This new approach is expected to yield a greater benefit for the victims of Canavan disease, improving their quality of life. In addition to gene therapy , we are also funding groundbreaking research in the field of stem cells . Canavan children may be among the first to benefit from the great potential stem cells have to repair brain damage. We also support research to develop a pharmacological approach towards halting the devastation of this disease while researchers are racing for a cure. Max Randell - Max Randell, a victim of Canavan disease, has represented the battle to save the childhood victims of Canavan disease on Dateline NBC, Leeza, Washington Post, and the Chicago Tribune as well as a variety of local news and television programs.
Genetic testing is now available.
Please consult your physician or health care provider.