I broke my back in the Army when I was 20 and in constent pain sence. So many doctors apointments, pain management, shrinks, physical theropy and every think else under the sun. I am in extream pain all the time I have not slept in a bed in 5 years. I hadn't found it earlier could have diagnosed my self. Sacroiliacs totally fused and some fusing in my neck and lower lumbar.
Medication's now on seem to be working but having flare up's every now and then.
Its a little better knowing whats wrong with you instead of just being in your head, but really hard to except when its been over looked for years. Best of luck to all who have the disease. I began showing symptoms of AS when I was 15. I'm now 19 and finally have found a doctor I feel fully comfortable with and who is actually listening to me.