cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.34973/d91b-h825
title: Onteigening en Rechtsherstel

description: Deze collectie bevat de afgeronde onderzoeken naar Joodse onteigeningen en rechtsherstel voor meer dan vijftig Nederlandse gemeenten. Door de Duitse bezetter zijn in Nederland duizenden panden en kavels van Joodse burgers afgenomen en deels doorverkocht. In de afgelopen jaren bleek bij onderzoek naar deze onteigeningen voor een aantal grote steden dat Nederlandse gemeentebesturen hierin zowel tijdens als na de oorlog een negatieve rol gespeeld hebben door bij te dragen aan de uitvoering van deze onteigeningen, en in enkele gevallen door zelf panden op te kopen, maar ook in het naoorlogse proces van rechtsherstel door vorderingen van onbetaalde gemeentebelastingen (zie documentatiebestand voor meer info).

In opdracht van Nederlandse gemeentebesturen heeft het team van Advies & Actualiteit (de denktank voor onderzoek in opdracht door de sectie Politieke Geschiedenis aan de Radboud Universiteit) onderzocht in hoeverre bij de onteigening van Joods vastgoed en bij het rechtsherstel in deze gemeenten sprake is geweest van verwijtbaar handelen door het toenmalige gemeentebestuur. De A&A-onderzoeksmethode bestaat uit een divers bronnencorpus met onder andere de gedigitaliseerde Verkaufsbücher, het kadaster, notulen van de gemeenteraad en burgemeester & wethouders, zogeheten 'beheerdossiers' van het Nederlands Beheersinstituut en berichtgeving in regionale kranten.

Van de rapporten in deze collectie zijn er twintig door Advies en Actualiteit uitgevoerd. De andere rapporten behandelen hetzelfde vraagstuk, maar staan los van de Radboud Universteit en zijn uitgevoerd door andere onderzoekers via hun eigen methode. Soms in opdracht van gemeenten, soms uit eigen initiatief.
DOI: 10.34973/98gg-hj86
title: Specialized medical care for people with intellectual disabilities: a retrospective cohort study in an outpatient ID practice

description: People with intellectual disabilities (ID) experience complex medical care needs and high levels of multi-morbidity. In mainstream healthcare, these needs might remain undetected leading to unmanaged health problems and avoidable deaths. In the Netherlands, GPs can refer to specialized ID physicians when ID-specific expertise is required. Little is known about the characteristics of specialized medical care for people with ID. This study explores the characteristics of specialized medical care for people with ID, including the interplay between medical, psychological, and context-related problems. A retrospective cohort study using medical records of patients with ID who had visited the outpatient ID practice in Nijmegen, the Netherlands. Medical records (n=128) were analysed, focusing on 1) reasons for initial consultation, 2) health-related problems identified during initial consultation, and 3) disciplines involved following initial consultation.
Results Patients often initially visit the outpatient ID practice for one type of complaint, most often psychological. Diverse, multiple, and interconnected problems were identified during specialized medical ID consultation. A range of specialist professionals (n=25) were involved by the ID physician.
We found that the health-related problems of people with ID seen at the outpatient ID practice are diverse and interconnected, and originate from an interplay between medical, psychological, and context-related problems. This complexity is not mirrored in the reasons for referring to the outpatient ID practice. The range of other specialist professionals that were involved by the ID physician indicates a need for multidisciplinary approaches in the healthcare of people with ID.
DOI: 10.34973/a0j2-sw68
title: Exploring views on medical care for people  with intellectual disabilities: an international  concept mapping study

description: Medical care for people with intellectual and developmental disabilities (IDD) is organized differently across the globe and interpretation of the concept of medical care for people with IDD may vary across countries. Existing models of medical care are not tailored to the specific medical care needs of people with IDD. This study aims to provide an improved understanding of which aspects constitute medical care for people with IDD by exploring how international researchers and practitioners describe this care, using concept mapping. Twenty-five experts (researchers and practitioners) on medical care for people with IDD from 17 countries submitted statements on medical care in their country in a brainstorming session, using an online concept mapping tool. Next, they sorted all collected statements and rated them on importance.
Participants generated statements that reflect current medical and health care practice, their ideas on good practice, and aspirations for future medical and health care for people with IDD. Based on the sorting of all statements, a concept map was formed, covering 13 aspects that characterize medical and health care for people with IDD across nations. The 13 aspects varied minimally in importance ratings and were grouped into five overarching conceptual themes: (i) active patient role, (ii) provider role, (iii) context of care, (iv) consequences of care for people with IDD, and (v) quality of care. The themes, clusters and statements identified through this explorative study provide additional content and context for the specific patient group of people with IDD to the dimensions of previous models of medical care.
DOI: 10.34973/m5sf-a513
title: Specialized medical care for people with intellectual disabilities: a retrospective cohort study in an outpatient ID practice

description: People with intellectual disabilities (ID) experience complex medical care needs and high levels of multi-morbidity. In mainstream healthcare, these needs might remain undetected leading to unmanaged health problems and avoidable deaths. In the Netherlands, GPs can refer to specialized ID physicians when ID-specific expertise is required. Little is known about the characteristics of specialized medical care for people with ID. This study explores the characteristics of specialized medical care for people with ID, including the interplay between medical, psychological, and context-related problems. A retrospective cohort study using medical records of patients with ID who had visited the outpatient ID practice in Nijmegen, the Netherlands. Medical records (n=128) were analysed, focusing on 1) reasons for initial consultation, 2) health-related problems identified during initial consultation, and 3) disciplines involved following initial consultation.
Results Patients often initially visit the outpatient ID practice for one type of complaint, most often psychological. Diverse, multiple, and interconnected problems were identified during specialized medical ID consultation. A range of specialist professionals (n=25) were involved by the ID physician.
We found that the health-related problems of people with ID seen at the outpatient ID practice are diverse and interconnected, and originate from an interplay between medical, psychological, and context-related problems. This complexity is not mirrored in the reasons for referring to the outpatient ID practice. The range of other specialist professionals that were involved by the ID physician indicates a need for multidisciplinary approaches in the healthcare of people with ID.
DOI: 10.34973/b0q6-4x60
title: The role of specialized medical ID expertise in care consultations for people with intellectual disabilities: experiences of caregivers and patients

description: This study aimed to explore patients’ and their caregivers’ experiences with, and expectations of, a medical consultation with a specialized ID physician at an outpatient ID practice. Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned 1) ID physician’s knowledge and skills, 2) communication between participants and ID physician, and 3) coordination between ID physician and other professionals. Seven themes addressing roles of the ID physician were identified. Five roles relate to actions and attributes during medical consultations: clinician, patient-centred doctor, holistic physician, human, and sparring partner for the patient’s network. Two roles relate to actions and attributes around medical consultations: coordinator and advocate. 
Patients with intellectual disabilities and their caregivers value ID physicians’ roles beyond clinical skills during consultations, including roles related to care coordination, having a professional network, and advocating in a broader context around medical consultations.
DOI: 10.34973/w85n-6779
title: The role of specialized medical ID expertise in care consultations for people with intellectual disabilities: experiences of caregivers and patients

description: This study aimed to explore patients’ and their caregivers’ experiences with, and expectations of, a medical consultation with a specialized ID physician at an outpatient ID practice. Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned 1) ID physician’s knowledge and skills, 2) communication between participants and ID physician, and 3) coordination between ID physician and other professionals. Seven themes addressing roles of the ID physician were identified. Five roles relate to actions and attributes during medical consultations: clinician, patient-centred doctor, holistic physician, human, and sparring partner for the patient’s network. Two roles relate to actions and attributes around medical consultations: coordinator and advocate. 
Patients with intellectual disabilities and their caregivers value ID physicians’ roles beyond clinical skills during consultations, including roles related to care coordination, having a professional network, and advocating in a broader context around medical consultations.
DOI: 10.34973/c4eg-t810
title: Samen in Actie bij Apathie Onderwijs

description: In the project called SABA-Education, we improved training materials on recognizing and managing apathy in people with dementia. Students, teachers and professional caregivers were interviewed and subsequently involved in decision making on content and form of the materials. In this collection, we share the topic guides for (group) interviews and the outline of the world cafe sessions (only available in Dutch).
DOI: 10.34973/3ykx-5g32
title: Remote Check with CI

description: This dataset was collected for the study titled "Remote Check with CI". It contains the remote check performance data of 50 participants and their speech recognition scores in quiet collected in the clinic.

Research aim:
The stability of remote testing in cochlear implant care was studied by testing the influence of time-of-day, listener fatigue, and motivation on the outcomes of the aided threshold test (ATT) and digit triplets test (DTT) in cochlear implant (CI) recipients using self-tests at-home on a smartphone or tablet.

Design: 
A single-center repeated measures cohort study design (n = 50 adult CI recipients). The ATT and DTT were tested at-home ten times, with nine of these sessions planned within a period of eight days. Outcomes were modeled as a function of time-of-day, momentary motivation, listeners’ task-related fatigue, and chronotype (i.e., someone’s preference for morning or evening due to the sleep-wake cycle) using linear mixed models. Additional factors included aided monosyllabic word recognition in quiet, daily-life fatigue, age, and CI experience.
DOI: 10.34973/66dr-6920
title: An anatomically shaped medial meniscus prosthesis is able to partially restore the contact mechanics of the meniscectomized knee joint

description: In this collection, you can find test protocols, raw data and processed results of a study evaluating the pressure-distributing capabilities of a meniscus prosthesis.

The data of this study is owned by ATRO Medical and therefore not open access.

The aim of this study was to determine whether a flexible, anatomically shaped, medial meniscus prosthesis is
more capable of distributing loads between the prosthesis and the direct tibiofemoral cartilage contact than the previous, stiffer version of the prosthesis. Additionally, the effect of the meniscus prosthesis on the pressure distribution on the tibial plateau after meniscectomy is investigated.
DOI: 10.34973/wp05-0d88
title: Building biomaterials from nanoparticles - Development of nanocomposite hydrogels for local delivery of mRNA to support bone regeneration

description: Bone defects pose a heavy burden on healthcare, with millions requiring reconstructive surgery annually. While biomaterials can aid bone regeneration, they are therapeutically still less effective than auto- and allografts. The efficacy of biomaterials can be boosted with osteogenic growth factors, yet the high doses that are required often cause severe side effects. Messenger ribonucleic acid (mRNA) offers a promising alternative by achieving endogenous growth factor production. Extensive research has been dedicated to improve the efficacy of systemic delivery of mRNA by reducing mRNA immunogenicity and enhancing mRNA stability and transfection efficacy, but research on development of biomaterial scaffolds to facilitate local mRNA delivery is still scarce.
The overall objective of this doctoral thesis, in the context of which this data set was created, was to develop a suitable nanoparticle-based biomaterial for the delivery of mRNA to ultimately serve as a functionalized bone substitute with enhanced biological activity to stimulate bone regeneration. To this end, hydrogels based on organic gelatin and inorganic hydroxyapatite nanospheres were designed. These two nanoparticles were selected as building blocks due to their similarity with the natural bone matrix. 
Towards the overall objective, we individually investigated gelatin nanoparticles and hydroxyapatite regarding their mRNA delivery capacity and cytocompatibility, respectively. Moreover, we evaluated the sterilization of gelatin nanoparticles using supercritical carbon dioxide, as an alternative to steam sterilization for thermosensitive biomaterials. Lastly, we combined these two types of nanoparticles as nanoparticle-based nanocomposites and assessed their cytocompatibility as well as their ability to deliver mRNA to cells.

The data resulting from these investigations can be found in this data collection.
DOI: 10.34740/kaggle/dsv/8984779
title: Top Spotify Songs in 73 Countries (Daily Updated)
DOI: 10.5281/zenodo.10838181
title: Data set (traces) for Software implementations of Multiplication Gadgets: SEAL

description: This file holds the power-consumption traces in our experiments (using SCALE Board) regarding:"Towards secure software implementations of masking schemes (Multiplication gadgets) in Assembly for ARM Cortex-M3".- Format of traces: TRS- Traces for: SNR (random inputs), t-test
DOI: 10.5281/zenodo.10838182
title: Data set (traces) for Software implementations of Multiplication Gadgets: SEAL

description: This file holds the power-consumption traces in our experiments (using SCALE Board) regarding:"Towards secure software implementations of masking schemes (Multiplication gadgets) in Assembly for ARM Cortex-M3".- Format of traces: TRS- Traces for: SNR (random inputs), t-test
DOI: 10.15468/dl.7a3bzq
title: Occurrence Download

description: A dataset containing 2612 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Calanthe sylvatica (Thouars) Lindl."
 ]
}

 The dataset includes 2612 records from 85 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0029007-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.c892vd
title: Occurrence Download

description: A dataset containing 165 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Ancistrochilus rothschildianus O'Brien"
 ]
}

 The dataset includes 165 records from 29 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0029008-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.euss2e
title: Occurrence Download

description: A dataset containing 8 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Country is Cuba",
 "OccurrenceStatus is Present",
 "TaxonKey is Anolis anfiloquioi Garrido, 1980"
 ]
}

 The dataset includes 8 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0029006-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.xq2kus
title: Occurrence Download

description: A dataset containing 17 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Amblychia pardicelata (Walker)"
 ]
}

 The dataset includes 17 records from 4 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0029009-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.7m7ya3
title: Occurrence Download

description: A dataset containing 68 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Phaius mannii Rchb.f."
 ]
}

 The dataset includes 68 records from 12 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0029012-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.bteajh
title: Occurrence Download

description: A dataset containing 60 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Ancistrochilus thomsonianus (Rchb.f.) Rolfe"
 ]
}

 The dataset includes 60 records from 19 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0029013-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.v78y52
title: Occurrence Download

description: A dataset containing 247813832 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Specimen",
 "OccurrenceStatus is Present"
 ]
}

 The dataset includes 247813832 records from 8436 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0028948-240626123714530/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.xtl6cm
title: Occurrence Download

description: A dataset containing 8007 species occurrences available in GBIF matching the query:
{
 "and" : [
 {
 "or" : [
 "TaxonKey is Amphibia",
 "TaxonKey is Aves",
 "TaxonKey is Insecta",
 "TaxonKey is Reptilia",
 "TaxonKey is Mammalia",
 "TaxonKey is Chilopoda",
 "TaxonKey is Diplopoda",
 "TaxonKey is Arachnida"
 ]
 },
 {
 "or" : [
 "BasisOfRecord is Human Observation",
 "BasisOfRecord is Observation",
 "BasisOfRecord is Machine Observation"
 ]
 },
 "HasCoordinate is true",
 "DecimalLongitude is greater than or equal to -60.000000",
 "DecimalLongitude is less than -55.000000",
 "DecimalLatitude is greater than or equal to -55.000000",
 "DecimalLatitude is less than -50.000000",
 "Year is greater than or equal to 2000",
 "Year is less than or equal to 2018"
 ]
}

 The dataset includes 8007 records from 9 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0051280-180508205500799/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.hxxuj6
title: Occurrence Download

description: A dataset containing 10634 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Mephitis mephitis (Schreber, 1776)"
 ]
}

 The dataset includes 10634 records from 113 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0051280-181108115102211/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.xgdevn
title: Occurrence Download

description: A dataset containing 102 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Pristidactylus torquatus (Philippi, 1861)"
 ]
}

 The dataset includes 102 records from 17 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0271072-200613084148143/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.4y6p6d
title: Occurrence Download

description: A dataset containing 510 species occurrences available in GBIF matching the query:
{
 "and" : [
 {
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 }
 ]
 },
 "TaxonKey is Phylloscartes flaviventris (Hartert, 1897)"
 ]
}

 The dataset includes 510 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0059371-240229165702484/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.7fxwmz
title: Occurrence Download

description: A dataset containing 14578 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Didelphis virginiana Kerr, 1792"
 ]
}

 The dataset includes 14578 records from 154 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0051282-181108115102211/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.34k3ne
title: Occurrence Download

description: A dataset containing 6787 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Human Observation",
 "DatasetKey is iNaturalist Research-grade Observations",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Bombycilla cedrorum Vieillot, 1808",
 "Year 2011-2018"
 ]
}

 The dataset includes 6787 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0235727-200613084148143/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.h47fjr
title: Occurrence Download

description: A dataset containing 3469 species occurrences available in GBIF matching the query:
{
 "and" : [
 {
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 }
 ]
 },
 "TaxonKey is Cossypha albicapillus (Vieillot, 1818)"
 ]
}

 The dataset includes 3469 records from 29 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0059361-240229165702484/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.csy26f
title: Occurrence Download

description: A dataset containing 19430 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Sciurus niger Linnaeus, 1758"
 ]
}

 The dataset includes 19430 records from 95 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0051283-181108115102211/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.