I 
119TH CONGRESS 
1ST SESSION H. R. 6682 
To advance research, promote awareness, and provide patient support with 
respect to endometriosis, and for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
DECEMBER 11, 2025 
Ms. WILLIAMS of Georgia (for herself, Ms. UNDERWOOD, Ms. ADAMS, Mr. 
CISNEROS, Ms. CLARKE of New York, Ms. FRIEDMAN, Mr. FROST, Mr. 
GOLDMAN of New York, Mr. HERNA´NDEZ, Mr. KENNEDY of New York, 
Mrs. MCIVER, Ms. NORTON, Mr. POCAN, Mr. DAVID SCOTT of Georgia, 
Ms. TLAIB, Mr. TONKO, Mrs. WATSON COLEMAN, Mr. BISHOP, Mr. 
MOULTON, Ms. BROWN, Ms. LOFGREN, and Mr. GOTTHEIMER) intro-
duced the following bill; which was referred to the Committee on Energy 
and Commerce 
A BILL 
To advance research, promote awareness, and provide patient 
support with respect to endometriosis, and for other pur-
poses. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Endometriosis Cov-
erage, Awareness, Research, and Education Act’’ or the 
‘‘Endometriosis CARE Act’’. 
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SEC. 2. FINDINGS. 
The Congress finds as follows: 
(1) Endometriosis is a disease in which tissue 
similar to the lining of the uterus grows outside the 
uterus. It can cause severe pain in the pelvis and 
make it harder to get pregnant. Endometriosis often 
causes severe pain in the pelvis, especially during 
menstrual periods. Some people also have pain dur-
ing sex or when using the bathroom. Some people 
have trouble getting pregnant. 
(2) It causes a chronic inflammatory reaction 
that may result in the formation of scar tissue (ad-
hesions, fibrosis) within the pelvis and other parts of 
the body. The cause of endometriosis is unknown. 
There is no known way to prevent endometriosis. 
There is no cure, but its symptoms can be treated 
with medicines or, in some cases, surgery. 
SEC. 3. ENDOMETRIOSIS COVERAGE, AWARENESS, RE-
SEARCH, AND EDUCATION. 
Part F of title IV of the Public Health Service Act 
(42 U.S.C. 287d et seq.) is amended by adding at the end 
the following: 
‘‘SEC. 486C. ENDOMETRIOSIS COVERAGE, AWARENESS, RE-
SEARCH, AND EDUCATION. 
‘‘(a) ADVANCING ENDOMETRIOSIS DATA COLLEC-
TION, SURVEILLANCE, AND RESEARCH.— 
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‘‘(1) IN GENERAL.—The Director of NIH shall 
conduct or support data collection, surveillance, and 
research related to endometriosis. 
‘‘(2) USE
OF
FUNDS.—In carrying out sub-
section (a), the Director may— 
‘‘(A) conduct or support research and re-
lated activities regarding endometriosis, includ-
ing research to improve treatment options and 
develop a cure for endometriosis; 
‘‘(B) establish or expand an internet clear-
inghouse to catalog existing endometriosis re-
search, treatment options, and related informa-
tion for patients and health care professionals; 
or 
‘‘(C) carry out related activities as deter-
mined by the Director. 
‘‘(3) AUTHORIZATION
OF
APPROPRIATIONS.— 
To carry out this subsection, there is authorized to 
be appropriated $50,000,000 for each of fiscal years 
2026 through 2030. 
‘‘(b) IDENTIFYING BARRIERS TO ACCESSING TREAT-
MENTS FOR ENDOMETRIOSIS SYMPTOMS.— 
‘‘(1) RESEARCH.—The Secretary shall conduct 
an analysis of barriers that individuals diagnosed 
with endometriosis face in accessing treatments for 
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endometriosis symptoms, including transportation 
barriers and barriers caused by health care profes-
sional shortages. 
‘‘(2) TOPICS.—In carrying out the analysis 
under paragraph (1), the Secretary may— 
‘‘(A) assess data from the Transformed 
Medicaid Statistical Information System related 
to services furnished to individuals diagnosed 
with endometriosis for the treatment of endo-
metriosis symptoms under State Medicaid pro-
grams under title XIX of the Social Security 
Act and Children’s Health Insurance Programs 
under title XXI of such Act; and 
‘‘(B) assess data related to services fur-
nished to individuals diagnosed with endo-
metriosis for the treatment of endometriosis 
symptoms under group health plans or group or 
individual health insurance coverage offered by 
a health insurance issuer (as those terms are 
defined in section 2791). 
‘‘(3) DATA
COLLECTION.—To carry out the 
analysis under paragraph (1), the Secretary may re-
quire— 
‘‘(A) group health plans or issuers of 
group or individual health insurance coverage to 
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provide such information as may be required to 
assess barriers that individuals diagnosed with 
endometriosis face in accessing treatments for 
endometriosis symptoms, including a lack of in-
surance coverage or cost-sharing requirements 
for such treatments; and 
‘‘(B) State Medicaid programs and Chil-
dren’s Health Insurance Programs to collect 
and report data related to services furnished to 
individuals diagnosed with endometriosis for the 
treatment of endometriosis symptoms through 
the Transformed Medicaid Statistical Informa-
tion System, including data stratified by rel-
evant demographic characteristics. 
‘‘(4) PRIVACY
REQUIREMENTS.—In carrying 
out the analysis under paragraph (1), the Secretary 
shall ensure that the privacy and confidentiality of 
individual patients are protected in a manner con-
sistent with relevant privacy and confidentiality 
laws. 
‘‘(5) REPORT.—Not later than two years after 
the date of enactment of this section, the Secretary 
shall submit to the Congress, and make publicly 
available on the website of the Department of 
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Health and Human Services, a report on the anal-
ysis carried out under this subsection. 
‘‘(c) EDUCATION AND DISSEMINATION OF INFORMA-
TION WITH RESPECT TO ENDOMETRIOSIS.— 
‘‘(1) ENDOMETRIOSIS PUBLIC EDUCATION PRO-
GRAM.—The Secretary shall develop, and dissemi-
nate to the public, information regarding endo-
metriosis, including information on— 
‘‘(A) the awareness, incidence, and preva-
lence of endometriosis, with a particular focus 
on individuals from racial and ethnic minority 
groups (as defined in section 1707(g)) and 
other underserved groups; 
‘‘(B) culturally and linguistically appro-
priate support that is available to address the 
mental health impacts of endometriosis; and 
‘‘(C) the availability, as medically appro-
priate, of the range of treatment options for 
symptoms of endometriosis. 
‘‘(2) DISSEMINATION
OF
INFORMATION.—The 
Secretary may disseminate information under para-
graph (1) directly or through arrangements with 
intra-agency initiatives, nonprofit organizations, con-
sumer groups, institutions of higher education (as 
defined in section 101 of the Higher Education Act 
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of 1965), or Federal, State, or local public private 
partnerships. 
‘‘(3) AUTHORIZATION
OF
APPROPRIATIONS.— 
To carry out this subsection, there is authorized to 
be appropriated $2,000,000 for each of fiscal years 
2026 through 2030. 
‘‘(d) INFORMATION TO HEALTH CARE PROVIDERS 
WITH RESPECT TO ENDOMETRIOSIS.— 
‘‘(1) DISSEMINATION
OF
INFORMATION.—The 
Secretary shall, in consultation with relevant health 
care professional societies and associations, dissemi-
nate information to health care professionals, health 
care-related organizations, and health systems to 
promote evidence-based care for individuals with 
endometriosis, including information related to— 
‘‘(A) 
detecting 
and 
diagnosing 
endo-
metriosis; 
‘‘(B) providing care for individuals with 
endometriosis; 
‘‘(C) communicating with patients about 
endometriosis; and 
‘‘(D) related topics. 
‘‘(2) AUTHORIZATION
OF
APPROPRIATIONS.— 
To carry out this section, there is authorized to be 
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appropriated $2,000,000 for each of fiscal years 
2026 through 2030. 
‘‘(e) ENDOMETRIOSIS DISPARITIES STUDY THROUGH 
NATIONAL ACADEMIES.— 
‘‘(1) IN GENERAL.—The Secretary shall seek to 
enter an agreement, not later than 90 days after the 
date of enactment of this section, with the National 
Academies of Sciences, Engineering, and Medicine 
(referred to in this section as the ‘National Acad-
emies’) under which the National Academies agree 
to conduct a study on endometriosis disparities. 
‘‘(2) STUDY REQUIREMENTS.—The agreement 
under paragraph (1) shall direct the National Acad-
emies to— 
‘‘(A) assess endometriosis prevalence, de-
tection, treatment, and outcome disparities by 
race, ethnicity, geography, primary language, 
sexual orientation, gender identity, disability 
status, and insurance status, and related topics 
as determined by the Secretary; and 
‘‘(B) make recommendations to the Con-
gress, Federal agencies, health care profes-
sionals, and other relevant stakeholders based 
on the National Academies’ findings pursuant 
to subparagraph (A). 
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‘‘(3) REPORT.—The agreement under para-
graph (1) shall direct the National Academies to 
complete the study under this section, and transmit 
to the Congress and make publicly available a report 
on the results of the study, not later than 24 months 
after the date of enactment of this section. 
‘‘(4) AUTHORIZATION
OF
APPROPRIATIONS.— 
To carry out this subsection, there is authorized to 
be appropriated $500,000.’’. 
Æ 
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