Tuesday, January 11, 2022 * Rheumatologist appointment.  Saturday, January 8, 2022 * Went to bed at midnight last night. Was able to stay up and watch tv without falling asleep for the first time in days.  * Decided to stop using Flonase last night given possible side effects. Had no trouble breathing with the humidifier.  Overnight low of 46°F so the heater ran which usually dries my nose out and causes problems breathing.  * Started the decremental dosing of methylPrednisolone today. Soooo many steroids.   Friday, January 7, 2022 * Second occurrence of fairly painful constipation.  * Celebrex worked well yesterday. Dosed at 7am, then 11am. Got through most of the workday well. Then headache came and knocked me out mid morning today.  * Went to Acupuncturist at 3:30 by 7:00-8:00 I was feeling better. Someone observed a difference too.   Thursday, January 6, 2022 * Fatigue has me falling asleep when watching tv with someone and going to bed at 9pm waking up at 7am for the last few days  Tuesday, January 4, 2022 * Rheumatologist appointment. * Labs and general orientation * Prescribed Celebrex  * Also received a steroid shot  Wednesday, December 29 * Spoke with Rheumatologist. Appointment set for February   Tuesday, December 28 * Received radiologist report from MRI, notes summary.  * Spoke with someone at medical center. She'll set up Rheumatology appointment. Condition is past Dr.'s ability to diagnose now.  Saturday, December 25 * I've slept 14 hours and could sleep more * Prescription with Codeine not doing much. Helps a bit with the pain i.e., no longer wondering if my eyes are going to just stop working because it hurts so bad, but definitely feel like my head is in a vice. * My left temple region is swelling more now than ever. I've attached a photo today for comparison with the one from 11/25. In the mornings when I wake up things are pretty close to normal. About 9:30 am, I can feel the shift starting. By 11:30 am I'm in full pain.  Thursday, December 23 * Completed MRI at 8:45 am.   Monday, December 20 * Unscheduled visit with Dr. after pain and swelling continue and worsened. * Bloodwork done and completed (I don't know what the report is telling me). * Prescribed an Ibuprofen, Acetaminophen, Caffeine, and Codeine prescription to help with the pain. It helps a little bit, but now doesn't seem to be doing much other than making me extremely drowsy.  * Ordered an MRI  Week of December 6 to current * Eyes become very sensitive to light * I'm wearing sunglasses to work, Zoom meetings, to do basic work at the computer.  * I'm wearing iced gel hats to keep the swelling down. These seem to be the most effective at reducing the pain and swelling.  Friday, December 3 * Scheduled Appt with Dr.  * Concerned about blood pressure (turned out to be me not using my home device correctly) * Concerned about headaches and swelling in temples.      * Steroids prescribed with no effect  Thursday, November 25 * Took picture of swelling in left temple (attached) * Symptoms included swelling, headache, pressure, tension in jaws.  Wednesday, November 24 * Developed fever in the evening and had to leave Thanksgiving with mom early.  Tuesday, November 23 * Received Moderna Booster