It was not easy to convince colleagues that this was the right thing to do. And in truth, we have to say to ourselves that we don't know that it's the right thing to do. We have to prove it with a proper trial. ET CDH occurs about once in every 2000 births. That means that there are several hundred in the United States each year.
Survival is interesting.
In the old days, we thought most kids with CDH survived because we only saw the kids on the good end of the spectrum. Children surving D hernia. I worry sometimes for my daughters health later in life. My mother happens to be a California representative for that support group, and I suggest all parents dealing with CDH log on to them. To the second question, regarding her lungs, that is something that's a major concern.