cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.5064/f6hy9r1z
title: Data for: Health practitioners’ readiness to address domestic violence and abuse: A qualitative meta-synthesis

description: &lt;h3&gt;Project Overview&lt;/h3&gt;

&lt;p&gt;Health practitioners play an important role in identifying and responding to domestic violence and abuse (DVA). Despite a large amount of evidence about barriers and facilitators influencing health practitioners’ care of survivors of DVA, evidence about their readiness to address DVA has not been synthesised. This article reports a meta-synthesis of qualitative studies exploring the research question: What do health practitioners perceive enhances their readiness to address domestic violence and abuse?&lt;/p&gt;

&lt;p&gt;Multiple data bases were searched in June 2018. Inclusion criteria included: qualitative design; population of health practitioners in clinical settings; and a focus on intimate partner violence. Two reviewers independently screened articles and findings from included papers were synthesised according to the method of thematic synthesis.&lt;/p&gt;

&lt;p&gt;Forty-seven articles were included in the final sample, spanning 41 individual studies, four systematic reviews and two theses between the years of 1992 and 2018; mostly from high income countries. Five themes were identified as enhancing readiness of health practitioners to address DVA: &lt;i&gt;Having a commitment; Adopting an advocacy approach; Trusting the relationship; Collaborating with a team; and Being supported by the health system.&lt;/i&gt;&lt;/p&gt;

&lt;p&gt;We then propose a health practitioners’ readiness framework called the CATCH Model (Commitment, Advocacy, Trust, Collaboration, Health system support). Applying this model to health practitioners’ different readiness for change (using Stage of Change framework) allows us to tailor facilitating strategies in the health setting to enable greater readiness to deal with intimate partner abuse.&lt;/p&gt;
description: Update Notes for Version 2.0
Version 2.0 is a QDR-administered technical update. Files have been reprocessed to improve digital accessibility; the content of materials remains unaltered.
DOI: 10.5064/f6ijhylr
title: Data for: Development of a preoperative questionnaire to improve satisfaction with hallux valgus repair: a Delphi study

description: &lt;h3&gt;Project Summary&lt;/h3&gt;
&lt;p&gt;Satisfaction with hallux valgus repair is often poor, despite good surgical outcomes. The aim of this study was to develop a new tool to analyse the subjective and objective expectations of individuals during a pre-operative consultation for hallux valgus repair in order to improve post-surgical satisfaction. We first collected the reasons for dissatisfaction with repair from the medical files of dissatisfied individuals. A questionnaire based on the reasons for dissatisfaction was designed. The DELPHI method was used to validate the questionnaire: we submitted the questionnaire to a panel of 34 francophone experts in hallux valgus repair for rating in 4 rounds.&lt;/p&gt;

&lt;h3&gt;Data Abstract&lt;/h3&gt;
&lt;p&gt;We selected francophone experts (from France, Belgium and Canada) by screening the lists of members of relevant academic societies: we verified their curriculum vitae and asked those who had at least 5 years’ experience in the treatment of hallux valgus and who had published or communicated on the subject to participate.&lt;/p&gt;

&lt;p&gt;The data correspond to the responses of the expert committee to the different rounds of the DELPHI method used for the consensual validation of the questionnaire created. Data were collected via the Drag'n Survey tool (RGPD compatible).&lt;/p&gt;

&lt;p&gt;The data are organised in the form of a double entry table: each column corresponds to an expert, each row corresponds to the different questions forming the questionnaire submitted to consensus. The data filling the table are thus the scores attributed to each item of the questionnaire by the chosen group of experts. The data are organised in the form of 4 tables, corresponding to the 4 rounds of the DELPHI method. The questionnaires used during the different rounds of the Delphi are also included as separate files.&lt;/p&gt;
DOI: 10.5064/f6jtb799
title: Data for: The experience of orthorexia from the perspective of recovered orthorexics

description: &lt;h3&gt;Project Overview&lt;/h3&gt;

&lt;p&gt;This qualitative study examined the subjective experiences of recovered orthorexics around the world. Orthorexia is a disorder whereby sufferers become obsessed with eating what they consider to be a biologically pure diet. Orthorexia is an emerging area of study, and many questions remain regarding its definition, diagnosis, and potential place in the Diagnostic and Statistical Manual of Mental Disorders. This study therefore sought to look at issues surrounding orthorexia, such as body image, anxiety, obsessions, and the overall experience of the disorder. Data was analysed using a descriptive–interpretive method.&lt;/p&gt;

&lt;p&gt;This data project contains documentation of the interview research and an aggregated table with code and selected interview excerpts. Interviews were conducted via Skype and recorded with Pamela for Skype.&lt;/p&gt;
description: Update Notes for Version 2.0
Version 2.0 is a QDR-administered technical update. Files have been reprocessed to improve digital accessibility; the content of materials remains unaltered.
DOI: 10.5064/f6ltxgpb
title: Data for: Nepal's Constitutional Development and the Challenges of Constitution Making

description: &lt;b&gt;This is an &lt;a href="https://qdr.syr.edu/ati"&gt;Annotation for Transparent Inquiry (ATI)&lt;/a&gt; data project. &lt;/b&gt; &lt;h3&gt;The annotated article can be viewed on the &lt;a href="https://www.cambridge.org/core/books/constitution-makers-on-constitution-making/nepals-constitutional-development-and-the-challenges-of-constitution-making/E74199A7B9C104288B3594D790A803D4#annotations:group:2Nopp9mx" &gt;publisher's website&lt;/a&gt;. &lt;h3/&gt;
&lt;/br&gt;
&lt;/br&gt;
&lt;p&gt;Nepal's constitution-making process took several years and two constituent assemblies to achieve. It was the result of a series of crises and transformations, including a "People's War" and mass mobilization in the southern part of the country. The iterated set of negotiations led eventually to the adoption of a new kind of federalism, desiginated as "Proportionate Inclusive Federalism" to provide a new basis for the state going forward.&lt;/p&gt;
DOI: 10.5064/f6mw2f2k
title: Data for: Finding pathways: Mixed-methods research for studying causal mechanisms

description: This pedagogical data project provides materials related to conducting pathway analysis: the use of case studies to explore the causal links between variables. Materials include recorded workshop sessions, data sets and problem sets.
DOI: 10.5064/f6gzgcjb
title: Understanding advance care planning in patients and care partners living with Parkinson’s disease

description: &lt;h3&gt;Project Summary&lt;/h3&gt;
&lt;p&gt;&lt;i&gt;Objective:&lt;/i&gt; Advance care planning (ACP) is a core quality measure in caring for individuals with Parkinson disease (PD) and there are no best practice standards for how to incorporate ACP into PD care. This study describes patient and care partner perspectives on ACP to inform a patient- and care partner-centered framework for clinical care. &lt;/p&gt;

&lt;p&gt;&lt;i&gt;Methods:&lt;/i&gt; This is a qualitative descriptive study of 30 patients with PD and 30 care partners within a multisite, randomized clinical trial of neuropalliative care compared to standard care. Participants were individually interviewed about perspectives on ACP, including prior and current experiences, barriers to ACP, and suggestions for integration into care. Interviews were analyzed using theme analysis to identify key themes. &lt;/p&gt;

&lt;h3&gt;Data Overview&lt;/h3&gt;
&lt;p&gt;Sixty-seven interview transcripts from 60 participants including individuals with Parkinson Disease (n=30) or care partners of individuals with PD (n=30). Interviews were conducted at the 12-month follow up after Dr. Benzi Kluger's PCORI-funded three-site RCT of outpatient palliative care compared to usual care. Interviews specifically probed on patient-care-partner-palliative care/usual neurological care communication and advance care planning. Three sites are: University of California San Francisco (UCSF); University of Alberta (Alberta); University of Colorado Denver/Anschutz Medical Campus (UCD) &lt;/p&gt;

&lt;p&gt;Interviews were conducted by trained qualitative research assistants (not involved in the intervention) between September 2017 and March 2018. During this period, 137 participants (81 patients and 56 care partners) had reached the 12-month visit. The study planned a goal of 60 interviews to allow sufficient opportunity to sample across trial sites and across participant type (patient or care partner). Patients and care partners were purposefully selected for interviews from each site, study arm, and sex to ensure representation across these populations. Other efforts to maximize the variance in the sample included specifically including individuals with cognitive impairment, high disease severity (based on Hoehn & Yahr score), or lacking a care partner. All participants, whether a patient or care partner, were interviewed separately. In some cases, multiple interviews were conducted due to a) participant preference, or b) additional probing related to advance care planning or other palliative care topics. &lt;/p&gt;
DOI: 10.5064/f6k4ivep
title: Marine Corps Organizational Culture Research (MCOCR) Project

description: &lt;h3&gt;Project Summary&lt;/h3&gt;
&lt;p&gt;The MCOCR Project was conducted between 2017 and 2020 to gather Marine perspectives on various aspects of Marine Corps culture with a particular focus on gender bias, leadership, and cohesion. Data consist of 179 transcripts of semi-structured interviews and focus groups conducted at six locations in 2017. Also included are a project overview, an example of a recruiting poster, and examples of public domain applied research outcomes from the project, which may provide useful context for data users or serve as a type of data for those studying applied social science.&lt;/p&gt;
DOI: 10.5064/f6lbymqo
title: Data for: Barriers to Hospice and Palliative Care Utilization Among Adolescent and Young Adult Cancer Patients Living in Poverty

description: &lt;h3&gt;Project Summary&lt;/h3&gt;

&lt;i&gt;Background&lt;/i&gt;: Adolescents and young adults (AYAs; aged 15-39 years) with cancer frequently receive intensive measures at the end of life (EoL), but the perspectives of AYAs and their family members on barriers to optimal EoL care are not well understood.&lt;br&gt;
&lt;i&gt;Methods&lt;/i&gt;: We conducted qualitative interviews with 28 bereaved caregivers of AYAs with cancer who died in 2013 through 2016 after receiving treatment at 1 of 3 sites (University of Alabama at Birmingham, University of Iowa, or University of California San Diego). Interviews focused on ways that EoL care could have better met the needs of the AYAs. Content analysis was performed to identify relevant themes.&lt;br&gt;
&lt;i&gt;Results&lt;/i&gt;: Most participating caregivers were White and female, and nearly half had graduated from college. A total of 46% of AYAs were insured by Medicaid or other public insurance; 61% used hospice, 46% used palliative care, and 43% died at home. Caregivers noted 3 main barriers to optimal EoL care: (1) delayed or absent communication about prognosis, which in turn delayed care focused on comfort and quality of life; (2) inadequate emotional support of AYAs and caregivers, many of whom experienced distress and difficulty accepting the poor prognosis; and (3) a lack of home care models that would allow concurrent life-prolonging and palliative therapies, and consequently suboptimal supported goals of AYAs to live as long and as well as possible. Delayed or absent prognosis communication created lingering regret among some family caregivers, who lost the opportunity to support, comfort, and hold meaningful conversations with their loved ones.&lt;br&gt;
&lt;i&gt;Conclusions&lt;/i&gt;: Bereaved family caregivers of AYAs with cancer noted a need for timely prognostic communication, emotional support to enhance acceptance of a poor prognosis, and care delivery models that would support both life-prolonging and palliative goals of care. Work to address these challenges offers the potential to improve the quality of EoL care for young people with cancer.
description: Update Notes for Version 2.0
Version 2.0 is a QDR-administered technical update. Files have been reprocessed to improve digital accessibility; the content of materials remains unaltered.
DOI: 10.5064/f6mdfazm
title: Data for: Decisions, Deadlocks and Deadlines in Making South Africa's Constitution

description: &lt;b&gt;This is an &lt;a href="https://qdr.syr.edu/ati"&gt;Annotation for Transparent Inquiry (ATI)&lt;/a&gt; data project. &lt;/b&gt; &lt;h3&gt;The annotated article can be viewed on the &lt;a href="https://www.cambridge.org/core/books/constitution-makers-on-constitution-making/decisions-deadlocks-and-deadlines-in-making-south-africas-constitution/E4B3F7BA202A1085E3E97919119F3341#annotations:group:2Nopp9mx" &gt;publisher's website&lt;/a&gt;. &lt;h3/&gt;

&lt;/br&gt;
&lt;/br&gt;
South Africa’s 1996 constitution has been described as the birth certificate of a new, non-apartheid state. Following the Harare declaration in 1989, the process of ending apartheid accelerated, in which the writing of a new constitution played an important role. Throughout the process, there was gridlock involving the makeup of the constituent assembly and constitutional stipulations involving the death penalty, lockout clauses, the language of education, the appointment of judges, and other issues. In the 25 years since the adoption of the constitution, it has proven to be a robust bulwark against infighting and instability. There are several lessons from South Africa’s constitutive process. While the constitution is best understood within the context of South Africa’s history and the ANC’s resistance to apartheid, an essential aspect of the process was that many of the disputes were settled collectively in “package deals” and through novel deadlock breaking mechanisms.
DOI: 10.5064/f6ing0ad
title: Data for: Evaluation of Video-Assisted HPV Education in Government-Supported Clinics in Western Kenya

description: &lt;h3&gt;Project Overview&lt;/h3&gt;
&lt;p&gt;The broader study investigates the impact of a clinic-based stigma-reducing cervical cancer education program in Kisumu, Kenya. This deposit includes the mixed-methods data from a workflow study nested in a two-part cluster-randomized control trial in six government-supported health clinics. In the study, researchers observed the workflow of HPV screening video-assisted and standard health education and evaluated community and clinic health assistant facilitation (CCHA), duration, and feasibility of the intervention. The results of an additional stigma-focused survey with 400 participants are not included in this deposit.&lt;/p&gt;
description: &lt;h3&gt;Data and Data Collection Overview&lt;/h3&gt;
&lt;p&gt;Using existing literature as a guide, the researchers created a focus group discussion guide with content specific to exploring HPV and cervical cancer stigma. Focus group guides were translated into the local language and back-translated to ensure clarity of content. Women who met eligibility criteria and who presented to the selected Ministry of Health clinics (randomized into 3 control and 3 intervention sites) either for routine care or through direct recruitment from the research team, were asked to participate.&lt;/p&gt; 
&lt;p&gt;Data collection occurred in two ways: (1) focus groups and (2) on-site observations at clinics. The researchers conducted 3 focus groups (with about 5-8 participants each) with thirty HPV screening-eligible woman and made thirty-three observations each (for a total of 66 observation values) at the six government-supported clinic sites.&lt;/p&gt; 
&lt;p&gt;Focus group discussions were audio-recorded, transcribed, and translated into English. These qualitative data were then analyzed using NVivo software. The researchers also performed content analysis.&lt;/p&gt;
&lt;p&gt;The on-site observations were conducted on a weekly basis for the six weeks of the stigma intervention, up to six observations per clinic. All observation data (called "field notes" in the deposit) were collected at the facility level and were aggregated and de-identified.&lt;/p&gt;
description: &lt;h3&gt;Shared Data Organization&lt;/h3&gt;
&lt;p&gt;The data files included in this data project consist of three focus group discussion transcripts and the aggregate on-site observations (“field notes”). The documentation files consist of the informed consent script used for participants, the focus group guide (questions and probes), the observations questionnaires (for the control and intervention clinics), the qualitative analysis codebook, a data narrative, and an administrative README file.&lt;/p&gt;
DOI: 10.5064/f6jkv8qz
title: Data for: Perceptions of Parental Functions among Married People in Benin

description: &lt;h3&gt;Project Overview&lt;/h3&gt;

This study aims to identify the perceptions of parenthood among people living in a married couple in Benin. The data come from a work to collect more information on the understanding of high fertility among married Beninese based on their social representations of the child, medical contraception, abortion as well as their perceptions of determinants of the negotiation of the use of medical contraception in the married couple. To do this, semi-structured individual interviews were conducted with 30 volunteers of both sexes aged 18 and over. Analysis of the data shows a gendered perception of parental roles exposing a paternal function that is distinct from maternal function. In the context of parenting support policies, this data could be useful to the public authorities and to the people and structures that intervene in this field.

&lt;h3&gt;Data Overview&lt;/h3&gt;
The shared data consist of a table listing the codes employed, their definitions, and relevant excerpts. The full transcripts cannot be shared due to participant confidentiality protections.
DOI: 10.5064/f6kmedvb
title: Data for: The ratification premium: Hawks, doves, and arms control

description: This appendix contains images for all archival documents from the Jimmy Carter Library cited in “The Ratification Premium.”
All document images are included courtesy of the Jimmy Carter Presidential Library and Museum administered by the National Archives and Records Administration. We are grateful to Sara Mitchell, Brittany Paris, and Charles Stokley for their assistance at the Carter Library, and to Brendan Green for sharing additional images.
description: Update Notes for Version 2.0
Version 2.0 is a QDR-administered technical update. Files have been reprocessed to improve digital accessibility; the content of materials remains unaltered.
DOI: 10.5064/f6mbcj8m
title: Data for: Monster or Hero? Far-right Responses to Anders Behring Breivik and the 22 July Terrorist Attacks

description: &lt;h3&gt;Project Summary&lt;/h3&gt;

This study maps and seeks to explain the evolution of far-right responses to the 22 July terrorist attacks in 2011. We identify substantial temporal and spatial variation in how different far-right actors responded between 2011 and 2021. These findings present us with four puzzles: First, why was Breivik rejected by the far right in Western Europe, while receiving substantial support in Russia and eventually also from online subcultures originating in the United States? Second, why did parts of the far right not only reject Breivik, but vehemently condemn him? Third, why did initial support for Breivik in Western Europe come from individuals outside the organized far right? And fourth, why does support for Breivik seem to increase with distance in time and space? We argue that the nature of taboos offers an elegant explanation to these puzzles. We propose that the strength of the macro-cultural taboo against violence provides an overarching explanation, mediated by three taboo-related mechanisms referred to as contagion, rebellion, and decoupling. In regions where the taboo against violence is strong, most future support for right-wing terrorism will probably continue to manifest itself through anonymous online spaces, while the more organized far right will continue distancing itself from taboo violators to avoid becoming (complete) social and political pariahs.

&lt;h3&gt;Data Overview&lt;/h3&gt;

This project contains primary sources documenting various forms of expressed support to or rejection of the terrorist Anders Behring Breivik by far right actors, including letters, blog posts, videos and archived message board posts.
DOI: 10.5064/f6non328
title: Marine Corps Resilience Project

description: &lt;h3&gt;Project Summary&lt;/h3&gt;
The Resilience Project was a long-term research and implementation project focused on improving the Marine Corps' approach to stress and resilience and challenging bio-deterministic assumptions that underpinned many military stress and resilience programs. The portion of the project data deposited here includes transcripts of 39 semi-structured interviews conducted with active duty Marines, Marine recruits, and Marine officer candidates at Marine Corps Base Quantico (Virginia) and Marine Corps Recruit Depot Parris Island (South Carolina) between 5 June and 2 October 2012. Also included are an annotated bibliography of related source material, a project overview, and examples of public domain applied research outcomes from the project, which may provide useful context for data users or serve as a type of data for those studying applied social science.
description: Update Notes for Version 2.0
Version 2.0 is a QDR-administered technical update. Files have been reprocessed to improve digital accessibility; the content of materials remains unaltered.