Join a Support Group Work at being as healthy as possible. Try complimentary therapies. Make your own treatment decisions. Rethink your limitations. Maintain a sense of humor.
Some people are very clear that they DON'T want to know.
But most are hungry for information. If you've read this far, chances are that you're in the latter group. A chronic medical condition can cause tremendous anxiety, the feeling that you've lost control over your life. Information about your condition helps allays anxiety and begins the process of regaining life control. Your family doctor can probably point you to some information about your condition.