Many of these characterizations have not been accurate and have presented a picture of CFS sufferers that is far from true. First, and perhaps most importantly, CFS is a scientifically recognized disease syndrome. It is a disease entity that manifests itself across the spectrum of symptoms, ranging from people being chronically tired to being wheelchair bound. It is a serious and legitimate diagnosis. It is not, as some have characterized it, some sort of psychological problem.
Recovery is slow and uncertain for many clients.
Research on CFS presents special challenges because the causes and mechanisms of the multi-system disease are not yet understood. To address these issues, scientists need to learn more about very complicated processes, such as immune dysfunction, reactivation of latent viruses and molecular interactions between the brain and the immune system. To develop successful therapies, researchers need to identify specific abnormalities associated with the syndrome that are correctible. The Centers for Disease Control and Prevention have a sigficant effort underway to study the epidemiology of CFS, particularly its incidence and prevalence. In recognition of the gravity of the effects of CFS, we will be establishing a new Coordinating Committee through the issuance of a formal secretarial charter.