Sex: F
Vaccine: COVID19
Symptoms: Impaired work ability, Laboratory test, Lip blister, Lip swelling, Loss of personal independence in daily activities
Clinical narrative: I started taking Allopurinol for gout. During the 6wks or so of taking the medication I began to have increasing allergy symptoms. I went my primary doctor several times with concerns. On this date I received my 2nd moderna vaccine shot for Covid. Now, because of similar symptoms I'm not sure if it was just the medication or the addition of vaccine which caused events to me because both given almost in the same time period. On this date I went to the clinic with complaints of migraine headaches, sore throat, increased irritated eyes, swollen lips and face. I was prescribed eye drops, Lidocaine liquid to soothe mouth pain from ulcers. Now, my reactions got progressively worst. I on 17th iof July went back to primary with complaints and was given more medication. Feeling like something was wrong I went to our local hospital ER and was sent home with a diagnosis of being within the window of 48hrs of vaccination of Moderna with some side effects. Determined to get some help because I felt like no one was paying any attention to my complaints that was getting worse I called my primary doctor and he had me call 911 right away for treatment. During this time a rash covered my body, extreme itch, blisters on lips, ulcers within mouth and throat. I was admitted for further examination because they was not sure what was happening and researched answers from hospital. I was diagnosed with with SJS from Moderna vaccine. After a week of my admission I stop breathing and was put on ventilation for 2wks. Things got very bad my body organs were getting worst, rash, lungs almost gone, and MRSA in my blood. Thanks to my hospitalist who stayed on my case and getting the correct treatment I got better. I was in the hospital for over a month recovering. After, I was sent to another hospital for rehabilitation. I needed physical, occupational, and speech therapy. After this ordeal I see several specialists and still have medical conditions, like chronic pain, weakened heart, pulmonary issues, joint and body pain, skin irritations, lost some of my hair because of the rash spreading into my scalp. Also, over all my body the top layer of my skin burned off and I still have some scarring, even the skin on the palms of my hands came off same with my feet. My toenails fell off too. These health issues keep me from resuming my life before all this. I was told that I have lingering symptoms from SJS and vaccine. Further more, I still contracted Covid twice with ongoing symptoms. Also, I had applied for disability and still having trouble with getting help because I can't work. I was told that I had the allergic reaction from the vaccine, advised not to receive ANY vaccines because not sure if SJS may happen again. I'm not sure if event was ever reported to FDA. I have been suffering with all the difficulties from my ordeal. And I am a diabetic. Presently, I go to pain management because of affected mucous membranes from the Steven Johnson syndrome. I use a cane to walk with because my balance is off and for the pain. I have been researching different avenues for help not sure how to get it. I feel like I'm exposed to disease without having the ability to get vaccines. I never had a problem with flu or pulmonary vaccines. I have come a long way in my recovery but, still battling with health problems. Still waiting all this time for a decision for disability. This has impacted my whole life. I really appreciate any help or guidance towards this. Thank you.