In an effort to continue to act as a national registry for researchers and families, we are providing the following links to other sites on the World Wide Web which provide you with additional information or updates on the current situation within the Batten community. We appreciate your interest and welcome your suggestions for related areas to add to our list. HealthlinkUSA - free links to 1,000's of health sites, 100's of health topics, featuring treatment, cures, diagnosis, prevention, risk factors, support groups, email lists, personal stories, etc. It is our mission to ensure that public awareness is achieved by whatever means. Through awareness come knowledge and through knowledge comes hope.
Research is based on demand and demand is created by awareness.
United Kingdom was formed in 1998 by a small group of parents of children with Batten disease in the United Kingdom. The association exists as a supportive and informative network for parents and carers of children and adults with Batten disease. The site provides resources for those who are dealing with a loss, in whatever form it may take. This forum allows patients from around the world, to post their questions regarding neurology issues, which will be answered by leading neurologists from the Cleveland Clinic within 5-7 days.