The next morning, doctors confirmed Laura had Cystinosis. Frankie collapsed in the hospital, screaming. Later that day, Laura saw her father cry for the first time. She didn't understand why, but she'd had her share of tears and pain. At the start, the McGinnises didn't know what they were up against.
Doctors say they've made great strides in recent decades in battling the disease.
But much remains unknown, says Frankie, as she stands in her Greer home preparing Laura's morning medicine. Daily, the McGinnises learn. Frankie learns to stifle tears. J.T. learns not to storm through the house, silent and angry. Together, they learn to move on.