cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.19772149
title: Development and validation of the patient-reported “Facial Function Scale” for facioscapulohumeral muscular dystrophy

description: Facial weakness and its functional consequences are an often underappreciated clinical feature of facioscapulohumeral muscular dystrophy (FSHD) by healthcare professionals and researchers. This is at least in part due to the fact that there are few adequate clinical outcome measures available. We developed the Facial Function Scale, a Rasch-built questionnaire on the functional disabilities relating to facial weakness in FSHD. A preliminary 33-item questionnaire was created based on semi-structured interviews with 16 FSHD patients and completed by 119 patients. For reliability studies, 73 patients completed it again after a two-week interval. Data were subjected to semi-automated Rasch analysis to select the most appropriate item set to fit model expectations. This resulted in a 25-item unidimensional, linear-weighted questionnaire with high internal consistency (person separation index = 0.92) and test–retest reliability (patients’ locations ICC = 0.98 and items’ locations ICC = 0.99). Good external construct validity scores were obtained through correlation with the Communicative Participation Item Bank questionnaire, examiner-reported Facial Weakness Score and facial weakness subscale of the FSHD evaluation score (respectively <i>r</i> = 0.733, <i>r</i> = −0.566, and <i>r</i> = 0.441, all <i>p</i> This study provides a linear-weighted, clinimetrically sound, patient-reported outcome measure on the functional disabilities relating to facial weakness in FSHD, to enable further research on this relevant topic.Implications for rehabilitationFacial weakness and its functional consequences are an often underappreciated clinical feature of facioscapulohumeral muscular dystrophy (FSHD), both in symptomatic treatment and in research.To enable the development and testing of therapeutic symptomatic interventions for facial weakness, clinical outcome measures are required.This study provides a linear-weighted, clinimetrically sound, patient-reported outcome measure on the functional disabilities relating to facial weakness in FSHD patients. Facial weakness and its functional consequences are an often underappreciated clinical feature of facioscapulohumeral muscular dystrophy (FSHD), both in symptomatic treatment and in research. To enable the development and testing of therapeutic symptomatic interventions for facial weakness, clinical outcome measures are required. This study provides a linear-weighted, clinimetrically sound, patient-reported outcome measure on the functional disabilities relating to facial weakness in FSHD patients.
DOI: 10.6084/m9.figshare.19772149.v1
title: Development and validation of the patient-reported “Facial Function Scale” for facioscapulohumeral muscular dystrophy

description: Facial weakness and its functional consequences are an often underappreciated clinical feature of facioscapulohumeral muscular dystrophy (FSHD) by healthcare professionals and researchers. This is at least in part due to the fact that there are few adequate clinical outcome measures available. We developed the Facial Function Scale, a Rasch-built questionnaire on the functional disabilities relating to facial weakness in FSHD. A preliminary 33-item questionnaire was created based on semi-structured interviews with 16 FSHD patients and completed by 119 patients. For reliability studies, 73 patients completed it again after a two-week interval. Data were subjected to semi-automated Rasch analysis to select the most appropriate item set to fit model expectations. This resulted in a 25-item unidimensional, linear-weighted questionnaire with high internal consistency (person separation index = 0.92) and test–retest reliability (patients’ locations ICC = 0.98 and items’ locations ICC = 0.99). Good external construct validity scores were obtained through correlation with the Communicative Participation Item Bank questionnaire, examiner-reported Facial Weakness Score and facial weakness subscale of the FSHD evaluation score (respectively <i>r</i> = 0.733, <i>r</i> = −0.566, and <i>r</i> = 0.441, all <i>p</i> This study provides a linear-weighted, clinimetrically sound, patient-reported outcome measure on the functional disabilities relating to facial weakness in FSHD, to enable further research on this relevant topic.Implications for rehabilitationFacial weakness and its functional consequences are an often underappreciated clinical feature of facioscapulohumeral muscular dystrophy (FSHD), both in symptomatic treatment and in research.To enable the development and testing of therapeutic symptomatic interventions for facial weakness, clinical outcome measures are required.This study provides a linear-weighted, clinimetrically sound, patient-reported outcome measure on the functional disabilities relating to facial weakness in FSHD patients. Facial weakness and its functional consequences are an often underappreciated clinical feature of facioscapulohumeral muscular dystrophy (FSHD), both in symptomatic treatment and in research. To enable the development and testing of therapeutic symptomatic interventions for facial weakness, clinical outcome measures are required. This study provides a linear-weighted, clinimetrically sound, patient-reported outcome measure on the functional disabilities relating to facial weakness in FSHD patients.
DOI: 10.6084/m9.figshare.19763315
title: Development of the <i>“Kalmer”</i> relaxation intervention: co-design with stroke survivors with aphasia

description: Anxiety is common after stroke and more prevalent in survivors with aphasia. Relaxation is an effective first-line therapy. The current study aimed to obtain the perspectives of stroke survivors with aphasia to inform the development of an accessible, technology-based, relaxation intervention. Qualitative co-design methods were used with twelve people with aphasia after stroke. The “Kalmer” Relaxation treatment package materials were iteratively based on participants’ experiences and preferences; barriers and facilitators to treatment compliance were explored. Participants were also asked to consider how the intervention might be evaluated in a research trial. A thematic analysis highlighted the importance and need for the development of an appropriate and inclusive relaxation product, to be implemented by health professionals early post-stroke. Several behavioural strategies to improve treatment adherence were recommended. Participants had varying perspectives on clinically meaningful treatment outcomes. Overall, a co-designed accessible relaxation product was viewed as a necessary component of usual stroke care. Acceptability and feasibility and preliminary efficacy of the “Kalmer” intervention should be trialled in future studies. IMPLICATIONS FOR REHABILITATIONCo-designing psychological interventions for people with aphasia after stroke is needed to meet the needs of this at-risk population.Technology-based relaxation interventions to manage anxiety after stroke are viewed positively by people with aphasia and deemed acceptable and feasible.Clinical trials of these co-designed relaxation interventions are required before recommending integration into routine practice. Co-designing psychological interventions for people with aphasia after stroke is needed to meet the needs of this at-risk population. Technology-based relaxation interventions to manage anxiety after stroke are viewed positively by people with aphasia and deemed acceptable and feasible. Clinical trials of these co-designed relaxation interventions are required before recommending integration into routine practice.
DOI: 10.6084/m9.figshare.22332686
title: Significance of nucleologenesis, ribogenesis, and nucleolar proteome in the pathogenesis and recurrence of hepatocellular carcinoma

description: Emerging evidence suggests that enhanced ribosome biogenesis, increased size, and quantitative distribution of nucleoli are associated with dysregulated transcription, which in turn drives a cell into aberrant cellular proliferation and malignancy. Nucleolar alterations have been considered a prognostic histological marker for aggressive tumors. More recently, advancements in the understanding of chromatin network (nucleoplasm viscosity) regulated liquid–liquid phase separation mechanism of nucleolus formation and their multifunctional role shed light on other regulatory processes, apart from ribosomal biogenesis of the nucleolus. Using hepatocellular carcinoma as a model to study the role of nucleoli in tumor progression, we review the potential of nucleolus coalescence in the onset and development of tumors through non-ribosomal biogenesis pathways, thereby providing new avenues for early diagnosis and cancer therapy. Molecular-based classifications have failed to identify the nucleolar-based molecular targets that facilitate cell-cycle progression. However, the algorithm-based tumor risk identification with high-resolution medical images suggests prominent nucleoli, karyotheca, and increased nucleus/cytoplasm ratio as largely associated with tumor recurrence. Nonetheless, the role of the non-ribosomal functions of nucleoli in tumorigenesis remains elusive. This clearly indicates the lacunae in the study of the nucleolar proteins pertaining to cancer.
DOI: 10.5281/zenodo.7813224
title: Results of optimal biocomposite mixture as best sound and thermal insulator

description: Biobased composites are increasingly used. One of the most frequently used material is hemp shives, which is agricultural waste. However, as the quantities of this material are lacking, there is a tendency towards finding new and more available materials. Corncob and sawdust are bio by-products that have great potential as insulation materials. In order to use these aggregates, it is necessary to examine their characteristics. New composite materials based on sawdust, corncobs, polystyrene granules and the mixture of lime and plaster as the binder, were tested within this research. This paper presents the properties of these composites obtained by determining the porosity of samples, volume mass, water absorption, airflow resistance and heat flux, which was followed by calculation of the thermal conductivity coefficient. Three mixtures of the new composite material, whose samples were 1cm-5cm thick for each type of mixture, were investigated. The aim of this research was to analyze the results of different mixtures and sample thickness in order to determine the optimum composite material of the proper thickness so that the best possible thermal and sound insulation could be obtained. New composite materials can be used as an alternative to conventional materials.
DOI: 10.5281/zenodo.7813223
title: Results of optimal biocomposite mixture as best sound and thermal insulator

description: Biobased composites are increasingly used. One of the most frequently used material is hemp shives, which is agricultural waste. However, as the quantities of this material are lacking, there is a tendency towards finding new and more available materials. Corncob and sawdust are bio by-products that have great potential as insulation materials. In order to use these aggregates, it is necessary to examine their characteristics. New composite materials based on sawdust, corncobs, polystyrene granules and the mixture of lime and plaster as the binder, were tested within this research. This paper presents the properties of these composites obtained by determining the porosity of samples, volume mass, water absorption, airflow resistance and heat flux, which was followed by calculation of the thermal conductivity coefficient. Three mixtures of the new composite material, whose samples were 1cm-5cm thick for each type of mixture, were investigated. The aim of this research was to analyze the results of different mixtures and sample thickness in order to determine the optimum composite material of the proper thickness so that the best possible thermal and sound insulation could be obtained. New composite materials can be used as an alternative to conventional materials.
DOI: 10.5281/zenodo.7476074
title: Simulation and calculation data for the Lorenz energy cycle

description: The data are for the article "Lorenz Energy Cycle: Another Way to Understand the Atmospheric Circulation on Tidally Locked Terrestrial Planets". The data are simulated by the general circulation model ExoCAM. The horizontal resolution is 4°x5°. <strong>Note: ST: in standard coordinates; TL: in the tidally locked coordinates.</strong> The simulation data is daily-mean (i.e., '<strong>*.daily.nc</strong>'), including: <strong>ST_5d_tidally_locked.cam.daily.nc, ST_60d_tidally_locked.cam.daily.nc </strong>(in the standard coordinates), and <strong>TL_60d_tidally_locked.cam.daily.nc</strong> (in the tidally locked coordinates). The LEC data are calculated by the LEC code released at <em>https://doi.org/10.5281/zenodo.7472396</em>, including: Earth: <strong>LEC_energy.1979-*.nc</strong> and <strong>LEC_converse_rate.1979-*.nc</strong> Rapidly rotating tidally locked planet (in standard coordinates): <strong>ST_LEC_energy_5d_tidally_locked.nc</strong> and <strong>ST_LEC_conv-rate_5d_tidally_locked.nc</strong> Slowly rotating tidally locked planet (in tidally locked coordinates): <strong>TL_LEC_energy_60d_tidally_locked.nc</strong> and <strong>TL_LEC_conv-rate_60d_tidally_locked.nc</strong> Slowly rotating tidally locked planet (in standard coordinates): <strong>ST_LEC_energy_60d_tidally_locked.nc</strong> and <strong>ST_LEC_conv-rate_60d_tidally_locked.nc</strong>
DOI: 10.5281/zenodo.7476073
title: Simulation and calculation data for the Lorenz energy cycle

description: The data are for the article "Lorenz Energy Cycle: Another Way to Understand the Atmospheric Circulation on Tidally Locked Terrestrial Planets". The data are simulated by the general circulation model ExoCAM. The horizontal resolution is 4°x5°. <strong>Note: ST: in standard coordinates; TL: in the tidally locked coordinates.</strong> The simulation data is daily-mean (i.e., '<strong>*.daily.nc</strong>'), including: <strong>ST_5d_tidally_locked.cam.daily.nc, ST_60d_tidally_locked.cam.daily.nc </strong>(in the standard coordinates), and <strong>TL_60d_tidally_locked.cam.daily.nc</strong> (in the tidally locked coordinates). The LEC data are calculated by the LEC code released at <em>https://doi.org/10.5281/zenodo.7472396</em>, including: Earth: <strong>LEC_energy.1979-*.nc</strong> and <strong>LEC_converse_rate.1979-*.nc</strong> Rapidly rotating tidally locked planet (in standard coordinates): <strong>ST_LEC_energy_5d_tidally_locked.nc</strong> and <strong>ST_LEC_conv-rate_5d_tidally_locked.nc</strong> Slowly rotating tidally locked planet (in tidally locked coordinates): <strong>TL_LEC_energy_60d_tidally_locked.nc</strong> and <strong>TL_LEC_conv-rate_60d_tidally_locked.nc</strong> Slowly rotating tidally locked planet (in standard coordinates): <strong>ST_LEC_energy_60d_tidally_locked.nc</strong> and <strong>ST_LEC_conv-rate_60d_tidally_locked.nc</strong>
DOI: 10.18454/rulb.2023.40.18.1
title: Речеповеденческий фрейм «Посещение князя Сергея Петровича»

description: Russian Linguistic Bulletin, Выпуск 4 (40) 2023
DOI: 10.18454/rulb.2023.40.50.1
title: Methods of translation

description: Russian Linguistic Bulletin, Выпуск 4 (40) 2023
DOI: 10.18454/rulb.2023.40.18.2
title: Речеповеденческий фрейм «Посещение князя Сергея Петровича»

description: Russian Linguistic Bulletin, Выпуск 4 (40) 2023
DOI: 10.6084/m9.figshare.20006735
title: Student perceptions of remote learning transitions in engineering disciplines during the COVID-19 pandemic: a cross-national study

description: This study captures student perceptions of the effectiveness of remote learning and assessment in two associated engineering disciplines, mechanical and industrial, during the COVID-19 pandemic in a cross-national study. A structured questionnaire with 24 items on a 5-point Likert scale was used. Parallel and exploratory factor analyses identified three primary subscales. The links between student perceptions and assessment outcomes were also studied. There was a clear preference for face-to-face teaching, with the highest for laboratories. Remote live lectures were preferred over recorded. Although students found the switch to remote learning helpful, group work and communication were highlighted as concern areas. Mean scores on subscales indicate a low preference for remote learning (2.23), modest delivery effectiveness (3.05) and effective digital delivery tools (3.61). Gender effects were found significant on all subscales, along with significant interactions with university and year-group. Preference for remote delivery of design-based modules was significantly higher than others.
DOI: 10.6084/m9.figshare.20006735.v1
title: Student perceptions of remote learning transitions in engineering disciplines during the COVID-19 pandemic: a cross-national study

description: This study captures student perceptions of the effectiveness of remote learning and assessment in two associated engineering disciplines, mechanical and industrial, during the COVID-19 pandemic in a cross-national study. A structured questionnaire with 24 items on a 5-point Likert scale was used. Parallel and exploratory factor analyses identified three primary subscales. The links between student perceptions and assessment outcomes were also studied. There was a clear preference for face-to-face teaching, with the highest for laboratories. Remote live lectures were preferred over recorded. Although students found the switch to remote learning helpful, group work and communication were highlighted as concern areas. Mean scores on subscales indicate a low preference for remote learning (2.23), modest delivery effectiveness (3.05) and effective digital delivery tools (3.61). Gender effects were found significant on all subscales, along with significant interactions with university and year-group. Preference for remote delivery of design-based modules was significantly higher than others.
DOI: 10.5281/zenodo.7808714
title: Unified MOOCs Semantic Search Engine

description: Full dataset of Unified MOOCs
DOI: 10.5281/zenodo.7808713
title: Unified MOOCs Semantic Search Engine

description: Full dataset of Unified MOOCs
DOI: 10.13140/rg.2.2.17914.98241
title: Етапи розвитку обчислювальної техніки
DOI: 10.34740/kaggle/dsv/5362270
title: Egypt Gold Prices | Daily Updated
DOI: 10.5281/zenodo.7808166
title: Spanish wild plants traditionally used as medicine

description: List of Spanish wild plant species with the ethnobotanical references in which they have been reported as medicinal and their cultural importance index (CI). Accompanied as well by data about origin (wild or cultivated), abundance, occupancy area, endemicity, conservation status, protection status. We also provide the complete list of references and legislation used. The excel file has five tabs: 1. Ethnobotanical references, 2. Medicinal species, 3. Legislation, 4. Protection, 5. Protection categories.
description: Funding acknowledgements: - Spanish Ministry of Agriculture, Fishery, Food and Environment (TEC0004583, TEC0003351) - Fundación Biodiversidad (CA2015) - Spanish Ministry of Agriculture, Fishery and Food (REF 41196, 202005000018)
description: {"references": ["Anthos, 2022. Information System of the plants of Spain. Real Jard\u00edn Bot\u00e1nico, CSIC www.anthos.es", "SIVIM, 2022. Sistema de informaci\u00f3n de la vegetaci\u00f3n ib\u00e9rica y macaron\u00e9sica www.sivim.info/sivi/"]}
DOI: 10.34740/kaggle/dsv/5362332
title: YouTube Trending Video Dataset (updated daily)
DOI: 10.5281/zenodo.7812441
title: Cortical glutamate and GABA are related to compulsive behaviour in individuals with obsessive compulsive disorder and healthy controls

description: This link contains the structural data files analysed in this article.
DOI: 10.5281/zenodo.7812440
title: Cortical glutamate and GABA are related to compulsive behaviour in individuals with obsessive compulsive disorder and healthy controls

description: This link contains the structural data files analysed in this article.
DOI: 10.6084/m9.figshare.22581820.v1
title: Butterfly species of the Reserva Particular do Patrimônio Natural (RPPN) Alto Montana, Itamonte, Minas Gerais

description: Butterfly species of the Reserva Particular do Patrimônio Natural (RPPN) Alto Montana, Itamonte, Minas Gerais
DOI: 10.5281/zenodo.7813485
title: enicognathus_leptorhynchus_zanfona_1.fasta.gz

description: .
DOI: 10.5281/zenodo.7813484
title: enicognathus_leptorhynchus_zanfona_1.fasta.gz

description: .
DOI: 10.13140/rg.2.2.34272.76807
title: Predictive model for seismic source parameters based on machine learning algorithms
DOI: 10.13140/rg.2.2.12462.38721
title: Predictive model for seismic source parameters based on machine learning algorithms
DOI: 10.6084/m9.figshare.22581901
title: The field recording collected in Nanjing

description: The recording was obtained from 10:48:33 am to 10:55:13 am on Jun. 16, 2022, at Nanjing University of Science and Technology, China.
DOI: 10.6084/m9.figshare.22581901.v1
title: The field recording collected in Nanjing

description: The recording was obtained from 10:48:33 am to 10:55:13 am on Jun. 16, 2022, at Nanjing University of Science and Technology, China.
DOI: 10.6084/m9.figshare.22581952
title: Supplementary Material for: The key role of a Psychoactive Substance Use History in comprehensive cardiovascular risk assessment, diagnosis, treatment, and prevention

description: Abstract Background: Psychoactive substances have toxic effects resulting different cardiovascular and non-cardiovascular organ damage. Through a variety of mechanisms, they can trigger the onset of various forms of cardiovascular disease: acute or chronic, transient or permanent, subclinical or symptomatic. Hence, a thorough knowledge of the patient’s drug habits is essential for a more complete clinical-etiopathogenetic diagnosis and consequent therapeutic, preventive, and rehabilitative management. Summary: The prime reason for taking a Psychoactive Substance Use History in the cardiovascular context is to identify those people who use substances (whether habitual or occasional users, symptomatic or not) and adequately assess their overall cardiovascular risk profile in terms of user status and type of substance used. And, finally, to assess the likelihood of persistence in the habit or relapse, which would maintain their cardiovascular risk profile high. A psychoactive substance history could also alert the physician to suspect, and eventually diagnose, cardiovascular disease related to the intake of psychoactive substances, so optimizing the medical management of users. Taking such a history should be mandatory when a causal connection is suspected between intake of psychoactive substances and the observed symptoms or pathology, regardless of whether the individual is a declared user or not. Key Messages: The purpose of this article is to provide practical information on when, how and why to perform a Psychoactive Substance Use History.