Age: 13.0
Sex: F
Vaccine: HPV9
Symptoms: Sensory loss, Skin discolouration, Sleep study, Speech disorder, Staring
Clinical narrative: Beginning in August 2022, she began with syncope and presyncope, sweating for no reason, toes turning purple, extreme fatigue, low blood pressure, nausea, stomach pain and bloating, headaches, etc. . After seeing numerous physicians, she was diagnosed with POTS and SIBO in March 2023. As time went on, fatigue had worsened to the point that she would fall asleep in random places - soccer games, family events, school, etc. She could not be active like a "normal" teenager. She could no longer play sports or make plans with friends. Her life completely changed.  In December 2024, she had a respiratory illness and following that, things got so much worse. Since January 2025, she has had episodes of blurry vision, tunnel vision, and pain when moving her eyes. She is sensitive to lights and sounds and has vertigo constantly. She started to faint but not from changing position. Sometimes she gets dizzy sitting. She has had episodes of leg paralysis lasting 20 minutes, she has nerve pain, joint pain, and all over muscle pain. It hurts her to be touched, even gently. She has had staring episodes and recently her first seizure. I have a complete list.   ? Extreme Fatigue- Became SOOOOO Much Worse o wiped out after minimal effort- literally cannot walk or stand more than 5 minutes; cannot get dressed, walk upstairs, make food without taking a break.  ? Fainting More Frequently and not from changing positions with POTS, not due to low bp or dizziness, literally just collapses o Salt no longer helping ? Chronic Pain o Sore and Achy Back and Neck Pain ? Says There is Never a Time When She is Not in Pain ? Walks Around Like Little Old Lady ? Vision Issues o Blurry Vision, Tunnel Vision, Vison Altered, Seeing Things o `Pain Moving Eyes Up & Down, Back & Forth o Depth Perception seems off o Seems like Walls are Moving in and out ? Vertigo (ER Dr said she had nystagmus 02/25/25) ? Staring Spells More Frequently, 15 plus a day ? Sleep crashes- will fall asleep anywhere and within seconds o  soccer game, bedroom doing craft, car after event, home after school ? Paralysis episodes o Feeling like a bar between legs and back, Unable to speak, Unable to raise hand o Two scary episodes of not being able to move her legs from waist down for 20 minutes- could feel me touching her but could not make her legs move ? Swallowing issues  o sometimes she feels like her throat is not wide enough o  Sometimes she feels like her brain will not tell her to swallow o Sometimes she feels like she doesn?t have enough strength to swallow ? Sensory overload; Sensitive to lights, sounds, smells  o Easily overstimulated ? Startles When Being Woke ? Random pain that moves around ? Low Back Pain, tender to touch o Flank Pain- had sharp pain on low right side 03/02/2025 ? Chest Pain; episodes of pain through her upper abdomen to her back ? Nerve pain ? Extreme menstrual pain o recently with some Sciatica pain (02/15/2025) ? Numbness and pain in feet, hands, legs- but hurts ? Dangerously low bp at ER after IV (75/49) saline didn?t improve- was still low when we left (02/25/25)  o ER Dr said Normal with POTS (her blood pressure was never this low) ? Heart palpitations ? Purple extremities (usually when cold but had at ER and will just have randomly at home) ? Blue lips at ER ? Bloating (SIBO history) but foods and Salt make her bloated ? Nausea- usually forces herself to eat then feels worse after ? Weight fluctuations  o Seems like her weight changes daily ? Frequent Mouth Sores ? Swollen face (Looked puffy 05/01) ? Swollen lymph node in neck (not sure if lymph node but she says it?s been there forever and sometimes it?s tender)  ? Medicine sensitivity  o Everything makes her feel worse ? Brain Fog/Concentration issues ? Memory Loss- Can?t remember things that just happened ? Hair loss ? Acne and Boils on Face ? Sweating (for no reason; ongoing) ? Can?t feel temp of water with hands; often burns fingers ? Feet super sensitive to temp- feels like boiling water when getting in tub despite being warm) ? Slurring Words (episodes) ? Severe Head Pressure ? Having episodes of OCD (Clicking pen certain number of times, feels like certain things needs to happen) ? Complains of Air Hunger  ? Spasticity? Can?t bend fingers to seal Ziploc bag (April 2025) ? Leg Paralysis ? episodes for 20 minutes where can?t move legs from waist down, can feel me touching her but can?t move, says has happened before but not as long 04/08 and 04/13 ? Hurts when gently touched, hugging is often painful ? Touching her scalp gently sends ?shock? down her spine-  ? Can?t speak- doesn?t have energy or strength to get her words out , will not respond 05/10/2025 (says this happens often during episodes) ? Says legs are like heavy weights when standing at church ? Having pinching in her knee  ? Allodynia- hurts to be touched on skin, gently caressing her and her head sends pain down her back ? Extreme menstrual cramps that caused nerve pain down her back and legs ? Seizure 05/17- nausea, blacked out, followed by convulsions; eyes blinking rapidly, fingers bending/unbending ? Pain worsening- hurts to pick up her phone, hurts to play guitar, hurts to be touched, she ran vacuum on small rug in living room and just pushing it, exhausted her and she felt like she had been lifting weights