DOI: 10.3886/icpsr09795.v2
title: Infant Health and Development Program (IHDP): Enhancing the Outcomes of Low Birth Weight, Premature Infants in the United States, 1985-1988
title: Version 2

description: The Infant Health and Development Program was a 
 collaborative, randomized, longitudinal, multisite clinical trial 
 designed to evaluate the efficacy of comprehensive early intervention 
 in reducing the developmental and health problems of low birth weight, 
 premature infants. An intensive intervention extending from hospital 
 discharge to 36 months corrected age was administered between 1985 and 
 1988 at eight different sites. The study sample of infants was 
 stratified by birth weight (2,000 grams or less, 2,001-2,500 grams) and 
 randomized to the Intervention Group or the Follow-Up Group. The 
 Intervention Group received home visits, attendance at a special child 
 development center, and pediatric follow-up. The Follow-Up Group 
 received only the pediatric follow-up component of the program. 
 Measures of cognitive development, behavioral status, health status, 
 and other variables were collected from both groups at predetermined 
 time points. Cognitive development was assessed by the Stanford-Binet 
 Intelligence Scale, the Bayley Mental and Motor Scales, the Peabody 
 Picture Vocabulary Test--Revised, and the Beery-Buktenica Developmental 
 Test of Visual Motor Integration. Behavior problems were measured using 
 the Richman-Graham Behavior Checklist and Achenbach's Child Behavior 
 Checklist. Health status was evaluated through the dimensions of 
 morbidity (defined as the presence or absence of health conditions), 
 functional status (defined by limitations in activities of daily living 
 due to health problems), changes in physical growth, and maternal 
 perception of the child's health. The many other variables and indices 
 in the data collection include site, pregnancy complications, child's 
 birth weight and gestation age, birth order, child's gender, household 
 composition, day care arrangements, source of health care, quality of 
 the home environment, parents' race and ethnicity, and maternal age, 
education, IQ, and employment.
description: After all eligibility criteria were applied during the 
 screening procedure, 1302 of the 4551 infants born at the eight sites 
 during the recruitment period were determined eligible. After consent 
 and acceptance of assignment to study group were considered, 1,090 were 
 enrolled in the study. This number included a total of 103 twin pairs 
and 2 cousin pairs.
description: Datasets: 
DS0: Study-Level Files
DS1: INVNTRY: Analysis Group Infant Inventory
DS2: SAS Control Cards for INVNTRY: Analysis Group Infant Inventory
DS3: PADS: Primary Analysis Dataset
DS4: SAS Control Cards for PADS: Primary Analysis Dataset
DS5: SUMSCORE: Summary Score Dataset
DS6: SAS Control Cards for SUMSCORE: Summary Score Dataset
DS7: F3A: Birth Registration, Part A
DS8: SAS Control Cards for F3A: Birth Registration, Part A
DS9: F3B: Birth Registration, Part B
DS10: SAS Control Cards for F3B: Birth Registration, Part B
DS11: F6A: Neonatal Health Summary, Part A
DS12: SAS Control Cards for F6A: Neonatal Health Summary, Part A
DS13: F6B: Neonatal Health Summary, Part B
DS14: SAS Control Cards for F6B: Neonatal Health Summary, Part B
DS15: F7: 40-Week Family Interview
DS16: SAS Control Cards for F7: 40-Week Family Interview
DS17: F8: 40-Week Neurodevelopmental Exam
DS18: SAS Control Cards for F8: 40-Week Neurodevelopmental Exam
DS19: F9: 40-Week Health Summary Exam
DS20: SAS Control Cards for F9: 40-Week Health Summary Exam
DS21: F11: 4-Month Family Interview
DS22: SAS Control Cards for F11: 4-Month Family Interview
DS23: F12: 4-Month Neurodevelopmental Exam
DS24: SAS Control Cards for F12: 4-Month Neurodevelopmental Exam
DS25: F13: 4-Month Health Summary Exam
DS26: SAS Control Cards for F13: 4-Month Health Summary Exam
DS27: F14: 8-Month Family Interview
DS28: SAS Control Cards for F14: 8-Month Family Interview
DS29: F15: 8-Month Neurodevelopmental Exam
DS30: SAS Control Cards for F15: 8-Month Neurodevelopmental Exam
DS31: F16: 8-Month Health Summary Exam
DS32: SAS Control Cards for F16: 8-Month Health Summary Exam
DS33: F17: 8-Month Health Exam
DS34: SAS Control Cards for F17: 8-Month Health Exam
DS35: F18: 12-Month Family Interview
DS36: SAS Control Cards for F18: 12-Month Family Interview
DS37: F19: 12-Month Neurodevelopmental Exam
DS38: SAS Control Cards for F19: 12-Month Neurodevelopmental Exam
DS39: F20: 12-Month Interval Health Interview
DS40: SAS Control Cards for F20: 12-Month Interval Health Interview
DS41: F21: 12-Month Health Exam
DS42: SAS Control Cards for F21: 12-Month Health Exam
DS43: F22: 12-Month Home Assessment
DS44: SAS Control Cards for F22: 12-Month Home Assessment
DS45: F23: 12-Month Bayley Mental Scale
DS46: SAS Control Cards for F23: 12-Month Bayley Mental Scale
DS47: F24: 12-Month Bayley Motor Scale
DS48: SAS Control Cards for F24: 12-Month Bayley Motor Scale
DS49: F25: 12-Month Bayley Test Session Summary
DS50: SAS Control Cards for F25: 12-Month Bayley Test Session Summary
DS51: F28: 18-Month Family Interview
DS52: SAS Control Cards for F28: 18-Month Family Interview
DS53: F29: 18-Month Neurodevelopmental Exam
DS54: SAS Control Cards for F29: 18-Month Neurodevelopmental Exam
DS55: F30: 18-Month Interval Health Interview
DS56: SAS Control Cards for F30: 18-Month Interval Health Interview
DS57: F31: 18-Month Health Exam
DS58: SAS Control Cards for F31: 18-Month Health Exam
DS59: F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary
DS60: SAS Control Cards for F33: 18-Month Peabody Picture Vocabulary Test--Revised Summary
DS61: F34: 24-Month Family Interview
DS62: SAS Control Cards for F34: 24-Month Family Interview
DS63: F35: 24-Month Neurodevelopmental Exam
DS64: SAS Control Cards for F35: 24-Month Neurodevelopmental Exam
DS65: F36: 24-Month Interval Health Interview
DS66: SAS Control Cards for F36: 24-Month Interval Health Interview
DS67: F37: 24-Month Health Exam
DS68: SAS Control Cards for F37: 24-Month Health Exam
DS69: F38: 24-Month Child Behavior Interview
DS70: SAS Control Cards for F38: 24-Month Child Behavior Interview
DS71: F39: 24-Month Bayley Mental Scale
DS72: SAS Control Cards for F39: 24-Month Bayley Mental Scale
DS73: F40: 24-Month Bayley Motor Scale
DS74: SAS Control Cards for F40: 24-Month Bayley Motor Scale
DS75: F41: 24-Month Bayley Test Session Summary
DS76: SAS Control Cards for F41: 24-Month Bayley Test Session Summary
DS77: F43A: 24-Month Child Behavior Interview, A
DS78: SAS Control Cards for F43A: 24-Month Child Behavior Interview, A
DS79: F43B: 24-Month Child Behavior Interview, B
DS80: SAS Control Cards for F43B: 24-Month Child Behavior Interview, B
DS81: F47: 30-Month Family Interview
DS82: SAS Control Cards for F47: 30-Month Family Interview
DS83: F48: 30-Month Neurodevelopmental Exam
DS84: SAS Control Cards for F48: 30-Month Neurodevelopmental Exam
DS85: F49: 30-Month Interval Health Interview
DS86: SAS Control Cards for F49: 30-Month Interval Health Interview
DS87: F50: 30-Month Health Exam
DS88: SAS Control Cards for F50: 30-Month Health Exam
DS89: F52: 36-Month Family Interview
DS90: SAS Control Cards for F52: 36-Month Family Interview
DS91: F53: 36-Month Neurodevelopmental Exam
DS92: SAS Control Cards for F53: 36-Month Neurodevelopmental Exam
DS93: F54: 36-Month Interval Health Interview
DS94: SAS Control Cards for F54: 36-Month Interval Health Interview
DS95: F55: 36-Month Health Exam
DS96: SAS Control Cards for F55: 36-Month Health Exam
DS97: F56: 36-Month Home Assessment
DS98: SAS Control Cards for F56: 36-Month Home Assessment
DS99: F57: 36-Month Stanford-Binet IQ Scale
DS100: SAS Control Cards for F57: 36-Month Stanford-Binet IQ Scale
DS101: F58: 36-Month Peabody Picture Vocabulary Test-Revised
DS102: SAS Control Cards for F58: 36-Month Peabody Picture Vocabulary Test-Revised
DS103: F59: 36-Month Visual Motor Integration Test
DS104: SAS Control Cards for F59: 36-Month Visual Motor Integration Test
DS105: F61: 36-Month Child Behavior Interview
DS106: SAS Control Cards for F61: 36-Month Child Behavior Interview
DS107: F62: 36-Month Test Session Summary
DS108: SAS Control Cards for F62: 36-Month Test Session Summary
DS109: F63: 36-Month Growth Data Summary
DS110: SAS Control Cards for F63: 36-Month Growth Data Summary
DS111: F66A: 36-Month Child Behavior Questionnaire, A
DS112: SAS Control Cards for F66A: 36-Month Child Behavior Questionnaire, A
DS113: F66B: 36-Month Child Behavior Questionnaire, B
DS114: SAS Control Cards for F66B: 36-Month Child Behavior Questionnaire, B
DS115: F71: Twin Zygosity Record
DS116: SAS Control Cards for F71: Twin Zygosity Record
DS117: F85: Supplemental Health Conditions Codes
DS118: SAS Control Cards for F85: Supplemental Health Conditions Codes
DS119: SUMBCR18: 18-Month Daily Classroom Summary
DS120: SAS Control Cards for SUMBCR18: 18-Month Daily Classroom Summary
DS121: SUMBCR24: 24-Month Daily Classroom Summary
DS122: SAS Control Cards for SUMBCR24: 24-Month Daily Classroom Summary
DS123: SUMBCR30: 30-Month Daily Classroom Summary
DS124: SAS Control Cards for SUMBCR30: 30-Month Daily Classroom Summary
DS125: SUMBCR36: 36-Month Daily Classroom Summary
DS126: SAS Control Cards for SUMBCR36: 36-Month Daily Classroom Summary
DS127: SUMBHV04: 4-Month Home Visit Report
DS128: SAS Control Cards for SUMBHV04: 4-Month Home Visit Report
DS129: SUMBHV08: 8-Month Home Visit Report
DS130: SAS Control Cards for SUMBHV08: 8-Month Home Visit Report
DS131: SUMBHV12: 12-Month Home Visit Report
DS132: SAS Control Cards for SUMBHV12: 12-Month Home Visit Report
DS133: SUMBHV18: 18-Month Home Visit Report
DS134: SAS Control Cards for SUMBHV18: 18-Month Home Visit Report
DS135: SUMBHV24: 24-Month Home Visit Report
DS136: SAS Control Cards for SUMBHV24: 24-Month Home Visit Report
DS137: SUMBHV30: 30-Month Home Visit Report
DS138: SAS Control Cards for SUMBHV30: 30-Month Home Visit Report
DS139: SUMBHV36: 36-Month Home Visit Report
DS140: SAS Control Cards for SUMBHV36: 36-Month Home Visit Report
DS141: Transport Format SAS Library Containing the 59 Evaluation Data Files
DS142: Transport Format SAS Library Containing the 11 Implementation Data Files
DS143: Codebook, Volume I (Introduction to the Archives...Volumes I and II)
DS144: Codebook, Volume II (Evaluation Data Documentation, Volumes I and II)
DS145: Codebook, Volume III (Evaluation Data Documentation, Volumes III and IV)
DS146: Codebook, Volume IV (Evaluation Data Documentation Volume V)
DS147: Codebook, Volume V (Implementation Data Documentation, ICPSR Data Maps for Implementation Data)
DS148: Codebook, Volume VI (Manual of Operations, Volume I)
DS149: Codebook, Volume VII (Manual of Operations, Volumes II and III)
DS150: Codebook, Volume VIII (Measures Documentation Notebook, Dropped Variables Documentation Report)
DS151: Codebook, Volume IX (Infant Assessor Manual, et al.)
description: All low birth weight (2,500 grams or less), premature (37 
 weeks gestational age or less) infants born at eight sites (University 
 of Arkansas for Medical Sciences, Albert Einstein College of Medicine, 
 Harvard Medical School, University of Miami School of Medicine, 
 University of Pennsylvania School of Medicine, University of Texas 
 Health Science Center at Dallas, University of Washington School of 
 Medicine, and Yale University School of Medicine) between November 1984 
 and August 1985. All study infants reached 40 weeks post-conceptual age 
between January 7, 1985, and October 9, 1985.
description: The data is grouped in two parts: 59 Evaluation files 
 (odd-numbered parts, 1-117) and 11 Implementation files (odd-numbered 
parts, 119-139).