I 
113TH CONGRESS 
1ST SESSION H. R. 2607 
To establish programs with respect to childhood, adolescent, and young adult 
cancer. 
IN THE HOUSE OF REPRESENTATIVES 
JUNE 28, 2013 
Mr. VAN HOLLEN (for himself, Mr. MCCAUL, Mr. UPTON, Ms. SPEIER, Mr. 
REICHERT, Ms. CASTOR of Florida, Mr. KING of New York, Mr. WAX-
MAN, and Mr. HARPER) introduced the following bill; which was referred 
to the Committee on Energy and Commerce 
A BILL 
To establish programs with respect to childhood, adolescent, 
and young adult cancer. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Caroline Pryce Walker 
Conquer Childhood Cancer Reauthorization Act’’. 
SEC. 2. FINDINGS. 
Congress finds as follows: 
(1) Every year, 13,500 children in the United 
States are diagnosed with cancer. 
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(2) While the cure rates for some childhood 
cancers are now over 80 percent, the survival rates 
for many types of cancers in children remain ex-
tremely low. 
(3) According to the Centers for Disease Con-
trol and Prevention, cancer continues to be the lead-
ing cause of death by disease in children and adoles-
cents under the age of 14. 
(4) There are currently more than 360,000 
childhood cancer survivors living in the United 
States. 
(5) As many as two-thirds of childhood cancer 
survivors experience at least one long-term health ef-
fect of their cancer treatment, including secondary 
malignancies, cardiopulmonary damage, physical and 
intellectual developmental impairments, endocrine 
disorders, and others. 
(6) Collection of biospecimens and clinical and 
demographic data on the maximum possible number 
of children with cancer in the United States is nec-
essary to improve childhood cancer treatments and 
cures. Currently biospecimens and some demo-
graphic data are collected for less than half of chil-
dren with cancer. 
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SEC. 3. COMPREHENSIVE CHILDREN’S CANCER BIOREPOSI-
TORIES. 
(a) IN GENERAL.—Section 417E of the Public 
Health Service Act (42 U.S.C. 285a–11) is amended— 
(1) by redesignating subsections (c) and (d) as 
subsections (k) and (l), respectively; 
(2) by striking subsections (a) and (b) and in-
serting the following: 
‘‘(a) COMPREHENSIVE CHILDREN’S CANCER BIO-
REPOSITORIES.—The Secretary, acting through the Direc-
tor of NIH, may make an award for a duration of at least 
5 years to an entity or entities described in subsection (d) 
to build upon existing initiatives to collect biospecimens 
and clinical and demographic information for at least 90 
percent of all children, adolescents, and young adults with 
cancer in 1 or more Comprehensive Children’s Cancer Bio-
repositories to achieve a better understanding of the cause 
of such cancers and the effects of treatments for such can-
cers. 
‘‘(b) USE OF FUNDS.—Amounts received under the 
award under subsection (a) may be used to carry out the 
following: 
‘‘(1) Prospectively acquire, preserve, and store 
high-quality, donated biospecimens and associated 
clinical and demographic information on children, 
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