Change is good, movement from one place to another is good, and usually the headache was gone the next time I asked. I knew I wanted to know their DNA status early. If the child did not have VHL, I could stop worrying about that one. If the child did have VHL, I could take sensible precautions. At five he has already had one round of scans and he did very well.
Children are quite flexible at young ages.
Personally I think it's much better to find out at a young age than at 15 or 18 when they are feeling defiant and unsure of themselves anyway. My son is 27 now, so when he was little there was no DNA testing. The only option I had was to worry and be as watchful as possible. I had it on his chart with the pediatrician from the very beginning that there was VHL in the family, and I asked the pediatrician to watch for signs of any neurological issues. If there were VHL, he said, he would have seen it by now.