cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.25504/fairsharing.xhzfk0
title: FAIRsharing record for: National Archive of Computerized Data on Aging
title: NACDA

description: This FAIRsharing record describes:  The National Archive of Computerized Data on Aging (NACDA), located within ICPSR, is funded by the National Institute on Aging. NACDA's mission is to advance research on aging by helping researchers to profit from the under-exploited potential of a broad range of datasets. NACDA acquires and preserves data relevant to gerontological research, processing as needed to promote effective research use, disseminates them to researchers, and facilitates their use. By preserving and making available the largest library of electronic data on aging in the United States, NACDA offers opportunities for secondary analysis on major issues of scientific and policy relevance.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.m8wewa
title: FAIRsharing record for: Cancer Genome Atlas
title: TCGA

description: This FAIRsharing record describes:  The Cancer Genome Atlas (TCGA) is a comprehensive, collaborative effort led by the National Institutes of Health (NIH) to map the genomic changes associated with specific types of tumors to improve the prevention, diagnosis and treatment of cancer. Its mission is to accelerate the understanding of the molecular basis of cancer through the application of genome analysis and characterization technologies.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.9nns5e
title: FAIRsharing record for: RegenBase
title: null

description: This FAIRsharing record describes:  RegenBase is a research project that applies informatics tools and methods to organize and interrogate experimental data generated by spinal cord injury (SCI) research, with the ultimate goal of translating SCI experimental findings in model organisms into human therapies. 

description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.httzv2
title: FAIRsharing record for: Movebank Data Repository
title: MDR

description: This FAIRsharing record describes:  This data repository allows users to publish animal tracking and animal-borne sensor datasets that have been uploaded to Movebank (https://www.movebank.org). Published datasets have gone through a submission and review process, and are associated with a peer-reviewed journal article or other published report. All animal tracking data in this repository are available to the public.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.bc3cnk
title: FAIRsharing record for: Visualizing Continuous Health Usability Test Results Dataset
title: null

description: This FAIRsharing record describes:  The dataset was obtained from series of usability tests on a software tool for visualizing continuous health status of a modeled patient. The emphasis of this results are on the hFigures visualization llibrary. The software is a dashboard for visualizing the health status of a modeled virtual patient improving the health condition over a coaching program. The files are in machine-readable format saved as comma separated values. The questionnaires applied were: After Scenario Questionnaire Computer System Usability Questionnaire Nielsen’s Heuristic Evaluation The questionnaires were done using the web application by Gary Perlman available in the url: garyperlman.com/quest/ the file laboratory.csv contains the tasks and their time to completion along with the errors occurred. The tasks, software tool and research context is available in the article submitted to BMC Medical Informatics & Decision Making. The experiment included three usability experts and eleven non-expert users. The file asq.csv contains the answers to the three questions of the After Scenario Questionnaire. The file csuq.csv contains the answers to the 19 questions of the Computer System Usability Questionnaire. The file heuristics.csv contains the answers to the 10 questions of the Nielsen’s Heuristic Evaluation. This datasets are available under the MIT license.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.bcjrnq
title: FAIRsharing record for: Physiome Model Repository
title: PMR

description: This FAIRsharing record describes:  The Physiome Model Repository (PMR) is the main online repository for the IUPS Physiome Project, providing version and access controlled repositories, called workspaces, for users to store their data. PMR also provides a mechanism to create persistent access to specific revisions of a workspace, termed exposures. Exposure plugins are available for specific types of data (e.g., CellML or FieldML documents) which enable customizable views of the data when browsing the repository via a web browser, or an application accessing the repository’s content via web services.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.pxr7x2
title: FAIRsharing record for: SwissLipids
title: SwissLipids

description: This FAIRsharing record describes:  SwissLipids is an expert-curated resource that provides a framework for the integration of lipid and lipidomic data with biological knowledge and models. SwissLipids is updated daily.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.q04phv
title: FAIRsharing record for: NIH Human Microbiome Project
title: HMP

description: This FAIRsharing record describes:  The NIH Common Fund Human Microbiome Project (HMP) was established in 2008, with the mission of generating resources that would enable the comprehensive characterization of the human microbiome and analysis of its role in human health and disease. The HMP has characterized the microbial communities found at several different sites on the human body: nasal passages, oral cavity, skin, gastrointestinal tract, and urogenital tract.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.dw22y3
title: FAIRsharing record for: Genetic and Genomic Information System
title: GnpIS

description: This FAIRsharing record describes:  GnpIS is a multispecies integrative information system dedicated to plant and fungi pests. It bridges genetic and genomic data, allowing researchers access to both genetic information (e.g. genetic maps, quantitative trait loci, association genetics, markers, polymorphisms, germplasms, phenotypes and genotypes) and genomic data (e.g. genomic sequences, physical maps, genome annotation and expression data) for species of agronomical interest. GnpIS is used by both large international projects and plant science departments at the French National Institute for Agricultural Research. It is regularly improved and released several times per year. GnpIS is accessible through a web portal and allows to browse different types of data either independently through dedicated interfaces or simultaneously using a quick search ('google like search') or advanced search (Biomart, Galaxy, Intermine) tools.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.nnvcr9
title: FAIRsharing record for: FAIRDOMHub
title: FAIRDOMHub

description: This FAIRsharing record describes:  The FAIRDOMHub is a publicly available repository build using the SEEK software, which enables collaborations within the scientific community. FAIRDOM will establish a support and service network for European Systems Biology. It will serve projects in standardizing, managing and disseminating data and models in a FAIR manner: Findable, Accessible, Interoperable and Reusable. FAIRDOM is an initiative to develop a community, and establish an internationally sustained Data and Model Management service to the European Systems Biology community. FAIRDOM is a joint action of ERA-Net EraSysAPP and European Research Infrastructure ISBE.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.j97pjn
title: FAIRsharing record for: Validated Antibody Database
title: VAD

description: This FAIRsharing record describes:  Labome organizes reagent information from high quality suppliers. The reagents include antibodies, siRNA/shRNA, ELISA kits, cDNA clones, proteins/peptides, and biochemicals. To help solve the antibody quality problem, Labome manually curates antibody information from formal publications and develops Validated Antibody Database (VAD).
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.wx5r6f
title: FAIRsharing record for: ClinVar
title: ClinVar

description: This FAIRsharing record describes:  ClinVar is a freely accessible, public archive of reports of the relationships among human variations and phenotypes, with supporting evidence. ClinVar thus facilitates access to and communication about the relationships asserted between human variation and observed health status, and the history of that interpretation. ClinVar processes submissions reporting variants found in patient samples, assertions made regarding their clinical significance, information about the submitter, and other supporting data. The alleles described in submissions are mapped to reference sequences, and reported according to the HGVS standard. ClinVar then presents the data for interactive users as well as those wishing to use ClinVar in daily workflows and other local applications. ClinVar works in collaboration with interested organizations to meet the needs of the medical genetics community as efficiently and effectively as possible.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.r09jt6
title: FAIRsharing record for: JWS Online
title: JWS Online

description: This FAIRsharing record describes:  JWS Online is a Systems Biology tool for the construction, modification and simulation of kinetic models and for the storage of curated models.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.fk0z49
title: FAIRsharing record for: Host Pathogen Interaction Database
title: HPIDB

description: This FAIRsharing record describes:  HPIDB 3.0 is a resource that helps annotate, predict and display host-pathogen interactions (HPI). HPI that underpin infectious diseases are critical for developing novel intervention strategies. HPIDB is a host-pathogen protein-protein interaction (PPI) database, which serves as a unified resource for host-pathogen interactions. HPIDB integrates experimental PPIs from several public databases into a single, non-redundant web accessible resource.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.nx58jg
title: FAIRsharing record for: Open Researcher and Contributor ID Registry
title: ORCID

description: This FAIRsharing record describes:  ORCID is an open, non-profit, community-driven effort to create and maintain a registry of unique researcher identifiers and a transparent method of linking research activities and outputs to these identifiers. The ORCID Registry is a repository of unique researcher identifiers which allows researchers to manage a record of their research activities. In addition, there are APIs that support system-to-system communication and authentication. ORCID makes its code available under an open source license, and will post an annual public data file under a CC0 waiver for free download.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.rbba3x
title: FAIRsharing record for: Genetic Epidemiology Simulation Database
title: GESDB

description: This FAIRsharing record describes:  GESDB is a platform for sharing simulation data and discussion of simulation techniques for human genetic studies. The database contains simulation scripts, simulated data, and documentations from published manuscripts. The forum provides a platform for Q&A for the simulated data and exchanging simulation ideas. GESDB aims to promote transparency and efficiency in simulation studies for human genetic studies.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.566n8c
title: FAIRsharing record for: EU Clinical Trial Register
title: EUCTR

description: This FAIRsharing record describes:  The EU Clinical Trials Register contains information on interventional clinical trials on medicines conducted in the European Union (EU), or the European Economic Area (EEA) which started after 1 May 2004.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.va62ke
title: FAIRsharing record for: BiGG Models
title: BiGG Models

description: This FAIRsharing record describes:  BiGG Models is a knowledgebase of genome-scale metabolic network reconstructions. BiGG Models integrates more than 70 published genome-scale metabolic networks into a single database with a set of standardized identifiers called BiGG IDs.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.w1y0c7
title: FAIRsharing record for: European Union Drug Regulating Authorities Clinical Trials
title: EudraCT

description: This FAIRsharing record describes:  EudraCT (European Union Drug Regulating Authorities Clinical Trials) is the European Clinical Trials Database of all interventional clinical trials of medicinal products commencing in the European Union from 1 May 2004 onwards. The EudraCT database has been established in accordance with Directive 2001/20/EC. Please note that as of 31 January 2023, creation and submission of new Clinical Trial Applications (CTAs) for trials to be conducted in the EU/EEA is no longer allowed through EudraCT and must be performed through the Clinical Trials Information System 
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.ennep4
title: FAIRsharing record for: Global Unique Device Identification Database
title: GUDID

description: This FAIRsharing record describes:  The Global Unique Device Identification Database (GUDID - pronounced "Good ID") is a database administered by the FDA as part of the UDI system. The GUDID contains device identification information submitted by device companies to the FDA. The GUDID contains ONLY the Device Identifier (DI), which serves as the primary key to obtain information in the database. Production Identifiers (PI) are not submitted to or stored in the GUDID, but GUDID data indicates which PIs are on the device label. Many data elements in the GUDID correspond to information on the medical device label. The figure below shows a fictitious medical device label and identifies the GUDID data elements that appear on the label. Please refer to the FDA UDI website for more information about GUDID data elements.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.ja871b
title: FAIRsharing record for: EORTC clinical trials
title: EORTC

description: This FAIRsharing record describes:  European Organisation for Research and Treatment of Cancer database of clinical trials.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.hs4d6r
title: FAIRsharing record for: miRandola: extracellular circulating RNAs database
title: miRandola

description: This FAIRsharing record describes:  The miRandola database is the first resource for extracellular circulating RNAs. The first version of the database has been published on Plos One in 2012. It mainly contains information on circulating microRNAs and other non-coding RNAs. It is manually curated and constantly updated by the authors (usually once a year). We have extracted data from PubMed papers and Exocarta (a database that collects data regarding exosomes). We report information on methods of RNA extraction and qualification, diseases, experimental description, expression data and the potential biomarker role. We are updating the database with other RNAs and the future direction is to have a portal for all the non invasive biomarkers such as cell free DNA and circulating tumor cells.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.25504/fairsharing.yfk4w2
title: FAIRsharing record for: Genomics England | PanelApp
title: PanelApp

description: This FAIRsharing record describes:  Genomics England PanelApp is a publically-available knowledgebase that allows virtual gene panels related to human disorders to be created, stored and queried. It includes a crowdsourcing tool that allows genes to be added or reviewed by experts throughout the worldwide scientific community, providing an opportunity for the standardisation of gene panels, and a consensus on which genes have sufficient evidence for disease association. The diagnostic grade ‘Green’ genes and their modes of inheritance in the Version 1+ PanelApp virtual gene panels are used to direct the variant tiering process for the interpretation of genomes in the 100,000 Genomes Project and for the National Health Service England Genomic Medicine Service. As panels in PanelApp are publically available, they can also be utilised by others. Experts are asked to register (https://panelapp.genomicsengland.co.uk/accounts/registration/) in order to review and rate the genes on the panel to indicate whether there is a diagnostic-grade level of evidence for the gene to be implicated in a given disease. Bioinformaticians can access the data via the PanelApp API (https://panelapp.genomicsengland.co.uk/#!API). More detailed background information, instructions and updates can be found on the PanelApp homepage tabs.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.