I 
111TH CONGRESS 
2D SESSION 
H. R. 4689 
To establish the Office of the National Alzheimer’s Project. 
IN THE HOUSE OF REPRESENTATIVES 
FEBRUARY 25, 2010 
Mr. MARKEY of Massachusetts (for himself and Mr. SMITH of New Jersey) 
introduced the following bill; which was referred to the Committee on En-
ergy and Commerce 
A BILL 
To establish the Office of the National Alzheimer’s Project. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘National Alzheimer’s 
Project Act’’. 
SEC. 2. OFFICE OF THE NATIONAL ALZHEIMER’S PROJECT. 
(a) ESTABLISHMENT OF OFFICE.—There is estab-
lished in the Office of the Secretary of Health and Human 
Services the Office of the National Alzheimer’s Project 
(referred to in this Act as the ‘‘Office’’). 
(b) PURPOSE OF THE OFFICE.—The Office shall— 
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(1) accelerate the development of treatments 
that would prevent, halt, or reverse the course of 
Alzheimer’s; 
(2) be responsible for the creation and mainte-
nance of an integrated national plan to overcome 
Alzheimer’s; 
(3) help to coordinate the health care and treat-
ment of citizens with Alzheimer’s; 
(4) ensure the inclusion of ethnic and racial 
populations at higher risk for Alzheimer’s or least 
likely to receive care, in clinical, research, and serv-
ice efforts with the purpose of decreasing health dis-
parities in Alzheimer’s; 
(5) coordinate with international bodies to inte-
grate and inform the fight against Alzheimer’s glob-
ally; and 
(6) provide information and coordination of Alz-
heimer’s research and services across all Federal 
agencies. 
(c) DIRECTOR OF THE OFFICE.— 
(1) APPOINTMENT.—The President shall ap-
point a Director of the Office. 
(2) DUTIES OF THE DIRECTOR.— 
(A) IN GENERAL.—The Director of the Of-
fice shall— 
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(i) oversee the creation and updating 
of the national plan described in subpara-
graph (B); 
(ii) use discretionary authority to 
evaluate all Federal programs around Alz-
heimer’s, including budget requests and 
approvals; and 
(iii) prepare and submit to the Presi-
dent the annual budget estimate for the 
Office. 
(B) NATIONAL PLAN.—The Director of the 
Office shall carry out an annual assessment of 
the Nation’s progress in preparing for the esca-
lating burden of Alzheimer’s, including both im-
plementation steps and recommendations for 
priority actions based on the assessment. 
(3) SERVICE BY DIRECTOR.—The Director of 
the Office shall serve on the advisory board of the 
Office of Science and Technology to promote re-
search efforts into mechanisms to slow and stop the 
development of Alzheimer’s for those at risk of de-
veloping the disease. 
(d) ADVISORY COUNCIL.— 
(1) IN GENERAL.—There is established in the 
Office an Advisory Council on Alzheimer’s Research 
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and Treatment (referred to in this Act as the ‘‘Advi-
sory Council’’). 
(2) MEMBERSHIP.— 
(A) FEDERAL
MEMBERS.—The Advisory 
Council shall be comprised of the following ex-
perts: 
(i) A designee of the Centers for Dis-
ease Control and Prevention. 
(ii) A designee of the Administration 
on Aging. 
(iii) A designee of the Centers for 
Medicare & Medicaid Services. 
(iv) A designee of the Indian Health 
Service. 
(v) A designee of the Office of the Di-
rector of the National Institutes of Health. 
(vi) The Surgeon General. 
(vii) A designee of the National 
Science Foundation. 
(viii) A designee of the Department of 
Veterans Affairs. 
(B) NON-FEDERAL
MEMBERS.—In addi-
tion to the members outlined in subparagraph 
(A), the Advisory Council shall include 12 ex-
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pert members from outside the Federal Govern-
ment, which shall include— 
(i) 2 Alzheimer patient advocates; 
(ii) 2 Alzheimer caregivers; 
(iii) 2 health care providers; 
(iv) 2 representatives of State health 
departments; 
(v) 2 researchers with Alzheimer-re-
lated expertise in basic, translational, clin-
ical, or drug development science; and 
(vi) 2 voluntary health association 
representatives, including a national Alz-
heimer’s disease organization that funds 
research and has demonstrated experience 
in care and patient services, and a State- 
based advocacy organization that provides 
services to families and professionals, in-
cluding information and referral, support 
groups, care consultation, education, and 
safety services. 
(3) MEETINGS.—The Advisory Council shall 
meet quarterly and such meetings shall be open to 
the public. 
(4) ADVICE.—The Advisory Council shall advise 
the Director of the Office. 
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(5) ANNUAL
REPORT.—The Advisory Council 
shall provide to the Director of the Office— 
(A) recommendations for information to be 
included in the annual report to Congress by 
the Office; and 
(B) an annually updated national plan. 
(e) ANNUAL REPORT.—The Director of the Office 
shall submit to Congress— 
(1) an annual report that includes an evalua-
tion of all nationally and federally funded efforts in 
Alzheimer’s research, clinical care, institutional, and 
home- and community-based programs and their 
outcomes; and 
(2) an annually updated national plan. 
(f) SUNSET.—The Office shall expire on December 
31, 2025. 
Æ 
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