She went on a Florida vacation in 1998, has been able to go to Paramount's Kings Island in daytime, and to church. Though Abby has outgrown her suit, she has received new protective clothing. She went from being an isolated child who had no contact except for family to being in a school with tons of kids of different ages. Her personality has just grabbed a hold of all the excitement of embracing the world, which most of us take for granted. The address is 5060 Taylor Road, Cleveland, Ohio 44128.
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When originally published, this story failed to include information on the Xeroderma Pigmentosum Society Inc., based in New York state. It works with XP patients and their families, as well as those with other sun-sensitivity conditions. Jordan Shines in Opener Vs. Voice your opinion with our online form. The Cincinnati Enquirer , a Gannett Co. Inc. newspaper.