Most organizations for people with multiple sclerosis seem to focus on people who are newly diagnosed or have relatively mild symptoms. They usually leave me feeling left out, even unwanted. Information they provide on symptom management, medications that would make me feel worse and have, at best, a small chance of stabilizing my condition, drug trials you can't qualify for unless you can walk are largely useless to people with very advanced multiple sclerosis. People with MS who balance four kids, full time jobs, volunteer work and more are not inspiring.
Internet based web sites and forums and lists for the most part display the same bias.