DOI: 10.6084/m9.figshare.6949043.v1
title: Survey data from patients and medical staff on the impact of cutaneous leishmaniasis on patient’s quality of life and on the cost of diagnostic to the patients and to the health system

description: This dataset contains cross-sectional survey response data and sample questionnaires administered to cutaneous leishmaniasis (CL) patients at the clinic of the National Malaria and Leishmaniasis Control Program (NMLCP), Kabul, from April to June 2016.<br>Data files are in MS Excel <b>.xlsx</b> format, questionnaire files in MS Word <b>.docx</b> format, both are accessible via MS Office or open office applications.<br><br>The related study aims to better understand and capture the cost of diagnostic to the patients and the health system as well as the impact of a cutaneous leishmaniasis episode on patient’s quality of life. Diagnostic costs were collected from three different questionnaires and included costs borne by patients, medical staff and equipment costs as well as treatment costs. As for the quality of life, the standardized ‘Dermatology Life Quality Index’ (DLQI) questionnaire was administered to individuals enrolled in the study. The DLQI questionnaire aims to assess how skin conditions impacted on the quality of life of the individual over the preceding week.<br><b>CL_DLQI_database.xlsx</b> and <b>CL_Patient_Cost_database.xlsx: </b>The data files hold response data gathered from the ‘patient cost questionnaire’, administered to a subset (n=111) of the 274 individuals enrolled in the study, regardless of their diagnostic results. The first half of the 'patient cost' questionnaire was filled in on the day of diagnosis and the remaining half was filled in at the end of the treatment period by positive patients only, with the help of a fieldworker. This questionnaire gathers information related to direct (i.e. transportation) and indirect (i.e. wage loss during travelling and incapacity to work during illness period) costs associated with a potential CL episode in Kabul, Afghanistan. Response data on the socioeconomic background of the study participants is also provided.<b><br></b><b>CL_DLQI_database.xlsx </b>records controlled response values of “A little, “A lot” or “Very much” against questions on how much CL has affected the quality of life of the individual over the past week.<br><b>CL_Patient_Cost_database.xlsx </b>records quantitative, controlled response and qualitative (long form) responses.<br><br>Individual participant identifiers have been replaced with unique 'Patient ID's against which the other variables are recorded.<br><b>Questionnaire_laboratory and medical_staff_CLeishPOC_Afghanistan.docx:</b>The ‘laboratory and medical staff’ questionnaire (refer to questionnaire II in the Appendix) captures cost estimates among medical staff running CL diagnostics. These include the time spent on average per diagnostic; the types of medical staff required and their salaries; the equipment required to run the diagnostic; etc. <br><b>Questionnaire_Drugs and Treatment_CLeishPOC_Afghanistan.docx:</b>The ‘drug and treatment’ questionnaire collected information mainly related to costs of intralesional and intramuscular treatment.<br><br>The study has been carried out in conformity with the Helsinki Declaration, and approved by the Institutional Review Board of the National Public Health Institute, Ministry of Public Health, Islamic Republic of Afghanistan (Approval N° 361549).The participants have been taken through informed consent in a one-on-one session with a member of the study. A written informed consent was obtained from each of the participants. For illiterate individuals, the informed consent process was conducted in the presence of an impartial witness and for minors, the consent from a parent or guardian had to be obtained to be enrolled in the study.<br><br>