It is a major task. Some of you are wondering what to do next. Most of you have not planned very far into the future. We would like to change that.
Planning is a good thing to do.
Making plans can relieve much of the emotional and economic strain of caring for someone. Ultimately, it frees the family to tend to the important details of loving and nurturing the family member with disabilities. Seen only in this light, it is a grim proposal. First, picture him or her with few or no rights, frustrated by the inability to pursue whatever goals he or she may have, curtailed by a living situation that allows few freedoms, employed at meaningless work. If you don't, you can never be sure whose choices will be heard and whose voice will be hushed.