He is my miracle brother. CVL, or central venous catheter, CVC Type of intravenous tube that is used to give fluids and medications to infants or children. The catheter is placed in a major vein of the body during surgery or by insertion through a vein in the arm, leg or head. This worked great because then they didn t have to poke him every time they wanted to do something. He has nothing in place at this time.
Histiocytosis is a rare, mysterious and sometimes fatal disease that primarily affects children.
Similar in many ways to cancer, Histiocytosis is treated with radiation and chemotherapy. Histiocytosis X is an uncontrolled growth of cells called histiocytes. Histiocytes are scavenger cells, the cells responsible for removing tissue debris from the body. Histiocytosis X can vary from a localized and mild form, with one or several bones involved, to a widespread disease involving the liver, lungs, skin, bones, and bone marrow. The annual incidence is about 1 in 200,000 children.