Barth Syndrome Family Network - Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources. Barth Syndrome Foundation - Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder. An article about Barth Syndrome with a description, clinical manifestations, etiology, epidemiology, diagnosis, prognosis and management.
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