-based 
targeted objectives with measurable outcomes 
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105 
and assure that the annual review and revision 
of the Plan uses an established trans-NIH proc-
ess subject to timely review, approval, and dis-
semination;’’; 
(ii) in subparagraph (D), by striking 
‘‘, with respect to amounts appropriated 
for activities of the Center,’’; 
(iii) by striking subparagraph (F) and 
inserting the following: 
‘‘(F) ensure that the Plan and budget are 
presented to and considered by the Director in 
a clear and timely process during the formula-
tion of the overall annual budget for the Na-
tional Institutes of Health;’’; 
(iv) by redesignating subparagraphs 
(G) and (H) as subparagraphs (I) and (J), 
respectively; and 
(v) by inserting after subparagraph 
(F), the following: 
‘‘(G) annually submit to Congress a report 
on the progress made with respect to the Plan; 
‘‘(H) creating and implementing a plan for 
the systematic review of research activities sup-
ported by the National Institutes of Health that 
are within the mission of both the Center and 
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107 
that are approved for funding by the agen-
cies;’’; and 
(C) in paragraph (2)— 
(i) in subparagraph (D), by striking 
‘‘and’’ at the end; 
(ii) in subparagraph (E), by striking 
the period and inserting ‘‘; and’’; and 
(iii) by adding at the end the fol-
lowing: 
‘‘(F) the number and type of personnel 
needs of the Center.’’; 
(3) in subsection (h)— 
(A) in paragraph (1), by striking ‘‘endow-
ments at centers of excellence under section 
736.’’ and inserting the following: ‘‘endowments 
at— 
‘‘(A) centers of excellence under section 
736; and 
‘‘(B) centers of excellence under section 
485F.’’; and 
(B) in paragraph (2)(A), by striking ‘‘aver-
age’’ and inserting ‘‘median’’; 
(4) by redesignating subsections (k) and (l) as 
subsections (m) and (n), respectively; 
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108 
(5) by inserting after subsection (j), the fol-
lowing: 
‘‘(k) REPRESENTATION OF MINORITIES AMONG RE-
SEARCHERS.—The Secretary, in collaboration with the Di-
rector of the Center, shall determine, by means of the col-
lection and reporting of aggregated and disaggregated 
data, the extent to which racial and ethnic minority groups 
are represented among senior physicians and scientists of 
the national research institutes and among physicians and 
scientists conducting research with funds provided by such 
institutes, and as appropriate, carry out activities to in-
crease the extent of such representation, including devel-
oping a pipeline of minority researchers interested in the 
study of health and health disparities, as well as attracting 
minority scientists in social and behavioral science fields 
who can bring their expertise to the study of health dis-
parities. 
‘‘(l) CANCER RESEARCH.—The Secretary, in collabo-
ration with the Director of the Center, shall designate and 
support a cancer prevention, control, and population 
science center to address the significantly elevated rate of 
morbidity and mortality from cancer in racial and ethnic 
minority populations. Such designated center shall be 
housed within an existing, stand-alone cancer center at a 
historically black college and university that has a demon-
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109 
strable commitment to and expertise in cancer research 
in the basic, clinical, and population sciences.’’; 
(6) in subsection (l)(1) (as so redesignated), by 
inserting before the semicolon the following: ‘‘, with 
a particular focus on evaluation of progress made to-
ward fulfillment of the goals of the Plan’’; and 
(7) by striking subsection (m) (as so redesig-
nated). 
SEC. 305. AUTHORIZATION OF APPROPRIATIONS. 
(a) SECTIONS 301, 302, AND 303.—There are au-
thorized to be appropriated such sums as may be nec-
essary for each of fiscal years 2008 through 2012, to carry 
out sections 301, 302, and 303 (and the amendments 
made by such sections). 
(b) SECTION 304.— 
(1) IN GENERAL.—There are authorized to be 
appropriated $240,000,000 for fiscal year 2008, 
such sums as may be necessary for each of fiscal 
years 2009 through 2012, to carry out section 304. 
(2) ALLOCATION OF FUNDS.—Subject to sec-
tion 485E of the Public Health Service Act (as 
amended by section 304) and other applicable law, 
the Director of the Center under such section 485E 
shall direct all amounts appropriated for activities 
under such section and in collaboration with the Di-
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110 
rector of National Institutes of Health and the di-
rectors of other institutes and centers of the Na-
tional Institutes of Health. 
(3) 
MANAGEMENT
OF
ALLOCATIONS.—All 
amounts allocated or expended for minority health 
and health disparities research activities under this 
subsection shall be reported programmatically to and 
approved by the Director of the Center under such 
section 485E, in accordance with the Plan described 
under such section 485E. 
TITLE IV—DATA COLLECTION, 
ANALYSIS, AND QUALITY 
SEC. 401. DATA COLLECTION, ANALYSIS, AND QUALITY. 
The Public Health Service Act (42 U.S.C. 201 et 
seq.) is amended by adding at the end the following: 
‘‘TITLE XXX—DATA COLLECTION, 
ANALYSIS, AND QUALITY 
‘‘SEC. 3001. DATA COLLECTION, ANALYSIS, AND QUALITY. 
‘‘(a) DATA COLLECTION AND REPORTING.—The Sec-
retary shall ensure that not later than 3 years after the 
date of enactment of the Minority Health Improvement 
and Health Disparity Elimination Act any ongoing or new 
federally conducted or supported health programs (includ-
ing surveys) achieve the— 
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‘‘(1) collection and reporting of data by race 
and ethnicity using, at a minimum, Office of Man-
agement and Budget standards in effect on the date 
of enactment of the Minority Health Improvement 
and Health Disparity Elimination Act; 
‘‘(2) collection and reporting of data by geo-
graphic location, socioeconomic position (such as em-
ployment, income, and education), primary language, 
and, when determined practicable by the Secretary, 
health literacy; 
‘‘(3) if practicable, collection and reporting of 
race and ethnicity data on additional population 
groups if such data can be aggregated into the min-
imum race and ethnicity data categories; and 
‘‘(4) collection and reporting of data at the 
smallest practicable geographic level such as State, 
local, or institutional levels if such data can be ag-
gregated. 
‘‘(b) DATA ANALYSIS AND DISSEMINATION.— 
‘‘(1) DATA ANALYSIS.— 
‘‘(A) IN
GENERAL.—For each federally 
conducted or supported program, the Secretary 
shall analyze data collected under subsection (a) 
to detect and monitor trends in disparities in 
health and healthcare, including those reported 
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118 
ity groups, and support healthcare inter-
ventions; 
‘‘(v) develop educational programs to 
inform patients, providers, purchasers, and 
other individuals served about the legality 
and importance of the collection, analysis, 
and reporting of data by race, ethnicity, 
socioeconomic position, geographic loca-
tion, and health literacy, for eliminating 
disparities in health; and 
‘‘(vi) evaluate the activities conducted 
under this paragraph. 
‘‘(d) TECHNICAL ASSISTANCE.—The Secretary may 
provide technical assistance to promote compliance with 
the data collection and reporting requirements of the Mi-
nority Health Improvement and Health Disparity Elimi-
nation Act. 
‘‘(e) PRIVACY AND SECURITY.—The Secretary shall 
ensure all appropriate privacy and security protections for 
health data collected, reported, analyzed, and dissemi-
nated pursuant to the Minority Health Improvement and 
Health Disparity Elimination Act. 
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—For the 
purpose of carrying out this section, there are authorized 
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119 
to be appropriated such sums as may be necessary for 
each of fiscal years 2008 through 2012.’’. 
TITLE 
V—LEADERSHIP, 
COL-
LABORATION, AND NATIONAL 
ACTION PLAN 
SEC. 501. OFFICE OF MINORITY HEALTH. 
Section 1707 of the Public Health Service Act (42 
U.S.C. 300u–6) is amended to read as follows: 
‘‘SEC. 1707. OFFICE OF MINORITY HEALTH. 
‘‘(a) DUTIES.—With respect to racial and ethnic mi-
nority groups, the Secretary, acting through the Deputy 
Assistant Secretary, shall carry out the following: 
‘‘(1) Coordinate and provide input on activities 
within the Public Health Service that relate to dis-
ease prevention, health promotion, health service de-
livery, health workforce, and research concerning ra-
cial and ethnic minority groups. The Secretary shall 
ensure that the heads of each of the agencies of the 
Service collaborate with the Deputy Assistant Sec-
retary on the development and conduct of such ac-
tivities. 
‘‘(2) Not later than 1 year after the date of en-
actment of the Minority Health Improvement and 
Health Disparity Elimination Act, develop and im-
plement a comprehensive Department-wide plan to 
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120 
improve minority health and eliminate health dis-
parities in the United States, to be known as the 
National Plan to Improve Minority Health and 
Eliminate Health Disparities, (referred to in this 
section as the ‘National Plan’). With respect to de-
velopment and implementation of the National Plan, 
the Secretary shall carry out the following: 
‘‘(A) Consult with the following: 
‘‘(i) The Director of the Centers for 
Disease Control and Prevention. 
‘‘(ii) The Director of the National In-
stitutes of Health. 
‘‘(iii) The Director of the National 
Center on Minority Health and Health 
Disparities of the National Institutes of 
Health. 
‘‘(iv) The Director of the Agency for 
Healthcare Research and Quality. 
‘‘(v) The National Coordinator for 
Health Information Technology. 
‘‘(vi) The Administrator of the Health 
Resources and Services Administration. 
‘‘(vii) The Administrator of the Cen-
ters for Medicare & Medicaid Services. 
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121 
‘‘(viii) The Director of the Office for 
Civil Rights. 
‘‘(ix) The Secretary of Veterans Af-
fairs. 
‘‘(x) The Administrator of the Sub-
stance Abuse and Mental Health Services 
Administration. 
‘‘(xi) The Secretary of Defense. 
‘‘(xii) The Commissioner of the Food 
and Drug Administration. 
‘‘(xiii) The Director of the Indian 
Health Service. 
‘‘(xiv) The Secretary of Education. 
‘‘(xv) The Secretary of Labor. 
‘‘(xvi) The heads of other public and 
private entities, as determined appropriate 
by the Secretary. 
‘‘(B) Review and integrate existing infor-
mation and recommendations as appropriate, 
such as Healthy People 2010, Institute of Medi-
cine studies, and Surgeon General Reports. 
‘‘(C) Ensure inclusion of measurable short- 
and long-range goals and objectives, a descrip-
tion of the means for achieving such goals and 
objectives, and a designated date by which such 
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122 
goals and objectives are expected to be 
achieved. 
‘‘(D) Ensure that all amounts appro-
priated for such activities are expended in ac-
cordance with the National Plan. 
‘‘(E) Review the National Plan on at least 
an annual basis, and report to the public and 
appropriate 
committees 
of 
Congress 
on 
progress. 
‘‘(F) Revise such Plan as appropriate. 
‘‘(G) Ensure that the National Plan will 
serve as a binding statement of policy with re-
spect to the agencies’ activities related to im-
proving health and eliminating disparities in 
health and healthcare. 
‘‘(3) Work with Federal agencies and depart-
ments outside of the Department of Health and 
Human Services as appropriate to maximize re-
sources available to increase understanding about 
why disparities exist, and effective ways to improve 
health and eliminate health disparities. 
‘‘(4) In cooperation with the appropriate agen-
cies, support research, demonstrations, and evalua-
tions to test new and innovative models for— 
‘‘(A) expanding healthcare access; 
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123 
‘‘(B) improving healthcare quality; 
‘‘(C) increasing educational opportunity in 
the field of healthcare; and 
‘‘(D) increasing the capacity of racial and 
ethnic minority organizations to improve health 
and eliminate health disparities. 
‘‘(5) Develop mechanisms that support better 
dissemination of information, education, prevention, 
and service delivery to individuals from disadvan-
taged backgrounds, including individuals who are 
members of racial or ethnic minority groups. 
‘‘(6) Increase awareness of disparities in 
healthcare, and knowledge and understanding of 
health risk factors, and ways to reduce and eliminate 
health disparities, among healthcare providers, 
health plans, and the public. 
‘‘(7) Advise in matters related to the develop-
ment, implementation, and evaluation of health pro-
fessions education on improving healthcare outcomes 
and decreasing disparities in healthcare outcomes, 
with a focus on cultural competence. 
‘‘(8) Assist healthcare professionals, community 
and advocacy organizations, academic medical cen-
ters and other health entities and public health de-
partments in the design and implementation of pro-
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124 
grams that will improve health outcomes by 
strengthening the patient-provider relationship. 
‘‘(9) Carry out programs to improve access to 
healthcare services and to improve the quality of 
healthcare services for individuals with low health 
literacy. 
‘‘(10) Facilitate the classification and collection 
of healthcare data to allow for ongoing analysis to 
identify and determine the causes of disparities and 
the monitoring of progress toward improving health 
and eliminating health disparities. 
‘‘(11) Ensure that the National Center for 
Health Statistics collects data on the health status 
of each racial or ethnic minority group pursuant to 
section 2901. 
‘‘(12) Support a national minority health re-
source center to carry out the following: 
‘‘(A) Facilitate the exchange of informa-
tion regarding matters relating to health infor-
mation and health promotion, preventive health 
services, and education in the appropriate use 
of healthcare. 
‘‘(B) Facilitate access to such information. 
‘‘(C) Assist in the analysis of issues and 
problems relating to such matters. 
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125 
‘‘(D) Provide technical assistance with re-
spect to the exchange of such information (in-
cluding facilitating the development of materials 
for such technical assistance). 
‘‘(13) Support a center for cultural and lin-
guistic competence to carry out the following: 
‘‘(A) With respect to individuals who lack 
proficiency in speaking the English language, 
enter into contracts with public and nonprofit 
private providers of primary health services for 
the purpose of increasing the access of such in-
dividuals to such services by developing and 
carrying out programs to improve health lit-
eracy and cultural competency. 
‘‘(B) Carry out programs to improve ac-
cess to healthcare services for individuals with 
limited proficiency in speaking the English lan-
guage. Activities under this subparagraph shall 
include 
developing 
and 
evaluating 
model 
projects. 
‘‘(14) At the discretion of the Director, support 
a center or program for the improvement of geo-
graphic minority health and health disparities to 
carry out the following for rural disadvantaged mi-
nority populations: 
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126 
‘‘(A) Increase awareness on health care 
issues impacting and effective interventions for 
these populations. 
‘‘(B) Increase access to quality healthcare. 
‘‘(C) Increase access to quality healthcare 
personnel available to provide services to these 
populations. 
‘‘(D) Improve health care outcomes. 
‘‘(E) Develop a model that can be rep-
licated to address national policies and pro-
grams to improve the health of these rural dis-
advantaged minority communities. This model 
should include research, health services, edu-
cation/awareness, and health information com-
ponents, with priority given to existing pro-
grams or programs in areas with the most need 
and have a Community Advisory Board to pro-
vide recommendations on projects to benefit the 
health of minority populations. 
‘‘(15) Enter into interagency agreements with 
other agencies of the Public Health Service, as ap-
propriate. 
‘‘(16) Collaborate with the Office for Civil 
Rights to— 
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127 
‘‘(A) assist healthcare providers with appli-
cation of guidance and directives regarding 
healthcare for racial and ethnic minority 
groups, including— 
‘‘(i) reviewing cases that have been 
closed without a finding of discrimination 
with the Office of Inspector General and 
the Office for Civil Rights to determine if 
there exists a pattern or practice of activi-
ties that could lead to discrimination, and 
if such a pattern or practice is identified, 
provide technical assistance or education, 
as applicable, to the relevant provider or to 
a group of providers located within a par-
ticular geographic area; 
‘‘(ii) biannually publishing informa-
tion on cases filed with the Office for Civil 
Rights which have resulted in a finding of 
discrimination, including the name and lo-
cation of the entity found to have discrimi-
nated, and any findings and agreements 
entered into between the Office for Civil 
Rights and the entity; and 
‘‘(iii) monitoring and analysis of 
trends in cases reported to the Office for 
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128 
Civil Rights to ensure that the Office of 
Minority Health acts to educate and assist 
healthcare providers as necessary; and 
‘‘(B) provide technical assistance or edu-
cation, as applicable, to the relevant provider or 
to a group of providers located within a par-
ticular geographic area. 
‘‘(17) Promote and expand efforts to increase 
racial and ethnic minority enrollment in clinical 
trials. 
‘‘(18) Establish working groups— 
‘‘(A) to examine and report recommenda-
tions to the Secretary regarding— 
‘‘(i) emergency preparedness and re-
sponse for underserved populations; 
‘‘(ii) development and implementation 
of health information technology that can 
assist providers to deliver culturally com-
petent healthcare; 
‘‘(iii) outreach and education of health 
disparity groups about new Federal health 
programs, as appropriate, including the 
programs under part D of title XVIII of 
the Social Security Act and chronic care 
management programs under the Medicare 
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129 
Prescription 
Drug, 
Improvement, 
and 
Modernization Act of 2003 (and the 
amendments made by such Act); 
‘‘(iv) leadership development in public 
health; 
‘‘(v) the training of behavioral and so-
cial science researchers to address health 
disparities; and 
‘‘(vi) other emerging health issues at 
the discretion of the Secretary; and 
‘‘(B) that include representation from the 
relevant health agencies, centers and offices, as 
well as public and private entities as appro-
priate. 
‘‘(b) ADVISORY COMMITTEE.— 
‘‘(1) IN GENERAL.—The Secretary shall estab-
lish an advisory committee to be known as the Advi-
sory Committee on Minority Health (in this sub-
section referred to as the ‘Committee’). 
‘‘(2) DUTIES.—The Committee shall provide 
advice to the Deputy Assistant Secretary carrying 
out this section, including advice on the development 
of goals and specific program activities under sub-
section (c) for racial and ethnic minority groups and 
health disparity population. 
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130 
‘‘(3) CHAIR.—The chairperson of the Com-
mittee shall be selected by the Secretary from among 
the members of the voting members of the Com-
mittee. The term of office of the chairperson shall be 
2 years. 
‘‘(4) COMPOSITION.— 
‘‘(A) The Committee shall be composed of 
12 voting members appointed in accordance 
with subparagraph (B), and nonvoting, ex-offi-
cio members designated in subparagraph (C). 
‘‘(B) The voting members of the Com-
mittee shall be appointed by the Secretary from 
among individuals who are not officers or em-
ployees of the Federal Government and who 
have expertise regarding issues of minority 
health and health disparities. Racial and ethnic 
minority groups shall be appropriately rep-
resented among such members. 
‘‘(C) The nonvoting, ex officio members of 
the Committee shall be such officials of the De-
partment of Health and Human Services, in-
cluding the Director of the Office of Minority 
Health and the Office for Civil Rights, and 
other officials as the Secretary determines to be 
appropriate. 
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132 
the Committee. Such compensation may not be in an 
amount in excess of the daily equivalent of the an-
nual maximum rate of basic pay payable under the 
General Schedule for positions above GS–15 under 
title 5, United States Code. 
‘‘(c) CERTAIN
REQUIREMENTS
REGARDING
DU-
TIES.— 
‘‘(1) RECOMMENDATIONS
REGARDING
LAN-
GUAGE.— 
‘‘(A) 
PROFICIENCY
IN
SPEAKING 
ENGLISH.—The Deputy Assistant Secretary 
shall consult with the Director of the Office of 
International and Refugee Health, the Director 
of the Office for Civil Rights, and the Directors 
of other appropriate departmental entities re-
garding recommendations for carrying out ac-
tivities under subsection (c)(9). 
‘‘(B) HEALTH
PROFESSIONS
EDUCATION 
REGARDING HEALTH DISPARITIES.—The Dep-
uty Assistant Secretary shall carry out the du-
ties under subsection (a)(7) in collaboration 
with appropriate personnel of the Department 
of Health and Human Services, other Federal 
agencies, and other offices, centers, and institu-
tions, as appropriate, that have responsibilities 
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133 
under the Minority Health and Health Dispari-
ties Research and Education Act of 2000. 
‘‘(2) EQUITABLE ALLOCATION REGARDING AC-
TIVITIES.—In carrying out subsection (b), the Sec-
retary shall ensure that services provided under such 
subsection are equitably allocated among all groups 
served under this section by the Secretary. 
‘‘(3) CULTURAL COMPETENCY OF SERVICES.— 
The Secretary shall ensure that information and 
services provided pursuant to subsection (c) consider 
the unique cultural or linguistic issues facing such 
populations and are provided in the language, edu-
cational, and cultural context that is most appro-
priate for the individuals for whom the information 
and services are intended. 
‘‘(4) AGENCY COORDINATION.—In carrying out 
subsection (c), the Secretary shall ensure that new 
or existing agency offices of minority health report 
current and proposed activities to the Deputy Assist-
ant Secretary, and provide, to the extent practicable, 
an opportunity for input in the development of such 
activities by the Deputy Assistant Secretary. 
‘‘(d) GRANTS
AND CONTRACTS REGARDING DU-
TIES.— 
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134 
‘‘(1) IN GENERAL.—In carrying out subsection 
(c), the Secretary acting through the Deputy Assist-
ant Secretary, may make awards of grants, coopera-
tive agreements, and contracts to public and non-
profit private entities. 
‘‘(2) PROCESS
FOR
MAKING
AWARDS.—The 
Deputy Assistant Secretary shall ensure that awards 
under paragraph (1) are made, to the extent prac-
ticable, only on a competitive basis, and that a grant 
is awarded for a proposal only if the proposal has 
been recommended for such an award through a 
process of peer review. 
‘‘(3) EVALUATION AND DISSEMINATION.—The 
Deputy Assistant Secretary, directly or through con-
tracts with public and private entities, shall provide 
for evaluations of projects carried out with awards 
made under paragraph (1) during the preceding 2 
fiscal years. The report shall be included in the re-
port required under subsection (g) for the fiscal year 
involved. 
‘‘(e) STATE OFFICES OF MINORITY HEALTH.—The 
Deputy Assistant Secretary shall assist the voluntary es-
tablishment and functions of State offices of minority 
health in order to expand and coordinate State efforts to 
improve the health of racial and ethnic minority groups. 
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135 
‘‘(1) PRIORITIES.—The Deputy Assistant Sec-
retary may facilitate, with respect to racial and eth-
nic minority groups— 
‘‘(A) integration and coordination of State 
and national efforts, including those pertaining 
to the National Plan pursuant to subsection 
(b); 
‘‘(B) strategic plan development within 
States to assess and respond to local health 
concerns; 
‘‘(C) education and engagement of key 
stakeholders within States, including represent-
atives from public health agencies, hospitals, 
clinics, provider groups, elected officials, com-
munity-based organizations, advocacy groups, 
media, and the private sector; 
‘‘(D) development and implementation of 
accepted standards, core competencies, and 
minimum infrastructure requirements for State 
offices; 
‘‘(E) access to State level health data for 
racial and ethnic minority groups, which may 
include State data collection and analysis; 
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136 
‘‘(F) development, implementation, and 
evaluation of State programs and policies, as 
appropriate; 
‘‘(G) 
communication 
and 
networking 
among States to share effective policies, pro-
grams and practices with respect to increasing 
access and quality of care; 
‘‘(H) recognition and reporting of State 
successes and challenges; and 
‘‘(I) identification of Federal grant pro-
grams and other funding for which States could 
apply to carry out health improvement activi-
ties. 
‘‘(2) RESOURCES.—The Deputy Assistant Sec-
retary may provide grants and technical assistance 
for the voluntary establishment or capacity develop-
ment of State offices of minority health. 
‘‘(3) COLLABORATION.—To the extent prac-
ticable, the Deputy Assistant Secretary may encour-
age and facilitate collaboration between State offices 
of minority health and State offices addressing the 
needs of other health disparity or disadvantaged 
populations, including offices of rural health. 
‘‘(4) DEFINITION.—For the purpose of this 
subsection, ‘State offices of minority health’ include 
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