cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.15468/dl.mq6c8h
title: Occurrence Download

description: A dataset containing 3798365 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Sitta canadensis Linnaeus, 1766"
 ]
}

 The dataset includes 3798365 records from 156 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0080243-230224095556074/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.gatpn9
title: Occurrence Download

description: A dataset containing 424 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Leopardus colocolo (Molina, 1782)"
 ]
}

 The dataset includes 424 records from 32 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0178377-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.mubd3b
title: Occurrence Download

description: A dataset listing the 26786 species recorded in GBIF matching the query:
{
 "and" : [
 "Continent is Africa",
 "Country is Cameroon",
 "HasCoordinate is true",
 "OccurrenceStatus is Present"
 ]
}

 The dataset's 26786 records were derived from 516 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0262705-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.59w3vb
title: Occurrence Download

description: A dataset containing 29 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Euphrasia tatrae Wettst.",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 29 records from 7 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0181386-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.dq7stb
title: Occurrence Download

description: A dataset containing 3215 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-69.20777 -40.94113,100.20777 -40.94113,100.20777 26.94113,-69.20777 26.94113,-69.20777 -40.94113))",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Chaerephon pumilus (Cretzschmar, 1826)"
 ]
}

 The dataset includes 3215 records from 33 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0178379-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.pcbpfs
title: Occurrence Download

description: A dataset containing 160 species occurrences available in GBIF matching the query:
{
 "and" : [
 "BasisOfRecord is Human Observation",
 "Geometry POLYGON((-109.93019 24.37177,-109.93703 24.3239,-109.91651 24.28885,-109.92249 24.26833,-109.89599 24.18797,-109.86949 24.15463,-109.80451 24.13838,-109.80195 24.15548,-109.80964 24.16916,-109.82332 24.20934,-109.84213 24.22473,-109.85837 24.25807,-109.89086 24.3145,-109.93019 24.37177))",
 "OccurrenceStatus is Present",
 "TaxonKey is Aves"
 ]
}

 The dataset includes 160 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0159901-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.8hkypp
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Euphorbia veneta Ten.",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0181381-220831081235567/datasets/export for details.
DOI: 10.15468/dl.fqbpvm
title: Occurrence Download

description: A dataset containing 1857 species occurrences available in GBIF matching the query:
{
 "and" : [
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Eidolon helvum (Kerr, 1792)"
 ]
}

 The dataset includes 1857 records from 42 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0178391-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.4x6bzm
title: Occurrence Download

description: A dataset containing 1 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Festuca brachystachys Fritsch",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 1 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0181388-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.bctkga
title: Occurrence Download

description: A dataset containing 89 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-111.03415 25.71376,-111.03592 25.71376,-111.04139 25.71279,-111.04139 25.70958,-111.043 25.70765,-111.05201 25.70748,-111.0562 25.70877,-111.05909 25.70861,-111.05957 25.70604,-111.0578 25.70507,-111.05797 25.69992,-111.05748 25.6959,-111.0496 25.68448,-111.04703 25.67418,-111.04767 25.67193,-111.04703 25.66356,-111.04493 25.66308,-111.04477 25.66115,-111.02981 25.64989,-111.01276 25.66984,-111.0134 25.67804,-111.01742 25.69429,-111.02547 25.69622,-111.02579 25.70057,-111.02868 25.70266,-111.02981 25.70153,-111.03255 25.70314,-111.03415 25.71376))",
 "OccurrenceStatus is Present",
 "TaxonKey is Aves"
 ]
}

 The dataset includes 89 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0159893-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.g8adsx
title: Occurrence Download

description: A dataset containing 1213 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Suaeda salsa (L.) Pall."
 ]
}

 The dataset includes 1213 records from 84 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0178420-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.nrtv8v
title: Occurrence Download

description: A dataset containing 2 species occurrences available in GBIF matching the query:
{
 "and" : [
 "Geometry POLYGON((-82.18811 -48.48457,-54.81189 -48.48457,-54.81189 -37.51543,-82.18811 -37.51543,-82.18811 -48.48457))",
 "HasCoordinate is true",
 "HasGeospatialIssue is false",
 "OccurrenceStatus is Present",
 "TaxonKey is Junellia coralloides M.Sheader & A.Sheader"
 ]
}

 The dataset includes 2 records from 1 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0181415-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.jmmqk5
title: Occurrence Download

description: A dataset containing 18 species occurrences available in GBIF matching the query:
{
 "TaxonKey" : [
 "is Asclepias mirifica Woodson"
 ]
}

 The dataset includes 18 records from 9 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0159898-220831081235567/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.15468/dl.rtktxa
title: Occurrence Download

description: A dataset containing 0 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Festuca bromoides Michx., 1803",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 0 records from 0 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0181389-220831081235567/datasets/export for details.
DOI: 10.6084/m9.figshare.29126513
title: Synthetic logging data set

description: Synthetic logging data set based on deep neural network training
DOI: 10.24373/pdsp-111
title: Smoking & Tobacco Observations

description: This concept set contains the PEDSnet-specified SNOMED codes used to identify smoking & tobacco observations as listed in the PEDSnet Data Model specifications. It has been used in the PEDSnet Network Data Quality program. to evaluate the population of these observations throughout the network
description: This concept set is intended to identify smoking & tobacco observations.
DOI: 10.24373/pdsp-264.2
title: Serum Hemoglobin, Lab Results

description: The measurement concept set includes all serum/blood/plasma hemoglobin labs. The original code list was generated by searching all mentions of 'hemoglobin' with 'serum', 'plasma' or 'blood' in the concept_name. Limited to LOINC codes. Removed types of Hemoglobin (Hemglobin A, B, etc), and terms like methemoglobin, fetal, glucose, etc. One additional concept was added to the second version to better fit its use case.
description: A concept set indicating that a patient received a laboratory measurement for serum hemoglobin.
description: Original concept set developed for Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for alanine transaminase (ALT) labs. It was reused for the study "Natural History of Enteroviral Sepsis Using Real World Data" after slight modifications.
DOI: 10.24373/pdsp-1
title: Congenital High Airway Obstruction Syndrome (CHAOS)

description: Concept set used to identify patients born with Congenital High Airway Obstruction Syndrome (CHAOS). This set is intended to be used in conjunction with several other concept sets identifying patients with rare congenital diseases (linked below).
description: Concept set to identify patients born with CHAOS syndrome.
description: This concept set was developed for a PEDSnet feasibility query investigating readily identifiable rare congenital anomalies.
DOI: 10.24373/pdsp-94
title: Bronchiolitis

description: This concept set is inteded to identify patients with a diagnosis of bronchiolitis, any origin.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-36
title: Pneumonia

description: This concept set is inteded to identify patients with a diagnosis of pneumonia.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-38
title: Sickle Cell Disease Associated Pain

description: The concept set was generated by searching for terms that related to pain in a SCD subset population. The code set is a part of a clinical variable definition for inpatient hospitalization. To be classified with pain hospitalization, a patient needs to have at least one occurrence of diagnosis code in the inpatient visit OR two exposures to opioids on separate days. Face validity was checked using manual review on a small subset of patient. 100% specificity and sensitivities were seen. <br> NOTE : This code set is only application for pain hospitalizations in SCD population. The code sets should be expanded to explore coding practices at other institutions as it was validated against CHOP's data only.
description: Concept set intended to identify sickle cell disease patients who had an episode of inpatient hospitalization for pain.
description: This concept set was used for Impact of the 2014 NHLBI Guidelines on Cerebrovascular Events in Sickle Cell Disease to indentify sickle cell patients with hospitalizations for pain.
DOI: 10.24373/pdsp-20
title: Observation Table Valueset

description: This concept set was developed for the PEDSnet Network Data Quality program to help identify cases where a non-valueset concept was present in the data.
description: This concept set reflects the controlled valueset for observation_concept_id, based on the specifications established in the PEDSnet CDM.
DOI: 10.15468/dl.uwgp3d
title: Occurrence Download

description: A dataset containing 175450 species occurrences available in GBIF matching the query:
{
 "and" : [
 "PublishingOrg is 90cc71b0-055b-11d8-b84e-b8a03c50a862",
 "HasCoordinate is true",
 "HasGeospatialIssue is false"
 ]
}

 The dataset includes 175450 records from 3 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009946-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-39
title: Pain Intensity, PROMIS Measure

description: Two concept sets which inform one another to identify patient reported pain intensity. The first concept set, `promis_pain_intensity.csv` was developed to identify the questions that make up the Pain Intensity Patient Reported Outcome Measurement Information System (PROMIS) measure. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. Self reported and parent proxy questions are identified in the concept set to aid in categorizing responses, especially in pediatric cohorts. Only this file is necessary to define a cohort of patients with a PROMIS measure for pain intensity. The second concept set, `promis_pain_intensity_values.csv` was developed to identify the ANSWERS (i.e. `value_as_concept_id`) to the questions that make up the Pain Intensity Patient Reported Outcome Measurement Information System (PROMIS) measure. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting `concept_id_2` where `relationship_id` = ‘Has Answer’.
description: Concept sets intended to identify the presence and responses to the PROMIS measure for pain intensity.
description: This concept set was developed in support of quarterly network data quality analysis of the PEDSnet database.
DOI: 10.24373/pdsp-24
title: Skin Rash

description: This concept set contains skin disorders and changes which could be attributable to another disease. This codeset was developed by a clinician workgroup in RECOVER led by Grace Lee to include skin signs and symptoms that would be of interest when looking at the impact of COVID19 on pediatric patients. This concept set alone was not reviewed by a clinician, but it was a component of a larger codeset that was reviewed by Chris Forrest. It was developed as part of syndromic conditions for a RECOVER study manuscript exploring features of PASC in children. This concept set contains ICD10 and ICD10CM diagnoses. There are not versions of the codes without decimal points in the concept set. This concept set is fairly study-specific and does not necessarily identify rash. It contains non-specific codes such as "pallor", "unspecified skin changes", and skin sensations such as paresthesia. This concept set contains additional columns "systemic" and "syndromic" which were used as classification categories for the study to differentiate between conditions (systemic) and symptoms (syndromic) in addition to a "condition_category" which was a further classification mechanism which could be rolled up with other codes. In this concept set, all condition_category are "other".
description: This concept set is inteded to identify patients with a diagnosis of signs and symptoms of skin and subcutaneous disturbances.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-274
title: Gestational Age, Lab Results

description: This concept set contains a single code pertaining to gestational age. There was an interest in examining the effect of gestational age/pre-term birth across a number of PRESERVE sub-studies or manuscripts. However, data quality analyses indicated high missingness for this clinical concept. This was not a high priority variable for PRESERVE. Given these considerations, gestational age is not included in final analyses. This LOINC code was selected by the PRESERVE Coordinating Center as the code that PRESERVE sites should use to represent gestational age in their PRESERVE PCORnet CDM submissions. PRESERVE sites were instructed to represent gestational age information with this code in the obs_gen table (obsgen_type = 'LC', obsgen_code = ''18185-9", obsgen_result_unit = 'wk', obsgen_result_num = weeks and fraction of week). Representing gestational age exclusively with this LOINC code is specific to the PRESERVE study. It is anticipated that the main PEDSnet and PCORnet databases use a greater range of codes. Note: This concept set should not be used in non-PRESERVE studies without substantial updates.
description: A concept set indicating that a patient received a laboratory measurement for gestational age.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study.
DOI: 10.24373/pdsp-115
title: Viral Illness

description: Concept set developed for the Y2, Q3 sickle cell disease query; refined during autoimmune disease collaborative manuscript work; used in the sickle cell disease manuscript.
description: This concept set is inteded to identify patients with a diagnosis of a viral illness.
description: This concept set was developed as an outcome for a sickle cell disease manuscript as part of the Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study.
DOI: 10.24373/pdsp-314
title: Opioid, Drug Exposure

description: This medication concept set includes the following opioids: tilidine, tramadol, buprenorphine, butorphanol, dezocine, codeine, fentanyl, dihydrocodeine, morphine, hydromorphone, Ketobemidone, meperidine, methadone, nalbuphine, opium, oxycodone, papaveretum, pentazocine, pirinitramide, propoxyphene, or tapentadol. The concept set was re-used from prior work in a PKIDS study for work investigating sickle cell disease. The code set is a part of a clinical variable definition for inpatient hospitalization. To be classified with pain hospitalization, a patient needs to have a tleast one occurrence of diagnosis code in the inpatient visit OR two exposures to opioids on separate days. Face validity was checked using manual review on a small subset of patient. 100% specificity and sensitivities were seen.
description: Concept set intended to identify patients with an exposure to opioids.
description: This concept set was first used as part of the Outcomes of Children with Kidney Stones: Retrospective Cohort Study. The concept set was then re-used in 2024 for Impact of the 2014 NHLBI Guidelines on Cerebrovascular Events in Sickle Cell Disease to identify sickle cell patients with hospitalizations for pain.
DOI: 10.24373/pdsp-147
title: Anemia, Diagnosis

description: This concept set contains diagnoses for anemia and associated complications. The set was developed as part of a study to assess whether patients had a record of anemia or associated symptoms before and after a diagnosis of primary hyperoxaluria, type 1 (PH1). As very few patients with diagnosed anemia were found, anemia was ultimately not included as a covariate in the analyses. This concept was developed from a list of ICD-10 codes provided by the requestor which had been used for anemia for another (non-PEDSnet) study. All of the ICD-10 codes started with D5*. Those codes were mapped to SNOMED and supplemented with basic string searching (e.g. "anemia"). This concept set contains only SNOMED codes in the OMOP vocabulary and the domain is limited to condition_occurrence.
description: This concept set is inteded to identify patients with a diagnosis of anemia.
description: Developed in exploratory preparation for "Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1", but never used in the final study.
DOI: 10.24373/pdsp-370
title: Kidney Dialysis

description: This concept set includes all procedures related to dialysis or dialysis complications. The code list was generated by searching for all mentions of 'dialysis,' 'urinary filtration,' or 'irrigation of peritoneal cavity using dialysate' in the concept_name. This broad concept set was intended to identify patients with dialysis procedures to define a study cohort. Limited to CPT4, HCPCS, ICD-9-Proc, ICD-10-PCS, SNOMED vocabularies. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. To be as sensitive as possible, use diagnosis codes for dialysis as well.
description: Concept set intended to identify patients with kidney dialysis procedure codes.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-336
title: Vitamin B6, Drug Exposure

description: This medication concept set includes pyridoxine (B6) and all of its descendants. Combinations are included. It was developed by taking the RxNorm descendants of 19005046 (pyridoxine), 42903728 (pyridoxine dipalmitate), 19059817 (pyridoxal), and 1353228 (vitamin B6) and excluding the search terms "cream", "ointment", "buccal", "topical". This concept set was intended to investigate medication usage of patients with primary hyperoxaluria (PH) before and after diagnosis of PH, specifically for management of kidney stones. It was intended to contain non-topical formulations of pyridoxine (B6). This concept set contains only RxNorm and RxNorm Extension codes.
description: Concept set intended to identify patients with an exposure to Vitamin B6.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-136
title: Allergic Otitis Media

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map allergic otitis media diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-256
title: Urine Protein, Qualitative Lab Results

description: The measurement concept set includes all qualitative urine protein labs. This code list was generated by searching all mentions of 'protein' and 'urine', with either 'strip' or 'presence' also mentioned. Limited to LOINC codes.
description: A concept set indicating that a patient received a qualitative laboratory measurement for urine protein.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for qualitative urine protein labs.