No one imagines that he may be talking to a person with an illness. Healthcare workers who should know better often don't understand the effects of the disease, even in acute care facilities where these patients may end up because all other care options are exhausted, and forget or ignore the fact that the minds of these people are as acute as their own. This lack of understanding means patients are treated without the dignity and respect they deserve, which only compounds the pain they suffer. The ALS Association and the Muscular Dystrophy Association, among other organizations, conduct ongoing research into the causes and treatment for this and other horrible illnesses. They also provide assistance to those afflicted and their families, including special training and equipment.
Donations are always welcome.
This electronic newsletter keeps people aware of recent break-throughs, and allows patients to share what they are doing to cope with this dread disease, and to offer support and reassurance to each other.