cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.7212815
title: Visual functioning in adults with Idiopathic Infantile Nystagmus Syndrome (IINS)

description: <i>Purpose</i>: IINS is associated with mild/moderate visual impairment, strabismus and compensatory head postures (CHP), which can negatively impact quality of life. Standard visual acuity assessments tend to underestimate the effect of IINS on visual functioning. Published evidence on the effect of INS on quality of life is slowly emerging. Our study examines visual functioning of adults with IINS using the National Eye Institute Visual Function Questionairre-25 (VFQ-25). <i>Methods</i>: 38 participants were recruited to participate in the study. All participants underwent detailed clinical examination, as well as appropriate investigations and were asked to complete the self administered VFQ-25. <i>Results</i>: 35/38 participants completed the questionnaire. The mean age of the population was 35.1 years (range 17-64). Mean overall VFQ-25 score at baseline was 65 (SD 13, range 34-91). Participants specifically demonstrated lowest scores for the impact of IINS on mental health, role limitations and dependency. 26/35 of participants were not driving, either due to sub-normal vision, lack of confidence or difficulties with contrast sensitivity. <i>Conclusions</i>: IINS can have a greater than expected impact on an individual’s quality of life, without necessarily causing markedly reduced visual acuity. Our study showed lowest scores in the domains of mental health and wellbeing. Patients also reported reduced visual functioning in driving, which can impact adversely on employability and independence. Visual functioning questionnaires such as the VFQ-25 may provide more functional information on the impact of nystagmus on an individual’s quality of life than objective measures such as high contrast Snellen and/or LogMAR visual acuity.
DOI: 10.6084/m9.figshare.7212842.v2
title: ScienceGateways2018_Sciserver-Taghizadeh-Popp.pdf

description: SciServer is a collaborative science platform that allows researchers across scientific disciplines to host and share their data sets, and provides a flexible, easy to use, framework for data retrieval and server-side data-intensive analysis with the largest science data sets.<br>
DOI: 10.7284/134857
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1910 using a Ashtech ADU2 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212815.v1
title: Visual functioning in adults with Idiopathic Infantile Nystagmus Syndrome (IINS)

description: <i>Purpose</i>: IINS is associated with mild/moderate visual impairment, strabismus and compensatory head postures (CHP), which can negatively impact quality of life. Standard visual acuity assessments tend to underestimate the effect of IINS on visual functioning. Published evidence on the effect of INS on quality of life is slowly emerging. Our study examines visual functioning of adults with IINS using the National Eye Institute Visual Function Questionairre-25 (VFQ-25). <i>Methods</i>: 38 participants were recruited to participate in the study. All participants underwent detailed clinical examination, as well as appropriate investigations and were asked to complete the self administered VFQ-25. <i>Results</i>: 35/38 participants completed the questionnaire. The mean age of the population was 35.1 years (range 17-64). Mean overall VFQ-25 score at baseline was 65 (SD 13, range 34-91). Participants specifically demonstrated lowest scores for the impact of IINS on mental health, role limitations and dependency. 26/35 of participants were not driving, either due to sub-normal vision, lack of confidence or difficulties with contrast sensitivity. <i>Conclusions</i>: IINS can have a greater than expected impact on an individual’s quality of life, without necessarily causing markedly reduced visual acuity. Our study showed lowest scores in the domains of mental health and wellbeing. Patients also reported reduced visual functioning in driving, which can impact adversely on employability and independence. Visual functioning questionnaires such as the VFQ-25 may provide more functional information on the impact of nystagmus on an individual’s quality of life than objective measures such as high contrast Snellen and/or LogMAR visual acuity.
DOI: 10.7284/134859
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1910 using a Furuno GP-150 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134860
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1910 using a Furuno GP-170 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134855
title: Gyrocompass data collected during research cruise SP1910 using a Furuno Furuno SC-30 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134854
title: Meteorological Station data collected during research cruise SP1910 using a SIO MET-System instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.12886814
title: Supplementary Material for: Importance and Assessment of Quality of Life in Symptomatic Permanent Atrial Fibrillation: Patient Focus Groups from the RATE-AF Trial

description: <b><i>Aims:</i></b> To establish the extent and impact of symptoms in patients with atrial fibrillation (AF), the importance of different aspects of quality of life (QoL), and how we should assess wellbeing. <b><i>Methods:</i></b> Focus groups of patients with symptomatic permanent AF in a trial of heart rate control; the RATE-AF trial randomised 160 patients aged ≥60 years with permanent AF and at least NYHA class II dyspnoea to either digoxin or beta-blockers. Patient and public representatives led the focus groups and performed all data acquisition and analysis, using thematic approaches to interpret patient views about QoL and its measurement. <b><i>Results:</i></b> Substantial impairment of health-related QoL was noted in 160 trial patients, with impact on all domains apart from mental health. Eight women and 11 men aged 61–87 years participated in the focus groups. Common themes were a lack of information from healthcare professionals about AF, a lack of focus on QoL in consultations, and a sense of frustration, isolation, and reduced confidence. There was marked variability in symptoms in individual patients, with some describing severe impact on activities of daily living, and profound interaction with comorbidities such as arthritis. Day-to-day variation in QoL and difficulty in attributing symptom burden to AF or other comorbidities led to challenges in questionnaire completion. Consensus was reached that collecting both general and AF-specific QoL would be useful in routine practice, along with participation in peer support, which was empowering for the patients. <b><i>Conclusions:</i></b> The impact of comorbidities is poorly appreciated in the context of AF, with considerable variability in QoL that requires both generic and AF-specific assessment. Improvement in QoL should direct the appraisal, and reappraisal, of treatment decisions for patients with permanent AF.
DOI: 10.6084/m9.figshare.7212746
title: Supplementary Data for Cappellini et al., Early Pleistocene enamel proteome from Dmanisi resolves Stephanorhinus phylogeny, 2019, Nature.

description: This data accession contains:1) Genomic BAM files of selected regions in the genomes of extant and extinct rhinoceroses used for protein translation.2) Protein sequence alignment of all considered extant and extinct species, per gene.A description of research design, methods, and results can be found at:https://doi.org/10.1038/s41586-019-1555-y
DOI: 10.7284/134853
title: Winch data collected during research cruise SP1910 using a Markey DEYSH-3 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134861
title: ADCP (Acoustic Doppler Current Profiler) data collected during research cruise SP1911 using a Hawaii UHDAS instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134865
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1911 using a Garmin GPS-17HVS instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134866
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1911 using a Ashtech ADU2 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212668
title: External Database S2 from Precision global health and comorbidity: a population-based study of 16 357 people in rural Uganda

description: Comorbidity network correlations
DOI: 10.7284/134868
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1911 using a Furuno GP-150 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212668.v1
title: External Database S2 from Precision global health and comorbidity: a population-based study of 16 357 people in rural Uganda

description: Comorbidity network correlations
DOI: 10.6084/m9.figshare.7212662
title: External Database S1 from Precision global health and comorbidity: a population-based study of 16 357 people in rural Uganda

description: Human Phenotype Ontology mapping
DOI: 10.7284/134869
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1911 using a Furuno GP-170 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212662.v1
title: External Database S1 from Precision global health and comorbidity: a population-based study of 16 357 people in rural Uganda

description: Human Phenotype Ontology mapping
DOI: 10.7284/134864
title: Gyrocompass data collected during research cruise SP1911 using a Furuno Furuno SC-30 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134863
title: Meteorological Station data collected during research cruise SP1911 using a SIO MET-System instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212545
title: Transcriptions of letters by Sarah Hartwig, Susanna Klein, and Elizabeth Renner (ed. Fiona Leach).pdf

description: This file contains the full collection of letters by three women (Sarah Hartwig, Susanna Klein, and Elizabeth Renner) involved in the British Mission to West Africa, as transcribed and edited by Fiona Leach. <br><br>The collection is a valuable addition to Brill's <em>Reclaiming the Women of Britain’s First Mission to West Africa: Three Lives Lost and Found</em> by Fiona Leach.<br><br><em>Reclaiming the Women of Britain’s First Mission to West Africa</em> is the compelling story of three long-forgotten women, two white and one black, who lived, worked and died on the Church Missionary Society’s first overseas mission at the dawn of the nineteenth century. It was a time of momentous historical events: the birth of Britain’s missionary movement, the creation of its first African colony as a home for freed slaves, and abolition of the slave trade. Casting its long shadow over much of the women’s story was the protracted war with Napoleon. <br> <br>Taking as its starting point a cache of fifty letters from the three women, the book counters the prevailing narrative that early missionary endeavour was a uniquely European and male affair, and reveals the presence of a surprising number of women, among them several with very forceful personalities. Those who are interested in women’s life history, black history, the history of the slave trade and British evangelism will find this book immensely enjoyable.
DOI: 10.7284/134862
title: Winch data collected during research cruise SP1911 using a Markey DEYSH-3 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212446
title: Chlorophyll-a and barnacle size data

description: This dataset describes values of chlorophyll-a (phytoplankton concentration) and barnacle size for 8 wave-exposed, rocky intertidal locations along the Atlantic coast of Nova Scotia surveyed between 2014 and 2018.
DOI: 10.7284/134870
title: ADCP (Acoustic Doppler Current Profiler) data collected during research cruise SP1912 using a Hawaii UHDAS instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212446.v1
title: Chlorophyll-a and barnacle size data

description: This dataset describes values of chlorophyll-a (phytoplankton concentration) and barnacle size for 8 wave-exposed, rocky intertidal locations along the Atlantic coast of Nova Scotia surveyed between 2014 and 2018.
DOI: 10.6084/m9.figshare.7212392
title: Supplementary Material for: Diabetes, but Not Hypertension and Obesity, Is Associated with Postoperative Cognitive Dysfunction

description: <b><i>Background/Aims:</i></b> Older people undergoing surgery are at risk of developing postoperative cognitive dysfunction (POCD), but little is known of risk factors predisposing patients to POCD. Our objective was to estimate the risk of POCD associated with exposure to preoperative diabetes, hypertension, and obesity. <b><i>Methods:</i></b> Original data from 3 randomised controlled trials (OCTOPUS, DECS, SuDoCo) were obtained for secondary analysis on diabetes, hypertension, baseline blood pressure, obesity (BMI ≥30 kg/m<sup>2</sup>), and BMI as risk factors for POCD in multiple logistic regression models. Risk estimates were pooled across the 3 studies. <b><i>Results:</i></b> Analyses totalled 1,034 patients. POCD occurred in 5.2% of patients in DECS, in 9.4% in SuDoCo, and in 32.1% of patients in OCTOPUS. After adjustment for age, sex, surgery type, randomisation, obesity, and hypertension, diabetes was associated with a 1.84-fold increased risk of POCD (OR 1.84; 95% CI 1.14, 2.97; <i>p</i> = 0.01). Obesity, BMI, hypertension, and baseline blood pressure were each not associated with POCD in fully adjusted models (all <i>p</i> &gt; 0.05). <b><i>Conclusion:</i></b> Diabetes, but not obesity or hypertension, is associated with increased POCD risk. Consideration of diabetes status may be helpful for risk assessment of surgical patients.
DOI: 10.7284/134875
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1912 using a Garmin GPS-17HVS instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134876
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1912 using a Ashtech ADU2 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134877
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1912 using a Furuno GP-150 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134878
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1912 using a Furuno GP-170 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134874
title: Gyrocompass data collected during research cruise SP1912 using a Furuno Furuno SC-30 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134873
title: Meteorological Station data collected during research cruise SP1912 using a SIO MET-System instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134871
title: Singlebeam Echosounder data collected during research cruise SP1912 using a Knudsen 320B/R instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134879
title: ADCP (Acoustic Doppler Current Profiler) data collected during research cruise SP1913 using a Hawaii UHDAS instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134884
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1913 using a Garmin GPS-17HVS instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134885
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1913 using a Ashtech ADU2 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134886
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1913 using a Furuno GP-150 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134887
title: GNSS (Global Navigation Satellite System) data collected during research cruise SP1913 using a Furuno GP-170 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.7284/134883
title: Gyrocompass data collected during research cruise SP1913 using a Furuno Furuno SC-30 instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition
DOI: 10.6084/m9.figshare.7212293
title: Program conditions that foster quality physical activity participation experiences for people with a physical disability: a systematic review

description: <b>Background:</b> Due to the numerous barriers people with a physical disability face to being physically active, emphasis in practice and research is often placed on creating opportunities for participation. As such, the quality of the experience is often ignored once an individual is participating. <b>Purpose:</b> An understanding of how to create quality physical activity experiences is critical to foster enjoyable and sustained participation. The aim of this systematic review was to identify intervention and/or program conditions that may foster key elements that shape quality participation (QP) experiences. <b>Methods:</b> In all, 24 qualitative and 6 quantitative studies met inclusion criteria. The results of the qualitative studies were synthesized using thematic analysis. <b>Results:</b> The synthesis identified two program conditions as important for fostering QP elements: (1) group-based programing: participating with peers can be linked to belongingness and mastery and (2) leadership: knowledgeable instructors may foster mastery and autonomy. The quantitative studies lacked variability in program conditions and QP elements, which precluded associating specific conditions with elements of a quality experience. <b>Conclusions:</b> Although the qualitative findings highlight two program conditions which may foster QP elements, overall, evaluations of physical activity interventions involving people with disabilities rarely include experiential aspects of participation.Implications for rehabilitationGroup-based programming and leadership are two program conditions that may foster elements of quality participation.Physical activity organizers need to consider group composition. Physical activity programs should consist of peers with a disability, as appropriate, in order to promote belongingness.Physical activity programs should provide disability-specific training to leaders or seek leaders with disability-specific knowledge, in addition to physical activity knowledge and skills. Group-based programming and leadership are two program conditions that may foster elements of quality participation. Physical activity organizers need to consider group composition. Physical activity programs should consist of peers with a disability, as appropriate, in order to promote belongingness. Physical activity programs should provide disability-specific training to leaders or seek leaders with disability-specific knowledge, in addition to physical activity knowledge and skills.
DOI: 10.7284/134882
title: Meteorological Station data collected during research cruise SP1913 using a SIO MET-System instrument system onboard the platform RV Robert Gordon Sproul

description: Original (unprocessed) data collected during a Field_expedition