I 
118TH CONGRESS 
2D SESSION 
H. R. 9635 
To amend the Elementary and Secondary Education Act of 1965 to authorize 
a grant program to support students who have epilepsy or a seizure disorder. 
IN THE HOUSE OF REPRESENTATIVES 
SEPTEMBER 17, 2024 
Mr. NORCROSS (for himself, Mr. COSTA, Mr. BACON, Ms. NORTON, Mr. 
TONKO, and Mr. FITZPATRICK) introduced the following bill; which was 
referred to the Committee on Education and the Workforce 
A BILL 
To amend the Elementary and Secondary Education Act 
of 1965 to authorize a grant program to support stu-
dents who have epilepsy or a seizure disorder. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Seizure Awareness and 
Preparedness Act’’. 
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00001
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS
SEC. 2. GRANT PROGRAM TO SUPPORT STUDENTS WHO 
HAVE EPILEPSY OR A SEIZURE DISORDER. 
(a) IN GENERAL.—Title IV of the Elementary and 
Secondary Education Act of 1965 (20 U.S.C. 7101 et 
seq.) is amended by adding at the end the following: 
‘‘PART G—GRANT PROGRAM TO SUPPORT STU-
DENTS WHO HAVE EPILEPSY OR A SEIZURE 
DISORDER 
‘‘SEC. 4701. GRANT PROGRAM TO SUPPORT STUDENTS WHO 
HAVE EPILEPSY OR A SEIZURE DISORDER. 
‘‘(a) DEFINITIONS.—In this section: 
‘‘(1) INDIVIDUALIZED
EMERGENCY
HEALTH 
CARE
PLAN.—The term ‘individualized emergency 
health care plan’ means a document developed by a 
student’s health care provider, in consultation with 
the parent of a student with epilepsy or a seizure 
disorder, other appropriate medical professionals 
who may be providing epilepsy or seizure disorder 
care to the student, and the school nurse or special-
ized instructional support personnel, which outlines 
a set of procedural guidelines that provide specific 
directions about what to do in a particular emer-
gency situation and is signed by the health care pro-
vider, the parent, and the school nurse or specialized 
instructional support personnel. 
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00002
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(2) INDIVIDUALIZED HEALTH CARE PLAN.— 
The term ‘individualized health care plan’ means a 
document developed by a student’s health care pro-
vider, in consultation with the parent of a student 
with epilepsy or a seizure disorder, other appropriate 
medical professionals who may be providing epilepsy 
or seizure disorder care to the student, and the 
school nurse or specialized instructional support per-
sonnel, which is consistent with the recommenda-
tions of the student’s health care provider and which 
sets out the health services needed by the student at 
school and is signed by the health care provider, the 
parent, and the school nurse or specialized instruc-
tional support personnel. 
‘‘(b) AUTHORIZATION
OF GRANT PROGRAM.—The 
Secretary shall award grants to States, on a competitive 
basis, to enable the States to award subgrants to local 
educational agencies to carry out a program that supports 
students with epilepsy and seizure disorders in schools. 
‘‘(c) APPLICATIONS FOR GRANTS.—A State that de-
sires to receive a grant under this section shall submit an 
application to the Secretary at such time, in such manner, 
and accompanied by such information as the Secretary 
may require. 
‘‘(d) SUBGRANTS AUTHORIZED.— 
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00003
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(1) IN
GENERAL.—A State that receives a 
grant under this section shall use the grant funds to 
award subgrants to local educational agencies to en-
able the local educational agencies to carry out a 
program that funds training of school personnel on 
seizure awareness and preparedness that covers indi-
vidualized health care plans and individualized emer-
gency health care plans for students who have epi-
lepsy or a seizure disorder. 
‘‘(2) APPLICATIONS FOR SUBGRANTS.—A local 
educational agency that desires to receive a subgrant 
under this subsection shall submit an application to 
the State at such time, in such manner, and accom-
panied by such information as the State may re-
quire. 
‘‘(3) USE OF SUBGRANT FUNDS.— 
‘‘(A) IN GENERAL.— 
‘‘(i) REQUIRED
USE.—A local edu-
cational agency that receives a subgrant 
under 
this 
subsection 
shall 
use 
the 
subgrant funds to carry out a program in 
the elementary schools and secondary 
schools served by such agency to fund 
training of school personnel on seizure 
awareness and preparedness that covers in-
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00004
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS
dividualized health care plans and individ-
ualized emergency health care plans for 
students who have epilepsy or a seizure 
disorder. 
‘‘(ii) PERMISSIVE USES.—A local edu-
cational agency that receives a subgrant 
under 
this 
subsection 
may 
use 
the 
subgrant funds for— 
‘‘(I) training of school personnel 
to administer or assist with the ad-
ministration of seizure medications; 
‘‘(II) training and education of 
students on seizure awareness and 
preparedness; 
‘‘(III) recruiting, hiring, and re-
taining dedicated compliance staff 
who are responsible for ensuring that 
all training and program requirements 
related to seizure awareness, pre-
paredness, and management are con-
sistently met; and 
‘‘(IV) other activities or pro-
grams determined appropriate by the 
Secretary. 
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00005
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS
‘‘(B) INFORMATION INCLUDED.—It is rec-
ommended that each individualized health care 
plan and each individualized emergency health 
care plan include the following information: 
‘‘(i) Written orders from the student’s 
physician or advanced practice nurse out-
lining the epilepsy or seizure disorder care. 
‘‘(ii) The symptoms of the epilepsy or 
seizure disorder for that particular student 
and recommended care. 
‘‘(iii) Full participation in exercise 
and sports, and any contraindications to 
exercise, or accommodations that shall be 
made for that particular student. 
‘‘(iv) Accommodations for school trips, 
after-school activities, class parties, and 
other school-related activities. 
‘‘(v) Education of all school personnel 
about epilepsy and seizure disorders, how 
to recognize and provide care for epilepsy 
and seizure disorders, and when to call for 
assistance. 
‘‘(vi) Medical and treatment issues 
that may affect the educational process of 
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00006
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS
the student with epilepsy or the seizure 
disorder. 
‘‘(vii) The student’s ability to manage, 
and the student’s level of understanding of, 
the student’s epilepsy or seizure disorder. 
‘‘(viii) How to maintain communica-
tion with the student, the student’s parent 
and health care team, the educational 
staff, and the school nurse or specialized 
instructional support personnel. 
‘‘(C) TRAINING REQUIRED.— 
‘‘(i) IN
GENERAL.—Each local edu-
cational agency carrying out a program 
supported with subgrant funds shall ensure 
that the school nurse or specialized in-
structional support personnel assigned to a 
particular elementary school or secondary 
school supported by the program— 
‘‘(I) coordinates the provision of 
epilepsy and seizure disorder care at 
such school; and 
‘‘(II) ensures that all staff are 
trained not less often than every 2 
years in the care of students with epi-
lepsy and seizure disorders, including 
VerDate Sep 11 2014 
00:13 Sep 25, 2024
Jkt 049200
PO 00000
Frm 00007
Fmt 6652
Sfmt 6201
E:\BILLS\H9635.IH
H9635
ssavage on LAPJG3WLY3PROD with BILLS