I encourage all of you to check out Chapter News for more info. This is YOUR chapter. As we getting geared up to full speed, we have had many inquiries into what Marfan's is, who to get in contact with for help, support or just to talk. I am now averaging 4 phone calls or e-mails a month for information. Oregon Chapter National Marfan Foundation . . .
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We will strive to keep this site up to date with the latest in local Oregon chapter news, as well as provide links to the latest information from around the world. Please check back often as we will try to update it frequently. The president, vice-president and interum treasurer were able to make it to the national convention in Seattle Washington, and along with about 15 other Oregon members. Along with a good time, we were able get a lot of valueable info and some very exciting news. Scroll down for the new info.