DOI: 10.7910/dvn/ygvve4
title: Extracted Data From: CDC Lyme Disease Surveillance and Data

description: This submission includes publicly available data extracted in its original form. Please reference the Related Publication listed here for source and citation information &lt;br/&gt;&lt;br/&gt;

If you have questions about the underlying data stored here, please contact the Centers for Disease Control at https://www.cdc.gov/cdc-info/about-us/index.html. If you have questions or recommendations related to this metadata entry and extracted data, please contact the CAFE Data Management team at: climatecafe@bu.edu.

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&lt;blockquote&gt;"Lyme disease has been a nationally notifiable condition in the United States since 1991. Reports of Lyme disease are routinely collected and verified by state and local health departments in accordance with their legal mandate and surveillance practices. After removal of personal identifiers, selected information on cases is shared with CDC through the National Notifiable Diseases Surveillance System (NNDSS). Policies regarding case definitions, reporting, confidentiality, and data release are determined by states and territories under the auspices of the Council of State and Territorial Epidemiologists (CSTE). Surveillance data have a number of limitations that need to be considered in the analysis, interpretation, and reporting of results. 
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Limitations of surveillance data: &lt;br/&gt;&lt;br/&gt;
1.Under-reporting and misclassification are features common to all surveillance systems. Not every case of Lyme disease is reported to CDC, and some cases that are reported may be due to another cause.&lt;br/&gt;
2.Surveillance data are captured by county of residence, not county of exposure.&lt;br/&gt;
3.States may close their annual surveillance dataset at a different time than CDC. Thus, the final case counts published by CDC may not exactly match numbers published by each state agency for a given year.&lt;br/&gt;
4.Following its implementation in 1991, the national surveillance case definition for Lyme disease was modified in 1996, 2008, 2011, 2017, and again in 2022. Some of these changes impacted surveillance data and must be considered when attempting to interpret trends. Case definitions for each period are available."&lt;/blockquote&gt;
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 [Quote from https://www.cdc.gov/lyme/data-research/facts-stats/index.html]
description: This submission includes publicly available data extracted in its original form. Please reference the Related Publication listed here for source and citation information.

CDC Lyme Disease Surveillance and Data was downloaded by Amelia Jaycen on 03/24/25.
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