If protective provisions are not in place, the courts will make important decisions. Physical, social, financial and legal issues must be considered. Siblings and service agencies are important when planning for the future of mentally retarded adults, especially if aging parents require assistance . Medical observations confirm that aging occurs earlier in persons with Down syndrome than in the general population. Alzheimer's disease is estimated to be three to five times greater in individuals with Down syndrome than in the general population.
Behavioral changes resulting from depression often accompany physical changes.
Recognizing that some parents may also become dependent on their adult child with Down syndrome, the first step to finding help for the family may be through home care. Medicaid provides some home services. However, each state has its own regulations, and resources vary in number, location and capacity to serve. Use of respite services in the home with another family, a family member or in a group setting, will demonstrate that even at an advanced age a person with Down syndrome can adapt and thrive. Everyone needs a chance to achieve the maximum level of independence possible.