Otherwise, you'll spend most of your free time pulling your hair out and worrying. These are still okay to do, but you have a lot of work to do before your bundle is born. It is, truly. Just like you want to be informed concerning your pregnancy, you have to learn more about your baby's condition and how to manage it. All you have to do is type in the name of the symptom, diagnosis, etc.
Medical links are a great place to check the latest news and information also.
Another great place to look is in message boards on the Web. Not all search engines have the message board you are looking for or have message boards at all. There are also egroups, which are generally started by other parents. The egroups can be a place to learn and teach within a community of peers. Check a few out you run across.