However, when a medical crisis occurs, parents again face decisions and emotions related to the possibility of their child dying. Further testing and genetic counseling may be appropriate. Trisomy 18 or 13 needs to be presented accurately to parents and include the fact that some babies survive beyond one year. The specific problems of their infant should be discussed with the parents and, if appropriate, referrals made to specialists as needed. It is crucial for parents to be a part of deciding what is in the best interest of their child and to have their views respected.
Some parents use intervention with the hope of alleviating problems.
Others choose a more watchful care consisting of love, comfort and waiting. SOFT also has members who decided to terminate their pregnancy. The supportive professional can make a significant difference in the lives of these babies and their parents, and families do treasure those professionals who attempt to be their support. Suggest parents contact social services about qualifications for Medicaid and also to ask about the Medicaid waiver programs for those who do not ordinarily qualify for regular Medicaid. Encourage parents to find and use respite services and inform them about Hospice as a source of help.