They have also noted similarities to Gulf War symdrome. Widespread ignorance amongst physicians is also a problem, with a tendence to down-play symptoms that can't be quantified or measured in lab tests. Some writers on the condition suggest the biblical sufferer Job's symptoms sound a lot like the condition. In 1990 the American College of Rheumatology came out with the trigger point criteria. There are no proven curative treatments.
Some physicians suggest vigorous exercise.
This ignores the fact that many sufferers where if anything fitness oriented before onset. That is most people have to live with the condition long term. I would also suggest that a useful rule of thumb is to trust your instincts about what is or is not advisable for your particular case, taking health care advice into account. A Swedish researcher followed a large patient group for a number of years. Local anaesthetic didn't work for me, but does help some people.