I 
118TH CONGRESS 
2D SESSION 
H. R. 7432 
To amend title XIX of the Social Security Act to enable State Medicaid 
programs to provide comprehensive, coordinated care through a health 
home to individuals with sickle cell disease. 
IN THE HOUSE OF REPRESENTATIVES 
FEBRUARY 23, 2024 
Mr. BURGESS (for himself and Mr. DAVIS of Illinois) introduced the following 
bill; which was referred to the Committee on Energy and Commerce 
A BILL 
To amend title XIX of the Social Security Act to enable 
State Medicaid programs to provide comprehensive, co-
ordinated care through a health home to individuals with 
sickle cell disease. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Sickle Cell Disease 
Comprehensive Care Act’’. 
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SEC. 2. ENABLING STATE MEDICAID PROGRAMS TO PRO-
VIDE CARE THROUGH HEALTH HOMES TO IN-
DIVIDUALS WITH SICKLE CELL DISEASE. 
Section 1945 of the Social Security Act (42 U.S.C. 
1396w–4) is amended— 
(1) in subsection (a), by inserting ‘‘(and, begin-
ning January 1, 2025, to eligible individuals with 
sickle cell disease (as described under subsection 
(c)(5)))’’ after ‘‘chronic conditions’’; and 
(2) in subsection (c)— 
(A) in paragraph (1), by inserting ‘‘and 
each eligible individual with sickle cell disease’’ 
after ‘‘chronic conditions’’; and 
(B) by adding at the end the following new 
paragraph: 
‘‘(5) SPECIAL RULE RELATING TO SICKLE CELL 
DISEASE HEALTH HOMES.— 
‘‘(A) IN GENERAL.—Beginning January 1, 
2025, the Secretary may approve a State plan 
amendment under this section that is designed 
to provide health home services primarily to eli-
gible individuals with sickle cell disease (in this 
section referred to as a ‘sickle cell disease-fo-
cused State plan amendment’). 
‘‘(B) REPORT
REQUIREMENTS.—In the 
case of a State with a sickle cell disease-focused 
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State plan amendment, such State shall, at the 
end of the first 8 fiscal year quarters that such 
State plan amendment is in effect, submit to 
the Secretary a report on the following, with re-
spect to eligible individuals with sickle cell dis-
ease provided health home services under such 
State plan amendment: 
‘‘(i) The quality of health care pro-
vided to such individuals, with a focus on 
outcomes relevant to the recovery of each 
such individual. 
‘‘(ii) The access of such individuals to 
health care. 
‘‘(iii) The total expenditures of such 
individuals for health care. 
For purposes of this subparagraph, the Sec-
retary shall specify all applicable measures for 
determining quality, access, and expenditures. 
‘‘(C) BEST
PRACTICES.—Not later than 
June 30, 2025, the Secretary shall make pub-
licly available on the internet website of the 
Centers for Medicare & Medicaid Services best 
practices for designing and implementing a 
sickle cell disease-focused State plan amend-
ment, based on clinical practice guidelines for 
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sickle cell diseases developed by medical spe-
cialty societies and in consultation with sickle 
cell disease providers and patient advocacy or-
ganizations. 
‘‘(D) DEFINITIONS.—For purposes of this 
section: 
‘‘(i) 
ELIGIBLE
INDIVIDUAL
WITH 
SICKLE CELL DISEASE.—The term ‘eligible 
individual with sickle cell disease’ means, 
with respect to a State, an individual who 
satisfies all of the following: 
‘‘(I) The individual is eligible for 
medical assistance under the State 
plan or under a waiver of such plan. 
‘‘(II) The individual has sickle 
cell disease. 
‘‘(III) The individual may or may 
not have previously received health 
home services under any other State 
plan amendment approved for the 
State under this section by the Sec-
retary. 
‘‘(ii) SICKLE
CELL
DISEASE.—The 
term ‘sickle cell disease’ means an inher-
ited blood disorder affecting red blood cells 
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