But these patients are forced to consider the risk of loss of health insurance or workplace discrimination if they undergo genetic testing. This legislation would minimize these risks to patients. It is crucial that the House consider this important measure, as it places restrictions on the ability of employers, employment agencies, labor organizations, insurers and training programs to collect genetic information. Without privacy safeguards and protections against discrimination patients continue to avoid tests in fear of possible adverse consequences. As a result, the potential medical benefits of genetic testing will never develop.
Legislation is the only way to address the growing trend of genetic discrimination.
Although the Americans with Disabilities Act provides some defense against genetic discrimination, the current law provides no protection for the privacy of employees and does not prevent employers from obtaining genetic information. Passage of this legislation will improve health care for the nation, especially women and newborns.