SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘National Bone Marrow
Donor Registry Reauthorization Act’’.
SEC. 2. NATIONAL BONE MARROW DONOR REGISTRY.
(a) NATIONAL REGISTRY.—Section 379 of the Public
Health Service Act (42 U.S.C. 274k) is amended—
(1) in subsection (a)—
(A) in paragraph (1), by striking ‘‘except
that’’ and all that follows and inserting ‘‘except
that—
‘‘(A) such limitations shall not apply to the
Chair of the board (or the Chair-elect) or to the
member of the board who most recently served
as the Chair; and
‘‘(B) 1 additional consecutive 2-year term
may be served by any member of the board who
has no employment, governance, or financial af-
filiation with any donor center, recruitment
group, transplant center, or cord blood bank.’’;
and
(B) in paragraph (4)—
(i) by striking ‘‘the Naval Medical Re-
search and Development Command’’ and
inserting ‘‘the Department of Defense
Marrow Donor Recruitment and Research
Program operated by the Department of
the Navy’’; and
(ii) by striking ‘‘Organ’’ after ‘‘Divi-
sion of’’;
(2) in subsection (b)—
(A) in paragraph (4), by inserting ‘‘at
least’’ before ‘‘annually’’;
(B) in paragraph (7), by striking ‘‘and
comparisons of transplant centers regarding
search and other costs that prior to transplan-
tation are charged to patients by transplant
centers; and’’;
(C) in paragraph (8), by inserting ‘‘and
outreach’’ after ‘‘and demonstration’’;
(D) at the end of paragraph (8), by strik-
ing the period and inserting a semicolon;
(E) 
by 
redesignating 
paragraphs 
(3)
through (8) as paragraphs (4) through (9);
(F) by inserting after paragraph (2), the
following:
‘‘(3) maintain and expand medical emergency
contingency response capabilities in concert with
Federal programs for response to threats of use of
terrorist or military weapons that can damage mar-
row, such as ionizing radiation or chemical agents
containing mustard, so that the capability of sup-
porting patients with marrow damage from disease
can be used to support casualties with marrow dam-
age;’’; and
(G) by adding at the end the following:
‘‘(10) conduct and support research to improve
the availability, efficiency, safety, and cost of trans-
plants from unrelated donors and the effectiveness
of Registry operations;
‘‘(11) increase the number of umbilical cord
blood units listed in the Registry and assist cord
blood banks in the Registry program in accordance
with subsection (c); and
‘‘(12) establish bylaws and procedures—
‘‘(A) to prohibit any member of the board
of directors of the Registry who has an employ-
ment, governance, or financial affiliation with a
donor center, recruitment group, transplant
center, or cord blood bank from participating in
any decision that materially affects the center,
recruitment group, transplant center, or cord
blood bank; and
‘‘(B) to limit the number of members of
the board with any such affiliation.’’;
(3) in subsection (c)—
(A) in clause (ii) of paragraph (2)(A), by
striking ‘‘, including providing updates’’; and
(B) in paragraph (3), by striking ‘‘the
availability, as a potential treatment option, of
receiving a transplant of bone marrow from an
unrelated donor’’ and inserting ‘‘transplants
from unrelated donors as a treatment option
and resources for identifying and evaluating
other therapeutic alternatives’’;
(4) in subsection (d)—
(A) in paragraph (2)(C), by inserting ‘‘and
assist with information regarding third party
payor matters’’ after ‘‘ongoing search for a
donor’’;
(B) in paragraph (2)(F)—
(i) by redesignating clause (v) as
clause (vi); and
(ii) by inserting after clause (iv) the
following:
‘‘(v) Information concerning issues
that patients may face after a transplant
regarding continuity of care and quality of
life.’’; and
(C) in paragraph (3)(B), by striking ‘‘Of-
fice may’’ and inserting ‘‘Office shall’’;
(5) in subsection (g), by striking ‘‘the bone
marrow donor program of the Department of the
Navy’’ and inserting ‘‘the Department of Defense
Marrow Donor Recruitment and Research Program
operated by the Department of the Navy’’;
(6) in subsection (h)—
(A) by striking ‘‘APPLICATION.—’’ and in-
serting ‘‘CONTRACTS.—’’;
(B) by striking ‘‘To be eligible’’ and insert-
ing the following:
‘‘(1) APPLICATION.—To be eligible’’; and
(C) by adding at the end the following:
‘‘(2) CONSIDERATIONS.—In awarding contracts
under this section, the Secretary shall give substan-
tial weight to the continued safety of donors and pa-
tients and other factors deemed appropriate by the
Secretary.’’;
(7) in subsection (i), by striking ‘‘include’’ and
inserting ‘‘be’’; and
(8) by striking subsection (l).
(b) BONE MARROW SCIENTIFIC REGISTRY.—Section
379A of the Public Health Service Act (42 U.S.C. 274l)
is amended—
(1) in subsection (a), by adding at the end the
following: ‘‘The scientific registry shall participate in
medical research that has the potential to improve
transplant outcomes.’’;
(2) in subsection (c), by striking ‘‘Each such re-
port shall in addition include the data required in
section 379(l) (relating to pretransplant costs).’’;
and
(3) by adding after subsection (c) the following:
‘‘(d) PUBLICLY AVAILABLE DATA.—The scientific
registry shall make relevant scientific information not con-
taining individually identifiable information available to
the public in the form of summaries and data sets to en-
courage medical research and to provide information to
transplant programs, physicians, and patients.’’.
(c) BONE MARROW AND MARROW DEFINED.—Part
I of title III of the Public Health Service Act (42 U.S.C.
274k et seq.) is amended—
(1) by redesignating section 379B as section
379C; and
(2) by inserting after section 379A the fol-
lowing:
‘‘SEC. 379B. BONE MARROW AND MARROW DEFINED.
‘‘For purposes of this part, the terms ‘bone marrow’
and ‘marrow’ include bone marrow and any other source
of hematopoietic progenitor cells the acquisition or use of
which is not inconsistent with Federal law.’’.
(d) AUTHORIZATION OF APPROPRIATIONS.—Section
379C of the Public Health Service Act, as redesignated
by subsection (c), is amended to read as follows:
‘‘SEC. 379C. AUTHORIZATION OF APPROPRIATIONS.
‘‘(a) IN GENERAL.—For the purpose of carrying out
this part, there are authorized to be appropriated
$32,000,000 for fiscal year 2004, and such sums as may
be necessary for each of the fiscal years 2005 through
2008.
‘‘(b) EMERGENCY CONTINGENCY RESPONSE CAPA-
BILITIES.—In addition to the amounts authorized to be
appropriated under subsection (a), there are authorized to
be appropriated such sums as may be necessary for the
maintenance and expansion of emergency contingency re-
sponse capabilities under section 379(b)(3).’’.
Passed the House of Representatives October 1,
2003.
Attest:
Clerk.