Now the Val Hennessy Trust is a fully-registered charity with an office in Queen Victoria Road in Coventry, and is hoping to appoint a specialist nurse to help people get over the condition. A bid has been submitted to the lottery fund to pay for a nurse that could be the first referral point in the region for people recovering from the condition, or their relatives. If this proves successful, the trust hopes to be able to cover the whole country, and provide uniform information to people wanting help. The trust already offers counselling to local sufferers, to help them come to terms with the difficulties they have faced since the haemorrhage. The condition can affect anybody.
Some people find their movement is restricted while others can lead a normal life.
But with little information available in this country, the condition can lead to uncertainty for sufferers and their families. Even if we don t get the funding we will be looking other forms of funding to keep our services going. The trust hopes to hear if it has been successful with its bid by the end of the month.