effort to bring data collections into compliance with sec-
tion 3431. 
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated to carry out this section 
such sums as may be necessary for each of fiscal years 
2021 through 2025. 
‘‘SEC. 
3433. 
OVERSAMPLING 
OF 
UNDERREPRESENTED 
GROUPS IN FEDERAL HEALTH SURVEYS. 
‘‘(a) NATIONAL STRATEGY.— 
‘‘(1) IN
GENERAL.—The Secretary, acting 
through the Director of the National Center for 
Health Statistics of the Centers for Disease Control 
and Prevention, and other agencies within the De-
partment of Health and Human Services as the Sec-
retary determines appropriate, shall develop and im-
plement an ongoing and sustainable national strat-
egy for oversampling underrepresented populations 
within the categories of race, ethnicity, sex, primary 
language, sexual orientation, disability status, gen-
der identity, and socioeconomic status as determined 
appropriate by the Secretary in Federal health sur-
veys and program data collections. Such national 
strategy shall include a strategy for oversampling of 
Asian Americans, Native Hawaiians, and Pacific Is-
landers. 
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‘‘(2) CONSULTATION.—In developing and imple-
menting a national strategy, as described in para-
graph (1), not later than 180 days after the date of 
the enactment of this section, the Secretary shall— 
‘‘(A) consult with representatives of com-
munity groups, nonprofit organizations, non-
governmental organizations, and government 
agencies working with underrepresented popu-
lations; 
‘‘(B) solicit the participation of representa-
tives from other Federal departments and agen-
cies, including subagencies of the Department 
of Health and Human Services; and 
‘‘(C) consult on, and use as models, the 
2014 National Health Interview Survey over-
sample of Native Hawaiian and Pacific Islander 
populations and the 2017 Behavioral Risk Fac-
tor Surveillance System oversample of American 
Indian and Alaska Native communities. 
‘‘(b) PROGRESS REPORT.—Not later than 2 years 
after the date of the enactment of this section, the Sec-
retary shall submit to the Congress a progress report, 
which shall include the national strategy described in sub-
section (a)(1). 
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‘‘(c) AUTHORIZATION
OF
APPROPRIATIONS.—To 
carry out this section, there are authorized to be appro-
priated such sums as may be necessary for fiscal years 
2021 through 2025.’’. 
SEC. 102. ELIMINATION OF PREREQUISITE OF DIRECT AP-
PROPRIATIONS FOR DATA COLLECTION AND 
ANALYSIS. 
Section 3101 of the Public Health Service Act (42 
U.S.C. 300kk) is amended— 
(1) by striking subsection (h); and 
(2) by redesignating subsection (i) as subsection 
(h). 
SEC. 103. COLLECTION OF DATA FOR THE MEDICARE PRO-
GRAM. 
Part A of title XI of the Social Security Act (42 
U.S.C. 1301 et seq.) is amended by adding at the end 
the following: 
‘‘COLLECTION OF DATA FOR THE MEDICARE PROGRAM 
‘‘SEC. 1150C. 
‘‘(a) REQUIREMENT.— 
‘‘(1) IN GENERAL.—The Commissioner of So-
cial Security, in consultation with the Administrator 
of the Centers for Medicare & Medicaid Services, 
shall collect data on the race, ethnicity, sex, primary 
language, sexual orientation, gender identity, socio-
economic status, and disability status of all appli-
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cants for Social Security benefits under title II or 
Medicare benefits under title XVIII. 
‘‘(2) DATA COLLECTION STANDARDS.—In col-
lecting data under paragraph (1), the Commissioner 
of Social Security shall at least use the standards 
for data collection developed under section 3101 of 
the Public Health Service Act or the standards de-
veloped by the Office of Management and Budget, 
whichever is more disaggregated. In the event there 
are no standards for the demographic groups listed 
under paragraph (1), the Commissioner shall consult 
with stakeholder groups representing the various 
identities as well as with the Office of Minority 
Health within the Centers for Medicare & Medicaid 
Services to develop appropriate standards. 
‘‘(3) DATA
FOR
ADDITIONAL
POPULATION 
GROUPS.—Where practicable, the information col-
lected by the Commissioner of Social Security under 
paragraph (1) shall include data for additional popu-
lation groups if such groups can be aggregated into 
the race and ethnicity categories outlined by the 
data collection standards described in paragraph (2). 
‘‘(4) COLLECTION OF DATA FOR MINORS AND 
LEGALLY
INCAPACITATED
INDIVIDUALS.—With re-
spect to the collection of the data described in para-
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graph (1) of applicants who are under 18 years of 
age or otherwise legally incapacitated, the Commis-
sioner of Social Security shall require that— 
‘‘(A) such data be collected from the par-
ent or legal guardian of such an applicant; and 
‘‘(B) the primary language of the parent 
or legal guardian of such an applicant or recipi-
ent be used in collecting the data. 
‘‘(5) QUALITY OF DATA.—The Commissioner of 
Social Security shall periodically review the quality 
and completeness of the data collected under para-
graph (1) and make adjustments as necessary to im-
prove both. 
‘‘(6) TRANSMISSION
OF
DATA.—Upon enroll-
ment in Medicare benefits under title XVIII, the 
Commissioner of Social Security shall transmit an 
individual’s demographic data as collected under 
paragraph (1) to the Centers for Medicare & Med-
icaid Services. 
‘‘(7) ANALYSIS
AND
REPORTING
OF
DATA.— 
With respect to data transmitted under paragraph 
(5), the Administrator of the Centers for Medicare 
& Medicaid Services, in consultation with the Com-
missioner of Social Security shall— 
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‘‘(A) require that such data be uniformly 
analyzed and that such analysis be reported at 
least annually to Congress; 
‘‘(B) incorporate such data in other anal-
ysis and reporting on health disparities as ap-
propriate; 
‘‘(C) make such data available to research-
ers, under the protections outlined in paragraph 
(7); 
‘‘(D) provide opportunities to individuals 
enrolled in Medicare to submit updated data; 
and 
‘‘(E) ensure that the provision of assist-
ance or benefits to an applicant is not denied 
or otherwise adversely affected because of the 
failure of the applicant to provide any of the 
data collected under paragraph (1). 
‘‘(8) PROTECTION
OF
DATA.—The Commis-
sioner of Social Security shall ensure (through the 
promulgation of regulations or otherwise) that all 
data collected pursuant to subsection (a) is pro-
tected— 
‘‘(A) under the same privacy protections as 
the Secretary applies to health data under the 
regulations promulgated under section 264(c) of 
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the Health Insurance Portability and Account-
ability Act of 1996 (relating to the privacy of 
individually identifiable health information and 
other protections); and 
‘‘(B) from all inappropriate internal use by 
any entity that collects, stores, or receives the 
data, including use of such data in determina-
tions of eligibility (or continued eligibility) in 
health plans, and from other inappropriate 
uses, as defined by the Secretary. 
‘‘(b) RULE OF CONSTRUCTION.—Nothing in this sec-
tion shall be construed to permit the use of information 
collected under this section in a manner that would ad-
versely affect any individual providing any such informa-
tion. 
‘‘(c) TECHNICAL ASSISTANCE.—The Secretary may, 
either directly or by grant or contract, provide technical 
assistance to enable any entity to comply with the require-
ments of this section or with regulations implementing this 
section. 
‘‘(d) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated to carry out this section 
$500 million for 2020 and $100 million for each fiscal 
year thereafter.’’. 
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SEC. 104. REVISION OF HIPAA CLAIMS STANDARDS. 
(a) IN GENERAL.—Not later than 1 year after the 
date of enactment of this Act, the Secretary of Health and 
Human Services shall revise the regulations promulgated 
under part C of title XI of the Social Security Act (42 
U.S.C. 1320d et seq.), relating to the collection of data 
on race, ethnicity, and primary language in a health-re-
lated transaction, to require— 
(1) the use, at a minimum, of standards for 
data collection on race, ethnicity, primary language, 
disability, sex, sexual orientation, gender identity, 
and socioeconomic status developed under section 
3101 of the Public Health Service Act (42 U.S.C. 
300kk); and 
(2) in consultation with the Office of the Na-
tional Coordinator for Health Information Tech-
nology, the designation of the appropriate racial, 
ethnic, primary language, disability, sex, and other 
code sets as required for claims and enrollment data. 
(b) DISSEMINATION.—The Secretary of Health and 
Human Services shall disseminate the new standards de-
veloped under subsection (a) to all entities that are subject 
to the regulations described in such subsection and provide 
technical assistance with respect to the collection of the 
data involved. 
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(c) COMPLIANCE.—The Secretary of Health and 
Human Services shall require that entities comply with the 
new standards developed under subsection (a) not later 
than 2 years after the final promulgation of such stand-
ards. 
SEC. 105. NATIONAL CENTER FOR HEALTH STATISTICS. 
Section 306(n) of the Public Health Service Act (42 
U.S.C. 242k(n)) is amended— 
(1) in paragraph (1), by striking ‘‘2003’’ and 
inserting ‘‘2022’’; 
(2) in paragraph (2), in the first sentence, by 
striking ‘‘2003’’ and inserting ‘‘2022’’; and 
(3) in paragraph (3), by striking ‘‘2002’’ and 
inserting ‘‘2022’’. 
SEC. 106. DISPARITIES DATA COLLECTED BY THE FEDERAL 
GOVERNMENT. 
(a) REPOSITORY OF GOVERNMENT DATA.—The Sec-
retary of Health and Human Services, in coordination 
with the departments, agencies, or offices described in 
subsection (b), shall establish a centralized electronic re-
pository of Government data on factors related to the 
health and well-being of the population of the United 
States. 
(b) COLLECTION; SUBMISSION.—Not later than 180 
days after the date of the enactment of this Act, and Jan-
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uary 31 of each year thereafter, each department, agency, 
and office of the Federal Government that has collected 
data on race, ethnicity, sex, primary language, sexual ori-
entation, disability status, gender identity, age, or socio-
economic status during the preceding calendar year shall 
submit such data to the repository of Government data 
established under subsection (a). 
(c) ANALYSIS; PUBLIC AVAILABILITY; REPORTING.— 
Not later than April 30, 2021, and April 30 of each year 
thereafter, the Secretary of Health and Human Services, 
acting through the Assistant Secretary for Planning and 
Evaluation, the Assistant Secretary for Health, the Direc-
tor of the Agency for Healthcare Research and Quality, 
the Director of the National Center for Health Statistics, 
the Administrator of the Centers for Medicare & Medicaid 
Services, the Director of the National Institute on Minor-
ity Health and Health Disparities, and the Deputy Assist-
ant Secretary for Minority Health, shall— 
(1) prepare and make available datasets for 
public use that relate to disparities in health status, 
health care access, health care quality, health out-
comes, public health, and other areas of health and 
well-being by factors that include race, ethnicity, 
sex, primary language, sexual orientation, disability 
status, gender identity, and socioeconomic status; 
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(2) ensure that these datasets are publicly iden-
tified on the repository established under subsection 
(a) as ‘‘disparities’’ data; and 
(3) submit a report to the Congress on the 
availability and use of such data by public stake-
holders. 
SEC. 107. DATA COLLECTION AND ANALYSIS GRANTS TO MI-
NORITY-SERVING INSTITUTIONS. 
(a) AUTHORITY.—The Secretary of Health and 
Human Services, acting through the Director of the Na-
tional Institute on Minority Health and Health Disparities 
and the Deputy Assistant Secretary for Minority Health, 
shall award grants to eligible entities to access and analyze 
racial and ethnic data on disparities in health and health 
care, and where possible other data on disparities in health 
and health care, to monitor and report on progress to re-
duce and eliminate disparities in health and health care. 
(b) ELIGIBLE ENTITY.—In this section, the term ‘‘el-
igible entity’’ means an entity that has an accredited pub-
lic health, health policy, or health services research pro-
gram and is any of the following: 
(1) A part B institution, as defined in section 
322 of the Higher Education Act of 1965 (20 
U.S.C. 1061). 
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