I also decided not to pursue a high school teaching position, opting out for a safe environment and planned to stay there until long term disability kicked in. I was scared. I have even joined a theater group and am going to be doing dinner theater. We play a lot of golf and I have really taken an interest in my garden - we put in a goldfish pond and fountain in the back yard and find it is a great place to relax when things get us down. I ll also admit that Huntington s Disease is still on my mind but after this year it is not ruling my thoughts and I have settled down quite a bit.
Life goes on.
I think the prediagnostic testing is helpful but feel that three months is too long to wait as most people have been waiting and wondering for a period of time before they decide to get tested. I think more information should be available and patients fears should never be downplayed - they are real. I also feel that a person should wait until they have to make some life decisions before getting tested as it may be difficult, if not impossible to get insurance once the diagnosis is done. They are handling it well and are very supportive. These are some of the things that candidates for testing should know.