cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.34894/3jlg5c
title: Ankylosing spondylitis patients at risk of poor radiographic outcome show diminishing spinal radiographic progression during long-term treatment with TNF-α inhibitors

description: Objective: To investigate the influence of patient characteristics on the course of spinal radiographic progression in a large prospective longitudinal cohort study of ankylosing spondylitis (AS) patients treated long-term with TNF-α inhibitors. 
Methods: Consecutive patients from the Groningen Leeuwarden AS (GLAS) cohort starting TNF-α inhibitors with spinal radiographs at least available at baseline and 6 years of follow-up were included. Radiographs were scored using mSASSS by two independent readers. Generalized estimating equations (GEE) were used to explore the associations between baseline characteristics and spinal radiographic progression. The course of radiographic progression in patients with and without risk factors for poor radiographic outcome was investigated using different time models (linear and non-linear). Single linear imputation was used in case of missing radiographic data at the intermediate (2 or 4 years) follow-up visits.
Results: 80 AS patients were included with mean baseline mSASSS 8.7±13.3. Baseline syndesmophytes, male gender, older age, longer symptom duration, smoking, and higher BMI were significantly associated with more radiographic damage over time. GEE analysis in patients with these risk factors revealed that radiographic progression followed a non-linear course with mean mSASSS progression rates reducing from max. 2.8 units over 0-2 years to min. 0.9 units over 4-6 years. The GEE model revealed a linear course with overall very low progression (≤1 mSASSS units/2yrs) in patients without risk factors. Complete case analysis in 53 patients showed similar results.
Conclusion: AS patients at risk of poor radiographic outcome showed the highest but diminishing spinal radiographic progression during long-term treatment with TNF-α inhibitors.
DOI: 10.3535/145-wsp-sjl
title: Amphipyra (Amphipyra) pyramidea (Linnaeus, 1758)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/sb1-qpp-5yy
title: Lepidoptera Linnaeus, 1758

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/9bv1m5
title: :unav

description: :unav
DOI: 10.3535/3ba-vwq-56v
title: Lepidoptera Linnaeus, 1758

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/ry0-v34-10g
title: Caradrina (Caradrina) morpheus (Hufnagel, 1766)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/ypyo3m
title: Development and feasibility of Inlife: a pilot study of an online social support intervention for informal caregivers of people with dementia

description: Background: Informal caregivers of individuals with dementia have an increased risk to face social isolation due to progression of the disease. Online social media interventions might offer a new opportunity to increase access to social support and enhance positive interactions and openness in dementia care networks.
Objective: This explorative pilot study describes (1) the development of an online social support intervention Inlife, and (2) the evaluation of the feasibility of this intervention and the measurements to assess its effectiveness. 
Methods: The Medical Research Council (MRC) framework guided the development of the online social support intervention. This is a stepwise approach that integrates potential users’ views with the development and validation of the program content. The program was developed by combining (1) individual caregiver interviews (n=10), (2) focus group sessions with experts and web designers (n=6), and (3) individual think-aloud tests (n=2). Subsequently, a pilot study with informal caregivers was conducted (n=25) to examine the program’s feasibility and preliminary effectiveness. Online self-report measures were completed at baseline and at four follow-up time points.
Results: In total, 23 participants completed the newly developed Inlife intervention. Despite the high number of low-active users (17/23, 73%), Inlife had a good feasibility score of 7.1 (range: 1-10). The Calendar and Timeline were used most frequently and contributed to better care coordination and positive interactions.
Conclusions: Although the Inlife platform received a sufficient feasibility rating, the uptake was not optimal. Therefore, the Inlife platform was adapted to limit the number of low-active users and improve user friendliness. Recommendations for additional treatment adherence were provided. The development according to the MRC framework and the sufficient feasibility rating of Inlife formed the basis for a future effectiveness study.
DOI: 10.3535/xn8-nvt-jma
title: Amphipyra (Amphipyra) pyramidea (Linnaeus, 1758)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/ybz-49j-y2p
title: Thalpophila matura (Hufnagel, 1766)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/hh2u2h
title: Replication Data for: Lower school performance in late chronotypes
title: Underlying factors and mechanisms

description: The raw data and processed data (MCTQ) used for the analyses for the paper.
- Data_for_mediation_analysis.txt: contains the data used for the mediation analysis
- Grades_and_attendance.txt: contains the data used for the model selection to assess the influence of several predictors on grades
- MCTQ_and_attendance.txt: contains the data used to assess the influence of chronotype on school attendance
DOI: 10.34894/nsofyk
title: Variation in prevention of child maltreatment by Dutch child healthcare professionals

description: Child maltreatment (CM) is a common condition with a large impact on the victim and society. In the Netherlands, the preventive child healthcare (CHC) aims to protect children against such threats. However, several studies indicate that the efficacy in this area may be suboptimal for many CHC professionals. Therefore, this study aims to map the practice variation in the primary and secondary prevention of CM, by CHC physicians and –nurses. This mixed-methods study used interviews to identify relevant topics and develop an online questionnaire. All CHC organizations in the Netherlands (n=45) were asked to forward this questionnaire to their professionals. Practice variation was described with domain scores and item response distributions. Multi-level analysis was used to assess casemix-corrected variance between organizations. Interview participants (n=11) expected suboptimal care in 35 topics which they considered important for prevention of CM, resulting in a 15 minute questionnaire. Nearly two-thirds of the organizations (n=29) agreed to forward the questionnaire to their employees. The response rate was 42% (n=1104). Suboptimal care and practice variation was found in all domains (i.e. communication, medical expertise, collaboration, involvement in prevention of CMactivity, and improvement opportunities), mostly caused by intra-organization variance. Significant inter-organization variance was found for collaboration (variance partition coefficient 6-7%) and involvement activity (2-3%). Furthermore, the majority of the respondents (96%) reported fear in acting upon suspicions of CM. Substantial suboptimal care and practice variation in prevention of CM warrant action from authorities, CHC training institutes, CHC organizations, and professionals.
DOI: 10.3535/z1n-xc0-9w9
title: Papilio demolion Cramer, [1776]

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/pqgxvf
title: The Effects of Normal Aging on Multiple Aspects of Financial Decision-Making

description: Objectives: Financial decision-making (FDM) is crucial for independent living. Due to cognitive decline that accompanies normal aging, older adults might have difficulties in some aspects of FDM. However, an improved knowledge, personal experience and affective decision-making, which are also related to normal aging, may lead to a stable or even improved age-related performance in some other aspects of FDM. Therefore, the present study examines the effects of normal aging on multiple aspects of FDM and determines the discriminant validity of the applied FDM tests. 

Methods: One-hundred and eighty participants (range 18-87 years) were assessed with eight FDM tests and several standard neuropsychological tests. Age effects were evaluated using hierarchical multiple regression analyses. The validity of the prediction models was examined by internal validation (i.e. bootstrap resampling procedure) as well as external validation on another, independent, sample of participants (n=124). Multiple regression analyses were also used to determine the discriminant validity of the applied FDM tests.

Results: On a relatively basic level of FDM (e.g., paying bills or using FDM styles) no effects of aging were found. However more complex FDM, such as making decisions in accordance with specific rules, becomes more difficult with advancing age. Furthermore, an older age was found to be related to a decreased sensitivity for impulsive buying. These results were confirmed by the internal and external validation analyses. Only small amounts of variance of seven out of eight FDM tests could be explained by standard measures of cognition.

Conclusion: Normal aging has a negative influence on a complex aspect of FDM, while other aspects remain relatively stable or improve with age. The FDM test battery used in the present study has good discriminant validity to standard tests of cognition, indicating that standard neuropsychological measures for cognition are not helpful in the evaluation of an individual’s ability to make financial decisions.
DOI: 10.3535/gq7-j64-a2l
title: Zeltus etolus (Fabricius, 1787)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/swe-4w0-63k
title: Papilio paris Linnaeus, 1758

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/xxktht
title: Replication Data for: Influence of vitamin D on infant fecal microbial composition in the KOALA Birth Cohort Study

description: Replication Data for: Influence of vitamin D on infant fecal microbial composition in the KOALA Birth Cohort Study
DOI: 10.3535/5fz-bfc-zgc
title: Lepidoptera Linnaeus, 1758

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/jg9-wjg-009
title: Lepidoptera Linnaeus, 1758

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/re8osb
title: Feasibility of a web-based cross-over diet intervention in the general population

description: Background: The primary aim was to investigate feasibility of a web-based cross-over dietary intervention in the general population. The secondary aim was to calculate the sample size needed to reach a statistically significant difference in effect of a Paleolithic-like diet on psychological and somatic symptoms compared with the Dutch consensus diet.
Methods: 35 participants from the general population were recruited using social media. Participants filled-out an intake questionnaire to assess representativeness of the sample. Participants were instructed to consume both a Paleolithic-like diet and the Dutch consensus diet during four weeks, the order was randomly assigned. After each period, participants filled-out a questionnaire to assess compliance to the dietary instructions, the Depression Anxiety Stress Scale to assess psychological symptoms and the Rosmalen Somatization Index to assess somatic symptoms.
Results: It took 42 days to recruit 35 participants, the drop-out rate was 20% and compliance to the diets was at least 68%. Participants were representative of the general Dutch population regarding age, BMI, marital and work status and symptoms of depression and anxiety. Participants showed greater reductions in psychological and somatic symptoms when consuming a Paleolithic-like diet compared to the Dutch consensus diet. Sample size calculations showed that at least 30 participants need to be recruited for statistical significance.
Conclusion: Conducting a web-based cross-over dietary intervention in the general population appeared feasible. Given the ease of increasing sample size in web-based studies, we recommend recruiting more than 30 participants when comparing a Paleolithic-like diet to the Dutch consensus diet.
description: Trial registration: 
This trial was registered with The Netherlands National Trial Register (NTR) under number 5492.
DOI: 10.3535/b1l-nhe-esc
title: Bryophila (Bryophila) domestica (Hufnagel, 1766)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/tsbi2i
title: The self and others in the experience of pride [Dataset]

description: Pride is seen as both a self-conscious emotion as well as a social emotion. These categories are not mutually exclusive, but have brought forth different ideas about pride as either revolving around the self or as revolving around one’s relationship with others. Current measures of pride do not include intrapersonal elements of pride experiences. Social comparisons, which often cause experiences of pride, contain three elements: the self, the relationship between the self and another person, and the other person. From the literature on pride, we distilled three related elements; perceptions and feelings of self-inflation, other-distancing, and other-devaluation. In four studies, we explored whether these elements were present in pride experiences. We did so at an implicit (Experiment 1; N = 218) and explicit level (Experiment 2; N = 125), in an academic setting with in vivo (Experiment 3; N = 203) and imagined pride experiences (Experiment 4; N = 126). The data consistently revealed that the experience of pride is characterized by selfinflation, not by other-distancing nor other-devaluation.
description: DSA Proof. - Universe: The data was collected from first year Psychology students at Tilburg University.
DOI: 10.3535/4jt-7pj-a31
title: Vagrans Hemming, 1934

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/rvq-8kx-m3l
title: Amphipyra (Amphipyra) pyramidea (Linnaeus, 1758)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/ferodk
title: Replication data for: Net Profit Flows 1980-2009

description: The study aims at describing and explaining net profit flows per country for the period 1980-2009. A dataset on 'net profit flow' per country is developed. There are diverging developments in net profit flows since the 1980s, as expected: ever more positive for core countries, negative and ever lower for semi-peripheral and peripheral countries, in particular from the 1990s onwards. A fixed effects quantile regression using publicly available data confirms the prediction that peripheral countries share a unique characteristic: their outward investments do not have a positive influence on net profit flow as is the case with semi-peripheral and core countries. The most probable explanation is that peripheral outward investments are indirectly owned by firms located in core and semi-peripheral countries, so all peripheral profit inflows end up in those countries.
DOI: 10.34894/vgkywy
title: Replication Data for: Artificial light at night shifts daily activity patterns but not the internal clock in Parus major

description: Please refer to scientific paper; in the dataset, the moments of onset of activity of diurnal birds is stored. The onset is calculated relative to the moments the bright daylights in the cages went on; for a ful reference, below each parameter is explained:

# gtID = bird
# lightInt = treatment
# treatment = treatment
# include = include
# StackOnsLD = moment onset calc by stacked actiivty in LD relative to lights on
# StackOffLD = moment offset calc by stacked actiivty in LD relative to lights on
# StackOnsLAN = moment onset calc by stacked actiivty in LAN relative to lights on
# StackOffLAN = moment offset calc by stacked actiivty in LAN relative to lights on
# diffStackOnsLDtoLAN = difference in stacked onsets with and without LAN 
# diffStackOffLDtoLAN = difference in stacked offset with and without LAN
# diffIndOnsLDtoLAN = difference in mean individual onsets with and without LAN
# diffIndOffLDtoLAN = difference in mean indvidual offset with and without LAN
# onsDphiLDtoDD = onset phase shift LD to DD control
# CoGDphiLDtoDD = cog phase shift LD to DD control
# offDphiLDtoDD = offset phase shift LD to DD control
# onsDphiLDLANtoDD = onset phase shift LD to DD with LAN
# CoGDphiLDLANtoDD = cog phase shift LD to DD with LAN
# offDphiLDLANtoDD = offset phase shift LD to DD with LAN
# onsDphiLANtoDD = copied
# CoGDphiLANtoDD = copied
# offDphiLANtoDD = copied
# diffOnsDphi = diff
# diffCoGDphi = diff
# diffOffDphi = diff
# diffLDtauLANtau = diff
# LDtau = LDtau
# LANtau = LANtau
DOI: 10.3535/698-bvz-fxv
title: Cryphia (Euthales) algae (Fabricius, 1775)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/86t-tdl-y21
title: Hoplodrina octogenaria (Goeze, 1781)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/2w2-tcv-v4v
title: Lycaenidae

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.3535/krc-djt-16g
title: Papilio polytes Linnaeus, 1758

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/9dfoh7
title: Stages of behavioural change after direct-to-consumer disease risk profiling: two integrated controlled pragmatic trials

description: Background: The incidence and prevalence of chronic diseases have reached epidemic proportions during the last decades and is not expected to diminish. Chronic diseases increasingly affect younger individuals too, with over 40% of all deaths due to non-communicable diseases occurring before the age of 70. This has led to the development of information services aimed at preventive health care, such as Health Potential®. This counselling service estimates a personal disease risk of a carefully selected list of preventable common chronic diseases that have both a genetic and a lifestyle component of development. The results are delivered face-to-face by a lifestyle counsellor, simultaneously stimulating initial steps towards behaviour change. This information can assist in lifestyle decision-making.
Methods: The primary aim is to study the effect of the Health Potential® service on change in lifestyle behaviour in distinguishable customer populations. The secondary aims are (1) to study the effect of the Health Potential® service on determinants of behaviour change, (2) to study the effect of additional lifestyle counselling on behaviour change and determinants thereof, and (3) to describe characteristics of the Health Potential® customer. The study consists of two integrated designs: (A) a two-armed non-randomised controlled pre-test/post-test trial, followed by (B) a two-armed randomised controlled pre-test/post-test trial, resulting in three study arms, allocated at a 1:1.8:1.8 ratio. Participants are clients of local prevention clinics, purchasing a personalised health check (PHC; intervention condition), consisting of Health Potential® and a general health check, or the general health check alone (GHC; control condition) (Part A). PHC participants will be randomised to receive four additional lifestyle counselling sessions over a period of three months (Part B). 
Discussion: This research can provide valuable insights in the effectiveness of and possible ways forward in the field of personalised prevention making use of lifestyle interventions enriched with modern genetic advancements.
description: A second version can be expected including the data of the trial, and published papers.
DOI: 10.34894/njmfmk
title: An investigation of emotion dynamics in Major Depressive Disorder patients and healthy persons using sparse longitudinal networks

description: Background: Differences in within-person emotion dynamics may be an important source of heterogeneity in depression. To investigate these dynamics, researchers have previously combined multilevel regression analyses with network representations. However, sparse network methods, specifically developed for longitudinal network analyses, have not been applied. Therefore, this study used this approach to investigate population-level and individual-level emotion dynamics in healthy and depressed persons. Methods: Time-series data were collected in pair-matched healthy persons and major depressive disorder (MDD) patients (n=54). Seven positive affect (PA) and seven negative affect (NA) items were adminis
tered electronically at 90 times (30 days; thrice per day). The population-level (healthy vs. MDD) and individual-level time series were analyzed using a sparse longitudinal network model based on vector autoregression. The characteristics of the longitudinal networks were investigated to gain insight into the emotion dynamics. Results: In the population-level networks, longitudinal network connectivity was strongest in the healthy group, with nodes showing more and stronger longitudinal associations with each other. Individually estimated networks varied strongly across individuals. Individual variations in network connectivity were unrelated to baseline characteristics (depression status, neuroticism, severity). A multilevel approach applied to the same data showed higher connectivity in the MDD group. Conclusion: The sparse network approach can be useful for the estimation of networks with multiple nodes, where overparameterization is an issue, and for individual-level networks. However, its current inability to model random effects makes it less useful as a population-level approach in case of large heterogeneity. Different preprocessing strategies appeared to strongly influence the results, impeding proper inferences about network density.
DOI: 10.3535/qgq-mjg-ej3
title: Amphipyra (Amphipyra) tragopoginis (Clerck, 1759)

description: Digital Specimen for the physical specimen hosted at Naturalis Biodiversity Center.
DOI: 10.34894/u9l9nv
title: Replication Data for: Predicting measurement error variance in social surveys

description: Social science commonly studies relationships among variables by employing survey questions. Answers to these questions will contain some degree of measurement error, distorting the relationships of interest. Such distortions can be removed by standard statistical methods, when these are provided knowledge of a question’s measurement error variance. However, acquiring this information routinely necessitates additional experimentation, which is infeasible in practice. We use three decades’ worth of survey experiments combined with machine learning methods to show that survey measurement error variance can be predicted from the way a question was asked. By predicting experimentally obtained estimates of survey measurement error variance from question characteristics, we enable researchers to obtain estimates of the extent of measurement error in a survey question without requiring additional data collection. Our results suggest only some commonly accepted best practices in survey design have a noticeable impact on study quality, and that predicting measurement error variance is a useful approach to removing this impact in future social surveys.
description: This repository accompanies the full paper, and allows users to reproduce all results. 

The repository is provided by the authors under the CC-BY 4.0 license: https://creativecommons.org/licenses/by/4.0/legalcode