The concern for her cleft totally disappeared. I really didn't think about her cleft much until we started going to the clinic and thinking about surgery. To me it was the least of her problems. Back in 1822 when old Pierre Robin first pieced together the symptoms of small jaw, downplace tongue, and cleft in the babies with breathing problems that related to them, I'm wondering just how many of those affected babies survived. And you can have it and not be diagnosed.
Some PRS children are fortunate enough to have their children's jaws grow out.
Meghann's unfortunately has not caught up completely although it is much better than at birth. More than likely your main concerns in the future will be cleft related rather than PRS related. On the other hand they might not be, but I would make sure that the anesthesiologist knows that your daughter was born with it. Better prepared and not needing it, then needing it and not being prepared. I don't know if this helped at all, but here it is.