I 
118TH CONGRESS 
1ST SESSION H. R. 3946 
To amend the Public Health Service Act to reauthorize and extend the 
Fetal Alcohol Spectrum Disorders Prevention and Services program, and 
for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
JUNE 9, 2023 
Mr. BACON (for himself and Ms. MCCOLLUM) introduced the following bill; 
which was referred to the Committee on Energy and Commerce 
A BILL 
To amend the Public Health Service Act to reauthorize and 
extend the Fetal Alcohol Spectrum Disorders Prevention 
and Services program, and for other purposes. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Advancing FASD Re-
search, Services and Prevention Act’’ or the ‘‘FASD Re-
spect Act’’. 
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SEC. 2. HHS PROGRAM ON FETAL ALCOHOL SPECTRUM 
DISORDERS. 
(a) IN GENERAL.—Part O of title III of the Public 
Health Service Act (42 U.S.C. 280f et seq.) is amended— 
(1) by amending the part heading to read as 
follows: ‘‘FETAL
ALCOHOL
SPECTRUM
DIS-
ORDERS
PREVENTION
AND
SERVICES
PRO-
GRAM’’; 
(2) in section 399H (42 U.S.C. 280f)— 
(A) in the section heading, by striking 
‘‘ESTABLISHMENT
OF
FETAL
ALCOHOL 
SYNDROME
PREVENTION’’ 
and 
inserting 
‘‘FETAL ALCOHOL SPECTRUM DISORDERS 
PREVENTION, INTERVENTION,’’; 
(B) by striking ‘‘Fetal Alcohol Syndrome 
and Fetal Alcohol Effect’’ each place it appears 
and inserting ‘‘FASD’’; 
(C) in subsection (a)— 
(i) by amending the heading to read 
as follows: ‘‘IN GENERAL’’; 
(ii) in the matter preceding paragraph 
(1)— 
(I) by inserting ‘‘or continue ac-
tivities to support’’ after ‘‘shall estab-
lish’’; 
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(II) by striking ‘‘FASD’’ (as 
amended by subparagraph (B)) and 
inserting ‘‘fetal alcohol spectrum dis-
orders (referred to in this section as 
‘FASD’)’’; 
(III) by striking ‘‘prevention, 
intervention’’ and inserting ‘‘aware-
ness, prevention, identification, inter-
vention,’’; and 
(IV) by striking ‘‘that shall’’ and 
inserting ‘‘, which may’’; 
(iii) in paragraph (1)— 
(I) in subparagraph (A)— 
(aa) by striking ‘‘medical 
schools’’ and inserting ‘‘health 
professions schools’’; and 
(bb) by inserting ‘‘infants,’’ 
after ‘‘provision of services for’’; 
and 
(II) in subparagraph (D), by 
striking ‘‘medical and mental’’ and in-
serting ‘‘agencies providing’’; 
(iv) in paragraph (2)— 
(I) in the matter preceding sub-
paragraph (A), by striking ‘‘a preven-
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tion and diagnosis program to support 
clinical studies, demonstrations and 
other research as appropriate’’ and in-
serting ‘‘supporting and conducting 
research on FASD, as appropriate, in-
cluding’’; 
(II) in subparagraph (B)— 
(aa) by striking ‘‘prevention 
services and interventions for 
pregnant, 
alcohol-dependent 
women’’ and inserting ‘‘culturally 
and linguistically informed evi-
dence-based 
or 
practice-based 
interventions and appropriate so-
cietal supports for preventing 
prenatal alcohol exposure, which 
may co-occur with exposure to 
other substances’’; and 
(bb) by striking ‘‘; and’’ and 
inserting a semicolon; 
(v) by striking paragraph (3) and in-
serting the following: 
‘‘(3) integrating into surveillance practice an 
evidence-based standard case definition for fetal al-
cohol syndrome and, in collaboration with other Fed-
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eral and outside partners, support organizations of 
appropriate medical and mental health professionals 
in their development and refinement of evidence- 
based clinical diagnostic guidelines and criteria for 
all fetal alcohol spectrum disorders; and 
‘‘(4) building State and Tribal capacity for the 
identification, treatment, and support of individuals 
with FASD and their families, which may include— 
‘‘(A) utilizing and adapting existing Fed-
eral, State, or Tribal programs to include 
FASD identification and FASD-informed sup-
port; 
‘‘(B) developing and expanding screening 
and diagnostic capacity for FASD; 
‘‘(C) developing, implementing, and evalu-
ating targeted FASD-informed intervention 
programs for FASD; 
‘‘(D) increasing awareness of FASD; 
‘‘(E) providing training with respect to 
FASD for professionals across relevant sectors; 
and 
‘‘(F) 
disseminating 
information 
about 
FASD and support services to affected individ-
uals and their families.’’; 
(D) in subsection (b)— 
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(i) by striking ‘‘described in section 
399I’’; 
(ii) by striking ‘‘The Secretary’’ and 
inserting the following: 
‘‘(1) IN GENERAL.—The Secretary’’; and 
(iii) by adding at the end the fol-
lowing: 
‘‘(2) ELIGIBLE ENTITIES.—To be eligible to re-
ceive a grant, or enter into a cooperative agreement 
or contract, under this section, an entity shall— 
‘‘(A) be a State, Indian Tribe or Tribal or-
ganization, local government, scientific or aca-
demic institution, or nonprofit organization; 
and 
‘‘(B) prepare and submit to the Secretary 
an application at such time, in such manner, 
and containing such information as the Sec-
retary may require, including a description of 
the activities that the entity intends to carry 
out using amounts received under this sec-
tion.’’; and 
(E) by striking subsections (c) and (d); 
and 
(F) by adding at the end the following: 
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‘‘(c) DEFINITION OF FASD-INFORMED.—For pur-
poses of this section, the term ‘FASD-informed’, with re-
spect to support or an intervention program, means that 
such support or intervention program uses culturally and 
linguistically informed evidence-based or practice-based 
interventions and appropriate societal supports to support 
an improved quality of life for an individual with FASD 
and the family of such individual.’’; 
(3) by striking sections 399I, 399J, and 399K 
(42 U.S.C. 280f–1, 280f–2, 280f–3) and inserting 
the following: 
‘‘SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CEN-
TERS FOR EXCELLENCE. 
‘‘(a) IN GENERAL.—The Secretary shall, as appro-
priate, award grants, cooperative agreements, or contracts 
to public or nonprofit entities with demonstrated expertise 
in the prevention of, identification of, and intervention 
services with respect to, fetal alcohol spectrum disorders 
(referred to in this section as ‘FASD’) and other related 
adverse conditions. Such awards shall be for the purposes 
of establishing Fetal Alcohol Spectrum Disorders Centers 
for Excellence to build local, Tribal, State, and national 
capacities to prevent the occurrence of FASD and other 
related adverse conditions, and to respond to the needs 
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of individuals with FASD and their families by carrying 
out the programs described in subsection (b). 
‘‘(b) PROGRAMS.—An entity receiving an award 
under subsection (a) may use such award for the following 
purposes: 
‘‘(1) Initiating or expanding diagnostic capacity 
for FASD by increasing screening, assessment, iden-
tification, and diagnosis. 
‘‘(2) Developing and supporting public aware-
ness and outreach activities, including the use of a 
range of media and public outreach, to raise public 
awareness of the risks associated with alcohol con-
sumption during pregnancy, with the goals of reduc-
ing the prevalence of FASD and improving the de-
velopmental, health (including mental health), and 
educational outcomes of individuals with FASD and 
supporting families caring for individuals with 
FASD. 
‘‘(3) Acting as a clearinghouse for evidence- 
based resources on FASD prevention, identification, 
and culturally and linguistically informed best prac-
tices, including the maintenance of a national data- 
based directory on FASD-specific services in States, 
Indian Tribes, and local communities, and dissemi-
nating ongoing research and developing resources on 
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FASD to help inform systems of care for individuals 
with FASD across their lifespan. 
‘‘(4) Increasing awareness and understanding 
of efficacious, evidence-based FASD screening tools 
and culturally- and linguistically-appropriate evi-
dence-based intervention services and best practices, 
which may include by conducting national, regional, 
State, Tribal, or peer cross-State webinars, work-
shops, or conferences for training community lead-
ers, medical and mental health and substance use 
disorder professionals, education and disability pro-
fessionals, families, law enforcement personnel, 
judges, individuals working in financial assistance 
programs, social service personnel, child welfare pro-
fessionals, and other service providers. 
‘‘(5) Improving capacity for State, Tribal, and 
local affiliates dedicated to FASD awareness, pre-
vention, and identification and family and individual 
support programs and services. 
‘‘(6) Providing technical assistance to grantees 
under section 399H, as appropriate. 
‘‘(7) Carrying out other functions, as appro-
priate. 
‘‘(c) APPLICATION.—To be eligible for a grant, con-
tract, or cooperative agreement under this section, an enti-
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