Fundamental Elements The Partnership for Genetic Services Pilot Program is guided by the following Fundamental Elements. They evolved as resounding themes throughout the development of the Consumer Indicators. Families and other caregivers are central to the well-being and care of persons living with genetic conditions. Peer support provides valuable resources and emotional nourishment. Consumer and provider collaboration is the basis for an effective care team.
Genetic conditions impact individuals at all stages of life.
A person's genetic condition should be considered in all aspects of their medical care. Consumer is collectively defined as the individual with a genetic condition and their families. The Consumer Indicators printed in this brochure are the results of consumer responses to this survey. Support to develop the Consumer Quality Indicators of Genetic Services was provided by SmithKline Beecham's Community Partnership Program. The Genetic Alliance gives a voice to the common concerns of persons living with, or at risk for, genetic conditions and their families.