This important booklet describes von Hippel-Lindau disease in simple language, provides hints for managing your health, and a glossary of terms your medical team will use. Developed by a team of VHL family members and health care professionals. Candlelighters Childhood Cancer Foundation maintains a list of organizations that grant wishes for children with chronic or life-threatening illness. There are no income requirements. The American Brain Tumor Association provides patient services and educational materials, free of charge.
Funds research nationwide, and works to educate the public about brain tumors.