Tools for early detection of disability and developmental concerns in young children (aged birth-5 years 11 months) in Australia
Creators: name: Burgess, Andrea
name: Boyd, Roslyn N.
Publisher: name: figshare
Year: 2022
Subjects: Allied health and rehabilitation science not elsewhere classified
Community child health
Health and community services

description: <strong>Title: Tools for early detection of disability and developmental concerns in young children (aged birth-5 years 11 months) in Australia</strong> <strong>Authors:</strong> Andrea Burgess1 Carly Luke1 Koa Whittingham1 Katherine Benfer1 Sarah Goodman1 Jane Wotherspoon1 Michelle Jackman1,2 Rebecca Caesar3 Tiffney Nesakumar1 Samudragupta Bora4,5 Sarah Reedman1 Danielle Copplin1 Leanne Sakzewski1 John Cairney6 David Honeyman7 Roslyn N. Boyd1 <strong>Affiliations: </strong> 1 Queensland Cerebral Palsy and Rehabilitation Research Centre, Faculty of Medicine, The University of Queensland, Brisbane, Queensland, Australia 2 John Hunter Hospital, Newcastle. New South Wales, Australia. 3 Women’s and Children’s Service, Sunshine Coast University Hospital, Queensland, Australia. 4 Mater Research Institute, Faculty of Medicine &amp; School of Psychology, Faculty of Health and Behavioural Sciences, The University of Queensland, Queensland, Australia 5 University Hospitals Rainbow Babies &amp; Children’s Hospital, Case Western Reserve University School of Medicine, Cleveland, Ohio, USA. 6 School of Human Movement, Faculty of Health and Behavioural Sciences, The University of Queensland, Brisbane, Queensland, Australia. 7 Faculty of Medicine Library, The University of Queensland, Brisbane, Queensland, Australia. <strong>Key words:</strong> Screening, Assessment, Tools, Developmental Delay, Disability, Cerebral Palsy, Autism Spectrum Disorder, Diagnostic Accuracy, Predictive Validity, Infant, Child, Neurodevelopment, Behaviour. <strong>Aim:</strong> This scoping review aims to identify standardised tools for the early detection of disability or developmental concerns in young children and to evaluate their psychometric properties and clinical utility. <strong>Method: </strong>Search of systematic reviews and clinical practice guidelines that contain psychometric data on tools appropriate for use with children from birth to 5 years 11 months in four databases (MEDLINE, CINAHL, Embase, and PsycInfo) restricted to years 2000-2022. Desktop search of grey literature, searches on specific tools and searches on tools validated for Aboriginal and Torres Strait Islander populations will be performed. This scoping review of tools for early detection of disability and developmental delay will follow best practice guidelines as provided by the Johanna Briggs Institute Scoping Review network (https://jbi.global/scoping-review-network/resources). The process involves (1) clearly defining the purpose and scope of the review (2) searching, identification and selection of studies (3) extraction and categorization of data, and (4) reporting and summarizing the results. Multiple approaches to identify tools/assessments for the early detection of developmental concern and the accurate diagnosis of a disability will be used: 1. Comprehensive search of relevant systematic reviews across 4 databases. 2. Comprehensive desk-top search of grey literature sources (government and non-government, e.g., national, and international clinical practice guidelines) 3. Specific searches on papers regarding tools appropriate for Aboriginal and Torres Strait Islander populations for more up-to-date psychometrics than available in the systematic reviews. 4. Specific searches on validation studies of tools identified in government guidelines and clinical practice guidelines which were not contained in the systematic reviews. Systematic reviews will be included if they meet the following inclusion criteria: (i) Contain tools/assessments which have published validity for children birth to 5 years 11 months. (ii) Examine psychometric properties of tools (predictive, discriminative or evaluative). (iii) Contained tools which assess domains of motor skill (gross or fine motor), cognition, language/communication, behaviour, or social-emotional, and or other neurodevelopmental outcomes (including tools used for diagnosis of specific disabilities such as CP, ASD, intellectual disability, FASD). (iv) Contain tools/assessments available for use in Australia. (v) Contained tools/assessments which may be parent reported, or PROMs (patient reported or child-report) and/or standardised observational tools with normative data. Systematic reviews will be excluded if they: (i) outside the age range (i.e., 6+ years). (ii) not published in English. (iii) Do not examine tools which primarily assess domains of motor skills (gross or fine motor), cognition, language/communication, sensory-motor, behaviour, or social-emotional or other neurodevelopmental outcomes. (iv) Examine tools not available for use by primary health care professionals, allied health professionals and Aboriginal and Torres Strait Islander health practitioners and health workers (e.g. genetic testing, MRI). (v) Contain tools used by excluded professions such as audiologists, radiologists, or others not involved in primary health care. Targeted reference scanning and citation tracking of key papers were performed for steps 3 and 4. Articles describing the tool will be included if: (i) &gt;90 % study population were within birth to 5 years 11 months. (ii) Available in English. <br>