My name is Karin W lfig and i have a son called Angelo who is now 13 month old and has alobar hpe. My doctor found it out with ultrasound when i was pregnant in the 30th week.
Nothing seemd wrong till then.
I was shocked. Nobody could tell us, what will happen, and they told us, that Angelo wouldn t be able to do anything, IF he would go throu birth. They told us we would have a poor little body, having seizers and having spasticity, and we could be happy, as he would live long enough, if he ever looks at us. But they gave him almost no chance to live longer than a few days or weeks, probably a few month. Having this horrable informations, we nevertheless wanted to give him a chance.