A videotape entitled, Hydrocephalus-A Neglected Disease, is available for rental or sale. The Hydrocephalus Association was founded in 1983, incorporated as a nonprofit in 1986, is governed by a Board of Directors and employs, an Executive Director, Assistant Director, Director of Development and a Program Director part time. Medical Professionals serve in an advisory capacity. The Hydrocephalus Association is funded through a combination of individual contributions, membership dues, grants from private business and foundations and an annual fund drive. Regional educational meetings in the greater San Francisco Bay Area including Palo Alto, Fremont, Rohnert Park, Fresno, and San Francisco.
Social gatherings provide families an opportunity to share information and experiences.
Networking with other support groups and organizations nationwide. Two day bi-annual National Conferences on Hydrocephalus for Families and Professionals featuring the nation's top neurosurgical specialists. A 36 page booklet detailing all the aspects of hydrocephalus from diagnosis and treatment to complications and follow-up care. 25,000 copies have been distributed in six years. A Spanish edition will be available Summer, 1994.