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shall develop, in consultation with the stakeholders 
identified in subsection (e), State health agencies, 
State departments of homeland security, and volun-
teer, paid-on-call, combination, and career fire-
fighting agencies, a strategy for inclusion of fire-
fighters in the registry that are representative of the 
general population of firefighters, that outlines the 
following: 
(A) How new information about fire-
fighters will be submitted to the Firefighter 
Registry for inclusion. 
(B) How information about firefighters will 
be maintained and updated in the Firefighter 
Registry over time. 
(C) A method for estimating the number of 
fire incidents attended by a firefighter as well 
as the type of fire incident so attended in the 
case such firefighter is unable to provide such 
information. 
(D) Further information, as deemed nec-
essary by the Secretary. 
(5) ENSURING
REPRESENTATION
OF
UNDER-
REPRESENTED GROUPS IN REGISTRY.—In carrying 
out this section, the Secretary shall take such meas-
ures as the Secretary deems appropriate to encour-
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age the inclusion of data on minority, female, and 
volunteer firefighters in the Firefighter Registry es-
tablished under this section. 
(e) CONSULTATION.—The Secretary shall, on a reg-
ular basis, seek feedback regarding the utility of the Fire-
fighter Registry established under this section and ways 
the Firefighter Registry can be improved from non-Fed-
eral experts in the following areas: 
(1) Public health experts with experience in de-
veloping and maintaining cancer registries. 
(2) Epidemiologists with experience in studying 
cancer incidence. 
(3) Clinicians with experience in diagnosing and 
treating cancer incidence. 
(4) Active and retired volunteer, paid-on-call, 
and career firefighters as well as relevant national 
fire and emergency response organizations. 
(f) RESEARCH AVAILABILITY.—The Secretary shall 
develop and make public a process for de-identifying data 
from the Firefighter Registry and making such data avail-
able without a fee for research or other purposes. Such 
process shall provide that such data shall be made avail-
able for such research purposes only if there is an agree-
ment to make findings, journal articles, or other print or 
web-based publications derived from such research public 
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or available to the relevant stakeholders identified in sub-
section (e). 
(g) PRIVACY.—In carrying out this Act, the Secretary 
shall apply to the Firefighter Registry developed under 
subsection (a) data security provisions and privacy stand-
ards that comply with the best practices of the Centers 
for Disease Control and Prevention and provide for data 
privacy and security standards similar to those in the 
HIPAA privacy regulation, as defined in section 
1180(b)(3) of the Social Security Act (42 U.S.C. 1320d– 
9(b)(3)). 
(h) AUTHORIZATION OF FUNDS.—To carry out this 
section, there are authorized to be appropriated 
$2,000,000 for each of the fiscal years 2018 through 
2022. 
SEC. 3. CUT-GO COMPLIANCE. 
Subsection (f) of section 319D of the Public Health 
Service Act (42 U.S.C. 247d–4) is amended by striking 
‘‘through 2018’’ and inserting ‘‘through 2017, and 
$128,300,000 for fiscal year 2018’’. 
Passed the House of Representatives September 12, 
2017. 
Attest: 
KAREN L. HAAS, 
Clerk. 
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