Some groups bring parents together around a certain diagnosis, Cerebral Palsy, for example. Parent groups provide free peer support and are excellent resources for learning all about this new world. Find out everything you can about your child s diagnosis from your pediatrician, early intervention program, parent group, local library, state program for children with special health care needs. Surf the Internet, where every imaginable diagnosis has a website full of information and resources. If you lack a computer or don t know how to surf, ask someone to help.
Every community now has a location with free internet access.
Family Voices has a list of Internet addresses. Learn about the hospitals, pediatric specialists, therapy centers, equipment banks, early childhood programs, and state and private agencies that your child will use. Ask other parents for advice about where to get the best care. Of all phone calls, doctor visits, insurance bills, Medicaid notices, and forms related to your child. Request copies of everything.