SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Cardiomyopathy 
Health Education, Awareness, Risk Assessment, and 
Training in the Schools (HEARTS) Act of 2013’’. 
SEC. 2. MATERIALS AND RESOURCES TO INCREASE EDU-
CATION 
AND 
AWARENESS 
OF 
CARDIO-
MYOPATHY AMONG SCHOOL ADMINISTRA-
TORS, EDUCATORS, AND FAMILIES. 
Part P of title III of the Public Health Service Act 
(42 U.S.C. 280g et seq.) is amended by adding at the end 
the following new section: 
‘‘SEC. 399V–6. MATERIALS AND RESOURCES TO INCREASE 
EDUCATION AND AWARENESS OF CARDIO-
MYOPATHY AMONG SCHOOL ADMINISTRA-
TORS, EDUCATORS, AND FAMILIES. 
‘‘(a) MATERIALS AND RESOURCES.—Not later than 
18 months after the date of the enactment of this section, 
the Secretary of Health and Human Services (in this sec-
tion referred to as the ‘Secretary’), in conjunction with 
the Director of the Centers for Disease Control and Pre-
vention (in this section referred to as the ‘Director’) and 
in consultation with national patient advocacy and health 
professional organizations expert in all forms of cardio-
myopathy, shall develop public education and awareness 
materials and resources to be disseminated to school ad-
ministrators, educators, school health professionals, coach-
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es, families, and other appropriate individuals. The mate-
rials and resources shall include— 
‘‘(1) background information to increase edu-
cation and awareness of cardiomyopathy among 
school administrators, educators, and families; 
‘‘(2) a cardiomyopathy risk assessment work-
sheet for use by parents, guardians, or other care-
givers; 
‘‘(3) guidelines regarding the placement of 
automated external defibrillators in schools and child 
care centers; 
‘‘(4) training information on automated exter-
nal defibrillators and cardiopulmonary resuscitation; 
and 
‘‘(5) recommendations for how schools and child 
care centers can develop and implement a cardiac 
emergency response plan. 
‘‘(b) DEVELOPMENT
OF
MATERIALS
AND
RE-
SOURCES.—The Secretary, through the Director, shall de-
velop and update as necessary and appropriate the mate-
rials and resources under subsection (a) and, in support 
of such effort, the Secretary is encouraged to— 
‘‘(1) establish an advisory panel composed of— 
‘‘(A) representatives from multiple national 
patient advocacy organizations and medical pro-
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fessionals expert in all forms of cardio-
myopathy; 
‘‘(B) a representative from the Centers for 
Disease Control and Prevention; and 
‘‘(C) representatives from other relevant 
Federal agencies; and 
‘‘(2) engage in a memorandum of under-
standing or cooperative agreement with a national 
nonprofit advocacy organization expert in all forms 
of cardiomyopathy. 
‘‘(c) DISSEMINATION
OF
MATERIALS
AND
RE-
SOURCES.—Not later than 30 months after the date of 
the enactment of this section, the Secretary, through the 
Director, shall disseminate the materials and resources 
under subsection (a) in accordance with the following: 
‘‘(1) DISTRIBUTION
BY
STATE
EDUCATION 
AGENCIES.—The Secretary shall make available such 
materials and resources to State educational agen-
cies to distribute— 
‘‘(A) to school administrators, educators, 
school health professionals, coaches and par-
ents, guardians, or other caregivers, the cardio-
myopathy education and awareness materials 
and resources under subsection (a); 
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‘‘(B) to parents, guardians, or other care-
givers, the cardiomyopathy risk assessment 
worksheet described in subsection (a)(2); and 
‘‘(C) to school administrators and school 
health professionals, the— 
‘‘(i) guidelines described in subsection 
(a)(3); 
‘‘(ii) training information described in 
subsection (a)(4); and 
‘‘(iii) recommendations described in 
subsection (a)(5). 
‘‘(2) DISSEMINATION
TO
HEALTH
DEPART-
MENTS AND PROFESSIONALS.—The Secretary shall 
make available such materials and resources to State 
and local health departments, pediatricians, hos-
pitals, and other health professionals, such as nurses 
and first responders. 
‘‘(3) POSTING ON WEBSITE.— 
‘‘(A) CDC.— 
‘‘(i) IN
GENERAL.—The Secretary, 
through the Director, shall post the mate-
rials and resources developed under sub-
section (a) on the public Internet website 
of the Centers for Disease Control and 
Prevention. 
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‘‘(ii) ADDITIONAL
INFORMATION.— 
The Director is encouraged to maintain on 
such public Internet website such addi-
tional 
information 
regarding 
cardio-
myopathy as deemed appropriate by the 
Director. 
‘‘(B) STATE EDUCATION AGENCIES.—State 
educational agencies are encouraged to create 
public Internet webpages dedicated to cardio-
myopathy and post the materials and resources 
developed 
under 
subsection 
(a) 
on 
such 
webpages. 
‘‘(d) REPORT TO CONGRESS.—Not later than 1 year 
after the date of the enactment of this Act, and annually 
thereafter, the Secretary shall submit to Congress a report 
identifying the steps taken to increase public education 
and awareness of cardiomyopathy as outlined under this 
section. 
‘‘(e) DEFINITIONS.—For purposes of this section: 
‘‘(1) CARDIOMYOPATHY.—The term ‘cardio-
myopathy’ means a rare heart condition, which is a 
disease of the heart muscle (myocardium)— 
‘‘(A) the symptoms of which may vary 
from case to case, including— 
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