Parents who have children with similar health issues are able to respond to some of the anxiety new parents feel, as well as, offer suggestions for clothing, diapering, support groups and socializing. Parents whose child requires an ostomy may feel guilty, wondering what they could have done to prevent the problem. Children may sense these parental anxieties, and may assume a similar attitude. If parents are able to gain a positive outlook, the child will also remain positive. Most importantly, it is comforting to know other parents and children who have faced similar situations and are doing well.
Some locations have support groups that meet on a regular basis.
Most support, however, is done by telephone networking. We have trained Parent Visitors for many of the medical conditions which affect children. The UOA spends a great deal of time and money to make sure the US Government understands our needs. The larger our membership is, the more likely they will listen.