(b) TABLE OF CONTENTS.—The table of contents for 
this Act is as follows: 
Sec. 1. Short title; table of contents. 
Sec. 2. Targeting resources for equitable access to treatment of Long COVID. 
Sec. 3. National Long COVID technical assistance dissemination program. 
Sec. 4. Mental health and suicide prevention and treatment. 
Sec. 5. ONC best practices for Long COVID data. 
Sec. 6. Long COVID Education Website. 
Sec. 7. Providing Support for Long COVID Registries. 
Sec. 8. Medicaid Health Homes for Individuals with Long COVID. 
Sec. 9. State health officials guidance. 
Sec. 10. Support under Medicaid for State Collection of Long COVID Data. 
Sec. 11. Grants for Pediatric Research on Long COVID. 
SEC. 2. TARGETING RESOURCES FOR EQUITABLE ACCESS 
TO TREATMENT OF LONG COVID. 
(a) ESTABLISHMENT.— 
(1) IN GENERAL.—Not later than 1 year after 
the date of the enactment of this Act, the Secretary 
of Health and Human Services shall award, subject 
to subsection (f) and in accordance with the provi-
sions of this section, grants described in the fol-
lowing subsections to carry out the purposes de-
scribed in such subsections. 
(2) ELIGIBILITY.—The Secretary may establish 
a process for evaluating and determining the eligi-
bility of Federally qualified health centers and rural 
health clinics for receiving a grant under this sec-
tion. 
(b) GRANTS TO FQHCS AND RHCS.—For purposes 
of subsection (a), the grants described in this subsection 
are grants to Federally qualified health centers (as defined 
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in section 1861(aa)(4) of the Social Security Act (42 
U.S.C. 1395x(aa)(4)) and rural health clinics (as defined 
in section 1861(aa)(2) of such Act (42 U.S.C. 
1395x(aa)(2)) to— 
(1) adopt evidence-based Long COVID clinical 
practices that have been demonstrated to improve 
the wellness of individuals with Long COVID, in-
cluding clinical validation of patient reported symp-
toms using established measures that yield struc-
tured, comparable data; 
(2) establish or expand screening, referral, and 
navigation processes for health-related social needs 
that could interfere with Long COVID treatment, 
including food insecurity, housing instability, trans-
portation needs, utility difficulties, and interpersonal 
safety; and 
(3) submit to the Secretary of Health and 
Human Services (in a format consistent with the 
standards and activities under the Data Moderniza-
tion Initiative of the Centers for Disease Control 
and 
Prevention) 
standardized, 
disaggregated, 
deidentified data (as specified by the Secretary) on 
the characteristics, diagnoses, and health care serv-
ice utilization of Long COVID patients served under 
such grant, including disaggregated data on Long 
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COVID patient characteristics, including patient 
age, gender, race, ethnicity, language spoken, dis-
ability status, nature and duration of validated 
symptoms, and other characteristics necessary to in-
form considerations for effective and equitable treat-
ment for patients with Long COVID. 
(c) GRANTS TO PRIMARY CARE PRACTICES.—For 
purposes of subsection (a), the grants described in this 
subsection are grants to primary care practices (other 
than Federally qualified health centers and rural health 
clinics) that satisfy such criteria as may be established by 
the Secretary to carry out the purposes described in para-
graphs (1) and (3) of subsection (b). 
(d) GRANTS FOR MULTIDISCIPLINARY TREATMENT 
AND COORDINATION.— 
(1) IN GENERAL.—The Secretary of Health and 
Human Services (in this section referred to as the 
‘‘Secretary’’) shall award grants on a competitive 
basis to eligible entities for the purpose of creating 
or enhancing capacity to treat patients with Long 
COVID through a multidisciplinary approach. The 
term ‘‘multidisciplinary’’ in this section refers to the 
coordinated work to provide care or treatment to a 
patient by physicians and other professionals, such 
as specialty or subspecialty providers, nurses and 
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nurse care coordinators, dietitians, nutritionists, so-
cial workers, behavioral health professionals, phys-
ical and occupational therapists, speech pathologists, 
or any professionals determined to be appropriate by 
the State and approved by the Administrator of the 
Centers for Medicare & Medicaid Services. 
(2) USE OF FUNDS.—An eligible entity receiv-
ing a grant under this section shall use the grant, 
for the purpose described in subsection (a), to— 
(A) enhance the capacity of one or more 
existing multidisciplinary Long COVID clinics 
to serve the Long COVID population; or 
(B) create one or more multidisciplinary 
clinics to address the physical and mental 
health needs of Long COVID patients. 
(3) ELIGIBLE ENTITIES.—To be eligible to re-
ceive a grant under this section, an entity shall be 
a health care provider, Federally qualified health 
center (as defined in section 1861(aa) of the Social 
Security Act (42 U.S.C. 1395x(aa))), rural health 
clinic, urban Indian health center, or State or local 
public health department, that— 
(A)(i) operates an existing multidisci-
plinary Long COVID clinic or other specialized 
Long COVID program; or 
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(ii) is an existing health care provider with 
experience providing care for individuals with 
Long COVID and who demonstrates an intent 
to create a multidisciplinary Long COVID clinic 
or other specialized Long COVID program; 
(B) submits to the Secretary an applica-
tion at such time, in such manner, and con-
taining such information and assurances as the 
Secretary may require; and 
(C) employs a framework that incentivizes 
participants to attain the program’s goals to es-
tablish and disseminate best practices, and allo-
cates funds based on such attainment. 
(4) SPECIAL RULE.—A physical clinical facility 
is not a requirement for eligibility. 
(5) PRIORITY.—In awarding grants under this 
subsection, the Secretary shall give priority to eligi-
ble entities that— 
(A) submit a plan to engage with medically 
underserved communities, and with populations 
disproportionately impacted by COVID–19; 
(B) demonstrate capacity (or an intent to 
build capacity) to provide personalized treat-
ment and facilitate patient access to multidisci-
plinary health care providers with expertise in 
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(A) offer equity-centered resources (such 
as the ability to offer resources in various lan-
guages), information, and training to safety net 
health systems; and 
(B) disseminate to individuals and organi-
zations that provide care best practices and 
treatment approaches that enhance access to 
high-quality care to everyone where they live; 
and 
(3) treatment for Long COVID shall be in-
cluded as a COVID–19 treatment, consistent with 
the American Rescue Plan Act of 2021 (Public Law 
117–2). 
(f) DEVELOPMENT OF EVIDENCE-BASED STRATE-
GIES FOR HIGH-VALUE CARE FOR INDIVIDUALS WITH 
LONG COVID.— 
(1) IN GENERAL.—Not later than 1 year after 
the date of the enactment of this Act, the Agency 
for Healthcare Research and Quality shall, subject 
to appropriations pursuant to subsection (i), award 
multi-year grants to eligible entities meeting such 
criteria as specified by the Secretary through rule-
making for the purposes of— 
(A) supporting the generation of evidence 
about how to deliver high quality, high-value 
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health care for individuals with Long COVID 
for the treatment of the condition; 
(B) creating tools and strategies to help 
health systems and hospitals, primary and spe-
cialty physicians, nurses, allied health care pro-
fessionals, and caregivers provide high-quality, 
high-value care for individuals with Long 
COVID; and 
(C) providing educational materials for 
health care providers, payers, and consumers on 
high-value care for individuals with Long 
COVID. 
(2) ELIGIBILITY.—The Secretary shall, through 
rulemaking, specify a process for evaluating and de-
termining the eligibility of primary care providers in-
cluding Federally qualified health centers and rural 
health clinics; specialty care providers, hospitals, 
health systems, academic medical centers; and other 
entities for receiving a grant under this subsection. 
Such rules shall prohibit grant funds from being 
used to compensate or reimburse individuals or orga-
nizations excluded pursuant to section 1128 of the 
Social Security Act (42 U.S.C. 1320a–7) from par-
ticipation under the Medicare program under title 
XVIII of such Act. 
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(g) LONG COVID DEFINED.—For purposes of this 
Act, the term ‘‘Long COVID’’ (also referred to as ‘‘post- 
acute sequelae of COVID–19’’, ‘‘post-COVID conditions’’, 
or ‘‘persistent symptoms post-COVID’’) means the ongo-
ing sequelae of COVID–19 that some individuals experi-
ence after infection with the SARS–CoV–2 virus, as diag-
nosed by a qualified health care provider. Such sequelae 
are defined as the ‘‘Post-COVID Conditions’’ identified 
and defined by the Centers for Disease Control and Pre-
vention in 2021, or in subsequent revisions by the Centers 
for Disease Control and Prevention. 
(h) REPORTS.— 
(1) ANNUAL REPORTS BY GRANTEES TO SEC-
RETARY.—On an annual basis, a recipient of a grant 
under this section shall— 
(A) submit to the Secretary, and make 
publicly available, a report on the activities car-
ried out through the grant; and 
(B) include evaluations of such activities, 
including the experience of individuals who re-
ceived health care through such grant. 
(2) ANNUAL REPORTS BY SECRETARY TO CON-
GRESS.—Not later than the end of each of fiscal 
years 2024 through 2026, the Secretary shall submit 
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to the Congress, and make publicly available, a re-
port that— 
(A) summarizes the reports received under 
paragraph (1); 
(B) evaluates the effectiveness of grants 
under this section; and 
(C) makes recommendations with respect 
to expanding coverage for clinical care for Long 
COVID. 
(i) AUTHORIZATION OF APPROPRIATIONS.— 
(1) IN GENERAL.—To carry out this section, 
there are authorized to be appropriated such sums 
as may be necessary for each of fiscal years 2024 
through 2026. 
(2) ADMINISTRATIVE
EXPENSES.—Not more 
than 15 percent of the amounts made available to 
carry out this section for any fiscal year may be 
used for administrative expenses to operate the 
grants under this section. 
SEC. 3. NATIONAL LONG COVID TECHNICAL ASSISTANCE 
DISSEMINATION PROGRAM. 
(a) IN GENERAL.—The Secretary of Health and 
Human Services shall— 
(1) establish a structured process to seek ongo-
ing input from medical societies representing pri-
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mary care, specialty care, and subspecialty care re-
garding the proven and promising practices for 
treating individuals who are diagnosed with Long 
COVID to support their wellness and recovery; and 
(2) enter into a memorandum of understanding 
with one or more organizations with specific medical 
knowledge on Long COVID or experience providing 
care and medical treatment to individuals with Long 
COVID to support the ongoing dissemination to the 
broader medical community of existing open source 
evidence, tools and strategies. 
(b) ORGANIZATION DESCRIBED.—For purposes of 
subsection (a), and organization described in this para-
graph is an organization that satisfies at least the fol-
lowing: 
(1) The organization has clinical expertise re-
lated to the treatment of Long COVID. 
(2) The organization has a robust under-
standing of clinical and business practices. 
(3) The organization has the ability to convene 
groups and disseminate information nationally. 
(4) The organization consults with medical spe-
cialty associations for purposes of developing and 
distributing clinical best practices for Long COVID 
diagnosis and treatment. 
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SEC. 4. MENTAL HEALTH AND SUICIDE PREVENTION AND 
TREATMENT. 
Section 1911(b)(1) of the Public Health Service Act 
(42 U.S.C. 300x(b)(1)) is amended by inserting ‘‘and, for 
each of fiscal years 2024 through 2026, individuals with 
Long COVID (as defined in section 2 of the Long COVID 
RECOVERY NOW Act) who have also been diagnosed 
with a mental health condition (such as a serious mental 
illness or a serious emotional disturbance)’’ after 
‘‘1912(c)’’. 
SEC. 5. ONC BEST PRACTICES FOR LONG COVID DATA. 
(a) IN GENERAL.—Not later than 6 months after the 
date of the enactment of this Act, the Secretary of Health 
and Human Services, acting through the National Coordi-
nator for Health Information Technology, shall convene 
health care stakeholders to identify potential best prac-
tices for collecting, aggregating, and disseminating to 
health care researchers deidentified data that promotes 
learning about Long COVID and supports the further re-
search of the characteristics of individuals diagnosed with 
Long COVID. 
(b) REPORT.—Not later than 160 days after the first 
meeting of such stakeholders pursuant to subsection (a), 
the Secretary shall submit to Congress (and make publicly 
available on the website of the Office of the National Coor-
dinator of Health Information Technology) a report sum-
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marizing the meetings and findings of the stakeholders as 
well as any recommendations, including recommendations 
on ways that federal health care policy can better support 
an understanding of the etiology, characteristics, care and 
potential treatments for individuals Long COVID to sup-
port individuals’ recovery and wellness. Such recommenda-
tions shall— 
(1) take into account the perspectives of health 
data scientists, health services researchers, medical 
providers, health plans, hospitals and health sys-
tems, epidemiologists, public health experts, patient 
representatives and groups, health information tech-
nology companies, and other stakeholders; and 
(2) be informed by public and private sector ef-
forts to characterize Long COVID, aggregate and 
disaggregate data, and promote data standardiza-
tion, data standards, or open data access for fur-
thering a greater understanding of Long COVID. 
SEC. 6. LONG COVID EDUCATION WEBSITE. 
Not later than 6 months after the date of the enact-
ment of this Act, the Secretary of Health and Human 
Services shall, in consultation with medical societies rep-
resenting the perspectives of primary care, specialty care, 
mental health professionals, medical researchers (includ-
ing through the National Institutes of Health), public 
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health experts (including the Centers for Disease Control 
and Prevention), and patient advocates, implement a Fed-
eral website (which may be implemented through an exist-
ing public website of the Department of Health and 
Human Services) that— 
(1) collects, and curates educational materials 
for health care providers and consumers about Long 
COVID (as defined in section 2(e)) symptoms, diag-
nosis, characteristics, treatment, and access to care; 
and 
(2) includes, or provides a link to, comprehen-
sive educational resources for health care providers, 
such as the interim guidance (and subsequent up-
dates) for health care providers published by the 
Centers for Disease Control and Prevention on how 
to treat individuals with Long COVID. 
SEC. 7. PROVIDING SUPPORT FOR LONG COVID REG-
ISTRIES. 
(a) IN GENERAL.—Not later than one year after the 
date of the enactment of this Act, the Secretary of Health 
and Human Services, acting through the Director of the 
Agency for Healthcare Research and Quality shall, subject 
to appropriations pursuant to subsection (d), award multi- 
year grants to eligible entities described in subsection (b) 
for the purposes of— 
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(1) supporting existing or creating new Longi-
tudinal registries of patients with Long COVID (as 
defined in section 2(g)); 
(2) establishing voluntary standards for such 
registries that include common data elements and 
clear data definitions to enable the comparability 
and synchronization of data by researchers; 
(3) utilize data from such registries to help in-
form understanding regarding the efficacy of care, 
diagnostics, therapeutics, care pathways, behavioral 
health interventions, and other dynamics regarding 
individuals with Long COVID; and 
(4) informing health care providers’ efforts re-
lated to improving equitable access to health care by 
collecting data through such registries from individ-
uals with Long COVID, including social needs, med-
ical history, race and ethnicity, language, gender, 
and disability status, as specified by the Secretary of 
Health and Human Services. 
(b) ELIGIBLE ENTITIES.— 
(1) IN GENERAL.—To be eligible for a grant 
under subsection (a) an entity shall— 
(A) submit an application to the Secretary 
in such form and manner as the Secretary may 
require; 
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(B) agree to adhere to such data defini-
tions and standards as the Secretary may re-
quire, including privacy and security require-
ments, requirements to make findings of the or-
ganization, and the use of open-source tech-
nology to promote the dissemination of informa-
tion related to Long COVID; 
(C) agree to make any information col-
lected or produced by the entity pursuant to the 
grant available to the public through secure, 
non-proprietary means without a paywall or fee; 
(D) demonstrate to the Secretary, in a 
form and manner specified by the Secretary, 
that the entity has in place appropriate stand-
ards for handling proprietary, confidential, and 
medical information securely and in a manner 
that is compliant with applicable law; 
(E) have in place and demonstrate to the 
Secretary the adequacy of a plan for the 
Longer-term financial sustainability of such 
registry; and 
(F) be an organization described in para-
graph (2). 
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(2) ORGANIZATIONS.—For purposes of para-
graph (1), an organization described in this para-
graph is any of the following: 
(A) A non-profit organization representa-
tive of individuals with Long COVID. 
(B) An organization of health care pro-
viders, such as health systems and hospitals. 
(C) An organization of data scientists. 
(D) Multi-sector groups that consist of or-
ganizations described in 2 or more of the pre-
ceding subparagraphs that meet such standards 
as the Secretary may require. 
(c) CONSIDERATION.—In carrying out the purposes 
described in subsection (a), an eligible entity shall take 
into consideration the report made available under section 
4(b). 
(d) AUTHORIZATION OF APPROPRIATIONS.—There is 
authorized to be appropriated to carry out this section 
$10,000,000 for each of fiscal years 2024 through 2028. 
SEC. 8. MEDICAID HEALTH HOMES FOR INDIVIDUALS WITH 
LONG COVID. 
(a) HEALTH
HOMES
FOR
INDIVIDUALS
WITH 
CHRONIC CONDITIONS.—Section 1945(h)(1)(A)(ii) of the 
Social Security Act (42 U.S.C. 1396w–4(h)(1)(A)(ii)) is 
amended— 
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Services shall issue guidance to State health officials speci-
fying tools and strategies that may help States improve 
the health and wellness of individuals enrolled under the 
Medicaid program under title XIX of the Social Security 
Act or the Children’s Health Insurance Program under 
title XXI of such Act who have been diagnosed with Long 
COVID by facilitating strong primary care and supporting 
linkages to specialists, relevant social supports, or commu-
nity-based organizations at the local level, that can help 
support the recovery and wellness of such individuals. 
SEC. 10. SUPPORT UNDER MEDICAID FOR STATE COLLEC-
TION OF LONG COVID DATA. 
Section 1903(a)(3) of the Social Security Act (42 
U.S.C. 1396b(a)(3)) is amended by adding at the end the 
following new subparagraph: 
‘‘(I) 75 percent of the sums expended during a 
fiscal year quarter in 2024, 2025, or 2026 as are at-
tributable to the collection and reporting of claims 
and encounter data on Long COVID (including 
identification of race, language, ethnicity, and dura-
tion of treatment) using the ICD–10 code U09.9 
post COVID–19 condition, unspecified (or any suc-
cessor to such code);’’. 
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SEC. 11. GRANTS FOR PEDIATRIC RESEARCH ON LONG 
COVID. 
(a) IN GENERAL.—The Secretary of Health and 
Human Services, acting through the Director of the Na-
tional Institutes of Health (in this section, referred to as 
the ‘‘Secretary’’), shall award grants to eligible entities to 
conduct research on Long COVID in pediatric popu-
lations. 
(b) USE OF FUNDS.—An eligible entity selected to 
receive a grant under this subsection may use funds re-
ceived through the grant to conduct research described in 
subsection (a), with a focus on pediatric immune system 
responses and neurodevelopment. 
(c) ELIGIBLE ENTITY DEFINED.—In this section, the 
term ‘‘eligible entity’’ means a children’s hospital, pedi-
atric researcher, pediatrician, academic medical center, or 
other organization determined appropriate by the Sec-
retary. 
(d) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there are authorized to be appropriated 
such sums as may be necessary for each of fiscal years 
2024 through 2026. 
Æ 
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