‘‘(A) respond in a coordinated, multidisci-
plinary way to patient inquiries; and 
‘‘(B) coordinate evaluation, treatment, and 
education of patients and their families in a 
timely manner. 
‘‘(3) The academic health center has the fol-
lowing personnel, facilities, and patient volume: 
‘‘(A) A medical director with— 
‘‘(i) specialized knowledge of the main 
organ manifestations of HHT; and 
‘‘(ii) the ability to coordinate the mul-
tidisciplinary diagnosis and treatment of 
patients referred to the center. 
‘‘(B) Administrative staff with— 
‘‘(i) sufficient knowledge to respond to 
patient inquiries and coordinate patient 
care in a timely fashion; and 
‘‘(ii) adequate financial support to 
allow the staff to commit at least 25 to 50 
of their time on the job to HHT. 
‘‘(C) An otolaryngologist with experience 
and expertise in the treatment of recurrent epi-
staxis in HHT patients. 
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‘‘(D) An interventional radiologist with ex-
perience and expertise in the treatment of pul-
monary arteriovenous malformations (AVM). 
‘‘(E) A genetic counselor or geneticist with 
the expertise to provide HHT-specific genetic 
counseling to patients and families. 
‘‘(F) On-site facilities to screen for all 
major organ manifestations of HHT. 
‘‘(G) A patient volume of at least 25 new 
HHT patients per year. 
‘‘(H) Established mechanisms to coordi-
nate surveillance and outreach with HHT pa-
tient advocacy organizations.’’. 
SEC. 6. ADDITIONAL HEALTH AND HUMAN SERVICES AC-
TIVITIES. 
With respect to hereditary hemorrhagic telangiectasia 
(in this section referred to as ‘‘HHT’’), the Secretary of 
Health and Human Services, acting through the Adminis-
trator of the Centers for Medicare & Medicaid Services, 
shall award grants on a competitive basis— 
(1) for an analysis by grantees of the Medicare 
Provider Analysis and Review (MEDPAR) file to de-
velop preliminary estimates on the total costs to the 
Medicare program under title XVIII of the Social 
Security Act for items, services, and treatments for 
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HHT furnished to individuals with HHT who are 
entitled to benefits under part A of title XVIII of 
the Social Security Act or enrolled under part B of 
such title; and 
(2) to make recommendations regarding an en-
hanced data collection protocol to permit a more 
precise determination of the total costs described in 
paragraph (1). 
SEC. 7. AUTHORIZATION OF APPROPRIATIONS. 
(a) IN GENERAL.—To carry out section 409K of the 
Public Health Service Act as added by section 4 of this 
Act, section 317U of the Public Health Service Act as 
added by section 5 of this Act, and section 6 of this Act, 
there is authorized to be appropriated $5,000,000 for each 
of fiscal years 2012 through 2016. 
(b) RESOURCE CENTER.—Of the amount authorized 
to be appropriated under subsection (a) for each of fiscal 
years 2012 through 2016, $1,000,000 shall be for car-
rying out section 317U(a)(4) of the Public Health Service 
Act, as added by section 5 of this Act. 
(c) OFFSET.—There is authorized to be appropriated 
to the Department of Health and Human Services for sal-
aries and expenses of the Department for each of fiscal 
years 2012 through 2016 the amount that is $5,000,000 
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less than the amount appropriated for such salaries and 
expenses for fiscal year 2011. 
Æ 
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