Most people who have this form of kidney disease do NOT have a family history of kidney disease. Even with treatment, renal failure frequently progresses.
Genes are individual instructions that determine traits like eye and hair color.
Our research involves talking in detail with family members about their ancestry and medical history. After signing a consent form, blood and urine samples are collected from all family members who are willing to participate in the study. The urine sample will be tested for protein. Finding protein in the urine helps to identify individuals who may be in the early stages of FSGS but have not yet had any kidney trouble. We are currently collecting names of interested participants but not samples at this time.