cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.27960225
title: Exploring the integration and patient engagement of balance home exercises in the daily management of multiple sclerosis: a comprehensive qualitative analysis

description: This study investigated the perceptions and experiences of patients with multiple sclerosis (MS) regarding a home-based balance exercises program, focusing on its practicality and perceived effects for daily management and the factors influencing its implementation. Employing a qualitative approach, semi-structured interviews were conducted with 18 patients with MS in Switzerland (13 women, 5 men; mean age 53 ± 11 years). The study used purposive sampling to ensure diverse representations. The exercise program included 19 tailored exercises, adapted by physiotherapists for each participant. Data analysis involved inductive thematic analysis to understand the practical implementation, challenges, and perceived benefits. Key themes emerged, such as adaptability of exercises, implementation variability, approaches to integration, facilitators, obstacles, and perceived effects. Adaptability to fluctuating symptoms, individual lifestyle impacts, and variability in exercise practices were notable. Facilitators included personalized support from physiotherapists, while obstacles ranged from fatigue to complex exercise variants. Perceived effects varied, with some patients reporting physical and psychological benefits. The study highlights diverse patient experiences with the balance exercises program. Key challenges included physical exertion and adapting to MS symptoms. Physiotherapists played a pivotal role in personalization and guidance. Despite challenges, patients demonstrated adaptability and proactive integration of exercises into their MS management.
DOI: 10.6084/m9.figshare.27960225.v1
title: Exploring the integration and patient engagement of balance home exercises in the daily management of multiple sclerosis: a comprehensive qualitative analysis

description: This study investigated the perceptions and experiences of patients with multiple sclerosis (MS) regarding a home-based balance exercises program, focusing on its practicality and perceived effects for daily management and the factors influencing its implementation. Employing a qualitative approach, semi-structured interviews were conducted with 18 patients with MS in Switzerland (13 women, 5 men; mean age 53 ± 11 years). The study used purposive sampling to ensure diverse representations. The exercise program included 19 tailored exercises, adapted by physiotherapists for each participant. Data analysis involved inductive thematic analysis to understand the practical implementation, challenges, and perceived benefits. Key themes emerged, such as adaptability of exercises, implementation variability, approaches to integration, facilitators, obstacles, and perceived effects. Adaptability to fluctuating symptoms, individual lifestyle impacts, and variability in exercise practices were notable. Facilitators included personalized support from physiotherapists, while obstacles ranged from fatigue to complex exercise variants. Perceived effects varied, with some patients reporting physical and psychological benefits. The study highlights diverse patient experiences with the balance exercises program. Key challenges included physical exertion and adapting to MS symptoms. Physiotherapists played a pivotal role in personalization and guidance. Despite challenges, patients demonstrated adaptability and proactive integration of exercises into their MS management.
DOI: 10.6084/m9.figshare.28130282
title: “Joint protection first”: understanding physiotherapists’ implementation of evidence-based interventions in osteoarthritis knee management—a qualitative study

description: To explore the factors that influence physiotherapists’ adherence to evidence-recommended interventions in the management of knee osteoarthritis. Using a qualitative descriptive design, we conducted semi-structured interviews with 15 physiotherapists across India. Participants were selected using purposive sampling to ensure diversity in experience and setting. We used inductive thematic analysis to explore emerging themes from the data, which were subsequently related to physiotherapists’ adherence to evidence-recommended interventions in knee OA management. We identified three main themes influencing physiotherapists’ adherence to evidence-based care: biomechanical bias in decision-making, the influence of patient perceptions and preferences, and systemic challenges specific to healthcare settings. A significant biomechanical bias led to an emphasis on prioritizing joint protection strategies. Patient perceptions and demands, often influenced by trust in medical professionals over physiotherapists, pose significant challenges in aligning treatment with evidence-based practices. Systemic issues, including workload and infrastructural limitations, further complicate the delivery of effective OA care. This study illustrates the multifaceted barriers to implementing evidence-based interventions for knee OA among Indian physiotherapists. Addressing these challenges through context-specific knowledge translation strategies is critical for advancing evidence-based, patient-centered OA knee management. Understanding why physiotherapists deviate from evidence-based recommendations in knee osteoarthritis (OA) management remains a critical gap in the literature A predominant biomechanical focus, rooted in traditional physiotherapy education, may limit OA management decisions Patients’ understanding and beliefs about treatment significantly impact adherence to evidence-based interventions. High workload and inadequate infrastructure are key constraints that necessitate systemic changes to support evidence-based practice.
DOI: 10.6084/m9.figshare.28130282.v1
title: “Joint protection first”: understanding physiotherapists’ implementation of evidence-based interventions in osteoarthritis knee management—a qualitative study

description: To explore the factors that influence physiotherapists’ adherence to evidence-recommended interventions in the management of knee osteoarthritis. Using a qualitative descriptive design, we conducted semi-structured interviews with 15 physiotherapists across India. Participants were selected using purposive sampling to ensure diversity in experience and setting. We used inductive thematic analysis to explore emerging themes from the data, which were subsequently related to physiotherapists’ adherence to evidence-recommended interventions in knee OA management. We identified three main themes influencing physiotherapists’ adherence to evidence-based care: biomechanical bias in decision-making, the influence of patient perceptions and preferences, and systemic challenges specific to healthcare settings. A significant biomechanical bias led to an emphasis on prioritizing joint protection strategies. Patient perceptions and demands, often influenced by trust in medical professionals over physiotherapists, pose significant challenges in aligning treatment with evidence-based practices. Systemic issues, including workload and infrastructural limitations, further complicate the delivery of effective OA care. This study illustrates the multifaceted barriers to implementing evidence-based interventions for knee OA among Indian physiotherapists. Addressing these challenges through context-specific knowledge translation strategies is critical for advancing evidence-based, patient-centered OA knee management. Understanding why physiotherapists deviate from evidence-based recommendations in knee osteoarthritis (OA) management remains a critical gap in the literature A predominant biomechanical focus, rooted in traditional physiotherapy education, may limit OA management decisions Patients’ understanding and beliefs about treatment significantly impact adherence to evidence-based interventions. High workload and inadequate infrastructure are key constraints that necessitate systemic changes to support evidence-based practice.
DOI: 10.6084/m9.figshare.28703012
title: Co-designing the “Adherence Counselling Toolkit (ACT now)” to promote exercise adherence of survivors of stroke

description: Exercise post-stroke is important; however, adherence has been shown to decrease over time. This study was designed to explore health behaviours in survivors of stroke and exercise prescription in health professionals to inform the development of an “Adherence Counselling Toolkit”, supporting health professionals working with survivors of stroke. Mixed-methods co-design was conducted in two stages, guided by an Integrated Knowledge Translation approach. The toolkit was based on the Capability, Opportunity, and Motivation-Behaviour model. Stage 1 involved exploring exercise behaviours of survivors of stroke and exercise prescription in health professionals through surveys. Stage 2 involved co-designing the toolkit through focus groups and engagement of a stakeholder working group. One hundred and sixty-four survey responses were included. Survey findings informed the focus groups (<i>n</i> = 29 participants), where five key themes were identified; key issues impacting adherence, barriers to adherence, what could promote adherence, skills and knowledge required by the health professionals and toolkit content. The stakeholder working group worked with the research team and a designer, providing recommendations regarding the toolkit content, format, and design. Development of the “Adherence Counselling Toolkit” was guided by a rigorous co-design process to support health professionals with improving exercise adherence in survivors of stroke. Health outcomes for survivors of stroke may be improved with better adherence to exercise.Resources to support adherence to exercise are needed.A co-design process, incorporating the needs and preferences of all key stakeholders has guided the development of the Adherence Counselling Toolkit.The Adherence Counselling Toolkit needs to be evaluated to ensure its feasibility and benefit for health professionals working with survivors of stroke. Health outcomes for survivors of stroke may be improved with better adherence to exercise. Resources to support adherence to exercise are needed. A co-design process, incorporating the needs and preferences of all key stakeholders has guided the development of the Adherence Counselling Toolkit. The Adherence Counselling Toolkit needs to be evaluated to ensure its feasibility and benefit for health professionals working with survivors of stroke.
DOI: 10.6084/m9.figshare.28703012.v1
title: Co-designing the “Adherence Counselling Toolkit (ACT now)” to promote exercise adherence of survivors of stroke

description: Exercise post-stroke is important; however, adherence has been shown to decrease over time. This study was designed to explore health behaviours in survivors of stroke and exercise prescription in health professionals to inform the development of an “Adherence Counselling Toolkit”, supporting health professionals working with survivors of stroke. Mixed-methods co-design was conducted in two stages, guided by an Integrated Knowledge Translation approach. The toolkit was based on the Capability, Opportunity, and Motivation-Behaviour model. Stage 1 involved exploring exercise behaviours of survivors of stroke and exercise prescription in health professionals through surveys. Stage 2 involved co-designing the toolkit through focus groups and engagement of a stakeholder working group. One hundred and sixty-four survey responses were included. Survey findings informed the focus groups (<i>n</i> = 29 participants), where five key themes were identified; key issues impacting adherence, barriers to adherence, what could promote adherence, skills and knowledge required by the health professionals and toolkit content. The stakeholder working group worked with the research team and a designer, providing recommendations regarding the toolkit content, format, and design. Development of the “Adherence Counselling Toolkit” was guided by a rigorous co-design process to support health professionals with improving exercise adherence in survivors of stroke. Health outcomes for survivors of stroke may be improved with better adherence to exercise.Resources to support adherence to exercise are needed.A co-design process, incorporating the needs and preferences of all key stakeholders has guided the development of the Adherence Counselling Toolkit.The Adherence Counselling Toolkit needs to be evaluated to ensure its feasibility and benefit for health professionals working with survivors of stroke. Health outcomes for survivors of stroke may be improved with better adherence to exercise. Resources to support adherence to exercise are needed. A co-design process, incorporating the needs and preferences of all key stakeholders has guided the development of the Adherence Counselling Toolkit. The Adherence Counselling Toolkit needs to be evaluated to ensure its feasibility and benefit for health professionals working with survivors of stroke.
DOI: 10.6084/m9.figshare.26935584
title: Digital motor intervention effects on physical activity performance of individuals with developmental disabilities: a systematic review

description: Post-pandemic, use of digital technologies (e.g., mobile app, Zoom, virtual reality, and videogaming) to promote physical activity (PA) in populations with intellectual and developmental disabilities (IDD) has increased. The efficacy of various digital technologies in promoting PA in individuals with IDD varies. We conducted a systematic review to examine current literature findings on the efficacy of digital PA interventions on PA outcomes in individuals with IDD. Articles published between 1900 and 2024 that examined effects of technology-based PA interventions on PA levels/fitness of individuals with IDD using experimental or quasi-experimental study designs were included. Sixteen articles were retrieved from four health databases PubMed (914), PsycInfo (1201), SCOPUS (1910), and CINAHL (948). Findings based on 604 participants (Autism: 383; Down Syndrome: 106; Developmental Disability: 83, Developmental Coordination Disorder: 37) provide the most support for exergaming/digital PA intervention benefits for populations with ID, Down Syndrome, and Autism; however, there was limited support for its use in those without ID (e.g., DCD). Digital technology is an effective tool to promote improvements in PA/fitness, motor, cardiovascular performance in individuals with ID. Future studies need to build on this evidence to support the use of PA outcomes in individuals with different IDD diagnoses. Individuals with intellectual and developmental disabilities (IDD) are more physically inactive compared to peers without IDD.Exercise and physical activity are effective modalities to improve health and well-being of individuals with IDD.Exergaming/digital technologies are a promising option to promote physical activity in individuals with IDD, specifically, in children with Down Syndrome and Autism Spectrum Disorder.This is the first review comparing effects of exergaming/digital technologies on physical activity outcomes of individuals with and without intellectual disabilities. Individuals with intellectual and developmental disabilities (IDD) are more physically inactive compared to peers without IDD. Exercise and physical activity are effective modalities to improve health and well-being of individuals with IDD. Exergaming/digital technologies are a promising option to promote physical activity in individuals with IDD, specifically, in children with Down Syndrome and Autism Spectrum Disorder. This is the first review comparing effects of exergaming/digital technologies on physical activity outcomes of individuals with and without intellectual disabilities.
DOI: 10.6084/m9.figshare.26935584.v1
title: Digital motor intervention effects on physical activity performance of individuals with developmental disabilities: a systematic review

description: Post-pandemic, use of digital technologies (e.g., mobile app, Zoom, virtual reality, and videogaming) to promote physical activity (PA) in populations with intellectual and developmental disabilities (IDD) has increased. The efficacy of various digital technologies in promoting PA in individuals with IDD varies. We conducted a systematic review to examine current literature findings on the efficacy of digital PA interventions on PA outcomes in individuals with IDD. Articles published between 1900 and 2024 that examined effects of technology-based PA interventions on PA levels/fitness of individuals with IDD using experimental or quasi-experimental study designs were included. Sixteen articles were retrieved from four health databases PubMed (914), PsycInfo (1201), SCOPUS (1910), and CINAHL (948). Findings based on 604 participants (Autism: 383; Down Syndrome: 106; Developmental Disability: 83, Developmental Coordination Disorder: 37) provide the most support for exergaming/digital PA intervention benefits for populations with ID, Down Syndrome, and Autism; however, there was limited support for its use in those without ID (e.g., DCD). Digital technology is an effective tool to promote improvements in PA/fitness, motor, cardiovascular performance in individuals with ID. Future studies need to build on this evidence to support the use of PA outcomes in individuals with different IDD diagnoses. Individuals with intellectual and developmental disabilities (IDD) are more physically inactive compared to peers without IDD.Exercise and physical activity are effective modalities to improve health and well-being of individuals with IDD.Exergaming/digital technologies are a promising option to promote physical activity in individuals with IDD, specifically, in children with Down Syndrome and Autism Spectrum Disorder.This is the first review comparing effects of exergaming/digital technologies on physical activity outcomes of individuals with and without intellectual disabilities. Individuals with intellectual and developmental disabilities (IDD) are more physically inactive compared to peers without IDD. Exercise and physical activity are effective modalities to improve health and well-being of individuals with IDD. Exergaming/digital technologies are a promising option to promote physical activity in individuals with IDD, specifically, in children with Down Syndrome and Autism Spectrum Disorder. This is the first review comparing effects of exergaming/digital technologies on physical activity outcomes of individuals with and without intellectual disabilities.
DOI: 10.6084/m9.figshare.29039672
title: Dutch translation, cross-cultural adaptation, validation, and reliability of the Back Pain Attitudes Questionnaire (Back-PAQ)

description: To translate and cross-culturally adapt the Back Pain Attitudes Questionnaire (Back-PAQ) to Dutch for the Belgian and Dutch populations, and to investigate its measurement properties in the general population and physiotherapists. The adaptation followed established guidelines. Content validity, internal consistency, test–retest reliability (intraclass correlation coefficient), floor and ceiling effects, minimal detectable change (MDC), construct validity, and structural validity were assessed in physiotherapists and the general population. The modified Fear-Avoidance Beliefs Questionnaire (mFABQ) investigated the Back-PAQ’s convergent validity, and Confirmatory Factor Analysis evaluated structural validity. Discriminant validity was assessed between physiotherapists and the general population. Two hundred and sixty participants (mean age: 29 ± 13.3) completed the initial survey and 147 completed the test–retest survey. All Back-PAQ versions (34-item, 20-item, and 10-item) demonstrated good internal consistency, good to excellent test–retest reliability. Moderate correlations with the mFABQ (<i>p</i> &lt; 0.001) and adequate discriminant validity between physiotherapists and the general population supported robust construct validity. The Back-PAQ 10 exhibited a good model fit and enables meaningful sub-score comparisons. This collaboration produced a validated Dutch Back-PAQ suitable for use in both the Netherlands and Belgium. All versions demonstrated robust measurement properties, supporting their use in clinical and research settings assessing unhelpful beliefs in back pain management. The Dutch Back Pain Attitudes Questionnaire (Back-PAQ) exhibits strong measurement properties, supporting its application in both clinical practice and research contexts.The Dutch translation of the Back-PAQ demonstrates good to excellent reliability and construct validity, making it suitable for health-care practitioners to assess recovery-impeding beliefs about back pain within the general population.The factor structure of the 10-item version of the Back-PAQ 10 has been further analysed using a Confirmatory Factor Analysis, facilitating a practical comparison of its sub-score outcomes in a clinical setting. The Dutch Back Pain Attitudes Questionnaire (Back-PAQ) exhibits strong measurement properties, supporting its application in both clinical practice and research contexts. The Dutch translation of the Back-PAQ demonstrates good to excellent reliability and construct validity, making it suitable for health-care practitioners to assess recovery-impeding beliefs about back pain within the general population. The factor structure of the 10-item version of the Back-PAQ 10 has been further analysed using a Confirmatory Factor Analysis, facilitating a practical comparison of its sub-score outcomes in a clinical setting.