The goal of treatment is to prevent the formation of blisters and subsequent complications. The intensity of care depends upon the severity of the disease. Recommendations often include measures to avoid all skin trauma and to avoid high environmental temperatures. Severe forms may require constant medical intervention. The outcome depends on the severity of the illness.
Most forms are compatible with a reasonably comfortable lifestyle.
The recessive dystrophic form is most likely to cause severe disability. If your infant exhibits any blistering shortly after birth call your health care provider. If you have a family history of epidermolysis bullosa, further interaction with your health care provider or a genetic counselor may be appropriate. Prevention Genetic counseling is recommended for prospective parents with a family history of any form of epidermolysis bullosa. The information provided herein should not be used for diagnosis or treatment of any medical condition.