Online Support for Metabolic Disorders, Fatty Acid Disorders, Newborn Screening and Carnitine Deficiency Below are educational discussions from members of the FOD Family Support Group which may be of help in determining how to handle your children's educational needs. Please keep in mind that laws regarding rights and procedures may vary by state. Make it as detailed as you want. A Section 504 is for children who have a significant problem that affects a major life skill, in this case, school.
Problems can be illnesses, motor delays, etc.
If my son did not have a 504 for the speech and fine motor delays that is under special ed services, he would have a 504 for his unspecified FOD diagnosis and seizures. I have a written procedure for the teacher and school nurse to follow in case of hypoglycemia or seizures in school. Our son is going into kindergarten in the fall also. He was getting his speech and OT services through a district pre-k program. The elementary school is aware of his needs.