Dealing with the medical professionals can be frustrating due to limited appointment time, infrequent outpatient appointments, lack of information and not always having access to a consultant. If possible request an appointment with the consultant without your child being present so that you can have a discussion without being distracted. If your child is under the care of the local paediatrician do ask if there are any other options available to you. This could include a referral to a specialist centre or specialist paediatrician but you may have to travel long distances to other centres. If you feel strongly that all avenues to getting a diagnosis have not been explored, do discuss this with your child's paediatrician.
Parents have no legal right to a second opinion but they can request one.
It is not, however, guaranteed to provide you with further information nor a firm diagnosis. This may not alter how things are, but it may give a perspective to health professionals and others who monitor the child. Parents may also need to record their own thoughts and feelings. A diagnosis can give a good indication of how a child may or may not develop. Without this information parents fear that it will be difficult to obtain suitable services.