Brief, clear information is provided. UK branch has an area within this Web site. Leaflets about symptoms and drug therapy. A UK charity which raises funds for medical research into lung disease. Leaflets can be ordered and a support group is available.
Website contains no online information.
Detailed information about duchenne, becker and many other neuromuscular conditions. Large text version of site available. Emphasis on cholesterol and lipids. A UK charity. Brief factual information about diagnosis and treatment.