Summer Comprehensive survey questionnaires sent out. Committee begins to analyze results. October Workshop on Behavior Problems in Lowe's Syndrome held in Wilkes Barre, Pennsylvania, featuring presentations by physicians, teachers, and the Comprehensive Survey team. Total LSA membership is 270, including 105 families. Kaye McSpadden announces desire to step down from presidency.
Board begins to plan for leadership transition.
1990 January Regional support network developed. September Families affected by Lowe's syndrome meet in Crewe, England, at the Parents' Conference sponsored by the Research Trust for Metabolic Diseases in Children. November Zel Dolinsky, Ph.D., presents results of behavior section from LSA Comprehensive Survey Project at the Behavioral Phenotypes Study Group Symposium in Wales. By the end of the year, more people are involved in different leadership roles, including membership, newsletter editor, and newsletter production. June 3rd International Conference on Lowe's Syndrome held in Oak Brook, Illinois.