He is not. Michael would end up very sick or perhaps near death. But according to new federal guidelines Michael is not even considered disabled. Or SSI benefits. 420 dollars a month Shannon uses to keep her little boy alive.
Cystic fibrosis is the deadliest genetic disease in the u-s.
If not taken care of properly, kids like Michael end up in the emergency room. And a life expectancy of only 30 years is made even shorter. Diana Courigan doesn't let those odds stop her from working towards a cure. She heads the cystic fibrosis foundation in central New York. Courigan gets a lot of help from Syracuse mayor Roy Bernardi.