If you are currently on the NHF mailing list, you should already be receiving the Community Alert. Community Alert is NHF's community newsletter for the entire bleeding disorders community. It regularly features advocacy updates and medical news. Special features have included information on blood safety, gene therapy, women with bleeding disorders, issues relating to teens, and many other topics relevant to the bleeding disorders community. With a circulation of 23,000, Community Alert is distributed free of charge.
Single copies are free of charge.
Be sure to include your name, mailing address, and phone number in any e-mail requests . This publication is intended to raise awareness about von Willebrand disease and is ideal for distributing at health fairs or displaying in medical offices. This booklet is an indispensable resource for every woman or girl with von Willebrand disease or a factor deficiency. Symptoms, diagnosis, and treatment options are described in depth, and there are discussions of the safety of blood products and of obstetric and gynecologic concerns. The final section provides practical advice for living with a bleeding disorder.