I'm not sure what you disagreed with. I said that PRS is diagnosed by observing a horseshoe-shaped cleft, a small lower jaw and a downward placed tongue. There are exceptions to each of the markers - meaning the palate MAY not be cleft, though it usually is. The jaw may be various degrees of small. I sort of read my answer as being essentially the same as yours - though yours shows a lot more research.
Many kids have undiagnosed conditions, and many others have misdiagnosed conditions.
Just because the mom doesn't know does not mean it isn't there. Just to answer your question why I didn't agree. Sorry, I should have said. In other words the difficulties in breathing that are associated with these sequence of symptoms happened with enough infants and still does to call it a The Pierre Robin Syndrome. I'm just trying to defend my answer to Lori because I feel confident I gave her correct information.