Human Services Office of Minority Health and be col-
lected, analyzed, and reported in accordance with the 
standards promulgated by the Assistant Secretary for 
Planning and Evaluation under title XXXI of the Public 
Health Service Act (42 U.S.C. 300kk et seq.). 
(c) TIMELINE.—The data made available under this 
section shall be updated on a daily basis throughout the 
public health emergency. 
(d) PRIVACY.—In publishing data under this section, 
the Secretary shall take all necessary steps to protect the 
privacy of individuals whose information is included in 
such data, including— 
(1) complying with privacy protections provided 
under the regulations promulgated under section 
264(c) of the Health Insurance Portability and Ac-
countability Act of 1996; and 
(2) protections from all inappropriate internal 
use by an entity that collects, stores, or receives the 
data, including use of such data in determinations of 
eligibility (or continued eligibility) in health plans, 
and from inappropriate uses. 
(e) INDIAN HEALTH SERVICE.—The Indian Health 
Service shall consult with Indian Tribes and confer with 
urban Indian organizations on data collection and report-
ing for purposes of this Act. 
VerDate Sep 11 2014 
01:00 Mar 31, 2021
Jkt 019200
PO 00000
Frm 00011
Fmt 6652
Sfmt 6201
E:\BILLS\H1370.IH
H1370
pbinns on DSKJLVW7X2PROD with BILLS
(f) SUMMARY.—Not later than 60 days after the date 
on which the Secretary certifies that the public health 
emergency related to COVID–19 has ended, the Secretary 
shall make publicly available a summary of the final statis-
tics related to COVID–19. 
(g) REPORT.—Not later than 60 days after the date 
on which the Secretary certifies that the public health 
emergency related to COVID–19 has ended, the Depart-
ment of Health and Human Services shall compile and 
submit to the Committee on Health, Education, Labor, 
and Pensions and the Committee on Finance of the Senate 
and the Committee on Energy and Commerce and the 
Committee on Ways and Means of the House of Rep-
resentatives a preliminary report— 
(1) describing the testing, hospitalization, mor-
tality rates, vaccination rates, and preferred lan-
guage of patients associated with COVID–19 by race 
and ethnicity; and 
(2) proposing evidenced-based response strate-
gies to safeguard the health of these communities in 
future pandemics. 
(h) TRIBAL EXCEPTION.—Indian Tribes may opt out 
of any of the requirements of this section. 
VerDate Sep 11 2014 
01:00 Mar 31, 2021
Jkt 019200
PO 00000
Frm 00012
Fmt 6652
Sfmt 6201
E:\BILLS\H1370.IH
H1370
pbinns on DSKJLVW7X2PROD with BILLS
SEC. 5. COMMISSION ON ENSURING DATA FOR HEATH EQ-
UITY. 
(a) IN GENERAL.—Not later than 30 days after the 
date of enactment of this Act, the Secretary shall establish 
a commission, to be known as the ‘‘Commission on Ensur-
ing Data for Heath Equity’’ (referred to in this section 
as the ‘‘Commission’’) to provide clear and robust guid-
ance on how to improve the collection, analysis, and use 
of demographic data in responding to future public health 
emergencies. 
(b) MEMBERSHIP AND CHAIRPERSON.— 
(1) MEMBERSHIP.—The Commission shall be 
composed of— 
(A) the Director of the Centers for Disease 
Control and Prevention; 
(B) the Director of the National Institutes 
of Health; 
(C) the Commissioner of Food and Drugs; 
(D) the Administrator of the Federal 
Emergency Management Agency; 
(E) the Director of the National Institute 
on Minority Health and Health Disparities; 
(F) the Director of the Indian Health 
Service; 
(G) the Administrator of the Centers for 
Medicare & Medicaid Services; 
VerDate Sep 11 2014 
01:00 Mar 31, 2021
Jkt 019200
PO 00000
Frm 00013
Fmt 6652
Sfmt 6201
E:\BILLS\H1370.IH
H1370
pbinns on DSKJLVW7X2PROD with BILLS
(H) the Director of the Agency for 
Healthcare Research and Quality; 
(I) the Surgeon General; 
(J) the Administrator of the Health Re-
sources and Services Administration; 
(K) the Director of the Office of Minority 
Health; 
(L) the Director of the Office of Women’s 
Health; 
(M) the Chairperson of the National Coun-
cil on Disability; 
(N) at least 4 State, local, territorial, and 
Tribal public health officials representing de-
partments of public health, or an urban Indian 
health representative, who shall represent juris-
dictions from different regions of the United 
States with relatively high concentrations of 
historically marginalized populations, to be ap-
pointed by the Secretary; and 
(O) at least 3 independent experts of ra-
cially and ethnically diverse representation with 
knowledge or field experience with racial and 
ethnic disparities in public health appointed by 
the Secretary. 
VerDate Sep 11 2014 
01:00 Mar 31, 2021
Jkt 019200
PO 00000
Frm 00014
Fmt 6652
Sfmt 6201
E:\BILLS\H1370.IH
H1370
pbinns on DSKJLVW7X2PROD with BILLS
(2) CHAIRPERSON.—The President of the Na-
tional Academies of Sciences, Engineering, and Med-
icine, or designee, shall serve as the chairperson of 
the Commission. 
(c) DUTIES.—The Commission shall— 
(1) examine barriers to collecting, analyzing, 
and using demographic data; 
(2) determine how to best use such data to pro-
mote health equity across the United States and re-
duce racial, Tribal, and other demographic dispari-
ties in health outcomes; 
(3) gather available data related to treatment of 
individuals with disabilities during the COVID–19 
pandemic and other public health emergencies, in-
cluding access to vaccinations, denial of treatment 
for pre-existing conditions, removal or denial of dis-
ability related equipment (including ventilators and 
CPAP machines), and data on completion of DNR 
orders, and identify barriers to obtaining accurate 
and timely data related to treatment of such individ-
uals; 
(4) solicit input from public health officials, 
community-connected organizations, health care pro-
viders, State and local agency officials, Tribal offi-
VerDate Sep 11 2014 
01:00 Mar 31, 2021
Jkt 019200
PO 00000
Frm 00015
Fmt 6652
Sfmt 6201
E:\BILLS\H1370.IH
H1370
pbinns on DSKJLVW7X2PROD with BILLS