It appears to this observer that this sections is deliberately minimalist, as if to avoid the issue of unique and incontrovertible consumer identification. Again, we would caution against leaving room for detractors to assume the offensive. The benefits to the security and confidentiality of the information can to be demonstrated with proper identification and access authorization mechanisms, for both consumers and care providers. Similarly, health care providers must be adequately identified and authorized, to contribute data. The world is becoming a networked environment.
Access is more relevant than storage.
The data itself can reside anywhere and everywhere. Obviously, too, there are the issues of need to know, but these are closely aligned with who I am . A roll-out of any system involves a phased approach. If it is to benefit the ultimate consumer, then it should be inclusive for a specific group of consumers, presumably geographic or community based. Logistically, this still represents challenges of data acquisition.