DOI: 10.3886/e221803v1
title: Everyday Needs Assessment for Cognitive Tasks (ENACT) Study

description: The Everyday Needs Assessment for Cognitive Tasks (ENACT) study is a multi-site,<br>longitudinal investigation that explores the daily challenges and support needs of<br>community-dwelling older adults with cognitive impairment, including individuals with<br>mild cognitive impairment, traumatic brain injury, and post-stroke cognitive impairment.<br>By integrating in-depth qualitative interviews with quantitative assessments, the study<br>provides a comprehensive picture of how cognitive challenges affect daily functioning<br>and technology use. The dataset includes baseline and one-year follow-up data for<br>persons with cognitive impairment (PwCI) and baseline data for their care partners (CareP).
description: No sampling weights were applied to this convenience
sample. Researchers using the dataset should account for the implications of
non-probability sampling when generalizing findings to broader populations.
description: Response Rates: <b>Persons with Cognitive Impairment (PwCI)</b><br>
A total of 411 individuals completed telephone pre-screening as persons with cognitive impairment (PwCI). Of those screened, 213 individuals were excluded because they did not meet eligibility criteria (e.g., not qualified based on screening measures) or were not enrolled or dropped prior to enrollment. A total of 198 PwCI were enrolled in Year 1 of the study, resulting in a Year 1 enrollment response rate of approximately 48 percent based on completed telephone pre-screenings. Between Year 1 and Year 2, 84 PwCI were not enrolled or dropped due to reasons including no longer being interested, no longer being eligible, loss to follow-up, or other study-related criteria. A total of 114 PwCI were enrolled in Year 2, corresponding to a Year 2 retention rate of approximately 58 percent among those enrolled in Year 1.
<br><br><b>Care Partners (CareP)</b><br>
A total of 128 individuals completed telephone pre-screening as care partners (CareP). Of those screened, 42 individuals were excluded because they did not meet eligibility criteria or were not enrolled or dropped prior to enrollment. A total of 86 CareP were enrolled in the study, resulting in a CareP enrollment response rate of approximately 67 percent based on completed telephone pre-screenings. CareP participation occurred at a single time point, and no longitudinal follow-up was conducted for this group.
description: Presence of Common Scales: A range of validated scales and instruments was used
to assess cognitive function, daily living activities, social engagement, and
technology use. Instruments such as the ENHANCE Common Assessment Tool
(ENHANCE-CAT), MoCA, and various standardized questionnaires provided reliable
measures that support both cross-sectional and longitudinal analyses. A full
list of instruments is available within the data guide.
description: Convenience sample
description: Community-dwelling older adults aged 60 years and
older who report subjective cognitive complaints due to MCI, TBI, and PSCI, as
well as their care partners. Smallest Geographic Unit: The geographic unit corresponds to the state in the recruitment regions represented by the three study sites—the Midwest, Northeast, and Southeast regions of the United States.
description: mixed mode; other; web-based survey; The data were collected remotely via Zoom. A small number of participants requested in-person assessments, which was
accommodated (n=6).<br>



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