They told their story and of the difficulties in reaching a diagnosis. This donation enabled us to offer this video to members of the Society of Glycobiology and other physicians around the world. Over 5000 brochures have been mailed out. Some of the physicians we have targeted are pediatric neurologists and gastroenterologis around the world. Every information package we mail out includes a brochure.
Brochures are available free to any family or physician.
California Family Profiled. The Yieder's story appeared in The Ventura County Star, December 26, 1997. This is a portion of the article. From the beginning, the Yeiders knew something was not right with their son. Although he weighed more than 6 pounds at birth, doctors noted early on that Hunter exhibited what they termed a failure to thrive.