Once there is disclosure, physicians with good records will benefit. So will the newly diagnosed AN patients. Already treated AN patients will benefit too. If your surgeon has left you with a handicap, most would want to put it behind you and go on. But some might want to learn whether this was an anomaly or an expected outcome.
Statistics are critical to our insurance costs, as well as professional insurance of physicians.
If you have AN surgery, there will be a file in the shared insurance pool that will codify and record the nature of your experience. Statistics are kept by the medical community as well. The ANA sponsors a database of AN cases, similar to the one by the insurance folks. We need to help those that have not yet taken the AN path. With today's software, there could be a simple spreadsheet that layed out the entire AN experience in a few megabytes, year by year, protocol by protocol, physician by physician.