We all need to develop a partnership mentality. We survivors are on the leading edge of these changes. Doctors are strong team members with information and skills that we need. We, however, bring to the partnership knowledge, information, and late effects that the doctor may not have seen. Learn what you need to know, surround yourself with knowledgeable professionals, and live your life to the fullest.
Information is a double-edged sword.
There is considerable relief in knowing what the future might hold. But often when we are told we are cured, we go into magical thinking that it is over. It is not for most of us. Reading a book about late effects may bring grief. You may realize that life has been forever changed.