cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.28107686
title: Dyad interventions for health-related quality of life, activity, and participation after stroke: a systematic review

description: To characterize the effects of dyad interventions on stroke survivor and caregiver health-related quality of life (HRQOL), participation, and activity outcomes. Five databases were searched using: stroke AND social support/dyad relationships AND intervention. No date or language restrictions were applied. Title/abstract/full-text review and data extraction were conducted by two independent raters. Studies that tested between-group or within-group effects of an intervention that engaged both dyad members together in at least one intervention session and measured at least one outcome of interest (HRQOL, participation, or activity) in both dyad members were included. Among 64,988 records, 401 full-text articles were reviewed, and 17 studies were included. Three dyad intervention types were identified: stroke education and caregiver training, joint psychosocial interventions, and caregiver-mediated exercise. Effects on HRQOL were mixed. Among five studies that favored the intervention group on HRQOL, effects ranged from moderate to large among stroke survivors (Cohen’s <i>d</i> = 0.51 to 7.03) and caregivers (Cohen’s <i>d</i> = 0.66 to 7.90). Measures of caregiver activity and participation were rarely included. There is emerging evidence for certain types of dyad intervention after stroke. Future research should examine the effectiveness and mechanisms of these dyad interventions and include measures of caregiver activity and participation. Dyad interventions that engage people with stroke <i>and</i> their caregivers in psychosocial intervention, stroke education, and caregiver training can impact both individuals’ health-related quality of life.The impact of post-stroke dyad interventions on caregivers’ participation and activity should be measured consistently with validated tools.Rehabilitation professionals who provide caregiver training after stroke should remain mindful of the potential for both positive and negative effects on caregivers’ and stroke survivors’ health-related quality of life. Dyad interventions that engage people with stroke <i>and</i> their caregivers in psychosocial intervention, stroke education, and caregiver training can impact both individuals’ health-related quality of life. The impact of post-stroke dyad interventions on caregivers’ participation and activity should be measured consistently with validated tools. Rehabilitation professionals who provide caregiver training after stroke should remain mindful of the potential for both positive and negative effects on caregivers’ and stroke survivors’ health-related quality of life.
DOI: 10.6084/m9.figshare.28107686.v1
title: Dyad interventions for health-related quality of life, activity, and participation after stroke: a systematic review

description: To characterize the effects of dyad interventions on stroke survivor and caregiver health-related quality of life (HRQOL), participation, and activity outcomes. Five databases were searched using: stroke AND social support/dyad relationships AND intervention. No date or language restrictions were applied. Title/abstract/full-text review and data extraction were conducted by two independent raters. Studies that tested between-group or within-group effects of an intervention that engaged both dyad members together in at least one intervention session and measured at least one outcome of interest (HRQOL, participation, or activity) in both dyad members were included. Among 64,988 records, 401 full-text articles were reviewed, and 17 studies were included. Three dyad intervention types were identified: stroke education and caregiver training, joint psychosocial interventions, and caregiver-mediated exercise. Effects on HRQOL were mixed. Among five studies that favored the intervention group on HRQOL, effects ranged from moderate to large among stroke survivors (Cohen’s <i>d</i> = 0.51 to 7.03) and caregivers (Cohen’s <i>d</i> = 0.66 to 7.90). Measures of caregiver activity and participation were rarely included. There is emerging evidence for certain types of dyad intervention after stroke. Future research should examine the effectiveness and mechanisms of these dyad interventions and include measures of caregiver activity and participation. Dyad interventions that engage people with stroke <i>and</i> their caregivers in psychosocial intervention, stroke education, and caregiver training can impact both individuals’ health-related quality of life.The impact of post-stroke dyad interventions on caregivers’ participation and activity should be measured consistently with validated tools.Rehabilitation professionals who provide caregiver training after stroke should remain mindful of the potential for both positive and negative effects on caregivers’ and stroke survivors’ health-related quality of life. Dyad interventions that engage people with stroke <i>and</i> their caregivers in psychosocial intervention, stroke education, and caregiver training can impact both individuals’ health-related quality of life. The impact of post-stroke dyad interventions on caregivers’ participation and activity should be measured consistently with validated tools. Rehabilitation professionals who provide caregiver training after stroke should remain mindful of the potential for both positive and negative effects on caregivers’ and stroke survivors’ health-related quality of life.
DOI: 10.6084/m9.figshare.27309159
title: Development and evaluation of an online professional development course to support delivery of tiered school-based rehabilitation services

description: The <i>Facilitating Integration of Rehabilitation Services Through Training (FIRST) Course</i> provides online professional development on tiered service delivery models for rehabilitation professionals working in education settings. Created by content and e-learning experts, this study describes our use of the Analysis, Design, Development, Implementation, Evaluation (ADDIE) instructional design model and the Successive Approximation Model (SAM) to develop, implement, and evaluate the <i>FIRST Course</i>, and reports the findings of an initial program evaluation. Rehabilitation professionals who completed the <i>FIRST Course</i> were invited to complete a cross-sectional survey to evaluate its utility. Between May 1, 2020, and August 11, 2023, 314 occupational therapists, 54 physiotherapists, and 170 speech-language pathologists completed the online course and survey. Respondents perceived the <i>FIRST Course</i> content to be relevant to their practice and to meet their learning needs regarding tiered services in education settings. Most respondents viewed the course positively and would recommend it to colleagues. More experienced respondents suggested a need for training on tiered service delivery models beyond an introductory level. The ADDIE and SAM instructional design models were successfully applied to develop, implement, and evaluate online professional development for school-based rehabilitation professionals who wish to learn about tiered service delivery models. Developers wishing to offer online professional development in the field of rehabilitation are encouraged to engage both content experts and e-learning experts when applying instructional design models such as ADDIE and SAM. Incorporating input from the intended rehabilitation professionals will ensure success.Our program evaluation shows that the <i>FIRST Course</i> reaches the target audience of occupational therapists, physiotherapists, and speech-language pathologists, and meets their learning needs for tiered service delivery models in education settings. Developers wishing to offer online professional development in the field of rehabilitation are encouraged to engage both content experts and e-learning experts when applying instructional design models such as ADDIE and SAM. Incorporating input from the intended rehabilitation professionals will ensure success. Our program evaluation shows that the <i>FIRST Course</i> reaches the target audience of occupational therapists, physiotherapists, and speech-language pathologists, and meets their learning needs for tiered service delivery models in education settings.
DOI: 10.6084/m9.figshare.27309159.v1
title: Development and evaluation of an online professional development course to support delivery of tiered school-based rehabilitation services

description: The <i>Facilitating Integration of Rehabilitation Services Through Training (FIRST) Course</i> provides online professional development on tiered service delivery models for rehabilitation professionals working in education settings. Created by content and e-learning experts, this study describes our use of the Analysis, Design, Development, Implementation, Evaluation (ADDIE) instructional design model and the Successive Approximation Model (SAM) to develop, implement, and evaluate the <i>FIRST Course</i>, and reports the findings of an initial program evaluation. Rehabilitation professionals who completed the <i>FIRST Course</i> were invited to complete a cross-sectional survey to evaluate its utility. Between May 1, 2020, and August 11, 2023, 314 occupational therapists, 54 physiotherapists, and 170 speech-language pathologists completed the online course and survey. Respondents perceived the <i>FIRST Course</i> content to be relevant to their practice and to meet their learning needs regarding tiered services in education settings. Most respondents viewed the course positively and would recommend it to colleagues. More experienced respondents suggested a need for training on tiered service delivery models beyond an introductory level. The ADDIE and SAM instructional design models were successfully applied to develop, implement, and evaluate online professional development for school-based rehabilitation professionals who wish to learn about tiered service delivery models. Developers wishing to offer online professional development in the field of rehabilitation are encouraged to engage both content experts and e-learning experts when applying instructional design models such as ADDIE and SAM. Incorporating input from the intended rehabilitation professionals will ensure success.Our program evaluation shows that the <i>FIRST Course</i> reaches the target audience of occupational therapists, physiotherapists, and speech-language pathologists, and meets their learning needs for tiered service delivery models in education settings. Developers wishing to offer online professional development in the field of rehabilitation are encouraged to engage both content experts and e-learning experts when applying instructional design models such as ADDIE and SAM. Incorporating input from the intended rehabilitation professionals will ensure success. Our program evaluation shows that the <i>FIRST Course</i> reaches the target audience of occupational therapists, physiotherapists, and speech-language pathologists, and meets their learning needs for tiered service delivery models in education settings.
DOI: 10.6084/m9.figshare.27054173
title: Forty-five years of disability and rehabilitation research: review of the journal Disability and Rehabilitation through bibliometric analysis

description: Disability and Rehabilitation has a history of 45 years. This article aims to comprehensively analyze the scientific production of this journal to celebrate and present its achievements over time. This study examines the performance of the journal’s publications between 1978 and 2022, using indicators of bibliometric analysis and scientific mapping techniques. These techniques explore publication trends, emerging and discussed themes, institutions, countries, collaboration patterns, and citations. In the journal’s 45 years, 7369 documents were published, with an average annual growth rate of 15.18%, reaching 176976 citations in 7019 documents. The United Kingdom was the most productive, and the University of Toronto was the most representative (587 articles). Recurring themes were rehabilitation, stroke, and disability. The most consolidated research themes were rehabilitation, stroke, activities of daily living, and physiotherapy. This study contributes to scientific development in the field of disability and rehabilitation. The findings provide data to advance the understanding of academic practices in these fields and also provide valuable insights for the strategic planning, potential innovations, and future actions of the editorial board of the journal Disability and Rehabilitation. The study provides an analysis of the performance and scientific evolution of the Disability and Rehabilitation journal, which can help the editorial board to plan for the future, rethink actions, and propose changes, if necessary.The review provides an overview of consolidated (mature), emerging, and declining themes related to disability and rehabilitation published in the Disability and Rehabilitation journal. The study provides an analysis of the performance and scientific evolution of the Disability and Rehabilitation journal, which can help the editorial board to plan for the future, rethink actions, and propose changes, if necessary. The review provides an overview of consolidated (mature), emerging, and declining themes related to disability and rehabilitation published in the Disability and Rehabilitation journal.
DOI: 10.6084/m9.figshare.27054173.v1
title: Forty-five years of disability and rehabilitation research: review of the journal Disability and Rehabilitation through bibliometric analysis

description: Disability and Rehabilitation has a history of 45 years. This article aims to comprehensively analyze the scientific production of this journal to celebrate and present its achievements over time. This study examines the performance of the journal’s publications between 1978 and 2022, using indicators of bibliometric analysis and scientific mapping techniques. These techniques explore publication trends, emerging and discussed themes, institutions, countries, collaboration patterns, and citations. In the journal’s 45 years, 7369 documents were published, with an average annual growth rate of 15.18%, reaching 176976 citations in 7019 documents. The United Kingdom was the most productive, and the University of Toronto was the most representative (587 articles). Recurring themes were rehabilitation, stroke, and disability. The most consolidated research themes were rehabilitation, stroke, activities of daily living, and physiotherapy. This study contributes to scientific development in the field of disability and rehabilitation. The findings provide data to advance the understanding of academic practices in these fields and also provide valuable insights for the strategic planning, potential innovations, and future actions of the editorial board of the journal Disability and Rehabilitation. The study provides an analysis of the performance and scientific evolution of the Disability and Rehabilitation journal, which can help the editorial board to plan for the future, rethink actions, and propose changes, if necessary.The review provides an overview of consolidated (mature), emerging, and declining themes related to disability and rehabilitation published in the Disability and Rehabilitation journal. The study provides an analysis of the performance and scientific evolution of the Disability and Rehabilitation journal, which can help the editorial board to plan for the future, rethink actions, and propose changes, if necessary. The review provides an overview of consolidated (mature), emerging, and declining themes related to disability and rehabilitation published in the Disability and Rehabilitation journal.
DOI: 10.6084/m9.figshare.28279960
title: Measurement properties of the Trunk Impairment Scale-modified Norwegian version among people with mild to moderate multiple sclerosis

description: The Trunk Impairment Scale–modified Norwegian version (TIS-modNV) measures trunk control for clinical and research purposes. This study examined the validity and reliability of the TIS-modNV in people with multiple sclerosis (pwMS). Sixty-eight pwMS (mild to moderate) participated. The TIS-modNV and the Mini-Balance Evaluation Systems Test (Mini-BESTest) scores were compared for <i>construct validity</i> using Spearman’s rho (<i>r<sub>s</sub></i>). TIS-modNV performance was videotaped and rated by four physiotherapists on two occasions. The <i>inter-</i> and<i> intrarater reliability</i> was analyzed via intraclass correlation coefficients (ICC), standard errors of measurement (SEM), Bland–Altman plots, and kappa statistics (<i>k</i>). Validity was demonstrated (<i>r<sub>s</sub></i> = 0.55–0.61). Interrater reliability for the total score was moderate to good (ICC(A,1) =0.67; ICC(C,1) = 0.78), and the SEM was 2 points (12.8%). Interrater reliability varied across the rater pairs (ICC(A,1) = 0.54-0.81) as displayed in the Bland–Altman plots. Item-level interrater agreement varied from poor to good (<i>k</i> = 0.10–0.79). Intrarater reliability of the total scores was moderate to good (ICC(A,1) = 0.67–0.82). This study supports the construct validity and overall reliability of the TIS-modNV in pwMS with mild to moderate disability. However, variations in rater reliability need to be addressed. The Trunk Impairment Scale – modified Norwegian version (TIS-modNV) can be used to assess impairments in trunk control among people with mild to moderate multiple sclerosis (MS).Results of this study support construct validity and overall reliability of the TIS-modNV in individuals with MS.To address concerns about reliability, comprehensive training for raters and caution when comparing scores obtained by different raters are recommended. The Trunk Impairment Scale – modified Norwegian version (TIS-modNV) can be used to assess impairments in trunk control among people with mild to moderate multiple sclerosis (MS). Results of this study support construct validity and overall reliability of the TIS-modNV in individuals with MS. To address concerns about reliability, comprehensive training for raters and caution when comparing scores obtained by different raters are recommended.
DOI: 10.6084/m9.figshare.28279960.v1
title: Measurement properties of the Trunk Impairment Scale-modified Norwegian version among people with mild to moderate multiple sclerosis

description: The Trunk Impairment Scale–modified Norwegian version (TIS-modNV) measures trunk control for clinical and research purposes. This study examined the validity and reliability of the TIS-modNV in people with multiple sclerosis (pwMS). Sixty-eight pwMS (mild to moderate) participated. The TIS-modNV and the Mini-Balance Evaluation Systems Test (Mini-BESTest) scores were compared for <i>construct validity</i> using Spearman’s rho (<i>r<sub>s</sub></i>). TIS-modNV performance was videotaped and rated by four physiotherapists on two occasions. The <i>inter-</i> and<i> intrarater reliability</i> was analyzed via intraclass correlation coefficients (ICC), standard errors of measurement (SEM), Bland–Altman plots, and kappa statistics (<i>k</i>). Validity was demonstrated (<i>r<sub>s</sub></i> = 0.55–0.61). Interrater reliability for the total score was moderate to good (ICC(A,1) =0.67; ICC(C,1) = 0.78), and the SEM was 2 points (12.8%). Interrater reliability varied across the rater pairs (ICC(A,1) = 0.54-0.81) as displayed in the Bland–Altman plots. Item-level interrater agreement varied from poor to good (<i>k</i> = 0.10–0.79). Intrarater reliability of the total scores was moderate to good (ICC(A,1) = 0.67–0.82). This study supports the construct validity and overall reliability of the TIS-modNV in pwMS with mild to moderate disability. However, variations in rater reliability need to be addressed. The Trunk Impairment Scale – modified Norwegian version (TIS-modNV) can be used to assess impairments in trunk control among people with mild to moderate multiple sclerosis (MS).Results of this study support construct validity and overall reliability of the TIS-modNV in individuals with MS.To address concerns about reliability, comprehensive training for raters and caution when comparing scores obtained by different raters are recommended. The Trunk Impairment Scale – modified Norwegian version (TIS-modNV) can be used to assess impairments in trunk control among people with mild to moderate multiple sclerosis (MS). Results of this study support construct validity and overall reliability of the TIS-modNV in individuals with MS. To address concerns about reliability, comprehensive training for raters and caution when comparing scores obtained by different raters are recommended.
DOI: 10.6084/m9.figshare.26927184
title: Perceived factors influencing the success of pain neuroscience education in chronic musculoskeletal pain: a meta-synthesis of qualitative studies

description: We aimed to identify the factors influencing the success of Pain Neuroscience Education (PNE) in chronic musculoskeletal (MSK) pain from the perspective of those experiencing PNE first-hand. We conducted a meta-synthesis of qualitative studies. Articles were found on MEDLINE <i>via</i> Pubmed, EMBASE, Cochrane Library, CINHAL, and PsycINFO up to April 2023. Eligible qualitative studies focussed on adults (&gt;16 years old) with a diagnosis of chronic primary or secondary MSK pain who performed PNE. Thematic synthesis by Thomas and Harden was followed. The Critical Appraisal Skills Programme (CASP) tool ensured the quality of the studies, while the Confidence in Evidence from the Reviews of Qualitative Research (CERQual) approach facilitated data confidence assessment. Nine studies were included (188 participants). Three analytical themes were developed: (i) “Efficient Communication of Information”, emphasising the importance of accurate content transmission; (ii) “Emotional Support and Well-being”, recognising emotional aspects as integral to treatment; and (iii) “Empowerment Promotion”, focusing on information retention and personal transformation. The studies showed good quality, with moderate confidence in the evidence. The perceived factors influencing the success of PNE are intricately related to the domain of communication, the emotional dimension of personal experience, and the capacity to be empowered. Tailoring interventions to pain experiences, preferences, and emotions is key for the success of pain neuroscience education;A personalised approach is crucial for effective pain neuroscience education, emphasising the need to understand and address the specific aspects of each patient’s pain journey. Tailoring interventions to pain experiences, preferences, and emotions is key for the success of pain neuroscience education; A personalised approach is crucial for effective pain neuroscience education, emphasising the need to understand and address the specific aspects of each patient’s pain journey.