It s overwhelming. Emotionally I feel at times that I m merely hanging on by a thread. I could do everything right but this disease determines it s own course. I have a profound faith in God that is tested daily. I know that there is not a day in my life, a minute in my day that is not surrounded with pain within and throughout my body.
Some people are able to manage the disease at times with medications.
Many will die despite every effort. No more pain, no more suffering, just peace. I have not been able to protect them from the unknown. With Lupus there is so much that is unknown. I try to maintain a sense of strength, hiding my own fears.