Even a 30 minute 'vacation' can be a real relief if they are working this program with you. Next, get more time off for the caregiver. Get someone to sit with you so that your caregivers can get relief. Finally, if indeed your ALS is advanced, consider the help you might receive from Hospice. You are eligible for services if you have a prognosis of 6 months or less.
Hospice can provide volunteers for caregiver relief.
I have experienced hospice care where there were volunteers everyday of the week for several hours per day. I hope that these thoughts are helpful. God bless, m ps. OK, now turn it on. What might be a typical play session between mother and daughter was actually a demonstration of the power of technology.