The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. The first chapters of this book set out a framework for analyzing genetic privacy and confidentiality, comparing genetic privacy with other forms of medical privacy. In the concluding chapter, Mark A. Rothstein discusses flaws in existing and proposed legislation designed to protect genetic privacy and confidentiality, and he offers a new set of guidelines for policy makers.
Brain trauma is the leading cause of death among children and young adults.
This book, the first comprehensive, accessible book on traumatic brain injury, explains what it is, how it is caused, and what can be done to treat, cope with, and prevent it. He illustrates each aspect with dramatic case studies, including his own childhood brain injury. He explains how the brain works and how severe injuries affect it, both immediately over the long term, pointing out how resources are often squandered on patients with poor prognoses and adequate insurance, while underinsured patients with better prognoses do not receive appropriate care. He tells about the lack of regulation in the rehabilitation industry and what federal and state legislatures are doing to correct the situation. The fourth edition of this widely respected treatise discusses rulemaking, enforcement, and adjudication under the Occupational Safety and Health Act.