Age: 7.0
Sex: F
Vaccine: COVID19
Symptoms: Sleep talking, Therapy non-responder
Clinical narrative: On 11/14/21 My daughter 7yrs old received the covid vaccine Pfizer initially, a little over a week later (11/25/21) she presented with a fever of 105 controlled by Tylenol but never went away on 11/28/24 took her to the emergency room where she tested positive for covid was told I was doing everything right continue with Motrin to control fever and was sent home, on 11/30/21 took patient back to emergency room because she then was not eating and just sleeping not knowing at that time that my daughter was slowing losing oxygen to her brain because she started hallucinating and talking in her sleep, we arrived at the emergency room at 10am that morning and at 2am the next morning my daughter went into her first of 2 cardiac arrests with the help of Fentanyl and Methadone she was then put into a coma before she was placed on the Oscillator a little less than 24 hours later (12-01-21) at 10pm the doctors from that hospital came to me and told me that my daughters lungs was failing and they could no longer help her so they transferred her over via Ambulance  to another hospital because they were more equipped to do a lung bypass according to what I was told. We arrived at hospital where she stayed on oscillator until 12/4/21 switched to ventilator on 12/5/21. As a mom who spend the entire duration in my daughter ICU room with her throughout this ordeal at times, I would suction the secretions that was coming out if her nose, at the time it looked like when milk goes bad, and it creates a foam at the top that?s what was coming out of my child. patient stayed on ventilator until 12/7/21 at 3pm when she came off, she received physical therapy speech therapy discharged 12/15/21 with blood thinners and methadone, no lung bypass needed thank God.  Here comes the enigma, patient stayed home from right out of the hospital until 3/22 once back out to school she presented with a cough after about a week and to this day as I?m writing you this letter, she still has that cough very wet and lots of mucus I was referred by her pediatrician to see a pulmonologist first diagnosis was asthma treatment albuterol, Symbicort and every antibiotic on the market including special approval for glycopyrrolate and levofloxacin nothing will get rid of this cough or mucus with that re occurring pneumonia moving from lung to lung with hospitalizations throughout the year on and off treatments are the same Dexamethasone, albuterol and prednisolone.  Finally in 9/23 when nothing has been working and that pulmonologist couldn?t figure it out, he reached out to the Pulmonologist team over at hospital and they decided to do a Bronchoscopy which by the way I was told nothing to worry about and then they increased her Symbicort from 80mg to 160mg and introduced azithromycin Monday, Wednesday, Friday, 5ml with Prednisolone tapered 17ml down to 5ml. The team had her see immunology as well and I was told she has no immune system. This is where I?m at today 2/3/24 in the past 4 months patient has been hospitalized every month thus far with every stay longer and longer the last visit being 1/18/24 for a total of 7dys diagnosis acute respiratory failure treatment was Dex, Cpap with continuous albuterol, magnesium no prednisolone because I said no to that drug because it's just a band aide it?s not helping patient, and She has received 2 doses of the IVIG and starting Hizentra subcutaneously every 2 weeks starting 2/9/2024.