cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.24373/pdsp-236
title: Intimate Partner Violence SDOH Measure Responses

description: This concept set was developed to identify the ANSWERS to the questions that make up the Social Determinants of Health (SDOH) metrics for housing stability. These include the Humiliation, Afraid, Rape, and Kick (HARK) questionnaire. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting concept_id_2 where relationship_id = 'Has Answer'.
description: This concept set is intended to identify the responses to the intimate partner violence SDOH measure(s).
DOI: 10.24373/pdsp-272
title: SARS-CoV-2, Lab Results

description: A concept set indicating that a patient received a laboratory test result for a SARS-CoV-2.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-59
title: Dysmetabolic Syndrome

description: This concept set is inteded to identify patients with a diagnosis of dysmetabolic syndrome.
description: Healthy Weight
DOI: 10.24373/pdsp-97
title: Respiratory Failure

description: This concept set is inteded to identify patients with a diagnosis of respiratory failure.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-180
title: Hypermobility and Connective Tissue Disorder

description: The original development code cannot be found and the concept set has not been reviewed, this concept set is best used as a starting point for hypermobility variable study.
description: This concept set is inteded to identify patients with a diagnosis of body habitus.
description: Developed for the Y1, Q4 Preexisting Conditions (ME-CFS/Dysautonomia) query of the Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study.
DOI: 10.24373/pdsp-77
title: Respiratory Infections

description: This condition concept set includes all respiratory tract infection diagnoses, both upper and lower. This code list was generated by taking all descendants of the SNOMED code 275498002 for respiratory tract infection, and related ICD9/10/10CM codes. String searching was not used because of the huge number of terms that would be needed. This broad concept set was intended to identify patients with respiratory infection diagnoses. Limited to ICD9CM, ICD10, ICD10CM and SNOMED diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is intended to identify patients with a diagnosis of a respiratory infection.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-324.2
title: Calcium Channel Blocker, Drug Exposure

description: This medication concept set includes the following ingredients: Amlodipine, Diltiazem, Felodipine, Isradipine, Nicardipine, Nifedipine, Nisoldipine, and Verapamil. It also includes combinations of these ingredients with other antihypertensive medications. This code list was generated by taking the descendants of all the calcium channel blocker ingredients of interest and string matching the concept_name of the ingredient. Meds were expected to be only oral/enteral/IV, not topical, ophthalmic/ocular, or buccal.
description: This broad concept set was intended to identify patients who received calcium channel blockers.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-106
title: Chronic Kidney Disease, Stages 2 and 3

description: This condition concept set includes diagnoses that specify CKD stage 2 or 3. Developed for the PRESERVE study to identify patients with only stages 2, 3, 3a, or 3b CKD. This code list was generated by taking all descendants of the SNOMED codes for Stage 2 and 3 Chronic kidney disease, related ICD9/10/10CM codes and searching all mentions of 'chronic kidney disease' and 'chronic renal disease' with 'stage 2' or 'stage ii', or 'stage 3 or stage iii' in the concept_name. This concept set is limited to ICD9, ICD10, ICD10CM and SNOMED diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: Concept set is intended to identify patients with a diagnosis of chronic kidney disease, Stages 2 and 3.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-360.2
title: Ureteral Stent

description: This procedure concept set contains codes for insertion, replacement, and removal of ureteral stents. It was developed by performing a string search for "ureter" and "stent" in the vocabularies ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, and OPCS4 in the measurement and procedure domains. This concept set is limited to the ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, and OPCS4 vocabularies in the procedure and measurement domains. This concept set contains most of the same codes as the previous version except contain concept_ids 44816428, 2109679, 2109680, and 4262587, which all refer to surgical procedures with consequent ureteral stent placement, not the procedure for the stent placement itself.
description: Concept set intended to identify patients having undergone a ureteral stent-related procedure.
description: The original concept set was developed for A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2). This modified set was utilized for the P50 clinical insights report.
DOI: 10.24373/pdsp-31
title: Deep Vein Thrombosis

description: This concept set is inteded to identify patients with a diagnosis of deep vein thrombosis.
description: Impact of Early and Universal Hydroxyurea on Cerebrovascular Outcomes in Sickle Cell Disease
DOI: 10.24373/pdsp-404
title: General Practice Specialties

description: This concept set was developed as part of an ad-hoc data quality analysis aimed at evaluating a primary care cohort. It was used to help identify both a cohort of primary care patients and which providers and care sites might reliably be considered primary care related. For the particular analysis for which it was initially developed, this concept set was also used in conjunction with a concept set of well-child diagnoses and procedures, as well as several attrition criteria to measure continuity of care across regular intervals.
description: Concept set intended to identify providers and care sites with general practice specialties.
DOI: 10.24373/pdsp-374
title: MRI Scan, Chest Region

description: This concept set was developed as part of an algorithm to identify pulmonary embolism in children. It was created by string searching "concept_name" for all variations of MRIs in combination with the chest region of the body. The domains were limited to procedure, device, measure value, and observation, and codes were limited to CPT4, HCPCS, SNOMED, and ICD procedures. The study team reviewed and refined the set according to the needs of the study. Please note, this concept set was never used in the resultant study algorithm due to changes in the pilot study's scope. This concept set was never used in a study, nor has there been any data quality work done with this concept set.
description: Concept set intended to identify patients having undergone a magnetic resonance imaging (MRI) procedure.
description: Computable phENotype To Identify Pulmonary Embolism in chilDrEn (CENTIPEDE)
DOI: 10.24373/pdsp-241
title: Physical Activity, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for physical activity. These include the AHC HRSN Physical Activity and Exercise Vital Sign. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for physical activity.
DOI: 10.24373/pdsp-254.2
title: Serum White Blood Cell, Lab Results

description: The measurement concept set includes all serum/blood/plasma WBC labs. The original code list was generated by searching all mentions of 'leukocyte' or 'white blood cell' with 'serum', 'plasma' or 'blood' in the concept_name. Limited to LOINC codes. Filtered out terms for sub-types of WBC (plasma, mono, lympho, neutrophil, etc) and allergy related terms. Body fluid concepts were removed in this subsequent version.
description: A concept set indicating that a patient received a laboratory measurement for serum white blood cell.
description: Original concept set developed for Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for alanine transaminase (ALT) labs. It was reused for the study "Natural History of Enteroviral Sepsis Using Real World Data" after slight modifications.
DOI: 10.24373/pdsp-299.2
title: Renin-Angiotensin-Aldosterone System (RAAS) Blocker, Drug Exposure

description: This concept set identifies renin-angiotensin-aldosterone system-blocking medications including angiotensin-converting enzyme (ACE) inhibitors, angiotensin II receptor blockers (ARBs), and other agents acting on the renin-angiotensin system. This medication concept set includes the following ingredients: aliskiren, azilsartan, benazepril, candesartan, captopril, cilazapril, enalapril, eprosartan, fosinopril, imidapril, irbesartan, lisinopril, losartan, moexipril, olmesartan, perindopril, quinapril, ramipril, spirapril, telmisartan, trandolapril, valsartan, and zofenopril. It also includes combinations of these ingredients with other antihypertensive medications. This code list was generated by taking the descendants of all the ACE, ARB, and other RAAS agent ingredients of interest, and string matching on the concept_name of the ingredient. Technical Note: This concept set was created when ingredients were required for some sites. It could be enhanced by using SCDF drug levels and taking descendants, making this easier to refresh. This concept set is identical to its predecessor, but it has been expanded to include RxNorm Extension codes in addition to RxNorm codes.
description: This broad concept set was intended to identify patients who received angiotensin-converting enzyme (ACE) inhibitors, angiotensin II receptor blockers (ARBs), and other agents acting on the renin-angiotensin system.
description: Treatment of Henoch-Schonlein purpura (HSP) Nephritis
DOI: 10.24373/pdsp-37
title: Cough

description: This diagnosis concept set includes cough related diagnoses and symptoms. This was developed for the PRESERVE study to identify diagnoses/symptoms of cough. The code list was generated by taking descendants related to the SNOMED code 49727002 for Cough and searching for all mentions of 'cough' in the concept_name. Terms that were not related to conditions/symptoms were removed, include 'history of', 'whooping', 'hiccough' and medication names that include cough. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is intended to identify patients with a diagnosis of cough.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-161
title: Headache

description: This concept set is inteded to identify patients with a diagnosis of headache.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-335
title: Antipsychotic, Drug Exposure

description: Concept set intended to identify patients with an exposure to an antipsychotic medication.
description: Developing Computable Phenotype for Autism
DOI: 10.24373/pdsp-273
title: Mean Corpuscular Volume, Lab Results

description: The concept set was generated by searching for terms mean corpuscular volume in the vocabulary table limiting to LOINC code for Lab domain.
description: A concept set indicating that a patient received a laboratory measurement for mean corpuscular volume.
description: This concept set was used for Impact of the 2014 NHLBI Guidelines on Cerebrovascular Events in Sickle Cell Disease to indentify sickle cell patients with altest one lab record of mean corpuscular volume.
DOI: 10.24373/pdsp-354
title: Urinalysis

description: Concept set intended to identify patients having undergone a urinalysis procedure.
description: Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1 (Alnylam)
DOI: 10.24373/pdsp-162
title: Hyperoxaluria

description: This concept set contains diagnosis codes for or potentially indicative of primary hyperoxaluria. The concept set was developed as inclusion criteria for the cohort of patients in PEDSnet with primary hyperoxaluria. Since the disease is ultra rare, the codeset was designed to be broad to minimize the risk of missing potential candidates for the study (i.e. false negatives). Broad code was included in the codeset, disorder of carbohydrate metabolism, after examination of source values for patients prior to the introduction of specific codes for PH and required that for patients to be included to have at least 2 diagnoses in addition to a diagnosis of kidney stones, as the code itself could have even broader implications. The codeset was developed using string searching for SNOMED codes containing "oxal" and further refining based on the returned codes. We also added in the disorder of carbohydrate metabolism code after searching for PH-related terms in the condition source values in PEDSnet. This concept set is limited to SNOMED diagnosis codes.
description: This concept set is inteded to identify patients with a diagnosis of primary hyperoxaluria.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2)
DOI: 10.24373/pdsp-172
title: Fatigue

description: This condition concept set includes all fatigue-related conditions. It was generated by taking all descendants of the SNOMED code 84229001 for Fatigue, related ICD9CM/10/10CM codes, and searching all mentions of 'fatigue' in the concept_name. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. This concept set is limited to ICD9, ICD10, ICD10CM and SNOMED diagnosis codes. Diagnoses related to pregnancy/gestation were excluded.
description: This concept set is inteded to identify patients with a diagnosis of fatigue.
description: The concept set was developed for the study "Preserving Kidney Function in Children with Chronic Kidney Disease" (PRESERVE) for diagnoses and symptoms fatigue.
DOI: 10.24373/pdsp-217
title: Postpartum Depression SDOH Measure Responses

description: This concept set was developed to identify the ANSWERS to the questions that make up the Social Determinants of Health (SDOH) metrics for postpartum depression. These include the Edinburgh Postnatal Depression Screen. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting concept_id_2 where relationship_id = 'Has Answer'.
description: This concept set is intended to identify the responses to the postpartum depression SDOH measure(s).
DOI: 10.24373/pdsp-269
title: Respiratory Syncytial Virus (RSV) Lab Results

description: A concept set indicating that a patient received a laboratory measurement for respiratory syncytial virus (RSV).
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-252
title: SARS-CoV-2, Serology Lab Results

description: A concept set indicating that a patient received a serology laboratory test result for a SARS-CoV-2.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-60
title: Temporal Arteritis

description: This concept set contains diagnosis codes for temporal arteritis. This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC. The code list was generated by searching for all descendants of the SNOMED code 400130008 (Temporal arteritis) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "temporal arteritis" or "giant cell arteritis" in domains excluding the measurement domain and excluding the terms "family history" or "referral". The concept set was limited to ICD10, IDC10CM, and SNOMED vocabularies. SNOMED codes in the measurement domain were excluded.
description: This concept set is inteded to identify patients with a diagnosis of temporal arteritis.
description: The original concept set was developed for the initial RECOVER work exploring clinical features of PASC in children. This codeset was a part of the autoimmune conditions subset of features.
DOI: 10.24373/pdsp-175
title: Anaphylactic Shock

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map anaphylactic shock diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-98
title: Edema

description: This diagnosis concept set includes concepts related to diagnoses or findings of edema. The code list was generated for all mentions of edema in the concept_name in SNOMED, ICD9CM, ICD10 and ICD10CM vocabularies. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. This codeset did NOT use descendants of SNOMED concepts for edema or disorder characterized by edema because that resulted in too many unrelated edema conditions.
description: This concept set is intended to identify patients with a diagnosis code for edema.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-280
title: Serum Bicarbonate, Lab Results

description: The measurement concept set includes all serum/blood/plasma bicarbonate labs. This code list was generated by searching all mentions of 'bicarbonate' with 'serum', 'plasma' or 'blood' in the concept_name. Limited to the LOINC vocabulary_id.
description: A concept set indicating that a patient received a laboratory measurement for serum bicarbonate.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for serum bicarbonate lab values.
DOI: 10.24373/pdsp-383
title: Urology, Providers and Care Sites

description: This concept set contains terms for urology specialty. It was developed using a string search for "urol" related terms. It was developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH. Some of the vocabularies in the concept set are not utilized in the PEDSnet CDM to describe provider or care site specialty, but could potentially be present in other networks for distributed queries. This concept set contains the vocabularies ABMS, HES Specialty, Medicare Specialty, and NUCC. PCORnet equivalent concept sets are linked below.
description: Concept set intended to assess the frequency with which patients sought care with specialties involved in patient care for and related to urology.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-208
title: Human Immunodeficiency Virus (HIV)

description: This concept set is inteded to identify patients with a diagnosis of Human Immunodeficiency Virus (HIV).
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-300
title: Intravenous Fluids, Drug Exposure (SCDF)

description: This concept set was developed at the Semantic Clinical Drug From (SCDF) level.
description: Concept set intended to identify patients with an exposure to intravenous fluids.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-263
title: Protein C, Lab Results

description: The concept set was generated by searching for terms Protein C in the vocabulary table limiting to LOINC code for Lab domain.
description: A concept set indicating that a patient received a laboratory measurement for protein C.
description: This concept set was used for Impact of the 2014 NHLBI Guidelines on Cerebrovascular Events in Sickle Cell Disease to indentify sickle cell patients with altest one lab record of Protein C.
DOI: 10.24373/pdsp-197
title: Malabsorption

description: This concept set is inteded to identify patients with a diagnosis of malabsorption.
description: Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1 (Alnylam)
DOI: 10.24373/pdsp-209
title: Allergic Gastritis and Colitis

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map gastritis and colitis allergy diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-53
title: Trisomy 21

description: This concept set is inteded to identify patients with a diagnosis of Trisomy 21.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-74
title: Elevated Blood Pressure, Distinct from Hypertension

description: This condition concept set includes elevated blood pressure. Limited to ICD9CM and ICD10CM diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set was created to identify patients with a diagnosis of elevated blood pressure, distinct from hypertension.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-19
title: Attention-Deficit/Hyperactivity Disorder (ADHD)

description: The codesets contains ICD codes that would be most related to potential childhood ADHD diagnoses. The codeset was meant to be broad and was meant to pick up specific ADHD diagnosis and non-specific ADHD diagnosis as to ensure patients who may have been misdiagnosed for ADHD were not missed.
description: Concept set to identify patients with an ADHD diagnosis to define a study cohort variable.
description: Concept set developed for the "Identification and Treatment of Attention-Deficit/Hyperactivity Disorder Diagnosis or Related Symptoms in Children 2 to 5-Years-Old" study.