Your child will have to go through many medical tests, hospitalizations, and treatments. In this way, he or she will be different from other children. A lot of love and understanding from you will be needed to help him or her through these rough times. This does not mean, however, that your child should be spoiled or given unfair privileges when there are brothers and sisters to be thought about. As you child enters adolescence, further difficulties may emerge.
Teenagers are especially sensitive about their bodies.
The teenager with exstrophy may feel awkward about surgical scars on the abdomen and level of urinary continence. This is to be expected, and the child can be reassured that these feelings are normal. As in earlier times of difficulty, these periods call for a lot of love and reassurance from parents. Everyone raises children differently, so your way of dealing with your child is unique. Try to focus on the positive qualities of your child.