A search for modifying factors which prevent FMR1 methylation and correct FMRP expression in cells from patients with Fragile X syndrome. This is your place. Use it for questions, comments and items of interest to fragile-x families. A partnership between the The Fragile X Research Foundation of Canada and the Canadian Institutes of Health Research. Fragile X individuals can be helped through appropriate education.
Medication can help maximize their potential.
However most Fragile X individuals remain significantly affected throughout their lives. The need for research aimed at treatment is urgent, especially in an era when resources for education and social support are being cut. Fragile X research is woefully underfunded. The Fragile X Research Foundation of Canada will directly fund promising research projects aimed at treatment. It will promote awareness of Fragile X. It will publish a bi-annual newsletter and information materials.