datamatters24/research-document-archive huggingface dataset:
I
103D CONGRESS
1ST SESSION
H. R. 2652
To amend the Public Health Service Act to provide for the establishment
through the National Institutes of Health of a data system and an
information clearinghouse with respect to rare diseases.
IN THE HOUSE OF REPRESENTATIVES
JULY 15, 1993
Mr. ROEMER introduced the following bill; which was referred to the
Committee on Energy and Commerce
A BILL
To amend the Public Health Service Act to provide for
the establishment through the National Institutes of
Health of a data system and an information clearing-
house with respect to rare diseases.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘Jonathan Tomal Rare
Diseases Public Information Act’’.
SEC. 2. ESTABLISHMENT OF DATA SYSTEM AND INFORMA-
TION CLEARINGHOUSE WITH RESPECT TO
RARE DISEASES.
Part A of title IV of the Public Health Service Act
(42 U.S.C. 281 et seq.), as amended by section 207 of
Public Law 103–43, is amended by adding at the end the
following section:
‘‘DATA SYSTEM AND INFORMATION CLEARINGHOUSE
REGARDING RARE DISEASES
‘‘SEC. 404E. (a) DATA SYSTEM.—The Director of
NIH, acting through the appropriate national research in-
stitutes, shall establish the National Rare Diseases Data
System for the collection, storage, analysis, retrieval, and
dissemination of data derived from patient populations
with rare diseases, disorders, or other health conditions,
including where possible, data involving general popu-
lations for the purpose of detection of individuals with a
risk of developing such diseases, disorders, or conditions.
‘‘(b) INFORMATION CLEARINGHOUSE.—The Director
of NIH, acting through the appropriate national research
institutes, shall establish the National Rare Diseases In-
formation Clearinghouse to facilitate and enhance,
through the effective dissemination of information, knowl-
edge and understanding of rare diseases, disorders, and
other health conditions by health professionals, patients,
and the public.
‘‘(c) AUTHORIZATION OF APPROPRIATIONS.—For the
purpose of carrying out this section, there are authorized
to be appropriated $3,000,000 for fiscal year 1994, and
such sums as may be necessary for each of the fiscal years
1995 and 1996.’’.
Æ
HR 2659 EAS
any child of the parent that the State may
require for incorporation in the State im-
munization registry.
‘‘(ii) Restrictions ensuring that no in-
formation relating to a child or to the par-
ent or guardian of a child that is collected
or maintained by the State immunization
registry pursuant to this part, or the na-
tional immunization surveillance program
established under section 2153, will be used
as a basis for the criminal prosecution or
the commencement of a criminal investiga-
tion of a parent or guardian.
‘‘(2) RULES OF CONSTRUCTION.—
‘‘(A) With respect to the agreements made
by a State under this part, other than para-
graph (1)(B), the Secretary may require compli-
ance with the agreements only to the extent con-
sistent with such paragraph.
‘‘(B) The provisions of this part do not au-
thorize the Secretary, as a condition of the re-
ceipt of a grant under subsection (a) by a State,
to prohibit the State from providing any parent,
upon the request of the parent, with an exemp-
tion from the requirements established by the
I
103D CONGRESS
1ST SESSION
H. R. 303
To amend title 38, United States Code, to permit retired members of the
Armed Forces who have service-connected disabilities to receive com-
pensation from the Department of Veterans Affairs concurrently with
retired pay, without deduction from either.
IN THE HOUSE OF REPRESENTATIVES
JANUARY 5, 1993
Mr. BILIRAKIS (for himself, Mr. YOUNG of Florida, and Mr. SHAYS) intro-
duced the following bill; which was referred jointly to the Committees on
Veterans’ Affairs and Armed Services
A BILL
To amend title 38, United States Code, to permit retired
members of the Armed Forces who have service-con-
nected disabilities to receive compensation from the De-
partment of Veterans Affairs concurrently with retired
pay, without deduction from either.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
That section 5304(a)(1) of title 38, United States Code,
is amended by adding at the end thereof the following:
‘‘Notwithstanding the preceding sentence, emergency offi-
cers’, regular, or reserve retirement pay may be paid to
any veteran concurrently with compensation for any serv-
•HRES 697 EH 
printed in the report of the Committee on Rules accom-
panying this resolution, if offered by Representative Frank of 
Massachusetts or his designee, which shall be considered as 
read, shall be separately debatable for 10 minutes equally di-
vided and controlled by the proponent and an opponent, and 
shall not be subject to a demand for division of the question; 
(3) the amendment in the nature of a substitute printed in 
the report of the Committee on Rules, if offered by Rep-
resentative Garrett of New Jersey or his designee, which shall 
be considered as read, and shall be separately debatable for 
30 minutes equally divided and controlled by the proponent 
and an opponent; and (4) one motion to recommit with or 
without instructions. 
SEC. 2. All points of order against amendments printed 
in the report of the Committee on Rules accompanying this 
resolution are waived except those arising under clause 9 or 
10 of rule XXI. 
SEC. 3. During consideration of an amendment printed 
in the report of the Committee on Rules accompanying this 
resolution, the Chair may postpone the question of adoption 
as though under clause 8 of rule XX.
•HRES 697 EH 
SEC. 4. In the engrossment of H.R. 3269, the Clerk is 
authorized to make technical and conforming changes to 
amendatory instructions. 
Attest: 
Clerk.
•HRES 697 RH 
compensation practices of financial institutions. The first 
reading of the bill shall be dispensed with. All points of 
order against consideration of the bill are waived except 
those arising under clause 9 or 10 of rule XXI. The 
amendment in the nature of a substitute recommended by 
the Committee on Financial Services now printed in the 
bill shall be considered as adopted. The bill, as amended, 
shall be considered as read. All points of order against 
provisions of the bill, as amended, are waived. The pre-
vious question shall be considered as ordered on the bill, 
as amended, to final passage without intervening motion 
except: (1) one hour of debate equally divided and con-
trolled by the chairman and ranking minority member of 
the Committee on the Financial Services; (2) the amend-
ment printed in the report of the Committee on Rules ac-
companying this resolution, if offered by Representative 
Frank of Massachusetts or his designee, which shall be 
considered as read, shall be separately debatable for 10 
minutes equally divided and controlled by the proponent 
and an opponent, and shall not be subject to a demand 
for division of the question; (3) the amendment in the na-
ture of a substitute printed in the report of the Committee 
on Rules, if offered by Representative Garrett of New Jer-
sey or his designee, which shall be considered as read, and 
shall be separately debatable for 30 minutes equally di-
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•HRES 697 RH 
vided and controlled by the proponent and an opponent; 
and (4) one motion to recommit with or without instruc-
tions. 
SEC. 2. All points of order against amendments print-
ed in the report of the Committee on Rules accompanying 
this resolution are waived except those arising under 
clause 9 or 10 of rule XXI. 
SEC. 3. During consideration of an amendment print-
ed in the report of the Committee on Rules accompanying 
this resolution, the Chair may postpone the question of 
adoption as though under clause 8 of rule XX. 
SEC. 4. In the engrossment of H.R. 3269, the Clerk 
is authorized to make technical and conforming changes 
to amendatory instructions. 
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House Calendar No. 100 
111TH CONGRESS 
1ST SESSION 
H. RES. 697 
[Report No. 111–237] 
RESOLUTION 
Providing for consideration of the bill (H.R. 3269) 
to amend the Securities Exchange Act of 1934 to 
provide shareholders with an advisory vote on ex-
ecutive compensation and to prevent perverse in-
centives in the compensation practices of finan-
cial institutions. 
JULY 30, 2009 
Referred to the House Calendar and ordered to be 
printed 
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•HRES 69 EH 
Whereas residents of Puerto Rico are 1.8 times more likely 
to have diagnosed diabetes than United States non- 
Latino whites; 
Whereas diabetes affects individuals in different ways, and as 
a result, treatment programs will vary; 
Whereas diabetes in the Latino community can result in a 
high prevalence of complications, such as foot problems 
and amputations, kidney failure that may lead to chronic 
or end stage renal disease, blindness, numbness and loss 
of sensation in the legs, heart attacks and strokes, and 
eventually death; 
Whereas individuals suffering from diabetes can reduce their 
risk for complications if they are educated about their 
disease; learn and practice the skills necessary to better 
control their blood glucose, blood pressure, and choles-
terol levels; exercise; and receive regular checkups; 
Whereas targeted health communications to the public are 
vital in disseminating information about diabetes and the 
need to live a healthy lifestyle; 
Whereas the Latino Diabetes Association, a nonprofit organi-
zation devoted to aggressive diabetes education, has 
worked tirelessly to raise funds for diabetes education 
and to find the causes of and cure for diabetes; and 
Whereas the month of July of 2009 would be an appropriate 
month to recognize Latino Diabetes Awareness Month in 
order to educate Latino communities across the Nation 
about diabetes and the need for research funding, accu-
rate diagnosis, and effective treatments: Now, therefore, 
be it 
Resolved, That the House of Representatives—
•HRES 69 EH 
(1) recognizes the need to continue research into 
the causes, treatment, education, and an eventual cure 
for diabetes; 
(2) commends those hospitals, community clinics, 
educational institutes, and other organizations that 
are— 
(A) working to increase awareness of diabetes; 
and 
(B) conducting research for methods to help 
patients and families in the Latino community suf-
fering from diabetes; 
(3) congratulates the work of the Latino Diabetes 
Association for its great efforts to educate, support, and 
provide hope for individuals and their families who suffer 
from diabetes; 
(4) supports the designation of an appropriate 
month 
to 
recognize 
‘‘Latino 
Diabetes 
Awareness 
Month’’; and 
(5) calls upon the people of the United States to ob-
serve the month with appropriate programs and activi-
ties. 
Attest: 
Clerk.
HRES 70 IH 
(1) congratulates Tony Dungy on his successful 
playing and coaching career and historic coaching 
accomplishments; and 
(2) commends Tony Dungy for his compassion, 
integrity, and commitment to his faith, family, and 
community. 
Æ 
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•HRES 69 IH 
port, and provide hope for individuals and their fam-
ilies who suffer from diabetes; 
(4) supports the designation of an appropriate 
month to recognize ‘‘Latino Diabetes Awareness 
Month’’; and 
(5) calls upon the people of the United States 
to observe the month with appropriate programs and 
activities. 
Æ 
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H. Res. 6 
In the House of Representatives, U. S., 
September 14, 2009. 
Whereas coaches are a vital part of organized youth sports; 
Whereas approximately 42 million American children partici-
pate in organized sports each year, but more than 20 
million children in the United States lack the opportunity 
to participate in organized sports, in part because of an 
insufficient number of coaches; 
Whereas a national effort to promote coaching is needed to 
increase the number of adults serving as coaches in youth 
sports; 
Whereas the purpose of the Congressional Caucus on Youth 
Sports is to educate Members of Congress, the media, 
and the public on the need to restore a child-centered 
focus in youth sports that will produce immeasurable 
positive benefits for the well-being and character develop-
ment of children; 
Whereas sports and coaches help children fight obesity, in-
crease their self-esteem, learn leadership skills, and dis-
cover how to incorporate the values of sports into other 
aspects of their daily lives; 
Whereas youth sports activity can reduce gang participation 
and youth violence;
•HRES 6 EH 
Whereas children need adults who will believe in them and 
who give children the support they need to be a success; 
Whereas coaches can positively impact the physical, emo-
tional, and educational life of children; 
Whereas coaches who volunteer their time help educate chil-
dren, serve as role models, and, in some situations, are 
parental surrogates; and 
Whereas the designation of the week of September 13 
through 19, 2009, as National Coach Appreciation Week 
would raise awareness and leverage resources to engage 
millions of children in organized sports that promote 
health, nutrition, and fitness, as well as other youth de-
velopment outcomes: Now, therefore, be it 
Resolved, That the House of Representatives— 
(1) recognizes the significant contribution coaches 
make in the life of children who participate in organized 
sports; 
(2) supports the goals and ideals of National Coach 
Appreciation Week; and 
(3) encourages the people of the United States to 
observe National Coach Appreciation Week with appro-
priate recognition, activities, and programs to dem-
•HRES 6 EH 
onstrate the importance of sports and coaches in the life 
of children. 
Attest: 
Clerk.
HR 3578 RFS
mencing on October 1 of that year and at least the 
ensuing 40 fiscal years.’’. 
Passed the House of Representatives February 3, 
2012. 
Attest: 
KAREN L. HAAS, 
Clerk. 
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HR 2659 EAS
State pursuant to this part for the collection of
data regarding any child of the parent.
‘‘SEC. 2147. REGISTRY DATA.
‘‘(a) 
IN
GENERAL.—For 
purposes 
of 
section
2146(c)(1), the data described in this section are the data
described in subsection (b) and the data described in sub-
section (c).
‘‘(b) DATA REGARDING BIRTH OF CHILD.—With re-
spect to the birth of a child, the data described in this sub-
section is as follows:
‘‘(1) The name of each child born in the State
involved after the date of the implementation of the
registry (in no event shall such date be later than Oc-
tober 1, 1996).
‘‘(2) Demographic data on the child.
‘‘(3) The name of one or both of the parents of
the child. If the child has been given up for adoption,
any information regarding the identity of the birth
parent or parents of the child may not be entered into
the registry, or if entered, shall be deleted.
‘‘(4) The address, as of the date of the birth of
the child, of each parent whose name is received in
the registry pursuant to paragraph (3).
‘‘(c) 
DATA
REGARDING
INDIVIDUAL
IMMUNIZA-
TIONS.—With respect to a child to whom a pediatric vac-
•HRES 6 IH 
Whereas the purpose of the Congressional Caucus on Youth 
Sports is to educate Members of Congress, the media, 
and the public on the need to restore a child-centered 
focus in youth sports that will produce immeasurable 
positive benefits for the well-being and character develop-
ment of children; 
Whereas sports and coaches help children fight obesity, in-
crease their self-esteem, learn leadership skills, and dis-
cover how to incorporate the values of sports into other 
aspects of their daily lives; 
Whereas youth sports activity can reduce gang participation 
and youth violence; 
Whereas children need adults who will believe in them and 
who give children the support they need to be a success; 
Whereas coaches can positively impact the physical, emo-
tional, and educational life of children; 
Whereas coaches who volunteer their time help educate chil-
dren, serve as role models, and, in some situations, are 
parental surrogates; and 
Whereas the designation of the week of September 13 
through 19, 2009, as National Coach Appreciation Week 
would raise awareness and leverage resources to engage 
millions of children in organized sports that promote 
health, nutrition, and fitness, as well as other youth de-
velopment outcomes: Now, therefore, be it 
Resolved, That the House of Representatives— 
(1) recognizes the significant contribution 
coaches make in the life of children who participate 
in organized sports; 
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•HRES 6 IH 
(2) supports the goals and ideals of National 
Coach Appreciation Week; and 
(3) encourages the people of the United States 
to observe National Coach Appreciation Week with 
appropriate recognition, activities, and programs to 
demonstrate the importance of sports and coaches in 
the life of children. 
Æ 
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H. Res. 700 
In the House of Representatives, U. S., 
November 7, 2009. 
Whereas all children and youth learn best when they are 
healthy, supported, and receive an education that meets 
their individual needs; 
Whereas schools can more effectively ensure that all students 
are ready and able to learn if they work to meet the 
needs of each student; 
Whereas sound psychological principles are critical to proper 
instruction and learning, social and emotional develop-
ment, prevention and early intervention in a culturally di-
verse student population; 
Whereas school psychologists are specially trained to deliver 
mental health services and academic support that lowers 
barriers to learning and allows teachers to teach more ef-
fectively; 
Whereas school psychologists facilitate collaboration that 
helps parents and educators identify and reduce risk fac-
tors, promote protective factors, create safe schools, and 
access community resources; 
Whereas school psychologists are trained to assess barriers to 
learning, utilize data-based decisionmaking, implement 
research-driven prevention and intervention strategies, 
evaluate outcomes, and improve accountability;
•HRES 700 EH 
Whereas State educational agencies and other State entities 
credential more than 35,000 school psychologists who 
practice in schools in the United States as key profes-
sionals that promote the learning and mental health of all 
children; 
Whereas the National Association of School Psychologists es-
tablishes and maintains high standards for training, 
practice, and school psychologist credentialing, in collabo-
ration with organizations such as the American Psycho-
logical Association, that promote effective and ethical 
services by school psychologists to children, families, and 
schools; 
Whereas the people of the United States should recognize the 
vital role school psychologists play in the personal and 
academic development of the Nation’s children; and 
Whereas the week beginning on November 9, 2009, would be 
an appropriate week to designate as National School Psy-
chology Week: Now, therefore, be it 
Resolved, That the House of Representatives— 
(1) supports the designation of National School 
Psychology Week; 
(2) honors and recognizes the contributions of 
school psychologists to the success of students in schools 
across the United States; and 
(3) encourages the people of the United States to 
observe the week with appropriate activities that pro-
mote awareness of the vital role school psychologists play 
in schools, in the community, and in helping students
•HRES 700 EH 
develop into successful and productive members of soci-
ety. 
Attest: 
Clerk.
IV 
111TH CONGRESS 
1ST SESSION 
H. RES. 702 
Directing the Comptroller General of the United States to submit reports 
ensuring the effectiveness of Federal programs and amending the Rules 
of the House of Representatives to require that certain standing commit-
tees of the House hold at least one hearing on each such report that 
falls within their jurisdiction. 
IN THE HOUSE OF REPRESENTATIVES 
JULY 30, 2009 
Mr. REICHERT submitted the following resolution; which was referred to the 
Committee on Oversight and Government Reform, and in addition to the 
Committee on Rules, for a period to be subsequently determined by the 
Speaker, in each case for consideration of such provisions as fall within 
the jurisdiction of the committee concerned 
RESOLUTION 
Directing the Comptroller General of the United States to 
submit reports ensuring the effectiveness of Federal pro-
grams and amending the Rules of the House of Rep-
resentatives to require that certain standing committees 
of the House hold at least one hearing on each such 
report that falls within their jurisdiction. 
Resolved, That (a) the House of Representatives di-
rects the Comptroller General to submit to Congress a re-
port on the effectiveness of each program of the Federal 
Government, within two years after the program begins 
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•HRES 702 IH 
to be implemented, to determine the effectiveness of the 
program and whether the program is carrying out the in-
tent of Congress. 
(b) Clause 2 of rule XI of the Rules of the House 
of Representatives is amended by adding at the end the 
following new paragraph: 
‘‘(f)(1) Within 30 legislative days after any standing 
committee receives a report from the Comptroller General 
respecting the effectiveness of a program within its legisla-
tive jurisdiction, that committee shall hold a hearing on 
the subject matter of that report. If the program is au-
thorized for 10 or more years or has an open-ended au-
thorization, then, at that hearing, the committee shall de-
termine appropriate intervals for additional hearings re-
specting the effectiveness of that program. 
‘‘(2) Paragraph (1) shall not apply to the Committee 
on Appropriations, the Committee on House Administra-
tion, the Committee on Rules, and the Committee on 
Standards of Official Conduct.’’. 
Æ 
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