Just ask around at the next family gathering and you will be surprised who routinely suffers from these symptoms. Which brings us to testing. The UTMB facility in Galveston, Texas, offers a great testing program. I personally have spent a weekend at UTMB being tested and it is worth the trip to put your suspicions to rest. One give away to porphyria is that during an attack the urine will turn dark.
Testing begins there.
They collect every drop of your urine for 24 hours so you must spend at least one night. The urine must not be subjected to light, so you have to keep the bathroom light off until you are sure they have collected the specimen. This was the strangest little vacation my sister and I have ever shared. A low carbohydrate diet can cause an attack. UTMB has an excellent nutritionist at the testing facility and she will work with you to try to sort out how your diet may be affecting you.