However, there is an emotional burden to learning you have ALS, and it takes courage to ask the questions. It also takes time to understand and accept the answers. It is not an easy task to live with ALS, but patients and families are very resilient and resourceful and almost all seem to successfully handle the emotional impact of this illness without breaking their spirit or will. Acknowledging that the intense emotional reaction following the disclosure of the diagnosis is usually temporary. When patients and families are first informed about ALS, their reactions can vary from disbelief to shock, anger, or denial.
Patients doubt their emotional strength to return home and continue life as before.
Everything has changed and they are devastated. Although such reactions are very painful and are reminders of human vulnerability, it may be comforting to know that over time these confusing feelings usually lessen in intensity and duration. Living with the certainty of the present helps in facing the uncertainty of the future. Looking to the future with ALS is overwhelming for most. It's difficult to assimilate hope and optimism when physical changes continue.