Caused by a particular gene,it can affect both males and females. It leads to changes of behavior and personality and over a period of time , most suffers develop uncontrollable movements. The illness can last 10-25 years and the stress on sufferers and their caregivers is immense. The 18 interviews in this book document the distress associated with HD as well as the compassion and courage shown by suffers, care givers and HD families.
Health professionals talk about new developments in research and offer some hope for the future.
The quiet honesty of these interviews is a testament to the resilience of the human spirit.