cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.28374981
title: Feasibility of the TRANSITION program as an add-on to regular daily living support for young adults: an open mixed-methods study

description: TRANSITION is a structured behavioral and educational program to support young adults with mental, behavioral, and neurodevelopmental conditions transitioning into adulthood. This study investigated its feasibility as an add-on to regular daily living support in social services. A non-randomized single-arm mixed method design was used. Twenty-eight service users, aged 19–29, were enrolled to participate in the program for 20 weeks alongside their support workers. They rated their engagement and satisfaction and reported any adverse effects. Eighteen support workers received training in the program. A subsample of service users (<i>n</i> = 11) and support workers (<i>n</i> = 9) was interviewed about their experiences. Qualitative content analysis using an abductive approach and quantitative analyses with descriptive statistics was integrated and mapped to specific feasibility areas in a joint display. Service users completing the study (<i>n</i> = 26) generally rated satisfaction and engagement highly. While some service users experienced stress related to their participation, no serious adverse events were reported. Service users and support workers highlighted the program’s clear structure and focus on specific goals as particularly valuable. The results indicate that TRANSITION is a feasible complement to regular support in social service settings. Further evaluation of the program is justified.Implications for rehabilitationThe TRANSITION program is a feasible add-on to regular support in daily living for young adults with mental, behavioral, and neurodevelopmental conditions.Support workers can deliver the program, although training, practice, and regular supervision are needed.Service users perceive that the program adds clarity and valued direction to their support.The program may help service users and support workers become more aware of the inherent benefits of user engagement in daily living support. The TRANSITION program is a feasible add-on to regular support in daily living for young adults with mental, behavioral, and neurodevelopmental conditions. Support workers can deliver the program, although training, practice, and regular supervision are needed. Service users perceive that the program adds clarity and valued direction to their support. The program may help service users and support workers become more aware of the inherent benefits of user engagement in daily living support.
DOI: 10.6084/m9.figshare.28374981.v1
title: Feasibility of the TRANSITION program as an add-on to regular daily living support for young adults: an open mixed-methods study

description: TRANSITION is a structured behavioral and educational program to support young adults with mental, behavioral, and neurodevelopmental conditions transitioning into adulthood. This study investigated its feasibility as an add-on to regular daily living support in social services. A non-randomized single-arm mixed method design was used. Twenty-eight service users, aged 19–29, were enrolled to participate in the program for 20 weeks alongside their support workers. They rated their engagement and satisfaction and reported any adverse effects. Eighteen support workers received training in the program. A subsample of service users (<i>n</i> = 11) and support workers (<i>n</i> = 9) was interviewed about their experiences. Qualitative content analysis using an abductive approach and quantitative analyses with descriptive statistics was integrated and mapped to specific feasibility areas in a joint display. Service users completing the study (<i>n</i> = 26) generally rated satisfaction and engagement highly. While some service users experienced stress related to their participation, no serious adverse events were reported. Service users and support workers highlighted the program’s clear structure and focus on specific goals as particularly valuable. The results indicate that TRANSITION is a feasible complement to regular support in social service settings. Further evaluation of the program is justified.Implications for rehabilitationThe TRANSITION program is a feasible add-on to regular support in daily living for young adults with mental, behavioral, and neurodevelopmental conditions.Support workers can deliver the program, although training, practice, and regular supervision are needed.Service users perceive that the program adds clarity and valued direction to their support.The program may help service users and support workers become more aware of the inherent benefits of user engagement in daily living support. The TRANSITION program is a feasible add-on to regular support in daily living for young adults with mental, behavioral, and neurodevelopmental conditions. Support workers can deliver the program, although training, practice, and regular supervision are needed. Service users perceive that the program adds clarity and valued direction to their support. The program may help service users and support workers become more aware of the inherent benefits of user engagement in daily living support.
DOI: 10.6084/m9.figshare.27879627
title: The Albanian version of the Oswestry Disability Index: translation, cross-cultural adaptation, validity, and reliability

description: The aim of this study was to assess the translation, validation, and reliability of the Albanian ODI (ODI-A) version 2.1b. Standardized guidelines for evaluation of psychometric properties were followed. Participants were recruited from a national center with orthopedic-traumatological specialty of an Albanian region. The construct validity, internal consistency, and the reliability of ODI-A measured by seven days test–retest method across two repeated measures were considered. In total, 200 patients completed the ODI-A 2.1b version: 43% had low back pain, 36% had rheumatoid arthritis as principal diagnosis and the other participants had trauma, luxation, discal hernia, and fractures as diagnosis accompanied by back pain. There were no missing items. The Kaiser–Meyer–Olkin was 0.613 and Bartlett’s test of sphericity was found to be significant (<i>p</i> &lt; 0.001). ODI-A showed excellent test–retest reliability of each item (ICC = 0.707–0.959). Cronbach’s <i>α</i> for the first completion was 0.684, ICC for ODI-A was 0.629, the SEM was 1.701, and MDC<sub>95%</sub> was 4.71. ODI-A, adapted from a linguistic and cultural perspective, meets validity and reliability requirements necessary for its use in the Albanian population with back pain. The Oswestry Disability Index (ODI) was cross-culturally translated and adapted for the first time into Albanian language.This study demonstrated that Albanian ODI (ODI-A) version had construct validity properties, good internal consistency, and test–retest reliability.The ODI-A stability allows rehabilitation professionals to track changes over time and assess the effectiveness of interventions. The Oswestry Disability Index (ODI) was cross-culturally translated and adapted for the first time into Albanian language. This study demonstrated that Albanian ODI (ODI-A) version had construct validity properties, good internal consistency, and test–retest reliability. The ODI-A stability allows rehabilitation professionals to track changes over time and assess the effectiveness of interventions.
DOI: 10.6084/m9.figshare.27879627.v1
title: The Albanian version of the Oswestry Disability Index: translation, cross-cultural adaptation, validity, and reliability

description: The aim of this study was to assess the translation, validation, and reliability of the Albanian ODI (ODI-A) version 2.1b. Standardized guidelines for evaluation of psychometric properties were followed. Participants were recruited from a national center with orthopedic-traumatological specialty of an Albanian region. The construct validity, internal consistency, and the reliability of ODI-A measured by seven days test–retest method across two repeated measures were considered. In total, 200 patients completed the ODI-A 2.1b version: 43% had low back pain, 36% had rheumatoid arthritis as principal diagnosis and the other participants had trauma, luxation, discal hernia, and fractures as diagnosis accompanied by back pain. There were no missing items. The Kaiser–Meyer–Olkin was 0.613 and Bartlett’s test of sphericity was found to be significant (<i>p</i> &lt; 0.001). ODI-A showed excellent test–retest reliability of each item (ICC = 0.707–0.959). Cronbach’s <i>α</i> for the first completion was 0.684, ICC for ODI-A was 0.629, the SEM was 1.701, and MDC<sub>95%</sub> was 4.71. ODI-A, adapted from a linguistic and cultural perspective, meets validity and reliability requirements necessary for its use in the Albanian population with back pain. The Oswestry Disability Index (ODI) was cross-culturally translated and adapted for the first time into Albanian language.This study demonstrated that Albanian ODI (ODI-A) version had construct validity properties, good internal consistency, and test–retest reliability.The ODI-A stability allows rehabilitation professionals to track changes over time and assess the effectiveness of interventions. The Oswestry Disability Index (ODI) was cross-culturally translated and adapted for the first time into Albanian language. This study demonstrated that Albanian ODI (ODI-A) version had construct validity properties, good internal consistency, and test–retest reliability. The ODI-A stability allows rehabilitation professionals to track changes over time and assess the effectiveness of interventions.
DOI: 10.6084/m9.figshare.28235561
title: Standardisation of the Brazilian version of Lucerne ICF-based multidisciplinary observational scale (LIMOS) into a patient-reported outcome measure (PROM)

description: The LIMOS is a validated observational tool designed to assess stroke rehabilitation within hospital settings. To enable its application in outpatient settings in Brazil and similar low- and middle-income countries, it is necessary to adapt LIMOS into a Patient-Reported Outcome Measure (PROM). Accordingly, this study aimed to translate, cross-culturally adapt, and standardise LIMOS for the Brazilian context (LIMOS-Br) and transform it into a PROM. The adaptation process included translation, synthesis, expert evaluation, back-translation, target population evaluation and re-evaluation by experts. The study involved 100 adult stroke survivors. We assessed content validity, reliability, internal consistency, Criterion-related validity with the Functional Independence Measure (FIM), item and participant calibration, and accuracy. The LIMOS-Br demonstrated good internal consistency (Cronbach’s alpha = 0.8), and excellent intra- and inter-rater reliability (ICC<sub>2.1</sub>=0.97; 95%CI = 0.94–0.98 and ICC<sub>2.1</sub>=0.85; 95%CI = 0.74–0.91, respectively). Criterion-related validity with FIM was high (rho = 0.85; <i>p</i> &lt; 0.01). Rasch analyses indicated high reliability indices (item: 0.96, people: 0.94), good item and person variance (separation indices: items 5.18, people 4.06), and adequate performance deviations. Accuracy for functional independence was optimal with a cut-off score of 180 points (sensitivity 83.3% and specificity 88.9%). The LIMOS-Br maintained its clinimetric integrity, validating its use as a PROM. LIMOS-Br adopts a multidisciplinary approach grounded in the International Classification of Functioning, Disability, and Health (ICF), promoting standardised communication among healthcare professionals, patients, and family members.LIMOS-Br focuses on the ICF component of activity, guiding professionals in assessing specific tasks to tailor patient-centered therapeutic planning.Its adaptation as a Patient-Reported Outcome Measure (PROM) ensures standardised evaluations that incorporate the patient’s perspective across various environments and contexts.LIMOS-Br is valid and reliable for assessing the functioning of stroke patients in outpatient settings, enhancing data collection. LIMOS-Br adopts a multidisciplinary approach grounded in the International Classification of Functioning, Disability, and Health (ICF), promoting standardised communication among healthcare professionals, patients, and family members. LIMOS-Br focuses on the ICF component of activity, guiding professionals in assessing specific tasks to tailor patient-centered therapeutic planning. Its adaptation as a Patient-Reported Outcome Measure (PROM) ensures standardised evaluations that incorporate the patient’s perspective across various environments and contexts. LIMOS-Br is valid and reliable for assessing the functioning of stroke patients in outpatient settings, enhancing data collection.
DOI: 10.6084/m9.figshare.28235561.v1
title: Standardisation of the Brazilian version of Lucerne ICF-based multidisciplinary observational scale (LIMOS) into a patient-reported outcome measure (PROM)

description: The LIMOS is a validated observational tool designed to assess stroke rehabilitation within hospital settings. To enable its application in outpatient settings in Brazil and similar low- and middle-income countries, it is necessary to adapt LIMOS into a Patient-Reported Outcome Measure (PROM). Accordingly, this study aimed to translate, cross-culturally adapt, and standardise LIMOS for the Brazilian context (LIMOS-Br) and transform it into a PROM. The adaptation process included translation, synthesis, expert evaluation, back-translation, target population evaluation and re-evaluation by experts. The study involved 100 adult stroke survivors. We assessed content validity, reliability, internal consistency, Criterion-related validity with the Functional Independence Measure (FIM), item and participant calibration, and accuracy. The LIMOS-Br demonstrated good internal consistency (Cronbach’s alpha = 0.8), and excellent intra- and inter-rater reliability (ICC<sub>2.1</sub>=0.97; 95%CI = 0.94–0.98 and ICC<sub>2.1</sub>=0.85; 95%CI = 0.74–0.91, respectively). Criterion-related validity with FIM was high (rho = 0.85; <i>p</i> &lt; 0.01). Rasch analyses indicated high reliability indices (item: 0.96, people: 0.94), good item and person variance (separation indices: items 5.18, people 4.06), and adequate performance deviations. Accuracy for functional independence was optimal with a cut-off score of 180 points (sensitivity 83.3% and specificity 88.9%). The LIMOS-Br maintained its clinimetric integrity, validating its use as a PROM. LIMOS-Br adopts a multidisciplinary approach grounded in the International Classification of Functioning, Disability, and Health (ICF), promoting standardised communication among healthcare professionals, patients, and family members.LIMOS-Br focuses on the ICF component of activity, guiding professionals in assessing specific tasks to tailor patient-centered therapeutic planning.Its adaptation as a Patient-Reported Outcome Measure (PROM) ensures standardised evaluations that incorporate the patient’s perspective across various environments and contexts.LIMOS-Br is valid and reliable for assessing the functioning of stroke patients in outpatient settings, enhancing data collection. LIMOS-Br adopts a multidisciplinary approach grounded in the International Classification of Functioning, Disability, and Health (ICF), promoting standardised communication among healthcare professionals, patients, and family members. LIMOS-Br focuses on the ICF component of activity, guiding professionals in assessing specific tasks to tailor patient-centered therapeutic planning. Its adaptation as a Patient-Reported Outcome Measure (PROM) ensures standardised evaluations that incorporate the patient’s perspective across various environments and contexts. LIMOS-Br is valid and reliable for assessing the functioning of stroke patients in outpatient settings, enhancing data collection.
DOI: 10.6084/m9.figshare.28597045
title: The impact of refractive error correction on health-related quality of life in nursing home residents in Armenia

description: This study assessed the impact of refractive error (RE) correction on health-related quality of life (HRQoL) among nursing home residents. This quasi-experimental study with comparison group enrolled 249 participants for baseline and follow-up assessments in August 2021 and January 2022, respectively. Ophthalmic examination was conducted and visual acuity was assessed at baseline. Spectacles were distributed at three months before the follow-up. The interviewer-administered questionnaire assessed participants’ socio-demographics and HRQoL using a 36-item Short-Form Health Survey (SF-36). Patient compliance with wearing spectacles was measured. The mean age of participants was 72.6. About 42.0% had mild to severe visual impairment (VI), while 5.0% were blind. At the follow-up, the normal vision improved from 52.8% to 64.9%, while mild to severe VI decreased from 42.3% to 30.3%. In the RE correction group, 83.3% of visually impaired people improved their vision to normal after receiving spectacles and 70.8% had corrected presbyopia. At the follow-up, those who had corrected their vision reported significantly better physical (PHC) and mental health component (MHC) scores of SF-36, particularly in physical functioning, emotional well-being, and pain. Those who had not corrected their vision reported no significant improvement in both PHC and MHC. There were no significant differences in baseline to follow-up mean change scores for PHC and MHC between those who corrected their vision and those who had not. Access to comprehensive eye care services including regular eye screenings, provision of spectacles, and interventions facilitating spectacle-wearing compliance might improve ophthalmic health and HRQoL in this population. Visual impairment and blindness in nursing home residents were higher compared to proportions found in a nationwide survey in Armenia and globally.Participants who had corrected their vision reported significantly better physical and mental health at follow-up compared to baseline.Regular eye screenings, provision of spectacles, and interventions facilitating spectacle-wearing compliance might improve ophthalmic health and quality of life in nursing home residents. Visual impairment and blindness in nursing home residents were higher compared to proportions found in a nationwide survey in Armenia and globally. Participants who had corrected their vision reported significantly better physical and mental health at follow-up compared to baseline. Regular eye screenings, provision of spectacles, and interventions facilitating spectacle-wearing compliance might improve ophthalmic health and quality of life in nursing home residents.
DOI: 10.6084/m9.figshare.28597045.v1
title: The impact of refractive error correction on health-related quality of life in nursing home residents in Armenia

description: This study assessed the impact of refractive error (RE) correction on health-related quality of life (HRQoL) among nursing home residents. This quasi-experimental study with comparison group enrolled 249 participants for baseline and follow-up assessments in August 2021 and January 2022, respectively. Ophthalmic examination was conducted and visual acuity was assessed at baseline. Spectacles were distributed at three months before the follow-up. The interviewer-administered questionnaire assessed participants’ socio-demographics and HRQoL using a 36-item Short-Form Health Survey (SF-36). Patient compliance with wearing spectacles was measured. The mean age of participants was 72.6. About 42.0% had mild to severe visual impairment (VI), while 5.0% were blind. At the follow-up, the normal vision improved from 52.8% to 64.9%, while mild to severe VI decreased from 42.3% to 30.3%. In the RE correction group, 83.3% of visually impaired people improved their vision to normal after receiving spectacles and 70.8% had corrected presbyopia. At the follow-up, those who had corrected their vision reported significantly better physical (PHC) and mental health component (MHC) scores of SF-36, particularly in physical functioning, emotional well-being, and pain. Those who had not corrected their vision reported no significant improvement in both PHC and MHC. There were no significant differences in baseline to follow-up mean change scores for PHC and MHC between those who corrected their vision and those who had not. Access to comprehensive eye care services including regular eye screenings, provision of spectacles, and interventions facilitating spectacle-wearing compliance might improve ophthalmic health and HRQoL in this population. Visual impairment and blindness in nursing home residents were higher compared to proportions found in a nationwide survey in Armenia and globally.Participants who had corrected their vision reported significantly better physical and mental health at follow-up compared to baseline.Regular eye screenings, provision of spectacles, and interventions facilitating spectacle-wearing compliance might improve ophthalmic health and quality of life in nursing home residents. Visual impairment and blindness in nursing home residents were higher compared to proportions found in a nationwide survey in Armenia and globally. Participants who had corrected their vision reported significantly better physical and mental health at follow-up compared to baseline. Regular eye screenings, provision of spectacles, and interventions facilitating spectacle-wearing compliance might improve ophthalmic health and quality of life in nursing home residents.
DOI: 10.15468/dl.68f8jr
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
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 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003159-260120142942310/datasets/export for details.