The basis for this hyperacusis is not clear, and it often becomes less of a problem in adulthood. Despite their relatively good verbal and social skills, most adults with Williams syndrome are unable to live independently and require ongoing support and supervision in everyday activities. This is most likely due to their characteristic over-friendliness and social disinhibition, their limited social awareness, distractibility, and high levels of anxiety and fearfulness. The Foundation is a National Registered Charity No.281014 established in 1980. The foundation represents the families of over 700 affected children and adults.
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Contact a Family is a UK charity which helps families who care for children with any disability or special need. We are a main source of information about rare disorders and are able to assist affected adults as well as children. The CaF Directory Online contains details of many medical conditions and also patient support groups. The information in it is also provided as part of the NHS Direct Online service. Although great care has been taken in the compilation and preparation of this work to ensure accuracy, Contact a Family cannot accept responsibility for any errors or omissions.