Cystinosis Research Network - Their mission is to raise funds aimed at research to treat and cure cystinosis, and to raise awareness within the cystinosis community. Member driven organization. This site is designed to share research information as well as provide a location where others who are either suffering from this condition or attempting to treat it can share information and experiences. Meniere's Disease - Site providing information, treatment options, support, and links for Meniere's Disease. Inc. - An organization helping people with rare disorders and disabilities.
Site includes both a rare disease and orphan drug database.
National PKU News - Site includes news and information about phenylketonuria, a rare inherited metabolic disease. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups. Office of Rare Diseases - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. The content of BioMedGate's web directory is based on the Open Directory and is enhanced using BioMedGate's own technology.