Age: 53.0
Sex: F
Vaccine: COVID19
Symptoms: Pain, Sensory loss, Sluggishness, Weight bearing difficulty
Clinical narrative: She got her vaccine, the reaction continued from months and resulted in permanent disability.  She did not realize for a long time what happened.  Over the next several days she just started to feel strange with dizziness, but not in the traditional sense, awkward, heavy feeling/sluggish, everything just became difficult.  She became constipated, my face became numb like she had been to the dentist and that still continues.  It was a busy time of the year with the holidays coming  up and she could not seem to do it. Within a week she called her sister that she would not be able to cook and she was disappointed and devistated to say that.  Then things just got heavier, and more awkward.  Within the week leading up to the holidays she went to the ER, and they CAT scans on her brain and blood work, and there were no signs of stroke that they were concerned about.  She had signs of symptoms of stroke, but did not find any evidence of that.  She was to FU with her clinic which she did, and she wasn't better when she went there.  They did more testing, but did not find anything, not getting better.  She made it the holidays but could not drive herself.  She also had no appetite and she was still constipated.  She didn't feel safe and she could not drive suddenly.  By the week after the holiday she was really scared, things were not getting better at all.  She called her PCP and had to do a telemed call, and she told her that it was getting worse by the day, she did not feel safe and was not able to care for herself.  She told her that she needed to go to the hospital, she lives by herself and she did not know what was going on.  Her doctor agreed that something was not right, and she direct admitted her to the hospital.  The next morning she was admitted to the hospital, and when her sister came to pick her up she noticed that she was having difficulty walking, could not support herself on one of her legs, it gave out from under her, at a loss of words and scared.  Things were rapidly declniing from there.  The pain was getting worse, and the numbness that started in her face and spreading to her body and turning into a pain.  By the following day she could no longer walk, the pain became excruciating, like electric shocks.  She had blood work, neuro-testing, strength testing.  She still evidentally had muscle strength, but they failed to understand that she was loosing the sensory function.  She had lost reflexes when they did that testing.  She had also lost proprioception and not able to feed herself, can't scratch her hair as she had no way of knowing how to dress as she could not see her hand.  She had to go to a nursing home for 6 months as she could not care for herself, toilet herself or feed herself.  The doctors at the hospital they did not do the right test and they did not give her IVIG, and was diagnosed with Guillain-Barre syndrome which is standard, but with the new vaccines they did not feel it was that.  She feels that she fell through the cracks.  She drinks alcohol and has a bad liver and has gone through all of the testing, and has had biopsies and has that through other reasons.  They are blaming everyting on alcohol, and that is not the case and not checking why she has liver damage.    She did finally get the IVIG, and had a neurologist and through therapy she is able to walk, she checked herself out of the nursing home and was able to go home.  She had at home PT, and can drive now because she can gross motor movements, just not fine motor movements.  She got her proprioception back, which came back first. while in the nursing home.  The sensory functions are gone, and will not get her reflexes back or feel a pin prick.  She is continuing to do therapy on her own.  She still liives alone, and able to function now.  After leaving the hospital, she went to Rehab Hospital for 3 weeks.  She then went to Skilled nursing facilty for 5 months.  She was discharged in severe pain and getting worse to the rehab center.  She was finally able to go home at the end of May in 2022, AMA.  She left as she could not take it anymore, financially and emotionally.  She is doing well now that she has been back home.