We have taken him regularly ever since, with great improvement in the beginning, and continued visits to maintain good alignment. His comment on scoliosis is that if Kyle gets adjusted regularly, then he is at significantly lower risk of it. Kyle has had 2 episodes of jaundice, the first one the worst, with a bilirubin as high as 8.0 and with liver enzyme elevation. Ultrasound reveals an enlarged liver. We are trying to alleviate his itching and control the bilirubin and enzymes with a medication called actigall.
Blood tests reveal little change from the mild elevations of bili and enzymes.
However, we will check again in a couple of months. We think we notice a pattern of slightly elevated bili every time he has a viral illness. For a year now he has been using a negative pressure chamber for RMR instead of nasal Cpap. We started out with a plastic box, which we cut a hole in for his head to come through and put a piece of raincoat on it to help seal it. We now have a commercially made chamber which looks a little like a miniature submarine.