We gave Anne's Pediatrician the paper. It was tucked away in her file and that was that. Nothing was available then. Click here to add your text. In spite of the fact the condition is incurable Click here to add your text.
Accurate diagnosis is essential.
It is important for parents to know, because the child started out normally. It's not something they did. This is so true. For years my Mom blamed herself. She thought she had done something wrong.