Program features preliminary results of NIH study presented by Dr. Charnas. Fall Committee established to begin planning Lowe's Syndrome Comprehensive Survey Project. Annual parent directory lists 80 families, including families from Sweden and Northern Ireland. Willen Drug Co. gives financial support for second printing of LSA booklet. Summer Comprehensive survey questionnaires sent out.
Committee begins to analyze results.
October Workshop on Behavior Problems in Lowe's Syndrome held in Wilkes Barre, Pennsylvania, featuring presentations by physicians, teachers, and the Comprehensive Survey team. Total LSA membership is 270, including 105 families. Kaye McSpadden announces desire to step down from presidency. Board begins to plan for leadership transition. 1990 January Regional support network developed.