A Report to the Secretary of Health and Human Services . Secretary's Advisory Committee on Automated Personal Records. Records, Computers, and the Rights of Citizens . 38-42, is very readable. It includes five fundamental principles of fair information practices.
Informed consent describes a condition appropriate only when data providers have a clear choice.
They must not be, nor perceive themselves to be, subject to penalties for failure to provide the data sought. T.L. A History and Theory of Informed Consent . Oxford University Press, 1986. A Summary of the Empirical Literature.