The frequency that retinoblastoma occurs has increased over the past 60 years. It now occurs in 1 out of every 15,000 live biths. Two hundred fifty to 350 new cases are diagnosed each year in the US with over 90 percent of cases presenting before the age of 5 years. The treatment of retinoblastoma depends upon whether or not one or both eyes are involved and the extent of tumor. With earlier detection and improved treatment modalities, the prognosis for vision and life in patients with retinoblastoma has improved significantly in the last twenty years.
Most pediatricians routinely screen children for eye abnormalities during well-baby examinations.
However, it is important for parents to evaluate their children between these screenings for potentially serious eye disease. The diagnosis of retinoblastoma is usually made after signs of the disease are noted by the parents or pediatricians. Moreover, although all babies are screened at birth for eye problems, retinoblastoma is not necessarily present at this time. Finally, these tests do not eliminate the need for well-baby visits with your primary care provider or pediatrician. If the ophthalmologist detects abnormalities, an examination under anesthesia may be required to further evaluate your child.