A list of physicians and NF clinics is part of this web site. Material contained on this website may be downloaded, displayed, printed or reformatted one time for your personal and noncommercial use only. The National Neurofibromatosis Foundation does not endorse, recommend or guarantee the accuracy, adequacy or reliability of the information and services of the other sources to which you find links throughout this website. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. NF2 is characterized by multiple tumors on the cranial and spinal nerves, and by other lesions of the brain and spinal cord.
Tumors affecting both of the auditory nerves are the hallmark.
Hearing loss beginning in the teens or early twenties is generally the first symptom.