If the future implication is unknown, it is best to be honest about the uncertainty and be available to the family for support. The physician can also serve as an advocate to the family and child by coordinating medical, therapeutic, and education services and supporting the family through the process of diagnosis and long-term management. The general pediatrician may seek referrals to a developmental pediatrician, geneticist, or a child neurologist for further consultation. This may help in guiding the family in prognosis and genetic counseling. A diagnosis will be valuable to families.
Family support is essential.
Optimal benefits of early intervention are realized when the physician is an advocate and works collaboratively with the service agencies in all stages of the process, including identification, referral, and monitoring of developmental progress. Rosenbloom, L. Diagnosis and management of cerebral palsy. Nelson Essentials of Pediatrics, 3rd ed.