I 
113TH CONGRESS 
1ST SESSION H. R. 2101 
To amend the Public Health Service Act with respect to eating disorders, 
and for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
MAY 22, 2013 
Mr. DEUTCH (for himself, Mr. CONNOLLY, Mr. CONYERS, Mr. ELLISON, Ms. 
FRANKEL of Florida, Mr. HASTINGS of Florida, Mr. JOHNSON of Geor-
gia, Mrs. MCCARTHY of New York, Mr. MORAN, Mr. NOLAN, Ms. PIN-
GREE of Maine, Mr. POLIS, Ms. SCHWARTZ, Ms. WASSERMAN SCHULTZ, 
Mrs. CAROLYN B. MALONEY of New York, and Mr. MURPHY of Florida) 
introduced the following bill; which was referred to the Committee on En-
ergy and Commerce, and in addition to the Committees on Ways and 
Means, Oversight and Government Reform, and Education and the Work-
force, for a period to be subsequently determined by the Speaker, in each 
case for consideration of such provisions as fall within the jurisdiction of 
the committee concerned 
A BILL 
To amend the Public Health Service Act with respect to 
eating disorders, and for other purposes. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Federal Response to 
Eliminate Eating Disorders Act of 2013’’. 
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SEC. 2. TABLE OF CONTENTS. 
The table of contents of this Act is as follows: 
Sec. 1. Short title. 
Sec. 2. Table of contents. 
Sec. 3. Findings. 
Sec. 4. Definition. 
TITLE I—RESEARCH 
Sec. 101. Activities to improve eating disorder-related research and funding. 
Sec. 102. Eating disorders surveillance and research program. 
TITLE II—EDUCATION AND PREVENTION 
Sec. 201. Study of mandatory BMI reporting in school. 
Sec. 202. Training and education. 
Sec. 203. Health professional education and training. 
Sec. 204. Education and training for all health professionals. 
Sec. 205. Education and training for school and higher education professionals. 
Sec. 206. Eating disorder research and report. 
Sec. 207. Public service announcements. 
Sec. 208. Sense of Congress. 
TITLE III—TREATMENT 
Sec. 301. Coverage for treatment for eating disorders under group health plans, 
individual health insurance coverage, and FEHBP. 
TITLE IV—IMPROVING AVAILABILITY AND ACCESS TO 
TREATMENT 
Sec. 401. Medicaid coverage for eating disorder treatment services. 
Sec. 402. Grants to support patient advocacy. 
SEC. 3. FINDINGS. 
The Congress finds as follows: 
(1) Risk of death among individuals with ano-
rexia nervosa is 18 times greater than their same 
age peers without anorexia. 
(2) Health consequences such as osteoporosis 
(brittle bones), gastrointestinal complications, and 
dental problems are significant health and financial 
burdens throughout life. 
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logical problems, including depression, substance 
abuse, and suicide. Eating disorders also develop in 
younger children and adults, compromising health 
and daily functioning. For children 12 years of age 
and younger, hospitalizations for eating disorders in-
creased by 119 percent between 1999 and 2006. 
(14) Eating disorders are found across races, 
ethnicities, and socioeconomic groups in the United 
States. White females are more likely to suffer from 
anorexia, while African-American girls are especially 
vulnerable to developing eating disorders that involve 
binge eating. Body dissatisfaction in young girls has 
been shown in White, African-American, Hispanic, 
and Asian girls. 
SEC. 4. DEFINITION. 
In this Act, the term ‘‘eating disorder’’ includes ano-
rexia nervosa, bulimia nervosa, binge eating disorder, and 
eating disorders not otherwise specified (EDNOS), as de-
fined in the fifth edition of ‘‘Diagnostic and Statistical 
Manual of Mental Disorders’’ or, if applicable, the most 
recent successor edition. 
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TITLE I—RESEARCH 
SEC. 101. ACTIVITIES TO IMPROVE EATING DISORDER-RE-
LATED RESEARCH AND FUNDING. 
Title IV of the Public Health Service Act (42 U.S.C. 
281 et seq.) is amended by adding at the end the fol-
lowing: 
‘‘PART J—EATING DISORDER-RELATED 
ACTIVITIES 
‘‘SEC. 499A. AUTHORITY OF THE DIRECTOR OF THE NA-
TIONAL INSTITUTES OF HEALTH RELATING 
TO EATING DISORDERS. 
‘‘(a) IDENTIFYING TOTAL EXPENDITURES ON EAT-
ING DISORDERS.—The Director of NIH, in coordination 
with the National Institute of Mental Health, the Office 
of Research on Women’s Health, and other institutes of 
the National Institutes of Health, shall identify the total 
amount of expenditures, both intramural and extramural, 
by the National Institutes of Health for eating disorders 
for each of fiscal years 2011 and 2012. 
‘‘(b) BUDGET FOR EATING DISORDERS RESEARCH 
AND COORDINATION OF ACTIVITIES AND PROGRAMS.— 
The Director of NIH, based on the strategic plan devel-
oped under subsection (c), shall— 
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‘‘(1) develop and oversee the implementation of 
a scientifically justified budget for research on eat-
ing disorders at the National Institutes of Health; 
‘‘(2) coordinate all research activities and pro-
grams on eating disorders at the institutes, centers, 
and divisions of the National Institutes of Health; 
and 
‘‘(3) evaluate all such activities and programs. 
‘‘(c) STRATEGIC PLAN FOR EATING DISORDERS RE-
SEARCH.— 
‘‘(1) IN GENERAL.—Not later than 1 year after 
the date of the enactment of this section, the Direc-
tor of NIH shall develop, in consultation with lead-
ing eating disorder researchers, and oversee the im-
plementation of a comprehensive, long-range plan 
for the conduct and support of research on eating 
disorders by the institutes, centers, and divisions of 
the National Institutes of Health. 
‘‘(2) REQUIREMENTS.—The plan developed 
under paragraph (1) shall— 
‘‘(A) be updated on an annual basis; 
‘‘(B) identify critical scientific questions 
related to eating disorders and establish prior-
ities among such questions; 
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‘‘(C) based on the priorities established 
under subparagraph (B), specify the short- and 
long-range objectives to be achieved, and esti-
mate the resources needed to achieve these ob-
jectives; 
‘‘(D) evaluate the sufficiency of existing re-
search programs on eating disorders to meet 
the objectives specified under subparagraph (C), 
and establish objectives, timelines, and criteria 
for evaluating future research programs; 
‘‘(E) be coordinated with the activities of 
the Centers of Excellence receiving funds under 
section 499B(b); and 
‘‘(F) make recommendations for changes 
to existing research programs on eating dis-
orders. 
‘‘(d) BUDGETARY AUTHORITY.— 
‘‘(1) IN
GENERAL.—The Director of NIH 
shall— 
‘‘(A) in accordance with the strategic plan 
developed under subsection (c), annually pre-
pare and submit to Congress a scientifically jus-
tified budget estimate for research on eating 
disorders to be conducted within the agencies of 
the National Institutes of Health, which shall 
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include the amount of funds that will be re-
quired for— 
‘‘(i) the continued funding of ongoing 
discretionary program initiatives at the in-
stitutes, centers, and divisions of the Na-
tional Institutes of Health; and 
‘‘(ii) the funding of new and com-
plementary program initiatives; and 
‘‘(B) receive all research funds for eating 
disorders described in subparagraph (A), and 
allocate those funds to the institutes, centers, 
and divisions of the National Institutes of 
Health. 
‘‘(2) EFFECTIVE
DATE.—Paragraph (1)(B) 
shall become effective in the fiscal year following the 
submission of the first eating disorder budget de-
scribed in paragraph (1)(A). 
‘‘(e) EVALUATION AND REPORT.— 
‘‘(1) EVALUATION.—The Director of NIH shall 
evaluate the effect of this section on the planning 
and coordination of research programs on eating dis-
orders at the institutes, centers, and divisions of the 
National Institutes of Health, and the extent to 
which funding mandated under this section has fol-
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lowed the recommendation of the strategic plan de-
veloped under subsection (c). 
‘‘(2) REPORT.—Not later than 1 year after the 
date of enactment of this section, the Director of 
NIH shall prepare and submit to the Committee on 
Energy and Commerce and the Committee on Ap-
propriations of the House of Representatives, and 
the Committee on Health, Education, Labor, and 
Pensions and the Committee on Appropriations of 
the Senate, a report based on the evaluation de-
scribed in paragraph (1). 
‘‘(f) DEFINITIONS.—In this part, the term ‘eating 
disorder’ includes anorexia nervosa, bulimia nervosa, binge 
eating disorder, and eating disorders not otherwise speci-
fied (EDNOS), as defined in the fifth edition of ‘Diag-
nostic and Statistical Manual of Mental Disorders’ or, if 
applicable, the most recent successor edition. 
‘‘SEC. 499B. EXPANSION, INTENSIFICATION, AND COORDI-
NATION OF ACTIVITIES OF NATIONAL INSTI-
TUTES OF HEALTH WITH RESPECT TO RE-
SEARCH ON EATING DISORDERS. 
‘‘(a) IN GENERAL.— 
‘‘(1) EXPANSION OF ACTIVITIES.—The Director 
of NIH shall expand, intensify, and coordinate the 
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activities of the National Institutes of Health with 
respect to research on eating disorders. 
‘‘(2) ADMINISTRATION OF PROGRAM; COORDI-
NATION AMONG AGENCIES.—The Director of NIH 
shall carry out this section acting through the Direc-
tor of the National Institute of Mental Health, and 
in collaboration with the Director of the Eunice 
Kennedy Shriver National Institute of Child Health 
and Human Development, the Director of the Na-
tional Institute of Diabetes and Digestive and Kid-
ney Diseases, the Director of the Office of Research 
on Women’s Health, and any other agencies or of-
fices of the National Institutes of Health that the 
Director determines appropriate. 
‘‘(3) TASK FORCE.— 
‘‘(A) ESTABLISHMENT.—Before making 
grants under subsection (b) for Centers of Ex-
cellence, the Director of NIH shall establish a 
task force (in this paragraph referred to as the 
‘task force’) consisting of— 
‘‘(i) representatives of the institutes, 
centers, and divisions of the National Insti-
tutes of Health, as determined appropriate 
by the Director; 
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‘‘(ii) eating disorders researchers, cli-
nicians, and patient advocacy groups; and 
‘‘(iii) the general public. 
‘‘(B) DUTIES.—The task force shall— 
‘‘(i) assist researchers in developing 
applications and applying for grants and 
contracts to be awarded for Centers of Ex-
cellence under subsection (b); 
‘‘(ii) conduct a thorough examination 
of the field of eating disorders, create a list 
of priorities for eating disorders research, 
and develop a matrix of action items for 
such research; and 
‘‘(iii) conduct meetings to address 
issues with respect to eating disorders re-
search, including guiding principles of Cen-
ters of Excellence under subsection (b); de-
velopment of strategic research priorities; 
strategies for recruiting new scientists into 
the field of eating disorders and providing 
them with high-quality training; priorities 
and best practices for basic research, clin-
ical research, treatment research, and pre-
vention research; and development of a re-
search infrastructure nationwide. 
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‘‘(b) CENTERS OF EXCELLENCE.— 
‘‘(1) GRANTS.— 
‘‘(A) IN GENERAL.—In carrying out sub-
section (a)(1), the Director of NIH shall award 
grants and contracts to public or nonprofit pri-
vate entities, including universities, to— 
‘‘(i) conduct research on eating dis-
orders designed to improve understanding 
of the etiology, early identification, preven-
tion, best treatment, medical and psycho-
logical sequelae of and recovery from eat-
ing disorders; 
‘‘(ii) conduct training to perform such 
research; and 
‘‘(iii) pay all or part of the cost of 
planning, establishing, improving, and pro-
viding basic operating support for such re-
search and training. 
‘‘(B) CENTERS
OF
EXCELLENCE.—For 
purposes of this section, an entity that receives 
a grant or contract under subparagraph (A) 
shall be referred to as a Center of Excellence. 
‘‘(2) RESEARCH.— 
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‘‘(A) IN GENERAL.—Each Center of Excel-
lence shall conduct basic research, clinical re-
search, or both into eating disorders. 
‘‘(B) REQUIREMENTS.—The research con-
ducted by a Center of Excellence pursuant to 
subparagraph (A)— 
‘‘(i) shall be designed to improve un-
derstanding of the etiology, early identi-
fication, prevention, best treatment, med-
ical and psychological sequelae of and re-
covery from eating disorders; 
‘‘(ii) shall be conducted in the fields of 
basic, clinical, prevention, and intervention 
sciences; and 
‘‘(iii) should include— 
‘‘(I) 
studies 
clarifying 
the 
nosology and assessment of eating dis-
orders; 
‘‘(II) investigations to determine 
the biological, psychosocial, and be-
havioral risk factors that might ap-
pear in early childhood; 
‘‘(III) studies of promising treat-
ments for eating disorders; 
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‘‘(IV) evaluation of prevention 
programs for eating disorders; and 
‘‘(V) studies of the medical, psy-
chological, and social sequelae of eat-
ing disorders. 
‘‘(C) EQUAL
REPRESENTATION
OF
RE-
SEARCH AREAS.—In awarding grants and con-
tracts under paragraph (1), the Director of 
NIH shall, to the extent practicable and appro-
priate, ensure that each of the research areas 
required by clauses (i) and (ii) of subparagraph 
(B) are equally represented. 
‘‘(3) TRAINING
TO
PERFORM
EATING
DIS-
ORDERS
RESEARCH.—Each Center of Excellence 
shall provide at least 3 positions for doctoral level 
and post-doctoral level research trainees. 
‘‘(4) SERVICES FOR PATIENTS.— 
‘‘(A) IN
GENERAL.—A Center of Excel-
lence may expend amounts provided under a 
grant or contract under such paragraph to 
carry out a program to make individuals aware 
of opportunities to participate as subjects in re-
search conducted by such Centers. 
‘‘(B) REFERRALS AND COSTS.—A program 
carried out under subparagraph (A) may, in ac-
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cordance with such criteria as the Director of 
NIH may establish, provide to the subjects de-
scribed in such subparagraph, referrals for 
health, mental health, and other services, and 
such patient care costs as are required for re-
search. 
‘‘(C) AVAILABILITY AND ACCESS.—The ex-
tent to which a Center of Excellence can dem-
onstrate availability and access to clinical serv-
ices shall be considered by the Director of NIH 
in decisions about awarding grants or contracts 
to applicants that meet the scientific criteria for 
funding under this section. 
‘‘(5) COORDINATION OF CENTERS OF EXCEL-
LENCE.— 
‘‘(A) IN GENERAL.—The Director of the 
National Institute of Mental Health shall, as 
appropriate, provide for the coordination of in-
formation among Centers of Excellence and en-
sure regular communication between such Cen-
ters. 
‘‘(B) PERIODIC
REPORTS.—The Director 
of the National Institute of Mental Health may 
require the periodic preparation of reports on 
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