I will pray for you, and I hope that you will keep in touch. I always remember that I have every parent's wish, I have the illness, I am lucky to have 3 healthy children. Give my best to Cindy. Our son David was diag. His pressures have not gone up, however his pressures have not gone down either.
Next step is transplant.
The problem for us lies in that where we live does not have a program for his age. We also have a 10 YR old daugther that will have to change schools and start over. At the present time the hospital wants us out there by the holidays. My heart goes out to you, I met you and your wife in San Antonio at the support gp mtg. I will pray for you, and I hope that you will keep in touch.