Having to deal with people's inappropriate behaviour can trigger strong emotional reactions. It is common to initially feel embarrassed or overwhelmed by anger at what people say and do. Few people are experienced in dealing with people with disabilities. They often don't know how to communicate with them or with you. Often people do and say things that are at best unsympathetic and at worst cruel and unkind.
Some people overcompensate and protect children with a disability.
They don't let them get on with living and always treat them as babies. Some family members and close family friends may deny your child's disability. They may refuse to come to grips with it. You may find that some friends can't cope with your grief or your child's disability. These friends may gradually disappear.