This very special summer camp allows children many positive experiences such as independence, the opportunity to meet others and the chance to counter the feelings of isolation that comes from living with these disfiguring conditions. Articles from this newsletter are reprinted regularly in other various publications. Through your generosity, FNMS can continue its growth and success in providing these services. Upper limb defects include underdeveloped or missing thumbs and occasional absence of the radial limb. Other limb anomalies such as limitations of elbow extension may occur.
Some internal anomalies exist including stomach or kidney reflux.
The severity of the syndrome varies. There are over 90 members with Nager Syndrome. Its inheritance pattern has not yet been determined, but is believed to be autosomal dominant, which means one parent carries this dominant gene. The severity of this syndrome varies. There are 20 affected individuals of Miller Syndrome in the world.