Delayed neurological complications Problems in neurological function need to be monitored both in the new-born period and over the years. The Arnold-Chiari malformation may cause upper extremity paralysis loss of voice, swallowing, breathing control, and death. Recurrent tethering of the spinal cord at the level previously repaired at birth can occur, resulting in worse paralysis. Psychosocial adaption Potential social problems for the patient and family are numerous. They may revolve around chronic illness, hospitalizations and difficulty planning for the future.
Support groups are available in many areas.
Your doctor and clinical nurses can provide such information.