Discussing your problems and learning new ways to manage daily activities will help you cope more effectively. Your family may be one of your best sources of support. Discuss these issues with them, and ask for their support. You might also find it helpful to talk with a health professional such as a medical social worker, psychologist, genetic counselor, or clergyman about your illness and how it affects you and your family. Ask your doctor for a referral or contact your local church or family social service agency.
Many people gain support by sharing their concerns with other people who have the disorder.
The Ehlers-Danlos National Foundation can provide you with names of both children and adults with EDS who live in your area. It is important that parents discuss their child's symptoms with teachers, neighbors, relatives, baby-sitters and friends. They need to understand that cuts and bruises are common features of the Ehlers-Danlos syndromes, and not signs of child abuse. The degree to which your child can participate in physical education classes, playground and other recreational or special activities. Medications your child must take during the day.