Medication such as Quinine may help in reducing attacks. Regular turning and re-positioning will help to prevent sore areas of skin from developing, especially where bones are close to the surface. Arrange clothing carefully to avoid sitting or lying on creased material. Strategies Use reclining chairs, headrests, lightweight collars or chin supports. A velcro or elasticised band placed around the forehead and attached to the back of the headrest of the chair is a useful way of preventing the head from dropping forward.
Occupational therapists can offer useful advice.
We tend to take for granted what we do with our hands. We also take for granted the tools we use - cutlery, kitchen utensils, pens, toothbrushes and telephones. When muscle weakness makes everyday tasks difficult, changing to a different type of tool or using a different method may make it possible to continue doing a particular task independently. Some ideas are very simple. Many people devise their own means of overcoming problems or use ordinary labour-saving devices.