‘‘SEC. 399R. SUPPORT FOR PATIENTS RECEIVING A POSI-
TIVE TEST DIAGNOSIS OF DOWN SYNDROME 
OR OTHER PRENATALLY DIAGNOSED CONDI-
TIONS. 
‘‘(a) DEFINITIONS.—In this section: 
‘‘(1) DOWN SYNDROME.—The term ‘Down syn-
drome’ refers to a chromosomal disorder caused by 
an error in cell division that results in the presence 
of an extra whole or partial copy of chromosome 21. 
‘‘(2) HEALTH
CARE
PROVIDER.—The term 
‘health care provider’ means any person or entity re-
quired by State or Federal law or regulation to be 
licensed, registered, or certified to provide health 
care services, and who is so licensed, registered, or 
certified. 
‘‘(3) PRENATALLY
DIAGNOSED
CONDITION.— 
The term ‘prenatally diagnosed condition’ means any 
fetal health condition identified by prenatal genetic 
testing or prenatal screening procedures. 
‘‘(4) PRENATAL
TEST.—The term ‘prenatal 
test’ means diagnostic or screening tests offered to 
pregnant women seeking routine prenatal care that 
are administered on a required or recommended 
basis by a health care provider based on medical his-
tory, family background, ethnic background, pre-
vious test results, or other risk factors. 
VerDate Aug 31 2005 
22:27 Feb 22, 2007
Jkt 059200
PO 00000
Frm 00065
Fmt 6652
Sfmt 6201
E:\BILLS\H1074.IH
H1074
ycherry on PROD1PC64 with BILLS
‘‘(b) INFORMATION AND SUPPORT SERVICES.—The 
Secretary, acting through the Director of the National In-
stitutes of Health, the Director of the Centers for Disease 
Control and Prevention, or the Administrator of the 
Health Resources and Services Administration, may au-
thorize and oversee certain activities, including the award-
ing of grants, contracts or cooperative agreements, to— 
‘‘(1) collect, synthesize, and disseminate current 
scientific information relating to Down syndrome or 
other prenatally diagnosed conditions; and 
‘‘(2) coordinate the provision of, and access to, 
new or existing supportive services for patients re-
ceiving a positive test diagnosis for Down syndrome 
or other prenatally diagnosed conditions, including— 
‘‘(A) the establishment of a resource tele-
phone hotline and Internet Website accessible 
to patients receiving a positive test result; 
‘‘(B) the establishment of a clearinghouse 
of scientific information, including clinical 
course, life expectancy, development potential, 
and quality of life relating to Down syndrome 
or other prenatally diagnosed conditions; 
‘‘(C) the establishment of national and 
local peer-support programs; 
VerDate Aug 31 2005 
22:27 Feb 22, 2007
Jkt 059200
PO 00000
Frm 00066
Fmt 6652
Sfmt 6201
E:\BILLS\H1074.IH
H1074
ycherry on PROD1PC64 with BILLS
‘‘(D) the establishment of a national reg-
istry, or network of local registries, of families 
willing to adopt newborns with Down syndrome 
or other prenatally diagnosed conditions, and 
links to adoption agencies willing to place ba-
bies with Down syndrome or other prenatally 
diagnosed conditions, with families willing to 
adopt; and 
‘‘(E) the establishment of awareness and 
education programs for health care providers 
who provide the results of prenatal tests for 
Down syndrome or other prenatally diagnosed 
conditions, to patients, consistent with the pur-
poses described in section 1202(a)(2) of the Re-
ducing the Need for Abortion and Supporting 
Parents Act. 
‘‘(c) DATA COLLECTION.— 
‘‘(1) PROVISION
OF
ASSISTANCE.—The Sec-
retary, acting through the Director of the Centers 
for Disease Control and Prevention, shall provide as-
sistance to State and local health departments to in-
tegrate the results of prenatal testing into State- 
based vital statistics and birth defects surveillance 
programs. 
VerDate Aug 31 2005 
22:27 Feb 22, 2007
Jkt 059200
PO 00000
Frm 00067
Fmt 6652
Sfmt 6201
E:\BILLS\H1074.IH
H1074
ycherry on PROD1PC64 with BILLS