cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.14456655.v1
title: Sibling involvement in interventions for children with a disability: a systematic review

description: To conduct a systematic review of the involvement of siblings of individuals with a disability in therapeutic interventions to explore (a) sibling roles, (b) reported outcomes related to participant skills, interactions, or relationships, and (c) participant experiences. A search of popular databases and grey literature was completed identifying studies published in English from 1999-2020. In total, 14,815 citations were extracted. Following a review of titles and abstracts, 31 studies met the inclusion criteria and were assessed for study quality. The most common role assigned to siblings was that of a trained playmate (<i>n</i> = 11), followed by an untrained playmate (<i>n</i> = 5). Overall, the interventions reported positive outcomes, although sample sizes were small and variability in outcomes was high. None of the studies included adult participants and most (<i>n</i> = 28, 90.32%) included participants who had a diagnosis of Autism Spectrum Disorder (ASD). Over half of the studies reported participant experiences of the intervention, with most reporting positive experiences. Notwithstanding the reported positive outcomes of the interventions in this review, further research is needed to better understand the specific impact of involving siblings in interventions, as is research with adult participants and participants with diagnoses other than ASD.Implications for RehabilitationSiblings can fulfil a range of roles, (e.g., trained playmate, instructor, model), when participating in interventions for an individual with a disability. frequently with positive outcomes.While overall involving siblings in interventions seems to lead to positive outcomes, the specific effect of involving a sibling (rather than a peer or parent) in an intervention is not clear.Most of the available research has focused on children with a diagnosis of autism spectrum disorder and so the findings may not apply across all disability groups.It is important to acknowledge sibling opinions about taking part in such interventions to ensure all participants’ needs are being met. Siblings can fulfil a range of roles, (e.g., trained playmate, instructor, model), when participating in interventions for an individual with a disability. frequently with positive outcomes. While overall involving siblings in interventions seems to lead to positive outcomes, the specific effect of involving a sibling (rather than a peer or parent) in an intervention is not clear. Most of the available research has focused on children with a diagnosis of autism spectrum disorder and so the findings may not apply across all disability groups. It is important to acknowledge sibling opinions about taking part in such interventions to ensure all participants’ needs are being met.
DOI: 10.6084/m9.figshare.14657290
title: Cross-cultural translation and adaptation of the Danish version of the Fugl-Meyer assessment for post stroke sensorimotor function

description: The Fugl-Meyer assessment (FMA) is the most widely used and recommended clinical assessment scale for evaluating sensorimotor impairments in stroke patients, but an official Danish version has not been available. This study aimed to perform a standardized translation and cross-cultural adaptation (TCCA) of the FMA into Danish. First, a comprehensive eight-step TCCA procedure including forward and backward translation and step-wise reviewing by proof-reader and bilingual physiotherapists, to ensure conceptual and semantic equivalence was applied to develop a Danish version of the FMA. Second, inter-rater reliability of the Danish FMA was assessed in 10 subacute stroke patients. Svensson’s statistical method designed for rank-based paired ordinal data to identify items showing non-systematic or systematic disagreements in relative position or concentration was used to make further improvements on translation. A Danish FMA version was successfully made by the step-wise TCCA procedure. The clinical validation revealed satisfactory to excellent inter-tester reliability across all items (70–100%). Significant systematic disagreement either in position or concentration or both were observed in about 20% of the items. The Danish version of the FMA was translated and adapted allowing for a wider standardized use of the FMA in stroke rehabilitation in Denmark.Implications for rehabilitationThe Fugl–Meyer assessment (FMA) is the most used and recommended clinical assessment scale for evaluating sensorimotor impairments in stroke patients.The translated and adapted Danish version of the FMA is now available for use in research and clinical practice in Denmark.This allows for a standardized and unified description of stroke motor recovery and severity in neurorehabilitation nationwide as well as the possibility to compare and conduct trials using FMA internationally. The Fugl–Meyer assessment (FMA) is the most used and recommended clinical assessment scale for evaluating sensorimotor impairments in stroke patients. The translated and adapted Danish version of the FMA is now available for use in research and clinical practice in Denmark. This allows for a standardized and unified description of stroke motor recovery and severity in neurorehabilitation nationwide as well as the possibility to compare and conduct trials using FMA internationally.
DOI: 10.6084/m9.figshare.14657290.v1
title: Cross-cultural translation and adaptation of the Danish version of the Fugl-Meyer assessment for post stroke sensorimotor function

description: The Fugl-Meyer assessment (FMA) is the most widely used and recommended clinical assessment scale for evaluating sensorimotor impairments in stroke patients, but an official Danish version has not been available. This study aimed to perform a standardized translation and cross-cultural adaptation (TCCA) of the FMA into Danish. First, a comprehensive eight-step TCCA procedure including forward and backward translation and step-wise reviewing by proof-reader and bilingual physiotherapists, to ensure conceptual and semantic equivalence was applied to develop a Danish version of the FMA. Second, inter-rater reliability of the Danish FMA was assessed in 10 subacute stroke patients. Svensson’s statistical method designed for rank-based paired ordinal data to identify items showing non-systematic or systematic disagreements in relative position or concentration was used to make further improvements on translation. A Danish FMA version was successfully made by the step-wise TCCA procedure. The clinical validation revealed satisfactory to excellent inter-tester reliability across all items (70–100%). Significant systematic disagreement either in position or concentration or both were observed in about 20% of the items. The Danish version of the FMA was translated and adapted allowing for a wider standardized use of the FMA in stroke rehabilitation in Denmark.Implications for rehabilitationThe Fugl–Meyer assessment (FMA) is the most used and recommended clinical assessment scale for evaluating sensorimotor impairments in stroke patients.The translated and adapted Danish version of the FMA is now available for use in research and clinical practice in Denmark.This allows for a standardized and unified description of stroke motor recovery and severity in neurorehabilitation nationwide as well as the possibility to compare and conduct trials using FMA internationally. The Fugl–Meyer assessment (FMA) is the most used and recommended clinical assessment scale for evaluating sensorimotor impairments in stroke patients. The translated and adapted Danish version of the FMA is now available for use in research and clinical practice in Denmark. This allows for a standardized and unified description of stroke motor recovery and severity in neurorehabilitation nationwide as well as the possibility to compare and conduct trials using FMA internationally.
DOI: 10.6084/m9.figshare.14558717.v1
title: Development of an online implementation intervention for aphasia clinicians to increase the intensity and comprehensiveness of their service

description: To describe the process and outcome of a user and theory informed online intervention for speech pathologists targeting the implementation of intensive and comprehensive aphasia services. The design process followed the eight steps outlined by the Behaviour Change Wheel and incorporated the principles of Integrated Knowledge Translation (IKT). Eight speech pathology researchers and clinicians from four countries (Australia, Canada, the United Kingdom and Ireland) contributed to three focus groups <i>via</i> videoconference. The online platform, <i>Aphasia Nexus: Connecting Evidence to Practice</i>, provides resources, guidance and support for speech pathologists seeking to improve the intensity and comprehensiveness of their aphasia service. A collaborative and iterative design process facilitated the creation of an intervention envisioned by participants. The website contains both interactive elements and resource links which have been arranged under the three headings of resources, action and support. The inclusion of multi-national researchers and clinicians benefitted a design process to make implementation more likely.IMPLICATIONS FOR REHABILITATIONTheoretically informed implementation interventions aim to change the everyday clinical practice of health workers.An online platform has been developed to support speech pathologists’ implementation of intensive and comprehensive aphasia services.A collaborative design process can be beneficial in creating an intervention that is relevant to research-users and is more likely to be implemented. Theoretically informed implementation interventions aim to change the everyday clinical practice of health workers. An online platform has been developed to support speech pathologists’ implementation of intensive and comprehensive aphasia services. A collaborative design process can be beneficial in creating an intervention that is relevant to research-users and is more likely to be implemented.
DOI: 10.6084/m9.figshare.14558717
title: Development of an online implementation intervention for aphasia clinicians to increase the intensity and comprehensiveness of their service

description: To describe the process and outcome of a user and theory informed online intervention for speech pathologists targeting the implementation of intensive and comprehensive aphasia services. The design process followed the eight steps outlined by the Behaviour Change Wheel and incorporated the principles of Integrated Knowledge Translation (IKT). Eight speech pathology researchers and clinicians from four countries (Australia, Canada, the United Kingdom and Ireland) contributed to three focus groups <i>via</i> videoconference. The online platform, <i>Aphasia Nexus: Connecting Evidence to Practice</i>, provides resources, guidance and support for speech pathologists seeking to improve the intensity and comprehensiveness of their aphasia service. A collaborative and iterative design process facilitated the creation of an intervention envisioned by participants. The website contains both interactive elements and resource links which have been arranged under the three headings of resources, action and support. The inclusion of multi-national researchers and clinicians benefitted a design process to make implementation more likely.IMPLICATIONS FOR REHABILITATIONTheoretically informed implementation interventions aim to change the everyday clinical practice of health workers.An online platform has been developed to support speech pathologists’ implementation of intensive and comprehensive aphasia services.A collaborative design process can be beneficial in creating an intervention that is relevant to research-users and is more likely to be implemented. Theoretically informed implementation interventions aim to change the everyday clinical practice of health workers. An online platform has been developed to support speech pathologists’ implementation of intensive and comprehensive aphasia services. A collaborative design process can be beneficial in creating an intervention that is relevant to research-users and is more likely to be implemented.
DOI: 10.6084/m9.figshare.14678247
title: Mobile apps for dementia awareness, support, and prevention – review and evaluation

description: This review aimed to document the characteristics and appraise the quality of dementia applications (apps) to support persons living with dementia and their caregivers. Systematic searches of the Australian-based Google Play Store, Apple App Store, and relevant websites sought apps with dementia or Alzheimer’s information, support for caregivers and persons living with dementia, or prevention content. Apps were screened and subsequently appraised via the mobile application review system (MARS). The majority of the final 75 dementia apps were free to download, but were only available on a single platform. Persons involved in caregiving were the primary audience. App content focused on dementia information, practical caregiving, and communication tips. Language options in addition to English were limited and few apps offered ongoing support. MARS appraisal identified few apps with good “Overall Quality” scores. Apps that were more comprehensive trended towards higher MARS scores. A composite lack of standardised quality indicators and commercial drivers of the marketplace present significant barriers for consumers seeking meaningful dementia information and support. Persons living with dementia and their caregivers would significantly benefit from social and organisational services that assist with navigating the app marketplace.Implications for rehabilitationThere is significant opportunity for quality digital innovations, including apps, to support home-based, independent dementia care.A composite lack of standardised quality indicators and commercial drivers of the app marketplace present significant barriers for persons living with dementia and their caregivers who seek apps with dementia information and support.Social and organisational services can support the dementia community through assistance with navigating the app marketplace for quality dementia information and support. There is significant opportunity for quality digital innovations, including apps, to support home-based, independent dementia care. A composite lack of standardised quality indicators and commercial drivers of the app marketplace present significant barriers for persons living with dementia and their caregivers who seek apps with dementia information and support. Social and organisational services can support the dementia community through assistance with navigating the app marketplace for quality dementia information and support.
DOI: 10.6084/m9.figshare.14678247.v1
title: Mobile apps for dementia awareness, support, and prevention – review and evaluation

description: This review aimed to document the characteristics and appraise the quality of dementia applications (apps) to support persons living with dementia and their caregivers. Systematic searches of the Australian-based Google Play Store, Apple App Store, and relevant websites sought apps with dementia or Alzheimer’s information, support for caregivers and persons living with dementia, or prevention content. Apps were screened and subsequently appraised via the mobile application review system (MARS). The majority of the final 75 dementia apps were free to download, but were only available on a single platform. Persons involved in caregiving were the primary audience. App content focused on dementia information, practical caregiving, and communication tips. Language options in addition to English were limited and few apps offered ongoing support. MARS appraisal identified few apps with good “Overall Quality” scores. Apps that were more comprehensive trended towards higher MARS scores. A composite lack of standardised quality indicators and commercial drivers of the marketplace present significant barriers for consumers seeking meaningful dementia information and support. Persons living with dementia and their caregivers would significantly benefit from social and organisational services that assist with navigating the app marketplace.Implications for rehabilitationThere is significant opportunity for quality digital innovations, including apps, to support home-based, independent dementia care.A composite lack of standardised quality indicators and commercial drivers of the app marketplace present significant barriers for persons living with dementia and their caregivers who seek apps with dementia information and support.Social and organisational services can support the dementia community through assistance with navigating the app marketplace for quality dementia information and support. There is significant opportunity for quality digital innovations, including apps, to support home-based, independent dementia care. A composite lack of standardised quality indicators and commercial drivers of the app marketplace present significant barriers for persons living with dementia and their caregivers who seek apps with dementia information and support. Social and organisational services can support the dementia community through assistance with navigating the app marketplace for quality dementia information and support.
DOI: 10.6084/m9.figshare.21197452
title: erythroxylum_subrotundum_decontaminated_FSCR.fasta.gz

description: .......
DOI: 10.6084/m9.figshare.21197452.v1
title: erythroxylum_subrotundum_decontaminated_FSCR.fasta.gz

description: .......
DOI: 10.17632/w5f9kg7743.1
title: Municipal waste management cost and fee schemes 

description: Municipal waste management cost
DOI: 10.6084/m9.figshare.21194128
title: FunctionalConnectomeHubs

description: This dataset provides source data that support the findings of the article entitled "Meta-connectomic analysis maps consistent, reproducible, and transcriptionally-relevant functional connectome hubs in the human brain" by Xu et al. (2022) Communications Biology <br>
DOI: 10.6084/m9.figshare.21194128.v1
title: Functional Connectome Hubs

description: This dataset provides source data that support the findings of the article entitled "Meta-connectomic analysis maps consistent, reproducible, and transcriptionally-relevant functional connectome hubs in the human brain" by Xu et al. (2022) Communications Biology <br>
DOI: 10.5281/zenodo.7108419
title: Rac-1-phenylethylamine-electrospray ionization mass spectrometric data (supporting information)

description: Experimental ESI(+)-MS/MS data on the entitled compound. Supporting information file for publishing contribution.
DOI: 10.5281/zenodo.7108418
title: Rac-1-phenylethylamine-electrospray ionization mass spectrometric data (supporting information)

description: Experimental ESI(+)-MS/MS data on the entitled compound. Supporting information file for publishing contribution.
DOI: 10.5281/zenodo.7108399
title: Lizard thermoregulation revisited after two decades of global warming

description: Global warming should have a deep impact on thermoregulation by ectothermic animals such as lizards, because they rely on behavior to select the microhabitats that allow them to keep their body temperature within their preferred -and physiologically optimal- range of temperatures. However, there is a paucity of studies that use the same methods, after a long enough period of environmental warming, to evaluate how much the body temperatures and regulatory behaviors of a given population of lizards have been affected by climate change. We chose a population of <em>Psammodromus algirus</em> lizards inhabiting a well-conserved temperate open forest, and we compared several thermoregulation parameters between the summers of 1997 and 2017: Body temperatures (T<sub>b</sub>s) of field-active lizards, Environmental operative temperatures, that are the temperatures ‘available’ to lizards and can be estimated using randomly distributed physical models that integrate environmental heat loads (air and substrate temperature, solar radiation, wind speed, etc.) in the same way as lizards do, The extent to which both T<sub>b</sub>s and operative temperatures deviate from the summer ‘target’ range, which for this species is 32.8-36.9 ºC (the ‘target’ range, or T<sub>sel</sub>, is measured in a laboratory thermal gradient where lizards can select their T<sub>b</sub>s with no physical or biotic restrictions); and The selection (use as opposed to availability) of sunlit and shaded patches along the day, that can be estimated by comparing the distributions of lizards (use) and randomly positioned physical models (availability). Both T<sub>b</sub>s and environmental operative temperatures increased over the 20-years period examined; in 2017, 52% of field T<sub>b</sub>s (N = 65) were above the target range, in sharp contrast with the T<sub>b</sub>s selected by lizards in a laboratory thermal gradient, where only 2% of 43 T<sub>b</sub>s were above the target range. Also, the selection of shaded patches in the field (87% of lizards in full shade<em>, </em>against less than 1% in full sun) was more intense than in 1997. In spite of this, both T<sub>b</sub>s and their average distance to the target range were larger in 2017 (when only 8% of all available operative temperatures were within or below T<sub>sel</sub>) than in 1997 (when most shaded patches offered favourable thermal opportunities, with plenty of operative temperatures within or below T<sub>sel</sub>). Thus, our data suggest that the low availability of operative temperatures within or below T<sub>sel</sub>, at least in mid-summer days, is forcing lizards to reach T<sub>b</sub>s above their preferred range. This implies that the effects of global warming are already hindering the ability of reptiles to buffer environmental change by behavioral means (although lizards could compensate these detrimental effects by being active earlier in the year and/or enlarging their daily activity time in early spring or late autumn).