‘‘(vii) the Food and Drug Administra-
tion; 
‘‘(viii) the National Science Founda-
tion; 
‘‘(ix) the Department of Defense; 
‘‘(x) the Environmental Protection 
Agency; 
‘‘(xi) the Office of Minority Health; 
‘‘(xii) the Indian Health Service; 
‘‘(xiii) the Surgeon General of the Pub-
lic Health Service; and 
‘‘(xiv) other relevant Federal depart-
ments and agencies as determined by the 
Secretary. 
‘‘(B) NON-FEDERAL
MEMBERS.—In addi-
tion to the members listed in subparagraph (A), 
the Advisory Council shall include 10 expert 
members, to be appointed by the Secretary, who 
shall include representatives of minority commu-
nities, communities disproportionately affected 
by Parkinson’s, and communities underrep-
resented in Parkinson’s research, who shall each 
be from outside the Federal Government, and 
who shall include— 
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‘‘(i) 2 Parkinson’s patient advocates, 
at least 1 of whom is living with young- 
onset Parkinson’s; 
‘‘(ii) 1 Parkinson’s family caregiver; 
‘‘(iii) 1 health care provider; 
‘‘(iv) 2 biomedical researchers with 
Parkinson’s-related 
expertise 
in 
basic, 
translational, clinical, or drug development 
science; 
‘‘(v) 1 movement disorder specialist 
who treats Parkinson’s patients; 
‘‘(vi) 1 dementia specialist who treats 
Parkinson’s patients; and 
‘‘(vii) 2 representatives from nonprofit 
organizations that have demonstrated expe-
rience in Parkinson’s-related research or 
Parkinson’s-related patient care and other 
services. 
‘‘(C) 
REPRESENTATION.—The 
Secretary 
shall ensure that the members of the Advisory 
Council are collectively representative of agen-
cies, professions, individuals, and entities con-
cerned with, or affected by, activities under this 
section. 
‘‘(3) MEETINGS.— 
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‘‘(A) FREQUENCY.—The Advisory Council 
shall meet— 
‘‘(i) at least once each quarter during 
the 2-year period beginning on the date on 
which the Advisory Council is established; 
and 
‘‘(ii) at the Secretary’s discretion after 
such period. 
‘‘(B) ANNUAL
RESEARCH
MEETING.—Not 
later than 24 months after the date of enactment 
of this section, and every year thereafter, the Ad-
visory Council shall convene a meeting of Fed-
eral and non-Federal organizations to discuss 
Parkinson’s research. 
‘‘(C) OPEN MEETINGS.—The meetings under 
subparagraphs (A) and (B) shall be open to the 
public. 
‘‘(4) ANNUAL
REPORT.—Not later than 18 
months after the date of enactment of this section, and 
every year thereafter, the Advisory Council shall pro-
vide to the Secretary and Congress a report con-
taining— 
‘‘(A) a list of all federally-funded efforts in 
Parkinson’s 
research, 
prevention, 
diagnosis, 
treatment, clinical care, and institutional-, 
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home-, and community-based programs and the 
outcomes of such efforts; 
‘‘(B) recommendations for priority actions 
to expand, eliminate, coordinate, refocus, stream-
line, or condense Federal programs based on each 
program’s performance, mission, scope, and pur-
pose; 
‘‘(C) recommendations to— 
‘‘(i) reduce the financial impact of 
Parkinson’s on families living with Parkin-
son’s; 
‘‘(ii) improve health outcomes for, and 
the quality of life of, individuals living with 
Parkinson’s; 
‘‘(iii) prevent Parkinson’s, ameliorate 
symptoms, and slow or stop progression; 
‘‘(iv) improve the quality of care pro-
vided to beneficiaries with Parkinson’s who 
receive coverage through a federally-funded 
health care program, such as the Medicare 
program under title XVIII of the Social Se-
curity Act or the Medicaid program under 
title XIX of such Act; 
‘‘(v) research the association between 
environmental triggers and Parkinson’s to 
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help reduce exposure to potential triggers; 
and 
‘‘(vi) research and better understand 
the underlying factors contributing to Par-
kinson’s; 
‘‘(D) priority actions to improve all feder-
ally-funded efforts in Parkinson’s research, pre-
vention, diagnosis, treatment, clinical care, and 
institutional-, home-, and community-based pro-
grams; 
‘‘(E) an evaluation of the implementation, 
including outcomes, of the national plan under 
subsection (c)(1); and 
‘‘(F) implementation steps to address the 
recommendations and priority actions under 
subparagraphs (B), (C), and (D), based in part 
on the evaluation under subparagraph (E). 
‘‘(5) TERMINATION.—The Advisory Council shall 
terminate at the end of calendar year 2035. 
‘‘(f) INFORMATION SHARING.—Each Federal depart-
ment and agency that has information relating to Parkin-
son’s shall share such information with the Secretary con-
sistent with the statutory obligations of such department 
or agency regarding disclosure of information, as necessary 
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to enable the Secretary to complete a report under sub-
section (e)(4). 
‘‘(g) SUNSET.—The section shall cease to be effective 
at the end of calendar year 2035.’’. 
Amend the title so as to read: ‘‘A bill to direct the 
Secretary of Health and Human Services to carry out a 
national project to prevent, diagnose, treat, and cure Par-
kinson’s, to be known as the National Parkinson’s 
Project, and for other purposes.’’. 
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Union Calendar No. 253 
118TH CONGRESS 
1ST SESSION 
H. R. 2365 
[Report No. 118–313] 
A BILL 
To direct the Secretary of Health and Human 
Services to carry out a national project to pre-
vent and cure Parkinson’s, to be known as the 
National Parkinson’s Project, and for other pur-
poses. 
DECEMBER 12, 2023 
Reported with amendments, committed to the Committee 
of the Whole House on the State of the Union, and or-
dered to be printed 
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