II 
113TH CONGRESS 
2D SESSION 
H. R. 4631 
IN THE SENATE OF THE UNITED STATES 
JUNE 25, 2014 
Received 
AN ACT 
To reauthorize certain provisions of the Public Health 
Service Act relating to autism, and for other purposes. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
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SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Autism Collaboration, 
Accountability, Research, Education, and Support Act of 
2014’’ or the ‘‘Autism CARES Act of 2014’’. 
SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIA-
TIVE. 
(a) IN GENERAL.—The Secretary of Health and 
Human Services shall designate an existing official within 
the Department of Health and Human Services to oversee, 
in consultation with the Secretaries of Defense and Edu-
cation, national autism spectrum disorder research, serv-
ices, and support activities. 
(b) DUTIES.—The official designated under sub-
section (a) shall— 
(1) implement autism spectrum disorder activi-
ties, taking into account the strategic plan developed 
by the Interagency Autism Coordinating Committee 
under section 399CC(b) of the Public Health Service 
Act (42 U.S.C. 280i–2(b)); and 
(2) ensure that autism spectrum disorder activi-
ties of the Department of Health and Human Serv-
ices and of other Federal departments and agencies 
are not unnecessarily duplicative. 
SEC. 3. RESEARCH PROGRAM. 
Section 399AA of the Public Health Service Act (42 
U.S.C. 280i) is amended— 
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(1) in subsection (a)(1), by inserting ‘‘for chil-
dren and adults’’ after ‘‘reporting of State epidemio-
logical data’’; 
(2) in subsection (b)(1)— 
(A) by striking ‘‘establishment of regional 
centers of excellence’’ and inserting ‘‘establish-
ment or support of regional centers of excel-
lence’’; and 
(B) by inserting ‘‘for children and adults’’ 
before the period at the end; 
(3) in subsection (b)(2), by striking ‘‘center to 
be established’’ and inserting ‘‘center to be estab-
lished or supported’’; and 
(4) in subsection (e), by striking ‘‘2014’’ and 
inserting ‘‘2019’’. 
SEC. 4. AUTISM INTERVENTION. 
Section 399BB of the Public Health Service Act (42 
U.S.C. 280i–1) is amended— 
(1) in subsection (b)(1), by inserting ‘‘culturally 
competent’’ after ‘‘provide’’; 
(2) in subsection (c)(2)(A)(ii), by inserting 
‘‘(which may include respite care for caregivers of 
individuals with an autism spectrum disorder)’’ after 
‘‘services and supports’’; 
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(3) in subsection (e)(1)(B)(v), by inserting be-
fore the semicolon the following: ‘‘, which may in-
clude collaborating with research centers or networks 
to provide training for providers of respite care (as 
defined in section 2901)’’; 
(4) in subsection (f), by striking ‘‘grants or 
contracts’’ and all that follows through ‘‘for individ-
uals with’’ and inserting ‘‘grants or contracts, which 
may include grants or contracts to research centers 
or networks, to determine the evidence-based prac-
tices for interventions to improve the physical and 
behavioral health of individuals with’’; and 
(5) in subsection (g), by striking ‘‘2014’’ and 
inserting ‘‘2019’’. 
SEC. 
5. 
INTERAGENCY 
AUTISM 
COORDINATING 
COM-
MITTEE. 
Section 399CC of the Public Health Service Act (42 
U.S.C. 280i–2) is amended— 
(1) in subsection (b)— 
(A) in paragraph (1)— 
(i) by striking ‘‘and annually update’’; 
and 
(ii) by striking ‘‘intervention’’ and in-
serting ‘‘interventions, including school and 
community-based interventions’’; 
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(B) by striking paragraph (2); 
(C) by redesignating paragraph (1) as 
paragraph (2), and inserting before such redes-
ignated paragraph the following: 
‘‘(1) monitor autism spectrum disorder re-
search, and to the extent practicable services and 
support activities, across all relevant Federal depart-
ments and agencies, including coordination of Fed-
eral activities with respect to autism spectrum dis-
order;’’; 
(D) in paragraph (3), by striking ‘‘rec-
ommendations to the Director of NIH’’; 
(E) in paragraph (4), by inserting before 
the semicolon the following: ‘‘, and the process 
by which public feedback can be better inte-
grated into such decisions’’; and 
(F) by striking paragraphs (5) and (6) and 
inserting the following: 
‘‘(5) develop a strategic plan for the conduct of, 
and support for, autism spectrum disorder research, 
including as practicable for services and supports, 
for individuals with an autism spectrum disorder 
and the families of such individuals, which shall in-
clude— 
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‘‘(A) proposed budgetary requirements; 
and 
‘‘(B) recommendations to ensure that au-
tism spectrum disorder research, and services 
and support activities to the extent practicable, 
of the Department of Health and Human Serv-
ices and of other Federal departments and 
agencies are not unnecessarily duplicative; and 
‘‘(6) submit to Congress and the President— 
‘‘(A) an annual update on the summary of 
advances described in paragraph (2); and 
‘‘(B) an annual update to the strategic 
plan described in paragraph (5), including any 
progress made in achieving the goals outlined in 
such strategic plan.’’; 
(2) in subsection (c)— 
(A) in paragraph (1)— 
(i) by striking the paragraph designa-
tion, the heading, and the matter pre-
ceding subparagraph (A) and inserting the 
following: 
‘‘(1) FEDERAL MEMBERSHIP.—The Committee 
shall be composed of the following Federal mem-
bers—’’; 
(ii) in subparagraph (C)— 
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(I) by inserting ‘‘, such as the 
Administration for Community Living, 
Administration for Children and Fam-
ilies, the Centers for Medicare & Med-
icaid Services, the Food and Drug Ad-
ministration, and the Health Re-
sources and Services Administration’’ 
before the semicolon at the end; and 
(II) by adding at the end ‘‘and’’; 
(iii) in subparagraph (D)— 
(I) by inserting ‘‘and the Depart-
ment of Defense’’ after ‘‘Department 
of Education’’; and 
(II) by striking at the end ‘‘; 
and’’ and inserting a period; and 
(iv) by striking subparagraph (E); 
(B) in paragraph (2)— 
(i) in the paragraph heading, by strik-
ing ‘‘ADDITIONAL’’ and inserting ‘‘NON- 
FEDERAL’’; 
(ii) in the matter preceding subpara-
graph (A), by striking ‘‘Not fewer than 6 
members of the Committee, or 1⁄3 of the 
total membership of the Committee, which-
ever is greater’’ and inserting ‘‘Not more 
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than 1⁄2, but not fewer than 1⁄3, of the total 
membership of the Committee’’; 
(iii) in subparagraph (A), by striking 
‘‘one such member shall be an individual’’ 
and inserting ‘‘two such members shall be 
individuals’’; 
(iv) in subparagraph (B), by striking 
‘‘one such member shall be a parent or 
legal guardian’’ and inserting ‘‘two such 
members shall be parents or legal guard-
ians’’; and 
(v) in subparagraph (C), by striking 
‘‘one such member shall be a representa-
tive’’ and inserting ‘‘two such members 
shall be representatives’’; and 
(C) by adding at the end the following: 
‘‘(3) PERIOD OF APPOINTMENT; VACANCIES.— 
‘‘(A) PERIOD OF APPOINTMENT FOR NON- 
FEDERAL
MEMBERS.—Non-Federal members 
shall serve for a term of 4 years, and may be 
reappointed for one or more additional 4-year 
terms. 
‘‘(B) VACANCIES.—A vacancy on the Com-
mittee shall be filled in the manner in which the 
original appointment was made and shall not 
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(F) in subparagraph (F) (as so redesig-
nated), by inserting ‘‘and, as appropriate, on 
how such average time varies across population 
subgroups’’ before the semicolon at the end; 
(G) in subparagraph (G) (as so redesig-
nated)— 
(i) by striking ‘‘including by various 
subtypes,’’ and inserting ‘‘including by se-
verity level as practicable,’’; and 
(ii) by striking ‘‘child may’’ and in-
serting ‘‘child or other factors, such as de-
mographic characteristics, may’’; and 
(H) by striking subparagraph (I) (as so re-
designated), and inserting the following: 
‘‘(I) a description of the actions taken to 
implement and the progress made on implemen-
tation of the strategic plan developed by the 
Interagency Autism Coordinating Committee 
under section 399CC(b).’’; and 
(7) by adding at the end the following new sub-
section: 
‘‘(b) 
REPORT
ON
YOUNG
ADULTS
AND 
TRANSITIONING YOUTH.— 
‘‘(1) IN
GENERAL.—Not later than 2 years 
after the date of enactment of the Autism CARES 
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Act of 2014, the Secretary of Health and Human 
Services, in coordination with the Secretary of Edu-
cation and in collaboration with the Secretary of 
Transportation, the Secretary of Labor, the Sec-
retary of Housing and Urban Development, and the 
Attorney General, shall prepare and submit to the 
Committee on Health, Education, Labor, and Pen-
sions of the Senate and the Committee on Energy 
and Commerce of the House of Representatives, a 
report concerning young adults with autism spec-
trum disorder and the challenges related to the tran-
sition from existing school-based services to those 
services available during adulthood. 
‘‘(2) CONTENTS.—The report submitted under 
paragraph (1) shall contain— 
‘‘(A) demographic characteristics of youth 
transitioning from school-based to community- 
based supports; 
‘‘(B) an overview of policies and programs 
relevant to young adults with autism spectrum 
disorder relating to post-secondary school tran-
sitional services, including an identification of 
existing Federal laws, regulations, policies, re-
search, and programs; 
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‘‘(C) proposals on establishing best prac-
tices guidelines to ensure— 
‘‘(i) interdisciplinary coordination be-
tween all relevant service providers receiv-
ing Federal funding; 
‘‘(ii) coordination with transitioning 
youth and the family of such transitioning 
youth; and 
‘‘(iii) inclusion of the individualized 
education program for the transitioning 
youth, as prescribed in section 614 of the 
Individuals with Disabilities Education Act 
(20 U.S.C. 1414); 
‘‘(D) 
comprehensive 
approaches 
to 
transitioning from existing school-based services 
to those services available during adulthood, in-
cluding— 
‘‘(i) services that increase access to, 
and improve integration and completion of, 
post-secondary education, peer support, vo-
cational training (as defined in section 103 
of the Rehabilitation Act of 1973 (29 
U.S.C. 723)), rehabilitation, self-advocacy 
skills, and competitive, integrated employ-
ment; 
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‘‘(ii) community-based behavioral sup-
ports and interventions; 
‘‘(iii) community-based integrated res-
idential services, housing, and transpor-
tation; 
‘‘(iv) nutrition, health and wellness, 
recreational, and social activities; 
‘‘(v) personal safety services for indi-
viduals with autism spectrum disorder re-
lated to public safety agencies or the crimi-
nal justice system; and 
‘‘(vi) evidence-based approaches for 
coordination of resources and services once 
individuals have aged out of post-secondary 
education; and 
‘‘(E) proposals that seek to improve out-
comes for adults with autism spectrum disorder 
making the transition from a school-based sup-
port system to adulthood by— 
‘‘(i) increasing the effectiveness of 
programs that provide transition services; 
‘‘(ii) increasing the ability of the rel-
evant service providers described in sub-
paragraph (C) to provide supports and 
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services to underserved populations and re-
gions; 
‘‘(iii) increasing the efficiency of serv-
ice delivery to maximize resources and out-
comes, including with respect to the inte-
gration of and collaboration among services 
for transitioning youth; 
‘‘(iv) ensuring access to all services 
necessary to transitioning youth of all ca-
pabilities; and 
‘‘(v) encouraging transitioning youth 
to utilize all available transition services to 
maximize independence, equal opportunity, 
full participation, and self-sufficiency.’’. 
SEC. 7. AUTHORIZATION OF APPROPRIATIONS. 
Section 399EE of the Public Health Service Act (42 
U.S.C. 280i–4) is amended— 
(1) in subsection (a), by striking ‘‘fiscal years 
2012 through 2014’’ and inserting ‘‘fiscal years 
2015 through 2019’’; 
(2) in subsection (b), by striking ‘‘fiscal years 
2011 through 2014’’ and inserting ‘‘fiscal years 
2015 through 2019’’; and 
(3) in subsection (c), by striking ‘‘$161,000,000 
for each of fiscal years 2011 through 2014’’ and in-
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serting ‘‘$190,000,000 for each of fiscal years 2015 
through 2019’’. 
Passed the House of Representatives June 24, 2014. 
Attest: 
KAREN L. HAAS, 
Clerk. 
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