mine the benefits and appropriateness of genetic testing 
for infant and early childhood deaths that remain unex-
plained after a complete death scene investigation and 
comprehensive, standardized autopsy. Such study shall in-
clude recommendations on developing a standard protocol 
for use in determining when to utilize genetic testing and 
standard protocols for the collection and storage of speci-
mens suitable for genetic testing. 
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There 
is authorized to be appropriated $8,000,000 for each of 
fiscal years 2012 through 2016 to carry out this section. 
‘‘SEC. 399OO–2. TRAINING. 
‘‘(a) GRANTS.—The Secretary, acting through the 
Director, shall award grants to eligible entities for the pro-
vision of training on death scene investigation specific for 
SUID and SUDC. 
‘‘(b) ELIGIBLE ENTITIES.—To be eligible to receive 
a grant under subsection (a), an entity shall— 
‘‘(1) be— 
‘‘(A) a State or local government entity; or 
‘‘(B) a nonprofit private entity; and 
‘‘(2) submit to the Secretary an application at 
such time, in such manner, and containing such in-
formation as the Secretary may require. 
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‘‘(c) USE OF FUNDS.—An eligible entity shall use 
amounts received under a grant under this section to— 
‘‘(1) provide training to medical examiners, 
coroners, death scene investigators, law enforcement 
personnel, and emergency medical technicians or 
paramedics concerning death scene investigations for 
SUID and SUDC, including the use of standard 
death scene investigation protocols that include in-
formation on the current and past medical history of 
the infant/child, the circumstances surrounding the 
death including any suspicious circumstances, the 
sleep position and sleep environment of the infant/ 
child, and whether there were any accidental or envi-
ronmental factors associated with the death; 
‘‘(2) provide training directly to individuals who 
are responsible for conducting and reviewing death 
scene investigations for sudden unexpected infant 
death and sudden unexplained death in childhood; 
‘‘(3) provide training to multidisciplinary teams, 
including teams that have a medical examiner or 
coroner, death scene investigator, law enforcement 
representative, and an emergency medical technician 
or paramedic; 
‘‘(4) in the case of national and State-based 
grantees that are comprised of medical examiners, 
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coroners, death scene investigators, law enforcement 
personnel, or emergency medical technicians and 
paramedics, integrate training under the grant on 
death scene investigation of SUID and SUDC into 
professional accreditation and training programs; 
‘‘(5) in the case of State and local government 
entity grantees, obtain equipment, including com-
puter equipment, to aid in the completion of stand-
ard death scene investigation; or 
‘‘(6) conduct training activities for medical ex-
aminers, coroners, and forensic pathologists con-
cerning standard autopsy protocols for sudden unex-
pected infant death and sudden unexplained death in 
childhood and integrate the training under the grant 
on standard autopsy protocols in SUID and SUDC 
into professional accreditation and training pro-
grams. 
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There 
is authorized to be appropriated to carry out this section 
$2,000,000 for each of fiscal years 2012 through 2016. 
‘‘SEC. 399OO–3. CHILD DEATH REVIEW. 
‘‘(a) PREVENTION.— 
‘‘(1) CORE CAPACITY GRANTS.—The Secretary, 
acting through the Administrator, shall award 
grants to States to build and strengthen State ca-
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pacity and implement State and local child death re-
view programs and prevention strategies. 
‘‘(2) PLANNING GRANTS.—The Secretary, act-
ing through the Administrator, shall award planning 
grants to States that have no existing child death re-
view program or States in which the only child death 
review programs are State-based, for the develop-
ment of local child death review programs and pre-
vention strategies. 
‘‘(3) APPLICATION.—To be eligible to receive a 
grant under paragraph (1) or (2), a State shall sub-
mit to the Secretary an application at such time, in 
such manner, and containing such information as 
the Secretary may require. 
‘‘(4) TECHNICAL ASSISTANCE.—The Secretary, 
acting through the Administrator, shall provide tech-
nical assistance to assist States— 
‘‘(A) in developing the capacity for com-
prehensive child death review programs, includ-
ing the development of best practices for the 
implementation of such programs; and 
‘‘(B) in maintaining the national child 
death case reporting system. 
‘‘(b) AUTHORIZATION OF APPROPRIATIONS.—There 
is authorized to be appropriated $7,000,000 for each of 
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fiscal years 2012 through 2016 to carry out subsection 
(a). 
‘‘SEC. 399OO–4. NATIONAL REGISTRY FOR SUDDEN UNEX-
PECTED INFANT DEATHS AND SUDDEN UNEX-
PLAINED DEATH IN CHILDHOOD. 
‘‘(a) 
ESTABLISHMENT.—The 
Secretary, 
acting 
through the Director and in consultation with the national 
child death case reporting system, national health organi-
zations, and professional societies with experience and ex-
pertise relating to reducing SUID and SUDC, shall estab-
lish a population-based SUID and SUDC case registry 
that can facilitate the understanding of the root causes, 
rates, and trends of SUID and SUDC. 
‘‘(b) NATIONAL REGISTRY.—The national registry 
established under subsection (a) shall facilitate the collec-
tion, analysis, and dissemination of data by— 
‘‘(1) implementing a surveillance and moni-
toring system based on thorough and complete death 
scene investigation data, clinical history, and au-
topsy findings; 
‘‘(2) collecting standardized information about 
the environmental, medical, genetic, and social cir-
cumstances of death (including sleep environment 
and quality of the death scene investigation) if de-
termined that such may correlate with infant and 
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