To date there Is no evidence that any particular treatment is widely effective but some things, together with time, increase the likelihood of spontaneous Improvement. Early diagnosis is an Important step not only in reducing stress for the sufferer and family, but ensuring better disease management. Sufficient rest especially in the early stages and during setbacks is advisable. However, prolonged bed rest beyond the acute stage has its dangers since it is possible to become trapped In a vicious cycle of immobility and weakness. Within these general guidelines you will need to determine your own levels of rest and activity by experiment and experience.
Setbacks often follow on from sufferers doing too much, too soon, once they feel a little better.
Often setbacks and improvements are a natural part of this fluctuating disease process and cannot be easily explained. Most sufferers, in time, do recover, some even after several years of ill health. A small group remain chronically ill but continual deterioration in symptoms Is not the normal pattern. In obtaining a diagnosis and information about the illness, including updates on research. A quarterly magazine is produced to keep you informed of the latest research, diets, medications, therapies, etc.