Please know that many of us got that death sentence when first diagnosed and are doing reasonably well. I am 59, diagnosed two years ago, told to retire and put my affairs in order. I was listed for transplant a year ago. I am on oral medications and am stable. Unlike heart transplant, lungs go to the persons with the longest tenure on their regional list.
Hearts go to the sickest.
There are several effective treatments. You are in luck in terms of geography. Texas has some excellent PPH specialists. If you or your mom would like to reach me directly please feel free to do so. There are no responses to this message.