It can't hurt. Seeking a specialist and relying on his or her expertise should dispel any concern that your case has been misdiagnosed. Keeping secrets from family members is not a good way to foster healthy family relationships. Siblings often feel either responsible or guilty about their own health. Children should be reassured they were not responsible and informed that their brother or sister has a weakening condition that will require additional assistance.
Children cope better in a truthful environment.
The Muscular Dystrophy Family Foundation conducts no research programs. We focus on providing adaptive equipment and emotional support. If you cannot find a genetics counselor, contact the Foundation office for a list of counselor's in your area. You may also wish to ask your family doctor. The equipment used by someone with muscular varies with type and severity of the disease.