The fopundation also funds and manages a number of international collaborative efforts for NF scientists, NF clinics, NF databases, and NF mutation searches. The Foundation also has an extensive mailorder bookstore through which most texts on NF are available. Chapters are also available in many areas of the U.S.A. Click on the highlighted name to go to the National Neurofibromatosis Foundation WWW Homepage. The organization also serves professionals and will respond to mail, telephone, and in-person inquiries. A 24-hour message line is available, and service is extended through the weekend with the help of volunteer staff.
Some publications are available in Spanish.
The organization also promotes and supports research in Neurofibromatosis and related conditions. Since its inception in 1983, NORD has served as the primary non- govermental agency for those seeking information on over 5,000 rare diseases. There are a number of brain tumors that are included in NORD's library of materials. Call for more information. NORD has a networking program for patients and family members.