Includes a personal page, genetic and general information, parent support groups and links to other resources. Overview of VCFS describing condition, causes and red flags. Provides contacts for more information and treatment. The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support. Information and support for parents with daughters having 47,XXX, triple X or Trisomy X syndrome.
Site contains scientific literature and contacts.
Includes brief explanation of Ischemic-Hypoxic Encephalopathy. A forum, bookshop and directory of related sites for parents of children with speaking disabilities and related diseases. Nutrition suggestions given. Also known as newborn conjunctivitis or ophthalmia neonatorum. Offers information including, diagnosis, characteristics, treatment, genetics and notes to parents.