cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.30219064
title: Supplementary Material for: Infection-related glomerulonephritis revealed as shunt nephritis: a case report

description: Background: Shunt nephritis is a rare immune complex-mediated glomerulonephritis associated with infected ventriculoatrial (VAS) or ventriculoperitoneal (VPS) shunts. Its incidence has declined to 0.7–2% due to improved infection management. Low-grade bacteremia, particularly from VAS, often involves pathogens such as Cutibacterium acnes, Staphylococcus epidermidis, and Streptococcus species. Immune complex deposition in the kidneys leads to glomerulonephritis and nephrotic syndrome. Early diagnosis and shunt removal, alongside antibiotics, are crucial for renal recovery.
Case Presentation: A 35-year-old male with a history of traumatic brain injury and VAS placement presented with generalized edema, hypertension, fatigue, and neurological decline. The patient exhibited nephrotic syndrome with low complement levels. Renal biopsy revealed diffuse membranoproliferative glomerulonephritis with subendothelial deposits. Cerebrospinal fluid (CSF) analysis showed pleocytosis and an elevated albumin ratio, with C. acnes confirmed via blood and CSF cultures.
Management: Targeted antibiotic therapy, with first externalization and then removal of the VAS, was followed by a VPS re-implantation after infection resolution. The complement levels normalized, albuminuria decreased, and renal function stabilized.
Conclusion: This case highlights the diagnostic challenges associated with shunt nephritis, particularly in the absence of overt infection. Early recognition, targeted antibiotics, and shunt removal are essential for preventing progressive kidney damage and resolving of nephrotic syndrome. This case highlights the need for multidisciplinary management in such complex presentation.
DOI: 10.6084/m9.figshare.30219064.v1
title: Supplementary Material for: Infection-related glomerulonephritis revealed as shunt nephritis: a case report

description: Background: Shunt nephritis is a rare immune complex-mediated glomerulonephritis associated with infected ventriculoatrial (VAS) or ventriculoperitoneal (VPS) shunts. Its incidence has declined to 0.7–2% due to improved infection management. Low-grade bacteremia, particularly from VAS, often involves pathogens such as Cutibacterium acnes, Staphylococcus epidermidis, and Streptococcus species. Immune complex deposition in the kidneys leads to glomerulonephritis and nephrotic syndrome. Early diagnosis and shunt removal, alongside antibiotics, are crucial for renal recovery.
Case Presentation: A 35-year-old male with a history of traumatic brain injury and VAS placement presented with generalized edema, hypertension, fatigue, and neurological decline. The patient exhibited nephrotic syndrome with low complement levels. Renal biopsy revealed diffuse membranoproliferative glomerulonephritis with subendothelial deposits. Cerebrospinal fluid (CSF) analysis showed pleocytosis and an elevated albumin ratio, with C. acnes confirmed via blood and CSF cultures.
Management: Targeted antibiotic therapy, with first externalization and then removal of the VAS, was followed by a VPS re-implantation after infection resolution. The complement levels normalized, albuminuria decreased, and renal function stabilized.
Conclusion: This case highlights the diagnostic challenges associated with shunt nephritis, particularly in the absence of overt infection. Early recognition, targeted antibiotics, and shunt removal are essential for preventing progressive kidney damage and resolving of nephrotic syndrome. This case highlights the need for multidisciplinary management in such complex presentation.
DOI: 10.6084/m9.figshare.30219067
title: Supplementary Material for: An Exploratory Study of the Development of Articulatory Control at the Transition to Speech

description: This exploratory study aimed to examine changes in motor movements contributing to the development of articulatory control of the primary articulators (jaw, lips, tongue) at the transition from babbling to speech production. This longitudinal study was based on archived recordings of vocalizations of five children, aged nine to 16 months. Vocalizations were phonetically transcribed and these transcriptions were used to determine the sequence of articulatory movements. Results suggest a developmental progression of the level of articulatory control of motor movements such that jaw control emerges first, followed by lip control, while tongue control appears later. Motor control milestones corresponded with developmental shifts in reliable consonant production (VMS) and word learning. The findings suggest a strong association between articulatory control and the emergence of early word production. However, further studies with a larger number of cases are needed to verify this hypothesis. This research line/concept contributes to a more motor-based understanding of speech development and is assumed to have potential implications for early identification and intervention for children with speech and language delays.
DOI: 10.6084/m9.figshare.30219067.v1
title: Supplementary Material for: An Exploratory Study of the Development of Articulatory Control at the Transition to Speech

description: This exploratory study aimed to examine changes in motor movements contributing to the development of articulatory control of the primary articulators (jaw, lips, tongue) at the transition from babbling to speech production. This longitudinal study was based on archived recordings of vocalizations of five children, aged nine to 16 months. Vocalizations were phonetically transcribed and these transcriptions were used to determine the sequence of articulatory movements. Results suggest a developmental progression of the level of articulatory control of motor movements such that jaw control emerges first, followed by lip control, while tongue control appears later. Motor control milestones corresponded with developmental shifts in reliable consonant production (VMS) and word learning. The findings suggest a strong association between articulatory control and the emergence of early word production. However, further studies with a larger number of cases are needed to verify this hypothesis. This research line/concept contributes to a more motor-based understanding of speech development and is assumed to have potential implications for early identification and intervention for children with speech and language delays.
DOI: 10.6084/m9.figshare.30219070
title: Supplementary Material for: Sequential Diagnosis of Metastatic Breast Cancer and Follicular Lymphoma in a Postmenopausal Woman: Navigating Endocrine and Cytotoxic Therapies in a Complex Oncologic Setting

description: Introduction: Dual primary malignancies involving solid and hematological tumors are rare, posing significant diagnostic and therapeutic challenges. We report here a case of concurrent breast cancer and follicular lymphoma. Case Presentation: A 52-year-old woman with hormone receptor-positive early-stage breast cancer (pT2N2a) developed pleural metastasis concurrently with newly diagnosed follicular lymphoma (Ann Arbor stage IIIA, Grade 1-2) at 3 years postdiagnosis. The lymphoma progressed during treatment for metastatic breast cancer. Consequently, treatment was switched to combination immunochemotherapy with rituximab, cyclophosphamide, vincristine, and prednisolone (R-CVP). The patient achieved a partial response for follicular lymphoma, without breast cancer progression. Endocrine therapy with letrozole and palbociclib was successfully resumed following bone marrow recovery. Conclusion: This case highlights the need to consider secondary malignancies during cancer treatment and demonstrates the clinical utility of R-CVP in the management of dual cancer.
DOI: 10.6084/m9.figshare.30219070.v1
title: Supplementary Material for: Sequential Diagnosis of Metastatic Breast Cancer and Follicular Lymphoma in a Postmenopausal Woman: Navigating Endocrine and Cytotoxic Therapies in a Complex Oncologic Setting

description: Introduction: Dual primary malignancies involving solid and hematological tumors are rare, posing significant diagnostic and therapeutic challenges. We report here a case of concurrent breast cancer and follicular lymphoma. Case Presentation: A 52-year-old woman with hormone receptor-positive early-stage breast cancer (pT2N2a) developed pleural metastasis concurrently with newly diagnosed follicular lymphoma (Ann Arbor stage IIIA, Grade 1-2) at 3 years postdiagnosis. The lymphoma progressed during treatment for metastatic breast cancer. Consequently, treatment was switched to combination immunochemotherapy with rituximab, cyclophosphamide, vincristine, and prednisolone (R-CVP). The patient achieved a partial response for follicular lymphoma, without breast cancer progression. Endocrine therapy with letrozole and palbociclib was successfully resumed following bone marrow recovery. Conclusion: This case highlights the need to consider secondary malignancies during cancer treatment and demonstrates the clinical utility of R-CVP in the management of dual cancer.
DOI: 10.6084/m9.figshare.30219073
title: Supplementary Material for: A Phenomenological Study Exploring the Perceptions of Parents and Children Participating in the Lidcombe Program for Early Stuttering in Turkiye

description: Introduction: The Lidcombe Program for early stuttering is one of the most evidence-based treatment methods practiced by speech and language therapists worldwide. Our phenomenological study was the first to explore the perceptions of Turkish parents and children based on their lived experiences of participating in the Lidcombe Program in Ankara, Turkiye.
Methods: We conducted semi-structured, in-depth interviews with eight Turkish parents and six of their children after the end of Stage 1 of the Lidcombe Program. We interpreted the changes and challenges perceived by parents and children (excluding improvements in speech fluency) using reflexive thematic analysis grounded in the constructionist paradigm. 
Results: Four primary themes and their constituent sub-themes provided sufficient empirical evidence to provide answers to four research questions. 1: “Changes perceived by parents after the Lidcombe Program” included the loss of doubtful or negative feelings about their children's stuttering, improved duration of playing games with their children, increased frequency of praise they gave to their children, and better communication with their children and other family members. 2: “Challenges perceived by parents in the Lidcombe Program” included their other children’s inability to participate in therapy or home practices. 3: The positive effects of the Lidcombe Program on children included increased socialization, self-confidence, school success, and overall happiness. 4: “Children’s perceptions of the Lidcombe Program” included liking the program, coming to the therapy sessions with their parents, playing games with and receiving praise from their parents; however, the children disliked parental requests for self-correction. The perceptions of the Turkish participants are compared to the more variable perceptions of Lidcombe Program participants in other countries.
Conclusion: The Lidcombe Program was generally perceived positively by Turkish parents and children, with benefits extending beyond fluency to emotional well-being, family interaction, and children’s confidence. Challenges such as sibling involvement and children’s resistance to self-correction highlight the need for culturally and contextually sensitive adaptations. These findings underscore the importance of including both parental and child perspectives when evaluating early stuttering interventions.
DOI: 10.15468/dl.ds3zxb
title: Occurrence Download

description: A dataset containing 1 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Alcea setosa",
 "Country is Bosnia and Herzegovina",
 "HasCoordinate is true"
 ]
}

 The dataset includes 1 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0019680-250920141307145/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.6084/m9.figshare.30219073.v1
title: Supplementary Material for: A Phenomenological Study Exploring the Perceptions of Parents and Children Participating in the Lidcombe Program for Early Stuttering in Turkiye

description: Introduction: The Lidcombe Program for early stuttering is one of the most evidence-based treatment methods practiced by speech and language therapists worldwide. Our phenomenological study was the first to explore the perceptions of Turkish parents and children based on their lived experiences of participating in the Lidcombe Program in Ankara, Turkiye.
Methods: We conducted semi-structured, in-depth interviews with eight Turkish parents and six of their children after the end of Stage 1 of the Lidcombe Program. We interpreted the changes and challenges perceived by parents and children (excluding improvements in speech fluency) using reflexive thematic analysis grounded in the constructionist paradigm. 
Results: Four primary themes and their constituent sub-themes provided sufficient empirical evidence to provide answers to four research questions. 1: “Changes perceived by parents after the Lidcombe Program” included the loss of doubtful or negative feelings about their children's stuttering, improved duration of playing games with their children, increased frequency of praise they gave to their children, and better communication with their children and other family members. 2: “Challenges perceived by parents in the Lidcombe Program” included their other children’s inability to participate in therapy or home practices. 3: The positive effects of the Lidcombe Program on children included increased socialization, self-confidence, school success, and overall happiness. 4: “Children’s perceptions of the Lidcombe Program” included liking the program, coming to the therapy sessions with their parents, playing games with and receiving praise from their parents; however, the children disliked parental requests for self-correction. The perceptions of the Turkish participants are compared to the more variable perceptions of Lidcombe Program participants in other countries.
Conclusion: The Lidcombe Program was generally perceived positively by Turkish parents and children, with benefits extending beyond fluency to emotional well-being, family interaction, and children’s confidence. Challenges such as sibling involvement and children’s resistance to self-correction highlight the need for culturally and contextually sensitive adaptations. These findings underscore the importance of including both parental and child perspectives when evaluating early stuttering interventions.
DOI: 10.6084/m9.figshare.30219076
title: Supplementary Material for: Metastatic EBV-associated lymphoepithelioma-like carcinoma of small bowel origin

description: Introduction: Lymphoepithelioma-like carcinomas (LELC) are rare tumors composed of poorly differentiated epithelial cells with a prominent lymphoid stromal infiltrate. This tumor histology has been described in various tissues of origin including the nasopharynx, lung, thymus, breast, bladder, and others. However, involvement of the gastrointestinal system is relatively uncommon and has most often been described in the stomach. Case Presentation: Here we report a case of a young woman who presented with metastatic disease of unclear primary involving the liver and abdominal lymph nodes, along with marked EBV viremia. She was ultimately found to have metastatic EBV-associated lymphoepithelioma-like carcinoma of likely small bowel origin, an uncommon tissue of origin for a rare histopathology. She was treated with chemotherapy and immunotherapy regimens commonly used for gastrointestinal and biliary cancers, with an initial treatment response but ultimately rapid tumor progression. Conclusion: LELCs are rare tumors that uncommonly involve the gastrointestinal system, particularly the small bowel. Further reports are needed to better understand disease presentation, pathophysiology, prognosis, and management.
DOI: 10.6084/m9.figshare.30219076.v1
title: Supplementary Material for: Metastatic EBV-associated lymphoepithelioma-like carcinoma of small bowel origin

description: Introduction: Lymphoepithelioma-like carcinomas (LELC) are rare tumors composed of poorly differentiated epithelial cells with a prominent lymphoid stromal infiltrate. This tumor histology has been described in various tissues of origin including the nasopharynx, lung, thymus, breast, bladder, and others. However, involvement of the gastrointestinal system is relatively uncommon and has most often been described in the stomach. Case Presentation: Here we report a case of a young woman who presented with metastatic disease of unclear primary involving the liver and abdominal lymph nodes, along with marked EBV viremia. She was ultimately found to have metastatic EBV-associated lymphoepithelioma-like carcinoma of likely small bowel origin, an uncommon tissue of origin for a rare histopathology. She was treated with chemotherapy and immunotherapy regimens commonly used for gastrointestinal and biliary cancers, with an initial treatment response but ultimately rapid tumor progression. Conclusion: LELCs are rare tumors that uncommonly involve the gastrointestinal system, particularly the small bowel. Further reports are needed to better understand disease presentation, pathophysiology, prognosis, and management.
DOI: 10.34810/data1613
title: Qualitative dataset of Local Indicators of Climate Change Impacts in Namoly, Madagascar

description: Qualitative dataset of the Site 'Namoly' collected by Vincent Porcher in Madagascar. This dataset was collected in the context of the ERC funded project: LICCI - Local Indicators of Climate Change Impacts (The contribution of local knowledge to climate change research). It includes the 1st - qualitative part of a 2 part dataset Qualitative data collection involves first conducting semi-structured interviews to gather community insights, followed by using focus group discussions to validate and identify new observations. More information on the project at https://licci.eu
description: LICCI Data Collection application / https://gitlab.com/licci/opentek_fe, v0.6.18 (partner)
DOI: 10.15468/dl.4cu24a
title: Occurrence Download

description: A dataset containing 15 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Alcea setosa",
 "Country is Croatia",
 "HasCoordinate is true"
 ]
}

 The dataset includes 15 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0019681-250920141307145/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.m83ddk
title: Occurrence Download

description: A dataset containing 36 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Alcea setosa",
 "Country is Italy",
 "HasCoordinate is true"
 ]
}

 The dataset includes 36 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0019682-250920141307145/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.nka3np
title: Occurrence Download

description: A dataset containing 221 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Jamides celeno",
 "Geometry POLYGON((119.300000 20.500000, 122.100000 20.500000, 122.100000 25.400000, 119.300000 25.400000, 119.300000 20.500000))",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 221 records from 11 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0019684-250920141307145/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.34810/data1616
title: Qualitative dataset of Local Indicators of Climate Change Impacts in Timucuy, Mexico

description: Qualitative dataset of the Site 'Timucuy' collected by Yolanda Lopez-Maldonado in Mexico. This dataset was collected in the context of the ERC funded project: LICCI - Local Indicators of Climate Change Impacts (The contribution of local knowledge to climate change research). It includes the 1st - qualitative part of a 2 part dataset Qualitative data collection involves first conducting semi-structured interviews to gather community insights, followed by using focus group discussions to validate and identify new observations. More information on the project at https://licci.eu
description: LICCI Data Collection application / https://gitlab.com/licci/opentek_fe, v0.6.18 (partner)
DOI: 10.15468/dl.t2w3sh
title: Occurrence Download

description: A dataset containing 792 species occurrences available in GBIF matching the query:
{
 "and" : [
 "CoordinateUncertaintyInMeters 0.0-10000.0",
 "HasCoordinate is true",
 "TaxonKey is Dreissena bugensis (Andrusov, 1897)",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 792 records from 17 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0084769-200221144449610/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.9n72h3
title: Occurrence Download

description: A dataset containing 43 species occurrences available in GBIF matching the query:
{
 "and" : [
 {
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 }
 ]
 },
 "TaxonKey is one of (Dendranthema arcticum)"
 ]
}

 The dataset includes 43 records from 8 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0019686-250920141307145/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.34810/data1617
title: Surveys dataset of Local Indicators of Climate Change Impacts in Timucuy, Mexico

description: Quantitative dataset of the Site 'Timucuy' collected by Yolanda Lopez-Maldonado in Mexico. This dataset was collected in the context of the ERC funded project: LICCI - Local Indicators of Climate Change Impacts (The contribution of local knowledge to climate change research). It includes the 2st - quantitative part of a 2 part dataset. Quantitative data collection includes household-level surveys with up to 125 randomly selected households and individual-level surveys of up to 175 individuals chosen by convenience sampling. More information on the project at https://licci.eu
description: LICCI Data Collection application / https://gitlab.com/licci/opentek_fe, v0.6.18 (partner)
DOI: 10.15468/dl.rbny6a
title: Occurrence Download

description: A dataset containing 19307 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-65.75044 18.38687,-65.74303 18.38078,-65.73668 18.38157,-65.73165 18.38448,-65.72953 18.38687,-65.72847 18.39004,-65.7253 18.38978,-65.72027 18.38925,-65.71974 18.38316,-65.71577 18.38051,-65.71365 18.37496,-65.71657 18.37072,-65.71498 18.36649,-65.70651 18.36252,-65.69354 18.35299,-65.68296 18.35008,-65.67052 18.34796,-65.66152 18.35034,-65.65517 18.35034,-65.64882 18.35352,-65.64538 18.35934,-65.64061 18.35987,-65.63638 18.36384,-65.63664 18.37046,-65.64405 18.46282,-65.74859 18.46335,-65.75044 18.38687))",
 "OccurrenceStatus is Present"
 ]
}

 The dataset includes 19307 records from 58 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0019687-250920141307145/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.