There are undoubtedly still more genes to be found in this rapidly changing field. The Group is a National Registered Charity No. 244959. It was started in 1964 by parents and doctors in order to support research into the cause of Friedreich's Ataxia. The Group now incorporates those with cerebellar and other ataxias and their families. The Group represents around 1,500 children and adults affected by Friedreich's Ataxia and approximately 800 people affected by cerebellar and other ataxias.
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Contact a Family is a UK charity which helps families who care for children with any disability or special need. We are a main source of information about rare disorders and are able to assist affected adults as well as children. The CaF Directory Online contains details of many medical conditions and also patient support groups. The information in it is also provided as part of the NHS Direct Online service. Although great care has been taken in the compilation and preparation of this work to ensure accuracy, Contact a Family cannot accept responsibility for any errors or omissions.