I 
116TH CONGRESS 
1ST SESSION H. R. 1903 
To amend the Older Americans Act of 1965 to support individuals with 
younger onset Alzheimer’s disease. 
IN THE HOUSE OF REPRESENTATIVES 
MARCH 27, 2019 
Miss RICE of New York (for herself, Ms. STEFANIK, Mr. KING of New York, 
Mr. TRONE, Mr. SMITH of New Jersey, and Ms. WATERS) introduced the 
following bill; which was referred to the Committee on Education and 
Labor 
A BILL 
To amend the Older Americans Act of 1965 to support 
individuals with younger onset Alzheimer’s disease. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Younger Onset Alz-
heimer’s Act’’. 
SEC. 2. FINDINGS. 
Congress finds the following: 
(1) Approximately 5,800,000 individuals in the 
United States are living with Alzheimer’s disease. 
VerDate Sep 11 2014 
00:11 Apr 09, 2019
Jkt 089200
PO 00000
Frm 00001
Fmt 6652
Sfmt 6201
E:\BILLS\H1903.IH
H1903
pamtmann on DSKBFK8HB2PROD with BILLS
This includes approximately 200,000 individuals 
with younger onset Alzheimer’s disease. 
(2) Alzheimer’s disease costs the United States 
more 
than 
$290,000,000 
per 
year, 
including 
$195,000,000 in costs to Medicare and Medicaid. 
(3) The Older Americans Act of 1965 (42 
U.S.C. 3001 et seq.) includes services that focus on 
the needs of individuals with Alzheimer’s disease and 
related disorders. The need to specifically support 
individuals with younger onset Alzheimer’s disease is 
growing. 
SEC. 3. YOUNGER ONSET ALZHEIMER’S DISEASE. 
The Older Americans Act of 1965 is amended— 
(1) in section 102 (42 U.S.C. 3002), by adding 
at the end the following: 
‘‘(55) The term ‘younger onset Alzheimer’s dis-
ease’, with respect to an individual, means an indi-
vidual with Alzheimer’s disease or a related disorder 
who has not attained 60 years of age.’’; 
(2) in section 302(3) (42 U.S.C. 3022(3)), by 
inserting ‘‘, including an individual with younger 
onset Alzheimer’s disease’’ before the period; 
(3) in section 711(6) (42 U.S.C. 3058f(6)), by 
inserting ‘‘of any age’’ after ‘‘individual’’; and 
VerDate Sep 11 2014 
00:11 Apr 09, 2019
Jkt 089200
PO 00000
Frm 00002
Fmt 6652
Sfmt 6201
E:\BILLS\H1903.IH
H1903
pamtmann on DSKBFK8HB2PROD with BILLS
(4) 
in 
section 
721(b)(13) 
(42 
U.S.C. 
3058i(b)(13))— 
(A) in subparagraph (B), by striking ‘‘; 
or’’; 
(B) in subparagraph (C), by striking the 
period and inserting ‘‘; or’’; and 
(C) by adding at the end the following: 
‘‘(D) individuals with Alzheimer’s disease, 
including those with younger onset Alzheimer’s 
disease.’’. 
SEC. 4. REPORT. 
(a) IN GENERAL.—Not later than 300 days after the 
date of enactment of this Act, and annually thereafter, 
the Assistant Secretary for Aging shall submit a report, 
to the committees of Congress described in subsection (b), 
that includes— 
(1) an overview of programmatic functions and 
performance with respect to the amendments made 
by section 3, including information about individuals 
with younger onset Alzheimer’s disease; and 
(2) an identification of the gaps in needs of in-
dividuals with younger onset Alzheimer’s disease. 
(b) COMMITTEES.—The committees of Congress de-
scribed in this subsection are— 
VerDate Sep 11 2014 
00:11 Apr 09, 2019
Jkt 089200
PO 00000
Frm 00003
Fmt 6652
Sfmt 6201
E:\BILLS\H1903.IH
H1903
pamtmann on DSKBFK8HB2PROD with BILLS
(1) the Special Committee on Aging, the Com-
mittee on Health, Education, Labor, and Pensions, 
and the Committee on Finance, of the Senate; and 
(2) the Committee on Education and Labor, 
and the Committee on Energy and Commerce, of the 
House of Representatives. 
SEC. 5. DEFINITION OF YOUNGER ONSET ALZHEIMER’S DIS-
EASE. 
In this Act, the term ‘‘younger onset Alzheimer’s dis-
ease’’ has the meaning given the term in section 102(55) 
of the Older Americans Act of 1965 (42 U.S.C. 3002(55)), 
as added by section 3. 
Æ 
VerDate Sep 11 2014 
00:11 Apr 09, 2019
Jkt 089200
PO 00000
Frm 00004
Fmt 6652
Sfmt 6301
E:\BILLS\H1903.IH
H1903
pamtmann on DSKBFK8HB2PROD with BILLS