Places to Look for Information Read the potential benefits section from our Genome FAQs File and the Ethical, Legal, and Social Implications section from To Know Ourselves . It is designed to inform consumers and professionals about advances in genetics and to encourage discussion on emerging policy dilemmas. The Genetics and Public Issues section from National Center for Genome Resources has a wide variety of material. Explore the many ELSI-related web sites listed here . The Genetic Privacy Act and Commentary is a draft document on genetic privacy that serves as a model for legislators.
Genetic privacy is the issue of who controls information on a person's genetic makeup.
Although about a dozen bills regarding genetic privacy were introduced into Congress, none have yet passed. Details on some of these bills are at the National Center for Genome Resources . We can expect to see more bills introduced. The Equal Employment Opportunity Commission developed guidelines regarding genetic discrimination and employment under the Americans with Disabilities Act. NIH has focused on responsible clinical integration of new genetic technologies.