So if a tumor or virus makes a protein that also appears on brain cells, the immune system will hunt down and attack those cells as well. It's a biological version of friendly fire. In Christy's case, the tumor had primed her immune system to attack a protein on the cerebellum's Purkinje cells, which connect with neurons in other parts of the brain to coordinate movement and aid learning. A few weeks after Christy's surgery, her neurological condition worsened. ACTH would prompt her adrenal glands to produce steroids, and steroids help rein in immune cell activity.
Physicians have more questions than answers when treating oms.
Christy's parents were taught how to give her daily ACTH injections and how to monitor side effects, which can include fluid retention, behavioral problems, and sleeplessness. A week later, she was much better, and she could walk if she kept her legs apart for better balance. She still couldn't talk, but she suffered fewer jerks and eye abnormalities. Her parents' sense of hope made me feel like a hero. Three months later, Christy's mother called.