The better you understand the challenge, behavior and personality changes that occur with this disorder, the better you are able to help yourself. Get outside help. A person trying to do everything by him or herself will become exhausted and end up with health problems. Sometimes it is necessary to find an advocate. Don't be afraid to talk to a mental health professional and to join a support group.
Support groups are important in reducing feelings of isolation and being alone.
Do legal and financial planning. Consult an attorney and discuss the issues. Planning now will help in the future. Until a cure is found, the progression of this disease is inevitable. Give yourself permission to grieve for the loss you are experiencing and try to focus on positive memories.