Some of these kids have been taken to doctors and psychiatrists and you begin to see a pattern. And low and behold, they tell you that the sleep center of the brain is located precariously near the cranial nerves that have not formed correctly. And it all starts to make sense. The doctors test medications slowly, one after another, each with minimal success. Benedryl, clonodine, klonopin, and the big guns- respirdal.
None are perfect and there are side effects such as weight gain and irritability.
The next Moebius Newsletter will contain a survey about moebius and sleep. Please take the time to complete it and mail it to me. With some actual statistics behind us we can make the medical community take notice and help us fine a cure for this one symptom.