People who have never seen a child with EB simply cannot fathom why we need all these bandages. Send a copy to your insurance company. Having one person who can become familiar with both EB and your individual case can be invaluable. Send the case manage pictures of your unbandaged child.
Pictures speak a thousand words.
It's much better to deal with piles of papers that to find you are missing an important form or piece of documentation. One for you, one for the insurance company. Almost all insurance companies will require an itemized bill rather than a receipt. Make a copy of each form you fill out for your personal records, recording on it the date you mailed it in. What to do when a claim is denied -Ask your insurance company for a claim rejection in writing specifying why the claim was denied.