Kelly has 2 leg braces, a long leg brace and a short leg brace. She also has a scoliosis jacket. She is able to walk slowly and with someone else close by in case she loses her balance. She is legally blind and wears glasses. She is self-abusive and bites her hand and arm until it bleeds.
Infection is a constant worry.
This last problem is what we are dealing with now. About 14 months ago, she started having trouble eating. She would cough and drool while eating and not be able to take food in during these episodes. I took her to the pediatrician and her neurologist for this problem and neither one had any ideas. Her problem never resolved itself and she ended up in the hospital with aspiration pneumonia.