cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.14288/1.0427433
title: Global burden of non-tuberculous mycobacteria in the cystic fibrosis population: A systematic review and meta-analysis

description: &lt;b&gt;Abstract&lt;/b&gt;&lt;br/&gt;&lt;p&gt;&lt;span lang="EN-US"&gt;&lt;strong&gt;Background&lt;/strong&gt;:&lt;/span&gt;&lt;span lang="EN-US"&gt; People living with cystic fibrosis have an increased risk of lung infection with non-tuberculous mycobacteria (NTM), which is reportedly increasing. We conducted a systematic review of the literature to estimate the burden (prevalence and incidence) of non-tuberculous mycobacteria in the cystic fibrosis population. &lt;/span&gt;&lt;/p&gt; &lt;p&gt;&lt;span lang="EN-US"&gt;&lt;strong&gt;Methods&lt;/strong&gt;: Electronic databases, registries, and grey literature sources were searched for cohort and cross-sectional studies reporting epidemiological measures (incidence and prevalence) of NTM infection or NTM pulmonary disease (NTM-PD) in cystic fibrosis. The last search was conducted in September 2021; we included reports since database creation and registry reports published since 2010. The methodological quality of studies was appraised with the Joanna Briggs Institute tool. A random-effects meta-analysis was conducted to summarize the prevalence of NTM infection, and the remaining results are presented in a narrative synthesis. &lt;/span&gt;&lt;/p&gt; &lt;p&gt;&lt;span lang="EN-US"&gt;&lt;strong&gt;Results&lt;/strong&gt;: Ninety-five studies were included in this review. All 95 studies reported on NTM infection, and 14 of these also reported on NTM-PD. The pooled estimate for the point prevalence of NTM infection was 7.9% (CI 95%, 5.1–12.0%). In meta-regression, sample size and geographical location of the study modified the estimate. Longitudinal analysis of registry reports showed an increasing trend in NTM infection prevalence between 2010 and 2019. &lt;/span&gt;&lt;/p&gt; &lt;p&gt;&lt;span lang="EN-US"&gt;&lt;strong&gt;Conclusions&lt;/strong&gt;: The overall prevalence of NTM infection in CF is 7.9% and is increasing over time based on international registry reports. Future studies should report screening frequency, microbial identification methods, and incidence rates of progression from NTM infection to pulmonary disease.&lt;/span&gt;&lt;/p&gt;
DOI: 10.14288/1.0427432
title: Open Data Training Video: A proposed data de-identification framework for clinical research

description: &lt;strong&gt;Objective(s):&lt;/strong&gt; Data sharing has enormous potential to accelerate and improve the accuracy of research, strengthen collaborations, and restore trust in the clinical research enterprise. Nevertheless, there remains reluctancy to openly share raw data sets, in part due to concerns regarding research participant confidentiality and privacy. We provide an instructional video to describe a standardized de-identification framework that can be adapted and refined based on specific context and risks.&lt;br /&gt; &lt;br /&gt;&lt;strong&gt;Data Description:&lt;/strong&gt; Training video, presentation slides.&lt;br /&gt; &lt;br /&gt;&lt;strong&gt;Related Resources:&lt;/strong&gt; The data de-identification algorithm, dataset, and data dictionary that correspond with this training video are available through the &lt;a href = "https://borealisdata.ca/dataset.xhtml?persistentId=doi:10.5683/SP3/MSTH98 "&gt;Smart Triage sub-Dataverse.&lt;/a&gt;
DOI: 10.14288/1.0439793
title: Open Data Training Workshop: Case Studies in Open Data for Qualitative and Quantitative Clinical Research

description: &lt;strong&gt;Objective(s):&lt;/strong&gt; Momentum for open access to research is growing. Funding agencies and publishers are increasingly requiring researchers make their data and research outputs open and publicly available. However, clinical researchers struggle to find real-world examples of Open Data sharing. &lt;br /&gt; &lt;br /&gt;The aim of this 1 hr virtual workshop is to provide real-world examples of Open Data sharing for both qualitative and quantitative data. &lt;br /&gt; &lt;br /&gt;Specifically, participants will learn:&lt;br /&gt; 1. Primary challenges and successes when sharing quantitative and qualitative clinical research data. &lt;br /&gt; &lt;br /&gt;2. Platforms available for open data sharing.&lt;br /&gt; &lt;br /&gt;3. Ways to troubleshoot data sharing and publish from open data.&lt;br /&gt; &lt;br /&gt;Workshop Agenda:&lt;br /&gt; &lt;br /&gt;1. “Data sharing during the COVID-19 pandemic” - Speaker: Srinivas Murthy, Clinical Associate Professor, Department of Pediatrics, Faculty of Medicine, University of British Columbia. Investigator, BC Children's Hospital &lt;br /&gt; &lt;br /&gt;2. “Our experience with Open Data for the 'Integrating a neonatal healthcare package for Malawi' project.” - Speaker: Maggie Woo Kinshella, Global Health Research Coordinator, Department of Obstetrics and Gynaecology, BC Children’s and Women’s Hospital and University of British Columbia &lt;br /&gt; &lt;br /&gt;This workshop draws on work supported by the Digital Research Alliance of Canada.&lt;br /&gt; &lt;br /&gt;&lt;strong&gt;Data Description:&lt;/strong&gt; Presentation slides, Workshop Video, and Workshop Communication&lt;br /&gt; &lt;br /&gt;Srinivas Murthy: Data sharing during the COVID-19 pandemic presentation and accompanying PowerPoint slides.&lt;br /&gt; &lt;br /&gt;Maggie Woo Kinshella: Our experience with Open Data for the 'Integrating a neonatal healthcare package for Malawi' project presentation and accompanying Powerpoint slides.&lt;br /&gt; &lt;br /&gt;This workshop was developed as part of Dr. Ansermino's Data Champions Pilot Project supported by the &lt;a href = "https://alliancecan.ca/en"&gt;Digital Research Alliance of Canada&lt;/a&gt;.&lt;br /&gt;
DOI: 10.14288/1.0439798
title: Open Data Training Workshop: Synthetic Data & The 2023 Pediatric Sepsis Data Challenge

description: &lt;strong&gt;Objective(s):&lt;/strong&gt; Momentum for open access to research is growing. Funding agencies and publishers are increasingly requiring researchers make their data and research outputs open and publicly available. However, this introduces many challenges, especially when managing confidential clinical data.&lt;br /&gt; &lt;br /&gt;The aim of this 1 hr virtual workshop is to provide participants with knowledge about what synthetic data is, methods to create synthetic data, and the 2023 Pediatric Sepsis Data Challenge.&lt;br /&gt; &lt;br /&gt;Workshop Agenda:&lt;br /&gt; &lt;br /&gt;1. Introduction - Speaker: Mark Ansermino, Director, Centre for International Child Health &lt;br /&gt; &lt;br /&gt;2. "Leveraging Synthetic Data for an International Data Challenge" - Speaker: Charly Huxford, Research Assistant, Centre for International Child Health &lt;br /&gt; &lt;br /&gt;3. "Methods in Synthetic Data Generation." - Speaker: Vuong Nguyen, Biostatistician, Centre for International Child Health and The HIPpy Lab &lt;br /&gt; &lt;br /&gt;This workshop draws on work supported by the Digital Research Alliance of Canada.&lt;br /&gt; &lt;br /&gt;&lt;strong&gt;Data Description:&lt;/strong&gt; Presentation slides, Workshop Video, and Workshop Communication&lt;br /&gt; &lt;br /&gt;Charly Huxford: Leveraging Synthetic Data for an International Data Challenge presentation and accompanying PowerPoint slides.&lt;br /&gt; &lt;br /&gt;Vuong Nguyen: Methods in Synthetic Data Generation presentation and accompanying Powerpoint slides.&lt;br /&gt; &lt;br /&gt;This workshop was developed as part of Dr. Ansermino's Data Champions Pilot Project supported by the &lt;a href = "https://alliancecan.ca/en"&gt;Digital Research Alliance of Canada&lt;/a&gt;.&lt;br /&gt;
DOI: 10.14288/1.0428109
title: Data for: Coral adaptive capacity insufficient to halt global transition of coral reefs into net erosion under climate change

description: &lt;b&gt;Abstract&lt;/b&gt;&lt;br/&gt;&lt;p&gt;Projecting the effects of climate change on net reef calcium carbonate production is critical to understanding the future impacts on ecosystem function, but prior estimates have not included corals’ natural adaptive capacity to such change. Here we estimate how the ability of symbionts to evolve tolerance to heat stress, or for coral hosts to shuffle to favourable symbionts, and their combination, may influence responses to the combined impacts of ocean warming and acidification under three representative concentration pathway emissions scenarios (RCP2.6, RCP4.5, RCP8.5). We show that symbiont evolution and shuffling both individually and when combined favours persistent positive net reef calcium carbonate production. However, our projections of future net calcium carbonate production under climate change vary both spatially and by RCP. For example, 19–35% of modelled coral reefs are still projected to have net positive net calcium carbonate production by 2050 if symbionts can evolve increased thermal tolerance, depending on the RCP. Without &lt;span lang="EN-US"&gt;symbiont adaptive capacity,&lt;/span&gt; the number of coral reefs with positive net calcium carbonate production drops to 9–13% by 2050. Accounting for both symbiont evolution and shuffling, we project median positive net calcium carbonate production of coral reefs will still occur under low greenhouse emissions (RCP2.6) in the Indian Ocean, and even under moderate emissions (RCP4.5) in the Pacific Ocean. However, adaptive capacity will be insufficient to halt the transition of coral reefs globally into erosion by 2050 under severe emissions scenarios (RCP8.5).&lt;/p&gt;
DOI: 10.14288/1.0428108
title: Phylogenomics of novel ploeotid taxa contribute to the backbone of the euglenid tree

description: &lt;b&gt;Abstract&lt;/b&gt;&lt;br/&gt;&lt;p&gt;Euglenids are a diverse group of flagellates that inhabit most environments and exhibit many different nutritional modes. The most prominent euglenids are phototrophs, but phagotrophs constitute the majority of phylogenetic diversity of euglenids. They are pivotal to our understanding of euglenid evolution, yet we are only starting to understand relationships amongst phagotrophs, with the backbone of the tree being the most elusive. Ploeotids make up most of this backbone diversity—yet despite their morphological similarities, SSU rDNA analyses and multigene analyses show they are non-monophyletic. As more ploeotid diversity is sampled, known taxa have coalesced into some subgroups (e.g. Alistosa), but the relationships between these are not always supported and some taxa remain unsampled for multigene phylogenetics. Here, we used light microscopy and single-cell transcriptomics to characterize five ploeotid euglenids and place them into a multigene phylogenetic framework. Our analyses place &lt;em&gt;Decastava&lt;/em&gt; in Alistosa; while &lt;em&gt;Hemiolia&lt;/em&gt; branches with &lt;em&gt;Liburna&lt;/em&gt;, establishing the novel clade Karavia. We describe &lt;em&gt;Hemiolia limna&lt;/em&gt;, a freshwater-dwelling species in an otherwise marine clade. Intriguingly, two undescribed ploeotids are found to occupy pivotal positions in the tree: &lt;em&gt;Chelandium granulatum&lt;/em&gt; nov. gen. nov. sp. branches as sister to &lt;em&gt;Olkasia&lt;/em&gt;, and &lt;em&gt;Gaulosia striata&lt;/em&gt; nov. gen. nov. sp. remains an orphan taxon.&lt;/p&gt;
DOI: 10.14288/1.0435256
title: Indigenous Advisory Committee Member Perspectives: Principles for Success

description: Indigenous people worldwide experience high levels of health disparities when compared to their non-Indigenous counterparts. In an effort to close the gap of existing health disparities, Canadian post-secondary health programs are increasing education regarding Indigenous health into their programs. Indigenous curricula is best suited to be taught by Indigenous educators, however there is a shortage of Indigenous educators available to take on these positions. The scarcity of Indigenous educators has led to an increase in Indigenous Advisory Committees (IACs) at institutions across Canada. Despite these efforts, there is no literature related on how to effectively establish an IAC that honours Indigenous perspective, worldview and pedagogies. This research seeks to unveil key components that contribute to successful IACs. This qualitative study uses narrative inquiry methodologies to examine IAC member perspective’s regarding their first year of membership. IAC members (n=10) were interviewed twice over a 12-month period. Semi-structured interviews were chosen to prompt conversation while allowing members freedom to diverge to topics they deemed important. Interviews were conducted and recorded over Zoom and then transcribed verbatim. Interview transcripts were then analyzed for common themes. The IAC framework presented in this paper provides guiding principles for educational institutions to follow when developing their own IAC. Successful IACs will lead to improved Indigenous curriculums that appropriately include Indigenous knowledge, culture and history while maintaining respect.
DOI: 10.14288/1.0431054
title: Patterns of air pollution enforcement in Canada: environmental priorities versus enforcement outcomes

description: A standardized database of provincial and federal air pollution law enforcement actions across Canada.
DOI: 10.14288/1.0435201
title: Perceptions of Online Community-based Student Projects: Building Sustainability and Reciprocity with Indigenous Partners

description: In response to the Truth and Reconciliation Commission’s Calls to Action, Indigenization efforts across Canadian healthcare programs have seen increases in Indigenous health and cultural safety training. It is well-established that community-based learning is an effective strategy for students to learn, but it can be demanding on community and Faculty resources, capacity, and time. The purpose of this research is to evaluate an innovative online deployment of community-based student projects from the perspective of both students and community partners. The immersive nature of community-based learning allows students to enhance cultural learning. In-person community-based learning is difficult to replicate online, but our findings suggest that a positive impact on student learners can be achieved. Community partner satisfaction and positive feedback demonstrate the effectiveness of our CBPAR framework in implementing projects. Online delivery allows for sustainable engagement with geographically dispersed communities, where travel can be a barrier, and increases project capacity for future iterations.
DOI: 10.14288/1.0435239
title: Pharmaceutical Care in Indigenous Health

description: Syllabi
DOI: 10.14288/1.0435250
title: A Two-Eyed Seeing Framework for Building Indigenous Health Courses in Pharmacy

description: In response to the Truth and Reconciliation Commission’s Calls to Action #23 and #24, health programs across Canada, including pharmacy, are integrating course content related to Indigenous Health and cultural safety. However, there is a paucity of literature on how to respectfully Indigenize health curricula. The purpose of this project was to develop a framework of better practices for both mandatory lecture-based and elective community-based courses.   A Two-Eyed Seeing Model, incorporating both Indigenous and Western methodologies, was utilized to ensure the framework created was Indigenous-driven, evidence-based, and reciprocal. This process involved respectful collaboration with Indigenous partners and employed two methods: 1) a comprehensive literature review on better practices around Indigenous health course design from health programs across Canada, the US, Australia, and New Zealand, and 2) engagement with an Indigenous Advisory Committee (IAC) for their unique perspectives on key standards for course design.  Based on the literature review and in-depth discussions with the IAC, 5 key pillars were identified for the framework: 1) Develop Indigenous community partnerships centered on mutual respect and trust, 2) Build learning objectives to increase student capacity to work effectively with Indigenous peoples, 3) Maintain community-university relationships by prioritizing reciprocity, 4) Align course activities with Indigenous pedagogies of teaching and learning, and 5) Pilot innovative assessment models for cultural safety learning.  This framework acts as the basis of Indigenous-driven and evidence-based curriculum design and can be used as a guide for health programs across Canada in building Indigenous health courses.
DOI: 10.57745/1cgcjm
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title: Notice_fiche_synthèse.pdf

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