For example, someone with autism may need a care provider with one set of skills, and someone with severe emotional disabilities or spina bifida will need another. Families must determine whether it is best for the care provider to come to their home or if the child should be taken to a different setting for care. Respite opportunities are not affordable for some families. Because of logistics, most families of children with disabilities need to plan respite ahead of time. Parents of children with disabilities must keep parenting even if they are stressed and overwhelmed.
Professionals remind families that it is a sign of strength to ask for help.
Nevertheless, many parents deal with feelings of guilt as they weigh the need for respite against their child's well being. They want assurance that the people caring for their child have the training and expertise to meet the child's needs. Parents can receive information about funding sources and what respite programs are available in their area by calling the Department of Developmental Disabilities for a caseworker to help them.