Age: 23.0
Sex: F
Vaccine: COVID19, COVID19
Symptoms: Immunoglobulin therapy, Impaired gastric emptying, Joint noise, Meningitis aseptic, Muscle fatigue
Clinical narrative: I was considered healthy before 2022. I did have underlying health issues via Ulcerative colitis when I turned 7, histoplasmosis and asthma at 21 but all was well maintained and hadn?t flared in a few years. After receiving the first part of the Moderna vaccination I did notice that first month my legs were extremely sore and tired almost like growing pains with a burning/ achy feeling and I was taking a lot more naps than I usually do but didn?t think much of it considering I just started my new job at the hospital but thought it was a little strange due to all of my past jobs being physically demanding too so I wasn?t sure why my legs were so sore. After I received the second vaccine, 2 weeks later my feet started tingling. The tingling feeling is best described as pins and needles almost like your feet are asleep but it wouldn?t go away. I had went to urgent care and had mentioned it in my appointment to where they sent me to the er because they were concerned that they haven?t stopped tingling. The hospital had recommended for me to get an EMG test done and which I did and the results were normal but possible early stages of Guillian Barre Syndrome. I was considered a new patient so I couldn?t get into see that neurologist until that October. About another week went by and at this point my feet were completely numb but I was still able to walk and fully function at work It just felt extremely weird. I was still very exhausted and was crashing out every time I got home from work. The next week I was heading into work that morning and all of a sudden I almost felt a pop sensation in my back and immediately felt the pins and needles run down both of my arms my legs and even the tip of my tongue. My boss took me down to the er and that?s when I was admitted into the hospital. The neurologist diagnosed me with SIDP caused by a reaction to the Moderna vaccines I had just gotten weeks prior. His plan of treatment was to start IVIG. On day 2 of receiving the IVIG I felt the tingling starting to come back in my feet from them being completely numb. Unfortunately I was also developing an extreme headache to the point to where I couldn?t open my eyes and the light hurt. Come to find out the treatment was ran too fast they had pushed the IVIG within an hour which resulted in me developing aseptic meningitis. That neurologist stopped the IVIG treatment immediately and his next plan was to start plasmapheresis treatment. Due to it then being a holiday weekend the line team never came in and by that Monday a new doctor was on rotation and stated that she believed they had given me aseptic meningitis from administering the treatment too quickly and they needed to back off. I was told time and physical therapy would help and was then discharged without the SIDP diagnosis and no treatment plan. I then was begging for help for about 1 year later which physically resulted me to now be paralyzed from the sternum down along with extreme arm weakness I was wheelchair bound. I was then referred to Dr. who is an autoimmune expert in Neurology. He did a plethora of testing which includes EMG, skin biopsy?s, tilt table test, full panel blood tests which all confirmed I did indeed have SIDP but now called CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) from being delayed from proper help. He has started me back on IVIG but ran at a much slower rate and done every 3 weeks. In hope to regain nerve regrowth and hope of building the correct nerve structure to get me to be able to walk again. Unfortunately due to having CIDP I now have to deal with a plethora of other health issues like gastroparesis (stomach paralysis), GERD (reflux from gut not working properly due to immobility).