Most parents await the birth of their child with anticipation.
The Edges were referred to Children's Hospital and toured the NICU, knowing that was where their newborn would immediately be rushed. No one knew how severe the birth defect would be until Amber was born - five months later. They performed a C-section because of fetal distress. But, even after preparation, the sight of the birth defect was not what he expected. According to Roger Cohen, MD, a pediatric general and thoracic surgeon at Children's Hospital and associate professor of Surgery at the Medical College of Wisconsin, Amber's rare defect was very large and quite complex.