This happened to us for two years, and we are not unique among these families. In our experience, it is hard to find babysitters for a child like this. Only grandparents have the love to help out, and many families do not have these. The result is that life, as the family knew it before the child, stops. Time and possibilities for children's activities, friendships, and vacations are transformed into doctor's visits, laboratory tests, behavioral and speech therapist sessions, IEP and school educational struggles.
Insurance companies refuse to pay medical bills for treatment.
Friendships end for lack of communication. Siblings lack the attention they deserve. Financially, the costs can be devastating. We couldn't afford this, and needed financial help. Many families don't have such help available to them.