They are also having to deal with how they are going to cope with children once they get into school, once they get into swim and gym programs. Everyone deals with this differently. Some prefer to hide it, some are more open about it. One approach is to encourage parents to get their children into programs like dancing or gymnastics where the child learns to handle people perhaps looking or questioning - especially when they have a garment on. There can be great difficulty for parents to schedule in pumps or message - it depends on how many other children there are and how busy they are.
Some children deal with their condition better than others.
In adolescence this is probably multiplied. They are having to deal with other things happening to their body and not looking that great. They feel uncomfortable with a large heavy limb, then you add compression or other treatment demands. It is probably more difficult for children who develop lymphedema later than those who start out with it. Using an extremity pump can cut into an adolescent's social life.