I myself care little, except to avoid more than basic expenses. Keep me from an expensive coffin. I obtained valuable advice and ideas about these matters from the Natural Death Centre, in London. Such a place proved to be, alas, not a conventional hospital, but a Marie Curie Centre, where care is more than drugs and surgery, where pain can be controlled, where I am more than a numbered patient, and which is, but is far more than, a hospice for dying in. Need to know You need somewhere to turn to for basic information.
Ignorance is the worst enemy.
Some prefer ignorance, say it is bliss. It is not. Ignorance is the ultimate fright, the primal fear. Better to know what you are up against, know all there is to know about your illness, its treatments, the odds, the therapies, what others have done and said and suffered. Not everyone knows, or bothers to tell you.