DOI: 10.3886/icpsr35194.v1
title: Parents And Children Coping Together (PACT I Child), Los Angeles, California, 1997-2002
title: Version 1

description: Parents And Children Coping Together (PACT) was designed to longitudinally assess mothers in Los Angeles county living with HIV (MLHs) and their young, well children age 5 to 11 years old. The PACT sample was followed every 6 months for 30 months. The study utilizes longitudinal data from children/adolescent and mother dyads to investigate the effects of maternal HIV and family variables on adolescent sexual behavior. Specific aims were to: Evaluate longitudinally youth adjustment (i.e., mental health, behavioral adjustment, social outcomes) including measures for young children. Measures included developmentally appropriate youth and maternal mental health measures (e.g., Children's Depression Inventory for youths age under 18; Beck Depression Inventory for youths age equal to or greater than 18), assessment of maternal physical health, assessment of child behaviors, and family functioning. Evaluate youth characteristics from across developmental periods that may moderate or mediate the impact of MLHs' chronic illness on patterns of youth adjustment over time, including: (a) background factors of age, gender, ethnicity; and (b) moderating and mediating factors, such as self-concept, family cohesion, the parent-child relationship, HIV/AIDS knowledge, perceived stigma, autonomy, and parent-adolescent separation. Evaluate maternal characteristics that may moderate or mediate the impact of MLHs' chronic illness on the youth (e.g., illness severity, mental health status, social support, parenting skills). This collection is a part of the PACT series and contains the child datasets (baselines and follow-ups) from PACT 1. The instrument was divided into 16 sections. These sections are as follows: (A) PACT Child Demographic Questions, (B) Child Social Network, (C) Modified Items from My Family and Friends, (E) RCMAS, (F) Timeline, (G) CDI, (H) Dominic-R, (I) Hopelessness Scale for Children, (L) Children's Coping Strategies Checklist, (M) General Coping Efficacy (C-GCE), (N) Family Functioning (Four subscales), (P) Children's Self-Concept, (Q) Children's Health Knowledge and Attitude Items, (R) Items from Child Behavior Checklist, (S) Life Events and Family Routines, and (T) GLESC Positive Stable Events. Demographic variables include age, education, religious activities, and household structure.
description: Not applicable
description: Presence of Common Scales: Measurement tools and scales are listed in the table of contents of the PACT Mother and Child assessments.
description: The PACT study followed a sample of 135 Mothers living with HIV (MLHs). MLHs were recruited from agencies specializing in services for families affected by HIV/AIDS (e.g., clinical primary care sites, AIDS service organizations) in Los Angeles County. Site staff at recruitment agencies reviewed client records to identify eligible families. They provided MLH with brochures about the study and study staff contact information. Fliers and brochures describing the study and providing the interview and payment schedules were available in English and Spanish and were displayed at all recruitment sites. When describing the project, recruitment staff assured their clients that their decision about whether or not to participate in this research would have no impact on their receipt of treatment services and that the referring agency will not be directly informed about such decisions. Following initial contact by interested individuals, UCLA research staff contacted the mothers. All interested women were informed of the purpose of the study, and of the fact that the study would be presented to the children only as a study of mother-child communication, and that the mothers' diagnosis will not be discussed with the children. All mothers were given an opportunity to review both the mother assessment and the child assessment prior to giving permission or consent. Each mother was asked to discuss possible participation with her child prior to the enrollment interview, and a separate assent process was conducted with the child at the same appointment. The child was told of the different topics to be addressed in his/her interviews, and assured that she/he has the right to refuse to answer any questions she/he does not wish to answer. If a mother had more than one eligible child in the targeted age range, random selection was utilized to determine which child would be asked to be a study participant. The reasons for choosing only one child were primarily practical: to maintain participant incentives at a reasonable budget; to hold the cost of interviewer time to a reasonable level; and to keep the assessment of the mothers (i.e., "subject burden") as reasonable as possible. Recruitment Criteria and PACT Inclusion: Confirmation of MLH HIV/AIDS status; Well child age 5 to 11; Informed consent of MLH; Assent of children. Exclusion criteria: Psychosis of the parent or child (as advised by recruitment site staff); Cognitive ability/intellectual functioning of MLH or child (minimum IQ of approximately 70); Parental refusal or child not giving assent.
description: Datasets: DS0: Study-Level Files DS1: Child Baseline (Public Use Data) DS2: Child Baseline (Restricted Use Data) DS3: Child Follow-up 1 (Public Use Data) DS4: Child Follow-up 1 (Restricted Use Data) DS5: Child Follow-up 2 (Public Use Data) DS6: Child Follow-up 2 (Restricted Use Data) DS7: Child Follow-up 3 (Public Use Data) DS8: Child Follow-up 3 (Restricted Use Data) DS9: Child Follow-up 4 (Public Use Data) DS10: Child Follow-up 4 (Restricted Use Data) DS11: Child Follow-up 5 (Public Use Data) DS12: Child Follow-up 5 (Restricted Use Data)
description: HIV positive mothers and their children in Los Angeles county. Smallest Geographic Unit: None
description: computer-assisted personal interview (CAPI); face-to-face interviewProprietary scales were used in this survey. These variables may not include full variable/value labels and question text in the data.