Insurance issues Charles Gates, author Insurance companies are all different but they all have systems for tracking claims and payments - patients should have a system, too. People with chronic disorders have more doctor visits, more specialists, more lab tests, more money paid up front patients can't afford to lose benefits and should fight for every penny that can legimately be claimed. Patients are encouraged to keep a record or system in which all claims can be reviewed at a glance. When dealing with the insurance company, record the names of the people who provide information and advice. Know and understand the insurance contract - read it and reread it.
Many people are concerned about being excluded for pre-existing conditions.
People are advised to sign up for a plan as soon as possible - even before Marfan syndrome is diagnosed. The pre-existing condition exclusion is often a delay in coverage, rather than a denial of coverage. Long Island Jewish Hospital Parents can help educate the child's class about the Marfan syndrome. Using the NMF's materials, parents can educate both teachers and students about the Marfan syndrome. It's important to stress to the school what the child can do not just their restrictions.