The 2001 meeting is planned for Copenhagen in Denmark. The IHA partnership with HD scientists around the world is fostered by arranging our biennial meetings concurrently with those of the Research Group on Huntington's Disease of the World Federation of Neurology. The research group brings together physicians and scientists from countries around the world. In 1983, genetic markers closely linked to the HD gene were identified. In March 1993, the gene causing Huntington's Disease was identified on chromosome number 4.
Prenatal testing is also possible.
The decision about whether or not to take the predictive test is a deeply personal one. For some individuals this test will provide much desired information about their future. Others will choose not to undergo testing at this time, particularly as there is no effective treatment currently available. Revision of these guidelines was necessary in view of the important research breakthrough announced in March 1993 of the discovery of the HD gene on chromosome number 4, characterized by an expanded trinucleotide repeat. Facilitating the sharing of resources developed in one country for use by others, to avoid duplication of scarce human and financial resources.