Check Your Domain Name . The Group wants to help those people who have been diagnosed with this Syndrome in the UK to get more information on it. They want to show people affected by this Syndrome in the UK how to get help from the right places and to increase awareness in the UK medical profession. A small self help group providing information and support to parents and to AIS adults.
Website includes medical and support information.
A charity providing basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families and other interested parties. The principal aim of the group is to provide contact and support to families affected by Batten disease. Families are kept informed about recent developments and research at a national and world-wide level. Birth Defects Foundation A funding medical reserach into all kinds of inborn handicap or disorder.