Age: 50.0
Sex: F
Vaccine: COVID19
Symptoms: Photosensitivity reaction, Positive airway pressure therapy, Postural orthostatic tachycardia syndrome, Rash vesicular, SARS-CoV-2 test negative
Clinical narrative: She got her vaccine, and within the 24 hours she had the normal symptoms, achy body, chills, normal symptoms.  It did not eventually alleviate itself.  She then started having blurred vision, heart palpitations, body aches and pains that felt more than just normal, it was all of the time, stiffness.  She got an aura, feeling nauseous,  having bowel movement issues, incontinence to the point that every time she got up she had to urine.  She went to the ER and they believed she had a cerebral fluid leak and it had stopped and was told to go home, relax, take it easy and to see a neurologist.  She went back to her PCP as she had to wait for her APT, and she asked to have blood work done as she did not feel well.  The blood work showed that she was having potassium difficient, vitamin D deficient and her BP was way too high and they increased her medications and was started on Losartan 50 mg was added to the hydrochlorothiazide.  She was sent to see an endocrinologist and she had difficulty breathing when active and hot all the time.  This is different from when she has an asthma attack as she is winded, having heart palpitations, and huffs and puffs and has to sit down.  Her vision is so bad that she cannot clear see her TV which is a 52" TV.  The movement was making her dizzy and could hear swishing in her head which is why they though she had a cerebral fluid leak.  She cannot remember things, where she is is and was also sleep walking at night and leaving her home.  All these things conspied together sent her to endocrinologist, rheumatologits, cardiologist and neurologist.  The neurologist diagnosed her with vestibular migrains and prescribed rizotriptolin and antitriptolin.  She started taking those.  She went to the endocrinologist and was diagnosed with a fibroid nodule, unknown to conditions to why she is hot all the time, some type of autoimmune disease they did not know what it was.  She was then transferred to a rheumatologist.  He does not know what is wrong with her, feels she has vascularitis and in order to test for that she has to have a flare and due 3 tests at the same time.  All three levels were high, her protein is high, her skin  is thickened, and has a rash that comes and goes whenever it wants to and blisters.  She also has intense pain, her inflammation level is 11 x what it should be.  The whole process cycles itself while this happening, and also has heart palpitations.  She cannot get in the sun as she breaks out in the rash, has palpitations and skin turns a hot cherry red.  They ahve added aspirin and have sent her to see a dermatologist.  The dermatologist wants her to come when she has hives, which she does not do daily and only happens every few months and has not been able to have that tested yet.  She then went to see a oncologist and to be evaluated as these symptoms may incur some type of cancer who is Dr. everything turned out negative, no cancer in her body.  He has no idea what the autoimmune disease is.  He did genetic tested and nothing showed up.  He ended up then being referred to the sleep clinic for sleep apnea, and was tested for that and does have sleep apnea.  She have apoxy due to having sleep apnea, and cannot take any pain medication because oxygen level is too low in her body and they are afraid that she will stop breathing.  She is now on C-PAP and has been on that for about 8 months.  This has alleviated the majority of the migraines.  Her vision after taking the migraine medications has returns, but has to do a daily routine, migraine diet, inflammation diet she has to adhere disease, an autoimmune diet to adhere to.  Her brain does not still work right, as one she gets tired and her brain shuts off and her body still continues to go and she has to be babysat and there is no one to watch her as her brain sleeps but she is still awake and her eyeballs are open.  Now she has to stay home.  Her routine is when she starts feeling tired, she has indigestion issues, her skin hurts, she gets blisters, she has brain freezes and feels like she is an amusement ride and feels instantly nauseous.  Shen then gets heart palpitations at the same time and skin on her hands, legs and feet will turn blue due to circulation and then has chronic miserable pain.  Staying in bed and taking migraine medication and then be on the C-pap machine with oxygen helps with that, and cannot take anything for pain due to the hypoxia.  She has gained about 40#.  She has no heat tolerance as she over eats, she does not wear heavy clothes as she is hot all the time.  Her temperature always stays the same, her normal temp if 97.  She then gets overexerted and stays hot.  Her cardiologist is Dr.  She had a heart monitor and had irregular heart beats and he agreed that his symptoms were POTS related, and that since she did not have a history of this before the vaccine, and once she started feeling better it should alleviate itself.  She went to PT for vistibular migraines which made her miserable and then decided to go to a chiropractor.  She saw Dr.  She had this and finally this is the only thing that has helped with the intense body pain and weakness and saw him twice a week for a while.  She went back and had work up done again about a month ago and is at a standstill.  She has been diagnosed from chronic sleep deprization and brain.  Hopefully after using the sleep apnea machine for a year they help the issue gets better and if not they are going to send her to the memory clniic.  She has to stay cold all day and her whoe life is disruptive.  She started counseling as she is frustrated about this and needs somebody needs to talk to .  She feels she has mast cell reaction to the vaccine.  She feels that they felt she was crazy until her blood work came back, but they cannot diagnose her to find out what it us, but agree that she does have something wrong with her.  She has joined many support groups which belongs to have helpd her find some relief of her symptoms, and now takes magnesium daily, drinks pineapple juice daily, she has to ice her brain 3-4 times a day using a migraine cap and has ice packs in it that you wear it like a hat after it freezes.  She has a roller that she rolls over her head and does cranial massage and has vegas nerve symptoms in her head and feels like she rolls over this it makes her feel like she has to swallow and pushes the fluid out of her head and moves down to her spine.   She eats a lot of cyrstalized ginger for the nausea as she does not tolerate dizziness medcations as they make her sick to the point that she has to stay in bed.  She also drinks body armour once a day, and eats vegetables and fruits.  In 6 months if her blood has not returned to a normal level she will have to have a bone marrow biopsy.   The symptoms she has is associated with lupus and they will have to see what is in her biopsy but she did test negative to the initial lupus.   She has missed a lot of work and could not get out of bed, see, function or go to work.  She felt that she would have to go on disability due to her condition.   She did not have any symptoms prior to the vaccine other than high blood pressure which she took one pill for that, and the other conditions.  All of this came back after that and has been sick from 24 hours from the vaccine until now.  She has never tested positive for COVID with all the testing that she has had.