Kasarskis said it's not unusual for doctors to have trouble diagnosing the disease. There's no simple blood test or examination that can positively diagnose the disease. It is such a progressive thing that you can't expect physicians or even all neurologists to be well versed in all the nuances of the disease and actively looking for it. Webb knows her prognosis for survival is not good. But she does want to get involved with the local ALS Association in order to help others afflicted with the disease.
Cancer is bad, but at least there are medicines and treatments to fight it.
And a lot of people who get cancer live to tell about it. With ALS, that's not the case. When I was diagnosed, there were very few resources available around here, and I called all the way out to California to get in touch with the ALS Association out there. This new regional chapter will be really good because it will give us some place relatively local that we can go if we need help or just need to know something. All rights reserved.