DOI: 10.5064/f60z715z
title: Data for “Registered nurses’ perceptions of family caregivers to patients with heart failure: A focus group interview study.”
title: Sjuksköterskors uppfattningar om situationen för anhöriga till patienter med hjärtsvikt: en fokusgruppsintervjustudie

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&lt;b&gt;Project Summary:&lt;/b&gt; This qualitative study explores registered nurses’ perceptions about the situation of family caregivers to patients with heart failure, and registered nurses’ interventions, in order to improve family caregivers’ situation.&lt;/p&gt; 
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&lt;b&gt;Data Abstract&lt;/b&gt;: Shared data include anonymized transcripts of focus group interviews and the qualitative content analysis of these interviews. Six focus group interviews were held with 23 registered nurses in three hospitals and three primary health care centers in one county in Sweden in 2014. Two content areas were identified by the a priori study aims. Four categories and nine sub-categories emerged in the analysis process. The content area “Family caregivers' situation” includes two categories: “To be unburdened” and “To comprehend the heart failure condition and its consequences”. The content area “Interventions to improve family caregivers' situation” includes two categories: “Individualized support and information” and “Bridging contact”. Registered nurses perceive family caregivers' situation as burdensome, characterized by worry and uncertainty. In the primary health care centers, the continuity and security of a registered nurse as a permanent health care contact may be a sustainable intervention to mitigate family caregivers' worry and uncertainty. In the nurse-led heart failure clinics in hospitals, registered nurses can provide family caregivers with the opportunity of involvement in their relative's health care and address congruence and relationship quality within the family through the use of "Shared care" and/or "Family-centered care". Registered nurses consider it necessary to have a coordinated individual care plan as a basis for collaboration between the county council and the municipality.
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&lt;b&gt;Researchers involved in the project:&lt;/b&gt; Annelie K. Gusdal (Principal Investigator), School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden Designed the study, collected data, transcribed recorded data, performed major part of analysis and manuscript preparation. Karin Josefsson - School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden and Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Sweden Designed the study, verified transcriptions, collaborated in data analysis and manuscript preparation. Eva Thors Adolfsson - Centre for Clinical Research, Uppsala University, County Council of Västmanland, Västerås, Sweden and Department of Primary Health Care, Västmanland County Hospital, Sweden Designed the study, verified transcriptions, collaborated in data analysis and manuscript preparation. Lene Martin - School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden and School of Health Sciences, City University, London, UK Designed the study, verified transcriptions, collaborated in data analysis and manuscript preparation.
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