People who have OI can succeed in school, work, family, and social environments. Life expectancy for people who have OI has not been clearly defined. In general, life expectancy for people with mild and moderate OI is average. Life expectancy for people with Type III OI is affected by the severity of spine and chest deformities. Individuals may live into old age or succumb to respiratory infection in middle adulthood.
Fractures are often unpredictable.
One day your toddler might fall down without injury, while the next day his or her leg might fracture during a diaper change. While some caution is called for, it is still important for your child to move, play, and interact with others as much as possible. Babies who have OI should be handled gently. Pick the baby up with one hand firmly supporting the neck and head, and the other hand supporting the back, buttocks and legs. Be aware of the positioning of the arms and legs to avoid getting them caught in an awkward position.