Often porphyria patients are being referred to pain management specialists after the patient has a definite confirmation of their diagnosis. Pain management is a special type of approach used by clinicians. Many scientific studies have documented the value of this approach, regardless of the specific cause or duration of an individual's chronic pain. It must be noted that pain management extends beyond medications. It also includes a comprehensive plan of exercise, relaxation and behavior change.
Patience also needs to be practiced by the patient.
It is important to remember that there is no quick fix for chronic pain, and managing pain isn't about making it disappear. In fact pain management is about keeping pain tolerable. First and foremost the porphyria patient needs to find a knowledgeable primary care provider. This person can be any physician or health care provider that you trust. Then ask for a referral to a pain clinic or pain center.