cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.14280675.v1
title: Long-term trends of potential years of life lost due to main causes of death in the Slovak population, 2004-2013

description: The aim of this study was to evaluate trends of potential years of life lost (PYLL) rates in the Slovak population and analyze the average annual percent change (AAPC) of PYLL rates regarding the most common causes of death between 2004 and 2013. National mortality and demographic data were obtained from the Statistical Office of the Slovak Republic, and 378,535 causes of death within the period were analyzed. The PYLL values in both genders and each disease category were added up across all age groups to form annual values. For the trend analysis, the AAPC indicator was proposed. The PYLL rate is age-standardized and expressed as a sum of all deaths per 100,000. In the period 2004-2013, the highest mean PYLL rates were observed in neoplasms in the whole population (2,103 per 100,000), as well as in females (2,088 per 100,000), with a permanent high significant increase of AAPC of PYLL in both genders. The second highest mean PYLL rate in the ten-year period was related to circulatory system diseases in total (1,922 per 100,000) as well as in females (1,449 per 100,000). In males, circulatory system diseases had the highest PYLL rate (2,397 per 100,000). The PYLL rates trend regarding external causes of morbidity and mortality showed the most notable decrease in the assessed period and the AAPC of PYLL showed significant negative values both in males (-2.5%; p &lt; 0.001) and females (-4%; p &lt; 0.001). Our results should contribute in developing intervention programs aimed at reducing the burden of premature mortality since the main causes of premature death are associated to well-known and preventable risk factors.
DOI: 10.6084/m9.figshare.14280681.v1
title: Do the determinants of self-rated health vary among older people with disability, chronic diseases or both conditions in urban Colombia?

description: Abstract: Our study aimed to identify the main determinants of self-rated health for individuals aged 60 years or older in Bogotá, Colombia, and if those determinants vary between groups. Data was obtained from the Demographic Health Survey 2011 for Bogotá. Logistic regression models were estimated to identify the determinants of excellent/good self-rated health among people aged 60 years or older living in Bogotá. Moreover, a subgroup analysis was conducted seeking to identify if the determinants changed between groups (men, women, persons with disability, with chronic disease(s), and persons with both disability and chronic disease(s)). The likelihood of reporting an excellent/good self-rated health health decreases when the individual has a disability, a chronic disease or reports that their household income is not enough to cover the basic needs. On the other hand, the odds of reporting excellent/good self-rated health increase when the individual is more educated and reports to receive family support. The subgroup analysis showed that although some determinants are only associated with one group (age with chronic diseases), in general, three main determinants stood out: years of education, socioeconomic status variables and receiving family support. The determinants of self-rated health for older adults in Bogotá differ according to the disability and the chronic disease status. Thus, public policies aiming to improve the levels of health and quality must consider the impacts of those characteristics on individuals’ perceptions of their own health.
DOI: 10.6084/m9.figshare.14280683
title: Affective relations and treatment adherence for HIV and problematic drug use (Argentina, 2014-2016)

description: Abstract: The article analyzes interactions between therapeutic experiences and affective relations in the history of patients with chronic health conditions: persons with problematic drug use receiving therapeutic care in religious devices and persons with HIV under clinical care and antiretroviral therapy. The article uses a qualitative methodology based on in-depth interviews. The hypothesis is that the treatments (pharmacological or psychological) usually prove insufficient to provide adequate therapeutic responses to these two chronic conditions. Both groups acknowledged the central importance of affective dimensions for adherence to the proposed treatment regimens and a comprehensive (and thus more effective) approach to HIV and drug addictions. The article concludes by presenting a notion of adherence that extrapolates individual behavior involving mere compliance with prescribed treatments. Adherence is less a personal than a collective experience, in which family, peer networks, and professionals and other therapeutic reference persons play a central role.
DOI: 10.6084/m9.figshare.14280683.v1
title: Affective relations and treatment adherence for HIV and problematic drug use (Argentina, 2014-2016)

description: Abstract: The article analyzes interactions between therapeutic experiences and affective relations in the history of patients with chronic health conditions: persons with problematic drug use receiving therapeutic care in religious devices and persons with HIV under clinical care and antiretroviral therapy. The article uses a qualitative methodology based on in-depth interviews. The hypothesis is that the treatments (pharmacological or psychological) usually prove insufficient to provide adequate therapeutic responses to these two chronic conditions. Both groups acknowledged the central importance of affective dimensions for adherence to the proposed treatment regimens and a comprehensive (and thus more effective) approach to HIV and drug addictions. The article concludes by presenting a notion of adherence that extrapolates individual behavior involving mere compliance with prescribed treatments. Adherence is less a personal than a collective experience, in which family, peer networks, and professionals and other therapeutic reference persons play a central role.
DOI: 10.6084/m9.figshare.14280684
title: Assessment of care for high-risk pregnancy in four Brazilian metropolises

description: Abstract: The study assessed care for high-risk pregnancy, including access, functioning, and use of health services, ranging from primary healthcare (PHC) to specialized care. This was an evaluative study anchored in an analytical model that used triangulation of different information sources and comparative analysis of care for high-risk pregnancy in four Brazilian metropolises. The selected analytical categories were: access to consultations and tests, linkage between components of the healthcare networks and between users and healthcare professionals, and the care provided. Contexts of care for high-risk pregnancy were characterized by health system information indicators and a qualitative descriptive study produced by key informants, in addition to a questionnaire applied to 1,886 pregnant women seen at specialized services, having been referred by PHC. Triangulation of data obtained from secondary sources, contextualization of healthcare networks, and a survey with high-risk pregnant women allowed encompassing the complexity of the organizational arrangements in the healthcare network among the municipalities. Significant differences were identified in access, linkage, and care provided for high-risk pregnancy in the four metropolises. Campinas (São Paulo State, Brazil) was the municipality with the best performance in the indicators related to linkage and access by pregnant women to PHC. São Paulo and Porto Alegre (Rio Grande do Sul State) showed fair performance on the set of indicators as a whole, while Fortaleza (Ceará State) revealed the need for improvement in the three categories analyzed.
DOI: 10.6084/m9.figshare.14280685
title: Gaps in drug-resistant tuberculosis surveillance: probabilistic database linkage in Brazil

description: Abstract: The study aimed to assess the coverage and reliability of drug-resistant tuberculosis (DR-TB) case closure in the Information System on Special Treatments for Tuberculosis (SITE-TB in Portuguese) in Brazil from 2013 to 2016, based on probabilistic linkage with the Information System on Diseases of Notification (SINAN), Laboratory Environment Manager (GAL), and Mortality Information System (SIM). The study population consisted of DR-TB cases that initiated treatment from 2013 to 2016 in Brazil. Linkage with SINAN assessed the coverage and estimated underreporting of DR-TB cases. The capture-recapture method was applied, using the Chapman estimator. Linkage with GAL identified cases diagnosed by the laboratory that had not been reported to SITE-TB. Linkage with SIM assessed the reliability of case closure by death in SITE-TB, using the kappa coefficient. We estimated a population of 2,945 (95%CI: 2,365-3,602) new cases of DR-TB with the Chapman estimator. We located 1,626 individuals in the GAL database that had not been reported to SITE-TB, even with laboratory confirmation of drug resistance. PABAK (prevalance and bias adjusted kappa) of 0.86 (95%CI: 0.85-0.87) was classified as excellent for the agreement in death as the outcome between the SITE-TB and SIM databases. The results pointed to persistent gaps related to diagnosis and treatment of DR-TB in Brazil. Underreporting of DR-TB cases in the SITE-TB database poses a challenge for TB control. Identification of these individuals and early start of treatment should be prioritized in health services.
DOI: 10.6084/m9.figshare.14280685.v1
title: Gaps in drug-resistant tuberculosis surveillance: probabilistic database linkage in Brazil

description: Abstract: The study aimed to assess the coverage and reliability of drug-resistant tuberculosis (DR-TB) case closure in the Information System on Special Treatments for Tuberculosis (SITE-TB in Portuguese) in Brazil from 2013 to 2016, based on probabilistic linkage with the Information System on Diseases of Notification (SINAN), Laboratory Environment Manager (GAL), and Mortality Information System (SIM). The study population consisted of DR-TB cases that initiated treatment from 2013 to 2016 in Brazil. Linkage with SINAN assessed the coverage and estimated underreporting of DR-TB cases. The capture-recapture method was applied, using the Chapman estimator. Linkage with GAL identified cases diagnosed by the laboratory that had not been reported to SITE-TB. Linkage with SIM assessed the reliability of case closure by death in SITE-TB, using the kappa coefficient. We estimated a population of 2,945 (95%CI: 2,365-3,602) new cases of DR-TB with the Chapman estimator. We located 1,626 individuals in the GAL database that had not been reported to SITE-TB, even with laboratory confirmation of drug resistance. PABAK (prevalance and bias adjusted kappa) of 0.86 (95%CI: 0.85-0.87) was classified as excellent for the agreement in death as the outcome between the SITE-TB and SIM databases. The results pointed to persistent gaps related to diagnosis and treatment of DR-TB in Brazil. Underreporting of DR-TB cases in the SITE-TB database poses a challenge for TB control. Identification of these individuals and early start of treatment should be prioritized in health services.
DOI: 10.6084/m9.figshare.14280684.v1
title: Assessment of care for high-risk pregnancy in four Brazilian metropolises

description: Abstract: The study assessed care for high-risk pregnancy, including access, functioning, and use of health services, ranging from primary healthcare (PHC) to specialized care. This was an evaluative study anchored in an analytical model that used triangulation of different information sources and comparative analysis of care for high-risk pregnancy in four Brazilian metropolises. The selected analytical categories were: access to consultations and tests, linkage between components of the healthcare networks and between users and healthcare professionals, and the care provided. Contexts of care for high-risk pregnancy were characterized by health system information indicators and a qualitative descriptive study produced by key informants, in addition to a questionnaire applied to 1,886 pregnant women seen at specialized services, having been referred by PHC. Triangulation of data obtained from secondary sources, contextualization of healthcare networks, and a survey with high-risk pregnant women allowed encompassing the complexity of the organizational arrangements in the healthcare network among the municipalities. Significant differences were identified in access, linkage, and care provided for high-risk pregnancy in the four metropolises. Campinas (São Paulo State, Brazil) was the municipality with the best performance in the indicators related to linkage and access by pregnant women to PHC. São Paulo and Porto Alegre (Rio Grande do Sul State) showed fair performance on the set of indicators as a whole, while Fortaleza (Ceará State) revealed the need for improvement in the three categories analyzed.
DOI: 10.6084/m9.figshare.14280687
title: Intergenerational educational mobility, discrimination, and hypertension in adults from Southern Brazil

description: Systemic arterial hypertension (SAH) or high blood pressure a serious global public health problem marked by social inequalities. There are few studies on SAH in Brazil with a life-course theoretical perspective. The current article aims to analyze the relationship between intergenerational educational mobility (IEM) and SAH in Brazilian adults, verifying the impact of interpersonal and color/“race” discrimination on this relationship. The authors analyzed data from 1,720 adults (20-59 years) and their parents in the EpiFloripa Adult Study. Random-effects multilevel regression models were estimated. The fixed effects showed an inverse relationship between IEM and odds of SAH, with statistical significance for high IEM (paternal model: OR = 0.39, p = 0.006; maternal model: OR = 0.35, p = 0.002; and family model: OR = 0.35, p = 0.001). Meanwhile, interaction models showed that situations of discrimination can act jointly with unfavorable IEM, increasing the odds of SAH, especially among black and brown individuals. The study concludes that persistently high IEM is capable of significantly reducing the odds of SAH, while discrimination can intensify the effect of low education, especially in socially marginalized population segments.
DOI: 10.6084/m9.figshare.14280687.v1
title: Intergenerational educational mobility, discrimination, and hypertension in adults from Southern Brazil

description: Systemic arterial hypertension (SAH) or high blood pressure a serious global public health problem marked by social inequalities. There are few studies on SAH in Brazil with a life-course theoretical perspective. The current article aims to analyze the relationship between intergenerational educational mobility (IEM) and SAH in Brazilian adults, verifying the impact of interpersonal and color/“race” discrimination on this relationship. The authors analyzed data from 1,720 adults (20-59 years) and their parents in the EpiFloripa Adult Study. Random-effects multilevel regression models were estimated. The fixed effects showed an inverse relationship between IEM and odds of SAH, with statistical significance for high IEM (paternal model: OR = 0.39, p = 0.006; maternal model: OR = 0.35, p = 0.002; and family model: OR = 0.35, p = 0.001). Meanwhile, interaction models showed that situations of discrimination can act jointly with unfavorable IEM, increasing the odds of SAH, especially among black and brown individuals. The study concludes that persistently high IEM is capable of significantly reducing the odds of SAH, while discrimination can intensify the effect of low education, especially in socially marginalized population segments.
DOI: 10.6084/m9.figshare.14280690
title: Perceived stress associated with COVID-19 epidemic in Colombia: an online survey

description: Abstract: This study aimed to assess the prevalence and variables related to perceived stress associated with the COVID-19 pandemic in a sample of Colombian adults using a designed online cross-sectional survey. Adults answered a version of the Perceived Stress Scale (PSS-10) modified for COVID-19 (PSS-10-C), with Cronbach alpha equal to 0.86. In total, 406 individuals aged between 19 and 88 years (M = 43.9; SD = 12.4) agreed to participate in the survey: 61.8% were females, 90.6% had a university degree, 44.1% were health professionals, and 45.7% considered public health policies for preventing the spread of the disease inconsistent with scientific recommendations. PSS-10-C scores ranged from 0 to 36 (M = 16.5; SD = 7.3); 58 individuals (14.3%) scored for high perceived stress (cut-off point = 25). The inconsistency between policies and scientific evidence was significantly related to high perception of stress associated with COVID-19 (OR = 2.36; 95%CI: 1.32-4.20), after adjusting for gender. We concluded that the study group presented the prevalence of perceived stress associated with COVID-19 at high levels, arising from the inconsistent strategies developed by health authorities in view of scientific recommendations. Further researches must address the psychosocial aspects of epidemics.
DOI: 10.6084/m9.figshare.14280690.v1
title: Perceived stress associated with COVID-19 epidemic in Colombia: an online survey

description: Abstract: This study aimed to assess the prevalence and variables related to perceived stress associated with the COVID-19 pandemic in a sample of Colombian adults using a designed online cross-sectional survey. Adults answered a version of the Perceived Stress Scale (PSS-10) modified for COVID-19 (PSS-10-C), with Cronbach alpha equal to 0.86. In total, 406 individuals aged between 19 and 88 years (M = 43.9; SD = 12.4) agreed to participate in the survey: 61.8% were females, 90.6% had a university degree, 44.1% were health professionals, and 45.7% considered public health policies for preventing the spread of the disease inconsistent with scientific recommendations. PSS-10-C scores ranged from 0 to 36 (M = 16.5; SD = 7.3); 58 individuals (14.3%) scored for high perceived stress (cut-off point = 25). The inconsistency between policies and scientific evidence was significantly related to high perception of stress associated with COVID-19 (OR = 2.36; 95%CI: 1.32-4.20), after adjusting for gender. We concluded that the study group presented the prevalence of perceived stress associated with COVID-19 at high levels, arising from the inconsistent strategies developed by health authorities in view of scientific recommendations. Further researches must address the psychosocial aspects of epidemics.
DOI: 10.6084/m9.figshare.14280692
title: Challenges and opportunities for telehealth during the COVID-19 pandemic: ideas on spaces and initiatives in the Brazilian context

description: Abstract: COVID-19 has created enormous challenges for health systems worldwide, with the rapidly growing number of deaths and critical patients with pneumonia requiring ventilatory support. Alternative methods to control the spread of the disease such as social isolation, extreme quarantine measures, and contact tracing have been used around the world. However, these measures may not be totally effective to fight COVID-19, in step with the necessary national preparations to meet the new patient care demands. A wide range of digital technologies can be used to enhance these public health strategies, and the pandemic has sparked increasing use of telehealth. This field has grown considerably in Brazil in recent years. Still, despite the intense proliferation of recommendations and rules, until the current pandemic the country still lacked a fully consolidated regulatory framework. The emergence of COVID-19 marks a key moment in the expansion of applications and use of telehealth for improving the health system’s response to the current crisis. The article discusses telehealth’s contribution to the fight against COVID-19 and the recent initiatives triggered in Brazil as opportunities for the consolidation of telemedicine and improvement of the Brazilian Unified National Health System. The authors conclude that telehealth offers capabilities for remote screening, care and treatment, and assists monitoring, surveillance, detection, prevention, and mitigation of the impacts on healthcare indirectly related to COVID-19. The initiatives triggered in this process can reshape the future space of telemedicine in health services in the territory.
DOI: 10.6084/m9.figshare.14280692.v1
title: Challenges and opportunities for telehealth during the COVID-19 pandemic: ideas on spaces and initiatives in the Brazilian context

description: Abstract: COVID-19 has created enormous challenges for health systems worldwide, with the rapidly growing number of deaths and critical patients with pneumonia requiring ventilatory support. Alternative methods to control the spread of the disease such as social isolation, extreme quarantine measures, and contact tracing have been used around the world. However, these measures may not be totally effective to fight COVID-19, in step with the necessary national preparations to meet the new patient care demands. A wide range of digital technologies can be used to enhance these public health strategies, and the pandemic has sparked increasing use of telehealth. This field has grown considerably in Brazil in recent years. Still, despite the intense proliferation of recommendations and rules, until the current pandemic the country still lacked a fully consolidated regulatory framework. The emergence of COVID-19 marks a key moment in the expansion of applications and use of telehealth for improving the health system’s response to the current crisis. The article discusses telehealth’s contribution to the fight against COVID-19 and the recent initiatives triggered in Brazil as opportunities for the consolidation of telemedicine and improvement of the Brazilian Unified National Health System. The authors conclude that telehealth offers capabilities for remote screening, care and treatment, and assists monitoring, surveillance, detection, prevention, and mitigation of the impacts on healthcare indirectly related to COVID-19. The initiatives triggered in this process can reshape the future space of telemedicine in health services in the territory.
DOI: 10.6084/m9.figshare.14280693
title: An intervention for the implementation of clinical monitoring in specialized care services to people living with HIV/AIDS

description: The clinical monitoring of people living with HIV/AIDS (PLWHA) contributes to identifying and managing cases of individuals who have not begun treatment (gap), those experiencing treatment failure or who have abandoned treatment. This article sought to present and discuss the development of a methodology to implement the clinical monitoring of PLWHA in the services of the Brazilian Unified National Health System (SUS). The methodology used since 2014 by the CRT-STI/AIDS-Coordination of the STI/AIDS Program, São Paulo State, Brazil, was re-structured in three meetings between June and August 2018. The new methodology retained the axes of presentation of number of users in treatment failure, gap or abandonment in the participant services, as well as the discussion of individual, social and programmatic vulnerabilities. A new axis was added which directs the discussion of the possibilities of reorganizing service care flows and management practices. Additionally, the intervention started to be carried out in health services, with the participation of a higher number of professionals from the multi-professional team, discussion of cases, workflows and processes, and regional meetings to exchange clinical monitoring experiences between services. The re-structuring of the methodology contributed to a reduction in treatment gap, a reorganization of care flows and the inclusion of clinical monitoring as a management tool in services specialized in providing care to PLWHA. This methodology can be implemented by other state programs, municipalities and services, since all have access to the same information sources used in this intervention.