There are times when reasonable demands for help are balanced by necessity to have get away time. That is why camp or visiting out of state relatives for children of ALS or other seriously ill parents is a good idea. Some children may need alone time with their ill parent, like a toddler who can crawl around the bed or child-proof room with the ALS parent. It is good for both of them. For example, when a 10 th or 11 th grader is beginning to look at college, parent and child can do an Internet search of which school or scholarship is possible.
Families can plan a handicapped accessible vacation.
They can communicate through the net even when they are in the same house or share poetry. They can set up individual or family movie trips. There may be a need for clear discipline. That is a wonderful gift to give our children. When we set limits that keeps them safe and when we are consistent in our discipline, they become comfortable with their self-discipline.