cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.26188/12480431
title: HIDDEN Renal Genetics

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480431.v1
title: HIDDEN Renal Genetics

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12480482.v1
title: Acute Lymphoblastic Leukemia Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12489179
title: iPredict Somatic Cancer Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12489365.v1
title: Victorian Prader-Willi syndrome Register

description: Victorian Prader-Willi Syndrome register collects basic information about individuals with PWS born or living in Victoria. The register is important in allowing RCH to determine the rate of PWS in Victoria and the health and behavioural effects of this condition on the individual and their families. The information collected will contribute to learning more about PWS in Australia and worldwide.
DOI: 10.26188/12493478.v1
title: Cancer Risk in the Young Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493490.v1
title: Cancer Risk in the Young Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493550
title: Hereditary Cancer Syndromes Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493559
title: Hereditary Cancer Syndromes Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493559.v1
title: Hereditary Cancer Syndromes Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493580
title: Lung Cancer Diagnosis from lymph node aspirates Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493580.v1
title: Lung Cancer Diagnosis from lymph node aspirates Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493670
title: Lung Cancer Diagnosis from lymph node aspirates Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493670.v1
title: Lung Cancer Diagnosis from lymph node aspirates Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493679
title: Cancers of Unknown Primary Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493679.v1
title: Cancers of Unknown Primary Flagship

description: Collection of demographic, clinical minimum dataset, genomic variant interpretation data.
DOI: 10.26188/12493703
title: Cancers of Unknown Primary Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493703.v1
title: Cancers of Unknown Primary Genomic

description: Genomic sequencing files, including BAM, VCFs and when available FASTQ.
DOI: 10.26188/12493718
title: CHIC Caring for Hearing Impaired Children

description: The Caring for Hearing Impaired Children (CHIC) Clinic is a paediatric medical and developmental service for children with permanent hearing loss. Parents fill in a pre-clinic questionnaire before attending the clinic, and this forms the CHIC clinical dataset.
DOI: 10.26188/12493718.v1
title: CHIC Caring for Hearing Impaired Children

description: The Caring for Hearing Impaired Children (CHIC) Clinic is a paediatric medical and developmental service for children with permanent hearing loss. Parents fill in a pre-clinic questionnaire before attending the clinic, and this forms the CHIC clinical dataset.
DOI: 10.26188/12493751
title: Baby Biotics

description: Baby Biotics was a randomised controlled trial of the probiotic Lactobacillus reuteri DSM19738 for the treatment of infant colic. The trial concluded the probiotic to be ineffective in both breastfed and formula fed infants with colic in Melbourne, Australia. Infants were followed up 2-3 years later for behavioural outcomes.
DOI: 10.26188/12493751.v1
title: Baby Biotics

description: Baby Biotics was a randomised controlled trial of the probiotic Lactobacillus reuteri DSM19738 for the treatment of infant colic. The trial concluded the probiotic to be ineffective in both breastfed and formula fed infants with colic in Melbourne, Australia. Infants were followed up 2-3 years later for behavioural outcomes.
DOI: 10.26188/12493760
title: HearS-cCMV

description: The Hearing Screening for congenital CytoMegaloVirus (HearS-cCMV) study is a pilot targeted screening program for the virus CMV to test the program's feasibility and acceptability.
DOI: 10.26188/12493760.v1
title: HearS-cCMV

description: The Hearing Screening for congenital CytoMegaloVirus (HearS-cCMV) study is a pilot targeted screening program for the virus CMV to test the program's feasibility and acceptability.
DOI: 10.26188/12494144
title: ACCORD CRC (Colorectal Cancer)

description: This multi-centre, non-interventional project will aim to enrol consecutive colorectal cancer (CRC) patients at participating sites over at least 10 years. Enrolled patients will undergo collection of clinical data, including presentation and disease characteristics, patient characteristics, local and systemic therapies and treatment outcomes.
DOI: 10.26188/12494195.v1
title: TRACC (Colorectal cancer)

description: Treatment of Recurrent and Advanced Metastatic Colorectal Cancer
DOI: 10.26188/12494603
title: PERSIA (Non-metastic breast cancer)

description: PERTUZUMAB REGISTRY IN THE NEOADJUVANT SETTING FOR HER2-POSITIVE NON-METASTATIC BREAST CANCER IN AUSTRALIA (PERSIA)
DOI: 10.26188/12494618
title: Tabitha (Breast Cancer)

description: An Australian Prospective, non-interventional registry to evaluate treatment and clinical outcomes of HRE2 positive Breast Cancer in Routine Clinical Practice. <br>
DOI: 10.26188/12494618.v1
title: Tabitha (Breast Cancer)

description: An Australian Prospective, non-interventional registry to evaluate treatment and clinical outcomes of HRE2 positive Breast Cancer in Routine Clinical Practice. <br>
DOI: 10.26188/12494666
title: KRAB: Kidney canceR Australian registry and Biobank (Renal Cell Carcinoma)

description: This multi-centre project aims to collect clinical data and access biospecimens from patients with Renal Cell Carcinoma (RCC) in Australia.
DOI: 10.26188/12494666.v1
title: KRAB: Kidney canceR Australian registry and Biobank (Renal Cell Carcinoma)

description: This multi-centre project aims to collect clinical data and access biospecimens from patients with Renal Cell Carcinoma (RCC) in Australia.
DOI: 10.26188/12494675
title: Colorectal

description: Dataset of colorectal cancer patients treated at Western Health
DOI: 10.26188/12494675.v1
title: Colorectal

description: Dataset of colorectal cancer patients treated at Western Health
DOI: 10.26188/12494678
title: iTestis (Testis cancer)

description: Bioinformatics for Testis cancer. iTestis is a detailed database with a user-friendly web-based interface that will facilitate prospective collection of high quality clinical data in patients with germ cell tumour (GCT).
DOI: 10.26188/12494678.v1
title: iTestis (Testis cancer)

description: Bioinformatics for Testis cancer. iTestis is a detailed database with a user-friendly web-based interface that will facilitate prospective collection of high quality clinical data in patients with germ cell tumour (GCT).
DOI: 10.26188/12495617
title: BLADDA (Bladder Cancer)

description: 1. To establish the systematic collection of clinical data for patients with muscle-invasive or advanced bladder cancer in multiple Australian +/- international sites. 2. To establish the systematic collection of biospecimens for patients with muscle-invasive or advanced bladder cancer in multiple Australia +/- international sites 3. To explore and validate molecular prognostic and predictive biomarkers in bladder cancer to help guide clinical management.
DOI: 10.26188/12495617.v1
title: BLADDA (Bladder Cancer)

description: 1. To establish the systematic collection of clinical data for patients with muscle-invasive or advanced bladder cancer in multiple Australian +/- international sites. 2. To establish the systematic collection of biospecimens for patients with muscle-invasive or advanced bladder cancer in multiple Australia +/- international sites 3. To explore and validate molecular prognostic and predictive biomarkers in bladder cancer to help guide clinical management.
DOI: 10.26188/12495650
title: BRAIN (ACCORD)

description: BRAIN is a prospective, non-interventional clinical registry of the treatment and outcomes of patients with brain tumours managed at participating hospital in routine clinical practice.
DOI: 10.26188/12495650.v1
title: BRAIN (ACCORD)

description: BRAIN is a prospective, non-interventional clinical registry of the treatment and outcomes of patients with brain tumours managed at participating hospital in routine clinical practice.
DOI: 10.26188/12495746
title: RESIN (Liver tumour)

description: Radiation-Emitting SIR-Spheres in Non-resectable (RESIN) Liver Tumor Patient Registry
DOI: 10.26188/12495746.v1
title: RESIN (Liver tumour)

description: Radiation-Emitting SIR-Spheres in Non-resectable (RESIN) Liver Tumor Patient Registry
DOI: 10.6084/m9.figshare.11509773
title: Section_6.zip

description: The data and codes used to reproduce the Figures and Tables for Result section 6: ScIGANs is scalable to scRNA-seq technologies and data size.
DOI: 10.26188/12479291
title: Oral tongue squamous cell carcinoma (SCC)

description: Oral tongue SCC patient clinicopathological and outcome data combined with FFPE tumor blocks
DOI: 10.26188/12479318
title: Cutaneous skin squamous cell carcinoma (SCC)

description: Cutaneous skin squamous cell carcinoma patient clinicopathological and outcome data combined with FFPE tumor blocks
DOI: 10.26188/12479318.v1
title: Cutaneous skin squamous cell carcinoma (SCC)

description: Cutaneous skin squamous cell carcinoma patient clinicopathological and outcome data combined with FFPE tumor blocks
DOI: 10.26188/12494096
title: Menopause Symptoms after Cancer/Menopause Clinical Audit Database

description: Patients seen at the Menopause Symptoms after Cancer and Menopause Clinics provide information about the symptoms they would most like addressed in their care at the Clinics. Over time these data will provide information to assess the impact of care in the Clinics. We also abstract relevant medical history and treatment information from the patient chart to provide context.
DOI: 10.26188/12494096.v1
title: Menopause Symptoms after Cancer/Menopause Clinical Audit Database

description: Patients seen at the Menopause Symptoms after Cancer and Menopause Clinics provide information about the symptoms they would most like addressed in their care at the Clinics. Over time these data will provide information to assess the impact of care in the Clinics. We also abstract relevant medical history and treatment information from the patient chart to provide context.
DOI: 10.26188/12494144.v1
title: ACCORD CRC (Colorectal Cancer)

description: This multi-centre, non-interventional project will aim to enrol consecutive colorectal cancer (CRC) patients at participating sites over at least 10 years. Enrolled patients will undergo collection of clinical data, including presentation and disease characteristics, patient characteristics, local and systemic therapies and treatment outcomes.
DOI: 10.26188/12494195
title: TRACC (Colorectal cancer)

description: Treatment of Recurrent and Advanced Metastatic Colorectal Cancer
DOI: 10.26188/12494603.v1
title: PERSIA (Non-metastic breast cancer)

description: PERTUZUMAB REGISTRY IN THE NEOADJUVANT SETTING FOR HER2-POSITIVE NON-METASTATIC BREAST CANCER IN AUSTRALIA (PERSIA)
DOI: 10.26188/12494630
title: Epad (Castrate-Resistant Prostate Cancer)

description: Electronic CRPC Australian Database (ePAD): Analyzing Treatment Patterns and Outcomes from Real-World Patients with Castrate-Resistant Prostate Cancer (CRPC)
DOI: 10.26188/12367733
title: Austin Health Cardiac Surgery Database

description: <pre></pre>A superset of the ANZSCTS National Cardiac Surgery Database and pre dates the above by &gt;15years.
DOI: 10.26188/12367733.v1
title: Austin Health Cardiac Surgery Database

description: <pre></pre>A superset of the ANZSCTS National Cardiac Surgery Database and pre dates the above by &gt;15years.
DOI: 10.26188/12368312
title: RUTH

description: Dataset of all patients presented at the VCCC Breast Tumour Stream MDM with DCIS or Invasive cancer
DOI: 10.26188/12368312.v1
title: RUTH

description: Dataset of all patients presented at the VCCC Breast Tumour Stream MDM with DCIS or Invasive cancer
DOI: 10.26188/12413378
title: DCISion

description: Cohort of DCIS patients treated at RMH and associated hospitals since 1994
DOI: 10.26188/12413378.v1
title: DCISion

description: Cohort of DCIS patients treated at RMH and associated hospitals since 1994
DOI: 10.26188/12444143
title: Bowel Cancer Screening Service

description: Collects family history of colorectal cancer, endoscopy, polyp and cancer data from participants. Provides a faecal occult blood test service. Provides a endoscopy reminder service. Arranges colonoscopy at RMH for participants. <br>
DOI: 10.26188/12444143.v1
title: Bowel Cancer Screening Service

description: Collects family history of colorectal cancer, endoscopy, polyp and cancer data from participants. Provides a faecal occult blood test service. Provides a endoscopy reminder service. Arranges colonoscopy at RMH for participants. <br>
DOI: 10.26188/12444152
title: ACCORD Head and Neck Cancer Database

description: Data relating to presentation treatment and outcomes for patients with Head and Neck Cancer (HNC) at Melbourne Health
DOI: 10.26188/12444152.v1
title: ACCORD Head and Neck Cancer Database

description: Data relating to presentation treatment and outcomes for patients with Head and Neck Cancer (HNC) at Melbourne Health
DOI: 10.26188/12444158
title: Promoting Independence Through quality dementia Care at Home (PITCH)

description: This study aims to understand the experiences of people living with dementia, their family carers, and care workers regarding home care provided through the Australian government's Home Care Packages Program or Commonwealth Home Support Programme. This project investigates whether upskilling home care workers by a training program improves the experiences of people with dementia living at home, family carers and home care workers. Outcome measures for home care workers, family members, and people living with dementia include quality of life, carer burden, and clinical measures, dementia knowledge and attitudes and competence in care measures, and health economics measures.
DOI: 10.26188/12444158.v1
title: Promoting Independence Through quality dementia Care at Home (PITCH)

description: This study aims to understand the experiences of people living with dementia, their family carers, and care workers regarding home care provided through the Australian government's Home Care Packages Program or Commonwealth Home Support Programme. This project investigates whether upskilling home care workers by a training program improves the experiences of people with dementia living at home, family carers and home care workers. Outcome measures for home care workers, family members, and people living with dementia include quality of life, carer burden, and clinical measures, dementia knowledge and attitudes and competence in care measures, and health economics measures.
DOI: 10.26188/12470864
title: ENJOY dataset

description: Data base of data collected as part of a community research project
DOI: 10.26188/12470864.v1
title: ENJOY dataset

description: Data base of data collected as part of a community research project
DOI: 10.26188/12471080
title: IMPACCT

description: Database containing participating demographic and assessment data for the IMPACCT study, a trial of a home based physical activity program to improve mood in carers
DOI: 10.26188/12471080.v1
title: IMPACCT

description: Database containing participating demographic and assessment data for the IMPACCT study, a trial of a home based physical activity program to improve mood in carers
DOI: 10.26188/12471266
title: CardiacRehabPlus

description: Determine feasibility of people with TIA/minor stroke receiving cardiac rehab to address secondary events and balance, and to determine the prevalence of balance dysfunction in those receiving cardiac rehab
DOI: 10.26188/12471266.v1
title: CardiacRehabPlus

description: Determine feasibility of people with TIA/minor stroke receiving cardiac rehab to address secondary events and balance, and to determine the prevalence of balance dysfunction in those receiving cardiac rehab
DOI: 10.26188/12471335
title: Exercise after TIA and minor stroke

description: Determine the feasibility of people with TIA/minor stroke receiving home exercise to address secondary events and balance
DOI: 10.26188/12471335.v1
title: Exercise after TIA and minor stroke

description: Determine the feasibility of people with TIA/minor stroke receiving home exercise to address secondary events and balance
DOI: 10.26188/12477278
title: RRVV

description: Recording Victorian retirement village residents' experiences of dispute management and satisfaction levels related to dispute resolution processes
DOI: 10.26188/12477278.v1
title: RRVV

description: Recording Victorian retirement village residents' experiences of dispute management and satisfaction levels related to dispute resolution processes
DOI: 10.26188/12477296
title: MARC Falls 1- post fall

description: Development and trialling of a context specific falls prevention model to extract local data and select and implement interventions based on this data <br>
DOI: 10.26188/12477296.v1
title: MARC Falls 1- post fall

description: Development and trialling of a context specific falls prevention model to extract local data and select and implement interventions based on this data <br>
DOI: 10.26188/12477308
title: Falls, Stroke, Vitamin D

description: Describing the trajectory of vitamin D and other related biomarkers in the first 12 months after stroke and the relationship to falls
DOI: 10.26188/12477308.v1
title: Falls, Stroke, Vitamin D

description: Describing the trajectory of vitamin D and other related biomarkers in the first 12 months after stroke and the relationship to falls
DOI: 10.26188/12477317
title: MARC Falls 1- surveys

description: Understanding of patients' perceptions regarding risk of falling whilst in hospital
DOI: 10.26188/12477317.v1
title: MARC Falls 1- surveys

description: Understanding of patients' perceptions regarding risk of falling whilst in hospital
DOI: 10.26188/12477356
title: MARC EOLC 1 - medical record audit

description: Audit of health records of deceased people 75 years and over regarding service use, care preferences, communication and service integration
DOI: 10.26188/12477356.v1
title: MARC EOLC 1 - medical record audit

description: Audit of health records of deceased people 75 years and over regarding service use, care preferences, communication and service integration
DOI: 10.26188/12477422
title: MARC EOLC 1- interview

description: Interviews with people 75 years and over towards the end of their life and bereaved family members regarding service use, care preferences, communication and service integration
DOI: 10.26188/12477422.v1
title: MARC EOLC 1- interview

description: Interviews with people 75 years and over towards the end of their life and bereaved family members regarding service use, care preferences, communication and service integration
DOI: 10.26188/12477452
title: MARC SCOUTT - communtiy consultation

description: Investigating if mobile translation apps can reduce langauge discordance on the ward - community consultation
DOI: 10.26188/12477452.v1
title: MARC SCOUTT - communtiy consultation

description: Investigating if mobile translation apps can reduce langauge discordance on the ward - community consultation
DOI: 10.26188/12477500
title: MARC SCOUTT - healthcare

description: Investigating if mobile translation apps can reduce language discordance on the ward - healthcare workers
DOI: 10.26188/12477500.v1
title: MARC SCOUTT - healthcare

description: Investigating if mobile translation apps can reduce language discordance on the ward - healthcare workers
DOI: 10.26188/12477536
title: MARC SCOUTT trial on ward IMPACCT

description: Investigating if mobile translation apps can reduce language discordance on the ward - trial on ward
DOI: 10.26188/12477536.v1
title: MARC SCOUTT trial on ward IMPACCT

description: Investigating if mobile translation apps can reduce language discordance on the ward - trial on ward
DOI: 10.26188/12477575
title: Evaluation of the Tapestry Program at Royal Freemasons

description: Data collected from residents, family members and staff at 7 residential aged care facilities within Victoria for evaluation of the Tapestry program at Royal Freemasons.
DOI: 10.26188/12477575.v1
title: Evaluation of the Tapestry Program at Royal Freemasons

description: Data collected from residents, family members and staff at 7 residential aged care facilities within Victoria for evaluation of the Tapestry program at Royal Freemasons.
DOI: 10.26188/12477596
title: Analgesics for Pain and Depression

description: RCT investigating whether the administration of analgesic medications (paracetamol alone of in combination with codeine) improves depression in people with dementia living in residential aged care. Data collected from 80 residents.
DOI: 10.26188/12477596.v1
title: Analgesics for Pain and Depression

description: RCT investigating whether the administration of analgesic medications (paracetamol alone of in combination with codeine) improves depression in people with dementia living in residential aged care. Data collected from 80 residents.
DOI: 10.26188/12479171
title: MARC_PAHA-carer survey database

description: Carer surveys
DOI: 10.26188/12479171.v1
title: MARC_PAHA-carer survey database

description: Carer surveys
DOI: 10.26188/12479192
title: Staff surveys of avoidable hospitalisations

description: Staff surveys of avoidable hospitalisations
DOI: 10.26188/12479192.v1
title: Staff surveys of avoidable hospitalisations

description: Staff surveys of avoidable hospitalisations
DOI: 10.26188/12479201
title: MARC_PAHA PAHA-D audit tool database

description: Record of emergency department admissions with older people with dementia
DOI: 10.26188/12479201.v1
title: MARC_PAHA PAHA-D audit tool database

description: Record of emergency department admissions with older people with dementia