In 1988, a urologist diagnosed me as having Fong Syndrome. Later the condition was diagnosed as Nail Patella Syndrome, which is an extremely rare disease. Only 200 people have been diagnosed with NPS in medical history. NPS is incurable, not well understood, progressive and terminal. Even though it is poorly understood, it is a genetic condition and affects major organs including the kidney and liver, disrupts the immune system in ways that are difficult to understand, and causes the bones to be deformed, become brittle and break easy.
Most patients lose their teeth when they are young.
I had lost all mine before I was 21. I did some research on NPS and learned that the genetic disorder affects the joints, limits mobility, causes chronic pain, and muscle cramps and spasms. This was why the muscles in my back and legs became very constricted and the pain was very intense. I got tired very easy and could only stand a few minutes without experiencing unbearable pain. Spells of nausea, fever, chills and night sweats were common for me.