cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.28023197.v1
title: Nutritional intake in people who have undergone a major dysvascular lower limb amputation: a qualitative study on perceptions, experiences, barriers and facilitators

description: To describe perceptions and experiences of people who have undergone a major dysvascular lower limb amputation (LLA) regarding nutrition, and to identify perceived barriers and facilitators regarding nutritional intake. In this phenomenological qualitative study, individual, semi-structured, face-to-face, interviews were conducted with people who had undergone a major dysvascular LLA and were living independently. Sample size was guided on information power. Interviews were transcribed verbatim, and reflexive thematic analysis was performed. Thirteen participants were interviewed. Four themes were generated: (1) mainly non-health-related factors determine food choices, (2) limited perceived awareness of the nutritional value and the impact of nutrition on health and clinical outcomes, (3) support is mainly practical by personal network, while professional nutritional care is limited, and (4) low need to change eating habits. Findings of this study underscore the urgency to increase awareness of healthy and adequate nutritional intake. Patient-centered nutritional care should be provided with techniques of motivational interviewing, to potentially improve health and clinical outcomes in people who have undergone a major dysvascular LLA. Participants in this research have limited awareness and knowledge on nutritional value and impact of nutrition on health and clinical outcomes post dysvascular lower limb amputation.Participants in this research are satisfied with current nutritional intake, as they are in control of what to eat, and align their intake based on lifelong habits and taste preferences, despite multiple barriers regarding nutritional intake.Patient-centered nutrition care is needed to increase awareness on healthy and adequate nutritional intake, to potentially improve health and clinical outcomes in people who have undergone a major dysvascular lower limb amputation. Participants in this research have limited awareness and knowledge on nutritional value and impact of nutrition on health and clinical outcomes post dysvascular lower limb amputation. Participants in this research are satisfied with current nutritional intake, as they are in control of what to eat, and align their intake based on lifelong habits and taste preferences, despite multiple barriers regarding nutritional intake. Patient-centered nutrition care is needed to increase awareness on healthy and adequate nutritional intake, to potentially improve health and clinical outcomes in people who have undergone a major dysvascular lower limb amputation.
DOI: 10.6084/m9.figshare.28573839
title: Reliability and validity of the Chinese version of the stroke upper limb capacity scale

description: To evaluate the reliability and validity of the Chinese version of the Stroke Upper Limb Capacity Scale (SULCS) compared to the Wolf Motor Function Test (WMFT) and the Fugl-Meyer Assessment-Upper Extremity (FMA-UE). Patients with hemiplegia after stroke (<i>n</i> = 60). The intraclass correlation coefficient (ICC) and corresponding 95% confidence intervals (CI) were used to explore the reliability, and Spearman’s correlation coefficient was used to analyze validity. Floor and ceiling effects were counted. The ICCs for inter-rater reliability and intra-rater reliability were ICC = 0.985 (95%CI = 0.966–0.992) and ICC = 0.982 (95%CI = 0.970–0.989), respectively. The SULCS demonstrated a strong correlation with the WMFT (<i>r</i> = 0.922, <i>p</i> &lt; 0.001) and FMA-UE (<i>r</i> = 0.921, <i>p</i> &lt; 0.001) at baseline. The WMFT and FMA at week 3 were as strong as those at baseline (<i>r</i> = 0.946, <i>p</i> &lt; 0.001 and <i>r</i> = 0.952, <i>p</i> &lt; 0.001, respectively). There was a strong longitudinal correlation between the changes in SULCS and WMFT and FMA-UE from baseline to week 3 (<i>r</i> = 0.745, <i>p</i> &lt; 0.001 and <i>r</i> = 0.768, <i>p</i> &lt; 0.001, respectively). No floor and ceiling effects were detected in any assessment. Our analysis of the psychometric properties supports the use of the Chinese version of the SULCS to measure upper limb capacity in patients with hemiplegia after stroke. StrokeThe Chinese version of Stroke Upper Limb Capacity Scale (SULCS) is a valid and reliable tool to assess the capacity of the upper extremity in patients with stroke.The instructions of SULCS are easy to understand and implement, and notably elderly patients, those with aphasia, and individuals with mild cognitive impairment can also follow the tasks.The SULCS is an easy-to-use and feasible scale that is recommended for clinical and study purposes. The Chinese version of Stroke Upper Limb Capacity Scale (SULCS) is a valid and reliable tool to assess the capacity of the upper extremity in patients with stroke. The instructions of SULCS are easy to understand and implement, and notably elderly patients, those with aphasia, and individuals with mild cognitive impairment can also follow the tasks. The SULCS is an easy-to-use and feasible scale that is recommended for clinical and study purposes.
DOI: 10.6084/m9.figshare.28573839.v1
title: Reliability and validity of the Chinese version of the stroke upper limb capacity scale

description: To evaluate the reliability and validity of the Chinese version of the Stroke Upper Limb Capacity Scale (SULCS) compared to the Wolf Motor Function Test (WMFT) and the Fugl-Meyer Assessment-Upper Extremity (FMA-UE). Patients with hemiplegia after stroke (<i>n</i> = 60). The intraclass correlation coefficient (ICC) and corresponding 95% confidence intervals (CI) were used to explore the reliability, and Spearman’s correlation coefficient was used to analyze validity. Floor and ceiling effects were counted. The ICCs for inter-rater reliability and intra-rater reliability were ICC = 0.985 (95%CI = 0.966–0.992) and ICC = 0.982 (95%CI = 0.970–0.989), respectively. The SULCS demonstrated a strong correlation with the WMFT (<i>r</i> = 0.922, <i>p</i> &lt; 0.001) and FMA-UE (<i>r</i> = 0.921, <i>p</i> &lt; 0.001) at baseline. The WMFT and FMA at week 3 were as strong as those at baseline (<i>r</i> = 0.946, <i>p</i> &lt; 0.001 and <i>r</i> = 0.952, <i>p</i> &lt; 0.001, respectively). There was a strong longitudinal correlation between the changes in SULCS and WMFT and FMA-UE from baseline to week 3 (<i>r</i> = 0.745, <i>p</i> &lt; 0.001 and <i>r</i> = 0.768, <i>p</i> &lt; 0.001, respectively). No floor and ceiling effects were detected in any assessment. Our analysis of the psychometric properties supports the use of the Chinese version of the SULCS to measure upper limb capacity in patients with hemiplegia after stroke. StrokeThe Chinese version of Stroke Upper Limb Capacity Scale (SULCS) is a valid and reliable tool to assess the capacity of the upper extremity in patients with stroke.The instructions of SULCS are easy to understand and implement, and notably elderly patients, those with aphasia, and individuals with mild cognitive impairment can also follow the tasks.The SULCS is an easy-to-use and feasible scale that is recommended for clinical and study purposes. The Chinese version of Stroke Upper Limb Capacity Scale (SULCS) is a valid and reliable tool to assess the capacity of the upper extremity in patients with stroke. The instructions of SULCS are easy to understand and implement, and notably elderly patients, those with aphasia, and individuals with mild cognitive impairment can also follow the tasks. The SULCS is an easy-to-use and feasible scale that is recommended for clinical and study purposes.
DOI: 10.6084/m9.figshare.27999504
title: Effectiveness of manual therapy and exercise therapy on otological symptoms of individuals with temporomandibular disorders: a systematic review

description: To analyze the effectiveness of manual therapy and exercise therapy on otological symptoms in individuals with temporomandibular disorders. A systematic review of clinical trials compared exercise and manual therapy with standard care or placebo/control for individuals with temporomandibular disorders. Otological-related symptoms (tinnitus, earache, ear fullness, vertigo, dizziness, and hypo/hyperacusis) were assessed. The Cochrane risk of bias tool was used to assess the risk of bias, and the certainty of evidence was rated using the GRADE approach. Qualitative data synthesis was performed through evidence tables and graphs. A total of 4,356 articles were screened, and six studies reported in nine manuscripts were included. Manual therapy combined with exercises targeted to the neck and jaw reduced tinnitus severity and tinnitus-related quality of life after treatment, and at three- and six-month follow-up when compared to exercises alone. Earache and ear fullness improved after orofacial myofunctional therapy and oral motor exercises compared to no treatment. The overall certainty of the evidence was rated as very low. The combination of neck and jaw exercises with manual therapy potentially reduce otological symptoms in individuals with temporomandibular disorders. Studies with higher methodological quality are needed, due to a very low certainty of evidence.Implications for rehabilitationExercises and manual therapy techniques aimed at the jaw and neck potentially improve otological symptoms related to TMD;Clinicians and researchers should design TMD interventions considering otological symptoms as an important complaint while planning the protocols,A standardization of the tools used to assess otological symptoms is needed. Exercises and manual therapy techniques aimed at the jaw and neck potentially improve otological symptoms related to TMD; Clinicians and researchers should design TMD interventions considering otological symptoms as an important complaint while planning the protocols, A standardization of the tools used to assess otological symptoms is needed.
DOI: 10.6084/m9.figshare.27999504.v1
title: Effectiveness of manual therapy and exercise therapy on otological symptoms of individuals with temporomandibular disorders: a systematic review

description: To analyze the effectiveness of manual therapy and exercise therapy on otological symptoms in individuals with temporomandibular disorders. A systematic review of clinical trials compared exercise and manual therapy with standard care or placebo/control for individuals with temporomandibular disorders. Otological-related symptoms (tinnitus, earache, ear fullness, vertigo, dizziness, and hypo/hyperacusis) were assessed. The Cochrane risk of bias tool was used to assess the risk of bias, and the certainty of evidence was rated using the GRADE approach. Qualitative data synthesis was performed through evidence tables and graphs. A total of 4,356 articles were screened, and six studies reported in nine manuscripts were included. Manual therapy combined with exercises targeted to the neck and jaw reduced tinnitus severity and tinnitus-related quality of life after treatment, and at three- and six-month follow-up when compared to exercises alone. Earache and ear fullness improved after orofacial myofunctional therapy and oral motor exercises compared to no treatment. The overall certainty of the evidence was rated as very low. The combination of neck and jaw exercises with manual therapy potentially reduce otological symptoms in individuals with temporomandibular disorders. Studies with higher methodological quality are needed, due to a very low certainty of evidence.Implications for rehabilitationExercises and manual therapy techniques aimed at the jaw and neck potentially improve otological symptoms related to TMD;Clinicians and researchers should design TMD interventions considering otological symptoms as an important complaint while planning the protocols,A standardization of the tools used to assess otological symptoms is needed. Exercises and manual therapy techniques aimed at the jaw and neck potentially improve otological symptoms related to TMD; Clinicians and researchers should design TMD interventions considering otological symptoms as an important complaint while planning the protocols, A standardization of the tools used to assess otological symptoms is needed.
DOI: 10.6084/m9.figshare.28006399
title: “This takes a toll on me too”—a qualitative interview study on experiences of informal caregivers to patients who have had aneurysmal subarachnoid haemorrhage

description: To describe life as an informal caregiver to someone affected by an aneurysmal subarachnoid haemorrhage (aSAH) in the first year after the event. A qualitative descriptive study in which informal caregivers (<i>n</i> = 16) to patients treated for aSAH were interviewed one year after the event. An interview guide was used and an inductive, conventional content analysis was applied. Expressions of missing the previous person were evident, as she/he had changed after the aSAH. The informants described an impact on their social life, with limited time for social activities, social interactions, and hobbies. Their working lives were also affected. Findings further indicated that professional support for informal caregivers, if offered, was fragmented, person-dependent, or offered at the wrong time. A journey with frustration and hope, impacting on relationships, social life, and working life, was evident. As few studies have focused on the perspective of informal caregivers to someone affected by aSAH, the findings are important both for research purposes and the healthcare sector. The results could form the basis for a larger exploration of support needs and how both patients and informal caregivers would like to help design and develop such support. Being an informal caregiver to a person who has had a subarachnoid haemorrhage (aSAH) was characterised by both frustration and hope, impacting on relationships, social life, and working life.Professional support delivered to informal caregivers was described as fragmented, person-dependent, or offered at the wrong time.A person-centred approach with a strong support structure is suggested, possibly enabling empowerment, person-centred information, and enhance communication for both patients with aSAH and their informal caregivers. Being an informal caregiver to a person who has had a subarachnoid haemorrhage (aSAH) was characterised by both frustration and hope, impacting on relationships, social life, and working life. Professional support delivered to informal caregivers was described as fragmented, person-dependent, or offered at the wrong time. A person-centred approach with a strong support structure is suggested, possibly enabling empowerment, person-centred information, and enhance communication for both patients with aSAH and their informal caregivers.
DOI: 10.6084/m9.figshare.28006399.v1
title: “This takes a toll on me too”—a qualitative interview study on experiences of informal caregivers to patients who have had aneurysmal subarachnoid haemorrhage

description: To describe life as an informal caregiver to someone affected by an aneurysmal subarachnoid haemorrhage (aSAH) in the first year after the event. A qualitative descriptive study in which informal caregivers (<i>n</i> = 16) to patients treated for aSAH were interviewed one year after the event. An interview guide was used and an inductive, conventional content analysis was applied. Expressions of missing the previous person were evident, as she/he had changed after the aSAH. The informants described an impact on their social life, with limited time for social activities, social interactions, and hobbies. Their working lives were also affected. Findings further indicated that professional support for informal caregivers, if offered, was fragmented, person-dependent, or offered at the wrong time. A journey with frustration and hope, impacting on relationships, social life, and working life, was evident. As few studies have focused on the perspective of informal caregivers to someone affected by aSAH, the findings are important both for research purposes and the healthcare sector. The results could form the basis for a larger exploration of support needs and how both patients and informal caregivers would like to help design and develop such support. Being an informal caregiver to a person who has had a subarachnoid haemorrhage (aSAH) was characterised by both frustration and hope, impacting on relationships, social life, and working life.Professional support delivered to informal caregivers was described as fragmented, person-dependent, or offered at the wrong time.A person-centred approach with a strong support structure is suggested, possibly enabling empowerment, person-centred information, and enhance communication for both patients with aSAH and their informal caregivers. Being an informal caregiver to a person who has had a subarachnoid haemorrhage (aSAH) was characterised by both frustration and hope, impacting on relationships, social life, and working life. Professional support delivered to informal caregivers was described as fragmented, person-dependent, or offered at the wrong time. A person-centred approach with a strong support structure is suggested, possibly enabling empowerment, person-centred information, and enhance communication for both patients with aSAH and their informal caregivers.
DOI: 10.6084/m9.figshare.27043409
title: Stakeholders’ perspective on the development of a virtual clinic for patients with spinal cord injury: a qualitative study

description: This study aims to explore the priorities, preferences, and feedback of multiple healthcare professionals to inform the future development of virtual clinics for community-dwelling adults with spinal cord injury (SCI) in Ontario, Canada. Interpretive description methodology was used to guide our exploration. Semi-structured interviews were conducted with 15 expert healthcare professionals (HCPs) involved in the care of patients with SCI. Interviews were recorded and transcribed verbatim. Interview transcripts were then analyzed using a six-phase thematic analysis approach. HCPs perceived virtual care to improve access to care over the long term, particularly to those living in rural areas, as well as increase connections between different providers. However, participants highlighted that in-person care is still required for management of severe SCI-related sequelae that can be life-threatening, such as pressure ulcers, spasticity, respiratory issues, and bowel and bladder complications. Our findings can be used to inform policymakers, HCPs, and stakeholders involved with SCI rehabilitation when establishing a virtual clinic for patients with SCI. Results of this study found that policymakers and HCPs should consider hybridized (blend of virtual and in-person) healthcare and uptake of multidisciplinary approaches within the virtual healthcare systems. Healthcare professionals (HCPs) perceived virtual care to be accessible, convenient, and a practical approach to enhance access to care over the long term, particularly for those persons with spinal cord injury (SCI) living in remote areas.Persons with SCI could benefit from hybridized healthcare models (blend of in-person and virtual care) as it offers efficient care pathways, leads to a continuum of care, and creates more accessible healthcare for those with limited SCI healthcare options.HCPs and policymakers should consider the uptake of multidisciplinary approaches within virtual healthcare systems to optimize care delivery by digitally connecting providers from multiple disciplines and team members involved in caring for persons with SCI. Healthcare professionals (HCPs) perceived virtual care to be accessible, convenient, and a practical approach to enhance access to care over the long term, particularly for those persons with spinal cord injury (SCI) living in remote areas. Persons with SCI could benefit from hybridized healthcare models (blend of in-person and virtual care) as it offers efficient care pathways, leads to a continuum of care, and creates more accessible healthcare for those with limited SCI healthcare options. HCPs and policymakers should consider the uptake of multidisciplinary approaches within virtual healthcare systems to optimize care delivery by digitally connecting providers from multiple disciplines and team members involved in caring for persons with SCI.
DOI: 10.6084/m9.figshare.27043409.v1
title: Stakeholders’ perspective on the development of a virtual clinic for patients with spinal cord injury: a qualitative study

description: This study aims to explore the priorities, preferences, and feedback of multiple healthcare professionals to inform the future development of virtual clinics for community-dwelling adults with spinal cord injury (SCI) in Ontario, Canada. Interpretive description methodology was used to guide our exploration. Semi-structured interviews were conducted with 15 expert healthcare professionals (HCPs) involved in the care of patients with SCI. Interviews were recorded and transcribed verbatim. Interview transcripts were then analyzed using a six-phase thematic analysis approach. HCPs perceived virtual care to improve access to care over the long term, particularly to those living in rural areas, as well as increase connections between different providers. However, participants highlighted that in-person care is still required for management of severe SCI-related sequelae that can be life-threatening, such as pressure ulcers, spasticity, respiratory issues, and bowel and bladder complications. Our findings can be used to inform policymakers, HCPs, and stakeholders involved with SCI rehabilitation when establishing a virtual clinic for patients with SCI. Results of this study found that policymakers and HCPs should consider hybridized (blend of virtual and in-person) healthcare and uptake of multidisciplinary approaches within the virtual healthcare systems. Healthcare professionals (HCPs) perceived virtual care to be accessible, convenient, and a practical approach to enhance access to care over the long term, particularly for those persons with spinal cord injury (SCI) living in remote areas.Persons with SCI could benefit from hybridized healthcare models (blend of in-person and virtual care) as it offers efficient care pathways, leads to a continuum of care, and creates more accessible healthcare for those with limited SCI healthcare options.HCPs and policymakers should consider the uptake of multidisciplinary approaches within virtual healthcare systems to optimize care delivery by digitally connecting providers from multiple disciplines and team members involved in caring for persons with SCI. Healthcare professionals (HCPs) perceived virtual care to be accessible, convenient, and a practical approach to enhance access to care over the long term, particularly for those persons with spinal cord injury (SCI) living in remote areas. Persons with SCI could benefit from hybridized healthcare models (blend of in-person and virtual care) as it offers efficient care pathways, leads to a continuum of care, and creates more accessible healthcare for those with limited SCI healthcare options. HCPs and policymakers should consider the uptake of multidisciplinary approaches within virtual healthcare systems to optimize care delivery by digitally connecting providers from multiple disciplines and team members involved in caring for persons with SCI.