cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.24373/pdsp-33
title: Hepatitis

description: This diagnosis concept set contains diagnoses related to hepatitis. It was developed by finding the concept_ids for a subset of the AHRQ CCSR clusters (https://hcup-us.ahrq.gov/toolssoftware/ccsr/dxccsr.jsp#overview) related to hepatitis. This concept set alone was not reviewed by a clinician, but it was a component of a larger codeset that was reviewed by Chris Forrest. It was developed as part of systemic conditions for a RECOVER study manuscript exploring features of PASC in children. This concept set contains only a ICD10 and ICD10CDM codes. Versions of the codes without a decimal point are not included. This concept set contains additional columns, "systemic" and "syndromic," which were used as classification categories for the study to differentiate between conditions (systemic) and symptoms (syndromic) in addition to a "condition_category" which was a further classification mechanism that could be rolled up with other codes. In this concept set, all condition_category are gastrointestinal.
description: This concept set is inteded to identify patients with a diagnosis of hepatitis.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-105
title: Eosinophilic Esophagitis

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map eosinophilic esophagitis diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-93
title: Post-Acute Sequelae of SARS-CoV2

description: This concept set is inteded to identify patients with a diagnosis of post-acute sequelae of SARS-CoV2.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-401
title: Outpatient Visits

description: This concept set contains the ENC_TYPE for outpatient visits in the PCORnet data model. This concept set only contains the term for an outpatient visit, it does not contain outpatient non-physician, other ambulatory, telehealth, etc. It was created by limiting the PCORnet value set for the ENC_TYPE field in the ENCOUNTER table to standard outpatient visits. This concept set was not reviewed, but it is a generally accepted subset of the PCORnet value sets that does not contain clinical terms. It was created to identify outpatient visits in the PCORnet data model. All concepts are expected to appear in the ENC_TYPE field in the PCORnet CDM ENCOUNTER table.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-169
title: Systemic Inflammatory Response Syndrome (SIRS)

description: The codeset was created to identify patients who had record of a SIRS diagnosis.
description: This concept set was used to identify patients with a diagnosis of Systemic Inflammatory Response Syndrome (SIRS).
description: Developed for Neonatal Enteroviral Sepsis (NES) study to locate SIRS diagnoses for neonates/infants.
DOI: 10.24373/pdsp-342.2
title: Height, Measurement

description: This concept set contains codes pertaining to body height measurements. Unlike the PCORnet CDM, the PEDSnet CDM represents weight measurements using LOINC codes. The codes which should be used are specified in the PEDSnet ETL guidelines. A height measurement may be used to derive estimated glomerular filtration rate (eGFR), a measure of kidney function. Note: In the PEDSnet CDM, height is in centimeters. In the PCORnet CDM, height is in inches. It is advisable to review distributions of height across age to identify measurements which are using the unexpected unit.
description: These codes are used to represent height measurements in the PEDSnet CDM.
description: This concept set was developed to provide a PEDSnet data model equivalent to the PCORnet data model height specifications as part of the PRESERVE study. It was reused without modification for use in PEDSnet/COSMOS analyses as part of the PEDSnet CRN Phase 4 Infrastructure grant.
DOI: 10.24373/pdsp-271
title: Lymphocyte Count, Lab Results

description: A concept set indicating that a patient received a laboratory measurement for lymphocyte count.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-103
title: Allergic Contact Dermatitis

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map contact dermatitis allergy diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-338
title: Oral Zonisamide, Drug Exposure

description: Concept set to identify patients with an exposure to oral zonisamide.
description: Outcomes of Children with Kidney Stones: Retrospective Cohort Study
DOI: 10.24373/pdsp-224
title: Utilities, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for utilities. These include the AHC HRSN Utilities. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for utilities.
DOI: 10.24373/pdsp-289
title: Oral Topiramate, Drug Exposure

description: Concept set intended to identify patients with an exposure to oral topiramate.
description: Outcomes of Children with Kidney Stones: Retrospective Cohort Study
DOI: 10.24373/pdsp-52
title: Acute Respiratory Distress Syndrome, Clinical Outcome

description: This concept set is inteded to identify patients with a diagnosis of Acute Respiratory Distress Syndrome (ARDS).
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-15
title: Epilepsy

description: This concept set is inteded to identify patients with a diagnosis of epilepsy.
description: PEDSnet Infrastructure
DOI: 10.24373/pdsp-356
title: Gastrostomy

description: Concept set intended to identify patients having undergone a gastrostromy placement procedure.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-183
title: Severity Class 1, Symptoms

description: This concept set is inteded to identify patients with any symptoms of Severity Class 1.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-69
title: Narcolepsy

description: This concept set contains condition codes for narcolepsy. This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC. The code list was generated by searching for all descendants of the SNOMED code 60380001 (Narcolepsy) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "narcolepsy" in the condition domain and excluding the term "family history". The concept set was limited to ICD10, ICD10CM, and SNOMED vocabularies.
description: This concept set is inteded to identify patients with a diagnosis of narcolepsy.
description: The original concept set was developed for the initial RECOVER work exploring clinical features of PASC in children. This codeset was a part of the autoimmune conditions subset of features.
DOI: 10.24373/pdsp-112
title: COVID-19

description: This concept set contains codes for COVID-19 diagnoses. It was developed to monitor the population of COVID-19 patients through the PEDSnet Network Data Quality program.
description: This concept set is intended to identify patients with a COVID-19 diagnosis.
DOI: 10.15468/dl.tpja84
title: Occurrence Download

description: A dataset containing 123 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "Year is greater than or equal to 1900",
 "TaxonKey is Brachiaria glomerata"
 ]
}

 The dataset includes 123 records from 7 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009956-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-45
title: Otitis Media

description: This concept set is inteded to identify patients with a diagnosis of otitis media.
description: Skeletal and Cranial Growth Among Children with Achondroplasia
DOI: 10.24373/pdsp-333
title: Oral Thiazides and Diuretics, Drug Exposure

description: This medication concept includes RxNorm codes for the ingredients hydrochlorothiazide, chlorothiazide and chlorthalidone and all of their descendants. It was developed by taking the RxNorm descendants of 974166 (hydrochlorothiazide), 992590 (chlorothiazide), and 1395058 (chlorthalidone) and excluding the search terms "cream", "ointment", "buccal", "topical". There was an additional string match for hydrochlorothiazide, chlorothiazide, chlorthalidone. This concept set was intended to investigate medication usage of patients with primary hyperoxaluria (PH) before and after diagnosis of PH, specifically for management of kidney stones. It was intended to contain non-topical formulations of hydrochlorothiazide, chlorothiazide, chlorthalidone. This medication concept set is limited to RxNorm and RxNorm Extension vocabularies and excludes topical medications.
description: Concept set intended to identify patients with codes for pressors or inotropes.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.15468/dl.48vsdu
title: Occurrence Download

description: A dataset containing 1 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Lepanthes similis",
 "HasCoordinate is true",
 "BasisOfRecord is one of (Specimen)"
 ]
}

 The dataset includes 1 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009958-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-66
title: Prematurity

description: This concept set is inteded to identify patients with a diagnosis of prematurity.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-397
title: Cardiology, Providers and Care Sites

description: This concept set contains provider specialties for cardiology. It was developed using a string search for "cardiolog" related terms. It was developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH. Vocabularies in this concept set include ABMS, NUCC, HES Specialty, Medicare Specialty, Nebraska Lexicon, and SNOMED. This concept set is intended to be broad. Many of the vocabularies in the concept set are not utilized in the PEDSnet CDM to describe provider specialty, but could potentially be present in other networks for distributed queries. PCORnet equivalent concept sets are linked below.
description: Concept set developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-292
title: Insulin, Drug Exposure

description: This concept set was created to identify insulin drug exposures for a RECOVER project query.
description: This concept set is intended to identify instances of insulin drug exposure.
DOI: 10.24373/pdsp-49
title: Polycystic Kidney Disease (PKD)

description: This condition concept set includes Polycystic Kidney Disease (PKD). Limited to SNOMED, ICD9CM, ICD10,and ICD10CM diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set was created to identify patients with a diagnosis of polycystic kidney disease (PKD). The purpose was to identify PKD of chronic kidney disease.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-343
title: Birth Weight, Measurement

description: This concept set contains a single code pertaining to birth weight. There was an interest in examining the effect of birth weight/low birth weight across a number of PRESERVE sub-studies or manuscripts. However, data quality analyses indicated high missingness for this clinical concept. This was not a high priority variable for PRESERVE. Given these considerations, birth weight is not included in final analyses. This LOINC code was selected by the PRESERVE Coordinating Center. Note: Representing birth weight exclusively with this LOINC code is specific to the PRESERVE study. It is anticipated that the main PEDSnet and PCORnet databases use a greater range of codes. This concept set should not be used in non-PRESERVE studies without substantial updates.
description: Concept set intended to identify patients with a birth weight measurement. This LOINC code was selected by the PRESERVE Coordinating Center as the code that PRESERVE sites should use to represent birth weight in their PRESERVE PCORnet CDM submissions.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study.
DOI: 10.24373/pdsp-307
title: Albuterol, Drug Exposure

description: These albuterol medication codes were used to identify the feasibility of a proposed study titled "Identification of Computational Phenotypes in Pediatric Status Asthmaticus and Determination of Treatment Effect."
description: Concept set to identify patients with exposure to albuterol.
description: Identification of Computational Phenotypes in Pediatric Status Asthmaticus and Determination of Treatment Effect
DOI: 10.24373/pdsp-230
title: Race + Ethnicity Valueset (Observation)

description: This concept set was developed for the PEDSnet Network Data Quality program to help identify cases where a non-valueset concept was present in the data.
description: This concept set reflects the controlled valueset for value_as_concept_id in the observation table for instances where observation_concept_id = 3050381 (Race or Ethnicity).
DOI: 10.24373/pdsp-275
title: Urine Blood, Lab Results

description: A concept set indicating that a patient received a laboratory measurement for urine blood.
description: This concept set was created for the "Treatment of Henoch-Schonlein purpura (HSP) Nephritis" study.
DOI: 10.24373/pdsp-355
title: Immunization Route Valueset

description: This concept set was developed for the PEDSnet Network Data Quality program to help identify cases where a non-valueset concept was present in the data.
description: This concept set reflects the controlled valueset for imm_route_concept_id.
DOI: 10.24373/pdsp-206
title: Pericarditis

description: This condition concept set includes pericarditis related conditions. This code list was generated by taking all descendants of the SNOMED code 3238004 for pericarditis, related ICD9/10/10CM codes and searching all mentions of 'pericarditis' in the concept_name. Limited to ICD9CM, ICD10, ICD10CM and SNOMED diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is intended to identify patients with a diagnosis of pericarditis.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for diagnoses of pericarditis.
DOI: 10.24373/pdsp-384
title: Endocrinology, Providers and Care Sites

description: This concept set contains provider and care site specialties for endocrinology. It was developed using a string search for "endocrin" related terms. It was developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH. This concept set contains ABMS, HES Specialty, Medicare Specialty and NUCC vocabularies.
description: Concept set intended to assess the frequency with which patients sought care with specialties involved in patient care for and related to edocrinology.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-250.2
title: Prothrombin Time (PT), Lab Results

description: The codeset was created to identify patients who had record of a prothrombin time (PT) lab. This created in collaboration with the study team. This version of PT set of codes excludes INR code.
description: A concept set indicating that a patient received a laboratory measurement for prothrombin time (PT).
description: Developed for Neonatal Enteroviral Sepsis (NES) study to locate prothrombin time (PT) labs for neonates/infants.
DOI: 10.24373/pdsp-146.2
title: Pregnancy

description: This broad condition concept set includes all pregnancy, childbirth, and puerperium-related conditions. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. This codeset was developed by the study team working on a comparative effectiveness study of Renin-Angiotensin-Aldosterone System versus Calcium Channel Blockade for preserving kidney function in children with Chronic Kidney Disease.
description: This concept set was created to identify patients with a pregnancy diagnosis to apply a pregnancy exclusion for a subset of analyses.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-255
title: Sodium Bicarbonate, Lab Results

description: A concept set indicating that a patient received a laboratory measurement for sodium bicarbonate.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-346.2
title: Body Mass Index Calculated by Source, Measurement

description: This concept set contains a single LOINC code pertaining to Body Mass Index (BMI) measurements. For the PEDSnet CDM, BMI and BMI z-score for age/sex (using NHANES 2000 norms) is derived from height and weight. For a PCORnet equivalent field, see Version 1 below.
description: This field is used to represent body mass index in the PEDSnet CDM.
description: This concept set was developed to provide a PEDSnet data model equivalent to the PCORnet data model BMI specifications.
DOI: 10.15468/dl.fhjvh7
title: Occurrence Download

description: A dataset containing 28295 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is one of (Human Observation, Material sample, Specimen)",
 "Continent is North America",
 "OccurrenceStatus is Present",
 "TaxonKey is Cancer productus"
 ]
}

 The dataset includes 28295 records from 45 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009957-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-95
title: Depression, PROMIS Measure

description: Two concept sets which inform one another to identify patient reported depression. The first concept set, `promis_mdd.csv`, was developed to identify the questions that make up the Depression Patient Reported Outcome Measurement Information System (PROMIS) measure. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. Self reported and parent proxy questions are identified in the concept set to aid in categorizing responses, especially in pediatric cohorts. Only this file is necessary to define a cohort of patients with a PROMIS measure for depression. The second concept set, `promis_mdd_values.csv`,was developed to identify the ANSWERS (i.e. `value_as_concept_id`) to the questions that make up the Depression Patient Reported Outcome Measurement Information System (PROMIS) measure. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the `concept_relationship` table and extracting `concept_id_2` where `relationship_id` = ‘Has Answer’.
description: Concept sets intended to identify the presence and responses to the PROMIS measure for depression.
description: These concept sets were developed in support of quarterly network data quality analysis of the PEDSnet database.
DOI: 10.24373/pdsp-385
title: Hematology, Provider

description: This concept set contains codes intended to identify hematology and hematology/oncology visits (in combination with the hematology facility concept set). This concept set was generated by restricting the PCORnet CDM value set to provider types that mention "oncology". The value set uses the "Medicare Specialty" vocabulary, though the PEDSnet CDM also uses "ABMS", "NUCC", and "PEDSnet" vocabularies. The concept set is based on PCORnet CDM v6.0 2021-04. It has some overlap with the Oncology, Provider concept set.
description: Concept set intended to assess the frequency with which patients sought care with specialties involved in patient care for and related to hematology.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study. Hematology/oncology visits are a covariate of interest across the PRESERVE study because treatments for malignancies may be associated with kidney function decline.
DOI: 10.24373/pdsp-258
title: Hemoglobin A1C, Lab Results

description: This concept set was developed for the Y1, Q4 Preexisting Conditions (ME-CFS/Dysautonomia) query.
description: A concept set indicating that a patient received a laboratory measurement for hemoglobin A1C.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-363.2
title: Ureteroscopy

description: This procedure concept set contains codes for ureteroscopy, a stone removal procedure. It was developed by performing a string search for "ureteroscopy" in the vocabularies ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, and OPCS4 in the measurement and procedure domains. This concept set is limited to the ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, and OPCS4 vocabularies in the procedure and measurement domains. This concept set contains all codes in the previous version with the addition of codes related to the removal of matter from the ureter that does not explicitly mention "ureteroscopy".
description: Concept set intended to identify patients having undergone a ureteroscopy procedure.
description: The original concept set was developed for A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2). This expanded set was utilized for the P50 clinical insights report.