All information is kept secure, confidential and released only after consent by the participant. It can never be used in a legal matter, nor can it be accessed by an insurance company. Identifying information such as name and address is kept separately from personal and medical information which is identified by code only. It can be difficult to enroll a large and diverse population from one geographic area. By pooling their data and resources, Penn and other centers are building one united database that will benefit everyone.
Less time is needed for recruitment and studies can be conducted more quickly.
Research Several studies are currently underway within the Cancer Genetics Network. At the University of Pennsylvania Cancer Center, the BRCA risk modifier study is investigating cancer risk in women who have mutations in the BRCA1 and BRCA2 genes. Precisely tailoring medical care in the most appropriate way is one of the goals of this national Network. Physicians are encouraged to inform their patients about this resource.