You may have to try to crawl. You may not function for days because the bones in yur spine lock, or the pain in your feet, hips and knees make you cry. Your muscles and hands may ache. Doctors should inform you of available medicines for various stages of the disease. If you are used to attending to personal grooming on a particular day of the week, forget it.
Schedules go out the window.
You can no longer make plans. Some days your hands won't work. Sometimes you will not be able to bend far enough. Circular shavers for ladies are very safe. There are long-handled sponges for in between your toes.