Physiatrists are physicians who work with chronic neuromuscular conditions. Periodic visits with a neurologist or physiatrist are useful to monitor the progress of FSHD and to obtain referrals to other professionals and services. Physical therapy, including light exercise, helps preserve flexibility. Swimming is especially helpful in this regard by often making many movements easier. One should stay as active as possible, with rest breaks as needed during exercise and activities.
Dieticians can help.
Maintain a good diet to avoid unnecessary weight and reduce stress on already weakened muscles. Some people with FSHD have had their scapula attached to the back to improve motion of the arms. Immobilization of limbs for long periods poses a risk of hastening muscle weakness. An individual who is considering such surgery should consult with their neurologist or physiatrist and an orthopedic surgeon. Discussion of this procedure with individuals who have undergone the surgery is important.