Recognizing that each patient is an individual, the involvement of some members of the team will vary depending on the needs of the child and family. Children need basic knowledge regarding the disease process, the concepts of flares and remissions, the diagnostic process, and the therapeutic modalities. It is important for them to feel supported by their family and friends. They must be included in some of the decision making regarding their health care and they must feel part of the team. The age and developmental level of the child will dictate how and what he or she should hear and learn.
Videotapes provide a non-threatening forum for all age groups.
Education seminars sponsored by CCFA offer families an opportunity to meet with experts. Children are provided the opportunity to learn about IBD through games and group activities. School Issues School is an integral part of a child's life. Many aspects of IBD impact on how children are viewed by their friends, classmates, and teachers. Teachers have a profound influence over these interactions and should be aware of the child's medical condition.