Our Network consists of 12 families scattered throughout New Zealand. Our contacts generally come through the craniofacial clinics and it seems the adults do not attend these clinics. Where permission has been given we share the contact details of existing members, allowing them to contact others as and when they feel ready. In Auckland we now have three families affected by Apert Syndrome and we meet every few months. We send out newsletters every 3-4 months as time and energy permits, and keep in touch by phone or mail.
Craniofacial surgery is carried out in the main centres of Auckland, Wellington and Christchurch .
Currently the surgery for our children is provided within the public health sector at no charge, however our first-ever coalition government has just been formed and we don't know what the future will hold. If anyone wants to know more about us here in New Zealand, it would be great to hear from you. December 1996 all photos and text are the property of the families represented, and may not be used without their consent.