From your post I gather that one of the main problems you are having is that you are in pain. This is very common and many with the spondy diseases have had to go to their Doctors and tell them they are in pain. Your Doctor seems to be responsive and it is good to find one you can work with. Many spondy patients are given anti-depressants because they help with fibrocytis pain as well as depression. If for some reason the anti-depressants do not work, then there are still a lot of alternatives available and you may prefer one of these.
Many people find it comforting to know that others are having the same problems.
In order to join, click on the link below. You have taken some pretty serious steps and I know it is hard. From your post I gather that one of the main problems you are having is that you are in pain. This is very common and many with the spondy diseases have had to go to their Doctors and tell them they are in pain. Your Doctor seems to be responsive and it is good to find one you can work with.