DOI: 10.3886/icpsr03678.v1
title: Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data
title: Version 1

description: Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
description: ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection: Created online analysis version with question text..
description: Datasets: 
 
 DS0: Study-Level Files 
 DS1: Screening Log Sheet 
 DS2: Screening 
 DS3: Rescreen 
 DS4: Repeat Screen 
 DS5: Short Portable Mental Status Questionnaire 
 DS6: ADL/IADL 
 DS7: Anxiety Inventory 
 DS8: Bereavement Form 
 DS9: Bereavement--Religiosity 
 DS10: Bereavement--Sociodemographic 
 DS11: Caregiver Health and Health Behaviors 
 DS12: Core Quality Form 
 DS13: Intervention Delivery Assessment 
 DS14: Formal Care and Services 
 DS15: Caregiver Medications 
 DS16: Caregiver Sociodemographic Information 
 DS17: Identification Number 
 DS18: Interview Time 
 DS19: Revised Memory and Behavior Checklist 
 DS20: Mini Mental State Examination 
 DS21: Positive Aspects of Caregiving 
 DS22: Placement Form 
 DS23: Placement--Sociodemographic 
 DS24: Religiosity 
 DS25: Care Recipient Medications 
 DS26: Care Recipient Sociodemographic Information 
 DS27: Social Activities 
 DS28: Bereavement--Social Support 
 DS29: Center for Epidemiologic Studies--Depression 
 DS30: Social Support 
 DS31: Follow-Up--Sociodemographic 
 DS32: Follow-Up--Religiosity 
 DS33: Transition--Formal Care Services 
 DS34: Vigilance 
 DS35: Care Recipient Tracking 
 DS36: Discontinued Data 
 DS37: Intervention Assignment 
 DS38: Interventionist Characteristics 
 DS39: Off Protocol 
 DS40: Project Evaluation
description: Family caregivers living with persons with dementia for at least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami, FL, Palo Alto, CA, and Philadelphia, PA.
description: Convenience sample with recruitment strategies varying at each site.