cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.60641/y8q9-w334
title: Zygosity (questionnaire)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Zygosity questionnaire asks parents of twin pairs about the resemblance between the twins to determine whether the twin pair is mono- or dizygotic. This questionnaire consists of 10 questions: 6 items about physical similarities between the twin and 4 items about confusion in identifying the twins by parents and others.
description: In NTR projects YC_DSC and YC_ADHMRI, mother-ratings were obtained via a telephone interview.
DOI: 10.60641/4kkt-v113
title: Physical Activity and Sports

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Physical Activity and Sports includes questions about physical exercise patterns of parents and their children, including whether and which sport is exercised, for how long at a time, how frequently, since how many months or years, and how good subjects are at sports. Children's sports touched upon include jogging, hockey, korfball, horseback riding, speed skating, tennis, gymnastics, fighting sports, football/soccer,, swimming, volleyball, athletics, badminton, ballet/dancing, basketball, fitness, handball, and cycling.
description: In NTR projects YC_DSC and YC_ADHMRI, mother-ratings were obtained via a telephone interview and in NTR project YC_FITNSS, via an interview.
DOI: 10.60641/wtpy-r418
title: Diagnostic Interview Schedule Section L (DIS-L)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Diagnostic Interview Schedule Section L (DIS-L) is a section of the DIS to retrospectively assess DSM-IV criteria for childhood ADHD in adults. The DIS-L consists of questions about symptoms, onset, duration, and impairment. The DIS-L distinguishes three possible subtypes: ADHD, Predominantly Inattentive Type; ADHD, Predominantly Hyperactive/Impulsive Type; and ADHD, Combined Type.
DOI: 10.60641/5rde-gd47
title: GC-MS steroid hormones

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Gas chromatography mass spectrometry (GC-MS) platform targeting steroid hormones.
description: In NTR, GC-MS steroid hormones were measured in urine at the Edinburgh Clinical Research Facility Mass Spectrometry Core Laboratory (Edinburgh, the United Kingdom). The analyses were performed on a Trace GC Ultra, with a DB17MS column (30 m, 0.25 mm, 0.25 mm, Agilent Technologies Ltd. Stockport, UK), coupled to a TSQ Quantum triple quadrupole MS (Thermoscientific, Hemel Hempstead, UK).
DOI: 10.60641/acja-mh39
title: COSMED

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: COSMED consists of recorded breath-by-breath oxygen uptake (VO2) and carbon dioxide production (VCO2) during exercise measured with a telemetric gas exchange system (Cosmed K4b2, Cosmed Benelux, Nieuwegein, The Netherlands).
description: In YE_FITNSS, first, two exercise tests were conducted (in fixed order) on an electromechanically braked Lode cycle ergometer (type Corival) and a Lode treadmill (type Valiant) at fixed loads that are below the intensity of the ventilatory threshold for most adolescents, and finally, an incremental maximal exercise test was conducted on a cycle ergometer.
DOI: 10.60641/jm9z-my90
title: DNA methylation (array)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Assessment of DNA methylation as obtained through DNA methylation arrays.
description: In NTR projects YC_ACTIONBB2 and YC_ACTIONBB3, genome-wide methylation data in buccal DNA samples was performed by the Human Genotyping facility (HugeF) of ErasmusMC (the Netherlands, http://www.glimdna.org/) on the Infinium MethylationEPIC BeadChip Kit (Illumina, San Diego, CA, USA). Recently, additional EPIC array data became available for NTR ACTION twins and siblings (generated by the Avera Institure of Human Genetics, Sioux Falls, South Dakota, USA). For information on the measurement of DNA methylation with the EPIC array, cleaning of DNA methtylation data, and estimation of proportion of cell counts see: https://doi.org/10.1038/s41380-020-00987-x.
DOI: 10.60641/e8en-wx49
title: Autism-Spectrum Quotient (AQ)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Autism-Spectrum Quotient (AQ) is a self-administered questionnaire developed to quantify autistic traits in individuals with normal intelligence. The AQ consists of 50 items, selected from the domains of the “triad of impairment” in autism (impaired social skills, impaired communication, and restricted interests), and from demonstrated areas of cognitive abnormality in autism (e.g. lack of imagination and great attention to detail).
description: The NTR introduced two subscales of the AQ: the Attention to detail score and Social interaction score, based on factor analysis (https://doi.org/10.1007/s10803-008-0538-x).
DOI: 10.60641/d0ag-nw98
title: Iowa-Netherlands Comparison Orientation Measure (INCOM)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Iowa-Netherlands Comparison Orientation Measure (INCOM) is an 11-item measure of individual differences in social comparison orientation. It identifies people who are high and low in their tendencies to use social comparisons, but does not identify the motives that respondents have for making social comparisons.
description: In NTR, a modified version of the scale was used that also assessed social comparision with the co-twin (https://doi.org/10.1017/thg.2017.61).
DOI: 10.60641/2f6d-0483
title: One Minute Reading Task

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: One subtest of the ‘one minute reading test’ was administered as a measure of technical reading performance, or oral reading fluency. It measures the accuracy and speed of decoding. Children were instructed to read out loud as many words as possible in 1 minute without making errors from a card containing 120 unrelated words.
DOI: 10.60641/1d8j-1w19
title: Life Events Scale

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Life Events scale assesses the presence of a wide range of important events in the respondent's life, such as death of a spouse, close relative, or friend, divorce/separation, personal illness or injury, job loss or job change, sexual difficulties, financial problems, etc.
description: NTR uses a Dutch version of a life-events scale, adapted from scales used in the Finnish Twin Cohorts which were based on the Holmes-Rahe scale and the Trauma History Screen instrument.
DOI: 10.60641/bj9z-ra51
title: Handgrip

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Handgrip strength in both hands was measured with a dynamometer (Baseline Digital Smedley Hand dynamometer, Fabrication Enterprises Inc., USA) with one arm at the side of the body and the elbow at a 90 degree angle.