I guess I've figured there's nothing I can do about it, so why bother. I do my best to get along. There have been no conclusive remedies, but there are all sorts of things in this newsletter that I have learned and will try. As far as the doctor offering treatment options, it was only the diet thing that I had already figured out on my own, empirically, over the years. Same goes for guidelines for daily management.
Diagnosis is critical to understanding how to keep the disorder in check hour by hour, day by day.
Knowing the importance of exercise, rest, and nutrition has helped. It s also helpful for my physician to know that when I have viral or bacterial symptoms with fever, I need immediate medical attention. I have benefited from having a name for my condition so I could seek the expert knowledge of a geneticist. I am learning new ways to handle my condition all the time. I am more careful with the known triggers now.