Specific triggers of the disease, whether genetic, infectious, or environmental are still unknown. The Val A. Browning Charitable Trust has funded a three-year project at the University of Utah in the Department of Pediatrics to create a comprehensive registry of children with Juvenile Rheumatoid Arthritis in Utah and the Intermountain West. The purpose of this Registry is to determine if children with JRA have relatives with JRA, or other rheumatic or autoimmune disorders. The Registry will serve as a resource for studies into the epidemiology, treatment, and outcome of childhood rheumatic diseases. The Registry has been reviewed and approved by the Institutional Review Board that oversees research with human subjects at the University of Utah.
All information pertaining to individual participants is kept strictly confidential.
The names and personal information in the Registry will not be published, placed on the web site or released to any party in a way that can lead to identification of individuals. Participants in the Registry will be able to receive information on JRA, but the Registry cannot offer any health care services and is not a replacement for care with your child's regular doctor. For information about Rheumatic Fever please go here.