If you haven't gone through this experience, you can never fully understand just what it means. And that is exactly why we started the scleroderma support group in Slidell. We are a non-profit group. We collect no dues. We also encourage the donation of stamps to help defray the cost of postage for the newsletter.
Every little bits helps and all donations are welcomed.
When we organized, we were a part of the Scleroderma Foundation. As we grew, we wanted to raise funds for research believing this to be the way to find a cure. After hearing about the difficulties many people had in getting medical care because they had no insurance, we wanted to establish a fund for that purpose. The purpose of the fund is to provide medical care for those persons who otherwise would not be able to afford it. It is administered by Dr. John W. Scott of Tulane Rheumatology Department.