It is important to balance your daily vigilance about mastocytosis with a great sense of humor and maybe just a touch of denial. Calling 911 One challenge to managing your life with mastocytosis is knowing when to get medical attention. You and your doctor should talk about the circumstances under which you should get attention immediately. If you don't carry one, please talk with your doctor about getting one, particularly if you are going to be out of range of immediate medical attention. Epi-pens should be carried on your person at all times.
Some patients carry two in case more than one dose is needed in an emergency.
Many mastocytosis patients wear a Medic Alert bracelet or necklace. Medic alert jewelry is engraved with information about your disease and what to do in an emergency. Emergency workers are trained to look for these. There is also a toll-free number to call for more information about your case. If you are planning to travel to a country where medical services are limited, there are companies that can provide insurance allowing you to be evacuated in a medical emergency.