I
103D CONGRESS
1ST SESSION
H. R. 3505
To amend the Developmental Disabilities Assistance and Bill of Rights Act
to modify certain provisions relating to programs for individuals with
developmental disabilities, Federal assistance for priority area activities
for individuals with developmental disabilities, protection and advocacy
of individual rights, university affiliated programs, and projects of na-
tional significance, and for other purposes.
IN THE HOUSE OF REPRESENTATIVES
NOVEMBER 10, 1993
Mr. WAXMAN introduced the following bill; which was referred to the
Committee on Energy and Commerce
A BILL
To amend the Developmental Disabilities Assistance and Bill
of Rights Act to modify certain provisions relating to
programs for individuals with developmental disabilities,
Federal assistance for priority area activities for individ-
uals with developmental disabilities, protection and advo-
cacy of individual rights, university affiliated programs,
and projects of national significance, and for other
purposes.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘Developmental Disabil-
ities Assistance and Bill of Rights Act Amendments of
1993’’.
SEC. 2. TITLE AND PART HEADINGS.
(a) TITLE.—The heading of title I of the Devel-
opmental Disabilities Assistance and Bill of Rights Act
(42 U.S.C. 6000 et seq.) is amended to read as follows:
‘‘TITLE I—PROGRAMS FOR INDI-
VIDUALS WITH DEVELOPMEN-
TAL DISABILITIES’’.
(b) PART.—The heading of part A of title I of the
Developmental Disabilities Assistance and Bill of Rights
Act (42 U.S.C. 6000 et seq.) is amended to read as fol-
lows:
‘‘PART A—GENERAL PROVISIONS’’.
SEC. 3. FINDINGS AND PURPOSES.
Section 101 of the Developmental Disabilities Assist-
ance and Bill of Rights Act (42 U.S.C. 6000) is amended
to read as follows:
‘‘SEC. 101. FINDINGS, PURPOSES, AND POLICY.
‘‘(a) FINDINGS.—The Congress finds that—
‘‘(1) in 1993 there are more than 3,000,000
individuals with developmental disabilities in the
United States;
‘‘(2) disability is a natural part of the human
experience that does not diminish the right of indi-
viduals with developmental disabilities to enjoy the
opportunity to live independently, enjoy self-deter-
mination, make choices, contribute to society, and
experience full integration and inclusion in the eco-
nomic, political, social, cultural, and educational
mainstream of American society;
‘‘(3) individuals with developmental disabilities
continually encounter various forms of discrimina-
tion in critical areas;
‘‘(4) there is a lack of public awareness of the
capabilities and competencies of individuals with de-
velopmental disabilities;
‘‘(5) individuals whose disabilities occur during
their developmental period frequently have severe
disabilities that are likely to continue indefinitely;
‘‘(6) individuals with developmental disabilities
often require lifelong specialized services and assist-
ance, provided in a coordinated and culturally com-
petent manner by many agencies, professionals, ad-
vocates, community representatives, and others to
eliminate barriers and to meet the needs of such in-
dividuals and their families;
‘‘(7) a substantial portion of individuals with
developmental disabilities and their families do not
have access to appropriate support and services from
generic and specialized service systems and remain
unserved or underserved;
‘‘(8) family members, friends, and members of
the community can play an important role in en-
hancing the lives of individuals with developmental
disabilities, especially when the family and commu-
nity are provided with the necessary services and
supports; and
‘‘(9) the goals of the Nation properly include
the goal of providing individuals with developmental
disabilities with the opportunities and support to—
‘‘(A) make informed choices and decisions;
‘‘(B) live in homes and communities in
which such individuals can exercise their full
rights and responsibilities as citizens;
‘‘(C) pursue meaningful and productive
lives;
‘‘(D) contribute to their family, commu-
nity, State, and Nation;
‘‘(E) have interdependent friendships and
relationships with others; and
‘‘(F) achieve full integration and inclusion
in society;
in an individualized manner, consistent with unique
strengths, resources, priorities, concerns, abilities
and capabilities of each individual.
‘‘(b) PURPOSE.—The purpose of this Act is to assure
that individuals with developmental disabilities and their
families have access to culturally competent services, sup-
ports, and other assistance and opportunities that promote
independence, productivity, and integration and inclusion
into the community, through—
‘‘(1) support to State Developmental Disabil-
ities Councils in each State to promote, through sys-
temic change, capacity building, and advocacy (con-
sistent with section 101(c)(2)), a consumer and fam-
ily-centered, comprehensive system, and a coordi-
nated array of services, supports, and other assist-
ance for individuals with developmental disabilities
and their families;
‘‘(2) support to protection and advocacy sys-
tems in each State to protect the legal and human
rights of individuals with developmental disabilities;
‘‘(3) support to university affiliated programs
to provide interdisciplinary preservice preparation of
students and fellows, community service activities,
and the dissemination of information and research
findings; and
‘‘(4) support to national initiatives to collect
necessary data, provide technical assistance to State
Developmental Disabilities Councils, protection, and
advocacy systems and university affiliated programs,
and support other nationally significant activities.
‘‘(c) POLICY.—It is the policy of the United States
that all programs, projects, and activities receiving assist-
ance under this Act shall be carried out in a manner con-
sistent with the principles that—
‘‘(1) individuals with developmental disabilities,
including those with the most severe developmental
disabilities, are capable of achieving independence,
productivity, and integration and inclusion into the
community, and the provision of services, supports
and other assistance can improve such individuals’
ability to achieve independence, productivity, and in-
tegration and inclusion;
‘‘(2) individuals with developmental disabilities
and their families have competencies, capabilities
and personal goals that should be recognized, sup-
ported, and encouraged and any assistance should be
provided in an individualized manner, consistent
with the unique strengths, resources, priorities, con-
cerns, abilities, and capabilities of the individual;
‘‘(3) individuals with developmental disabilities
and their families are the primary decisionmakers
regarding the services and supports such individuals
and their families receive and play decisionmaking
roles in policies and programs that affect the lives
of such individuals and their families;
‘‘(4) services, supports, and other assistance are
provided in a manner that demonstrates respect for
individual dignity, personal preferences, and cultural
differences;
‘‘(5) communities accept and support individ-
uals with developmental disabilities and are enriched
by the full and active participation and the contribu-
tions by individuals with developmental disabilities
and their families; and
‘‘(6) individuals with developmental disabilities
have opportunities and the necessary support to be
included in community life, have interdependent re-
lationships, live in homes and communities, and
make contributions to their families, community,
State, and Nation.’’.
SEC. 4. TECHNICAL AMENDMENTS.
(a) PROTECTION AND ADVOCACY OF THE RIGHTS OF
INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES.—
The heading of part C of title I of the Developmental Dis-
abilities Assistance and Bill of Rights Act (42 U.S.C.
6041 et seq.) is amended to read as follows:
‘‘PART C—PROTECTION AND ADVOCACY OF THE
RIGHTS 
OF 
INDIVIDUALS 
WITH 
DEVEL-
OPMENTAL DISABILITIES’’.
(b) SYSTEM REQUIRED.—Section 142 of the Devel-
opmental Disabilities Assistance and Bill of Rights Act
(42 U.S.C. 6042) is amended by adding at the end the
following subsection:
‘‘(i) PUBLIC NOTICE
OF FEDERAL ONSITE RE-
VIEW.—The Secretary shall provide advance public notice
of any Federal programmatic and administrative review
and solicit public comment on the system funded under
this part through such notice. The findings of the public
comment solicitation notice shall be included in the onsite
visit report. The results of such reviews shall be distrib-
uted to the Governor of the State and to other interested
public and private parties.’’.
SEC. 5. AUTHORIZATIONS OF APPROPRIATIONS.
(a) PLANNING
OF PRIORITY AREA ACTIVITIES.—
Section 130 of the Developmental Disabilities Assistance
and Bill of Rights Act (42 U.S.C. 6030) is amended by
striking ‘‘$77,400,000’’ and all that follows and inserting
the following: ‘‘$70,000,000 for fiscal year 1994, and such
sums as may be necessary for each of the fiscal years 1995
and 1996.’’.
(b) PROTECTION
AND ADVOCACY
OF INDIVIDUAL
RIGHTS.—Section 143 of the Developmental Disabilities
Assistance and Bill of Rights Act (42 U.S.C. 6043) is
amended by striking ‘‘$24,200,000’’ and all that follows
and inserting the following: ‘‘$24,000,000 for fiscal year
1994, and such sums as may be necessary for each of the
fiscal years 1995 and 1996.’’.
(c) UNIVERSITY AFFILIATED PROGRAM.—Section
154 of the Developmental Disabilities Assistance and Bill
of Rights Act (42 U.S.C. 6064) is amended to read as
follows:
‘‘SEC. 154. AUTHORIZATION OF APPROPRIATIONS.
‘‘For the purpose of making grants under subsections
(a) through (e) of section 152, there are authorized to be
appropriated $19,000,000 for fiscal year 1994, and such
sums as may be necessary for each of the fiscal years 1995
and 1996.’’.
(d) PROJECTS OF NATIONAL SIGNIFICANCE.—Sec-
tion 163(a) of the Developmental Disabilities Assistance
and Bill of Rights Act (42 U.S.C. 6083(a)) is amended
by striking ‘‘$3,650,000’’ and all that follows and insert-
ing the following: ‘‘$4,000,000 for fiscal year 1994, and
such sums as may be necessary for each of the fiscal years
1995 and 1996.’’.
Æ