cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.15468/dl.v4hdmz
title: Occurrence Download

description: A dataset containing 2764 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Oreochromis niloticus (Linnaeus, 1758)",
 "Year 2020-2023"
 ]
}

 The dataset includes 2764 records from 37 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0016367-230828120925497/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-638
title: Puteshestvennik = The traveller, vol. 4, no. 3 (May 1927)

description: [description english/roman)] Irregular frequency
DOI: 10.15468/dl.et4awq
title: Occurrence Download

description: A dataset containing 9 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Ginkgo biloba L.",
 "Year 1215-1710"
 ]
}

 The dataset includes 9 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013840-230828120925497/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-151575
title: Suchasnaia sektanctva na Bielarusi = Modern sectarianism in Belarus, 1929

description: [description english/roman)] D. Kajtun, P. Kalajevič. Suchasnaia sektanctva na Bielarusi. (Biblioteka biazbožnika). Miensk, Bielaruś: Bielaruskaje Dziaržaŭnaha Bydaviectva, 1929. = Kaituna D., P. Kalaevich. Modern sectarianism in Belarus. (Ungodly Library). Minsk, Belarus: Belarusian State Publisher, 1929.
DOI: 10.6084/m9.figshare.22899524
title: Participation measures that evaluate attendance and involvement for young people aged 15 to 25 years with cerebral palsy: a systematic review

description: To identify participation-focused measures used for young people with cerebral palsy (CP), evaluate their psychometric evidence, and map item content to the International Classification of Functioning, Disability, and Health (ICF), and family of Participation-Related Constructs (fPRC) frameworks. Four databases (PubMed, Embase, Web of Science, CINAHL) were searched for papers that involved young people with CP aged 15 to 25 years and reported original data from a participation measure. Each measure was examined for validity, reliability, responsiveness (using the COSMIN checklist), clinical utility, the inclusion of accessible design features, self- and/or proxy-report from people with communication support needs, and item content according to ICF and fPRC. Of 895 papers, 80 were included for review. From these, 26 measures were identified. Seven measures (27 papers/resources) were participation-focused, capable of producing a score for participation <i>Attendance</i> and/or <i>Involvement</i>. Of these, all measured <i>Attendance</i> (<i>n</i> = 7) but fewer than half measured <i>Involvement</i> (<i>n</i> = 3). Few included studies (37%) reported including some self-report of people with communication support needs. Participation measures for young people with CP are evolving but require more: (i) emphasis on measurement of involvement; (ii) investigation of psychometric properties; and (iii) adaptation to enable self-report by young people with communication support needs. Identifies seven participation-focused measures which are available for young people with cerebral palsy, all seven measure <i>Attendance</i> and three measure <i>Involvement.</i>Provides a decision-making tool to assist clinicians and researchers with the selection of participation-focused measures for young people with cerebral palsy.Recommends that more accessible self-report measures are needed which capture age-appropriate participation of young people with cerebral palsy. Identifies seven participation-focused measures which are available for young people with cerebral palsy, all seven measure <i>Attendance</i> and three measure <i>Involvement.</i> Provides a decision-making tool to assist clinicians and researchers with the selection of participation-focused measures for young people with cerebral palsy. Recommends that more accessible self-report measures are needed which capture age-appropriate participation of young people with cerebral palsy.
DOI: 10.6084/m9.figshare.22899524.v1
title: Participation measures that evaluate attendance and involvement for young people aged 15 to 25 years with cerebral palsy: a systematic review

description: To identify participation-focused measures used for young people with cerebral palsy (CP), evaluate their psychometric evidence, and map item content to the International Classification of Functioning, Disability, and Health (ICF), and family of Participation-Related Constructs (fPRC) frameworks. Four databases (PubMed, Embase, Web of Science, CINAHL) were searched for papers that involved young people with CP aged 15 to 25 years and reported original data from a participation measure. Each measure was examined for validity, reliability, responsiveness (using the COSMIN checklist), clinical utility, the inclusion of accessible design features, self- and/or proxy-report from people with communication support needs, and item content according to ICF and fPRC. Of 895 papers, 80 were included for review. From these, 26 measures were identified. Seven measures (27 papers/resources) were participation-focused, capable of producing a score for participation <i>Attendance</i> and/or <i>Involvement</i>. Of these, all measured <i>Attendance</i> (<i>n</i> = 7) but fewer than half measured <i>Involvement</i> (<i>n</i> = 3). Few included studies (37%) reported including some self-report of people with communication support needs. Participation measures for young people with CP are evolving but require more: (i) emphasis on measurement of involvement; (ii) investigation of psychometric properties; and (iii) adaptation to enable self-report by young people with communication support needs. Identifies seven participation-focused measures which are available for young people with cerebral palsy, all seven measure <i>Attendance</i> and three measure <i>Involvement.</i>Provides a decision-making tool to assist clinicians and researchers with the selection of participation-focused measures for young people with cerebral palsy.Recommends that more accessible self-report measures are needed which capture age-appropriate participation of young people with cerebral palsy. Identifies seven participation-focused measures which are available for young people with cerebral palsy, all seven measure <i>Attendance</i> and three measure <i>Involvement.</i> Provides a decision-making tool to assist clinicians and researchers with the selection of participation-focused measures for young people with cerebral palsy. Recommends that more accessible self-report measures are needed which capture age-appropriate participation of young people with cerebral palsy.
DOI: 10.15468/dl.fve4je
title: Occurrence Download

description: A dataset containing 1658 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Pristis pristis (Linnaeus, 1758)"
 ]
}

 The dataset includes 1658 records from 70 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0018627-230828120925497/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-151583
title: Suchasnaia sektanctva na Bielarusi = Modern sectarianism in Belarus, 1929

description: [description english/roman)] D. Kajtun, P. Kalajevič. Suchasnaia sektanctva na Bielarusi. (Biblioteka biazbožnika). Miensk, Bielaruś: Bielaruskaje Dziaržaŭnaha Bydaviectva, 1929. = Kaituna D., P. Kalaevich. Modern sectarianism in Belarus. (Ungodly Library). Minsk, Belarus: Belarusian State Publisher, 1929.
DOI: 10.6084/m9.figshare.22699320
title: Individual’s experiences of adjusting to changes in body image after spinal cord injury: a literature review and thematic synthesis

description: To understand how individuals experience and adjust to changes in body image after spinal cord injury (SCI). A systematic search using four databases identified eleven articles that met the inclusion criteria. The studies were critically appraised to determine quality. Interpretative thematic synthesis was used to explore adults’ experiences of adjusting to changes in body image after SCI. Three themes described the influence of sociocultural factors on body image: ‘Sociocultural influences’, ‘Responses of others’ and ‘Experience of rehabilitation’. Six themes described individuals’ experiences of body image. ‘Loss and threat of difference’, ‘Discomfort and disconnection’ and ‘Resistance’ negatively influenced body image. ‘Reconnecting with the body and re-negotiating identity’, ‘Support network’ and ‘Challenging beliefs about disability’ promoted positive body image. Adjustment was a dynamic process, influenced by interactions between individual, relational and sociocultural factors. The physical impacts of SCI, individual’s perceptions, relationships and sociocultural discourses influenced body image. Rehabilitation professionals could support adjustment to changes in body image by considering individual, relational and systemic influences. Furthermore, it is important to include an individual’s support network within their care as social factors influenced body image experiences. Peer support could promote hope and challenge negative sociocultural beliefs about disability. Following spinal cord injury (SCI) individuals described a dynamic process of adjustment to changes in their body image, which can include positive and negative body image experiences.Rehabilitation environments and interactions with clinicians can influence individuals’ body image experiences.Multidisciplinary interventions which consider sociocultural, relational and individual influences on body image may promote positive body image experiences and the renegotiation of identity after SCI. Following spinal cord injury (SCI) individuals described a dynamic process of adjustment to changes in their body image, which can include positive and negative body image experiences. Rehabilitation environments and interactions with clinicians can influence individuals’ body image experiences. Multidisciplinary interventions which consider sociocultural, relational and individual influences on body image may promote positive body image experiences and the renegotiation of identity after SCI.
DOI: 10.6084/m9.figshare.22786409
title: Effectiveness of interventions for school-aged-children and adolescents with fetal alcohol spectrum disorder: a systematic review and meta-analysis

description: To describe allied health and educational interventions and their effectiveness for children and adolescents with fetal alcohol spectrum disorder (FASD). To appraise the quality and strength of studies. Electronic databases were searched between 2005 and March 2022, identifying non-pharmacological studies supporting function, activity, or participation for FASD participants aged 5–18 years using any quantitative research design. Outcomes were coded using International Classification of Functioning, Disability and Health, family of Participation Related Constructs and behaviour categories. Multi-level random-effects meta-analysis examined intervention effects. Study methodological quality was evaluated using Cochrane risk of bias tools, RoBiNT, AMSTAR 2 and NHMRC Hierarchy levels of evidence. Certainty of findings were synthesised using GRADE approach. The systematic review included 25 studies with 735 participants, 10 of which were analysed by meta-analysis. Body function and structure, activity, behaviour, and sense of self outcomes were pooled. A small, positive effect favouring interventions was found (<i>g</i> = 0.29, 95% CI = 0.15–0.43), however the GRADE certainty was rated as low. No participation outcomes were identified. Some interventions targeting body function and structure, activity and behaviour outcomes were effective. Evidence of interventions that support children’s and adolescent’s participation as an outcome is lacking. To address participation outcomes for children and adolescents with fetal alcohol spectrum disorder (FASD), it is important to understand their participation needs and directly measure these.Interventions identified targeted body function and structure, activity, and behaviour outcomes.Participation outcomes of children’s/adolescent’s attendance, involvement and preferences were not identified.A combination of individual- and context-focused interventions is recommended to maximise rehabilitation outcomes for children and adolescents with FASD. To address participation outcomes for children and adolescents with fetal alcohol spectrum disorder (FASD), it is important to understand their participation needs and directly measure these. Interventions identified targeted body function and structure, activity, and behaviour outcomes. Participation outcomes of children’s/adolescent’s attendance, involvement and preferences were not identified. A combination of individual- and context-focused interventions is recommended to maximise rehabilitation outcomes for children and adolescents with FASD.
DOI: 10.6084/m9.figshare.22786409.v1
title: Effectiveness of interventions for school-aged-children and adolescents with fetal alcohol spectrum disorder: a systematic review and meta-analysis

description: To describe allied health and educational interventions and their effectiveness for children and adolescents with fetal alcohol spectrum disorder (FASD). To appraise the quality and strength of studies. Electronic databases were searched between 2005 and March 2022, identifying non-pharmacological studies supporting function, activity, or participation for FASD participants aged 5–18 years using any quantitative research design. Outcomes were coded using International Classification of Functioning, Disability and Health, family of Participation Related Constructs and behaviour categories. Multi-level random-effects meta-analysis examined intervention effects. Study methodological quality was evaluated using Cochrane risk of bias tools, RoBiNT, AMSTAR 2 and NHMRC Hierarchy levels of evidence. Certainty of findings were synthesised using GRADE approach. The systematic review included 25 studies with 735 participants, 10 of which were analysed by meta-analysis. Body function and structure, activity, behaviour, and sense of self outcomes were pooled. A small, positive effect favouring interventions was found (<i>g</i> = 0.29, 95% CI = 0.15–0.43), however the GRADE certainty was rated as low. No participation outcomes were identified. Some interventions targeting body function and structure, activity and behaviour outcomes were effective. Evidence of interventions that support children’s and adolescent’s participation as an outcome is lacking. To address participation outcomes for children and adolescents with fetal alcohol spectrum disorder (FASD), it is important to understand their participation needs and directly measure these.Interventions identified targeted body function and structure, activity, and behaviour outcomes.Participation outcomes of children’s/adolescent’s attendance, involvement and preferences were not identified.A combination of individual- and context-focused interventions is recommended to maximise rehabilitation outcomes for children and adolescents with FASD. To address participation outcomes for children and adolescents with fetal alcohol spectrum disorder (FASD), it is important to understand their participation needs and directly measure these. Interventions identified targeted body function and structure, activity, and behaviour outcomes. Participation outcomes of children’s/adolescent’s attendance, involvement and preferences were not identified. A combination of individual- and context-focused interventions is recommended to maximise rehabilitation outcomes for children and adolescents with FASD.
DOI: 10.6084/m9.figshare.22718538
title: Mind-body exercises for osteoarthritis: an overview of systematic reviews including 32 meta-analyses

description: To develop an overview of systematic reviews (SRs) to summarize the current evidence on the effectiveness of mind-body exercises, specifically qigong, tai chi, and yoga, on osteoarthritis-related symptoms. CINAHL, Embase, PsycINFO, PubMed, SPORTDiscus, and the Cochrane Library were searched from inception up to 20 June 2022. Pain, physical function, psychological symptoms, and quality of life were analyzed. AMSTAR 2 was used to assess the methodological quality of SRs. The primary study overlap among SRs was calculated. A total of 13 SRs were selected, including 32 meta-analyses of interest that comprised 33 distinct primary studies. Overall, qigong, tai chi, and yoga-based interventions may improve osteoarthritis-related symptoms, mainly physical function. However, no SRs were judged to have high methodological quality. Only three SRs judged certainty of evidence using a gold standard for it. The primary study overlap was very high for SRs covering tai chi or yoga trials. There was a positive tendency in favor of these mind-body exercises for improving pain, arthritis self-efficacy, and mainly, physical function. Unfortunately, no clinical recommendations can be made due to the high number of methodological concerns that were described above. New high-quality SRs covering this topic are needed. It appears that qigong, tai chi, and yoga may improve physical function in osteoarthritis.In addition, tai chi may improve arthritis self-efficacy in knee osteoarthritis.As most of the included systematic reviews (SRs) had low quality, no firm recommendations can be made.Most of the included SRs did not evaluate the certainty in the evidence. It appears that qigong, tai chi, and yoga may improve physical function in osteoarthritis. In addition, tai chi may improve arthritis self-efficacy in knee osteoarthritis. As most of the included systematic reviews (SRs) had low quality, no firm recommendations can be made. Most of the included SRs did not evaluate the certainty in the evidence.
DOI: 10.6084/m9.figshare.22722044
title: Physiotherapy assessment and treatment of patients with tibial external fixator: a systematic scoping review

description: To map evidence regarding physiotherapy assessment and treatment of patients with tibial external fixator (EF), and to point out literature gaps for further research. Systematic scoping review conducted in four databases. We included both experimental and non-experimental studies involving patients with tibial EF and outcomes of interest. We recorded study design, population, sample size, sample age, reason for EF use, type of surgery, type of EF used, instruments used for assessing function, pain, quality of life, satisfaction, psychosocial aspects, and physiotherapy treatment descriptions from included studies. We categorised data accordingly to outcomes assessed and physiotherapy treatments description. Eighty-six studies were included involving 3070 patients. Causes of fixator use were traumatic conditions, acquired and congenital deformities, and non-traumatic conditions, like compartmental osteoarthritis. Function was assessed in about three-quarters of included studies, though other outcomes were not presented in most studies. Only one study described satisfactorily the physiotherapy treatment. Almost half of the studies did not provide any description of the rehabilitation process. There is little evidence about the assessment of function, pain, quality of life, satisfaction, psychosocial aspects, and other outcomes in tibial EF patients. Physiotherapy treatment in these patients is poorly reported.<b>Protocol registration:</b> Open Science Framework: doi:10.17605/OSF.IO/UT2DA Rehabilitation programmes and research should consider that most studies with tibial external fixator (EF) patients did not evaluate outcomes routinely used in physiotherapy assessment.Rehabilitation programmes should consider that the instruments used in evaluation of tibial EF patients have unknown measurement properties.Rehabilitation programmes should consider that treatment of patients with tibial EF involves different types of interventions, however, they are poorly described or not described in most studies. Rehabilitation programmes and research should consider that most studies with tibial external fixator (EF) patients did not evaluate outcomes routinely used in physiotherapy assessment. Rehabilitation programmes should consider that the instruments used in evaluation of tibial EF patients have unknown measurement properties. Rehabilitation programmes should consider that treatment of patients with tibial EF involves different types of interventions, however, they are poorly described or not described in most studies.
DOI: 10.6084/m9.figshare.22786325
title: Fatigue experienced by people with cerebral palsy: a systematic review of assessment tools and decision tree

description: To conduct a systematic review of self- and proxy-report fatigue assessment tools used in studies of people with cerebral palsy (CP) of all ages, and to develop a fatigue assessment tool decision tree for clinicians and researchers. Five electronic databases (MEDLINE, PsycInfo, CINAHL, Web of Science and Cochrane) were searched to September 2021 to identify studies assessing self-reported fatigue in people with CP of any age. The assessment tools utilised were extracted and two reviewers appraised the tool characteristics, clinical utility and psychometric properties. A decision tree for selecting fatigue assessment tools was constructed. Ten assessment tools were identified across thirty-nine studies, three of which are valid and reliable for assessing fatigue severity and impact in people with CP. A four-level fatigue assessment tool decision tree was constructed. No valid and reliable tool for assessing cognitive fatigue was identified; responsiveness has not been evaluated in any tool for people with CP. Physical fatigue screening and assessment tools for people with CP are available and are presented in our decision tree, however their utility as outcome measures remains unclear. Cognitive fatigue is understudied and poorly understood, further work is required in this area. Current measurement tools to screen and assess physical fatigue in people with cerebral palsy (CP) are valid and reliable and are presented in our 4-level decision tree to guide assessment tool selection.The responsiveness of these measurement tools to screen and assess physical fatigue has not been evaluated, therefore their utility as outcome measures in people with CP is unclear.Cognitive fatigue is understudied and poorly understood in people with CP.Valid and reliable tools to assess cognitive fatigue in people with CP are not available. Current measurement tools to screen and assess physical fatigue in people with cerebral palsy (CP) are valid and reliable and are presented in our 4-level decision tree to guide assessment tool selection. The responsiveness of these measurement tools to screen and assess physical fatigue has not been evaluated, therefore their utility as outcome measures in people with CP is unclear. Cognitive fatigue is understudied and poorly understood in people with CP. Valid and reliable tools to assess cognitive fatigue in people with CP are not available.
DOI: 10.25549/pcra-c14-151578
title: Suchasnaia sektanctva na Bielarusi = Modern sectarianism in Belarus, 1929

description: [description english/roman)] D. Kajtun, P. Kalajevič. Suchasnaia sektanctva na Bielarusi. (Biblioteka biazbožnika). Miensk, Bielaruś: Bielaruskaje Dziaržaŭnaha Bydaviectva, 1929. = Kaituna D., P. Kalaevich. Modern sectarianism in Belarus. (Ungodly Library). Minsk, Belarus: Belarusian State Publisher, 1929.