Full disclosure of clinically relevant information. Confidentiality, except when information could avert serious genetic harm to family. Privacy from employers, insurers, etc. Prenatal diagnosis only for health of fetus. Availability of and respect for choices, including abortion choices.
Guidelines apply equally to adopted children.
Research follows protocols and informed consent. Includes preimplantation diagnosis. National review for gene therapy protocols. Suggested Changes Rejected by the Authors 1. The process by which the document was developed appears in Table 12.