The facts below are all things I have read in various scientific papers and articles published on the web. By October 1989, only 13 CNM patients were known in Finland which has a population of 5 million. In a report three children with NM were noted to experience malignant hyperthermia induced by anaesthesia for surgery. Heart rate decrease and body temperature increase occurred. Anaesthetists should be informed of a nemaline diagnosis.
Body builders are particularly at risk as they want quick results.
Some people with NM have tried taking creatine. Few have noticed any effect. A new lethal case of nemaline myopathy is reported. A few parents have tried giving tyrosine to their NM child. Most report little or no change.