We are an independent organization not affiliated with any other group. CFRI's volunteer executive board and general membership plan fundraising activities and make all funding decisions. A research advisory committee of physicians and scientists offers guidance on which research to fund. CFRI raises funds through personal mail solicitations, memorial and general donations, and special events.
Cystic fibrosis is the most common lethal genetic disease in the United States.
Patients with CF suffer from chronic lung disease and digestive disorders, which may require frequent hospitalizations. At present, only half of those with CF survive to adulthood. Many of us at CFRI are intimately aware of the suffering CF can cause. We have also witnessed how it can inspire families to work with dedication, love and cooperation. Recent research discoveries indicate that a cure or control for cystic fibrosis may be finally within reach.