cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.17026/dans-z2p-dyn7
title: Negotiating Health (2018-2022)

description: Project descriptionZorgverantwoordelijkheden worden in toenemende mate afgeschaald naar lager geschoolde zorgmedewerkers, naar vrijwilligers en naar mantelzorgers, die deze rollen vaak ook naast elkaar vervullen. Tegelijkertijd heeft deze groep steeds vaker te maken met onzeker werk, i.e. tijdelijke en/of flexibele contracten. Het is onduidelijk hoe zorgmedewerkers, vrijwilligers en mantelzorgers deze rollen balanceren in de context van ‘precair werk’ en hoe zij in deze context met hun gezondheid omgaan.WerkwijzeIn deze studie focussen we op de ervaringen van zorgmedewerkers, vrijwilligers en mantelzorgers in de leeftijd van 45-67 jaar, zowel mannen als vrouwen, met diverse achtergronden (intersectioneel perspectief). We maken daarbij gebruik van participatieve onderzoeksbenadering. Zorgmedewerkers, vrijwilligers en mantelzorger zijn als co-onderzoekers betrokken in de studie. Data wordt verzameld middels interviews, dialoogbijeenkomsten, etnografie en art-based onderzoekmethoden zoals photo-voiceFunding:This study is funded by the Dutch Organization for health research and development. Funding grant: 849200012.More information:https://www.zonmw.nl/nl/over-zonmw/diversiteit/programmas/project-detail/gender-en-gezondheid/negotiating-health-the-interplay-between-health-labour-participation-and-informal-care-responsibil/ https://publicaties.zonmw.nl/de-verborgen-oorzaken-van-gezondheidsproblemen-bij-laagbetaalde-ouderenzorgmedewerkers/
DOI: 10.17026/dans-xw3-eqzx
title: The Influencing Factors of Biomedical R Cooperation in Three Major Urban Agglomerations of China Based on Cooperative Patents

description: Due to the particularity of the biomedical industry, it has become necessary for biomedical enterprises to seek innovative research and development (RD) cooperation to maintain advanced technologies and products in multiple fields. Under such circumstance, the biomedical industry has gradually formed a certain cluster to promote the development of the industry. So far, the biomedical industry cluster has formed in China, mainly within the Yangtze River Delta, Pearl River Delta, and Beijing-Tianjin-Hebei three urban agglomerations. Within the industrial clusters, the frequency of innovation cooperation among enterprises, universities, research institutions, and other relevant organizations in the biomedical area is high, and the capacity for innovation cooperation is strong as well. This paper used the representative cross-section data of cooperative patents from the medical science and technology patent database of China National Knowledge Infrastructure (CNKI), researching the RD coopertion within the three major urban agglomerations in China from 2008 to 2016 (Yangtze River Delta Urban Agglomeration, Pearl River Delta Urban Agglomeration, Beijing-Tianjin-Hebei Urban Agglomeration) on total 36 cities’ spatial pattern characteristics of biomedical cooperation and the influencing factors. The spatial interaction model was used to study the spatial, economic, political, and RD influencing factors of cross-city cooperation. The degree of aggregation showed that cross-city RD cooperation mainly occurred in well-developed and central cities of urban agglomerations. Econometric results revealed that spatial, economic, political, and RD bias factors did have a significant impact on the frequency of biomedical RD cooperation across cities.
DOI: 10.17026/dans-zgs-unqe
title: Symptoms of depression are associated with physical inactivity but not modified by gender or the presence of a cardiovascular disease; a cross-sectional study.

description: The datasets contains all data used for analyses in the research described our paper. The paper addresses the association between depressive symptoms (PHQ) and physical inactivity (RAPA), while adjusting for adjusted for the potential confounders; score on the PAM questionnaire, age and smoking, gender and whether or not suffering a CVD. Furthermore, we explored if the association between symptoms of depression and physical inactivity was different between primary and secondary prevention patients, and between men and women, by adding the interaction terms (primary/secondary prevention group*PHQ-9 and gender*PHQ-9 respectively) to separate models. Both the full text paper and the methods (including references) are attached. Data that we used were collected from a RCT that was part of the international Tailored Implementation for Chronic Diseases (TICD) project. In the SPSS file, the variables are labelled, a clear description can be found as well in the READ_ME_FIRST_METHODS file.
DOI: 10.17026/dans-zru-j388
title: Monkeypox virus infection in human kidney organoids

description: Human kidney organoids were inoculated with monkeypox virus (MPXV), samples at 1 (MPXV1H), 48 (MPXV48H), 96 (MPXV96H) hours and 7 (MPXV7D) days post-inoculation were harvested, and organoids cultured 7 days without infection was included as a negative control. There are 4 replicates for each group. These samples were subjected to genome-wide RNA sequencing. These are the data of RNA-seq on transcriptome.
DOI: 10.17026/dans-zn5-733s
title: Historical data on timing of ringing of nestling birds

description: The dates at which nestling birds were historically ringed by volunteer ringers yields information about the timing of breeding seasons. The current dataset consists of ringing data of nestling birds over the period 1911-1959.Fieldnames are largely self-explanatory, data follows the EURING 2000+ code. For a detailed explanation and preferred citation, see the link in the field 'Relation', below, or paste the following URL in your browser http://www.euring.org/data_and_codes/euring_code_list/euring_exchange-code_2000.pdf .The dataset consisted of 157.978 records at 14-2-2014. More data will be added during 2014 and 2015.
DOI: 10.17026/dans-zvj-qgp4
title: Epidemiological data on childhood asthma in China and the United States

description: This is a dataset from the GBD database (http://ghdx.healthdata.org/gbd-results-tool), including the incidence, prevalence, disability-adjusted life years (DALYs), years of life lost (YLLs), years of lost due to disability (YLDs), and DALYs due to high BMI of asthma in children aged 1-14 years in China and the United States.
DOI: 10.17026/dans-zqj-vc9f
title: Geschiktheid van leefstijlapps voor mensen met beperkte gezondheidsvaardigheden

description: Het doel van het onderzoek was om vast te stellen hoe een geschikte app voor mensen met beperkte gezondheidsvaardigheden eruitziet, zoals welke functies en design de app moet hebben. Er zijn 8 interviews gehouden met zorgprofessionals die bekend zijn met de doelgroep om huidige knelpunten en belangrijke eisen in kaart te brengen.
DOI: 10.17026/dans-x94-wdk6
title: PEARL-PD: Towards personalized gait rehabilitation in Parkinson's disease

description: Compensation strategies are essential in Parkinson's disease (PD) gait rehabilitation. However, besides external cueing, these strategies have rarely been investigated systematically. Using this dataset we aimed to: (1) establish the patients' perspective on the efficacy and usability of five different compensation strategies; (2) quantify the efficacy of these strategies on spatiotemporal gait parameters; and (3) explore associations between the effects of specific strategies and patient characteristics. We recruited persons with PD and self-reported disabling gait impairments for this lab-based, within-subject study. Clinimetrics included: questionnaires (NFOG-Q, VMIQ-2, GMSI), cognitive assessments (ANT, MoCA, Brixton), and physical examinations (MDS-UPDRS III, Mini-BEST, tandem gait, rapid turns test). Gait assessment consisted of six 3-minute trials of continuous walking around a 6-meter walkway. Trials comprised: 1) baseline gait; 2) external cueing; 3) internal cueing; 4) action observation; 5) motor imagery; and 6) adopting a new walking pattern. Spatiotemporal gait parameters were acquired using 3D motion capture analysis. Strategy efficacy was determined by the change in gait variability compared to baseline gait. Associated patient characteristics were explored using regression analyses. The outcomes of the study were published here: https://n.neurology.org/content/99/20/e2253.long
DOI: 10.17026/dans-zkq-r6yc
title: FEM growth and yield data monocultures - Scots pine

description: The current database is part of the FEM growth and yield database, a collection of growth and yield data from even-aged monocultures (douglas fir, common oak, poplar, Japanese Larch, Norway spruce, Scots pine, Corsican pine, Austrian pine, red oak and several other species, with only a few plots, even-aged mixed species forest plots, uneven-aged natural forest, uneven-aged selection forest and roadside plantattions of poplar. The FEM growth and yield data base is currently supervised by Jan den Ouden and Frits Mohren.
DOI: 10.17026/dans-249-e2v6
title: The identification of cases of major hemorrhage during hospitalization in patients with acute leukemia using routinely recorded healthcare data

description: Development of an algorithm to identify major hemorrhage among patients with acute leukemie using routinely collected healtcare data.
DOI: 10.17026/dans-zt3-7qfc
title: FEM growth and yield data selection forest - Kolkbos

description: The current database is part of the FEM growth and yield database, a collection of growth and yield data from even-aged monocultures (douglas fir, common oak, poplar, Japanese Larch, Norway spruce, Scots pine, Corsican pine, Austrian pine, red oak and several other species, with only a few plots, even-aged mixed species forest plots, uneven-aged natural forest, uneven-aged selection forest and roadside plantattions of poplar. The FEM growth and yield data base is currently supervised by Jan den Ouden and Frits Mohren.
DOI: 10.17026/dans-zfp-ybfq
title: Exploring comorbidity prevalence in cancer

description: Comorbidities can have major implications for cancer care. They might impact the timing of cancer diagnosis, compromise optimal care, affect treatment outcomes and increase healthcare costs. Thus, it is important to infer the evidence about the prevalence of these comorbidities, explore variation between studies and examine trends over time.We performed a systematic literature review on the prevalence (and types) of comorbidities for the five most common forms of cancer. Additional inclusion criteria were: comorbidity based on routinely collected data, broad population, observational studies, publication between 1990 and June 25, 2020, published in English or Dutch, and from an OECD country. Multilevel analyses was performed to evaluate determinants for variation in comorbidity prevalence and trend over time.Our search yielded 3,070 articles of which 161 were eligible for data analyses. We found a weighted average comorbidity prevalence of 33.4%. Comorbidities are the most common in lung cancer (46.7%) and colorectal cancer (40.0%) followed by prostate (28.5%), melanoma (28.3%) and breast (22.4%). The most common types of comorbidities were hypertension (29.7%), pulmonary diseases (15.9%), and diabetes (13.5%). After adjusting for gender, type of comorbidities index, age, data source (patient records versus claims) and country, a significant increase in comorbidities of 0.54% per year was found.Given the large and increasing proportion of the oncological population that is dealing with comorbidities, it is important to explore optimal ways to incorporate comorbidity management in cancer care. However, there is large variation between studies and standardized registration and measurement tools for comorbidities are warranted.
DOI: 10.17026/dans-2xv-z3dx
title: A suite of models to support the quantitative assessment of spread in pest risk analysis

description: In the frame of the EU project PRATIQUE (KBBE-2007-212459 Enhancements of pest risk analysis techniques) a suite of models was developed to support the quantitative assessment of spread in pest risk analysis. This dataset contains the model codes (R language) for the four models in the suite. Three versions of the code are provided, differing in grid and spatial extent: (1) a decimal degree grid version for Europe; (2) a metric grid version for Europe and (3) a decimal degree grid version for other parts of the world. Usage of the code is described in the “Tutorial on the generic spread models“.Case studies were conducted with the decimal degree version, using European maps of climate suitability and presence of host or habitat for seven species: (1) Diabrotica virgifera virgifera, (2) Anoplophora chinensis, (3) Anoplophora glabripennis, (4) Eichhornia crassipes; (5) Meloidogyne enterolobii, (6) Bursaphelenchus xylophilus / Monochamus, (7) Gibberella circinata. See the “Description of case studies“ for details.Further background can be found in the publication: Robinet C, Kehlenbeck H, Kriticos DJ, Baker RHA, Battisti A, Brunel S, Dupin M, Eyre D, Faccoli M, Ilieva Z, Kenis M, Knight J, Reynaud P, Yart A, van der Werf W (2012) A suite of models to support the quantitative assessment of spread in pest risk analysis. PLoS ONE (in press).
DOI: 10.17026/dans-x6e-r9qw
title: INSIST Clinical Focus Group Discussions at INSIST All hands workshop Milan – a Whitepaper

description: In silico clinical trials hold the promise to use computational modelling of disease and its treatment to support the evaluation and introduction of new drugs and medical devices. The INSIST (In silico clinical trials for treatment of ischemic stroke) project aims to develop an in silico platform for the simulation and evaluation of novel treatments for acute ischemic stroke. INSIST comprises the generation of virtual patient populations, the in silico modeling of brain tissue death due to the lack of oxygen and nutrients following a stroke, thrombosis and thrombolysis, and thrombectomy. The combination allows in silico simulation of (pre-) clinical trials. The INSIST project organizes Focus Group Discussions involving specific stakeholders and contributors. In April 2019 Clinical Focus Group Discussions were organized to inform interested clinicians and to obtain their feedback on the concept, current state of the art, and intended further development of the INSIST project. In short, the concept of in silico stroke trials was considered promising, especially the thrombectomy modeling was regarded valuable. The modeling of tissue death and its effect on clinical outcome was considered the most complex and risky.
DOI: 10.17026/dans-2ae-h7kc
title: Healthcare professionals' views on feedback of a patient safety culture assessment

description: In 2012 hebben 24 Nederlandse ziekenhuizen deelgenomen aan een meting van de patiëntveiligheidscultuur in ziekenhuizen met behulp van de COMPaZ vragenlijst. Participerende ziekenhuisafdelingen ontvingen feedback van hun resultaten in een rapportage en op een website. In het huidige vragenlijstonderzoek is gekeken wat zorgprofessionals vinden van deze feedback en wat het effect is van het toevoegen van extra informatie over verbeterstrategieën van de patiëntveiligheidscultuur op de beoordeling.
DOI: 10.17026/dans-2cb-66ad
title: Upper versus lower airway microbiome and metagenome in children with cystic fibrosis and their correlation with lung inflammation

description: This dataset contains 16S rRNA Illumina MiSeq sequenced samples used in our children with cystic fibrosis study. The main groupings are those with CF and non-CF disease controls. Within each of those groups, the samples were from either BAL(bronchoalveolar lavage) or throat swab.
DOI: 10.17026/dans-zv3-54c6
title: A time series of influenza-like illness incidence in the Netherlands

description: The dataset contains a time series of weekly incidence of general practitioner (GP) consultation by patients with influenza-like illness (ILI) in the Netherlands. The data was retrieved from the NIVEL Primary Care Database, Sentinel Practices. The catchment population of the sentinel GP network is approximately 1% of the entire Dutch population. The time series spans a period of 45 years, from January 5, 1970, to June 16, 2014, and is stratified into 10 age classes. In addition to weekly ILI incidence, the total catchment population size per age class is given as well. The data is used in our study about the estimation of age-specific susceptibility to influenza in the Netherlands, and its relation to loss of CD8+ T-cell memory.
DOI: 10.17026/dans-2x2-nt8t
title: Reduction Of Dizziness in older people (RODEO)

description: Background: The management of dizziness in older patients is primarily diagnosis-oriented. However, in 40 % of older patients with dizziness, GPs are not able to identify an underlying cause, and a number of common underlying causes of dizziness cannot (or hardly) be treated. In this study we will investigate the effectiveness of a prognosis-oriented approach in the management of dizziness in older patients. This prognosis-oriented approach comprises identification of patients at risk for chronic dizziness with persistent impairment by identifying risk factors for an unfavourable course of dizziness. Patients at risk for chronic dizziness with persistent impairment will be offered treatment addressing the identified modifiable risk factors. Methods/Design: This study will be performed in primary care. An intervention study and a validation study will be conducted in a three-arm cluster randomised design. In the intervention study we will investigate a risk factor guided multi-component intervention. The risk factor guided intervention includes: (1) medication adjustment in case of three or more prescribed fall-risk-increasing drugs, (2) stepped care in case of anxiety disorder and/or depression, and (3) exercise therapy in case of impaired functional mobility. The primary outcome measure is dizziness-related impairment, which will be assessed with the Dizziness Handicap Inventory. Secondary outcome measures are quality of life, anxiety disorder and depression, use of fall-risk-increasing drugs, dizziness frequency, fall frequency, and healthcare utilization. Discussion: This study is, to date, the first study that will investigate the effectiveness of a prognosis-oriented approach for reducing dizziness-related impairment in older people in primary care. Offering treatment that addresses identified modifiable risk factors to patients at high risk for chronic dizziness is unique. The pragmatic design of this study will enable evaluation of the outcomes in real-life routine practice conditions. An effective intervention will not only reduce dizziness-related impairment, but may also decrease healthcare utilization and healthcare costs.
DOI: 10.17026/dans-z63-u9kw
title: Model-based small area estimation at two scales using Moran's spatial filtering

description: In spatial epidemiology and public health studies, including covariates in small area estimation of spatial binary data remains a challenge. In this paper, Moran's spatial filtering is proposed to model two-scale spatial binary data. Two models are developed: the first uses deterministic estimation of the sample size at small areal level; the second generates a random sample size using the multinomial distribution. The models were applied to estimate the underweight among children at Vietnamese district level using sampling survey data at provincial level. The results show that the first model outperformed the second model regarding its accuracy and simplicity. Eigenvector maps improve model parameter estimation, and allow for the effects of spatial spillover and covariates. Prediction at the district level indicates that many underweight children came from the mountainous areas in 2014. The study concludes that the proposed models serve as alternatives to small area estimation of spatial binary data.
DOI: 10.17026/dans-zsh-qthf
title: Can a Funny Story with an Ambiguous Role Model Promote Dental Hygiene in Children?

description: This study used a randomized treatment control design. Participants were randomly assigned either to the control (factual information, from now on expository condition) or treatment (humorous fictional story, from now on story condition) condition. We employed three measurement points (T1, T2, T3) with approximately two week intervals among measurements. Self-reported dental measures were assessed at T1, T2 and T3. Biomedical measures of dental hygiene were assessed at T1 and T3. Self-reported responses to the text (i.e. wishful identification, parasocial interaction, perceived similarity, liking, moral judgement) were measured at T2.Native Dutch children between the ages of 4-10 years were invited to this study between 6 October 2017 and 16 May 2018. Apart from age and mother tongue, there was no other exclusion criteria introduced to guarantee a broader patient group.
DOI: 10.17026/dans-x63-3dcy
title: Monthly leaf area index generated using Sentinel-2 for Rumperöd Forest, Sweden, in 2016

description: Monthly Leaf Area Index (LAI) products with a 20-meter resolution were generated using Sentinel-2 data for 2016 over Rumperöd Forest, Sweden, applying an enhanced vegetation index (EVI)-based model as an empirical approach. The LAI products were utilised as an input for estimating Net Primary Productivity using the LPJ-GUESS model as the deliverable for the EO4Diversity project funded by the European Space Agency (ESA).
DOI: 10.17026/dans-z5t-6k7p
title: Benefit-harm analysis for informed decision making about participating in colorectal cancer screening

description: The aim of this research project was to help screening invitees make an informed decision about participating in colorectal cancer screening, by developing an online decision aid in which benefits and harms of screening are weighed based on personal risks and personal preferences. For this, we developed a benefit-harm analysis model, based on microsimulation data on the risks of benefits and harms over a 30-year screening period and based on preference data which we collected in an online survey among members of the Dutch Healthcare Consumer Panel of the Nivel. The files deposited here are the input data for the benefit-harm analysis (= output of the microsimulation), a codebook with brief labeling of the variables in the input dataset, the R script for the overall and the individual benefit-harm analysis, the benefit-harm analysis results over 10, 20 and 30 years screening, an input dataset for estimating individual benefit-harm balance based on data from the preference survey, and the individual benefit-harm analysis results.
DOI: 10.17026/dans-zhk-h623
title: Gender-sensitive care for psychosocial problems of young people with type 1 diabetes

description: Samen met jongeren met diabetes type 1 keken we naar de rol van sekse en gender in hun emotionele en sociale ontwikkeling. We wilden weten welke verschillen zijn en hun omgeving belangrijk vonden. En hoe we daar het beste aandacht aan kunnen geven in de diabeteszorg. We gebruikten interviews, discussies, eerder onderzoek, social media en workshops. Zorgverleners zagen gender vooral terug in de communicatie met jongeren. Zo merkten ze dat meisjes meestal wat makkelijker praatten over emoties. En dat sommige jongeren de voorkeur hadden voor een mannelijke of vrouwelijke zorgverlener. Thuis was moeder vaak het meeste bezig met de diabetes. Voor jongeren zelf ging het vooral om gezien en gehoord worden, los van gender. Online deelden met name meisjes over diabetes. De posts hadden een ‘vrouwelijke’ stijl, bijv. hartjes, emoties. We hebben een poster en korte film gemaakt met belangrijke gespreksonderwerpen. Daar bedachten we vragen bij om verder na te denken over gender.Het protocol en interviews guides zijn hier beschikbaar gemaakt.