No messages are screened for content. I too have left several posting on MGH, searching for people with Superior Oblique Myokymia. Much of what you mention is part of this disorder. I would be happy to talk to anyone who would like more information on this condtion, which affects the superior oblique muscle, and is caused by the 4th cranial nerve. Symptoms are double vision that is caused by an actual tilting of the eyeball, from the inside corner to the outside upper corner, and a jumping or shimmering in the affected eye.
All tests are negative.
Many people have been misdiagnosed with MS or Myasthenia Gravis. Let me know if I can help. I don't know much, but I'll be happy to share what I do know. Next Article Previous Article Return to original Article Click HERE to return to the main Neurology WebForum Homepage.