Fear, anger, guilt, sadness and disappointment totally eclipse nine months of hopes and dreams. Sleep is a stranger and survival becomes the only goal. With each day comes more information . Fear of tomorrow increases. Anger towards the ineffectiveness of modern medicine is a repeat performer.
Endless introspection strives to neutralize the mounting guilt felt by the mother.
Slow realization of the situation walks hand in hand with sadness and disappointment. As the mystery unfolds, the words are heard but existence becomes surrealistic. After three or four incredibly intense days, three or four breathing cessations and a transfer to a special children's hospital the condition of this beautiful little baby is given an official name. None of us had ever heard the words Moebius Syndrome . At that moment, the relief of knowing the name of the challenge could barely compete with the fear.