cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.5281/zenodo.18463258
title: Dataset Documentation: Arts-Based Identity Reconstruction and Community Resonance (2026)

description: Title

Arts-Based Identity Reconstruction and Community Resonance: A Longitudinal Dataset of Non-Clinical Singing and Keyboard Participation for Life-Transitioning Adults (Empty Nest and Bereavement) - Taiwan and Australia (2025-2026)

⸻

Authors

Lai, Wei-Yi

⸻

Description

This dataset investigates the efficacy of non-clinical music engagement—encompassing singing, piano, and electronic keyboard—as a tool for identity reconstruction and emotional resilience among adults facing major life transitions, specifically Empty Nest Syndrome (ENS) and spousal loss (widowhood). Collected across diverse community settings in Taiwan and Australia, the data align with the 2026 global trend toward Social Prescribing (SP), which addresses social determinants of health and loneliness through community-based, non-pharmacological interventions .

The dataset captures multi-dimensional indicators:

1. Psychological & Emotional States: Self-reported mood regulation, resilience scores, and identity-shifts during bereavement processes .

2. Social Identification: The impact of group singing and collective keyboard sessions on community belonging and "Finding One's Voice".[1]

3. Practice & Engagement: Frequency of participation, repertoire selection (focusing on nostalgia and "Soundtracks of Life"), and technical mastery in non-competitive environments .

As Taiwan moves into a "hyper-aging society" and Australia expands its "Strengthening Medicare" policies through social prescribing, this dataset provides empirical evidence for policy-makers and educators to design dignity-preserving, sustainable music-care ecosystems .

⸻

Keywords

Empty nest syndrome; Widowhood; Bereavement; Social prescribing; Non-clinical music support; Identity reconstruction; Lifelong learning; Taiwan; Australia; Arts-based intervention; Community music therapy

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Language

English (eng)

⸻

License

Creative Commons Attribution 4.0 International (CC BY 4.0)

⸻

Funding

Self-funded practice-based research (aligned with WHO Western Pacific Healthy Ageing initiative [2]).

This framework is derived from the central design hub and explores a specific structural or contextual variation.
DOI: 10.60645/bdc-d9y5-96kk
title: NHLBI GO-ESP: Lung Cohorts Exome Sequencing Project (Lung Health Study of Chronic Obstructive Pulmonary Disease)

description: 
The NHLBI "Grand Opportunity" Exome Sequencing Project (GO-ESP), a signature project of the NHLBI Recovery Act investment, was designed to identify genetic variants in coding regions (exons) of the human genome (the "exome") that are associated with heart, lung and blood diseases. These and related diseases that are of high impact to public health and individuals from diverse racial and ethnic groups will be studied. These data may help researchers understand the causes of disease, contributing to better ways to prevent, diagnose, and treat diseases, as well as determine whether to tailor prevention and treatments to specific populations. This could lead to more effective treatments and reduce the likelihood of side effects. GO-ESP is comprised of five collaborative components: 3 cohort consortia - HeartGO, LungGO, and WHISP - and 2 sequencing centers - BroadGO and SeattleGO.

The Lung Health Study I was a randomized multicenter clinical trial with 5887 participants carried out from October 1986 to April 1994, designed to test the effectiveness of smoking cessation and bronchodilator administration in smokers aged 35 to 60 with mild lung function impairment. Participants were randomly assigned to one of three groups:  - usual care, who received no intervention - smoking intervention with the inhaled bronchodilator ipratroprium bromide - smoking intervention with an inhaled placebo  

The effect of intervention was evaluated by the rate of decline of forced expiratory volume in one second (FEV1).
DOI: 10.25504/fairsharing.59ad4f
title: FAIRsharing record for: FAIR Metric - Metadata Uses DDI Sampling Procedure Vocabulary
title: FM_Gen2-MI-I2A_M_DSPV

description: This FAIRsharing record describes:  Checks if certain information elements contain terms from the specified controlled vocabularies.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.5281/zenodo.18463257
title: Dataset Documentation: Arts-Based Identity Reconstruction and Community Resonance (2026)

description: Title

Arts-Based Identity Reconstruction and Community Resonance: A Longitudinal Dataset of Non-Clinical Singing and Keyboard Participation for Life-Transitioning Adults (Empty Nest and Bereavement) - Taiwan and Australia (2025-2026)

⸻

Authors

Lai, Wei-Yi

⸻

Description

This dataset investigates the efficacy of non-clinical music engagement—encompassing singing, piano, and electronic keyboard—as a tool for identity reconstruction and emotional resilience among adults facing major life transitions, specifically Empty Nest Syndrome (ENS) and spousal loss (widowhood). Collected across diverse community settings in Taiwan and Australia, the data align with the 2026 global trend toward Social Prescribing (SP), which addresses social determinants of health and loneliness through community-based, non-pharmacological interventions .

The dataset captures multi-dimensional indicators:

1. Psychological & Emotional States: Self-reported mood regulation, resilience scores, and identity-shifts during bereavement processes .

2. Social Identification: The impact of group singing and collective keyboard sessions on community belonging and "Finding One's Voice".[1]

3. Practice & Engagement: Frequency of participation, repertoire selection (focusing on nostalgia and "Soundtracks of Life"), and technical mastery in non-competitive environments .

As Taiwan moves into a "hyper-aging society" and Australia expands its "Strengthening Medicare" policies through social prescribing, this dataset provides empirical evidence for policy-makers and educators to design dignity-preserving, sustainable music-care ecosystems .

⸻

Keywords

Empty nest syndrome; Widowhood; Bereavement; Social prescribing; Non-clinical music support; Identity reconstruction; Lifelong learning; Taiwan; Australia; Arts-based intervention; Community music therapy

⸻

Language

English (eng)

⸻

License

Creative Commons Attribution 4.0 International (CC BY 4.0)

⸻

Funding

Self-funded practice-based research (aligned with WHO Western Pacific Healthy Ageing initiative [2]).

This framework is derived from the central design hub and explores a specific structural or contextual variation.
DOI: 10.15468/dl.7sy2sn
title: Occurrence Download

description: A dataset containing 184 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Bungarus flaviceps"
 ]
}

 The dataset includes 184 records from 31 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0016296-260129131611470/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25504/fairsharing.4e4752
title: FAIRsharing record for: FAIR Metric - Metadata Contains CESSDA Provenance Information
title: FM_R1-2_M_CPI

description: This FAIRsharing record describes:  Checks if certain elements containing provenance information (Creator, Funder and Publisher) appear in the metadata.
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.60645/bdc-9oqp-j7x3
title: STAMPEED: Myocardial Infarction Genetics Consortium (MIGen)

description: 
Myocardial infarction (MI) is a common complex disease and the leading cause of death and disability worldwide. The genetic basis of this disease is largely unknown. It has been thought that early-onset MI events would have a substantially greater heritability, thus making DNA collections with younger individuals desirable. More recently, genome-wide association studies have become feasible through the development of whole genome arrays and a large catalogue of common variants reported in the International HapMap database. This study aims to use Affymetrix genotyping platform to do a whole genome scan in 3000 early-onset MI cases and 3000 matched controls from 6 study collection sites.
DOI: 10.25504/fairsharing.bc9dde
title: FAIRsharing record for: FAIR Metric– F1-PID – Metadata - Identifiers use ARK, DOI, HANDLE or URN PID schemas
title: FM_F1-PID_M_CESSDA

description: This FAIRsharing record describes:  Evaluates a metadata record for the presence of an ID using an approved schema (CESSDA requires the use of ARK, DOI, HANDLE or URN PID schemas. Other schemas are considered invalid).
description: The source of this description is the metadata record on FAIRsharing.org, an educational and informative resource that describes and links databases, standards, and data policies. FAIRsharing also creates collections of these resources and recommendations of databases and standards based on 3rd party data policies.
DOI: 10.60645/bdc-kq66-7zl7
title: SNPs and Extent of Atherosclerosis (SEA) Study

description: 
The SEA study is a genome-wide association study to identify genetic variants associated with premature atherosclerosis in 	subjects included in the Pathobiological Determinants of Atherosclerosis in Youth (PDAY) repository - a unique NHLBI resource 	including data, DNA and arterial specimens from over 3000 multi-ethnic subjects 15-34 years of age who died of non-atherosclerotic 	causes (mostly trauma).  All PDAY subjects had post-mortem quantitative assessment of raised atherosclerotic lesions in their aorta 	and coronary arteries - making this the largest and most carefully phenotyped cohort for premature atherosclerosis in the world. 	The goal of the current project was to use the quantitative measure of raised atherosclerotic lesions in the PDAY cohort as the 	target phenotype for a genome-wide association study and to use quantitative measures of subclinical atherosclerosis (coronary 	calcium and carotid IMT) in the Multi-Ethnic Study of Atherosclerosis (MESA) to confirm or refute candidate loci identified from 	the PDAY analysis.  Identifying genetic factors that predispose individuals to premature atherosclerosis could lead to more 	effective screening and early treatment of high risk individuals and suggest novel molecular targets for treatment and prevention 	interventions.
DOI: 10.60645/bdc-l0j9-07sr
title: NHLBI GO-ESP Family Studies: Pulmonary Arterial Hypertension

description: 
The NHLBI "Grand Opportunity" Exome Sequencing Project (GO-ESP), a signature project of the NHLBI Recovery Act investment, was designed to identify genetic variants in coding regions (exons) of the human genome (the "exome") that are associated with heart, lung and blood diseases. These and related diseases that are of high impact to public health and individuals from diverse racial and ethnic groups will be studied. These data may help researchers understand the causes of disease, contributing to better ways to prevent, diagnose, and treat diseases, as well as determine whether to tailor prevention and treatments to specific populations. This could lead to more effective treatments and reduce the likelihood of side effects. GO-ESP is comprised of five collaborative components: 3 cohort consortia - HeartGO, LungGO, and WHISP - and 2 sequencing centers - BroadGO and SeattleGO.

Pulmonary arterial hypertension (PAH) is a progressive disease characterized by widespread occlusion of the smallest arteries of the lungs. Pulmonary vascular obstruction leads to increased pulmonary vascular resistance, which subsequently causes heart failure with mean survival of 3 years. PAH occurs at all ages and affects women more than twice as frequently as men. Sporadic Idiopathic pulmonary arterial hypertension (IPAH), comprises 94% of what was formerly known as primary pulmonary hypertension, and is clinically and pathologically indistinguishable from familial PAH (FPAH). Most FPAH is due to mutation in BMPR2, including more than 120 families in the US. Our goal here is to find other genes that are a basis for FPAH, so we selected for exome sequencing 5 families among 40 who do not have mutation in BMPR2, or other known genes (ACVRL1, SMAD8, ENG) that rarely are the basis for FPAH.
DOI: 10.60645/bdc-3zo7-6lu2
title: NHLBI GO-ESP: Family Studies: (Familial Atrial Fibrillation)

description: 
The NHLBI "Grand Opportunity" Exome Sequencing Project (GO-ESP), a signature project of the NHLBI Recovery Act investment, was designed to identify genetic variants in coding regions (exons) of the human genome (the "exome") that are associated with heart, lung and blood diseases. These and related diseases that are of high impact to public health and individuals from diverse racial and ethnic groups will be studied. These data may help researchers understand the causes of disease, contributing to better ways to prevent, diagnose, and treat diseases, as well as determine whether to tailor prevention and treatments to specific populations. This could lead to more effective treatments and reduce the likelihood of side effects. GO-ESP is comprised of five collaborative components: 3 cohort consortia - HeartGO, LungGO, and WHISP - and 2 sequencing centers - BroadGO and SeattleGO.

Large epidemiological studies have demonstrated a significant heritable component in atrial fibrillation (AF), especially the Lone forms, suggesting a monogenic syndrome. Although substantial genetic contribution has been made to the etiology of AF, the specific genes have not yet been identified. The familial form of this disease remains poorly characterized and largely undetermined. Here we seek to identify, characterize and determine the natural course of AF in our clinical practice. We identified four large multi-generation families (FAF 1-4). In FAF 1-2, most family members have symptomatic paroxysmal Atrial Fibrillation (AF) and were adequately treated with a combination of rate and rhythm therapies. By contrast, the AF substrate in FAF 3 and 4 was resistant to anti-arrhythmic drugs and ablation therapies.
DOI: 10.60645/bdc-7v1d-h30i
title: NHLBI: Cooperative Study of Sickle Cell Disease (CSSCD)

description: 
Phenotypic heterogeneity is characteristic of sickle cell anemia, a Mendelian disorder caused by      homozygosity for the sickle HBB gene (glu6val). Patients have different rates of hemolysis/vasculopathy      and viscosity/vasoocclusion-related complications. These complications account for a substantial reduction      in life expectancy. In 1994, the median life expectancy for men and women with sickle cell anemia was 42      and 48 years, respectively, and despite many advances in care, the annual mortality still approaches 4%.      Fetal hemoglobin (HbF) is one of the most studied markers of severity of sickle cell anemia, and detailed      longitudinal measurements were taken on subjects enrolled in the Cooperative Study of Sickle Cell      Disease (CSSCD). Cubic root transformation of the median values from follow-up in 848 African American      subjects is the phenotype data used in the GWAS of fetal hemoglobin. The analysis was adjusted by sex.      Details are in Solovieff et al., Blood 2010 [PMID:      [20018918](http://www.ncbi.nlm.nih.gov/pubmed/20018918)].

To integrate individual disease complications into a comprehensive measure of severity, we developed      a model of the associations among clinical and laboratory variables that scored disease severity as the      risk of death within 5 years. This network was developed using data obtained from more than 3,400 subjects      from the CSSCD, and its accuracy was validated in two unrelated sets of sickle cell patients. Recently,      the network was also validated in a small European cohort of patients with sickle cell anemia. We used      extreme values of disease severity as cases and control in the GWAS of severity of sickle cell anemia.      We conducted the GWAS in 1,265 patients with either "severe" (177) or "mild" disease (1088) based on      a network model of disease severity. Details are in Sebastiani et al. Am J Hematol, 2010 [PMID:      [20029952](http://www.ncbi.nlm.nih.gov/pubmed/20029952)].
DOI: 10.60645/bdc-561z-ti55
title: Genetic Epidemiology Network of Arteriopathy (GENOA)

description: 
**The Genetic Epidemiology Network of Arteriopathy (GENOA):**  GENOA is one of four research networks that form the NHLBI     Family Blood Pressure Program (FBPP).  From its inception in 1995, GENOA&#39;s long-term objective was to elucidate the genetics of     hypertension and its arteriosclerotic target-organ damage, including both atherosclerotic (macrovascular) and arteriolosclerotic     (microvascular) complications involving the heart, brain, kidneys, and peripheral arteries.  Two GENOA cohorts were originally     ascertained (1995-2000) through sibships in which at least 2 siblings had essential hypertension diagnosed prior to age 60 years.     All siblings in the sibship were invited to participate, both normotensive and hypertensive.  These include non-Hispanic White Americans     from Rochester, MN (n =1583 at the 1st exam) and African Americans from Jackson, MS (N=1854 at the 1st exam).  During the     second exam (2000-2005), approximately 80% of participants were re-recruited.  The GENOA data consists of biological samples     (DNA, serum, urine) as well as demographic, anthropometric, environmental, clinical, biochemical, physiological, and genetic data     for understanding the genetic predictors of diseases of the heart, brain, kidney, and peripheral arteries.

**Family Blood Pressure Program (FBPP):**  GENOA&#39;s parent program, the FBPP, is an unprecedented collaboration to     identify genes influencing blood pressure (BP) levels, hypertension, and its target-organ damage.  This program has conducted     over 21,000 physical examinations, assembled a shared database of several hundred BP and hypertension-related phenotypic measurements,     completed genome-wide linkage analyses for BP, hypertension, and hypertension associated risk factors and complications, and published     over 130 manuscripts on program findings.  The FBPP emerged from what was initially funded as four independent networks of investigators     (HyperGEN, GenNet, SAPPHIRe and GENOA) competing to identify genetic determinants of hypertension in multiple ethnic groups.  Realizing     the greater likelihood of success through collaboration, the investigators began working together during the first funding     cycle (1995-2000) and formalized this arrangement in the second cycle (2000-2005), creating a single confederation with program-wide     and network-specific goals.
DOI: 10.5517/ccdc.csd.cc21f72t
title: CCDC 1889545: Experimental Crystal Structure Determination

description: Related Article: Pasupathi Mani, Rajarajan Murugan, Venkatesan Kasi, Arockiadoss M, Santhi Namasivayam|2024|Acta Crystallogr.,Sect.E:Cryst.Commun.|44|1095|doi:10.1080/10406638.2023.2186443
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.15468/dl.nzhuu5
title: Occurrence Download

description: A dataset listing the 183195 species recorded in GBIF matching the query:
{
 "Country" : [
 "is Spain"
 ]
}

 The dataset's 183195 records were derived from 3289 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0016286-260129131611470/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.3886/icpsr37615.v1
title: Survey of Consumer Attitudes and Behavior, February 2016
title: Version 1

description: The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter.

The surveys conducted in February 2016 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, computers, and other durables. Also explored in this survey, were respondents' types of savings and financial investments, loan use, family income, and retirement planning.

Other topics in this series typically include ownership, and use of automobiles and respondents' familiarity with and use of the Internet. Demographic information includes ethnic origin, sex, age, marital status, and education.
description: The purpose of this survey series is to forecast changes in aggregate consumer behavior.
description: This survey is a rotating panel design. For each monthly sample, an independent cross-section sample of households is drawn. The respondents chosen in this drawing are then reinterviewed six months later. The result is a rotating panel design, and the total sample for any one survey is normally made up of 60 percent new respondents with 40 percent being interviewed for the second time.
description: The data are not weighted, however, this collection contains three weight variables; WT (Household head weight), WT_HH (Household weight), and WT_AD (Adult weight) that must be used in any analysis. For more information on weights and sampling, please refer to the documentation and/or visit the Surveys of Consumers Website.
description: National sample of telephone numbers from cell (RDD) sampling frame.
description: Datasets: 
DS0: Study-Level Files
DS1: Public-Use Data
DS2: Restricted-Use Data
description: Persons aged 18 years or older living in households with telephones within the coterminous United States. Smallest Geographic Unit: FIPS code
description: computer-assisted telephone interview (CATI)Information on the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations and how they were created can be found in the P.I. Codebook.Additional information can be found by visiting the Surveys of Consumers Website.
DOI: 10.5517/cc3tj7n
title: CCDC 113901: Experimental Crystal Structure Determination

description: Related Article: R.Nunez, C.Vinas, F.Teixidor, R.Sillanpaa, R.Kivekas|1999|J.Organomet.Chem.|592|22|doi:10.1016/S0022-328X(99)00472-6
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.