Her delays, though mild compared to most that we read of, were enough to qualify her for speech and other programs from early on. Now she is in First Grade, in a regular school. She still has speech issues. My biggest regret in that department is that we didn't teach her sign language as early as we were recommended to . . . She still has fine motor delays that make it hard for her to button herself or tie her shoes or cut with scissors.
Writing is a struggle.
We are thrilled with all she can do, as the outlook was poor very early on. I wish I had found this format when we were suffering alone. I would like to hear from other parents of older children with Infantile Spasms regarding issues that come up as the kids get into school age. As we have been all along, I would like to know what to expect in the future. Also how to handle the stuggle of a child that knows they are different.