Since then unfortunatley, I have lost count how many times she has been admitted to the PICU at Children's Hospital. I think it is almost 20 times. Because of the missing gag reflex, she suffers from pnemonia chronically. Isabel has had a few surgeries. She had ear tubes plcaed.
Tubes are a neccassity with a small jaw.
She also had a tongue lip adhesion at 3 months old. It is a procedure where the docs sew the tongue to the lower lip to help with airway obstruction. Her tongue has since been released. Isabel at 8 months old had a nissan and a G-tube placement. My daughter is only fed via Gtube.