‘‘(A) relevant agencies within the Depart-
ment of Health and Human Services (including
the Health Resources and Services Administra-
tion, the Centers for Medicare & Medicaid Serv-
ices, the National Institutes of Health, and the
Agency for Healthcare Research and Quality);
or
‘‘(B) such other Federal agencies and de-
partments as determined appropriate by the
Secretary.
‘‘(c) REPORTS.—The task force shall assist the Sec-
retary to prepare the reports required under section 9 of
Darlene’s Law.
‘‘(d) TERMINATION.—The task force shall terminate
at the end of fiscal year 2007. Upon such termination,
the Secretary shall provide for the on-going coordination
of federally supported or conducted organ donation and
research activities.’’.
SEC. 6. DEMONSTRATION PROJECTS, EDUCATION, AND
PUBLIC AWARENESS.
Part H of title III of the Public Health Service Act
(42 U.S.C. 273 et seq.) is further amended by adding after
section 377B (as added by section 5) the following:
‘‘SEC. 377C. DEMONSTRATION PROJECTS, EDUCATION, AND
PUBLIC AWARENESS.
‘‘(a) GRANTS TO INCREASE DONATION RATES.—The
Secretary shall award peer-reviewed grants to public and
non-profit private entities, including States, to carry out
studies and demonstration projects to increase organ do-
nation and recovery rates. Such projects may include
projects to remove financial disincentives to organ dona-
tion and research on issues relating to presumed consent.
‘‘(b) ORGAN DONATION PUBLIC AWARENESS PRO-
GRAM.—
‘‘(1) ESTABLISHMENT.—The Secretary shall es-
tablish a public education program in cooperation
with existing national public awareness campaigns to
increase awareness about organ donation and the
need to provide for an adequate rate of such dona-
tions.
‘‘(2) MOBILE UNITS.—The program established
under this subsection may include the creation of
one or more mobile units to travel around the Na-
tion promoting organ donation.
‘‘(c) DEVELOPMENT
OF CURRICULA
AND OTHER
EDUCATION ACTIVITIES.—
‘‘(1) IN GENERAL.—The Secretary, in coordina-
tion with the Organ Procurement and Transplan-
tation Network and other appropriate organizations,
shall support the development and dissemination of
model curricula to train health care professionals
and other appropriate professionals (including reli-
gious leaders in the community, funeral directors,
and law enforcement officials) in issues relevant to
organ donation, including cultural sensitivities and
methods to approach patients and their families.
‘‘(2) HEALTH CARE PROFESSIONALS.—For pur-
poses of paragraph (1), the term ‘health care profes-
sionals’ includes—
‘‘(A) medical students, residents, and fel-
lows, attending physicians, nurses, social work-
ers, and other allied health professionals; and
‘‘(B) hospital- or other health care facility-
based chaplains; and
‘‘(C) emergency medical personnel.’’.
SEC. 7. STUDIES RELATING TO ORGAN AND TISSUE DONA-
TION AND THE RECOVERY, PRESERVATION,
AND TRANSPORTATION OF ORGANS AND TIS-
SUES.
Part H of title III of the Public Health Service Act
(42 U.S.C. 273 et seq.) is further amended by adding after
section 377C (as added by section 6) the following:
‘‘SEC. 377D. STUDIES RELATING TO ORGAN AND TISSUE DO-
NATION AND THE RECOVERY, PRESERVA-
TION, AND TRANSPORTATION OF ORGANS
AND TISSUES.
‘‘(a) DEVELOPMENT
OF
SUPPORTIVE
INFORMA-
TION.—The Secretary, acting through the Administrator
of the Health Resources and Services Administration and
the Director of the Agency for Healthcare Research and
Quality, shall develop scientific evidence in support of ef-
forts to increase organ and tissue donation and improve
the recovery, preservation, and transportation of organs
and tissues.
‘‘(b) ACTIVITIES.—In carrying out subsection (a), the
Secretary shall—
‘‘(1) conduct or support evaluation research to
determine whether interventions, technologies, or
other activities improve the effectiveness, efficiency,
or quality of existing organ and tissue donation
practice;
‘‘(2) undertake or support periodic reviews of
the scientific literature to assist efforts of profes-
sional societies to ensure that the clinical practice
guidelines that they develop reflect the latest sci-
entific findings;
‘‘(3) ensure that scientific evidence of the re-
search and other activities undertaken under this
section is readily accessible by the organ procure-
ment workforce; and
‘‘(4) work in coordination with the appropriate
professional societies as well as the Organ Procure-
ment and Transplantation Network and other organ
procurement and transplantation organizations to
develop evidence and promote the adoption of such
proven practices.
‘‘(c) RESEARCH, DEMONSTRATIONS, AND TRAIN-
ING.—The Secretary, acting through the Administrator of
the Health Resources and Services Administration and the
Director of the Agency for Healthcare Research and Qual-
ity, as appropriate, shall provide support for research,
demonstrations, and training, as appropriate—
‘‘(1) to develop a uniform clinical vocabulary for
organ recovery;
‘‘(2) to apply information technology and tele-
communications to support the clinical operations of
organ procurement organizations;
‘‘(3) to enhance the skill levels of the organ
procurement workforce in undertaking quality im-
provement activities; and
‘‘(4) to assess specific organ recovery, preserva-
tion, and transportation technologies.’’.
SEC. 8. AUTHORIZATION OF APPROPRIATIONS.
Section 378 of the Public Health Service Act (42
U.S.C. 274g) is amended—
(1) by striking ‘‘For the purpose’’ and inserting
‘‘(a) IN GENERAL.—For the purpose’’; and
(2) by adding at the end the following:
‘‘(b) GRANTS TO ORGAN PROCUREMENT ORGANIZA-
TIONS.—For the purpose of carrying out section 377A,
there are authorized to be appropriated (in addition to
amounts authorized to be appropriated under subsection
(a)) $3,000,000 for fiscal year 2003, and such sums as
may be necessary for each of fiscal years 2004 through
2007.
‘‘(c) OTHER PROGRAMS.—For the purpose of car-
rying out sections 377B, 377C, and 377D, there are au-
thorized to be appropriated (in addition to amounts au-
thorized to be appropriated under subsection (a))
$10,000,000 for fiscal year 2003, and such sums as may
be necessary for each of fiscal years 2004 through 2007.’’.
SEC. 9. REPORTS.
(a) IN GENERAL.—The Secretary of Health and
Human Services shall submit to the Congress—
(1) not later than the end of 2004, an interim
report; and
(2) not later than the end of 2007, a final re-
port.
(b) CONTENTS.—The reports required by this section
shall each contain a detailed statement on the progress
and efficacy of the activities carried out under the amend-
ments made by this Act.
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