DOI: 10.3886/icpsr09795.v1
title: Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988
title: Version 1

description: The Infant Health and Development Program was a collaborative, randomized, longitudinal, multisite clinical trial designed to evaluate the efficacy of comprehensive early intervention in reducing the developmental and health problems of low birth weight, premature infants. An intensive intervention extending from hospital discharge to 36 months corrected age was administered between 1985 and 1988 at eight different sites. The study sample of infants was stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and randomized to the Intervention Group or the Follow-Up Group. The Intervention Group received home visits, attendance at a special child development center, and pediatric follow-up. The Follow-Up Group received only the pediatric follow-up component of the program. Measures of cognitive development, behavioral status, health status, and other variables were collected from both groups at predetermined time points. Cognitive development was assessed by the Stanford-Binet Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental Test of Visual Motor Integration. Behavior problems were measured using the Richman-Graham Behavior Checklist and Achenbach's Child Behavior Checklist. Health status was evaluated through the dimensions of morbidity (defined as the presence or absence of health conditions), functional status (defined by limitations in activities of daily living due to health problems), changes in physical growth, and maternal perception of the child's health. The many other variables and indices in the data collection include site, pregnancy complications, child's birth weight and gestation age, birth order, child's gender, household composition, day care arrangements, source of health care, quality of the home environment, parents' race and ethnicity, and maternal age, education, IQ, and employment.
description: After all eligibility criteria were applied during the screening procedure, 1302 of the 4551 infants born at the eight sites during the recruitment period were determined eligible. After consent and acceptance of assignment to study group were considered, 1,090 were enrolled in the study. This number included a total of 103 twin pairs and 2 cousin pairs.
description: Datasets: DS0: Study-Level Files DS1: INVNTRY: Analysis Group Infant Inventory DS2: SAS Control Cards for INVNTRY: Analysis Group Infant Inventory DS3: PADS: Primary Analysis Dataset DS4: SAS Control Cards for PADS: Primary Analysis Dataset DS5: SUMSCORE: Summary Score Dataset DS6: SAS Control Cards for SUMSCORE: Summary Score Dataset DS7: F3A: Birth Registration, Part A DS8: SAS Control Cards for F3A: Birth Registration, Part A DS9: F3B: Birth Registration, Part B DS10: SAS Control Cards for F3B: Birth Registration, Part B DS11: F6A: Neonatal Health Summary, Part A DS12: SAS Control Cards for F6A: Neonatal Health Summary, Part A DS13: F6B: Neonatal Health Summary, Part B DS14: SAS Control Cards for F6B: Neonatal Health Summary, Part B DS15: F7: 40-Week Family Interview DS16: SAS Control Cards for F7: 40-Week Family Interview DS17: F8: 40-Week Neurodevelopmental Exam DS18: SAS Control Cards for F8: 40-Week Neurodevelopmental Exam DS19: F9: 40-Week Health Summary Exam DS20: SAS Control Cards for F9: 40-Week Health Summary Exam DS21: F11: 4-Month Family Interview DS22: SAS Control Cards for F11: 4-Month Family Interview DS23: F12: 4-Month Neurodevelopmental Exam DS24: SAS Control Cards for F12: 4-Month Neurodevelopmental Exam DS25: F13: 4-Month Health Summary Exam DS26: SAS Control Cards for F13: 4-Month Health Summary Exam DS27: F14: 8-Month Family Interview DS28: SAS Control Cards for F14: 8-Month Family Interview DS29: F15: 8-Month Neurodevelopmental Exam DS30: SAS Control Cards for F15: 8-Month Neurodevelopmental Exam DS31: F16: 8-Month Health Summary Exam DS32: SAS Control Cards for F16: 8-Month Health Summary Exam DS33: F17: 8-Month Health Exam DS34: SAS Control Cards for F17: 8-Month Health Exam DS35: F18: 12-Month Family Interview DS36: SAS Control Cards for F18: 12-Month Family Interview DS37: F19: 12-Month Neurodevelopmental Exam DS38: SAS Control Cards for F19: 12-Month Neurodevelopmental Exam DS39: F20: 12-Month Interval Health Interview DS40: SAS Control Cards for F20: 12-Month Interval Health Interview DS41: F21: 12-Month Health Exam DS42: SAS Control Cards for F21: 12-Month Health Exam DS43: F22: 12-Month Home Assessment DS44: SAS Control Cards for F22: 12-Month Home Assessment DS45: F23: 12-Month Bayley Mental Scale DS46: SAS Control Cards for F23: 12-Month Bayley Mental Scale DS47: F24: 12-Month Bayley Motor Scale DS48: SAS Control Cards for F24: 12-Month Bayley Motor Scale DS49: F25: 12-Month Bayley Test Session Summary DS50: SAS Control Cards for F25: 12-Month Bayley Test Session Summary DS51: F28: 18-Month Family Interview DS52: SAS Control Cards for F28: 18-Month Family Interview DS53: F29: 18-Month Neurodevelopmental Exam DS54: SAS Control Cards for F29: 18-Month Neurodevelopmental Exam DS55: F30: 18-Month Interval Health Interview DS56: SAS Control Cards for F30: 18-Month Interval Health Interview DS57: F31: 18-Month Health Exam DS58: SAS Control Cards for F31: 18-Month Health Exam DS59: F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary DS60: SAS Control Cards for F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary DS61: F34: 24-Month Family Interview DS62: SAS Control Cards for F34: 24-Month Family Interview DS63: F35: 24-Month Neurodevelopmental Exam DS64: SAS Control Cards for F35: 24-Month Neurodevelopmental Exam DS65: F36: 24-Month Interval Health Interview DS66: SAS Control Cards for F36: 24-Month Interval Health Interview DS67: F37: 24-Month Health Exam DS68: SAS Control Cards for F37: 24-Month Health Exam DS69: F38: 24-Month Child Behavior Interview DS70: SAS Control Cards for F38: 24-Month Child Behavior Interview DS71: F39: 24-Month Bayley Mental Scale DS72: SAS Control Cards for F39: 24-Month Bayley Mental Scale DS73: F40: 24-Month Bayley Motor Scale DS74: SAS Control Cards for F40: 24-Month Bayley Motor Scale DS75: F41: 24-Month Bayley Test Session Summary DS76: SAS Control Cards for F41: 24-Month Bayley Test Session Summary DS77: F43A: 24-Month Child Behavior Interview, A DS78: SAS Control Cards for F43A: 24-Month Child Behavior Interview, A DS79: F43B: 24-Month Child Behavior Interview, B DS80: SAS Control Cards for F43B: 24-Month Child Behavior Interview, B DS81: F47: 30-Month Family Interview DS82: SAS Control Cards for F47: 30-Month Family Interview DS83: F48: 30-Month Neurodevelopmental Exam DS84: SAS Control Cards for F48: 30-Month Neurodevelopmental Exam DS85: F49: 30-Month Interval Health Interview DS86: SAS Control Cards for F49: 30-Month Interval Health Interview DS87: F50: 30-Month Health Exam DS88: SAS Control Cards for F50: 30-Month Health Exam DS89: F52: 36-Month Family Interview DS90: SAS Control Cards for F52: 36-Month Family Interview DS91: F53: 36-Month Neurodevelopmental Exam DS92: SAS Control Cards for F53: 36-Month Neurodevelopmental Exam DS93: F54: 36-Month Interval Health Interview DS94: SAS Control Cards for F54: 36-Month Interval Health Interview DS95: F55: 36-Month Health Exam DS96: SAS Control Cards for F55: 36-Month Health Exam DS97: F56: 36-Month Home Assessment DS98: SAS Control Cards for F56: 36-Month Home Assessment DS99: F57: 36-Month Stanford-Binet IQ Scale DS100: SAS Control Cards for F57: 36-Month Stanford-Binet IQ Scale DS101: F58: 36-Month Peabody Picture Vocabulary Test-Revised DS102: SAS Control Cards for F58: 36-Month Peabody Picture Vocabulary Test-Revised DS103: F59: 36-Month Visual Motor Integration Test DS104: SAS Control Cards for F59: 36-Month Visual Motor Integration Test DS105: F61: 36-Month Child Behavior Interview DS106: SAS Control Cards for F61: 36-Month Child Behavior Interview DS107: F62: 36-Month Test Session Summary DS108: SAS Control Cards for F62: 36-Month Test Session Summary DS109: F63: 36-Month Growth Data Summary DS110: SAS Control Cards for F63: 36-Month Growth Data Summary DS111: F66A: 36-Month Child Behavior Questionnaire, A DS112: SAS Control Cards for F66A: 36-Month Child Behavior Questionnaire, A DS113: F66B: 36-Month Child Behavior Questionnaire, B DS114: SAS Control Cards for F66B: 36-Month Child Behavior Questionnaire, B DS115: F71: Twin Zygosity Record DS116: SAS Control Cards for F71: Twin Zygosity Record DS117: F85: Supplemental Health Conditions Codes DS118: SAS Control Cards for F85: Supplemental Health Conditions Codes DS119: SUMBCR18: 18-Month Daily Classroom Summary DS120: SAS Control Cards for SUMBCR18: 18-Month Daily Classroom Summary DS121: SUMBCR24: 24-Month Daily Classroom Summary DS122: SAS Control Cards for SUMBCR24: 24-Month Daily Classroom Summary DS123: SUMBCR30: 30-Month Daily Classroom Summary DS124: SAS Control Cards for SUMBCR30: 30-Month Daily Classroom Summary DS125: SUMBCR36: 36-Month Daily Classroom Summary DS126: SAS Control Cards for SUMBCR36: 36-Month Daily Classroom Summary DS127: SUMBHV04: 4-Month Home Visit Report DS128: SAS Control Cards for SUMBHV04: 4-Month Home Visit Report DS129: SUMBHV08: 8-Month Home Visit Report DS130: SAS Control Cards for SUMBHV08: 8-Month Home Visit Report DS131: SUMBHV12: 12-Month Home Visit Report DS132: SAS Control Cards for SUMBHV12: 12-Month Home Visit Report DS133: SUMBHV18: 18-Month Home Visit Report DS134: SAS Control Cards for SUMBHV18: 18-Month Home Visit Report DS135: SUMBHV24: 24-Month Home Visit Report DS136: SAS Control Cards for SUMBHV24: 24-Month Home Visit Report DS137: SUMBHV30: 30-Month Home Visit Report DS138: SAS Control Cards for SUMBHV30: 30-Month Home Visit Report DS139: SUMBHV36: 36-Month Home Visit Report DS140: SAS Control Cards for SUMBHV36: 36-Month Home Visit Report DS141: Transport Format SAS Library Containing the 59 Evaluation Data Files DS142: Transport Format SAS Library Containing the 11 Implementation Data Files DS143: Codebook, Volume I (Introduction to the Archives...Volumes I and II) DS144: Codebook, Volume II (Evaluation Data Documentation, Volumes I and II) DS145: Codebook, Volume III (Evaluation Data Documentation, Volumes III and IV) DS146: Codebook, Volume IV (Evaluation Data Documentation Volume V) DS147: Codebook, Volume V (Implementation Data Documentation, ICPSR Data Maps for Implementation Data) DS148: Codebook, Volume VI (Manual of Operations, Volume I) DS149: Codebook, Volume VII (Manual of Operations, Volumes II and III) DS150: Codebook, Volume VIII (Measures Documentation Notebook, Dropped Variables Documentation Report) DS151: Codebook, Volume IX (Infant Assessor Manual, et al.)
description: All low birth weight (2,500 grams or less), premature (37 weeks gestational age or less) infants born at eight sites (University of Arkansas for Medical Sciences, Albert Einstein College of Medicine, Harvard Medical School, University of Miami School of Medicine, University of Pennsylvania School of Medicine, University of Texas Health Science Center at Dallas, University of Washington School of Medicine, and Yale University School of Medicine) between November 1984 and August 1985. All study infants reached 40 weeks post-conceptual age between January 7, 1985, and October 9, 1985.
description: The data is grouped in two parts: 59 Evaluation files (odd-numbered parts, 1-117) and 11 Implementation files (odd-numbered parts, 119-139).