IV 
109TH CONGRESS 
2D SESSION 
H. CON. RES. 465 
Expressing the sense of the Congress regarding the need for additional re-
search into the chronic neurological condition hydrocephalus, and for 
other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
JULY 28, 2006 
Mr. THOMPSON of California (for himself, Mr. MCHUGH, Mr. MCDERMOTT, 
Mr. TOM DAVIS of Virginia, Mr. SKELTON, Mr. JEFFERSON, Mr. SHER-
WOOD, Mr. SCHIFF, Ms. PELOSI, and Mr. GEORGE MILLER of California) 
submitted the following concurrent resolution; which was referred to the 
Committee on Energy and Commerce 
CONCURRENT RESOLUTION 
Expressing the sense of the Congress regarding the need 
for additional research into the chronic neurological con-
dition hydrocephalus, and for other purposes. 
Whereas hydrocephalus is a serious neurological condition, 
characterized by the abnormal buildup of cerebrospinal 
fluids in the ventricles of the brain; 
Whereas there is no known cure for hydrocephalus; 
Whereas hydrocephalus affects an estimated one million 
Americans; 
Whereas 1 or 2 in every 1000 babies are born with hydro-
cephalus; 
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Whereas over 375,000 older Americans have hydrocephalus, 
which often goes undetected or is misdiagnosed as de-
mentia, Alzheimer’s disease, or Parkinson’s disease; 
Whereas with appropriate diagnosis and treatment, people 
with hydrocephalus are able to live full and productive 
lives; 
Whereas the standard treatment for hydrocephalus was devel-
oped in 1952, and carries multiple risks including shunt 
failure, infection, and overdrainage; 
Whereas there are fewer than 10 centers in the United States 
specializing in the treatment of adults with normal pres-
sure hydrocephalus; 
Whereas each year, the people of the United States spend in 
excess of $1 billion to treat hydrocephalus; 
Whereas a September 2005 conference sponsored by 7 insti-
tutes of the National Institutes of Health—‘‘Hydro-
cephalus: Myths, New Facts, Clear Directions’’—resulted 
in efforts to initiate new, collaborative research and treat-
ment efforts; and 
Whereas the Hydrocephalus Association is one of the Na-
tion’s oldest and largest patient and research advocacy 
and support networks for individuals suffering from hy-
drocephalus: Now, therefore, be it 
Resolved by the House of Representatives (the Senate 
concurring), That it is the sense of the Congress that— 
(1) the Director of the National Institutes of 
Health should be commended for working with lead-
ing scientists and researchers to organize the first- 
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ever National Institutes of Health conference on hy-
drocephalus; 
(2) the Director of the National Institutes of 
Health should continue the current collaboration 
with respect to hydrocephalus among the National 
Institute of Neurological Disorders and Stroke; the 
Office of Rare Diseases; the National Institute on 
Aging; the National Institute of Child Health and 
Human Development; the National Eye Institute; 
the National Institute of Biomedical Imaging and 
Bioengineering; and the National Human Genome 
Research Institute; 
(3) funding should be increased for research 
into the epidemiology, pathophysiology, disease bur-
den, and improved treatment of hydrocephalus; and 
(4) public awareness and professional education 
regarding hydrocephalus should increase through 
partnerships between the Federal Government and 
patient advocacy organizations, such as the Hydro-
cephalus Association. 
Æ 
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