Send us your Feedback For our privacy policy, click here . For our user agree- ment, click here . Our hearts go out to her family. What wasn't said was she will most likely require extremely expensive long-term care. As parents of premature special-needs babies, we speak from experience.
Hospital discharge is only the beginning.
They don't exist. Medically fragile children require such things as ventilators, heart and oxygen monitors, feeding tubes, suction machines, oxygen tanks and wheelchairs, to name a few. They require in-home nursing care to be able to live with their families. The families provide 8 to 12 hours per day of their child's care, but they can't do it alone and need outside nursing help. Families with a medically fragile child have to deal with the stress of their child's disability every single day, and then they have to fight for the basic human right to keep their child cared for at home.