Wounds may cover much as 75 percent of the child's body. Imagine a diet of only liquids or soft foods because blistering and scarring occur in the mouth and esophagus. Scarring also causes the fingers and toes to fuse, leaving deformities which severely limit function. Imagine a life tied to hospitals for wound treatment, blood transfusions, biopsies and surgeries. The eyes often blister preventing sight for days.
Chronic anemia reduces energy and growth is retarded.
There is little hope for life beyond 30 years. This describes the life of a child born with the severe forms of epidermolsis bullosa. All Rights Reserved.