Diseases shall make grants or enter into contracts with
eligible organizations to establish a Resource Center on
Osteoporosis and Related Disorders.
‘‘(b) PURPOSE.—The purpose of the Resource Center
shall be to facilitate and enhance knowledge and under-
standing of osteoporosis and related bone disorders by dis-
seminating information about research results, services
and educational materials, to health professionals, pa-
tients, and the public.
‘‘(c) FUNCTIONS.—An organization receiving a grant
or contract under this section shall—
‘‘(1) compile, archive, and disseminate informa-
tion concerning research, demonstration, evaluation,
and training programs and projects concerning
osteoporosis and related bone disorders;
‘‘(2) annually publish a summary of the infor-
mation compiled under paragraph (1) during the
preceding 12-month period, and make the informa-
tion available on request to appropriate individuals
and entities, including educational institutions, re-
search entities, and Federal and public agencies;
‘‘(3) provide information and assistance in
accessing community services to patients and the
public;
‘‘(4) coordinate regional training programs for
the development of health professional resource net-
works on osteoporosis and related bone disorders;
and
‘‘(5) maintain a resource library on osteoporosis
and related bone disorders.
‘‘(d) INFORMATION
SYSTEM
AND
TELEPHONE
LINE.—
‘‘(1) INFORMATION SYSTEM.—An organization
receiving a grant or contract under this section shall
establish a central computerized information system
to—
‘‘(A) compile and disseminate information
concerning initiatives by State and local govern-
ments and private entities to provide programs
and services for individuals with osteoporosis;
and
‘‘(B) translate scientific and technical in-
formation concerning the initiatives into infor-
mation readily understandable by the general
public, and make the information available on
request.
‘‘(2) TELEPHONE LINE.—An organization re-
ceiving a grant or contract under this section shall
establish a national toll-free telephone line to make
available the information described in paragraph (1)
and information concerning Federal programs, serv-
ices, and benefits for individuals with osteoporosis
and their families.
‘‘(e) FEES.—In accordance with regulations issued by
the Secretary, the organization receiving a grant or con-
tract under this section shall charge appropriate fees for
providing information through the Research Center as
specified in subsections (c) or (d). The organization may
make exceptions to the fees for individuals and organiza-
tions who are not financially able to pay the fees. The or-
ganization shall transfer the sums obtained from payment
of the fees to the Secretary, who shall use the sums to
carry out this section.
‘‘(f) APPLICATION OR PROPOSAL.—In order to re-
ceive a grant or enter into a contract under this section,
an organization shall submit an application or proposal
to the Director of the National Institute of Arthritis and
Musculoskeletal and Skin Diseases. The application or
proposal shall contain—
‘‘(1) information demonstrating that the organi-
zation has a network of contacts that will enable the
organization to receive information necessary to op-
erate the central computerized information system
described in subsection (d)(1); and
‘‘(2) such other information as the Director
may prescribe.
‘‘(g) ELIGIBLE ORGANIZATIONS.—Organizations eli-
gible to receive grants under this section shall include pub-
lic and private nonprofit organizations that are knowledge-
able about osteoporosis and related bone disorders. The
Secretary shall establish additional eligibility criteria for
organizations to receive grants or enter into contracts
under this section.
‘‘(h) RESEARCH SUMMARIES.—The Director of the
National Institute of Arthritis and Musculoskeletal and
Skin Diseases, the National Institute on Aging, the Na-
tional Institute of Diabetes, Digestive, and Kidney Dis-
eases, the National Institute on Dental Research, and
other agencies specified by the Secretary shall provide to
the Resource Center summaries of the findings of research
conducted on osteoporosis, related bone disorders, or rel-
evant treatments for osteoporosis or related bone dis-
orders.
‘‘(i) AUTHORIZATION OF APPROPRIATIONS.—There
are authorized to be appropriated to carry out this section
$500,000 for fiscal year 1994, and such sums as may be
necessary for fiscal years 1995 and 1996.’’.
Æ
HR 1844 IH——2