Communicating with other parents in hemophilia support groups is especially helpful when trying to deal with difficult feelings. At the end of this online guide is a list of resources that will help you contact parent support groups. Although other people may call him a hemophiliac, your baby is a person who happens to have a condition called hemophilia. The disease is not his whole identity. Although we all hope and pray for perfect babies, in reality, there is no such thing.
Many children have medical concerns such as allergies, poor eyesight, diabetes, or something else.
Having hemophilia does not mean that your son will have a less than fulfilling life. It is within his power to be a happy, well-adjusted person who can succeed. All Rights Reserved.