cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.29163710.v1
title: Supplementary Material for: Projected Tumor Characteristics and Survival of Patients with Nonviral Hepatocellular Carcinoma in the United States

description: Introduction: Nonviral liver diseases, including alcohol-associated liver disease (ALD) and metabolic dysfunction-associated steatotic liver disease (MASLD), are increasing the burden of nonviral hepatocellular carcinoma (HCC) in the U.S. We aimed to model and project the demographic and tumor characteristics and survival of individuals with nonviral HCC in the U.S. 
Methods: We performed a cohort study using the linked Surveillance, Epidemiology, and End Results Program (SEER) and Medicare enrollment database (2000—2017). Of 78,431 adult Medicare beneficiaries with HCC, we excluded patients with a non-primary liver tumor, HCC diagnosis before Medicare coverage started, and without a primary liver disease etiology of MASLD or ALD. We used linear regression to model changes in demographic and tumor characteristics and survival of patients with nonviral HCC, and applied this model to describe future trends up to 2035.
Results: In our cohort of 23,926 patients with nonviral HCC (18,266 with MASLD and 5,660 with ALD), the mean age at diagnosis between 2000—2017 was 73 years and 68—69% were male. Though we projected increasing trends for survival, both median (1.31 years [95%CI: 1.22—1.41] in 2035) and 5-year survival rates (22.0% [95%CI: 19.9—24.2] in 2027) are expected to remain low. We projected that by 2027, 1/3 of patients will be diagnosed with stages III or IV tumors and by 2030, more than 1/3 of HCC diagnoses will be of multifocal and metastatic tumors. 
Conclusion: Focused efforts are needed to expand the use and effectiveness of HCC screening to improve the early detection and survival outcomes of HCC.
DOI: 10.6084/m9.figshare.29163713.v1
title: Supplementary Material for: A Novel SON Gene Variant Associated with Rare Clinical Features in ZTTK Syndrome: A Case Report and Literature Review

description: Introduction: ZTTK syndrome is a rare multisystemic congenital disorder caused by SON gene variants. This study aimed to present the results of whole exome sequencing, and describe some rare findings observed in the proband. 
Case Presentation: An 11-year-old boy exhibited hypotonia, poor growth, short stature, and microcephaly. The patient displayed various neurological symptoms, such as developmental delay, seizures, hydrocephalus, and brain abnormalities. He presented with strabismus, urinary problems, and facial dysmorphism. A history of stroke, obsession, insomnia, self-injurious behavior, and hearing loss, were also noted. Based on the patient's clinical findings, whole exome sequencing was performed. A novel variant in the SON gene was identified. This variant was confirmed by Sanger sequencing. Notably, the parents tested normal for the variant. 
Conclusion: This study presents a patient who exhibited a wide range of behavioral abnormalities, stroke, and recurrent urolithiasis — features that are rarely reported in ZTTK syndrome — and includes a review of the literature.
DOI: 10.6084/m9.figshare.29163713
title: Supplementary Material for: A Novel SON Gene Variant Associated with Rare Clinical Features in ZTTK Syndrome: A Case Report and Literature Review

description: Introduction: ZTTK syndrome is a rare multisystemic congenital disorder caused by SON gene variants. This study aimed to present the results of whole exome sequencing, and describe some rare findings observed in the proband. 
Case Presentation: An 11-year-old boy exhibited hypotonia, poor growth, short stature, and microcephaly. The patient displayed various neurological symptoms, such as developmental delay, seizures, hydrocephalus, and brain abnormalities. He presented with strabismus, urinary problems, and facial dysmorphism. A history of stroke, obsession, insomnia, self-injurious behavior, and hearing loss, were also noted. Based on the patient's clinical findings, whole exome sequencing was performed. A novel variant in the SON gene was identified. This variant was confirmed by Sanger sequencing. Notably, the parents tested normal for the variant. 
Conclusion: This study presents a patient who exhibited a wide range of behavioral abnormalities, stroke, and recurrent urolithiasis — features that are rarely reported in ZTTK syndrome — and includes a review of the literature.
DOI: 10.6084/m9.figshare.29163716
title: Supplementary Material for: Management of Resistant Herpetic Whitlow: A Case of Recurrent Herpetic Whitlow Resistant to Standard Therapy

description: Introduction: Herpetic whitlow, due to herpes simplex virus (HSV) type 1 or 2, typically presents with vesicles that may coalesce into bullae. Herpetic whitlow often resolves without intervention but can be treated with antiviral medications. Case presentation: Herein is a report of a 68-year-old female patient with a history of well controlled human immunodeficiency virus (HIV) infection and a 4-year history of recurrent HSV-2 herpes genitalis who failed multiple trials of standard antiviral therapy clinically confirming a case of resistant HSV-2 infection, with recurrent tender lesions on her digits. Physical examination showed bullae involving the nail folds of her right thumb and left index finger. Initial PCR was negative for HSV-1 and HSV-2 but repeat PCR was positive for HSV-2. Treatment with foscarnet resulted in clinical improvement of both herpetic whitlow and herpes genitalis. Conclusion: Though herpetic whitlow typically resolves without intervention, a case is described of recurrent lesions in an HIV positive patient unresponsive to multiple first-line antiviral treatment regimens and an interdisciplinary approach to treatment in a challenging case.
DOI: 10.6084/m9.figshare.29163716.v1
title: Supplementary Material for: Management of Resistant Herpetic Whitlow: A Case of Recurrent Herpetic Whitlow Resistant to Standard Therapy

description: Introduction: Herpetic whitlow, due to herpes simplex virus (HSV) type 1 or 2, typically presents with vesicles that may coalesce into bullae. Herpetic whitlow often resolves without intervention but can be treated with antiviral medications. Case presentation: Herein is a report of a 68-year-old female patient with a history of well controlled human immunodeficiency virus (HIV) infection and a 4-year history of recurrent HSV-2 herpes genitalis who failed multiple trials of standard antiviral therapy clinically confirming a case of resistant HSV-2 infection, with recurrent tender lesions on her digits. Physical examination showed bullae involving the nail folds of her right thumb and left index finger. Initial PCR was negative for HSV-1 and HSV-2 but repeat PCR was positive for HSV-2. Treatment with foscarnet resulted in clinical improvement of both herpetic whitlow and herpes genitalis. Conclusion: Though herpetic whitlow typically resolves without intervention, a case is described of recurrent lesions in an HIV positive patient unresponsive to multiple first-line antiviral treatment regimens and an interdisciplinary approach to treatment in a challenging case.
DOI: 10.15468/dl.ewfex7
title: Occurrence Download

description: A dataset containing 339146 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Sambucus nigra L."
 ]
}

 The dataset includes 339146 records from 1018 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0001025-180925134338326/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.d6aupa
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Crassostrea virginica (Gmelin, 1791)",
 "HasCoordinate is true",
 "Country is United States of America",
 "Country is Canada",
 "OccurrenceStatus is Present",
 "HasGeospatialIssue is false",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil)"
 ]
 }
 }
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0113320-230224095556074/datasets/export for details.
DOI: 10.15468/dl.ejns6r
title: Occurrence Download

description: A dataset containing 116624331 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Specimen",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 116624331 records from 5692 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0320024-210914110416597/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.34740/kaggle/dsv/12635535
title: Peer-to-Peer Boliviano (BOB) Exchange Data
DOI: 10.15468/dl.y33hhp
title: Occurrence Download

description: A dataset containing 1031 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is one of (Arachnothera juliae)",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 "License is one of (CC-BY 4.0, CC0 1.0)"
 ]
}

 The dataset includes 1031 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0082113-250717081556266/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.tz8h6k
title: Occurrence Download

description: A dataset containing 76 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Anemone coronaria",
 "Country is Belgium",
 "HasCoordinate is true"
 ]
}

 The dataset includes 76 records from 8 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0082117-250717081556266/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.17632/9kmyg6kd3w
title: Patient Perspectives on the Lived Experience of Acne-associated Dyspigmentation

description: Concept elicitation interviews and saturation table
DOI: 10.17632/9kmyg6kd3w.1
title: Patient Perspectives on the Lived Experience of Acne-associated Dyspigmentation

description: Concept elicitation interviews and saturation table
DOI: 10.15468/dl.2ujmdf
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 "BasisOfRecord is one of (Human Observation, Machine Observation, Occurrence evidence, Observation)",
 "TaxonKey is one of (Pristimantis cruentus)",
 "Country is one of (Bermuda, Canada, Greenland, Saint Pierre and Miquelon, United States of America)"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0081010-250717081556266/datasets/export for details.
DOI: 10.17632/pjdfjhjjpm
title: COSMIN Supplementary Data

description: Supplementary Data used
DOI: 10.17632/pjdfjhjjpm.2
title: COSMIN Supplementary Data

description: Supplementary Data used
DOI: 10.5281/zenodo.15258063
title: PROCEEDINGS OF THE INTERNATIONAL SCIENTIFIC AND THEORETICAL CONFERENCE DEDICATED TO THE 100TH ANNIVERSARY OF ACADEMICIANS ABDUALI QAYDAR, RABIGA SYZDYQ AND SHORA SARYBAYEV

description: PROCEEDINGS OF THE INTERNATIONAL SCIENTIFIC AND THEORETICAL CONFERENCE DEDICATED TO THE 100TH ANNIVERSARY OF ACADEMICIANS ABDUALI QAYDAR, RABIGA SYZDYQ AND SHORA SARYBAYEV
DOI: 10.5281/zenodo.15258064
title: PROCEEDINGS OF THE INTERNATIONAL SCIENTIFIC AND THEORETICAL CONFERENCE DEDICATED TO THE 100TH ANNIVERSARY OF ACADEMICIANS ABDUALI QAYDAR, RABIGA SYZDYQ AND SHORA SARYBAYEV

description: PROCEEDINGS OF THE INTERNATIONAL SCIENTIFIC AND THEORETICAL CONFERENCE DEDICATED TO THE 100TH ANNIVERSARY OF ACADEMICIANS ABDUALI QAYDAR, RABIGA SYZDYQ AND SHORA SARYBAYEV
DOI: 10.5281/zenodo.15257992
title: Enhancing Fairness and Transparency in University Rankings: A Multi-Criteria Decision Making Approach

description: This dataset was analyzed using the Multi-Criteria Decision-Making (MCDM) methods described in the article titled "Enhancing Fairness and Transparency in University Rankings: A Multi-Criteria Decision Making Approach." The results of the analysis were published in the aforementioned study.
DOI: 10.5281/zenodo.15257993
title: Enhancing Fairness and Transparency in University Rankings: A Multi-Criteria Decision Making Approach

description: This dataset was analyzed using the Multi-Criteria Decision-Making (MCDM) methods described in the article titled "Enhancing Fairness and Transparency in University Rankings: A Multi-Criteria Decision Making Approach." The results of the analysis were published in the aforementioned study.
DOI: 10.6084/m9.figshare.28926398
title: Baza danych 2023

description: Baza danych 2023
DOI: 10.15468/dl.kg8vbe
title: Occurrence Download

description: A dataset containing 537 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Denmoza rhodacantha (Salm-Dyck) Britton & Rose"
 ]
}

 The dataset includes 537 records from 34 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013609-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.7910/dvn/ht2ydu
title: EFL Instructors’ Perspectives on Integrating Sustainable Development Goals (SDGs)-Climate Change content in English Language Classrooms in North Macedonia

description: This dataset presents the quantitative results of a structured survey conducted among English as a Foreign Language (EFL) instructors at universities in North Macedonia. The survey focused on the integration of Sustainable Development Goals (SDGs) into English language teaching, examining instructors' awareness, practices, and perceived barriers. The dataset includes responses to 16 Likert-scale questions. The findings offer insights into how sustainability is approached in language education and provide a foundation for curriculum development and further research in sustainable EFL pedagogy.
description: Data collected October–November 2024
Total responses: 14
Data was anonymized for ethical compliance
These results are derived from the current Doctoral Thesis titled “The Integration of Sustainable Development Goals—Climate Change in English as a Foreign Language Classroom and Curricula at the Universities of North Macedonia” 
Author, PhD Candidate: Zylfije Tahiri
DOI: 10.15468/dl.9xbfkv
title: Occurrence Download

description: A dataset containing 2680 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is Bravaisia DC."
 ]
}

 The dataset includes 2680 records from 106 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013611-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.6084/m9.figshare.28926410
title: Baza danych na rok 2023

description: Baza danych na rok 2023
DOI: 10.15468/dl.96fj8m
title: Occurrence Download

description: A dataset containing 7481 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Primula vulgaris Huds.",
 "Geometry POLYGON((-8.00174339329464 54.1998526673513, 0.202120938926891 54.1998526673513, 0.202120938926891 61.2628565887411, -8.00174339329464 61.2628565887411, -8.00174339329464 54.1998526673513))",
 "CoordinateUncertaintyInMeters is 0,101",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 7481 records from 51 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013612-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.n7wyd8
title: Occurrence Download

description: A dataset containing 4406 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is Bredemeyera Willd."
 ]
}

 The dataset includes 4406 records from 195 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013613-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.9danfc
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Country is China",
 "HasCoordinate is true",
 "Year is greater than or equal to 1980",
 "Year is less than or equal to 2025",
 "TaxonKey is Actinopterygii"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013614-250426092105405/datasets/export for details.
DOI: 10.15468/dl.nvxgpx
title: Occurrence Download

description: A dataset containing 591 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Cerastium cerastoides (L.) Britton",
 "Geometry POLYGON((-8.00174339329464 54.1998526673513, 0.202120938926891 54.1998526673513, 0.202120938926891 61.2628565887411, -8.00174339329464 61.2628565887411, -8.00174339329464 54.1998526673513))",
 "CoordinateUncertaintyInMeters is 0,101",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 591 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013615-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.wz9vta
title: Occurrence Download

description: A dataset containing 26640 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Ranunculus glacialis L."
 ]
}

 The dataset includes 26640 records from 300 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013616-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.fncyxa
title: Occurrence Download

description: A dataset containing 73 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is Brenierea Humbert"
 ]
}

 The dataset includes 73 records from 6 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0013617-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.5281/zenodo.11068092
title: Results from national testing programs on the occurrence of chemical contaminants in food and feed - Portugal

description: In the framework of Articles 23 and 33 of Regulation (EC) No 178/2002 EFSA has received from the European Commission a mandate (M-2010-0374) to collect all available data on the occurrence of chemical contaminants in food and feed. These data are used in EFSA’s scientific opinions and reports on contaminants in food and feed.  

The presence of unauthorised substances or chemical contaminants in food may pose a risk factor for public health and can cause a negative impact on the quality of food. 

Commission Recommendations and Regulations on occurrence monitoring are in place for several contaminants of interest, some of which can be found here below:  



Commission Regulation (EU) 625/2017, on the application of food and feed law

Commission Delegated Regulation (EU) 2022/931

Commission Implementing Regulation (EU) 2022/932

Commission Regulation (EU) 2023/915, on maximum levels for certain contaminants in food and repealing Regulation (EC) No 1881/2006


These datasets contain the results of sampling that was designed according to national testing programs for a variety of contaminants in food and feed, as reported under the Chemical Monitoring Data Collection 2023, 2022, 2021, and 2020, split by sampling year (data element ‘sampY’). 

More details are available in last year's finalised call for data ‘Call for continuous collection of chemical contaminants occurrence data in food and feed | EFSA (europa.eu)’.

REPORTING AUTHORITIES CONTRIBUTING TO EACH DATA COLLECTION: 

OCC-CHEMMON2020 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2021 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2022 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2023 – National Institute of Health Doutor Ricardo Jorge
description: PT; CSV; data.collection@efsa.europa.eu
DOI: 10.5281/zenodo.15334038
title: Results from national testing programs on the occurrence of chemical contaminants in food and feed - Portugal

description: In the framework of Articles 23 and 33 of Regulation (EC) No 178/2002 EFSA has received from the European Commission a mandate (M-2010-0374) to collect all available data on the occurrence of chemical contaminants in food and feed. These data are used in EFSA’s scientific opinions and reports on contaminants in food and feed.  

The presence of unauthorised substances or chemical contaminants in food may pose a risk factor for public health and can cause a negative impact on the quality of food. 

Commission Recommendations and Regulations on occurrence monitoring are in place for several contaminants of interest, some of which can be found here below:  



Commission Regulation (EU) 625/2017, on the application of food and feed law

Commission Delegated Regulation (EU) 2022/931

Commission Implementing Regulation (EU) 2022/932

Commission Regulation (EU) 2023/915, on maximum levels for certain contaminants in food and repealing Regulation (EC) No 1881/2006


These datasets contain the results of sampling that was designed according to national testing programs for a variety of contaminants in food and feed, as reported under the Chemical Monitoring Data Collection 2024, 2023, 2022, 2021, and 2020, split by sampling year (data element ‘sampY’). 

More details are available in last year's finalised call for data ‘Annual call for continuous collection of chemical contaminants occurrence data in food and feed | EFSA’.

REPORTING AUTHORITIES CONTRIBUTING TO EACH DATA COLLECTION: 

OCC-CHEMMON2020 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2021 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2022 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2023 – National Institute of Health Doutor Ricardo Jorge

OCC-CHEMMON2024 – National Institute of Health Doutor Ricardo Jorge
description: PT; CSV; data.collection@efsa.europa.eu