The thalassemias, alpha and beta, affect different people in various ways. Some people may be completely well and require no special medical care while others need special care including red blood cell transfusions. While various hemoglobinopathies tend to be concentrated in particular racial or ethnic groups, any person can be affected. Serious medical problems can result from hemoglobinopathies. In some cases, the complications can be life-threatening.
Early intervention can greatly reduce complications.
Ongoing treatment is important to decrease the risk of infection, minimize painful episodes, and improve the quality of life. Iowa law requires that a tiny amount of blood be taken from every newborn baby shortly after birth. A state-approved laboratory analyzes the blood for hemoglobinopathies and other inherited diseases and sends a report to your doctor. In addition, the Hemoglobinopathy Screening and Comprehensive Care Program will contact both you and your doctor. The Iowa Hemoglobinopathy Screening and Comprehensive Care Program Serves all Iowa children and adults with hemoglobinopathies.