The European Cancer Patient's Bill of Rights, update and implementation 2016
Creators: name: Lawler, Mark
name: Banks, Ian
name: Law, Kate
name: Albreht, Tit
name: Armand, Jean-Pierre
name: Barbacid, Mariano
name: Barzach, Michèle
name: Bergh, Jonas
name: Cameron, David
name: Conte, Pierfranco
name: de Braud, Filippo
name: de Gramont, Aimery
name: De Lorenzo, Francesco
name: Diehl, Volker
name: Diler, Sarper
name: Erdem, Sema
name: Geissler, Jan
name: Gore-Booth, Jola
name: Henning, Geoffrey
name: Højgaard, Liselotte
name: Horgan, Denis
name: Jassem, Jacek
name: Johnson, Peter
name: Kaasa, Stein
name: Kapitein, Peter
name: Karjalainen, Sakari
name: Kelly, Joan
name: Kienesberger, Anita
name: La Vecchia, Carlo
name: Lacombe, Denis
name: Lindahl, Tomas
name: Löwenberg, Bob
name: Luzzatto, Lucio
name: Malby, Rebecca
name: Mastris, Ken
name: Meunier, Françoise
name: Murphy, Martin
name: Naredi, Peter
name: Nurse, Paul
name: Oliver, Kathy
name: Pearce, Jonathan
name: Pelouchov, Jana
name: Piccart, Martine
name: Pinedo, Bob
name: Spurrier-Bernard, Gilly
name: Sullivan, Richard
name: Tabernero, Josep
name: Van de Velde, Cornelis
name: van Herk, Bert
name: Vedsted, Peter
name: Waldmann, Anita
name: Weller, David
name: Wilking, Nils
name: Wilson, Roger
name: Yared, Wendy
name: Zielinski, Christoph
name: Hausen, Harald zur
name: Le Chevalier, Thierry
name: Johnston, Patrick
name: Selby, Peter
Publisher: name: The Francis Crick Institute
Year: 2021
Subjects: Model organisms
Biochemistry &amp; Proteomics
Synthetic Biology
Genetics &amp; Genomics
Cell Biology
Cell Cycle &amp; Chromosomes
Chemical Biology &amp; High Throughput
Computational &amp; Systems Biology

description: In this implementation phase of the European Cancer Patient's Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative:The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care.The right of every European citizen to optimal and timely access to a diagnosis and to appropriate specialised care, underpinned by research and innovation.The right of every European citizen to receive care in health systems that ensure the best possible cancer prevention, the earliest possible diagnosis of their cancer, improved outcomes, patient rehabilitation, best quality of life and affordable health care. The key aspects of working towards implementing the BoR are:Agree our high-level goal. The vision of 70% long-term survival for patients with cancer in 2035, promoting cancer prevention and cancer control and the associated progress in ensuring good patient experience and quality of life.Establish the major mechanisms to underpin its delivery. (1) The systematic and rigorous sharing of best practice between and across European cancer healthcare systems and (2) the active promotion of Research and Innovation focused on improving outcomes; (3) Improving access to new and established cancer care by sharing best practice in the development, approval, procurement and reimbursement of cancer diagnostic tests and treatments.Work with other organisations to bring into being a Europe based centre that will (1) systematically identify, evaluate and validate and disseminate best practice in cancer management for the different countries and regions and (2) promote Research and Innovation and its translation to maximise its impact to improve outcomes.