Life Act, the Secretary shall update and expand the Sep-
tember 2002 report of the Health Resources and Services 
Administration, titled ‘The Supply, Demand and Use of 
Palliative Care Physicians in the United States’. Such up-
date and expansion shall be based on an examination of 
workforce trends, workforce capacity, and training needs 
for palliative medicine physicians, physician assistants, 
nurse practitioners, and other palliative care team mem-
bers in all care settings in the United States, as well as 
training needs for other medical specialists and non-physi-
cian clinicians. 
‘‘(h) PALLIATIVE CARE LEADERSHIP CENTER DE-
FINED.—For purposes of this section, the term ‘palliative 
care leadership center’ means a center— 
‘‘(1) that trains hospital palliative care pro-
grams; 
‘‘(2) that provides intensive operational training 
and mentoring for palliative care programs at every 
stage of development and growth; and 
‘‘(3) that provides training oriented to teams 
rather than individuals, and involves participation by 
teams of hospital and hospice health care profes-
sionals involved in starting or running a palliative 
care program, including physicians, nurses, social 
workers, administrators and financial managers. 
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‘‘(i) AUTHORIZATION OF APPROPRIATIONS.—There is 
authorized to be appropriated to carry out this section 
such sums as are necessary for each of the fiscal years 
2014 through 2019.’’. 
SEC. 6. QUALITY OF LIFE CROSS-AGENCY ADVISORY COM-
MITTEE. 
Part W of title III of the Public Health Service Act, 
as added by section 4 and amended by section 5, is further 
amended by adding at the end the following new section: 
‘‘SEC. 399OO–2. QUALITY OF LIFE CROSS-AGENCY ADVISORY 
COMMITTEE. 
‘‘(a) ESTABLISHMENT.—Not later than 90 days after 
the date of the enactment of this section and subject to 
subsection (e), the Secretary shall establish a Quality of 
Life Cross-Agency Advisory Committee (in this section to 
be referred to as the ‘Advisory Committee’) to advise, co-
ordinate, and assist the Centers for Disease Control and 
Prevention and the Health Resources and Services Admin-
istration in creating and conducting the national quality 
of life education and awareness initiative under section 
399OO and the health care professional workforce train-
ing initiative under section 399OO–1 and disseminate 
findings that have been identified from such initiatives for 
cross agency implementation of best practices. 
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‘‘(b) MEMBERSHIP.—The Advisory Committee shall 
be composed of members who shall be appointed by the 
Secretary and shall include representatives of— 
‘‘(1) the Department of Health and Human 
Services, including from the Centers for Disease 
Control and Prevention, the Health Resources and 
Services Administration, the Agency for Healthcare 
Research and Quality, the Centers for Medicare & 
Medicaid Services, and the National Institutes of 
Health; 
‘‘(2) the Department of Veterans Affairs; 
‘‘(3) the Department of Defense; 
‘‘(4) public and private organizations with ex-
pertise in patient-centered care, palliative care, psy-
chosocial care, and symptom management and survi-
vorship; and 
‘‘(5) such other representatives as the Secretary 
deems necessary. 
‘‘(c) DUTIES.—The Advisory Committee shall— 
‘‘(1) evaluate the results of the programs fund-
ed by the grants awarded under section 399OO(b) 
and under section 399OO–1(b); 
‘‘(2) coordinate and implement a cross-agency 
strategic plan, with respect to the agencies specified 
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in subsection (b), to disseminate findings from such 
programs; 
‘‘(3) advise the Secretary of Health and Human 
Services on strategies for disseminating across agen-
cies specified in subsection (b) recommendations 
from the National Action Agenda described in sec-
tion 3(c)(1) of the Patient Centered Quality Care for 
Life Act; 
‘‘(4) consider and summarize recent advances 
achieved in symptom management and survivorship 
research relevant to the goals of this part and make 
recommendations to the Director of the National In-
stitutes of Health on gaps in basic, clinical, behav-
ioral, or other research required to achieve further 
improvements in care to support quality of life and 
survivorship; 
‘‘(5) develop a strategy for developing new and 
enhancing health surveillance tools used to track 
symptoms, late effects, and quality care trends over 
time, including national surveys of the overall popu-
lation of the United States, such as the National 
Health Interview Survey and the Behavioral Risk 
Factor Surveillance System conducted by the Cen-
ters for Disease Control and Prevention and the 
Health Information National Trends Survey con-
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ducted by the National Institutes of Health, as well 
as administrative databases and disease registries 
such as databases of the Centers for Medicare & 
Medicaid Services, the Surveillance Epidemiology 
and End Results (SEER) cancer registries program 
of the National Cancer Institute, the SEER–Medi-
care Linked Database of the National Cancer Insti-
tute, and the National Program of Cancer Registries 
of the Centers for Disease Control and Prevention; 
and 
‘‘(6) make appropriate updates and addendums 
annually to the National Action Agenda. 
‘‘(d) MEETINGS.—The Advisory Committee shall 
meet at least once a year. 
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated to carry out this section 
such sums as are necessary for each of the fiscal years 
2014 through 2019.’’. 
SEC. 7. ENHANCING RESEARCH IN SUPPORT OF PATIENT 
QUALITY OF LIFE. 
(a) IN GENERAL.—Part W of title III of the Public 
Health Service Act, as added by section 4 and amended 
by sections 5 and 6, is further amended by adding at the 
end the following new section: 
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‘‘SEC. 399OO–3. ENHANCING RESEARCH IN SUPPORT OF PA-
TIENT QUALITY OF LIFE. 
‘‘(a) IN GENERAL.—The Secretary, acting through 
the Director of the National Institutes of Health, shall de-
velop and implement a strategy to be applied across the 
institutes and centers of the National Institutes of Health 
that is in accordance with recommendations of the Advi-
sory Committee established under section 399OO–2 to ex-
pand national research programs in symptom manage-
ment, palliative, psychosocial, and survivorship care. 
‘‘(b) RESEARCH PROGRAMS.—The Director of the 
National Institutes of Health shall expand and intensify 
research programs in symptom management and pallia-
tive, psychosocial, and survivorship care and research pro-
grams that address the quality of life needs for the rapidly 
growing population in the United States of seriously ill 
patient (with illnesses such as cancer; heart, renal and live 
failure; lung disease; and Alzheimer’s disease and related 
dementias).’’. 
(b) EXPANDING TRANS-NIH RESEARCH REPORTING 
TO INCLUDE QUALITY OF LIFE AND SURVIVORSHIP RE-
SEARCH.— 
(1) IN GENERAL.—Section 402A(c)(2)(B)(i) of 
the 
Public 
Health 
Service 
Act 
(42 
U.S.C. 
282a(c)(2)(B)(i)) is amended by inserting ‘‘and for 
conducting or supporting research with respect to 
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quality of life and survivorship’’ after ‘‘or national 
centers’’. 
(2) EFFECTIVE DATE.—The amendment made 
by paragraph (1) shall apply with respect to reports 
required on or after January 1, 2014. 
Æ 
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