At present, there is no cure for galactosaemia. However, a great deal of research is being done into galactosaemia - some of it here in South Australia. The treatment of galactosaemia is currently entirely based on diet. Children with galactosaemia must not consume any foods made with milk or milk products, such as cheese or ice cream. This includes breast milk and most infant formulas - only soy based formulas, such as Prosobee, can be used.
Many foods contain milk products.
Some of them are easy to spot, such as cakes and yoghurt - but many are not. For instance, canned spaghetti, some cereals and sausage rolls contain milk and should not be eaten by children with galactosaemia. Some meat products contain large amounts of galactose, and should be avoided. In particular, all offal products such as liver and brains contain galactose. Because the treatment of galactosaemia is based on diet, and because this can be complicated sometimes, the most important person in the medical team which looks after children with galactosaemia is the dietitian.