In the hands of a competent chiropracter, regular manipulations may help with gait, balance, and may have a positive impact on scoliosis. Therapists with pediatric experience, especially those with a thorough knowledge of sensory processing dysfunction are recommended. Other programs provide financial help to families for some items not covered by insurance. Check your state for available programs, criteria, and contacts. It is also important to recognize that there are many advocacy groups to help guide and provide a voice, when families feel helpless in the process.
Most programs also provide families with a notice of their rights and ways to contest decisions.
The information included here is intended for educational purposes only and not as medical advice. Any changes in treatment plans should be done with the advice of your health care provider. Given the peculiarities of familial dysautonomia, it is essential that medical care be managed by a physician knowledgeable in familial dysautonomia.