cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.24373/pdsp-313
title: Citrate, Drug Exposure

description: This medication concept set includes the ingredients trisodium citrate, sodium citrate, and potassium citrate, and all of their descendants. Combinations are included. It was developed by taking the RxNorm descendants of 19065826 (trisodium citrate), 977968 (sodium citrate), and 976545 (potassium citrate) and excluding the search terms "cream", "ointment", "buccal", "topical", "duralock", "ophthalmic", "glucose", "dextromethorphan", "injectable". This concept set was intended to investigate medication usage of patients with primary hyperoxaluria (PH) before and after diagnosis of PH, specifically for management of kidney stones. It was intended to contain non-topical and non-IV formulations of trisodium citrate, sodium citrate, and potassium citrate. This concept set contains only RxNorm and RxNorm Extension codes.
description: Concept set intended to identify patients with an exposure to a citric acid compound.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-192
title: Major Depressive Disorder

description: Individual csv sets were prepared from this broad source file. The file exists on a different branch named "table_one_2019"
description: This concept set is inteded to identify patients with a diagnosis of major depressive disorder.
description: PEDSnet Infrastructure
DOI: 10.24373/pdsp-240
title: Depression, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for depression. These include the Patient Health Questionnaire (PHQ) 2, 8, and 9. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for depression.
DOI: 10.15468/dl.nvq6ce
title: Occurrence Download

description: A dataset containing 419180 species occurrences available in GBIF matching the query:
{
 "and" : [
 "PublishingOrg is 927f1e70-cf74-11d8-bf68-b8a03c50a862",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 419180 records from 12 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009944-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-116
title: Multisystem Inflammatory Syndrome

description: This concept set is inteded to identify patients with a diagnosis of multisystem inflammatory syndrome.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-177
title: Loss of Taste and Smell

description: This concept set is inteded to identify patients with a diagnosis for the loss of taste and smell.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-201.2
title: Anaphylaxis

description: References to anaphylaxis, anaphylactic reaction, and anaphylactic shock are included in this concept set. The original concept set was developed by string searching "anaphyla" in the concept_name and identifying which concept_ids were present in the condition_occurrence table used for the Y1, Q4 query (originally the dcc_covid_wk129 database). In this updated codeset, references to 'history of' and being 'at risk of' anaphylaxis were removed. ICD-10-CM and SNOMED codes were also explicitly searched (and descendants included) based on codes identified via ICD-10 code lookup and the SNOMED-CT browser, in addition to string searching the concept_name.
description: Concept set intended to identify patients with a diagnosis of anaphylaxis.
description: Originally developed for a specific use-case in a Y1, Q4 query examining myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and dysautonomia in the context of existing conditions for The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study. Anaphylaxis was one of the identified pre-existing conditions examined in this study.
DOI: 10.24373/pdsp-14
title: Mechanical Ventilator

description: This concept set is intended to identify patients with device exposure codes for ventilatory support (NIV/IV).
description: - Original concept set was developed as part of the "Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study."
description: - Concept set reused without modification for "Natural History of Enteroviral Sepsis Using Real World Data."
DOI: 10.24373/pdsp-244
title: Serum Albumin, Lab Results

description: A concept set indicating that a patient received a laboratory measurement for serum albumin.
description: Developed as part of the Pediatric KIDney Stone (PKIDS) Care Improvement Network project.
DOI: 10.24373/pdsp-130
title: Nasal Congestion

description: This concept set is inteded to identify patients with a diagnosis of nasal congestion.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-198
title: Myocarditis

description: This diagnosis concept set contains diagnoses for myocarditis. This codeset was developed by finding the concept_ids for a subset of the AHRQ CCSR clusters (https://hcup-us.ahrq.gov/toolssoftware/ccsr/dxccsr.jsp#overview) for myocarditis. This concept set alone was not reviewed by a clinician, but it was a component of a larger codeset that was reviewed by Chris Forrest. It was developed as part of systemic cardiovascular conditions for a RECOVER study manuscript exploring features of PASC in children. This concept set only contains ICD10 and ICD10CM codes, and contains additional columns "systemic" and "syndromic" which were used as classification categories for the study to differentiate between conditions (systemic) and symptoms (syndromic) in addition to a "condition_category" which was a further classification mechanism which could be rolled up with other codes. In this concept set, all condition_category are cardiovascular.
description: This concept set is inteded to identify patients with a diagnosis of myocarditis.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-30
title: Dizziness

description: This condition concept set includes dizziness. Limited to ICD9CM, ICD10,and ICD10CM diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set was created to identify patients with a diagnosis of dizziness to identify potential adverse events associated with anti-hypertensive medications.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-332.2
title: Injectable Vasopressor, Drug Exposure

description: This concept differs from its original in that it was adjusted to include SCDG drug levels and descendants and injectables-only.
description: Concept set intended to identify patients with an exposure to a vasopressor medication.
description: Original concept set was developed for a RECOVER query. It was reused for the study "Natural History of Enteroviral Sepsis Using Real World Data" after slight modifications.
DOI: 10.24373/pdsp-246
title: Serum Creatinine, Lab Results

description: The measurement concept set includes all serum/blood/plasma creatinine labs. This code list was generated by searching all mentions of 'creatinine' with 'serum', 'plasma' or 'blood' in the concept_name. Any ratios or creatinine in urine or other fluids were removed. Limited to LOINC codes.
description: A concept set indicating that a patient received a laboratory measurement for serum creatinine.
description: Originally developed for the "Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)" study. It was later reused without modification for the study "Developing a Class of MSMs to Estimate the Effect of Time-Varying Treatments on Different Types of Recurrent Time-to-Event Outcomes."
DOI: 10.24373/pdsp-195
title: Eating Disorder

description: This concept set is inteded to identify patients with a diagnosis of an eating disorder.
description: Clinical Characteristics of Adolescents Hospitalized for Eating Disorders 2010-2020
DOI: 10.24373/pdsp-63
title: Fever with Chills

description: This concept set is inteded to identify patients with a diagnosis of a fever with chills.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-207
title: Multiple Sclerosis

description: This concept set is intended to identify patients with a diagnosis of multiple sclerosis.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-119
title: Chronic Sinusitis

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map chronic sinusitis diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-28
title: Kawasaki's Disease

description: This condition concept set contains diagnoses for and related to mucocutaneous lymph node syndrome (Kawasaki disease). This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC. The code list was generated by searching for all descendants of the SNOMED code 7505300 (Acute febrile mucocutaneous lymph node syndrome) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "kawasaki" or "acute febrile mucocutaneous lymph node" in combination with "disease" or "syndrome" in the condition domain and excluding the term "referral". The concept set was limited to ICD10, ICD10CM, and SNOMED vocabularies.
description: This concept set is inteded to identify patients with a diagnosis of Kawasaki's Disease.
description: The original concept set was developed for the initial RECOVER work exploring clinical features of PASC in children. This codeset was a part of the autoimmune conditions subset of features.
DOI: 10.24373/pdsp-193
title: Urinary Tract Infection

description: This broad condition concept set includes all urinary tract infections (UTI related conditions. Limited to ICD9CM, ICD10, ICD10CM and SNOMED diagnosis codes. This code list was generated by taking all descendants of the SNOMED code 68566005 for UTIs, related ICD9/10/10CM codes and searching all mentions of 'urinary tract infect' in the concept_name. Then, filtered out concept codes including the term 'history of'. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is intended to identify patients with a diagnosis of a urinary tract infection.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for diagnoses of urinary tract infections (UTI).
DOI: 10.24373/pdsp-291
title: Tacrolimus and Cyclosporine, Drug Exposure

description: Concept set to identify patients with an exposure to the calcineurin inhibitors tacrolimus or cyclosporine.
description: Membranoproliferative Glomerulonephritis (MPGN) in PEDSnet
DOI: 10.24373/pdsp-186
title: Dyslipidemia

description: This concept set is inteded to identify patients with a diagnosis of dyslipidemia.
description: Healthy Weight Network Clinic Survey
DOI: 10.24373/pdsp-173
title: Renal Failure

description: This concept set was part of an intermediate step in forming "condition clusters" for a RECOVER paper. It is not as comprehensive or of general use as the renal-related codesets.
description: This concept set is inteded to identify patients with a diagnosis of renal failure.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-89
title: Cardiac Disorders

description: This concept set is inteded to identify patients with a diagnosis of a cardiac disorder.
description: This concept set was created for the "Detection of and Characteristics of Disease Progression in Children with CKD" study.
DOI: 10.24373/pdsp-110
title: Global Health, PROMIS Measure

description: Two concept sets which inform one another to identify patients-reported global health status. The first concept set, `promis_global.csv`, was developed to identify the questions that make up the Global Patient Reported Outcome Measurement Information System (PROMIS) measure. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. Self reported and parent proxy questions are identified in the concept set to aid in categorizing responses, especially in pediatric cohorts. Only this file in necessary to define a cohort of patients with a global PROMIS measure. The second concept set, `promis_global_values.csv`, was developed to identify the ANSWERS (i.e. `value_as_concept_id`) to the questions that make up the Global Patient Reported Outcome Measurement Information System (PROMIS) measure. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the `concept_relationship` table and extracting `concept_id_2` where `relationship_id` = ‘Has Answer’.
description: Concept sets intended to identify the presence and responses to the global PROMIS measure.
description: This concept set was developed in support of quarterly network data quality analysis of the PEDSnet database.
DOI: 10.24373/pdsp-216
title: Area Deprivation Index

description: Concept set compiled based on 2020 Census Data.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-348.2
title: Systolic Blood Pressure, Measurement

description: The PEDSnet CDM represents systolic blood pressure measurements using LOINC codes. The codes which should be used are specified in the PEDSnet ETL guidelines. Because the concept set is small, the codes are often provided directly in the code rather than using a CSV. A PCORnet equivalent representation of systolic blood pressure measurement can be found in Version 1 below.
description: These codes are used to represent systolic blood pressure measurements in the PEDSnet CDM.
description: This concept set was developed to provide a PEDSnet data model equivalent to the PCORnet data model systolic BP specifications as part of the PRESERVE study. It was reused without modification for use in PEDSnet/COSMOS analyses as part of the PEDSnet CRN Phase 4 Infrastructure grant.
DOI: 10.24373/pdsp-330
title: Antineoplastic, Drug Exposure

description: This concept set was developed as part of the PRESERVE Chart Review project. This broad concept set captures any L01 ATC class antineoplastic drug. This concept set includes all RxNorm and NDC descendants of ATC classes for antineoplastics. After identifying all L01 level ATC drugs in the concept table, all NDC and RxNorm/RxNorm Extension descendants of these codes were found using the concept_ancestor table. Codes were limited to NDC and RxNorm/RxNorm extension codes and the "Drug" domain.
description: Concept set intended to identify patients with an exposure to an antineoplastic.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) Chart Review project. The malignancy group was not ultimately sampled for the final chart review cohort, so this concept set had no notable contribution to any resulting literature.
DOI: 10.24373/pdsp-151
title: Henoch-Schonlein Purpura

description: This diagnosis concept set includes diagnoses mentioning Henoch-Schonlein purpura (HSP), also known as Immunoglobulin vasculitis (IgAV) to identify patients with HSP. The code list was generated by searching for all mentions of HSP in the concept_name. This concept set is limited to SNOMED diagnosis codes and only codes that mentioned HSP. None of the SNOMED descendants were included (Acute hemorrhagic edema of childhood, Postinfective immunoglobulin A vasculitis).
description: This concept set is inteded to identify patients with a diagnosis of Henoch-Schonlein Purpura.
description: Treatment of Henoch-Schonlein purpura (HSP) Nephritis
DOI: 10.24373/pdsp-345.2
title: Weight, Measurement

description: This concept set contains codes pertaining to body weight measurements. Weight may be used to derive BMI. Unlike the PCORnet CDM, the PEDSnet CDM represents weight measurements using LOINC codes. The codes which should be used are specified in the PEDSnet ETL guidelines. Note: In the PEDSnet CDM, weight is in pounds. In the PCORnet CDM, weight is in kilograms. It is advisable to review distributions of weight across age to identify measurements which are using the unexpected unit.
description: This concept set is used to identify weight measurements in the PEDSnet CDM.
description: This concept set was developed to provide a PEDSnet data model equivalent to the PCORnet data model weight specifications as part of the PRESERVE study. It was reused without modification for use in PEDSnet/COSMOS analyses as part of the PEDSnet CRN Phase 4 Infrastructure grant.
DOI: 10.24373/pdsp-142
title: Anxiety, SNOMED-Only

description: This concept set include codes related to phobic anxiety disorders, other anxiety disorders, obsessive-compulsive disorder, reaction to severe stress, and adjustment disorders, dissociative and conversion disorders, somatoform disorders, and other nonpsychotic mental disorders. This concept set was developed for a feasibility request. The requestor provided category-level ICD codes (F40-F48). Then, based on the category-level codes, the codeset was prepared to be fairly broad including any type of anxiety diagnosis. The concept_relationship table was used to map the ICD to SNOMED to query our PEDSnet CDM for this request. No limitations were placed while mapping on this codeset. Please note, this codeset should be validated prior to study-related activity.
description: This concept set is inteded to identify patients with a diagnosis of anxiety.
description: This concept set was developed for a feasibility request for a project concerning climate change and its impact on child health.
DOI: 10.24373/pdsp-70
title: Acute Chest Syndrome

description: The concept set was generated by searching for terms acute chest and syndrome in the vocabulary table in addition with looking at ICD 9 and 10 databases as well as SNOMED.org. Face validity was verified with looking at the expected frequency of qualified patients as well as manual chart review on a small subset of patients. Note that the code set consists of both SNOMED and ICDs.
description: Concept set intended to identify patients with a patients with acute chest syndrome.
description: This concept set was used for Impact of the 2014 NHLBI Guidelines on Cerebrovascular Events in Sickle Cell Disease to indentify sickle cell patients with occurrence on acute chest syndome
DOI: 10.24373/pdsp-309
title: Eczema Topical, Drug Exposure

description: This concept set was developed by a data scientist (KH) for a study led by CHOP clinicians Dr. Jonathan Spergel and Dr. Stan Gabryszewski, which investigates dupilumab use and autoimmune diseases in patients with asthma and atopic dermatitis. The codeset was used to identify a cohort of patients with moderate-to-severe atopic disease, including patients who used moderate-to-severe eczema topicals. The codeset is designed for use with the PEDSnet data model and includes a "severity" column indicating the drug severity (mild, moderate or severe) and a "drug" column indicating one of 28 drugs.
description: Concept set intended to identify patients who use topical drugs to treat eczema, for the purpose of defining a study cohort of patients with moderate-to-severe atopic disease.
description: This concept set was developed for the "Effect of Dupilumab on Onset of Type 1 Disease" study (Incidence of Autoimmune Diseases in Children with Atopy Treated with Dupilumab) to define a cohort of patients with moderate-to-severe atopic disease, including patients with use of moderate-to-severe eczema topicals.
DOI: 10.24373/pdsp-229
title: Alcohol Use Disorder, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for alcohol use disorder (AUD). These includes the Alcohol Use Disorder Identification Test - Consumption (AUDIT-C). These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for alcohol use disorder (AUD).
DOI: 10.24373/pdsp-226
title: Hunger Vital Signs, SDOH Measure

description: This concept set contains the PEDSnet-specified SNOMED codes used to identify hunger vital signs survey responses as listed in the PEDSnet Data Model specifications. It has been used in the PEDSnet Network Data Quality program to evaluate the population of HVS responses throughout the network.
description: This concept set is intended to identify Hunger Vital Signs observations.
DOI: 10.24373/pdsp-371
title: Chronic Kidney Dialysis

description: Concept set for End Stage Renal Disease (ESRD) limited to CPT4 procedure codes identified by the PRESERVE Composite Renal Outcomes working group.
description: Concept set intended to identify patients in the end-stage of renal disease through evidence of kidney dialysis procedure(s).
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-243
title: Urine Protein to Creatinine, Lab Results

description: The measurement concept set includes labs with protein to creatinine ratios in urine. This code list was generated by searching all mentions of 'protein/creatinine' and 'creatine/protein' with 'urine' in the concept_name. Limited to LOINC codes.
description: A concept set indicating that a patient received a ratio laboratory measurement for urine protein to creatinine.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for urine protein to creatinine lab values.
DOI: 10.24373/pdsp-213
title: Graves' Disease

description: This concept set contains condition codes for and related to Graves' disease. The code list was generated by searching for all descendants of the SNOMED code 353295004 (Graves' disease) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "graves" in the condition domain and excluding the terms "family history", "forte", "migravess". The concept set was limited to ICD10, ICD10CM, and SNOMED vocabularies.
description: This concept set is inteded to identify patients with a diagnosis of Graves' Disease.
description: This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC.