cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.25504/fairsharing.f0bd91
title: FAIRsharing record for: DOAP
title: null

description: This FAIRsharing record describes:  DOAP is a project to create an XML/RDF vocabulary to describe software projects, and in particular open source projects.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.a752bd
title: FAIRsharing record for: Global Long-term Experiments Network Metadata Portal
title: GLTEN

description: This FAIRsharing record describes:  The Global Long-Term Agricultural Experiment Network (GLTEN) is a network of long-term agricultural experiments. The GLTEN was launched in May 2018 with the aim of establishing and supporting a collaborative network within the international agricultural science community. 
The aim of the GLTEN metadata portal is to increase the visibility of long-term agricultural experiments and provide new opportunities for collaborations and data re-use. The GLTEN Metadata portal uses a defined metadata schema to provide consistent descriptions of over 200 LTEs, representing diverse and contrasting climate regions and environments, as well as multiple crop systems and land management schemes.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.3224a5
title: FAIRsharing record for: BagIt File Packaging Format
title: BagIt

description: This FAIRsharing record describes:  BagIt is a set of hierarchical file layout conventions designed to support storage and transfer of arbitrary digital content.  A "bag"  consists of a directory containing the payload files and other accompanying metadata files known as "tag" files.  The "tags" are metadata files intended to facilitate and document the storage and transfer of the bag.  Processing a bag does not require any understanding of the payload file contents, and the payload files can be accessed without processing the BagIt metadata.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.84dde5
title: FAIRsharing record for: OntoSoft Ontology
title: null

description: This FAIRsharing record describes:  The aim of the OntoSoft ontology is to provide a vocabulary for people to publish their software in order for it to be accessible to other users, allow others to run it, cite it, understand it, and use it in their experiments.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.96d2de
title: FAIRsharing record for: Integbio Database Catalog
title: null

description: This FAIRsharing record describes:  This database is a registry of international life science databases and the associated basic metadata, including descriptions of the database and information about the species. Databases include those independently operated by the Ministry of Education, Culture, Sports, Science and Technology, the Ministry of Health, Labour and Welfare, the Ministry of Agriculture, Forestry and Fisheries, and the Ministry of Economy, Trade and Industry. Since the catalog began in October 2012, the respective ministries have continued to accumulate information for the database, adding to and updating the catalog.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.e1c595
title: FAIRsharing record for: Brick - A Uniform Metadata Schema For Buildings
title: Brick

description: This FAIRsharing record describes:  Brick is an open-source effort to standardize semantic descriptions of the physical, logical and virtual assets in buildings and the relationships between them. Brick consists of an extensible dictionary of terms and concepts in and around buildings, a set of relationships for linking and composing concepts together, and a flexible data model permitting seamless integration of Brick with existing tools and databases. Through the use of powerful Semantic Web technology, Brick can describe the broad set of idiosyncratic and custom features, assets and subsystems found across the building stock in a consistent matter. Adopting Brick as the canonical description of a building enables the following: 1) Brick lowers the cost of deploying analytics, energy efficiency measures and intelligent controls across buildings, 2) Brick presents an integrated, cross-vendor representation of the multitude of subsystems in modern buildings: HVAC, lighting, fire, security and so on, 3) Brick simplifies the development of smart analytics and control applications, and 4) Brick reduces the reliance upon the non-standard, unstructured labels endemic to building management systems.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.f1449d
title: FAIRsharing record for: Shapes Constraint Language (SHACL)
title: SHACL

description: This FAIRsharing record describes:  This document defines the SHACL Shapes Constraint Language, a language for validating RDF graphs against a set of conditions. These conditions are provided as shapes and other constructs expressed in the form of an RDF graph. RDF graphs that are used in this manner are called "shapes graphs" in SHACL and the RDF graphs that are validated against a shapes graph are called "data graphs". As SHACL shape graphs are used to validate that data graphs satisfy a set of conditions they can also be viewed as a description of the data graphs that do satisfy these conditions. Such descriptions may be used for a variety of purposes beside validation, including user interface building, code generation and data integration.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.122388
title: FAIRsharing record for: British Association of Dermatologists Biologic and Immunomodulators Register
title: BADBIR

description: This FAIRsharing record describes:  British Association of Dermatologists Biologic and Immunomodulators Register (BADBIR) is a clinical study to monitor the long-term safety of drugs used to treat psoriasis.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.6a56fd
title: FAIRsharing record for: PHAIDRA - University of Vienna (Phaidra)
title: null

description: This FAIRsharing record describes:  PHAIDRA (Permanent Hosting, Archiving and Indexing of Digital Resources and Assets) is the University of Vienna repository for long-term archiving of digital objects and collections. PHAIDRA hosts various types of digital objects (documents, pictures, audio, video, research data) from all disciplines of the University. PHAIDRA offers a search facility to identify specific objects, and each object can be viewed, downloaded, used and reused to the extent permitted by law and by its associated licences. The objects and collections on the PHAIDRA platform are sourced from all departments, libraries, collections and archives at the University of Vienna. All members of the University of Vienna are authorized to upload digital scientific objects to PHAIDRA after logging in. 
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.a3d34f
title: FAIRsharing record for: Consortium of European Taxonomic Facilities Stable Identifier
title: CETAF Stable Identifier

description: This FAIRsharing record describes:  The Stable Identifiers of the Consortium of European Taxonomic Facilities (CETAF) are globally unique, consistent and reliable identifiers for specimens in natural and botanical collections. These identifiers are used in the world wide web to redirect users and systems to images, websites and metadata of the physical objects and to integrate them with the semantic web. The CETAF identifier system is based on HTTP-URIs and Linked Data principles. It is simple and future-proof. Each collection object as well as its associated information resources (e.g. multimedia, RDF, webpages) are identified by stable HTTP-URIs that will never change. The URI Syntax for the objects is chosen and maintained by the institution owning them. This flexibility is one of the main advantages of the CETAF Stable Identifier system as it allows e.g. to include branding and local scope identifiers into the CETAF Stable Identifier URI.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.424cb8
title: FAIRsharing record for: Better Outcomes Registry & Network
title: BORN Ontario

description: This FAIRsharing record describes:  Funded by the Government of Ontario, the Better Outcomes Registry & Network (BORN) is Ontario's prescribed perinatal, newborn and child registry with the role of facilitating quality care for families across the province. BORN collects, interprets, shares and rigorously protects high-quality data.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.802704
title: FAIRsharing record for: Canadian VirusSeq Data Portal
title: CVDP

description: This FAIRsharing record describes:  The goal of the CanCOGeN VirusSeq project is to sequence up to 150,000 viral samples from Canadians testing positive for COVID-19. The VirusSeq Data Portal is an open-source and open-access data portal for all Canadian SARS-CoV-2 sequences and associated non-personal contextual data. It harmonizes, validates and automates submission to international databases.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.0590c7
title: FAIRsharing record for: McMaster Multi-Regional Hospital Coronavirus Registry
title: COREG

description: This FAIRsharing record describes:  The Coronavirus (COVID-19) Registry (COREG) is a comprehensive registry platform that facilitates uniform data collection of patients both tested for COVID-19 and those admitted with suspected or confirmed COVID-19.  It is an extension of the ISARIC-WHO case report form (CRF) to capture information of local importance to understand spread, disease course, and comparative outcomes.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.55e735
title: FAIRsharing record for: Center for International Blood and Marrow Transplant Research 
title: CIBMTR

description: This FAIRsharing record describes:  The CIBMTR is dedicated to improving survival, treatment, and quality of life for transplant patients. With more than 1,650 publications, the CIBMTR conducts practice-changing research that helps patients and physicians.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.37dd5b
title: FAIRsharing record for: COVID-19 Registry
title: null

description: This FAIRsharing record describes:  The COVID-19 Registry is a research project that aims to provide real-time information on the spread of COVID-19, who is being affected, and how. 

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.d7a442
title: FAIRsharing record for: COVID-19 Data Portal Spain
title: null

description: This FAIRsharing record describes:  The Spanish COVID-19 Data Portal provides information, guidelines, tools and services to support researchers in utilising Spanish and European infrastructures for data sharing, in particular the European COVID-19 Data Portal. For those interested in ongoing, large research projects in Spain there is a list of projects funded by major funding agencies. It is updated at intervals with new services, tools and data.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.59dad8
title: FAIRsharing record for: COVID-19 Host Genetics Initiative
title: COVID-19 hg

description: This FAIRsharing record describes:  The COVID-19 host genetics initiative brings together the human genetics community to generate, share, and analyze data to learn the genetic determinants of COVID-19 susceptibility, severity, and outcomes. Such discoveries could help to generate hypotheses for drug repurposing, identify individuals at unusually high or low risk, and contribute to global knowledge of the biology of SARS-CoV-2 infection and disease.



description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.9c72d7
title: FAIRsharing record for: Global Registry of COVID-19 in Pediatric Cancer
title: null

description: This FAIRsharing record describes:  The Global COVID-19 Observatory and Resource Center for Childhood Cancer is for health care professionals focused on pediatric cancer. The resource provides a way for providers to collaborate, connect and find the latest information on COVID-19 as it relates to childhood cancer.  

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.24ddb8
title: FAIRsharing record for: International COVID-19 Data Alliance
title: ICODA

description: This FAIRsharing record describes:  Convened by Health Data Research UK, the national institute for health data in the UK, ICODA was an open and inclusive global collaboration of leading life science, philanthropic and research organisations that came together to harness the power of health data to respond to the COVID-19 pandemic. Building on the ICODA programme, HDR UK has now convened the HDR Global programme which seeks to assist with data science skills and enable trustworthy data access, re-use and analysis in regions, communities and disease areas, where evidence to tackle threats to public health is lacking

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.eb03f0
title: FAIRsharing record for: Pediatric COVID-19 Case Registry
title: null

description: This FAIRsharing record describes:  The COVID-19 clinical presentation is poorly defined in pediatric populations, as most of the reported known cases are adults. We aim to describe the epidemiology, clinical presentation, management, and outcomes associated with COVID-19 ​among pediatric patients across the United States of America. ​​ 

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.09e6e9
title: FAIRsharing record for: Psoriasis Patient Registry for Outcomes, Therapy and Epidemiology of COVID-19 Infection
title: PsoProtect

description: This FAIRsharing record describes:  PsoProtect is an international registry for health care providers to report outcomes of COVID-19 in individuals with psoriasis. It provides regular, open access summaries of all reported cases, for the benefit of the international psoriasis community.


description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.bbbffe
title: FAIRsharing record for: National Institute of Health - National COVID Cohort Collaborative
title: N3C

description: This FAIRsharing record describes:  The National COVID Cohort Collaborative (N3C) is a collaboration among the NCATS-supported Clinical and Translational Science Awards (CTSA) Program hubs, the National Center for Data to Health (CD2H), distributed clinical data networks (PCORnet, OHDSI, ACT, TriNetX), and other partner organizations, with overall stewardship by NIH’s National Center for Advancing Translational Sciences (NCATS). The N3C aims to improve the efficiency and accessibility of analyses with COVID-19 clinical data, expand our ability to analyze and understand COVID, and demonstrate a novel approach for collaborative pandemic data sharing.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.00f4c6
title: FAIRsharing record for: The COVID-19 and Cancer Consortium
title: CCC19

description: This FAIRsharing record describes:  CCC19 is a consortium of over 120 cancer centers and other organizations who have come together to collect data about patients with cancer who have been diagnosed with COVID-19.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.444bfa
title: FAIRsharing record for: The WHO Global Clinical Platform for COVID-19
title: null

description: This FAIRsharing record describes:  The WHO has created a global clinical platform of patient-level anonymized clinical data. The Platform is a secure, limited-access, password-protected platform hosted on REDCap.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.eda566
title: FAIRsharing record for:  COVID-19 Data Repository
title: null

description: This FAIRsharing record describes:  The COVID-19 Data Repository is a repository for data examining the social, behavioral, public health, and economic impact of the novel coronavirus global pandemic. This is a free self-publishing option for any researcher who wants to share data related to COVID-19. Deposits should include all data, annotated program code, command files, and documentation necessary to understand the data collection and/or replicate research findings.

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.10fef0
title: FAIRsharing record for: Consortium for Clinical Characterization of COVID-19 by EHR
title: 4CE

description: This FAIRsharing record describes:  4CE is an international consortium for electronic health record (EHR) data-driven studies of the COVID-19 pandemic. The goal of this effort—led by the i2b2 international academics users group—is to inform doctors, epidemiologists and the public about COVID-19 patients with data acquired through the health care process.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.