They painted a picture of a child living with cancer but refusing to let it define who she was. Treating a child with a brain tumor is different from treating an adult, even with the same disease. The size and age of the patient limits the amount of any drug you can give in a clinical trial. They may not even be allowed to give certain drugs due to future growth issues. If the initial doses of the drug are tolerated by the children at first, they can only be increased by small amounts for the next patient.
Progress comes by small degrees.
As a parent, it is hard enough to make treatment decisions for your child and then be able to live with those decisions. It is unfair to ask parents to have to make these life and death decisions based on whether they can cover the expenses of the trials. Clinical trials are a fundamental part of continued progress in fighting childhood cancer. Are you gonna die. The car got very quiet.