Jordan's Juvenile Dermatomyositis Diary - The diary of a 10 year old girl diagnosed with this rare disease including her treatment and progress. How one family is dealing with this rare auto-immune disease that affects the muscles and skin. Juvenile Dermatomyositis Registry - The registry is part of a study to determine prevalence, incidence, and circumstances surrounding the onset of JDMS, and to facilitate JDMS research by physicians and scientists. MDA Dermatomyositis page - Background and references, provided by the Muscular Dystrophy Association.
Site includes links and a chat room.
Sharon's Myositis Homepage - Dedicated to all who suffer from Myositis.