IV 
117TH CONGRESS 
1ST SESSION 
H. RES. 434 
Supports the designation of ‘‘ALS Awareness Month’’. 
IN THE HOUSE OF REPRESENTATIVES 
MAY 25, 2021 
Mr. CROW (for himself, Mr. FITZPATRICK, Ms. SEWELL, Mr. CALVERT, Mrs. 
AXNE, Mr. KEATING, Ms. DEAN, Ms. VELA´ZQUEZ, Mr. COLE, Mr. 
POSEY, Mr. THOMPSON of Pennsylvania, Mr. LARSON of Connecticut, 
Mr. RASKIN, Mr. NEGUSE, Mr. QUIGLEY, Mr. DEUTCH, Mr. VAN DREW, 
Mr. O’HALLERAN, Mr. BRENDAN F. BOYLE of Pennsylvania, Mr. DANNY 
K. DAVIS of Illinois, Mr. LAMB, Ms. BASS, Mr. GRIJALVA, Mr. KELLER, 
Mr. GARBARINO, Mr. COHEN, Mr. SIRES, Mr. VELA, Ms. SCHAKOWSKY, 
Mr. FOSTER, Ms. JACOBS of California, Mr. BISHOP of Georgia, Mr. 
AUCHINCLOSS, Mrs. LEE of Nevada, Mr. MOULTON, Ms. NORTON, Ms. 
CHU, Mr. CARSON, Mr. DEFAZIO, Ms. WILLIAMS of Georgia, and Mr. 
SWALWELL) submitted the following resolution; which was referred to the 
Committee on Energy and Commerce 
RESOLUTION 
Supports the designation of ‘‘ALS Awareness Month’’. 
Whereas amyotrophic lateral sclerosis (referred to in this pre-
amble as ‘‘ALS’’) is a progressive neurodegenerative dis-
ease that affects nerve cells in the brain and the spinal 
cord; 
Whereas the life expectancy for an individual with ALS is be-
tween 2 and 5 years after the date on which the indi-
vidual receives an ALS diagnosis; 
VerDate Sep 11 2014 
01:21 May 26, 2021
Jkt 019200
PO 00000
Frm 00001
Fmt 6652
Sfmt 6300
E:\BILLS\HR434.IH
HR434
pbinns on DSKJLVW7X2PROD with BILLS
•HRES 434 IH 
Whereas ALS occurs throughout the world with no racial, 
ethnic, gender, or socioeconomic boundaries; 
Whereas ALS may affect any individual in any location; 
Whereas the cause of ALS is unknown in up to 90 percent 
of cases; 
Whereas approximately 10 percent of cases have a strong 
known genetic driver; 
Whereas on average, the period between the date on which 
an individual first experiences symptoms of ALS and the 
date on which the individual is diagnosed with ALS is 
more than 1 year; 
Whereas the onset of ALS often involves muscle weakness or 
stiffness, and the progression of ALS results in the fur-
ther weakening, wasting, and paralysis of— 
(1) the muscles of the limbs and trunk; and 
(2) the muscles that control vital functions, such as 
speech, swallowing, and breathing; 
Whereas ALS can strike individuals of any age but predomi-
nantly strikes adults; 
Whereas it is estimated that tens of thousands of individuals 
in the United States have ALS at any given time; 
Whereas based on studies of the population of the United 
States, slightly more than 5,600 individuals in the United 
States are diagnosed with ALS each year, and 15 individ-
uals in the United States are diagnosed with ALS each 
day; 
Whereas, between 2015 and 2040, the number of ALS cases 
around the world is expected to increase nearly 70 per-
cent; 
VerDate Sep 11 2014 
01:21 May 26, 2021
Jkt 019200
PO 00000
Frm 00002
Fmt 6652
Sfmt 6300
E:\BILLS\HR434.IH
HR434
pbinns on DSKJLVW7X2PROD with BILLS
•HRES 434 IH 
Whereas the majority of individuals with ALS die of res-
piratory failure; 
Whereas military veterans may be up to twice as likely to be 
diagnosed with ALS than the general public in the 
United States; 
Whereas as of the date of introduction of this resolution, 
there is no cure for ALS; 
Whereas the spouses, children, and family members of indi-
viduals living with ALS provide support to those individ-
uals with love, day-to-day care, and more; and 
Whereas an individual with ALS, and the caregivers of such 
an individual, can be required to bear significant costs 
for medical care, equipment, and home care services for 
the individual as the disease progresses: Now, therefore, 
be it 
Resolved, That the House of Representatives— 
(1) supports the designation of ‘‘ALS Aware-
ness Month’’; 
(2) affirms the dedication of the House of Rep-
resentatives to ensuring people with ALS have ac-
cess to effective treatments as soon as possible and 
identifying risk factors and causes of ALS to pre-
vent new cases; 
(3) affirms the dedication of the House of Rep-
resentatives to empowering people with ALS to en-
gage with the world in the way they want; 
VerDate Sep 11 2014 
01:21 May 26, 2021
Jkt 019200
PO 00000
Frm 00003
Fmt 6652
Sfmt 6201
E:\BILLS\HR434.IH
HR434
pbinns on DSKJLVW7X2PROD with BILLS
•HRES 434 IH 
(4) affirms the dedication of the House of Rep-
resentatives to reducing physical, emotional, and fi-
nancial burdens of living with ALS; 
(5) affirms the dedication of the House of Rep-
resentatives to ensuring all people with ALS and 
their caregivers receive high-quality services and 
supports that benefit them; and 
(6) commends the dedication of the family 
members, friends, organizations, volunteers, re-
searchers, and caregivers across the United States 
that are working to improve the quality and length 
of life of ALS patients and the development of treat-
ments and cures that reach patients as soon as pos-
sible. 
Æ 
VerDate Sep 11 2014 
01:21 May 26, 2021
Jkt 019200
PO 00000
Frm 00004
Fmt 6652
Sfmt 6301
E:\BILLS\HR434.IH
HR434
pbinns on DSKJLVW7X2PROD with BILLS