The minutes of the meeting will be posted soon. The latest Newsletter is now available. These lumps tend to grow during childhood, causing occasional discomfort. Sometimes a limb may end up shorter, or less straight than normal. These problems sometimes require hospital appointments and surgery.
Lumps usually stop growing at the end of childhood.
The genetics of Hereditary Multiple Exostoses has recently become clearer. Genes responsible for this condition are now being identified. Our son was eight months old when he was diagnosed as having Hereditary Multiple Exostoses. By the time he was four he had had numerous hospital appointments, X-rays and two operations. When he was five, and in his first term at school, he underwent a lengthening procedure on his ulna bone in his right forearm.