I want to make sure that survivors have information available about their health so that they are not left out in the dark. When I went through the system, there was no such thing. Donate to groups that lobby for survivors, such as the National Coalition for Cancer Survivorship. Help fundraise to start or sustain a comprehensive follow-up clinic. Encourage changes in medical groups to benefit survivors.
Late effects are a moving target.
Protocols change, survivors age, new drugs are used. This would be great for primary care physicians who are not experts in late effects, but who want to get the most current information in order to give their patients the best possible care. This could be a way for COG to say thank you to all the survivors and their families whose participation in clinical trials enabled doctors and researchers to develop treatments which resulted in such spectacular cure rates. It would show that they not only care about cure rates, but in giving survivors their best shot at long and healthy lives. Tell your friends and family your feelings about your cancer journey.