cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.29039672.v1
title: Dutch translation, cross-cultural adaptation, validation, and reliability of the Back Pain Attitudes Questionnaire (Back-PAQ)

description: To translate and cross-culturally adapt the Back Pain Attitudes Questionnaire (Back-PAQ) to Dutch for the Belgian and Dutch populations, and to investigate its measurement properties in the general population and physiotherapists. The adaptation followed established guidelines. Content validity, internal consistency, test–retest reliability (intraclass correlation coefficient), floor and ceiling effects, minimal detectable change (MDC), construct validity, and structural validity were assessed in physiotherapists and the general population. The modified Fear-Avoidance Beliefs Questionnaire (mFABQ) investigated the Back-PAQ’s convergent validity, and Confirmatory Factor Analysis evaluated structural validity. Discriminant validity was assessed between physiotherapists and the general population. Two hundred and sixty participants (mean age: 29 ± 13.3) completed the initial survey and 147 completed the test–retest survey. All Back-PAQ versions (34-item, 20-item, and 10-item) demonstrated good internal consistency, good to excellent test–retest reliability. Moderate correlations with the mFABQ (<i>p</i> &lt; 0.001) and adequate discriminant validity between physiotherapists and the general population supported robust construct validity. The Back-PAQ 10 exhibited a good model fit and enables meaningful sub-score comparisons. This collaboration produced a validated Dutch Back-PAQ suitable for use in both the Netherlands and Belgium. All versions demonstrated robust measurement properties, supporting their use in clinical and research settings assessing unhelpful beliefs in back pain management. The Dutch Back Pain Attitudes Questionnaire (Back-PAQ) exhibits strong measurement properties, supporting its application in both clinical practice and research contexts.The Dutch translation of the Back-PAQ demonstrates good to excellent reliability and construct validity, making it suitable for health-care practitioners to assess recovery-impeding beliefs about back pain within the general population.The factor structure of the 10-item version of the Back-PAQ 10 has been further analysed using a Confirmatory Factor Analysis, facilitating a practical comparison of its sub-score outcomes in a clinical setting. The Dutch Back Pain Attitudes Questionnaire (Back-PAQ) exhibits strong measurement properties, supporting its application in both clinical practice and research contexts. The Dutch translation of the Back-PAQ demonstrates good to excellent reliability and construct validity, making it suitable for health-care practitioners to assess recovery-impeding beliefs about back pain within the general population. The factor structure of the 10-item version of the Back-PAQ 10 has been further analysed using a Confirmatory Factor Analysis, facilitating a practical comparison of its sub-score outcomes in a clinical setting.
DOI: 10.6084/m9.figshare.28279921
title: Mechanism evaluation of a digitally enabled rehabilitation intervention for people in aged care and neurological rehabilitation: mediation analysis of the AMOUNT trial

description: To investigate potential mechanisms of a digital rehabilitation intervention associated with improved mobility among adults undertaking rehabilitation. Causal mediation analysis of the AMOUNT trial (ACTRN12614000936628). Participants were randomised to digitally-enabled rehabilitation (virtual reality video games, activity monitors, and handheld computer devices prescribed by a physiotherapist) and usual care or usual care alone. Outcomes were mobility (Short Physical Performance Battery; continuous version; range 0–3), physical activity (average steps per day), and quality of life (EQ-5D-5L; utility score; range 0–1) measured at 6-months post-randomisation. Hypothesised mediators included mobility, physical activity, cognition, balance confidence, pain, activity and participation, and computer self-efficacy, assessed at 3-weeks post-randomisation. 216 participants with complete data were included. Three-week sit-to-stand ability mediated 6-month mobility (indirect effect 0.09 points, 95%CI 0.03–0.16), explaining 48% of the intervention’s effect. Dynamic single-leg-stance balance mediated physical activity (indirect effect 345 steps per day, 95%CI 63–678) and composite mobility mediated quality of life (indirect effect 0.03 points, 95%CI 0.00–0.05). Digital rehabilitation outcomes appear to be mediated through sit-to-stand ability, dynamic single-leg-stance balance, and overall mobility. While future research is required to better understand these mediators, our findings recommend sit-to-stand training as a core element of digital rehabilitation interventions targeting mobility. Digital interventions are one option for people undergoing rehabilitation to achieve more task-specific practice in the hospital and home setting.Digital interventions aimed at improving mobility should include repetitive sit-to-stand practice, as sit-to-stand ability is a key driver of improved mobility.Digital interventions aimed at improving physical activity should include exercises that target dynamic balance, however this requires further research.Improving overall mobility should remain a key focus of using digital interventions in rehabilitation as this is a potentially important driver for improving quality of life, however this requires further research. Digital interventions are one option for people undergoing rehabilitation to achieve more task-specific practice in the hospital and home setting. Digital interventions aimed at improving mobility should include repetitive sit-to-stand practice, as sit-to-stand ability is a key driver of improved mobility. Digital interventions aimed at improving physical activity should include exercises that target dynamic balance, however this requires further research. Improving overall mobility should remain a key focus of using digital interventions in rehabilitation as this is a potentially important driver for improving quality of life, however this requires further research.
DOI: 10.6084/m9.figshare.28279921.v1
title: Mechanism evaluation of a digitally enabled rehabilitation intervention for people in aged care and neurological rehabilitation: mediation analysis of the AMOUNT trial

description: To investigate potential mechanisms of a digital rehabilitation intervention associated with improved mobility among adults undertaking rehabilitation. Causal mediation analysis of the AMOUNT trial (ACTRN12614000936628). Participants were randomised to digitally-enabled rehabilitation (virtual reality video games, activity monitors, and handheld computer devices prescribed by a physiotherapist) and usual care or usual care alone. Outcomes were mobility (Short Physical Performance Battery; continuous version; range 0–3), physical activity (average steps per day), and quality of life (EQ-5D-5L; utility score; range 0–1) measured at 6-months post-randomisation. Hypothesised mediators included mobility, physical activity, cognition, balance confidence, pain, activity and participation, and computer self-efficacy, assessed at 3-weeks post-randomisation. 216 participants with complete data were included. Three-week sit-to-stand ability mediated 6-month mobility (indirect effect 0.09 points, 95%CI 0.03–0.16), explaining 48% of the intervention’s effect. Dynamic single-leg-stance balance mediated physical activity (indirect effect 345 steps per day, 95%CI 63–678) and composite mobility mediated quality of life (indirect effect 0.03 points, 95%CI 0.00–0.05). Digital rehabilitation outcomes appear to be mediated through sit-to-stand ability, dynamic single-leg-stance balance, and overall mobility. While future research is required to better understand these mediators, our findings recommend sit-to-stand training as a core element of digital rehabilitation interventions targeting mobility. Digital interventions are one option for people undergoing rehabilitation to achieve more task-specific practice in the hospital and home setting.Digital interventions aimed at improving mobility should include repetitive sit-to-stand practice, as sit-to-stand ability is a key driver of improved mobility.Digital interventions aimed at improving physical activity should include exercises that target dynamic balance, however this requires further research.Improving overall mobility should remain a key focus of using digital interventions in rehabilitation as this is a potentially important driver for improving quality of life, however this requires further research. Digital interventions are one option for people undergoing rehabilitation to achieve more task-specific practice in the hospital and home setting. Digital interventions aimed at improving mobility should include repetitive sit-to-stand practice, as sit-to-stand ability is a key driver of improved mobility. Digital interventions aimed at improving physical activity should include exercises that target dynamic balance, however this requires further research. Improving overall mobility should remain a key focus of using digital interventions in rehabilitation as this is a potentially important driver for improving quality of life, however this requires further research.
DOI: 10.6084/m9.figshare.28303422
title: Patient perceptions of persistent symptoms after mild traumatic brain injury and their influence on mental health treatment-seeking: a grounded theory study

description: Mental health conditions after mild traumatic brain injury (mTBI) are common and can complicate injury outcomes, but are under-treated. According to the Common Sense Model of Self-Regulation, the way patients perceive their health conditions can influence the way they manage them, including if, when, and how they seek treatment. This study explored how individuals perceive persistent symptoms after mTBI, in order to develop a grounded theory about what motivates and demotivates them to seek mental health treatment after their injury. Seventeen adults experiencing persistent symptoms after mTBI participated in semi-structured interviews, which were analyzed using constructivist grounded theory. An explanatory model of patient perceptions was developed with three interrelated categories: (1) Symptom persistence and uncertainty result in life challenges; (2) Self-advocating for answers through extensive treatment-seeking; preference for biomedical treatment; (3) Mental health problems are caused by symptom persistence, therefore mental health treatment is supplementary. Findings suggest a potential barrier to seeking mental health treatment during complicated mTBI recovery: if patients do not consider mental health as an important cause of their ongoing symptoms, they may feel less motivated to prioritize mental health treatment. Mental health conditions after mild traumatic brain injury (mTBI) are common and can complicate injury outcomes, but are under-treated.Patient perceptions of their persistent symptoms after mTBI can play a guiding role in their treatment decisions, including for mental health.Clinicians should validate patients’ physical symptom concerns and their debilitating consequences after mTBI, while introducing the possibility of psychological influences on recovery. Mental health conditions after mild traumatic brain injury (mTBI) are common and can complicate injury outcomes, but are under-treated. Patient perceptions of their persistent symptoms after mTBI can play a guiding role in their treatment decisions, including for mental health. Clinicians should validate patients’ physical symptom concerns and their debilitating consequences after mTBI, while introducing the possibility of psychological influences on recovery.
DOI: 10.6084/m9.figshare.28303422.v1
title: Patient perceptions of persistent symptoms after mild traumatic brain injury and their influence on mental health treatment-seeking: a grounded theory study

description: Mental health conditions after mild traumatic brain injury (mTBI) are common and can complicate injury outcomes, but are under-treated. According to the Common Sense Model of Self-Regulation, the way patients perceive their health conditions can influence the way they manage them, including if, when, and how they seek treatment. This study explored how individuals perceive persistent symptoms after mTBI, in order to develop a grounded theory about what motivates and demotivates them to seek mental health treatment after their injury. Seventeen adults experiencing persistent symptoms after mTBI participated in semi-structured interviews, which were analyzed using constructivist grounded theory. An explanatory model of patient perceptions was developed with three interrelated categories: (1) Symptom persistence and uncertainty result in life challenges; (2) Self-advocating for answers through extensive treatment-seeking; preference for biomedical treatment; (3) Mental health problems are caused by symptom persistence, therefore mental health treatment is supplementary. Findings suggest a potential barrier to seeking mental health treatment during complicated mTBI recovery: if patients do not consider mental health as an important cause of their ongoing symptoms, they may feel less motivated to prioritize mental health treatment. Mental health conditions after mild traumatic brain injury (mTBI) are common and can complicate injury outcomes, but are under-treated.Patient perceptions of their persistent symptoms after mTBI can play a guiding role in their treatment decisions, including for mental health.Clinicians should validate patients’ physical symptom concerns and their debilitating consequences after mTBI, while introducing the possibility of psychological influences on recovery. Mental health conditions after mild traumatic brain injury (mTBI) are common and can complicate injury outcomes, but are under-treated. Patient perceptions of their persistent symptoms after mTBI can play a guiding role in their treatment decisions, including for mental health. Clinicians should validate patients’ physical symptom concerns and their debilitating consequences after mTBI, while introducing the possibility of psychological influences on recovery.
DOI: 10.6084/m9.figshare.28887555
title: What does “tele” do to rehabilitation? Thematic analysis of therapists’ and families’ experiences of pediatric telerehabilitation

description: Pediatric telerehabilitation has become increasingly common with the advent of simple video-conferencing technologies and following the COVID-19 pandemic. This research aimed to ascertain the impact of the technology-facilitated shift in therapy format from in-person to remote (at home) settings, as experienced and described by families and therapists. Two focus groups were conducted, one with 10 families who received telerehabilitation and another with 14 therapists who provided these services for children in care at two rehabilitation institutions. A six-phase inductive thematic analysis was conducted. Three themes were generated, describing the dynamic processes set in motion when remote rehabilitation was introduced: (1) reconstructing conventional therapy, (2) deconstructing conventional therapy, and (3) home as a new therapeutic opportunity. Inspired by actor–network-theory, we contend that “technology”, and “home” are added as actors when the pediatric therapeutic alliance is conducted remotely. This new therapeutic alliance network has the intended consequences of rehabilitating function and skills, but it also impacts the relationships, roles, and self-perceptions of all participants (unintended consequences). A deeper understanding of these changes facilitates a rethinking of pediatric telerehabilitation’s goals and toolboxes. Practically, we suggest a remapping of roles, goals, and relationships in the light of the new therapeutic opportunities offered by telerehabilitation. New technologies that are introduced into the pediatric rehabilitation therapeutic network will likely affect the participants’ positions, actions, and meanings.The results of the presented analyses clarify the unintended consequences on roles and relationships, making them more transparent to all rehabilitation participants.In order to reconstruct conventional pediatric rehabilitation settings at home, the family needs to be willing and able to provide an intimate and enabling setting.All participants need to invest time in establishing and reinforcing connections between the children, families, and therapists to accommodate their changing roles in the network. New technologies that are introduced into the pediatric rehabilitation therapeutic network will likely affect the participants’ positions, actions, and meanings. The results of the presented analyses clarify the unintended consequences on roles and relationships, making them more transparent to all rehabilitation participants. In order to reconstruct conventional pediatric rehabilitation settings at home, the family needs to be willing and able to provide an intimate and enabling setting. All participants need to invest time in establishing and reinforcing connections between the children, families, and therapists to accommodate their changing roles in the network.
DOI: 10.6084/m9.figshare.28887555.v1
title: What does “tele” do to rehabilitation? Thematic analysis of therapists’ and families’ experiences of pediatric telerehabilitation

description: Pediatric telerehabilitation has become increasingly common with the advent of simple video-conferencing technologies and following the COVID-19 pandemic. This research aimed to ascertain the impact of the technology-facilitated shift in therapy format from in-person to remote (at home) settings, as experienced and described by families and therapists. Two focus groups were conducted, one with 10 families who received telerehabilitation and another with 14 therapists who provided these services for children in care at two rehabilitation institutions. A six-phase inductive thematic analysis was conducted. Three themes were generated, describing the dynamic processes set in motion when remote rehabilitation was introduced: (1) reconstructing conventional therapy, (2) deconstructing conventional therapy, and (3) home as a new therapeutic opportunity. Inspired by actor–network-theory, we contend that “technology”, and “home” are added as actors when the pediatric therapeutic alliance is conducted remotely. This new therapeutic alliance network has the intended consequences of rehabilitating function and skills, but it also impacts the relationships, roles, and self-perceptions of all participants (unintended consequences). A deeper understanding of these changes facilitates a rethinking of pediatric telerehabilitation’s goals and toolboxes. Practically, we suggest a remapping of roles, goals, and relationships in the light of the new therapeutic opportunities offered by telerehabilitation. New technologies that are introduced into the pediatric rehabilitation therapeutic network will likely affect the participants’ positions, actions, and meanings.The results of the presented analyses clarify the unintended consequences on roles and relationships, making them more transparent to all rehabilitation participants.In order to reconstruct conventional pediatric rehabilitation settings at home, the family needs to be willing and able to provide an intimate and enabling setting.All participants need to invest time in establishing and reinforcing connections between the children, families, and therapists to accommodate their changing roles in the network. New technologies that are introduced into the pediatric rehabilitation therapeutic network will likely affect the participants’ positions, actions, and meanings. The results of the presented analyses clarify the unintended consequences on roles and relationships, making them more transparent to all rehabilitation participants. In order to reconstruct conventional pediatric rehabilitation settings at home, the family needs to be willing and able to provide an intimate and enabling setting. All participants need to invest time in establishing and reinforcing connections between the children, families, and therapists to accommodate their changing roles in the network.
DOI: 10.6084/m9.figshare.28450867
title: Views of people with MS regarding VR-exergaming to improve physical function and cognition: a qualitative study

description: To investigate the perceptions and experiences of people with MS (PwMS) regarding immersive VR-exergaming as a potential enhancement to rehabilitation programs. A qualitative descriptive approach explored the experiences of PwMS in Christchurch, New Zealand. Data were collected through semi-structured interviews during which participants (<i>n</i> = 6) trialed immersive VR-exergaming. Inductive reflexive thematic analysis interpreted their experiences. The study adhered to the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines. Three main themes identified: 1) Physical Activity for Fun, Fitness, and Wellness: Participants valued physical activity for symptom management but faced barriers like self-efficacy and accessibility. 2) Perceived Benefits of Rehabilitation: VR-exergaming was seen as a tool to improve physical capabilities, cognition, and alleviate fatigue. 3) The VR Gaming Experience, Perceptions Pre- and Post-VR Trial: Participants had varying familiarity with VR-exergaming but expressed positive perceptions, noting safety, cost, comfort, and setup challenges. PwMS value physical activity for maintaining abilities but face barriers like self-efficacy and accessibility. VR-exergaming received positive feedback for enhancing physical abilities. Safety and comfort issues need addressing. Further research should explore usability and effectiveness, considering the needs and preferences of PwMS. Multiple Sclerosis (MS) presents physical and cognitive impairments, impacting balance, fatigue, memory, and overall quality of life.VR-exergaming provides a motivating, accessible alternative to conventional MS rehabilitation exercises, particularly for enhancing balance and cognitive function.Rehabilitation programs that integrate enjoyable, engaging elements like VR-exergaming may improve adherence and address barriers such as low self-efficacy and accessibility. Multiple Sclerosis (MS) presents physical and cognitive impairments, impacting balance, fatigue, memory, and overall quality of life. VR-exergaming provides a motivating, accessible alternative to conventional MS rehabilitation exercises, particularly for enhancing balance and cognitive function. Rehabilitation programs that integrate enjoyable, engaging elements like VR-exergaming may improve adherence and address barriers such as low self-efficacy and accessibility.