cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.23641/asha.21669611.v2
title: Day-to-day variability of clinical dysphagia in cerebral palsy (Malandraki et al., 2023)

description: <strong>Purpose:</strong> We aimed to examine the day-to-day variability of feeding and swallowing performance and mealtime duration in school-age self-feeding children with spastic cerebral palsy (SCP) across 15 days. <strong>Method:</strong> Thirteen children with SCP (ages 5;10 [years;months]–17;6) participated. Children were divided into unilateral (UCP, <em>n</em> = 6) and bilateral (BCP, <em>n</em> = 7) SCP groups. Feeding/swallowing assessments using the Dysphagia Disorder Survey (DDS) were conducted and total mealtime durations (TMDs) were calculated for all days. DDS Part 1 (factors related to feeding) and DDS Part 2 (signs of oropharyngeal difficulties) components were rated. Mixed-effects models were used to compare group means and estimate between- and within-subject variances in each group. Likelihood ratio tests were used to determine best covariance structure and compare variance types across groups. <strong>Results:</strong> Within-subject variance for all three variables, DDS Part 1, 2, and TMD, across days was larger in the BCP group than the UCP group (Part 1: <em>p</em> = .0036, Part 2: <em>p</em> = .0002, and TMD: <em>p</em> = .0005) and the between-subject variance was larger in the BCP group for DDS Part 2 (<em>p</em> = .0362). The UCP group presented with lower (milder) DDS scores (Part 1: <em>p</em> = .0160; Part 2: <em>p</em> = .0141) and shorter TMD (<em>p</em> = .0077) than the BCP group across days. Furthermore, both groups exhibited greater variability in DDS Part 2 than 1 (<em>p</em> &lt; .0001). <strong>Conclusion:</strong> These preliminary results emphasize the need to account for day-to-day variability when evaluating swallowing especially in children with BCP and provide preliminary ranges of performance that could be useful for clinical prognosis and future treatment research. <strong>Supplemental Material S1.</strong> List of foods/liquids the children consumed each day. Malandraki, G. A., Kantarcigil, Ç., Craig, B. A., Zhang, Y., & Gordon, A. M. (2023). Day-to-day variability of clinical feeding and swallowing performance in school-age self-feeding children with cerebral palsy. <em>American Journal of Speech-Language Pathology, 32</em>(1), 190–200. https://doi.org/10.1044/2022_AJSLP-22-00137
DOI: 10.23641/asha.21669611.v1
title: Day-to-day variability of clinical dysphagia in cerebral palsy (Malandraki et al., 2022)

description: <strong>Purpose:</strong> We aimed to examine the day-to-day variability of feeding and swallowing performance and mealtime duration in school-age self-feeding children with spastic cerebral palsy (SCP) across 15 days. <strong>Method:</strong> Thirteen children with SCP (ages 5;10 [years;months]–17;6) participated. Children were divided into unilateral (UCP, <em>n</em> = 6) and bilateral (BCP, <em>n</em> = 7) SCP groups. Feeding/swallowing assessments using the Dysphagia Disorder Survey (DDS) were conducted and total mealtime durations (TMDs) were calculated for all days. DDS Part 1 (factors related to feeding) and DDS Part 2 (signs of oropharyngeal difficulties) components were rated. Mixed-effects models were used to compare group means and estimate between- and within-subject variances in each group. Likelihood ratio tests were used to determine best covariance structure and compare variance types across groups. <strong>Results:</strong> Within-subject variance for all three variables, DDS Part 1, 2, and TMD, across days was larger in the BCP group than the UCP group (Part 1: <em>p</em> = .0036, Part 2: <em>p</em> = .0002, and TMD: <em>p</em> = .0005) and the between-subject variance was larger in the BCP group for DDS Part 2 (<em>p</em> = .0362). The UCP group presented with lower (milder) DDS scores (Part 1: <em>p</em> = .0160; Part 2: <em>p</em> = .0141) and shorter TMD (<em>p</em> = .0077) than the BCP group across days. Furthermore, both groups exhibited greater variability in DDS Part 2 than 1 (<em>p</em> &lt; .0001). <strong>Conclusion:</strong> These preliminary results emphasize the need to account for day-to-day variability when evaluating swallowing especially in children with BCP and provide preliminary ranges of performance that could be useful for clinical prognosis and future treatment research. <strong>Supplemental Material S1.</strong> List of foods/liquids the children consumed each day. Malandraki, G. A., Kantarcigil, Ç., Craig, B. A., Zhang, Y., & Gordon, A. M. (2022). Day-to-day variability of clinical feeding and swallowing performance in school-age self-feeding children with cerebral palsy. <em>American Journal of Speech-Language Pathology, 32</em>(1), 190–200. https://doi.org/10.1044/2022_AJSLP-22-00137
DOI: 10.23641/asha.21614262
title: Communication modes in primary progressive aphasia (Mooney et al., 2023)

description: <strong>Purpose: </strong>Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome characterized by early, selective, and progressive language impairment. PPA onset is gradual, providing time to potentially identify additional or alternative expressive communication modes; however, reports of communication mode use and effectiveness by persons with PPA have not been described. This study characterized the use, frequency, and perceived effectiveness of communication modes reported by individuals with PPA. <strong>Method: </strong>Forty-one participants with mild-to-moderate PPA completed a structured interview detailing the type, frequency, and perceived effectiveness of 12 potential communication modes, categorized by technology required (no-tech, low-tech, and high-tech). The ratio of modes used was compared across technology categories with a repeated-measures generalized linear model assuming a binomial distribution with an overall Wald chi-square statistic, followed by pairwise post hoc <em>t</em>-test comparisons. <strong>Results:</strong> Of the 12 communication modes assessed, participants reported using a median of eight (range: 5–10). All participants affirmed using speech, facial expressions, and talking on the phone. Frequency and perceived effectiveness ratings for these three modes were endorsed at the “some/most of the time” level for more than 80% of the participants. No-tech mode use was significantly higher than reported high-tech and low-tech modes (<em>p</em> = .004 and <em>p</em> &lt; .0001, respectively). Even so, while some high-tech modes (apps) and some low-tech modes (nonelectronic augmentative and alternative communication) had fewer users, effectiveness ratings were moderate to high for all but one user. <strong>Conclusions:</strong> Persons with mild-to-moderate language impairment due to PPA report using a range of communication modes with moderate-to-high frequency and perceived effectiveness. These outcomes provide practical information when considering mode refinement or expansion during intervention to maximize communication participation. Barriers to modality use may include low awareness or access, which could be queried by future studies and supported by speech and language interventions. <strong>Supplemental Material S1. </strong>Frequency of use and effectiveness when used by clinical variant. Mooney, A. R., Bravo, M., Roberts, A., Salley, E., Blaze, E., Esparza, M., Fried-Oken, M., Khayum, B., Rao, L., Rademaker, A., & Rogalski, E. (2023). Use and perceived effectiveness of communication modes reported by persons with primary progressive aphasia.<em> American Journal of Speech-Language Pathology, 32</em>(1), 298–305. https://doi.org/10.1044/2022_AJSLP-21-00386
DOI: 10.23641/asha.21614262.v2
title: Communication modes in primary progressive aphasia (Mooney et al., 2023)

description: <strong>Purpose: </strong>Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome characterized by early, selective, and progressive language impairment. PPA onset is gradual, providing time to potentially identify additional or alternative expressive communication modes; however, reports of communication mode use and effectiveness by persons with PPA have not been described. This study characterized the use, frequency, and perceived effectiveness of communication modes reported by individuals with PPA. <strong>Method: </strong>Forty-one participants with mild-to-moderate PPA completed a structured interview detailing the type, frequency, and perceived effectiveness of 12 potential communication modes, categorized by technology required (no-tech, low-tech, and high-tech). The ratio of modes used was compared across technology categories with a repeated-measures generalized linear model assuming a binomial distribution with an overall Wald chi-square statistic, followed by pairwise post hoc <em>t</em>-test comparisons. <strong>Results:</strong> Of the 12 communication modes assessed, participants reported using a median of eight (range: 5–10). All participants affirmed using speech, facial expressions, and talking on the phone. Frequency and perceived effectiveness ratings for these three modes were endorsed at the “some/most of the time” level for more than 80% of the participants. No-tech mode use was significantly higher than reported high-tech and low-tech modes (<em>p</em> = .004 and <em>p</em> &lt; .0001, respectively). Even so, while some high-tech modes (apps) and some low-tech modes (nonelectronic augmentative and alternative communication) had fewer users, effectiveness ratings were moderate to high for all but one user. <strong>Conclusions:</strong> Persons with mild-to-moderate language impairment due to PPA report using a range of communication modes with moderate-to-high frequency and perceived effectiveness. These outcomes provide practical information when considering mode refinement or expansion during intervention to maximize communication participation. Barriers to modality use may include low awareness or access, which could be queried by future studies and supported by speech and language interventions. <strong>Supplemental Material S1. </strong>Frequency of use and effectiveness when used by clinical variant. Mooney, A. R., Bravo, M., Roberts, A., Salley, E., Blaze, E., Esparza, M., Fried-Oken, M., Khayum, B., Rao, L., Rademaker, A., & Rogalski, E. (2023). Use and perceived effectiveness of communication modes reported by persons with primary progressive aphasia.<em> American Journal of Speech-Language Pathology, 32</em>(1), 298–305. https://doi.org/10.1044/2022_AJSLP-21-00386
DOI: 10.23641/asha.21614262.v1
title: Communication modes in primary progressive aphasia (Mooney et al., 2022)

description: <strong>Purpose: </strong>Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome characterized by early, selective, and progressive language impairment. PPA onset is gradual, providing time to potentially identify additional or alternative expressive communication modes; however, reports of communication mode use and effectiveness by persons with PPA have not been described. This study characterized the use, frequency, and perceived effectiveness of communication modes reported by individuals with PPA. <strong>Method: </strong>Forty-one participants with mild-to-moderate PPA completed a structured interview detailing the type, frequency, and perceived effectiveness of 12 potential communication modes, categorized by technology required (no-tech, low-tech, and high-tech). The ratio of modes used was compared across technology categories with a repeated-measures generalized linear model assuming a binomial distribution with an overall Wald chi-square statistic, followed by pairwise post hoc <em>t</em>-test comparisons. <strong>Results:</strong> Of the 12 communication modes assessed, participants reported using a median of eight (range: 5–10). All participants affirmed using speech, facial expressions, and talking on the phone. Frequency and perceived effectiveness ratings for these three modes were endorsed at the “some/most of the time” level for more than 80% of the participants. No-tech mode use was significantly higher than reported high-tech and low-tech modes (<em>p</em> = .004 and <em>p</em> &lt; .0001, respectively). Even so, while some high-tech modes (apps) and some low-tech modes (nonelectronic augmentative and alternative communication) had fewer users, effectiveness ratings were moderate to high for all but one user. <strong>Conclusions:</strong> Persons with mild-to-moderate language impairment due to PPA report using a range of communication modes with moderate-to-high frequency and perceived effectiveness. These outcomes provide practical information when considering mode refinement or expansion during intervention to maximize communication participation. Barriers to modality use may include low awareness or access, which could be queried by future studies and supported by speech and language interventions. <strong>Supplemental Material S1. </strong>Frequency of use and effectiveness when used by clinical variant. Mooney, A. R., Bravo, M., Roberts, A., Salley, E., Blaze, E., Esparza, M., Fried-Oken, M., Khayum, B., Rao, L., Rademaker, A., & Rogalski, E. (2022). Use and perceived effectiveness of communication modes reported by persons with primary progressive aphasia.<em> American Journal of Speech-Language Pathology, 32</em>(1), 298–305. https://doi.org/10.1044/2022_AJSLP-21-00386
DOI: 10.23641/asha.21714311
title: Interventions for foster care families (Lorio et al., 2023)

description: <strong>Purpose: </strong>Children in foster care are at an increased risk for language delays and disorders, and foster parents can play a significant role in preventing delays in early language development. This scoping review explored empirical studies that included foster parent training programs for families with foster children under the age of 5 years. <strong>Method: </strong>Using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews), multiple databases were searched, and resulting article titles and abstracts were screened for inclusion in the review. Each study that met inclusion criteria was then coded for the training methods used to teach foster parents intervention strategies and the targeted outcomes of the intervention. <strong>Results:</strong> A total of 24 studies were identified. Of the 24 studies reviewed, all included interventions focused on increasing parent–child relationships and decreasing child challenging behaviors, but few included opportunities for foster parents to practice using intervention strategies with their foster child. None of the studies focused specifically on strategies for promoting children’s language development. When outcomes across the studies were reviewed, only two focused on children’s language. <strong>Conclusions:</strong> The results of this review point to the need for more research on language interventions that can be implemented by foster parents. The discussion focuses on the important role speech-language pathologists can play in the prevention of early language delays or disorders in young foster children. <strong>Supplemental Material S1. </strong>Search strings and number of articles located. <strong>Supplemental Material S2. </strong>Additional foster child demographics. <strong>Supplemental Material S3.</strong> Foster care intervention programs across studies. <strong>Supplemental Material S4.</strong> Additional information on methods and outcomes of foster parent training. Lorio, C. M., Carta, J. J., & Stephens, N. (2023). Exploring language development support for foster children: A scoping review of interventions for foster care families. <em>American Journal of Speech-Language Pathology, 32</em>(1), 358–376. https://doi.org/10.1044/2022_AJSLP-22-00082
DOI: 10.23641/asha.21714311.v2
title: Interventions for foster care families (Lorio et al., 2023)

description: <strong>Purpose: </strong>Children in foster care are at an increased risk for language delays and disorders, and foster parents can play a significant role in preventing delays in early language development. This scoping review explored empirical studies that included foster parent training programs for families with foster children under the age of 5 years. <strong>Method: </strong>Using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews), multiple databases were searched, and resulting article titles and abstracts were screened for inclusion in the review. Each study that met inclusion criteria was then coded for the training methods used to teach foster parents intervention strategies and the targeted outcomes of the intervention. <strong>Results:</strong> A total of 24 studies were identified. Of the 24 studies reviewed, all included interventions focused on increasing parent–child relationships and decreasing child challenging behaviors, but few included opportunities for foster parents to practice using intervention strategies with their foster child. None of the studies focused specifically on strategies for promoting children’s language development. When outcomes across the studies were reviewed, only two focused on children’s language. <strong>Conclusions:</strong> The results of this review point to the need for more research on language interventions that can be implemented by foster parents. The discussion focuses on the important role speech-language pathologists can play in the prevention of early language delays or disorders in young foster children. <strong>Supplemental Material S1. </strong>Search strings and number of articles located. <strong>Supplemental Material S2. </strong>Additional foster child demographics. <strong>Supplemental Material S3.</strong> Foster care intervention programs across studies. <strong>Supplemental Material S4.</strong> Additional information on methods and outcomes of foster parent training. Lorio, C. M., Carta, J. J., & Stephens, N. (2023). Exploring language development support for foster children: A scoping review of interventions for foster care families. <em>American Journal of Speech-Language Pathology, 32</em>(1), 358–376. https://doi.org/10.1044/2022_AJSLP-22-00082
DOI: 10.23641/asha.21714311.v1
title: Interventions for foster care families (Lorio et al., 2022)

description: <strong>Purpose: </strong>Children in foster care are at an increased risk for language delays and disorders, and foster parents can play a significant role in preventing delays in early language development. This scoping review explored empirical studies that included foster parent training programs for families with foster children under the age of 5 years. <strong>Method: </strong>Using the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews), multiple databases were searched, and resulting article titles and abstracts were screened for inclusion in the review. Each study that met inclusion criteria was then coded for the training methods used to teach foster parents intervention strategies and the targeted outcomes of the intervention. <strong>Results:</strong> A total of 24 studies were identified. Of the 24 studies reviewed, all included interventions focused on increasing parent–child relationships and decreasing child challenging behaviors, but few included opportunities for foster parents to practice using intervention strategies with their foster child. None of the studies focused specifically on strategies for promoting children’s language development. When outcomes across the studies were reviewed, only two focused on children’s language. <strong>Conclusions:</strong> The results of this review point to the need for more research on language interventions that can be implemented by foster parents. The discussion focuses on the important role speech-language pathologists can play in the prevention of early language delays or disorders in young foster children. <strong>Supplemental Material S1. </strong>Search strings and number of articles located. <strong>Supplemental Material S2. </strong>Additional foster child demographics. <strong>Supplemental Material S3.</strong> Foster care intervention programs across studies. <strong>Supplemental Material S4.</strong> Additional information on methods and outcomes of foster parent training. Lorio, C. M., Carta, J. J., & Stephens, N. (2022). Exploring language development support for foster children: A scoping review of interventions for foster care families. <em>American Journal of Speech-Language Pathology, 32</em>(1), 358–376. https://doi.org/10.1044/2022_AJSLP-22-00082
DOI: 10.5281/zenodo.7701120
title: Stability of maternal postnatal bonding between 3 and 6 months: associations with maternal mental health and infant temperament

description: This database includes the raw data linked with the paper “Stability of maternal postnatal bonding between 3 and 6 months: Associations with maternal mental health and infant temperament”, published on Infant Behavior and Development Journal, doi: 10.1016/j.infbeh.2023.101826. This publication is part of the longitudinal project “Measuring the outcomes of maternal COVID-19-related prenatal exposure (MOM-COPE)” research project. In this paper we report on longitudinal data on the link between maternal mental health, infant temperament, and maternal postnatal bonding between 3-6 months of the infant life. <strong>Procedures:</strong> When the infants were 3 and 6 months old, the mothers filled in the Beck Depression Inventory (BDI-II: Beck et al., 1996); the state anxiety scale of the State-Trait Anxiety Inventory (STAI-Y: Spielberger, 1983), the Infant Behavior Questionnaire - Revised short-form (IBQ-R: Gartstein & Rothbart, 2003) and the Maternal Postnatal Attachment Scale (MPAS: Condon & Corkindale, 1998). <strong>Analytical plan:</strong> For the 3-month and 6-month measures linear regressions were fitted to assess the effect of concurrent maternal mental health and infant temperament dimensions (surgency, negativity and regulation) on maternal postnatal bonding. 3-to-6 months changes in bonding were assessed via repeated measures ANOVA. At the individual level, 3 groups were created: mothers that reported decreasing, increasing and stable bonding. ANOVA was used to test for differences in 3-to-6 months changes in maternal mental health and infant temperament between these groups. <strong>Findings in brief:</strong> At 3 months, higher levels of maternal bonding were predicted by lower levels of anxiety and depression in the mothers and by higher infants' regulation scores. At 6 months, lower levels of anxiety and depression predicted higher levels of bonding. No statistically significant differences emerged between 3- and 6-month bonding scores in the whole sample. However, mothers showing higher than 1 SD from sample mean decreases in bonding showed higher 3-to-6-month increases in depression and anxiety compared to the stable group, as well as increased difficulties in regulation dimensions of the infant's temperament compared to the other groups
description: Funding: Ricerca Corrente 2022-2023, Ministry of Heath (Italy); Fondazione Roche "Per la Ricerca Indipendente" 2020