If you know of any other organizations you would like to see added here, or of any web sites pertaining to those listed that we are not aware of, please let us know by either e-mail or by writing to us at the address given on our mailing list page. MUMS-Mothers United for Moral Support 150 Custer Ct. MUM'S main purpose is to provide support to parents in the form of a networking system that matches parents with other parents whose children have the same or similar condition. They also refer families to appropriate support groups. A quarterly newsletter allows families to share and speak out about issues affecting their lives.
Donations are tax-deductible.
They act as a clearing house for information about rare disorders and facilitate networking families with similar disorders for mutual support. Support services include an information clearing house, bi-monthly newsletter, local grassroots support networks, conferences and research on health outcomes. A magazine for families and kids coping with limb differences. Newsletter is free, although donations are very welcome. A family directory is also available for a fee.