Networking begins when families make that first outreach for connection or service. A network can be as small as a group of 3 individuals or as large as membership in a large advocacy group. The people in your network will reduce your isolation, provide information and resources, respond in emergencies, and provide love and concern. As you start to search for a respite provider and respite funding, you are building your own network. Read newsletters and information available to families Advocacy Families may need to become advocates for respite services and funding.
Advocacy is the process of pleading the cause or defending the rights of another.
It is the natural outgrowth of families acquiring services for their loved ones. Families are sometimes surprised to think of themselves as advocates for their family member. However, this role is essential due to the scarcity of social services and support programs. It is putting your family first and expecting the best. An individual hired directly by the family and not providing respite through an agency affiliation.