Their board has denied me the surgery. They tell me I'm going to die in 5 years and that if I have the surgery I will most likely get worse faster and die shortly after 2 years. I am convinced that the surgery will help me. I believe that my lungs will still rebound if I could fill them up completely, but they have expanded to the point that this is not possible. I know that I can't fill them up.
Any information is appreciated.
My husband had LVRS at Barnes in May 1998. He is now off O2 and enjoying life. We did it as self pay and then appealed Medicare's non payment of benefits and won. You all know I am going on six years since mine was done. I just recieved an E Mail from someone who reads this forum board and he was in the Nett Study at Brig and Womens in Boston.