As I write this I am 8 weeks post-op and feeling much better. I still have some nerve pain and leg spasms, but those are being managed just fine with physio, medication and just plain determination. Because I waited so long to tell anybody, and because it took so long to get to surgery, a lot of the damage done was permanant. It all could have been reversed if caught early enough. No matter what they say, Tethered Cord is a reality for people with lipomeningomyelocele well into their adult years.
Careful monitoring can prevent problems later in life.
I love my life and wouldn't have it any other way. I don't know how to be 'able-bodied', therefore don't regret being in a wheelchair. There is so much ahead for kids born with LMC nowadays and parents don't need to worry about half the things mine did due to much progress in medical technology since my diagnosis.