I'm grateful that I never experienced any threatening situations during that time. In 1995 I was hospitalized for my disease. I had a steroid IV with a self-service morphine pump. Suddenly, I experienced a Grand Mal seizure at the very moment my physician was examining me. I have to treat your back now too.
Most disabled people know that syndrome all to well.
Also, I was in an auto accident in October. I had a headache that just wouldn't quit. I finally decided to drive the four-hour trip to Minneapolis to see a neurologist at the University of Minnesota. I was hoping he could shed some light on the headache. I was so ashamed and insulted.