A new FA Stem Cell repository for FA patients has opened at the University of Indiana School of Medicine. The FA Family Education and Support network was launched by the Frohnmayers with 19 other FA families. The network grows weekly. It now serves thousands of families, researchers and treating professionals worldwide. The Fund convenes an annual FA Family meeting and camp.
Parents hear directly from experts in Fanconi research and treatment.
Meanwhile, children enjoy their peers in a a week-long recreation program staffed by trained volunteers. Parents and clinicians receive research updates. Families may find expert care and donate cell lines for research. Parents locate others in their area for support or to develop joint fundraising projects.