Until adjustment begins, parents sometimes feel utterly helpless. Physicians whom they have never met are making life or death decisions for their child. Even if parents are comfortable in a hospital environment, feelings of helplessness may develop because there is simply not enough time in the day to care for a very sick child, deal with their own emotions, begin to educate themselves about the disease, notify friends and family, make job decisions, and restructure the family to deal with the crisis. Parents also experience different levels of anxiety, including fear and panic. Many parents have trouble sleeping and feel overwhelmed by fears of what the future holds.
Many parents state that helplessness begins to disappear when a sense of reality returns.
They begin to make decisions, study their options, learn about the disease, and grow comfortable with the hospital and staff. However, feelings of fear, panic, and anxiety periodically erupt for many parents at varying times throughout their child's treatment. It's not a nice way to have to live. That's a scary question. One of my biggest fears is the uncertainty of the future.