cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.29430363
title: Development and validation of The CyberAbility Scale: a screening tool of cyberscam risk for people with and without acquired brain injury

description: Cyberscams represent a significant global issue to which people with acquired brain injury (ABI) may be particularly vulnerable. Due to a lack of existing measures, <i>The CyberAbility Scale</i> was developed to measure cyberscam vulnerability for people with and without ABI. This study aimed to refine and validate <i>The CyberAbility Scale.</i> <i>The CyberAbility Scale</i> was refined through assessment of scale response distribution, inter-item and item-total correlations, and exploratory factor analysis. Confirmatory and multiple-group confirmatory factor analyses and psychometric properties were evaluated. Participants with (<i>n</i> = 149) and without (<i>n</i> = 153) ABI completed a longer version of the scale, with 24 relevant and functional items retained. A four-factor model of risk included Past Scam Experience, Scam Knowledge, Trusted Supports, and Seeking Connection Online, alongside the ability to identify scams. The scale had appropriate model fit, internal consistency, test-retest reliability, and concurrent and construct validity. Overall, <i>The CyberAbility Scale</i> is a brief, valid tool to screen online vulnerability for persons with and without ABI. Cyberscams are a serious global issue that impacts vulnerable groups such as people with acquired brain injury (ABI).<i>The CyberAbility Scale</i> includes 24 self-rated questions to assess cybersafety for persons with and without ABI.Initial evidence shows that <i>The CyberAbility Scale</i> is consistent and accurate.<i>The CyberAbility Scale</i> can be used by people with ABI, clinicians, and researchers to screen for and identify areas of online risk. Cyberscams are a serious global issue that impacts vulnerable groups such as people with acquired brain injury (ABI). <i>The CyberAbility Scale</i> includes 24 self-rated questions to assess cybersafety for persons with and without ABI. Initial evidence shows that <i>The CyberAbility Scale</i> is consistent and accurate. <i>The CyberAbility Scale</i> can be used by people with ABI, clinicians, and researchers to screen for and identify areas of online risk.
DOI: 10.6084/m9.figshare.29430363.v1
title: Development and validation of The CyberAbility Scale: a screening tool of cyberscam risk for people with and without acquired brain injury

description: Cyberscams represent a significant global issue to which people with acquired brain injury (ABI) may be particularly vulnerable. Due to a lack of existing measures, <i>The CyberAbility Scale</i> was developed to measure cyberscam vulnerability for people with and without ABI. This study aimed to refine and validate <i>The CyberAbility Scale.</i> <i>The CyberAbility Scale</i> was refined through assessment of scale response distribution, inter-item and item-total correlations, and exploratory factor analysis. Confirmatory and multiple-group confirmatory factor analyses and psychometric properties were evaluated. Participants with (<i>n</i> = 149) and without (<i>n</i> = 153) ABI completed a longer version of the scale, with 24 relevant and functional items retained. A four-factor model of risk included Past Scam Experience, Scam Knowledge, Trusted Supports, and Seeking Connection Online, alongside the ability to identify scams. The scale had appropriate model fit, internal consistency, test-retest reliability, and concurrent and construct validity. Overall, <i>The CyberAbility Scale</i> is a brief, valid tool to screen online vulnerability for persons with and without ABI. Cyberscams are a serious global issue that impacts vulnerable groups such as people with acquired brain injury (ABI).<i>The CyberAbility Scale</i> includes 24 self-rated questions to assess cybersafety for persons with and without ABI.Initial evidence shows that <i>The CyberAbility Scale</i> is consistent and accurate.<i>The CyberAbility Scale</i> can be used by people with ABI, clinicians, and researchers to screen for and identify areas of online risk. Cyberscams are a serious global issue that impacts vulnerable groups such as people with acquired brain injury (ABI). <i>The CyberAbility Scale</i> includes 24 self-rated questions to assess cybersafety for persons with and without ABI. Initial evidence shows that <i>The CyberAbility Scale</i> is consistent and accurate. <i>The CyberAbility Scale</i> can be used by people with ABI, clinicians, and researchers to screen for and identify areas of online risk.
DOI: 10.6084/m9.figshare.30117900
title: Parental stress and its correlates among parents of children with physical disabilities: examining the association with perceived social support

description: Parenting a child with a disability can be overwhelming, can increase family conflicts, and reduce quality of life. Limited resources and support intensify these challenges. We aimed to assess the extent of parental stress, social support, and their correlates among parents of children with physical disabilities (PDs) in Nepal. A cross-sectional analytical study was conducted among 280 parents at the Hospital and Rehabilitation Center for Disabled Children (HRDC) in Nepal. Face-to-face interviews were conducted using the parental stress scale (PSS) and the multidimensional scale for perceived social support (MSPSS). The results revealed a negative correlation between parental stress and social support. Fathers, high-income families (&gt;25000 NPR), or those having children with musculoskeletal disabilities, experienced less parental stress. Parents with a primary education faced high parental stress. Parents in nuclear families or with primary education were less likely to perceive high social support. Fathers, those with higher income or education, or those caring for children with musculoskeletal disabilities, suffered less parental stress. With the increased perception of social support, the parental stress decreased. Support systems should be expanded and strengthened, targeting mothers, nuclear families, and parents with low education and income. The majority of parents of children with physical disabilities in Nepal suffer moderate levels of parental stress.Rehabilitation programs should incorporate stress management interventions such as parent counseling, relaxation exercises, workshops, and support networks.It is recommended to conduct workshops and establish parent-support groups, providing opportunities to access resources, connections, and shared experiences.Parent-centered support interventions should be integrated with the treatment and rehabilitation of children with physical disabilities. The majority of parents of children with physical disabilities in Nepal suffer moderate levels of parental stress. Rehabilitation programs should incorporate stress management interventions such as parent counseling, relaxation exercises, workshops, and support networks. It is recommended to conduct workshops and establish parent-support groups, providing opportunities to access resources, connections, and shared experiences. Parent-centered support interventions should be integrated with the treatment and rehabilitation of children with physical disabilities.
DOI: 10.6084/m9.figshare.30117900.v1
title: Parental stress and its correlates among parents of children with physical disabilities: examining the association with perceived social support

description: Parenting a child with a disability can be overwhelming, can increase family conflicts, and reduce quality of life. Limited resources and support intensify these challenges. We aimed to assess the extent of parental stress, social support, and their correlates among parents of children with physical disabilities (PDs) in Nepal. A cross-sectional analytical study was conducted among 280 parents at the Hospital and Rehabilitation Center for Disabled Children (HRDC) in Nepal. Face-to-face interviews were conducted using the parental stress scale (PSS) and the multidimensional scale for perceived social support (MSPSS). The results revealed a negative correlation between parental stress and social support. Fathers, high-income families (&gt;25000 NPR), or those having children with musculoskeletal disabilities, experienced less parental stress. Parents with a primary education faced high parental stress. Parents in nuclear families or with primary education were less likely to perceive high social support. Fathers, those with higher income or education, or those caring for children with musculoskeletal disabilities, suffered less parental stress. With the increased perception of social support, the parental stress decreased. Support systems should be expanded and strengthened, targeting mothers, nuclear families, and parents with low education and income. The majority of parents of children with physical disabilities in Nepal suffer moderate levels of parental stress.Rehabilitation programs should incorporate stress management interventions such as parent counseling, relaxation exercises, workshops, and support networks.It is recommended to conduct workshops and establish parent-support groups, providing opportunities to access resources, connections, and shared experiences.Parent-centered support interventions should be integrated with the treatment and rehabilitation of children with physical disabilities. The majority of parents of children with physical disabilities in Nepal suffer moderate levels of parental stress. Rehabilitation programs should incorporate stress management interventions such as parent counseling, relaxation exercises, workshops, and support networks. It is recommended to conduct workshops and establish parent-support groups, providing opportunities to access resources, connections, and shared experiences. Parent-centered support interventions should be integrated with the treatment and rehabilitation of children with physical disabilities.
DOI: 10.6084/m9.figshare.29382143
title: Clinician perspectives on implementing the C-BiLLT-CAN for non-speaking children with cerebral palsy: a focus group study

description: Currently available methods may not reliably assess language comprehension in children with significant speech and motor limitations. The Computer-Based instrument for Low motor Language Testing (C-BiLLT) is a standardized assessment designed for children with cerebral palsy that allows them to participate using various alternative response methods. This study aimed to understand speech-language pathologists’ and occupational therapists’ perceived facilitators and barriers to implementing the Canadian C-BiLLT (C-BiLLT-CAN). Six focus groups were conducted with 30 clinicians. Transcripts were analyzed using a semi-deductive thematic analysis. The Consolidated Framework for Implementation Research was used to guide the identification of clinicians’ perceived facilitators and barriers. Clinicians unanimously reported interest in implementing the C-BiLLT-CAN. Facilitators and barriers were classified into five primary themes. Key facilitators related to the test’s evidence-based design, standardized nature, and potential flexibility. Key barriers related to Internet connectivity, the need to expand customization and response options to meet a greater breadth of needs, privacy policies, lack of resources, and perceived costs associated with equipment, training, and time. Many perceived barriers aligned with previous European and Canadian C-BiLLT implementation research. However, findings elucidated unique considerations that will inform adaptations to the C-BiLLT-CAN and development of training/educational materials. Clinicians unanimously expressed interest in implementing the C-BiLLT-CAN in their clinical practice with children with limited functional speech and motor skillsFacilitators to implementing the C-BiLLT-CAN related to its evidence-based design, standardized nature, and potential flexibilityKey barriers related to Internet connectivity, the need to expand customization and response options to meet a greater breadth of needs, privacy policies, lack of resources, and potential costsFindings will inform an adapted C-BiLLT-CAN to facilitate clinical implementation, as well as training and educational materials to support implementation Clinicians unanimously expressed interest in implementing the C-BiLLT-CAN in their clinical practice with children with limited functional speech and motor skills Facilitators to implementing the C-BiLLT-CAN related to its evidence-based design, standardized nature, and potential flexibility Key barriers related to Internet connectivity, the need to expand customization and response options to meet a greater breadth of needs, privacy policies, lack of resources, and potential costs Findings will inform an adapted C-BiLLT-CAN to facilitate clinical implementation, as well as training and educational materials to support implementation
DOI: 10.6084/m9.figshare.29382143.v1
title: Clinician perspectives on implementing the C-BiLLT-CAN for non-speaking children with cerebral palsy: a focus group study

description: Currently available methods may not reliably assess language comprehension in children with significant speech and motor limitations. The Computer-Based instrument for Low motor Language Testing (C-BiLLT) is a standardized assessment designed for children with cerebral palsy that allows them to participate using various alternative response methods. This study aimed to understand speech-language pathologists’ and occupational therapists’ perceived facilitators and barriers to implementing the Canadian C-BiLLT (C-BiLLT-CAN). Six focus groups were conducted with 30 clinicians. Transcripts were analyzed using a semi-deductive thematic analysis. The Consolidated Framework for Implementation Research was used to guide the identification of clinicians’ perceived facilitators and barriers. Clinicians unanimously reported interest in implementing the C-BiLLT-CAN. Facilitators and barriers were classified into five primary themes. Key facilitators related to the test’s evidence-based design, standardized nature, and potential flexibility. Key barriers related to Internet connectivity, the need to expand customization and response options to meet a greater breadth of needs, privacy policies, lack of resources, and perceived costs associated with equipment, training, and time. Many perceived barriers aligned with previous European and Canadian C-BiLLT implementation research. However, findings elucidated unique considerations that will inform adaptations to the C-BiLLT-CAN and development of training/educational materials. Clinicians unanimously expressed interest in implementing the C-BiLLT-CAN in their clinical practice with children with limited functional speech and motor skillsFacilitators to implementing the C-BiLLT-CAN related to its evidence-based design, standardized nature, and potential flexibilityKey barriers related to Internet connectivity, the need to expand customization and response options to meet a greater breadth of needs, privacy policies, lack of resources, and potential costsFindings will inform an adapted C-BiLLT-CAN to facilitate clinical implementation, as well as training and educational materials to support implementation Clinicians unanimously expressed interest in implementing the C-BiLLT-CAN in their clinical practice with children with limited functional speech and motor skills Facilitators to implementing the C-BiLLT-CAN related to its evidence-based design, standardized nature, and potential flexibility Key barriers related to Internet connectivity, the need to expand customization and response options to meet a greater breadth of needs, privacy policies, lack of resources, and potential costs Findings will inform an adapted C-BiLLT-CAN to facilitate clinical implementation, as well as training and educational materials to support implementation
DOI: 10.6084/m9.figshare.29973865
title: Mobility development of children, adolescents and young adults with cerebral palsy in high-, and low-/middle-income countries: a scoping review

description: To review research on mobility development in children, adolescents and young adults with cerebral palsy (CP). This scoping review included longitudinal studies on mobility development of children and young people (19-21 years) with CP. Findings were reported considering mobility capacity and performance of individuals with CP, observed in low- and middle- or high-income countries. The results were analyzed by two physicians and a mother of a child with CP, using Patient and Public Involvement (PPI) strategy. Eleven studies included 3,047 individuals with CP. Lower Gross Motor Function Classification Measure (GMFCS) levels were associated with better mobility capacity and performance. Additionally, the lower the GMFCS level, the more stability is achieved at older ages. Ten studies in high-income countries showed that mobility capacity stabilized before performance. The only study conducted in a low-income country showed a decline in mobility capacity in early adolescence. The development of mobility capacity and performance may be related to the presence of different contextual factors in socioeconomically diverse countries. The findings of this review are important for sharing, discussing, and managing mobility development patterns with family members. Mobility capacity stability occurs before mobility performanceChildren with lower levels of GMFCS (higher gross motor function) show stability in mobility development later than children with higher levels of GMFCS.Longitudinal data are scarce in low- and middle-income countries, and both personal and environmental factors should be considered when analyzing the prognosis. Mobility capacity stability occurs before mobility performance Children with lower levels of GMFCS (higher gross motor function) show stability in mobility development later than children with higher levels of GMFCS. Longitudinal data are scarce in low- and middle-income countries, and both personal and environmental factors should be considered when analyzing the prognosis.
DOI: 10.6084/m9.figshare.29973865.v1
title: Mobility development of children, adolescents and young adults with cerebral palsy in high-, and low-/middle-income countries: a scoping review

description: To review research on mobility development in children, adolescents and young adults with cerebral palsy (CP). This scoping review included longitudinal studies on mobility development of children and young people (19-21 years) with CP. Findings were reported considering mobility capacity and performance of individuals with CP, observed in low- and middle- or high-income countries. The results were analyzed by two physicians and a mother of a child with CP, using Patient and Public Involvement (PPI) strategy. Eleven studies included 3,047 individuals with CP. Lower Gross Motor Function Classification Measure (GMFCS) levels were associated with better mobility capacity and performance. Additionally, the lower the GMFCS level, the more stability is achieved at older ages. Ten studies in high-income countries showed that mobility capacity stabilized before performance. The only study conducted in a low-income country showed a decline in mobility capacity in early adolescence. The development of mobility capacity and performance may be related to the presence of different contextual factors in socioeconomically diverse countries. The findings of this review are important for sharing, discussing, and managing mobility development patterns with family members. Mobility capacity stability occurs before mobility performanceChildren with lower levels of GMFCS (higher gross motor function) show stability in mobility development later than children with higher levels of GMFCS.Longitudinal data are scarce in low- and middle-income countries, and both personal and environmental factors should be considered when analyzing the prognosis. Mobility capacity stability occurs before mobility performance Children with lower levels of GMFCS (higher gross motor function) show stability in mobility development later than children with higher levels of GMFCS. Longitudinal data are scarce in low- and middle-income countries, and both personal and environmental factors should be considered when analyzing the prognosis.
DOI: 10.6084/m9.figshare.29545301
title: Medical complications after acquired pediatric injury to the Central nervous system: a scoping review

description: This scoping review aims to give an overview of the literature describing medical complications in children from 2 to 17 years, arising in the subacute and chronic phases after pediatric CNS injury, and to identify knowledge gaps on the subject. Our scoping review of publications in databases Embase and Medline follows the guidelines of Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA). We identified 11,497 articles published from 2000 to 2024. Initial screening reduced these to 1,220, which were reviewed in full-text, resulting in inclusion of 373 publications. Acquired brain injury was the most common CNS injury, with neoplastic etiology as the dominating subgroup. The majority of the articles were retrospective studies and case studies. Most publications reported one complication, and comprehensive approaches were scarce. Epilepsy and endocrine disturbances were the most frequently reported complications in brain injury patients, and scoliosis and pressure ulcers predominated in the spinal cord injury group. Despite a broad literature on the current topic, more longitudinal studies are needed, especially studies with a comprehensive approach to the medical complications that can occur after the acute phase in children with CNS injury. Extensive literature on medical complications after acquired pediatric injury to the central nervous system describes a wide range of complications.Rehabilitation clinicians can expect to face a large variety of medical complications that may impact the rehabilitation process.As the literature on comprehensive approaches to medical complications after the acute phase is scarce, clinicians must mainly rely on clinical experience or literature on adults. Extensive literature on medical complications after acquired pediatric injury to the central nervous system describes a wide range of complications. Rehabilitation clinicians can expect to face a large variety of medical complications that may impact the rehabilitation process. As the literature on comprehensive approaches to medical complications after the acute phase is scarce, clinicians must mainly rely on clinical experience or literature on adults.