Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘National Bone Marrow 
Donor Registry Reauthorization Act’’. 
SEC. 2. NATIONAL BONE MARROW DONOR REGISTRY. 
(a) NATIONAL REGISTRY.—Section 379 of the Public 
Health Service Act (42 U.S.C. 274k) is amended—
(1) in subsection (a)—
(A) in paragraph (1), by striking ‘‘except 
that’’ and all that follows and inserting ‘‘except 
that—
‘‘(A) such limitations shall not apply to the 
Chair of the board (or the Chair-elect) or to the 
member of the board who most recently served as 
the Chair; and 
‘‘(B) 1 additional consecutive 2-year term 
may be served by any member of the board who 
has no employment, governance, or financial af-
filiation with any donor center, recruitment 
group, transplant center, or cord blood bank.’’; 
and 
(B) in paragraph (4)—
(i) by striking ‘‘the Naval Medical Re-
search and Development Command’’ and
inserting ‘‘the Department of Defense Mar-
row Donor Recruitment and Research Pro-
gram operated by the Department of the 
Navy’’; and 
(ii) by striking ‘‘Organ’’ after ‘‘Divi-
sion of’’; 
(2) in subsection (b)—
(A) in paragraph (4), by inserting ‘‘at 
least’’ before ‘‘annually’’; 
(B) in paragraph (7), by striking ‘‘and 
comparisons of transplant centers regarding 
search and other costs that prior to transplan-
tation are charged to patients by transplant cen-
ters; and’’; 
(C) in paragraph (8), by inserting ‘‘and 
outreach’’ after ‘‘and demonstration’’; 
(D) at the end of paragraph (8), by striking 
the period and inserting a semicolon; 
(E) 
by 
redesignating 
paragraphs 
(3) 
through (8) as paragraphs (4) through (9); 
(F) by inserting after paragraph (2), the 
following: 
‘‘(3) maintain and expand medical emergency 
contingency response capabilities in concert with Fed-
eral programs for response to threats of use of ter-
rorist or military weapons that can damage marrow, 
such as ionizing radiation or chemical agents con-
taining mustard, so that the capability of supporting 
patients with marrow damage from disease can be 
used to support casualties with marrow damage;’’; 
and 
(G) by adding at the end the following: 
‘‘(10) conduct and support research to improve 
the availability, efficiency, safety, and cost of trans-
plants from unrelated donors and the effectiveness of 
Registry operations; 
‘‘(11) increase the number of umbilical cord 
blood units listed in the Registry and assist cord 
blood banks in the Registry program in accordance 
with subsection (c); and 
‘‘(12) establish bylaws and procedures—
‘‘(A) to prohibit any member of the board of 
directors of the Registry who has an employ-
ment, governance, or financial affiliation with a 
donor center, recruitment group, transplant cen-
ter, or cord blood bank from participating in 
any decision that materially affects the center, 
recruitment group, transplant center, or cord 
blood bank; and
‘‘(B) to limit the number of members of the 
board with any such affiliation.’’; 
(3) in subsection (c)—
(A) in clause (ii) of paragraph (2)(A), by 
striking ‘‘, including providing updates’’; and 
(B) in paragraph (3), by striking ‘‘the 
availability, as a potential treatment option, of 
receiving a transplant of bone marrow from an 
unrelated donor’’ and inserting ‘‘transplants 
from unrelated donors as a treatment option and 
resources for identifying and evaluating other 
therapeutic alternatives’’; 
(4) in subsection (d)—
(A) in paragraph (2)(C), by inserting ‘‘and 
assist with information regarding third party 
payor matters’’ after ‘‘ongoing search for a 
donor’’; 
(B) in paragraph (2)(F)—
(i) by redesignating clause (v) as 
clause (vi); and 
(ii) by inserting after clause (iv) the 
following: 
‘‘(v) Information concerning issues 
that patients may face after a transplant
regarding continuity of care and quality of 
life.’’; and 
(C) in paragraph (3)(B), by striking ‘‘Of-
fice may’’ and inserting ‘‘Office shall’’; 
(5) in subsection (g), by striking ‘‘the bone mar-
row donor program of the Department of the Navy’’ 
and inserting ‘‘the Department of Defense Marrow 
Donor Recruitment and Research Program operated 
by the Department of the Navy’’; 
(6) in subsection (h)—
(A) by striking ‘‘APPLICATION.—’’ and in-
serting ‘‘CONTRACTS.—’’; 
(B) by striking ‘‘To be eligible’’ and insert-
ing the following: 
‘‘(1) APPLICATION.—To be eligible’’; and 
(C) by adding at the end the following: 
‘‘(2) CONSIDERATIONS.—In awarding contracts 
under this section, the Secretary shall give substantial 
weight to the continued safety of donors and patients 
and other factors deemed appropriate by the Sec-
retary.’’; 
(7) in subsection (i), by striking ‘‘include’’ and 
inserting ‘‘be’’; and 
(8) by striking subsection (l).
(b) BONE MARROW SCIENTIFIC REGISTRY.—Section 
379A of the Public Health Service Act (42 U.S.C. 274l) is 
amended—
(1) in subsection (a), by adding at the end the 
following: ‘‘The scientific registry shall participate in 
medical research that has the potential to improve 
transplant outcomes.’’; 
(2) in subsection (c), by striking ‘‘Each such re-
port shall in addition include the data required in 
section 379(l) (relating to pretransplant costs).’’; and 
(3) by adding after subsection (c) the following: 
‘‘(d) PUBLICLY AVAILABLE DATA.—The scientific reg-
istry shall make relevant scientific information not con-
taining individually identifiable information available to 
the public in the form of summaries and data sets to encour-
age medical research and to provide information to trans-
plant programs, physicians, and patients.’’. 
(c) BONE MARROW AND MARROW DEFINED.—Part I 
of title III of the Public Health Service Act (42 U.S.C. 274k 
et seq.) is amended—
(1) by redesignating section 379B as section 
379C; and 
(2) by inserting after section 379A the following:
‘‘SEC. 379B. BONE MARROW AND MARROW DEFINED. 
‘‘For purposes of this part, the terms ‘bone marrow’ 
and ‘marrow’ include bone marrow and any other source 
of hematopoietic progenitor cells the acquisition or use of 
which is not inconsistent with Federal law.’’. 
(d) AUTHORIZATION
OF APPROPRIATIONS.—Section 
379C of the Public Health Service Act, as redesignated by 
subsection (c), is amended to read as follows: 
‘‘SEC. 379C. AUTHORIZATION OF APPROPRIATIONS. 
‘‘(a) IN GENERAL.—For the purpose of carrying out 
this part, there are authorized to be appropriated 
$32,000,000 for fiscal year 2004, and such sums as may 
be necessary for each of the fiscal years 2005 through 2008. 
‘‘(b) EMERGENCY CONTINGENCY RESPONSE CAPABILI-
TIES.—In addition to the amounts authorized to be appro-
priated under subsection (a), there are authorized to be ap-
propriated such sums as may be necessary for the mainte-
nance and expansion of emergency contingency response ca-
pabilities under section 379(b)(3).’’.
Union Calendar No. 163
108TH CONGRESS 
1ST SESSION 
H. R. 3034
[Report No. 108–276] 
A BILL 
To amend the Public Health Service Act to reau-
thorize the National Bone Marrow Donor Reg-
istry, and for other purposes. 
SEPTEMBER 17, 2003
Reported with an amendment, committed to the Com-
mittee of the Whole House on the State of the Union, 
and ordered to be printed