SEC. 8. INTERDEPARTMENTAL AUTISM COORDINATING 
COMMITTEE. 
(a) ESTABLISHMENT.—There is established a com-
mittee, to be known as the ‘‘Interdepartmental Autism Co-
ordinating Committee’’ (referred to in this section as the 
‘‘Committee’’), to coordinate all Federal efforts concerning 
autism spectrum disorders. 
(b) RESPONSIBILITIES.—In carrying out its duties 
under this section, the Committee shall— 
(1) develop and annually update a summary of 
developments in research on autism spectrum dis-
orders, services for people on the autism spectrum 
and their families, and programs that focus on peo-
ple on the autism spectrum; 
(2) monitor governmental and nongovernmental 
activities with respect to autism spectrum disorders; 
(3) make recommendations to the Secretary of 
Health and Human Services and other relevant 
heads of agencies (referred to in this subsection as 
the ‘‘agency heads’’) regarding any appropriate 
changes to such activities and any ethical consider-
ations relating to those activities; 
(4) make recommendations to the agency heads 
regarding public participation in decisions relating to 
autism spectrum disorders; 
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(5) develop and annually update a strategic 
plan, including proposed budgetary requirements, for 
conducting and supporting research related to au-
tism spectrum disorders, services for individuals on 
the autism spectrum and their families, and pro-
grams that focus on such individuals and their fami-
lies; and 
(6) annually submit to Congress and the Presi-
dent such strategic plan and any updates to such 
plan. 
(c) MEMBERSHIP.— 
(1) FEDERAL MEMBERS.—The Committee shall 
be composed of— 
(A) the Director of the National Institutes 
of Health, and the directors of such national re-
search institutes of the National Institutes of 
Health as the Director determines appropriate; 
(B) the heads of other agencies within the 
Department of Health and Human Services, as 
the Secretary determines appropriate; and 
(C) representatives of the Department of 
Education, the Department of Defense, and 
other Federal agencies that provide services to 
individuals with autism spectrum disorders and 
their families or that have programs that affect 
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individuals with autism spectrum disorders, as 
the Secretary determines appropriate. 
(2) NON-FEDERAL
MEMBERS.—Not less than 
2⁄5 of the total membership of the Committee shall 
be composed of public members to be appointed by 
the Secretary, of which— 
(A) at least one such member shall be an 
individual with an autism spectrum disorder; 
(B) at least one such member shall be a 
parent or legal guardian of an individual with 
an autism spectrum disorder; 
(C) at least one such member shall be a 
representative of a nongovernmental organiza-
tion that provides services to individuals with 
autism spectrum disorders or their families; and 
(D) at least one such member shall be a 
representative of a leading research, advocacy, 
and service organization for individuals with au-
tism spectrum disorders and their families. 
(d) ADMINISTRATIVE SUPPORT; TERMS OF SERVICE; 
OTHER PROVISIONS.—The following provisions shall apply 
with respect to the Committee: 
(1) The Committee shall receive necessary and 
appropriate administrative support from the Sec-
retary. 
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(2) Members of the Committee appointed under 
subsection (c)(2) shall serve for a term of 4 years 
and may be reappointed for one or more additional 
4-year terms. The term of any member appointed 
under subsection (c)(2)(C) or subsection (c)(2)(D) 
shall expire if the member no longer represents the 
organization described in such subsections. Any 
member appointed to fill a vacancy for an unexpired 
term shall be appointed for the remainder of such 
term. A member may serve after the expiration of 
the member’s term until a successor has taken of-
fice. 
(3) The Committee shall be chaired by the Sec-
retary or the Secretary’s designee. The Committee 
shall meet at the call of the chairperson and not 
fewer than 2 times each year. 
(4) All meetings of the Committee or its sub-
committees shall be public and shall include appro-
priate time periods for questions and presentations 
by the public. 
(5) The Committee may convene workshops and 
conferences. 
(e) SUBCOMMITTEES: ESTABLISHMENT AND MEM-
BERSHIP.— 
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(1) ESTABLISHMENT OF SUBCOMMITTEES.—In 
carrying out its functions, the Committee may estab-
lish— 
(A) a subcommittee on research on autism 
spectrum disorders; 
(B) a subcommittee on services for individ-
uals with autism spectrum disorders and their 
families and programs that focus on individuals 
with autism spectrum disorders; and 
(C) such other subcommittees as the Com-
mittee determines appropriate. 
(2) MEMBERSHIP.—Subcommittees may include 
as members individuals who are not members of the 
Committee. 
(3) MEETINGS.—Subcommittees may hold such 
meetings as are necessary. 
(f) INTERAGENCY
AUTISM
COORDINATING
COM-
MITTEE.—Part R of title III of the Public Health Service 
Act (42 U.S.C. 280i) is amended by striking section 
399CC (42 U.S.C. 284i–2). 
SEC. 9. NATIONAL NETWORK FOR AUTISM SPECTRUM DIS-
ORDERS RESEARCH AND SERVICES. 
(a) DEFINITIONS.—In this section: 
(1) SERVICES.—The term ‘‘services’’ means 
services to assist individuals with autism spectrum 
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disorders to live more independently in their commu-
nities and improve the quality of life of such individ-
uals. 
(2) SECRETARY.—The term ‘‘Secretary’’ means 
the Secretary of Health and Human Services. 
(3) TREATMENTS.—The term ‘‘treatments’’ 
means the health services, including mental health 
and behavioral therapy services, designed to improve 
or ameliorate symptoms associated with autism spec-
trum disorders. 
(4) AUTISM CARE CENTER.—In this subpart, 
the term ‘‘autism care center’’ means a center that 
is directed by a primary care coordinator who is an 
expert in autism spectrum disorder treatment and 
practice and provides an array of medical, commu-
nication, psychological, behavioral, educational, and 
family services to individuals with autism and their 
families. Such a center shall— 
(A) incorporate the attributes of the care 
management model; 
(B) offer, through on-site service provision 
or through detailed referral and coordinated 
care arrangements, an autism management 
team of appropriate providers, including behav-
ioral specialists, physicians, occupational thera-
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pists, 
speech-language 
pathologists, 
audiol-
ogists, psychologists, social workers, family 
therapists, nurse practitioners, nurses, edu-
cators, and other appropriate personnel; and 
(C) have the capability to achieve improve-
ments in the management and coordination of 
care for targeted beneficiaries. 
(b) ESTABLISHMENT OF THE NATIONAL NETWORK 
FOR AUTISM SPECTRUM DISORDERS RESEARCH
AND 
SERVICES.—Not later than 1 year after the date of enact-
ment of this Act, the Secretary shall establish the National 
Network for Autism Spectrum Disorders Research and 
Services (referred to in this section as the ‘‘National Net-
work’’). The National Network shall provide resources for, 
and facilitate communication between, autism spectrum 
disorder researchers and service providers for individuals 
with autism spectrum disorders and their families. 
(c) PURPOSES.—The purposes of the National Net-
work are to— 
(1) build upon the infrastructure relating to au-
tism spectrum disorders that exists on the date of 
enactment of this Act; 
(2) strengthen linkages between autism spec-
trum disorders research and service initiatives at the 
Federal, regional, State, and local levels; 
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(3) facilitate the translation of research on au-
tism spectrum disorders into services and treatments 
to improve the quality of life for individuals with au-
tism and their families; and 
(4) ensure the rapid dissemination of evidence- 
based or promising autism spectrum disorder prac-
tices through the National Data Repository for Au-
tism Spectrum Disorders Research and Services de-
scribed in subsection (e). 
(d) ORGANIZATION AND ACTIVITIES OF THE NA-
TIONAL NETWORK.—In establishing the National Net-
work, the Secretary, acting through Administrator of the 
Health Resources and Services Administration, shall en-
sure that the National Network is composed of entities 
at the Federal, regional, State, and local levels. 
(e) NATIONAL
DATA
REPOSITORY
FOR
AUTISM 
SPECTRUM DISORDERS RESEARCH AND SERVICES.— 
(1) IN GENERAL.—The Secretary shall establish 
a National Data Repository for Autism Spectrum 
Disorders Research and Services (referred to in this 
section as the ‘‘Data Repository’’) and shall contract 
with one eligible third-party entity to develop and 
administer such repository (referred to in this sec-
tion as the ‘‘Data Repository Administrator’’). The 
Data Repository shall be used to collect, store, and 
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disseminate information regarding research, data, 
findings, models of treatment, training modules, and 
technical assistance materials related to autism spec-
trum disorders in order to facilitate the development 
and rapid dissemination of research into best prac-
tices that improve care. 
(2) ELIGIBILITY.—To be eligible to receive the 
contract described in paragraph (1), an entity 
shall— 
(A) be a public or private nonprofit entity; 
and 
(B) have experience— 
(i) collecting data; 
(ii) developing systems to store data 
in a secure manner that does not person-
ally identify individuals; 
(iii) developing internet web portals 
and other means of communicating with a 
wide audience; and 
(iv) making information available to 
the public. 
(3) CONTENTS.—The Data Repository shall in-
clude— 
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(A) emerging research, data, and findings 
regarding autism spectrum disorders from basic 
and applied researchers and service providers; 
(B) emerging or promising models of treat-
ment, service provision, and training related to 
autism spectrum disorders that are developed in 
individual care centers or programs; and 
(C) training modules and technical assist-
ance materials. 
(4) DUTIES
OF
THE
ADMINISTRATOR.—The 
Data Repository Administrator shall— 
(A) collect information from autism spec-
trum disorders research and service provision 
agencies and organizations including— 
(i) Centers of Excellence in Autism 
Spectrum Disorder Epidemiology under 
section 399AA(b) of the Public Health 
Service Act (42 U.S.C. 280i(b)); 
(ii) autism care centers; 
(iii) recipients of grants through the 
grant program for adult services under 
section 399II of the Public Health Service 
Act, as added by section 6 of this Act; and 
(iv) members and recipients of the na-
tional training initiatives on autism spec-
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trum disorders under section 399KK of the 
Public Health Service Act, as added by 
section 11 of this Act; 
(B) securely store and maintain informa-
tion in the Data Repository in a manner that 
does not personally identify individuals; 
(C) make information in the Data Reposi-
tory accessible through an Internet web portal 
or other appropriate means of sharing informa-
tion; 
(D) ensure that the information contained 
in the Data Repository is accessible to the Na-
tional Network, including health care providers, 
educators, and other autism spectrum disorders 
service providers at the national, State, and 
local levels; and 
(E) provide a means through the Internet 
web portal, or through other means, for mem-
bers of the National Network to share informa-
tion, research, and best practices on autism 
spectrum disorders. 
(f) SUPPLEMENT NOT SUPPLANT.—Amounts pro-
vided under this section shall be used to supplement, not 
supplant, amounts otherwise expended for existing net-
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