Care coordinators understand the range of services and communicate with one another and the family. Health services are coordinated with other services important to the child and family. Health care sites are accessible, providing translation services and family-friendly information. Families can easily access medical records and other important information and documents. Information is communicated in family-friendly language and formats.
Families are full members of health care teams, participating in all decisions.
The plan of care supports the direct care given by families and describes the child s role in self-care. Providers and health systems give families and children opportunities to comment on care they receive. The plan of care includes assistance in the transition from pediatric to adult health services. The primary provider knows about the child s special health condition and how to find resources. The primary care provider communicates effectively with specialists and other providers.