Arm yourself with knowledge. Surround yourself with the support of family and friends. Sustain yourself with hope each day. With any serious illness it will be necessary to consider your wishes concerning life support interventions. Discuss your wishes and Advance Directives with your family and with your physician.
Many PALS choose the feeding tube for nutritional support.
Many PALS use a noninvasive ventilator, the BiPAP, to alleviate breathing difficulties. Tracheostomy and invasive ventilation is a decision that needs to be made prior to respiratory crisis. Ventilator Decision on Patient Care page. The private multidisciplinary Suncoast ALS Clinic 601 Seventh Street South, St. Petersburg, FL offering coordinated care of the Neurologist, Pulmonologist, Speech Pathologist, Physical Therapist, Occupational Therapist, and Neuropsychologist. The VA covers Rilutek for eligible veterans.