cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.28450867.v1
title: Views of people with MS regarding VR-exergaming to improve physical function and cognition: a qualitative study

description: To investigate the perceptions and experiences of people with MS (PwMS) regarding immersive VR-exergaming as a potential enhancement to rehabilitation programs. A qualitative descriptive approach explored the experiences of PwMS in Christchurch, New Zealand. Data were collected through semi-structured interviews during which participants (<i>n</i> = 6) trialed immersive VR-exergaming. Inductive reflexive thematic analysis interpreted their experiences. The study adhered to the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines. Three main themes identified: 1) Physical Activity for Fun, Fitness, and Wellness: Participants valued physical activity for symptom management but faced barriers like self-efficacy and accessibility. 2) Perceived Benefits of Rehabilitation: VR-exergaming was seen as a tool to improve physical capabilities, cognition, and alleviate fatigue. 3) The VR Gaming Experience, Perceptions Pre- and Post-VR Trial: Participants had varying familiarity with VR-exergaming but expressed positive perceptions, noting safety, cost, comfort, and setup challenges. PwMS value physical activity for maintaining abilities but face barriers like self-efficacy and accessibility. VR-exergaming received positive feedback for enhancing physical abilities. Safety and comfort issues need addressing. Further research should explore usability and effectiveness, considering the needs and preferences of PwMS. Multiple Sclerosis (MS) presents physical and cognitive impairments, impacting balance, fatigue, memory, and overall quality of life.VR-exergaming provides a motivating, accessible alternative to conventional MS rehabilitation exercises, particularly for enhancing balance and cognitive function.Rehabilitation programs that integrate enjoyable, engaging elements like VR-exergaming may improve adherence and address barriers such as low self-efficacy and accessibility. Multiple Sclerosis (MS) presents physical and cognitive impairments, impacting balance, fatigue, memory, and overall quality of life. VR-exergaming provides a motivating, accessible alternative to conventional MS rehabilitation exercises, particularly for enhancing balance and cognitive function. Rehabilitation programs that integrate enjoyable, engaging elements like VR-exergaming may improve adherence and address barriers such as low self-efficacy and accessibility.
DOI: 10.6084/m9.figshare.27331631
title: Psychometric validation of the Chinese version of the longer-term Unmet Needs after Stroke monitoring tool for stroke patients

description: This study aimed to translate, adapt, and test the psychometric properties of the Longer-term Unmet Needs after Stroke (LUNS) monitoring tool for Chinese stroke patients. The LUNS monitoring tool was translated and cross-culturally adapted using the Functional Assessment of Chronic Illness Therapy translation methodology and two rounds of expert consultation. A cross-sectional study was conducted to test the validity and reliability of the Chinese version of the tool from April to October 2023 in Xi’an. The Chinese version of the LUNS monitoring tool had a Cronbach’s alpha value of 0.702 and the ICC was 0.732 (<i>p</i> &lt; 0.001). The I-CVIs were above 0.90 and the S-CVI/Ave was 0.983. The factor analysis extracted eight factors, collectively accounting for 66.283% of the data variance. The correlation coefficient between the LUNS and WSO needs assessment questionnaire was 0.105 (<i>p</i> = 0.019). The study confirmed good reliability and validity of the Chinese version of the LUNS monitoring tool in measuring the prevalence and level of unmet need in stroke patients. It will help identify the unmet needs of stroke patients, and to guide rehabilitation service response during individual patient consultations, facilitate service development, and inform commissioning decisions. <i>Stroke</i>Stroke patients often suffer from physical, psychological and social disabilities, leading to significant challenges and a spectrum of unmet needs.Assessing patients’ unmet needs is crucial for their recovery.The Chinese version of the Longer-term Unmet Needs after Stroke monitoring tool has good reliability and validity.This tool will help identify the unmet needs of stroke patients, enabling healthcare professionals to provide more tailored interventions and ultimately improve patients’ recovery. Stroke patients often suffer from physical, psychological and social disabilities, leading to significant challenges and a spectrum of unmet needs. Assessing patients’ unmet needs is crucial for their recovery. The Chinese version of the Longer-term Unmet Needs after Stroke monitoring tool has good reliability and validity. This tool will help identify the unmet needs of stroke patients, enabling healthcare professionals to provide more tailored interventions and ultimately improve patients’ recovery.
DOI: 10.6084/m9.figshare.27331631.v1
title: Psychometric validation of the Chinese version of the longer-term Unmet Needs after Stroke monitoring tool for stroke patients

description: This study aimed to translate, adapt, and test the psychometric properties of the Longer-term Unmet Needs after Stroke (LUNS) monitoring tool for Chinese stroke patients. The LUNS monitoring tool was translated and cross-culturally adapted using the Functional Assessment of Chronic Illness Therapy translation methodology and two rounds of expert consultation. A cross-sectional study was conducted to test the validity and reliability of the Chinese version of the tool from April to October 2023 in Xi’an. The Chinese version of the LUNS monitoring tool had a Cronbach’s alpha value of 0.702 and the ICC was 0.732 (<i>p</i> &lt; 0.001). The I-CVIs were above 0.90 and the S-CVI/Ave was 0.983. The factor analysis extracted eight factors, collectively accounting for 66.283% of the data variance. The correlation coefficient between the LUNS and WSO needs assessment questionnaire was 0.105 (<i>p</i> = 0.019). The study confirmed good reliability and validity of the Chinese version of the LUNS monitoring tool in measuring the prevalence and level of unmet need in stroke patients. It will help identify the unmet needs of stroke patients, and to guide rehabilitation service response during individual patient consultations, facilitate service development, and inform commissioning decisions. <i>Stroke</i>Stroke patients often suffer from physical, psychological and social disabilities, leading to significant challenges and a spectrum of unmet needs.Assessing patients’ unmet needs is crucial for their recovery.The Chinese version of the Longer-term Unmet Needs after Stroke monitoring tool has good reliability and validity.This tool will help identify the unmet needs of stroke patients, enabling healthcare professionals to provide more tailored interventions and ultimately improve patients’ recovery. Stroke patients often suffer from physical, psychological and social disabilities, leading to significant challenges and a spectrum of unmet needs. Assessing patients’ unmet needs is crucial for their recovery. The Chinese version of the Longer-term Unmet Needs after Stroke monitoring tool has good reliability and validity. This tool will help identify the unmet needs of stroke patients, enabling healthcare professionals to provide more tailored interventions and ultimately improve patients’ recovery.
DOI: 10.6084/m9.figshare.27311956
title: The effects of resistance training on health-related physical fitness of people with down syndrome – A systematic review and meta-analysis

description: This overview of systematic reviews with meta-analysis aimed to summarize the effects of resistance training (RT) on physical fitness of people with Down syndrom (DS). A comprehensive search was conducted across multiple databases, including PubMed, Google Scholar, Cochrane, MEDLINE, Web of Science, and SPORTDiscus, up until January 30th, 2024. The search included key terms like resistance training, strength training, weight training, intellectual disability, and Down syndrome. The quality of the included studies was assessed using the Cochrane Collaboration assessment tool. Eighteen articles were reviewed, with nine included in the meta-analysis. The results demonstrated that RT interventions positively impacted physical fitness in individuals with DS, with significant improvements in both upper and lower limb strength and cardiorespiratory endurance, as indicated by VO<sub>2peak</sub> (<i>p</i> = 0.000). Eleven studies were classified as high quality with low risk of bias, four had some methodological concerns, and three non-randomized studies exhibited a high risk of bias. RT interventions appear to significantly enhance physical fitness, including muscle strength, functional abilities, cardiorespiratory fitness, and balance, among individuals with DS, regardless of variations in training methods or program designs. People with Down syndrome display lower physical fitness levels and participate in fewer physical activities compared to their typically developing peers.This reduced participation and fitness level contribute to a pattern of heightened sedentary behavior, which is evident across all age groups.Resistance training interventions exhibit the potential to significantly enhance physical fitness, encompassing improvements in body composition, muscle strength, functional abilities, cardiorespiratory fitness, and balance among individuals with down syndrome. People with Down syndrome display lower physical fitness levels and participate in fewer physical activities compared to their typically developing peers. This reduced participation and fitness level contribute to a pattern of heightened sedentary behavior, which is evident across all age groups. Resistance training interventions exhibit the potential to significantly enhance physical fitness, encompassing improvements in body composition, muscle strength, functional abilities, cardiorespiratory fitness, and balance among individuals with down syndrome.
DOI: 10.6084/m9.figshare.27311956.v1
title: The effects of resistance training on health-related physical fitness of people with down syndrome – A systematic review and meta-analysis

description: This overview of systematic reviews with meta-analysis aimed to summarize the effects of resistance training (RT) on physical fitness of people with Down syndrom (DS). A comprehensive search was conducted across multiple databases, including PubMed, Google Scholar, Cochrane, MEDLINE, Web of Science, and SPORTDiscus, up until January 30th, 2024. The search included key terms like resistance training, strength training, weight training, intellectual disability, and Down syndrome. The quality of the included studies was assessed using the Cochrane Collaboration assessment tool. Eighteen articles were reviewed, with nine included in the meta-analysis. The results demonstrated that RT interventions positively impacted physical fitness in individuals with DS, with significant improvements in both upper and lower limb strength and cardiorespiratory endurance, as indicated by VO<sub>2peak</sub> (<i>p</i> = 0.000). Eleven studies were classified as high quality with low risk of bias, four had some methodological concerns, and three non-randomized studies exhibited a high risk of bias. RT interventions appear to significantly enhance physical fitness, including muscle strength, functional abilities, cardiorespiratory fitness, and balance, among individuals with DS, regardless of variations in training methods or program designs. People with Down syndrome display lower physical fitness levels and participate in fewer physical activities compared to their typically developing peers.This reduced participation and fitness level contribute to a pattern of heightened sedentary behavior, which is evident across all age groups.Resistance training interventions exhibit the potential to significantly enhance physical fitness, encompassing improvements in body composition, muscle strength, functional abilities, cardiorespiratory fitness, and balance among individuals with down syndrome. People with Down syndrome display lower physical fitness levels and participate in fewer physical activities compared to their typically developing peers. This reduced participation and fitness level contribute to a pattern of heightened sedentary behavior, which is evident across all age groups. Resistance training interventions exhibit the potential to significantly enhance physical fitness, encompassing improvements in body composition, muscle strength, functional abilities, cardiorespiratory fitness, and balance among individuals with down syndrome.
DOI: 10.6084/m9.figshare.28333345
title: Outcome measurement instruments for adult brachial plexus injury: a systematic review of development and measurement properties

description: To review candidate outcome measurement instruments (OMIs) for the core outcome set (COS) for brachial plexus injury (BPI) and identify those with the strongest measurement properties. We conducted a PRISMA-compliant systematic review to identify studies on the measurement properties of domain-specific OMIs for adult BPI. OMIs with adequate content validity were further evaluated. Two independent reviewers assessed the methodological quality of each study using the COSMIN Risk of Bias checklist and assessed overall quality using a modified GRADE approach. Nineteen development/validation studies concerning nine OMIs were identified. The Brachial Assessment Tool (BrAT) and the Impact of Brachial Plexus Injury Questionnaire (IMBPIQ) (both measuring carrying out daily routine) had sufficient content validity to proceed to full evaluation. The BrAT had moderate quality evidence to support its psychometric properties. The IMBPIQ needs further research to evidence structural validity and internal consistency. The Brief Pain Inventory has strong psychometric properties in other populations and is recommended for the core measurement set (CMS) for chronic pain. The BrAT and the Brief Pain Inventory are recommended for inclusion in the BPI CMS. Further consensus work is needed to identify the most appropriate OMI for voluntary movement. Systematic Review Registration: PROSPERO (CRD42022307564). The Brachial Assessment Tool and the Brief Pain Inventory are recommended as outcome measurement instruments to assess two of the three core domains from the brachial plexus injury (BPI) core outcome set.Further consensus work is needed to agree appropriate measures for voluntary movement.These recommendations will facilitate evidence synthesis in adult BPI studies, by reducing measurement heterogeneity, thus improving the quality of evidence to inform best patient care. The Brachial Assessment Tool and the Brief Pain Inventory are recommended as outcome measurement instruments to assess two of the three core domains from the brachial plexus injury (BPI) core outcome set. Further consensus work is needed to agree appropriate measures for voluntary movement. These recommendations will facilitate evidence synthesis in adult BPI studies, by reducing measurement heterogeneity, thus improving the quality of evidence to inform best patient care.
DOI: 10.6084/m9.figshare.28333345.v1
title: Outcome measurement instruments for adult brachial plexus injury: a systematic review of development and measurement properties

description: To review candidate outcome measurement instruments (OMIs) for the core outcome set (COS) for brachial plexus injury (BPI) and identify those with the strongest measurement properties. We conducted a PRISMA-compliant systematic review to identify studies on the measurement properties of domain-specific OMIs for adult BPI. OMIs with adequate content validity were further evaluated. Two independent reviewers assessed the methodological quality of each study using the COSMIN Risk of Bias checklist and assessed overall quality using a modified GRADE approach. Nineteen development/validation studies concerning nine OMIs were identified. The Brachial Assessment Tool (BrAT) and the Impact of Brachial Plexus Injury Questionnaire (IMBPIQ) (both measuring carrying out daily routine) had sufficient content validity to proceed to full evaluation. The BrAT had moderate quality evidence to support its psychometric properties. The IMBPIQ needs further research to evidence structural validity and internal consistency. The Brief Pain Inventory has strong psychometric properties in other populations and is recommended for the core measurement set (CMS) for chronic pain. The BrAT and the Brief Pain Inventory are recommended for inclusion in the BPI CMS. Further consensus work is needed to identify the most appropriate OMI for voluntary movement. Systematic Review Registration: PROSPERO (CRD42022307564). The Brachial Assessment Tool and the Brief Pain Inventory are recommended as outcome measurement instruments to assess two of the three core domains from the brachial plexus injury (BPI) core outcome set.Further consensus work is needed to agree appropriate measures for voluntary movement.These recommendations will facilitate evidence synthesis in adult BPI studies, by reducing measurement heterogeneity, thus improving the quality of evidence to inform best patient care. The Brachial Assessment Tool and the Brief Pain Inventory are recommended as outcome measurement instruments to assess two of the three core domains from the brachial plexus injury (BPI) core outcome set. Further consensus work is needed to agree appropriate measures for voluntary movement. These recommendations will facilitate evidence synthesis in adult BPI studies, by reducing measurement heterogeneity, thus improving the quality of evidence to inform best patient care.
DOI: 10.6084/m9.figshare.28596779
title: Sleep and physical activity: the experiences of adults with cerebral palsy and recommendations for clinical practice

description: Adults with cerebral palsy (CP) face challenges maintaining physical activity and good sleep. This study explores their experiences and describes factors influencing sleep and physical activity. We conducted semi-structured interviews with fourteen adults aged 23 to 58, of whom thirteen were ambulant. Participants were recruited via the Dutch patient organization for individuals with CP. Data were analyzed using inductive qualitative content analysis. Three main themes emerged: balancing energy, rest and activity, and separate themes on sleep and physical activity. Balancing energy, rest and activity included subthemes of managing personal resources, interaction between sleep and physical activity, and presence of appropriate support and resources. Maintaining a healthy 24-h balance was crucial, yet participants often struggled achieving this balance and finding appropriate support. Experiences with sleep and physical activity were categorized into mental, physical, and environmental subthemes, which are closely interconnected. People with CP have difficulties with sleep, physical activity, and maintaining a healthy 24-h balance. Despite their motivation to maintain well-being, they often lack adequate support. Addressing these issues holistically can improve care and support for adults with CP. Youth rehabilitation services play a critical role in preparing adolescents with CP for adulthood by fostering self-management skills. Rehabilitation services should provide proactive education and guidance on sleep and physical activity to adolescents with cerebral palsy to better prepare them for aging-related changes.Healthcare professionals should recognize and address cerebral palsy-specific challenges related to sleep and physical activity, such as pain, spasms, sensitivity to stimuli, and fatigue.Improving sleep education for medical trainees and drawing on rehabilitation strategies from other populations can enhance care for adults with cerebral palsy. Rehabilitation services should provide proactive education and guidance on sleep and physical activity to adolescents with cerebral palsy to better prepare them for aging-related changes. Healthcare professionals should recognize and address cerebral palsy-specific challenges related to sleep and physical activity, such as pain, spasms, sensitivity to stimuli, and fatigue. Improving sleep education for medical trainees and drawing on rehabilitation strategies from other populations can enhance care for adults with cerebral palsy.
DOI: 10.6084/m9.figshare.28596779.v1
title: Sleep and physical activity: the experiences of adults with cerebral palsy and recommendations for clinical practice

description: Adults with cerebral palsy (CP) face challenges maintaining physical activity and good sleep. This study explores their experiences and describes factors influencing sleep and physical activity. We conducted semi-structured interviews with fourteen adults aged 23 to 58, of whom thirteen were ambulant. Participants were recruited via the Dutch patient organization for individuals with CP. Data were analyzed using inductive qualitative content analysis. Three main themes emerged: balancing energy, rest and activity, and separate themes on sleep and physical activity. Balancing energy, rest and activity included subthemes of managing personal resources, interaction between sleep and physical activity, and presence of appropriate support and resources. Maintaining a healthy 24-h balance was crucial, yet participants often struggled achieving this balance and finding appropriate support. Experiences with sleep and physical activity were categorized into mental, physical, and environmental subthemes, which are closely interconnected. People with CP have difficulties with sleep, physical activity, and maintaining a healthy 24-h balance. Despite their motivation to maintain well-being, they often lack adequate support. Addressing these issues holistically can improve care and support for adults with CP. Youth rehabilitation services play a critical role in preparing adolescents with CP for adulthood by fostering self-management skills. Rehabilitation services should provide proactive education and guidance on sleep and physical activity to adolescents with cerebral palsy to better prepare them for aging-related changes.Healthcare professionals should recognize and address cerebral palsy-specific challenges related to sleep and physical activity, such as pain, spasms, sensitivity to stimuli, and fatigue.Improving sleep education for medical trainees and drawing on rehabilitation strategies from other populations can enhance care for adults with cerebral palsy. Rehabilitation services should provide proactive education and guidance on sleep and physical activity to adolescents with cerebral palsy to better prepare them for aging-related changes. Healthcare professionals should recognize and address cerebral palsy-specific challenges related to sleep and physical activity, such as pain, spasms, sensitivity to stimuli, and fatigue. Improving sleep education for medical trainees and drawing on rehabilitation strategies from other populations can enhance care for adults with cerebral palsy.