cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.23055891
title: “They are dealing with people’s lives…”: Diagnostic and post-diagnostic healthcare experiences in primary progressive aphasia

description: The healthcare experience is a multifaceted and varied process, particularly for people living with complex conditions such as primary progressive aphasia (PPA). Different experiences influence pathways through the health system, impacting client outcomes. To our knowledge, no previous studies have directly explored the healthcare experiences of people with PPA and their families. This study aimed to explore the experiences of people living with PPA from the perspective of both the person with PPA and their families during diagnostic and post-diagnostic phases, and to identify factors influencing service access and perceptions of quality of care. The study followed an Interpretive Phenomenological Analysis (IPA) approach. In-depth, semi-structured interviews were completed with three people with PPA and their primary care partner, and two further care partners of people with PPA. Five superordinate themes were identified: characterising the assessment experience, getting a diagnosis, moving beyond the diagnosis, participant interactions with clinicians, and overall service provision. The five superordinate themes comprised 14 subthemes. The study provides preliminary insights into the complexity of the PPA healthcare journey, and the need for increased accessibility of information and supports following diagnosis. The findings inform recommendations for improving quality of care and the development of a PPA service framework or care pathway.
DOI: 10.6084/m9.figshare.23185148
title: Equitable access to speech practice for rural Australian children using the SayBananas! mobile game

description: To evaluate the effect, usage, and user-experience for SayBananas!, a Mario-style mobile game providing Australian children access to high-dose individualised speech therapy practice. Participants were 45 rural Australian children with speech sound disorders (SSD; 4;4–10;5 years) with internet access. This mixed-methods study involved: (a) recruitment, (b) eligibility screening, (c) questionnaire, (d) online pre-assessment, (e) SayBananas! intervention using motor learning principles (4 weeks, 10–15 target words), and (f) online post-assessment and interview. Usage and performance were automatically monitored. Most participants were highly engaged with SayBananas! completing a median of 44.71 trials/session (∼45% of the 100 trial/session target, range 7–194). After intervention, participants made significant gains on treated words and on formal assessment of percentage of consonants, vowels, and phonemes correct. There was no reliable change for parent-rated intelligibility or children’s feelings about talking. The number of practice sessions was significantly correlated with percent change on treated words. On average, children rated the app as “happy/good/fun” providing detailed drawings of playing SayBananas!. Families provided high ratings of engagement, functionality, aesthetics, and quality. SayBananas! is a viable and engaging solution for rural Australian children with SSD to gain access to equitable, cost-effective speech practice. The amount of app use was associated with amount of speech production improvement over a 4-week period.
DOI: 10.6084/m9.figshare.23185148.v1
title: Equitable access to speech practice for rural Australian children using the SayBananas! mobile game

description: To evaluate the effect, usage, and user-experience for SayBananas!, a Mario-style mobile game providing Australian children access to high-dose individualised speech therapy practice. Participants were 45 rural Australian children with speech sound disorders (SSD; 4;4–10;5 years) with internet access. This mixed-methods study involved: (a) recruitment, (b) eligibility screening, (c) questionnaire, (d) online pre-assessment, (e) SayBananas! intervention using motor learning principles (4 weeks, 10–15 target words), and (f) online post-assessment and interview. Usage and performance were automatically monitored. Most participants were highly engaged with SayBananas! completing a median of 44.71 trials/session (∼45% of the 100 trial/session target, range 7–194). After intervention, participants made significant gains on treated words and on formal assessment of percentage of consonants, vowels, and phonemes correct. There was no reliable change for parent-rated intelligibility or children’s feelings about talking. The number of practice sessions was significantly correlated with percent change on treated words. On average, children rated the app as “happy/good/fun” providing detailed drawings of playing SayBananas!. Families provided high ratings of engagement, functionality, aesthetics, and quality. SayBananas! is a viable and engaging solution for rural Australian children with SSD to gain access to equitable, cost-effective speech practice. The amount of app use was associated with amount of speech production improvement over a 4-week period.
DOI: 10.6084/m9.figshare.23055891.v1
title: “They are dealing with people’s lives…”: Diagnostic and post-diagnostic healthcare experiences in primary progressive aphasia

description: The healthcare experience is a multifaceted and varied process, particularly for people living with complex conditions such as primary progressive aphasia (PPA). Different experiences influence pathways through the health system, impacting client outcomes. To our knowledge, no previous studies have directly explored the healthcare experiences of people with PPA and their families. This study aimed to explore the experiences of people living with PPA from the perspective of both the person with PPA and their families during diagnostic and post-diagnostic phases, and to identify factors influencing service access and perceptions of quality of care. The study followed an Interpretive Phenomenological Analysis (IPA) approach. In-depth, semi-structured interviews were completed with three people with PPA and their primary care partner, and two further care partners of people with PPA. Five superordinate themes were identified: characterising the assessment experience, getting a diagnosis, moving beyond the diagnosis, participant interactions with clinicians, and overall service provision. The five superordinate themes comprised 14 subthemes. The study provides preliminary insights into the complexity of the PPA healthcare journey, and the need for increased accessibility of information and supports following diagnosis. The findings inform recommendations for improving quality of care and the development of a PPA service framework or care pathway.
DOI: 10.5281/zenodo.10669601
title: CHARACTERISTICS OF LOCAL GUINEA FOWL (NUMIDA MELEAGRIS, L.) EGGS IN BURKINA FASO

description: Eggs are an important source of animal protein for humans. However, their physico-chemical and nutritional characteristics vary across and within breeds. The aim of this study was to determine the physico-chemical and nutritional quality of 109 eggs from local guinea fowl (Numida Meleagris, L.) in Burkina Faso. For the that purpose, the following parameters were collected for each egg: egg weight albumen, yolk, and shell weights, egg length and width, pH, shape, and coloration of the shell and yolk. The physical parameter values analyzed showed that local guinea fowl lay small eggs with average weight of 34.91 g (Â± 3.33 g). The length and width were 46.95 Â± 2.48 mm and 36.80 Â± 1.09 mm, respectively. The egg a shape index was 0.79. The majority of eggs were oval in shape (90.83%) and reddish in color (70.64%). The albumen, yolk, and shell weighed on average 14.79 Â± 3.47 g, 13.17 Â± 2.28 g, and 5.95 Â± 0.84 g respectively. The majority of eggs had a pH ranging between 9 and 10 for the yolk and around 7 for the albumen. The yolk had a light-yellow color with an average index of 4.66. Water and ash contents were higher in the albumen than in the yolk and while the dry matter content was higher in the yolk. These results, although limited in terms of the number of parameters studied, represent a very interesting basis for assessing the nutritional quality of local guinea fowl eggs consumed by Burkina Faso population.
DOI: 10.6084/m9.figshare.22559986.v1
title: Prevalence of persistent SARS-CoV-2 in a large community surveillance study

description: This is the data as part of the Ghafari et al. "Prevalence of persistent SARS-CoV-2 in a large community surveillance study " paper. It includes aligned consensus sequence FASTA files of viral sequences from persistent infections and reinfections with the same major lineage along with all other consensus sequences used as part of our phylogenetic analyses on Alpha (B.1.1.7), Delta (B.1.617.2), Omicron BA.1, and Omicron BA.2.
DOI: 10.6084/m9.figshare.25264552.v1
title: mpfc_bigwig

description: UCSC track hub for mouse pfc
DOI: 10.5281/zenodo.10688786
title: Worker HP – Worker Health and Performance: Biosignals of induced mental workload in office environment

description: The dataset corresponds to electrodermal activity (EDA) and electrocardiogram (ECG) signals collected during the performance of mental workload tasks in an office environment. Data were collected in two experiments:



Multiple induced mental workload test: EDA data were collected when 7 participants performed three different activities to induce mental workload, namely, N-back test, Mental Arithmetic test, and Neuropsychological Stroop Test. A baseline condition was presented before each test. During the baseline condition, the participant was instructed to relax while viewing a white cross with a gray background for 2 minutes.

Mental Arithmetic test at different levels of difficulty: EDA and ECG data were collected when 41 participants performed the Mental Arithmetic test at two different levels of difficulty. A baseline condition was presented before each test. During the baseline condition, the participant was instructed to relax while viewing a white cross with a gray background for 2 minutes.


Data were collected using a BIOPAC MP160 system (Biopac Systems Inc., Goleta, CA, USA) in an experimental set-up created to simulate an office work scenario. EDA data were collected using EL507 electrodes, while ECG data were collected using EL503 electrodes.

Data is provided in two Matlab files that contain the raw sensor data of the experiments: (1) Multiple induced mental workload test, and (2) Mental Arithmetic test at different levels of difficulty. Additionally, an Excel document with demographic data of the participants and the scores obtained in the Mental Arithmetic test for the second experiment.

Data provided are sampled at 250Hz.  Check the "README_workerHP.txt" file for details about this dataset. 

 

Funding:

This work was co-financed by European Regional Development Fund (ERDF), project number NORTE-01-0247-FEDER-070146, under the Programa Operacional Regionaldo Norte, Portugal 2020, through the National Innovation Agency (ANI) and by FCT – Fundação para a Ciência e Tecnologia - within the R&D Units Project Scope: UIDB/00319/2020.
DOI: 10.5281/zenodo.10688787
title: Worker HP – Worker Health and Performance: Biosignals of induced mental workload in office environment

description: The dataset corresponds to electrodermal activity (EDA) and electrocardiogram (ECG) signals collected during the performance of mental workload tasks in an office environment. Data were collected in two experiments:



Multiple induced mental workload test: EDA data were collected when 7 participants performed three different activities to induce mental workload, namely, N-back test, Mental Arithmetic test, and Neuropsychological Stroop Test. A baseline condition was presented before each test. During the baseline condition, the participant was instructed to relax while viewing a white cross with a gray background for 2 minutes.

Mental Arithmetic test at different levels of difficulty: EDA and ECG data were collected when 41 participants performed the Mental Arithmetic test at two different levels of difficulty. A baseline condition was presented before each test. During the baseline condition, the participant was instructed to relax while viewing a white cross with a gray background for 2 minutes.


Data were collected using a BIOPAC MP160 system (Biopac Systems Inc., Goleta, CA, USA) in an experimental set-up created to simulate an office work scenario. EDA data were collected using EL507 electrodes, while ECG data were collected using EL503 electrodes.

Data is provided in two Matlab files that contain the raw sensor data of the experiments: (1) Multiple induced mental workload test, and (2) Mental Arithmetic test at different levels of difficulty. Additionally, an Excel document with demographic data of the participants and the scores obtained in the Mental Arithmetic test for the second experiment.

Data provided are sampled at 250Hz.  Check the "README_workerHP.txt" file for details about this dataset. 

 

Funding:

This work was co-financed by European Regional Development Fund (ERDF), project number NORTE-01-0247-FEDER-070146, under the Programa Operacional Regionaldo Norte, Portugal 2020, through the National Innovation Agency (ANI) and by FCT – Fundação para a Ciência e Tecnologia - within the R&D Units Project Scope: UIDB/00319/2020.
DOI: 10.34740/kaggle/dsv/7676770
title: AutoXGB
DOI: 10.34740/kaggle/dsv/7676771
title: OnlineFree
DOI: 10.48557/ibdjyt
title: Replication Data for "RESPRECT: Speeding-up Multi-fingered Grasping with Residual Reinforcement Learning"

description: Pre-trained models to reproduce the results in the paper "RESPRECT: Speeding-up Multi-fingered Grasping with Residual Reinforcement Learning".
DOI: 10.5281/zenodo.10669302
title: SOLAR ENERGY AND SUSTAINABLE DEVELOPMENT

description: The sun is the main source of energy on Earth. Other energy sources include coal, geothermal energy, wind energy, biomass, petrol, nuclear energy, and many more. Energy is classified into various types based on sustainability as renewable sources of energy and non-renewable sources of energy.
DOI: 10.5281/zenodo.10669303
title: SOLAR ENERGY AND SUSTAINABLE DEVELOPMENT

description: The sun is the main source of energy on Earth. Other energy sources include coal, geothermal energy, wind energy, biomass, petrol, nuclear energy, and many more. Energy is classified into various types based on sustainability as renewable sources of energy and non-renewable sources of energy.
DOI: 10.6084/m9.figshare.16650224
title: Additional file 16 of RNA m6A demethylase FTO-mediated epigenetic up-regulation of LINC00022 promotes tumorigenesis in esophageal squamous cell carcinoma

description: Additional file 16. Primers for qRT-PCR.
DOI: 10.6084/m9.figshare.16650224.v1
title: Additional file 16 of RNA m6A demethylase FTO-mediated epigenetic up-regulation of LINC00022 promotes tumorigenesis in esophageal squamous cell carcinoma

description: Additional file 16. Primers for qRT-PCR.
DOI: 10.6084/m9.figshare.25265020
title: genome assembly of Female Pampus argenteus

description: We present here the genome assembly data of female silver pomfret (Pampus argenteus).
DOI: 10.6084/m9.figshare.25265020.v1
title: genome assembly of Female Pampus argenteus

description: We present here the genome assembly data of female silver pomfret (Pampus argenteus).
DOI: 10.5281/zenodo.10030292
title: Yearly data quality information from the Topo-Iberia CGPS stations (2008–2019)

description: Description

This data set includes yearly quality plots from all 26 Topo-Iberia CGPS stations and is based on the quality assessment by García-Armenteros (2024). The quality plots (253 PNG files) are provided archived and compressed in a tar.gz folder (yearly_qc_Topo-Iberia_2008-19.tar.gz), but can also be viewed individually at https://blogs.ujaen.es/jgarmen/topo-iberia_data_quality.

The quality check was carried out using TEQC software (Estey and Meertens 1999), and the figures are composed of: maximum number of complete observations that were counted for each frequency above the elevation mask angle, percentage of the number of complete observations recorded with respect to the number of expected observations, number of cycle slips per 1000 complete observations, and root-mean-square of multipath effect for two GPS frequencies (L1 and L2) averaged over the observation interval. It has been tried to keep the same range on the plots axes as far as possible, although it has been necessary to expand them according to the data in some cases, such as the cycle slips plots. 39 RINEX files were not included in the quality plots since they provide anomalous information on isolated days and are considered outliers (see García-Armenteros 2024, Suppl. Table S2). Similarly, some data are also not included in the quality plots, as they extend the range on the Y-axis too much and complicate the analysis of the station's behavior (see García-Armenteros 2024, Suppl. Table S3).
DOI: 10.5281/zenodo.10030293
title: Yearly data quality information from the Topo-Iberia CGPS stations (2008–2019)

description: Description

This data set includes yearly quality plots from all 26 Topo-Iberia CGPS stations and is based on the quality assessment by García-Armenteros (2024). The quality plots (253 PNG files) are provided archived and compressed in a tar.gz folder (yearly_qc_Topo-Iberia_2008-19.tar.gz), but can also be viewed individually at https://blogs.ujaen.es/jgarmen/topo-iberia_data_quality.

The quality check was carried out using TEQC software (Estey and Meertens 1999), and the figures are composed of: maximum number of complete observations that were counted for each frequency above the elevation mask angle, percentage of the number of complete observations recorded with respect to the number of expected observations, number of cycle slips per 1000 complete observations, and root-mean-square of multipath effect for two GPS frequencies (L1 and L2) averaged over the observation interval. It has been tried to keep the same range on the plots axes as far as possible, although it has been necessary to expand them according to the data in some cases, such as the cycle slips plots. 39 RINEX files were not included in the quality plots since they provide anomalous information on isolated days and are considered outliers (see García-Armenteros 2024, Suppl. Table S2). Similarly, some data are also not included in the quality plots, as they extend the range on the Y-axis too much and complicate the analysis of the station's behavior (see García-Armenteros 2024, Suppl. Table S3).
DOI: 10.6084/m9.figshare.16650383
title: Additional file 3 of Genome-wide identification and expression profile under abiotic stress of the barley non-specific lipid transfer protein gene family and its Qingke Orthologues

description: Additional file 3: Table S3. Quantitative PCR primers for the HvLTP (HtLTP) genes.
DOI: 10.6084/m9.figshare.16650383.v1
title: Additional file 3 of Genome-wide identification and expression profile under abiotic stress of the barley non-specific lipid transfer protein gene family and its Qingke Orthologues

description: Additional file 3: Table S3. Quantitative PCR primers for the HvLTP (HtLTP) genes.
DOI: 10.6084/m9.figshare.16650398
title: Additional file 2 of Characterization and genomic analysis of the first Oceanospirillum phage, vB_OliS_GJ44, representing a novel siphoviral cluster

description: Additional file 2. 16S rRNA gene sequences of the bacteria used in host range test.
DOI: 10.6084/m9.figshare.16650398.v1
title: Additional file 2 of Characterization and genomic analysis of the first Oceanospirillum phage, vB_OliS_GJ44, representing a novel siphoviral cluster

description: Additional file 2. 16S rRNA gene sequences of the bacteria used in host range test.
DOI: 10.21227/je7d-2k14
title: SLR dataset

description: In our Systematic Literature Review (SLR), we systematically conducted searches in various repositories, utilizing a search string, based on titles and abstracts of publications. Following the retrieval of results, we meticulously eliminated duplicate publications, ensuring that only one instance with identical title, abstract, author names, and year of publication was retained. Subsequently, we excluded books and thesis reports from our dataset. A comprehensive manual review of the titles and abstracts of the remaining articles was then undertaken to further refine our dataset. 
 
The dataset presented herein represents the result of these sequential 
steps. 
It includes final papers that have been selected, as well as others that we'll be removing in a later stage.
DOI: 10.5281/zenodo.10669368
title: FIBROFOLLICULOMA: CASE REPORT

description: Introduction:Fibrofolliculoma usually is a clinically asymptomatic multiple connective tissue tumor, appearing perifollicular, skin-colored and located on the head or neck. and it usually arises in the form of multiple lesions, but rarely as a solitary lesion.We report a case of solitary fibrofolliculoma on the scalp.

Case Report:A 67-year-old female presented with an asymptomatic mass on the scalp. The lesion appeared as a flesh-colored, dome-shaped, smooth nodule being the size of 5 mm in diameter, with a smooth surface, and located on the scalp. Shave excision was performed, and the diagnosis of fibrofolliculoma was confirmed finally through histological exam.

Conclusion:Solitary fibrofolliculoma is rare, and generally diagnosed by histopathological exam after excision and biopsy, and one can very easily miss the diagnosis with a simple dermatologic examination when the patient presents with an asymptomatic lesion arising in the scalp. Fibrofolliculoma should be included in the differential diagnosis when a localized mass lesion arising in the scalp is encountered.
DOI: 10.6084/m9.figshare.25265089
title: genome assembly of male <i>Pampus argenteus</i>

description: We present here the genome assembly data of male silver pomfret (<i>Pampus argenteus</i>).
DOI: 10.6084/m9.figshare.25265089.v1
title: genome assembly of male <i>Pampus argenteus</i>

description: We present here the genome assembly data of male silver pomfret (<i>Pampus argenteus</i>).
DOI: 10.6084/m9.figshare.25265209.v1
title: Supplementary Material for: Occupation, Retirement Age, and 20-Year Cognitive Decline: The Atherosclerosis Risk in Communities Neurocognitive Study

description: Introduction: We examined the association of both midlife occupation and age at retirement with cognitive decline in the Atherosclerosis Risk in Communities (ARIC) biracial community-based cohort.
Methods: Current or most recent occupation at ARIC baseline (1987-89; ages 45-64y) was categorized based on 1980 US census major occupation groups and tertiles of the Nam-Powers-Boyd occupational status score (n=14,090). Retirement status via annual follow-up questionnaires administered ascertained in 1999-2007 was classified as occurring before or after age 70 (n=7,503). Generalized estimating equation models were used to examine associations of occupation and age at retirement with trajectories of global cognitive factor scores, assessed from visit 2 (1990-92) to visit 5 (2011–2013). Models were a priori stratified by race and sex and adjusted for demographics and comorbidities. 
Results: Low occupational status and blue-collar occupations were associated with low baseline cognitive scores in all race-sex strata. Low occupational status and homemaker status were associated with faster decline in White women but slower decline in Black women compared to high occupational status. Retirement before age 70 was associated with slower cognitive decline in White men and women and in Black men. Results did not change substantially after accounting for attrition.
Conclusion: Low occupational status was associated with cognitive decline in women but not in men. Earlier retirement was associated with a slower cognitive decline in White participants and in Black men. Further research should explore reasons for the observed associations and race-sex differences.
DOI: 10.23728/b2share.e6bd7177c3fc4f9c99d86c31678df58d
title: Meteorology - Kaserstattalm (Austria), 2019-2021

description: Meteorology - Kaserstattalm (Austria), 2019-2021 as collected for the LTER CWN project