Support for biomedical research and research into management of these disorders has been and continues to be an important part of the APHS program. Regional APHS support groups for parents are supplemented by medical conferences and lectures given by members of the Professional Advisory Board in various parts of the Unites States. Since a limited number of medical centers in the United States are equipped with specialists and equipment capable of evaluating and treating chronic intestinal pseudo-obstruction, Hirschsprung s disease and intestinal neuronal dysplasia, some families face extraordinary expenses and are in dire need of whatever aid may be available. ASAP also provides support for patients affected with CIP as well as their families. In addition, ASAP functions as an important digestive mobility disorders information base for physicians, nurses, and other members of the medical community.
Special resources are available for particular age groups.
We are unaware of any discussion groups or forums specifically for this diagnosis. However, there are several forums that may be of interest to parents of children with disabilities or special health care needs regardless of diagnosis. See description above. Inc. See description above.