If you decide not to pursue testing yourself, banking or storage of your DNA is strongly encouraged. DNA may be stored indefinitely and is then available to other family members for future use. Your stored sample may be the necessary link in the accurate testing of your offspring. Banking of your DNA is one of the greatest gifts you can leave your children and grandchildren. Even though the HD gene was located, the function of the gene remains elusive.
Scientists continue their quest to unravel the mystery.
While the future holds the promise for improved treatment options, current treatment remains symptomatic. Environmental modifications and attention to events that trigger problem behavior may prove more beneficial in the long run. When medications are used, frequent assessment is necessary to evaluate the need for continued use and possible side effects. You may wish to visit the Caring for people with Huntington's disease home page, maintained by Richard Dubinsky,M.D. .