The Association is a National Registered Charity No. 803217 constituted in May 1989 and formerly known as The HGG Society. Due to the increasing number of conditions identified as coming under the umbrella of primary immunodeficiencies, it is not possible to include them all in this entry. They can be found listed individually in the index which is updated regularly. Where there is an alternative support group for individual conditions, this is indicated. Also substantial mailing list of professional workers and other interested parties.
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Free of charge in agreed circumstances. Donations welcomed Contact a Family is a UK charity which helps families who care for children with any disability or special need. We are a main source of information about rare disorders and are able to assist affected adults as well as children. The CaF Directory Online contains details of many medical conditions and also patient support groups. The information in it is also provided as part of the NHS Direct Online service.