cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.25504/fairsharing.665919
title: FAIRsharing record for: Biotechnology — Predictive computational models in personalized medicine research — Part 1: Constructing, verifying and validating models
title: ISO/TS 9491-1:2023

description: This FAIRsharing record describes:  The document defines challenges and requirements for predictive computational models constructed for research purposes in personalized medicine. It specifies recommendations and requirements for the setup, formatting, validation, simulation, storing and sharing of such models, as well as their application in clinical trials and other research areas. It summarizes specific challenges regarding data input, as well as verifying and validating of such models that can be considered as best practices for modelling in research and development in the field of personalized medicine. This document also specifies recommendations and requirements for data used to construct or needed for validating models, including rules and requirements for formatting, description, annotation, interoperability, integration, accessing, as well as recording and documenting the provenance of such data. This document does not provide specific rules or requirements for the use of computational models in the clinical routine, or for diagnostic or therapeutic purposes.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.78ae71
title: FAIRsharing record for: Brain Imaging Data Structure, extension for arterial spin labelling
title: ASL-BIDS

description: This FAIRsharing record describes:  Arterial spin labeling (ASL) is a non-invasive MRI technique that allows for quantitative measurement of cerebral perfusion. Incomplete or inaccurate reporting of acquisition parameters complicates quantification, analysis, and sharing of ASL data, particularly for studies across multiple sites, platforms, and ASL methods. There is a strong need for standardization of ASL data storage, including acquisition metadata. Recently, ASL-BIDS, the BIDS extension for ASL, was developed and released in BIDS 1.5.0. This manuscript provides an overview of the development and design choices of this first ASL-BIDS extension, which is mainly aimed at clinical ASL applications.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.8f3fdc
title: FAIRsharing record for: Genomics informatics — Phenopackets: A format for phenotypic data exchange
title: ISO 4454:2022

description: This FAIRsharing record describes:  The document specifies a uniform, machine-readable, phenotypic description of an individual, patient or sample in the context of rare disease, common/complex disease or cancer.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.3ec89d
title: FAIRsharing record for: Brain Imaging Data Structure, extension for electroencephalography
title: EEG-BIDS

description: This FAIRsharing record describes:  An extension to BIDS for electroencephalography (EEG) data, EEG-BIDS, along with tools and references to a series of public EEG datasets organized using this new standard.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.7e6e4a
title: FAIRsharing record for: Brain Imaging Data Structure, extension for Near-InfraRed Spectroscopy
title: fNIRS-BIDS

description: This FAIRsharing record describes:  Extension for Near-Infrared Spectroscopy (NIRS) to the BIDS format; adds Shared Near Infrared Spectroscopy Format (SNIRF) file specification support in BIDS.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.e24e4b
title: FAIRsharing record for: Brain Imaging Data Structure, extension for genetic data
title: Genetics-BIDS

description: This FAIRsharing record describes:  The genetics Brain Imaging Data Structure extension, consisting of metadata files for human brain imaging data to which they are linked, and describe succinctly the genomic and transcriptomic data associated with them, which may be in different databases. This extension will facilitate identifying micro-scale molecular features that are linked to macro-scale imaging repositories, facilitating data aggregation across studies.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.4a42e9
title: FAIRsharing record for: Brain Imaging Data Structure, extension for quantitative MRI
title: qMRI-BIDS

description: This FAIRsharing record describes:  Adds a range of quantitative MRI (qMRI) applications to the BIDS. In general, the aim of qMRI is to characterize brain microstructure by quantifying the physical MR parameters of the tissue via computational, biophysical models.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.854a31
title: FAIRsharing record for: Brain Imaging Data Structure, extension for microscopy
title: Microscopy-BIDS

description: This FAIRsharing record describes:  An extension to BIDS for microscopy imaging data, along with example datasets. Microscopy-BIDS supports common imaging methods, including 2D/3D, ex/in vivo, micro-CT, and optical and electron microscopy. Microscopy-BIDS also includes comprehensible metadata definitions for hardware, image acquisition, and sample properties. This extension will facilitate future harmonization efforts in the context of multi-modal, multi-scale imaging such as the characterization of tissue microstructure with qMRI.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.fb19d2
title: FAIRsharing record for: Brain Imaging Data Structure, extension for magnetoencephalography
title: MEG-BIDS

description: This FAIRsharing record describes:  Extension of the Brain Imaging Data Structure (BIDS) to support the specific aspects of magnetoencephalography (MEG) data. MEG measures brain activity with millisecond temporal resolution and unique source imaging capabilities.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.c0bde3
title: FAIRsharing record for: Brain Imaging Data Structure, extension for positron emission tomography
title: PET-BIDS

description: This FAIRsharing record describes:  An extension of BIDS to include positron emission tomography (PET) data, also known as PET-BIDS.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.d9fc14
title: FAIRsharing record for: Brain Imaging Data Structure, extension for intracranial electroencephalography
title: iEEG-BIDS

description: This FAIRsharing record describes:  Human intracranial electroencephalography1,2 (iEEG) data are recorded at specialized medical centers with electrodes placed on or implanted in the human brain3,4. Electrodes can be placed during epilepsy monitoring, tumor surgery, or for deep brain stimulation (DBS).
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.85d5e8
title: FAIRsharing record for: NIfTI extension for magnetic resonance spectroscopy
title: NIfTI-MRS

description: This FAIRsharing record describes:  NIfTI-MRS is proposed as a standard spectroscopy data format, implemented as an extension to the Neuroimaging informatics technology initiative (NIfTI) format.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.bd4fb1
title: FAIRsharing record for: RIVMdata
title: RIVMdata

description: This FAIRsharing record describes:  RIVMdata is a metadata catalog. This catalog is filled with the metadata of RIVM datasets. ISO 19115 and DCAT standards are used as the metadata standards. The catalog consists of an internal site, which is only accessible to RIVM employees, and an external site, in which the metadata is accessible to the general public.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.3bece3
title: FAIRsharing record for: Connectivity Informatics Technology Initiative
title: CIFTI

description: This FAIRsharing record describes:  The CIFTI file formats are used for the exchange and storage of connectivity data.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.437643
title: FAIRsharing record for: Geometry Informatics Technology Initiative
title: GIfTI

description: This FAIRsharing record describes:  GIfTI is the Geometry format under the Neuroimaging Informatics Technology Initiative (NIfTI). Basically, it is the surface-file format complement to the NIfTI volume-file format .nii. 


description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.0564ce
title: FAIRsharing record for: HL7 Annotated Electrocardiogram
title: HL7-aECG

description: This FAIRsharing record describes:  HL7 aECG is a XML-based standard medical record data format for storing and retrieving electrocardiogram data.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.529e78
title: FAIRsharing record for: General Data Format for Biomedical Signals
title: GDF

description: This FAIRsharing record describes:  The General Data Format for Biomedical Signals is a scientific and medical data file format. The aim of GDF is to combine and integrate the best features of all biosignal file formats into a single file format. Version 3 of GDF is an official Austrian Standard.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.a1e975
title: FAIRsharing record for: Open electropathophysiology data format
title: OpenEP

description: This FAIRsharing record describes:  OpenEP is a cross-platform electroanatomic mapping data format and analysis platform for electrophysiology research.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.315237
title: FAIRsharing record for: ISO 41064:2023 Standard communication protocol Computer-assisted electrocardiography
title: ISO 41064:2023

description: This FAIRsharing record describes:  SCP-ECG (Standard communications protocol for computer assisted electrocardiography) is a standard for ECG traces, annotations, and metadata.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.e17e19
title: FAIRsharing record for: Signal Markup Language
title: Signal ML V2.0

description: This FAIRsharing record describes:  Signal ML is a XML-based meta-format for biomedical time series data.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.637885
title: FAIRsharing record for: minimal Common Oncology Data Elements
title: mCODE

description: This FAIRsharing record describes:  The Minimal Common Oncology Data Elements (mCODE) project is a consensus data standard created to facilitate transmission of data of patients with cancer, developed through a work group convened by ASCO.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.dfd362
title: FAIRsharing record for: Scalable Open Network Architecture TemplAte
title: SONATA

description: This FAIRsharing record describes:  SONATA is a data format for efficient description of large-scale network models.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.11f3f3
title: FAIRsharing record for: Mutation Annotation Format
title: MAF

description: This FAIRsharing record describes:  Mutation Annotation Format (MAF) is a tab-delimited text file with aggregated mutation information from VCF Files.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.9af409
title: FAIRsharing record for: Binary Call Format
title: BCF

description: This FAIRsharing record describes:  BCF, or the binary variant call format, is the binary version of VCF.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.f32dd3
title: FAIRsharing record for: Sequence, Position, Deletion, Insertion
title: SPDI

description: This FAIRsharing record describes:  The SPDI data model defines variants as a sequence of four attributes: sequence, position, deletion and insertion, and can be applied to nucleotide and protein variants.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.158e6c
title: FAIRsharing record for: IsoBank
title: null

description: This FAIRsharing record describes:  IsoBank is a multi-organization effort to build a common repository for stable isotope data. Our goal is to provide a common repository for stable isotope measurement data originating from any context, and to support easy location and access to this data by the research community. The IsoBank repository provides a searchable database of stable isotope measurements based on a rich metadata schema developed through community input from researchers who generate and use stable isotope data.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.a03ea9
title: FAIRsharing record for: European Social Survey Data Portal
title: ESS Data Portal

description: This FAIRsharing record describes:  The European Social Survey (ESS) is an academically driven cross-national survey that has been conducted across Europe since its establishment in 2001. Every two years, face-to-face interviews are conducted with newly selected, cross-sectional samples. The survey measures the attitudes, beliefs and behaviour patterns of diverse populations in more than thirty nations. The ESS data including the integrated data file for each round, methodological data and contextual information are available for download via the ESS Data Portal. Summary data and main data variables are also searchable from this portal.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.41b655
title: FAIRsharing record for: Ringgold Identifier
title: Ringgold ID

description: This FAIRsharing record describes:  The Ringgold ID is a Persistent Identifier (PID) that assigns a unique numerical identifier to organizations for use across the scholarly communications sector. Ringgold assigns each organization an Identify Database record ID, and includes organizations which are part of the scholarly ecosystem – licensees, publishers, intermediaries, and funders – as well as those which license and create scholarly content – universities, hospitals, corporations, and government entities. Ringgold is a part of the Copyright Clearance Center (CCC) and contains 600,000+ records encompassing publishers, funders, research organizations, universities, intermediaries, and more.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.a9b7aa
title: FAIRsharing record for: Survey of Health, Ageing and Retirement in Europe Research Data Center
title: SHARE Research Data Center

description: This FAIRsharing record describes:  SHARE, the Survey of Health, Ageing and Retirement in Europe, is a research infrastructure for studying the effects of health, social, economic and environmental policies over the life-course of European citizens and beyond. SHARE-ERIC uses the SHARE Research Data Center to provide the SHARE data as soon as possible with the entire scientific community. Access to the SHARE data is provided free of charge on the basis of a release policy that gives quick and convenient access to all scientific users world-wide after individual registration.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.7f5f06
title: FAIRsharing record for: Universal Trial Number
title: UTN

description: This FAIRsharing record describes:  As part of the WHO Registry Criteria for linking related records on the ICTRP Search Portal, the WHO Universal Trial Number (UTN) is assigned to unambiguously identify a trial, even though it may have multiple registration records (that is, the trial may appear on more than one registry database). WHO UTN assignments are obtained early in the history of the trial, and help to uniquely identify clinical trials registered in WHO Primary Registries, of which are displayed on the WHO International Clinical Trials Registry Platform's (ICTRP) through the search portal.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.