Eventually we found an agency approved by HRA that allows you to hire and train your choice of aides. As backup I seem to miss a lot of work. Sometimes we have an extra person to call, most times not. By choosing our own we interview until we find the right people. Hopefully they stay awhile because they also burn out with the long hours.
Healing is a slow process for the survivor and the family.
You need time together away from the hospital or from the house. Go on a family trip to the circus or the mall. Have patience and try not to fight over the trivial issues. It is important to have a chat room like this. Thanks for chatting with us and asking such good questions.