It is the brainchild of JoAnne Anton, Connecticut NTSA representative, and Keith Hall. Both of whose lives have been affected in some way by this genetic disorder. Although still wet under the ears, CT TSA, that began as only an idea back in August 1996, has been progressively growing with an increase in the number of participants with each new group meeting. Meetings are held every three months at various locations within the state of Connecticut. Recent meetings have been conducted at the Children's Medical Center in Hartford, Connecticut.
Meetings last approximately two-hour and are usually held in the evenings.
A variety of speakers some of whom are doctors, genetic counselors, or people involved in research studies have given brief presentations on the topic of TS and its effect on individuals as well as entire families. Details on the next meeting are talked about in the CT TSA newsletter, distributed to all members of CT TSA after each meeting, and published on CT TSA's web site. This is an extra special meeting that will take place July 19th, 1997. Readers are warned not to take any action with regard to medical treatment or otherwise based on the information on this web site without first consulting a physician.