IB 
Union Calendar No. 428 
109TH CONGRESS 
2D SESSION 
H. R. 3248 
[Report No. 109–716] 
To amend the Public Health Service Act to establish a program to assist 
family caregivers in accessing affordable and high-quality respite care, 
and for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
JULY 12, 2005 
Mr. FERGUSON (for himself, Mr. LANGEVIN, Mr. TERRY, Mr. NORWOOD, Mrs. 
WILSON of New Mexico, and Mr. BROWN of Ohio) introduced the fol-
lowing bill; which was referred to the Committee on Energy and Com-
merce 
DECEMBER 5, 2006 
Additional sponsors: Mr. LARSON of Connecticut, Mr. ANDREWS, Mr. WOLF, 
Mr. PASCRELL, Mr. LARSEN of Washington, Mr. EMANUEL, Ms. JACK-
SON-LEE of Texas, Mr. MENENDEZ, Mr. DEFAZIO, Mr. SANDERS, Mr. 
PALLONE, Mr. GUTIERREZ, Mr. WU, Ms. LORETTA SANCHEZ of Cali-
fornia, Mr. REYES, Mr. LYNCH, Mr. VAN HOLLEN, Mr. HINCHEY, Mr. 
RAMSTAD, Mr. DOYLE, Ms. ROYBAL-ALLARD, Mr. BISHOP of Georgia, 
Mr. BOEHLERT, Mr. MCDERMOTT, Mr. STRICKLAND, Mr. MELANCON, 
Mr. PRICE of North Carolina, Mr. PLATTS, Mrs. CAPPS, Mr. WALDEN 
of Oregon, Mr. SCHWARZ of Michigan, Ms. BERKLEY, Ms. SLAUGHTER, 
Mr. SHIMKUS, Ms. BALDWIN, Mr. SNYDER, Mr. ABERCROMBIE, Ms. 
HERSETH, Mrs. DAVIS of California, Mr. RENZI, Mr. HOLT, Mr. ROTH-
MAN, Mr. BAIRD, Mr. NADLER, Mr. KUCINICH, Mr. SCHIFF, Ms. 
SCHAKOWSKY, Mr. MICHAUD, Mr. SHAYS, Mr. KIND, Mr. RAHALL, Mr. 
BONNER, Mr. SOUDER, Mr. BACHUS, Mr. FATTAH, Mr. WAXMAN, Mr. 
GENE GREEN of Texas, Mr. MCINTYRE, Mrs. JONES of Ohio, Ms. 
ESHOO, Mr. MOORE of Kansas, Mr. BLUMENAUER, Mr. KIRK, Ms. ZOE 
LOFGREN of California, Mr. CARDIN, Mrs. JO ANN DAVIS of Virginia, 
Mr. GOODE, Mr. BURGESS, Mr. BOUCHER, Mr. SCOTT of Virginia, Mr. 
FORD, Mrs. MALONEY, Mr. ROGERS of Michigan, Mr. WYNN, Mr. PE-
TERSON of Minnesota, Mr. RUPPERSBERGER, Ms. HOOLEY, Mr. KEN-
NEDY of Rhode Island, and Mr. PAYNE 
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DECEMBER 5, 2006 
Reported with an amendment, committed to the Committee of the Whole 
House on the State of the Union, and ordered to be printed 
[Strike out all after the enacting clause and insert the part printed in italic] 
[For text of introduced bill, see copy of bill as introduced on July 12, 2005] 
A BILL 
To amend the Public Health Service Act to establish a pro-
gram to assist family caregivers in accessing affordable 
and high-quality respite care, and for other purposes. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Lifespan Respite Care 
Act of 2006’’. 
SEC. 2. LIFESPAN RESPITE CARE. 
The Public Health Service Act (42 U.S.C. 201 et seq.) 
is amended by adding at the end the following: 
‘‘TITLE XXIX—LIFESPAN RESPITE 
CARE 
‘‘SEC. 2901. DEFINITIONS. 
‘‘In this title: 
‘‘(1) ADULT WITH A SPECIAL NEED.—The term 
‘adult with a special need’ means a person 18 years 
of age or older who requires care or supervision to— 
‘‘(A) meet the person’s basic needs; 
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‘‘(B) prevent physical self-injury or injury 
to others; or 
‘‘(C) avoid placement in an institutional 
facility. 
‘‘(2) AGING
AND
DISABILITY
RESOURCE
CEN-
TER.—The term ‘aging and disability resource center’ 
means an entity administering a program established 
by the State, as part of the State’s system of long- 
term care, to provide a coordinated system for pro-
viding— 
‘‘(A) comprehensive information on avail-
able public and private long-term care programs, 
options, and resources; 
‘‘(B) personal counseling to assist individ-
uals in assessing their existing or anticipated 
long-term care needs, and developing and imple-
menting a plan for long-term care designed to 
meet their specific needs and circumstances; and 
‘‘(C) consumer access to the range of pub-
licly supported long-term care programs for 
which consumers may be eligible, by serving as 
a convenient point of entry for such programs. 
‘‘(3) CHILD WITH A SPECIAL NEED.—The term 
‘child with a special need’ means an individual less 
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than 18 years of age who requires care or supervision 
beyond that required of children generally to— 
‘‘(A) meet the child’s basic needs; or 
‘‘(B) prevent physical injury, self-injury, or 
injury to others. 
‘‘(4) ELIGIBLE STATE AGENCY.—The term ‘eligi-
ble State agency’ means a State agency that— 
‘‘(A) administers the State’s program under 
the Older Americans Act of 1965, administers 
the State’s program under title XIX of the Social 
Security Act, or is designated by the Governor of 
such State to administer the State’s programs 
under this title; 
‘‘(B) is an aging and disability resource 
center; 
‘‘(C) works in collaboration with a public 
or private nonprofit statewide respite care coali-
tion or organization; and 
‘‘(D) demonstrates— 
‘‘(i) an ability to work with other 
State and community-based agencies; 
‘‘(ii) an understanding of respite care 
and family caregiver issues across all age 
groups, disabilities, and chronic conditions; 
and 
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‘‘(iii) the capacity to ensure meaning-
ful involvement of family members, family 
caregivers, and care recipients. 
‘‘(5) FAMILY
CAREGIVER.—The term ‘family 
caregiver’ means an unpaid family member, a foster 
parent, or another unpaid adult, who provides in- 
home monitoring, management, supervision, or treat-
ment of a child or adult with a special need. 
‘‘(6) LIFESPAN RESPITE CARE.—The term ‘life-
span respite care’ means a coordinated system of ac-
cessible, community-based respite care services for 
family caregivers of children or adults with special 
needs. 
‘‘(7) RESPITE
CARE.—The term ‘respite care’ 
means planned or emergency care provided to a child 
or adult with a special need in order to provide tem-
porary relief to the family caregiver of that child or 
adult. 
‘‘(8) STATE.—The term ‘State’ means any of the 
several States, the District of Columbia, the Virgin Is-
lands of the United States, the Commonwealth of 
Puerto Rico, Guam, American Samoa, and the Com-
monwealth of the Northern Mariana Islands. 
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