Home care programme Welfare support. Approximately 250 EB children attend GOS, most of them live in the United Kingdom, but a growing number live abroad. Sadly, nutritional intervention in lethal junctional EB is less successful in improving growth and healing. In the more severe types of EB, it is impossible to nourish the child adequately without professional advice.
Nutritional deficiencies develop as a result of the complications of the disease.
Consequently growth, healing and general well-being are also jeopardised. Thorough nutritional assessment is fundamental to the appropriate support of each child. The aim should be to prevent problems. Regular follow-up means that the need for changes in management can often be predicted. Experience in the progression of the condition allows for these changes to take place early and in time for them to be of best effect.