However, once a diagnosis has been made you can begin to come to terms with the altered circumstances, accept the diagnosis and think about how you will live with the disease. An important part of learning to cope with chronic diseases such as lupus is to try and learn and understand what you can about the condition. A considerable number of studies have been carried out to investigate the effects of patient education.
Some people like to be able to speak to other people with lupus.
Other sources of information include the Lupus UK and ARC leaflets and books. Some care should also be taken with the information found in older books. A lot of progress has been made in our understanding of lupus over recent years, some older books paint a pretty horrific picture of lupus which is no longer true. Of course, you should be able to go to your Doctor or Nurse with any questions you have. Also, if there is any information you have found elsewhere that you are unsure of, take it to your Doctor or Nurse to check.