schools and agencies, including community, con-
sumer, and parent-based agencies, and organi-
zations and other programs mandated by part 
C of the Individuals with Disabilities Education 
Act, which offer programs specifically designed 
to meet the unique needs of children with au-
tism. 
‘‘(B) To collect data on statewide autism 
screening, diagnosis, and intervention programs 
and systems that can be used for applied re-
search, program evaluation, and policy develop-
ment. 
‘‘(C) To provide comprehensive medical 
care for individuals with autism through evi-
dence-based practices, with specific attention to 
medical conditions that may be associated with 
autism, and to disseminate information on the 
medical care of individuals with autism to 
health professionals and the general public. In 
carrying out the program under this paragraph, 
a grant shall be awarded to a national organiza-
tion that will establish and support regional 
centers of clinical excellence to provide medical 
care to individuals with autism and promote re-
search aimed at improving the treatment of
such individuals, and that will build a shared 
national medical database to record the results 
of treatments and studies at the regional cen-
ters. 
‘‘(3) PARENTAL
CONSENT.—Screenings and 
other services available under this section for a child 
may not be provided without the consent of a parent 
or legal guardian of the child. 
‘‘(4) SET
ASIDE
OF
FUNDS.—From amounts 
appropriated under subsection (e), the Secretary 
shall set-aside not less than $4,000,000 for each of 
fiscal years 2007 through 2011 to carry out activi-
ties described in paragraph (2)(C). 
‘‘(b) TECHNICAL ASSISTANCE, DATA MANAGEMENT, 
AND
APPLIED
RESEARCH.—The 
Secretary, 
acting 
through the Director of the Centers for Disease Control 
and Prevention, shall award grants or cooperative agree-
ments to provide technical assistance to State agencies to 
conduct applied research related to autism screening, diag-
nosis, and intervention programs and systems. In carrying 
out this section the Secretary shall develop standardized 
procedures for data management and program effective-
ness and costs, including procedures—
‘‘(1) to ensure quality monitoring of autism 
screening, diagnosis, and intervention programs and 
systems; 
‘‘(2) to provide technical assistance on data col-
lection and management; 
‘‘(3) to study the costs and effectiveness of au-
tism screening, diagnosis, and intervention programs 
and systems conducted by State-based programs in 
order to address issues of importance to State and 
national policymakers; 
‘‘(4) to identify the causes and risk factors for 
autism; 
‘‘(5) to study the effectiveness of autism screen-
ing, diagnosis, and intervention programs and sys-
tems by assessing the intellectual and social develop-
ment, cognitive status, and language skills of chil-
dren with autism at school age; and 
‘‘(6) to promote the sharing of data regarding 
autism with State-based birth defects and develop-
mental disabilities monitoring programs and environ-
mental discharge monitoring programs of the Envi-
ronmental Protection Agency for the purpose of 
identifying previously unknown causes of and risk 
factors for autism. 
‘‘(c) COORDINATION AND COLLABORATION.—
‘‘(1) IN GENERAL.—In carrying out programs 
under this section, the Administrator of the Health 
Resources and Services Administration, the Director 
of the Centers for Disease Control and Prevention, 
and the Director of the National Institutes of Health 
shall collaborate and consult with— 
‘‘(A) other Federal, State and local agen-
cies, including those responsible for early inter-
vention services pursuant to title XIX of the 
Social Security Act (particularly the Medicaid 
Early and Periodic Screening, Diagnosis and 
Treatment Program), title XXI of the Social 
Security Act (State Children’s Health Insur-
ance Program), title V of the Social Security 
Act (Maternal and Child Health Block Grant 
Program), and part C of the Individuals with 
Disabilities Education Act; 
‘‘(B) consumer groups of, and that serve, 
individuals with autism and their families; 
‘‘(C) appropriate national medical and 
other health and education specialty organiza-
tions; 
‘‘(D) individuals with autism and their 
families;
‘‘(E) other qualified personnel who possess 
the specialized knowledge, skills, and attributes 
needed to serve autistic children and their fami-
lies; and 
‘‘(F) related commercial industries. 
‘‘(2) POLICY
DEVELOPMENT.—The Adminis-
trator of the Health Resources and Services Admin-
istration, the Director of the Centers for Disease 
Control and Prevention, and the Director of the Na-
tional Institutes of Health shall coordinate and col-
laborate on recommendations for policy development 
at the Federal and State levels and with the private 
sector, including consumer, medical, and other 
health and education professional-based organiza-
tions, with respect to autism screening, diagnosis, 
and intervention programs and systems. 
‘‘(3) STATE
EARLY
DETECTION, DIAGNOSIS, 
AND INTERVENTION PROGRAMS AND SYSTEMS.—The 
Administrator of the Health Resources and Services 
Administration and the Director of the Centers for 
Disease Control and Prevention shall coordinate and 
collaborate in assisting States to establish autism 
screening, diagnosis, and intervention programs and 
systems under subsection (a) and to develop a data 
collection system under subsection (b).
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated— 
‘‘(1) to carry out subsection (a), $75,000,000 
for each of fiscal years 2007 through 2011; and 
‘‘(2) to carry out subsection (b), $25,000,000 
for each of fiscal years 2007 through 2011. 
‘‘SEC. 399DD. ANNUAL REPORT ON AUTISM. 
‘‘(a) IN GENERAL.—Not later than January 1, 2006, 
and each January 1 thereafter, the Secretary shall prepare 
and submit to the appropriate committees of Congress, a 
report concerning the implementation of this part. 
‘‘(b) CONTENTS.—The report, utilizing uniform re-
porting methods and procedures, shall— 
‘‘(1) provide the dollar amount that each insti-
tute of the National Institutes of Health expended 
on autism research in the year for which the report 
was prepared; and 
‘‘(2) detail the progress and success of the Na-
tional Institutes of Health in implementing and 
funding the recommendations contained in the Au-
tism Research Roadmap and Matrix of the Inter-
agency Autism Coordinating Committee.’’. 
Æ