A hospice patient that's on the program also has the right to choose to discontinue or revoke the benefit for whatever reason. I think you on one hand have the role of the caregiver in how they perceive that role and how invested they are in that role. And how frustrated they can be in that role. How much should I be doing, how much can I be doing. It's so common for a caregiver to feel helpless.
Nutrition is a huge issue for caregivers.
And in many terminal illnesses, there's not a lot you can do with the patient's nutrition. It generally declines, and there's another piece you can't control. And as a caregiver you have to deal with the issue of control, what you can and can't control. We really try to help them process that. And I think as a caregiver you have to put your own needs on hold to a degree, and as you do that you really pay for it emotionally, physically, mentally and sometimes spiritually.