Try to find several members who are willing to have the DNA test at least. Another possible tactic is to obtain DNA test kits from a lab and mail them to family members or bring the kits to a family reunion, wedding, holiday gathering, and distribute them at that time and explain the importance of the test. Finally, if the family members have children, urge them to have the DNA testing if not for themselves, to do it for the sake of their children. People often will be tested when their children's health is at stake. My pediatrician says I don't need to worry about my children between the ages of 2 years and 18 years old having iron overload.
Pediatric hemochromatosis is very real and more and more cases are being identified every day.
All children should have the DNA test ideally at birth to ascertain their possible risk for HH and also have the TS and serum ferritin tests after the age of two years to see if they are clinically iron overloaded at that current time. Children with iron overload often have cardiac symptoms as well as liver disease. They have high saturations and fairly normal serum ferritin readings. More research is needed to establish standardized protocols for pediatric hemochromatosis, but it is imperative that you know your child's genetic risks for HH to make sure that your child can have a normal life expectancy through preventive measures. Yes, patients with the double gene may develop iron overload at some later time in their lives, therefore, they should be annually monitored by their physician for transferrin saturation and serum ferritin.