To encourage scientific research into the condition of migraine. Provides counselling and funding for patients and their families. Financial assistance for home nursing. Advice on disease or welfare problems. Supplies practical aids.
Funds research into the causes and treatment.
The Irish Mucopolysaccharide Society was founded in 1995 by a small group of Irish families who had a child suffering from one of these diseases. It aims to support parents, to bring about more public awareness of mucopolysaccharide diseases, and to promote and support research. The umbrella term embraces a broad spectrum of disorders due to deficiencies of one of a group of enzymes which degrade particular mucopolysaccharides and includes Hurler's Syndrome, Scheie's Syndrome, Hunter's Syndrome, Sanfilippo's Mucopolysaccharidoses, Morquio's Syndrome, Maroteaux Lamy's Disorders as well as other diseases. The Royal Hospital, Donnybrook, Dublin 4. Fax 01 2693746.