I also developed a strange headache related to the impossibility to digest for a couple of days. I don't take any other medicine. I eat regularly, do not drink much, exercise 3 times per week, in general healty. Anne Anne also mentioned that anemia has been ruled out. Anne, It's good to hear that your ITP responded so well to treatment.
Glucocorticoids are a wonderful and complex class of medicines.
This is standard practice, and some people may feel side effects if they are weaned too rapidly. Prednisone-like drugs also induce a feeling of energy and well being in many patients, and some may notice fatigue while going off of the treatment. Most patients feel just fine during this period that the body is preparing to again take over producing normal levels of these hormones. If your symptoms correlate with weaning off of the medicine, discuss it with your doctor. Check your viral load and CD4 count when you are off of the meds for awhile.