This panel will be known as the CFS Patient Register Project Panel. All members of the Project Panel would give their time voluntarily as a community service. The Project must not be seen to have the prospect of being overly influenced by any particular institution - hence it is not proposed that the Project be associated with any particular hospital or university. The Government grant would be made to this Society. The management of the Pilot Register Project would by overseen by the Panel of independent senior representatives, the CFS Patient Register Project Panel.
Society is a registered charity eligible to receive tax deductible donations.
It is proposed by the Society that it will embark upon a special project appeal to raise donations from members of the community willing to support the Project. Potential financial support has already been identified. These donated funds would supplement a grant from the State Government.