The Nemours Children's Clinic Spina Bifida Program follows the national Guidelines for Spina Bifida Health Care Services published in 1995 by the Spina Bifida Association of America. The care of each child is coordinated by a multidisciplinary health care team comprised of neurosurgeons, orthopedic surgeons, urologists, advanced registered nurse practitioners, physical therapists, occupational therapists, and nutritionists. Clinic visits are scheduled by Nemours' Senior Patient Services Specialist. A multidisciplinary conference is held each month for health care providers to plan the care of individual patients.
Parents are welcome to participate in their child's conference.
The program helps parents learn about the physical and psychosocial implications of spina bifida for their child. Beginning at birth, the program addresses independence issues and works to help each child reach his or her potential for independence. The Spina Bifida program works collaboratively with Jacksonville's Webb Center for Independent Living to provide opportunities for children to develop the life skills they will need to transition successfully into adult life. All information on Nemours.org , KidsHealth.org , and PedsRef.org is for educational purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor.