In the acute phase there is marked irritability. Although most affected children are under the age of 2 at onset, the condition can begin at any time during childhood. Behavioural problems are common when the condition is in relapse, and learning disability is a frequent sequel irrespective of whether or not the condition is treated promptly or responds promptly to inaugural treatment.
Some children are also permanently clumsy.
The Trust is a National Registered Charity No. 1060181 started in 1988. The group represents over 60 families Subscription Donations only Contact a Family is a UK charity which helps families who care for children with any disability or special need. We are a main source of information about rare disorders and are able to assist affected adults as well as children. The CaF Directory Online contains details of many medical conditions and also patient support groups.