DOI: 10.17604/92pk-ay86
title: Dataset for the Study: Semi-structured Interviews of Jamaican women with Endometriosis

description: This dataset contains de-identified transcriptions, the interview guide, and demographic data of participants. Between 01 March 2019 - 31 July 2019, 16 individual semi-structured interviews were conducted with Jamaican women with endometriosis about their experiences with medical practitioners and their support system. The women were residents in Jamaica, West Indies. Each interview is separated with the words "End of Audio_Transcription for Participant #". The transcriptions include participants responding to questions on their experiences before being diagnosed with endometriosis and after. More specifically, the questions focused on how they communicated with the support system, medical practitioners, intimate partners, and colleagues and how those groups interacted with them. Please note the transcriptions are the verbatim responses from the women. Therefore, the transcriptions are presented in both British Standard English and Jamaican patois. The interview guide for this study is located in the file named Interview Guide_Jamaican_Women_Endometriosis. The transcriptions have been de-identified to protect patient identity and the sensitivity of the content. This means that any information regarding the women's names, area of residence, places of hospitalization, names of medical practitioners they saw for assistance, were omitted from the data. Redacted sections were indicated by the use of the word, "de-identified" and square brackets e.g., [de-identified]. To maintain patient privacy, full access to transcriptions will be limited. Demographic data for the participants are in the file Demographics_DataSet_Jamaican_Women_Endometriosis.csv.
description: A. Filename: Transcriptions_Jamaican Women_Endometriosis.txt        
Short description: The data collected represents transcriptions of 16 semi-structured interviews focused on the communicative experiences Jamaican women with endometriosis have with their support system and the Jamaican medical practitioners from whom they seek assistance. Data come from Jamaican women who reside in Jamaican, West Indies. Please note the transcriptions are the verbatim responses from the women. Therefore, the transcriptions are presented in both British Standard English and Jamaican patois.         

B. Filename: Demographics_DataSet_Jamaican_Women_Endometriosis.csv        
Short description: The data represents the demographic data for each participant interviewed as part of the study focused on Jamaican women with endometriosis. Demographic data include age, date of diagnosis, marital status, education history, etc.        
        
C. Filename: Interview Guide_Jamaican_Women_Endometriosis.txt         
Short description: This file contains the Interview Guide used while conducting semi-structured interviews with Jamaican women with endometriosis. The interview guide has questions focused on the type of support the women received, how their support system communicated with them, how they communicated with their support system, and how medical practitioners communicated with them.