Well, it looks like you've got lupus. There isn't much we can do about that. Out There I'd have to call that dropping the ball. I was probably in shock for a week or two after that, and could have used a tad more bedside manner, and for me, at least, some helpful information such as handouts about the disease itself, treatment options and availability of support systems. More drastic treatments includes medications formerly reserved for malaria, systemic prednisone, and even gold injections.
Support groups are also key.
A lot of information is available on the Internet, with newsletters and local chapters actively seeking to share information and comfort those that worry this might be the kiss of death. In its most severe and virulent form SLE can result in blindness, limb amputation and kidney failure. I'm not planning to stick my head in an oven any time soon. Working full time and devoting another 20 hours a week to Epinions reading, writing and rating keeps me busy, active, and with my mind firmly not dwelling on my own body aches and twinges. As a Registered Nurse I enjoy sharing information, teaching and helping others.