Parents will find it very useful to join ISBA, where they can meet other families with similar needs. ISBA can serve many purposes, but primarily they offer parents a place and a means to share information, give and receive emotional support, and work as a team to address common concerns.
All questions are optional and are asked only for purpose of better understanding.
No information will be released without your permission, therefore we need this information before we can register your child in our Association. List Hospital and date. You may let another parent whose child has a similar disorder call me to talk. I would like information about any support group for my child's disorder. You may release my name to people interested in contacting families about research involving my child's condition.