Lupus can be a very individual experience and the best way to cope is to understand how lupus affects you, and to try and learn how to deal with these new difficulties. Many studies have shown that good patient education can help you cope with chronic disease and improve your general well-being, it can sometimes even decrease pain. Try to understand why the various laboratory tests are done and what they mean, ask questions about your drugs and try to learn how to recognise changes in your symptoms. In fact don't ever be afraid to ask your Doctor or Nurse questions.
Some people find it helpful to talk or just be with other lupus patients.
Be particularly careful if you're taking corticosteroids as they can often cause an increase in appetite. Try and avoid picking up germs by avoiding crowded rooms or close contact with infected family or friends. Lupus patients can be more susceptible to catching germs especially if they're taking immunosuppressive drugs. Learn to plan your day to include rest periods and also some light exercise. Prioritise your jobs and divide them into small steps.