Health systems regularly review and address gaps in coverage and services, based on family feedback. Families and providers make decisions together, with the child participating as much as possible. Administrative policies and practices support long term relationships between families and providers. Families help professionals develop and use tools that measure quality of care and family satisfaction. Families participate in in-service trainings with providers, agencies and health plans.
Families serve on statewide and local public and private policymaking boards.
Families are assisted in understanding and utilizing all payment options. Families have roles in making cost decisions, including vendor selection. Payors compare hospitalizations or other expensive treatments to alternatives, such as out of network services that might cost less or produce a better outcome at almost the same price. All payors communicate to make sure that payments are made on time. Family leaders help set capitation rates that cover real costs for children with special health care needs.