Diamox is one medication that has been somewhat successful in the treatment of dural ectasia. However, it is important that scoliosis surgery not be done too early because new curves may develop. Exercises do not stop the worsening of these curves and bracing is less effective for people with the Marfan syndrome than in the general population. The repair usually requires three or four months of recovery. Bone-age analysis during adolescence may be helpful in determining years until growth stops.
Trampolines are dangerous for all children, due to the potential for neck injuries.
Trampolines also put children with the Marfan syndrome at risk for eye injuries and damage to the skeletal system. Living with the Marfan Syndrome to Maturity Reed Pyeritz, M.D., Ph.D. Conference attendees had a chance to speak with the experts in small-group breakout sessions and individually. People with the Marfan syndrome at or beyond middle age should focus on optimizing their quality of life. Learn ways to take control. Appreciate that Marfan syndrome gives people perspective on lesser problems.