Heather's older sister Amanda loves to help take care of her. The most important thing to remember is that no matter what decisions you make for your child with RCP, always know that you have done the best you can in the situation. Now comes the hardest part of this page to write. I have another child who is perfectly healthy and we are not given these children with a guarantee of how long we get to keep them. Only God knows the time and place of anyone's death.
All people have different ways of dealing with illness, death, and grief.
This is the way that I choose to deal with what life had dealt to me. Where there used to be hate for what has happened in my life there is more LOVE than I could possibly show. A mother's love is without end. All children with RCP will die, usually before they reach their teens. Parents often worry about their child's death, how it will happen and whether their child will suffer.