Many activities are planned to give children with cystinosis and family members an opportunity to meet new friends and share life experiences, in a fun, friendly atmosphere. Understand that our child care providers are all volunteers and that each family is ultimately responsible for their own children. We will provide activities and plenty of supervision. The children will have a wonderful time. Your cooperation is needed to support our volunteers.
Parents are responsible for their children during the lunch breaks.
Permission statements will be in the registration packets. Signed permission statements are required before your child can participate in child care, youth, and teen activities. A limited number of hotel rooms and condominiums have been set aside at discount rates for the Cystinosis Foundation. To ensure that you are properly charged, please be certain to state that you are attending the Cystinosis Foundation Conference. Attendees arriving before check-in time will be accommodated as rooms and condominiums become available.