DOI: 10.5064/f6xagl0f
title: Data for: Body-Worn Sensors for Parkinson's Disease: A Qualitative Approach with Patients and Healthcare Professionals
title: Wearables: Users Perspectives in Parkinson's Disease

description: &lt;h3&gt; Project Summary: &lt;/h3&gt;

&lt;p&gt; Body-Worn Sensors (BWS) provide reliable objective and continuous assessment of
Parkinson's disease (PD) motor symptoms, but their implementation in clinical routine
has not yet become widespread. Users’ perceptions of BWS have not been explored.
This study intended to evaluate the usability, user experience (UX), patients’
perceptions of BWS, and health professionals’ (HP) opinions on BWS monitoring. &lt;/p&gt;

&lt;p&gt; During interviews, all patients and health professionals expressed interest in Body-Worn Sensor monitoring. Patients’ hopes and expectations increased the more they learned about BWS. They manifested enthusiasm to wear BWS, which they imagined could improve their Parkinson’s disease symptoms. Health professionals highlighted needs for logistical support in the implementation of BWS in their practice. Both patients and health professionals suggested possible uses of BWS monitoring in clinical practice, for treatment adjustments for example, or for research purposes. Patients and health professionals shared ideas about the use of BWS monitoring, although patients may be more likely to integrate BWS into their disease follow-up compared to health professionals in their practice. This study highlights gaps that need to be fulfilled to facilitate BWS adoption and promote their potential. &lt;/p&gt;


&lt;h3&gt; Data Overview: &lt;/h3&gt;

&lt;p&gt; Data of this project correspond to a qualitative study performed with patients with Parkinson's disease and healthcare professionals about their perception of body-worn sensors. The documents provided are related to interviews conducted with the participants. Participants were recruited to take part in the study voluntarily. Interviews were conducted with 22 patients and 9 health professionals. Patients completed two interviews before and after
the BWS one-week experiment, and they answered two questionnaires assessing the
usability and UX. Patients rated the three BWS usability with high scores (SUS median
[range]: 87.5 [72.5 - 100]). The user experience across all dimensions of their interaction with the BWS was positive. &lt;/p&gt;

&lt;h3&gt; Data Analysis: &lt;/h3&gt; 

&lt;p&gt; A qualitative analysis was performed from semi-structured interviews conducted with 22
patients and 9 health professional experts in Parkinson’s disease. A sheet document details the number of interviews and number of references that were assigned to a theme (in French) that came up during the interview with the participant. Quotations related to those themes from patients and healthcare professionals interviews are organized in the dedicated zip files. &lt;/p&gt;

&lt;h3&gt; Data Organization:&lt;/h3&gt;
&lt;p&gt; A summary data document (Virbel-Fleischman_Nodes.xlsx) details the number of interviews and number of references that were assigned to a theme (in French) that came up during the interview with the participant. Quotations related to those themes from patients and healthcare professionals interviews are organized in the rest of the data files. These two categories, patients and healthcare professionals, have their own separate zip files containing the relevant NVivo-generated text snippets.

The NVivo documents are quotations (in French) related to all nodes highlighted by the interviews with patients and healthcare professionals. Filenames are structured according to the tree structure of the nodes, which is available in the file "Virbel-Fleischman_Nodes.xlsx". 

The NVivo HTML files shared here as collections in ZIP files have their extra assets embedded internally. In each zip file, (Patients.zip, Professionnels_de_sante.zip), the top level html files (without a suffix, e.g. Virbel-Fleischman_Dispositif_Attentes.html, NOT Virbel-Fleischman_Dispositif_Attentes_1.html) are the files that are named as the substantive nodes.&lt;p&gt; 

&lt;h3&gt; Data Contributors:&lt;/h3&gt;
&lt;p&gt;Data collection was performed by Dr. Clara Virbel-Fleischman and Dr. David Grabli. &lt;/p&gt;
&lt;p&gt;Data processing was performed by Dr. Clara Virbel-Fleischman, Dr. Yann Rétory, and Camille Huiban. &lt;/p&gt;
&lt;p&gt; Data Analysis was performed by Dr. Clara Virbel-Fleischman, Dr. Yann Rétory, and Dr. David Grabli. &lt;/p&gt;
description: NVivo, 12
description: The original NVivo export files were provided as HTML + asset folders. For the purposes of better long-term preservation and presentation for secondary users, the HTML asset files were embedded with SingleFile (https://github.com/gildas-lormeau/SingleFile) using a chromium backend.