A brief summary article on the complexities of Wolfram Syndrome. If this discovery is recent, it is understandably accompanied with a flood of fears and anxiety that can only be appreciated by those who have undergone a similar experience. We offer this very foundation of experience as a means of helping you and your family members. For many of us, the knowledge that WS is a rare disease, was quite an understatement. Joining the Worldwide Society of Wolfram Syndrome Families If affected by WS, individually or as a family, or if you are a MD with patients who are affected with WS, or involved in WS research you are invited to join our worldwide society.
Membership is intended to be at no cost.
However, there may be expenses incurred from time to time that may be requested for reimbursement by voluntary contribution. At present this organization totally informal and is not a registered tax-deductible charitable institution. To join this small society please complete a request on the form you may access here . Your information will be kept as private as the use of the internet permits. You will receive a return e-mail with the URL address that will permit access into the other pages of this web site.