How one family is dealing with this rare auto-immune disease that affects the muscles and skin. Juvenile Dermatomyositis Registry - The registry is part of a study to determine prevalence, incidence, and circumstances surrounding the onset of JDMS, and to facilitate JDMS research by physicians and scientists. MDA Dermatomyositis page - Background and references, provided by the Muscular Dystrophy Association. Includes links, forums, chat, and his story. Sharon's Myositis Homepage - Dedicated to all who suffer from Myositis.
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