Age: 37.0
Sex: F
Vaccine: COVID19
Symptoms: Seizure, Somnolence, Tremor
Clinical narrative: Monday pt went  for her 2nd covid shot. Within 2 hours she started to have a little hand tremor and headache. 2 hours later we were on our way to the hospital. On our way she started having a seizure... they continued to get worse and worse. The hospital believed it was an interaction between her meds she has taken for years and MAYBE the vaccine. They wouldn?t say it was the vaccine at all but just a possibility. Well after 8-9 hours and lots of other meds in her system they said she could go home and sleep it off, and she would continue to have these but they would lessen. So Tuesday morning after a night of tremors and shakes she started to have more full blown seizures. The 3rd one was so bad she passed out and was almost impossible to wake back up. 911 responders came (they were amazing at handling this) and brought her over to the hospital again. The hospital wouldn?t let me into the room for over 45 minutes till they did a full evaluation. They kept telling pt that I hadn?t arrived yet. So I don?t know what happened during that time frame. But she was still having seizures when I walked into the room. Even with the medicine they continued and weren?t where she was passing out each time but were insane and strong. They did a cat scan and the neurologist was located in the er. The hospital asked if I would drive her over to have her evaluated.  I said I would do anything for her and packed her up. The hospital asks me to pay a 175$ convoy before we leave and I said Just send me a bill.  Now we arrive at the neurologist (25 minutes away) and she?s having a bad seizure. We get her up there and the neurologist asks if this is how she as been the whole time and I said yes. He reads me the report from the hospital and it says she is having light tremors on and off. I was amazed at how off those notes were. He said she should NEVER have been allowed to leave the hospital and says she has to go back. So now I am driving 25 minutes back.  We get back to the hospital and they have a room in the ER ready for her but not ready upstairs. We are down there for about 6 hours but it was okay because they had her on so many meds that she was finally sleeping and it gave her muscles a little while to relax. So they get her upstairs to the best nurses in the hospital. I know from personal experience how great the nurses on this floor are because they took care of me for 5 days and my brother in law for 5 days. They just need to keep her relaxed. The nurses say they have never seen a reaction like this before. Every time she wakes up she has 2-3 seizures and she is showing signs of seizures while sleeping. I finally have to leave because of the whole covid rules and the nurse is very sorry but the wife is sleeping and I felt ?okay? leaving her with such a great staff. I woke up I the middle of the night freaking out wondering where my amazing wife went and remembered she?s at the hospital. I call the nurses station and the head nurse  talks to me and assured me she is still sleeping and hasn?t woken up yet. I can?t sleep foe th rest of the night but the nurse keeps me up to date by calling me. She had one attack on Wednesday morning around 5am when the person walked in to draw blood didn?t know what was going on and woke the pt up. The nurses stabilized her again and the made it so nobody could go in again without a nurse present.  Now I arrive Wednesday and they are just reducing the amount of meds they give her. She has slight seizures but nothing like they were. She is able to eat breakfast but needs a nap. She can walk 100 steps but starts falling asleep. She was able to eat lunch with minor issues. They decide it?s safe to send her home with just taking ibuprofen as needed. This goes well and she does ?okay? but it started to pick back up Wednesday night. It gets bad but none last more that 30 seconds and she can still talk through most of them.  Thursday first thing we call our primary care and get a video meeting 5 hours later. They see how bad she is and give her a prescription that is the same as the hospital but a lighter dose so she can rest.  This has worked as she was able to be awake for 2 hours to watch some tv and has no seizures.  This whole time all patient wants is someone to get all the knots out of her hair. So I am not amazing but my sister stopped by at the exact moment I was going to try and was able to get some out and get it up in a braid. Well I decided Thursday night to see what I could do. As suggested by a hair stylist just pour conditioner in and keep working it. So here we are both naked in the tub for 45 minutes and 1/2 a bottle of conditioner later I got like 95% of the snarls out and she?s exhausted. I finish washing her up and get her to lay back down. She sleeps for 3 hours because that was a lot on her body. She wakes up and eats dinner. She watched about 30 more minutes of TV (on and off) while I cleaned up after dinner. She then says she wants to go to bed. She has one seizure last night and here we are today. We will see how she does and I will keep you posted.  There?s many more notes here but she?s waking up so I gotta run.