What's Happening in the States 51 state coordinators give updates on the status of state health programs for children with special needs. Each state also has a Family Voices contact person and telephone number. Included is a glossary of technical terms and state contact information. Your state needs to hear from you in order to ensure that genetics service needs are included. If you wish to learn more about what your state is including in its block grant proposal, contact your state Children with Special Health needs office in the Maternal and Child Health Division in the HHS office.
Conference calls on children's health issues take place weekly.
Ask for the Children's Health Campaign Call. A comprehensive website that contains information and resources and provides chat rooms for people with a range of disabilities, their families, and their healthcare providers. This website links to the Clinical Center at the National Institutes of Health.