At the suggestion of Dr Stickler, we are setting up a doctor s panel, where lay people can ONLY sit in and listen. PLAN NOW to join us then. In the mail, today, we received an announcement about an upcoming Stickler Syndrome Support Group workshop. Dr A Rai will speak, with a question and answer session. No nursery will be available.
Email is available.
We found a list of numbers that you might need for further assistance. Contact Pat for NIH study.