Ethical problems arising from the implementation of a possible 'right not to know' your GT info are examined.
Findings indicate misunderstanding about risk and interest in more information.
For instance, the participants confused risk factors with causes , discounting scientific validity of risk-factor information if they knew a breast cancer victim without risk factors or with protective factors. Most FDRs thought lifestyle factors contributed to risk. The overwhelming majority thought they could reduce personal risk by lifestyle modifications . Most were not interested in genetic testing for breast cancer susceptibility, saying they would worry too much if they learned they had a mutated gene. According to the participants, lack of primary prevention techniques negates the value of genetic testing.