We're from a small area in Ga. and know very little of what is available, as far as, support groups, housing arangements after surgery, and help for medications if insurance or mcare doesn't pay. Even the medical field here is very limited with information. Please help us with more info. I'm a patient living with sarcoidosis for well over 20 years. I have it in the lungs and for the past two and some change years, I 've been awaiting a bilateral lung transplant.
Some days are good.
Some days I just don't know what to do. I have a great team at the hospital behind me. I feel they're the best. We have a support group and that helps a lot. Most patients live with this alone.