The decision to take part is yours. You may want to take some time to think about it. Ask questions about what you and your child will have to do. Your medical care will not be changed because you decide not to be in a study. You do not give up your legal rights if you participate.
Every study is different.
Some may take a few hours, some a few months, others may last a few years. You should check with your insurance company to be sure your participation in the study does not change your insurance status. How participating would change your medical care. The discomforts and risks of the things that will be done to your child in the study. Other treatments that are available if you choose not to be in the study.