Age: 46.0
Sex: M
Vaccine: COVID19
Symptoms: Blood test normal, Borrelia test positive, Central nervous system inflammation, Chest X-ray normal, Colonoscopy
Clinical narrative: On April 9th: I got the Covid Johnson & Johnson covid vaccine About a week later I suddenly got sick (after eating an unwashed apple?) Nausea, diarrhea, no fever, pain in my gut, and bloating. Ringing in my ears. Generally not feeling well at all and this came on very suddenly. April 22, I got desperate and went to ER where they did bloodwork and an abdominal CT scan, which showed only normal findings. Follow up with my primary at that time on April 23. He thought I had got these GI issues from eating an unwashed apple and symptoms were from toxins from a bacterial infection and it would resolve on it?s own soon. Which it never did. I did tell him I had just gotten the covid vaccine on April 9th I went to the ER again on April 27 because I was no better. They did blood work again, which again they said was normal. They put me on phenergan ( which is an antihistamine) and this is the only medication that has given me some relief but I can?t be on this at work. I also requested a stool series from Dr., all of which was negative. I made an appointment with a gastroenterologist office and saw his PA  on April 29. He really did nothing for me except to say it would pass and he thought is could be intestinal Covid. He sent me for a covid test but it came back negative and there was no way for testing for Covid in the GI tract. I mentioned that I felt I may have had covid in the past because I had direct contact several times but tested negative each time. My mother had a severe case of double pneumonia covid and actually tested negative three times while being admitted to a local Hospital and only tested positive with some type of specialized covid test. He put me on Omeprazole 20 mg and Miralax, which I can no longer take and also continued me on Phenergan 12.5 mg. On May 7th I went to the clinic locally, They did another Covid test and also stated my symptoms could be covid related but, again, it came back negative. On May 8th I was so desperate for some type of relief and some answers that I went to the [local Hospital ER, where they did more blood work and a complete abdominal CT scan with IV and Oral contrast which showed only normal findings. Again, they prescribed phenergan 25 mg and Reglan 10 mg. and suggested I have an endoscope done. At every ER visit I went to at the onset of my issues after the J&J covid vaccine, I told them at each ER visit that this all started shortly after my Covid vaccine and that I was perfectly healthy before getting the shot and have been healthy my whole life. Had an endoscopy by Dr. on May 12 with somewhat normal findings. It showed Esophagitis, Grade A and mild gastritis. There was some other finding on biopsy but he didn?t write it down or give me the report at my follow up visit on May 24 and just stated the I had a clean bill of health from the endoscope. He did not see any reason to have a colonoscopy at this time. On May 22, out of desperation, I had 5 amoxicillin from another issue at another time left over at 500 mg and I started to take them. after the 2nd day, I started feeling somewhat better. I again saw PA at Dr.'s office on May 24th. Again, he would not actually listen to my concerns on how I was feeling and that it was going on for so long. I did get him to put me on a course of Amoxicillin but that was only because I had a reactive band on my Lyme test. My major issue at this time is the fact that I keep having to call into work because of my stomach issues. I try to eat as much as my stomach will tolerate but have lost a significant amount of. weight over this. My anxiety is high because no one is giving me any diagnosis or solutions. Phenergan seems to be the only medication that helps but I can not work while taking it. I also started on Benadryl every day, which did help. was on it for many months. On May 28 I went to the clinic again because of my anxiety issue and not being able to sleep. If I?m at work and have issues from driving bucket truck and have to take a phenergan, I can?t work for the rest of the day. It seemed like the Phenergan was making me lightheaded and no longer helped me sleep. I saw a NP, that day. He was extremely helpful and explained that Phenergan could actually be making me more anxious. He also explained gastritis and what he was planning to put me on and why. I saw my new primary for the first time on June 1 and have been seeing her at first bi-weekly and then every month for this whole duration, and she has been filing my  paperwork for short term disability through my employer. I never thought that I would need either of them because I have always been healthy or got or things easily and didn?t need to take sick time or vacation time for things like I?m going through now and I have blown through all my vacation and sick days from the onset of this illness in mid April. I have lost over 25 lbs and continue with GI problems, ringing of my ears, dizziness, lightheadedness, brain fog, headaches, neck pain, etc. My primary also did my referral to the clinic in hopes that they could further help me with medications that she would not be able to prescribe for me but maybe they could because they were a research hospital. Scheduled appointment for colonoscopy on June 9th. Did Miralax and Ducolax prep and all clear liquid day before as ordered and it went well and stool was just clear liquid. Day of colonoscopy went well until after I woke up. I had a sharp mid lower abdominal pain that I did not have when coming in for the colonoscopy, and doctor stated he could not complete the colonoscopy due to incomplete prep. Said it would have to be rescheduled in about 2 to 3 weeks with a different prep but would have to see if that kind of prep could be gotten by then. I asked him about the sharp pain I was having and all he said was that it wasn't from the colonoscopy. Needless to say, I was angry and did not like his attitude about the pain I was experiencing. He never even asked me where the pain was and how it felt. For the rest of the day of the colonoscopy, I was nauseated, stomach pain, and continued with diarrhea, lightheadedness, and the stationary sharp abdominal pain. The day after the colonoscopy (June 10th), the hospital called me to see how I was doing. I told them about the pain I was having and the nurse told me to call Dr.'s office, which I did and left a message. ( This was early morning). When I didn?t hear back from his office, I again called and talked to the receptionist and left another message that I would like to hear back before office hours ended at 6:00. PA never called back until 6:30 that evening. When I told him the nurse at the hospital asked me to talk to his office about this sharp stationary abdominal pain he wanted to pass it off as gas. I told him it wasn't gas, that it was sharp and stationary, and I could feel it when gas and/or stool passed by that area. He put me on hold and went to talk to Dr. When PA got back on the phone, he told me to go to the ER and he would call them and ask that they do a CT scan with contrast. So off to the ER for the scan and more blood work, which is enclosed with this note) Didn?t get out of there till 10:30. By now I?m really upset but was told there was no perforation but still had pain. All I had asked of Dr. was if things got a bit rough and the pain would go away in a day or so!!! Next day after the CT scan with IV contrast (Friday June 11th) (this is the 2nd time of getting IV contrast and also had oral contrast 2 times before this scan) I had itchy rash on my feet and inside both my upper thighs, nausea, headache, and musculoskeletal neck pain, along with increased anxiety, loose stool, and increase of unsettled stomach. So I believe that it is a reaction to the contrast. It was like I was right back to day one of this problem. On Saturday June 12th, still had the rash, abdominal pain was better, headache was much less, neck pain was gone, but still lightheaded, still had stool that looked like diarrhea with Miralax, stomach still unsettled (worse in the mornings) Sunday June 13, still have the rash, still lightheaded, still mostly loose stool, stomach unsettled, especially in the mornings until I eat something, and will get some nausea, gas, and bloating. Monday June 14, still have the rash but almost gone, still lightheaded, stool a bit better, and stomach is still the same but better than when this all first started. I have not had any phenergan. Last night, around 9:30 when I went to bed, I started to have musculoskeletal pain again but in my left elbow (something like the neck pain I had). It lasted about 3 hours and then was gone. I have read the this can be from late iodine contrast reaction along with a lot of the other symptoms I have, such as the headache, skin rash, itching, nausea, dizziness, musculoskeletal pain, and gastrointestinal upset.: August 26th I was seen by Dr. at the clinic locally. He did a bilateral nerve block in my neck, which did help my left side neck and head pain but it did eventually return. From what I have read and learned about these Covid reactions, my pain is caused by inflammation and swelling of the brain stem. I had my echocardiogram ( ordered from Dr.) on 9/9 and findings were normal. On 9/14 I had an MRI of my brain, ordered by Dr., at the hospital, checking for inflammation. It was normal. I have been seen at Dr.s office twice a week for follow up on my neck with ultrasound therapy to help with nerve inflammation/headaches. This was Drs recommendation and it will continue for several more weeks. I have been seeing him continually since the onset of my problem. I had a Virtual appointment on Sunday 9/26 with another Dr. regarding my symptoms and he concurred that this is most likely due to covid vaccine causing and autoimmune issue. He will be ordering and administrating ozone infusion therapy each week (starting today)9/30 was my first infusion.I had a total of 10 ozone IV therapy sessions over a 10 week period. Dr. (neurologist) ordered a prednisone titration pack to help with my inflammation but I couldn?t start it yet because of the NVG testing and bloodwork I am having this morning so hoping to start it this weekend. I?m hoping to be able to be put on Hydroxychloroquine and/or Ivermectin as per the protocol to treat these symptoms per the attached document which should neutralize the spike Protein from the vaccine. Dr. wanted to try the Prednisone taper first and clinic will not issue me Ivermectin and/or Hydroxicloriquin for this. I have my appointment with the longhaulers/vaccine adverse reaction clinic on October 12 at 2:00. I am so hopeful that the doctor there will be able to give us more answers as how to neutralize this spike protein from the Covid vaccine. Didn?t happen, their hands are tied when it comes to discussions regarding Covid vaccine adverse reactions. I have been doing about the same. My headaches are starting to come back since my nerve block and steroid injection but not quite as bad as it was before the procedure. I?m still off, as in headache - dizziness - stomach unsettled, etc. (especially in the mornings) I find it hard when traveling to morning appointments because it usually makes me quite nauseated. I still am not driving because of this and the dizziness. And, I have extreme sound sensitivity along with tinnitus. I am still on 12.5mg of Benadryl at night along with several supplements to help with my issues in my gut and my head. These supplements are all in line with protocols for autoimmune reactions from the vaccine that Dr. has recommended and protocols from researching the internet. I have had an echocardiogram recently, which was normal. I have had two. medical professionals now tell me that this is most likely an autoimmune response from the J&J covid vaccine. I have not been able to return to work since June and was working only off and on before that because I would feel so ill at work, so I used up my sick and vacation time. I have had an VGN test ordered by my primary and it showed mild hearing loss and she referred me to an ENT doctor, who studied my ears and my brain MRI and can?t explain hearing loss except that, since getting the J&J covid vaccine, my ears are constantly ringing. My brain MRI, ordered by Dr in neurology at the clinic, was normal and the ENT doctor said it showed the nerves in my ears quite well and he saw no damage or inflammation there. Had tilt table done and diagnosed with POTS. Another Doctor I see weekly is trying to figure out exactly where this inflammation from the vaccine is located that caused the POTS diagnosis. I feel that these ozone treatments are helping but not sure yet. I?m still having my same issues. Ringing of my ears, headaches (although headaches are better at times), still have stomach issues off and on, my heart rate is still elevated and goes quite high at times, my blood pressure still fluctuates anywhere from 114/64 to 134/90 (my normal is 120/80) and my heart rates run high (resting is at high 80s to low 90s but raises significantly when I stand up and/or move around. Will spike up to 140 and above. Also becoming quite sound sensitive and is worse when my head, left sided, pressure and pain, along with neck pain and ringing of my ears is worse. I have been in contact with many forums who are experiencing my same symptoms and the neck and head issues are always on left side and is a result from brain stem inflammation and swelling. With all the Doctors having their hands tied and not being able to freely discuss covid vaccine adverse reactions and prescribe certain medications that they feel may help without losing their jobs, I feel at a loss. I?m just so frustrated and disappointed in my experience at the clinic. From the very beginning of my issues right after having the covid vaccine, with all the ER visits, weekly and monthly appointment with my primary doctor, all the blood work, testing, etc. no one seems to be able to help or openly discuss the issues I?m going through. I have to wait long periods of time to get in to see specialists and to get testing done. I have got more information and protocols of what has caused this reaction to the J&J vaccine, what is going on in my body as a result, some medications, such as Ivermectin, to help with my issues, and what to do with my POTS diagnosis all on medical websites documentations of covid vaccine adverse reactions and injuries. I just don?t understand how the politics of the current administration and the pharmaceutical industry can completely shut down all the evidence of these catastrophic reactions and ban the medical professions from this important information and viable medications that can help, not only with adverse reactions but with patients that actually have covid, and they are sent home with no medications such as Ivermectin or Hydroxicloriquin and many who subsequently die because of it. The most devastating thing that has come from 9 months of a reaction to a vaccine that should have been pulled from the market, and has completely devastated my life and career, is the fact that the medical professionals have given me no hope and no sound treatment plan because the CDC, this governmental administration, etc. has shut all information and research down. I also am scheduled to have testing at the clinic on January 31 2022 ( ordered by Dr.) and an appointment with Dr. at the clinic on February 1st 2022. He is a specialist dealing with POTS and related symptoms caused by Covid 19 and Covid vaccines. My POTS symptoms are well documented by 1000?s of people that are having these same reactions after receiving the Covid vaccine, along with the GI problems, headaches and neck pain ( always on the left side), dizziness, brain fog, etc. Did have my testing done at clinic. Dr. did state that he?s seen my symptoms in other patients after getting Covid vaccine. He put me on a medication to stabilize my heart rate and blood pressure but I could not tolerate it. All he had to offer after that was online classes to educate myself on POTS. What a waste. Another visit where doctors don?t know how to treat us with vaccine injuries or can?t because of political reasons. When I do fine a treatment that could help me looking at the county protocols for Covid vaccine injury, I can?t get the medication that might help because my insurance will not pay because it is off label use according to the FDA. You would think in cases like mine that my doctor can try different drugs without the government?s interference. I have even purchased a hyberbaric oxygen chamber to use on a daily basis to help get me back to normal. As of April 2022, it is now almost one year since I was struck done after getting the J&J covid-19 vaccine. I am slowly getting better but still not back to my health normal self. I have started back to work on light duty but, if I can not get over this and back to doing my full job capabilities, I can be fired. I just don?t know why the FDA and federal government can?t just admit that this can happen to people after getting the covid vaccine and why they can?t compensate us. I have filed for compensation, over 25000.00 that it has cost me so far, but from what I?m hearing and reading, I might not receive anything. In closing, April of 2021 forever destroyed my life after getting the covid vaccine and yet no one is being held accountable for it or even acknowledging the hundreds of thousands of us who are suffering from it. Procedures done since this start in April 2021: 4/22/21: ER visit local Hospital with cat scan and blood work. Normal findings 4/27/21: ER visit local Hospital No abnormal findings. ( I have had blood work done on at least 10 occasions since onset) I have had at least 4 or 5 Covid tests since onset - all negative 5/8/21: ER 2nd Hospital with full work up, blood work, and CT scans, no findings 5/12/21 Esophago-gastro-duodenoscopy at 3rd facility outpatient surgery, no significant findings 6/4/21: Full abdominal ultrasound at 3rd facility, Normal 6/9/21: Incomplete Colonoscopy, no findings 8/26/21: Dr. at clinic, Greater Occipital Nerve Block bilaterally performed with some relief that eventually wore off. 9/9/21: Echocardiogram at 3rd facility Hospital, Normal 9/14/21: Brain MRI done at 3rd facility Hospital, Normal 9/30/21: VNG testing at hearing specialist: mild hearing loss 10/14/21: Followup from VNG test with ENT Dr., tested hearing, reviewed MRI of brain, addressing hearing loss and Tinnitus. No findings. 10/21/21: Chest X-ray and NM Lung Ventilation and Perfusion Nuclear Scan, normal 10/27/21: Tilt Table Test, POTS diagnosis Three months of Ozone IV therapy, 10 Sessions 12/14/21: Cardiologist appt: EKG Diagnosis POTS 12/30/21: PFTs 3rd facility Hospital: 02/01/22: Testing and appointment with Dr. at Clinic. March 2022: hyperbaric oxygen therapy 5 days a week and continuing indefinitely. Physicians and Hospitals I have been treated at: 1st facility 2nd facility 3rd facility 4th facility 5th facility 6th facility 7th facility 8th facility 9th facility 10th facility 10th facility 11th facility 12th facility Current medications: Low Dose Naltrexone 4.5 mg a day Corlanor 5 mg a day (Ivabradine) Fluvoxamine 25 mg twice a day Propranolol 20mg as needed to lower heart rate Ivermectin 15mg once a week Medications that were ordered and have been stopped: Gabapentin Sertraline Ondansetron ODT Promethazine Hydroxyzine Metoclopramide Buspirone Amoxicillin Sucarlfate These are all prescription medication. Also I am on many supplements and have been on even more that were discontinued