Members of NF, Inc. participate in research around the country. One member has shared her experiences. It starts first with an idea that a researcher has. Clinical research studies are the best means of finding out new treatments. Although a lot of progress has been made in NF1 and NF2 research, much more needs to be discovered.
Patients being a part of the study have access to drugs and new treatments.
The search for new treatment starts as basic research in labs and using animals in labs. We can participate in many ways. We can provide human organs, tissue cells, body fluids, and oral or written material. All of the above should be part of the informed consent document that is required to be signed by anyone participating in research using human subjects.