The support needs to be gentle, helpful and positive. In some ways, it replicates family and friends coming together to help each other and chat about an issue or a concern. It also is a time to share joys and visions for the future. Sometimes, a professional may facilitate the group, but most of the time it is best if parents choose a facilitator from within the group. It is important that parents and caregivers feel they can safely tell the other members their feelings and concerns and to know that their comments will not be repeated to others.
Some groups like to have a specific theme for discussion at each meeting.
Other groups like to let the members needs determine the focus of the meeting. In either case, it may be wise to keep a record of the topics that were discussed. Taking turns during the sharing time is very important for keeping the group together. Often allowing members an agreed upon length of time for sharing, and sticking to it, helps everyone feel that they are equal members of the group. Regular members may wish to share first so that new members can become more comfortable.