The effects of epilepsy vary widely from individual to individual but may create medical, economic and social hardships. We, the members of the Board of Directors of the Epilepsy Foundation, the sole national voluntary organization comprised of affiliates serving communities nationwide, representing people with epilepsy and seizures, are therefore committed to an effective advocacy program with the Legislative and Executive branches of the federal government. Our goal is to ensure the provision of and access to essential services, the protection of the rights of individuals with disabilities, and the eradication of epilepsy. Advocate for increased NIH funding of biomedical, psychological, and social research to prevent, control, and treat the effects of epilepsy in individuals and their families. Oppose entitlement reform proposals which would adversely impact programs serving people with epilepsy and other disabilities.
Civil Rights Promote effective implementation and enforcement of civil rights laws.
Work to educate legislators, civil rights organizations, the judiciary and law enforcement agencies on epilepsy related civil rights issues. Oppose legislative or regulatory efforts to weaken the Americans with Disabilities Act, the Rehabilitation Act Amendments of 1998, the Family Medical Leave Act and other legislation offering important civil rights protections to people with epilepsy. Work with the Access Board to implement the changes in the regulations regarding strobe light fire alarms. Support legislation which prohibits discrimination based on genetic information. Oppose efforts to narrow the definition of disability.