Apart from professional support to guide, educate and counsel affected families, mutual support among affected individuals is also an effective way to facilitate adjustment to the condition. To provide a comfortable and relaxing environment for the members to ask questions freely. Still at its early stage of development, meetings are held at 3 to 6 monthly intervals.
Meetings are mainly in the form of educational talks and small group discussion and sharing.
For the time being, the Registry is still playing a leading role in running this group. We hope that, with continuous encouragement and guidance, this group will becoming self-governing in the near future.