These kids need this treatment. I bet that not one of the persons who made this decision has a child with a neurological disorder. Not one knows what it is like to be in the emergency room all the time for seizures and chronic pneumonia because the food they last ate comes up with their seizure and falls back in their lungs. Not one knows what it is like to hear their child calmly ask why he can't run like the rest of the kids and then want to hug you and tell you they love you anyway. I pray to God they never have to experience it, because it is a blessing and a heartache at the same time.
Nobody chooses it, it just happens.
In the long run, most of the time, it would probably cost them less money and would be more helpful to the patient. Surgery and drugs is not always the answer. He almost drowned last April at age 2. He is doing much better because of the therapy. His awareness is amazing.