cometadata/datacite-titles-descriptions-related-identifiers huggingface dataset:
DOI: 10.24373/pdsp-123.2
title: Glomerular Disease, SNOMED-Only Codes

description: This concept set contains codes pertaining to glomerular disease, glomerulonephritis, nephritic syndrome, and nephrotic syndrome. The original concept set was intended to identify a cohort of patients with glomerular disease when incorporated into the computational phenotype originally developed and validated by Denburg et al 2019 (DOI: 10.1681/ASN.2019040365). The original concept set was developed by mapping a list of ICD-9-CM codes provided by Michelle Denburg (clinician) to SNOMED. This concept set was updated from the original by taking the descendants for and string-matching for the following SNOMED-CT concepts: glomerular disease, glomerulonephritis, nephritic syndrome, nephrotic syndrome. The resulting concept set was combined with the original concept set and further refined via review with Michelle Denburg (clinician).
description: This concept set is inteded to identify patients with a diagnosis of glomerular disease.
description: This glomerular disease concept set was updated for the Comparative Effectiveness of Treatments for Recurrent Focal Segmental Glomerulosclerosis (FSGS) in Pediatric Kidney Transplantation study. The original concept set was developed and used for the Membranoproliferative Glomerulonephritis (MPGN) in PEDSnet study.
DOI: 10.24373/pdsp-48
title: Severity Class 2, Diagnoses

description: This concept set is inteded to identify patients with a diagnosis of Severity Class 2.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-158
title: IgA Nephropathy

description: This concept set is inteded to identify patients with a diagnosis of IgA Nephropathy.
description: This concept set was created for the "Detection of and Characteristics of Disease Progression in Children with CKD" study.
DOI: 10.24373/pdsp-165
title: Acute Upper Respiratory Infection

description: This concept set is one of a set which was created en masse to evaluate Asthma as part of a study. ICD-10 and ICD-10-CM codes were requested specifically by the study PI and mapped to SNOMED by the developer.
description: Concept set intended to map upper respiratory infection diagnoses concepts between SNOMED and ICD codes.
description: This concept set was developed for the study "Neighborhood Greenspace as a Protective Factor Against Childhood Asthma."
DOI: 10.24373/pdsp-83
title: Atopic Dermatitis

description: This concept set was developed by a data scientist (KH) for a study led by CHOP clinicians Dr. Jonathan Spergel and Dr. Stan Gabryszewski, which investigates dupilumab use and autoimmune diseases in patients with asthma and atopic dermatitis. The codeset was used to define a broad cohort of patients with atopic disease, including patients with atopic dermatitis. The codeset is designed for use with the PEDSnet data model.
description: Concept set intended to identify patients with a diagnosis of atopic dermatitis to define a study cohort.
description: This concept set was developed for the "Effect of Dupilumab on Onset of Type 1 Disease" study (Incidence of Autoimmune Diseases in Children with Atopy Treated with Dupilumab) to define a cohort of patients with atopic disease, including atopic dermatitis.
DOI: 10.24373/pdsp-364
title: Bone Density Procedures

description: This procedure concept set contains codes for bone density scans, also known as DEXA/DXA scans. It was developed by searching for the terms "bone density" or "dexa" and excluding the string "dexamethasone" in the procedure and measurement domains with the vocabularies ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, OPCS4.
description: Concept set intended to identify patients having undergone a bone density measurement procedure.
description: It was developed to identify testing related to known organ involvement of PH and to observe the difference between the frequency of testing before and after diagnosis of PH for A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2).
DOI: 10.24373/pdsp-41
title: Retinopathy and Other Retinal Conditions

description: This diagnosis concept set includes diagnoses for and related to retinopathy. The sponsor was interested in exploring common symptoms of patients with primary hyperoxaluria, type 1 (PH1). We assessed whether there was record of each symptom both before and after the patient was diagnosed with PH1. We found very few patients with diagnosed retinopathy or other retinal conditions and ultimately did not include it as a covariate in the analyses. The study PI, Greg Tasian, provided a list of ICD10 and ICD10CM codes which were mapped to SNOMED codes and expanded to include all descendants of those SNOMED codes. The concept set was intended to be broad as it was used in exploratory analyses. The concept set contains only diagnoses in the SNOMED vocabulary.
description: This concept set is inteded to identify patients with diagnoses related to retinopathy or retinal conditions.
description: Health Services and Clinical Characteristics that Precede Diagnosis of Primary Hyperoxaluria Type 1
DOI: 10.24373/pdsp-302
title: Anti-Asthmatic Agent, Drug Exposure

description: This concept set was developed by a data scientist (KH) for a study led by CHOP clinicians Dr. Jonathan Spergel and Dr. Stan Gabryszewski, which investigates dupilumab use and autoimmune diseases in patients with asthma and atopic dermatitis. The codeset was used to identify patients with indication of moderate-to-severe asthma, based on their combinations of asthma drugs. The codeset is designed for use with the PEDSnet data model. The "category" column includes various types of asthma drugs, which together may provide information about asthma severity: injection, short-acting beta agonist (SABA), leukotriene receptor antagonists (LTRA), inhaled corticosteroids (ICS), long-acting beta agonist (LABA), combination ICS and LABA (combo), Cromolyn, zileuton, and theophylline.
description: Concept set intended to identify patients with asthma medications for the purpose of defining a study cohort of patients with moderate-to-severe asthma.
description: This concept set was developed for the "Effect of Dupilumab on Onset of Type 1 Disease" study (Incidence of Autoimmune Diseases in Children with Atopy Treated with Dupilumab) to define a cohort of patients with moderate-to-severe atopic disease, including moderate-to-severe asthma.
DOI: 10.24373/pdsp-235
title: Depression SDOH Measure Responses

description: This concept set was developed to identify the ANSWERS to the questions that make up the Social Determinants of Health (SDOH) metrics for depression. These include the Patient Health Questionnaire (PHQ) 2, 8, and 9. These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0. They were identified by joining the concept set with the questions to the concept_relationship table and extracting concept_id_2 where relationship_id = 'Has Answer'.
description: This concept set is intended to identify the responses to the depression SDOH measure(s).
DOI: 10.24373/pdsp-194
title: Gastrointestinal Symptoms

description: This condition concept set includes all GI symptom related conditions for vomiting, diarrhea and abdominal pain. This code list was generated by taking all descendants of the SNOMED code 300359004 for vomiting, 62315008 for diarrhea and 21522001 for abdominal pain, related ICD9/10/10CM codes and searching all mentions of 'asthma' in the concept_name. ICD codes are included with and without decimal points, indicated by cc_decimal_removal. This concept set is limited to ICD9, ICD10, ICD10CM, and SNOMED diagnosis codes. Diagnoses with terms like 'family history,' 'newborn,' 'pregnancy'/'gestation,' and other terms were not included.
description: This concept set is intended to identify patients with a diagnosis of gastrointestinal symptoms.
description: Developed for the Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE) study for diagnoses of GI symptoms.
DOI: 10.24373/pdsp-281
title: COVID-19, Lab Results

description: This concept set contains codes to identify COVID-19 lab tests. It is a slightly expanded version of a concept set that was developed for the RECOVER project that is now being used for the PEDSnet Network Data Quality program.
description: A concept set indicating that a patient received a laboratory test for COVID-19.
DOI: 10.24373/pdsp-113
title: Guillain-Barré Syndrome

description: This concept set is inteded to identify patients with a diagnosis of Guillain-Barre Syndrome.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-365
title: Respiratory Syncytial Virus (RSV), Procedures

description: Concept set intended to identify patients having undergone a procedure(s) related to respiratory syncytial virus (RSV).
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-108
title: Nausea and Vomiting

description: This concept set is inteded to identify patients with a diagnosis of nausea and vomiting.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-276
title: Enterovirus (EV), Lab Results

description: This codeset was created by searching and string matching using the terms 'enterovir', 'parechovirus', and 'echovirus'. The intention of this codeset was to identify patients who had record of positive enterovirus labs.
description: A concept set indicating that a patient received a laboratory test for enterovirus (EV).
description: Developed for Neonatal Enteroviral Sepsis (NES) study to locate enterovirus labs for neonates/infants.
DOI: 10.24373/pdsp-137
title: Cystic Fibrosis

description: This diagnosis concept set includes cystic fibrosis diagnosis codes. Developed for the Dicerna study, the code list was generated by searching for all mentions of cystic fibrosis in the concept_name and descendants of the SNOMED code for cystic fibrosis.
description: This concept set is inteded to identify patients with a diagnosis of cystic fibrosis.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2)
DOI: 10.15468/rq3h6x
title: New and little-known bees of the genus Colletes Latreille, 1802 (Hymenoptera, Colletidae) from the Nakhchivan Autonomous Republic of Azerbaijan, with descriptions of two new species

description: This dataset contains the digitized treatments in Plazi based on the original journal article Kuhlmann, Michael, Proshchalykin, Maxim Yu., Maharramov, Mahir M. (2026): New and little-known bees of the genus Colletes Latreille, 1802 (Hymenoptera, Colletidae) from the Nakhchivan Autonomous Republic of Azerbaijan, with descriptions of two new species. ZooKeys 1268: 95-112, DOI: 10.3897/zookeys.1268.174008AbstractData on 14 species of the genus Colletes Latreille, 1802 collected in the Nakhchivan Autonomous Republic of Azerbaijan in 2018–2025 are provided. Among them, Colletes perplexus sp. nov. is described as new to science. Colletes caskanus (Strand, 1919), C. glaber Warncke, 1978 and C. idoneus Cockerell, 1922 are newly recorded from Azerbaijan and ten species are newly recorded from the Nakhchivan Autonomous Republic. Now 43 species of Colletes are known from Azerbaijan. As a result of its first discovery in Azerbaijan, the intraspecific variation of the variable C. glaber was examined through its range and the new species C. quadratus Kuhlmann, sp. nov. from southeastern Turkey is described.
DOI: 10.24373/pdsp-138
title: Renal Artery Stenosis

description: This condition concept set includes 2 diagnosis codes for renal artery stenosis. The codes were provided by clinicians working on the PRESERVE study. Limited to ICD9CM and ICD10CM diagnosis codes. ICD codes are included with and without decimal points, indicated by cc_decimal_removal.
description: This concept set was created to identify patients with a diagnosis of renal artery stenosis to apply an exclusion for a subset of analyses.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-42
title: Allergic Rhinitis

description: This concept set is inteded to identify patients with a diagnosis of allergic rhinitis.
description: NEST R2: AventaMed - Typmpanostomy Tube Insertion Treatment Episodes: Practice Variation and Outcomes
DOI: 10.24373/pdsp-357.2
title: Shockwave Lithotripsy

description: This concept set contains codes for shockwave lithotripsy (SWL), a stone removal procedure. It was developed by performing a string search for "shock"+"lithotripsy" or "eswl" and excluding the terms "penis", "tendin", "gall", "tendon", "panc", "bile" in the vocabularies ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, and OPCS4 in the measurement and procedure domains. This concept set is limited to the ICD10PCS, HCPCS, ICD9Proc, CPT4, SNOMED, and OPCS4 vocabularies in the procedure and measurement domains. This concept set contains all of the codes in the previous codeset with the addition of a few that do not explicitly mention shockwave lithotripsy/SWL, but contain language such as "fragmentation in" kidney/ureter/pelvis/bladder. These may or may not be specific enough to identify the procedure as SWL for the study purpose.
description: Concept set intended to identify patients having undergone a shockwave lithotripsy procedure.
description: The original concept set was developed for A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2). This expanded set was utilized for the P50 clinical insights report.
DOI: 10.24373/pdsp-296
title: Furosemide, Drug Exposure

description: This concept set is inclusive of furosemide drug exposures by oral and injectable routes.
description: Concept set intended to identify patients with an exposure to Furosemide.
description: Outcomes of Children with Kidney Stones: Retrospective Cohort Study
DOI: 10.24373/pdsp-27
title: Bronchitis

description: This concept set is inteded to identify patients with a diagnosis of bronchitis.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-239
title: Social Vulnerability Index

description: Concept set compiled based on the United States 2020 Census Survey.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-304
title: Anti-Asthmatic Agent, Drug Exposure

description: Concept set intended to identify patient who received a medication associated with asthma treatment.
description: This concept set was created to analyze the potential for urban greenspace exposure in early life to protect against development of asthma.
DOI: 10.24373/pdsp-287
title: Intravenous Anti-Diabetic Agent, Drug Exposure

description: Concept set intended to identify patients with an exposure to an intravenous anti-diabetic agent.
description: Healthy Weight Network Clinic Survey
DOI: 10.24373/pdsp-294
title: Oral Deflazacort, Drug Exposure

description: This concept set contains oral deflazacort. There are no combinations. This concept set was generated by taking all descendants of oral deflazacort from the SCDG level. The codeset was reviewed by the PRESERVE BPZ workgroup led by Mark Mitsnefes. This codeset was created as part of the inclusion/exclusion criteria for the cohort of patients for the development and evaluation of EHR-based pediatric blood pressure Z-scores. One of the exclusion criteria was exposure to specific steroids (including oral deflazacort) at any time. This concept set is limited to medications in the RxNorm and RxNorm Extension vocabularies.
description: Concept set intended to identify patients with an exposure to oral Deflazacort.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-353.2
title: Supplemental Oxygen

description: Concept set intended to identify patients having undergone a supplemental oxygen procedure.
description: Original concept set was developed for a RECOVER query. It was reused for the study "Natural History of Enteroviral Sepsis Using Real World Data" after slight modifications.
DOI: 10.24373/pdsp-164
title: Shock

description: This concept set is inteded to identify patients with a diagnosis of shock.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-283
title: Sodium, Lab Results

description: A concept set indicating that a patient received a laboratory measurement for sodium.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study. <br> It was originally developed for a PASC manuscript in the RECOVER project to identify abnormal lab values for the study cohort.
DOI: 10.24373/pdsp-55
title: Respiratory Syncytial Virus (RSV)

description: This concept set is inteded to identify patients with a diagnosis of respiratory syncytial virus (RSV).
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.15468/dl.due5k3
title: Occurrence Download

description: A dataset containing 3 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Lepanthopsis barahonensis",
 "HasCoordinate is true",
 "BasisOfRecord is one of (Specimen)"
 ]
}

 The dataset includes 3 records from 2 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009968-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-168
title: Antiphospholipid Syndrome

description: The condition concept set contains terms for and related to antiphospholipid syndrome. The code list was generated by searching for all descendants of the SNOMED code 26843008 (Antiphospholipid syndrome) plus all ICD-10 or ICD-10-CM codes mapping to those SNOMED descendants. String matching was also performed looking for the string "antiphospholipid syndrome" in the condition domain and excluding the term "family history".
description: This concept set is inteded to identify patients with a diagnosis of antiphospholipid syndrome.
description: This was developed as part of autoimmune/chronic conditions for a RECOVER study manuscript exploring features of children with PASC.
DOI: 10.24373/pdsp-54
title: Major Depressive Disorder

description: This concept set is intended to identify patients with a diagnosis of major depressive disorder.
description: This concept set was created for the Pediatric Big Data Project.
DOI: 10.15468/dl.3xqadr
title: Occurrence Download

description: A dataset containing 11 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Horiomyzon retropinnatus",
 "DecimalLatitude is not null",
 "DecimalLongitude is not null"
 ]
}

 The dataset includes 11 records from 5 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009970-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-215
title: Stress, SDOH Measure

description: This concept set was developed to identify the questions that make up the Social Determinants of Health (SDOH) metrics for stress. These include the Occupational Stress Questionnare (OSQ). These elements were identified by PCORnet as part of the CDM enhancement efforts for version 7.0.
description: This concept set is intended to identify the SDOH measure(s) for stress.
DOI: 10.15468/dl.chkpyy
title: Occurrence Download

description: A dataset containing 140 species occurrences available in GBIF matching the query:
{
 "and" : [
 "TaxonKey is Monogereion carajensis",
 "HasCoordinate is true",
 "OccurrenceStatus is Present",
 {
 "not" : {
 "BasisOfRecord" : [
 "is Fossil"
 ]
 }
 }
 ]
}

 The dataset includes 140 records from 15 constituent datasets; see https://api.gbif.org/v1/occurrence/download/0009971-260208012135463/datasets/export for details.
 
Data from some individual datasets included in this download may be licensed under less restrictive terms.
DOI: 10.24373/pdsp-212
title: Anorexia Nervosa

description: This concept set is inteded to identify patients with a diagnosis of anorexia nervosa.
description: The Researching COVID to Enhance Recovery (RECOVER) Post-Acute Sequelae of SARS-CoV-2 (PASC) Electronic Health Record (EHR) Cohort Study
DOI: 10.24373/pdsp-387
title: Opthalmology, Providers and Care Sites

description: This concept set contains provider and care site specialties for nephrology. This concept set was previously developed for other PEDSnet studies by searching for terms related to nephrology. This concept set was not reviewed by a clinician for this particular study, but it has been used in a multitude of other nephrology focused PEDSnet studies including PRESERVE, HSP, P50 clinical insights and ARPKD. It was developed to assess the frequency with which patients with primary hyperoxaluria (PH) were seeking care with specialties involved in patient care for and related to PH. This concept set contains NUCC, HES Specialty, ABMS, and Medicare Specialty vocabularies. Some of the vocabularies in the concept set are not utilized in the PEDSnet CDM to describe provider specialty, but could potentially be present in other networks for distributed queries.
description: A Study to Evaluate DCR-PHXC in Children and Adults With Primary Hyperoxaluria Type 1 and Primary Hyperoxaluria Type 2 (PHYOX2) (Dicerna)
DOI: 10.24373/pdsp-321
title: Aminophylline, Drug Exposure

description: This medication concept set was developed for broad targeting of aminophylline treatment. The set was used to establish the feasibility of a study proposal titled "Identification of Computational Phenotypes in Pediatric Status Asthmaticus and Determination of Treatment Effect."
description: Concept set intended to identify patients with an Aminophylline an.
description: Identification of Computational Phenotypes in Pediatric Status Asthmaticus and Determination of Treatment Effect
DOI: 10.24373/pdsp-312
title: Chemotherapy, Drug Exposure

description: Chemotherapy medications derived by ATC levels. Current code lists over 50K concept_id's, not the actual ATC levels used. Developed from ATC levels for chemo, taking descendants. This broad concept set was intended to identify patients who received chemotherapy. Limited to RxNorm and RxNorm Extension codes. Note: Some of the medications are used to treat other conditions in addition to cancer. For example, Rituximab can be used to treat cancer and to treat some autoimmune diseases.
description: Concept set intended to identify patients with an exposure to chemotherapy.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)
DOI: 10.24373/pdsp-81
title: Nocturnal Enuresis

description: This condition concept set includes all nocturnal enuresis related conditions. This code list was generated by taking all descendants of the SNOMED code 8009008 for nocturnal enuresis, related ICD9/10/10CM codes and searching all mentions of 'nocturnal' and 'enursesis' in the concept_name. Also included F98.0 for 'nonorganic enuresis' (though not exclusive to nocturnal) and 307.6 for 'enuresis' (though general, used for secondary nocturnal enuresis).Developed for the PRESERVE study for diagnoses of nocturnal enuresis.
description: This concept set is intended to identify patients with a diagnosis of nocturnal enuresis.
description: Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE)