cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.24373/pdsp-303
title: Nephrotoxic Chemotherapy, Drug Exposure

description: The concept set includes the following ingredients: Azacitidine, Bevacizumab, Bortezomib, Carboplatin, Carfilzomib, Carmustine, Cetuximab, Cisplatin, Crizotinib, Dabrafenib, Dasatinib, Everolimus, Gemcitabine, Ibrutinib, Ifosfamide, Imatinib, Lenalidomide, Lomustine, Melphalan, Methotrexate, Panitumumab, Pemetrexed, Sorafenib, Sunitinib, Temsirolimus, Vemurafenib, and Venetoclax. The approach to generating this concept set was reviewed by the Composite Renal Outcome workgroup from the PRESERVE study, including Michelle Denburg (clinician), and Charles Bailey (clinician/informaticist). The concept set itself was reviewed by Amy Goodwin Davies (data scientist). This concept set was not validated via chart review. It consists of RxNorm and NDC descendants of ATC classes for nephrotoxic chemotherapies listed in Nicolaysen et. al., 2020 (10.1053/j.ackd.2019.08.005) and in addition Cabroplatin, Melphalan, Carmustine, Lomustine, and Azacitidine as recommended by Charles Bailey (clinician/informaticist). Note: This concept set is not at the Semantic Clinical Drug Form/Semantic Clinical Drug Group level so does not adhere to current best practices within PEDSnet. This is in part because PRESERVE included distributed queries that did not use the standardized R framework. For reuse in future studies, this concept set could be restricted to SCDF/SCDG."
description: The concept set was intended to identify nephrotoxic exposures within a cohort of patients meeting criteria for Chronic Kidney Disease.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study. The concept set was intended to examine potential relationships between nephrotoxic exposures and kidney function as part of the Composite Renal Outcome workgroup.
DOI: 10.24373/pdsp-156
title: Acute Lower Respiratory Infection (Non-Asthma)

description: Concept set intended to map lower respiratory infection diagnoses concepts between SNOMED and ICD codes.
description: This concept set was created to analyze the potential for urban greenspace exposure in early life to protect against development of asthma.
DOI: 10.24373/pdsp-218
title: Intimate Partner Violence, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for intimate partner violence. These include the Humiliation, Afraid, Rape, and Kick (HARK) questionnaire. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for intimate partner violence.
DOI: 10.24373/pdsp-315.2
title: Thiazide, Drug Exposure

description: This medication concept set includes the following ingredients: Chlorothiazide, Chlorthalidone, Hydrochlorothiazide, Indapamide, and Metolazone. It also includes combinations of these ingredients with other antihypertensive medications. This code list was generated by taking the descendants of all the thiazide diuretic ingredients of interest, and also doing string matching on the concept_name of the ingredient. This broad concept set was intended to identify patients who received thiazide diuretics. Limited to NDC, RxNorm and RxNorm Extension codes. In this version of the codeset, IV and injectable drugs were excluded.
description: Concept set intended to identify patients with an exposure to thiazides. IV and injectable drugs are excluded.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.15468/dl.4n7n23
title: Occurrence Download

description: A dataset containing 124 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Mimosa skinneri carajarum",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is Fossil"
 ]
 }
 }
 ]
}

 The dataset includes 124 records from 12 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009959-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-368
title: Kidney Transplant

description: This concept set includes all procedures related to kidney transplant or related complications. The code list was generated by searching for all mentions of 'kidney' or 'renal' with 'transplant' in the concept_name. This broad concept set was intended to identify patients with kidney transplant procedures to define a study cohort. Limited to CPT4, HCPCS, ICD-9-Proc, ICD-10-PCS, SNOMED procedures. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. Note: To be as sensitive as possible, use diagnosis codes for kidney transplants as well.
description: Concept set intended to identify patients having undergone a kidney transplant procedure.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-390
title: In-Person Visits

description: This concept set is intended to identify any healthcare encounter in which a patient had direct contact with a physician, including telehealth encounters. It can be used to comply with the standard PEDSnet definition of an in-person visit.
description: Concept set intended to identify in-person healthcare encounters based on the visit_concept_id in the visit_occurrence table.
DOI: 10.24373/pdsp-361
title: COVID-19 Vaccinations

description: This concept set contains codes for COVID-19 vaccinations. It was developed to monitor patients with COVID vaccinations through the PEDSnet Network Data Quality program.
description: This concept set is intended to identify COVID-19 immunizations.
DOI: 10.24373/pdsp-107
title: Psoriasis

description: This concept set contains diagnosis codes for psoriasis. This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC. The code list was generated by searching for all descendants of the SNOMED code 9014002 (Psoriasis) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "psoria" and excluding the terms "family history", "questionnaire", "index", and "education". The concept set was limited to ICD10, ICD10CM and SNOMED vocabularies. The domain_id of "measurement" was excluded from the concept set; both "condition" and "observation" domain_id are present.
description: This concept set is inteded to identify patients with a diagnosis of psoriasis.
description: The original concept set was developed for the initial RECOVER work exploring clinical features of PASC in children. This codeset was a part of the autoimmune conditions subset of features.
DOI: 10.24373/pdsp-122
title: Anxiety

description: This concept set is inteded to identify patients with a diagnosis of anxiety.
description: Healthy Weight Network Clinic Survey
DOI: 10.24373/pdsp-234
title: Housing Stability, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for housing stability. These include the AHC HRSN Living Situation and the Children's Health Watch Housing Stability Vital Signs. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for housing stability.
DOI: 10.24373/pdsp-126
title: Major Depressive Disorder

description: This concept set is inteded to identify patients with a diagnosis of major depressive disorder.
description: Healthy Weight Network Clinic Survey
DOI: 10.24373/pdsp-396
title: Neurology Providers and Care Sites

description: This concept set is intended to identify encounters with neurology providers and care sites.
description: Skeletal and Cranial Growth Among Children with Achondroplasia
DOI: 10.24373/pdsp-125
title: Headache for PRESERVE

description: This condition concept set includes all headache and migraine related conditions. This code list was generated by taking all descendants of the SNOMED code 230461009 for headache, related ICD9/10/10CM codes and searching all mentions of 'headache' or 'migraine' in the concept_name. This included string searching to remove terms like 'history of' or mentions of some headache medications. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is intended to identify patients with a diagnosis of headache.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for diagnoses of headache.
DOI: 10.24373/pdsp-277
title: Urine Protein, Quantitative Lab Results

description: The measurement concept set includes all quantitative measures of urine protein. This code list was generated by searching all mentions of 'urine' and 'protein' in the concept_name, without terms like 'strip' or 'presence' which are used in the qualitative labs. Limited to LOINC. This is mutually exclusive with the qualitative urine protein concept set.
description: A concept set indicating that a patient received a quantitative laboratory measurement for urine protein.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for quantitative urine protein labs.
DOI: 10.24373/pdsp-26
title: Atopic Dermatitis

description: This concept set is inteded to identify patients with a diagnosis of atopic dermatitis.
description: Creation of Computable Alopecia Areata Phenotype to Evaluate Epidemiology of Pediatric Alopecia Areata and Potential Health Care Disparities in care among children living with Alopecia Areata
DOI: 10.24373/pdsp-270
title: Serum Cystatin, Lab Results

description: The measurement concept set includes all serum/blood/plasma cystatin labs. This code list was generated by searching all mentions of 'cystatin' with 'serum', 'plasma' or 'blood' in the concept_name. Limited to LOINC codes.
description: A concept set indicating that a patient received a laboratory measurement for serum cystatin.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for serum cystatin lab values.
DOI: 10.24373/pdsp-184
title: Sleep Disturbance

description: Only SNOMED codes were used in the development of this concept set.
description: This concept set is inteded to identify patients with a diagnosis of sleep disturbance.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.15468/dl.wbejy9
title: Occurrence Download

description: A dataset containing 41 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Chasmocranus quadrizonatus",
 "DecimalLatitude is not null",
 "DecimalLongitude is not null"
 ]
}

 The dataset includes 41 records from 6 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009960-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-372
title: Percutaneous Nephrolithotomy

description: This procedure codeset contains codes for percutaneous nephrolithotomy (PCNL), a kidney stone removal procedure. It was developed by searching for the strings "nephrolithotomy" or "nephrostolithotomy" or the CPT4 code 50561 and excluding the CPT4 code 76001 in the measurement or procedure domains with the vocabularies ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, OPCS4.
description: Concept set intended to identify patients having undergone a ureteroscopy procedure.
description: This concept set was developed to look into the frequency of different procedures related to stone surgery in patients with primary hyperoxaluria (PH) as well as differences in surgical approaches across different PH types (PH1, PH2, PH3) for A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2).
DOI: 10.24373/pdsp-152
title: Malaise and Fatigue

description: This concept set is inteded to identify patients with a diagnosis of malaise and fatigue.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-182
title: Sore Throat

description: This concept set is inteded to identify patients with a diagnosis of sore throat.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-149
title: Intellectual Disability

description: This concept set is inteded to identify patients with a diagnosis of intellectual disability.
description: PEDSnet Infrastructure
DOI: 10.24373/pdsp-141
title: Diabetes

description: This concept set is inteded to identify patients with a diagnosis of diabetes.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-17
title: Diarrhea

description: This concept set is inteded to identify patients with a diagnosis of diarrhea.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-190
title: Carditis Type Conditions

description: This codeset was created using standard carditis related concepts and then grabbing descendants for those concepts. Then string searching for 'carditis' in condition_concept_name and condition_source_value within condition_occurrence table. Those additional mapped concepts were added in. Clinician reviewers also helped trim down the codeset.
description: This concept set was used to identify patients who had a diagnosis of carditis. Carditis refers to a group of diagnoses that include pericarditis, endocarditis, and myocarditis.
description: Developed for Neonatal Enteroviral Sepsis (NES) study to locate carditis type diagnoses for neonates/infants.
DOI: 10.24373/pdsp-221
title: Physical Activity SDOH Measure Responses

description: This concept set was developed to identify the ANSWERS to the questions that make up the Social Determinants of Health (SDOH) metrics for physical activity. These include the AHC HRSN Physical Activity and Exercise Vital Sign. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting concept_id_2 where relationship_id = 'Has Answer'.
description: This concept set is intended to identify the responses to the physical activity SDOH measure(s).
DOI: 10.24373/pdsp-57
title: Celiac Disease

description: The condition concept set contains terms for and related to celiac disease. The code list was generated by searching for all descendants of the SNOMED code 396331005 (Celiac disease) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants. String matching was also performed to supplement the code list looking for the string "celiac" in the condition domain and excluding the terms "family history", "artery", "arteries", "axis", "plexus", "non-celiac", "lymph", "gangli", "branch", "mesenteric", "screening", "review", "shunt", "monitoring", "angio", "education", "aneurysm".
description: This concept set is inteded to identify patients with a diagnosis of celiac disease.
description: This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC.
DOI: 10.24373/pdsp-88
title: Wheeze

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map wheeze diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-91
title: Congenital Diaphragmatic Hernia

description: Diagnosis codeset to identify patients born with congenital diaphragmatic hernia. This concept set is intended to be used in conjunction with several other concept sets identifying patients with rare congenital diseases (linked below).
description: Concept set intended to identify patients born with congenital diaphragmatic hernia.
description: This concept set was developed for a PEDSnet feasibility query investigating readily identifiable rare congenital anomalies.
DOI: 10.24373/pdsp-288.2
title: Beta Blocker, Drug Exposure

description: This medication concept set includes the following ingredients: Acebutolol, Atenolol, Betaxolol, Bisoprolol, Carteolol, Carvediol, Labetalol, Metoprolol, Nadolol, Nebivolol, Penbutolol, Pindolol, Propanolol, Sotalol, Timolol. Combinations are also included.
description: Concept set intended to identify patients with an exposure to a beta blocker.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-286.2
title: Systemic Steroid, Drug Exposure

description: This medication concept set includes the following systemic steroids: prednisone, prednisolone, methylprednisolone, hydrocortisone, dexamethasone, and triamcinolone.
description: Concept set intended to identify patients with an exposure to systemic steroids in the treatment of lupus.
description: The original concept set was developed for the study, "Membranoproliferative Glomerulonephritis (MPGN) in PEDSnet." This version expands the previous version by including hydrocortisone, dexamethasone, and triamcinolone to incorporate steroids used in the treatment of lupus.
DOI: 10.24373/pdsp-227
title: Race Valueset (Person)

description: This concept set was developed for the PEDSnet Network Data Quality program to help identify cases where a non-valueset concept was present in the data.
description: This concept set reflects the controlled valueset for race_concept_id.
DOI: 10.24373/pdsp-378
title: Primary Care, Facility

description: This concept set contains codes intended to identify primary care visits (in combination with the primary care provider concept set). This concept set was generated by restricting the PCORnet CDM value set to facility types that are consistent with primary care (e.g., family medicine or outpatient pediatric clinic not otherwise specified). This value set is PCORnet-specific. Note: this concept set could benefit from additional review and validation.
description: Concept set intended to assess the frequency with which patients sought care with specialties involved in patient care for and related to primary care.
description: This concept set was developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study. Primary care visits per person year was summarized for PRESERVE cohorts, however, this was not a high priority variable for the study.
DOI: 10.24373/pdsp-322
title: Acetazolamide, Drug Exposure

description: This concept set is inclusive of acetazolamide drug exposure by oral, injectable, and topical routes.
description: Concept set intended to identify patients with an Acetazolamide exposure.
description: Outcomes of Children with Kidney Stones: Retrospective Cohort Study
DOI: 10.24373/pdsp-145
title: Scleroderma

description: This concept set contains diagnoses for and related to scleroderma. This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC. The code list was generated by searching for all descendants of the SNOMED codes 201049004 (Morphea) or 128460000 (Systemic sclerosis, diffuse) plus all ICD10 or ICD10CM codes mapping to those SNOMED descendants in addition to ICD10/ICD10CM codes starting with M34*. String matching was also performed looking for the strings "scleroderma", "systemic sclerosis" or "morphea" in domains excluding the measurement domain and excluding the terms "family history", "fh:", "assessment", "pseudo", "scleroderma-like", "edta", "wasp", "fung", "sclerodermataceae", "species". This concept set was limited to ICD10, ICD10CM, and SNOMED vocabularies and excluding terms in the measurement domain.
description: This concept set is inteded to identify patients with a diagnosis of scleroderma.
description: The original concept set was developed for the initial RECOVER work exploring clinical features of PASC in children. This codeset was a part of the autoimmune conditions subset of features.
DOI: 10.24373/pdsp-328
title: Cyclophosphamide, Drug Exposure

description: Concept set intended to identify patients with the immunosuppressive medication cyclophosphamide.
description: Membranoproliferative Glomerulonephritis (MPGN) in PEDSnet
DOI: 10.24373/pdsp-219
title: Stress SDOH Measure Responses

description: This concept set was developed to identify the ANSWERS to the questions that make up the Social Determinants of Health (SDOH) metrics for stress. These include the Occupational Stress Questionnaire (OSQ). These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting concept_id_2 where relationship_id = 'Has Answer'.
description: This concept set is intended to identify the responses to the stress SDOH measure(s).
DOI: 10.24373/pdsp-100
title: Antineutrophil Cytoplasmic Antibodies (ANCA)

description: Codeset to identify patients with ANCA diagnoses.
DOI: 10.24373/pdsp-225
title: Postpartum Depression, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for postpartum depression. These include the Edinburgh Postnatal Depression Screen. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for postpartum depression.
DOI: 10.24373/pdsp-46
title: Asthma

description: This condition concept set includes all asthma-related conditions. This code list was generated by taking all descendants of the SNOMED code 195967001 for Asthma, related ICD9/10/10CM codes, and searching all mentions of ‘asthma’ in the concept_name. Diagnoses with terms like ‘family history’ were not included. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set is intended to identify patients with an asthma diagnosis
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for diagnoses of tonsillitis.
DOI: 10.24373/pdsp-253
title: Sedimentation Rate, Lab Results

description: A concept set indicating that a patient received a laboratory measurement for sedimentation rate.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-261
title: Protein S, Lab Results

description: The concept set was generated by searching for terms protein S in the vocabulary table limiting to LOINC code for Lab domain.
description: A concept set indicating that a patient received a laboratory measurement for protein S.
description: This concept set was used for Impact of the 2014 NHLBI Guidelines on Cerebrovascular Events in Sickle Cell Disease to indentify sickle cell patients with altest one lab record of Protein S.