But with me, I never had to do that before. So I wanted to be able to do everything I had been doing. I didn't want to give up anything, and it just got to the point where I didn't have the energy or the ability, so I had to adapt. I gave up a lot of extracurricular activities and a lot of things that I like to do, so that I could just get through the day. Just get in the shower, get dressed, and come to work.
Adaptation is very important.
Beeker says she would encourage any woman with a genetic disorder to get genetic counseling. Just being prepared and knowing that you have researched and you know what the chances are, what the odds are. For some of the disorders there is testing now.