A network of Area Support Families who provide local support and are experienced in the needs of MPS children. An annual conference where families and professionals can share knowledge. An information resource including booklets on specific MPS diseases. A newsletter which links families around the world. Practical help and assistance in areas of health, welfare, education, home adaptations and respite care.
Children can now receive specialist care.
Research, the key to a cure. We are actively involved in supporting several avenues of research which may result in effective treatments for MPS in the future.