Lifestyles are changing. Many people have single parents. Many people have both parents working. Living well together takes time and having to advocate continually for necessities take more time. There can be big differences within families in the extent to which a family member with a disability is valued and accepted as an equally valuable person by other family members.
Information is hard to find.
Not even getting listened to by people whose job is to help can burn you out on trying to ask for things from community members. Families and friends can be abusive and neglectful, especially when they lack support. We have a lot to learn about improving the ability of family and friends to cope. There is a great deal of talk about families disintegrating. We have to figure out what all this talk means.