Antibody Sampling should be done every three months for 18 months. The baseline sample will be stored. For patients with positive results, samples should continue to be submitted every three months until two consecutive negative results are obtained. The quantitative MRI and DEXA are recommended at baseline and every 12-24 months. The bone scan is recommended at baseline and prn if symptomatic.
Bone age is recommended at baseline with appropriate follow up if baseline is abnormal.
Optimally, obtain hips to below knees. As an alternative, obtain hips to distal femur. Ideally, QOL should be assessed every 6 months using a standard and valid instrument. Use this link to get Adobe Acrobat Reader . This is the program you will need to view PDF Files.