I 
109TH CONGRESS 
2D SESSION 
H. R. 5390 
To provide for the expansion and coordination of activities of the National 
Institutes of Health and the Centers for Disease Control and Prevention 
with respect to research and programs on cancer survivorship, and for 
other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
MAY 16, 2006 
Mr. WICKER (for himself and Mr. HOYER) introduced the following bill; which 
was referred to the Committee on Energy and Commerce 
A BILL 
To provide for the expansion and coordination of activities 
of the National Institutes of Health and the Centers 
for Disease Control and Prevention with respect to re-
search and programs on cancer survivorship, and for 
other purposes. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Cancer Survivorship 
Research and Quality of Life Act of 2006’’. 
SEC. 2. FINDINGS. 
The Congress finds as follows: 
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(1) There are more than 10 million cancer sur-
vivors (those living with, through, and beyond can-
cer) in the United States. 
(2) One out of two men and one out of three 
women will receive a cancer diagnosis during their 
lifetime. 
(3) One of every four deaths in the United 
States is from cancer. In 2005, 570,000 Americans, 
or more than 1,500 a day, will die from cancer. 
(4) Despite the significant annual burden of 
cancer deaths, improvements in detection and treat-
ment have prolonged the lives of many cancer sur-
vivors or resulted in cures for others. As a result of 
these developments, the number of survivors con-
tinues to grow. 
(5) More than three-fifths of adults diagnosed 
with cancer today will be alive five years from now. 
(6) In 1960, only four percent of children with 
cancer survived more than five years, but treatment 
advances have changed the outlook for many chil-
dren diagnosed with cancer. 
(7) The five-year survival rate for children with 
cancer improved from 56 percent for those diag-
nosed between 1974 and 1976 to 79 percent for 
those diagnosed between 1995 and 2000. 
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(8) The size of the population of survivors of 
childhood cancers has grown dramatically, to 
270,000 individuals of all ages as of 1997, which 
means that 1 in 640 adults from age 20 to 39 has 
a history of cancer. 
(9) Adults who are treated for cancer may have 
complex and long-term effects from their treatment, 
resulting in unique health care needs. 
(10) Some effects of treatment may be experi-
enced at the time of treatment or soon after, while 
others may not be noticed until the patient ages or 
develops other health conditions. 
(11) As many as two-thirds of childhood cancer 
survivors are likely to experience at least one late ef-
fect of treatment, with as many as one-fourth expe-
riencing a late effect that is serious or life-threat-
ening. 
(12) Some late effects are identified early in 
follow-up and are easily resolved, while others may 
become chronic problems in adulthood and may have 
serious consequences. 
(13) The late effects of treatment may change 
as treatments evolve, which means that the moni-
toring and treatment of late effects may need to be 
modified on a routine basis. 
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(14) The Institute of Medicine, in its reports on 
cancer survivorship entitled ‘‘Childhood Cancer Sur-
vivorship: Improving Care and Quality of Life’’ and 
‘‘From Cancer Patient to Cancer Survivor: Lost in 
Transition,’’ has offered a number of recommenda-
tions for improving the monitoring and follow-up 
care for cancer survivors and enhancing the cancer 
survivorship research agenda. 
(15) The Institute of Medicine has also noted 
the significant health insurance problems that may 
be experienced by survivors of childhood cancer as 
well as adult cancer survivors and has recommended 
that policy makers take action to ensure access to 
care, including appropriate follow-up care, by all 
cancer survivors. 
(16) The annual cost of cancer in the United 
States is almost $190 billion in direct and indirect 
costs. 
SEC. 3. CANCER CONTROL PROGRAMS. 
Section 412 of the Public Health Service Act (42 
U.S.C. 285a–1) is amended— 
(1) in the first sentence, by inserting ‘‘, for sur-
vivorship,’’ after ‘‘treatment of cancer’’; 
(2) in paragraph (1)(B), by striking ‘‘cancer 
patients’’ and all that follows and inserting ‘‘cancer 
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patients, families of cancer patients, and cancer sur-
vivors; and’’; and 
(3) in paragraph (3), by inserting ‘‘and con-
cerning cancer survivorship programs,’’ after ‘‘con-
trol of cancer’’. 
SEC. 4. EXPANSION AND COORDINATION OF ACTIVITIES OF 
NATIONAL INSTITUTES OF HEALTH WITH RE-
SPECT 
TO 
CANCER 
SURVIVORSHIP 
RE-
SEARCH. 
(a) IN GENERAL.— 
(1) TECHNICAL
AMENDMENT.—Section 3 of 
Public Law 107–172 (116 Stat. 541) is amended by 
striking ‘‘section 419C’’ and inserting ‘‘section 
417C’’. 
(2) NEW SECTION.—Subpart 1 of part C of 
title IV of the Public Health Service Act (42 U.S.C. 
285 et seq.), as amended pursuant to paragraph (1) 
of this subsection, is amended by adding at the end 
the following section: 
‘‘SEC. 417E. CANCER SURVIVORSHIP. 
‘‘(a) EXPANSION
AND
COORDINATION
OF
RE-
SEARCH.— 
‘‘(1) IN GENERAL.—The Director of NIH shall 
expand and coordinate the activities of the National 
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Institutes of Health with respect to cancer survivor-
ship research. 
‘‘(2) PRIORITIES.—In carrying out this sub-
section, the Director of NIH, in coordination with 
the Director of the Centers for Disease Control and 
Prevention and nonprofit organizations that focus on 
cancer survivorship, shall establish cancer survivor-
ship research priorities. 
‘‘(3) COLLABORATION.—In carrying out this 
subsection, the Director of NIH may collaborate 
with such other agencies as the Director determines 
appropriate. 
‘‘(b) DIVISION OF CANCER SURVIVORSHIP.— 
‘‘(1) ESTABLISHMENT.—In carrying out sub-
section (a), the Director of NIH shall establish a Di-
vision of Cancer Survivorship within the National 
Cancer Institute through which the research activi-
ties under subsection (a) shall be implemented and 
directed. 
‘‘(2) DIRECTOR; APPOINTMENT.—The Director 
of NIH shall appoint a Director to head the Divi-
sion. The Director of the Division shall be selected 
from among individuals who, because of their profes-
sional training or experience, are equipped to ad-
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dress the breadth of needs associated with cancer 
survivorship. 
‘‘(3) COORDINATION.—The Director of NIH, 
acting through the Director of the Division, shall co-
ordinate and promote the programs of the National 
Institutes of Health concerning cancer survivorship 
research. 
‘‘(4) DEFINITIONS.—In this subsection: 
‘‘(A) The term ‘Director of NIH’ means 
the Director of NIH, acting through the Direc-
tor of the National Cancer Institute. 
‘‘(B) The term ‘Division’ means the Divi-
sion of Cancer Survivorship established under 
paragraph (1). 
‘‘(c) NCI-DESIGNATED CANCER CENTERS.— 
‘‘(1) IN GENERAL.—In carrying out subsection 
(a), the Director of NIH shall provide for the expan-
sion and coordination of cancer survivorship re-
search activities at National Cancer Institute-des-
ignated cancer centers. 
‘‘(2) COMPREHENSIVE
CANCER
SURVIVORSHIP 
CENTERS.— 
‘‘(A) IN GENERAL.—The Director of NIH 
shall provide assistance to National Cancer In-
stitute-designated cancer centers for the pur-
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pose of establishing or improving comprehensive 
cancer survivorship centers described in sub-
paragraph (B). 
‘‘(B) 
CENTER
DESCRIPTION.—A 
com-
prehensive cancer survivorship center described 
in this subparagraph is a center within a Na-
tional Cancer Institute-designated cancer center 
designed to serve as a comprehensive, one-stop 
source of information, care, and services for 
cancer survivors, family members, and service 
providers. 
‘‘(3) EVALUATION OF MODELS OF SURVIVOR-
SHIP CARE.—The Director of NIH shall provide as-
sistance to one or more National Cancer Institute- 
designated cancer centers for research to evaluate 
models of survivorship care. 
‘‘(4) DEFINITION.—In this subsection, the term 
‘Director of NIH’ means the Director of NIH, act-
ing through the Director of the National Cancer In-
stitute.’’. 
(b) FUNDING.—Section 417B of the Public Health 
Service Act (42 U.S.C. 285a–8) is amended by adding at 
the end the following subsection: 
‘‘(e) CANCER SURVIVORSHIP RESEARCH.—Of the 
amounts appropriated for the National Cancer Institute 
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for a fiscal year, the Director of the Institute shall reserve 
not less than $50,000,000 to the Division of Cancer Survi-
vorship to carry out section 417E (other than section 
417E(c)). 
‘‘(f) NCI-DESIGNATED CANCER CENTERS.—For the 
purpose of carrying out section 417E(c), there are author-
ized to be appropriated $61,000,000 for each of fiscal 
years 2007 through 2011.’’. 
SEC. 5. NATIONAL COMPREHENSIVE CANCER CONTROL 
PROGRAM. 
Part B of title III of the Public Health Service Act 
(42 U.S.C. 243 et seq.) is amended by inserting after sec-
tion 317S the following: 
‘‘SEC. 317T. NATIONAL COMPREHENSIVE CANCER CONTROL 
PROGRAM. 
‘‘(a) EXPANSION OF PROGRAM.—The Secretary, act-
ing through the Director of the Centers for Disease Con-
trol and Prevention, shall expand and update the National 
Comprehensive Cancer Control Program. 
‘‘(b) IMPLEMENTATION GRANTS.— 
‘‘(1) AUTHORIZATION.—In carrying out the Na-
tional Comprehensive Cancer Control Program, the 
Secretary may make grants to eligible entities to es-
tablish and implement plans for an integrated and 
coordinated approach to reducing cancer incidence, 
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morbidity, and mortality through prevention, early 
detection, treatment, rehabilitation, palliation, and 
quality-of-life interventions. 
‘‘(2) SUBMISSION OF PLANS.—To seek a grant 
under this subsection, an eligible entity shall submit 
a plan for an integrated and coordinated approach 
to reducing cancer incidence, morbidity, and mor-
tality. Such plan shall— 
‘‘(A) identify priorities, strategies, and pro-
grams through which communities and their 
partners may pool resources to reduce cancer 
risk, promote cancer prevention, improve cancer 
detection, increase access to health and social 
services, address disparities in specific popu-
lations, improve cancer treatment, reduce the 
burden of cancer, enhance quality of life for 
cancer patients, and address survivorship needs; 
and 
‘‘(B) provide for collection, evaluation, and 
submission to the Secretary of data on the de-
livery and quality of cancer care, screening and 
early detection rates, and the quality of life for 
survivors and their families. 
‘‘(3) DATA
ANALYSIS.—The Secretary shall 
analyze the data submitted under this section to en-
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sure that plans funded under this subsection have a 
systematic, nationwide, positive impact on the deliv-
ery and quality of cancer care, including by— 
‘‘(A) increasing screening and early detec-
tion rates; and 
‘‘(B) improving the quality of life for can-
cer survivors and their families. 
‘‘(4) DEFINITION.—In this section, the term 
‘eligible entity’ includes a State, a territory, a tribal 
organization, and the District of Columbia. 
‘‘(c) ADDITIONAL ACTIVITIES.—In carrying out the 
National Comprehensive Cancer Control Program, in ad-
dition to making grants under subsection (b), the Sec-
retary shall— 
‘‘(1) establish programs that demonstrate how 
to prevent and control cancer and improve access to 
and the quality of cancer care among racial and eth-
nic minority and medically underserved populations 
with disproportionate incidence of or death from 
cancer; 
‘‘(2) promote cancer education, prevention, and 
early detection of cancer; and 
‘‘(3) award grants to public and nonprofit orga-
nizations for cancer control and prevention. 
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