There is hope of a cure . But it is paid for by voluntary donation. With your help we can bring closer the day The Butterfly Children are free from daily pain and crippling physical disability. Thank you for helping to give hope where there was once just pain. In the most severe cases children will die very soon after birth but most people with OI can expect to live as long as you or I. People with OI are at constant risk of painful bone fractures, some will have 100 or more fractures during their lifetime, others may only have a few.
Fractures can occur for no apparent reason.
Even everyday events like getting dressed can cause a painful fracture, which can take many months, and expert medical care, to heal. OI is not like Osteoporosis. It is a genetic condition, which makes the bone collagen very weak. It cannot be cured and despite many years of research, no effective treatment is available. The Brittle Bone Society offers these families many types of support, from advice on how to cope with a new-born OI baby to the supply of complex and expensive, mobility equipment for adults.