DOI: 10.5281/zenodo.17485783
title: BarKA-MS: Fitbit and Fatigue Data of People with Multiple Sclerosis during and after Rehabilitation

description: This dataset stems from the BarKA-MS (Barrieren zu Körperlicher Aktivität in Multipler Sklerose) trial. It contains basic clinical information and fitbit data. The fitbit data was collected using Fitbit Inspire HR devices and exported using Fitabase. This is the rawest form of data Fitbit makes available.

In this study, particpants were recruited when they entered rehabilitation treatment in the Valens Clinics in Switzerland (Week 0 Clinic). At this time baseline clinical data (demographics fatigue, disability state) were collected and participants equipped with Fitbit Inspire HR devices. In-patient rehabilitation treatment went on for four weeks during the last week, fatigue data was collected again (Week 4 Clinic). After these four week of rehabilitation, patients returned home and continued to wear their Fitbit device. Four weeks after returning home a last batch of fatigue data was collected (Week 8 Home).

BarKA_MS_basic_clinical_data_anonymized.csv



fakeID: A anonymized patient ID - matches "fakeID" in BarKA_MS_Fitbit_data_anonymized.csv

Sex: Biological sex

Age: Age in years

EDSS: Expanded Disability Status Scale - recorded at Week 0 as participants enter rehabilitation treatment

FSMC_Total_Week0_Clinic: Fatigue Scale for Motor and Cognitive Functions - Total sum score - recorded at Week 0 as participants enter rehabilitation treatment

FSMC_Total_Week4_Clinic: Fatigue Scale for Motor and Cognitive Functions - Total sum score - recorded at Week 4, the last week of rehabilitation treatment

FSMC_Total_Week8_Home: Fatigue Scale for Motor and Cognitive Functions - Total sum score - recorded at Week 8, four weeks after participants return home

FSMC_Cognitive_Week0_Clinic: Fatigue Scale for Motor and Cognitive Functions - Cognitive subscale sum score - recorded at Week 0 as participants enter rehabilitation treatment

FSMC_Cognitive_Week4_Clinic: Fatigue Scale for Motor and Cognitive Functions - Cognitive subscale sum score - recorded at Week 4, the last week of rehabilitation treatment

FSMC_Cognitive_Week8_Home: Fatigue Scale for Motor and Cognitive Functions - Cognitive subscale sum score - recorded at Week 8, four weeks after participants return home

FSMC_Motor_Week0_Clinic: Fatigue Scale for Motor and Cognitive Functions - Motor subscale sum score - recorded at Week 0 as participants enter rehabilitation treatment

FSMC_Motor_Week4_Clinic: Fatigue Scale for Motor and Cognitive Functions - Motor subscale sum score - recorded at Week 4, the last week of rehabilitation treatment

FSMC_Motor_Week8_Home: Fatigue Scale for Motor and Cognitive Functions - Motor subscale sum score - recorded at Week 8, four weeks after participants return home


BarKA_MS_Fitbit_data_anonymized.csv



fakeID: A anonymized patient ID - matches "fakeID" in BarKA_MS_basic_clinical_data_anonymized.csv

fakeTime: Timestamps have been modified for anonymity. Time of day and weekday are the same as the original, but the dates have been manipulated. These are minute-by-minute timestamps in the YYYY-MM-DD HH:MM:SS format.

WeekDay - Day of the week as an integer. (1 - Sunday, 2 - Monday, 3 - Tuesday, 4 - Wednesday, 5 - Thursday, 6 - Friday, 7 Saturday)

Steps - Number of steps registered by the device during this minute

HeartRate - Mean heart rate registered during this minute

SleepStage - Fitbit identified sleep stages coded as 1 - light sleep, 2 - REM sleep, 3 - deep sleep

Phase - Phase of the trial. Can be "Rehabilitation" or "Home"