The doctor decided to wait on his shots and we were referred to a pediatric gastroenterologist at Scottish Rite Children's Medical Center, Dr. Jeff Lewis. We made our appointment and met with Dr. Lewis. He was very concerned for Caleb and decided to order blood work and an abdominal ultrasound the very same day. The liver biopsy showed moderate to severe scarring in his liver that would lead to cirrhosis and liver failure. There is no cure and the cause is unknown.
Liver transplantation is the only treatment and has proven to be very successful.
We were referred by Dr. Lewis to a liver transplant surgeon at Emory University Hospital, Dr. Thomas Heffron. He does both adult and pediatric liver transplants. Included in his program is the living related liver transplantation. We had considered the living related donation, but were unsuccessful. We met with Dr. Heffron and his team and they told us that Caleb definitely needed a liver.