Because connective tissue is found throughout the body, the syndrome affects many organs, including the skin, skeleton, lungs, heart and eyes. For example the person may be very tall with unusually long fingers and toes and loose joints. People with Marfan Syndrome are often short-sighted, and dislocation of the lens of the eye is a common problem. But, like your husband, many people have no idea they have the syndrome until mid-life when problems start to develop. The most serious problems associated with Marfan Syndrome involve the heart and blood vessels.
Irregular heart rhythms.
This can be rapidly life threatening. Treat specific problems Marfan's Syndrome cannot itself be treated yet, but many of it's complications can be. In addition, other treatments or lifestyle changes can make complications less likely to occur. Avoiding vigorous exercise or heavy lifting will have similar effects. Those with Marfan's should be regularly screened for heart problems and when complications do occur or the aorta reaches a critical size, surgery may be necessary.