Helping the Helpers News from SPSP Helping the Helpers Successful caregiving is the cornerstone of optimal care for patientswith progressive supranuclear palsy. Maintaining a home-life witha spouse or parent with PSP can be a rewarding experience. Tocare for a love one and feel good about the caregiving role, itis important to receive recognition for a job well done as wellas caring for yourself. Even the most loving and compassionate caregiver is susceptibleto physical and emotional strain.
Caregivers often experience anger, self-pity, frustration,guilt, and at times, depression.
They may be reluctant to discussthese feelings with others, fearing rejection or being labeledas uncaring or selfish. Caregiving is a demanding role and thesefeelings are expected. In addition to the emotional stress ofcaregiving, the physical demands may be equally stressful. Learn to relinquish care. Thismay include hiring a home health aid, utilizing adult day careservices, or if safety permits, leaving your spouse alone forseveral hours while you pursue your own interests.