Diane has been with Contact a Family since 1989. She answers enquiries from professional workers about specific, often very rare, medical disorders as well as responding to enquiries from adults with rare disorders. Diane arrived at Contact a Family in the early days of preparing the CaF Directory of Specific Conditions and Rare Disorders. She has continued to work on the CaF Directory until the present time and is looking forward to being involved in its expansion. Where we have a national or regional office, details of Reps appear on that page.
Reps managed by the UK office appear below.
Susan is a part-time Partnership Officer in South Gloucestershire where she is employed by the Care Forum. Susan has learned a lot about special education both through her previous work experience in Croydon as a Parent Partnership Officer, and from personal experience as the mother of a thirteen year old son with juvenile arthritis who needed classroom support in his younger days. Cay's daughter is now eighteen and is at College. She is speech and language impaired, emotionally immature and has scoliosis of the spine. She is also a befriender with the Face to Face scheme.