The initial contact between investigators and potential study participants will occur through the local sites, to preserve patient confidentiality. Eligible participants will be told by the local sites about specific studies, or that an investigator would like to contact them. The names of consenting participants will then be given to the investigator for follow-up contact. The CGN core database promises to be an exciting resource for multi-center research studies in the future. Over 100 professionals attended.
Patients are more likely to adhere to screening program after genetic counseling.