The Sunday Meditation was very inspiring and thought-provoking. VHL is a serious disease, but we must remember to count our blessings and keep the humor in our lives. A large part of Sunday's session was devoted to DNA, whether to test or not. Here again, we found that there is no one right answer. The answer each individual chooses must be right for them.
Parting really is a sweet sorrow.
I know I didn't want to leave. This meeting was the first time many VHL patients had laid their eyes on another person with this disorder. The camaraderie, sharing of stories and friendships, will never be forgotten. The Town of Burlington declared it VHL Awareness Week. The Lahey Hitchcock Clinic sent out press releases.