cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.21876159
title: Supplementary materials for the manuscript "Association of HLA-class II alleles with risk of relapse in myeloperoxidase-antineutrophil cytoplasmic antibody positive vasculitis in the Japanese population"

description: Supplementary Table S1. Association analysis of each <em>HLA-DRB1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Table S2. Association analysis of each <em>HLA-DQA1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Table S3. Association analysis of each <em>HLA-DQB1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Table S4. Association analysis of each <em>HLA-DPB1</em> allele with occurrence of relapse and time to relapse. Supplementary Table S5 Association analyses of HLA-DRβ1_13S encoding alleles with susceptibility and relapse-free survival. Supplementary Figure S1. Sanger sequencing chromatograms around the <em>HLA-DQA1*03:02</em> tagSNP rs11545686. Representative Sanger sequencing chromatograms corresponding to each of the three genotypes are shown. The rs11545686C allele tags <em>HLA-DQA1*03:02.</em> <em>HLA-DQA1 </em>genotype of each subject determined by PCR-SSOP was <em>DQA1*03:02/03*02</em> (relapse ID 36), <em>DQA1*03:02/05:07 (</em>relapse ID 156) and <em>DQA1*</em> <em>01:01/01:02</em> (relapse ID 164), as shown in Supplementary Data 1. <br> Supplementary Data 1. Clinical information and HLA genotypes in each subject examined for susceptibility and relapse. <br> Susceptibility Data 2. Association of each HLA -class II amino acid with relapse-free survival. <br>
DOI: 10.6084/m9.figshare.21876159.v2
title: Supplementary materials for the manuscript "Association of HLA-class II alleles with risk of relapse in myeloperoxidase-antineutrophil cytoplasmic antibody positive vasculitis in the Japanese population"

description: Supplementary Table S1. Association analysis of each <em>HLA-DRB1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Table S2. Association analysis of each <em>HLA-DQA1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Table S3. Association analysis of each <em>HLA-DQB1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Table S4. Association analysis of each <em>HLA-DPB1</em> allele with occurrence of relapse and time to relapse. <br> Supplementary Figure S1. Sanger sequencing chromatograms around the <em>HLA-DQA1*03:02</em> tagSNP rs11545686. Representative Sanger sequencing chromatograms corresponding to each of the three genotypes are shown. The rs11545686C allele tags <em>HLA-DQA1*03:02.</em> <em>HLA-DQA1 </em>genotype of each subject determined by PCR-SSOP was <em>DQA1*03:02/03*02</em> (relapse ID 36), <em>DQA1*03:02/05:07 (</em>relapse ID 156) and <em>DQA1*</em> <em>01:01/01:02</em> (relapse ID 164), as shown in Supplementary Data 1. <br> Supplementary Data 1. Clinical information and HLA genotypes in each subject examined for susceptibility and relapse. <br> Susceptibility Data 2. Association of each HLA -class II amino acid with relapse-free survival. <br>
DOI: 10.25442/hku.22208008
title: Dataset and supplementary movies for geophysical mass flows against slit dams

description: simulated dataset
DOI: 10.25442/hku.22208008.v1
title: Dataset and supplementary movies for geophysical mass flows against slit dams

description: simulated dataset
DOI: 10.6084/m9.figshare.22231366
title: Supplementary Material for: Effektivität von Antidepressiva bei der vollstationären Psychotherapie von Depression: eine naturalistische kontrollierte Studie

description: <b><i>Hintergrund:</i></b> Zahlreiche Doppelblindstudien (randomized controlled trials, RCTs) und Metaanalysen verweisen auf die Wirksamkeit von Antidepressiva (AD), zumindest bei schweren Depressionen. Dementsprechend sind AD ein Standard bei der Behandlung von Depressionen und werden mit zunehmender Häufigkeit eingesetzt. In der vorliegenden Arbeit wird die Wirksamkeit von AD unter naturalistischen Bedingungen geprüft. <b><i>Patienten und Methoden:</i></b> 600 konsekutiv aufgenommene depressive Patient*innen in vollstationärer Behandlung wurden untersucht. Alle Patient*innen wurden mit einem kognitiv-verhaltenstherapeutisch orientierten Konzept behandelt, ein Teil zusätzlich mit AD. Die Depressivität wurde in einem Vorgespräch, bei Aufnahme, bei Entlassung und bei einem 6-Monats-Follow-up mit dem revidierten Beck Depressions-Inventar (BDI-II) erfasst. <b><i>Ergebnisse:</i></b> Die vollstationäre Behandlung führte zu einem starken Rückgang der BDI-II-Scores, sowohl bei Entlassung als auch sechs Monate später. Die Ergänzung der Psychotherapie mit AD war nicht mit einem stärkeren Symptomrückgang assoziiert, auch unter Kontrolle einiger konfundierender Variablen (Schwere der Depression bei Behandlungsbeginn, Alter, Geschlecht, komorbide Angsterkrankungen, Suizidversuche, Arbeitslosigkeit). Je depressiver die Patient*innen waren, desto wahrscheinlicher war die Verordnung von AD, ohne dass dabei ein therapeutischer Effekt der AD nachweisbar war. <b><i>Diskussion:</i></b> In unseren Daten fand sich keine Evidenz für eine Verbesserung der Wirkung einer vollstatio­nären psychiatrisch-psychotherapeutischen Behandlung durch AD. <b><i>Schlussfolgerungen:</i></b> Der Nutzen von AD wird möglicherweise überschätzt. Die Effektivität von RCTs sollte durch die Kontrolle des Breaking-Blind-Effekts verbessert werden.
DOI: 10.6084/m9.figshare.22231366.v1
title: Supplementary Material for: Effektivität von Antidepressiva bei der vollstationären Psychotherapie von Depression: eine naturalistische kontrollierte Studie

description: <b><i>Hintergrund:</i></b> Zahlreiche Doppelblindstudien (randomized controlled trials, RCTs) und Metaanalysen verweisen auf die Wirksamkeit von Antidepressiva (AD), zumindest bei schweren Depressionen. Dementsprechend sind AD ein Standard bei der Behandlung von Depressionen und werden mit zunehmender Häufigkeit eingesetzt. In der vorliegenden Arbeit wird die Wirksamkeit von AD unter naturalistischen Bedingungen geprüft. <b><i>Patienten und Methoden:</i></b> 600 konsekutiv aufgenommene depressive Patient*innen in vollstationärer Behandlung wurden untersucht. Alle Patient*innen wurden mit einem kognitiv-verhaltenstherapeutisch orientierten Konzept behandelt, ein Teil zusätzlich mit AD. Die Depressivität wurde in einem Vorgespräch, bei Aufnahme, bei Entlassung und bei einem 6-Monats-Follow-up mit dem revidierten Beck Depressions-Inventar (BDI-II) erfasst. <b><i>Ergebnisse:</i></b> Die vollstationäre Behandlung führte zu einem starken Rückgang der BDI-II-Scores, sowohl bei Entlassung als auch sechs Monate später. Die Ergänzung der Psychotherapie mit AD war nicht mit einem stärkeren Symptomrückgang assoziiert, auch unter Kontrolle einiger konfundierender Variablen (Schwere der Depression bei Behandlungsbeginn, Alter, Geschlecht, komorbide Angsterkrankungen, Suizidversuche, Arbeitslosigkeit). Je depressiver die Patient*innen waren, desto wahrscheinlicher war die Verordnung von AD, ohne dass dabei ein therapeutischer Effekt der AD nachweisbar war. <b><i>Diskussion:</i></b> In unseren Daten fand sich keine Evidenz für eine Verbesserung der Wirkung einer vollstatio­nären psychiatrisch-psychotherapeutischen Behandlung durch AD. <b><i>Schlussfolgerungen:</i></b> Der Nutzen von AD wird möglicherweise überschätzt. Die Effektivität von RCTs sollte durch die Kontrolle des Breaking-Blind-Effekts verbessert werden.
DOI: 10.6084/m9.figshare.22231165.v1
title: Trả KQ ADF, NDF.xlsx

description: Feeding and dietary analysis, laboratory work, management <br>
DOI: 10.6084/m9.figshare.22231165
title: Trả KQ ADF, NDF.xlsx

description: Feeding and dietary analysis, laboratory work, management <br>
DOI: 10.25345/c5cj87w20
title: MassIVE MSV000091433 - GNPS_03_07_2023_Iowa_COVID19_Cohorts_1_and_2
title: This project was performed on a cohort of mice that were either infected on Day 2 with 1000 pfu of mouse-adapted COVID-19 (D2), uninfected on day 2 (MOCK), infected on day 5 with 1000 or 5000 pfu (D5_1000 or D5_5000), uninfected on day 5 (D5_MOCK), infected on day 20 (D20) or uninfected on day 20 (D20_MOCK)
DOI: 10.34740/kaggle/dsv/5126354
title: Nifty-50 & Nifty Future 50 Dataset
DOI: 10.5517/ccdc.csd.cc2dhg6l
title: CCDC 2219389: Experimental Crystal Structure Determination

description: Related Article: Jing Xu, Qi Wang, Wei-Wei Ge, Dong Wu, Carl Redshaw, Kai Chen|2023|CrystEngComm|25|1529|doi:10.1039/D2CE01568D
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2dhg7m
title: CCDC 2219390: Experimental Crystal Structure Determination

description: Related Article: Jing Xu, Qi Wang, Wei-Wei Ge, Dong Wu, Carl Redshaw, Kai Chen|2023|CrystEngComm|25|1529|doi:10.1039/D2CE01568D
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2dhg8n
title: CCDC 2219391: Experimental Crystal Structure Determination

description: Related Article: Jing Xu, Qi Wang, Wei-Wei Ge, Dong Wu, Carl Redshaw, Kai Chen|2023|CrystEngComm|25|1529|doi:10.1039/D2CE01568D
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2dhg9p
title: CCDC 2219392: Experimental Crystal Structure Determination

description: Related Article: Jing Xu, Qi Wang, Wei-Wei Ge, Dong Wu, Carl Redshaw, Kai Chen|2023|CrystEngComm|25|1529|doi:10.1039/D2CE01568D
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2bc1xp
title: CCDC 2155582: Experimental Crystal Structure Determination

description: Related Article: Pradip Bhunia, Rosa M. Gomila, Antonio Frontera, Ashutosh Ghosh|2023|Dalton Trans.|52|3097|doi:10.1039/D3DT00024A
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2bc1yq
title: CCDC 2155583: Experimental Crystal Structure Determination

description: Related Article: Pradip Bhunia, Rosa M. Gomila, Antonio Frontera, Ashutosh Ghosh|2023|Dalton Trans.|52|3097|doi:10.1039/D3DT00024A
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2bc1zr
title: CCDC 2155584: Experimental Crystal Structure Determination

description: Related Article: Pradip Bhunia, Rosa M. Gomila, Antonio Frontera, Ashutosh Ghosh|2023|Dalton Trans.|52|3097|doi:10.1039/D3DT00024A
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2d01q6
title: CCDC 2204587: Experimental Crystal Structure Determination

description: Related Article: Neetu Prajesh, Dipti R. Naphade, Ashok Yadav, Vikash Kushwaha, Balu Praveenkumar, Jan K. Zaręba, Thomas D. Anthopoulos, Ramamoorthy Boomishankar|2023|Chem.Commun.|59|2919|doi:10.1039/D3CC00098B
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2f0b2w
title: CCDC 2234637: Experimental Crystal Structure Determination

description: Related Article: Biao Wu, Xin-Xiong Li, Shou-Tian Zheng, Jianping Xie|2023|Chem.Commun.|59|2927|doi:10.1039/D3CC00128H
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2d59xt
title: CCDC 2209646: Experimental Crystal Structure Determination

description: Related Article: Diane P. Isaacs, Cole T. Gruninger, Tao Huang, Aldo M. Jordan, Genique Nicholas, Chun-Hsing Chen, Marc A. ter Horst, Jillian L. Dempsey|2023|Dalton Trans.|52|3210|doi:10.1039/D2DT03675D
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc22ds6h
title: CCDC 1918906: Experimental Crystal Structure Determination

description: Related Article: Jie Tang, Hualin Xiong, Yongxing Tang, Hongwei Yang, Guangbin Cheng|2023|Dalton Trans.|52|3169|doi:10.1039/D3DT00001J
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc22drz7
title: CCDC 1918899: Experimental Crystal Structure Determination

description: Related Article: Jie Tang, Hualin Xiong, Yongxing Tang, Hongwei Yang, Guangbin Cheng|2023|Dalton Trans.|52|3169|doi:10.1039/D3DT00001J
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2f6tgy
title: CCDC 2240880: Experimental Crystal Structure Determination

description: Related Article: Bill Clegg|2023|CSD Communication|||
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2f9r1k
title: CCDC 2243688: Experimental Crystal Structure Determination

description: Related Article: Constantin G. Daniliuc, Steve Döring, Roland Fröhlich, Gerhard Erker|2023|CSD Communication|||
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2f9r2l
title: CCDC 2243689: Experimental Crystal Structure Determination

description: Related Article: W. Clegg, J.D. Kennedy, A. Franken|2023|CSD Communication|||
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2f9r4n
title: CCDC 2243691: Experimental Crystal Structure Determination

description: Related Article: W. Clegg, J.D. Kennedy, A. Franken|2023|CSD Communication|||
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5517/ccdc.csd.cc2f9r5p
title: CCDC 2243692: Experimental Crystal Structure Determination

description: Related Article: W. Clegg, J.D. Kennedy, A. Franken|2023|CSD Communication|||
description: An entry from the Cambridge Structural Database, the world’s repository for small molecule crystal structures. The entry contains experimental data from a crystal diffraction study. The deposited dataset for this entry is freely available from the CCDC and typically includes 3D coordinates, cell parameters, space group, experimental conditions and quality measures.
DOI: 10.5281/zenodo.7063812
title: Experimental Validation of Cryobot Thermal Models for the Exploration of Ocean Worlds

description: The tables in this repository represent the data used in the figures and analyses of the paper "Experimental Validation of Cryobot Thermal Models for the Exploration of Ocean Worlds", published in the Planetary Science Journal. The provided data was collected between 2020 and 2022. AllResults.xlsx: compilation of tables 4, 5, 6, and 7 on the paper. WarmA1.xlsx: data presented in figures 9, 10, and 11, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Total Power [W], H6 Power [W], H5 Power [W], H4 Power [W], H3 Power [W], H2 Power [W], H1 Power [W]". WarmA2.xlsx: data presented in figures 9, 10, and 11, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Total Power [W], H6 Power [W], H5 Power [W], H4 Power [W], H3 Power [W], H2 Power [W], H1 Power [W]". CryoA1.xlsx: data presented in tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth Estimation [m], Power [W]". CryoB1.xlsx: data presented in figures 9 and 10, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Power [W]". CryoB2.xlsx: data presented in figures 9, 10, 11, and 12, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Power [W]". CryoB3.xlsx: data presented in figures 6, 9, 10, 11, and 12, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Power [W]". CryoC1.xlsx: data presented in figures 9, 10, and 11, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Power [W]". CryoC2.xlsx: data presented in figures 9, 10, 11, and 12, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Depth [m], Power [W]". CryoC3.xlsx: data presented in figures 9, 10, and 11, and tables 4, 5, 6, and 7 on the paper. The spreadsheet columns are "Time [hrs], Truncated Coarse Depth [m], Power [W]".
description: Work at the Jet Propulsion Laboratory, California Institute of Technology, was carried out under a contract (80NM0018D0004) with the National Aeronautics and Space Administration (NASA) and with funding from a NASA Scientific Exploration Subsurface Access Mechanism for Europa (SESAME) grant (80NM0018F0560). Work at the University of Washington was carried out under the same SESAME grant (80NM0018F0560). Work at Stone Aerospace and MIT was carried out under a separate NASA SESAME grant (80NSSC19K0612), as well as under the MIT TVML Fellowship.
DOI: 10.34740/kaggle/dsv/5126454
title: NSE-Scripts-Data
DOI: 10.15151/esrf-es-1081228294
title: Exploring the magnetic exchange couplings in ferrite thin films

description: Ferrites are of upmost interest in many research fields such as spintronics and photocatalysis. In particular spinel ferrites (AFe2O4) and iron garnets (A3Fe5O12) due to their unique ferrimagnetic, ferroelectric, multiferroic, or photoconductive behaviour. These compounds are known for their complex magnetic behaviour and structural and magnetic phase transitions, which may change depending on film thickness and growth conditions. Here we want to access the element specific magnetic properties of epitaxial (Fe,Cr,Ni)3O4(111) and (Tm,Er)Fe5O12(111) layers to determine the impact of composition on the local magnetic properties (exchange couplings and anisotropy) of these iron oxides. The element specific magnetic measurements will be realized on ID32 beamline using the setup that enables dichroic measurements under various conditions (temperature, magnetic field).
DOI: 10.15151/esrf-es-1096383328
title: Ex situ measurements

description: samples from beamline staff and collaborators (capillaries, grazing incidence mode...)
DOI: 10.25403/upresearchdata.22147349
title: Versorgers se uitdagings volgens Bronfenbrenner se sisteemvlakke

description: Die doel van hierdie studie was om die uitdagings en behoeftes van versorgers van jong volwassenes met tramatiese breinbesering (TBB) te ondersoek en te beskryf en dienooreenkomstig 'n raamwerk daar te stel vir 'n ondersteuningsprogram vir versorgers van jong volwassenes met TBB. Bronfenbrenner se ekologiese sisteemteorie is die teoretiese raamwerk wat hierdie kwalitatiewe studie onderlê het, met die fokus op faktore binne die mikro-, tegno-, meso-, ekso-, makro- en chronosisteme wat die versorger van die jong volwassene met TBB beïnvloed het. Die kwalitatiewe studie het die veelvuldige gevallestudie ontwerp benut om data deur middel van fokusgroep-, individuele- en aanlyn onderhoude in te samel. ‘n Onderhoudskedule het die onderhoude gelei tesame met die stemopnames van onderhoude met die toestemming van die deelnemers, om data insameling te versterk. Die deelnemers is deur middle van doelgerigte en sneeubal steekproefnemingstegnieke geselekteer en volgens seleksiekriteria geselekteer. Die data is getranskribeer en geanaliseer, wat verskeie temas en subtemas gegenereer het. Die temas kon verbind word met die mikro-, tegno-, meso-, ekso-, makro- en kronostelsel van Bronfenbrenner se ekologiese sisteemteorie. Die temas is met onderhoud aanhalings en literatuur gestaaf en sluit in: uitdagings van die versorger van 'n jong volwassene met TBB, behoeftes van die versorger van 'n jong volwassene met TBB, ondersteuning vir versorgers, veranderinge in jong volwassenes met TBB, die impak op die gesin, die impak van die gemeenskap en 'n ondersteuningsprogram vir versorgers.