The Effectiveness of a Parent Empowerment Intervention for Caregivers of Children with Cystic Fibrosis: A Randomized Controlled Trial
Creators: name: Donmez, Hatice
name: Arslan, Fatma Tas
Publisher: name: Taylor & Francis
Year: 2024
Subjects: Medicine
Neuroscience
Biological Sciences not elsewhere classified
Science Policy
Mental Health

description: This paper focused on the effectiveness of a parent empowerment intervention based on nursing education (PEINE). This study examined whether the intervention improved the quality of life of children with cystic fibrosis (CF) and improved their caregivers learn about the disease and develop problem-solving and coping skills. This randomized-controlled trial used a pretest-posttest parallel-group research design. The sample consisted of 48 parents (caregivers) of children with CF. Participants were randomly assigned to an intervention (<i>n</i> = 24) and a control group (<i>n</i> = 24). The intervention group received PEINE and standard care and treatment for ten weeks. The control group received standard care and treatment. Data were collected using a Disease Information Survey (DIS), the Ways of Coping Inventory (WCI), the Problem-Solving Inventory (PSI), and the Cystic Fibrosis Questionnaire (CFQ-R). After the intervention, the intervention group DIS scores (d: 1,627 [CI: 0.934,2.305], had more correct answers than the control group. Nursing interventions were effective (<i>p</i> &lt; .001). There was no significant difference in the mean pretest-posttest PSI scores (d: 0.378 [CI: −0.221-0.972], posttest WCI scores (d: 0.239 [CI:-0.356-0.831]) between the intervention and control groups (<i>p</i>&gt;.05). There was a significant difference in the mean posttest CFQ-R scores between the intervention and control groups (d: 1.363 [CI: l.698, 2.015]);(<i>p</i> &lt; .001). PEINE increased the intervention group participants develop disease-management skills. However, the increase in their PSI and WCI scores was statistically insignificant. PEINE also increased the quality of life of children with CF. Parents of children followed in pediatric pulmonary diseases participated in the study. Parents were informed during outpatient clinic visits. After the first meeting, the children and parents who voluntarily agreed to participate in the research were contacted by phone. The outpatient nurse assisted in communicating with children and parents. <b>What is already Known</b> Planned nursing education positively affects disease management.Problem solving and coping skills of parents of children with chronic diseases are negatively affected.Health-related quality of life in children with CF varies depending on parent-related variables (disease knowledge, problem solving and coping with stress, etc.). Planned nursing education positively affects disease management. Problem solving and coping skills of parents of children with chronic diseases are negatively affected. Health-related quality of life in children with CF varies depending on parent-related variables (disease knowledge, problem solving and coping with stress, etc.). <b>What this paper adds</b> PEINE helps caregivers.PEINE increase the quality of life of children with CF.PEINE results in positive clinical outcomes regarding the care and treatment of children with CF.PEINE did not increase parents’ problem solving and stress coping skills.Nursing initiatives that deal with cultural and ethnic structure should be planned in parent-oriented interventions. PEINE helps caregivers. PEINE increase the quality of life of children with CF. PEINE results in positive clinical outcomes regarding the care and treatment of children with CF. PEINE did not increase parents’ problem solving and stress coping skills. Nursing initiatives that deal with cultural and ethnic structure should be planned in parent-oriented interventions. <b>Trial registration:</b> ClinicalTrials.gov, NCT03800459.