Your membership includes a subscription to Directions, our newsletter. It contains information on daily living, the latest research on SMA, letters from families, upcoming events, articles by doctors and researchers, and other resources. FSMA sponsors an annual conference for families to learn about the status of SMA research, gain an understanding of the genetics of SMA, share the latest in disease management techniques, and network with other families. We are available if you want to talk with others who understand. Also, FSMA has more than 17 Local Chapters worldwide as well as a networking program that links families together for mutual support.
FSMA members have access to loans of medical equipment from our equipment pool .
FSMA members who join through this web site are automatically added to our email list. Anyone may sign up for this list by going to our Mailing List page.