Part of the reason for this and other similar feelings is that parents might not have enough information about hemophilia treatment. Be sure to learn all you can about your son's hemophilia. Don't feel shy about asking your doctor any questions you have. Sometimes you think you've gotten past a negative feeling, and then it comes back, leaving you angry or overwhelmed all over again. You may find yourself anxious about the future.
Most people do accept that their child has hemophilia.
They also become determined to face problems one day at a time and to make the most of life. Communicating with other parents in hemophilia support groups is especially helpful when trying to deal with difficult feelings. At the end of this online guide is a list of resources that will help you contact parent support groups. Although other people may call him a hemophiliac, your baby is a person who happens to have a condition called hemophilia. The disease is not his whole identity.