Most members suffer from some form of RP or Macular Degeneration, some have relatives with RP, and some work for institutions involved with RP research.
Any member can send a message to the list and ask a question or raise an issue of interest.
The emphasis is on personal experience, although medical and other information is also welcome. Note that there are other lists for blind people on the Internet, but this one focuses on issues specific to RP, such as low vision, gradual visual loss, night blindness, etc. We have grown to over 800 in that time. We are spread across the globe with members in most countries. The discussion is lively, often humerous, usually informative and always friendly.