I hope others have learned from me and to anyone out there who is suffering and not getting proper answers, my hands and my heart reach out to you as I feel your pain. I know the humiliation and intimidation it brings. I know how it feels to feel like nobody believes you and that you are on the inside of a bubble looking out while nothing stops. I know the frustration. I can only tell you to hang in there and never give up.
Someone is out there who can help.
I thank you all for taking a walk with me on my journey for a diagnosis. Not many Sjogren's patients have the CNS involvement as the primary complaint but some do as I am living proof. Anyone can email me anytime you need to talk and need a friend. Thanks for reading and again, email if you need to. I will listen and I care.