Our gratitude at the professionalism, expertise and care of the staff of Children's Hospital will last forever. The phone call from my husband was a relief as I worried constantly about my son. After learning all I could about epilepsy. Not only is there very little information about TS, but very few doctors know much about it. In fact, most people who are diagnosed with TS spend over four years of misdiagnosis and treatment before they find out what is really wrong.
Some people never find out the nature of their problems.
We were lucky it took us only a year. When our diagnosis became medically known in the local community, two other local cases of TS were diagnosed. It has been well over a year since Mark has been diagnosed and we have been learning more about this complex neurological disorder every day. Here are a few of the thing we learned about our son. That is, he can control them when he wants for short periods of time.