The code of practice was developed with leading geneticists and has been ratified by the government. Monitoring The government is believed to be setting up an independent evaluation scheme to monitor insurance companies' use of genetic test results. The Human Genetics Advisory Commission has recommended a two-year moratorium on using genetic test results for all forms of insurance while the issue is being debated. The Cystic Fibrosis Trust said it has a list of insurance companies who are aware of genetic issues which it recommends to its members. Cystic fibrosis is the most common genetic disorder.
Many people carry it without knowing.
For the condition to develop, a child must receive the defective gene from both their parents. It affects the breathing and can lead to fatal lung infections. The average person with CF survives until they are 31. The symptoms of Huntingdon's disease usually become apparent at the age of 40. The disease causes brain degradation, dementia and muscular spasms.