cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.5064/f6wkr6ed
title: Ethical Challenges When Engaging Patients and Families in End-of-Life and Palliative Care Research

description: &lt;h3&gt;Project Overview&lt;/h3&gt;
&lt;p&gt;&lt;strong&gt;Background:&lt;/strong&gt; Delivering high quality, patient- and family-centered care depends upon high quality end-of-life and palliative care (EOLPC) research. Engaging patients and families as advisors, partners, or co-investigators throughout the research lifecycle is widely regarded as critical to ensuring high quality research. Engagement is not only an ethical obligation, it also raises ethical challenges of its own. We conducted a qualitative study to understand ethical challenges and potential solutions when engaging patients and families in EOLPC research.&lt;/p&gt;
&lt;p&gt;&lt;strong&gt;Methods:&lt;/strong&gt; We recruited and interviewed 20 clinical investigators and 22 patients or family caregivers through the Palliative Care Research Cooperative Group (PCRC). Interview transcripts were analyzed using constructivist grounded theory methodology. Analysis sought to identify ethical challenges and potential solutions, as well as to synthesize findings into practical recommendations tailored to engaging patients and families in EOLPC research.&lt;/p&gt;
&lt;p&gt;&lt;strong&gt;Results:&lt;/strong&gt;Our study identified 8 ethical challenges considered unique to the EOLPC research context and 11 potential solutions to these challenges. The most frequently described ethical challenges included the need to minimize burdens of engagement for patients and caregivers, challenges of dealing with death and illness, and paternalism or “gatekeeping” (i.e., withholding the opportunity to participate from patients or caregivers). Investigators and patients or family caregivers conceptualized ethics challenges differently; several issues appeared to fall outside a traditional research ethics paradigm and more into the ethics of relationships. We synthesized these findings into 4 practical recommendations. &lt;/p&gt;
&lt;p&gt;&lt;strong&gt;Conclusions:&lt;/strong&gt;Engaging patients and families in EOLPC research can raise unique ethical challenges. These challenges can be overcome to empower participation, minimize the unique burdens of EOLPC, and promote diversity. Whereas traditional research ethics tend to emphasize protecting research participants who may be vulnerable, an ethics approach that explores what it means for investigators and patients or family caregivers to be in a relationship may be needed. Future research is needed to explore this approach and test these recommendations in practice.&lt;/p&gt;
&lt;h3&gt;Data Overview&lt;/h3&gt;
&lt;p&gt;We used purposive sampling to recruit our participants. Interviews were conducted over the phone and audio recorded.&lt;/p&gt;
&lt;p&gt;This project contains data from a subset of the original 42 respondents, including transcripts only where participants expressed enthusiastic consent for sharing data.&lt;/p&gt;
DOI: 10.5064/f6wkr6ed/o9ap4a
title: DeCamp_01.pdf
DOI: 10.5064/f6wkr6ed/1feepg
title: DeCamp_08.pdf
DOI: 10.5064/f6wkr6ed/aqz4cp
title: DeCamp_13.pdf
DOI: 10.5064/f6wkr6ed/i8xmqy
title: DeCamp_07.pdf
DOI: 10.5064/f6wkr6ed/jeg7uy
title: DeCamp_19.pdf
DOI: 10.5064/f6wkr6ed/ta5xsw
title: DeCamp_12.pdf
DOI: 10.5064/f6wkr6ed/eoquxa
title: DeCamp_16.pdf
DOI: 10.5064/f6wkr6ed/8uviob
title: DeCamp_02.pdf
DOI: 10.5064/f6wkr6ed/ga0frh
title: DeCamp_18.pdf
DOI: 10.5064/f6wkr6ed/94vwam
title: DeCamp_09.pdf
DOI: 10.5064/f6wkr6ed/kea4vf
title: DeCamp_03.pdf
DOI: 10.5064/f6wkr6ed/kvplml
title: DeCamp_15.pdf
DOI: 10.5064/f6wkr6ed/xe8wyv
title: DeCamp_06.pdf
DOI: 10.5064/f6wkr6ed/9fpxdx
title: DeCamp_17.pdf
DOI: 10.5064/f6wkr6ed/smtbe8
title: DeCamp_14.pdf
DOI: 10.5064/f6wkr6ed/xqzvbw
title: DeCamp_11.pdf
DOI: 10.5064/f6wkr6ed/rzsj7q
title: DeCamp_10.pdf
DOI: 10.5064/f6wkr6ed/ql5wkt
title: DeCamp_05.pdf
DOI: 10.5064/f6wkr6ed/auvfb4
title: DeCamp_04.pdf
DOI: 10.5064/f6wkr6ed/tdnsiq
title: README_DeCamp.txt
DOI: 10.25549/satjrnl-m322
title: Zritel', vol. 1, no. 5 (1905)

description: [description (english with transliteration)] Zritel' [Spectator], no.5, July 3, 1905. Weekly. Published and edited by Iu. K. Artsybushev. St. Petersburg. Typography: "Sever" of A. M. Lesman. Journal of political-social satire -- BPIR, no. 3230; Rudzinskii, no. 53.; Editor-publisher: Iu.K. Artsybushev, G.E. Gints, I.Ia. Kagan, N.I. Faleev.
DOI: 10.25549/satjrnl-m326
title: Zritel', vol. 1, no. 5 (1905)

description: [description (english with transliteration)] Zritel' [Spectator], no.5, July 3, 1905. Weekly. Published and edited by Iu. K. Artsybushev. St. Petersburg. Typography: "Sever" of A. M. Lesman. Journal of political-social satire -- BPIR, no. 3230; Rudzinskii, no. 53.; Editor-publisher: Iu.K. Artsybushev, G.E. Gints, I.Ia. Kagan, N.I. Faleev.
DOI: 10.15468/dl.hkwvm3
title: Occurrence Download

description: A dataset containing 2187 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Miconia ligustroides",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is Fossil"
 ]
 }
 }
 ]
}

 The dataset includes 2187 records from 117 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003070-260226173443078/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/satjrnl-m327
title: Zritel', vol. 1, no. 5 (1905)

description: [description (english with transliteration)] Zritel' [Spectator], no.5, July 3, 1905. Weekly. Published and edited by Iu. K. Artsybushev. St. Petersburg. Typography: "Sever" of A. M. Lesman. Journal of political-social satire -- BPIR, no. 3230; Rudzinskii, no. 53.; Editor-publisher: Iu.K. Artsybushev, G.E. Gints, I.Ia. Kagan, N.I. Faleev.
DOI: 10.5064/f6nsp4u5
title: Pilot Testing a Virtual Reality Protocol for Improving Pain and Pain-Related Distress in Patients with Advanced Stage Colorectal Cancer

description: &lt;h3&gt;Project Summary&lt;/h3&gt;
&lt;p&gt;This study was done to test the feasibility, acceptability, safety, and impact of exposing patients to a single 30-minute virtual reality underwater/sea environment (called VR Blue) for reducing pain and pain-related symptoms in patients with advanced stage colorectal cancer. VR Blue is an immersive computer-generated environment featuring calming scenic graphics and relaxing nature music, which has been shown to increase tolerance for thermal pain stimuli in healthy participants in prior research. All participants were patients with stage IV colorectal cancer. The purpose of this VR Blue intervention was to reduce pain and pain-related symptoms such as tension and distress, and enhance patients’ abilities to cope with pain. We also wanted to better understand patients’ experiences, preferences, thoughts, and feelings about the virtual reality experience to optimize VR Blue for future study.&lt;/p&gt;

&lt;h3&gt;Selection and Organization of Shared Data&lt;/h3&gt;
&lt;p&gt;The data shared here are the de-identified transcripts of the qualitative exit interviews only. 
Documentation includes the informed consent script and a study summary document, which describes in greater detail the project’s objectives, participant demographics, methodology, measures, data elements, key abbreviations, subject flow, and study calendar.&lt;/p&gt;
DOI: 10.7910/dvn/4zomar
title: Placental gene signatures associated with high neonatal adiposity: role for immune cell activation

description: Fetal fat accumulation is an important indicator of the nutritional environment in pregnancy and placental function. Excessive fat accretion leading to high adiposity at birth, however, can increase a child’s long-term risk for obesity and metabolic disease. While maternal body mass index is associated with neonatal adiposity, there is a wide variation in body composition among babies born to both women with and without obesity. The placenta orchestrates a complex exchange of nutrients and signals between the mother and baby. To better understand the molecular mechanisms that govern fetal fat accumulation, we profiled the transcriptomics of 79 placentas collected from mothers with and without obesity. We identified a set of 18 neonatal adiposity-associated genes, common to pregnancies with and without obesity. A co-expressed cluster of these genes are involved in innate immune responses, particularly neutrophil activation. We also identified neonatal adiposity-associated genes unique to mothers with or without obesity, suggesting different biological pathways support high newborn adiposity, and/or are responsive to a common initial immune signal. These findings suggest that placental inflammation may influence fetal fat accumulation. Understanding these pathways may help identify novel ways to support healthy fetal growth and reduce the risk of long-term disease.
DOI: 10.5064/f6nsp4u5/rjhm58
title: Kelleher_qualitative_exit_interview-3016.pdf
DOI: 10.5064/f6nsp4u5/nkoiiv
title: Kelleher_qualitative_exit_interview-3010.pdf
DOI: 10.5064/f6nsp4u5/xa2xpp
title: Kelleher_qualitative_exit_interview-3019.pdf
DOI: 10.5281/zenodo.18652205
title: Data for "Constraints on White Dwarf Hydrogen Layer Masses Using Gravitational Redshifts"

description: Code for measuring the hydrogen layer masses of white dwarfs using gravitational redshifts. 

The following notebooks contain the bulk of the analysis:



calibration/make_comparison.ipynb contains the code to reproduce Figure 1

survey_data/spydata/assess.ipynb contains the code to reproduce Figure 2

notebooks/relation.ipynb contains the code to reproduce Figures 3-8


The parameters for white dwarfs in the SPY and wide binary samples are summarized in survey_data/spydata/spy.pqt and survey_data/uvesdata/uves.pqt respectively.
DOI: 10.5281/zenodo.18652206
title: Data for "Constraints on White Dwarf Hydrogen Layer Masses Using Gravitational Redshifts"

description: Code for measuring the hydrogen layer masses of white dwarfs using gravitational redshifts. 

The following notebooks contain the bulk of the analysis:



calibration/make_comparison.ipynb contains the code to reproduce Figure 1

survey_data/spydata/assess.ipynb contains the code to reproduce Figure 2

notebooks/relation.ipynb contains the code to reproduce Figures 3-8


The parameters for white dwarfs in the SPY and wide binary samples are summarized in survey_data/spydata/spy.pqt and survey_data/uvesdata/uves.pqt respectively.
DOI: 10.5064/f6nsp4u5/2mj9rb
title: Kelleher_qualitative_exit_interview-3011.pdf
DOI: 10.5064/f6nsp4u5/btr2cy
title: Kelleher_qualitative_exit_interview-3012.pdf
DOI: 10.5064/f6nsp4u5/vsw4gu
title: Kelleher_qualitative_exit_interview-3005.pdf
DOI: 10.5064/f6nsp4u5/6deiht
title: Kelleher_qualitative_exit_interview-3015.pdf
DOI: 10.5064/f6nsp4u5/ayjxnr
title: Kelleher_qualitative_exit_interview-3008.pdf
DOI: 10.5064/f6nsp4u5/kzj0wf
title: Kelleher_VR-Blue_Informed_Consent.pdf
DOI: 10.5064/f6nsp4u5/osp4te
title: Kelleher_qualitative_exit_interview-3017.pdf
DOI: 10.5064/f6nsp4u5/uuf13o
title: Kelleher_qualitative_exit_interview-3020.pdf
DOI: 10.17605/osf.io/jczwq
title: Data associated with 'Comparison of time-lapse ground-penetrating radar and electrical resistivity tomography surveys for detecting pig (Sus spp.) cadaver graves in an Australian environment’'

description: Locating clandestine graves presents significant challenges to law enforcement agencies, necessitating the testing of grave detection techniques. This experimental study assesses the effectiveness of time-lapse ground-penetrating radar (GPR) and electrical resistivity tomography (ERT) in detecting pig burials as simulated forensic cases. The research addresses three key questions: 1) observability of graves using GPR and ERT, 2) changes in geophysical responses over time, and 3) suitability of GPR and ERT as search techniques for covert graves. The results reveal that both GPR and ERT can detect graves; however, ERT demonstrates greater suitability in homogeneous soil and anomalously wet climate conditions, with detectability affected by grave depth. Additionally, resistivity values are influenced by soil moisture and decomposition fluids. The findings underscore the significance of site-specific factors when employing GPR and/or ERT for grave detection, including soil homogeneity, climate conditions, water percolation, and body decomposition state. These findings offer practical insights for law enforcement agencies dealing with homicide cases involving covert graves.
DOI: 10.5064/f6nsp4u5/ewzb9m
title: Kelleher_qualitative_exit_interview-3009.pdf
DOI: 10.25549/satjrnl-m332
title: Zritel', vol. 1, no. 5 (1905)

description: [description (english with transliteration)] Zritel' [Spectator], no.5, July 3, 1905. Weekly. Published and edited by Iu. K. Artsybushev. St. Petersburg. Typography: "Sever" of A. M. Lesman. Journal of political-social satire -- BPIR, no. 3230; Rudzinskii, no. 53.; Editor-publisher: Iu.K. Artsybushev, G.E. Gints, I.Ia. Kagan, N.I. Faleev.
DOI: 10.5064/f6nsp4u5/m1hqjz
title: Kelleher_qualitative_exit_interview-3014.pdf
DOI: 10.5064/f6nsp4u5/fw2z8w
title: Kelleher_qualitative_exit_interview-3013.pdf
DOI: 10.5064/f6nsp4u5/gh0765
title: Kelleher_qualitative_exit_interview-3018.pdf
DOI: 10.17605/osf.io/6cnk5
title: Review of reporting on external therapies of TCM

description: Non-pharmacological treatment in Chinese Medicine (NPTCM) plays a crucial and distinctive role in clinical practice, with a continuous increase in the number of randomized controlled trials (RCTs). With the successive publication of Consolidated Standards Of Reporting Trials (CONSORT) extensions for acupuncture, moxibustion, cupping, and Tuina/massage, this study aims to assess the reporting characteristics and quality of published RCTs based on these specific reporting checklists.
DOI: 10.5064/f6nsp4u5/6vvsjg
title: Kelleher_qualitative_exit_interview-3006.pdf
DOI: 10.5064/f6nsp4u5/epbrny
title: Kelleher_qualitative_exit_interview-3007.pdf
DOI: 10.5281/zenodo.18806386
title: Space Technologies in U.S. Patents

description: This dataset contains the list of USPTO patents in space-related technologies. Only patents that are coded as space-related according to at least one classification method are included in the dataset. Please refer to the citation paper for information on how this dataset is assembled.

If you use this dataset, please cite the following paper: Gaetani, Ruben and Whalley, Alexander (2026). "Old Space, New Space: A Commercial Revolution in Innovation?". Working Paper

The variables are as follows:



patnum: USPTO patent number

space_score: Score (between 0 and 1) obtained from the logistic regression to predict proximity to space technologies

fyear: Filing year of the patent

space_transport_narrow: Flag (0-1) for whether the patent belongs to the Space Transportation (narrow) group

space_transport_extended: Flag (0-1) for whether the patent belongs to the Space Transportation (extended) group

broader_space_tech: Flag (0-1) for whether the patent belongs to the Broader Space Technologies group

category_code: Code for the category of space technology within the Dealroom taxonomy

category_name: Name of the category of space technology within the Dealroom taxonomy
DOI: 10.5281/zenodo.18806387
title: Space Technologies in U.S. Patents

description: This dataset contains the list of USPTO patents in space-related technologies. Only patents that are coded as space-related according to at least one classification method are included in the dataset. Please refer to the citation paper for information on how this dataset is assembled.

If you use this dataset, please cite the following paper: Gaetani, Ruben and Whalley, Alexander (2026). "Old Space, New Space: A Commercial Revolution in Innovation?". Working Paper

The variables are as follows:



patnum: USPTO patent number

space_score: Score (between 0 and 1) obtained from the logistic regression to predict proximity to space technologies

fyear: Filing year of the patent

space_transport_narrow: Flag (0-1) for whether the patent belongs to the Space Transportation (narrow) group

space_transport_extended: Flag (0-1) for whether the patent belongs to the Space Transportation (extended) group

broader_space_tech: Flag (0-1) for whether the patent belongs to the Broader Space Technologies group

category_code: Code for the category of space technology within the Dealroom taxonomy

category_name: Name of the category of space technology within the Dealroom taxonomy
DOI: 10.5064/f6nsp4u5/8ufrag
title: Kelleher_Data-Narrative.pdf
DOI: 10.5064/f6nsp4u5/yn8tqa
title: README_Kelleher.txt
DOI: 10.15468/dl.x3jecj
title: Occurrence Download

description: A dataset containing 318 species occurrences available in GBIF matching the query:
{
 "and" : [
 {
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 }
 ]
 },
 "TaxonKey is one of (Dianthus ernesti-mayeri, Onobrychis bornmuelleri, Oxalis tenuis, Loasa chrysantha, Calligonum laristanicum, Loasa humilis, Sedum aquilanum, Phylica alpina, Phylica chionophila, Dianthus basianicus, Rubus discoideus, Prangos uechtritzii, Desmazeria lorentii, Rubus chenonii, Oxalis tacorensis, Oxalis holosericea, Oxalis creaseyi, Dianthus galicicae, Dianthus helveticorum, Oxalis rhomboidea, Phylica costata, Dianthus aculeatus, Eryngium bithynicum, Tecticornia enodis, Rubus ferrezii, Sedum ursi, Dianthus kremeri, Eryngium sparganioides, Rubus phyllophorus, Oxalis petricola, Mathewsia linearifolia, Oxalis pycnophylla, Oxalis cathara, Phylica apiculata, Phylica reversa, Rubus cupanianus, Rubus patulus, Biscutella pichiana, Dianthus oliastrae, Phylica lasiantha, Dianthus nodosus, Dianthus leucophoeniceus, Gasteria baylissiana, Oxalis pallens, Oxalis leipoldtii, Prangos scabrifolia, Biscutella mauritanica, Dianthus hymenolepis, Rubus offensus, Onobrychis sivasica, Heteromera philaenorum, Geissorhiza intermedia, Oxalis colchaguensis, Sedum schizolepis, Phylica variabilis, Dianthus artignanii, Onobrychis lasistanica, Oxalis lindaviana, Gastrocotyle natolica, Dianthus kapinaensis, Dianthus muschianus, Gasteria glomerata, Rubus amphichlorus, Sedum strobiliforme, Onobrychis mutensis, Onobrychis sphaciotica, Onobrychis pisidica, Aeonium condei, Diascia pachyceras, Anthemis didymaea, Aeonium teneriffae, Thesium quartzicolum, Danthoniastrum brevidentatum, Anthemis parnesia, Bellevalia gracilis, Bellevalia salah-eidii, Thesium brachygyne, Anthemis cuneata, Colubrina nicholsonii, Aeonium occidentale, Thesium selagineum, Hesperis microcalyx, Drimia mzimvubuensis, Thesium helichrysoides, Anthemis dicksoniae, Anthemis edumea, Anthemis fayedina, Anthemis fimbriata, Nephelochloa orientalis, Aeonium ombriosum, Aeonium splendens, Thesium zeyheri, Chorizanthe macraei, Anthemis aeolica, Aeonium grandipetalum)",
 "Year is greater than or equal to 1950"
 ]
}

 The dataset includes 318 records from 34 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003071-260226173443078/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.4pnsej
title: Occurrence Download

description: A dataset containing 974 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is Acicarpha Juss."
 ]
}

 The dataset includes 974 records from 96 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0010545-250426092105405/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/inscriptifact-ouc110626047
title: Persepolis Fortification Elamite Tablet 1051, PF-NN 1051

description: [Text Description:] Administrative text with seal ❧ [Text or Publication Number Note:] PF-NN 1051 ❧ [Excavation Description:] Found during Oriental Institute's excavations in Spring, 1933, near the northeastern corner of the stone platform of Persepolis, in two small rooms of a bastion in the fortification wall ❧ [Medium:] Clay ❧ [Script Note:] Non-Alphabetic Cuneiform ❧ [Physical Object Description:] Clay tablet with cuneiform text. Seal impressions on left edge and reverse. ❧ [Physical Object Note:] Damage or cracks on left edge, obverse, reverse and upper edge.
DOI: 10.25549/inscriptifact-ouc1sto1611625
title: InscriptiFact -- an image database of inscriptions and artifacts

description: The InscriptiFact Collection is designed to allow access via the Internet to high-resolution images of ancient inscriptions and artifacts, primarily from the Near Eastern and Mediterranean Worlds. The targeted inscriptions constitute some of the world’s earliest written records, which are mostly housed in a number of international museums and libraries, as well as field projects where inscriptions still remain in situ. Included, for example, are, selected Dead Sea Scrolls; cuneiform tablets from Mesopotamia, Persia, Canaan and Egypt; early Jewish papyri from Egypt; lapidary inscriptions, primarily from Jordan, Lebanon and Cyprus; inscriptions on a variety of hard media (e.g., ostraca, copper, semi-precious stones, jar handles) mostly written in early Canaanite, Phoenician, Hebrew, Aramaic, Ammonite and Edomite; and much more. These ancient texts are foundational documents that serve as a point of reference for Judaism, Christianity, Islam and the cultures out of which they emerged. The name "InscriptiFact" is intended to convey the concept of a scholarly archive based on "facts" about "inscriptions" and "artifacts." West Semitic Research Project (WSRP) under the auspices of the University of Southern California (USC) is broadly acknowledged as a leader in the application of photographic and digital technologies to capture and analyze data of ancient texts. The West Semitic Research image archive now contains approximately 1,500,000 images. Important! Search terms with more than one word or number need to be enclosed in quotation marks.Guide to Searching InscriptiFact
DOI: 10.25549/inscriptifact-ouc110626004
title: Persepolis Fortification Elamite Tablet 1051, PF-NN 1051

description: [Text Description:] Administrative text with seal ❧ [Text or Publication Number Note:] PF-NN 1051 ❧ [Excavation Description:] Found during Oriental Institute's excavations in Spring, 1933, near the northeastern corner of the stone platform of Persepolis, in two small rooms of a bastion in the fortification wall ❧ [Medium:] Clay ❧ [Script Note:] Non-Alphabetic Cuneiform ❧ [Physical Object Description:] Clay tablet with cuneiform text. Seal impressions on left edge and reverse. ❧ [Physical Object Note:] Damage or cracks on left edge, obverse, reverse and upper edge.
DOI: 10.25549/inscriptifact-ouc110623853
title: Persepolis Fortification Anepigraphic Tablet 0933.101, PFAnep 0933.101

description: [Text Description:] Administrative text with seals ❧ [Text or Publication Number Note:] PFAnep 0933.101, PFUT 0933-101 ❧ [Excavation Description:] Found during Oriental Institute's excavations in Spring, 1933, near the northeastern corner of the stone platform of Persepolis, in two small rooms of a bastion in the fortification wall ❧ [Medium:] Clay ❧ [Script Note:] Non-Text ❧ [Physical Object Description:] Clay tablet with seal impressions on bottom edge, left edge, obverse, reverse and upper edge. ❧ [Physical Object Note:] Encrustation on bottom edge.