I hope that these proposals go some way to reassure the public. They will also give the Commission the opportunity to consult further and devise an enforceable system which can enjoy the confidence of everyone. Notes for editors 1. In November 2000 HGC published a discussion document 'Whose hands on your genes' as part of its review on the storage, protection and use of genetic information. The consultation period was originally due to end on 28 February but has been extended to 23 March 2001.
Copies are available from contact details above.
The HGC commissioned MORI to carry out a detailed survey of people's attitudes to genetic information using the People's Panel. There was clear opposition to the use of genetic information by insurance companies and this varied little by age, gender or across ethnic minorities. Four out of five people believe that genetic information should not be used for setting insurance premiums. To advise on strategic priorities for research. To develop and implement a strategy to involve and consult the public and other stakeholders and encourage debate on the development and use of human genetic technologies and advise on ways of increasing public knowledge and understanding.