The ten members of your new Board of Trustees, elected at the AGM in June, have been busy planning the development of the group during the coming year. The Board members meet four times a year and travel from far and wide, to attend meetings.
Contact is maintained between meetings by telephone, fax, letter and, increasingly, by e-mail.
Small sub-committees are also formed to deal with financial planning, the planning of conferences and clinic days, and to explore research. As the group grows, so the work of the Board increases and we are very grateful to the Trustees who give so generously of their time and energy to ensure the smooth running of the group. We are always in need of new Board members. If you are interested in helping with the work of the group please contact Jim Green, our Chairman, via the Helpline 01592 580672. The purpose of the Niemann-Pick Family Directory is to provide affected families with a means to contact each other for support and sharing of information.