cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.25405/data.ncl.14769489
title: The Myotubular and Centronuclear Myopathy Patient Registry

description: The Myotubular and Centronuclear Myopathy Patient Registry (‘MTM and CNM Registry’) is an international database specific to these conditions, operated by Newcastle University in the UK as part of the global TREAT-NMD Neuromuscular Network. The registry was developed in partnership with the MTM and CNM communities and is jointly funded by the Myotubular Trust, Muscular Dystrophy UK, and Audentes Therapeutics. <br> Participants register online and must provide consent before accessing the registry questionnaire. The clinical data are provided by the participants, and the genetic data are obtained by the Registry Curator via the genetic report. <br> The MTM & CNM Registry aims to:<br> Help identify patients for relevant clinical trials as they become available. Encourage further research into myotubular and centronuclear myopathy. Provide researchers with specific patient information to support their research. Assist doctors and other health professionals by providing them with up-to-date information on managing myotubular and centronuclear myopathy, to help them deliver better standards of care for their patients.<br> The investigators welcome the registration of:<br> All patients with a myotubular myopathy or centronuclear myopathy diagnosis, which has been confirmed via genetic testing or muscle biopsy. Any carrier females of x-linked myotubular myopathy, especially if they have manifested myotubular myopathy type symptoms. Any patient who is deceased, but who had a confirmed diagnosis. <b> </b> The registry dataset includes patient reported clinical diagnosis, genetic mutation, motor function, wheelchair use, respiratory function, ventilation type, chest infection, feeding and heart function, neuromuscular examinations, scoliosis surgery, family history and other registries joined. Patient genetic report and muscle biopsy report are also uploaded to the registry if available, with details of clinician and where the tests were conducted.
DOI: 10.25405/data.ncl.14769489.v2
title: The Myotubular and Centronuclear Myopathy Patient Registry

description: The Myotubular and Centronuclear Myopathy Patient Registry (‘MTM and CNM Registry’) is an international database specific to these conditions, operated by Newcastle University in the UK as part of the global TREAT-NMD Neuromuscular Network. The registry was developed in partnership with the MTM and CNM communities and is jointly funded by the Myotubular Trust, Muscular Dystrophy UK, and Audentes Therapeutics. <br> Participants register online and must provide consent before accessing the registry questionnaire. The clinical data are provided by the participants, and the genetic data are obtained by the Registry Curator via the genetic report. <br> The MTM & CNM Registry aims to:<br> Help identify patients for relevant clinical trials as they become available. Encourage further research into myotubular and centronuclear myopathy. Provide researchers with specific patient information to support their research. Assist doctors and other health professionals by providing them with up-to-date information on managing myotubular and centronuclear myopathy, to help them deliver better standards of care for their patients.<br> The investigators welcome the registration of:<br> All patients with a myotubular myopathy or centronuclear myopathy diagnosis, which has been confirmed via genetic testing or muscle biopsy. Any carrier females of x-linked myotubular myopathy, especially if they have manifested myotubular myopathy type symptoms. Any patient who is deceased, but who had a confirmed diagnosis. <b> </b> The registry dataset includes patient reported clinical diagnosis, genetic mutation, motor function, wheelchair use, respiratory function, ventilation type, chest infection, feeding and heart function, neuromuscular examinations, scoliosis surgery, family history and other registries joined. Patient genetic report and muscle biopsy report are also uploaded to the registry if available, with details of clinician and where the tests were conducted.
DOI: 10.25405/data.ncl.14769489.v1
title: The Myotubular and Centronuclear Myopathy Patient Registry

description: The Myotubular and Centronuclear Myopathy Patient Registry (‘MTM and CNM Registry’) is an international database specific to these conditions, operated by Newcastle University in the UK as part of the global TREAT-NMD Neuromuscular Network. The registry was developed in partnership with the MTM and CNM communities and is jointly funded by the Myotubular Trust, Muscular Dystrophy UK, and Audentes Therapeutics. Participants register online and must provide consent before accessing the registry questionnaire. The clinical data are provided by the participants, and the genetic data are obtained by the Registry Curator via the genetic report. <br> The MTM & CNM Registry aims to: Help identify patients for relevant clinical trials as they become available. Encourage further research into myotubular and centronuclear myopathy. Provide researchers with specific patient information to support their research. Assist doctors and other health professionals by providing them with up-to-date information on managing myotubular and centronuclear myopathy, to help them deliver better standards of care for their patients.<br> The investigators welcome the registration of: All patients with a myotubular myopathy or centronuclear myopathy diagnosis, which has been confirmed via genetic testing or muscle biopsy. Any carrier females of x-linked myotubular myopathy, especially if they have manifested myotubular myopathy type symptoms. Any patient who is deceased, but who had a confirmed diagnosis. <b> </b> The registry dataset includes patient reported clinical diagnosis, genetic mutation, motor function, wheelchair use, respiratory function, ventilation type, chest infection, feeding and heart function, neuromuscular examinations, scoliosis surgery, family history and other registries joined. Patient genetic report and muscle biopsy report are also uploaded to the registry if available, with details of clinician and where the tests were conducted.
DOI: 10.34808/d7gq-j989
title: Dataset for a research study on scientific productivity of Polish technical universities (AGH University of Science and Technology 2016-2020).

description: This dataset was created for the purpose of research on scientific productivity at Polish technical universities.
The raw bibliometric data was retrieved in June 2021 by the SciVal benchmarking tool in xlsx format and will be used to create the research profiles of the universities and underlying data of journals articles.
The most common definition of research productivity (interchangeable with academic productivity or scientific productivity)  states as research productivity are the number of publications per researchers. However, a more extended definition of scientific productivity, connecting quantity and quality approach involves producing quality research represented by publishing academic papers in reputable international journals, citing these papers, gaining research funding (e.g. national and international grants), and collaborating in scientific teams.
The dataset prepared for the scientific profile of AGH University of Science and Technology consists records from 2016-2020:
1) Summary for AGH
2) Collaboration
3) Citation Count
4) Scholarly Output
5) Topic Clusters.
DOI: 10.5281/zenodo.4972597
title: Orroli site: dataset.

description: The datasets archived here is provided in xlsx format, and include the land surface data for the Orroli site in Sardinia for the period from 2003 to 2018. The dataset is available upon request from the corresponding author, and it is open to editors and reviewers for peer-review."
DOI: 10.5281/zenodo.4972596
title: Orroli site: dataset.

description: The datasets archived here is provided in xlsx format, and include the land surface data for the Orroli site in Sardinia for the period from 2003 to 2018. The dataset is available upon request from the corresponding author, and it is open to editors and reviewers for peer-review."
DOI: 10.6084/m9.figshare.13347242
title: SCALA - Factors associated with primary health care providers’ alcohol screening behavior in Colombia, Mexico and Peru dataset

description: Dataset used in paper Factors associated with primary health care providers’ alcohol screening behavior in Colombia, Mexico and Peru<br>By: Kokole; Jané-Llopis; Mercken; Piazza; Bustamante; Natera Rey; Medina; Perez-Gomez; Mejía-Trujillo; O'Donnell; Kaner; Gual; Schmidt; Schulte; Candel; de Vries; Anderson<br>
DOI: 10.6084/m9.figshare.13347242.v1
title: SCALA - Factors associated with primary health care providers’ alcohol screening behavior in Colombia, Mexico and Peru dataset

description: Dataset used in paper Factors associated with primary health care providers’ alcohol screening behavior in Colombia, Mexico and Peru<br>By: Kokole; Jané-Llopis; Mercken; Piazza; Bustamante; Natera Rey; Medina; Perez-Gomez; Mejía-Trujillo; O'Donnell; Kaner; Gual; Schmidt; Schulte; Candel; de Vries; Anderson<br>
DOI: 10.24341/tethys.90
title: Geodaten - Blatt 197 Kötschach (1:50.000)
title: Geodata - sheet 197 Kötschach (1:50.000)

description: Die Geodaten wurden aus dem Kartenwerk GK50 „Geologische Karte der Republik Österreich 1:50.000“ abgeleitet. Die Datengrundlage basiert auf einer umfassenden Datenerhebung im Rahmen der gesetzlich verankerten geologischen Landesaufnahme von Österreich, welche eine umfangreiche Literaturrecherche, die Geländekartierung, sowie die Probenahme mit wissenschaftlichen Analysen und Messungen beinhaltet. Die im BMN-Blattschnitt veröffentlichten Geodaten entsprechen dem aktuellen Wissensstand zum Zeitpunkt des Kartendruckes und können geringfügig von den Originalen abweichen.
description: Die vorliegende Datenpublikation ist ein Bestandteil der Kartenserie „Geologische Karte der Republik Österreich 1:50.000“ (GK50), die im Zeitraum zwischen 1977 und 2017 veröffentlicht wurden und aus insgesamt 89 Geodatensätzen besteht. Eine ausführliche Datenbeschreibung wird mit den Kartendaten bereitgestellt und kann direkt zu jeder Publikation heruntergeladen werden.
description: This data publication is part of the map series "Geological Map of the Republic of Austria 1:50.000" (GK50), published between 1977 and 2017 consisting of 89 spatial data sets. A detailed data description is provided with the map data and can be downloaded together with the data publication.
DOI: 10.34808/tkfc-p546
title: Comparison of Poland, Germany and the European average using the components of the summary innovation index

description: The analysis presents a comparison of the innovation policies of Poland and Germany using all the indicators included in the Summary Innovation Index (SII), then the obtained results were analyzed and conclusions were formulated.The indicators are divided into three main categories, each group of indicators shows a different aspect of the innovativeness of the analyzed country.Group I: "driving forces of innovation", a group of indicators measuring the structural conditions necessary to build innovation potential (human resources, financial resources and support, open, excellent and attractive research and development systems);Group II: "activity of enterprises" - showing the degree of innovation of European companies (investments, links and entrepreneurship, intellectual assets); andGroup III: "economic effects" - illustrating how innovation translates into benefits for the economy (innovators, economic effects).Thus, not only the results of innovative activity are taken into account, but also its broadly understood determinants.
DOI: 10.34808/ajsd-ww89
title: Share of enterprises' expenditure in total R&D expenditure (2009-2011)

description: The countries with the highest share of enterprises in R&D expenditure are: Finåandia (67%), Germany (65.6%) and Slovenia (61.2%). On the opposite pole are Cyprus (11%), Bulgaria (16.9%) and Latvia (24.8%). The average result for the Member States in 2011 was 54.9%. It is worth noting that the countries that significantly increased the ratio of R&D expenditure to GDP in the short term (Estonia, Slovenia), at the same time decreased the share of state and enterprise expenditure, causing the enterprise sector expenditure to be almost twice as high as empty.
DOI: 10.24341/tethys.91
title: Geodaten - Blatt 205 Sankt Paul im Lavanttal (1:50.000)
title: Geodata - sheet 205 Sankt Paul im Lavanttal (1:50.000)

description: Die Geodaten wurden aus dem Kartenwerk GK50 „Geologische Karte der Republik Österreich 1:50.000“ abgeleitet. Die Datengrundlage basiert auf einer umfassenden Datenerhebung im Rahmen der gesetzlich verankerten geologischen Landesaufnahme von Österreich, welche eine umfangreiche Literaturrecherche, die Geländekartierung, sowie die Probenahme mit wissenschaftlichen Analysen und Messungen beinhaltet. Die im BMN-Blattschnitt veröffentlichten Geodaten entsprechen dem aktuellen Wissensstand zum Zeitpunkt des Kartendruckes und können geringfügig von den Originalen abweichen.
description: Die vorliegende Datenpublikation ist ein Bestandteil der Kartenserie „Geologische Karte der Republik Österreich 1:50.000“ (GK50), die im Zeitraum zwischen 1977 und 2017 veröffentlicht wurden und aus insgesamt 89 Geodatensätzen besteht. Eine ausführliche Datenbeschreibung wird mit den Kartendaten bereitgestellt und kann direkt zu jeder Publikation heruntergeladen werden.
description: This data publication is part of the map series "Geological Map of the Republic of Austria 1:50.000" (GK50), published between 1977 and 2017 consisting of 89 spatial data sets. A detailed data description is provided with the map data and can be downloaded together with the data publication.
DOI: 10.34808/b30y-cx25
title: Relation of expenditure on Research and Development to GDP in EU countries (2009-2012)

description: The presented dataset shows that most countries increased their R&D spending - 16 of those 26 members of the European Union for which Eurostat has complete data did so. This also translated into the average ratio for the entire Community, in 2012 it amounted to 2.06% of GDP compared to 2.01% in 2009. The most severely limited their expenses were the leaders of the 2009 ranking, including Finland, Sweden and Denmark. Despite this, they kept their places and, more importantly, maintained the ideal, according to the "Strategy 2020" ratio of R&D expenditure to GDP (it is 3% and more). How important an element of innovation policy is the R&D sector can be seen by comparing the leaders of the above list with those of the "Summary Innovation Index" presented in the previous chapter. In two rankings, the same countries are in the top four. As for Poland, it increased R&D spending from 0.67% of GDP to 0.90% of GDP. This puts seven countries ahead of them.
DOI: 10.34808/tc6w-h693
title: Forecast of basic fuel prices in imports to Poland (constant prices in USD in 2007)

description: This dataset presents price growth forecasts for conventional energy sources. It should be noted that the Ministry of Economy forecasts a more than two-fold increase in oil prices (although these forecasts may be greatly underestimated) over 23 years, an almost two-fold increase in natural gas prices and a 40% increase in coal prices.
The general increase in prices will force the markets to choose - reduce electricity consumption (possibly increase the efficiency of its use), or find other alternative sources. The European Union, by implementing the EU Directive 2009/28 / EC, encourages Member States to apply both solutions - both increasing efficiency (as a consequence of reducing energy consumption) and increasing the share of Renewable Energy Sources in the overall structure of electricity production.
DOI: 10.34808/7sjn-q290
title: Dataset for a research study on scientific productivity of Polish technical universities (Białystok University of Technology 2016-2020).

description: This dataset was created for the purpose of research on scientific productivity at Polish technical universities.
The raw data was retrieved in June 2021 by the SciVal benchmarking tool in xlsx format and will be used to create the research profiles of the universities and underlying data of journals articles.
The most common definition of research productivity (interchangeable with academic productivity or scientific productivity)  states as research productivity are the number of publications per researchers. However, a more extended definition of scientific productivity, connecting quantity and quality approach involves producing quality research represented by publishing academic papers in reputable international journals, citing these papers, gaining research funding (e.g. national and international grants), and collaborating in scientific teams.
The dataset prepared for the scientific profile of Białystok University of Technology consists records from 2016-2020:
1) Summary for Białystok University of Technology
2) Collaboration
3) Citation Count
4) Scholarly Output
5) Topic Clusters.
DOI: 10.34808/qdn6-kh35
title: Gross final energy demand from RES, broken down by type of energy

description: According to the forecasts of the Ministry of Economy, taking into account the macroeconomic situation and legal conditions (including the EU Program "20x20x20", the Act on Renewable Energy Sources and the Energy Efficiency Act), power plants producing energy based on renewable energy will gain in importance in the coming years. energy sources.
Other sources of electricity, such as:
• biomass,• biogas,• water• solar energy
DOI: 10.6084/m9.figshare.14797959
title: Genetic structure of the Goniopora lobata and G. djiboutiensis species complex is better explained by oceanography than by morphological characteristics

description: Species delimitation of closely related corals is often challenging due to high intra-species morphological variation and phenotypic plasticity with a lack of characteristic features and scarcity of relevant molecular markers. Goniopora spp. are one such coralline group, and the species status of Goniopora lobata and Goniopora djiboutiensis, an Indian and Pacific Ocean hermatypic coral species complex, has been questioned on the basis of previous molecular and morphological analyses. To further examine the species boundaries between G. lobata and G. djiboutiensis in Japan, specimens collected from areas spanning from Ryukyu Island to temperate Japanese regions were morphologically identified based on traditional morphological descriptions. Then, the genetic structure of the G. lobata and G. djiboutiensis species complex was examined using six newly developed microsatellite markers. The majority of the collected specimens had intermediate morphologies and a STRUCTURE analysis using LOCPRIOR model based on typical G. lobata and G. djiboutiensis morphology indicated that there were no genetic differences between these morphologies. On the other hand, STRUCTURE analysis based on oceanographic regions revealed that there was a genetic break between the temperate and subtropical regions. This weak genetic break corresponded with the Kuroshio-associated barrier, which prevents larval transport between subtropical and temperate regions. This study confirms that the current morphological identification criteria for G. lobata and G. djiboutiensis do not match the existing genetic boundaries and thus the two should be regarded as a species complex. This study also highlighted the robustness of using a multi-locus population genetic approach, including a geographic context, to confirm the species boundaries of closely related species.
DOI: 10.6084/m9.figshare.14797959.v2
title: Genetic structure of the Goniopora lobata and G. djiboutiensis species complex is better explained by oceanography than by morphological characteristics

description: Species delimitation of closely related corals is often challenging due to high intra-species morphological variation and phenotypic plasticity with a lack of characteristic features and scarcity of relevant molecular markers. Goniopora spp. are one such coralline group, and the species status of Goniopora lobata and Goniopora djiboutiensis, an Indian and Pacific Ocean hermatypic coral species complex, has been questioned on the basis of previous molecular and morphological analyses. To further examine the species boundaries between G. lobata and G. djiboutiensis in Japan, specimens collected from areas spanning from Ryukyu Island to temperate Japanese regions were morphologically identified based on traditional morphological descriptions. Then, the genetic structure of the G. lobata and G. djiboutiensis species complex was examined using six newly developed microsatellite markers. The majority of the collected specimens had intermediate morphologies and a STRUCTURE analysis using LOCPRIOR model based on typical G. lobata and G. djiboutiensis morphology indicated that there were no genetic differences between these morphologies. On the other hand, STRUCTURE analysis based on oceanographic regions revealed that there was a genetic break between the temperate and subtropical regions. This weak genetic break corresponded with the Kuroshio-associated barrier, which prevents larval transport between subtropical and temperate regions. This study confirms that the current morphological identification criteria for G. lobata and G. djiboutiensis do not match the existing genetic boundaries and thus the two should be regarded as a species complex. This study also highlighted the robustness of using a multi-locus population genetic approach, including a geographic context, to confirm the species boundaries of closely related species.
DOI: 10.6084/m9.figshare.14797959.v1
title: Genetic structure of the Goniopora lobata and G. djiboutiensis species complex is better explained by oceanography than by morphological characteristics

description: Species delimitation of closely related corals is often challenging due to high intra-species morphological variation and phenotypic plasticity with a lack of characteristic features and scarcity of relevant molecular markers. Goniopora spp. are one such coralline group, and the species status of Goniopora lobata and Goniopora djiboutiensis, an Indian and Pacific Ocean hermatypic coral species complex, has been questioned on the basis of previous molecular and morphological analyses. To further examine the species boundaries between G. lobata and G. djiboutiensis in Japan, specimens collected from areas spanning from Ryukyu Island to temperate Japanese regions were morphologically identified based on traditional morphological descriptions. Then, the genetic structure of the G. lobata and G. djiboutiensis species complex was examined using six newly developed microsatellite markers. The majority of the collected specimens had intermediate morphologies and a STRUCTURE analysis using LOCPRIOR model based on typical G. lobata and G. djiboutiensis morphology indicated that there were no genetic differences between these morphologies. On the other hand, STRUCTURE analysis based on oceanographic regions revealed that there was a genetic break between the temperate and subtropical regions. This weak genetic break corresponded with the Kuroshio-associated barrier, which prevents larval transport between subtropical and temperate regions. This study confirms that the current morphological identification criteria for G. lobata and G. djiboutiensis do not match the existing genetic boundaries and thus the two should be regarded as a species complex. This study also highlighted the robustness of using a multi-locus population genetic approach, including a geographic context, to confirm the species boundaries of closely related species.
DOI: 10.34808/vwva-ah38
title: The XRD diffraction patterns of La0.3Sr0.6Ce0.1Ni0.1W0.9O3-s precursor calcined under air atmosphere

description: The dataset includes XRD patterns of La0.3Sr0.6Ce0.1Ni0.1W0.9O3-s precursor gel prepared using wet chemistry methods, namely modified Pechini route. The powders were calcined at 550oC for 5 h in air.