Sometimes after diagnosis of RP these may be limited or at least parents may think they will be. Consequently they may feel some loss of status among their own contemporaries. Many find it hard to be singled out. The disability in the child brings out all sorts of emotions in those who surround the family. In many cases the emphasis is a change in acquaintances.
Most parents also feel a great sense of isolation, especially at first.
This is a frightening feeling and is one way in which the BRPS can, by its sheer existence, help dispel the fear and isolation of the family. Back to Top Fear, Frustration, Anger, Apathy Three more emotions many face are fear, frustration and anger. These are closely related and may follow in quick succession. Fear for the future of the child and fear that he or she will not be able to handle things is very real. Sometimes it is directed against the professionals or just anyone who gets in the way.