cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.27003883
title: “I could 100% see myself getting hurt if I did it wrong”: a qualitative exploration of exercise perceptions in people with chronic low back pain

description: Traditionally, a specific “core” exercise focus has been favoured for chronic low back pain (CLBP) which contrasts holistic exercise approaches. This study aims to explore the perceptions of exercise in people with CLBP and whether exercise itself can convey implicit messages regarding its use in CLBP management in the absence of a clinical narrative. Participants were asked about their CLBP history, views of exercise for CLBP, and current exercise behaviours through online semi-structured interviews. Then, participants watched the interviewer perform the deadlift, Jefferson curl, and bird dog and were asked if they thought each individual exercise was beneficial for CLBP, and why. Data were analysed using reflexive thematic analysis through a critical realism and social constructivism lens. All participants (<i>n</i> = 16) viewed all exercises as beneficial for health and pain relief, but perceived efficacy varied. “Core” exercises were deemed crucial for CLBP relief, while spinal flexion and external load were often perceived as potentially injurious. Distrust towards healthcare practitioners also influenced exercise perceptions. People with CLBP perceive different exercises to either relieve pain or improve health. Healthcare practitioners can influence these perceptions, highlighting the need for consideration of exercise perceptions in clinical contexts. Exercise itself can convey implicit messages to people with chronic low back pain irrespective of an accompanying clinical narrative.‘Core’ exercises are perceived as beneficial whereas exercises involving spinal flexion or loading may be perceived as dangerous.Exercise for reducing pain is perceived as distinctly different from gym related exercises or other exercises for improving health.Healthcare practitioners must consider their client’s exercise perceptions when using exercise as an intervention for chronic low back pain. Exercise itself can convey implicit messages to people with chronic low back pain irrespective of an accompanying clinical narrative. ‘Core’ exercises are perceived as beneficial whereas exercises involving spinal flexion or loading may be perceived as dangerous. Exercise for reducing pain is perceived as distinctly different from gym related exercises or other exercises for improving health. Healthcare practitioners must consider their client’s exercise perceptions when using exercise as an intervention for chronic low back pain.
DOI: 10.6084/m9.figshare.27003883.v1
title: “I could 100% see myself getting hurt if I did it wrong”: a qualitative exploration of exercise perceptions in people with chronic low back pain

description: Traditionally, a specific “core” exercise focus has been favoured for chronic low back pain (CLBP) which contrasts holistic exercise approaches. This study aims to explore the perceptions of exercise in people with CLBP and whether exercise itself can convey implicit messages regarding its use in CLBP management in the absence of a clinical narrative. Participants were asked about their CLBP history, views of exercise for CLBP, and current exercise behaviours through online semi-structured interviews. Then, participants watched the interviewer perform the deadlift, Jefferson curl, and bird dog and were asked if they thought each individual exercise was beneficial for CLBP, and why. Data were analysed using reflexive thematic analysis through a critical realism and social constructivism lens. All participants (<i>n</i> = 16) viewed all exercises as beneficial for health and pain relief, but perceived efficacy varied. “Core” exercises were deemed crucial for CLBP relief, while spinal flexion and external load were often perceived as potentially injurious. Distrust towards healthcare practitioners also influenced exercise perceptions. People with CLBP perceive different exercises to either relieve pain or improve health. Healthcare practitioners can influence these perceptions, highlighting the need for consideration of exercise perceptions in clinical contexts. Exercise itself can convey implicit messages to people with chronic low back pain irrespective of an accompanying clinical narrative.‘Core’ exercises are perceived as beneficial whereas exercises involving spinal flexion or loading may be perceived as dangerous.Exercise for reducing pain is perceived as distinctly different from gym related exercises or other exercises for improving health.Healthcare practitioners must consider their client’s exercise perceptions when using exercise as an intervention for chronic low back pain. Exercise itself can convey implicit messages to people with chronic low back pain irrespective of an accompanying clinical narrative. ‘Core’ exercises are perceived as beneficial whereas exercises involving spinal flexion or loading may be perceived as dangerous. Exercise for reducing pain is perceived as distinctly different from gym related exercises or other exercises for improving health. Healthcare practitioners must consider their client’s exercise perceptions when using exercise as an intervention for chronic low back pain.
DOI: 10.6084/m9.figshare.28392145
title: Rehabilitation needs of people with brain tumours in Ireland (“BRAIN-RESTORE”): a survey of healthcare professionals’ views

description: Access to rehabilitation after brain tumour can be limited, resulting in unmet needs. We examined healthcare professionals’ perceptions of rehabilitation need and current rehabilitation services for people with brain tumours in Ireland. A cross-sectional survey of community and hospital-based healthcare professionals caring for people with brain tumours was conducted in August 2023. Quantitative and qualitative data were collected. Frequency, percentages, 95% confidence intervals (CIs) and chi-square tests are presented. 123 participants completed surveys, health and social care professions (HSCPs) (72, 58.5%), medical (30, 24%) and nursing (21, 17%), and most had &gt;10 years clinical experience (74, 60%). A range of complex rehabilitation challenges, which can persist across care settings, were identified. These included cognitive impairments (≥75% across acute, community, specialist rehabilitation and palliative settings); balance issues (≥65% across acute, community, specialist rehabilitation and palliative settings); inability to return to work (≥75% across acute, community, specialist rehabilitation and palliative settings). Many barriers for patients and healthcare professionals were linked to system-level factors such as limited access to specialist rehabilitation, community therapists lacking capacity and lack of defined care pathway. These findings will help healthcare professionals and health-service providers identify priorities to inform a more comprehensive treatment pathway and improve rehabilitation for those with brain tumours. Complex challenges can persist for people with a brain tumour which, once identified, should be prioritised for rehabilitation.The study findings identify deficits in current services in Ireland and provide increased insight into how rehabilitation pathways might need to be configured.This study suggests that increased accessibility to specialist rehabilitation and increased supports for people with a brain tumour and their families are required.These findings will be integrated with other results from the BRAIN-RESTORE project; to improve patient outcomes and inform policy and practice. Complex challenges can persist for people with a brain tumour which, once identified, should be prioritised for rehabilitation. The study findings identify deficits in current services in Ireland and provide increased insight into how rehabilitation pathways might need to be configured. This study suggests that increased accessibility to specialist rehabilitation and increased supports for people with a brain tumour and their families are required. These findings will be integrated with other results from the BRAIN-RESTORE project; to improve patient outcomes and inform policy and practice.
DOI: 10.6084/m9.figshare.28392145.v1
title: Rehabilitation needs of people with brain tumours in Ireland (“BRAIN-RESTORE”): a survey of healthcare professionals’ views

description: Access to rehabilitation after brain tumour can be limited, resulting in unmet needs. We examined healthcare professionals’ perceptions of rehabilitation need and current rehabilitation services for people with brain tumours in Ireland. A cross-sectional survey of community and hospital-based healthcare professionals caring for people with brain tumours was conducted in August 2023. Quantitative and qualitative data were collected. Frequency, percentages, 95% confidence intervals (CIs) and chi-square tests are presented. 123 participants completed surveys, health and social care professions (HSCPs) (72, 58.5%), medical (30, 24%) and nursing (21, 17%), and most had &gt;10 years clinical experience (74, 60%). A range of complex rehabilitation challenges, which can persist across care settings, were identified. These included cognitive impairments (≥75% across acute, community, specialist rehabilitation and palliative settings); balance issues (≥65% across acute, community, specialist rehabilitation and palliative settings); inability to return to work (≥75% across acute, community, specialist rehabilitation and palliative settings). Many barriers for patients and healthcare professionals were linked to system-level factors such as limited access to specialist rehabilitation, community therapists lacking capacity and lack of defined care pathway. These findings will help healthcare professionals and health-service providers identify priorities to inform a more comprehensive treatment pathway and improve rehabilitation for those with brain tumours. Complex challenges can persist for people with a brain tumour which, once identified, should be prioritised for rehabilitation.The study findings identify deficits in current services in Ireland and provide increased insight into how rehabilitation pathways might need to be configured.This study suggests that increased accessibility to specialist rehabilitation and increased supports for people with a brain tumour and their families are required.These findings will be integrated with other results from the BRAIN-RESTORE project; to improve patient outcomes and inform policy and practice. Complex challenges can persist for people with a brain tumour which, once identified, should be prioritised for rehabilitation. The study findings identify deficits in current services in Ireland and provide increased insight into how rehabilitation pathways might need to be configured. This study suggests that increased accessibility to specialist rehabilitation and increased supports for people with a brain tumour and their families are required. These findings will be integrated with other results from the BRAIN-RESTORE project; to improve patient outcomes and inform policy and practice.
DOI: 10.6084/m9.figshare.27003035
title: Do integrated stroke units affect patient and family experience of care transitions?

description: Patients and families identify discharge from hospital as highly challenging. Less is known about experiences of transition between acute services and inpatient rehabilitation. We aimed to understand the experiences of patients and families as they transition to inpatient rehabilitation services, before and after the opening of a new integrated stroke and rehabilitation unit (ISU). Adults were recruited 7 days after transfer to inpatient rehabilitation, in two 6-month periods before and after the opening of the ISU. Their experiences of care continuity were evaluated with a survey. Univariate analyses compared survey data pre- and post-ISU. A subset of participants completed semi-structured interviews that underwent thematic analysis. 150 patients were recruited (median age 60 years, range 20-92 years, 72 female). There were no differences between pre- and post-ISU survey scores for patient or family experiences (all <i>p</i> &gt; 0.3). Interview analysis identified 3 major themes: “Whānaungatanga - the foundation of patient experience”, “In the dark and out of control”, and “A nice view…but I want to be able to do more.” Implementation of an integrated stroke and rehabilitation unit maintained levels of patient and family satisfaction. Interviews identified important themes for services planning to improve patient experience. Inpatient transitions can be a challenging experience for patients and family members.A new ward environment that eliminated the transition from acute to inpatient rehabilitation services had little effect on patient and family experiences.Relational aspects of inpatient care are more salient for patients and families than the physical environment.Services planning to improve patient experience should prioritise investing in staff alongside improvements to the ward environment. Inpatient transitions can be a challenging experience for patients and family members. A new ward environment that eliminated the transition from acute to inpatient rehabilitation services had little effect on patient and family experiences. Relational aspects of inpatient care are more salient for patients and families than the physical environment. Services planning to improve patient experience should prioritise investing in staff alongside improvements to the ward environment.
DOI: 10.6084/m9.figshare.27003035.v1
title: Do integrated stroke units affect patient and family experience of care transitions?

description: Patients and families identify discharge from hospital as highly challenging. Less is known about experiences of transition between acute services and inpatient rehabilitation. We aimed to understand the experiences of patients and families as they transition to inpatient rehabilitation services, before and after the opening of a new integrated stroke and rehabilitation unit (ISU). Adults were recruited 7 days after transfer to inpatient rehabilitation, in two 6-month periods before and after the opening of the ISU. Their experiences of care continuity were evaluated with a survey. Univariate analyses compared survey data pre- and post-ISU. A subset of participants completed semi-structured interviews that underwent thematic analysis. 150 patients were recruited (median age 60 years, range 20-92 years, 72 female). There were no differences between pre- and post-ISU survey scores for patient or family experiences (all <i>p</i> &gt; 0.3). Interview analysis identified 3 major themes: “Whānaungatanga - the foundation of patient experience”, “In the dark and out of control”, and “A nice view…but I want to be able to do more.” Implementation of an integrated stroke and rehabilitation unit maintained levels of patient and family satisfaction. Interviews identified important themes for services planning to improve patient experience. Inpatient transitions can be a challenging experience for patients and family members.A new ward environment that eliminated the transition from acute to inpatient rehabilitation services had little effect on patient and family experiences.Relational aspects of inpatient care are more salient for patients and families than the physical environment.Services planning to improve patient experience should prioritise investing in staff alongside improvements to the ward environment. Inpatient transitions can be a challenging experience for patients and family members. A new ward environment that eliminated the transition from acute to inpatient rehabilitation services had little effect on patient and family experiences. Relational aspects of inpatient care are more salient for patients and families than the physical environment. Services planning to improve patient experience should prioritise investing in staff alongside improvements to the ward environment.
DOI: 10.6084/m9.figshare.28079125
title: An interdisciplinary e-learning intervention for professionals working with breast cancer survivors and chronic pain: a realist evaluation

description: Chronic pain is prevalent among breast cancer survivors. Bio-psychosocial factors interplay in its exacerbation and maintenance. Therefore, prevention and treatment require an interdisciplinary response and the integration of various approaches. To deliver this way of working, healthcare professionals may need training. We developed an e-learning intervention, aimed at increasing awareness and interdisciplinary collaboration in response to pain after cancer. We aimed to gain insight into the intervention’s implementation, mechanisms, and outcomes through a realist evaluation. A mixed-methods pre- and post-test design with follow-up was used. Via questionnaires, professionals reported on the feasibility of the e-learning and their knowledge, beliefs, confidence, and professional role in pain prevention and treatment. Six-month post-intervention, interviews were conducted to explore transferability in practice. An interdisciplinary group of 22 professionals completed the intervention. Overall, e-learning was deemed a feasible format for training. An increase in confidence was found, whereas no changes were detected in knowledge and professional role. Configurations were outlined between these mechanisms and behaviors in practice, influenced by implementation processes and context-related factors. E-learning holds promise in stimulating knowledge, beliefs, confidence, and professional role. In this, the value of asynchronous discussion forums, case-based exercises, practical tools, and models were emphasized. The prevention and treatment of chronic pain following cancer treatment is a complex given, requiring interdisciplinary collaboration and the integration of care.E-learning training holds the potential to stimulate a shared vision of pain and an interdisciplinary attitude among healthcare professionals.Based on our findings, we suggest implementing e-learning training within local learning communities followed by continuing (online) interactions on experienced challenges and cases in practice. The prevention and treatment of chronic pain following cancer treatment is a complex given, requiring interdisciplinary collaboration and the integration of care. E-learning training holds the potential to stimulate a shared vision of pain and an interdisciplinary attitude among healthcare professionals. Based on our findings, we suggest implementing e-learning training within local learning communities followed by continuing (online) interactions on experienced challenges and cases in practice.
DOI: 10.6084/m9.figshare.28079125.v1
title: An interdisciplinary e-learning intervention for professionals working with breast cancer survivors and chronic pain: a realist evaluation

description: Chronic pain is prevalent among breast cancer survivors. Bio-psychosocial factors interplay in its exacerbation and maintenance. Therefore, prevention and treatment require an interdisciplinary response and the integration of various approaches. To deliver this way of working, healthcare professionals may need training. We developed an e-learning intervention, aimed at increasing awareness and interdisciplinary collaboration in response to pain after cancer. We aimed to gain insight into the intervention’s implementation, mechanisms, and outcomes through a realist evaluation. A mixed-methods pre- and post-test design with follow-up was used. Via questionnaires, professionals reported on the feasibility of the e-learning and their knowledge, beliefs, confidence, and professional role in pain prevention and treatment. Six-month post-intervention, interviews were conducted to explore transferability in practice. An interdisciplinary group of 22 professionals completed the intervention. Overall, e-learning was deemed a feasible format for training. An increase in confidence was found, whereas no changes were detected in knowledge and professional role. Configurations were outlined between these mechanisms and behaviors in practice, influenced by implementation processes and context-related factors. E-learning holds promise in stimulating knowledge, beliefs, confidence, and professional role. In this, the value of asynchronous discussion forums, case-based exercises, practical tools, and models were emphasized. The prevention and treatment of chronic pain following cancer treatment is a complex given, requiring interdisciplinary collaboration and the integration of care.E-learning training holds the potential to stimulate a shared vision of pain and an interdisciplinary attitude among healthcare professionals.Based on our findings, we suggest implementing e-learning training within local learning communities followed by continuing (online) interactions on experienced challenges and cases in practice. The prevention and treatment of chronic pain following cancer treatment is a complex given, requiring interdisciplinary collaboration and the integration of care. E-learning training holds the potential to stimulate a shared vision of pain and an interdisciplinary attitude among healthcare professionals. Based on our findings, we suggest implementing e-learning training within local learning communities followed by continuing (online) interactions on experienced challenges and cases in practice.
DOI: 10.6084/m9.figshare.28400279
title: Training healthcare students to be competent communication partners: a scoping review

description: People with acquired neurogenic Communication Disorders (PwCD) experience reduced satisfaction in healthcare environments, possibly relating to communication difficulties. Communication Partner Training might improve communication success. The purpose of the scoping review was to map the literature about educational experiences in teaching communication strategies to healthcare students (HcS) interacting with PwCD. The Arksey and O’Malley framework for Scoping Reviews and further enhancements were followed. Studies published from 1998 were identified from eight electronic databases (CINHAL, PubMed, Embase, PsychINFO, Pedro, SpeechBite, Google Scholar, and ResearchGate) and separately screened by two evaluators. Twenty-seven articles were included. Studies reported four structured training programmes (SCA<sup>TM</sup>, Connect, FRAME, and Training Con-tAct) and unstructured methods. HcS were mainly studying medicine, speech-language pathology, or occupational therapy. The most common communication disorder was aphasia. Key contents included lectures, role-playing/interaction with real or simulated PwCD, video examples, and feedback. The articles reported improvements in both HcS’s knowledge and skills in communication strategies, suggesting that training programmes are promising, although they need further exploration. Priorities for future studies are the inclusion of a wider variety of communication disorders and HcS, and common consensus on key learning outcomes and their assessment. <b>‘</b>Staff-patient communication’ difficulties have a negative impact on both People with acquired neurogenic Communication Disorders (PwCD) and their healthcare providers.Providing healthcare students with knowledge and skills to support communication with PwCD during their initial education could improve communication success in the future.The present scoping review maps available programmes and previous experiences in training healthcare students, and suggests priorities for future research. <b>‘</b>Staff-patient communication’ difficulties have a negative impact on both People with acquired neurogenic Communication Disorders (PwCD) and their healthcare providers. Providing healthcare students with knowledge and skills to support communication with PwCD during their initial education could improve communication success in the future. The present scoping review maps available programmes and previous experiences in training healthcare students, and suggests priorities for future research.