Age: 61.0
Sex: F
Vaccine: COVID19
Symptoms: Disability, Erythema, Eye swelling, Fatigue, Feeling hot
Clinical narrative: She got her vaccine, went home and started getting really fatigued and sore all over, hot fever.  She was in a different region at the time.  She got in the bed and she curled up and could not move.  Her whole body was hot, red and had a migraine, could not eat or drink, nausea and vomited.  She sweated all the time, did not record her fever.  Her brother assisted with giving her hand towels and would be dry within a few minutes due to the fever, which lasted for about 2 days.  When she came out of this she could not hold things in her hands, her wrists hurt and her joints hurt and she was not able to open things.  She pushed through her symptoms, but they continued and spread.  Within 6 weeks she was curled up and not able to move.  it took 6 months to diagnose her with GCA, she could not take a 2" walk, her hands would not work, her lips swelled up.  Her skin was all inflamed, but they do not know, and said it was allergies.  She had a biopsy of her artery and diagnosed with GCA.  She now has Reynaud's, PMR, huge Baker cysts in her knees, reactive arthritis and has problems with her joints.  She was diagnosed, but does not have the classic symptoms of these diagnoses.  The more she looks back it makes sense why it is complex.    She has not been sick and has had none of these symptoms prior to the vaccine.  She was riding a bike up to 400 miles a month and very active.  She could not take any steps and was scared and did not tell people how sick she was.  She has lost all balance, and is not able to ride her bike at all and has been disabled.  They can't explain it and they will not address the issues that she is having other than stating that she has an auto-immune process.  She says that some of her doctors tell her it is vaccine related, but they do not want to admit it.  She is scared as she is having a flare up and is on large doses of Prednisone, and a shot of Actemra weekly (biologic), which is lifesaving as she is able to walk again.  Her first sign of the relapse is her lip swells up and her face swelled up a lot this time and was told to lessen the Prednisone and her eyes swelled up and water coming out, and her temples are swollen.  Fluid was building up in her face, going down her neck.  Her right side swelled up and thought she had DVT and/or a stroke, and that didn't show anything and did not know what was wrong, and said it was related to allergy, and feels that she is allergic to the shot.   She was on no medications, no past medical history or any problems prior to the vaccine.  She was able to remodel a house prior to the vaccine.   Her blood vessels swell up, have aneurysms in the head, heart or anywhere and most people go blind, so now she is being watched very very closely.  It has taken 6 months after the shot to get diagnosed and had doctors make jokes about her and her symptoms, and tell her that it's in her head.  Her blood work was messed up and had various work ups.  She now has numerous doctors and takes lots of medications now.   She passed a blood clot through her urine that was huge and did not know what it was from.  All of this has affected her entire body including her stomach.   She is now having her 5th relapse of this condition.    She quit her job as her knees hurt so bad from sitting in a chair all day.  Then the condition continued and felt that her condition would improve and it slowly progressed.  She went to UC at the end of March in 2021, two weeks later her leg was double in size and a nurse told her she could not walk around like that, and was told to go to the hospital.   Her right side then went limp and felt that she had a stroke, felt she may have had heart troubles, and had multiple, multiple tests.    She would like to be in a research study and possibly would contribute her body to science up on her death for people that have been accepted by the vaccine.