Most of our knowledge of these tumors has come just in the last 30-40 years. Carcinoid tumors are rare, with incidence estimated at .32-2.1 per 100,000 people. Though they primarily arise in the gastrointestinal tract or lung, they can occur in many other organs. In 1963, Williams and Sandler began classifying these tumors as foregut, midgut and hindgut, based on their location.
Carcinoid tumors are individualists that act differently depending upon site and individual.
Even if a carcinoid tumor produces serotonin, you may not experience any of these symptoms. Treatment for the carcinoid syndrome is available, and many of our members use a drug called Sandostatin. That is why the NCSG encourages you to seek out a doctor experienced with carcinoids. There are experts who are willing to help. The Merck Manual .