I don't mean your regular care giving duties every day or your routine doctor visits, and I say routine lightly, because I remember how routine soon became typical. I am talking about also being your child's advocate. In other words, their backbone, support, their own little manager per say, especially for your child's education. Some of you are sitting there thinking either your baby is too young or there is no reason for my child to go to school due to their condition.
Every child has the right to have a chance to learn whether it's at home or a school setting.
It doesn't matter if you are a parent, a doctor, a teacher, a friend, or anyone in between, you MUST believe ALL children are worthy. No matter what, these children are our life and our joy, and we want them to get the best out of what life they have. Even if we are not with them always, in particularly at school, being the best advocate for your child can help reassure them as well as you. The next steps you will need to take are simple to become the very best you can be for your child. You can apply them to doctor visits, school meetings, etc.