In some communities, there may be access to support groups . Legal advice may be appropriate early in the course of the disorder. Advance directives, a power of attorney , and other legal actions may make it easier to make ethical decisions regarding the care of an SDAT patient. The probable outcome is poor. The disorder is usually not acute , but progresses steadily.
Total disability is common.
Death normally occurs within 15 years, usually from an infection or a failure of other body systems. Discuss the situation with your health care provider if you are caring for a person with this disorder and the condition deteriorates to the point where you can no longer care for the person in your home.