IV 
115TH CONGRESS 
1ST SESSION 
H. CON. RES. 58 
Expressing support for a month to be known as Cystic Fibrosis Awareness 
Month, and for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
MAY 19, 2017 
Mr. MARINO (for himself and Mr. MCGOVERN) submitted the following con-
current resolution; which was referred to the Committee on Energy and 
Commerce 
CONCURRENT RESOLUTION 
Expressing support for a month to be known as Cystic 
Fibrosis Awareness Month, and for other purposes. 
Whereas cystic fibrosis, commonly referred to as ‘‘CF’’, is a 
genetic disease affecting more than 30,000 children and 
adults in the United States and nearly 75,000 children 
and adults worldwide; 
Whereas a defective gene causes the body to produce an ab-
normally thick, sticky mucus that clogs the lungs, and 
these secretions produce life-threatening lung infections 
and obstruct the pancreas, preventing digestive enzymes 
from reaching the intestines to help break down and ab-
sorb food; 
Whereas there are approximately 900 new cases of CF each 
year in the United States; 
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•HCON 58 IH 
Whereas infant blood screening to detect genetic defects is 
the most reliable and least costly method to identify indi-
viduals likely to have one of 1,800 different CF muta-
tions; 
Whereas early diagnosis of CF permits early treatment and 
enhances quality of life, longevity, and treatment; 
Whereas CF impacts families as well as patients because of 
the intense daily disease management protocols patients 
must endure; 
Whereas there are more than 120 world-class treatment cen-
ters with highly trained and dedicated providers in the 
United States that specialize in delivering high-quality, 
coordinated care for CF patients and their families; 
Whereas the number of adults with CF has steadily grown 
and the median age of survival for a person with CF is 
now nearly 40 years of age in the United States; 
Whereas innovative precision medicines and treatments have 
greatly improved and extended the lives of CF patients; 
and 
Whereas May would be an appropriate month to establish as 
‘‘Cystic Fibrosis Awareness Month’’: Now, therefore, be 
it 
Resolved by the House of Representatives (the Senate 
concurring), That the House of Representatives— 
(1) supports the designation of ‘‘Cystic Fibrosis 
Awareness Month’’; 
(2) congratulates the CF community for their 
unrelenting dedication to patients; 
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(3) recognizes that the CF care delivery system 
can be a model for building better care coordination 
in the larger health care system; 
(4) acknowledges the tremendous investment 
and scientific achievements that have significantly 
improved CF patients’ lives; 
(5) urges researchers, developers, patients and 
providers to do everything possible to find a cure for 
this deadly disease; and 
(6) encourages the people of the United States 
to observe ‘‘Cystic Fibrosis Awareness Month’’ with 
appropriate ceremonies and activities that promote 
awareness of the disease. 
Æ 
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