In some communities, there may be access to support groups . Legal advice may be appropriate early in the course of the disorder. Advance directives, a power of attorney , and other legal actions may make it easier to make ethical decisions regarding the care of an SDAT patient. The probable outcome is poor. The disorder is usually not acute , but progresses steadily.
Total disability is common.
Death normally occurs within 15 years, usually from an infection or a failure of other body systems. Discuss the situation with your health care provider if you are caring for a person with this disorder and the condition deteriorates to the point where you can no longer care for the person in your home. There is no proven prevention at this time. The information provided herein should not be used for diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.