For the ethical, legal and social issues raised by the project click here . HUGO was established in 1989 by a group of the world's leading genome scientists to promote international collaboration within the project. Its mission is to develop up to 300,000 SNPs distributed evenly throughout the human genome and to make the information related to these SNPs available to the public without intellectual property restrictions. Site contains testimony presented to U.S. Congress, position papers, and legislative clearinghouse. The Human Genome Diversity Project - is an international project that seeks to understand the diversity and unity of the entire human species.
Site includes their model ethical protocol for collecting DNA samples.
Educational Information A Guide to Ethics and Genetics on the Web - maintained by Richard Sharp, Ph. D. of the National Institute of Environmental Health Sciences. Provides links to federal programs, articles and reports, funding, and discussion groups. Site is maintained by Bryn Williams-Jones at the University of British Columbia. The Gene Letter a site with numerous links to online articles on genetics, eugenics, DNA patenting, gene therapy, and stem-cell research. This site also contains links to several policy statements and legislation.