cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.26509150.v1
title: <b>Common Data Model for Rare Diseases</b> based on the ERDRI-CDS, HL7 FHIR®, and the GA4GH Phenopackets Schema© (v2.0)

description: ART-DECOR Project: https://art-decor.org/ad/#/erker-/project/overviewWhile rare diseases (RDs) affect over 260 million individuals worldwide, low data quality and scarcity challenge effective RD care and research severely. A significant knowledge gap exists between specialised RD data and data from routine clinical care. This study aims to harmonise the data standards necessary for RD care and research into a novel RD Common Data Model (CDM). The proposed RD CDM integrates the ERDRI-CDS for international registry use and extends it with data elements based on HL7 FHIR for reliable data transactions and the GA4GH Phenopacket Schema for precise bioinformatic analyses. This work does not present an implementation guide but lays the foundation for developing and defining international RD CDMs aligned with these data standards. An ontology-driven approach was selected, encoding data elements and value sets with SNOMED CT and LOINC to find a common denominator between the data standards. The RD CDM was implemented in multiple German university hospitals capturing real RD patient data for registry or analysis purposes, fixing errors, and ensuring semantic consistency. Our RD CDM version 2.0 comprises 66 data elements, extending the ERDRI-CDS by 50 elements. We evaluated our CDM based on (1) Medical Data Granularity, (2) Clinical Reasoning and Medical Relevance, and (3) Interoperability and Harmonisation. Six layers of harmonisation were identified, ranging from data element alignment and terminology binding to value sets. Over 95% of data elements, 80% of data types, and, due to the ontology-based approach, less than 41% of value sets align with either HL7 FHIR or the GA4GH Phenopacket Schema. The novel RD CDM can serve as a basis for developing and implementing RD CDMs in various healthcare information systems, adhering to HL7 FHIR, GA4GH Phenopacket Schema, and ERDRI-CDS requirements for effective RD research and care. While not an implementation guide, recommendations on cardinalities are given, and this template invites further refinement and international collaboration. This work represents a significant step for clinicians to capture precise RD data based on international interoperability standards, regardless of the healthcare information system used.<br>
DOI: 10.15468/dl.jqczrc
title: Occurrence Download

description: A dataset containing 452 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "TaxonKey is Phlomoides rotata (Benth. ex Hook.f.) Mathiesen"
 ]
}

 The dataset includes 452 records from 26 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035410-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.58na8f
title: Occurrence Download

description: A dataset containing 2624 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Salamandra atra Laurenti, 1768",
 "HasCoordinate is true",
 "Year is greater than or equal to 2013",
 "Year is less than or equal to 2018"
 ]
}

 The dataset includes 2624 records from 13 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035411-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.be4tzf
title: Occurrence Download

description: A dataset containing 2334 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is one of (Specimen, Human Observation)",
 "Country is one of (Spain, Italy, France, Albania, Malta, Switzerland, Algeria, Greece, Croatia, Portugal)",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Ameles spallanzania Rossi, 1792"
 ]
}

 The dataset includes 2334 records from 76 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035412-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.5281/zenodo.13861110
title: dataset for RELIEVE paper: Assessing the effectiveness and safety of lenvatinib and everolimus in advanced renal cell carcinoma: insights from the RELIEVE study's analysis of heavily pretreated patients

description: dataset for RELIEVE paper: Assessing the effectiveness and safety of lenvatinib and everolimus in advanced renal cell carcinoma: insights from the RELIEVE study's analysis of heavily pretreated patients
DOI: 10.15468/dl.jurawg
title: Occurrence Download

description: A dataset containing 3987 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Bombina bombina (Linnaeus, 1761)",
 "HasCoordinate is true",
 "Year is greater than or equal to 2013",
 "Year is less than or equal to 2018"
 ]
}

 The dataset includes 3987 records from 42 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035414-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.uhczvh
title: Occurrence Download

description: A dataset containing 9 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "TaxonKey is one of (Phlomoides salangensis (Rech.f.) Kamelin & Makhm., Phlomoides ruptilis (C.Y.Wu) Kamelin & Makhm.)"
 ]
}

 The dataset includes 9 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035413-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.65v4r9
title: Occurrence Download

description: A dataset containing 856 species occurrences available in GBIF matching the query:
{
 "and" : [
 "DatasetKey is Some Plant Specimens from KUN, IBSC, NAS Herbarium in China from 1900 to 1950",
 "TaxonKey is Cyperus L."
 ]
}

 The dataset includes 856 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035415-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.7tfnaw
title: Occurrence Download

description: A dataset containing 20384 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Bombina variegata (Linnaeus, 1758)",
 "HasCoordinate is true",
 "Year is greater than or equal to 2013",
 "Year is less than or equal to 2018"
 ]
}

 The dataset includes 20384 records from 197 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0035416-240906103802322/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.e5dv3v
title: Occurrence Download

description: A dataset containing 44 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Coccocrater portoricensis (Dall & C.T.Simpson, 1901)"
 ]
}

 The dataset includes 44 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0082571-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-72409
title: The latter rain evangel, vol. 1, nos. 1-12, Oct. 1908 - Sept. 1909

description: [description english/roman)] Issued monthly. "An international monthly magazine" -- subtitle. Bound with vol. 2 and an index to vols. 1-2.
DOI: 10.15468/dl.4fww7z
title: Occurrence Download

description: A dataset containing 1865 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Pleurolobus salicifolius (Poir.) H.Ohashi & K.Ohashi"
 ]
}

 The dataset includes 1865 records from 87 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0034915-230530130749713/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.tws1qi
title: Occurrence Download

description: A dataset containing 3182 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Bombus frigidus Smith, 1854"
 ]
}

 The dataset includes 3182 records from 25 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003603-181003121212138/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-82874
title: Pentecost, nos. 51-54, Mar.-Dec. 1960

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.bumvqe
title: Occurrence Download

description: A dataset containing 3562 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Amelanchier arborea (F.Michx.) Fernald",
 "HasCoordinate is true"
 ]
}

 The dataset includes 3562 records from 83 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0082591-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-81954
title: Pentecost, nos. 19-22, Mar.-Dec. 1952

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.6oepw0
title: Occurrence Download

description: A dataset containing 722 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Specimen",
 "Year 1980-2010",
 "TaxonKey is Plethodon jordani Blatchley, 1901"
 ]
}

 The dataset includes 722 records from 20 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003603-181108115102211/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.9xk6zj
title: Occurrence Download

description: A dataset listing the 13 species recorded in GBIF matching the query:
{
 "and" : [
 "Country is Holy See",
 "HasCoordinate is true",
 "Year is greater than or equal to 1995",
 "Year is less than 2000",
 "HasGeospatialIssue is false"
 ]
}

 The dataset's 13 records were derived from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0034912-230530130749713/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.7utuhn
title: Occurrence Download

description: A dataset containing 509 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "TaxonKey is Laurus novocanariensis Rivas Mart., Lousã, Fern.Prieto, E.Días, J.C.Costa & C.Aguiar"
 ]
}

 The dataset includes 509 records from 29 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0082633-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-78634
title: Pentecost, nos. 1-2, Sept.-Dec. 1947

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.q6wnr4
title: Occurrence Download

description: A dataset containing 633 species occurrences available in GBIF matching the query:
{
 "and" : [
 "VerbatimScientificName is Erythropitta granatina",
 "BasisOfRecord is one of (Machine Observation, Human Observation)",
 "Year 2011-2021",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen, Specimen, Material citation, Material sample)"
 ]
 }
 }
 ]
}

 The dataset includes 633 records from 6 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0071050-230530130749713/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.ce5g7n
title: Occurrence Download

description: A dataset containing 59 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Cochlespira elegans (Dall, 1881)"
 ]
}

 The dataset includes 59 records from 17 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0082587-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.lkpir9
title: Occurrence Download

description: A dataset containing 7 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Macaca nigrescens (Temminck, 1849)"
 ]
}

 The dataset includes 7 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003603-190307172214381/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-82996
title: Pentecost, nos. 59-62, Mar.-Dec. 1962

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal misionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.25549/pcra-c14-82446
title: Pentecost, nos. 43-46, Mar.-Dec. 1958

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.3bljgk
title: Occurrence Download

description: A dataset containing 8 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "TaxonKey is Thais tissoti (Petit de la Saussaye, 1852)",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 8 records from 4 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0003603-190320150433242/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.hw3kpz
title: Occurrence Download

description: A dataset containing 39 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Dendrobium monticola P.F.Hunt & Summerh."
 ]
}

 The dataset includes 39 records from 12 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0018973-240314170635999/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.ctn5mr
title: Occurrence Download

description: A dataset containing 101 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Unedogemmula deshayesii (Doumet, 1840)"
 ]
}

 The dataset includes 101 records from 32 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0103026-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-82437
title: Pentecost, nos. 43-46, Mar.-Dec. 1958

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.5ujcab
title: Occurrence Download

description: A dataset containing 14231 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "Continent is Europe",
 "Year is greater than 1978",
 "Year is less than 2014",
 "HasGeospatialIssue is false",
 "TaxonKey is Strix nebulosa J.R.Forster, 1772"
 ]
}

 The dataset includes 14231 records from 42 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0030251-230224095556074/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.xy3pn2
title: Occurrence Download

description: A dataset containing 132894 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Human Observation",
 "Country is Canada",
 {
 "or" : [
 "Month is January",
 "Month is February",
 "Month is March",
 "Month is April",
 "Month is May"
 ]
 },
 "Year 2015-2019",
 "DatasetKey is iNaturalist Research-grade Observations",
 "HasCoordinate is true",
 "TaxonKey is Animalia",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 132894 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0070478-200221144449610/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-82895
title: Pentecost, nos. 63-66, Mar.-Dec. 1963

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal misionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.j42n8b
title: Occurrence Download

description: A dataset containing 62 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is one of (Observation, Machine Observation, Human Observation, Material sample, Material citation, Specimen, Living Specimen, Occurrence evidence)",
 "Country is China",
 "OccurrenceStatus is Present",
 "TaxonKey is Gaillardia pulchella Foug."
 ]
}

 The dataset includes 62 records from 8 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0017360-240314170635999/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-81855
title: Pentecost, nos. 15-18, Mar.-Dec. 1951

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.yd3j26
title: Occurrence Download

description: A dataset containing 8 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Country is Mexico",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "TaxonKey is Dasylirion longistylum J.F.Macbr."
 ]
}

 The dataset includes 8 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0005765-240202131308920/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.rs2zbj
title: Occurrence Download

description: A dataset containing 175 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-93.28791 14.80146,-92.10937 14.66163,-91.47017 15.86014,-90.65119 16.07986,-87.85467 19.35579,-92.30513 20.35255,-97.07969 25.98463,-97.86871 26.09949,-98.66322 26.08142,-99.18257 26.9004,-114.56943 29.74274,-119.68306 25.46806,-96.42402 10.1294,-93.28791 14.80146))",
 {
 "or" : [
 "TaxonKey is Pterygoplichthys pardalis (Castelnau, 1855)",
 "TaxonKey is Pterygoplichthys multiradiatus (Hancock, 1828)",
 "TaxonKey is Pterygoplichthys disjunctivus (Weber, 1991)"
 ]
 }
 ]
}

 The dataset includes 175 records from 11 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0050483-200221144449610/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.yvy3vv
title: Occurrence Download

description: A dataset containing 13 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON ((-86.2342534000000001 43.2252671000000035, -86.2342534000000001 43.2269649200000003, -86.2342534000000001 43.2282159499999992, -86.2342534000000001 43.2300031300000001, -86.2342534000000001 43.2316115900000000, -86.2342534000000001 43.2330413299999989, -86.2342534000000001 43.2342030000000008, -86.2324727499999995 43.2342030000000008, -86.2304254000000014 43.2342030000000008, -86.2289121400000056 43.2342030000000008, -86.2265977400000025 43.2342030000000008, -86.2242829999999998 43.2342030000000008, -86.2242829999999998 43.2323264600000030, -86.2242829999999998 43.2307180000000031, -86.2242829999999998 43.2291989000000001, -86.2242829999999998 43.2282159499999992, -86.2242829999999998 43.2267861999999994, -86.2242829999999998 43.2252671000000035, -86.2271318300000047 43.2252671000000035, -86.2283780500000034 43.2252671000000035, -86.2303363799999971 43.2252671000000035, -86.2314935800000057 43.2252671000000035, -86.2342534000000001 43.2252671000000035))",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "Year is greater than or equal to 1932",
 "BasisOfRecord is one of (Human Observation, Living Specimen, Observation, Specimen, Machine Observation)"
 ]
}

 The dataset includes 13 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0103024-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-81926
title: Pentecost, nos. 19-22, Mar.-Dec. 1952

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal missionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.uu57cm
title: Occurrence Download

description: A dataset containing 585 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Country is Argentina",
 "Geometry POLYGON((-65.25129 -30.93166,-63.08167 -30.93288,-63.56382 -29.19994,-64.1718 -29.22029,-64.79615 -29.21727,-65.25129 -30.93166))",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is one of (Squamata, Testudinidae, Amphibia)"
 ]
}

 The dataset includes 585 records from 17 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0034914-230530130749713/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.25549/pcra-c14-83171
title: Pentecost, nos. 71-74, Mar.-Dec. 1965

description: [description english/roman)] Issued quarterly in March, June, Sept. & Dec. "A review of world-wide pentecostal misionary and revival news" -- subtitle from cover. "A quarterly review of world-wide pentecostal activity" -- subtitle from masthead.
DOI: 10.15468/dl.2b666v
title: Occurrence Download

description: A dataset containing 34 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Specimen",
 "Country is France",
 "OccurrenceStatus is Present",
 "TaxonKey is Echiniscoides sigismundi (M.Schultze, 1865)"
 ]
}

 The dataset includes 34 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0110903-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.