The fact that I still ended up married to a man with HD, without knowing the risk before hand, is rather ironic. I don't hate what I am doing when I see what it has done to my kids. But that's just me. There are also benefits and of knowing I am doing more than most people would do in a similar situation. There are people who really are made for this role and you are right, a special love can grow that is unique when one person is caregiving and the other ill.
Nothing has to be decided today.
I don't think anybody would want someone to stay with them for the sake of feeling bad if they didn't. Even at-risk there are many good years. There are no blanket right or wrong answers. I wish anyone making these tough choices all the best. Return to original Article Click HERE to return to the main Neurology WebForum Homepage.