ments with one or more ChiPACC coordinators, of 
the ChiPACC under this section in the State. 
‘‘(6) REGULATIONS.—Except as otherwise pro-
vided, the term ‘regulations’ refers to interim final 
or final regulations promulgated under subsection 
(g). 
‘‘(c) SCOPE
OF BENEFITS; BENEFICIARY SAFE-
GUARDS.— 
‘‘(1) IN
GENERAL.—Under a ChiPACC of a 
State, the State administering agency shall assure 
that— 
‘‘(A) 
an 
individual 
enrolled 
in 
the 
ChiPACC is øcovered for¿, at a minimum— 
‘‘(i) all items and services that are 
covered for any individual under this title, 
and all additional items and services speci-
fied in regulations, but without any limita-
tion or condition as to amount, duration, 
or scope; 
‘‘(ii) access to covered items and serv-
ices, as needed, 24 hours per day, every 
day of the year; and 
‘‘(iii) services that include comprehen-
sive, integrated palliative and curative 
services, expressive therapy and counseling, 
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and counseling and anticipatory bereave-
ment services to immediate family mem-
bers of the ChiPACC eligible individual, as 
part of the services to the eligible indi-
vidual; 
‘‘(B) provision of such services to such in-
dividuals through a comprehensive, interdiscipli-
nary and multidisciplinary health and social 
services delivery system which integrates, as ap-
propriate to the individual recipient of services, 
acute and long-term care services, palliative, 
respite and curative treatment, counseling and 
support for family members who are caretakers 
or otherwise relevant to appropriate care and 
treatment of the individual, and such other 
services as may be furnished pursuant to regu-
lations and the provisions of the applicable 
State plan; and 
‘‘(C) the ChiPACC is operated, and the 
services to enrolled individuals are furnished, in 
a manner that is consistent with Standards of 
Care and Practice Guidelines developed by Chil-
dren’s Hospice International for a Program of 
All-Inclusive Care for Children (as in effect as 
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of the date of the enactment of this section or 
such later date as the Secretary may specify). 
‘‘(2) QUALITY
ASSURANCE; 
PATIENT
SAFE-
GUARDS.—With respect to a ChiPACC, the State 
administering agency shall assure the following: 
‘‘(A) The provision of services under the 
ChiPACC meets Federal and State guidelines 
for quality assurance. 
‘‘(B) Necessary safeguards have been es-
tablished to protect the health and welfare of 
individuals enrolled in the ChiPACC under this 
section. 
‘‘(C) There is financial accountability of 
funds expended under this title with respect to 
such services. 
‘‘(D) There is a written plan of quality as-
surance, and procedures implementing such 
plan, in accordance with regulations. 
‘‘(E) Written safeguards of the rights of 
individuals enrolled in the ChiPACC, including 
a patient bill of rights and procedures for griev-
ances and appeals, in accordance with regula-
tions and with other requirements of this title 
and Federal and State law designed for the pro-
tection of patients. 
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‘‘(F) There are in effect procedures for 
data collection, record maintenance and reten-
tion, and the development of outcome measures, 
and such other policies, systems, and proce-
dures as are sufficient to afford the Secretary 
and the State administering agency access to 
records and data relating to the ChiPACC, in-
cluding pertinent financial, medical, and per-
sonnel records. 
‘‘(G) The agency shall submit to the Sec-
retary such reports as the Secretary finds (in 
consultation with State administering agencies) 
necessary to monitor the operation, cost, and 
effectiveness of ChiPACCs. 
‘‘(3) COST-SHARING WAIVER.—A State admin-
istering agency may, in the case of a ChiPACC eligi-
ble individual enrolled in the State’s ChiPACC, 
waive deductibles, copayments, coinsurance, or other 
cost-sharing that would otherwise apply under the 
State plan under this title. 
‘‘(d) ELIGIBILITY DETERMINATIONS.— 
‘‘(1) IN GENERAL.—In determining whether an 
individual is a ChiPACC eligible individual, the 
State administering agency shall conduct an inde-
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pendent evaluation and assessment, which shall in-
clude the following: 
‘‘(A) Where appropriate, consultation with 
the individual’s family, guardian, or other re-
sponsible individual. 
‘‘(B) Consultation with appropriate treat-
ing and consulting health and support profes-
sionals caring for the individual. 
‘‘(C) An examination of the individual’s 
relevant history, medical records, and care and 
support needs, guided by best practices and re-
search on effective strategies that result in im-
proved health and quality of life outcomes. 
‘‘(2) CERTIFICATION.—Upon completion of the 
evaluation and assessment described in paragraph 
(1), an individual meeting the criteria of a ChiPACC 
eligible individual shall be certified as such, pursuant 
to procedures specified in regulations and the appli-
cable State plan. 
‘‘(3) CONTINUATION OF ELIGIBILITY.—An indi-
vidual who is a ChiPACC eligible individual may be 
deemed to continue to be such an individual notwith-
standing a determination that the individual no 
longer meets the requirement of subsection (b)(2)(B) 
if, in accordance with regulations, it is reasonably 
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