One quarter of what should be spent based on population numbers alone. However, population numbers alone should not determine the budgetary level of importance. The burden to society must be considered as well as scientific opportunity. Individuals with development disability and mental retardation create an indisputable burden to society, not just in terms of health care but in special educational needs and in lifelong dependency. Money spent to cure these problems would be an investment in the future and potential of these individuals, and their caregivers, as well as an investment in the future of the nation as a whole.
Chromosome abnormalities represent a significant clinical and social burden.
The very nature of chromosome abnormalities means that multiple body systems are affected. Individuals with chromosome abnormalities usually require many medical interventions, not to mention many supportive therapies such as physical, occupational and speech therapy. This places a burden on families that is often overwhelming. One parent may have to give up a job in order to meet the appointments of all the different medical specialists and therapists. The other parent is often locked into the same job for fear of losing health insurance.