‘‘(D) encourage the development of safe 
and effective treatments, strategies, and other 
approaches to prevent, diagnose, treat, and cure 
epilepsy or to enhance functioning and improve 
quality of life for individuals with epilepsy and 
their caregivers; 
‘‘(E) improve the— 
‘‘(i) early diagnosis of epilepsy; and 
‘‘(ii) coordination of the care and 
treatment of individuals living with epi-
lepsy; 
‘‘(F) review the impact of epilepsy on the 
physical, mental, and social health of individ-
uals living with epilepsy and their caregivers; 
‘‘(G) solicit public comments and consider 
consensus recommendations from collaborations 
in the epilepsy community; 
‘‘(H) carry out an annual assessment on 
progress of the activities described in this sub-
section; 
‘‘(I) coordinate with international bodies, 
to the degree possible, to integrate and inform 
the global mission to prevent, diagnose, treat, 
and cure epilepsy; and 
VerDate Sep 11 2014 
01:54 Mar 13, 2025
Jkt 059200
PO 00000
Frm 00004
Fmt 6652
Sfmt 6201
E:\BILLS\H1189.IH
H1189
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(J) carry out other such activities as the 
Secretary determines appropriate. 
‘‘(b) ANNUAL ASSESSMENT.—Not later than 2 years 
after the date of enactment of the National Plan for Epi-
lepsy Act, and annually thereafter, the Secretary shall 
carry out an assessment of the Nation’s progress in pre-
paring for and responding to the escalating burden of epi-
lepsy. Such assessment shall include— 
‘‘(1) recommendations for priority actions; 
‘‘(2) a description of the steps that have been, 
or should be, taken to implement such recommenda-
tions; and 
‘‘(3) such other items as the Secretary deter-
mines appropriate. 
‘‘(c) ADVISORY COUNCIL.— 
‘‘(1) IN GENERAL.—The Secretary shall estab-
lish and maintain an Advisory Council on Epilepsy 
Research, Care, and Services (referred to in this sec-
tion as the ‘Advisory Council’) to advise the Sec-
retary on epilepsy-related issues. 
‘‘(2) MEMBERSHIP.—The Advisory Council 
shall be comprised of— 
‘‘(A) representatives appointed by the Sec-
retary from relevant Federal departments and 
agencies, including— 
VerDate Sep 11 2014 
01:54 Mar 13, 2025
Jkt 059200
PO 00000
Frm 00005
Fmt 6652
Sfmt 6201
E:\BILLS\H1189.IH
H1189
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(i) the National Institutes of Health; 
‘‘(ii) the Centers for Medicare & Med-
icaid Services; 
‘‘(iii) the Centers for Disease Control 
and Prevention; 
‘‘(iv) the Food and Drug Administra-
tion; 
‘‘(v) the Health Resources and Serv-
ices Administration; 
‘‘(vi) the Department of Defense; and 
‘‘(vii) the Department of Veterans Af-
fairs; and 
‘‘(B) expert non-Federal members ap-
pointed by the Secretary that reflect the diver-
sity of epilepsy, including— 
‘‘(i) 4 individuals, each of whom is liv-
ing with a different type of epilepsy; 
‘‘(ii) 2 family caregivers for individ-
uals with epilepsy; 
‘‘(iii) 2 licensed or accredited health 
care providers supported by a relevant pro-
fessional medical society, including at least 
1 epileptologist or neurologist; 
‘‘(iv) 2 biomedical researchers with 
epilepsy-related 
expertise 
in 
basic, 
VerDate Sep 11 2014 
01:54 Mar 13, 2025
Jkt 059200
PO 00000
Frm 00006
Fmt 6652
Sfmt 6201
E:\BILLS\H1189.IH
H1189
ssavage on LAPJG3WLY3PROD with BILLS
translational, or clinical population science 
or drug development science; and 
‘‘(v) 3 representatives from 3 separate 
nonprofit organizations directly connected 
with epilepsy that have demonstrated expe-
rience in epilepsy research or epilepsy pa-
tient care and other services. 
‘‘(3) MEETINGS.— 
‘‘(A) IN GENERAL.—The Advisory Council 
shall meet at least once each quarter. 
‘‘(B) MEETINGS WITH OTHER EXPERTS.— 
Not later than 2 years after the date of enact-
ment of the National Plan for Epilepsy Act, 
and every 2 years thereafter, the Advisory 
Council shall convene a meeting of Federal and 
non-Federal organizations to discuss epilepsy 
research. 
‘‘(C) PUBLIC MEETINGS.—All meetings of 
the Advisory Council shall be open to the pub-
lic. 
‘‘(4) REPORTING.—Not later than 18 months 
after the date of enactment of the National Plan for 
Epilepsy Act, and every 2 years thereafter, the Advi-
sory Council shall provide to the Secretary and Con-
gress a report containing— 
VerDate Sep 11 2014 
01:54 Mar 13, 2025
Jkt 059200
PO 00000
Frm 00007
Fmt 6652
Sfmt 6201
E:\BILLS\H1189.IH
H1189
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(A) an evaluation of all federally funded 
efforts in preventing, diagnosing, treating, and 
curing epilepsy, and the outcomes of such ef-
forts; 
‘‘(B) recommendations for priority actions 
to better coordinate, expand, and better support 
Federal programs in order to better support 
people with epilepsy, epilepsy research, and 
data collection; and 
‘‘(C) recommendations to— 
‘‘(i) provide effective, timely, and re-
sponsive diagnosis treatment and care to 
improve health outcomes and quality of 
life; 
‘‘(ii) foster research and innovation 
leading to more effective treatments and 
potential cures for epilepsy; 
‘‘(iii) strengthen data and information 
systems including better surveillance of 
epilepsy; 
‘‘(iv) increase public awareness about 
epilepsy and reduce stigma and discrimina-
tion; 
‘‘(v) increase access to expert and spe-
cialized care for people with epilepsy; 
VerDate Sep 11 2014 
01:54 Mar 13, 2025
Jkt 059200
PO 00000
Frm 00008
Fmt 6652
Sfmt 6201
E:\BILLS\H1189.IH
H1189
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(vi) eliminate access to care dispari-
ties experienced by individuals with epi-
lepsy; 
‘‘(vii) 
prevent 
sudden 
unexpected 
death in epilepsy and other epilepsy-related 
mortalities; 
‘‘(viii) reduce the financial impact of 
epilepsy on families living with epilepsy; 
‘‘(ix) prevent epilepsy and promote 
healthy behaviors; and 
‘‘(x) an evaluation of the implementa-
tion of the National Plan, and its out-
comes. 
‘‘(d) ANNUAL REPORTS.—The Secretary shall annu-
ally submit to Congress a report that includes— 
‘‘(1) an evaluation of all federally funded efforts 
in epilepsy research, prevention, diagnosis, treat-
ment, clinical care, and institutional-, home-, and 
community-based programs, and the outcomes of 
such efforts; 
‘‘(2) recommendations for— 
‘‘(A) priority actions based on the most re-
cent assessment submitted by the Secretary 
under subsection (b) and the recommendations 
VerDate Sep 11 2014 
01:54 Mar 13, 2025
Jkt 059200
PO 00000
Frm 00009
Fmt 6652
Sfmt 6201
E:\BILLS\H1189.IH
H1189
ssavage on LAPJG3WLY3PROD with BILLS