I
103D CONGRESS
1ST SESSION
H. R. 2002
To amend the Social Security Act to provide assistance to States in providing
services to support informal caregivers of individuals with functional
limitations.
IN THE HOUSE OF REPRESENTATIVES
MAY 5, 1993
Mr. LEVIN (for himself, Mr. MARKEY, and Mr. LEWIS of Georgia) introduced
the following bill; which was referred jointly to the Committees on Ways
and Means and Energy and Commerce
A BILL
To amend the Social Security Act to provide assistance to
States in providing services to support informal
caregivers of individuals with functional limitations.
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ‘‘Family Caregiver Sup-
port Act of 1993’’.
SEC. 2. FAMILY CAREGIVER SUPPORT PROGRAM ESTAB-
LISHED.
(a) IN GENERAL.—The Social Security Act (42
U.S.C. 301 et seq.) is amended by adding at the end there-
of the following new title:
‘‘TITLE XXI—GRANTS TO STATES FOR FAMILY
CAREGIVER SUPPORT PROGRAMS
‘‘PURPOSE OF TITLE; AUTHORIZATION OF
APPROPRIATIONS
‘‘SEC. 2101. For the purpose of enabling each State
to furnish services to support informal caregivers of indi-
viduals with functional limitations by providing services
designed to facilitate and strengthen informal support sys-
tems to help maintain individuals with functional limita-
tions within the community, there are authorized to be ap-
propriated for each fiscal year such sums as may be nec-
essary to carry out the purposes of this title. The sums
made available under this section shall be used for making
payments to States which have submitted, and had ap-
proved by the Secretary, State plans for family caregiver
support services.
‘‘STATE PLANS FOR FAMILY CAREGIVER SUPPORT
SERVICES
‘‘SEC. 2102. A State plan for family caregiver sup-
port services must—
‘‘(1) provide that it shall be in effect in all po-
litical subdivisions of the State, and if administered
by them, be mandatory upon them;
‘‘(2) provide for financial participation by the
State equal to not less than 50 percent of the ad-
ministrative costs of operating the program in the
State;
‘‘(3) provide either for the establishment or des-
ignation of a single State agency or agencies (such
agency may be the same agency established or des-
ignated under section 1902 of this Act) to admin-
ister or supervise the administration of the plan in
coordination with home and community-based serv-
ices provided under title XIX of this Act;
‘‘(4) describe the steps that will be taken to en-
sure that all State government agencies responsible
for the provision of family caregiver support services
funded under this title with other Federal or State
agencies or both on behalf of individuals with func-
tional limitations and their caregivers shall be in-
cluded in the development of the State plan so that
all such services are coordinated with all other types
of services and benefits such individuals and their
caregivers may be receiving (or are eligible to re-
ceive);
‘‘(2) The activities of daily living described in this
paragraph are—
‘‘(A) toileting;
‘‘(B) eating;
‘‘(C) transferring;
‘‘(D) dressing; and
‘‘(E) bathing.
‘‘(c) For purposes of this title, the term ‘caregiver’
means a spouse, parent, child, relative or other person
who—
‘‘(A) has primary responsibility (as defined by
the Secretary) of providing care for one individual
with functional limitations;
‘‘(B) does not receive financial remuneration for
providing such care for such individual; and
‘‘(C) who has provided such care to such indi-
vidual for a period of not less than 3 months.
‘‘(d) For purposes of this title, the term ‘family
caregiver support plan’ means a written plan, developed
in cooperation with the caregiver and the individual with
functional limitations to reflect their choices and pref-
erences for the type, frequency, and duration of family
caregiver support services to be provided under the plan.
‘‘MAINTENANCE OF EFFORT
‘‘SEC. 2105. States receiving payments under section
2103 must maintain current levels of funding for family
caregiver support services to individuals with functional
limitations and their caregivers in order to be eligible to
continue to receive payments for such services under this
title.’’.
(b) EFFECTIVE DATE.—The amendment made by
subsection (a) shall become effective with respect to serv-
ices furnished on or after January 1, 1994.
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