The blood samples are drawn locally and shipped to us in Indianapolis, Indiana. These samples are merely a way for us to obtain DNA, the material that is used for genetic research. This is the material that we make available to investigators. Information you provide to us will be kept confidential. Participation is totally voluntary.
Family members are free to decline or discontinue participation at any time.
There should be no cost to you to take part. There is no payment for participation. Both lymphocytes and DNA are available from most participants. Cell lines have been tested and found free of mycoplasma, bacteria, and fungi during characterization, and at the time of frozen storage. A detailed catalog of family pedigrees is available upon request.