I was diagnosed with PPH a few months ago. I'm already on the transplant list in Houston. Your doctor simply might not have enough experience dealing with PPH, few centers and few specialists do. I don't know about the limitiations of your family, but if you can manage to bring your mother to Houston, she would be in excellent hands. I know many who have done just that.
Internet is a good resourse.
Best of luck. Best of luck. Notify me by e-mail when I get replies.