Some carers had followed this advice believing it to be the only way of trying to protect a home for their children. However, this then resulted in lack of information from the medical services as they were now separated and did not achieve protection. Patients at this stage are treated as completely normal by the law, even though they may be cashing large sums of money and then losing or hiding it and then forgetting where they put it etc. The patients themselves need assistance for their own sake as well as that of the family. Some families have lost their homes and incurred huge impacts on their way of life, caused by the mental illness of the patient and the lack of instant protection at least post confirmed diagnosis.
Patients are typically young and mobile.
Because of the lack of services, frequently the carer becomes a patient and is typically offered counselling and anti-depressants. This is unacceptable. The carer typically has children to look after as well as the patient, in some cases the children are also becoming patients due to the difficult nature of living with someone with fronto temporal dementia. If patients are to remain in the community then services should be provided. These should include sitting services within the patient s home, active flexible day care, leading to residential care.