Two excellent personal accounts by Joel Deutsch, who is a subscriber to RPList and a published author.
Family members wanting to learn more about it are welcome too.
Bardet Beidl Syndrome List. RP chatroom and message forum Yahoo Club Website. Laurence Moon Biedl to subscribe send a message to above. For persons with Retinoblastoma, their family and friends. Bad Eyes Socialization, help and humor for people with retinal degeneration.