such sums as may be necessary for each of fiscal years 
2007 through 2012. 
‘‘SEC. 2932. PROVISIONS RELATING TO NATIVE AMERICANS. 
‘‘(a) EPIDEMIOLOGY CENTERS.— 
‘‘(1) ESTABLISHMENT.— 
‘‘(A) IN GENERAL.—In addition to those 
centers operating 1 day prior to the date of en-
actment of this title, (including those centers 
for which funding is currently being provided 
through funding agreements under the Indian 
Self-Determination and Education Assistance 
Act), the Secretary shall, not later than 180 
days after such date of enactment, establish 
and fund an epidemiology center in each service 
area which does not have such a center to carry 
out the functions described in subparagraph 
(B). Any centers established under the pre-
ceding sentence may be operated by Indian 
tribes or tribal organizations pursuant to fund-
ing agreements under the Indian Self-Deter-
mination and Education Assistance Act, but 
funding under such agreements may not be di-
visible. 
‘‘(B) FUNCTIONS.—In consultation with 
and upon the request of Indian tribes, tribal or-
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ganizations and urban Indian organizations, 
each area epidemiology center established under 
this subsection shall, with respect to such area 
shall— 
‘‘(i) collect data related to the health 
status objective described in section 3(b) of 
the Indian Health Care Improvement Act, 
and monitor the progress that the Service, 
Indian tribes, tribal organizations, and 
urban Indian organizations have made in 
meeting such health status objective; 
‘‘(ii) evaluate existing delivery sys-
tems, data systems, and other systems that 
impact the improvement of Indian health; 
‘‘(iii) assist Indian tribes, tribal orga-
nizations, and urban Indian organizations 
in identifying their highest priority health 
status objectives and the services needed to 
achieve such objectives, based on epidemio-
logical data; 
‘‘(iv) make recommendations for the 
targeting of services needed by tribal, 
urban, and other Indian communities; 
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‘‘(v) make recommendations to im-
prove healthcare delivery systems for Indi-
ans and urban Indians; 
‘‘(vi) provide requested technical as-
sistance to Indian tribes and urban Indian 
organizations in the development of local 
health service priorities and incidence and 
prevalence rates of disease and other ill-
ness in the community; and 
‘‘(vii) provide disease surveillance and 
assist Indian tribes, tribal organizations, 
and urban Indian organizations to promote 
public health. 
‘‘(C) TECHNICAL ASSISTANCE.—The direc-
tor of the Centers for Disease Control and Pre-
vention shall provide technical assistance to the 
centers in carrying out the requirements of this 
subsection. 
‘‘(2) FUNDING.—The Secretary may make 
funding available to Indian tribes, tribal organiza-
tions, and eligible intertribal consortia or urban In-
dian organizations to conduct epidemiological studies 
of Indian communities. 
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‘‘(b) DEFINITIONS.—For purposes of this section, the 
definitions contained in section 4 of the Indian Health 
Care Improvement Act shall apply.’’. 
SEC. 302. COLLECTION OF RACE AND ETHNICITY DATA BY 
THE SOCIAL SECURITY ADMINISTRATION. 
Part A of title XI of the Social Security Act (42 
U.S.C. 1301 et seq.) is amended by adding at the end 
the following: 
‘‘SEC. 1150A. COLLECTION OF RACE AND ETHNICITY DATA 
BY THE SOCIAL SECURITY ADMINISTRATION. 
‘‘(a) REQUIREMENT.—The Commissioner of the So-
cial Security Administration in consultation with the Ad-
ministrator of the Centers for Medicare and Medicaid 
Services shall— 
‘‘(1) require the collection of data on the race, 
ethnicity, and primary language of all applicants for 
social security numbers, social security income, so-
cial security disability, and medicare— 
‘‘(A) using, at a minimum, the categories 
for race and ethnicity described in the 1997 Of-
fice of Management and Budget Standards for 
Maintaining, Collecting, and Presenting Federal 
Data on Race and Ethnicity and available lan-
guage standards; and 
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‘‘(B) where practicable, collecting data for 
additional population groups if such groups can 
be aggregated into the minimum race and eth-
nicity categories; 
‘‘(2) with respect to the collection of the data 
described in paragraph (1) for applicants who are 
under 18 years of age or otherwise legally incapaci-
tated, require that— 
‘‘(A) such data be collected from the par-
ent or legal guardian of such an applicant; and 
‘‘(B) the primary language of the parent 
or legal guardian of such an applicant or recipi-
ent be used; 
‘‘(3) require that such data be uniformly ana-
lyzed and reported at least annually to the Commis-
sioner of Social Security; 
‘‘(4) be responsible for storing the data re-
ported under paragraph (3); 
‘‘(5) ensure transmission to the Centers for 
Medicare and Medicaid Services and other Federal 
health agencies; 
‘‘(6) provide such data to the Secretary on at 
least an annual basis; and 
‘‘(7) ensure that the provision of assistance to 
an applicant is not denied or otherwise adversely af-
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fected because of the failure of the applicant to pro-
vide race, ethnicity, and primary language data. 
‘‘(b) PROTECTION OF DATA.—The Commissioner of 
Social Security shall ensure (through the promulgation of 
regulations or otherwise) that all data collected pursuant 
subsection (a) is protected— 
‘‘(1) under the same privacy protections as the 
Secretary applies to other health data under the reg-
ulations promulgated under section 264(c) of the 
Health Insurance Portability and Accountability Act 
of 1996 (Public Law 104–191; 110 Stat. 2033) re-
lating to the privacy of individually identifiable 
health information and other protections; and 
‘‘(2) from all inappropriate internal use by any 
entity that collects, stores, or receives the data, in-
cluding use of such data in determinations of eligi-
bility (or continued eligibility) in health plans, and 
from other inappropriate uses, as defined by the 
Secretary. 
‘‘(c) NATIONAL EDUCATION PROGRAM.—Not later 
than 18 months after the date of enactment of this sec-
tion, the Secretary, acting through the Deputy Assistant 
Secretary for Minority Health Disparity Elimination and 
in collaboration with the Commissioner of the Social Secu-
rity Administration, shall develop and implement a pro-
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gram to educate all populations about the purpose and 
uses of racial, ethnic, and primary language health data 
collection. 
‘‘(d) RULE OF CONSTRUCTION.—Nothing in this sec-
tion shall be construed to permit the use of information 
collected under this section in a manner that would ad-
versely affect any individual providing any such informa-
tion. 
‘‘(e) TECHNICAL ASSISTANCE.—The Secretary may, 
either directly or by grant or contract, provide technical 
assistance to enable any health entity to comply with the 
requirements of this section. 
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There 
is authorized to be appropriated to carry out this section, 
such sums as may be necessary for each of fiscal years 
2007 through 2012.’’. 
SEC. 303. REVISION OF HIPAA CLAIMS STANDARDS. 
(a) IN GENERAL.—Not later than 1 year after the 
date of enactment of this Act, the Secretary of Health and 
Human Services shall revise the regulations promulgated 
under part C of title XI of the Social Security Act (42 
U.S.C. 1320d et seq.), as added by the Health Insurance 
Portability and Accountability Act of 1996 (Public Law 
104–191), relating to the collection of data on race, eth-
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nicity, and primary language in a health-related trans-
action to require— 
(1) the use, at a minimum, of the categories for 
race and ethnicity described in the 1997 Office of 
Management and Budget Standards for Maintain-
ing, Collecting, and Presenting Federal Data on 
Race and Ethnicity; 
(2) the establishment of a new data code set for 
primary language; and 
(3) the designation of the racial, ethnic, and 
primary language code sets as ‘‘required’’ for claims 
and enrollment data. 
(b) DISSEMINATION.—The Secretary of Health and 
Human Services shall disseminate the new standards de-
veloped under subsection (a) to all health entities that are 
subject to the regulations described in such subsection and 
provide technical assistance with respect to the collection 
of the data involved. 
(c) COMPLIANCE.—The Secretary of Health and 
Human Services shall require that health entities comply 
with the new standards developed under subsection (a) not 
later than 2 years after the final promulgation of such 
standards. 
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100 
SEC. 304. NATIONAL CENTER FOR HEALTH STATISTICS. 
Section 306(n) of the Public Health Service Act (42 
U.S.C. 242k(n)) is amended— 
(1) in paragraph (1), by striking ‘‘2005’’ and 
inserting ‘‘2012’’; 
(2) in paragraph (2), in the first sentence, by 
striking ‘‘2005’’ and inserting ‘‘2012’’; and 
(3) in paragraph (3), by striking ‘‘2002’’ and 
inserting ‘‘2012’’. 
SEC. 305. GEO-ACCESS STUDY. 
The Administrator of the Substance Abuse and Men-
tal Health Services Administration shall— 
(1) conduct a study to— 
(A) determine which geographic areas of 
the United States have shortages of specialty 
mental health providers; and 
(B) assess the preparedness of speciality 
mental health providers to deliver culturally and 
linguistically appropriate services; and 
(2) submit a report to the Congress on the re-
sults of such study. 
SEC. 306. RACIAL, ETHNIC, AND LINGUISTIC DATA COL-
LECTED BY THE FEDERAL GOVERNMENT. 
(a) COLLECTION; SUBMISSION.—Not later than 90 
days after the date of the enactment of this Act, and Jan-
uary 31st of each year thereafter, each department, agen-
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