Read, investigate, find out everything you can about this disease as fast as you can. It will help you to be able to deal better with the recipients. Find joy in the little things that happen while caring for your loved one. Watch your financial situation very closely. It's a tough job, but the love is the reward.
Family deserts first from trenches.
Expect the role to last years, not months. You can't do it all. Take one day at a time. Develop patience and understanding. Use support aides available.