I
105TH CONGRESS
1ST SESSION
H. R. 1260
To amend the Public Health Service Act to provide for the establishment
of a program for research and training with respect to Parkinson’s disease.
IN THE HOUSE OF REPRESENTATIVES
APRIL 16, 1997
Mr. UPTON (for himself, Mr. WAXMAN, Mr. MURTHA, Mr. ABERCROMBIE, Mr.
ALLEN, Mr. ACKERMAN, Mr. BALDACCI, Mr. BARRETT of Wisconsin, Mr.
BEREUTER, Mr. BERMAN, Mr. BLAGOJEVICH, Mr. BLUMENAUER, Mr.
BORSKI, Mr. BOUCHER, Mr. BROWN of California, Mr. CAMPBELL, Mr.
CAPPS, Mr. CARDIN, Ms. CARSON, Mr. CHAMBLISS, Mrs. CLAYTON, Mr.
CONDIT, Mr. COYNE, Mr. DAVIS of Virginia, Mr. DEAL of Georgia, Mr.
DEFAZIO, Mr. DELLUMS, Mr. DINGELL, Mr. ENGLISH of Pennsylvania,
Ms. ESHOO, Mr. EVANS, Mr. FALEOMAVAEGA, Mr. FAZIO of California,
Mr. FILNER, Mr. FLAKE, Mr. FOGLIETTA, Mr. FOLEY, Mr. FORBES, Mr.
FRANK
of 
Massachusetts, 
Mr. 
FRANKS
of 
New 
Jersey, 
Mr.
FRELINGHUYSEN, Mr. FROST, Mr. FOX of Pennsylvania, Mr. GALLEGLY,
Mr. GILMAN, Mr. GONZALEZ, Mr. GUTIERREZ, Mr. HASTINGS of Florida,
Mr. HEFNER, Mr. HILLIARD, Mr. HINCHEY, Mr. HORN, Mr. JACKSON
of Illinois, Ms. EDDIE BERNICE JOHNSON of Texas, Mr. KENNEDY of
Rhode Island, Mrs. KENNELLY of Connecticut, Mr. KLUG, Mr. KOLBE,
Mr. LAMPSON, Mr. LEWIS of Georgia, Ms. LOFGREN, Mrs. LOWEY, Mrs.
MALONEY of New York, Mr. MARTINEZ, Mr. MASCARA, Mrs. MCCARTHY
of New York, Mr. MCDADE, Ms. MCKINNEY, Mrs. MEEK of Florida, Mr.
MENENDEZ, Mr. MILLER of California, Mrs. MINK of Hawaii, Ms. MOL-
INARI, Mrs. MORELLA, Mr. NEAL of Massachusetts, Ms. NORTON, Mr.
OBERSTAR, Mr. OLVER, Mr. OWENS, Mr. PALLONE, Mr. PASCRELL, Mr.
PASTOR, Mr. PAYNE, Ms. PELOSI, Mr. PRICE of North Carolina, Ms.
PRYCE of Ohio, Mr. QUINN, Mr. RAMSTAD, Mr. ROTHMAN, Mr. SABO,
Ms. SANCHEZ, Mr. SANDERS, Mr. SCHIFF, Mr. SERRANO, Mr. SHADEGG,
Mr. SHAYS, Mr. SKAGGS, Mr. SKEEN, Mrs. TAUSCHER, Mr. THOMPSON,
Mrs. THURMAN, Mr. TOWNS, Mr. TRAFICANT, Mr. UNDERWOOD, Mr.
VENTO, Mr. WISE, Mr. YATES, Mr. BONIOR, Mr. HEFLEY, and Ms.
WOOLSEY) introduced the following bill; which was referred to the Com-
mittee on Commerce
A BILL
To amend the Public Health Service Act to provide for
the establishment of a program for research and training
with respect to Parkinson’s disease.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘Morris K. Udall Par-
kinson’s Research Act of 1997’’.
SEC. 2. FINDING AND PURPOSE.
(a) FINDING.—Congress finds that to take full ad-
vantage of the tremendous potential for finding a cure or
effective treatment, the Federal investment in Parkinson’s
must be expanded, as well as the coordination strength-
ened among the National Institutes of Health research in-
stitutes.
(b) PURPOSE.—It is the purpose of this Act to pro-
vide for the expansion and coordination of research re-
garding Parkinson’s, and to improve care and assistance
for afflicted individuals and their family caregivers.
SEC. 3. PARKINSON’S RESEARCH.
Part B of title IV of the Public Health Service Act
(42 U.S.C. 284 et seq.) is amended by adding at the end
the following:
‘‘PARKINSON’S DISEASE
‘‘SEC. 409B. (a) IN GENERAL.—The Director of
NIH shall establish a program for the conduct and sup-
port of research and training with respect to Parkinson’s
disease (subject to the extent of amounts appropriated
under subsection (e)).
‘‘(b) INTER-INSTITUTE COORDINATION.—
‘‘(1) IN GENERAL.—The Director of NIH shall
provide for the coordination of the program estab-
lished under subsection (a) among all of the national
research institutes conducting Parkinson’s research.
‘‘(2) CONFERENCE.—Coordination under para-
graph (1) shall include the convening of a research
planning conference not less frequently than once
every 2 years. Each such conference shall prepare
and submit to the Committee on Appropriations and
the Committee on Labor and Human Resources of
the Senate and the Committee on Appropriations
and the Committee on Commerce of the House of
Representatives a report concerning the conference.
‘‘(c) MORRIS K. UDALL RESEARCH CENTERS.—
‘‘(1) IN GENERAL.—The Director of NIH shall
award Core Center Grants to encourage the develop-
ment of innovative multidisciplinary research and
provide training concerning Parkinson’s. The Direc-
tor shall award not more than 10 Core Center
Grants and designate each center funded under such
grants as a Morris K. Udall Center for Research on
Parkinson’s Disease.
‘‘(2) REQUIREMENTS.—
‘‘(A) IN GENERAL.—With respect to Par-
kinson’s, each center assisted under this sub-
section shall—
‘‘(i) use the facilities of a single insti-
tution or a consortium of cooperating insti-
tutions, and meet such qualifications as
may be prescribed by the Director of the
NIH; and
‘‘(ii) conduct basic and clinical re-
search.
‘‘(B) DISCRETIONARY
REQUIREMENTS.—
With respect to Parkinson’s, each center as-
sisted under this subsection may—
‘‘(i) conduct training programs for
scientists and health professionals;
‘‘(ii) conduct programs to provide in-
formation and continuing education to
health professionals;
‘‘(iii) conduct programs for the dis-
semination of information to the public;
‘‘(iv) separately or in collaboration
with other centers, establish a nationwide
data system derived from patient popu-
lations with Parkinson’s, and where pos-
sible, comparing relevant data involving
general populations;
‘‘(v) separately or in collaboration
with other centers, establish a Parkinson’s
Disease Information Clearinghouse to fa-
cilitate and enhance knowledge and under-
standing of Parkinson’s disease; and
‘‘(vi) separately or in collaboration
with other centers, establish a national
education program that fosters a national
focus on Parkinson’s and the care of those
with Parkinson’s.
‘‘(3) STIPENDS
REGARDING
TRAINING
PRO-
GRAMS.—A center may use funds provided under
paragraph (1) to provide stipends for scientists and
health professionals enrolled in training programs
under paragraph (2)(B).
‘‘(4) DURATION
OF
SUPPORT.—Support of a
center under this subsection may be for a period not
exceeding five years. Such period may be extended
by the Director of NIH for one or more additional
periods of not more than five years if the operations
of such center have been reviewed by an appropriate
technical and scientific peer review group established
by the Director and if such group has recommended
to the Director that such period should be extended.
‘‘(d) MORRIS K. UDALL AWARDS FOR EXCELLENCE
IN PARKINSON’S DISEASE RESEARCH.—The Director of
NIH shall establish a grant program to support investiga-
tors with a proven record of excellence and innovation in
Parkinson’s research and who demonstrate potential for
significant future breakthroughs in the understanding of
the pathogensis, diagnosis, and treatment of Parkinson’s.
Grants under this subsection shall be available for a period
of not to exceed 5 years.
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—For the
purpose of carrying out this section, there are authorized
to be appropriated $100,000,000 for fiscal year 1998, and
such sums as may be necessary for each of the fiscal years
1999 and 2000.’’.
Æ