DOI: 10.3886/icpsr03678.v2
title: Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data
title: Version 2

description: Resources for Enhancing Alzheimer's Caregiver Health
(REACH) was established in 1995 to conduct social and behavioral
research on interventions designed to enhance family caregiving,
particularly in minority families, for persons with Alzheimer's
Disease and related disorders. Baseline data (ICPSR 3253) were
collected through randomized clinical trials at six sites: University
of Alabama-Birmingham, The Research and Training Institute of the
Hebrew Rehabilitation Center for Aged in Boston, University of
Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto
Health Care System and Stanford University, and Thomas Jefferson
University in Philadelphia. Interventions such as psychoeducational
support groups, behavioral skills training programs, family-based
systems interventions, environmental modifications, and technological
computer-based information and communication services varied by site.
This collection contains baseline data along with follow-up data at
6-, 12-, and 18-month intervals from each site with focus on the
impact of the various intervention strategies on psychological
distress, health status, health practices, and health care
utilization. Also included are follow-up batteries, transition
batteries (placement, bereavement, discontinued), and data reporting
missed visits. Parts 1 through 5 contain screening data and responses
to a short mental status questionnaire. Parts 6 through 34 contain
baseline data along with follow-up data at 6, 12, and 18-month
intervals and cover activities of daily living, anxiety, and caregiver
health and health behaviors along with sociodemographic information.
Also included are care recipient medications and sociodemographic
information. Parts 35 through 40 contain tracking data and also
include an examination of interventions.
description: Convenience sample with recruitment strategies varying at
each site.
description: Datasets: 
DS0: Study-Level Files
DS1: Screening Log Sheet
DS2: Screening
DS3: Rescreen
DS4: Repeat Screen
DS5: Short Portable Mental Status Questionnaire
DS6: ADL/IADL
DS7: Anxiety Inventory
DS8: Bereavement Form
DS9: Bereavement--Religiosity
DS10: Bereavement--Sociodemographic
DS11: Caregiver Health and Health Behaviors
DS12: Core Quality Form
DS13: Intervention Delivery Assessment
DS14: Formal Care and Services
DS15: Caregiver Medications
DS16: Caregiver Sociodemographic Information
DS17: Identification Number
DS18: Interview Time
DS19: Revised Memory and Behavior Checklist
DS20: Mini Mental State Examination
DS21: Positive Aspects of Caregiving
DS22: Placement Form
DS23: Placement--Sociodemographic
DS24: Religiosity
DS25: Care Recipient Medications
DS26: Care Recipient Sociodemographic Information
DS27: Social Activities
DS28: Bereavement--Social Support
DS29: Center for Epidemiologic Studies--Depression
DS30: Social Support
DS31: Follow-Up--Sociodemographic 
DS32: Follow-Up--Religiosity
DS33: Transition--Formal Care Services
DS34: Vigilance
DS35: Care Recipient Tracking
DS36: Discontinued Data
DS37: Intervention Assignment
DS38: Interventionist Characteristics
DS39: Off Protocol
DS40: Project Evaluation
description: Family caregivers living with persons with dementia for at
least six months in Birmingham, AL, Boston, MA, Memphis, TN, Miami,
FL, Palo Alto, CA, and Philadelphia, PA.