cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.27678817
title: Cardiorespiratory exercise and self-management early after stroke to increase daily physical activity: results from a stepped-wedge cluster randomised trial

description: This study aimed to determine if the Promoting Optimal Physical Exercise for Life (PROPEL) program increases participation in physical activity up to six months post-discharge from stroke rehabilitation, compared to participation in group cardiorespiratory exercise (GCE) alone. This was a stepped-wedge cluster superiority randomised controlled trial. People with sub-acute stroke participated in the PROPEL (<i>n</i> = 107) or GCE (<i>n</i> = 65) intervention phases. The primary outcome was adherence to physical activity guidelines over seven days at six months post-discharge from rehabilitation. Secondary outcomes were exercise self-efficacy (Short Self-Efficacy for Exercise scale), exercise-related beliefs and attitudes (Short Outcome Expectation for Exercise scale), and perceived barriers to physical activity (Barriers to Being Active Quiz). Fifty-seven participants (PROPEL, <i>n</i> = 29; GCE, <i>n</i> = 28) were included in the analysis. At six months post-discharge, 6/17 PROPEL participants and 9/22 GCE participants met the guidelines for intensity and duration of physical activity; the odds of meeting physical activity guidelines did not differ between phases (<i>p</i> &gt; 0.84). PROPEL participants reported higher self-efficacy for exercise than GCE participants (<i>p</i> = 0.0047). While PROPEL participants reported higher self-efficacy for exercise than those who completed GCE alone, we were unable to find evidence that this translated to increased odds of meeting physical activity guidelines. NCT02951338IMPLICATIONS FOR REHABILITATIONIntegration of cardiorespiratory exercise with behaviour modification strategies to improve physical activity participation after discharge from stroke rehabilitation increases self-efficacy for exercise when compared to cardiorespiratory exercise alone.Increased self-efficacy for exercise may not increase the odds of meeting physical activity guidelines post-stroke.Improving self-efficacy for exercise during stroke rehabilitation may encourage participation in moderate to vigorous physical activity up to 6-months post-discharge from rehabilitation. Integration of cardiorespiratory exercise with behaviour modification strategies to improve physical activity participation after discharge from stroke rehabilitation increases self-efficacy for exercise when compared to cardiorespiratory exercise alone. Increased self-efficacy for exercise may not increase the odds of meeting physical activity guidelines post-stroke. Improving self-efficacy for exercise during stroke rehabilitation may encourage participation in moderate to vigorous physical activity up to 6-months post-discharge from rehabilitation.
DOI: 10.6084/m9.figshare.27678817.v1
title: Cardiorespiratory exercise and self-management early after stroke to increase daily physical activity: results from a stepped-wedge cluster randomised trial

description: This study aimed to determine if the Promoting Optimal Physical Exercise for Life (PROPEL) program increases participation in physical activity up to six months post-discharge from stroke rehabilitation, compared to participation in group cardiorespiratory exercise (GCE) alone. This was a stepped-wedge cluster superiority randomised controlled trial. People with sub-acute stroke participated in the PROPEL (<i>n</i> = 107) or GCE (<i>n</i> = 65) intervention phases. The primary outcome was adherence to physical activity guidelines over seven days at six months post-discharge from rehabilitation. Secondary outcomes were exercise self-efficacy (Short Self-Efficacy for Exercise scale), exercise-related beliefs and attitudes (Short Outcome Expectation for Exercise scale), and perceived barriers to physical activity (Barriers to Being Active Quiz). Fifty-seven participants (PROPEL, <i>n</i> = 29; GCE, <i>n</i> = 28) were included in the analysis. At six months post-discharge, 6/17 PROPEL participants and 9/22 GCE participants met the guidelines for intensity and duration of physical activity; the odds of meeting physical activity guidelines did not differ between phases (<i>p</i> &gt; 0.84). PROPEL participants reported higher self-efficacy for exercise than GCE participants (<i>p</i> = 0.0047). While PROPEL participants reported higher self-efficacy for exercise than those who completed GCE alone, we were unable to find evidence that this translated to increased odds of meeting physical activity guidelines. NCT02951338IMPLICATIONS FOR REHABILITATIONIntegration of cardiorespiratory exercise with behaviour modification strategies to improve physical activity participation after discharge from stroke rehabilitation increases self-efficacy for exercise when compared to cardiorespiratory exercise alone.Increased self-efficacy for exercise may not increase the odds of meeting physical activity guidelines post-stroke.Improving self-efficacy for exercise during stroke rehabilitation may encourage participation in moderate to vigorous physical activity up to 6-months post-discharge from rehabilitation. Integration of cardiorespiratory exercise with behaviour modification strategies to improve physical activity participation after discharge from stroke rehabilitation increases self-efficacy for exercise when compared to cardiorespiratory exercise alone. Increased self-efficacy for exercise may not increase the odds of meeting physical activity guidelines post-stroke. Improving self-efficacy for exercise during stroke rehabilitation may encourage participation in moderate to vigorous physical activity up to 6-months post-discharge from rehabilitation.
DOI: 10.6084/m9.figshare.28512578
title: “My child is completely underestimated”: Canadian parents’ perspectives on implementing an accessible language comprehension assessment for non-speaking children with cerebral palsy

description: Reliable assessment of language comprehension is difficult for children with significant speech and motor limitations. The Computer-Based instrument for Low motor Language Testing (C-BiLLT) was designed for children with cerebral palsy (CP) and speech and motor limitations. A Canadian English version (C-BiLLT-CAN) has been validated. However, early investigation identified feasibility challenges necessitating further exploration. This study aimed to understand parents’ perceived barriers and facilitators to implementing the C-BiLLT-CAN in the Canadian clinical context. Seven focus groups were conducted synchronously online with 16 parents from five Canadian provinces/territories. Transcripts were analyzed using semi-deductive thematic analysis, framing results within the Consolidated Framework for Implementation Research (CFIR). Parents unanimously expressed interest in making the C-BiLLT-CAN clinically available. Facilitators and barriers were discussed under five themes. Key facilitators included the unique design, standardized nature, and potential flexibility of the C-BiLLT-CAN. Barriers involved the inability to accommodate all children, the potential for unintended assessment impacts, and clinics’ readiness and willingness to prioritize implementation. This study contributes new knowledge surrounding the assessment needs of parents of children with CP and speech and motor limitations. Alongside findings from a parallel clinician study, results will inform adaptations to the C-BiLLT-CAN to facilitate implementation. Parents showed interest in having the Canadian English Computer-Based Instrument for low-motor Language Testing (C-BiLLT-CAN) made available to their children Facilitators included the unique, standard, and flexible design of the C-BiLLT-CAN Barriers included doubts about accommodating all children and unintended impacts of assessment Findings will inform an adapted C-BiLLT-CAN to facilitate implementation in Canada
DOI: 10.6084/m9.figshare.28512578.v1
title: “My child is completely underestimated”: Canadian parents’ perspectives on implementing an accessible language comprehension assessment for non-speaking children with cerebral palsy

description: Reliable assessment of language comprehension is difficult for children with significant speech and motor limitations. The Computer-Based instrument for Low motor Language Testing (C-BiLLT) was designed for children with cerebral palsy (CP) and speech and motor limitations. A Canadian English version (C-BiLLT-CAN) has been validated. However, early investigation identified feasibility challenges necessitating further exploration. This study aimed to understand parents’ perceived barriers and facilitators to implementing the C-BiLLT-CAN in the Canadian clinical context. Seven focus groups were conducted synchronously online with 16 parents from five Canadian provinces/territories. Transcripts were analyzed using semi-deductive thematic analysis, framing results within the Consolidated Framework for Implementation Research (CFIR). Parents unanimously expressed interest in making the C-BiLLT-CAN clinically available. Facilitators and barriers were discussed under five themes. Key facilitators included the unique design, standardized nature, and potential flexibility of the C-BiLLT-CAN. Barriers involved the inability to accommodate all children, the potential for unintended assessment impacts, and clinics’ readiness and willingness to prioritize implementation. This study contributes new knowledge surrounding the assessment needs of parents of children with CP and speech and motor limitations. Alongside findings from a parallel clinician study, results will inform adaptations to the C-BiLLT-CAN to facilitate implementation. Parents showed interest in having the Canadian English Computer-Based Instrument for low-motor Language Testing (C-BiLLT-CAN) made available to their children Facilitators included the unique, standard, and flexible design of the C-BiLLT-CAN Barriers included doubts about accommodating all children and unintended impacts of assessment Findings will inform an adapted C-BiLLT-CAN to facilitate implementation in Canada
DOI: 10.6084/m9.figshare.27969732
title: Age-related differences in behavioral outcomes of bimanual functional motor tasks in children and adolescents with cerebral palsy: a scoping review

description: The objective of this review is to determine age-related differences in behavioral outcomes of bimanual motor tasks in children and adolescents with cerebral palsy (CP). This review followed the 6-stage Joanna Briggs Institute methodology. The Embase, EBSCO CINAHL, and PubMed databases were searched on May 2024. We included studies that employed instrumented measures to assess bimanual tasks in individuals with CP aged between 3 and 19 years. Twenty-eight studies were included after full-text screening. This review reported on 544 individuals with CP. Bimanual tasks were grouped in seven categories and their varying complexities were listed and analyzed. There are numerous methods for assessing bimanual performance. The listed methods have shown that the gap between children with CP and healthy peers widens as task complexity increases. The data suggest that age-related outcomes result from a complex interaction between atypical development, the severity of deficits, and the context-dependent nature of the protocols. The lack of standardized reporting on age-related results limits our understanding of bimanual developmental functions in CP. Standardizing these measures will enhance our understanding of bimanual function and better define the principles guiding therapeutic interventions, ultimately improving outcomes for individuals with CP. In studies with children and adolescents with cerebral palsy, seven categories of instrumented bimanual tasks were identified.Rehabilitation professionals should prioritize precise, adaptable tools to track subtle patient progress.Providing children and adolescents with cerebral palsy with tasks of different complexities could assist them in accomplishing activities of daily living.Rehabilitation interventions should be tailored to each patient’s developmental level and clinical profile. In studies with children and adolescents with cerebral palsy, seven categories of instrumented bimanual tasks were identified. Rehabilitation professionals should prioritize precise, adaptable tools to track subtle patient progress. Providing children and adolescents with cerebral palsy with tasks of different complexities could assist them in accomplishing activities of daily living. Rehabilitation interventions should be tailored to each patient’s developmental level and clinical profile.
DOI: 10.6084/m9.figshare.27969732.v1
title: Age-related differences in behavioral outcomes of bimanual functional motor tasks in children and adolescents with cerebral palsy: a scoping review

description: The objective of this review is to determine age-related differences in behavioral outcomes of bimanual motor tasks in children and adolescents with cerebral palsy (CP). This review followed the 6-stage Joanna Briggs Institute methodology. The Embase, EBSCO CINAHL, and PubMed databases were searched on May 2024. We included studies that employed instrumented measures to assess bimanual tasks in individuals with CP aged between 3 and 19 years. Twenty-eight studies were included after full-text screening. This review reported on 544 individuals with CP. Bimanual tasks were grouped in seven categories and their varying complexities were listed and analyzed. There are numerous methods for assessing bimanual performance. The listed methods have shown that the gap between children with CP and healthy peers widens as task complexity increases. The data suggest that age-related outcomes result from a complex interaction between atypical development, the severity of deficits, and the context-dependent nature of the protocols. The lack of standardized reporting on age-related results limits our understanding of bimanual developmental functions in CP. Standardizing these measures will enhance our understanding of bimanual function and better define the principles guiding therapeutic interventions, ultimately improving outcomes for individuals with CP. In studies with children and adolescents with cerebral palsy, seven categories of instrumented bimanual tasks were identified.Rehabilitation professionals should prioritize precise, adaptable tools to track subtle patient progress.Providing children and adolescents with cerebral palsy with tasks of different complexities could assist them in accomplishing activities of daily living.Rehabilitation interventions should be tailored to each patient’s developmental level and clinical profile. In studies with children and adolescents with cerebral palsy, seven categories of instrumented bimanual tasks were identified. Rehabilitation professionals should prioritize precise, adaptable tools to track subtle patient progress. Providing children and adolescents with cerebral palsy with tasks of different complexities could assist them in accomplishing activities of daily living. Rehabilitation interventions should be tailored to each patient’s developmental level and clinical profile.
DOI: 10.6084/m9.figshare.27959675
title: Empowerment through choice: the interplay of choice and control after spinal cord or brain injury

description: To gain knowledge of the early phase post-injury experiences related to choice and control for individuals living with acquired brain injury or spinal cord injury, as well as their caregivers. A qualitative study was conducted to understand the experiences of individuals with acquired brain injury or spinal cord injury and their caregivers in the early phase post-injury, focusing on the aspects of choice and control. Nine individuals with acquired brain injury or spinal cord injury and four of their caregivers participated in semi-structured in-depth interviews, and the data was analysed using thematic analysis. Four themes emerged: (1) Passenger in the system, (2) Can’t do it alone, (3) I want to improve, and (4) A new normal. A sense of empowerment or vulnerability may be influenced by participants’ experiences of choice and control. The study offers insights for healthcare professionals aiming to enhance the sense of choice and control for individuals living with acquired brain injury or spinal cord injury. An approach involving shared control and promoting choice, agency, and empowerment may positively influence post-injury experiences for these individuals. While in rehabilitation, people with ABI or SCI may feel like a passenger in the system and the need to act passively.Regaining control assists people to feel calmer and more of a unique individual.Agency, control, and choice are central to experiences of empowerment or vulnerabilityRehabilitation staff who collaborate and share power and control may reduce psychological distress in their clients and promote a sense of agency. While in rehabilitation, people with ABI or SCI may feel like a passenger in the system and the need to act passively. Regaining control assists people to feel calmer and more of a unique individual. Agency, control, and choice are central to experiences of empowerment or vulnerability Rehabilitation staff who collaborate and share power and control may reduce psychological distress in their clients and promote a sense of agency.
DOI: 10.6084/m9.figshare.27959675.v1
title: Empowerment through choice: the interplay of choice and control after spinal cord or brain injury

description: To gain knowledge of the early phase post-injury experiences related to choice and control for individuals living with acquired brain injury or spinal cord injury, as well as their caregivers. A qualitative study was conducted to understand the experiences of individuals with acquired brain injury or spinal cord injury and their caregivers in the early phase post-injury, focusing on the aspects of choice and control. Nine individuals with acquired brain injury or spinal cord injury and four of their caregivers participated in semi-structured in-depth interviews, and the data was analysed using thematic analysis. Four themes emerged: (1) Passenger in the system, (2) Can’t do it alone, (3) I want to improve, and (4) A new normal. A sense of empowerment or vulnerability may be influenced by participants’ experiences of choice and control. The study offers insights for healthcare professionals aiming to enhance the sense of choice and control for individuals living with acquired brain injury or spinal cord injury. An approach involving shared control and promoting choice, agency, and empowerment may positively influence post-injury experiences for these individuals. While in rehabilitation, people with ABI or SCI may feel like a passenger in the system and the need to act passively.Regaining control assists people to feel calmer and more of a unique individual.Agency, control, and choice are central to experiences of empowerment or vulnerabilityRehabilitation staff who collaborate and share power and control may reduce psychological distress in their clients and promote a sense of agency. While in rehabilitation, people with ABI or SCI may feel like a passenger in the system and the need to act passively. Regaining control assists people to feel calmer and more of a unique individual. Agency, control, and choice are central to experiences of empowerment or vulnerability Rehabilitation staff who collaborate and share power and control may reduce psychological distress in their clients and promote a sense of agency.
DOI: 10.6084/m9.figshare.27284042
title: Exploring maintenance rehabilitation in adults with chronic conditions: a scoping review of the literature

description: Individuals with chronic conditions have long-term needs which can be addressed by maintenance rehabilitation. The 2013 <i>Jimmo v Sebelius</i> settlement in the United States (US) clarified the Medicare coverage of maintenance rehabilitation as a skilled service, even when no improvement is expected. A scoping review was conducted to describe maintenance rehabilitation. A systematic search was performed across 9 databases. Maintenance rehabilitation was defined as services (e.g. occupational, physical, or speech language therapies), intended to maintain a person’s condition and prevent decline. Studies focused on medical, or non-rehabilitative, interventions (e.g. opioid cessation or chemotherapy) were excluded. Of the 734 abstracts reviewed, 90 met inclusion criteria. Two reviewers extracted data and used descriptive statistics. An exploratory thematic analysis in a convenience sample contextualized the works. Most works (90%) were peer-reviewed publications. The works represented 12,638 individuals, with predominant populations being cardiac (4,122 individuals) and pulmonary (2,324 individuals). Physical activity interventions were identified most frequently (87%). Outcome measures primarily focused on activities (49%) or body systems (42%). Thematic analysis suggests maintenance rehabilitation may support domains contributing to quality of life. While evidence exists for maintenance therapy, future research on intervention design will guide implementation by health systems. The largest number of maintenance rehabilitation studies are focused on physical activity interventions in cardiac and pulmonary populations.Most studies measured body systems and activity outcomes rather than participation.Themes of individualized and structured interventions were identified as factors that support maintenance rehabilitation. The largest number of maintenance rehabilitation studies are focused on physical activity interventions in cardiac and pulmonary populations. Most studies measured body systems and activity outcomes rather than participation. Themes of individualized and structured interventions were identified as factors that support maintenance rehabilitation.
DOI: 10.6084/m9.figshare.27284042.v1
title: Exploring maintenance rehabilitation in adults with chronic conditions: a scoping review of the literature

description: Individuals with chronic conditions have long-term needs which can be addressed by maintenance rehabilitation. The 2013 <i>Jimmo v Sebelius</i> settlement in the United States (US) clarified the Medicare coverage of maintenance rehabilitation as a skilled service, even when no improvement is expected. A scoping review was conducted to describe maintenance rehabilitation. A systematic search was performed across 9 databases. Maintenance rehabilitation was defined as services (e.g. occupational, physical, or speech language therapies), intended to maintain a person’s condition and prevent decline. Studies focused on medical, or non-rehabilitative, interventions (e.g. opioid cessation or chemotherapy) were excluded. Of the 734 abstracts reviewed, 90 met inclusion criteria. Two reviewers extracted data and used descriptive statistics. An exploratory thematic analysis in a convenience sample contextualized the works. Most works (90%) were peer-reviewed publications. The works represented 12,638 individuals, with predominant populations being cardiac (4,122 individuals) and pulmonary (2,324 individuals). Physical activity interventions were identified most frequently (87%). Outcome measures primarily focused on activities (49%) or body systems (42%). Thematic analysis suggests maintenance rehabilitation may support domains contributing to quality of life. While evidence exists for maintenance therapy, future research on intervention design will guide implementation by health systems. The largest number of maintenance rehabilitation studies are focused on physical activity interventions in cardiac and pulmonary populations.Most studies measured body systems and activity outcomes rather than participation.Themes of individualized and structured interventions were identified as factors that support maintenance rehabilitation. The largest number of maintenance rehabilitation studies are focused on physical activity interventions in cardiac and pulmonary populations. Most studies measured body systems and activity outcomes rather than participation. Themes of individualized and structured interventions were identified as factors that support maintenance rehabilitation.