National Cancer Institute CancerNet is a gateway to the most recent and accurate information from the National Cancer Institute. NCBI was established in 1988 as a national resource for molecular biology information. Among its many important services, the Center provides public databases and software tools for analyzing genome data. National Society of Genetic Counselors, Inc. The Society's mission is to promote the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy.
Position statements are available from their homepage.
ORD provides information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. The database contains textual information, pictures, and reference information. OrphaNet OrphaNet is a database providing access to information about rare diseases and orphan drugs. Promoting Safe and Effective Genetic Testing in the United States Final Report of the Task Force on Genetic Testing. The Task Force was created by the National Institutes of Health-Department of Energy Working Group on Ethical, Legal, and Social Implications of Human Genome Research.