There have been good providers, but many of them have left the agencies because of low pay and little respect. Staffs that have come into our home seldom have any training or knowledge of children with special needs. They are trained in first aid, CPR and how to complete the paper work to get paid. Again no one was there to call anyone to accountability. The agencies or individual provider just disappear and go onto other clients.
Nothing is done about their behavior.
Medicaid has done reviews of our IO Waiver, but nothing has changed. They know that what is happening in our home is not right but have no means to correct it. We have worked with multiple agencies to receive OT, Speech, and Behavior Management, but these have only been fragmented services. No one wants to step up and say we will make this work for this family. Since 1994 Jim has been confined to a hospital bed.