This is not to say that these resources do not contain useful information, but that research is required to sort out what is pertinent to the particular circumstance. As the patient should be clear on what they expect, the caregiver should also be clear on what they can do. Getting help, from whatever sources available, is something that should not be delayed. Make sure all members of the family have something to do, so that the entire burden does not fall on one person. Make sure the doctors and other medical professionals know the primary caregiver and are responsive to questions from that source.
Education is the best defense against the helpless feeling that comes from having a loved one ill.
Many pemphigus patients find the resources and the support, which is so critical, through the efforts of friends and family who took the time to do the work. While there is no way to control stress entirely, caregivers should take the time to be good to themselves. It is not selfish to need time alone or indulge in an occasional treat. By taking time to refresh, the caregiver collects more strength for the role they are playing, as well as making themselves people that are refreshing for the patient to encounter. Pemphigus changes life for more than the patient, and it's important to recognize that not all adjustments are desirable.