cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.24373/pdsp-395
title: Nephrology, Provider

description: This concept set contains codes intended to identify nephrology visits (in combination with the nephrology facility concept set). This concept set was generated by restricting the PCORnet CDM value set to provider types that mention "nephrology". The value set uses the "Medicare Specialty" vocabulary, though the PEDSnet CDM also uses "ABMS", "NUCC", and "PEDSnet" vocabularies. The concept set is based on PCORnet CDM v6.0 2021-04.
description: Concept set intended to assess the frequency with which patients sought care with specialties involved in patient care for and related to nephrology.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study. Nephrology visits are a key variable for the PRESERVE study, as the focus is kidney disease. Patients in the cohort were required to have at least one nephrology visit and number of nephrology visits per person year was an covariate of interest.
DOI: 10.6084/m9.figshare.29483972.v1
title: SF1 Repliseq RT Various Resolutions

description: Repli-seq various resolutions file (9 files zipped)
DOI: 10.24373/pdsp-129
title: Congenital Anomalies of the Kidney and Urinary Tract (CAKUT)

description: This condition concept set includes CAKUT related diagnoses. This broad concept set was intended to identify all CAKUT diagnosis codes. Development began with SNOMED descendants of code 253859003 for Congenital malformation of the urinary system, and also looked at ICD9CM and ICD10/CM codes Q60-64 and 753. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is inteded to identify patients with a diagnosis of Congenital Anomalies of the Kidney and Urinary Tract (CAKUT).
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-157
title: Dyspnea

description: This concept set is inteded to identify patients with symptoms of dyspnea or tachypnea.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-34
title: Type 1 Diabetes Mellitus (T1DM)

description: This concept set contains diagnosis codes for type 1 diabetes mellitus. It was originally developed for the DiCAYA project, and it has also been used to identify T1DM patients for a domain concordance check on the PEDSnet Data Quality Dashboard.
description: This concept set is intended to identify patients with a diagnosis of type 1 diabetes mellitus.
DOI: 10.24373/pdsp-400
title: Nephrology Specialties

description: This concept set contains specialty codes for Nephrology, which was initially developed for the PRESERVE Blood Pressure Z-Score project to identify patients who had a nephrology specialty visit.
description: This concept set is intended to identify nephrology specialties.
DOI: 10.24373/pdsp-179
title: Autoimmune Thyroiditis

description: The condition concept set contains terms for and related to autoimmune thyroiditis. The code list was generated by searching for all descendants of the SNOMED code 66944004 (Autoimmune thyroiditis) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "autoimmune thyroiditis" or "hashimoto" in the condition domain and excluding the terms "family history", "langerhans", "questionnaire", "index", "education".
description: This concept set is inteded to identify patients with a diagnosis of autoimmune thyroiditis.
description: This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC.
DOI: 10.24373/pdsp-278
title: Streptococcus, Rapid Lab Results

description: This concept set contains codes used to identify rapid strep lab tests. It was developed for the PEDSnet Network Data Quality program. so that common lab tests like rapid strep could be measured and tracked for the network.
description: A concept set indicating that a patient received a rapid laboratory test for streptococcus.
DOI: 10.15468/dl.yzpsbm
title: Occurrence Download

description: A dataset containing 3 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Lepanthes urbaniana",
 "HasCoordinate is true",
 "BasisOfRecord is one of (Specimen)"
 ]
}

 The dataset includes 3 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009962-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-340
title: Mycophenolate, Drug Exposure

description: Concept set intended to identify patients with a prescription for the immunosuppressive medication, mycophenolate.
description: Membranoproliferative Glomerulonephritis (MPGN) in PEDSnet
DOI: 10.24373/pdsp-373
title: Echocardiogram

description: This procedure concept set contains codes for the administration of an echocardiography. It was developed using a string search for the term "echocardi" and excluding the strings "fetal," "transcatheter," "referral," "supply of contrast," "fetus," and "repair" in the procedure and measurement domains with the vocabularies ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, OPCS4.
description: Concept set intended to identify patients having undergone an echocardiogram procedure.
description: This concept set was developed to identify testing related to known organ involvement of PH and to observe the difference between the frequency of testing before and after diagnosis of PH for "A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2)."
DOI: 10.24373/pdsp-308
title: Antihypertensive, Drug Exposure

description: This medication concept set includes the following ingredients: ambrisentan, bethanidine, bosentan, cadralazine, clonidine, debrisoquin, deserpidine, diazoxide, dihydralazine, doxazosin, guanethidine, Guanoxan, hydralazine, indoramin, ketanserin, macitentan, mecamylamine, methoserpidine, methyldopa, metyrosine, minoxidil, moxonidine, nitroprusside, pargyline, pinacidil, prazosin, Rauwolfia preparation, rescinnamine, reserpine, rilmenidine, riociguat, Sitaxentan, tadalafil, Trimazosin, trimethaphan, urapidil, veratrum. It also includes combinations of these ingredients with other antihypertensive medications. This code list was generated by taking the descendants of all the 'other' antihypertensive ingredients of interest, and also doing string matching on the concept_name of the ingredient. This broad concept set was intended to identify patients who received 'other' antihypertensive ingredient not listed as RAAS blockers, calcium channel blockers, beta-blockers, or diuretics. Limited to RxNorm and RxNorm Extension codes. Technical Note: This concept set was created when ingredients were required for some sites. It could be enhanced by using SCDF drug levels and taking descendants, which would also make this easier to refresh.
description: Concept set intended to identify patients with an exposure to an antihypertensive medication.
description: Treatment of Henoch-Schonlein purpura (HSP) Nephritis
DOI: 10.24373/pdsp-188
title: Malignancy and Neoplasm

description: This concept set is inteded to identify patients with a diagnosis of malignancy and neoplasm.
description: Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1 (Alnylam)
DOI: 10.24373/pdsp-76
title: Premature Birth

description: This diagnosis concept set includes diagnosis codes for children born before full term. The concept set was developed to assess other characteristics of a study cohort. It was used for exploratory analyses but it was not included as a covariate for the published analyses. It was then reused without modification for a subsequent study. The code list was generated using string searching of SNOMED concepts that mentioned terms related to prematurity. The concept set includes codes for children born before 40 weeks, but can be refined if prematurity is defined using an earlier gestational age in the study. It can also be used in combination with the pn_gestational_age variable in the PEDSnet person table, as a patient could have gestational age recorded at birth without a diagnosis code, though this variable is likely more available for patients born in hospital or admitted to the hospital as a neonate.
description: This concept set is inteded to identify patients with a diagnosis of a premature birth.
description: Original concept set was developed for "A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2)."
description: This concept set was reused without modification for "Natural History of Enteroviral Sepsis Using Real World Data."
DOI: 10.24373/pdsp-323
title: Anti-Reflux Agent, Drug Exposure

description: Concept set intended to identify patients with an exposure to an anti-reflux medication.
description: Healthy Weight Network Clinic Survey
DOI: 10.24373/pdsp-268
title: Platelet Count, Lab Results

description: This concept set contains codes pertaining to platelet labs. It was developed to define a study variable for a RECOVER project query request.
description: A concept set indicating that a patient received a laboratory measurement for platelet count.
description: Natural History of Enteroviral Sepsis Using Real World Data
DOI: 10.24373/pdsp-102
title: Nephritis

description: This concept set is inteded to identify patients with a diagnosis of nephritis.
description: This concept set was created for the Pediatric KIDney Stone (PKIDS) Care Improvement Network.
DOI: 10.24373/pdsp-381
title: Nephrology, Providers and Care Sites

description: This concept set contains provider and care site specialties for nephrology. This concept set was previously developed for other PEDSnet studies by searching for terms related to nephrology. This concept set was not reviewed by a clinician for this particular study, but it has been used in a multitude of other nephrology focused PEDSnet studies including PRESERVE, HSP, P50 clinical insights and ARPKD. It was developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH. This concept set contains NUCC, HES Specialty, ABMS, and Medicare Specialty vocabularies. Some of the vocabularies in the concept set are not utilized in the PEDSnet CDM to describe provider specialty, but could potentially be present in other networks for distributed queries.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-380
title: ADT Event Type Valueset

description: This concept set was developed for the PEDSnet Network Data Quality program to help identify cases where a non-valueset concept was present in the data.
description: This concept set reflects the controlled valueset used in the adt_type_concept_id field in the PEDSnet CDM.
DOI: 10.24373/pdsp-406
title: ADT service_concept_id Valueset

description: This concept set was developed for the PEDSnet Network Data Quality program to help identify cases where a non-valueset concept was present in the data.
description: This concept set reflects the controlled valueset for service_concept_id.
DOI: 10.24373/pdsp-260
title: Hematuria, Lab Results

description: This concept set was used to determine whether a given patient had this condition.
description: A concept set indicating that a patient received a laboratory measurement for hematuria.
description: Outcomes of Children with Kidney Stones: Retrospective Cohort Study
DOI: 10.24373/pdsp-170
title: Asthma, SNOMED-only

description: Concept set intended to identify patients with a diagnosis of asthma.
description: This concept set was created to analyze the potential for urban greenspace exposure in early life to protect against development of asthma.
DOI: 10.24373/pdsp-284
title: Anesthesia, Drug Exposure

description: This anesthesia medication concept set includes propofol (intravenous), etomidate (intravenous), ketamine (intravenous), midazolam (Intravenous), fentanyl (Intravenous), nitrous oxide (inhaled), sevoflurane (inhaled), desflurane (inhaled), isoflurane (inhaled). This code list was generated by taking all descendants from the SCDF drug level for propofol (intravenous), etomidate (intravenous), ketamine (intravenous), midazolam (Intravenous), fentanyl (Intravenous), nitrous oxide (inhaled), sevoflurane (inhaled), desflurane (inhaled), isoflurane (inhaled). The codeset was reviewed by the PRESERVE BPZ workgroup led by Mark Mitsnefes. This codeset was created as part of the inclusion/exclusion criteria for the cohort of patients for the development and evaluation of EHR-based pediatric blood pressure Z-scores. One of the exclusion criteria was any BP measurements 30 days before or after administration of general anesthesia. It is limited to RxNorm and RxNorm Extension codes.
description: Concept set intended to identify patients with an anesthesia exposure.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-153
title: Immune Thrombocytopenic Purpura

description: This concept set contains concept codes for immune thrombocytopenic purpura (itp). This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC. The code list was generated by searching for all descendants of the SNOMED code 234490009 (Immune thrombocytopenic purpura) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string ("immune" or "idiopathic") and "thrombocytopeni" and "purpura" in the condition domain and excluding the term "family history". The concept set was limited to ICD10, ICD10CM, and SNOMED vocabularies.
description: This concept set is inteded to identify patients with a diagnosis of immune thrombocytopenic purpura.
description: The original concept set was developed for the initial RECOVER work exploring clinical features of PASC in children. This codeset was a part of the autoimmune conditions subset of features.
DOI: 10.24373/pdsp-16
title: Urinary Tract Obstruction

description: The concept set contains diagnosis codes for and indicative of congenital and acquired urinary tract obstruction. This concept set was developed to assess the frequency of occurrence of urinary tract obstruction in pediatric patients with PH1 (cases) compared to those with kidney stones without PH1 (controls). The concept set contains codes for congenital and acquired urinary tract obstruction and was assessed prior to and up to 180 days after (PH1 or kidney stone) diagnosis. The concept set is intended to be broad. The study PI, Greg Tasian, provided a list of ICD9 (starting with 753) and ICD10 (starting with Q62 or Q64) codes which we mapped to SNOMED codes and took all descendants. This concept set is limited to SNOMED diagnosis codes.
description: This concept set is inteded to identify patients with a diagnosis of congenital and acquired urinary tract obstruction.
description: Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1 (Alnylam)
DOI: 10.24373/pdsp-329
title: Proton-Pump Inhibitor, Drug Exposure

description: This medication concept set identifies exposures to one of the following proton-pump inhibitors: omeprazole, esomeprazole, lansoprazole, pantoprazole, rabeprazole, or dexlansoprazole.
description: Concept set intended to identify patients with an exposure to a proton-pump inhibitor.
description: Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1 (Alnylam)
DOI: 10.15468/dl.ubjrr9
title: Occurrence Download

description: A dataset containing 60 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "Year is greater than or equal to 1900",
 "TaxonKey is Brachiaria grossa"
 ]
}

 The dataset includes 60 records from 6 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009966-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-222
title: Housing Stability SDOH Measure Responses

description: This concept set was developed to identify the ANSWERS to the questions that make up the Social Determinants of Health (SDOH) metrics for housing stability. These include the AHC HRSN Living Situation and the Children's Health Watch Housing Stability Vital Signs. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting concept_id_2 where relationship_id = 'Has Answer'.
description: This concept set is intended to identify the responses to the housing stability SDOH measure(s).
DOI: 10.15468/dl.mescvm
title: Occurrence Download

description: A dataset containing 5 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Gladioglanis anacanthus",
 "DecimalLatitude is not null",
 "DecimalLongitude is not null"
 ]
}

 The dataset includes 5 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009963-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-143
title: Influenza

description: This concept set was used in conjunction with a flu lab concept set and source value string searching to identify patients with evidence of flu for a subcohort in the analysis.
description: This concept set is intended to identify patients diagnosed with influenza.
DOI: 10.24373/pdsp-118
title: Developmental Delay

description: This concept set is inteded to identify patients with a diagnosis of a developmental delay.
description: Healthy Weight Network Clinic Survey
DOI: 10.24373/pdsp-377
title: Nephrology, Facility

description: This concept set contains codes intended to identify nephrology visits (in combination with the [nephrology provider](https://pedsdspaceprod.research.chop.edu/entities/conceptset/992ef45e-35f3-4480-a733-4284ff3b17d6) concept set). This concept set was generated by restricting the PCORnet CDM value set to facility types that mention "nephrology". This value set is PCORnet-specific and is based on PCORnet CDM v6.0 2021-04. A PEDSnet equivalent concept set, _Nephrology, Providers and Care Sites, is linked below.
description: Concept set intended to identify nephrology visits.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study. Nephrology visits are a key variable for the PRESERVE study, as the focus is kidney disease. Patients in the cohort were required to have at least one nephrology visit and number of nephrology visits per person year was an covariate of interest.
DOI: 10.24373/pdsp-128
title: Hypertension, Excluding Pregnancy-Related Hypertension

description: This concept set is a subset of the Hypertension concept set.
description: This concept set is intended to identify patients with a diagnosis of hypertension, excluding pregnancy-related hypertension diagnoses.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-297
title: Intravenous Immunoglobulin (IVIG), Drug Exposure

description: This codeset was created by searching for medication names provided by the study team. This broad concept set was developed at the SCDG drug levels and descendants were grabbed when running the code for the study.
description: The concept set was used to identify patients who had record of Intravenous immunoglobulin (IVIG) medications.
description: Developed for Neonatal Enteroviral Sepsis (NES) study to locate IVIG medications for neonates/infants.
DOI: 10.24373/pdsp-191
title: Cancer

description: This cancer diagnosis codeset includes SNOMED, ICD-9, and ICD-10 codes. It was constructed by taking the union of the SNOMED descendants of concept_id 4312326 "Neoplasm, malignant (primary)", the SNOMED descendants of concept_id 4032806 "Neoplasm, metastatic", ICD-9 range 140-239 and ICD-10 range C00-D49. Based on feedback from clinicians, string search exclusions were applied to remove diagnoses that mention "benign" (excluding benign neoplasms of the brain), "hemangioma", "essential thrombocythemia", "melanocytic nevi/nevus/naevi/naevus", "lipoma", "neurofibromatosis" and "schwannomatosis". "Family history"/"history of" diagnoses were also excluded via string searches. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. Note: concept_id 4312326 "Neoplasm, malignant (primary)" was upgraded and remapped to concept_id 37153816 "Malignant neoplasm" in 2022. Future uses and updates to this codeset should take this into consideration.
description: This concept set is intended to identify patients with a diagnosis of cancer (malignancy).
description: This concept set was originally developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study. It was reused without modification for use in PEDSnet/COSMOS analyses as part of the PEDSnet CRN Phase 4 Infrastructure grant.
DOI: 10.15468/dl.xam9qz
title: Occurrence Download

description: A dataset containing 85 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Mitracarpus carajasensis",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is Fossil"
 ]
 }
 }
 ]
}

 The dataset includes 85 records from 9 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009964-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.kfqgpu
title: Occurrence Download

description: A dataset containing 2 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-118.25683 29.19138,-118.28736 29.18206,-118.29753 29.16764,-118.31449 29.17358,-118.32466 29.16849,-118.33568 29.16849,-118.36112 29.1456,-118.35094 29.10999,-118.36027 29.08964,-118.36281 29.07693,-118.34331 29.06591,-118.34162 29.05404,-118.31788 29.03877,-118.31788 29.02267,-118.30601 29.00656,-118.3094 28.99554,-118.3077 28.98536,-118.31364 28.97688,-118.30092 28.9684,-118.2899 28.97095,-118.29329 28.95399,-118.29753 28.93788,-118.29244 28.92432,-118.28651 28.90821,-118.28396 28.89549,-118.29499 28.88277,-118.26955 28.88786,-118.25938 28.88277,-118.24157 28.89803,-118.24284 28.91355,-118.22716 28.92517,-118.22038 28.96162,-118.23225 28.9913,-118.22123 29.01504,-118.22207 29.05743,-118.22886 29.0693,-118.25344 29.09558,-118.28227 29.10321,-118.2882 29.1278,-118.28566 29.14899,-118.25683 29.19138))",
 "OccurrenceStatus is Present",
 "TaxonKey is Reptilia"
 ]
}

 The dataset includes 2 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0159853-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.