Check Your Domain Name . The UK Kabuki support group was set up in 1999.
Kabuki syndrome is rare.
However, it is still probably greatly under-diagnosed since the number of medical professionals who are familiar with the syndrome is still growing. This UK group is being frequently contacted by newly diagnosed families for information, not only from the UK, but also from Australia and various European countries. They have not been checked to see if Kabuki Syndrome is included but these large sites are comprehensive. Searching Medline For information on Medline and how it is used to find detailed medical and health information. Try browsing or searching Patient UK again with the buttons below.