Below is a list of the headquarters for the nine different groups, a brief description of the research focus for each, and information about whom to contact if your family is willing to participate in the study. Each of the nine multi-site projects focuses on some unique aspect of the problem, but all will study the causes of autism, brain development, and behavior in autism. They will all use a common diagnostic system, family history, and shared aspects of procedures and protocols. Some common measures will also be used across all projects to allow for rapid replication of findings and to address some questions that no single project can answer independently, said Dr. Alexander. There is no charge for any service provided as part of the research studies.
All eligible subjects receive free diagnostic and neuropsychological evaluations.
Because of research requirements, each study has eligibility criteria for participation. Genetic studies involve drawing a blood sample. The others do not. These families are known as multiplex families. Both projects include scientists who have found genes for other disorders and clinicians who are among the most experienced in the world in diagnosing autism.