Unfortunately, the gravity drip from the home health care does not get enough fluids in Rebecca. Due to this, Rebecca has a direct admit to the hospital for episodes. CVS has been a very difficult illness to deal with. It is hard to diagnose, health care professionals do not understand it, and I often felt that the nurses and doctors thought that I was a crazy mom worried about the flu. In many ways we have been lucky, it only took until Rebecca was 5 for us to receive a diagnosis.
Many families go without any answers for many years.
Rebecca, like most children with CVS, does not like to talk about her episodes. She had a very difficult fall in 1997. At this point her episodes were 4 months apart. Suddenly in August, Rebecca began having episodes more often. Rebecca was diagnosed with depression and ADHD in the spring of 1997.