IV 
119TH CONGRESS 
1ST SESSION 
H. RES. 449 
Supports the designation of ‘‘ALS Awareness Month’’. 
IN THE HOUSE OF REPRESENTATIVES 
MAY 29, 2025 
Mr. CROW (for himself, Mr. CALVERT, Ms. SEWELL, and Mr. FITZPATRICK) 
submitted the following resolution; which was referred to the Committee 
on Energy and Commerce 
RESOLUTION 
Supports the designation of ‘‘ALS Awareness Month’’. 
Whereas amyotrophic lateral sclerosis (referred to in this pre-
amble as ‘‘ALS’’) is a progressive neurodegenerative dis-
ease that affects nerve cells in the brain and the spinal 
cord; 
Whereas the life expectancy for an individual with ALS is be-
tween 2 and 5 years after the date on which the indi-
vidual receives an ALS diagnosis; 
Whereas ALS occurs throughout the world with no racial, 
ethnic, gender, or socioeconomic boundaries; 
Whereas ALS may affect any individual in any location; 
Whereas the cause of ALS is unknown in up to 90 percent 
of cases; 
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•HRES 449 IH 
Whereas approximately 10 percent of cases have a strong 
known genetic driver; 
Whereas, on average, the period between the date on which 
an individual first experiences symptoms of ALS and the 
date on which the individual is diagnosed with ALS is 
more than 1 year; 
Whereas the onset of ALS often involves muscle weakness or 
stiffness, and the progression of ALS results in the fur-
ther weakening, wasting, and paralysis of— 
(1) the muscles of the limbs and trunk; and 
(2) the muscles that control vital functions, such as 
speech, swallowing, and breathing; 
Whereas ALS can strike individuals of any age but predomi-
nantly strikes adults; 
Whereas it is estimated that tens of thousands of individuals 
in the United States have ALS at any given time; 
Whereas, based on studies of the population of the United 
States, more than 5,000 individuals in the United States 
are diagnosed with ALS each year, and 15 individuals in 
the United States are diagnosed with ALS each day; 
Whereas every 90 minutes an individual is diagnosed with 
ALS, and an individual dies from ALS; 
Whereas the majority of individuals with ALS die of res-
piratory failure; 
Whereas military veterans are more likely to be diagnosed 
with ALS than those with no history of military service; 
Whereas, as of the date of introduction of this resolution, 
there is no cure for ALS; 
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•HRES 449 IH 
Whereas the spouses, children, and family members of indi-
viduals living with ALS provide support to those individ-
uals with love, day-to-day care, and more; and 
Whereas an individual with ALS, and the caregivers of such 
an individual, can be required to bear significant costs 
for medical care, equipment, and home care services for 
the individual as the disease progresses: Now, therefore, 
be it 
Resolved, That the House of Representatives— 
(1) supports the designation of ‘‘ALS Aware-
ness Month’’; 
(2) affirms the dedication of the House of Rep-
resentatives to ensuring people with ALS have ac-
cess to effective treatments as soon as possible and 
identifying risk factors and causes of ALS to pre-
vent new cases; 
(3) affirms the dedication of the House of Rep-
resentatives to empowering people with ALS to en-
gage with the world in the way they want; 
(4) affirms the dedication of the House of Rep-
resentatives to reducing physical, emotional, and fi-
nancial burdens of living with ALS; 
(5) affirms the dedication of the House of Rep-
resentatives to ensuring all people with ALS and 
their caregivers receive high-quality services and 
supports that benefit them; and 
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•HRES 449 IH 
(6) commends the dedication of the family 
members, friends, organizations, volunteers, re-
searchers, and caregivers across the United States 
that are working to improve the quality and length 
of life of ALS patients and the development of treat-
ments and cures that reach patients as soon as pos-
sible. 
Æ 
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