cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.5281/zenodo.5201823
title: Data for Bernabeu-Herrero et al, Mutations causing premature termination codons discriminate and generate cellular and clinical variability in HHT

description: This dataset is for the 2024 manuscript: 

Bernabéu-Herrero ME, Patel D, Bielowka A, Zhu J, Jain K, Mackay IS, Chaves Guerrero P, Emanuelli G, Jovine L, Noseda M, Marciniak SJ, Aldred MA, Shovlin CL. 

Mutations causing premature termination codons discriminate and generate cellular and clinical variability in HHT. 

Blood. 2024 May 30;143(22):2314-2331. 

doi: 10.1182/blood.2023021777. PMID: 38457357; PMCID: PMC11181359.

It was originally uploaded in 2021 ahead of an earlier manuscript submission- see https://www.biorxiv.org/content/10.1101/2021.12.05.471269v1
description: The project received specific funding from the U.S. Department of Defense Discovery Award W81XWH-16-1-0607; the National Institute for Health Research Imperial Biomedical Research Centre;  and Imperial College Healthcare NHS Trust.
DOI: 10.15468/dl.d4v6hx
title: Occurrence Download

description: A dataset containing 38774 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Country is one of (Switzerland, France, Austria, Italy)",
 "TaxonKey is Lynx lynx (Linnaeus, 1758)"
 ]
}

 The dataset includes 38774 records from 120 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032624-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.csu24n
title: Occurrence Download

description: A dataset containing 773 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Utricularia reniformis A.St.-Hil."
 ]
}

 The dataset includes 773 records from 100 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032626-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.uzkaux
title: Occurrence Download

description: A dataset containing 2 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is one of (Primulina demissa (Hance) Mich.Möller & A.Weber)"
 ]
}

 The dataset includes 2 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032627-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.17026/dans-xg2-aear
title: Interview Thomas Rentmeister about polyester high-gloss sculptures

description: Interview with artist Thomas Rentmeister about his highgloss sculptures focusing on the making process, materials and techniques, and intention of the work, including desired appearance. Against this background, the concept of damage and conservation is discussed.
DOI: 10.71687/avid.ksa.82
title: HD Winlog (2010-2022)

description: Formålet er at have en journal til dokumentation af behandlingen af børn med svær overvægt.

Indhold:
Børn i alderen 2-16 år med svær overvægt bosiddende i Københavns Kommune.
DOI: 10.15468/dl.xq7hma
title: Occurrence Download

description: A dataset containing 16 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is one of (Oreocharis flavida Merr.)"
 ]
}

 The dataset includes 16 records from 4 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032630-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.hvhfzv
title: Occurrence Download

description: A dataset containing 37103 species occurrences available in GBIF matching the query:
{
 "and" : [
 "OccurrenceStatus is Present",
 "TaxonKey is Medicago ×varia Martyn"
 ]
}

 The dataset includes 37103 records from 413 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032625-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.71687/avid.ksa.5
title: Stadsarkivets Søgejournal (1985-2003)

description: Systemet er søgenøgle til Københavns Stadsarkivs papirsager fra 1985 til 2003. I 2004 overgår man til eDoc hvorefter journalen lukkes.

Indhold:
En journaltabel med overordnede beskrivelser af alle administrative papirsager for perioden, samt journalplaner for henholdsvis 1985-1994 og 1995-2003. Til at understøtte journalplanerne findes et stikordsregister med ukontrollerede emneord. Herudover er der et navne- og adresseregister over personer som er tilknyttet de enkelte sager, samt en tabel med sager der specifikt retter sig mod institutioner.
DOI: 10.15468/dl.eddu86
title: Occurrence Download

description: A dataset listing the 4285 species recorded in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-6.3353 43.04617,-6.33316 43.04649,-6.32987 43.04297,-6.32945 43.0375,-6.32649 43.03133,-6.31368 43.0313,-6.31131 43.02888,-6.29517 43.02691,-6.29035 43.03442,-6.28519 43.03637,-6.27359 43.02619,-6.27017 43.0255,-6.26903 43.02147,-6.2637 43.01608,-6.24272 43.0135,-6.23887 43.01456,-6.22684 43.00905,-6.22984 43.02303,-6.22568 43.02364,-6.22632 43.02607,-6.22231 43.02942,-6.22273 43.03523,-6.21897 43.03936,-6.21897 43.04394,-6.21556 43.0472,-6.19507 43.0427,-6.19082 43.04463,-6.18765 43.0493,-6.1784 43.0478,-6.17111 43.04302,-6.16741 43.04245,-6.16259 43.03301,-6.15932 43.03555,-6.14841 43.03319,-6.14683 43.03009,-6.13951 43.02499,-6.13667 43.02099,-6.12038 43.02426,-6.11253 43.02944,-6.10613 43.02937,-6.1014 43.03192,-6.0969 43.03064,-6.09506 43.03453,-6.08982 43.03815,-6.09004 43.04338,-6.095 43.04888,-6.09031 43.05822,-6.09185 43.06692,-6.08396 43.06991,-6.08185 43.076,-6.09084 43.07972,-6.09868 43.08691,-6.12331 43.08937,-6.1288 43.09592,-6.13686 43.10089,-6.13729 43.1053,-6.13888 43.1065,-6.14491 43.10608,-6.15502 43.10875,-6.17757 43.11792,-6.1817 43.1161,-6.18616 43.11758,-6.19355 43.1134,-6.2094 43.12237,-6.20894 43.1255,-6.20211 43.1259,-6.19127 43.12926,-6.19016 43.13342,-6.19494 43.13729,-6.19469 43.14366,-6.20047 43.14766,-6.19924 43.1504,-6.20437 43.15434,-6.20625 43.15722,-6.20531 43.15917,-6.21752 43.16661,-6.21645 43.17216,-6.21334 43.17228,-6.2112 43.17459,-6.21569 43.17623,-6.21571 43.18494,-6.22637 43.18181,-6.22802 43.18633,-6.23109 43.18704,-6.23563 43.1937,-6.2402 43.19682,-6.2452 43.19368,-6.2511 43.19289,-6.25422 43.19018,-6.2667 43.1866,-6.26703 43.18139,-6.27721 43.17356,-6.29533 43.17644,-6.302 43.17555,-6.32693 43.18417,-6.33608 43.18553,-6.34088 43.1898,-6.34414 43.18287,-6.34941 43.17963,-6.35422 43.16274,-6.35902 43.16035,-6.35904 43.15545,-6.35576 43.15086,-6.36606 43.14997,-6.37235 43.14774,-6.37394 43.1463,-6.37694 43.13514,-6.3748 43.13154,-6.37663 43.12797,-6.37222 43.11848,-6.3739 43.11609,-6.37316 43.10889,-6.36595 43.10302,-6.36259 43.10268,-6.36587 43.09689,-6.36532 43.09305,-6.36709 43.08922,-6.36364 43.08259,-6.36641 43.07731,-6.36177 43.07432,-6.35817 43.06854,-6.35979 43.06389,-6.35882 43.05801,-6.35089 43.0531,-6.34893 43.05001,-6.34072 43.04918,-6.33822 43.0459,-6.3353 43.04617))",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset's 4285 records were derived from 116 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032589-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.xngxhy
title: Occurrence Download

description: A dataset containing 321 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Utricularia humboldtii M.R.Schomb."
 ]
}

 The dataset includes 321 records from 32 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032631-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.m8b5an
title: Occurrence Download

description: A dataset containing 2 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is one of (Primulina depressa (Hook.fil.) Mich.Möller & A.Weber)"
 ]
}

 The dataset includes 2 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032632-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.td22se
title: Occurrence Download

description: A dataset containing 12294 species occurrences available in GBIF matching the query:
{
 "and" : [
 "OccurrenceStatus is Present",
 "TaxonKey is Medicago arborea L."
 ]
}

 The dataset includes 12294 records from 247 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032629-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.5284/1124403
title: Data from a Archaeological Recording at Streethay, Lichfield, Staffordshire, 2018-2023 (HS2 Phase One)

description: This collection comprises of reports, site photographs, spreadsheets, GIS data, site records and a database from an archaeological recording carried out by Connect Archaeology at Streethay, Lichfield, Staffordshire between July and October 2018.
DOI: 10.71687/avid.ksa.6
title: SEEwin (2007-2013)

description: SEEwin er et administrativt system specielt beregnet til at håndterede synshandicappede klienter.

Indhold:
Registrering af synshandicappede klienter på bla. følgende parametre: Stamoplysninger, aktiviteter, hjælpemidler, lup oplysninger, optik oplysninger, ADL oplysninger, mobilitet, skole og øjenlæge journal.
DOI: 10.71687/avid.ksa.7
title: Cirius 2000 (1996-2004)

description: Kultur og Fritidsforvaltningens elektroniske journalsystem til registrering af papirsager

Indhold
Registrering og metadata til papirsager
DOI: 10.71687/avid.ksa.8
title: KMD Structura Byggesag (1989-2012)

description: Understøtte kommuners håndtering af byggesagsbehandling

Indhold:
Det centrale i KMD Structura Byggesag er registrering af sagen. Til denne kan der være knyttet matrikel, ejendom, bygning og enhed, som findes i BBR og ESR. Endvidere er der en række interessenter, bl.a. ejer, ansøger, gebyrbetaler og øvrige.
DOI: 10.15468/dl.jxjmwf
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is one of (Oreocharis flavovirens Xin Hong)"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032633-241107131044228/datasets/export for details.
DOI: 10.71687/avid.ksa.9
title: VIIS Bedrag (1998-2010)

description: Statistik over uberettigede modtagne ydelser

Indhold:
Statistik over uberettigede modtagne ydelser
DOI: 10.15468/dl.gev3pu
title: Occurrence Download

description: A dataset containing 54 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Utricularia chiribiquetensis A.Fernández"
 ]
}

 The dataset includes 54 records from 16 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032634-241107131044228/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.vknhsx
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasGeospatialIssue is false",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is one of (Fossil, Living Specimen)"
 ]
 }
 },
 "TaxonKey is one of (Primulina dichroantha F.Wen, Y.G.Wei & S.B.Zhou)"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0032635-241107131044228/datasets/export for details.
DOI: 10.71687/avid.ksa.10
title: Cirius 2000 (1997-2005)

description: Journalisering

Indhold:
Journalsager
DOI: 10.17026/dans-22p-x9ge
title: TRAILS T4 Clinical cohort
title: TRAILS T4CC

description: The overall objective of the study is to contribute to the understanding of the determinants of adolescents’ mental (ill-)health and social development during adolescence and young adulthood, as well as the mechanisms underlying the associations between determinants and these outcomes. A particular aim is to focus on the interplay between individual characteristics and environmental factors. In addition to this major objective, a number of participants investigate the course and determinants of somatic (ill-)health, covering topics such as overweight, lung disease, sports, physical activity, and more.
DOI: 10.17026/dans-26q-a9nn
title: BUZZ-2: Bekostigen Uitkomsten Zorg van de Zwangere

description: Measuring outcomes, let alone using outcomes for reimbursement, is still hardly done in maternity care. While outcome-based maternity care actually offers many opportunities to deliver the most appropriate care to pregnant women and to achieve further quality improvement. Annature Geboortezorg is an integrated maternity care organization that wants to provide the best care for mother and child, based on the vision that through integrated organization and outcome-based maternity care overarching quality gains can be realized. Annature is ready to take the step toward outcome-based reimbursement; it already uses bundled payments, it works in an integrated electronic medical record, according to integral care pathways, and clinical and patient-reported outcomes and experiences are currently available. This project aims to develop a model for outcome-based organization and reimbursement of maternity care. We want to design this model in Annature Geboortezorg on the basis of two interventions for which we make a contracting agreement for outcome-based payment with CZ. These two interventions were developed, analyzed and evaluated with an expert panel using action research in the course of this project.
DOI: 10.17026/dans-x2a-gqne
title: A stepped-wedge cluster randomised trial to evaluate the impact of a digital antimicrobial stewardship smartphone application

description: In this study the impact of an antimicrobial stewardship smartphone application on antimicrobial prescribing by physicians in a hospital was evaluated. The data focuses on outcome on the patient level such as date of admission and discharge, antimicrobial(s) prescribed, date and time of prescription, route of prescription, if the prescribed antimicrobial was in accordance with local guidelines.
DOI: 10.17026/dans-x5n-6x8s
title: Shared Decision Making and the use of different types of outcome-information in chronic invalidating diseases. Multiple Sclerosis as case example

description: This research project investigates how Shared Decision Making is practiced in the field of care for Multipele Scleroris (MS) and healthcare professionals' use of different types of outcome-information in this process. MS is used as a case axempla for chronis invalidating diseased more generally. The reserach project has a qualittaive nature, consisting of an analysis of clinical encounters between healthcare professionals and patients with MS and additional in-depth interviews with both patients and professionals. 

The qualitative data collected in the project were transcribed literally. The data can be made available by the project leader (Olga Damman) on reasonable request.
DOI: 10.17026/dans-xa4-3vxy
title: Public Perception of Water Quality in the Scheldt River Basin

description: Dataset supporting the paper about 'Public Perception of Water Quality in the Scheldt River Basin'
DOI: 10.17026/dans-xax-8fsv
title: TRAILS T5 Clinical cohort
title: TRAILS T5CC

description: The overall objective of the study is to contribute to the understanding of the determinants of adolescents’ mental (ill-)health and social development during adolescence and young adulthood, as well as the mechanisms underlying the associations between determinants and these outcomes. A particular aim is to focus on the interplay between individual characteristics and environmental factors. In addition to this major objective, a number of participants investigate the course and determinants of somatic (ill-)health, covering topics such as overweight, lung disease, sports, physical activity, and more.
DOI: 10.17026/dans-xbf-8h6v
title: PEPTALK
title: Persoonsgerichte POHGGZ Therapie bij Aanhoudende Lichamelijke Klachten

description: Begeleiding van ALK patiënten door de POHGGZ in de huisartsenpraktijk: een praktische handreiking voor huisarts en POHGGZ
DOI: 10.17026/dans-xe8-dgrf
title: Tracking Adolescents' Individual Lives Survey ( TRAILS ) T4 Clinical Cohort
title: Tracking Adolescents' Individual Lives Survey ( TRAILS ) T4 Clinical Cohort

description: The overall objective of the study is to contribute to the understanding of the determinants of adolescents’ mental (ill-)health and social development during adolescence and young adulthood, as well as the mechanisms underlying the associations between determinants and these outcomes. A particular aim is to focus on the interplay between individual characteristics and environmental factors. In addition to this major objective, a number of participants investigate the course and determinants of somatic (ill-)health, covering topics such as overweight, lung disease, sports, physical activity, and more.
DOI: 10.17026/dans-xqr-tgza
title: Zoonoses in the night
title: Zoonoses in de nacht

description: Rationale: The emergence of infectious diseases such as Ebola viral disease, Zika virus disease, and Middle East respiratory syndrome (MERS) is an important public health problem. While the risk of such emergence events in developed countries like the Netherlands is small, both public concern and potential health and economic consequences are large. The majority of (newly) emerging diseases come from wildlife, either directly or via intermediate hosts.
Objective: To increase our knowledge about bats as a potential source of zoonotic viruses in the Netherlands, and to support evidence-based development and evaluation of prevention and management tools against (in)direct virus transmission from bats to humans. 
We have three research questions to reach this objective:
1. What is the range of viruses present in prioritized bat species, and how does this vary in time, place, and breeding cycle?
2. What is the evidence for transmission of key viruses from bats to humans and cats (as intermediate hosts)?
3. What is the level of contact between bats and people and what is their risk perception and knowledge of bats?
DOI: 10.17026/dans-xxd-kkp8
title: Tracking Adolescents' Individual Lives Survey ( TRAILS ) T6 Population Cohort
title: TRAILS T6

description: The overall objective of the study is to contribute to the understanding of the determinants of adolescents’ mental (ill-)health and social development during adolescence and young adulthood, as well as the mechanisms underlying the associations between determinants and these outcomes. A particular aim is to focus on the interplay between individual characteristics and environmental factors. In addition to this major objective, a number of participants investigate the course and determinants of somatic (ill-)health, covering topics such as overweight, lung disease, sports, physical activity, and more.
DOI: 10.17026/dans-zdv-gzsu
title: Shared Decision Making in Integrated Maternity Care
title: Systematic development of health literacy sensitive strategies for professionals and clients

description: While integrated maternity care increasingly aims at shared decision-making, it seems that clients with low health literacy do not optimally benefit. Low health literacy is a barrier in communication with health professionals, in obtaining and understanding information on options, and in evaluating the importance of pros and cons. This project aims to systematically develop and evaluate strategies to improve shared decision-making in integrated maternity care. The project consists of needs assessments among clients and professionals, and the development and evaluation of strategies.
DOI: 10.17026/dans-zjp-f6v7
title: Tracking Adolescents' Individual Lives Survey ( TRAILS ) T5 Clinical Cohort
title: Tracking Adolescents' Individual Lives Survey ( TRAILS ) T5 Clinical Cohort

description: The overall objective of the study is to contribute to the understanding of the determinants of adolescents’ mental (ill-)health and social development during adolescence and young adulthood, as well as the mechanisms underlying the associations between determinants and these outcomes. A particular aim is to focus on the interplay between individual characteristics and environmental factors. In addition to this major objective, a number of participants investigate the course and determinants of somatic (ill-)health, covering topics such as overweight, lung disease, sports, physical activity, and more.
DOI: 10.17026/dans-zkf-b9vg
title: PACS: Pediatric Analgesia after Cardiac SUrgery
title: Intermittent intravenous paracetamol versus continuous morphine in children younger than three years undergoing cardiothoracic surgery: a multi-center randomized controlled trial.

description: This is a a multi-center randomized controlled trial in children aged 0-36 months after cardiac surgery.
.Morphine is worldwide the analgesic of first choice after cardiac surgery in children. Morphine has
unwanted hemodynamic and respiratory side effects. Therefore, post–cardiac surgery patients may potentially
benefit from a non-opioid drug for pain relief. 
The aim of the study is to test the hypothesis that intermittent IV paracetamol administration in children after cardiac surgery will result in a reduction of at least 30% of the cumulative morphine requirement in the first 48 hours. 
This is a prospective, multi-center, randomized controlled trial at four level-3 pediatric intensive care units
(ICUs) in the Netherlands and Belgium. Children who are 0–36 months old are randomly assigned to
receive either intermittent IV paracetamol or continuous IV morphine up to 48 h post-operatively. Morphine
will be available as rescue medication for both groups. Validated pain and sedation assessment tools will be
used to monitor patients. The sample size (n = 208, 104 per arm) was calculated in order to detect a 30%
reduction in morphine dose; two-sided significance level was 5% and power was 95%.