I
104TH CONGRESS
2D SESSION
H. R. 3514
To amend the Public Health Service Act to provide for programs of research
regarding Parkinson’s disease, and for other purposes.
IN THE HOUSE OF REPRESENTATIVES
MAY 22, 1996
Mr. SMITH of the New Jersey (for himself, Mr. VOLKMER, and Mr. FLANA-
GAN) introduced the following bill; which was referred to the Committee
on Commerce
A BILL
To amend the Public Health Service Act to provide for
programs of research regarding Parkinson’s disease, and
for other purposes.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘Parkinson’s Research,
Assistance, and Education Act of 1996’’.
SEC. 2. FINDINGS AND PURPOSE.
(a) FINDINGS.—The Congress finds that—
(1) Parkinson’s disease and related disorders
are neurological disorders affecting over 1,000,000
Americans; and
(2) approximately $28,000,000 in Federal
funds was allocated by the National Institutes of
Health in fiscal year 1995 for research specifically
on Parkinson’s disease.
(b) PURPOSE.—It is the purpose of this Act to pro-
vide for the expansion and coordination of research con-
cerning Parkinson’s disease and related disorders, to im-
prove care and assistance for afflicted individuals and
their families, and to improve public awareness about such
conditions.
SEC. 3. BIOMEDICAL RESEARCH ON PARKINSON’S DISEASE.
Part B of title IV of the Public Health Service Act
(42 U.S.C. 284 et seq.) is amended by adding at the end
the following section:
‘‘PARKINSON’S DISEASE
‘‘SEC. 409B. (a) IN GENERAL.—The Director of
NIH shall establish a program for the conduct and sup-
port of research and training, the dissemination of health
information, and other programs with respect to Parkin-
son’s disease and related disorders (in this section referred
to as Parkinson’s).
‘‘(b) INTERAGENCY COORDINATING COMMITTEE.—
‘‘(1) IN GENERAL.—The Director of NIH shall
establish a committee to be known as the Inter-
agency Coordinating Committee on Parkinson’s Dis-
ease (in this subsection referred to as the ‘Coordi-
nating Committee’).
‘‘(2) DUTIES.—With respect to Parkinson’s, the
Coordinating Committee shall—
‘‘(A) provide for the coordination of the ac-
tivities of the national research institutes; and
‘‘(B) coordinate the aspects of all Federal
health programs and activities relating to Par-
kinson’s in order to assure the adequacy, effec-
tiveness, and technical soundness of such pro-
grams and activities and in order to provide for
the full communication and exchange of infor-
mation necessary to maintain adequate coordi-
nation of such programs and activities.
‘‘(3) COMPOSITION.—The Coordinating Com-
mittee shall be composed of—
‘‘(A) the directors of each of the national
research institutes and other agencies involved
in research with respect to Parkinson’s;
‘‘(B) one representative of the relevant
Federal departments and agencies whose pro-
grams involve health functions or responsibil-
ities relevant to such disease;
‘‘(C) individuals with the disease and indi-
viduals who have a family history with the dis-
ease; and
‘‘(D) health professionals or allied health
professionals.
‘‘(4) CHAIR.—The Coordinating Committee
shall be chaired by the Director of NIH (or the des-
ignee of the Director). The Committee shall meet at
the call of the chair, but not less often than once
each year.
‘‘(5) ANNUAL
REPORT.—Not later than 120
days after the end of each fiscal year, the Coordinat-
ing Committee shall prepare and submit to the Sec-
retary, the Director of NIH, and the directors speci-
fied in paragraph (3)(A) a report detailing the ac-
tivities of the Committee in such fiscal year in carry-
ing out paragraph (2).
‘‘(c) MORRIS K. UDALL RESEARCH CENTERS.—
‘‘(1) IN GENERAL.—The Director of NIH shall
award Core Center Grants to encourage the develop-
ment of innovative multidisciplinary research and
provide training concerning Parkinson’s. The Direc-
tor shall award not more than 10 Core Center
Grants and designate each center funded under such
grants as a Morris K. Udall Center for Research on
Parkinson’s Disease.
‘‘(2) REQUIREMENTS.—
‘‘(A) IN GENERAL.—With respect to Par-
kinson’s, each center assisted under this sub-
section shall—
‘‘(i) use the facilities of a single insti-
tution or a consortium of cooperating insti-
tutions, and meet such qualifications as
may be prescribed by the Director of the
NIH; and
‘‘(ii) conduct basic and clinical re-
search and provide patient care services.
‘‘(B) DISCRETIONARY
REQUIREMENTS.—
With respect to Parkinson’s, each center as-
sisted under this subsection may—
‘‘(i) conduct training programs for
scientists and health professionals;
‘‘(ii) conduct programs to provide in-
formation and continuing education to
health professionals;
‘‘(iii) conduct programs for the dis-
semination of information to the public;
and