‘‘(iv) develop and maintain, where ap-
propriate, a brain bank to collect speci-
mens related to the research and treatment
of Parkinson’s.
‘‘(3) STIPENDS
REGARDING
TRAINING
PRO-
GRAMS.—A center may use funds provided under
paragraph (1) to provide stipends for scientists and
health professionals enrolled in training programs
under paragraph (2)(C).
‘‘(4) DURATION
OF
SUPPORT.—Support of a
center under this subsection may be for a period not
exceeding five years. Such period may be extended
by the Director of NIH for one or more additional
periods of not more than five years if the operations
of such center have been reviewed by an appropriate
technical and scientific peer review group established
by the Director and if such group has recommended
to the Director that such period should be extended.
‘‘(d) DATA
SYSTEM; INFORMATION
CLEARING-
HOUSE.—
‘‘(1) DATA
SYSTEM.—The Director of NIH
shall establish the National Parkinson’s Disease
Data System for the collection, storage, analysis, re-
trieval, and dissemination of data derived from pa-
tient populations with such disease, including, where
possible, data involving general populations for the
purpose of detection of individuals with a risk of de-
veloping the disease.
‘‘(2) INFORMATION CLEARINGHOUSE.—The Di-
rector of NIH shall establish the National Parkin-
son’s Disease Information Clearinghouse to facilitate
and enhance knowledge and understanding of such
disease on the part of health professionals, patients,
and the public through the effective dissemination of
information.
‘‘(e) MORRIS K. UDALL LEADERSHIP AND EXCEL-
LENCE AWARDS.—The Director of NIH shall establish a
grant program to support scientists who have distin-
guished themselves in the field of Parkinson’s research.
Grants under this subsection shall be utilized to enable
established investigators to devote greater time and re-
sources in laboratories to conduct research on Parkinson’s
and to encourage the development of a new generation of
investigators, with the support and guidance of the most
productive and innovative senior researchers.
‘‘(f) NATIONAL PARKINSON’S DISEASE EDUCATION
PROGRAM.—The Director of NIH shall establish a na-
tional education program that is designed to foster a na-
tional focus on Parkinson’s and the care of those with Par-
kinson’s. Activities under such program shall include—
‘‘(1) the bringing together of public and private
organizations to develop better ways to provide care
to individuals with Parkinson’s, and assist the fami-
lies of such individuals; and
‘‘(2) the provision of technical assistance to
public and private organizations that offer support
and aid to individuals with Parkinson’s and their
families.
‘‘(g) AUTHORIZATION OF APPROPRIATIONS.—
‘‘(1) IN GENERAL.—For the purpose of carry-
ing out this section, there are authorized to be ap-
propriated $100,000,000 for fiscal year 1997, and
such sums as may be necessary for each of the fiscal
years 1998 through 2000.
‘‘(2) AVAILABILITY.—Of the amount appro-
priated under paragraph (1), the Secretary shall
make available not to exceed $10,000,000 for fiscal
year 1997, and such sums as may be necessary for
each of the fiscal years 1998 through 2000, to es-
tablish Morris K. Udall Centers under subsection
(c).
‘‘(3) LIMITATION ON USE OF FUNDS.—Notwith-
standing any other provision of law, none of the
amounts made available under this Act may be ex-
pended for any research on Parkinson’s that uses
human fetal tissue, cells, or organs obtained from a
living or dead human embryo or fetus during or
after an induced abortion, or for any therapeutic ap-
plication for Parkinson’s that uses such human fetal
tissue, cells, or organs. This paragraph does not
apply to human fetal tissue, cells, or organs obtained
from a spontaneous abortion or an ectopic preg-
nancy.’’.
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