cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.20035918.v1
title: Evidence of bioethical discourse and behaviors in health professions

description: Abstract This study aimed to identify bioethical situations and behaviors in health professions reported in the literature. This integrative review of scientific articles indexed in the Virtual Health Library databases, published between 2014 and 2019, used the following keywords: “health personnel,” “professional practice,” “ethics, professional,” “discourse,” and “bioethics.” Twenty-one studies were selected for discussion, with five categories identified in the analysis: bioethics during professional training; bioethics as a form of humanizing healthcare; interprofessional relationships, rights and duties of patients and professionals; bioethics in decisions in the beginning and end of life; and decision making in healthcare. Patient autonomy was the bioethical principle most often addressed in various clinical circumstances, especially in end-of-life dilemmas.
DOI: 10.6084/m9.figshare.20035950
title: Medical ethics in Faculdades Integradas do Norte de Minas: student perception

description: Abstract It is increasingly evident that reflection on humanities and deontology is necessary for a more comprehensive training of medical students, aimed at preparing professionals that are not only technically qualified, but also humanized. For this reason and also to follow the current national curriculum guidelines, Faculdades Integradas do Norte de Minas introduced a new module in the sixth period: “Humanities, Bioethics and Medical Anthropology.” Aiming to evaluate student perception about the teaching of ethics in the institution, this research applied a questionnaire to the students (seventh to tenth period) of the medical course. The instrument comprised questions on the module’s structure and the teaching of ethics. Results show the importance of including medical ethics in the medical curriculum for a more humanized formation of doctors.
DOI: 10.6084/m9.figshare.20035950.v1
title: Medical ethics in Faculdades Integradas do Norte de Minas: student perception

description: Abstract It is increasingly evident that reflection on humanities and deontology is necessary for a more comprehensive training of medical students, aimed at preparing professionals that are not only technically qualified, but also humanized. For this reason and also to follow the current national curriculum guidelines, Faculdades Integradas do Norte de Minas introduced a new module in the sixth period: “Humanities, Bioethics and Medical Anthropology.” Aiming to evaluate student perception about the teaching of ethics in the institution, this research applied a questionnaire to the students (seventh to tenth period) of the medical course. The instrument comprised questions on the module’s structure and the teaching of ethics. Results show the importance of including medical ethics in the medical curriculum for a more humanized formation of doctors.
DOI: 10.6084/m9.figshare.20035953
title: Vulnerability and bioethics: discussions about the movie Concussion

description: Abstract This article aims to identify the perception of physical education students on vulnerabilities, intolerance and power relations in sports based on the motion picture Concussion . This is a descriptive, exploratory study with a qualitative approach. Ten undergraduate and graduate students from Universidade do Estado de Santa Catarina answered an online questionnaire about the movie. Data was examined by content analysis. With a sports-related thematic, the selected movie proved effective for teaching bioethical topics such as types of vulnerability, power relations and ethical conflicts, which may arise from professional practice in the field of physical education. The teaching-learning method motivated students to reflect on the controversial topics and situations presented in the movie.
DOI: 10.6084/m9.figshare.20035953.v1
title: Vulnerability and bioethics: discussions about the movie Concussion

description: Abstract This article aims to identify the perception of physical education students on vulnerabilities, intolerance and power relations in sports based on the motion picture Concussion . This is a descriptive, exploratory study with a qualitative approach. Ten undergraduate and graduate students from Universidade do Estado de Santa Catarina answered an online questionnaire about the movie. Data was examined by content analysis. With a sports-related thematic, the selected movie proved effective for teaching bioethical topics such as types of vulnerability, power relations and ethical conflicts, which may arise from professional practice in the field of physical education. The teaching-learning method motivated students to reflect on the controversial topics and situations presented in the movie.
DOI: 10.6084/m9.figshare.20035956.v1
title: Knowledge and perception of medical students on legal abortion

description: Abstract Abortion is a frequent practice in Brazil and a major cause of maternal mortality. Even under legal conditions, women face many barriers to access the procedure, often related to physicians’ unfamiliarity with the legislation. This article assess the knowledge of medical students from Faculdade de Medicina da Bahia of Universidade Federal da Bahia about the laws that regulate abortion in Brazil and their perception on the topic. This qualitative cross-sectional study analyzed data collected from a questionnaire answered by 237 students. Although the participants showed adequate theoretical knowledge of legal aspects, discrepant and incorrect answers were observed when asked about law enforcement in situations of legal abortion care, showing that education focused on the topic is required using multidisciplinary and transversal discussions during the medical course. Finally, we observed that participants tended to favor decriminalization of abortion.
DOI: 10.6084/m9.figshare.20035956
title: Knowledge and perception of medical students on legal abortion

description: Abstract Abortion is a frequent practice in Brazil and a major cause of maternal mortality. Even under legal conditions, women face many barriers to access the procedure, often related to physicians’ unfamiliarity with the legislation. This article assess the knowledge of medical students from Faculdade de Medicina da Bahia of Universidade Federal da Bahia about the laws that regulate abortion in Brazil and their perception on the topic. This qualitative cross-sectional study analyzed data collected from a questionnaire answered by 237 students. Although the participants showed adequate theoretical knowledge of legal aspects, discrepant and incorrect answers were observed when asked about law enforcement in situations of legal abortion care, showing that education focused on the topic is required using multidisciplinary and transversal discussions during the medical course. Finally, we observed that participants tended to favor decriminalization of abortion.
DOI: 10.6084/m9.figshare.20035963
title: Nutritionists and palliative care at the end of life: an integrative review

description: Abstract Nutritional support in palliative care aims to improve the quality of life of the patient through the control of symptoms associated with food, prioritizing the desires of the individual. There are controversies regarding the real contribution of food to the comfort of patients in palliative care at the end of life, and it is still necessary to clarify the specific skills of the nutritionist in this area. In view of these gaps, this review integrative objective to know how nutritionists act with patients in palliative care end of life. The final sample was composed of seven articles that point out differences between conventional nutritional care and in palliative care and present bioethical dilemmas related to food. It is concluded that it is necessary to know better how nutritionists act in the palliative care. Further studies on the topic should be developed, considering not only nutritional aspects, but also the character symbolic of food.
DOI: 10.6084/m9.figshare.20035963.v1
title: Nutritionists and palliative care at the end of life: an integrative review

description: Abstract Nutritional support in palliative care aims to improve the quality of life of the patient through the control of symptoms associated with food, prioritizing the desires of the individual. There are controversies regarding the real contribution of food to the comfort of patients in palliative care at the end of life, and it is still necessary to clarify the specific skills of the nutritionist in this area. In view of these gaps, this review integrative objective to know how nutritionists act with patients in palliative care end of life. The final sample was composed of seven articles that point out differences between conventional nutritional care and in palliative care and present bioethical dilemmas related to food. It is concluded that it is necessary to know better how nutritionists act in the palliative care. Further studies on the topic should be developed, considering not only nutritional aspects, but also the character symbolic of food.
DOI: 10.15151/esrf-es-771433238
title: Synchrotron Serial Crystallography (SSX) BAG

description: The aim of this BAG is the development of new methods, hardware and software for different applications in SSX. The new EBS machine is in the privileged position of exploiting flux density previously unmatched at synchrotron beamlines. This is likely to open a new paradigm in serial synchrotron crystallography, by enhancing the signal to noise of the diffraction data and reducing the minimum exposure time. The increase in photon flux density at the sample position will interest most of the MX beamlines and it is going to be particularly effective for microfocus beamline such as ID23-2 and ID30A3. We plan to further develop different SSX data collection methods in the attempt to profit of the characteristic of the new beam and to extend the implementation of automated procedures to simplify the access to SSX methods for the MX community.
DOI: 10.5281/zenodo.6069570
title: Himawari 8 band 8 derived product for Lamb wave analysis

description: Data from geostationary satellite Himawari 8 are processed for the analysis of Lamb waves that were generated by the eruption of Hunga Tonga-Hunga Haʻapai in Tonga on 15 January 2022. Himawari 8/9 gridded data are distributed by the Center for Environmental Remote Sensing (CEReS), Chiba University, Japan. The second time derivatives of band 8 thermal infrared images are stored. The used band was changed from version 1. The data format is NetCDF. The file name represents the date of the middle image used to generate each file (changed from version 2).
description: A global dataset is also available at https://doi.org/10.5281/zenodo.6592058
description: {"references": ["Otsuka, S., 2022: Visualizing Lamb waves from a volcanic eruption using meteorological satellite Himawari-8. Geophys. Res. Lett., 49, e2022GL098324."]}
DOI: 10.5281/zenodo.5881416
title: Himawari 8 band 8 derived product for Lamb wave analysis

description: Data from geostationary satellite Himawari 8 are processed for the analysis of Lamb waves that were generated by the eruption of Hunga Tonga-Hunga Haʻapai in Tonga on 15 January 2022. Himawari 8/9 gridded data are distributed by the Center for Environmental Remote Sensing (CEReS), Chiba University, Japan. The second time derivatives of band 8 thermal infrared images are stored. The used band was changed from version 1. The data format is NetCDF. The file name represents the date of the middle image used to generate each file (changed from version 2).
description: A global dataset is also available at https://doi.org/10.5281/zenodo.6592058
description: {"references": ["Otsuka, S., 2022: Visualizing Lamb waves from a volcanic eruption using meteorological satellite Himawari-8. Geophys. Res. Lett., 49, e2022GL098324."]}
DOI: 10.25919/adnz-yb10
title: Parkes observations for project P1041 semester 2022APRS_01

description: We propose to carry out a long-term timing campaign of millisecond pulsars (MSPs) discovered in the Globular Cluster Omega Centauri. So far, we have discovered seven MSPs and obtained coherent timing solutions for five of them. Monthly observations with the Parkes Ultra-Wideband Low (UWL) receiver system are requested to time known pulsars and search for new pulsars. Long-term timing and polarisation observations of these MSPs will provide us a new way to (1) study the dynamics of the core and constrain the existence of any intermediate-mass black holes; (2) reveal the origin of Gamma-ray emission from the core and put stringent constraints on dark matter parameters; (3) study Galactic ionised medium and magnetic fields on parsec scales.
DOI: 10.6084/m9.figshare.20036002
title: Difficulty communicating the patient’s death to family members

description: Abstract Considering that informing family members of a patient’s death is an arduous task for health professionals, the objective of this research was to identify in the literature recommendations to reduce the distress caused by this situation. This is a qualitative study carried out by means of a literature review on the Capes Portal database using the terms “death” and “communication.” The results, obtained from 18 selected articles, were divided into three categories: professional training, family preparation, and professional practice. Regarding professional training, it was indicated, above all, training by role playing preceded by theoretical foundations; for family members’ preparation, the recommendation was to engage in dialogue while the patient is alive; in relation to professional practice, the advice given was information sharing between colleagues and adoption of measures for emotional control. It was found that simulated practices, information sharing between professionals, emotional control of professionals and dialogue with and between family members contribute to reducing the distress when communicating death.
DOI: 10.6084/m9.figshare.20036002.v1
title: Difficulty communicating the patient’s death to family members

description: Abstract Considering that informing family members of a patient’s death is an arduous task for health professionals, the objective of this research was to identify in the literature recommendations to reduce the distress caused by this situation. This is a qualitative study carried out by means of a literature review on the Capes Portal database using the terms “death” and “communication.” The results, obtained from 18 selected articles, were divided into three categories: professional training, family preparation, and professional practice. Regarding professional training, it was indicated, above all, training by role playing preceded by theoretical foundations; for family members’ preparation, the recommendation was to engage in dialogue while the patient is alive; in relation to professional practice, the advice given was information sharing between colleagues and adoption of measures for emotional control. It was found that simulated practices, information sharing between professionals, emotional control of professionals and dialogue with and between family members contribute to reducing the distress when communicating death.
DOI: 10.6084/m9.figshare.20036005.v1
title: Understanding death in the eyes of hospitalized children

description: Abstract The aim of this article is to present how hospitalized children understand the concept of death and raise discussions on the theme of death in childhood. Semi-structured interviews were conducted with children aged 7 to 12 years, using story telling as a playful resource for data collection. The main results showed that children structure the concept of death in a multidimensional way, encompassing biological, spiritual, sociocultural and emotional factors. Inserted in the context of hospitalization, they approach the theme of death, sensitizing themselves. Thus, children demonstrate the need to be listened to and have their feelings welcomed when they face the loss of a loved one or even the possibility of the end of their own lives.
DOI: 10.6084/m9.figshare.20036007
title: Breaking bad news: self-perception of medical students

description: Abstract This study analyzed medical students’ self-perception regarding their aptitude to communicate bad news and identify associated factors. Using a self-administered questionnaire, 44.1% of 214 participants considered themselves suitable for the approach. The following were associated with greater self-perception of aptitude for breaking bad news: more time in the course ( p &lt;0.001); believing that the undergraduate course offered the necessary resources to acquire the skill to communicate bad news ( p &lt;0.001); knowing a validated protocol ( p =0.015); having needed to communicate bad news during the undergraduate course ( p &lt;0.001). In conclusion, most students felt unable to communicate bad news. Knowing a protocol and having the need to communicate bad news during the undergraduate course were essential for aptitude. As a suggestion, the topic should be approached differently, with more practical activities.
DOI: 10.6084/m9.figshare.20036007.v1
title: Breaking bad news: self-perception of medical students

description: Abstract This study analyzed medical students’ self-perception regarding their aptitude to communicate bad news and identify associated factors. Using a self-administered questionnaire, 44.1% of 214 participants considered themselves suitable for the approach. The following were associated with greater self-perception of aptitude for breaking bad news: more time in the course ( p &lt;0.001); believing that the undergraduate course offered the necessary resources to acquire the skill to communicate bad news ( p &lt;0.001); knowing a validated protocol ( p =0.015); having needed to communicate bad news during the undergraduate course ( p &lt;0.001). In conclusion, most students felt unable to communicate bad news. Knowing a protocol and having the need to communicate bad news during the undergraduate course were essential for aptitude. As a suggestion, the topic should be approached differently, with more practical activities.
DOI: 10.6084/m9.figshare.20036005
title: Understanding death in the eyes of hospitalized children

description: Abstract The aim of this article is to present how hospitalized children understand the concept of death and raise discussions on the theme of death in childhood. Semi-structured interviews were conducted with children aged 7 to 12 years, using story telling as a playful resource for data collection. The main results showed that children structure the concept of death in a multidimensional way, encompassing biological, spiritual, sociocultural and emotional factors. Inserted in the context of hospitalization, they approach the theme of death, sensitizing themselves. Thus, children demonstrate the need to be listened to and have their feelings welcomed when they face the loss of a loved one or even the possibility of the end of their own lives.
DOI: 10.6084/m9.figshare.20036010
title: Stigma, caregivers and the child with Down syndrome: a bioethical analysis

description: Abstract The aim of this study was to analyze the perception of parents of children with Down syndrome about social stigma and reflect on the theme in the light of bioethics. This study consists of the elaboration and validation of a measurement instrument whose pilot test had 106 participants. Results showed the stigma creates feelings of inferiority on those affected, causing social disadvantage, unemployment, decreased financial resources, non-acceptance, intolerance, social invisibility, less access to health services and worse quality of life. This generates negative effects on the parents’ health. It was concluded that stigma is present in society, so public policies that raise awareness among parents and guarantee their right to health are required. Despite being another element of illness, stigma should not be underestimated.
DOI: 10.6084/m9.figshare.20036010.v1
title: Stigma, caregivers and the child with Down syndrome: a bioethical analysis

description: Abstract The aim of this study was to analyze the perception of parents of children with Down syndrome about social stigma and reflect on the theme in the light of bioethics. This study consists of the elaboration and validation of a measurement instrument whose pilot test had 106 participants. Results showed the stigma creates feelings of inferiority on those affected, causing social disadvantage, unemployment, decreased financial resources, non-acceptance, intolerance, social invisibility, less access to health services and worse quality of life. This generates negative effects on the parents’ health. It was concluded that stigma is present in society, so public policies that raise awareness among parents and guarantee their right to health are required. Despite being another element of illness, stigma should not be underestimated.
DOI: 10.6084/m9.figshare.20036011
title: Therapeutic adequacy: presentation of a hospital protocol

description: Abstract Therapeutic adequacy is defined as a medical decision shared with patients and family members and that seeks to adjust therapeutic and diagnostic resources appropriate to each care plan. This article aims to present a protocol on therapeutic adequacy implemented in a university hospital. This protocol aims to guide practices of health professionals in the light of the bioethical, legal and clinical principles relevant to each case. It is concluded that the protocol can assist in the decisions to abstain or suspend certain treatment procedures of patients with severe, progressive and irreversible diseases.
DOI: 10.6084/m9.figshare.20036011.v1
title: Therapeutic adequacy: presentation of a hospital protocol

description: Abstract Therapeutic adequacy is defined as a medical decision shared with patients and family members and that seeks to adjust therapeutic and diagnostic resources appropriate to each care plan. This article aims to present a protocol on therapeutic adequacy implemented in a university hospital. This protocol aims to guide practices of health professionals in the light of the bioethical, legal and clinical principles relevant to each case. It is concluded that the protocol can assist in the decisions to abstain or suspend certain treatment procedures of patients with severe, progressive and irreversible diseases.
DOI: 10.6084/m9.figshare.20036014
title: Knowledge regarding advance directives in a teaching hospital

description: Abstract This study evaluated the knowledge of health professionals and users regarding advance directives in a Brazilian teaching hospital. The study sample comprises 145 participants – 66.9% of them health professionals and 33.1% users. Most participants had no knowledge about advance directives, with a higher incidence among users (61.9% of professionals, 91.7% of users; p &lt;0.001). After learning about advance directives, 97.9% of professionals and 95.8% of users ( p =0.60) stated that individuals should draft directives and that physicians were responsible for initiating the conversation (56.7% and 58.3%, respectively, p =0.71). After the research, 73.2% of professionals and 58.3% of users ( p =0.19) thought about drafting directives. In conclusion, knowledge on the subject is still less than ideal in health care in the teaching hospital evaluated, especially among users.