Scott is not demonstrative in any way, but he runs through the clinic and hugs Shree. She says he also loved the private pediatric therapist the family was temporarily able to see. Schools can be a good source of help and advice, Robison says, but you have to be on your guard. Some schools are great and some will do as little as they have to do. Robison strongly endorses parent advocacy groups that interpret disability law for families and help them make school systems comply with regulations.
Social workers associated with medical centers or school systems can also be a help.
They can be an advocate for the child in the school system, because they understand the disease and the equipment. They can go to the principal and say why he really needs to have a computer. They're a medical bridge to the school. Therapies can be conducted in the home, preschool, daycare center or other settings. Your MDA clinic is always a good place to start with physical therapy.