To read a poem that Vicki wrote, click here . You may email Vicki by clicking here. And visit her website by clicking here . To read Hailey's whole story, and to see lots more gorgeous photos of her, click here . These are her main problems, she also has some minor problems and Behavior Disorders.
Neurofibromatosis is a genetic disorder which causes tumors on nerves throughout the body.
She does have frequent headaches and occasional dizzy spells, but her mom was told it is best not to do much with these tumors unless it becomes absolutely necessary. Sleep Apnea causes Rachel to have great difficulty breathing while she's asleep. In fact, she stops breathing several times a night. Last summer, she had laser surgery her to remove her Tonsils, Adenoids and a bit of her throat in an attempt to correct the apnea, but it continues to be a problem. She uses a machine strapped onto her face that pushes air into her nose as she sleeps.