The frequency is the same in males and females. Although these children have many problems, they can survive and become healthy, happy citizens. Appropriate therapies and educational intervention must take into account any hearing and vision loss which is present. Management should be by a multidisciplinary team and coordinated by a single person, if possible. Fees will be waived for families who cannot afford membership fee.
Donations are always welcome.
Biennial conferences for families and professionals Information on regional support groups, parent to parent matching Conference pack from 1997 Conference. AS Harvey, et al.