We try to awake him, but the only thing we are ever re-assured of is that he is breathing. This, of course means that we must figure out ways to get liquids and nurishment into him. My son has home care and therapy weekly. He is limited in the amounts of time he can spend at school. Last year he had to quit all together and be taught at home.
Friends are far and few between.
I love my children very much. Life is difficult for them. It does not need to be as hard as it is though. The love to laugh, play, learn, drive, do anything any other child might want to do. They are just like us, only they have an illness.