cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.3535/9ss-4vk-lrg
title: Silene arabica Boiss.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/eev-k1r-ed0
title: Brachythecium ruderale (Brid.) W.R. Buck

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/2f0-8xx-1sy
title: Persicaria lapathifolia (L.) Gray

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/sdj-693-8mt
title: Cyathophorum adiantum (Griff.) Mitt.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/t8h-x3x-qfa
title: Dicranum scoparium Hedw.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/6aj-fz8-72r
title: Quercus ithaburensis Decne.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/ckz-by2-n43
title: Silene vivianii Steud.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/5ax-sbe-pbh
title: Ilex L. L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/wgz-050-9mq
title: Rhododendron rubrobracteatum Sleumer

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/e7l-pg2-brt
title: Libidibia monosperma (Tul.) Gagnon & G.P.Lewis

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/75s-1aa-tqc
title: Carduncellus Adans.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/hmw-me2-84p
title: Halesia diptera J. Ellis ex L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/9xk-q9x-ryh
title: Exochorda Lindl.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/nem-75m-y8n
title: Helichrysum siculum (Spreng.) Boiss.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/7kn-3lf-jfe
title: Atractylis carduus (Forssk.) C. Chr.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/pbb-fe3-5v5
title: Quercus velutina Lam.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/003-f90-8ba
title: Hovenia dulcis Thunb.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/htj-t4a-vjf
title: Orixa Thunb.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/m2w-a80-08l
title: Erechtites hieraciifolius (L.) Raf. ex DC.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/62g-zmy-sg4
title: Bupleurum chinense DC.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/elp-7hz-vdx
title: Bupleurum chinense DC.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/0tt-hmm-1zp
title: Bulbostylis barbata (Rottb.) C.B.Clarke

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/338-w07-xd6
title: Najas marina L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/4pz-2rh-y8b
title: Bupleurum chinense DC.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/edx-7cb-e3y
title: Leiotulus dasyanthus (K. Koch) Pimenov & Ostr.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/28f-6ld-pkv
title: Leiotulus dasyanthus (K. Koch) Pimenov & Ostr.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/x8t-z91-rgn
title: Potamogeton L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/xvz-phh-sa4
title: Bupleurum chinense DC.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/k3v-98z-lk9
title: Carex duriuscula subsp. rigescens (Franch.) S.Yun Liang & Y.C.Tang

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/mnh-209-zsr
title: Bulbostylis barbata (Rottb.) C.B.Clarke

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/2kz-pef-qzn
title: Chamaecrista nomame (Makino) H.Ohashi

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/5wg-rh4-wns
title: Bulbostylis barbata (Rottb.) C.B.Clarke

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/5zs-fy2-sw1
title: Bulbostylis barbata (Rottb.) C.B.Clarke

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/q86-t03-bkl
title: Callicarpa dichotoma (Lour.) K.Koch

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/kj4-x7n-xke
title: Veronica anagalloides Guss.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/bzv-9z0-rem
title: Calystegia pellita (Ledeb.) G. Don

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/hl1-7qt-phm
title: Ceratophyllum demersum L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.15468/dl.567fvy
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 "BasisOfRecord is one of (Human Observation, Machine Observation, Occurrence evidence, Observation)",
 "TaxonKey is one of (Nyctalus noctula)",
 "Country is one of (Bermuda, Canada, Greenland, Saint Pierre and Miquelon, United States of America)"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0067376-250717081556266/datasets/export for details.
DOI: 10.3535/dtk-fka-q1x
title: Carex duriuscula subsp. rigescens (Franch.) S.Yun Liang & Y.C.Tang

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/evl-q3j-w88
title: Ranunculus fluitans Lam.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/bg7-x0q-w5c
title: Didymocarpus Wall.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/gan-kxw-ryd
title: Ardisia baviensis C. M. Hu & J. E. Vidal

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/6tn-dnq-frf
title: Carex melanostachya M.Bieb. ex Willd.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/jfq-gdw-z9z
title: Ardisia symplocifolia (C. Chen) K. Larsen & C. M. Hu

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/7x0-tth-r2w
title: Astragalus aureus Willd.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/edb-4pt-zwx
title: Carex spicata Huds.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/2rm-jp9-sdh
title: Bunias orientalis L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/w8p-8pl-6t5
title: Festuca Tourn. ex L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/j16-zdl-hy5
title: Cephalaria gigantea (Ledeb.) Bobrov

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/yqy-nz4-lh0
title: Ilex verticillata (L.) A. Gray

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/1qm-tal-fs0
title: Galium circaezans Michx.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/j92-l7c-4ax
title: Castanea dentata (Marshall) Borkh.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/ljk-z2g-73g
title: Savignya parviflora subsp. longistyla (Boiss. & Reut.) Maire

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/9z4-mtl-k3k
title: Cephalaria gigantea (Ledeb.) Bobrov

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/ksh-nj7-g6v
title: Quercus velutina Lam.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/1tb-7zf-zvk
title: Carex cespitosa L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/rd8-wm3-el8
title: Limonium auriculae-ursifolium (Pourr.) Druce

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/4sn-wg5-0ky
title: Erigeron pulchellus Michx.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/dxb-6gm-ccw
title: Carex cespitosa L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/ty9-vy9-7f9
title: Celtis occidentalis L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/l5c-x4e-bva
title: Inga ingoides (Rich.) Willd.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/x68-nzl-b43
title: Anthriscus sylvestris (L.) Hoffm.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/fh3-4tc-m6q
title: Erysimum quadrangulum Desf.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/cy7-59l-gxl
title: Inga ingoides (Rich.) Willd.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/m02-h1m-a2e
title: Ranunculus L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/5zq-33g-7f4
title: Polygonum equisetiforme Sm.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/7cs-9xb-fn9
title: Erodium oxyrrhynchum M. Bieb.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/a6y-zet-4f1
title: Polygonum equisetiforme Sm.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/v0d-zh1-2zx
title: Koeleria spicata (L.) Barberá, Quintanar, Soreng & P.M.Peterson

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/905-2a8-k5n
title: Haloxylon articulatum (Moq.) Bunge

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/h7d-6gx-y11
title: Azolla Lam.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/791-zsf-er1
title: Galium L.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/ez8-bqs-srm
title: Traganum nudatum Delile

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/pk2-eb0-l17
title: Silene linearifolia Otth

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/cmv-ntf-men
title: Savignya parviflora subsp. longistyla (Boiss. & Reut.) Maire

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/6wt-lta-83g
title: Heracleum pastinacifolium K. Koch

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/yn0-fqq-bn5
title: Traganum nudatum Delile

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.15468/dl.fcnt2q
title: Occurrence Download

description: A dataset containing 18 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is one of (Human Observation, Material sample, Material citation, Specimen, Occurrence evidence, Living Specimen)",
 "Continent is Asia",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "TaxonKey is Ceroplastes ceriferus"
 ]
}

 The dataset includes 18 records from 6 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0067378-250717081556266/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.3535/13m-ps3-1hc
title: Heracleum pastinacifolium K. Koch

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/wqb-713-yaj
title: Penstemon digitalis Nutt.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.15468/dl.efz6x4
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 "BasisOfRecord is one of (Human Observation, Machine Observation, Occurrence evidence, Observation)",
 "TaxonKey is one of (Nyctalus noctula)",
 "Country is one of (Anguilla, Antigua and Barbuda, Argentina, Aruba, Bahamas, Barbados, Belize, Bolivia (Plurinational State of), Bonaire, Sint Eustatius and Saba, Bouvet Island, Brazil, Cayman Islands, Chile, Colombia, Costa Rica, Cuba, Curaçao, Dominica, Dominican Republic, Ecuador, El Salvador, Falkland Islands (Malvinas), French Guiana, Grenada, Guadeloupe, Guatemala, Guyana, Haiti, Honduras, Jamaica, Martinique, Mexico, Montserrat, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, Saint Barthélemy, Saint Kitts and Nevis, Saint Lucia, Saint Martin (French part), Saint Vincent and the Grenadines, Sint Maarten (Dutch part), South Georgia and the South Sandwich Islands, Suriname, Trinidad and Tobago, Turks and Caicos Islands, Uruguay, Venezuela (Bolivarian Republic of), Virgin Islands (British), Virgin Islands (U.S.))"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0067377-250717081556266/datasets/export for details.
DOI: 10.3535/6lk-67f-f5p
title: Asplenium delavayi (Franch.) Copel.

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.3535/scq-6pr-akn
title: Dactylorhiza incarnata subsp. incarnata

description: Digital Specimen for the physical specimen hosted at University of Graz.
DOI: 10.15468/dl.68xuf7
title: Occurrence Download

description: A dataset containing 214 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 "BasisOfRecord is one of (Human Observation, Machine Observation, Occurrence evidence, Observation)",
 "TaxonKey is one of (Nyctalus noctula)",
 "Country is one of (Afghanistan, Armenia, Azerbaijan, Bahrain, Bangladesh, Bhutan, Brunei Darussalam, Cambodia, China, Cyprus, Georgia, Hong Kong, India, Indonesia, Iran (Islamic Republic of), Iraq, Israel, Japan, Jordan, Kazakhstan, Korea (Democratic People’s Republic of), Korea, Republic of, Kuwait, Kyrgyzstan, Lao People’s Democratic Republic, Lebanon, Macao, Malaysia, Maldives, Mongolia, Myanmar, Nepal, Oman, Pakistan, Palestine, State of, Philippines, Qatar, Saudi Arabia, Singapore, Sri Lanka, Syrian Arab Republic, Tajikistan, Thailand, Timor-Leste, Türkiye, Turkmenistan, United Arab Emirates, Uzbekistan, Viet Nam, Yemen)"
 ]
}

 The dataset includes 214 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0067375-250717081556266/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.6084/m9.figshare.7658597.v1
title: Data and code for: Morphology, ecology, and biogeography of independent origins of cleaning behavior around the world

description: Code and data accompanying our 2019 manuscript submission to Integrative and Comparative Biology, entitled "Morphology, ecology, and biogeography of independent origins of cleaning behavior around the world".<br><br>From Symposium S7, entitled “Comparative Evolutionary Morphology and Biomechanics in the Era of Big Data”, presented at the annual meeting of the Society for Integrative and Comparative Biology, January 6, 2019 in Tampa, Florida, USA.<br>
DOI: 10.6084/m9.figshare.22087067.v1
title: Supplementary Material for: Clinical Significance of Persistent Hematuria Degrees in Primary IgA Nephropathy: A Propensity Score-Matched Analysis of A 10-year Follow-up Cohort

description: Abstract Introduction: The clinical significance of persistent hematuria degrees hasn't been expounded in primary IgA nephropathy (IgAN) and requires further research. Methods: From January 2003 to May 2022, a total of 684 IgAN patients with persistent hematuria were enrolled to conduct a retrospective single-center study. Patients whose hematuria degree at baseline was higher than the second tertiles of the whole were included in the high-degree hematuria cohort (Hh), and the low-degree hematuria cohort (Lh) was constructed with 1:1 matched cases from the rest according to age, gender, estimated glomerular filtration rate (eGFR) at baseline and follow-up time. Survival was determined using the Kaplan–Meier method (K-M) and generalized linear mixed-effects model (GLMM). Risk factors for survival were determined according to the Cox proportional hazards model. Results: Both the Hh and Lh consisted of 228 cases. While the demographic data and the renal function at baseline were matched, both the K-M (p=0.02) and GLMM (p=0.04) proved that the prognosis of the Hh was significantly worse than that of the Lh within 10 years of follow-up. The higher persistent hematuria degree was an independent risk factor (3.93; 95% confidence interval, 1.33 to 11.6) associated with reaching the endpoint (eGFR decreased from the baseline ≥ 30% continuously or reached end-stage renal disease [ESRD]). The Hh had a significantly higher proportion of crescent (p=0.003). The prognosis of the Hh was significantly worse than that of the Lh when accompanied by the crescent and presented an indistinct difference if the crescent was absent. Conclusion: The clinicopathologic manifestation of IgAN patients with persistent high-degree hematuria was severer and the prognosis was worse than those with persistent low-degree hematuria.
DOI: 10.6084/m9.figshare.25036688.v2
title: HUST-OBS Dataset

description: Oracle Bone Script data collected by VLRLab of HUST
DOI: 10.6084/m9.figshare.26139226.v1
title: [BRACIS 2024] Supplementary Material - Gender, race and profession biases in the dialog system ChatGPT

description: Supplementary material of the article "Gender, race and profession biases in the dialog system ChatGPT"
DOI: 10.6084/m9.figshare.26172280.v1
title: Findings of the Desk Research Analysis Exploring Research Data Governance Activities

description: The study relied on the Data Governance Activities Model proposed by Alhassan et al. (2016), which was also utilized in their subsequent study (Alhassan et al., 2018). This model grouped all data collection, analysis, and findings on RDG activities. The findings from the desk research were employed to form an initial understanding of RDG practices implemented among leading RPOs worldwide and gather background information on the topics under consideration. Given that among the study’s objectives was to gain a deeper understanding of how RDG is executed in practice, following the approach used by Alhassan et al. (2016; 2018) was essential. This groundwork enabled the creation of survey instruments designed to enhance the understanding of RDG implementation within Malaysia RPOs.
DOI: 10.6084/m9.figshare.28787798.v4
title: BSCCO - 4mm - AC Losses + v(t), i(t)

description: Experimental tests were carried out to measure the AC losses of BSCCO tapes with 4mm wide. The used experimental setup comprises a sinusoidal voltage source (Keysight AC6804B) connected to a step-down transformer, with the secondary connected to the HTS tapes. Voltage taps are soldered to both sides of the HTS tape sample. A cancellation coil is employed to align the tape’s voltage and current, thereby reducing errors in computing the active power. The voltage signal undergoes an 80-fold amplification stage in the Low Noise Amplifier (LNA) before being visualized and acquired by an oscilloscope. For each current step, a 5-period signal is acquired 20 times, from which an average 5-period signal is derived. Each measurement step is repeated five times to mitigate noise. From these tests, AC voltage-current (V-I) characteristics and total AC losses are experimentally determined. In addition to the cancelation coil method, the voltage was also measured using a Lock-in amplifier, using the current as a phase reference.HTS 1<sup>st</sup> gen. BSCCO and 2<sup>nd</sup> gen. ReBCO Tapes’ Characteristics:HTS 1<sup>st</sup> gen. BSCCO and 2<sup>nd</sup> gen. ReBCO Tapes’ CharacteristicsCharacteristicBSCCO (1<sup>st</sup> gen.)ReBCO (2<sup>nd</sup> gen.) ReBCO (2<sup>nd</sup> gen.)<i>I</i><sub><em>c</em></sub> (77K) @ dc160-180A155-175A83-85A<i>n </i>(77K) @ dc10-1330-3529-30<i>B</i><sub><em>0 </em></sub>(77K) @ dc0.1 - 0.14 T0.1 - 0.14 T0.1 - 0.14 TGeometryEllipticalThin stripThin strip<i>w</i><sub><em>sc</em></sub> (<i>w</i><sub><em>sc</em></sub> = 2a)3.5 mm4.01 mm2.04 mm<i>h</i><sub><em>sc</em></sub> (<i>h</i><sub><em>sc</em></sub> = 2b)0.12 mm0.095 mm0.095 mm<i>l</i><sub><em>sc </em></sub>(length)120 mm105 mm95 mmManufacturerNexans SuperConductorsBSCCO-2212 C01-207SuperPowerSCS4050-APSuperPowerSCS2050-APTo use this data, please cite:https://iopscience.iop.org/article/10.1088/1361-6668/ad1f7c/meta
DOI: 10.6084/m9.figshare.12763940.v1
title: Supplementary Material for: Recommendations for Diagnosis and Treatment of Pseudohypoparathyroidism and Related Disorders: An Updated Practical Tool for Physicians and Patients

description: Patients affected by pseudohypoparathyroidism (PHP) or related disorders are characterized by physical findings that may include brachydactyly, a short stature, a stocky build, early-onset obesity, ectopic ossifications, and neurodevelopmental deficits, as well as hormonal resistance most prominently to parathyroid hormone (PTH). In addition to these alterations, patients may develop other hormonal resistances, leading to overt or subclinical hypothyroidism, hypogonadism and growth hormone (GH) deficiency, impaired growth without measurable evidence for hormonal abnormalities, type 2 diabetes, and skeletal issues with potentially severe limitation of mobility. PHP and related disorders are primarily clinical diagnoses. Given the variability of the clinical, radiological, and biochemical presentation, establishment of the molecular diagnosis is of critical importance for patients. It facilitates management, including prevention of complications, screening and treatment of endocrine deficits, supportive measures, and appropriate genetic counselling. Based on the first international consensus statement for these disorders, this article provides an updated and ready-to-use tool to help physicians and patients outlining relevant interventions and their timing. A life-long coordinated and multidisciplinary approach is recommended, starting as far as possible in early infancy and continuing throughout adulthood with an appropriate and timely transition from pediatric to adult care.