A diagram and listing of the areas of the body affected by cystic fibrosis. The descriptions are short and there is no discussion of how the basic defect in CF results in the various problems. However, the next page explains the relationship between the molecular abnormality and its expression at the tissue level. Many of the web pages devoted to cystic fibrosis are linked to this page. CFF maintains a web site with links to research centers, treatments, and the various chapters.
Information is updated monthly.
A chronic infection of the lung by Pseudomonas is one of the most serious problems for individuals with cystic fibrosis. Recent evidence suggests that the bacterium uses the CFTR protein as a binding site and is internalized when the normal protein is present but grows in the extracellular space when the CFTR protein is absent or mutant. MIT A web site with numerous links to other sites. One of the more informative pages is the Cystic-L Community Page . This is an unmoderated mailing list of persons impacted in some way by cystic fibrosis - affected individuals, parents, friends, doctors.