We all need to feel like we contribute. Doing even minor tasks can take a lot out of us. Plan your activities so that you can take short rests as you need them. Keep a journal. This can be an especially useful tool in writing down your questions for your doctor.
Journals can also be a stress reliever.
By writing down the problems and our feelings about them, we can help to release tension and stress. Lastly, it can also help us to see how many good days we are having. Sometimes when we are really down, we think that all we've had are bad days. Be sure to log those good days too. Join a Support Group.