Age: 43.0
Sex: F
Vaccine: COVID19
Symptoms: Nerve compression, Neurogenic bladder, Neuropathy peripheral, Night sweats, Pain in extremity
Clinical narrative: "Covid arm" immediately; swelling, redness, severe itch, pain. 2 hours after vaccine I developed a severe intractable migraine that lasted for 9 months. Vaccine triggered relapse of every condition including full body rash, EAC rashes and eczema plaques, keloid formation in scar tissue, urticaria, POTS exacerbation, resting tachycardia ongoing for several months, internal tremors and heart vibrations, pulsatile tinnitus in left ear, hyperacusis in both ears, severe neuropathy in forearms, tingling  head to toe, severely increased allergies to environment and medications, insomnia due to night sweats, hot flashes, flushing and severe uncontrollable MCAS flare up for several months - so much so that my diseases have progressed and worsened, totally disabling me. Irregular periods, unusual bleeding, PMDD and new onset period pain and vaginismus, rapid gastric emptying, SIBO, exacerbated diarrhea, constipation and severe abdominal swelling and bloating, thrombosed hemorrhoids Frozen shoulder exacerbation (still not recovered), kidney stones and neurogenic bladder dysfunction, severe nausea, gagging, vomiting, severe joint pain and multiple subluxations and pulled tendons, neck pain, stiffness and pinched nerves with radicualopathy. Over the course of 9 months was unrelenting, multi-system exacerbation, despite my efforts I was unable to receive proper medical care even though I reported all symptoms to not only my primary care physician but my entire team of specialists which include Dermatology, Autonomic Neurology, Cardiology, Neurogastroenterology, Migraine Neurology, Neurourology, Complex Disease Doctor, Gynocology, Colorectal and Neurootology, Sports Medicine, Pain Medicine and Immunology/Allergy. Because of this I have experienced a lot of medical trauma. After 9 months I am continuing to suffer from flare ups that are relapsing and remitting, but are much more severe than before my vaccine. I am still in this pattern and am having constant MCAS and chronic urticaria today, brain fog, cognitive dysfunction, migraines/cluster headaches/trigeminal neuralgia/intra-cranial hypertension, including new onset migraines with auras which persist and are totally debilitating.   Treatment has included Botox for migraines, sumatriptan, anti-inflammatories, Nurtec, Vegas nerve stimulation, Toradol injections, occipital nerve blocks and ice packs. I had a severe reaction to the occipital nerve block and these migraine rescue remedies totally stopped working during the vaccine flare. It is a struggle using any medication because I have a reaction to them or they fail to work as indicated. Botox is the only thing that seems to improve my severe migraine symptoms but I can only get that once every 3 months. For neurogenic bladder I have tried Hyoscyamine and Myrbetriq, of which I have had reactions to. I will be trying pelvic floor therapy to approve this dysfunction next. For frozen shoulder I have had multiple cortizone injections and physical therapy but the shoulder remains disabled despite my best efforts. For neck injury I have had to seek private services with a specialized group to rehabilitate it to some success with cervical neck collar and traction. For MCAS/derm manifestations I have had to seek out of network care from a very specialized immunologist and we are in the process of experimenting with mast cell stabilizers, anti-hystamines and other therapies to come. But I suffer from allergic reactions, even trying compounded medications which has been a crippling blow to my financial situation. Not to mention the amount of effort and work it has taken to wait on waiting lists and to be delayed by my insurance. For urticaria I am currently titrating on Zolair injections to see if that will work.  For POTS I have trialed every medication available including Corlanor, beta blockers, etc. and I have had allergic reactions to each. The only thing that has temporarily helped in IV saline hydration which is not easy to get, as I am constantly told there is a national shortage. This therapy is being gatekeeped from me by home care pharmacies, despite my doctors ordering it.  I have tried everything imaginable to control the ongoing inflammation in my body since this vaccine reaction and very little has helped. My quality of life has decreased significantly. I am sure there is so much more that I am forgetting right now, it has been a nightmare. I now have waned protection against COVID and have no medical guidance on alternative vaccines or immunotherapies that could help me tolerate a booster, etc. This is an injustice - as none of my care team know a single thing about how to help me deal with preventing or treating a COVID infection if I were to get one.