Please think about it and if I contact you with an idea, please think about how we have longed for such a book to be written. When I approach anyone I will send them my copy of their book on Alzheimer's disease so that the carer can see the quality of such a book and how helpful it is. When you read about the events above you may feel that the Group is being positive and so it is. However Carol and I have been hearing some heartbreaking stories recently to which there seem to be no answers. It is a constant battle against ignorance, lack of facilities, complicated family relationships, money and behavioural problems to name but a few of the problems which are encountered.
Problems affecting children are particularly hard to bear.
We listen, give practical advice and explanations when we can but long to do more. It is very encouraging that there have now been two meetings dedicated to Frontotemporal dementia and Pick s disease. Professor Martin Rossor who is head of our Medical Committee spoke at the recent meeting in Philadelphia. The objectives of this meeting are outlined and I spoke to one of the organisers after the meeting and she definitely thought these objectives had been met. Elaine Duncan kindly took the PDSG poster to the meeting and said that there was a lot of interest.