It is important to remember, however, that only your physician should make these medication changes. Almost all drug research studies require close supervision of the patient to assure that the medication is being taken as instructed and that there are no undesirable side effects. Some patients with Alzheimer's who live alone with only short periods of supervision by friends or family cannot be safely included in research studies. Families may wish to make changes in the living situation to better meet the safety needs of their loved one before entering a drug trial. Finally, drug studies require frequent visits to the physician directing the study.
Visits vary from weekly to monthly, depending upon the requirements of the particular study.
Families should carefully consider the advisability of entering into a study that requires frequent trips of several hours duration. This can place considerable stress on both patient and caregiver. Many patients with Alzheimer's disease and their families report that participating in experimental drug studies helps them feel that they are doing everything possible to fight back. The purpose of our research is to increase our understanding of dementia and Alzheimer's disease. Your participation will consist of a yearly exam that includes a one time blood draw, paper and pencil testing, and a neurology exam with a medical physician.