Age: 38.0
Sex: F
Vaccine: COVID19-2
Symptoms: ACTH stimulation test normal, Abdominal distension, Abdominal pain upper, Antinuclear antibody negative, Aphasia
Clinical narrative: 10/29/2022- heart palpitations, irregular pounding, and fluttering   10/31/2022- high BP and HR, feeling faint with moments of vision going black and like I might pass out   11/4/2022- mild to moderate sore throat began and continues intermittently, varying in severity.     11/7/2022- full body debilitating weakness, varies in severity and comes and goes, sometimes lasts for an hour, sometimes half a day or more   -During weakness attacks, which have lessened in frequency- head pressure, neck stiffness/soreness, pressure behind eyes, cannot keep eyes open or head up, blurry vision (began 11/14/2022), headaches, heart pulsing through my body, irregular heartbeat detected, extreme weakness/fatigue throughout whole body, high blood pressure   11/7/2022- quick sharp headaches, intermittent and varying in severity, often short and sharp pains, occasionally longer   11/9/2022- trouble standing, walking, brain fog.     -standing- I can?t stand for very long without losing strength in my muscles, or starting to sway and lose balance and coordination, with pain or shakiness in hips and knees, I often have to hold on to things. I do not drink alcohol anymore, but it often feels as if I am drunk.    -walking- has become increasingly difficult, unsteady, and often feel I am in slow motion, with heavy lower legs.  This lack of strength, slow motion, and pain in knees and hips happens after about 15-30 minutes of walking normally.   -brain fog- started noticing confusion, memory problems    11/11/2022- joint aches and stiffness, mostly ankles and wrists   11/12/2022- muscle weakness, extreme soreness, and fatigue, fatigued and sore from doing very little   11/12/2022- very stiff, sore, and painful back of neck   11/12/2022- intense head pressure, mostly front of face, temples, and behind eye, but also in the back of head. Has since increased in severity, often feels like bones are moving or expanding   11/14/2022- vision changes, blurry vision with head pressure, white flashes and black streaks in peripheral vision   11/14/2022- slow moving, feeling as though I have to consciously coordinate movements   11/20/2022- neck is unsteady sitting up at times, weakness, can?t keep it upright, occasional tremors   11/20/2022- numb and tingly left side of face, jaw to cheek bone, intermittent    11/21/2022- tremors/twitching in left thumb   11/25/2022- heavy legs have worsened, tight and feel weighted as soon as I get out of bed or stand up, often from mid-calf down, sometimes from knees down.  There is a distinct line where I can feel the tightness/numbness down to my toes. Lasts all day, gets better laying down and with rest   11/28/2022- cognitive issues worsening, feels like early dementia at times. I forget the topic of conversations while they are happening, cannot find the right words, forget peoples names, forget where dishes go while putting them away, finding items in weird places that they should not be and no recall of how they got there.   11/30/2022- sensitivity to light, varies in severity, headlights at night are very bothersome   12/2/2022- sinus pressure, severe at times, no fluid or drainage, no congestion or stuffiness, just intense pressure. I can often hear and feel things popping and crackling around up there all day. Increased in severity, feels as though my brain or bones are expanding   12/2/2022- top row of teeth ache at times, in varying severity, seems to correlate with increase in head and sinus pressure   12/28/2022- circulation issues worsening, always have been a cold person with cold hands and feet, but around this time started to notice swollen red toes, sometimes entire white feet, bulging veins in my feet that itched to start, no longer itch   1/3/2023- noticed minor cuts on feet where my skin rubbed off between toes, red and raw, but never felt it happen, and don?t feel any pain or discomfort. These cuts took over 2 months to heal.   1/15/2023- very dry mouth, increased thirst and urination, clear urine at times. No amount of water satiates, immediately thirsty again after drinking water.  This happens intermittently.   1/15/2023- severe sore throat at times, seems to be in one spot   1/15/2023- occasional pain/lumpy feeling in front of neck   1/23/2023- bone pain from knees to toes, bone pain in skull, noticing space between front teeth is getting larger, confirmed by dentist on 1/30/2023, who also noticed very dry mouth   2/7/2023- full leg numbness/loss of feeling after driving 2 hours for an appointment, inability to walk normally, legs bent, could not straighten, feet shuffled across the floor   2/8/2023- ability to walk worsened, full body tremors when trying to stay still, very little balance, no control.     2/11/2023- different type of weakness, felt like I could fall asleep at any moment or pass out, no strength in my body, also happened 2/12/2023   2/14/2023- BP higher and higher, reached 165/125   2/15/2023- different type of headache, not the pressure I was having before, Tylenol helps   (Started propranolol 2/14/23 and within 24 hours the intense head pressure, body tremors, and inability to sit upright or keep my head upright have all majorly improved.  BP also normalized.)   2/16/2023- very dry skin on face, bumpy and scaly, no amount of lotion helps, comes and goes   3/1/2023- bulging veins in hands in addition to feet, intermittent   3/1/2023- joint pain is worse, constant. Kness are especially worse, feel like jelly, hyperextending while standing or trying to walk   3/9/2023- tightness/numbness in lower legs is now entire legs, and random places in my body. Sometimes symmetrical, sometimes not   3/13/2023- ability to walk worse and worse  (3/15/22- diagnosed with Small Fiber Neuropathy)  3/23/2023- purchased a cane to help me walk, which helped a lot   3/27/2023- bedridden now, can?t lift my head or body, can barely make it to the bathroom   4/3/2023- noticing cold patches of skin in different places, but I am not cold internally.  noticed low body temperature around this time, 96-97 degrees    4/6/2023- leaking urine, not a steady daily leak, it happens randomly, panty liner works   4/7/2023- GI issues worsening, constipation and diarrhea on and off, Dr noticed very quiet bowel sounds with a stethoscope    4/27/2023- heat intolerance, cannot withstand temperatures above 65 it seems, can?t be in the sun for more than a few minutes- rashes and redness anywhere the sun touched my skin, nausea, very disoriented, dizzy, skin hot to the touch long after coming inside, moody, very irritable, more pain everywhere, and it took over 24 hours to cool down   4/30/2023- noticing I am becoming short of breath from doing nothing, happens intermittently.  Also noticed I run out of breath suddenly while trying to talk.   5/1/2023- cannot walk at all without elbow crutches, cannot stand without support, cannot sit for longer than 20-30 minutes or my face starts to go numb.  Purchased a shower chair, cannot stand long enough to shower.   5/12/2023- mottled skin all over legs   5/20/2023- difficulty swallowing at times, intermittent, feels like a severe sore throat but there is no soreness, just takes more effort to swallow   5/21/2023- skin discoloration in calves and sometimes toes, on and off, purplish color, worse behind my knees   5/25/2023- noticing increased stiffness in wrists, hands, and fingers   5/25/2023- rapid muscle fatigue getting worse and worse, in legs but also my entire body after any use at all.  Arms going dead from brushing hair, teeth, washing hair.  This has been happening since early on but have noticed an increase in severity recently.   7/7/2023- GI issues worsening, nausea, regurgitation within an hour of eating, constipation/diarrhea, bloating, stomach pain  (diagnosed with Autonomic Dysfunction)