When I was growing up there were no web sites to turn to, and most doctors were clueless on the subject. It was very difficult being in the dark. I wasn't sure of my future. Eventually I learned a little more about the possibilities of reconstructive surgery. To make a long story short, life was very complicated and emotionally painful as a child.
People can be cruel.
But I must say, I have grown through the years and have accepted who I am. We are all different from each other. I would be happy to share my experiences as an adult with moebius. In a nut shell. Life goes on, and mine is wonderful.