I know that some moms don't get to breastfeed, and that some parents don't get to watch their babies crawl or stand or walk. I know how hard that is. There were a lot of things that as her parents we had to get beyond. I think that's always the case when you end up with a 'different' child. For instance, it wasn't always easy to pay attention to the gifts she brought to us.
Differences can be painfully apparent, and the parental guilt sometimes all consuming.
Both of these are tremendous barriers to be crossed to reach a state of peace and acceptance. I learned not to let health professionals give us all the negatives. Never accept words and actions that communicate the word 'never'. As daunting as it might appear, I learned that the Internet is a friend. Though searching for information and support can be time consuming, the effort is worth it.