My husband has had his splein removed,weighed 9 lbs. Now has high red and white count and platlets are down to 75. This has been going on for 3 or 4 years. He is 69 years old. He also has congestive heart failure as a result of all this.
Comments Update on FSGS status, pancytopenia.
I've done quite well, despite my diagnosis with the collapsing variant of Focal Segmental Glomerulosclerosis. Much to my doctor's surprise, I have made a significant recovery. Along the same note, my pancytopenia has completely resolved. The only ongoing problem I experience is idiopathic hypogammaglobulinemia, requiring me to get IVIG infusions every couple of months. I produce my own antibodies, and my qualitative response to vaccinations is excellent, but for some reason my total IgG titers steadily drop, and no one knows why.