cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.29007220
title: The interaction of COVID-19 and sociodemographic factors on pediatric rehabilitation service initiation

description: This study examined the effect of the COVID-19 (COVID) pandemic on pediatric rehabilitation referrals and service initiation. In a retrospective cohort study, we examined rehabilitation service utilization in 32 721 children between 2018 and 2022. Descriptive statistics compared service initiation rates by key patient characteristics during the pre-COVID/COVID periods and logistic regression estimated the changes in service initiation. During COVID, service initiation decreased significantly by 23% (<i>p</i> &lt; 0.001), whereas referral rates remained stable. The multivariate model showed that the rate of service initiation decreased faster for children aged 13–18 years than children aged 0–2 years (−11.1 vs. −6.8 percentage points (pps)). Speech-language pathology service initiation decreased significantly more than physical therapy during COVID (−12.2 vs. −6.5 pps), and urban service initiation rates decreased more than rural rates (9.2 vs. 0.9 pps). Disparities in service initiation by race, insurance type, urban/rural location, and primary language were persistent prior to and during COVID. Policies and procedures are needed to address disparities that existed prior to and during COVID in rehabilitation services access. It is critical to screen children for rehabilitation needs that may have gone untreated during COVID to optimize functional outcomes and quality of life. Pediatric rehabilitation service initiation significantly declined during the COVID-19 pandemic.Health care professionals should screen if children and adolescents had unmet service needs during the pandemic, particularly non-White individuals, rare language speakers, rural residents, public insurance holders, and/or those referred to speech-language pathology.Policies, procedures, and interventions are needed to address persistent disparities in pediatric rehabilitation. Pediatric rehabilitation service initiation significantly declined during the COVID-19 pandemic. Health care professionals should screen if children and adolescents had unmet service needs during the pandemic, particularly non-White individuals, rare language speakers, rural residents, public insurance holders, and/or those referred to speech-language pathology. Policies, procedures, and interventions are needed to address persistent disparities in pediatric rehabilitation.
DOI: 10.6084/m9.figshare.29007220.v1
title: The interaction of COVID-19 and sociodemographic factors on pediatric rehabilitation service initiation

description: This study examined the effect of the COVID-19 (COVID) pandemic on pediatric rehabilitation referrals and service initiation. In a retrospective cohort study, we examined rehabilitation service utilization in 32 721 children between 2018 and 2022. Descriptive statistics compared service initiation rates by key patient characteristics during the pre-COVID/COVID periods and logistic regression estimated the changes in service initiation. During COVID, service initiation decreased significantly by 23% (<i>p</i> &lt; 0.001), whereas referral rates remained stable. The multivariate model showed that the rate of service initiation decreased faster for children aged 13–18 years than children aged 0–2 years (−11.1 vs. −6.8 percentage points (pps)). Speech-language pathology service initiation decreased significantly more than physical therapy during COVID (−12.2 vs. −6.5 pps), and urban service initiation rates decreased more than rural rates (9.2 vs. 0.9 pps). Disparities in service initiation by race, insurance type, urban/rural location, and primary language were persistent prior to and during COVID. Policies and procedures are needed to address disparities that existed prior to and during COVID in rehabilitation services access. It is critical to screen children for rehabilitation needs that may have gone untreated during COVID to optimize functional outcomes and quality of life. Pediatric rehabilitation service initiation significantly declined during the COVID-19 pandemic.Health care professionals should screen if children and adolescents had unmet service needs during the pandemic, particularly non-White individuals, rare language speakers, rural residents, public insurance holders, and/or those referred to speech-language pathology.Policies, procedures, and interventions are needed to address persistent disparities in pediatric rehabilitation. Pediatric rehabilitation service initiation significantly declined during the COVID-19 pandemic. Health care professionals should screen if children and adolescents had unmet service needs during the pandemic, particularly non-White individuals, rare language speakers, rural residents, public insurance holders, and/or those referred to speech-language pathology. Policies, procedures, and interventions are needed to address persistent disparities in pediatric rehabilitation.
DOI: 10.6084/m9.figshare.27959247.v1
title: Effects of cardiorespiratory physiotherapy on balance and gait in stroke: a network meta-analysis of randomised controlled trials

description: To investigate effects of various cardiorespiratory physiotherapy interventions on balance and gait in patients with stroke. This systematic review and network meta-analysis searched PubMed, EMBASE, Cochrane Library, and Web of Science for articles from 2000 to 2023. Twenty-nine RCTs on stroke patients were selected, involving interventions like ground-based aerobic training (GBAT), resistance training (RT), aquatic training (AT), robot-assisted training (RAT), inspiratory training (IT), combined aerobic and resistance training (CART), and combined aerobic and breathing training (CABT). Outcome variables were Berg Balance Scale (BBS), 6-minute walk test (6MWT), and 10-meter walk test (10MWT) scores. The analysis included 29 articles with 1,370 participants. On the BBS, RT was the most effective (99.66%), significantly more than conventional training (CT) (mean, 95% CI: 1.538, 0.771–2.304). For the 6MWT, CABT ranked highest (85.39%), with all interventions except AT showing significant effects compared to no intervention (N). For the 10MWT, GBAT ranked highest (81.71%), with significant effects for N versus GBAT (0.744, 0.308–1.180) and CART (0.732, 0.257–1.207). Comparisons of CT versus CART and N versus IT in the 6MWT had moderate evidence quality. The findings emphasise the importance of incorporating aerobic, strength, and respiratory exercises alongside conventional physical therapy for optimal outcomes. CRD42023387282. Resistance training is recommended over other interventions to improve balance in stroke patients.Interventions including aerobic, strength, and respiratory training are recommended over conventional training or non-interventions to improve gait in stroke patients.Rather than relying on conventional training to improve balance and gait, interventions that focus on cardiopulmonary physiotherapy should be considered. Resistance training is recommended over other interventions to improve balance in stroke patients. Interventions including aerobic, strength, and respiratory training are recommended over conventional training or non-interventions to improve gait in stroke patients. Rather than relying on conventional training to improve balance and gait, interventions that focus on cardiopulmonary physiotherapy should be considered.
DOI: 10.6084/m9.figshare.27959247
title: Effects of cardiorespiratory physiotherapy on balance and gait in stroke: a network meta-analysis of randomised controlled trials

description: To investigate effects of various cardiorespiratory physiotherapy interventions on balance and gait in patients with stroke. This systematic review and network meta-analysis searched PubMed, EMBASE, Cochrane Library, and Web of Science for articles from 2000 to 2023. Twenty-nine RCTs on stroke patients were selected, involving interventions like ground-based aerobic training (GBAT), resistance training (RT), aquatic training (AT), robot-assisted training (RAT), inspiratory training (IT), combined aerobic and resistance training (CART), and combined aerobic and breathing training (CABT). Outcome variables were Berg Balance Scale (BBS), 6-minute walk test (6MWT), and 10-meter walk test (10MWT) scores. The analysis included 29 articles with 1,370 participants. On the BBS, RT was the most effective (99.66%), significantly more than conventional training (CT) (mean, 95% CI: 1.538, 0.771–2.304). For the 6MWT, CABT ranked highest (85.39%), with all interventions except AT showing significant effects compared to no intervention (N). For the 10MWT, GBAT ranked highest (81.71%), with significant effects for N versus GBAT (0.744, 0.308–1.180) and CART (0.732, 0.257–1.207). Comparisons of CT versus CART and N versus IT in the 6MWT had moderate evidence quality. The findings emphasise the importance of incorporating aerobic, strength, and respiratory exercises alongside conventional physical therapy for optimal outcomes. CRD42023387282. Resistance training is recommended over other interventions to improve balance in stroke patients.Interventions including aerobic, strength, and respiratory training are recommended over conventional training or non-interventions to improve gait in stroke patients.Rather than relying on conventional training to improve balance and gait, interventions that focus on cardiopulmonary physiotherapy should be considered. Resistance training is recommended over other interventions to improve balance in stroke patients. Interventions including aerobic, strength, and respiratory training are recommended over conventional training or non-interventions to improve gait in stroke patients. Rather than relying on conventional training to improve balance and gait, interventions that focus on cardiopulmonary physiotherapy should be considered.
DOI: 10.6084/m9.figshare.28397118
title: Development of a decision aid for Australian carers of children with cerebral palsy and their community clinicians, about selective dorsal rhizotomy surgery

description: Develop and user-test a patient decision aid about selective dorsal rhizotomy (SDR) surgery for carers of children with cerebral palsy (CP) and clinicians treating children with CP. This study utilised a mixed-methods design. Stage One developed the prototype. Stage Two recruited carers and clinicians to focus groups/semi-structured interviews to review the prototype. Stage Three was an iterative cycle of redrafts based on feedback from Stage Two and input from the SDR Advisory and Consumer Groups. Stage Four assessed acceptability of the SDR Decision Aid <i>via</i> questionnaire. A prototype SDR decision aid was developed and reviewed by 13 clinicians and 8 carers. Five themes were identified: (1) positive and (2) constructive feedback on the presentation; and additional information considered important for future end-users regarding (3) rehabilitation, (4) lived experience, and (5) selection processes. The final version of the SDR Decision Aid was rated highly acceptable by carers and clinicians, based on length, amount of information provided, and usefulness in clinical settings. Participants indicated they would recommend the decision aid to others seeking information about SDR. The SDR Decision Aid is an acceptable and valuable tool for helping parents discuss SDR as a treatment option with their clinicians. Selective dorsal rhizotomy (SDR) is a neurosurgical procedure performed to reduce spasticity in the lower limbs of children with bilateral spastic cerebral palsy (CP).There are limited accessible, evidence-based, reliable resources to educate families and clinicians about SDR in Australia.This gap was addressed through a co-design process to develop an SDR Decision Aid.Acceptability testing found that the SDR Decision Aid is an acceptable and valuable tool in initiating discussions to facilitate shared decision-making about SDR as a treatment option for children with CP. Selective dorsal rhizotomy (SDR) is a neurosurgical procedure performed to reduce spasticity in the lower limbs of children with bilateral spastic cerebral palsy (CP). There are limited accessible, evidence-based, reliable resources to educate families and clinicians about SDR in Australia. This gap was addressed through a co-design process to develop an SDR Decision Aid. Acceptability testing found that the SDR Decision Aid is an acceptable and valuable tool in initiating discussions to facilitate shared decision-making about SDR as a treatment option for children with CP.
DOI: 10.6084/m9.figshare.28397118.v1
title: Development of a decision aid for Australian carers of children with cerebral palsy and their community clinicians, about selective dorsal rhizotomy surgery

description: Develop and user-test a patient decision aid about selective dorsal rhizotomy (SDR) surgery for carers of children with cerebral palsy (CP) and clinicians treating children with CP. This study utilised a mixed-methods design. Stage One developed the prototype. Stage Two recruited carers and clinicians to focus groups/semi-structured interviews to review the prototype. Stage Three was an iterative cycle of redrafts based on feedback from Stage Two and input from the SDR Advisory and Consumer Groups. Stage Four assessed acceptability of the SDR Decision Aid <i>via</i> questionnaire. A prototype SDR decision aid was developed and reviewed by 13 clinicians and 8 carers. Five themes were identified: (1) positive and (2) constructive feedback on the presentation; and additional information considered important for future end-users regarding (3) rehabilitation, (4) lived experience, and (5) selection processes. The final version of the SDR Decision Aid was rated highly acceptable by carers and clinicians, based on length, amount of information provided, and usefulness in clinical settings. Participants indicated they would recommend the decision aid to others seeking information about SDR. The SDR Decision Aid is an acceptable and valuable tool for helping parents discuss SDR as a treatment option with their clinicians. Selective dorsal rhizotomy (SDR) is a neurosurgical procedure performed to reduce spasticity in the lower limbs of children with bilateral spastic cerebral palsy (CP).There are limited accessible, evidence-based, reliable resources to educate families and clinicians about SDR in Australia.This gap was addressed through a co-design process to develop an SDR Decision Aid.Acceptability testing found that the SDR Decision Aid is an acceptable and valuable tool in initiating discussions to facilitate shared decision-making about SDR as a treatment option for children with CP. Selective dorsal rhizotomy (SDR) is a neurosurgical procedure performed to reduce spasticity in the lower limbs of children with bilateral spastic cerebral palsy (CP). There are limited accessible, evidence-based, reliable resources to educate families and clinicians about SDR in Australia. This gap was addressed through a co-design process to develop an SDR Decision Aid. Acceptability testing found that the SDR Decision Aid is an acceptable and valuable tool in initiating discussions to facilitate shared decision-making about SDR as a treatment option for children with CP.
DOI: 10.6084/m9.figshare.27312044
title: Claimant and clinician perspectives on sources of claimant distress in interactions with Australian compensation schemes: a qualitative study

description: Recovering from compensable injuries can be influenced by a variety of factors including the claimant’s experience of distress during the claims process. In order to develop cross-scheme, nation-wide strategies to improve claimants’ interactions with the compensation system, reduce claimant distress, and improve claimant outcomes, it is important to understand sources of claims-related distress from the perspective of both claimants and clinicians. An exploratory qualitative design was undertaken using semi-structured interviews with 13 claimants and 26 clinicians from four injury compensation schemes in five Australian states. A collaborative and reflexive thematic analysis was undertaken with an inductive approach to coding, and themes were constructed for claimants and clinicians across compensation schemes. Claimants and clinicians interviews revealed four main sources of distress, including (1) complexity and delays in administrative processes, (2) interruptions to recovery caused by treatment delays, (3) non-individualised approaches to care, and (4) a lack of support for navigating the claims process. Sources of claims-related distress identified by claimants and clinicians in the present study point to the urgent need for nationwide systems level changes to reduce claimant distress in the pursuit of better claimant outcomes. People who have a compensable insurance claim experience often experience interactions with the insurer and claims process as stressful.Providing information about the claims process to people with a compensable injury may help to reduce claim-related distress during recovery.Finding opportunities to provide social support and reassurance to people with a compensable injury may help them feel supported and reduce distress.Reducing distress for people who are recovering from a compensable injury may lead to better recovery outcomes. People who have a compensable insurance claim experience often experience interactions with the insurer and claims process as stressful. Providing information about the claims process to people with a compensable injury may help to reduce claim-related distress during recovery. Finding opportunities to provide social support and reassurance to people with a compensable injury may help them feel supported and reduce distress. Reducing distress for people who are recovering from a compensable injury may lead to better recovery outcomes.
DOI: 10.6084/m9.figshare.27312044.v1
title: Claimant and clinician perspectives on sources of claimant distress in interactions with Australian compensation schemes: a qualitative study

description: Recovering from compensable injuries can be influenced by a variety of factors including the claimant’s experience of distress during the claims process. In order to develop cross-scheme, nation-wide strategies to improve claimants’ interactions with the compensation system, reduce claimant distress, and improve claimant outcomes, it is important to understand sources of claims-related distress from the perspective of both claimants and clinicians. An exploratory qualitative design was undertaken using semi-structured interviews with 13 claimants and 26 clinicians from four injury compensation schemes in five Australian states. A collaborative and reflexive thematic analysis was undertaken with an inductive approach to coding, and themes were constructed for claimants and clinicians across compensation schemes. Claimants and clinicians interviews revealed four main sources of distress, including (1) complexity and delays in administrative processes, (2) interruptions to recovery caused by treatment delays, (3) non-individualised approaches to care, and (4) a lack of support for navigating the claims process. Sources of claims-related distress identified by claimants and clinicians in the present study point to the urgent need for nationwide systems level changes to reduce claimant distress in the pursuit of better claimant outcomes. People who have a compensable insurance claim experience often experience interactions with the insurer and claims process as stressful.Providing information about the claims process to people with a compensable injury may help to reduce claim-related distress during recovery.Finding opportunities to provide social support and reassurance to people with a compensable injury may help them feel supported and reduce distress.Reducing distress for people who are recovering from a compensable injury may lead to better recovery outcomes. People who have a compensable insurance claim experience often experience interactions with the insurer and claims process as stressful. Providing information about the claims process to people with a compensable injury may help to reduce claim-related distress during recovery. Finding opportunities to provide social support and reassurance to people with a compensable injury may help them feel supported and reduce distress. Reducing distress for people who are recovering from a compensable injury may lead to better recovery outcomes.
DOI: 10.6084/m9.figshare.28263892
title: The use of coaching in stroke rehabilitation: a scoping review

description: Stroke results in long-term impacts on a person’s life requiring ongoing management after formal rehabilitation ends. Coaching can support people to build competencies and skills for managing health-related challenges and has the potential to support stroke survivors to continue achieving goals on their own following rehabilitation. This review sought to describe the research on coaching interventions for adults living with stroke. A scoping review to explore how coaching is defined and used in stroke rehabilitation intervention research. PubMed, CINAHL, Medline, and PsycINFO databases were searched using terms to represent coaching, rehabilitation practitioners, and stroke, the results were extracted into COVIDENCE. Data were described and synthesized to identify similarities and differences among coaching interventions. Twenty-eight articles describing 15 interventions were included and categorized based on their focus as Health Coaching, Coaching for Exercise and Physical Activity, Coaching for Engagement in Activity or Participation, and Transition Coaching. Common elements of coaching interventions were goal setting, problem solving and education with emotional support being infrequent. Notably, coaching definitions and techniques were frequently not described. Coaching in stroke rehabilitation is diverse but has common foci and elements. More research using clear descriptions of coaching is required.
DOI: 10.6084/m9.figshare.28263892.v1
title: The use of coaching in stroke rehabilitation: a scoping review

description: Stroke results in long-term impacts on a person’s life requiring ongoing management after formal rehabilitation ends. Coaching can support people to build competencies and skills for managing health-related challenges and has the potential to support stroke survivors to continue achieving goals on their own following rehabilitation. This review sought to describe the research on coaching interventions for adults living with stroke. A scoping review to explore how coaching is defined and used in stroke rehabilitation intervention research. PubMed, CINAHL, Medline, and PsycINFO databases were searched using terms to represent coaching, rehabilitation practitioners, and stroke, the results were extracted into COVIDENCE. Data were described and synthesized to identify similarities and differences among coaching interventions. Twenty-eight articles describing 15 interventions were included and categorized based on their focus as Health Coaching, Coaching for Exercise and Physical Activity, Coaching for Engagement in Activity or Participation, and Transition Coaching. Common elements of coaching interventions were goal setting, problem solving and education with emotional support being infrequent. Notably, coaching definitions and techniques were frequently not described. Coaching in stroke rehabilitation is diverse but has common foci and elements. More research using clear descriptions of coaching is required.