The improvement has been huge however. I now rarely need to support my head anymore. Walking longer distances is getting easier and easier. The intention tremor in my hands has begun to improve. I can sit through a 3 hour concert without discomfort ruining the experience.
Life again holds promise of great adventures.
The improvement from Valtrex is slow and seems to follow the pattern of two steps forward then one step back. At first this can be very discouraging and in fact there can be periods during the first several months where you feel worse than when you started. Several of Dr. Lerner s patients have reported having to quit working during this time, but eventually these very bad periods become less and less difficult. Some patients who have not had as long standing a disease as I have, have reported complete disappearance of symptoms within six months, others are still getting better after two years. It may not be the answer for drug induced or injury induced dystonias even though it remains possible that the virus finds an opportunity to establish itself in nervous tissue damaged in these ways.