Some of the children, like our daughter, seem to have severe respiratory complications, while others don't have any apparent breathing difficulties. Some children are on ventilators, others are on CPAP, some are on supplemental oxygen and others don't need any assistance at all. Unfortunately, some infants do die from the syndrome because their lungs cannot function normally with the rib cage restrictions or they have additional complications. I recommend that anyone who has a child with respiratory issues contact the Titanium Rib Project for an evaluation. Generally because of the weak rib structure bracing the spine is difficult.
Some children do undergo spinal fusions to correct the problem.
Some children do experience hearing difficulties due to the positioning of the lower jaw. Frequent ear infections are also a possibility. Many of the children are tube fed in the beginning due to difficulty swallowing with the recessed lower jaw. A lot of the kids can eat normally once the jaw is repaired. Severe reflux is another issue I have repeatedly run across.