Stay tuned for its completion. We've published the first abstract from 2001 on surgical interventions with this disease. See Medical Abstracts. The results of the 1998 survey now have a semblance of a table of contents for anyone interested in seeing what other sufferers report on various items of interest. See the Survey Results.
Many people are busy working on putting the third international survey on line.
Please ensure you fill in the existing on-line survey on quality of life. See Research Initiatives. A post office box for HIDE Inc. will be forthcoming. The organization still awaits charitable donation status from the government which should be completed by June. We can accept donations for research of course if charitable donation receipts are not important to you.