I 
111TH CONGRESS 
2D SESSION 
H. R. 5560 
To amend the Public Health Service Act to improve quality of cancer care 
and quality of life for patients and survivors by coordinating development 
and distribution of information about relieving pain, symptoms, side 
effects, and stress; increasing awareness of treatment and post-treatment 
health risks for survivors; enhancing research into symptom management 
and survivorship; increasing health care professional education and train-
ing; reducing health disparities in cancer treatment, symptom manage-
ment, and survivorship care; and expanding and enhancing cancer reg-
istries; and for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
JUNE 17, 2010 
Mr. MOORE of Kansas (for himself, Ms. BERKLEY, Mr. BERMAN, Mr. CAO, 
Mr. CLAY, Mr. CLEAVER, Mr. CONYERS, Mr. LINCOLN DIAZ-BALART of 
Florida, Ms. EDWARDS of Maryland, Mr. ELLISON, Mr. FRANK of Massa-
chusetts, Ms. KILROY, Mr. LOBIONDO, Mrs. MCCARTHY of New York, 
Mr. MARKEY of Massachusetts, Mr. MEEKS of New York, Ms. MOORE 
of Wisconsin, Ms. RICHARDSON, Ms. SCHAKOWSKY, Mr. SPRATT, and Ms. 
WATERS) introduced the following bill; which was referred to the Com-
mittee on Energy and Commerce 
A BILL 
To amend the Public Health Service Act to improve quality 
of cancer care and quality of life for patients and sur-
vivors by coordinating development and distribution of 
information about relieving pain, symptoms, side effects, 
and stress; increasing awareness of treatment and post- 
treatment health risks for survivors; enhancing research 
into symptom management and survivorship; increasing 
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health care professional education and training; reducing 
health disparities in cancer treatment, symptom manage-
ment, and survivorship care; and expanding and enhanc-
ing cancer registries; and for other purposes. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Quality Cancer Care 
for Life Act of 2010’’. 
SEC. 2. IMPROVING QUALITY OF CANCER CARE AND QUAL-
ITY OF LIFE FOR PATIENTS AND SURVIVORS. 
Title III of the Public Health Service Act (42 U.S.C. 
243 et seq.) is amended by adding at the end the fol-
lowing: 
‘‘SEC. 317U. INFORMATION, SUPPORT, AND OUTCOMES 
MONITORING TO IMPROVE QUALITY CARE 
AND QUALITY OF LIFE FOR CANCER PA-
TIENTS AND SURVIVORS. 
‘‘(a) IN GENERAL.—The Secretary, acting through 
the Director of the Centers for Disease Control and Pre-
vention (in this section referred to as the ‘Director’), shall 
improve the quality of cancer care and quality of life for 
cancer patients and survivors by expanding cancer control 
programs of the Centers for Disease Control and Preven-
tion, including the National Comprehensive Cancer Con-
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trol Program and the National Program of Cancer Reg-
istries. 
‘‘(b) COORDINATION
OF FEDERAL CANCER CARE 
AND SURVIVORSHIP.— 
‘‘(1) IN GENERAL.—The Secretary shall direct 
the coordination of appropriate agencies described in 
paragraph (2) for the following purposes: 
‘‘(A) To develop information and support 
to States to— 
‘‘(i) incorporate evidence-based, best 
practice strategies into Comprehensive 
Cancer Control Program activities and 
services of such States; and 
‘‘(ii) improve systems of care and care 
delivery by including promotion of care 
supporting quality of life for cancer pa-
tients, survivors, and the family caregivers 
of such patients and survivors. 
‘‘(B) To develop service delivery efforts 
with special emphasis on addressing the par-
ticular needs of childhood and adolescent cancer 
patients and survivors, as well as patients and 
survivors in low-income, racial, or ethnic minor-
ity groups, and other medically underserved 
populations. 
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‘‘(C) To improve the National Program of 
Cancer Registries and other existing surveil-
lance systems for tracking cancer patients and 
survivors and assessing their health status and 
risk for other chronic and disabling conditions. 
‘‘(2) 
APPROPRIATE
AGENCIES.—Appropriate 
agencies described in this paragraph include the Of-
fice of Cancer Survivorship at the National Cancer 
Institute, the National Institute of Nursing Re-
search, and such other appropriate agencies as de-
termined by the Secretary. 
‘‘(c) IMPROVING STATE AND LOCAL PROGRAMS TO 
ADDRESS CANCER CARE AND SURVIVORSHIP.—In con-
ducting or supporting State and local comprehensive can-
cer control programs through the Centers for Disease 
Control and Prevention, the Secretary shall provide fund-
ing and support to States, localities, and territories to ex-
pand and enhance such programs for the following pur-
poses: 
‘‘(1) To include emphasis on quality cancer care 
and survivorship, and provide information and sup-
port for quality care initiatives for all cancer patient 
and survivor populations including women, children, 
adolescent, minority, and other medically under-
served populations. 
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‘‘(2) To develop and strengthen community out-
reach and education programs, resources, interven-
tions, and campaigns; strengthen community infor-
mation delivery systems to inform patients, sur-
vivors, and family members about quality of life sup-
port and services available to relieve pain, symptoms 
and stress; increase awareness of treatment and 
post-treatment health risks and challenges; and pro-
vide follow-up care important for survivors. Such 
programs may— 
‘‘(A) create and disseminate easily acces-
sible, culturally appropriate communication ma-
terials and resources tailored to specific audi-
ences; 
‘‘(B) inform patients, survivors, and family 
caregivers about particular symptoms, side ef-
fects, and late effects often associated with spe-
cific types of cancer or treatments and the im-
portance of addressing them as essential ele-
ments of quality health care across the life 
course, including information on pain, nausea, 
fatigue, or other physical symptoms; worry, 
stress, or other psychological or emotional 
symptoms; lymphedema; cancer-related oral 
health issues and oral care; sexual dysfunction; 
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fertility concerns and fertility preservation op-
tions; specific side effects or late effects that 
may affect overall health and well being; survi-
vorship follow up care; and any other health-re-
lated conditions that are known to be experi-
enced as a result of cancer by patients, sur-
vivors, and their family caregivers across the 
life course; 
‘‘(C) provide resource and referral infor-
mation about other specific issues faced by can-
cer patients, survivors, and their families, in-
cluding financial concerns, employment rights, 
medical leave, insurance coverage, anticipating 
and managing late effects of treatment and re-
current disease, advance care planning (includ-
ing advance directives, living wills, and durable 
powers of attorney), and other care planning in-
volved in health and medical decision-making; 
and 
‘‘(D) assist patients, survivors, and family 
caregivers with information about how to com-
municate effectively with health professionals 
about physical and psychological symptoms, and 
limitations or barriers to normal daily function 
that may be caused by treatment of cancer. 
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‘‘(3) To include special emphasis on addressing 
the particular needs of children and adolescent can-
cer patients and survivors, as well as patients and 
survivors in low-income, racial, or ethnic minority 
groups, and other medically underserved popu-
lations. 
‘‘(d) CANCER
CARE
AND
SURVIVORSHIP
DEM-
ONSTRATION GRANTS.— 
‘‘(1) IN GENERAL.—The Director shall award 
competitive grants to States, localities, and not-for- 
profit organizations for the purposes of developing, 
implementing, and evaluating cancer case manage-
ment and coordination programs to enhance the 
quality of cancer care and quality of life for patients 
and survivors and to improve cancer outcomes. Spe-
cific emphasis shall be on addressing relief of symp-
toms, pain, side effects, and stress; increasing pa-
tient awareness of treatment and post-treatment 
health risks; and survivor care. 
‘‘(2) APPLICATION.—A State, locality, or not- 
for-profit organization seeking a grant under this 
subsection shall submit to the Director an applica-
tion (at such time, in such manner, and containing 
such information as the Director may require), in-
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cluding assurances that the State, locality, or entity 
will— 
‘‘(A) serve medically underserved popu-
lations through specific outreach activities and 
coordinate culturally competent and appropriate 
care in accordance with existing, relevant de-
partmental guidelines; and 
‘‘(B) evaluate and disseminate to the pub-
lic annually detailed information about program 
activities. 
‘‘(3) USE OF FUNDS.—A State, locality, or not- 
for-profit entity shall use grant amounts awarded 
under this subsection to carry out programs that 
create partnerships with community organizations, 
including health care providers, cancer centers, hos-
pitals, community health centers, palliative care pro-
grams, psychosocial care programs, hospice pro-
grams, home care, nonprofit organizations, health 
plans to facilitate access to integrated care services 
that support quality of life needs for patients, sur-
vivors, and family caregivers. Such activities shall in-
clude— 
‘‘(A) patient navigation and referrals, in-
cluding assistance to patients and survivors in 
finding support groups; 
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‘‘(B) interventions for patients, survivors, 
and caregivers; pain management; palliative 
care; psychosocial care; hospice; or other end of 
life care programs; 
‘‘(C) general advocacy on behalf of pa-
tients, survivors, and families; and 
‘‘(D) an evaluation to identify best prac-
tices to improve the coordination of cancer and 
survivorship care services and activities. 
‘‘(4) EVALUATION AND REPORTING.—The Di-
rector shall evaluate activities funded under this 
subsection and shall submit to Congress (and dis-
seminate to the public) reports related to such eval-
uation, including findings, outcomes, and other pro-
gram information. The first report shall be sub-
mitted not later than January 1, 2013, with updates 
provided every three years thereafter. 
‘‘(e) HEALTH CARE PROFESSIONAL EDUCATION AND 
TRAINING DEMONSTRATION GRANTS.— 
‘‘(1) IN GENERAL.—The Director shall award 
competitive grants to not-for-profit entities or quali-
fied individuals for the purpose of training individ-
uals to undertake the quality of life needs of cancer 
patients, survivors, and family caregivers. 
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‘‘(2) APPLICATION.—A not-for-profit entity or 
qualified individual seeking a grant under this sub-
section shall submit an application to the Director at 
such time, and in such manner, and containing such 
information as the Director may require, including 
assurances that the entity or individual will— 
‘‘(A) improve health professional commu-
nication skills in caring for patients and sur-
vivors to more effectively assess and address 
their quality of life or survivorship concerns; 
‘‘(B) assess and relieve pain, symptoms, 
side effects, and stress associated with cancer 
and its treatment; 
‘‘(C) promote care planning to align treat-
ment with patient and family goals; 
‘‘(D) anticipate and communicate about 
cancer treatment and post-treatment health 
risks and follow-up care; 
‘‘(E) provide palliative, psychosocial, or 
other care to support quality of life integrated 
as part of disease-directed treatment to improve 
quality of cancer care; 
‘‘(F) promote use of survivorship care 
planning; 
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‘‘(G) improve cultural sensitivity, commu-
nication, and patient care for minority and 
medically underserved populations, including 
addressing the particular needs of children, 
adolescents, and their families; racial and ethnic 
groups, and other medically underserved cancer 
patient and survivor populations; and 
‘‘(H) collect and analyze data related to 
the effectiveness of education and training ef-
forts. 
‘‘(3) USE OF FUNDS.—An eligible entity shall 
use grant amounts awarded under this subsection to 
train and develop individuals with skills needed to 
assist the quality of life needs of cancer patients, 
survivors, and family caregivers by addressing symp-
toms, pain, side effects, stress, treatment, and post- 
treatment health risks and train individuals to assist 
in arranging follow-up care across the life course. 
‘‘(4) EVALUATION.—The Secretary shall de-
velop and implement a plan for evaluating the ef-
fects of professional training programs funded 
through this subsection. 
‘‘(5) DEFINITION.—For purposes of this sub-
section, the term ‘qualified individual’ means a phy-
sician, nurse, social worker, chaplain, psychologist, 
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