Some of the family pain is from previously unresolved issues from past VHL illnesses. It's a real family affair. And I would encourage you to explore these unresolved issues with an objective third party, if you think it's warranted. Actually the best thing about the surgery was that it helped me to deal a bit more with some unresolved issues from my sister's death. I don't know if the family has moved along in this area, but I think I have.
Some people are more psychologically minded than others.
More women than men, for example. And talking about feelings and dealing with sensitive topics has to be done in small dosages. We need to educate and bring people along gradually. Public awareness campaigns are very important. Often you can get the attention of your family or others in the community through a public campaign rather than a mission you undertake yourself.