This can be discussed with your physician and it depends upon the gene type which you have. In patients who do not respond to medication, the insertion of a pacemaker or the automatic defibrillator, or the surgical cutting of certain nerves in the neck, called cervico-thoracic sympathectomy, can be utilized. All patients with symptoms should be treated, and because it is not possible to predict which patients are vulnerable to the syncope and sudden death, and sudden death often occurs with the first episode, asymptomatic patients, especially children, should also be treated. Since the symptoms are often precipitated by physical exertion or emotional upset, it is appropriate to restrict physical activity in symptomatic individuals and reasonable even in those without symptoms. For most individuals, this only requires refraining from competitive and vigorous sports.
Recreational activities are often allowable .
In individuals with continued symptoms, further restriction of activity may be necessary. Although labor and delivery and surgical procedures are stressful and physically exacting events, it is uncommon for Long QT Syndrome patients to experience symptoms during these times. It is important to be sure that the blood potassium is maintained. In addition to the SADS office, Scientific Committee members can assist with care, questions and referrals. We encourage those with LQTS to enroll in the Long QT Syndrome Registry for research purposes.