cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.29353403
title: Supplementary Material for: Burden of Rheumatic Heart Disease in Chinese Children and Adolescents versus Adults: An Analysis from the “Global Burden of Disease” Study

description: Background: Rheumatic heart disease (RHD) is a globally important public health issue. China, as a populous country, has daunting challenges posed by RHD-related morbidity and mortality in the public health system. Evaluating and comparing the differences in the RHD burden of children and adolescents versus adults in China not only helps optimize domestic prevention and control strategies but also provides a reference for regional practices in RHD control. Objective: This study aimed to illuminate the temporal trends in the age and gender burden of RHD in Chinese children and adolescents from 1990 to 2021, and to compare it with the burden of the disease in adults.
Methods: Open data from the 2021 Global Burden of Disease database were utilized to analyze the characteristics of the RHD burden of children, adolescents, and adults in China, including changes in morbidity and mortality. Joinpoint was utilized to calculate the average annual percentage change (AAPC). A comprehensive comparative analysis was undertaken on the differences in RHD burden in Chinese children, adolescents, and adults from multiple dimensions such as age, gender, and time.
Results: From 1990 to 2021, the number of deaths of RHD in children and adolescents in China exhibited a declining trend compared to that in adults. In terms of the number of incidences, all age groups showed a declining trend except for those aged 55 and above, which manifested an upward trend. The crude incidence and crude mortality rates both declined during the same period, with their AAPC being -0.53 (95% CI: -0.61, -0.46) and -8.13 (95% CI: -8.65, -7.61) for those aged under 20 years, and -1.92 (95% CI: -2.05, -1.80) and -2.98 (95% CI: -3.18, -2.79) for those aged 20 years and above. The incidence and mortality rates had a bearing on patient age, with higher incidence rates observed in children and adolescents and higher mortality rates observed in adults. According to the analysis of gender differences, the incidence of children and adolescents was higher in men, while women had always higher crude incidence rate (CIR) and mortality rate (CDR) than men (CIR in 2021: 21.31/100000 for women vs. 20.08/100000 for men; CDR: 0.05/100000 for women vs. 0.06/100000 for men). The mortality rate of adult women was particularly prominent. The number of cases in children and adolescents exhibited a “W-shaped” fluctuation, while the adult group showed an “M-shaped” trend.
DOI: 10.6084/m9.figshare.29353403.v1
title: Supplementary Material for: Burden of Rheumatic Heart Disease in Chinese Children and Adolescents versus Adults: An Analysis from the “Global Burden of Disease” Study

description: Background: Rheumatic heart disease (RHD) is a globally important public health issue. China, as a populous country, has daunting challenges posed by RHD-related morbidity and mortality in the public health system. Evaluating and comparing the differences in the RHD burden of children and adolescents versus adults in China not only helps optimize domestic prevention and control strategies but also provides a reference for regional practices in RHD control. Objective: This study aimed to illuminate the temporal trends in the age and gender burden of RHD in Chinese children and adolescents from 1990 to 2021, and to compare it with the burden of the disease in adults.
Methods: Open data from the 2021 Global Burden of Disease database were utilized to analyze the characteristics of the RHD burden of children, adolescents, and adults in China, including changes in morbidity and mortality. Joinpoint was utilized to calculate the average annual percentage change (AAPC). A comprehensive comparative analysis was undertaken on the differences in RHD burden in Chinese children, adolescents, and adults from multiple dimensions such as age, gender, and time.
Results: From 1990 to 2021, the number of deaths of RHD in children and adolescents in China exhibited a declining trend compared to that in adults. In terms of the number of incidences, all age groups showed a declining trend except for those aged 55 and above, which manifested an upward trend. The crude incidence and crude mortality rates both declined during the same period, with their AAPC being -0.53 (95% CI: -0.61, -0.46) and -8.13 (95% CI: -8.65, -7.61) for those aged under 20 years, and -1.92 (95% CI: -2.05, -1.80) and -2.98 (95% CI: -3.18, -2.79) for those aged 20 years and above. The incidence and mortality rates had a bearing on patient age, with higher incidence rates observed in children and adolescents and higher mortality rates observed in adults. According to the analysis of gender differences, the incidence of children and adolescents was higher in men, while women had always higher crude incidence rate (CIR) and mortality rate (CDR) than men (CIR in 2021: 21.31/100000 for women vs. 20.08/100000 for men; CDR: 0.05/100000 for women vs. 0.06/100000 for men). The mortality rate of adult women was particularly prominent. The number of cases in children and adolescents exhibited a “W-shaped” fluctuation, while the adult group showed an “M-shaped” trend.
DOI: 10.6084/m9.figshare.29353406
title: Supplementary Material for: Older adults’ salivary proteomic is reshaped by caries disease severity

description: Introduction: Dental caries is a disease with high prevalence and concern worldwide, especially among the elderly population. Considering the impact of saliva on the disease development process, protein biomarkers may be potentially useful to monitor the clinical course of the disease. Methods: This study recorded clinical data and conducted a proteomic analysis of the saliva of eighty elderly individuals (60-84 years). Participants were classified into a No Active Caries (NC) group and Low Caries Activity (LC) and High Caries Activity (HC) groups. We hypothesized that the protein profile between the groups would be different and could be used to learn about disease progression and identify potential markers for caries severity in the aged population. All participants had their unstimulated total saliva collected for five minutes. Further correlations were tested to find target proteins strongly linked to clinical variables of caries disease, i.e., the visible dental plaque index, root caries experience, salivary flow, buffering capacity and pH, and percentage of sugar intake. To achieve this, groups with different dental caries statuses were compared. Results: In total, 1,299 proteins were identified, of which 665 could be quantified in all samples. Of these, 16 proteins had statistically different abundances between the groups with and without dental caries activity (p &lt; 0.05; fold-change (FC) 1.23). Furthermore, 31 proteins differentially regulated in saliva, including 22 downregulated and 9 upregulated proteins, were found in the HC group compared with the LC group (p &lt; 0.05; fold-change (FC) 1.23). When correlated with caries disease-related clinical parameters, 87 candidates were identified and 19 maintained significances from the primary data analysis (p &lt; 0.05). In the gene ontology analysis, most of the regulated proteins were related to innate immunity processes, calcium ions activity, action against bacteria, and cell adhesion. Conclusion: This study identified potential proteins that may help distinguish different caries activity status on people over 60 years of age. Ultimately, future studies could investigate whether the differential abundance of regulated proteins is a result of the caries process itself or the underlying factors that contribute to its development.
DOI: 10.6084/m9.figshare.29353406.v1
title: Supplementary Material for: Older adults’ salivary proteomic is reshaped by caries disease severity

description: Introduction: Dental caries is a disease with high prevalence and concern worldwide, especially among the elderly population. Considering the impact of saliva on the disease development process, protein biomarkers may be potentially useful to monitor the clinical course of the disease. Methods: This study recorded clinical data and conducted a proteomic analysis of the saliva of eighty elderly individuals (60-84 years). Participants were classified into a No Active Caries (NC) group and Low Caries Activity (LC) and High Caries Activity (HC) groups. We hypothesized that the protein profile between the groups would be different and could be used to learn about disease progression and identify potential markers for caries severity in the aged population. All participants had their unstimulated total saliva collected for five minutes. Further correlations were tested to find target proteins strongly linked to clinical variables of caries disease, i.e., the visible dental plaque index, root caries experience, salivary flow, buffering capacity and pH, and percentage of sugar intake. To achieve this, groups with different dental caries statuses were compared. Results: In total, 1,299 proteins were identified, of which 665 could be quantified in all samples. Of these, 16 proteins had statistically different abundances between the groups with and without dental caries activity (p &lt; 0.05; fold-change (FC) 1.23). Furthermore, 31 proteins differentially regulated in saliva, including 22 downregulated and 9 upregulated proteins, were found in the HC group compared with the LC group (p &lt; 0.05; fold-change (FC) 1.23). When correlated with caries disease-related clinical parameters, 87 candidates were identified and 19 maintained significances from the primary data analysis (p &lt; 0.05). In the gene ontology analysis, most of the regulated proteins were related to innate immunity processes, calcium ions activity, action against bacteria, and cell adhesion. Conclusion: This study identified potential proteins that may help distinguish different caries activity status on people over 60 years of age. Ultimately, future studies could investigate whether the differential abundance of regulated proteins is a result of the caries process itself or the underlying factors that contribute to its development.
DOI: 10.6084/m9.figshare.29353409
title: Supplementary Material for: Potential of Fetal Electrocardiography Monitoring in Evaluating Treatment Indications for Fetal Supraventricular Tachycardia

description: Introduction: Accurate assessment of fetal supraventricular tachycardia (SVT) frequency is critical for deciding treatment strategies. In this study, we evaluated the potential of prolonged non-invasive fetal electrocardiography (fECG) monitoring for assessing SVT and guiding therapy. 
Case Presentation: A 37-year-old woman at 28 weeks of gestation was referred to our hospital for fetal tachycardia. The patient was diagnosed with fetal arrhythmia, including occasional premature atrial contractions and SVT. Fetal heart rate monitoring using Doppler-based cardiotocography (CTG) with external transducers was insufficient for accurate frequency evaluation; moreover, brief fetal echocardiography was inadequate due to marked diurnal variation in SVT frequency. Prolonged fECG monitoring at 29 and 31 weeks of gestation revealed that SVT did not persist for 12 or more hours or for more than 50% of the monitoring period, indicating a low risk for fetal hydrops. The pregnancy proceeded normally, and the infant was born healthy at 38 weeks. 
Conclusion: This report suggests that prolonged fECG monitoring is a more reliable and less invasive method for assessing fetal SVT frequency compared with traditional CTG or fetal echocardiography. Furthermore, it provides a non-invasive and accurate approach for evaluating the need for fetal therapy, especially in arrhythmia cases where frequency assessment is essential.
DOI: 10.6084/m9.figshare.29353409.v1
title: Supplementary Material for: Potential of Fetal Electrocardiography Monitoring in Evaluating Treatment Indications for Fetal Supraventricular Tachycardia

description: Introduction: Accurate assessment of fetal supraventricular tachycardia (SVT) frequency is critical for deciding treatment strategies. In this study, we evaluated the potential of prolonged non-invasive fetal electrocardiography (fECG) monitoring for assessing SVT and guiding therapy. 
Case Presentation: A 37-year-old woman at 28 weeks of gestation was referred to our hospital for fetal tachycardia. The patient was diagnosed with fetal arrhythmia, including occasional premature atrial contractions and SVT. Fetal heart rate monitoring using Doppler-based cardiotocography (CTG) with external transducers was insufficient for accurate frequency evaluation; moreover, brief fetal echocardiography was inadequate due to marked diurnal variation in SVT frequency. Prolonged fECG monitoring at 29 and 31 weeks of gestation revealed that SVT did not persist for 12 or more hours or for more than 50% of the monitoring period, indicating a low risk for fetal hydrops. The pregnancy proceeded normally, and the infant was born healthy at 38 weeks. 
Conclusion: This report suggests that prolonged fECG monitoring is a more reliable and less invasive method for assessing fetal SVT frequency compared with traditional CTG or fetal echocardiography. Furthermore, it provides a non-invasive and accurate approach for evaluating the need for fetal therapy, especially in arrhythmia cases where frequency assessment is essential.
DOI: 10.6084/m9.figshare.29353415
title: Supplementary Material for: Identification of needs of patients with multiple myeloma: a questionnaire-based study in Israeli patients

description: Purpose: Multiple myeloma is an incurable chronic malignant disease. The disease itself and its treatment impair quality-of-life (QoL), yet there is no data regarding the biopsychosocial needs of patients in the era of new treatments. In the current study, we aimed to identify the biopsychosocial needs of patients with multiple myeloma.
Methods: This is a descriptive study on patients with multiple myeloma in Israel in 2024. The information was based on a questionnaire examining physical, psychological and social needs filled out by myeloma patients. We analyzed the main impairments of QoL and what affected them, the main supporter in dealing with the disease, psychosocial needs reported by the patients and the difficulties in dealing with such difficulties.
Results: The main symptom reported by multiple myeloma patients was fatigue. The number of treatment lines worsened QoL (Unstandardized coefficient: 0.987, 95% CI: 0.284; 1.691, p=0.006). The patient’s partner mostly helped in dealing with the disease (72.7%). The most desired type of support was assistance in accessing rights (median 5, IQR 3-5), however one third did not use the support services offered to them. 48% of the patients talked to their doctor about the struggle and the accompanying difficulties.
Conclusion: Myeloma patients report various impairments in the biopsychosocial components of QoL. Although supportive services are offered, adjustments must be made to optimally meet patients’ needs. Further studies should test the effectiveness of different interventions on the biopsychosocial components of the QoL of these patients in the era of new drugs.
DOI: 10.6084/m9.figshare.29353415.v1
title: Supplementary Material for: Identification of needs of patients with multiple myeloma: a questionnaire-based study in Israeli patients

description: Purpose: Multiple myeloma is an incurable chronic malignant disease. The disease itself and its treatment impair quality-of-life (QoL), yet there is no data regarding the biopsychosocial needs of patients in the era of new treatments. In the current study, we aimed to identify the biopsychosocial needs of patients with multiple myeloma.
Methods: This is a descriptive study on patients with multiple myeloma in Israel in 2024. The information was based on a questionnaire examining physical, psychological and social needs filled out by myeloma patients. We analyzed the main impairments of QoL and what affected them, the main supporter in dealing with the disease, psychosocial needs reported by the patients and the difficulties in dealing with such difficulties.
Results: The main symptom reported by multiple myeloma patients was fatigue. The number of treatment lines worsened QoL (Unstandardized coefficient: 0.987, 95% CI: 0.284; 1.691, p=0.006). The patient’s partner mostly helped in dealing with the disease (72.7%). The most desired type of support was assistance in accessing rights (median 5, IQR 3-5), however one third did not use the support services offered to them. 48% of the patients talked to their doctor about the struggle and the accompanying difficulties.
Conclusion: Myeloma patients report various impairments in the biopsychosocial components of QoL. Although supportive services are offered, adjustments must be made to optimally meet patients’ needs. Further studies should test the effectiveness of different interventions on the biopsychosocial components of the QoL of these patients in the era of new drugs.
DOI: 10.5281/zenodo.15689999
title: mr_pipeline data sets
DOI: 10.15468/dl.wzdpq9
title: Occurrence Download

description: A dataset containing 224605188 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Human Observation",
 "Country is United States of America",
 "DatasetKey is EOD – eBird Observation Dataset",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "Year 2021-2022"
 ]
}

 The dataset includes 224605188 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0054149-250525065834625/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.5281/zenodo.5061303
title: HG_OOSTENDE - Herring gulls (Larus argentatus, Laridae) breeding at the southern North Sea coast (Belgium)

description: HG_OOSTENDE - Herring gulls (Larus argentatus, Laridae) breeding at the southern North Sea coast (Belgium) is a bird tracking dataset published by the Research Institute for Nature and Forest (INBO). It contains animal tracking data collected by the LifeWatch GPS tracking network for large birds (http://lifewatch.be/en/gps-tracking-network-large-birds) for the project/study HG_OOSTENDE, using trackers developed by the University of Amsterdam Bird Tracking System (UvA-BiTS, http://www.uva-bits.nl). The study has been operational since 2013. In total 60 individuals of European herring gull (Larus argentatus) have been tagged in or near their breeding area at the southern North Sea coast (Ostend and Zeebrugge in Belgium), mainly to study their habitat use. Data are periodically uploaded from the UvA-BiTS database to Movebank and from there archived on Zenodo (see https://github.com/inbo/bird-tracking).

Files

Data in this package are exported from Movebank study 986040562. Fields in the data follow the Movebank Attribute Dictionary and are described in datapackage.json. Files are structured as a Frictionless Data Package. You can access all data in R via https://zenodo.org/records/5061303/files/datapackage.json using frictionless.



datapackage.json: technical description of the data files.

HG_OOSTENDE-reference-data.csv: reference data about the animals, tags and deployments.

HG_OOSTENDE-gps-yyyy.csv.gz: GPS data recorded by the tags, grouped by year.

HG_OOSTENDE-acceleration-yyyy.csv.gz: acceleration data recorded by the tags, grouped by year.


Acknowledgements

This dataset was collected using infrastructure provided by VLIZ and INBO funded by Research Foundation - Flanders (FWO) as part of the Belgian contribution to LifeWatch.
description: Changelog



Add data from 2019 and 2020.

Add datapackage.json file.
DOI: 10.5281/zenodo.3959038
title: HG_OOSTENDE - Herring gulls (Larus argentatus, Laridae) breeding at the southern North Sea coast (Belgium)

description: HG_OOSTENDE - Herring gulls (Larus argentatus, Laridae) breeding at the southern North Sea coast (Belgium) is a bird tracking dataset published by the Research Institute for Nature and Forest (INBO). It contains animal tracking data collected by the LifeWatch GPS tracking network for large birds (http://lifewatch.be/en/gps-tracking-network-large-birds) for the project/study HG_OOSTENDE, using trackers developed by the University of Amsterdam Bird Tracking System (UvA-BiTS, http://www.uva-bits.nl). The study has been operational since 2013. In total 60 individuals of European herring gull (Larus argentatus) have been tagged in or near their breeding area at the southern North Sea coast (Ostend and Zeebrugge in Belgium), mainly to study their habitat use. Data are periodically uploaded from the UvA-BiTS database to Movebank and from there archived on Zenodo (see https://github.com/inbo/bird-tracking).

Data in this package are exported from Movebank study HG_OOSTENDE - Herring gulls (Larus argentatus, Laridae) breeding at the southern North Sea coast (Belgium) (Movebank Study ID 986040562), which can be viewed at https://www.movebank.org/cms/webapp?gwt_fragment=page=studies,path=study986040562. Attributes in the data files are defined in the README.txt, in the NERC Vocabulary Server at http://vocab.nerc.ac.uk/collection/MVB and in the Movebank Attribute Dictionary at www.movebank.org/node/2381.

Files



README.txt: information regarding the terms of use and data attributes.

HG_OOSTENDE-reference-data.csv: reference data about the animals, tags and deployments.

HG_OOSTENDE-gps-yyyy.csv.zip: GPS data recorded by the tags, grouped by year.

HG_OOSTENDE-acceleration-yyyy.csv.zip: acceleration data recorded by the tags, grouped by year.


Acknowledgements

This dataset was collected using infrastructure provided by VLIZ and INBO funded by Research Foundation - Flanders (FWO) as part of the Belgian contribution to LifeWatch.
DOI: 10.15468/dl.gsvwzs
title: Occurrence Download

description: A dataset containing 16 species occurrences available in GBIF matching the query:
{
 "and" : [
 "GadmGid is USA.12.5_1",
 "TaxonKey is Melamprosops phaeosoma Casey & J.D.Jacobi, 1974"
 ]
}

 The dataset includes 16 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0054154-250525065834625/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.