A major task parents of a chronically ill child face is the responsibility of helping their child cope with his or her illness. Here are some suggestions. It is very important that parents understand their child's illness. Being knowledgeable about the disorder allows parents to know which behaviors and symptoms are normal, and which are not. Having knowledge about their child's illness will also enable parents to thoroughly answer any questions their child may have about his or her illness.
Parents can also check their local library for information.
Parents should not be afraid to ask their child's physician and the other medical staff questions about the illness and treatment plan. Many parents are afraid to say they don't understand something the physician is telling them. Parents should not let this happen to them. Parents should ask questions until they understand. It is also common for parents to have questions they then forget to ask the physician.