IV 
117TH CONGRESS 
2D SESSION 
H. RES. 1176 
Expressing support for the designation of June 19, 2022, as ‘‘World Sickle 
Cell Awareness Day’’ in order to increase public alertness across the 
United States and global community about sickle cell disease, the contin-
ued need for empirical research, early detection screenings for sickle 
cell trait carriers, novel effective treatments leading to a cure, and 
preventative care programs with respect to complications from sickle 
cell anemia and conditions related to sickle cell disease. 
IN THE HOUSE OF REPRESENTATIVES 
JUNE 15, 2022 
Mr. DANNY K. DAVIS of Illinois (for himself, Mr. BURGESS, Ms. LEE of Cali-
fornia, Ms. SEWELL, Mr. BUTTERFIELD, Mr. OWENS, and Mr. BILI-
RAKIS) submitted the following resolution; which was referred to the 
Committee on Energy and Commerce 
RESOLUTION 
Expressing support for the designation of June 19, 2022, 
as ‘‘World Sickle Cell Awareness Day’’ in order to in-
crease public alertness across the United States and glob-
al community about sickle cell disease, the continued 
need for empirical research, early detection screenings 
for sickle cell trait carriers, novel effective treatments 
leading to a cure, and preventative care programs with 
respect to complications from sickle cell anemia and con-
ditions related to sickle cell disease. 
Whereas sickle cell disease (referred to in this preamble as 
‘‘SCD’’) is defined as a group of inherited red blood cell 
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•HRES 1176 IH 
disorders that is a genetic condition present at birth and 
is a major health problem in the United States and 
worldwide; 
Whereas the 2022 theme of World Sickle Cell Awareness 
Day, ‘‘Shine the Light on Sickle Cell’’ is an immediate 
call to action to improve the health and quality of life for 
individuals living with SCD and their families; 
Whereas, in 1972, Dr. Charles Whitten established the Sickle 
Cell Disease Association of America to improve research, 
education, and health care for sickle cell patients, which 
is now headquartered in Hanover, Maryland; 
Whereas, in 1972, Congress passed the National Sickle Cell 
Disease Control Act which, for the first time, provided 
authority to establish education, information, screening, 
testing, counseling, research, and treatment programs for 
sickle cell disease; 
Whereas SCD is a gene mutation that causes a single mis-
spelling in the DNA instructions for hemoglobin, a pro-
tein that aids in carrying oxygen in the blood, results in 
chronic complications related to anemia, stroke, infec-
tions, organ failure, tissue damage, intense periods of 
pain referred to as vaso-occulsive crises, and even pre-
mature death in persons living with the disease; 
Whereas sickle cell trait (SCT) occurs when a person inherits 
one copy of the sickle cell gene from one of his or her 
parents, and in the United States an estimated 
3,000,000 individuals have SCT with many unaware of 
their status; if both parents have SCT, there is a 25-per-
cent (or 1 in 4) chance that any child of theirs will have 
SCD; 
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•HRES 1176 IH 
Whereas the prevalence of SCD in the United States affects 
approximately 100,000 individuals, 1 in every 365 Afri-
can-American births, and 1 in every 16,300 Hispanic- 
American births, with roughly 1 in 13 African-American 
babies born with sickle cell trait; 
Whereas the global imprint of SCD affects millions of people 
throughout the world; particularly among those persons 
whose ancestors came from sub-Saharan Africa; Spanish- 
speaking regions in the Western Hemisphere (South 
America, the Caribbean, and Central America); Saudi 
Arabia; India; and Mediterranean countries such as Tur-
key, Greece, and Italy; 
Whereas the variance related to disease prevalence of sickle 
cell trait ranges greatly by region, and there are levels re-
corded as high as 40 percent in certain areas of sub-Sa-
haran Africa, eastern Saudi Arabia, and central India; 
Whereas in countries that are poor in resources, more than 
90 percent of children with SCD do not live to see adult-
hood; 
Whereas approximately 1,000 children in Africa are born 
with SCD daily with more than half who will die before 
their fifth birthday; 
Whereas there is a high prevalence of SCD in India, most no-
tably within the central and western regions that results 
in nearly 20 percent of babies diagnosed with SCD dying 
by the age of two; 
Whereas, 16 years ago, in 2006, the World Health Assembly 
passed a resolution recognizing SCD as a public health 
priority with a call to action that each country implement 
measures to tackle the disease, and three years later, the 
United Nations adopted this same resolution in 2009; 
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