I am regaining my mobility and cognitive ability and would like to hear from anyone who has a similar handicap. Please post a reply if you know of anyone who shares my experiences and would like to talk about it in this forum. For those on the forum who don't or haven't heard of Susac syndrome it is a microagniopathy of the brain, retina, and inner ear. It affects mostly adult women. It is unrelated to arterial hypertension or diabetes and is characterized by arteriolar branch occlusions of the brain, retina, and inner ear, with resultant encephalopathy, vision loss, vestibular dysfunction and asymmetrical sensorineural hearing loss.
Treatment is usually with steriods, cyclophosphamide or antcoagulant therapy.
Hyperbaric treatment may help visual symptoms. Information contained within this forum is intended solely for general educational purposes and is not intended nor implied to be a substitute for professional medical advice relative to your specific medical condition or question. Only your physician can provide specific diagnoses and therapies. All rights reserved.