cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.28204084
title: Understanding the experiences of autistic high school students and neurodivergent job coaches in a summer employment program: an interpretive description study

description: This study explores the experiences of autistic youth and neurodivergent job coaches during a job training program. Interpretive Description methodology guided this study. Two researchers facilitated virtual focus groups with autistic students and neurodivergent job coaches separately before (n = 14) and after (n = 12) the program. Thematic analysis was conducted to identify codes and develop themes. Seven themes were developed, which included both autistic high school students and neurodivergent job coaches’ perspectives about JTP: JTP surprised students; unexpected experience of working, students experienced a sense of community support in transitioning to work, students built rapport with neurodivergent job coaches, neurodivergent job coaches were buffers to students, building trusting connection; neurodivergent job coaches’ interactions with students, unexpected reality and a sense of community in coaching autistic students, and neurodivergent job coaches’ personal growth and the evolving role of coaching. The findings of this study suggest that positive work experiences and relationships between neurodivergent job coaches and students occurred within a specific program that recommended clear communication about expectations, roles, and support preferences. The findings can guide future community partnerships to promote workplace participation and facilitate accommodations based on the needs of neurodivergent population, including autistic individuals. Providing summer employment opportunities for autistic youth and neurodivergent coaches through Job Train Program (JTP) demonstrated positive outcomes of coaching that promoted inclusivity for the neurodivergent population at different stages of career paths.JTP provided the opportunity to broaden the coaching role within the program, enhancing an inclusive workplace for both neurodivergent job coaches and students transitioning to adulthood.The results of this study outlined the importance of coaches in addition to environmental support. Providing summer employment opportunities for autistic youth and neurodivergent coaches through Job Train Program (JTP) demonstrated positive outcomes of coaching that promoted inclusivity for the neurodivergent population at different stages of career paths. JTP provided the opportunity to broaden the coaching role within the program, enhancing an inclusive workplace for both neurodivergent job coaches and students transitioning to adulthood. The results of this study outlined the importance of coaches in addition to environmental support.
DOI: 10.6084/m9.figshare.28204084.v1
title: Understanding the experiences of autistic high school students and neurodivergent job coaches in a summer employment program: an interpretive description study

description: This study explores the experiences of autistic youth and neurodivergent job coaches during a job training program. Interpretive Description methodology guided this study. Two researchers facilitated virtual focus groups with autistic students and neurodivergent job coaches separately before (n = 14) and after (n = 12) the program. Thematic analysis was conducted to identify codes and develop themes. Seven themes were developed, which included both autistic high school students and neurodivergent job coaches’ perspectives about JTP: JTP surprised students; unexpected experience of working, students experienced a sense of community support in transitioning to work, students built rapport with neurodivergent job coaches, neurodivergent job coaches were buffers to students, building trusting connection; neurodivergent job coaches’ interactions with students, unexpected reality and a sense of community in coaching autistic students, and neurodivergent job coaches’ personal growth and the evolving role of coaching. The findings of this study suggest that positive work experiences and relationships between neurodivergent job coaches and students occurred within a specific program that recommended clear communication about expectations, roles, and support preferences. The findings can guide future community partnerships to promote workplace participation and facilitate accommodations based on the needs of neurodivergent population, including autistic individuals. Providing summer employment opportunities for autistic youth and neurodivergent coaches through Job Train Program (JTP) demonstrated positive outcomes of coaching that promoted inclusivity for the neurodivergent population at different stages of career paths.JTP provided the opportunity to broaden the coaching role within the program, enhancing an inclusive workplace for both neurodivergent job coaches and students transitioning to adulthood.The results of this study outlined the importance of coaches in addition to environmental support. Providing summer employment opportunities for autistic youth and neurodivergent coaches through Job Train Program (JTP) demonstrated positive outcomes of coaching that promoted inclusivity for the neurodivergent population at different stages of career paths. JTP provided the opportunity to broaden the coaching role within the program, enhancing an inclusive workplace for both neurodivergent job coaches and students transitioning to adulthood. The results of this study outlined the importance of coaches in addition to environmental support.
DOI: 10.6084/m9.figshare.27268230
title: Translation and internal content validation of the Swedish version of the Brachial Assessment Tool (BrAT)

description: To translate and culturally adapt the Brachial Assessment Tool (BrAT) into Swedish and evaluate the internal consistency, and internal content validity using Rasch analysis in patients with traumatic brachial plexus injuries (TBPI). The translation was made in accordance with international guidelines. TBPI patients were identified in clinical records. The BrAT-Swe was sent out to patients by post. Internal consistency was assessed using Cronbach alpha and content validity using Rasch analysis evaluating fit to the Rasch model, threshold response, local dependency, dimensionality, differential item functioning (DIF), and targeting. The translation of the BrAT was completed without major discrepancies. A total of 164 patients completed the BrAT-Swe. Internal consistency ranged from 0.90 to 0.98. Rasch analysis supported the content validity. All subscales demonstrated fit to the model with no local dependency, minimal disordered thresholds and no unidimensionality. Uniform DIF for item 6 by age, was identified. Minimal differences in hierarchical ordering were identified. This study presents a Swedish translation of the BrAT (BrAT-Swe) and has demonstrated that the translated BrAT-Swe is well adapted for Swedish circumstances. Analysis supports the internal content validity of the BrAT-Swe as a unidimensional targeted PROM designed to assess activity limitation after TBPI. The Swedish translation of the Brachial Assessment Tool (BrAT), the BrAT-Swe, is a valid instrument that can be used in a Swedish context.The BrAT-Swe subscales can be used independently or as a total score, similar to the original BrAT.The BrAT-Swe may be used to guide rehabilitation and for goal setting for patients with traumatic brachial plexus injury. The Swedish translation of the Brachial Assessment Tool (BrAT), the BrAT-Swe, is a valid instrument that can be used in a Swedish context. The BrAT-Swe subscales can be used independently or as a total score, similar to the original BrAT. The BrAT-Swe may be used to guide rehabilitation and for goal setting for patients with traumatic brachial plexus injury.
DOI: 10.6084/m9.figshare.27268230.v1
title: Translation and internal content validation of the Swedish version of the Brachial Assessment Tool (BrAT)

description: To translate and culturally adapt the Brachial Assessment Tool (BrAT) into Swedish and evaluate the internal consistency, and internal content validity using Rasch analysis in patients with traumatic brachial plexus injuries (TBPI). The translation was made in accordance with international guidelines. TBPI patients were identified in clinical records. The BrAT-Swe was sent out to patients by post. Internal consistency was assessed using Cronbach alpha and content validity using Rasch analysis evaluating fit to the Rasch model, threshold response, local dependency, dimensionality, differential item functioning (DIF), and targeting. The translation of the BrAT was completed without major discrepancies. A total of 164 patients completed the BrAT-Swe. Internal consistency ranged from 0.90 to 0.98. Rasch analysis supported the content validity. All subscales demonstrated fit to the model with no local dependency, minimal disordered thresholds and no unidimensionality. Uniform DIF for item 6 by age, was identified. Minimal differences in hierarchical ordering were identified. This study presents a Swedish translation of the BrAT (BrAT-Swe) and has demonstrated that the translated BrAT-Swe is well adapted for Swedish circumstances. Analysis supports the internal content validity of the BrAT-Swe as a unidimensional targeted PROM designed to assess activity limitation after TBPI. The Swedish translation of the Brachial Assessment Tool (BrAT), the BrAT-Swe, is a valid instrument that can be used in a Swedish context.The BrAT-Swe subscales can be used independently or as a total score, similar to the original BrAT.The BrAT-Swe may be used to guide rehabilitation and for goal setting for patients with traumatic brachial plexus injury. The Swedish translation of the Brachial Assessment Tool (BrAT), the BrAT-Swe, is a valid instrument that can be used in a Swedish context. The BrAT-Swe subscales can be used independently or as a total score, similar to the original BrAT. The BrAT-Swe may be used to guide rehabilitation and for goal setting for patients with traumatic brachial plexus injury.
DOI: 10.6084/m9.figshare.26862513
title: Enabling decision-making: what assists people with motor neurone disease when they consider gastrostomy insertion?

description: This study explores the views of people living with Motor Neurone Disease (MND) when they consider Percutaneous Endoscopic Gastrostomy (PEG) insertion, to understand their priorities and how their decisions were informed or supported. The study took place in single multidisciplinary specialised MND clinic in New South Wales, Australia. Nine people with MND (5 male and 4 female; age range 52–73 years; disease duration 6–99 months) who were considering, or had recently undergone PEG insertion, participated. Semi-structured interviews were conducted with participants to examine individual’s experience of decision-making about PEG. The data were synthesised and analysed thematically. Three main themes and two sub-themes captured participant views on their decision-making. The first, <i>“</i>What matters most to me,” comprised optimising quality of life and maintaining family membership. The second theme explored “Understanding PEG and the clinical pathway.” The third theme was “Thoughts on using a decision aid.” This study provides a foundation for future studies examining the longer-term outcomes of accepting, delaying or declining PEG. Insights from this study may be applicable to decision-making for any aspect of MND care where the outcomes or benefits are uncertain. People living with Motor Neurone Disease (MND) have complex and individual reasons for accepting or declining Percutaneous Endoscopic Gastrostomy (PEG).The quality of communication between people with MND and healthcare providers may be improved by a shared understanding of how people with MND view quality of life and carer burden in their own circumstances.Enhanced communication for informed choice and patient-centred decision-making have potential to reduce decision regret and support care pathways for those who decline PEG. People living with Motor Neurone Disease (MND) have complex and individual reasons for accepting or declining Percutaneous Endoscopic Gastrostomy (PEG). The quality of communication between people with MND and healthcare providers may be improved by a shared understanding of how people with MND view quality of life and carer burden in their own circumstances. Enhanced communication for informed choice and patient-centred decision-making have potential to reduce decision regret and support care pathways for those who decline PEG.
DOI: 10.6084/m9.figshare.26862513.v1
title: Enabling decision-making: what assists people with motor neurone disease when they consider gastrostomy insertion?

description: This study explores the views of people living with Motor Neurone Disease (MND) when they consider Percutaneous Endoscopic Gastrostomy (PEG) insertion, to understand their priorities and how their decisions were informed or supported. The study took place in single multidisciplinary specialised MND clinic in New South Wales, Australia. Nine people with MND (5 male and 4 female; age range 52–73 years; disease duration 6–99 months) who were considering, or had recently undergone PEG insertion, participated. Semi-structured interviews were conducted with participants to examine individual’s experience of decision-making about PEG. The data were synthesised and analysed thematically. Three main themes and two sub-themes captured participant views on their decision-making. The first, <i>“</i>What matters most to me,” comprised optimising quality of life and maintaining family membership. The second theme explored “Understanding PEG and the clinical pathway.” The third theme was “Thoughts on using a decision aid.” This study provides a foundation for future studies examining the longer-term outcomes of accepting, delaying or declining PEG. Insights from this study may be applicable to decision-making for any aspect of MND care where the outcomes or benefits are uncertain. People living with Motor Neurone Disease (MND) have complex and individual reasons for accepting or declining Percutaneous Endoscopic Gastrostomy (PEG).The quality of communication between people with MND and healthcare providers may be improved by a shared understanding of how people with MND view quality of life and carer burden in their own circumstances.Enhanced communication for informed choice and patient-centred decision-making have potential to reduce decision regret and support care pathways for those who decline PEG. People living with Motor Neurone Disease (MND) have complex and individual reasons for accepting or declining Percutaneous Endoscopic Gastrostomy (PEG). The quality of communication between people with MND and healthcare providers may be improved by a shared understanding of how people with MND view quality of life and carer burden in their own circumstances. Enhanced communication for informed choice and patient-centred decision-making have potential to reduce decision regret and support care pathways for those who decline PEG.
DOI: 10.6084/m9.figshare.28416563
title: Improving quality of physical function assessment in intensive care units through routine use of the Danish Chelsea Critical Care Physical Assessment Tool (CPAx-D)

description: To improve the quality of physical function assessment through routine use of the Chelsea Critical Care Physical Assessment Tool (CPAx-D) in Danish ICUs. The methodological framework was “The Model for Improvement,” including the Plan-Do-Study-Act (PDSA) cycle. The context consisted of two ICUs at Aarhus University Hospital with 38 beds. Eligible patients were aged 18 years or older and considered stable and ready for physiotherapy treatment. Evaluation methods used were questionnaires, clinical practice observations, continuous feedback, status meetings, and an audit of the medical records including patients during a three-month period in the ICUs. The quality improvement process required three PDSA cycles and two years before CPAx-D was successfully implemented into clinical practice. The following barriers were identified; the COVID-19 pandemic increased workloads and caused reorganization of care; leave of absence of the project manager caused a lack of leadership; local instructions were not sufficiently aligned with practice; and detailed manuals were missing. A facilitator for implementation was the clinicians’ perception of CPAx-D as a meaningful tool, adding value to interdisciplinary collaboration and communication, and stimulated patient motivation. By employing various interventions, routine use of CPAx-D has been successfully implemented into clinical practice at two Danish ICUs. Early rehabilitation is crucial to reduce the physical consequences of intensive care admission.Routine use of standardized assessment instruments can support goal-setting, communication, and decision-making in rehabilitation of patients in the intensive care unit.This quality improvement study outlines the barriers and facilitators identified throughout the process of implementing routine use of the Chelsea Critical Care Physical Assessment Tool. Early rehabilitation is crucial to reduce the physical consequences of intensive care admission. Routine use of standardized assessment instruments can support goal-setting, communication, and decision-making in rehabilitation of patients in the intensive care unit. This quality improvement study outlines the barriers and facilitators identified throughout the process of implementing routine use of the Chelsea Critical Care Physical Assessment Tool.
DOI: 10.6084/m9.figshare.28416563.v1
title: Improving quality of physical function assessment in intensive care units through routine use of the Danish Chelsea Critical Care Physical Assessment Tool (CPAx-D)

description: To improve the quality of physical function assessment through routine use of the Chelsea Critical Care Physical Assessment Tool (CPAx-D) in Danish ICUs. The methodological framework was “The Model for Improvement,” including the Plan-Do-Study-Act (PDSA) cycle. The context consisted of two ICUs at Aarhus University Hospital with 38 beds. Eligible patients were aged 18 years or older and considered stable and ready for physiotherapy treatment. Evaluation methods used were questionnaires, clinical practice observations, continuous feedback, status meetings, and an audit of the medical records including patients during a three-month period in the ICUs. The quality improvement process required three PDSA cycles and two years before CPAx-D was successfully implemented into clinical practice. The following barriers were identified; the COVID-19 pandemic increased workloads and caused reorganization of care; leave of absence of the project manager caused a lack of leadership; local instructions were not sufficiently aligned with practice; and detailed manuals were missing. A facilitator for implementation was the clinicians’ perception of CPAx-D as a meaningful tool, adding value to interdisciplinary collaboration and communication, and stimulated patient motivation. By employing various interventions, routine use of CPAx-D has been successfully implemented into clinical practice at two Danish ICUs. Early rehabilitation is crucial to reduce the physical consequences of intensive care admission.Routine use of standardized assessment instruments can support goal-setting, communication, and decision-making in rehabilitation of patients in the intensive care unit.This quality improvement study outlines the barriers and facilitators identified throughout the process of implementing routine use of the Chelsea Critical Care Physical Assessment Tool. Early rehabilitation is crucial to reduce the physical consequences of intensive care admission. Routine use of standardized assessment instruments can support goal-setting, communication, and decision-making in rehabilitation of patients in the intensive care unit. This quality improvement study outlines the barriers and facilitators identified throughout the process of implementing routine use of the Chelsea Critical Care Physical Assessment Tool.
DOI: 10.6084/m9.figshare.28184605
title: The effectiveness of psychologically-informed physiotherapy for people with neck pain and the mediating role of illness perceptions: a replicated single-case experimental design study

description: (1) To evaluate the effectiveness of personalised psychologically-informed physiotherapy in people with neck pain; (2) To explore the mediating role of changes in illness perceptions. In this replicated single-case study, 14 patients with non-specific neck pain at risk for chronicity received a personalised intervention addressing unhelpful illness perceptions and dysfunctional movement behaviour, according to principles of cognitive functional therapy. Outcomes included the mediating role of illness perceptions on overall effect, function, pain intensity and self-efficacy. Linear mixed models were used to analyse the data. Repeated measurements (14-20 per patient), including a 3-months follow-up, showed a gradual improvement during and/or after psychologically-informed physiotherapy for overall effect, function, pain and to a lesser extent self-efficacy. Changes in each of the illness perception dimensions showed a mediation effect on overall effect, function and pain. When combining the dimensions “consequences,” “personal control,” “identity,” “concern” and “emotional response,” changes in illness perceptions explained approximately 35% of the improvement in overall effect. Addressing unhelpful illness perceptions appears valuable in the management of patients with chronic or recurrent non-specific neck pain. Intervention effects extended beyond the treatment period, indicating that patients’ improved understanding of their health condition continued to have a positive impact. Personalised interventions addressing unhelpful illness perceptions and dysfunctional movement behaviour are a promising approach to improving care for people with chronic or recurrent non-specific neck painOffering helpful illness perceptions is an important part of physiotherapeutic care for people with neck painIllness perception dimensions relating to personal control, identity, concern, consequences and emotional response are particularly amenable to change Personalised interventions addressing unhelpful illness perceptions and dysfunctional movement behaviour are a promising approach to improving care for people with chronic or recurrent non-specific neck pain Offering helpful illness perceptions is an important part of physiotherapeutic care for people with neck pain Illness perception dimensions relating to personal control, identity, concern, consequences and emotional response are particularly amenable to change