Most people with developmental disabilities live with their families, or within the support network of family members throughout their life time. Sibling relationships are particularly important as they are among the most enduring and meaningful ones individuals may have during their lives. Having a sibling with a developmental disability can have a profound impact on one's caregiving responsibilities, social relationships, and well-being. The research shows most siblings view their relationship with their brother or sister as positive and as an enhancement to their family. However, at times siblings experience stress related to increased caregiving responsibilities, unbalanced parental attention, and adverse community reactions.
Siblings often assist the family member with developmental disabilities in numerous ways.
Depending on the sibling's age, this may involve different levels of caregiving responsibilities ranging from assisting parents to assuming full responsibility when parents are no longer able. Support to siblings must recognize individual differences in levels and intensity of involvement with their brother or sister, in cultural and familial values, and in personal resources. This support should strengthen the relationship between siblings, while enhancing their well-being. Their willingness and capacity to expand their roles must be considered and supported by family members and service providers. It is critical that siblings are provided the knowledge, information, and guidance needed to participate with his or her sibling in decision making and long-range planning.