cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.26188/12457952
title: Victorian Cerebral Palsy Register

description: The Victorian Cerebral Palsy Register collects information on people with cerebral palsy, born or living in the Australian state of Victoria since 1970. The Register was founded by Professor Dinah Reddihough in 1987 and is now one of the largest geographically-defined cerebral palsy registers in the world, holding information on over 5200 individuals with cerebral palsy. Information collected on individuals includes demographic information, birth details, known or apparent causes, type and severity of the cerebral palsy and any associated impairments.
DOI: 10.26188/12457952.v1
title: Victorian Cerebral Palsy Register

description: The Victorian Cerebral Palsy Register collects information on people with cerebral palsy, born or living in the Australian state of Victoria since 1970. The Register was founded by Professor Dinah Reddihough in 1987 and is now one of the largest geographically-defined cerebral palsy registers in the world, holding information on over 5200 individuals with cerebral palsy. Information collected on individuals includes demographic information, birth details, known or apparent causes, type and severity of the cerebral palsy and any associated impairments.
DOI: 10.26188/12458258
title: Victorian Tuberous Sclerosis Complex database

description: None advised
DOI: 10.26188/12469811.v1
title: Neuromuscular Disorders Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12477560
title: Analgesics for Pain and BPSD

description: RCT investigating whether the administration of analgesic medications (paracetamol alone of in combination with codeine) improves BPSD in people with dementia living in residential aged care. Data collected from 80+ residents.
DOI: 10.26188/12477560.v1
title: Analgesics for Pain and BPSD

description: RCT investigating whether the administration of analgesic medications (paracetamol alone of in combination with codeine) improves BPSD in people with dementia living in residential aged care. Data collected from 80+ residents.
DOI: 10.26188/12493961.v1
title: ICU Audit

description: Data on all patients admitted to intensive care from 1988 onwards. Demographics, outcomes and severity adjusters <br>
DOI: 10.26188/12494006
title: iMDT Cancer clinical database

description: Clinically annotated database of all patients seen in the Oncology Dept and/or presented at a Cancer Multidisciplinary meeting at SVHM. Details pertaining to the diseasse, treatment and outcome are included.
DOI: 10.26188/12494006.v1
title: iMDT Cancer clinical database

description: Clinically annotated database of all patients seen in the Oncology Dept and/or presented at a Cancer Multidisciplinary meeting at SVHM. Details pertaining to the diseasse, treatment and outcome are included.
DOI: 10.26188/12495926
title: KARMA (Breast cancer)

description: Kisqali Access Registry for Metastatic Breast Cancer in Australia. Registry only collecting date for the use of Kisqali in Metastatic breast cancer<br>
DOI: 10.26188/12495926.v1
title: KARMA (Breast cancer)

description: Kisqali Access Registry for Metastatic Breast Cancer in Australia. Registry only collecting date for the use of Kisqali in Metastatic breast cancer<br>
DOI: 10.26188/12554573
title: Models for liver disease prediction

description: Gradient boosting decision tree models for liver disease prediction using gut microbiome and conventional risk factors.Software: R
DOI: 10.26188/12554573.v1
title: Models for liver disease prediction

description: Gradient boosting decision tree models for liver disease prediction using gut microbiome and conventional risk factors.Software: R
DOI: 10.26188/5e9950060e4d3
title: SPS & Wellbeing Interview Themes Data-17042020

description: Themes data arising from qualitative interviews with 12 participants. Using Interpretative Phenomenological Analysis (IPA) approach.
DOI: 10.26188/5e9e9c4ebd6fc
title: Adverse Pressure Gradient Boundary Layer Data - Marusic and Perry 1995

description: Tabulated results from experiments in adverse pressure gradient boundary layers as reported by Marusic & Perry (1995), Journal of Fluid Mechanics, vol. 298, pp.389-407.
DOI: 10.26188/5eb4ebaf8fe1a
title: Raw Data for "A single point mutation in the Plasmodium falciparum ftsh1 metalloprotease confers actinonin resistance."

description: Raw data for Table 1 and Figure 1
DOI: 10.26188/5eb6ac803f073
title: Growth inhibition trials.pzfx

description: prism file<br>
DOI: 10.26188/5ebff4c2781a0
title: Effects of paracetamol on rat placenta and fatal brain

description: Raw data files upon which publication is based: Koehn et al. 2020, F1000Research. Chronic High Dose PP = plasma protein stained sections, Chronic High Dose HE = H&E stained sections
DOI: 10.26188/12420935
title: RMH@Home dataset

description: Database of all patients referred to, and admitted into, RMH@Home.<br>
DOI: 10.26188/12431837
title: Classifier combinations

description: Ref Fig 4. <br><b>combinations.zip</b>contains text files that report the outputs of best combination for each cluster
DOI: 10.26188/12431840.v1
title: GREAT output

description: Ref Table 2<br><b>GREAT_output.zip</b>contains <b>for each cluster</b>:1) .tsv files reporting the significant ontology terms 2) .txt files reporting the genes that have segments found within their regulatory domains as defined by GREAT.
DOI: 10.26188/12456518
title: BROCADE

description: Repository of primary and metastatic breast cancer tissue and matching mouse PDX models and clinical data.
DOI: 10.26188/12456518.v1
title: BROCADE

description: Repository of primary and metastatic breast cancer tissue and matching mouse PDX models and clinical data.
DOI: 10.26188/12456575.v1
title: Laryngeal squamous cell carcinoma

description: Clinicopathological and outcome data combined with FFPE tumor blocks.
DOI: 10.26188/12457961
title: Epic EMR

description: This is our main clinical information system at Royal Children's Hospital. Due to expand to cover Royal Melbourne Hospital, Royal Women's Hospital, and Peter MacCallum Cancer Centre.
DOI: 10.26188/12457961.v1
title: Epic EMR

description: This is our main clinical information system at Royal Children's Hospital. Due to expand to cover Royal Melbourne Hospital, Royal Women's Hospital, and Peter MacCallum Cancer Centre.
DOI: 10.26188/12458258.v1
title: Victorian Tuberous Sclerosis Complex database

description: None advised
DOI: 10.26188/12469694
title: Severe Acute Respiratory Infection (SARI) Surveillance

description: List of patients presenting to The Royal Children's hospital (RCH) with SARI and had a nasopharyngeal swab - with more clinical details on the RSV positive subset.
DOI: 10.26188/12469694.v1
title: Severe Acute Respiratory Infection (SARI) Surveillance

description: List of patients presenting to The Royal Children's hospital (RCH) with SARI and had a nasopharyngeal swab - with more clinical details on the RSV positive subset.
DOI: 10.26188/12469799
title: Surveillance of Adverse Events Following Vaccination in the Community

description: Surveillance of Adverse Events Following Vaccination In the Community (SAEFVIC) based in Murdoch Children's Research Institute (MCRI), is the central reporting service in Victoria for any significant adverse events following immunisations (AEFI).
DOI: 10.26188/12469799.v1
title: Surveillance of Adverse Events Following Vaccination in the Community

description: Surveillance of Adverse Events Following Vaccination In the Community (SAEFVIC) based in Murdoch Children's Research Institute (MCRI), is the central reporting service in Victoria for any significant adverse events following immunisations (AEFI).
DOI: 10.26188/12469811
title: Neuromuscular Disorders Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12471809
title: Neuromuscular Disorders Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12471809.v1
title: Neuromuscular Disorders Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12471980
title: Mitochondrial Diseases Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12471980.v1
title: Mitochondrial Diseases Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12471995
title: Mitochondrial Diseases Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12471995.v1
title: Mitochondrial Diseases Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479294
title: Mitochondrial Diseases self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479294.v1
title: Mitochondrial Diseases self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479315
title: Epilectic Encephelopathy Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479315.v1
title: Epilectic Encephelopathy Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479342
title: Epileptic Encephalopathy Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479342.v1
title: Epileptic Encephalopathy Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479354
title: Epileptic Encephalopathy self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479354.v1
title: Epileptic Encephalopathy self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479360
title: Brain Malformations Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479360.v1
title: Brain Malformations Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479375
title: Brain Malformations Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479375.v1
title: Brain Malformations Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479378
title: Brain Malformations self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479378.v1
title: Brain Malformations self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479390
title: Leukodystrophies Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479390.v1
title: Leukodystrophies Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479399
title: Leukodystrophies Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479399.v1
title: Leukodystrophies Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479405
title: Leukodystrophies self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479405.v1
title: Leukodystrophies self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479432.v1
title: Intellectual Disabilities Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479441
title: Intellectual Disabilities Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479441.v1
title: Intellectual Disabilities Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479972
title: KidGen Renal Genetics Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479972.v1
title: KidGen Renal Genetics Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479990
title: KidGen Renal Genetics Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479990.v1
title: KidGen Renal Genetics Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12479999
title: KidGen Renal Genetics self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12479999.v1
title: KidGen Renal Genetics self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480002
title: Genetic Immunology Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480002.v1
title: Genetic Immunology Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480008
title: Genetic Immunology Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480008.v1
title: Genetic Immunology Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480014
title: Genetic Immunology self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480014.v1
title: Genetic Immunology self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480020
title: chILDRANZ Interstitial Lung Diseases Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480020.v1
title: chILDRANZ Interstitial Lung Diseases Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480026
title: chILDRANZ Interstitial Lung Diseases Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480026.v1
title: chILDRANZ Interstitial Lung Diseases Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480338.v1
title: Acute Care Genomics Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480356
title: Acute Care Genomics

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480356.v1
title: Acute Care Genomics

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480362
title: Acute Care self-reported surveys

description: Understanding, expectation, experience with genomic testing through a survey. This data is self-reported by carers of participants.
DOI: 10.26188/12480362.v1
title: Acute Care self-reported surveys

description: Understanding, expectation, experience with genomic testing through a survey. This data is self-reported by carers of participants.
DOI: 10.26188/12480368.v1
title: Cardiovascular Genetic Disorders Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480389
title: Cardiovascular Genetic Disorders Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480389.v1
title: Cardiovascular Genetic Disorders Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480401
title: Cardiovascular Genetic Disorders self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480401.v1
title: Cardiovascular Genetic Disorders self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480413
title: HIDDEN Renal Genetics Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480413.v1
title: HIDDEN Renal Genetics Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480449
title: HIDDEN Renal Genetics self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480449.v1
title: HIDDEN Renal Genetics self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12480461
title: Acute Lymphoblastic Leukemia Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480461.v1
title: Acute Lymphoblastic Leukemia Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480482
title: Acute Lymphoblastic Leukemia Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12489179.v1
title: iPredict Somatic Cancer Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12489308
title: Cardiac Clinical Audit

description: Retrospective clinical audit
DOI: 10.26188/12489308.v1
title: Cardiac Clinical Audit

description: Retrospective clinical audit
DOI: 10.26188/12489365
title: Victorian Prader-Willi syndrome Register

description: Victorian Prader-Willi Syndrome register collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.
DOI: 10.26188/12489557
title: VicCHILD

description: VicCHILD is the 'Victorian Childhood Hearing Impairment Longitudinal Databank'. It is a Victorian register and research databank of children born with a permanent hearing loss. VicCHILD collects different types of information from children and their families, to create a unique resource for advancing research in hearing loss. VicCHILD ultimately aims to help children with permanent hearing loss reach their full developmental potentials.
DOI: 10.26188/12489557.v1
title: VicCHILD

description: VicCHILD is the 'Victorian Childhood Hearing Impairment Longitudinal Databank'. It is a Victorian register and research databank of children born with a permanent hearing loss. VicCHILD collects different types of information from children and their families, to create a unique resource for advancing research in hearing loss. VicCHILD ultimately aims to help children with permanent hearing loss reach their full developmental potentials.
DOI: 10.26188/12493433
title: iPredict Somatic Cancer Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493433.v1
title: iPredict Somatic Cancer Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493460
title: iPredict Somatic Cancer self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12493460.v1
title: iPredict Somatic Cancer self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by participants or carers of participants.
DOI: 10.26188/12493478
title: Cancer Risk in the Young Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493490
title: Cancer Risk in the Young Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493550.v1
title: Hereditary Cancer Syndromes Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493961
title: ICU Audit

description: Data on all patients admitted to intensive care from 1988 onwards. Demographics, outcomes and severity adjusters <br>
DOI: 10.26188/12479432
title: Intellectual Disabilities Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12479441.v2
title: Intellectual Disabilities Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480029
title: chILDRANZ Interstitial Lung Diseases self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by carers of participants.
DOI: 10.26188/12480029.v1
title: chILDRANZ Interstitial Lung Diseases self-reported surveys

description: Understanding, expectation, experience with genomic testing in baseline (pre-test) and follow up (post-test) surveys. This data is self-reported by carers of participants.
DOI: 10.26188/12480338
title: Acute Care Genomics Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12480368
title: Cardiovascular Genetic Disorders Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.