Families have roles in making cost decisions, including vendor selection. Payors compare hospitalizations or other expensive treatments to alternatives, such as out of network services that might cost less or produce a better outcome at almost the same price. All payors communicate to make sure that payments are made on time. Family leaders help set capitation rates that cover real costs for children with special health care needs. Real costs are tracked to assure that our children receive necessary benefits.
Families serve on commissions reviewing expenditures for children with special health care needs.
When a family exceeds a lifetime cap, the insurance provider either offers a new plan with comparable benefits, or transfers the child to a new plan with comparable benefits, with no interruption in coverage, medical home, or access to specialists. A more detailed paper on quality will soon be on our website or available through the Family Voices office. A family-run place where a tollfree call hooks you up with expert parents who give you information about .dentists who care for children with disabilities, equipment banks, child care programs that take toddlers with chronic conditions, health plans with special programs for our kids, or ways to get help with an SSI appeal answers to the questions that all of us have. Every family with a child with special health care needs deserves answers to their questions so they can make informed health decisions for their kids. Tell your Members of Congress about this family-friendly way to make the most of our health care dollars.