Social support for family caregiveres of children and adolescents with special health care needs for home care: scope review
Creators: name: Sulino, Mariane
name: Pinto, Fabrine
name: da Silva Cassemiro, Larissa
name: Maia, Edmara
name: Lopes-Júnior, Luís Carlos
name: Nascimento, Lucila
name: Molina, Carmen
name: de Lima, Regina
Publisher: name: Open Science Framework
Year: 2022
Subjects: subject: Public Health
subject: Medicine and Health Sciences
subject: Nursing
subject: FOS: Health sciences
subject: children and adolescents with special health needs
subject: disabled children
subject: family caregiver
subject: home care services
subject: social support

description: Introduction: children and adolescents with special health needs, a subgroup of chronic illnesses, present specific, continuous, long-term and sometimes complex care demands that go beyond those required by their peers of the same age. Due to their weaknesses, they frequently seek health services, among them, the most sought after are hospitals. With the return of these children and adolescents to their homes, care that was previously carried out by a multidisciplinary hospital team is transferred to the management of care under the responsibility of family caregivers. Objective: to map, systematize and consolidate the evidence available in the literature on social support models and strategies for family caregivers of children and adolescents with special health needs for home care. Method: Reported scope review following the PRISMA-ScR and the JBI Manual for Evidence Synthesis, with search for evidence in the MEDLINE/PubMed, Cochrane Library, EMBASE, CINAHL, Web of Science, SCOPUS, LILACS, APA PsycINFO databases, with no restrictions on the date or languages of publication. The PCC strategy was used to elaborate the question: What are the social support for family caregivers of children and adolescents with special health needs for home care? For the classification of selected studies, the hierarchy of evidence will be used. The methodological quality of the studies will be assessed by two independent reviewers, using the JBI Critical Appraisal Checklist for Studies Reporting Prevalence Data instrument. Results: The results will be summarized and presented in a descriptive way, pointing out the relevant evidence and recommendations for the qualification of care. In order to outline the networks of relationships between the keywords and the included references, a graphic map will be generated using the VOSviewer® tool, a useful software for visualizing bibliometric networks. Discussion: Up to the present moment, other scoping review about this subject were not identified on the site OSF, therefore this will be the first one to map the models and strategies of social support to family caregivers to children and adolescents with special health care needs for home care. We hope that our outcome provides the strategy and public policy developments with the intention to continue the home care of children and adolescents with special health care needs, as well as stregthening the network support to the family caregivers. Futhermore, in oder to spread this study, its peer reviewed publication and presentation at congresses will be accomplished.