They should learn all they can about programs that can help their child develop. Parents may contact their local school system or state department of education for information on programs and rules in their state. Infants with Lowe syndrome benefit greatly from physical therapy. Some families contract for physical therapy service on a private basis. Others benefit from infant intervention programs provided by local communities.
Professional therapists can often train parents to carry out a therapy program in the home.
In the early years goals may include holding the head up in a prone position, rolling over, sitting alone, and scooting or crawling. As in most areas, progress is usually slow. However, most affected boys will achieve these goals between a few months and five years of age. Delayed speech development is particularly frustrating for many parents during these years. Despite significant speech delays, most boys with Lowe syndrome will eventually be able to talk.