DOI: 10.3886/icpsr30181.v1
title: Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04
title: Version 1

description: The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1995 and is in its seventeenth year. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
description: ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection: Created variable labels and/or value labels.; Checked for undocumented or out-of-range codes..
description: Response Rates: 16,065 completed the screening interview. 3,302 were enrolled in the longitudinal study. 2,829 completed the family medical history.
description: Datasets: 
 
 DS1: Dataset
description: Study of Women's Health Across the Nation (SWAN) Series
description: face-to-face interview 
Using the variable SWANID, this dataset can be linked with the SWAN Cross-Sectional Screener Data (ICPSR 04368), Baseline Data (ICPSR 28762), Visit 1 Data (ICPSR 29221), Visit 2 Data (ICPSR 29401), Visit 3 Data (ICPSR 29701), and Visit 4 Data (ICPSR 30142).
description: Women age 40 through 55, living in designated geographic areas, with the ability to speak English or other designated languages (Japanese, Cantonese, or Spanish), who had the cognitive ability to provide verbal informed consent, and had membership in a specific site's targeted ethnic group were included within the first SWAN data collection. For the initial data collection, 202,985 sampling units were screened for participation. 34,985 were identified as eligible. 16,065 completed the survey. 3,302 enrolled in the longitudinal study. 2,829 completed the family medical history at either visits 2, 3, or 4. Smallest Geographic Unit: county
description: Site-specific sampling frames were used and encompassed a range of types, including lists of households, telephone numbers, and individual names of women.