Association of Birth Defect Children, Inc. - Charitable organization started by parents in 1982. CALM - Homepage for Children Anguished with Lymphatic Malformations. Children's Craniofacial Association - Children's Craniofacial Association is a national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families. Cystic Hygroma - An article explaining this disorder and a support group for sharing. Cystic Hygroma and Fetal Hydrops - From bereaved parents.
Site has an explanation of cystic hygroma and more resources.
The Cystic Hygroma Network - Support group networking forum for parents, children and adults who are or have been affected by Lymphatic Malformations from the UK and the rest of the world. Lymphovenous Canada - The Mystery of Lymph Formation. Current Research Theories.