cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.17026/dans-xj6-tccz
title: Poor understanding of allergen labelling by allergic and non-allergic consumers

description: Background. Understanding consumers’ interpretation of allergy information is crucial for effective food safety policies. We evaluated consumer understanding of allergy information on foods in controlled, experimental studies.Method. Using 18 packaged foods, we evaluated consumer understanding of information about allergens in 2 experiments. First, a comparison of foods with no stated allergen versus allergen as a stated ingredient versus a Precautionary Allergen Label (PAL); second, a comparison of 3 common variants of PAL. In each experiment, consumers with and without self-reported food allergy were asked to estimate the risk of allergic reaction and to rate the comprehensibility of the allergen information. In the second experiment, consumers were also asked which form of PAL they preferred.Results. Risk of reaction was assessed as high and low for foods with the allergen stated as ingredient, or without any mention of allergen. However risk assessment for PAL varied and was judged as higher by non-allergic than allergic participants (82% vs. 58%, p &lt; .001). Understanding of risk associated with PAL also varied by health literacy (p &lt; .001). Both allergic and non-allergic consumers judged all forms of allergy information to be unclear, especially products with no allergy information for non-allergic consumers. Products with a ‘Produced in a Factory’ PAL were perceived as less risky than ’May contain’ or ’Traces of’ PALs (p &lt; .001), less than 40% of participants judged PAL information to be comprehensible, and participants preferred ’May contain’ over the other PALs.Conclusion. Both allergic and non-allergic consumers find allergen information difficult to interpret on packaged foods, and misunderstand PAL, incorrectly distinguishing different risk levels for different PAL wording. Clearer allergy information guidelines are called for, and the use of only one PAL wording is recommended.
DOI: 10.17026/dans-zre-tggd
title: Mapping tick dynamics and tick bite risk using data-driven approaches and volunteered observations

description: This deposit contains the materials used during the development of this PhD thesis. During this research, we applied machine learning methods to obtain new insights about tick dynamics and tick bite risk in the Netherlands. We combined volunteered data sources coming from two citizen science projects with a wide array of environmental variables (e.g. weather, remote sensing, official geodata) to devise models capable of predicting the risk of tick bite or daily tick activity at the national level. We hope that this research and the associated materials can be inspiring for future researchers.
DOI: 10.17026/dans-zdq-b8vz
title: FEM growth and yield data uneven-aged - Beech-oak

description: The current database is part of the FEM growth and yield database, a collection of growth and yield data from even-aged monocultures (douglas fir, common oak, poplar, Japanese Larch, Norway spruce, Scots pine, Corsican pine, Austrian pine, red oak and several other species, with only a few plots, even-aged mixed species forest plots, uneven-aged natural forest, uneven-aged selection forest and roadside plantattions of poplar. The FEM growth and yield data base is currently supervised by Jan den Ouden and Frits Mohren.
DOI: 10.17026/dans-zkq-kanf
title: WikiPathways

description: WikiPathways is a continuously updated, and machine readable database of biological pathways. These pathways describe which genes, protein, and metabolites interact with each other to give rise to a biological process. Using identifiers for these three biological entities, links to other life sciences data bases are made (Uniprot, NCBI, Ensembl, HMDB, etc). It also allows mapping experimental omics data to be visualized on top of these pathways. From the WikiPathways Website all data is available under a Creative Commons Attribution license. This current dataset is a release created on the basis of the pathways from November 11, 2015.
DOI: 10.17026/dans-xsm-xqfk
title: Drivers and perceived constraints on Dutch dairy farms to engage in disease prevention

description: While prevention is increasingly important in the dairy sector, implementation of cost-effective preventive measures is often lacking. To increase the use of these measures and consequently improve animal welfare and reduce financial losses for farmers, it is necessary to know the drivers and constraints of farmers to engage in prevention. Therefore, we invited farmers to participate in an online questionnaire, which contained questions about their behavior towards either claw health or calf health. We used the theory form the Stage of Change model, COM-B, as well as the Theory of Planned Behavior to formulate our questions. We used the responses of 226 farmers in our analyses, who were equally distributed over the two groups of diseases. We found that 63.5% of responding farmers were in the action phase or the maintenance phase to prevent claw diseases and even more (85.4%) to prevent calf diseases. The responses also suggest that many farmers have the knowledge and skills to implement preventive measures for both claw and calf diseases. The scores for social and physical opportunities for calf diseases were significantly higher than for claw diseases and all other COM-B components were also numerically higher for calf diseases. This suggests that farmers’ perception of taking preventive measures against claw diseases is more difficult than taking preventive measures against calf disease. The automation of preventive behavior scored relatively low for both groups of diseases, which suggests that farmers may need reminders to persist in their activities and support to create habitual prevention behaviors. From these results, we concluded that creating social norms, supporting discussions among farmers, and using environmental adaptations may result in more preventive behavior.
DOI: 10.17026/dans-z7d-uskj
title: PROFILES registry: Quality of life non-Hodgkin lymphoma May 2009

description: The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: http://www.profilesregistry.nlIn 2009 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with non-Hodgkin lymphoma.The questionnaire was submitted to 898 patients who were diagnosed with endometrial cancer between 1999 and 2008. 715 patients completed the questionnaire.Questionnaires used:- Fill in Date- General Questions- Work- Cancer and Care- Comorbidity- EORTC-QLQ-C30 (version 3)- EORTC-disease specific lymfoom (CLL)(in development)- EQ5D- DS14- B-IPQ- FAS- HADS- IOC1/IOC2/IOC1+items2- EORTC-INFO25 (used to be EORTC-INFO26)- Internet
DOI: 10.17026/dans-xq4-58fq
title: The Glycaemic Control and the Severity of the Delirium

description: Data sharing about the manuscript The Effects of the Glycaemic Control on the Severity of the Delirium in the Advanced Phase of Alzheimer’s Disease: a Brief Report.
DOI: 10.17026/dans-27d-267u
title: Physical performance and physical activity in older adults: associated but separate domains of physical function in old age

description: This dataset consists of subject characteristics, objective measures of clinical performance tests and objective measures of daily activity per subject.Clinical performance tests consist of the 3xSit-To-Stand test, Timed Up and Go test and Short Physical Performance Battery.Daily life measures consist of total duration, number of periods, average period duration and Movement Intensity for the activities lying, sitting, standing and locomotion as measured with the DynaPort® MoveMonitor®.
DOI: 10.17026/dans-zrw-9pvk
title: Op weg naar mantelzorgondersteuning op maat

description: Interviews met mantelzorgers die op dat moment zorgden voor iemand in de laatste levensfase of hadden gezorgd voor iemand in de laatste levensfase. Totaal 41 mantelzorgers. Deze interviews gaan specifiek over reacties op stellingen over mantelzorgondersteuning die respondenten hadden gerangschikt (tbv profielen onderscheiden mbv Q methodologie).De data is verzameld in 2017.
DOI: 10.17026/dans-22j-5w67
title: Intra-rater, inter-rater and test-retest reliability of an instrumented Timed Up and Go (iTUG) test in patients with Parkinson's disease

description: This dataset consists of subject characteristics and objective measures of the Timed Up and Go test as measured with the DynaPort® Hybrid® and analysed using McRoberts software.
DOI: 10.17026/dans-zt7-dhb6
title: Life history of the Harlequin ladybird, Harmonia axyridis; a global meta-analysis

description: Data collected en used for a meta analysis on life history data of H. axyridis. And the resulting 20 best models for each life history characteristic. Published in the paper: Life history of the Harlequin ladybird, Harmonia axyridis; a global meta-analysis.
DOI: 10.17026/dans-zms-ya3s
title: Detecting emerging risks in food chains

description: This ontology was created to code knowledge about a food chain (pork).It was used in a project that aimed to build an ICT system to predict emerging risks in food chains.
DOI: 10.17026/dans-xsw-krgv
title: PICANT - Representation of patients with a migration background

description: Research has indicated that persons with a migration background are more likely to be underrepresented in medical research trials and to receive low-quality care. Little is known about whether patients with a migration background are also underrepresented in primary care studies on oral antithrombotic treatment (OAT) in Germany, and whether the quality of their antithrombotic care differs from patients without a migration background. The aim of this paper was to use the results of a cluster-randomized controlled trial (PICANT) to determine the proportion of people with a migration background at different stages of recruitment, and to compare the results in terms of sociodemographic characteristics and antithrombotic treatment.This study used screening and baseline data from the PICANT trial on oral anticoagulation management in GP practices. For this analysis, we determined the proportion of patients with a migration background during the recruitment period at stage 1 (screening of potentially eligible patients), stage 2 (eligible patients invited to participate in the trial), and stage 3 (assessment of baseline characteristics of patients participating in the PICANT trial). In addition, we compared patients in terms of sociodemographic characteristics and quality of anticoagulant treatment. Statistical analysis comprised descriptive and bivariate analyses.The proportion of patients with a migration background was lower at each recruitment stage (9.1% at stage 1; 7.9% at stage 2; 7.3% at stage 3). At stages 1 and 3, patients with a migration background were younger (stage 1: 70.7 vs. 75.0 years, p&lt;0.001; stage 3: 70.2 vs. 73.5 years, p=0.013), but did not differ in terms of gender. The quality of their anticoagulant care was comparable (100.0% vs. 99.1% receiving appropriate OAT, 94.4% vs. 95.7% took phenprocoumon, or warfarin, and the most recent INR measurement of 60.8% vs. 69.3% was within their individual INR range. The most common reason for non-participation among the patients with a migration background was an inability to comprehend the German language (19.4%).Patients with a migration background were slightly underrepresented in this study on oral anticoagulation management in GP practices. The main reason for the lower proportion of patients with a migration background appears to have been an inability to comprehend the German language. The results indicate the need to extend health services research in GP practices and to develop and test adequate measures to reach patients with a migration background, e.g. by translating questionnaires or involving interpreters.
DOI: 10.17026/dans-26n-grkt
title: Time-Response Evaluation by Transcriptomics of Methylmercury Effects on Neural Differentiation of Murine Embryonic Stem Cells

description: The researchers analyzed gene expression patterns during neural cell differentiation of pluripotent murine embryonic stem cells. This was done at multiple time points during the differentiation protocol (to describe normal neural cell differentiation over time) and in the presence or absence of the well-known neurotoxicant methylmercury (MeHg) (to characterize effects of neurodevelopmental toxic exposure).For additional information see also the Relationfield with a link to the website 'Array Express - Functional Genomics Data'.
DOI: 10.17026/dans-2z5-pbz6
title: PICANT Cluster RCT

description: To examine whether applying case management in general practices reduces thromboembolic events requiring hospitalization and major bleeding events (combined primary outcome), as well as mortality, frequency and duration of hospitalization, severe treatment interactions, adverse events, quality of anticoagulation, health-related quality of life, and intervention costs, patients’ assessment of chronic illness care, self-reported adherence to medication, GP and HCA knowledge, patient knowledge , and satisfaction with shared decision-making.Cluster-randomized controlled trial undertaken at 52 general practices in Germany with adult patients with a long-term indication for oral anticoagulation. The complex intervention included training for healthcare assistants, information and quality circles for general practitioners, and 24 months of case management for patients. Assessment was after 12 and 24 months. The intention-to-treat population included all randomized practices and patients, the per-protocol analysis included only those that received treatment without major protocol violations.The mean (SD) age of the 736 patients was 73.5 (9.4) years and 597 (81.1%) had atrial fibrillation. After 24 months, the primary endpoint had occurred in 40 (11.0%) intervention and 48 (12.9%) control patients (hazard ratio 0.83, 95% CI 0.55 to 1.25; P=.37). Patients’ perceived quality of care, patients’ knowledge and HCAs’ knowledge improved significantly at 24 months. The other secondary endpoints did not differ between groups. For patients obtaining treatment without major protocol deviations, hospital admissions were significantly reduced in the intervention group.Even though the main outcomes did not differ significantly, the intervention appears to have positively influenced some process parameters under ‘real-world conditions’
DOI: 10.17026/dans-xrd-rg94
title: The Effect of B-value on HARDI Reconstruction

description: The aim of this study was to investigate the effect of the b-value on the high angular resolution diffusion imaging (HARDI) reconstruction and to seek for the appropriate b-value for orientation distribution function (ODF) reconstruction from clinical HARDI data. The full width at half maximum (FWHM) of the ODF and the angular difference of the peaks extracted from ODF were measured to investigate the effect of b-value on the ODF reconstruction. Visual inspection of the ODF was used to evaluate the reconstructions. More detail is provided in "How Does B-Value Affect HARDI Reconstruction using Clinical Diffusion MRI Data?", PLoS ONE (forthcoming).
DOI: 10.17026/dans-xjy-cuyw
title: Preparing for an orthopedic consultation using an eHealth tool: a randomized controlled trial in patients with hip and knee osteoarthritis

description: The effect of a stand-alone mobile and web-based educational intervention (eHealth tool) compared to usual preparation of a first orthopedic consultation of patients with hip or knee osteoarthritis (OA) on patients’ satisfaction was evaluated. A two-armed randomized controlled trial was performed, involving 286 patients with (suspicion of) hip or knee OA, randomly allocated to either receiving an educational eHealth tool to prepare their upcoming consultation (n=144) or usual care (n=142). Satisfaction with the consultation on three subscales (range 1-4) of the Consumer Quality Index (CQI - primary outcome) and secondary outcomes. This educational eHealth tool to prepare a first orthopedic consultation for hip or knee OA does not result in higher patient satisfaction with the consultation, but it does influence cognitions about osteoarthritis.
DOI: 10.17026/dans-2ch-6s6r
title: Bird ringing data Netherlands 1960-1990 part 1

description: The tradition of ringing birds as a means of studying avian populations is more than a century old. Scientific bird ringing is a research method based on the individual marking of birds. This technique is one of the most effective methods to study the biology, ecology, behaviour, movement, breeding productivity and population demography of birds.The dataset contains ringing records of individual birds in the Netherlands from the period 1960-1990. For a full description of codes please consult http://www.euring.org/files/documents/E2000PLUSExchangeCodeV116_1.pdfThe data from this dataset are end products of the 'Parels van data' (Pearls of data) project aimed to make the NIOO archive digital available for anyone to use.
DOI: 10.17026/dans-2cg-k53b
title: Combinatorial approach to the restriction of a mouse genome

description: A fragmentation of genomic DNA by restriction digestion is a popular step in many applications. Usually attention is paid to the expected average size of the DNA fragments. Another important parameter, randomness of restriction, is regularly implied but rarely verified. This parameter is crucial to the expectation, that either all fragments made by restriction will be suitable for the method of choice, or only a fraction of those will be effectively used by the method. If only a fraction of the fragments are used, we often should know whether the used fragments are representative of the whole genome. With a modern knowledge of mouse, human and many other genomes, frequencies and distributions of restriction sites and sizes of corresponding DNA fragments can be analyzed in silico. In this research, the mouse genome was systematically scanned for frequencies of complementary 4-base long palindromes.
DOI: 10.6084/m9.figshare.24745458
title: Figshare Item 1

description: Test Description
DOI: 10.6084/m9.figshare.24745458.v1
title: Figshare Item 1

description: Test Description
DOI: 10.17026/dans-xmc-39t5
title: FEM growth and yield data monocultures - Ash

description: The current database is part of the FEM growth and yield database, a collection of growth and yield data from even-aged monocultures (douglas fir, common oak, poplar, Japanese Larch, Norway spruce, Scots pine, Corsican pine, Austrian pine, red oak and several other species, with only a few plots, even-aged mixed species forest plots, uneven-aged natural forest, uneven-aged selection forest and roadside plantattions of poplar. The FEM growth and yield data base is currently supervised by Jan den Ouden and Frits Mohren.
DOI: 10.17026/dans-293-q3yx
title: EXPERT CONSENSUS ON MULTILEVEL IMPLEMENENTATION HYPOTHESES TO PROMOTE UPTAKE OF YOUTH CARE GUIDELINES: A DELPHI STUDY

description: The implementation of evidence-based youth care guidelines remains a complex process. Several frameworks to aid the identification and specification of implementation determinants and effective strategies have been developed. However, how specific determinants are influenced by specific strategies is not yet clear. There is a need for clarity on which active ingredients of strategies, called Behavior Change Techniques (BCTs), elicit behavior change, and in turn, implementation outcomes. With this knowledge, we are able to formulated detailed, evidence-based implementation hypotheses. An implementation hypothesis details how determinants, and in turn, implementation outcomes might be influenced by specific implementation strategies and their BCTs. We aimed to identify 1) relevant determinants to the implementation of youth care guidelines and 2) feasible and effective implementation hypotheses to address these determinants.
DOI: 10.17026/dans-xsc-xnzn
title: Mortality follow-back study on palliative care in the Dutch primary care setting

description: In this study we aimed to investigate the quality of palliative care in the primary care setting. In several GP-practices, we investigated files of patients who died during a follow-back period of one year. For those who died in the primary care setting, we asked the GPs, and any involved district nurses, to fill in questionnaires on the care provided, symptom management and the quality of life of the patient in the final three months. This dataset provided characteristics of the patients and the provided palliative care.
DOI: 10.17026/dans-xnd-26m2
title: Self-management for dual sensory impaired older adults: an effective approach?

description: A cRCT was performed in 30 Dutch long-term care homes between 2011-2014, involving 89 dual sensory impaired older adults and 56 licensed practical nurses. The long=term care homes were randomly assigned into intervention clusters (n=17) and control clusters (n=13). The older adults of the intervention cluster received a nurse-supported self-management program spread over a period of 5 months, the older adults of the control group received usual care.Effectiveness was evaluated by the primary outcome social participation. Secondary outcomes were autonomy, control, mood and quality of life.The self-management program was successful in empowering the dual sensory impaired older adults to address instrumental daily living problems, but failed to address other domains of social participation. Process evaluation revealed key barriers to their engaging in social interaction.The dataset presents (1) the statistical data on the primary and secondary outcomes, measuring the effectiveness of the program, and (2) the qualitative data collected from the intervention diaries of the nurses, reflecting the problems and wishes identified by the dual sensory impaired older adults.
DOI: 10.17026/dans-xn4-jr5q
title: Shock Index Vs Modified Shock Index as a predictor of mortality among COVID-19 Patients

description: This is a retrospective observational study using Shock Index and Modified Shock Index as a predictor of mortality among COVID-19 Patients
DOI: 10.17026/dans-zv2-a3hc
title: Cardiovascular risk management, culture and structure of primary care teams.

description: Outcomes of cardiovascular risk management (CVRM) have improved by the implementation of a wide range of interventions, but further improvement remains possible. To identify new perspectives for improving quality of CVRM, associations were explored between information exchange networks of health care providers and evidence-based CVRM.
DOI: 10.17026/dans-xqm-an3n
title: Beleidsnota DANS en de Levenswetenschappen

description: Beleidsnota DANS en de Levenswetenschappen