They are not very clear about how they determines if the gene therapy has worked or not. I guess if you don't die, that means it worked. Makes it difficult to walk any distance and to climb stairs. Its also painful, he says, especially at night. He's doing what can be done for symptom relief.
Terry feels that it is slowly getting better.
Still, its a bummer. Its really unfortunate that he has to go through all this. Hope all is well with you and your family. He has had the gamma knife procedure, radiation, a successful craniotomy, and gene therapy. He had two MRI exams that were free of tumor evidence.