Special thanks go to Chris Owen and Dr. Stephen Tatter of Mass. General Hospital for being our very capable WebMasters. We applaud the members of the 800 and Online Committees who are our first contacts with the world. Our toll-free family support hotline continues to be one of our premier services. Damon Graff, Vernon Hunsberger, Fred and Altheada Johnson, Bob Lydon and Phill Terry have shared attending this account. Peggy and Don Marshall prepared and continue to maintain an excellent Resource Guide for these two Committees, to ensure that they have the best current information at hand when people call.
People call with a broad range of questions and concerns.
For most people, their call is the first time they have spoken with another person with VHL outside their own families. It was an outstanding event, filled with rich information about VHL, about living with hereditary cancers in general, and medical and scientific information about VHL in particular. Some 40 family members and 60 physicians and scientists from around the world gathered to share their experiences with this condition. Feedback from all the attendees was very enthusiastic. Reports from this meeting appeared on the internet in July, and in our September and December newsletters.