cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.60641/pbzv-8056
title: Handicap index

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: In the Handicap index, participants rated statements about how handicapped they had felt during the task performance.
DOI: 10.60641/smch-4w30
title: Pregnancies & miscarriages

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Pregnancies and Miscarriages contains questions about getting pregnant, including the use of hormone preparations or assisted reproductive technologies, and miscarriages.
DOI: 10.60641/4mvz-f675
title: Milestones and motor development

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Milestones and motor development assesses the age of developmental milestones (rolling over, sitting upright, crawling, standing, walking, and first words) and the ability of children to perform several fine and gross motor tasks, such as throwing an catching a ball, writing their own name, reading simple words, tieing shoelaces, zipping up their coat, hopping on one leg, and putting a thread through an embroidery needle.
DOI: 10.60641/984h-et25
title: Strengths and Difficulties Questionnaire (SDQ)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Strengths and Difficulties Questionnaire (SDQ) is a brief questionnaire for assessing the psychosocial adjustment of children and adolescents. Versions are available for parents and teachers of 4- to 16-year-olds, and a nearly identical version can be completed independently by 11- to 16-years olds. The SDQ differs from related instruments in that it is very short, with 25 items that are divided into five scales: emotional symptoms, conduct problems, hyperactivity-inattention, peer problems and prosocial behavior.
description: The SDQ was an additional survey included with the YS_10 survey in 2016. In NTR, a 'total problems' scale was also calculated.
DOI: 10.60641/c3ys-6h66
title: Structural Magnetic Resonance Imaging (MRI)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Structural magnetic resonance imaging (MRI) is a non-invasive technique for examining the anatomy and pathology of the brain (as opposed to using functional magnetic resonance imaging [fMRI] to examine brain activity).
description: In NTR projects YC_BS1, YC_BS2 and YC_BS3, T1-weighted scans were obtained from whole head MRI scan, acquired with a 1.5 Tesla Philips Achieva scanner (Philips, Best, The Netherlands, for protocol details see: https://doi.org/10.1017/thg.2012.4). In NTR project YC_ADHMRI, brain MRI was performed on a 1.5 Tesla Sonata MR system (Siemens, Erlangen, Germany, for protocol details see: https://doi.org/10.1016/j.neuroimage.2007.01.037).
DOI: 10.60641/wag7-w523
title: Delay of gratification task

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Delay of Gratification task aims to measure self-regulation by presenting the child with the choice between a small reward in the short-term and a larger reward in the long-term. The classic implementation of the Delay of Gratification task is the Marshmallow experiment, in which a child is presented with one marshmallow right now and is instructed that if they manage to wait for the researcher to return before eating it, they will receive multiple marshmallows later on. Multiple implementations of the Delay of Gratification task exist, with different reward types and suitable for different populations.
description: In NTR project YC_BS1, delay of gratification was measured by using candies (https://doi.org/10.1037/h0045046).
DOI: 10.60641/jjet-g710
title: Devereux Child Behavior (DCB) rating scale

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Devereux Child Behavior (DCB) rating scale assesses aggressive behavior, anxiety problems, attention problems, dependency, physical coordination problems, and emotional lability. Parents are asked to rate their children's behavior in the past 2 months on a 5-point scale, with 1 = never and 5= very frequently.
description: NTR uses 42 items from the DCB. Items were chosen whose scale was associated with intelligence (distractibility, poor self-care, social isolation, inadequate need for independence, social aggression, and unethical behavior). In addition, the questionnaire included items from scales that are related to emotional problem behavior. Other problem behavior dimensions included were: coordination body, messiness/sloppiness, inability to delay, and anxious-fearful ideation. Four items were included that did not belong to one of the behavior dimensions.
DOI: 10.60641/xtcv-0p86
title: Rosenberg Self-Esteem Scale (RSE)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: The Rosenberg Self-Esteem Scale (RSE) is a 10-item scale that measures global self-worth in adolescents by measuring both positive (5 items) and negative (5 items) feelings about the self. Although originally constructed as a Guttman-type scale (i.e., items with an ordinal pattern on the attribute), most researchers use a 4-point response format ranging from strongly agree to strongly disagree.
DOI: 10.60641/xhrv-xx31
title: Blood sugar markers

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Blood sugar markers, for instance Glucose, Insulin, and C-peptide, measured with traditional enzymatic tests, such as Enzyme-Linked Immunosorbent Assays (ELISA).
description: Glucose (YC_ACTIONBB1_1, YC_ACTIONBB1_2, YC_ACTIONBB2) and C-peptide (YC_ACTIONBB1_1, YC_ACTIONBB1_2, YC_ACTIONBB2, YC_ACTIONBB3) were measured in urine using ELISA. For more information, see Appendix 2 of https://hdl.handle.net/1871.1/ff5055ee-113a-45f7-a40f-8a624cef4c84 and https://doi.org/10.3389/fpsyt.2020.00165.
DOI: 10.15468/dl.ahd4zj
title: Occurrence Download

description: A dataset containing 861 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is one of (Quercus ilex L.)",
 "Country is one of (Spain)",
 "BasisOfRecord is one of (Specimen, Literature Occurrence)",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 861 records from 54 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0026546-241007104925546/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.60641/vmwe-td04
title: Zygosity (DNA)

description: The Netherlands Twin Register (NTR) consists of individuals who have agreed to participate in twin-family studies and was established and is managed by the Department of Biological Psychology, VU University Amsterdam (see: https://tweelingenregister.vu.nl/). The NTR was established in 1987 and has enrolled around 120.000 twins and a roughly equal number of their relatives. The majority of twin families have participated one or more times in survey studies on a host of epidemiological variables including social demography, personality, lifestyle, somatic and mental health, and subsamples took part in biomaterial collection (e.g. DNA) and dedicated projects for e.g. neuropsychological, biomarker, and behavioral traits. The recruitment into the NTR is fully inclusive without any restrictions on enrolment. The NTR is committed to actively seek the commitment of its participants to science and their continued involvement in NTR research by maintaining a website, electronic newsletters, and the MijnNTR portal that provides personalized feedback to participants. The NTR resources, e.g. the longitudinal phenotyping, the extended pedigree structures, and the multi-generation genotyping allow for future twin-family research that will contribute to gene discovery, causality modelling, and studies of genetic and cultural inheritance of behavioral traits and mental and physical health. In the CID data catalogue, only the NTR projects for children and adolescents (<18 years of age) have been included. This is refered to as the Young Netherlands Twin Register (YNTR). 
description: Zygosity typing based on micro-satellite markers, single nucleotide polymorphisms (SNP), or variable number (short) tandem repeats (VNTRs).
description: In NTR projects YC_ACTIONBB1_1, YC_ACTIONBB1_2, YC_ACTIONBB2, and YC_ACTIONBB3, YC_BS1, YC_BS2, YC_BS3, YC_DSC, YE_FITNSS, YE_ATTEF1, YE_ATTEF2, YE_ATTEF3, YC_ADHMI, and YE_COG18, as well as in the majority of the YNTR families (collection ongoing outside of mentioned subprojects), DNA is collected by buccal swabs. Zygosity typing was initially based on micro-satellite markers or relatively small numbers of SNPs and is now based on a larger number of SNPs and some repeat polymorphisms in a set of candidate genes. Different sets of SNPs and variable number tandem repeats (VNTRs) in candidate genes have been used over time (see: https://doi.org/10.1017/thg.2012.118). Besides, in NTR projects YS_3, YS_5, YS_7, YS_10, YS_12, YS_TRIP1_2, YS_TRIP3, YS_TRIP4, YS_TRIP5, YS_TRIP7, YS_TRIP10, and YS_TRIP12, parent-reported zygosity confirmation by DNA/blood testing was included in the survey. In NTR projects YC_DSC and YC_ADHMRI, mother-reported zygosity confirmation by DNA/blood testing was included in the telephone interview, and in NTR projects YS_DHBQ14 and YS_DHBW16, self-reported zygosity confirmation by DNA/blood testing was included in the survey as well.