Bowel and bladder control and function are usually not affected. You may become too weak to breathe without the help of a ventilator. Respiratory failure, pneumonia, or blood clots in the lungs may cause death. The doctor examines you, takes your medical history, and orders tests of your brain and nervous system. There is no cure for this disease.
Treatment includes relieving symptoms and providing supportive care.
Emotional support from friends and family is very important in helping you cope with this disease. Early in the course of the disease, try to remain moderately active. Physical therapy can help keep muscles active and delay weakness. You may need braces or splints to support weakened ankles or wrists. As the disease progresses, you may need to stay in a nursing home if you cannot be cared for at home.