Love, honor and value yourself. You're doing a very hard job and deserve some quality time just for you. Watch out for signs of depression, and don't delay in getting professional help when you need it. When people offer help, accept the offer and suggest specific things they can do. Educate yourself about your loved one's condition.
Information is empowering.
Recognize the difference between caring and doing. Be open to technologies and ideas that promote your loved one's independence. Trust your instincts. Most of the time they will lead you in the right direction. Grieve for your losses, and then allow yourself to dream new dreams.