Age: 43.0
Sex: F
Vaccine: COVID19
Symptoms: Pain, Pain in extremity, Pharyngeal swelling, Swelling, Swollen tongue
Clinical narrative: I received the Pfizer COVID-19 vaccine. Within a minute I felt zinging running from my arm up my neck and into my head.  I became very hot and the room started to spin. I sat and stayed still trying not to fall.  There was a zinging repeating pulsation all throughout my brain for at least ten minutes.  I stayed seated for 30 minutes until I felt I was able to move. During the five minute trip home my mouth dried out severely I drank an entire water bottle and felt as though my throat was closing. I made it home drank two more bottles and then went to bed.  The dry mouth stayed with me and is still an issue today.  I also developed continuous ear pressure and back of the neck strain that ran up into the brain and started to cause dizzy spells. A week after I ended up in the ER due to severe dizziness, difficulty breathing, dry tongue, pain etc.  The ER confirmed they were seeing many individuals one week after the vaccine with these symptoms. I was given medicine to combat possible vertigo and slept for five days and improved some. I went home did end up getting the second shot 4/8/21. Had similar issues but this time the tongue swelled more and I was prepped with several bottles of water. Allergy medicine brought the throat swell down I drank and slept. The dry mouth which was much worse than that, swollen, throat, ear pressure and dizziness continued to be an issue. I tried to use the medicine from the ER. I continued to have strain arise from the back of the neck into the pressured ears and dizziness.  Over time these symptoms got worse and worse. Eventually I had a neck stemming into ear dizzy attack while driving and pulled over right at the point of an ER. Again, no serious heart attack or stroke found. I knew I hadn't been the same since minutes into the first vaccine, but no doctor would give any thought to my complaints and acted like I was nuts.  Then symptoms because worse and worse I was having numbness all over the body chest, arms, throat everywhere, weakness and fatigue I went from walking 14,000 steps before the vaccine to not being able to walk across the street, insomnia, brain fog like my brain wasn't work properly it became taxing to even think enough to have a conversation (life became very hard and everything was mentally draining the more I pushed the more dizzy and bad I felt), I had to stop taking masters classes and could barely keep up with my job and severe tremors. The weakness prevented me from doing almost anything in addition to become winded. I needed assistance to walk into appointments. I had two days for zinging repeating white lights from the base of my brain up pulsating with the numbness I feared death. I knew the ER couldn't figure out what was happening with me. I went to an ENT to see about the ear pressure and dizzy spells. They did testing to see if the ears were the issue, but it didn't seem inner ear related. My PCP also didn't believe the vaccine would cause any issue,  but blood work flagged some rheumatological markers. My rheumatologist didn't feel I had flared Schloderma and did a lot more blood work test. She did feel I was having fibromyalga minimum, but seemed to act different about my explanation of the vaccine causing immediate onset of symptoms.  She wanted me to see a neurologist asap. She also did a lot more blood work, xrays of the neck and other tests. Neurology knew exactly what was happening to me was caused by the vaccine. I explained all my symptoms and he knew immediately the vaccine had caused this. He said at first patients with these symptoms all had COVID first, but now it was 50-50 people who obtained them from the vaccine.  He said there was good and bad news. They are eventually getting better. I continued to struggle with these symptoms numbness of face, cheeks, extreme pain, brain fog, heavy chest, difficulty breathing, dry mouth, neck strain, joint pain, swelling. I have been poked proded, tested and fought hard to survive. My tremors at times were so severe and lasted over 24 hours eventually I was given Gapatenin to help with tremors and allow me to sleep. It flared my symptoms and I had numbness of face, neck, cheeks, throat and chest for almost 24 hours so I wasn?t able to take that. Previously I had take Cymbalta to help with the fibromyalgia. It had helped some, but post gabapentin the brain chemistry seemed to change again and now the Cymbalta cause the same flare of symptoms as gabapentin had but it lasted only 10 hours. I could no longer take Cymbalta.  I still struggle mightily eventually I was to get into a hospital study covid group. Days before the start they said I needed to take a covid test I said again I hadn?t had covid they said yes it doesn?t matter we do this just for data. Well I tested negative for covid and they threw me out of the study since the targeted group were long haulers who had covid not people who got long covid from the vaccine. Eventually my neurologist have me in December 9 months in a new med Mametidine for alzheimers patients to help with the brain fog and tremors. It helped some and I was able to walk 100 yards for the first time in 9 months. I then caught Omnicron and battled through it the best I can. I still have a cough, but am recovering. It seemed to have set back my symptoms and removed progress.  I know the vaccine caused me to have life changing and destroying long lasting effects I am still struggling to survive today 1/23/22.