State of the art on ethical, legal, and social issues linked to audio- and video-based AAL solutions
Creators: name: Ake-Kob, Alin
name: Blazeviciene, Aurelija
name: Colonna, Liane
name: Čartolovni, Anto
name: Colantonio, Sara
name: Dantas, Carina
name: Fedosov, Anton
name: Florez-Revuelta, Francisco
name: Fosch-Villaronga, Eduard
name: He, Zhicheng
name: Klimczuk, Andrzej
name: Kuźmicz, Maksymilian
name: Lukács, Adrienn
name: Lutz, Christoph
name: Mekovec, Renata
name: Miguel, Cristina
name: Mordini, Emilio
name: Pajalic, Zada
name: Pierscionek, Barbara Krystyna
name: Santofimia Romero, Maria Jose
name: Salah, Albert Ali
name: Sobecki, Andrzej
name: Solanas, Agusti
name: Tamò-Larrieux, Aurelia
Publisher: name: Zenodo
Year: 2022
Subjects: ethical principles
privacy
assistive living technologies
privacy by design
General Data Protection Regulation

description: <strong>Cost Action 19121: GoodBrother</strong> The European Cooperation in Science and Technology (COST) is a funding organisation for the creation of research networks, called COST Actions (CA). These networks offer an open space for collaboration among scientists across Europe (and beyond) and thereby give impetus to research advancements and innovation. Many institutions around Europe participate actively in the CA19121 - Network on Privacy-Aware Audio- and Video-Based Applications for Active and Assisted Living, also called GoodBrother. Europe faces crucial challenges regarding health and social care due to the demographic change and current economic context. Active Assisted Living (AAL) technologies are a possible solution to support tackling them. AAL technologies aim at improving the health, quality of life, and wellbeing of older, impaired, and frail people. AAL systems use different sensors to monitor the environment and its dwellers. Cameras and microphones are being more frequently used for AAL. They monitor an environment and gather information, being the most straightforward and natural way of describing events, persons, objects, actions, and interactions. Recent advances have given these devices the ability to ‘see’ and ‘hear.’ However, their use can be seen as intrusive by some end-users such as assisted persons and professional and informal caregivers. GoodBrother aims to increase the awareness of the ethical, legal, and privacy issues associated with audio- and video-based monitoring and to propose privacy-aware working solutions for assisted living by creating an interdisciplinary community of researchers and industrial partners from different fields (computing, engineering, healthcare, law, sociology) and other stakeholders (users, policymakers, public services), stimulating new research and innovation. GoodBrother will offset the “Big Brother” sense of continuous monitoring by increasing user acceptance, exploiting these new solutions, and improving market reach. <strong>Working Group 1 on Social Responsibility: Ethical, legal, social, data protection and privacy issues</strong> Experts from diverse disciplines are analysing the ethical, legal, data protection and privacy issues associated with the use of cameras and microphones in private spaces, and how to manage multi-party privacy preferences. They also study the differences according to gender and cultural/societal background in the perception of these issues. This WG aims to establish the core requirements that AAL solutions must fulfil to consider ethico-legal issues and to integrate privacy by design and by default. Those requirements will set up the guidelines for the technical WGs (WG2, WG3 and WG4). The Workgroup goals are: Review the current European and international legislation and the ethical issues that underpin this on the use of audio- and video-based monitoring in private environments. Study the differences in the perception of privacy depending on the culture, society, gender and age of the users, and analyse the situations and conditions in later life, i.e. occurrence of a fall, which may affect that perception. Investigate the potential benefits and barriers of AAL technology adoption for people in need of care. Support the development of privacy-aware monitoring systems by a continuous exchange of knowledge with technological participants in the Action. Promote the consideration of ethical, legal, privacy and gender matters in the design of AAL solutions. Inform other WPs on the ethico-legal requirements in the design and development of AAL solutions. <strong>Objectives of this White Paper</strong> The objectives of this white paper are to: Define the relevant ethical aspects relating to AAL and distinguish these from the legal issues which are concerned with data protection and privacy as associated with the use of surveillance technology: cameras and microphones in private spaces, and how to manage multi-party privacy preferences. Review the current European and international legislation and examine the ethical issues that underpin these on the use of audio- and video-based monitoring in private environments. Study the differences in the perception of privacy depending on cultural understandings, social practices, gender, age, and health condition of the users, and analyse the situations through life, i.e. occurrence of a fall, which may affect that perception. Investigate the potential benefits and barriers of AAL technology adoption for people in need of care.
description: This publication is based upon work from COST Action GoodBrother - Network on Privacy-Aware Audio- and Video-Based Applications for Active and Assisted Living (CA19121), supported by COST (European Cooperation in Science and Technology). COST (European Cooperation in Science and Technology) is a funding agency for research and innovation networks. Our Actions help connect research initiatives across Europe and enable scientists to grow their ideas by sharing them with their peers. This boosts their research, career and innovation. www.cost.eu