My name is Jeff and I have been in a PR from 6 CHOP's for 15 months. Last week we detected the first progression. Slightly larger spleen. Questions for the group. There have not been many studies done with MCL specifically.
Opportunistic infections are common, even after the chemo is stopped.
Its effects on the bone marrow are long term and usually preclude doing an autologous stem cell transplant and other clinical trials. I had been cautioned by one of the doctors on one of the lists that I should not encourage the use of 2 CdA because it wasn't considered an aggressive tx for mantle cell lymphoma. He said I should write back in six months in October to report my status. My counts always rebounded so I could receive the next tx. I would be happy to answer any questions anyone may have and would love to have input on what others have done withe MCL when they reached remission.