I
107TH CONGRESS
2D SESSION
H. R. 4963
To provide for the expansion and coordination of activities of the National
Institutes of Health and the Centers for Disease Control and Prevention
with respect to research and programs on cancer survivorship, and for
other purposes.
IN THE HOUSE OF REPRESENTATIVES
JUNE 19, 2002
Mr. HOYER (for himself, Mr. WICKER, Mr. SERRANO, Mr. DINGELL, Mr. HIN-
CHEY, Ms. DELAURO, Mr. HALL of Ohio, Mr. KENNEDY of Rhode Island,
Mr. OXLEY, Mr. CUNNINGHAM, Mr. MCNULTY, Mr. PICKERING, Mr.
HORN, Mr. DOGGETT, and Mr. BARTON of Texas) introduced the fol-
lowing bill; which was referred to the Committee on Energy and Com-
merce
A BILL
To provide for the expansion and coordination of activities
of the National Institutes of Health and the Centers
for Disease Control and Prevention with respect to re-
search and programs on cancer survivorship, and for
other purposes.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘Cancer Survivorship
Research and Quality of Life Act of 2002’’.
SEC. 2. FINDINGS.
The Congress finds as follows:
(1) There are more than 9,000,000 individuals
in the United States today who are cancer survivors
(living with, through, and beyond cancer).
(2) 60 percent of cancer survivors are 65 years
of age and older.
(3) 62 percent of adults diagnosed with cancer
today will be alive 5 years from now.
(4) In 1960, 4 percent of children with cancer
survived more than 5 years.
(5) 77 percent of children (age 0 through 14)
diagnosed with cancer today will be living five years
from now.
(6) Three out of every four American families
will have at least one family member diagnosed with
cancer.
(7) 24 percent of adults with cancer are parents
who have a child 18 years or younger living in the
home.
(8) One of every four deaths in the United
States is from cancer. In 2002, 555,500 Americans
will die of cancer—more than 1,500 people a day.
(9) The annual cost of cancer in the United
States is $180,000,000,000 in direct and indirect
costs.
(10) In fiscal year 2001 the National Institutes
of Health invested $38,000,000 in survivorship—less
than $4.25 per survivor.
SEC. 3. CANCER CONTROL PROGRAMS.
Section 412 of the Public Health Service Act (42
U.S.C. 285a–1) is amended—
(1) in the first sentence, by inserting ‘‘, for sur-
vivorship,’’ after ‘‘treatment of cancer’’;
(2) in paragraph (1)(B), by striking ‘‘cancer
patients’’ and all that follows and inserting the fol-
lowing: ‘‘cancer patients, families of cancer patients,
and cancer survivors, and’’; and
(3) in paragraph (3), by inserting ‘‘and con-
cerning cancer survivorship programs,’’ after ‘‘con-
trol of cancer’’.
SEC. 4. EXPANSION AND COORDINATION OF ACTIVITIES OF
NATIONAL INSTITUTES OF HEALTH WITH RE-
SPECT 
TO 
CANCER 
SURVIVORSHIP 
RE-
SEARCH.
(a) IN GENERAL.—Subpart 1 of part C of title IV
of the Public Health Service Act (42 U.S.C. 285 et seq.)
is amended by adding at the end following section:
‘‘SEC. 417D. EXPANSION AND COORDINATION OF ACTIVI-
TIES WITH RESPECT TO CANCER SURVIVOR-
SHIP RESEARCH.
‘‘(a) IN GENERAL.—
‘‘(1) EXPANSION OF ACTIVITIES.—The Director
of NIH shall expand and coordinate the activities of
the National Institutes of Health with respect to
cancer survivorship research.
‘‘(2) ADMINISTRATION OF PROGRAM; COLLABO-
RATION AMONG AGENCIES.—The Director of NIH
shall carry out this section acting through the Direc-
tor of the Institute and in collaboration with any
other agencies that the Director determines appro-
priate.
‘‘(b) OFFICE ON SURVIVORSHIP.—
‘‘(1) IN GENERAL.—The Director of NIH shall
establish an Office on Survivorship within the Insti-
tute through which the activities under subsection
(a)(1) shall be implemented and directed.
‘‘(2) ASSOCIATE DIRECTOR FOR SURVIVORSHIP;
APPOINTMENT; FUNCTION.—
‘‘(A) There shall be in the Institute an As-
sociate Director for Survivorship to coordinate
and promote the programs in the Institute con-
cerning cancer survivorship research. The Asso-
ciate Director shall be appointed by the Direc-
tor of the Institute from among individuals
who, because of their professional training or
experience, are equipped to address the breadth
of needs associated with cancer survivorship.
‘‘(B) Not later than February 1, 2003, the
Associate Director for Survivorship shall pre-
pare and submit to the Congress report pro-
viding a description of the survivorship activi-
ties of the Office and strategies for future ac-
tivities.’’.
(b) FUNDING.—Section 417B(d)(2) of the Public
Health Service Act (42 U.S.C. 285a–8(d)(2)) is
amended—
(1) in subparagraph (B), by striking ‘‘and’’
after the semicolon;
(2) in subparagraph (C), by striking ‘‘each’’
and all that follows and inserting ‘‘each fiscal year
through 2002; and’’; and
(3) by adding at the end the following:
‘‘(D) 13 percent, in the case of fiscal year
2003 and each subsequent fiscal year, of which
not less than 3 percent shall be for the Office
on Survivorship under section 417D.’’.
SEC. 5. EXPANSION OF CDC COMPREHENSIVE CANCER
PROGRAMS; PROGRAMS TO IMPROVE CAN-
CER SURVIVORSHIP.
(a) IN GENERAL.—The Secretary of Health and
Human Services (referred to in this Act as the ‘‘Sec-
retary’’), acting through the Director of the Centers for
Disease Control and Prevention, shall study the unique
health challenges associated with cancer survivorship and
carry out projects and interventions to improve the long-
term health status of cancer survivors. Such projects shall
be carried out directly and through the awards of grants
or contracts.
(b) CERTAIN
ACTIVITIES.—Activities under sub-
section (a) include—
(1) the expansion of current cancer surveillance
systems to track the health status of cancer sur-
vivors and determine whether cancer survivors are
at-risk for other chronic and disabling conditions;
(2) assess the unique challenges associated with
cancer survivorship;
(3) the development of a national cancer survi-
vorship action plan, in partnership with health orga-
nizations focused on cancer survivorship, to be car-
ried out in coordination with the state-based com-
prehensive cancer control program of the Centers for
Disease Control and Prevention to—
(A) develop unique and innovative post-
treatment programs, services and demonstra-
tions designed to support and advance cancer
survivorship through—
(i) promotion of physical activity and
healthy lifestyles;
(ii) educational outreach programs for
health care providers;
(iii) support for innovative programs
to improve the quality of life among cancer
survivors;
(iv) home and community-based inter-
ventions;
(v) peer support and mentor pro-
grams;
(vi) public awareness and outreach
campaigns; and
(vii) information dissemination to in-
form health care providers and cancer sur-
vivors of their health care options and
available survivorship programs; and
(B) develop unique cancer survivorship
demonstration programs designed to address
the needs of underserved populations, including
minorities, children, and persons residing in
rural areas.
(c) COORDINATION OF ACTIVITIES.—The Secretary
shall assure that activities under this section are coordi-
nated as appropriate with other agencies of the Public
Health Service.
(d) REPORT TO CONGRESS.—Not later than October
1, 2003, the Secretary shall submit to the Congress a re-
port describing the results of the evaluation under sub-
section (a), and as applicable, the strategies developed
under such subsection.
(e) AUTHORIZATION OF APPROPRIATIONS.—For the
purpose of carrying out this section, there are authorized
to be appropriated $75,000,000 for fiscal year 2003, and
such sums as may be necessary for each of the fiscal years
2004 through 2006.
SEC. 6. MONITORING AND EVALUATING QUALITY CANCER
CARE AND CANCER SURVIVORSHIP.
(a) IN GENERAL.—Part M of title III of the Public
Health Service Act (42 U.S.C. 280e et seq.) is amended
by inserting after section 399E the following section:
‘‘SEC. 399E–1. MONITORING AND EVALUATING QUALITY
CANCER CARE AND CANCER SURVIVORSHIP.
‘‘(a) IN GENERAL.—The Secretary, acting through
the Director of the Centers for Disease Control and Pre-
vention, and in consultation with the National Cancer In-
stitute, shall make grants to eligible entities for the pur-
pose of enabling such entities to monitor and evaluate
quality cancer care, develop information concerning qual-
ity cancer care, and monitor cancer survivorship.
‘‘(b) ELIGIBLE ENTITIES.—For purposes of this sec-
tion, an entity is an eligible entity for a fiscal year if the
entity—
‘‘(1) operates a statewide cancer registry with
funds from a grant made under section 399B for
such fiscal year; and
‘‘(2) is certified by the North American Asso-
ciation of Central Cancer Registries or another simi-
lar certification organization.
‘‘(c) CONTRACTING AUTHORITY.—In carrying out the
purpose described in subsection (a), an eligible entity may
expend a grant under such subsection to enter into con-
tracts with academic institutions, cancer centers, and
other entities, when determined appropriate by the Sec-
retary.
‘‘(d) APPLICATION FOR GRANT.—A grant may be
made under subsection (a) only if an application for the
grant is submitted to the Secretary and the application
is in such form, is made in such manner, and contains
such agreements, assurances, and information as the Sec-
retary determines to be necessary to carry out this section.
‘‘(e) AUTHORITY OF SECRETARY REGARDING USE OF
GRANT.—The Secretary shall determine the appropriate
uses of grants under subsection (a) to achieve the purpose
described in such subsection.
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—For the
purpose of carrying out this section, there are authorized
to be appropriated such sums as may be necessary for
each of the fiscal years 2003 through 2007.’’.
(b) CONFORMING
AMENDMENT
REGARDING
AU-
THORIZATION OF APPROPRIATIONS.—Section 399F(a) of
the Public Health Service Act (42 U.S.C. 280e–4(a)) is
amended in the first sentence by striking ‘‘this part,’’ and
inserting ‘‘this part (other than section 399E–1),’’.
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