You are an individual with individual needs, and your health is important. If you are a parent of a child with cancer, of course you have great concerns about making the best decision for your child's care. As you decide about treatment, if it is in a clinical trial or not, remember that you are not alone. There are many people to help you doctors, nurses, social workers, clergy, your family, friends, and other patients. Although is it YOUR decision, they can help you think about it and decide what is best for you.
Costs are a major concern of patients and families.
Different arrangements and policies exist at different institutions and, of course, insurance coverage varies. Patients should freely discuss what costs are involve their cases ahead of time. If you need financial aid, contact the hospital social services office, the Cancer Information Service, or the local American Cancer Society Chapter. They may be able to direct you to a source of help. Informed consent, a key part of a good trial, is required in studies that are federally regulated or funded as well as by many state laws.