Additionally, we hope that clinical testing will be developed to positively diagnose these conditions and identify the carriers. In some cases hearing, balance, and visual testing may be requested. We are committed to the principle that participants in this research are fully informed and aware of the risks and benefits of that participation. These are described in informed consent documents, which you will be asked to read and sign. The research group is eager to make participation easy with no cost to families.
All information is kept strictly confidential.
Since 1989, the Usher Syndrome Research Group of Boystown National Research Hospital have described their findings in over 25 papers published in various scientific journals. Return to Home Page or Parent Page .