The Human Genetics Advisory Commission concluded in July that genetics testing is not being routinely used in employment, as yet. The advisory commission, set up to inform ministers about the social, ethical or economic implications of genetics, stopped short of banning the tests, instead saying they could be used in specific circumstances, such as detecting a condition that would put employees or others at risk in the workplace. The Human Genetics Advisory Commission will be replaced at the end of the year by a human genetics commission. The government has promised it will represent a wider range of interests and include both doctors and patient representatives. Appointments to the new body have yet to be made.
Insiders say only one person with disabilities is on the shortlist so far.
Much of the discussion in the disability movement is around what might happen genetic testing is still in its infancy, although scientists expect rapid progress. Not everyone fears the future. The Radar survey found about a fifth of respondents were hopeful about the current developments. Indeed, some were concerned that alarm over testing may impede progress. Overall, people with disabilities want to be in on the debate now.