To provide a foundation for subsequent discussions by introducing the appropriate glossary, technique and substantive resources for clinical ethics discourse. To introduce a standard format and method for discussion and provide an opportunity for practice. To explore the use of new diagnostic and intervention technologies, i.e., decisions about screening, the disclosure of test results to patients or others, the relative risks and benefits of gene therapy, and issues of genetic privacy and nondiscrimination such as may occur in the workplace or in insurability.
Goals Identify major ethical issues of genetic testing, screening and gene therapy.
Understand confidentiality and disclosure issues related to genetic testing. Understand the obligations of the physician to his patient regarding genetic testing. Understand that identification of a genetic disorder is not always in an individual patient's best interest. Appreciate the need for skilled genetic counseling. Required Reading Code of Medical Ethics , American Medical Association, p 21-28.