cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.28184605.v1
title: The effectiveness of psychologically-informed physiotherapy for people with neck pain and the mediating role of illness perceptions: a replicated single-case experimental design study

description: (1) To evaluate the effectiveness of personalised psychologically-informed physiotherapy in people with neck pain; (2) To explore the mediating role of changes in illness perceptions. In this replicated single-case study, 14 patients with non-specific neck pain at risk for chronicity received a personalised intervention addressing unhelpful illness perceptions and dysfunctional movement behaviour, according to principles of cognitive functional therapy. Outcomes included the mediating role of illness perceptions on overall effect, function, pain intensity and self-efficacy. Linear mixed models were used to analyse the data. Repeated measurements (14-20 per patient), including a 3-months follow-up, showed a gradual improvement during and/or after psychologically-informed physiotherapy for overall effect, function, pain and to a lesser extent self-efficacy. Changes in each of the illness perception dimensions showed a mediation effect on overall effect, function and pain. When combining the dimensions “consequences,” “personal control,” “identity,” “concern” and “emotional response,” changes in illness perceptions explained approximately 35% of the improvement in overall effect. Addressing unhelpful illness perceptions appears valuable in the management of patients with chronic or recurrent non-specific neck pain. Intervention effects extended beyond the treatment period, indicating that patients’ improved understanding of their health condition continued to have a positive impact. Personalised interventions addressing unhelpful illness perceptions and dysfunctional movement behaviour are a promising approach to improving care for people with chronic or recurrent non-specific neck painOffering helpful illness perceptions is an important part of physiotherapeutic care for people with neck painIllness perception dimensions relating to personal control, identity, concern, consequences and emotional response are particularly amenable to change Personalised interventions addressing unhelpful illness perceptions and dysfunctional movement behaviour are a promising approach to improving care for people with chronic or recurrent non-specific neck pain Offering helpful illness perceptions is an important part of physiotherapeutic care for people with neck pain Illness perception dimensions relating to personal control, identity, concern, consequences and emotional response are particularly amenable to change
DOI: 10.6084/m9.figshare.27109884
title: Parent-young person lived experience of sensory dysregulation in children with tic disorders: a qualitative study

description: To understand the breadth of sensory dysregulation on participation in daily tasks for young people with tic disorders, as research identified that sensory dysregulation experiences are broader than the symptoms being assessed. Eighteen semi-structured interviews were conducted with 16 families with children (5–16 years) with tic disorders. Interviews ranged from 45 to 120 min and were transcribed verbatim. Data collected from parents and young people were analysed and coded together. Thematic analysis using inductive and open coding methods was implemented using NVivo. The impact of sensory dysregulation on daily life may be understood through the higher-order theme: ‘‘sensory, emotions and tics; it’s a ticking time bomb’’, and three subthemes: (1) we sacrifice and adapt to get daily activities done in the home, (2) my child’s experience of the community environment hinders participation, and (3) sensory preferences impact our entire family. Sensory dysregulation experiences impact the entire family’s quality of life, yet patient-reported sensory measures do not adequately capture the impact on the family unit and breath of symptoms. A sensory-based measure for children with tics is needed to comprehensively assess sensory dysregulation sensitivities for this population, ensuring patients’ needs and effectiveness of therapy can be measured. This qualitative study provides health professionals with a greater understanding of the sensory dysregulation experiences of children and young people with tic disorders.This study highlights that the sensory dysregulation experiences of children and young people are broader than the symptoms assessed through standardised questionnaires.To comprehensively assess and treat sensory dysregulation in clients with tics, the impact on the family unit needs to be evaluated and understood.When comprehensively assessing sensory dysregulation, understanding the interplay of tics, sensory and emotional dysregulation aids in treatment planning. This qualitative study provides health professionals with a greater understanding of the sensory dysregulation experiences of children and young people with tic disorders. This study highlights that the sensory dysregulation experiences of children and young people are broader than the symptoms assessed through standardised questionnaires. To comprehensively assess and treat sensory dysregulation in clients with tics, the impact on the family unit needs to be evaluated and understood. When comprehensively assessing sensory dysregulation, understanding the interplay of tics, sensory and emotional dysregulation aids in treatment planning.
DOI: 10.6084/m9.figshare.27109884.v1
title: Parent-young person lived experience of sensory dysregulation in children with tic disorders: a qualitative study

description: To understand the breadth of sensory dysregulation on participation in daily tasks for young people with tic disorders, as research identified that sensory dysregulation experiences are broader than the symptoms being assessed. Eighteen semi-structured interviews were conducted with 16 families with children (5–16 years) with tic disorders. Interviews ranged from 45 to 120 min and were transcribed verbatim. Data collected from parents and young people were analysed and coded together. Thematic analysis using inductive and open coding methods was implemented using NVivo. The impact of sensory dysregulation on daily life may be understood through the higher-order theme: ‘‘sensory, emotions and tics; it’s a ticking time bomb’’, and three subthemes: (1) we sacrifice and adapt to get daily activities done in the home, (2) my child’s experience of the community environment hinders participation, and (3) sensory preferences impact our entire family. Sensory dysregulation experiences impact the entire family’s quality of life, yet patient-reported sensory measures do not adequately capture the impact on the family unit and breath of symptoms. A sensory-based measure for children with tics is needed to comprehensively assess sensory dysregulation sensitivities for this population, ensuring patients’ needs and effectiveness of therapy can be measured. This qualitative study provides health professionals with a greater understanding of the sensory dysregulation experiences of children and young people with tic disorders.This study highlights that the sensory dysregulation experiences of children and young people are broader than the symptoms assessed through standardised questionnaires.To comprehensively assess and treat sensory dysregulation in clients with tics, the impact on the family unit needs to be evaluated and understood.When comprehensively assessing sensory dysregulation, understanding the interplay of tics, sensory and emotional dysregulation aids in treatment planning. This qualitative study provides health professionals with a greater understanding of the sensory dysregulation experiences of children and young people with tic disorders. This study highlights that the sensory dysregulation experiences of children and young people are broader than the symptoms assessed through standardised questionnaires. To comprehensively assess and treat sensory dysregulation in clients with tics, the impact on the family unit needs to be evaluated and understood. When comprehensively assessing sensory dysregulation, understanding the interplay of tics, sensory and emotional dysregulation aids in treatment planning.
DOI: 10.6084/m9.figshare.27179455
title: A scoping review of observation-based tools for assessing use of the upper limb in activities

description: To summarise information about tools available to rate observed performance in activities, tested with populations with upper limb impairment. A scoping review was conducted. Articles were included if they reported psychometric properties of tools that could be used with populations with upper limb impairment, had at least one activity item, and item/s involved use of the upper limbs. Information about the tools was extracted, summarised and key findings are presented. Twenty-seven tools met the inclusion criteria. The results indicated that few tools used client-selected (19%) items or clinician-selected (11%) items. Most tools (70%) used pre-defined items. Fourteen tools (52%) included activity-only items. Eleven tools (41%) had less than half activity items. An in-depth summary of the tools with activity-only items is reported. Many tools exist for assessing observed performance in activities to examine use of the upper limb. However, there were few tools (N = 6) available that assess observed performance in client-selected activities. This review can be used as a comprehensive summary of tools that currently exist to assess observed upper limb use or performance in activities for people with upper limb impairment (n = 27).A small number (n = 6) of assessments of observed performance in client-selected activities were identified that may be accessed by rehabilitation clinicians.Given the importance of client-centred practice, it is recommended that clinicians and researchers should select, modify and test available assessments that utilise client-selected occupations. This review can be used as a comprehensive summary of tools that currently exist to assess observed upper limb use or performance in activities for people with upper limb impairment (n = 27). A small number (n = 6) of assessments of observed performance in client-selected activities were identified that may be accessed by rehabilitation clinicians. Given the importance of client-centred practice, it is recommended that clinicians and researchers should select, modify and test available assessments that utilise client-selected occupations.
DOI: 10.6084/m9.figshare.27179455.v1
title: A scoping review of observation-based tools for assessing use of the upper limb in activities

description: To summarise information about tools available to rate observed performance in activities, tested with populations with upper limb impairment. A scoping review was conducted. Articles were included if they reported psychometric properties of tools that could be used with populations with upper limb impairment, had at least one activity item, and item/s involved use of the upper limbs. Information about the tools was extracted, summarised and key findings are presented. Twenty-seven tools met the inclusion criteria. The results indicated that few tools used client-selected (19%) items or clinician-selected (11%) items. Most tools (70%) used pre-defined items. Fourteen tools (52%) included activity-only items. Eleven tools (41%) had less than half activity items. An in-depth summary of the tools with activity-only items is reported. Many tools exist for assessing observed performance in activities to examine use of the upper limb. However, there were few tools (N = 6) available that assess observed performance in client-selected activities. This review can be used as a comprehensive summary of tools that currently exist to assess observed upper limb use or performance in activities for people with upper limb impairment (n = 27).A small number (n = 6) of assessments of observed performance in client-selected activities were identified that may be accessed by rehabilitation clinicians.Given the importance of client-centred practice, it is recommended that clinicians and researchers should select, modify and test available assessments that utilise client-selected occupations. This review can be used as a comprehensive summary of tools that currently exist to assess observed upper limb use or performance in activities for people with upper limb impairment (n = 27). A small number (n = 6) of assessments of observed performance in client-selected activities were identified that may be accessed by rehabilitation clinicians. Given the importance of client-centred practice, it is recommended that clinicians and researchers should select, modify and test available assessments that utilise client-selected occupations.
DOI: 10.6084/m9.figshare.27620281
title: Effectiveness of physiotherapist-led tele-rehabilitation for older adults with chronic conditions: a systematic review and meta-analysis

description: Older adults live with chronic conditions worldwide. The aim of this systematic review was to determine the effectiveness of physiotherapist-led (PT-led) tele-rehabilitation on various health outcomes. Six databases were searched. Eligible studies were randomized controlled trials that included older adults (≥65 years) who had ≥1 chronic condition, and evaluated tele-rehabilitation (e.g., video, telephone) that was PT-led or overseen. Screening and data extraction were performed in duplicate. Meta-analyses were performed where appropriate. Cochrane’s Risk of Bias 2.0 tool was used. Fifteen studies were included. A meta-analysis of studies of knee osteoarthritis demonstrated that tele-rehabilitation is more effective than usual care for functional mobility (MD= −2.72, 95% CI= −3.56, −1.88, <i>p</i> &lt; 0.001), quadriceps strength (MD= 15.54, 95% CI= 10.14, 20.95, <i>p</i> &lt; 0.001), pain (MD= −1.2, 95% CI= −2.09, −0.39, <i>p</i> = 0.004) and physical function (MD= −5.95, 95% CI= −8.32, −3.58, <i>p</i> &lt; 0.001). No clear differences were found between tele-rehabilitation and usual care or comparator interventions for outcomes related to physical activity level, gait speed, mental health, and quality of life. PT-led tele-rehabilitation appears to be comparable to traditional methods at improving outcomes in older adults with various chronic conditions. However, high-quality trials are needed so future conclusions on the effectiveness of tele-rehabilitation can be made. CRD42023428048 Physiotherapist-led tele-rehabilitation appears to be more effective than usual care related to functional mobility, quadriceps strength, self-reported pain and physical function for older adults living with knee osteoarthritis.No other significant differences were found indicating that either tele-rehabilitation or traditional methods of rehabilitation can be used by clinicians to improve health outcomes for older adults living with various chronic conditions.Clinicians should familiarize themselves with the available modes, user operations, and advantages of tele-rehabilitation so that tele-rehabilitation can be better incorporated into clinical practice. Physiotherapist-led tele-rehabilitation appears to be more effective than usual care related to functional mobility, quadriceps strength, self-reported pain and physical function for older adults living with knee osteoarthritis. No other significant differences were found indicating that either tele-rehabilitation or traditional methods of rehabilitation can be used by clinicians to improve health outcomes for older adults living with various chronic conditions. Clinicians should familiarize themselves with the available modes, user operations, and advantages of tele-rehabilitation so that tele-rehabilitation can be better incorporated into clinical practice.
DOI: 10.6084/m9.figshare.27620281.v1
title: Effectiveness of physiotherapist-led tele-rehabilitation for older adults with chronic conditions: a systematic review and meta-analysis

description: Older adults live with chronic conditions worldwide. The aim of this systematic review was to determine the effectiveness of physiotherapist-led (PT-led) tele-rehabilitation on various health outcomes. Six databases were searched. Eligible studies were randomized controlled trials that included older adults (≥65 years) who had ≥1 chronic condition, and evaluated tele-rehabilitation (e.g., video, telephone) that was PT-led or overseen. Screening and data extraction were performed in duplicate. Meta-analyses were performed where appropriate. Cochrane’s Risk of Bias 2.0 tool was used. Fifteen studies were included. A meta-analysis of studies of knee osteoarthritis demonstrated that tele-rehabilitation is more effective than usual care for functional mobility (MD= −2.72, 95% CI= −3.56, −1.88, <i>p</i> &lt; 0.001), quadriceps strength (MD= 15.54, 95% CI= 10.14, 20.95, <i>p</i> &lt; 0.001), pain (MD= −1.2, 95% CI= −2.09, −0.39, <i>p</i> = 0.004) and physical function (MD= −5.95, 95% CI= −8.32, −3.58, <i>p</i> &lt; 0.001). No clear differences were found between tele-rehabilitation and usual care or comparator interventions for outcomes related to physical activity level, gait speed, mental health, and quality of life. PT-led tele-rehabilitation appears to be comparable to traditional methods at improving outcomes in older adults with various chronic conditions. However, high-quality trials are needed so future conclusions on the effectiveness of tele-rehabilitation can be made. CRD42023428048 Physiotherapist-led tele-rehabilitation appears to be more effective than usual care related to functional mobility, quadriceps strength, self-reported pain and physical function for older adults living with knee osteoarthritis.No other significant differences were found indicating that either tele-rehabilitation or traditional methods of rehabilitation can be used by clinicians to improve health outcomes for older adults living with various chronic conditions.Clinicians should familiarize themselves with the available modes, user operations, and advantages of tele-rehabilitation so that tele-rehabilitation can be better incorporated into clinical practice. Physiotherapist-led tele-rehabilitation appears to be more effective than usual care related to functional mobility, quadriceps strength, self-reported pain and physical function for older adults living with knee osteoarthritis. No other significant differences were found indicating that either tele-rehabilitation or traditional methods of rehabilitation can be used by clinicians to improve health outcomes for older adults living with various chronic conditions. Clinicians should familiarize themselves with the available modes, user operations, and advantages of tele-rehabilitation so that tele-rehabilitation can be better incorporated into clinical practice.
DOI: 10.6084/m9.figshare.28938211
title: Older adults’ experiences of team-based home rehabilitation – a qualitative scoping review

description: To map and summarise the available knowledge regarding older adults’ experiences of team-based home rehabilitation. The Johanna Briggs Institute (JBI) guidelines for scoping reviews guided the process. Eight databases, eight organisational websites, one registry and Google Scholar were searched. Searches were limited to publications published from 2006 to 2023 in English and Scandinavian languages. Data were extracted from the eligible publications using a data extracting tool developed for this study. Extracted data were condensed and coded into categories. Seventeen publications, conducted mainly in Scandinavian countries, were included. Older adults’ experiences of team-based home rehabilitation were identified and categorised as: home as a rehabilitation context; staff′s attitudes, approach and collaboration; the intervention process, content and outcome; and impact of the older adults’ own personal conditions. This scoping review provides insight into older adults’ experiences of team-based home rehabilitation. Although the majority were positive towards receiving rehabilitation in their homes there were also negative experiences that need to be further explored. An identified knowledge gap in team-based home rehabilitation research is the lack of cultural aspects. Moreover, there is a need of consensus among researchers on how to report on population, context and content in team-based home rehabilitation. The home as a context for rehabilitation is experienced as meaningful and valued by older adultsWhen the home becomes a workplace, older adults’ sense of at-homeness may decreaseIf rehabilitation staff use the home as an arena for partnership, with respect for personal integrity, a person-centred process can emergeThe outdoor environment is important to consider in home rehabilitation interventions The home as a context for rehabilitation is experienced as meaningful and valued by older adults When the home becomes a workplace, older adults’ sense of at-homeness may decrease If rehabilitation staff use the home as an arena for partnership, with respect for personal integrity, a person-centred process can emerge The outdoor environment is important to consider in home rehabilitation interventions
DOI: 10.6084/m9.figshare.28938211.v1
title: Older adults’ experiences of team-based home rehabilitation – a qualitative scoping review

description: To map and summarise the available knowledge regarding older adults’ experiences of team-based home rehabilitation. The Johanna Briggs Institute (JBI) guidelines for scoping reviews guided the process. Eight databases, eight organisational websites, one registry and Google Scholar were searched. Searches were limited to publications published from 2006 to 2023 in English and Scandinavian languages. Data were extracted from the eligible publications using a data extracting tool developed for this study. Extracted data were condensed and coded into categories. Seventeen publications, conducted mainly in Scandinavian countries, were included. Older adults’ experiences of team-based home rehabilitation were identified and categorised as: home as a rehabilitation context; staff′s attitudes, approach and collaboration; the intervention process, content and outcome; and impact of the older adults’ own personal conditions. This scoping review provides insight into older adults’ experiences of team-based home rehabilitation. Although the majority were positive towards receiving rehabilitation in their homes there were also negative experiences that need to be further explored. An identified knowledge gap in team-based home rehabilitation research is the lack of cultural aspects. Moreover, there is a need of consensus among researchers on how to report on population, context and content in team-based home rehabilitation. The home as a context for rehabilitation is experienced as meaningful and valued by older adultsWhen the home becomes a workplace, older adults’ sense of at-homeness may decreaseIf rehabilitation staff use the home as an arena for partnership, with respect for personal integrity, a person-centred process can emergeThe outdoor environment is important to consider in home rehabilitation interventions The home as a context for rehabilitation is experienced as meaningful and valued by older adults When the home becomes a workplace, older adults’ sense of at-homeness may decrease If rehabilitation staff use the home as an arena for partnership, with respect for personal integrity, a person-centred process can emerge The outdoor environment is important to consider in home rehabilitation interventions