After a tasty picnic lunch, the girls enjoyed a dip in the hot tub and the families enjoyed visiting and swapping ideas. Many thanks to Susan and Larry for their wonderful hospitality. Speakers include many respected professionals with experience in Rett syndrome.
Additional information is enclosed.
Our topic will be a discussion of new information presented at the International Rett Syndrome Association's 1993 conference last June. Families and friends are encouraged to attend. In order to make progress in finding a treatment and cure for Rett syndrome, we need to spread awareness of the syndrome to doctors, hospitals, therapists, teachers and other families who may not yet be diagnosed. There are many things you can do to help, including passing information to your daughter's teachers and doctors, writing local papers and TV stations and asking them to do feature stories, writing your mayor to ask for a proclamation that October is Rett Syndrome Month in your town. My biggest project for Rett Syndrome Awareness Month has been to write all 125 hospitals in Indiana to tell them about Rett syndrome and to pass on information about IRSA and about our state-wide group.