‘‘(2) RELIANCE ON GUIDELINES.—In carrying 
out this subsection, the Secretary shall rely, where 
appropriate, on existing guidelines for care of child-
hood cancer survivors.’’. 
SEC. 4. NIH CANCER SURVIVORSHIP PROGRAMS. 
(a) TECHNICAL AMENDMENT.— 
(1) 
IN
GENERAL.—Section 
of 
the 
Hematological Cancer Research Investment and 
Education Act of 2002 (Public Law 107–172; 116 
Stat. 541) is amended by striking ‘‘section 419C’’ 
and inserting ‘‘section 417C’’. 
(2) EFFECTIVE DATE.—The amendment made 
by paragraph (1) shall take effect as if included in 
section 3 of the Hematological Cancer Research In-
vestment and Education Act of 2002 (Public Law 
107–172; 116 Stat. 541). 
(b) CANCER SURVIVORSHIP PROGRAMS.—Subpart 1 
of part C of title IV of the Public Health Service Act (42 
U.S.C. 285 et seq.), as amended by subsection (a), is 
amended by adding at the end the following: 
‘‘SEC. 417E. EXPANSION OF CANCER SURVIVORSHIP ACTIVI-
TIES. 
‘‘(a) EXPANSION OF ACTIVITIES.—The Director of 
the Institute shall coordinate the activities of the National 
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Institutes of Health with respect to cancer survivorship, 
including childhood cancer survivorship. 
‘‘(b) PRIORITY AREAS.—In carrying out subsection 
(a), the Director of the Institute shall give priority to the 
following: 
‘‘(1) Comprehensive assessment of the preva-
lence and etiology of late effects of cancer and its 
treatment, including physical, neurocognitive, and 
psychosocial late effects. Such assessment shall in-
clude— 
‘‘(A) development of a system for patient 
tracking and analysis; 
‘‘(B) establishment of a system of tissue 
collection, banking, and analysis for childhood 
cancers, using guidelines from the Office of 
Biorepositories and Biospecimen Research; and 
‘‘(C) coordination of, and resources for, as-
sessment and data collection. 
‘‘(2) Identification of risk and protective factors 
related to the development of late effects of cancer. 
‘‘(3) 
Identification 
of 
predictors 
of 
neurocognitive and psychosocial outcomes, including 
quality of life, in cancer survivors and identification 
of qualify of life and other outcomes in family mem-
bers. 
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‘‘(4) Development and implementation of inter-
vention studies for patients and families, including 
studies focusing on— 
‘‘(A) preventive interventions during treat-
ment; 
‘‘(B) interventions to lessen the impact of 
late effects; 
‘‘(C) rehabilitative or remediative interven-
tions; 
‘‘(D) interventions to promote health be-
haviors in long-term survivors; and 
‘‘(E) interventions to improve health care 
utilization and access to linguistically and cul-
turally competent long-term follow-up care for 
childhood cancer survivors in minority and 
other medically underserved populations. 
‘‘(c) GRANTS
FOR
RESEARCH
ON
CAUSES
OF 
HEALTH DISPARITIES IN CHILDHOOD CANCER SURVI-
VORSHIP.— 
‘‘(1) GRANTS.—The Director of NIH, acting 
through the Director of the Institute, shall make 
grants to entities to conduct research relating to— 
‘‘(A) pediatric cancer survivors within mi-
nority populations; and 
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‘‘(B) health disparities in cancer survivor-
ship outcomes within minority or other medi-
cally underserved populations. 
‘‘(2) BALANCED APPROACH.—In making grants 
for research under paragraph (1)(A) on pediatric 
cancer survivors within minority populations, the Di-
rector of NIH shall ensure that such research ad-
dresses both the physical and the psychological 
needs of such survivors. 
‘‘(3) HEALTH DISPARITIES.—In making grants 
for research under paragraph (1)(B) on health dis-
parities in cancer survivorship outcomes within mi-
nority populations, the Director of NIH shall ensure 
that such research examines each of the following: 
‘‘(A) Key adverse events after childhood 
cancer. 
‘‘(B) Assessment of health and quality of 
life in childhood cancer survivors. 
‘‘(C) Barriers to follow-up care to child-
hood cancer survivors. 
‘‘(d) RESEARCH TO EVALUATE FOLLOW-UP CARE 
FOR CHILDHOOD CANCER SURVIVORS.—The Director of 
NIH shall conduct or support research to evaluate systems 
of follow-up care for childhood cancer survivors, with spe-
cial emphasis given to— 
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‘‘(1) transitions in care for childhood cancer 
survivors; 
‘‘(2) those professionals who should be part of 
care teams for childhood cancer survivors; 
‘‘(3) training of professionals to provide linguis-
tically and culturally competent follow-up care to 
childhood cancer survivors; and 
‘‘(4) different models of follow-up care. 
‘‘SEC. 417E–1. IMPROVING THE QUALITY OF FOLLOW-UP 
CARE FOR SURVIVORS OF CHILDHOOD, ADO-
LESCENT, AND YOUNG ADULT CANCERS AND 
THEIR FAMILIES. 
‘‘(a) IN GENERAL.—The Secretary, in consultation 
with the Director of NIH, shall make grants to eligible 
entities to establish or improve training programs for 
health care professionals (including physicians, nurses, 
physician assistants, and mental health professionals)— 
‘‘(1) to improve the quality of immediate and 
long-term follow-up care for survivors of childhood, 
adolescent, and young adult cancers and their fami-
lies; and 
‘‘(2) to ensure that such care is linguistically 
and culturally competent. 
‘‘(b) ELIGIBLE ENTITIES.—In this section, the term 
‘eligible entity’ means— 
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‘‘(1) a medical school; 
‘‘(2) a children’s hospital; 
‘‘(3) a cancer center; 
‘‘(4) a hospital with one or more residency pro-
grams that serve a significant number of pediatric 
cancer patients; 
‘‘(5) a graduate training program for health 
professionals described in subsection (a) who will 
treat survivors of childhood, adolescent, and young 
adult cancers; or 
‘‘(6) any other entity with significant experience 
and expertise in treating survivors of childhood, ado-
lescent, and young adult cancers. 
‘‘(c) DURATION.—Each grant under this section shall 
be for a period of 2 years. 
‘‘(d) AUTHORIZATION
OF
APPROPRIATIONS.—To 
carry out this section, there are authorized to be appro-
priated $5,000,000 for each of fiscal years 2009 through 
2013. 
‘‘SEC. 417E–2. STUDY OF PILOT PROGRAMS TO EXPLORE 
MODEL SYSTEMS OF CARE. 
‘‘(a) IN GENERAL.—The Director of NIH, in con-
sultation with the Administrator of the Health Resources 
and Services Administration, shall make grants to eligible 
entities to establish pilot programs to develop, study, or 
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evaluate model systems for monitoring and caring for can-
cer survivors. 
‘‘(b) ELIGIBLE ENTITIES.—In this section, the term 
‘eligible entity’ means— 
‘‘(1) a medical school; 
‘‘(2) a children’s hospital; 
‘‘(3) a cancer center; or 
‘‘(4) any other entity with significant experience 
and expertise in treating survivors of childhood, ado-
lescent, and young adult cancers. 
‘‘(c) USE OF FUNDS.—The Director of NIH may 
make a grant under this section to an eligible entity only 
if the entity agrees— 
‘‘(1) to use the grant to establish a pilot pro-
gram to develop, study, or evaluate one or more 
model systems for monitoring and caring for cancer 
survivors; and 
‘‘(2) in developing, studying, and evaluating 
such systems, to give special emphasis to the fol-
lowing: 
‘‘(A) Design of protocols for follow-up 
care, monitoring, and other survivorship pro-
grams (including peer support and mentoring 
programs). 
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‘‘(B) Dissemination of information to 
health care providers about how to provide lin-
guistically and culturally competent follow-up 
care and monitoring to cancer survivors and 
their families. 
‘‘(C) Dissemination of other information, 
as appropriate, to health care providers and to 
cancer survivors and their families. 
‘‘(D) Development of support programs to 
improve the quality of life of cancer survivors. 
‘‘(E) Design of systems for the effective 
transfer of treatment information from cancer 
care providers to other health care providers 
(including family practice physicians and inter-
nists) and to cancer survivors and their fami-
lies, where appropriate. 
‘‘(F) Development of various models for 
providing multidisciplinary care. 
‘‘(d) AUTHORIZATION
OF
APPROPRIATIONS.—To 
carry out this section, there are authorized to be appro-
priated $8,000,000 for each of fiscal years 2009 through 
2013.’’. 
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SEC. 5. CLINICS FOR COMPREHENSIVE LONG-TERM FOL-
LOW-UP SERVICES FOR CHILDHOOD CANCER 
SURVIVORS. 
Part B of title III of the Public Health Service Act 
(42 U.S.C. 243 et seq.), as amended by section 3, is 
amended by inserting after section 317T the following: 
‘‘SEC. 317U. CLINICS FOR COMPREHENSIVE LONG-TERM 
FOLLOW-UP SERVICES FOR CHILDHOOD CAN-
CER SURVIVORS. 
‘‘(a) IN GENERAL.—The Secretary shall make grants 
to eligible entities to pay all or a portion of the costs in-
curred during the first 4 years of establishing and oper-
ating a clinic for comprehensive long-term follow-up serv-
ices for childhood cancer survivors. 
‘‘(b) ELIGIBLE ENTITIES.—In this section, the term 
‘eligible entity’ means— 
‘‘(1) a school of medicine; 
‘‘(2) a children’s hospital; 
‘‘(3) a cancer center; or 
‘‘(4) any other entity with significant experience 
and expertise in treating surviving childhood, adoles-
cent, and young adult cancers. 
‘‘(c) PRIORITY.—In making grants under this sec-
tion, the Secretary shall give priority to any eligible entity 
that demonstrates an expertise in improving access to care 
for minority and other medically underserved populations. 
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‘‘(d) USE OF FUNDS.—The Secretary may make a 
grant under this section to an eligible entity only if the 
entity agrees to use the grant to pay costs incurred during 
the first 4 years of establishing and operating a clinic for 
comprehensive long-term follow-up services for childhood 
cancer survivors. Such costs may include the costs of— 
‘‘(1) purchasing or leasing facilities; 
‘‘(2) providing medical and psychosocial follow- 
up services, including coordination with the patient’s 
primary care provider and oncologist in order to en-
sure that the unique medical needs of survivors are 
addressed; 
‘‘(3) conducting research to improve care for 
cancer survivors; 
‘‘(4) providing linguistically and culturally com-
petent information to survivors and their families; 
and 
‘‘(5) improving access by minority or other 
medically underserved populations to the best prac-
tices and care for childhood cancer survivors. 
‘‘(e) AUTHORIZATION
OF
APPROPRIATIONS.—To 
carry out this section, there is authorized to be appro-
priated $12,000,000 for each of fiscal years 2009 through 
2013.’’. 
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SEC. 6. GRANTS TO IMPROVE ACCESS TO CARE FOR CHILD-
HOOD CANCER SURVIVORS. 
Part B of title III of the Public Health Service Act 
(42 U.S.C. 243 et seq.), as amended by section 5, is 
amended by inserting after section 317U the following: 
‘‘SEC. 317V. GRANTS TO IMPROVE ACCESS TO CARE FOR 
CHILDHOOD CANCER SURVIVORS. 
‘‘(a) GRANTS.—The Secretary shall make grants to 
recognized childhood cancer professional and advocacy or-
ganizations to improve physical and psychosocial care for 
childhood cancer survivors, especially childhood cancer 
survivors in minority or other medically underserved popu-
lations. 
‘‘(b) USE OF FUNDS.—The Secretary may make a 
grant under this section to an organization only if the or-
ganization agrees to use the grant to improve physical and 
psychosocial care for childhood cancer survivors, especially 
childhood cancer survivors in minority or other medically 
underserved populations. Such care may include— 
‘‘(1) patient navigator programs; 
‘‘(2) peer support programs; 
‘‘(3) education and outreach for survivors and 
their families, including developing bilingual mate-
rials; 
‘‘(4) follow-up care for uninsured and under-
insured survivors— 
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