IB 
Union Calendar No. 371 
111TH CONGRESS 
2D SESSION 
H. R. 2408 
[Report No. 111–631] 
To expand the research and awareness activities of the National Institute 
of Arthritis and Musculoskeletal and Skin Diseases and the Centers 
for Disease Control and Prevention with respect to scleroderma, and 
for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
MAY 14, 2009 
Mrs. CAPPS (for herself, Mr. EHLERS, Mr. HINCHEY, Mr. MASSA, Mr. 
MCGOVERN, Mr. MOORE of Kansas, Mr. MURPHY of Connecticut, Ms. 
LINDA T. SA´NCHEZ of California, Mr. STEARNS, and Mr. TONKO) intro-
duced the following bill; which was referred to the Committee on Energy 
and Commerce 
SEPTEMBER 28, 2010 
Additional sponsors: Ms. ROYBAL-ALLARD, Mr. HOEKSTRA, Mr. ISRAEL, Mrs. 
MILLER of Michigan, Mrs. BONO MACK, Mr. UPTON, Ms. WOOLSEY, Mr. 
MAFFEI, Mr. HALL of Texas, Mr. WEXLER, Mr. PIERLUISI, Mrs. 
MCCARTHY of New York, Ms. KILPATRICK of Michigan, Mr. CONYERS, 
Mr. PETERS, Mr. KILDEE, Mr. MCCOTTER, Mr. LINCOLN DIAZ-BALART 
of Florida, Mr. HARE, Mr. BISHOP of New York, Mr. CAMP, Mrs. 
CAPITO, Mr. HALL of New York, Mr. MCMAHON, Mr. ARCURI, Mr. 
SERRANO, Mr. ACKERMAN, Mr. CROWLEY, Mr. KING of New York, Mr. 
NADLER of New York, Mr. ENGEL, Mr. MURPHY of New York, Mr. GOR-
DON of Tennessee, Mrs. MALONEY, Mr. RYAN of Ohio, Mr. MCHUGH, 
Mr. TOWNS, Ms. ROS-LEHTINEN, Mr. RANGEL, Mr. TERRY, Mrs. 
LOWEY, Ms. BALDWIN, Mr. ROTHMAN of New Jersey, Mr. MEEKS of 
New York, Mr. SMITH of New Jersey, Mr. SCHAUER, Mr. MCCARTHY of 
California, Mr. NUNES, Mr. CALVERT, Mr. CULBERSON, Mr. WEINER, 
Mr. SESTAK, Mr. LUETKEMEYER, Mr. REYES, Ms. SUTTON, Mr. 
MCKEON, Ms. ZOE LOFGREN of California, Mr. TIERNEY, Mr. DAVIS of 
Illinois, Ms. SLAUGHTER, Mr. HIGGINS, Ms. CLARKE, Ms. CHU, Ms. 
VELA´ZQUEZ, Mr. DENT, Mr. ROGERS of Michigan, Mr. DINGELL, Mrs. 
NAPOLITANO, Mr. ROSS, Mr. HASTINGS of Florida, Mr. OWENS, Mr. 
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ORTIZ, Mr. MEEK of Florida, Mr. LATOURETTE, Mr. COHEN, Mr. 
COURTNEY, Mr. CARNEY, Mr. LARSON of Connecticut, Ms. RICHARDSON, 
Mr. SIRES, Mr. LOBIONDO, Mr. FILNER, Mr. LEE of New York, Mr. 
HIMES, Mr. BOCCIERI, Ms. DELAURO, Mr. GONZALEZ, Mr. CUMMINGS, 
Mr. WALDEN, Mr. OLVER, Mrs. CHRISTENSEN, Mr. MORAN of Virginia, 
Mrs. DAHLKEMPER, Mr. FRANK of Massachusetts, Mr. PATRICK J. MUR-
PHY of Pennsylvania, and Mr. PLATTS 
SEPTEMBER 28, 2010 
Reported with an amendment, committed to the Committee of the Whole 
House on the State of the Union, and ordered to be printed 
[Strike out all after the enacting clause and insert the part printed in italic] 
[For text of introduced bill, see copy of bill as introduced on May 14, 2009] 
A BILL 
To expand the research and awareness activities of the Na-
tional Institute of Arthritis and Musculoskeletal and Skin 
Diseases and the Centers for Disease Control and Pre-
vention with respect to scleroderma, and for other pur-
poses. 
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Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Scleroderma Research 
and Awareness Act of 2010’’. 
SEC. 2. NATIONAL INSTITUTE OF ARTHRITIS AND MUS-
CULOSKELETAL 
AND 
SKIN 
DISEASES; 
SCLERODERMA RESEARCH EXPANSION. 
Part B of title IV of the Public Health Service Act 
(42 U.S.C. 284 et seq.) is amended by adding at the end 
the following: 
‘‘SEC. 409K. SCLERODERMA RESEARCH. 
‘‘The Director of NIH may expand, intensify, and co-
ordinate the activities of the National Institutes of Health 
with respect to scleroderma, with particular emphasis on 
the following: 
‘‘(1) Research focused on the etiology of 
scleroderma and the development of new treatment 
options. 
‘‘(2) Clinical research to evaluate new treatments 
options. 
‘‘(3) Basic research on the relationship between 
scleroderma and secondary conditions such as pul-
monary hypertension, gastroparesis, Raynaud’s phe-
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nomenon, Sjo¨gren’s Syndrome, and other diseases as 
determined by the Director.’’. 
SEC. 
3. 
PROMOTING 
PUBLIC 
AWARENESS 
OF 
SCLERODERMA. 
Part P of title III of the Public Health Service Act 
(42 U.S.C. 280g et seq.) is amended by adding at the end 
the following: 
‘‘SEC. 
399V–5. 
PROMOTING 
PUBLIC 
AWARENESS 
OF 
SCLERODERMA. 
‘‘The Secretary may carry out an educational cam-
paign to increase public awareness of scleroderma. Print, 
video, and Web-based materials distributed through this 
campaign may include— 
‘‘(1) basic information on scleroderma and its 
symptoms; and 
‘‘(2) information on— 
‘‘(A) the incidence and prevalence of 
scleroderma; 
‘‘(B) diseases and conditions affiliated with 
scleroderma; or 
‘‘(C) the importance of early diagnosis and 
treatment of scleroderma.’’. 
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Union Calendar No. 371 
111TH CONGRESS 
2D SESSION 
H. R. 2408 
[Report No. 111–631] 
A BILL 
To expand the research and awareness activities of 
the National Institute of Arthritis and Musculo-
skeletal and Skin Diseases and the Centers for 
Disease Control and Prevention with respect to 
scleroderma, and for other purposes. 
SEPTEMBER 28, 2010 
Reported with an amendment, committed to the Com-
mittee of the Whole House on the State of the Union, 
and ordered to be printed 
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