Its two main goals are to be a support network and information clearinghouse for people who have syringomyelia, a rare spinal cord disorder, and to promote future research. Publications Publications include a newsletter, brochure and varied articles on syringomyelia. The Foundation operates a laboratory in the Department of Neurology at New York University Medical Center, in which information from clinical and research facilities is integrated to provide for better diagnosis and treatment of hydrocephalus, a frequently-occurring congenital disorder that can also occur shortly after birth.
Hydrocephalus accounts for a large proportion of adult patients with a diagnosis of dementia.
GHRF publishes a booklet on hydrocephalus. A videotape entitled, Hydrocephalus-A Neglected Disease, is available for rental or sale. The Hydrocephalus Association was founded in 1983, incorporated as a nonprofit in 1986, is governed by a Board of Directors and employs, an Executive Director, Assistant Director, Director of Development and a Program Director part time. Medical Professionals serve in an advisory capacity. The Hydrocephalus Association is funded through a combination of individual contributions, membership dues, grants from private business and foundations and an annual fund drive.