Diseases Summit under subsection (c)(1), the Director of 
NIH shall prepare and submit a report to Congress that 
includes proceedings from the summit and a description 
of arthritis research, education, and other activities that 
are conducted or supported through the national research 
institutes. 
‘‘(e) 
PUBLIC
INFORMATION.—The 
Coordinating 
Committee shall make readily available to the public infor-
mation about the research, education, and other activities 
relating to arthritis and other rheumatic diseases, con-
ducted or supported by the National Institutes of Health. 
‘‘(f) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated such sums as may be 
necessary for each of fiscal years 2005 through 2009 to 
carry out this section.’’. 
SEC. 5. EXPANSION, INTENSIFICATION, AND INNOVATION 
OF RESEARCH AND PUBLIC HEALTH ACTIVI-
TIES RELATED TO JUVENILE ARTHRITIS. 
(a) JUVENILE ARTHRITIS INITIATIVE THROUGH THE 
DIRECTOR OF THE NATIONAL INSTITUTES OF HEALTH.— 
Part A of title IV of the Public Health Service Act (42 
U.S.C. 281 et seq.) is amended by adding at the end the 
following:
‘‘SEC. 404H. JUVENILE ARTHRITIS INITIATIVE THROUGH 
THE DIRECTOR OF THE NATIONAL INSTI-
TUTES OF HEALTH. 
‘‘(a) EXPANSION AND INTENSIFICATION OF ACTIVI-
TIES.— 
‘‘(1) IN GENERAL.—The Director of NIH, in 
coordination with the Director of the National Insti-
tute of Arthritis and Musculoskeletal and Skin Dis-
eases, and the directors of the other national re-
search institutes, as appropriate, shall expand and 
intensify programs of the National Institutes of 
Health with respect to research and related activities 
concerning various forms of juvenile arthritis. 
‘‘(2) COORDINATION.—The directors referred to 
in paragraph (1) shall jointly coordinate the pro-
grams referred to in such paragraph and consult 
with additional Federal officials, voluntary health as-
sociations, medical professional societies, and private 
entities as appropriate. 
‘‘(b) PLANNING GRANTS AND CONTRACTS FOR INNO-
VATIVE RESEARCH IN JUVENILE ARTHRITIS.— 
‘‘(1) IN GENERAL.—In carrying out subsection 
(a)(1) the Director of NIH shall award planning 
grants or contracts for the establishment of new re-
search programs, or enhancement of existing re-
search programs, that focus on juvenile arthritis.
‘‘(2) RESEARCH.— 
‘‘(A) TYPES OF RESEARCH.—In carrying 
out this subsection, the Secretary shall encour-
age research that focus on genetics, on the de-
velopment of biomarkers, and on pharma-
cological and other therapies. 
‘‘(B) PRIORITY.—In awarding planning 
grants or contracts under paragraph (1), the 
Director of NIH may give priority to collabo-
rative partnerships, which may include aca-
demic health centers, private sector entities, 
and nonprofit organizations. 
‘‘(c) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated such sums as may be 
necessary for each of fiscal years 2005 through 2009 to 
carry out this section. Such authorization shall be in addi-
tion to any authorization of appropriations under any 
other provision of law to carry out juvenile arthritis activi-
ties or other arthritis-related research.’’. 
(b) PUBLIC HEALTH AND SURVEILLANCE ACTIVI-
TIES RELATED TO JUVENILE ARTHRITIS AT THE CEN-
TERS FOR DISEASE CONTROL AND PREVENTION.—Part 
B of title III of the Public Health Service Act (42 U.S.C. 
243 et seq.) is amended by inserting after section 320A 
the following:
‘‘SEC. 320B. SURVEILLANCE AND RESEARCH REGARDING 
JUVENILE ARTHRITIS. 
‘‘(a) IN GENERAL.—The Secretary, acting through 
the Director of the Centers for Disease Control and Pre-
vention, may award grants to and enter into cooperative 
agreements with public or nonprofit private entities for the 
collection, analysis, and reporting of data on juvenile ar-
thritis. 
‘‘(b) TECHNICAL ASSISTANCE.—In awarding grants 
and entering into agreements under subsection (a), the 
Secretary may provide direct technical assistance in lieu 
of cash. 
‘‘(c) COORDINATION WITH NIH.—The Secretary 
shall ensure that epidemiological and other types of infor-
mation obtained under subsection (a) is made available to 
the National Institutes of Health. 
‘‘(d) CREATION OF A NATIONAL JUVENILE ARTHRI-
TIS PATIENT REGISTRY.— The Secretary, acting through 
the Director of the Centers for Disease Control and Pre-
vention and in collaboration with a national voluntary 
health organization with experience serving the juvenile 
arthritis population as well as the full spectrum of arthri-
tis-related conditions, shall support the development of a 
National Juvenile Arthritis Patient Registry to collect spe-
cific data for follow-up studies regarding the prevalence 
and incidence of juvenile arthritis, as well as capturing
information on evidence-based health outcomes related to 
specific therapies and interventions. 
‘‘(e) AUTHORIZATION OF APPROPRIATIONS.—There 
are authorized to be appropriated such sums as may be 
necessary to carry out this section.’’. 
SEC. 
6. 
INVESTMENT 
IN 
TOMORROW’S 
PEDIATRIC 
RHEUMATOLOGISTS. 
(a) IN GENERAL.—Part Q of title III of the Public 
Health Service Act (42 U.S.C. 280h et seq.) is amended 
by adding at the end the following: 
‘‘SEC. 399AA. INVESTMENT IN TOMORROW’S PEDIATRIC 
RHEUMATOLOGISTS. 
‘‘(a) ENHANCED SUPPORT.—In order to ensure an 
adequate future supply of pediatric rheumatologists, the 
Secretary, in consultation with the Administrator of the 
Health Resources and Services Administration, shall sup-
port activities that provide for— 
‘‘(1) an increase in the number and size of in-
stitutional training grants awarded to institutions to 
support pediatric rheumatology training; and 
‘‘(2) an expansion of public-private partnerships 
to encourage academic institutions, private sector 
entities, and health agencies to promote educational 
training and fellowship opportunities for pediatric 
rheumatologists.