The Directory of Pediatric Neurosurgeons Published in 1991, updated in 1994, the Directory is the first resource of its kind available to the general public. 162 neurosurgeons are listed with addresses, both alphabetically and geographically. A 12 page newsletter is published quarterly. A nationwide network of individuals listed in Directory format giving our members direct access to others in similar circumstances. Directory of Hydrocephalus Support Groups Published in 1994, the Directory lists information on sixteen Hydrocephalusgroups nationwide.
All resources are free to families.
The National Easter Seal Society, founded in 1919, is a voluntary health agency providing direct rehabilitation services to people with disabilities. The Society has affiliates in the 50 states, the District of Columbia, and Puerto Rico. Program services are provided by affiliates in over 400 locations throughout the country to people with any type of disability. The Society's Washington office advocates passage and implementation of legislation providing equal rights to people with disabilities. The Foundation also seeks to remove stigma from those with hydrocephalus, collect and dissemiate information, counsel parents on specific problems encountered as a result of hydrocephalus in their children, create a consumer pressure group to get government funding for research, obtain health insurance covering this disease, and to form local chapters to help accomplish these goals.