cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.6084/m9.figshare.27003266
title: Subjective measurement of physical activity and sedentary behaviour in children and adolescents with cerebral palsy: a scoping review

description: Physical activity is essential for maintaining overall health. Cost-effective and easily administered outcome instruments are valuable for clinical practice and large-scale population studies. The scoping review aimed to identify and map subjective instruments developed or validated to measure habitual physical activity and/or sedentary behaviour in children and adolescents with cerebral palsy aged 0–18 years across all levels of the GMFCS-E&R. This scoping review was conducted in accordance with the JBI methodology for scoping reviews and searched the databases PubMed, CINAHL, Web of Science, Cochrane Database of Systematic Reviews, JBI Database of Systematic Reviews and Implementation Reports, Embase and Pedro to identify articles. From 288 full-text references, 13 studies met the inclusion criteria. Nine instruments measured habitual physical activity and/or sedentary behaviour in children and adolescents with cerebral palsy aged 18 months to 18 years. Six subjective instruments were tested for ambulatory children, while three instruments were tested in children and adolescents at GMFCS-E&R level I–V. Reporting of the psychometric properties were found on reliability in three instruments, while data on validity were reported in all instruments. Further studies assessing the psychometric properties of subjective instruments in the target population are needed. Subjective instruments allow for monitoring of physical activity levels in children with cerebral palsy (CP).Personal perceptions of physical activity and/or sedentary behaviour can be assessed using subjective instruments.Caution should be exercised when using subjective instruments to measure physical activity and/or sedentary behaviour, as knowledge about their validity and reliability is limited. Subjective instruments allow for monitoring of physical activity levels in children with cerebral palsy (CP). Personal perceptions of physical activity and/or sedentary behaviour can be assessed using subjective instruments. Caution should be exercised when using subjective instruments to measure physical activity and/or sedentary behaviour, as knowledge about their validity and reliability is limited.
DOI: 10.6084/m9.figshare.27003266.v1
title: Subjective measurement of physical activity and sedentary behaviour in children and adolescents with cerebral palsy: a scoping review

description: Physical activity is essential for maintaining overall health. Cost-effective and easily administered outcome instruments are valuable for clinical practice and large-scale population studies. The scoping review aimed to identify and map subjective instruments developed or validated to measure habitual physical activity and/or sedentary behaviour in children and adolescents with cerebral palsy aged 0–18 years across all levels of the GMFCS-E&R. This scoping review was conducted in accordance with the JBI methodology for scoping reviews and searched the databases PubMed, CINAHL, Web of Science, Cochrane Database of Systematic Reviews, JBI Database of Systematic Reviews and Implementation Reports, Embase and Pedro to identify articles. From 288 full-text references, 13 studies met the inclusion criteria. Nine instruments measured habitual physical activity and/or sedentary behaviour in children and adolescents with cerebral palsy aged 18 months to 18 years. Six subjective instruments were tested for ambulatory children, while three instruments were tested in children and adolescents at GMFCS-E&R level I–V. Reporting of the psychometric properties were found on reliability in three instruments, while data on validity were reported in all instruments. Further studies assessing the psychometric properties of subjective instruments in the target population are needed. Subjective instruments allow for monitoring of physical activity levels in children with cerebral palsy (CP).Personal perceptions of physical activity and/or sedentary behaviour can be assessed using subjective instruments.Caution should be exercised when using subjective instruments to measure physical activity and/or sedentary behaviour, as knowledge about their validity and reliability is limited. Subjective instruments allow for monitoring of physical activity levels in children with cerebral palsy (CP). Personal perceptions of physical activity and/or sedentary behaviour can be assessed using subjective instruments. Caution should be exercised when using subjective instruments to measure physical activity and/or sedentary behaviour, as knowledge about their validity and reliability is limited.
DOI: 10.6084/m9.figshare.27275029
title: Implementing vocational rehabilitation for people with multiple sclerosis in the UK National Health Service: a mixed-methods feasibility study

description: To implement a job retention vocational rehabilitation (VR) intervention (MSVR) for people with multiple sclerosis (MS) and their employers in the UK National Health Service (NHS). Multicentre, single-arm feasibility study with post-intervention interviews. MSVR was delivered by an occupational therapist (OT). Feasibility was assessed by recruitment rates, compliance, and practicality of delivery. Acceptability was assessed with post-intervention interviews. A survey assessed change in eight vocational outcomes (e.g., vocational goals, work instability) immediately post-intervention and at 3-month follow-up. Recruitment and training an OT was challenging. Twenty participants with MS, three employers, and three healthcare professionals were recruited. All participants but one completed the intervention. Factors affecting intervention adherence included annual leave and family responsibilities. MSVR was associated with improved vocational goal attainment post-intervention (<i>t</i>(18) = 7.41, <i>p = &lt;</i>0.001) and at follow-up (<i>t</i>(17) = 6.01, <i>p = &lt;</i>0.001). There was no change to the remaining outcomes. Interviews identified six themes: intervention impact, accessibility of support, the OT’s role, readiness for support, workplace supportiveness, and barriers to NHS delivery. Challenges with recruitment, identifying newly diagnosed MS participants, and understanding the OT’s training needs to deliver the intervention were identified. The intervention demonstrated acceptability, but participants wanted it to continue for longer to address further needs. Successful implementation of vocational rehabilitation services for people with multiple sclerosis within healthcare services requires multiple environmental and pragmatic changes.Healthcare professionals should record employment status from diagnosis to monitor changes in employment over the disease course, highlighting changes in working hours, occupation type, and employment rates.Vocational rehabilitation has the potential to improve the confidence of people with MS around symptom management and feeling supported and empowered at work. Successful implementation of vocational rehabilitation services for people with multiple sclerosis within healthcare services requires multiple environmental and pragmatic changes. Healthcare professionals should record employment status from diagnosis to monitor changes in employment over the disease course, highlighting changes in working hours, occupation type, and employment rates. Vocational rehabilitation has the potential to improve the confidence of people with MS around symptom management and feeling supported and empowered at work.
DOI: 10.6084/m9.figshare.27275029.v1
title: Implementing vocational rehabilitation for people with multiple sclerosis in the UK National Health Service: a mixed-methods feasibility study

description: To implement a job retention vocational rehabilitation (VR) intervention (MSVR) for people with multiple sclerosis (MS) and their employers in the UK National Health Service (NHS). Multicentre, single-arm feasibility study with post-intervention interviews. MSVR was delivered by an occupational therapist (OT). Feasibility was assessed by recruitment rates, compliance, and practicality of delivery. Acceptability was assessed with post-intervention interviews. A survey assessed change in eight vocational outcomes (e.g., vocational goals, work instability) immediately post-intervention and at 3-month follow-up. Recruitment and training an OT was challenging. Twenty participants with MS, three employers, and three healthcare professionals were recruited. All participants but one completed the intervention. Factors affecting intervention adherence included annual leave and family responsibilities. MSVR was associated with improved vocational goal attainment post-intervention (<i>t</i>(18) = 7.41, <i>p = &lt;</i>0.001) and at follow-up (<i>t</i>(17) = 6.01, <i>p = &lt;</i>0.001). There was no change to the remaining outcomes. Interviews identified six themes: intervention impact, accessibility of support, the OT’s role, readiness for support, workplace supportiveness, and barriers to NHS delivery. Challenges with recruitment, identifying newly diagnosed MS participants, and understanding the OT’s training needs to deliver the intervention were identified. The intervention demonstrated acceptability, but participants wanted it to continue for longer to address further needs. Successful implementation of vocational rehabilitation services for people with multiple sclerosis within healthcare services requires multiple environmental and pragmatic changes.Healthcare professionals should record employment status from diagnosis to monitor changes in employment over the disease course, highlighting changes in working hours, occupation type, and employment rates.Vocational rehabilitation has the potential to improve the confidence of people with MS around symptom management and feeling supported and empowered at work. Successful implementation of vocational rehabilitation services for people with multiple sclerosis within healthcare services requires multiple environmental and pragmatic changes. Healthcare professionals should record employment status from diagnosis to monitor changes in employment over the disease course, highlighting changes in working hours, occupation type, and employment rates. Vocational rehabilitation has the potential to improve the confidence of people with MS around symptom management and feeling supported and empowered at work.
DOI: 10.6084/m9.figshare.29002561
title: The effect of extrinsic feedback on improving functioning in people with congenital and acquired brain injury: a systematic review and meta-analysis

description: Estimating the effect of extrinsic feedback (EF) on functional recovery, functional skill acquisition, and motor learning in individuals with brain injuries. Systematic review and meta-analysis using databases MEDLINE, EMBASE, PEDro, and Cochrane Central Register of Controlled Trials searched on January 2024. Eligible trials compared motor training with EF provision to no EF provision or with different EF content. Two reviewers independently screened, extracted data, and assessed the risk of bias. Random effects meta-analysis synthesized the results. The certainty of evidence was rated using the GRADE approach. 51 controlled trials, including 1,451 participants. No significant EF effect for children and teenagers with cerebral palsy (CP). Among adults with stroke, EF showed a large effect on functional recovery (SMD 1.03, 95% CI [0.13; 1.93]) and a moderate effect on motor learning (SMD 0.52, 95% CI [0.35; 0.69]). High to moderate evidence for a large to moderate effect of EF on functional recovery and motor learning in adults with stroke. Effectiveness for children, adolescents, and adults with congenital and traumatic brain injury lacks evidence. Comprehensive meta-analytic synthesis of different EF content was not possible. PROSPERO CRD42022327646. Extrinsic feedback provision significantly improves functional recovery and motor learning in individuals with stroke.The effectiveness of extrinsic feedback for individuals with cerebral palsy and traumatic brain injury is uncertain due to low sample size and other methodological issuesThe most effective content of extrinsic feedback remains unclear.We provide a mapping of possible content that can be used to tailor extrinsic feedback to meet individual patient needs. Extrinsic feedback provision significantly improves functional recovery and motor learning in individuals with stroke. The effectiveness of extrinsic feedback for individuals with cerebral palsy and traumatic brain injury is uncertain due to low sample size and other methodological issues The most effective content of extrinsic feedback remains unclear. We provide a mapping of possible content that can be used to tailor extrinsic feedback to meet individual patient needs.
DOI: 10.6084/m9.figshare.29002561.v1
title: The effect of extrinsic feedback on improving functioning in people with congenital and acquired brain injury: a systematic review and meta-analysis

description: Estimating the effect of extrinsic feedback (EF) on functional recovery, functional skill acquisition, and motor learning in individuals with brain injuries. Systematic review and meta-analysis using databases MEDLINE, EMBASE, PEDro, and Cochrane Central Register of Controlled Trials searched on January 2024. Eligible trials compared motor training with EF provision to no EF provision or with different EF content. Two reviewers independently screened, extracted data, and assessed the risk of bias. Random effects meta-analysis synthesized the results. The certainty of evidence was rated using the GRADE approach. 51 controlled trials, including 1,451 participants. No significant EF effect for children and teenagers with cerebral palsy (CP). Among adults with stroke, EF showed a large effect on functional recovery (SMD 1.03, 95% CI [0.13; 1.93]) and a moderate effect on motor learning (SMD 0.52, 95% CI [0.35; 0.69]). High to moderate evidence for a large to moderate effect of EF on functional recovery and motor learning in adults with stroke. Effectiveness for children, adolescents, and adults with congenital and traumatic brain injury lacks evidence. Comprehensive meta-analytic synthesis of different EF content was not possible. PROSPERO CRD42022327646. Extrinsic feedback provision significantly improves functional recovery and motor learning in individuals with stroke.The effectiveness of extrinsic feedback for individuals with cerebral palsy and traumatic brain injury is uncertain due to low sample size and other methodological issuesThe most effective content of extrinsic feedback remains unclear.We provide a mapping of possible content that can be used to tailor extrinsic feedback to meet individual patient needs. Extrinsic feedback provision significantly improves functional recovery and motor learning in individuals with stroke. The effectiveness of extrinsic feedback for individuals with cerebral palsy and traumatic brain injury is uncertain due to low sample size and other methodological issues The most effective content of extrinsic feedback remains unclear. We provide a mapping of possible content that can be used to tailor extrinsic feedback to meet individual patient needs.
DOI: 10.6084/m9.figshare.26869736
title: Adaptation and development of the instruction manual for a videoconference-based Motor Assessment Scale: validity, reliability and measurement error of Tele-MAS

description: To develop an instruction manual to administer the Motor Assessment Scale (MAS) <i>via</i> videoconferencing (Tele-MAS), investigate its validity, reliability and measurement error. In-person assessment, conducted at the participant’s home, was compared to remote assessment conducted by rater A. Then, within two days, the rater B, repeat the remote assessment (<i>n</i> = 41). Part of the sample (<i>n</i> = 10) was assessed again within seven days by rater A to determine test-retest reliability. Concurrent validity, agreement of alternate forms (in-person x remote) for total score and reliability of individual items were analyzed using respectively the Pearson correlation coefficient, Bland-Altman plots and weighted Kappa (Kw). Interrater and test-retest reliability were analyzed by Intraclass Correlation Coefficient (ICC). Standard Error of Measurement (SEM) and Minimal detectable changes (MDC) were computed. The Tele-MAS instruction manual was developed. In-person MAS and Tele-MAS present a high positive correlation (<i>r</i> = 0.97). Bland-Altman plots showed adequate agreement (MD=-0.0 point). Most Individual items showed excellent reliability (Kw &gt; 0.70). Tele-MAS showed excellent interrater (ICC<sub>(2,1)</sub>=0.92) and test-retest (ICC<sub>(3,1)</sub>=0.98) reliability. Tele-MAS presents a SEM = 3% and MDC = 8%. The Tele-MAS is a valid and reliable global motor assessment scale to be applied in individuals after stroke. The validity and reliability of Motor Assessment Scale (MAS) by videoconferencing was determined for post-stroke individuals. MAS in-person and Tele-MAS present a high positive correlation, and the Tele-MAS present an excellent reliability. A motor assessment based on a task-oriented approach the Tele-MAS may be used in telerehabilitation for post-stroke individuals.
DOI: 10.6084/m9.figshare.26869736.v1
title: Adaptation and development of the instruction manual for a videoconference-based Motor Assessment Scale: validity, reliability and measurement error of Tele-MAS

description: To develop an instruction manual to administer the Motor Assessment Scale (MAS) <i>via</i> videoconferencing (Tele-MAS), investigate its validity, reliability and measurement error. In-person assessment, conducted at the participant’s home, was compared to remote assessment conducted by rater A. Then, within two days, the rater B, repeat the remote assessment (<i>n</i> = 41). Part of the sample (<i>n</i> = 10) was assessed again within seven days by rater A to determine test-retest reliability. Concurrent validity, agreement of alternate forms (in-person x remote) for total score and reliability of individual items were analyzed using respectively the Pearson correlation coefficient, Bland-Altman plots and weighted Kappa (Kw). Interrater and test-retest reliability were analyzed by Intraclass Correlation Coefficient (ICC). Standard Error of Measurement (SEM) and Minimal detectable changes (MDC) were computed. The Tele-MAS instruction manual was developed. In-person MAS and Tele-MAS present a high positive correlation (<i>r</i> = 0.97). Bland-Altman plots showed adequate agreement (MD=-0.0 point). Most Individual items showed excellent reliability (Kw &gt; 0.70). Tele-MAS showed excellent interrater (ICC<sub>(2,1)</sub>=0.92) and test-retest (ICC<sub>(3,1)</sub>=0.98) reliability. Tele-MAS presents a SEM = 3% and MDC = 8%. The Tele-MAS is a valid and reliable global motor assessment scale to be applied in individuals after stroke. The validity and reliability of Motor Assessment Scale (MAS) by videoconferencing was determined for post-stroke individuals. MAS in-person and Tele-MAS present a high positive correlation, and the Tele-MAS present an excellent reliability. A motor assessment based on a task-oriented approach the Tele-MAS may be used in telerehabilitation for post-stroke individuals.
DOI: 10.6084/m9.figshare.28023197
title: Nutritional intake in people who have undergone a major dysvascular lower limb amputation: a qualitative study on perceptions, experiences, barriers and facilitators

description: To describe perceptions and experiences of people who have undergone a major dysvascular lower limb amputation (LLA) regarding nutrition, and to identify perceived barriers and facilitators regarding nutritional intake. In this phenomenological qualitative study, individual, semi-structured, face-to-face, interviews were conducted with people who had undergone a major dysvascular LLA and were living independently. Sample size was guided on information power. Interviews were transcribed verbatim, and reflexive thematic analysis was performed. Thirteen participants were interviewed. Four themes were generated: (1) mainly non-health-related factors determine food choices, (2) limited perceived awareness of the nutritional value and the impact of nutrition on health and clinical outcomes, (3) support is mainly practical by personal network, while professional nutritional care is limited, and (4) low need to change eating habits. Findings of this study underscore the urgency to increase awareness of healthy and adequate nutritional intake. Patient-centered nutritional care should be provided with techniques of motivational interviewing, to potentially improve health and clinical outcomes in people who have undergone a major dysvascular LLA. Participants in this research have limited awareness and knowledge on nutritional value and impact of nutrition on health and clinical outcomes post dysvascular lower limb amputation.Participants in this research are satisfied with current nutritional intake, as they are in control of what to eat, and align their intake based on lifelong habits and taste preferences, despite multiple barriers regarding nutritional intake.Patient-centered nutrition care is needed to increase awareness on healthy and adequate nutritional intake, to potentially improve health and clinical outcomes in people who have undergone a major dysvascular lower limb amputation. Participants in this research have limited awareness and knowledge on nutritional value and impact of nutrition on health and clinical outcomes post dysvascular lower limb amputation. Participants in this research are satisfied with current nutritional intake, as they are in control of what to eat, and align their intake based on lifelong habits and taste preferences, despite multiple barriers regarding nutritional intake. Patient-centered nutrition care is needed to increase awareness on healthy and adequate nutritional intake, to potentially improve health and clinical outcomes in people who have undergone a major dysvascular lower limb amputation.