IV 
113TH CONGRESS 
2D SESSION 
H. RES. 513 
Supporting the goals and ideals of the week of May 3, 2014, through May 
10, 2014, as ‘‘National Osteogenesis Imperfecta Awareness Week’’ to 
celebrate the progress made, and recognize the work yet to be done 
toward educating our communities, promoting research programs and 
raising vital resources for doctors, nurses, and healthcare providers and 
everyone touched by the Osteogenesis Imperfecta community. 
IN THE HOUSE OF REPRESENTATIVES 
MARCH 11, 2014 
Mr. RUPPERSBERGER submitted the following resolution; which was referred 
to the Committee on Energy and Commerce 
RESOLUTION 
Supporting the goals and ideals of the week of May 3, 
2014, through May 10, 2014, as ‘‘National Osteogenesis 
Imperfecta Awareness Week’’ to celebrate the progress 
made, and recognize the work yet to be done toward 
educating our communities, promoting research programs 
and raising vital resources for doctors, nurses, and 
healthcare providers and everyone touched by the 
Osteogenesis Imperfecta community. 
Whereas Osteogenesis Imperfecta (OI), also known as ‘‘brittle 
bone disease’’ is a genetic disorder characterized by frag-
ile bones that break easily; 
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•HRES 513 IH 
Whereas the number of people in the United States affected 
with OI is estimated to be 25,000 to 50,000; 
Whereas a person with mild OI may experience a few frac-
tures while those with the severe forms may have hun-
dreds in a lifetime; 
Whereas OI occurs with equal frequency among males and fe-
males and among all racial and ethnic groups; 
Whereas at this time, there is no cure; 
Whereas it is thought that OI causes many other serious 
chronic medical conditions such as muscle weakness, joint 
laxity, fragile skin, hearing loss, brittle teeth, fatigue, 
easy bleeding and bruising, scoliosis, pulmonary disease, 
and cardiovascular disease; 
Whereas experienced medical care for OI is limited; 
Whereas a person is born with this disorder and is affected 
throughout his or her lifetime; 
Whereas despite the challenges of managing OI, most adults 
and children who have OI lead productive and successful 
lives; and 
Whereas May 3, 2014, through May 10, 2014, has been des-
ignated by the Osteogenesis Imperfecta Foundation as 
‘‘National Osteogenesis Imperfecta Awareness Week’’: 
Now, therefore, be it 
Resolved, That the House of Representatives— 
(1) supports— 
(A) the goals and ideals of ‘‘National 
Osteogenesis Imperfecta Awareness Week’’; 
(B) efforts to educate the people in the 
United States about Osteogenesis Imperfecta; 
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•HRES 513 IH 
(C) efforts to promote research; and 
(D) efforts in raising vital resources for 
doctors, nurses, and health care providers; 
(2) recognizes the critical importance of these 
goals and efforts as part of wellness strategies; and 
(3) calls on the people of the United States to 
observe ‘‘National Osteogenesis Imperfecta Aware-
ness Week’’ with appropriate programs and activi-
ties. 
Æ 
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