Has database for locating textbooks and other materials in accessible media. 3780 Verdun Ave. They raise awareness of and have support for parents and persons with Aniridia. This organization was established to help develop opportunities for families with similar challenges and experiences to network and share information and support. Their course catalog is available in braille, cassette, large print, or computer disk.
Funding is provided by private donations.
Has workshops and conferences for parents and helps parents get local groups started. National Family Association for Deaf-Blind 111 Middle Neck Rd. It does not diagnose or treat, or provide genetic counseling. It is involved in self-help, while trying to promote research and education. Offers individual help by telephone, free written materials, and workshops for parents of children and young adults with disabilities.