Now I'm starting physical therapy as my neurologist found that due to Sjogren's, the gel like substance between my vertebrates is being destroyed. Physical therapy will help slow that down. I have fought for everything and had to follow up myself on referrals, etc. It is full of great information and literature that you can send for. It will only help them understand the disease much better and what you are feeling, and give them tips on dealing with it.
Mood swings are very very hard for loved ones to deal with.
I am not yet on any meds for hormone level. I am trying to stay off as much medication as I can. I am very lucky as I still work and have a crazy schedule. I have to be in front of people every day putting on my happy smile. And exercise is a Catch-22.