Know deep in your heart that everything will turn out to be a success and never waver. Identify people who have been through it succesfully and learn from them. If you have a strong family and support system, that is absolutely vital. I was so lucky in this regard. Some people get sick very early in life, while others do not until their adulthood.
Some people are more affected in lungs than digestion and vice versa.
To receive a tx, doctors try to time it so that you have less than a year left. It has made such an amazing differnce in my life. When I was diagnosed at age 5, my life expectancy was 8. Now I'm 32, and LE is almost 33. Its gone up my whole life due to breakthrough after breakthrough in research, all due to donations.