But her daughter Sherry opted out. She respected her mother's choice to get a double mastectomy and declared that if she were convinced that she had the problematic gene, she would do the same. And once I tell him, he's obliged to put it in my record. And then, if I ever leave my government job, I have the potential of losing both insurance and employment. So I'd rather not have the information.
Privacy operates in concentric circles.
There is privacy from society, privacy from friends, privacy from the family, and finally, privacy from one's self. Whether or not genetic information is used against people for economic reasons, some would argue that it is still wrong to force people to take genetic tests. There is something profoundly unnerving about the ability to foresee or even glimpse the future. In literature, it is generally an attribute of witches and wizards and people who sell their souls to the devil. The pharmaceutical industry is concerned about Shalala's suggestion that patients be given more of a right to control how their date are used.