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Upstate New York Chapter of the B.D.S.R.A. B.D.S.R.A . This chapter of the Batten Disease Support and Research Association serves the western two-thirds of New York State. There are about 15 families in this area with children who have Batten Disease. Kris Coon, Pres., Robin Lawlor, Sect'y., and NormaJean Angelo, Treas. V.P. Rita Garvey was not present .