The Alliance of Genetic Support Groups, Inc., is a nonprofit tax exempt organization founded in 1986 as a national coalition of consumers, professionals and genetic support groups to voice the common concerns of children, adults and families living with, and at risk for, genetic conditions. This organization is active in fighting Aplastic Anemia, Myelodysplastic Syndromes, and other bone marrow failure through newsletters, conferences, etc. This guide has been written for educational purposes only, it can not be used for diagnosing or treating a health problem or a disease. This site provides information about leukemia and bone marrow transplants, with links to online journals, clinical trials, cancer and medical site, and other helpful organizations. This guide contains over 100 pages of links to cancer related information.
Many sites contain information for both the public and for health professionals.
Oncolink OncoLink was founded in 1994 by University of Pennsylvania cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge. The Caitlin Raymond International Registry is a comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donors. The National Marrow Donor Program's mission is to facilitate successful transplants of hematopoietic cells from volunteer unrelated donors as life-saving therapy for patients of all racial and socioeconomic backgrounds. This database was established to increase the availability of information related to Fanconi Anemia. The site contains data that has been reported in the literature plus unpublished data for people who agree to follow certain guidelines.