IV 
109TH CONGRESS 
2D SESSION 
H. CON. RES. 357 
Supporting the goals and ideals of National Cystic Fibrosis Awareness Month. 
IN THE HOUSE OF REPRESENTATIVES 
MARCH 14, 2006 
Mr. STEARNS (for himself, Mr. MARKEY, Mr. TOWNS, Mr. VAN HOLLEN, Mr. 
KILDEE, Mr. LEWIS of Georgia, Mr. BASS, Mr. MCCOTTER, Mr. MCNUL-
TY, Mrs. BLACKBURN, Ms. BORDALLO, Mr. UPTON, Mr. PALLONE, Mr. 
WEXLER, Mr. JEFFERSON, Mr. GRIJALVA, Mrs. DRAKE, Mr. CONYERS, 
Ms. EDDIE BERNICE JOHNSON of Texas, Mr. WAXMAN, Mrs. JO ANN 
DAVIS of Virginia, Mr. RADANOVICH, Mrs. BONO, Mr. MCGOVERN, and 
Mr. OXLEY) submitted the following concurrent resolution; which was re-
ferred to the Committee on Energy and Commerce 
CONCURRENT RESOLUTION 
Supporting the goals and ideals of National Cystic Fibrosis 
Awareness Month. 
Whereas cystic fibrosis is one of the most common life-threat-
ening genetic diseases in the United States and one for 
which there is no known cure; 
Whereas the average life expectancy of an individual with cys-
tic fibrosis is 35 years, an improvement from a life ex-
pectancy of 10 years in the 1960s, but still unacceptably 
short; 
Whereas approximately 30,000 people in the United States 
have cystic fibrosis, more than half of them children; 
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•HCON 357 IH 
Whereas one of every 3,500 babies born in the United States 
is born with cystic fibrosis; 
Whereas more than 10,000,000 Americans are unknowing, 
symptom-free carriers of the cystic fibrosis gene; 
Whereas the Centers for Disease Control and Prevention rec-
ommends that all States consider newborn screening for 
cystic fibrosis; 
Whereas the Cystic Fibrosis Foundation urges all States to 
implement newborn screening for cystic fibrosis to facili-
tate early diagnosis and treatment which improves health 
and longevity; 
Whereas prompt, aggressive treatment of the symptoms of 
cystic fibrosis can extend the lives of people who have the 
disease; 
Whereas recent advances in cystic fibrosis research have pro-
duced promising leads in gene, protein, and drug thera-
pies beneficial to people who have the disease; 
Whereas innovative research is progressing faster and is 
being conducted more aggressively than ever before, due, 
in part, to the Cystic Fibrosis Foundation’s establish-
ment of a model clinical trials network; 
Whereas although the Cystic Fibrosis Foundation continues 
to fund a research pipeline for more than two dozen po-
tential therapies and funds a nationwide network of care 
centers that extend the length and quality of life for peo-
ple with cystic fibrosis, lives continue to be lost to this 
disease every day; 
Whereas education of the public about cystic fibrosis, includ-
ing the symptoms of the disease, increases knowledge and 
understanding of cystic fibrosis and promotes early diag-
nosis; and 
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•HCON 357 IH 
Whereas the Cystic Fibrosis Foundation will conduct activi-
ties to honor National Cystic Fibrosis Awareness Month 
in May, 2006: Now, therefore, be it 
Resolved by the House of Representatives (the Senate 
concurring), That the Congress— 
(1) honors the goals and ideals of National Cys-
tic Fibrosis Awareness Month; 
(2) promotes further public awareness and un-
derstanding of cystic fibrosis; 
(3) advocates for increased support for people 
who have cystic fibrosis and their families; 
(4) encourages early diagnosis and access to 
quality care for people with cystic fibrosis to improve 
the quality of their lives; and 
(5) supports research to find a cure for cystic 
fibrosis by fostering an enhanced research program 
through a strong Federal commitment and expanded 
public-private partnerships. 
Æ 
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