DOI: 10.3886/e235027
title: Enhancing Community Participation Outcomes among Young Adults with Serious Mental Illnesses through Peer-Delivered Decision Support - Community Participation Decision Making

description: <b>Overview</b><br>
This project contains data from the first of two sequential studies focused on supporting community participation among young adults by addressing their decision-making needs. Study 2, which involves piloting an adapted decision-making intervention based on findings from Study 1, is still in progress, and data from that study will be uploaded separately to ICPSR.<br>
<br><b>Study 1 Summary</b><br>
Study 1 was a qualitative investigation in which we explored how young adults make decisions related to community participation. Using the Temple University Community Participation (TUCP) measure as a starting point, we conducted open-ended interviews with 13 participants to understand the factors that influenced their choices—such as barriers, facilitators, emotional responses, and preferences related to participation in work, education, recreation, and social activities. We also collected limited quantitative data, including TUCP scores and responses to a decisional conflict scale, to supplement the qualitative findings. Insights from this study were used to adapt and develop a decision-making intervention for young people with similar needs.
<br><br><b>Data Included in This Submission</b><br>
As part of this submission, we are including the following data from Study 1:<br>De-identified qualitative interview transcripts from all 13 study participants.Qualitative codebook used for thematic analysis of the interview data. The codebook was developed to systematically categorize and interpret data from interviews focused on community participation and decision-making. It provides a structured set of codes to capture various types of decisions participants described (e.g., decisions about work, school, recreation, transportation), signs of decisional conflict (e.g., feeling unsure, anxious, or physically stressed), barriers to decision-making (e.g., past experiences, lack of information, internal and environmental constraints), and facilitators of decision-making (e.g., social and emotional support, access to information, internal motivation). The codebook also includes categories for participants’ preferences regarding how they engage in decision-making (e.g., independently or collaboratively). It ensures consistent and rigorous analysis across cases and supports cross-participant comparisons.

Quantitative dataset containing responses from the same 13 participants, along with a corresponding data dictionary.
The quantitative data include:


Demographic identifiers (e.g., anonymous participant IDs).


Decisional Conflict Scale responses, capturing participants’ uncertainty, worry, and readiness regarding decision-making.


Temple University Community Participation (TUCP) responses, reflecting the frequency and importance of participation in various life domains.<br>
description: N/A
description: Response Rates: N/A
description: Presence of Common Scales: DemographicsDecisional Conflict Scale responses, capturing participants’ uncertainty, worry, and readiness regarding decision-making.Temple University Community Participation (TUCP) responses, reflecting the frequency, importance and sufficiency of participation in various life domains.Qualitative interviews<br>
description: Convenience sampling
description: Young adults with serious mental illnesses. Smallest Geographic Unit: N/A
description: computer-assisted personal interview (CAPI); other; Both quantitative and qualitative data were collected online through interviewer-administered interviews