There are several clues that may have caused you or your doctor to suspect that your child has craniosynostosis. A misshapen head is usually the first clue. The anterior fontanelle, or soft spot, may or may not be open. The suspected diagnosis is confirmed by x-rays. A CT scan is also done to make sure there are no underlying abnormalities in the brain.
Treatment is aimed at restoring the normal shape and relationship of the forehead and orbital rims.
While the deformity may vary from very mild to severe, the psychological effect of a noticeably misshapen forehead and face can cause great problems and is a very important reason for seeking treatment. The child must also be evaluated for any signs of increased intracranial pressure due to restricted skull growth. The type and timing of surgery varies with the child and diagnosis. However, there are some common elements. The surgeons make an incision or opening in the skull behind the hairline so that afterwards the scar is covered by the hair.