to improve treatment options and develop a cure for 
endometriosis; 
(2) establish or expand an internet clearing-
house to catalog existing endometriosis research, 
treatment options, and related information for pa-
tients and health care professionals; or 
(3) carry out related activities as determined by 
the Director. 
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$50,000,000 for each of fiscal years 2025 through 2029. 
SEC. 4. IDENTIFYING BARRIERS TO ACCESSING TREAT-
MENTS FOR ENDOMETRIOSIS SYMPTOMS. 
(a) RESEARCH.—The Secretary shall conduct an 
analysis of barriers that individuals diagnosed with endo-
metriosis face in accessing treatments for endometriosis 
symptoms, including transportation barriers and barriers 
caused by health care professional shortages. 
(b) TOPICS.—In carrying out the analysis under sub-
section (a), the Secretary may— 
(1) assess data from the Transformed Medicaid 
Statistical Information System related to services 
furnished to individuals diagnosed with endo-
metriosis for the treatment of endometriosis symp-
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toms under State Medicaid programs and Children’s 
Health Insurance Programs; and 
(2) assess data related to services furnished to 
individuals diagnosed with endometriosis for the 
treatment of endometriosis symptoms under group 
health plans or group or individual health insurance 
coverage offered by a health insurance issuer. 
(c) DATA COLLECTION.—To carry out the analysis 
under subsection (a), the Secretary may require— 
(1) group health plans or issuers of group or in-
dividual health insurance coverage to provide such 
information as may be required to assess barriers 
that individuals diagnosed with endometriosis face in 
accessing treatments for endometriosis symptoms, 
including a lack of insurance coverage or cost-shar-
ing requirements for such treatments; and 
(2) State Medicaid programs and Children’s 
Health Insurance Programs to collect and report 
data related to services furnished to individuals diag-
nosed with endometriosis for the treatment of endo-
metriosis symptoms through the Transformed Med-
icaid Statistical Information System, including data 
stratified by relevant demographic characteristics. 
(d) PRIVACY REQUIREMENTS.—In carrying out the 
analysis under subsection (a), the Secretary shall ensure 
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that the privacy and confidentiality of individual patients 
are protected in a manner consistent with relevant privacy 
and confidentiality laws. 
(e) REPORT.—Not later than two years after the date 
of enactment of this Act, the Secretary shall submit to 
the Congress and make publicly available on the website 
of the Department of Health and Human Services a report 
on the analysis carried out under this section. 
SEC. 5. EDUCATION AND DISSEMINATION OF INFORMATION 
WITH RESPECT TO ENDOMETRIOSIS. 
(a) ENDOMETRIOSIS
PUBLIC
EDUCATION
PRO-
GRAM.—The Secretary shall develop and disseminate to 
the public information regarding endometriosis, including 
information on— 
(1) the awareness, incidence, and prevalence of 
endometriosis, with a particular focus on individuals 
from racial and ethnic minority groups and other 
underserved groups; 
(2) culturally and linguistically appropriate sup-
port that is available to address the mental health 
impacts of endometriosis; and 
(3) the availability, as medically appropriate, of 
the range of treatment options for symptoms of 
endometriosis. 
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(b) DISSEMINATION
OF INFORMATION.—The Sec-
retary may disseminate information under subsection (a) 
directly or through arrangements with intra-agency initia-
tives, nonprofit organizations, consumer groups, institu-
tions of higher education, or Federal, State, or local public 
private partnerships. 
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$2,000,000 for each of fiscal years 2025 through 2029. 
SEC. 6. INFORMATION TO HEALTH CARE PROVIDERS WITH 
RESPECT TO ENDOMETRIOSIS. 
(a) DISSEMINATION
OF INFORMATION.—The Sec-
retary shall, in consultation with relevant health care pro-
fessional societies and associations, disseminate informa-
tion to health care professionals, health care-related orga-
nizations, and health systems to promote evidence-based 
care for individuals with endometriosis, including informa-
tion related to— 
(1) detecting and diagnosing endometriosis; 
(2) providing care for individuals with endo-
metriosis; 
(3) communicating with patients about endo-
metriosis; and 
(4) related topics. 
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(b) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$2,000,000 for each of fiscal years 2025 through 2029. 
SEC. 7. ENDOMETRIOSIS DISPARITIES STUDY THROUGH 
NATIONAL ACADEMIES. 
(a) IN GENERAL.—The Secretary shall seek to enter 
an agreement, not later than 90 days after the date of 
enactment of this Act, with the National Academies of 
Sciences, Engineering, and Medicine (referred to in this 
section as the ‘‘National Academies’’) under which the Na-
tional Academies agree to conduct a study on endo-
metriosis disparities. 
(b) STUDY REQUIREMENTS.—The agreement under 
subsection (a) shall direct the National Academies to— 
(1) assess endometriosis prevalence, detection, 
treatment, and outcome disparities by race, eth-
nicity, geography, primary language, sexual orienta-
tion, gender identity, disability status, and insurance 
status, and related topics as determined by the Sec-
retary; and 
(2) make recommendations to the Congress, 
Federal agencies, health care professionals, and 
other relevant stakeholders based on the National 
Academies’ findings pursuant to paragraph (1). 
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(c) REPORT.—The agreement under subsection (a) 
shall direct the National Academies to complete the study 
under this section, and transmit to the Congress and make 
publicly available a report on the results of the study, not 
later than 24 months after the date of enactment of this 
Act. 
(d) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$500,000. 
SEC. 8. DEFINITIONS. 
In this Act: 
(1) The term ‘‘institution of higher education’’ 
has the meaning given to such term in section 101 
of the Higher Education Act of 1965 (20 U.S.C. 
1001). 
(2) The term ‘‘racial and ethnic minority 
group’’ has the meaning given such term in section 
1707(g) of the Public Health Service Act (42 U.S.C. 
300u–6(g)). 
(3) The term ‘‘Secretary’’ means the Secretary 
of Health and Human Services. 
Æ 
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