I 
117TH CONGRESS 
2D SESSION 
H. R. 7974 
To advance research, promote awareness, and provide patient support with 
respect to endometriosis, and for other purposes. 
IN THE HOUSE OF REPRESENTATIVES 
JUNE 7, 2022 
Ms. UNDERWOOD (for herself, Ms. WILLIAMS of Georgia, Ms. ADAMS, Miss 
GONZA´LEZ-COLO´N, Mr. LAWSON
of Florida, Mrs. HAYES, Mr. 
ESPAILLAT, Mr. POCAN, Mr. LIEU, and Mr. DAVID SCOTT of Georgia) 
introduced the following bill; which was referred to the Committee on En-
ergy and Commerce 
A BILL 
To advance research, promote awareness, and provide patient 
support with respect to endometriosis, and for other pur-
poses. 
Be it enacted by the Senate and House of Representa-
tives of the United States of America in Congress assembled, 
SECTION 1. SHORT TITLE. 
This Act may be cited as the ‘‘Endometriosis Cov-
erage, Awareness, Research, and Education Act of 2022’’ 
or the ‘‘Endometriosis CARE Act of 2022’’. 
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SEC. 2. ADVANCING ENDOMETRIOSIS DATA COLLECTION, 
SURVEILLANCE, AND RESEARCH. 
(a) IN GENERAL.—The Director of the National In-
stitutes of Health (in this section referred to as the ‘‘Di-
rector’’) shall conduct or support data collection, surveil-
lance, and research related to endometriosis. 
(b) USE OF FUNDS.—In carrying out subsection (a), 
the Director may— 
(1) conduct or support research and related ac-
tivities regarding endometriosis, including research 
to improve treatment options and develop a cure for 
endometriosis; 
(2) establish or expand an internet clearing-
house to catalog existing endometriosis research, 
treatment options, and related information for pa-
tients and health care professionals; or 
(3) carry out related activities as determined by 
the Director. 
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$30,000,000 for each of fiscal years 2023 through 2027. 
SEC. 3. IDENTIFYING BARRIERS TO ACCESSING TREAT-
MENTS FOR ENDOMETRIOSIS SYMPTOMS. 
(a) RESEARCH.—The Secretary shall conduct an 
analysis of barriers that individuals diagnosed with endo-
metriosis face in accessing treatments for endometriosis 
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(2) State Medicaid programs and Children’s 
Health Insurance Programs to collect and report 
data related to services furnished to individuals diag-
nosed with endometriosis for the treatment of endo-
metriosis symptoms through the Transformed Med-
icaid Statistical Information System, including data 
stratified by relevant demographic characteristics. 
(d) PRIVACY REQUIREMENTS.—In carrying out the 
analysis under subsection (a), the Secretary shall ensure 
that the privacy and confidentiality of individual patients 
are protected in a manner consistent with relevant privacy 
and confidentiality laws. 
(e) REPORT.—Not later than two years after the date 
of enactment of this Act, the Secretary shall submit to 
the Congress and make publicly available on the website 
of the Department of Health and Human Services a report 
on the analysis carried out under this section. 
SEC. 4. EDUCATION AND DISSEMINATION OF INFORMATION 
WITH RESPECT TO ENDOMETRIOSIS. 
(a) ENDOMETRIOSIS
PUBLIC
EDUCATION
PRO-
GRAM.—The Secretary shall develop and disseminate to 
the public information regarding endometriosis, including 
information on— 
(1) the awareness, incidence, and prevalence of 
endometriosis, with a particular focus on individuals 
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from racial and ethnic minority groups and other 
underserved groups; 
(2) culturally and linguistically appropriate sup-
port that is available to address the mental health 
impacts of endometriosis; and 
(3) the availability, as medically appropriate, of 
the range of treatment options for symptoms of 
endometriosis. 
(b) DISSEMINATION
OF INFORMATION.—The Sec-
retary may disseminate information under subsection (a) 
directly or through arrangements with intra-agency initia-
tives, nonprofit organizations, consumer groups, institu-
tions of higher education, or Federal, State, or local public 
private partnerships. 
(c) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$2,000,000 for each of fiscal years 2023 through 2027. 
SEC. 5. INFORMATION TO HEALTH CARE PROVIDERS WITH 
RESPECT TO ENDOMETRIOSIS. 
(a) DISSEMINATION
OF INFORMATION.—The Sec-
retary shall, in consultation with relevant health care pro-
fessional societies and associations, disseminate informa-
tion to health care professionals, health care-related orga-
nizations, and health systems to promote evidence-based 
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care for individuals with endometriosis, including informa-
tion related to— 
(1) detecting and diagnosing endometriosis; 
(2) providing care for individuals with endo-
metriosis; 
(3) communicating with patients about endo-
metriosis; and 
(4) related topics. 
(b) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$2,000,000 for each of fiscal years 2023 through 2027. 
SEC. 6. ENDOMETRIOSIS DISPARITIES STUDY THROUGH 
NATIONAL ACADEMIES. 
(a) IN GENERAL.—The Secretary shall seek to enter 
an agreement, not later than 90 days after the date of 
enactment of this Act, with the National Academies of 
Sciences, Engineering, and Medicine (referred to in this 
section as the ‘‘National Academies’’) under which the Na-
tional Academies agree to conduct a study on endo-
metriosis disparities. 
(b) STUDY REQUIREMENTS.—The agreement under 
subsection (a) shall direct the National Academies to— 
(1) assess endometriosis prevalence, detection, 
treatment, and outcome disparities by race, eth-
nicity, geography, primary language, sexual orienta-
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tion, gender identity, disability status, and insurance 
status, and related topics as determined by the Sec-
retary; and 
(2) make recommendations to the Congress, 
Federal agencies, health care professionals, and 
other relevant stakeholders based on the National 
Academies’ findings pursuant to paragraph (1). 
(c) REPORT.—The agreement under subsection (a) 
shall direct the National Academies to complete the study 
under this section, and transmit to the Congress and make 
publicly available a report on the results of the study, not 
later than 24 months after the date of enactment of this 
Act. 
(d) AUTHORIZATION OF APPROPRIATIONS.—To carry 
out this section, there is authorized to be appropriated 
$500,000. 
SEC. 7. DEFINITIONS. 
In this Act: 
(1) The term ‘‘institution of higher education’’ 
has the meaning given to such term in section 101 
of the Higher Education Act of 1965 (20 U.S.C. 
1001). 
(2) The term ‘‘racial and ethnic minority 
group’’ has the meaning given such term in section 
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1707(g) of the Public Health Service Act (42 U.S.C. 
300u–6(g)). 
(3) The term ‘‘Secretary’’ means the Secretary 
of Health and Human Services. 
Æ 
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