cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.34820/fk2/9brwjn
title: Grafik Jumlah penyedia layanan pinjaman online 2017 -2021

description: Grafik literasi keuangan
DOI: 10.6084/m9.figshare.20115935
title: TPSDD of 1993

description: The TPSDD data of 1993
DOI: 10.6084/m9.figshare.20115935.v1
title: TPSDD of 1993

description: The TPSDD data of 1993
DOI: 10.6084/m9.figshare.20024555
title: TPSDD data descriptor file

description: <em>The TP Sub-regional Dynamical Downscaling dataset (TPSDD) is the first high-spatial-temporal resolution grid dataset for land-air exchange processes and lower atmospheric structures studies over the whole TP, taking the climate characteristics of each TP sub-region into consideration. The dataset spans from 1981 to 2020, covering the TP with a temporal resolution of 2 hours and spatial resolution of 10 km. Meteorological elements of the TPSDD include the near-surface land-air exchange parameters, such as downwards/upwards long-wave/short-wave radiation fluxes, momentum flux, sensible heat flux, latent heat flux, and so on. In addition, the vertical distributions of 3-dimensional wind, temperature, humidity, and pressure from the surface to tropopause are also included. Independent evaluations were conducted for the TPSDD using the observational data, compared with the most recent ERA5 reanalysis data. The results demonstrate the accuracy and superiority of this dataset against reanalysis data, which provides great potential for future climate change research.</em>
DOI: 10.6084/m9.figshare.20024555.v4
title: TPSDD data descriptor file

description: <em>The TP Sub-regional Dynamical Downscaling dataset (TPSDD) is the first high-spatial-temporal resolution grid dataset for land-air exchange processes and lower atmospheric structures studies over the whole TP, taking the climate characteristics of each TP sub-region into consideration. The dataset spans from 1981 to 2020, covering the TP with a temporal resolution of 2 hours and spatial resolution of 10 km. Meteorological elements of the TPSDD include the near-surface land-air exchange parameters, such as downwards/upwards long-wave/short-wave radiation fluxes, momentum flux, sensible heat flux, latent heat flux, and so on. In addition, the vertical distributions of 3-dimensional wind, temperature, humidity, and pressure from the surface to tropopause are also included. Independent evaluations were conducted for the TPSDD using the observational data, compared with the most recent ERA5 reanalysis data. The results demonstrate the accuracy and superiority of this dataset against reanalysis data, which provides great potential for future climate change research.</em>
DOI: 10.6084/m9.figshare.20024555.v3
title: TPSDD

description: <em>The TP Sub-regional Dynamical Downscaling dataset (TPSDD) is the first high-spatial-temporal resolution grid dataset for land-air exchange processes and lower atmospheric structures studies over the whole TP, taking the climate characteristics of each TP sub-region into consideration. The dataset spans from 1981 to 2020, covering the TP with a temporal resolution of 2 hours and spatial resolution of 10 km. Meteorological elements of the TPSDD include the near-surface land-air exchange parameters, such as downwards/upwards long-wave/short-wave radiation fluxes, momentum flux, sensible heat flux, latent heat flux, and so on. In addition, the vertical distributions of 3-dimensional wind, temperature, humidity, and pressure from the surface to tropopause are also included. Independent evaluations were conducted for the TPSDD using the observational data, compared with the most recent ERA5 reanalysis data. The results demonstrate the accuracy and superiority of this dataset against reanalysis data, which provides great potential for future climate change research.</em>
DOI: 10.15131/shef.data.19673772.v1
title: SNuC: The Sheffield Numbers Spoken Language Corpus

description: SNuC is the first published corpus of spoken alphanumeric identifiers of the sort typically used as serial and part numbers in the manufacturing sector. The dataset contains recordings and transcriptions of over 50 native British English speakers, speaking over 13,000 multi-character alphanumeric sequences and totalling almost 20 hours of recorded speech. <br> Ethical approval to use human participants to gather spoken data using the setup described above was sought and obtained via the University of Sheffield's Research Ethics Review procedures (application 031449). <br> Please refer to the following paper for more information about this dataset: Barker, E., Barker, J., Gaizauskas, R., Ma, N., Paramita, M. L. 2022. SNuC: The Sheffield Numbers Spoken Language Corpus. In: Proceedings of LREC 2022 (forthcoming).
DOI: 10.6084/m9.figshare.19771678
title: Supplementary Material for: Genetic epidemiology of amyotrophic lateral sclerosis in Norway – a 2-year population based study

description: Abstract Background: Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease that affects motor neurons. In Europe, disease-causing genetic variants have been identified in 40–70% of familial ALS patients and approximately in 5% of sporadic ALS patients. In Norway, the contribution of genetic variants to ALS has not yet been studied. In light of the potential development of personalized medicine, knowledge of genetic causes of ALS in a population is becoming increasingly important. The present study provides clinical and genetic data on familial and sporadic ALS patients in a Norwegian population-based cohort. Methods: Blood samples and clinical information from ALS patients were obtained at all 17 neurological departments throughout Norway during a 2-year period. Genetic analysis of the samples involved expansion analysis of C9orf72 and exome sequencing targeting 30 known ALS-linked genes. The variants were classified using genotype-phenotype correlations and bioinformatics tools. Results: A total of 279 ALS patients were included in the study. Of these, 11.5% had one or several family members affected with ALS, whereas 88.5% had no known family history of ALS. A genetic cause of ALS was identified in 31 individuals (11.1%), among which 18 (58.1%) were familial and 13 (41.9%) were sporadic. The most common genetic cause was the C9orf72 expansion (6.8%), which was identified in 8 familial and 11 sporadic ALS patients. Pathogenic or likely pathogenic variants of SOD1 and TBK1 were identified in 10 familial and 2 sporadic cases. C9orf72 expansions dominated in patients from the Northern and Central regions, whereas SOD1 variants dominated in patients from the South-Eastern region. Conclusion: In the present study, we identified several pathogenic gene variants in both familial and sporadic ALS patients. Restricting genetic analysis to only familial cases would miss more than 40 percent of those with a disease-causing genetic variant, indicating the need for genetic analysis in sporadic cases as well.
DOI: 10.6084/m9.figshare.19771678.v1
title: Supplementary Material for: Genetic epidemiology of amyotrophic lateral sclerosis in Norway – a 2-year population based study

description: Abstract Background: Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease that affects motor neurons. In Europe, disease-causing genetic variants have been identified in 40–70% of familial ALS patients and approximately in 5% of sporadic ALS patients. In Norway, the contribution of genetic variants to ALS has not yet been studied. In light of the potential development of personalized medicine, knowledge of genetic causes of ALS in a population is becoming increasingly important. The present study provides clinical and genetic data on familial and sporadic ALS patients in a Norwegian population-based cohort. Methods: Blood samples and clinical information from ALS patients were obtained at all 17 neurological departments throughout Norway during a 2-year period. Genetic analysis of the samples involved expansion analysis of C9orf72 and exome sequencing targeting 30 known ALS-linked genes. The variants were classified using genotype-phenotype correlations and bioinformatics tools. Results: A total of 279 ALS patients were included in the study. Of these, 11.5% had one or several family members affected with ALS, whereas 88.5% had no known family history of ALS. A genetic cause of ALS was identified in 31 individuals (11.1%), among which 18 (58.1%) were familial and 13 (41.9%) were sporadic. The most common genetic cause was the C9orf72 expansion (6.8%), which was identified in 8 familial and 11 sporadic ALS patients. Pathogenic or likely pathogenic variants of SOD1 and TBK1 were identified in 10 familial and 2 sporadic cases. C9orf72 expansions dominated in patients from the Northern and Central regions, whereas SOD1 variants dominated in patients from the South-Eastern region. Conclusion: In the present study, we identified several pathogenic gene variants in both familial and sporadic ALS patients. Restricting genetic analysis to only familial cases would miss more than 40 percent of those with a disease-causing genetic variant, indicating the need for genetic analysis in sporadic cases as well.
DOI: 10.6084/m9.figshare.13229573
title: Preference-based measurement of mobility-related quality of life: developing the MobQoL-7D health state classification system

description: Generic preference-based measures often lack validity in states of impaired mobility. Our aim was to derive a novel health state classification system from the MobQoL tool, for the purpose of preference-based measurement of states of impaired mobility. Data were collected through online and postal surveys. Respondents were recruited through the NHS, charitable organisations and HealthWise Wales. Statistical and psychometric analyses were used to assess the validity and reliability of the MobQoL tool. Exploratory factor analysis and Rasch analysis were used to determine dimensional structure and to select items for the MobQoL health state classification system. Three hundred and forty-two respondents completed the survey. Respondents had a wide range of different mobility impairments. Nine of the MobQoL items demonstrated adequate validity and reliability. Exploratory factor analysis and Rasch analysis confirmed two sub-scales within the item structure: 1) physical and role functioning, and 2) mental wellbeing. Seven items were found to have adequate model fit and were retained in the final health state classification system, called the MobQoL-7D. The MobQoL-7D contains seven dimensions of mobility-related quality of life: accessibility, contribution, pain/discomfort, independence, self-esteem, mood/emotions and anxiety. Population level preference weights are now needed for different states of mobility impairment.IMPLICATIONS FOR REHABILITATIONMobility impairment has distinct impacts on mental wellbeing and physical/role functioning.The MobQoL-7D will facilitate accurate preference-based outcome measurement in populations with impaired mobility, which in turn will promote methods of economic evaluation in this context.MobQoL-7D offers a concise and valid tool for rehabilitation professionals to measure and monitor mobility-related quality of life as part of routine clinical practice. Mobility impairment has distinct impacts on mental wellbeing and physical/role functioning. The MobQoL-7D will facilitate accurate preference-based outcome measurement in populations with impaired mobility, which in turn will promote methods of economic evaluation in this context. MobQoL-7D offers a concise and valid tool for rehabilitation professionals to measure and monitor mobility-related quality of life as part of routine clinical practice.
DOI: 10.6084/m9.figshare.13207569.v1
title: Dose effects in behavioural treatment of post-stroke aphasia: a systematic review and meta-analysis

description: Aphasia is a debilitating chronic acquired language disorder that impacts heavily on a person’s life. Behavioural treatments aim to remediate language processing skills or to enhance communication between the person with aphasia and others, and a number of different treatments are efficacious. However, it is unclear how much of a particular treatment a person needs in order to optimise recovery of language and communication skills following stroke. Systematic search for and meta-analysis of experimental studies that directly compared different amounts of the same behavioural aphasia treatment, following PRISMA guidelines. Treatment dose research in aphasia is an emerging area. Just six studies comparing different doses of the same intervention met all criteria for inclusion. Evidence from these studies was synthesised and meta-analysed, where possible. Meta-analyses were inconclusive due to limited data; however, there are indications that suggest increased dose may confer greater improvement on language and communication measures, but with diminishing returns over time. Aphasia severity and chronicity may affect dose–response relationships. There is currently insufficient evidence to determine the effect of dose on treatment response. A dedicated and coordinated research agenda is required to systematically explore dose–response relationships in post-stroke aphasia interventions. A video abstract is available in the Supplementary Material.Implications for rehabilitationThe investigation of the effect of dose on treatment outcomes in post-stroke aphasia is an emerging research area with few studies reporting comparison of different amounts of the same intervention.In the acute phase of recovery following stroke, higher doses of treatment provided over short periods may not be preferable, tolerable, or superior to lower doses of the same treatment.In the chronic phase, providing additional blocks of treatment may confer additional benefit for some people with aphasia but with diminishing returns.People with chronic aphasia can achieve and maintain significant gains in picture naming after a relatively brief period of high-dose treatment. The investigation of the effect of dose on treatment outcomes in post-stroke aphasia is an emerging research area with few studies reporting comparison of different amounts of the same intervention. In the acute phase of recovery following stroke, higher doses of treatment provided over short periods may not be preferable, tolerable, or superior to lower doses of the same treatment. In the chronic phase, providing additional blocks of treatment may confer additional benefit for some people with aphasia but with diminishing returns. People with chronic aphasia can achieve and maintain significant gains in picture naming after a relatively brief period of high-dose treatment.
DOI: 10.6084/m9.figshare.13239418.v1
title: Are hip movement precautions effective in preventing prosthesis dislocation post hip arthroplasty using a posterior surgical approach? A systematic review and meta-analysis

description: To determine if hip movement precautions reduce hip prosthesis dislocation rates post hip arthroplasty using a posterior surgical approach compared to minimal or no movement restrictions. This review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines and was registered prospectively. CINAHL, MEDLINE and Embase were searched from inception until September 2020 supplemented by citation tracking. Studies were included if patients had a hip arthroplasty using a posterior surgical approach with comparative data on hip movement precautions or minimal to no movement restrictions. Methodological quality was evaluated using the Downs and Black checklist. From a yield of 8 studies, meta-analysis of 7 studies and 9599 total hip arthroplasties, there was low quality evidence of no increased risk of dislocation (RR = 0.98, 95%CI 0.58 to 1.67) for patients prescribed minimal or no hip movement restrictions compared with patients prescribed hip movement precautions. There were 121/5440 dislocations (2.2%) in the movement precaution group and 90/4159 dislocations in the minimally restricted group (2.2%). Dislocation rates after total hip arthroplasty are low irrespective of movement precaution allocation. Resources allocated to implementing hip movement precautions may be better directed towards other clinical areas.IMPLICATIONS FOR REHABILITATIONThere was no difference in hip prosthesis dislocation rate between patients who received hip movement precautions compared to patients who received minimal or no restrictions after total hip arthroplasty using a posterior surgical approach.Health professionals involved in prescribing and monitoring adherence to hip movement precautions after total hip arthroplasty may be better allocating their resources to other areas of clinical care.Falls were associated with the greatest number of prosthesis dislocations, accounting for 24% of dislocations; resources may be better allocated towards evidence-based strategies to reduce falls. There was no difference in hip prosthesis dislocation rate between patients who received hip movement precautions compared to patients who received minimal or no restrictions after total hip arthroplasty using a posterior surgical approach. Health professionals involved in prescribing and monitoring adherence to hip movement precautions after total hip arthroplasty may be better allocating their resources to other areas of clinical care. Falls were associated with the greatest number of prosthesis dislocations, accounting for 24% of dislocations; resources may be better allocated towards evidence-based strategies to reduce falls.
DOI: 10.6084/m9.figshare.13239418
title: Are hip movement precautions effective in preventing prosthesis dislocation post hip arthroplasty using a posterior surgical approach? A systematic review and meta-analysis

description: To determine if hip movement precautions reduce hip prosthesis dislocation rates post hip arthroplasty using a posterior surgical approach compared to minimal or no movement restrictions. This review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines and was registered prospectively. CINAHL, MEDLINE and Embase were searched from inception until September 2020 supplemented by citation tracking. Studies were included if patients had a hip arthroplasty using a posterior surgical approach with comparative data on hip movement precautions or minimal to no movement restrictions. Methodological quality was evaluated using the Downs and Black checklist. From a yield of 8 studies, meta-analysis of 7 studies and 9599 total hip arthroplasties, there was low quality evidence of no increased risk of dislocation (RR = 0.98, 95%CI 0.58 to 1.67) for patients prescribed minimal or no hip movement restrictions compared with patients prescribed hip movement precautions. There were 121/5440 dislocations (2.2%) in the movement precaution group and 90/4159 dislocations in the minimally restricted group (2.2%). Dislocation rates after total hip arthroplasty are low irrespective of movement precaution allocation. Resources allocated to implementing hip movement precautions may be better directed towards other clinical areas.IMPLICATIONS FOR REHABILITATIONThere was no difference in hip prosthesis dislocation rate between patients who received hip movement precautions compared to patients who received minimal or no restrictions after total hip arthroplasty using a posterior surgical approach.Health professionals involved in prescribing and monitoring adherence to hip movement precautions after total hip arthroplasty may be better allocating their resources to other areas of clinical care.Falls were associated with the greatest number of prosthesis dislocations, accounting for 24% of dislocations; resources may be better allocated towards evidence-based strategies to reduce falls. There was no difference in hip prosthesis dislocation rate between patients who received hip movement precautions compared to patients who received minimal or no restrictions after total hip arthroplasty using a posterior surgical approach. Health professionals involved in prescribing and monitoring adherence to hip movement precautions after total hip arthroplasty may be better allocating their resources to other areas of clinical care. Falls were associated with the greatest number of prosthesis dislocations, accounting for 24% of dislocations; resources may be better allocated towards evidence-based strategies to reduce falls.
DOI: 10.6084/m9.figshare.13187789.v1
title: A qualitative analysis of the experiences of children with cerebral palsy and their caregivers in a goal-directed cycling programme

description: This qualitative thematic analysis aimed to capture the experiences of children with cerebral palsy (CP) and caregivers who completed an 8-week goal-directed cycling programme, to provide insights on engagement and programme feasibility. Children with CP (6–18 years, Gross Motor Function Classification Scale (GMFCS) levels II–IV) and caregivers completed semi-structured interviews at the end of the training programme. Interview transcripts were coded by two investigators and systematically organised into themes. A third investigator reviewed the final thematic map. 17 interviews were conducted with 29 participants (11 children: 7–14 years). Four themes emerged: facilitators and challenges to programme engagement; perceived outcomes; the functional-electrical stimulation (FES) cycling experience; and previous cycling participation. Engagement was facilitated by the “therapist’s connection,” “cycling is fun” and “participant driven goal setting,” while “getting there” and “time off school” were identified as challenges. Participants positively linked improved physical function to greater independence. The FES-experience was “fun and challenging,” and participants had mixed feelings about electrode “stickiness.” Previous cycling participation was limited by access to adapted bikes. Children with CP enjoy riding bikes. Facilitators and challenges to engagement were identified that hold practical relevance for clinicians. Environmental and personal factors should be carefully considered when developing future programs, to maximise opportunities for success. Australian New Zealand Clinical Trials Registry – ACTRN12617000644369pIMPLICATIONS FOR REHABILITATIONAdapted cycling is a fun and engaging activity for young people with cerebral palsy.Environmental and personal factors should be carefully considered when prescribing adapted or FES cycling programs to this group.Engagement in adapted and FES-cycling programs can be facilitated by access to loan equipment, a goal-directed focus, and positive therapist–child relationship.Participation in adapted cycling is limited by access to adapted cycling equipment. Adapted cycling is a fun and engaging activity for young people with cerebral palsy. Environmental and personal factors should be carefully considered when prescribing adapted or FES cycling programs to this group. Engagement in adapted and FES-cycling programs can be facilitated by access to loan equipment, a goal-directed focus, and positive therapist–child relationship. Participation in adapted cycling is limited by access to adapted cycling equipment.