Support is provided during prenatal diagnosis, the child's life and after the child's passing.
Support is provided during prenatal diagnosis, the child's life and after the child's passing.
We have been closely involved with SOFT for many years. John is the medical advisor to SOFT and cofounder with parent Kris Holladay. John is a pediatric geneticist and has a vast amount of experience dealing with infants and children with trisomy 18, trisomy 13 and related rarer disorders. His medical interest and expertise in this area are complemented by a strong desire to support families as they deal with the complex issues surrounding these syndromes. Scott, a general pediatrician, has learned firsthand about these issues after having a son with trisomy 18 who lived for 2 months.