cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.26354545.v1
title: Supplementary Material for: Predicting outcomes after transplantation of deceased donor kidneys of marginal quality within the Eurotransplant service area

description: Introduction: Kidneys of marginal quality are increasingly being used to overcome the shortage of donor organs. However, accurate prediction of outcome is needed to optimise the use of these kidneys. We aimed to test the performance of a recently proposed score consisting of delayed graft function (DGF), renal function recovery (RFR), and glomerular filtration rate (GFR) &lt;30 ml/min per 1.73 m2 90 days after transplantation for risk assessment of patient and graft survival.

Material and Methods: A total of 221 adult brain death donors with marginal kidneys, transplanted into 223 recipients within Eurotransplant were included in the analysis. Multivariable Cox proportional hazards models were constructed to assess death-censored and all-cause censored graft failure and recipient mortality at one and three years.

Results: Recipients with DGF had a higher risk of death-censored graft loss (HR, 95%CIs: 3.058 (1.195 - 7.825)). Recipients with a GFR &lt;30ml/min/1.73m² at 90 days after transplantation had a higher risk of death censored and all-cause graft failure (HR, 95%CIs: 2.122 (1.129-3.990 and 2.122 (1.129 - 3.990)). None of the three components of the proposed score was associated with a higher risk of mortality.

Conclusion: DGF and eGFR &lt;30 ml/min/1.73m² but not RFR at 90 days predicted graft failure after transplantation of marginal kidneys. However, no combination of these factors was able to predict short-term patient and graft survival.
DOI: 10.5281/zenodo.10713659
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.10509914
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.10881644
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.11230622
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.12621512
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.13130856
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.13439855
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.10597418
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.5281/zenodo.11056611
title: Linked collectors and determiners for: Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean.

description: Natural history specimen data linked to collectors and determiners held within, "Placement of Arthonia rubrocincta in Coniocarpon (lichenized Ascomycota: Arthoniaceae), with an extended range for the species in southeastern North America and the Caribbean". Claims or attributions were made on Bionomia by volunteer Scribes, https://bionomia.net/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a using specimen data from the dataset aggregated by the Global Biodiversity Information Facility, https://gbif.org/dataset/35a20ccb-b7e3-412a-9dc9-443e71af4f4a. Formatted as a Frictionless Data package.
DOI: 10.6084/m9.figshare.26354545
title: Supplementary Material for: Predicting outcomes after transplantation of deceased donor kidneys of marginal quality within the Eurotransplant service area

description: Introduction: Kidneys of marginal quality are increasingly being used to overcome the shortage of donor organs. However, accurate prediction of outcome is needed to optimise the use of these kidneys. We aimed to test the performance of a recently proposed score consisting of delayed graft function (DGF), renal function recovery (RFR), and glomerular filtration rate (GFR) &lt;30 ml/min per 1.73 m2 90 days after transplantation for risk assessment of patient and graft survival.

Material and Methods: A total of 221 adult brain death donors with marginal kidneys, transplanted into 223 recipients within Eurotransplant were included in the analysis. Multivariable Cox proportional hazards models were constructed to assess death-censored and all-cause censored graft failure and recipient mortality at one and three years.

Results: Recipients with DGF had a higher risk of death-censored graft loss (HR, 95%CIs: 3.058 (1.195 - 7.825)). Recipients with a GFR &lt;30ml/min/1.73m² at 90 days after transplantation had a higher risk of death censored and all-cause graft failure (HR, 95%CIs: 2.122 (1.129-3.990 and 2.122 (1.129 - 3.990)). None of the three components of the proposed score was associated with a higher risk of mortality.

Conclusion: DGF and eGFR &lt;30 ml/min/1.73m² but not RFR at 90 days predicted graft failure after transplantation of marginal kidneys. However, no combination of these factors was able to predict short-term patient and graft survival.
DOI: 10.6084/m9.figshare.26354545.v3
title: Supplementary Material for: Predicting outcomes after transplantation of deceased donor kidneys of marginal quality within the Eurotransplant service area

description: Introduction: Kidneys of marginal quality are increasingly being used to overcome the shortage of donor organs. However, accurate prediction of outcome is needed to optimise the use of these kidneys. We aimed to test the performance of a recently proposed score consisting of delayed graft function (DGF), renal function recovery (RFR), and glomerular filtration rate (GFR) &lt;30 ml/min per 1.73 m2 90 days after transplantation for risk assessment of patient and graft survival.

Material and Methods: A total of 221 adult brain death donors with marginal kidneys, transplanted into 223 recipients within Eurotransplant were included in the analysis. Multivariable Cox proportional hazards models were constructed to assess death-censored and all-cause censored graft failure and recipient mortality at one and three years.

Results: Recipients with DGF had a higher risk of death-censored graft loss (HR, 95%CIs: 3.058 (1.195 - 7.825)). Recipients with a GFR &lt;30ml/min/1.73m² at 90 days after transplantation had a higher risk of death censored and all-cause graft failure (HR, 95%CIs: 2.122 (1.129-3.990 and 2.122 (1.129 - 3.990)). None of the three components of the proposed score was associated with a higher risk of mortality.

Conclusion: DGF and eGFR &lt;30 ml/min/1.73m² but not RFR at 90 days predicted graft failure after transplantation of marginal kidneys. However, no combination of these factors was able to predict short-term patient and graft survival.
DOI: 10.6084/m9.figshare.26354545.v2
title: Supplementary Material for: Predicting outcomes after transplantation of deceased donor kidneys of marginal quality within the Eurotransplant service area

description: Introduction: Kidneys of marginal quality are increasingly being used to overcome the shortage of donor organs. However, accurate prediction of outcome is needed to optimise the use of these kidneys. We aimed to test the performance of a recently proposed score consisting of delayed graft function (DGF), renal function recovery (RFR), and glomerular filtration rate (GFR) &lt;30 ml/min per 1.73 m2 90 days after transplantation for risk assessment of patient and graft survival.

Material and Methods: A total of 221 adult brain death donors with marginal kidneys, transplanted into 223 recipients within Eurotransplant were included in the analysis. Multivariable Cox proportional hazards models were constructed to assess death-censored and all-cause censored graft failure and recipient mortality at one and three years.

Results: Recipients with DGF had a higher risk of death-censored graft loss (HR, 95%CIs: 3.058 (1.195 - 7.825)). Recipients with a GFR &lt;30ml/min/1.73m² at 90 days after transplantation had a higher risk of death censored and all-cause graft failure (HR, 95%CIs: 2.122 (1.129-3.990 and 2.122 (1.129 - 3.990)). None of the three components of the proposed score was associated with a higher risk of mortality.

Conclusion: DGF and eGFR &lt;30 ml/min/1.73m² but not RFR at 90 days predicted graft failure after transplantation of marginal kidneys. However, no combination of these factors was able to predict short-term patient and graft survival.
DOI: 10.6084/m9.figshare.26384926
title: Supplementary Material for: Blood-based frailty index in patients with acute ischemic stroke undergoing endovascular treatment

description: Introduction: Frailty is a syndrome depicting vulnerability of multiple physiological systems to stressors. Frailty measures, such as Hospital Frailty Risk Score (HFRS), can be used to identify frailty and predict outcome more reliably. Our aim was to analyse a blood-based frailty index (FI-B) at admission for prediction outcome of patients with acute ischemic stroke (AIS) undergoing endovascular treatment (EVT).
Methods: We conducted a retrospective study of consecutive AIS patients undergoing EVT in a single tertiary centre during a period of five years. A set of eighteen blood parameters at admission were collected and nine of these were utilized to calculate FI-B. We analysed the relationship between FI-B and HFRS. We examined the baseline characteristics of the study population based on FI-B-tertiles. Multivariable regression models were employed to ascertain the association between FI-B and in-hospital mortality, 3-month mortality and 3-month functional outcome. 
Results: The final study population comprised 489 patients, with a median age of 75.6 years, 49.5% of patients were male. The FI-B exhibited a weak positive correlation with HFRS (rho=0.113, p=0.016). Patients in higher FI-B-tertiles were older and more frequently presented with pre-stroke functional dependence and comorbidities. Moreover, an increasing FI-B was independently associated with increased likelihood of in-hospital mortality (adjusted odds ratio [aOR]=1.29, 95% confidence interval [95%CI]=1.14-1.47), 3-month mortality (aOR=1.26, 95%CI=1.11-1.43), and of increasing 3-month functional disability measured by utility-weighted modified Rankin Scale (common aOR=0.84, 95%CI=0.76-0.93).
Conclusion: A frailty index based on blood values at admission was able to identify frailty in AIS patients undergoing EVT and was an independent predictor of short- and medium-term outcome after stroke.
DOI: 10.6084/m9.figshare.26384926.v1
title: Supplementary Material for: Blood-based frailty index in patients with acute ischemic stroke undergoing endovascular treatment

description: Introduction: Frailty is a syndrome depicting vulnerability of multiple physiological systems to stressors. Frailty measures, such as Hospital Frailty Risk Score (HFRS), can be used to identify frailty and predict outcome more reliably. Our aim was to analyse a blood-based frailty index (FI-B) at admission for prediction outcome of patients with acute ischemic stroke (AIS) undergoing endovascular treatment (EVT).
Methods: We conducted a retrospective study of consecutive AIS patients undergoing EVT in a single tertiary centre during a period of five years. A set of eighteen blood parameters at admission were collected and nine of these were utilized to calculate FI-B. We analysed the relationship between FI-B and HFRS. We examined the baseline characteristics of the study population based on FI-B-tertiles. Multivariable regression models were employed to ascertain the association between FI-B and in-hospital mortality, 3-month mortality and 3-month functional outcome. 
Results: The final study population comprised 489 patients, with a median age of 75.6 years, 49.5% of patients were male. The FI-B exhibited a weak positive correlation with HFRS (rho=0.113, p=0.016). Patients in higher FI-B-tertiles were older and more frequently presented with pre-stroke functional dependence and comorbidities. Moreover, an increasing FI-B was independently associated with increased likelihood of in-hospital mortality (adjusted odds ratio [aOR]=1.29, 95% confidence interval [95%CI]=1.14-1.47), 3-month mortality (aOR=1.26, 95%CI=1.11-1.43), and of increasing 3-month functional disability measured by utility-weighted modified Rankin Scale (common aOR=0.84, 95%CI=0.76-0.93).
Conclusion: A frailty index based on blood values at admission was able to identify frailty in AIS patients undergoing EVT and was an independent predictor of short- and medium-term outcome after stroke.
DOI: 10.6084/m9.figshare.26403892
title: Supplementary Material for: Genetic Testing of Patients with Inherited Retinal Diseases in the European Countries. An International Survey by the European Vision Institute

description: Introduction: The purpose of this project was to explore the current standards of clinical care genetic testing and counseling for patients with inherited retinal diseases (IRDs) from the perspective of leading experts in selected European countries. Also, to gather opinions on current bottlenecks and future solutions to improve patient care.
Methods: On the initiative of the European Vision Institute, a survey questionnaire with 41 questions was designed and sent to experts in the field from ten European countries. Each participant was asked to answer with reference to the situation in their own country.
Results: Sixteen questionnaires were collected by November 2023. IRD genetic tests are performed in clinical care settings for 80% or more of tested patients in 9 countries, and the costs of genetic tests in clinical care are covered by the public health service to the extent of 90% or more in 8 countries. The median proportion of patients who are genetically tested, the median rate of genetically solved patients among those who are tested, and the median proportion of patients receiving counseling are 51-70%, 61-80% and 61-80%, respectively. Improving the education of healthcare professionals who facilitate patient referrals to specialised centres, improving access of patients to more thorough genotyping, and increasing the number of available counselors were the most advocated solutions.
Conclusion: There is a significant proportion of IRD patients who are not genetically tested, whose genetic testing is inconclusive, or who do not receive counseling. Educational programs, greater availability of state-of-the-art genotyping and genetic counselors could improve healthcare for IRD patients.
DOI: 10.6084/m9.figshare.26403892.v1
title: Supplementary Material for: Genetic Testing of Patients with Inherited Retinal Diseases in the European Countries. An International Survey by the European Vision Institute

description: Introduction: The purpose of this project was to explore the current standards of clinical care genetic testing and counseling for patients with inherited retinal diseases (IRDs) from the perspective of leading experts in selected European countries. Also, to gather opinions on current bottlenecks and future solutions to improve patient care.
Methods: On the initiative of the European Vision Institute, a survey questionnaire with 41 questions was designed and sent to experts in the field from ten European countries. Each participant was asked to answer with reference to the situation in their own country.
Results: Sixteen questionnaires were collected by November 2023. IRD genetic tests are performed in clinical care settings for 80% or more of tested patients in 9 countries, and the costs of genetic tests in clinical care are covered by the public health service to the extent of 90% or more in 8 countries. The median proportion of patients who are genetically tested, the median rate of genetically solved patients among those who are tested, and the median proportion of patients receiving counseling are 51-70%, 61-80% and 61-80%, respectively. Improving the education of healthcare professionals who facilitate patient referrals to specialised centres, improving access of patients to more thorough genotyping, and increasing the number of available counselors were the most advocated solutions.
Conclusion: There is a significant proportion of IRD patients who are not genetically tested, whose genetic testing is inconclusive, or who do not receive counseling. Educational programs, greater availability of state-of-the-art genotyping and genetic counselors could improve healthcare for IRD patients.