More public education and much more intensive coverage of genetics in schools at all levels are critical. Genetic tests must be accurate, effective, and interpreted with close to ''zero- error'' tolerance. The highest standards must be applied to new genetic tests and to laboratories performing tests. Private and public health plans, geneticists, and consumers must work together to develop guidelines for reimbursement for appropriate genetic services, which should also be incorporated into health-care reform plans. A broadly representative national advisory committee, aided by an expert working group on genetic testing, should be established to set standards for genetic tests and policies for the use of new tests in medical practice.
Significant gaps exist in data on current genetic testing and screening.
More information is needed to make appropriate decisions in this area.