I'd really appreciate it. I have a 7 year old daughter with D.S. Ilive in La Crosse Wis and am also President of a local support group here. If anyone there is moving to our area I wecome you to get in touch with our group. Our son is 4 and was just diagnosed. Any personal experiences would be helpful.
Recipes also welcome.
I was browsing the DSAM website and came across your Bulletin Board. This is in response to the request from Lisa for info on Celiac. I haven't had to deal with it personally but know others in our local DS group who have. Anyway, here's a link to a an article on nutrition which contains a link to info on Celiac and other disorders. The author is a nutritionist from Portland who is the editor of Disability Solutions magazine, a great resource on lots of issues related to DS, if you're not aware of it.