Age: 15.0
Sex: F
Vaccine: HPV9
Symptoms: Dysstasia, Ear pain, Educational problem, Ehlers-Danlos syndrome, Emotional distress
Clinical narrative: In short, fall of 2023 in September my daughter's brain and body stopped working the way they are supposed to and it has steadily gotten worse and has become debilitating as of 12/10/24. It became very noticeable about 3 weeks after her 3rd shot in the HPV vaccine series, around September 13th, 2023. Since then all of her grades have fallen since she can t think or concentrate consistently and she was a 4.75 GPA student. She was in honors and advance high school classes. She hadd been telling me how hard it is to focus since she has so much brain fog, constant headaches, and now a ringing in her ears (tinnitus). She had to study much harder and longer than ever to keep good grades for the 2023-2024 school year.  She was an athlete, a dancer of 10 years, and an assistant dance teacher. She s become completely exercise intolerant and has had to quit dance by June of 2024. She could only dance for about 2 minutes before the dizziness and weakness would make her stop. She has lost 10lbs of muscle and is completely deconditioned now. This health journey has been sad and humiliating and it is invisible. She looks fine on the outside.  She s been battling terrible depression and now sees a counselor weekly to help. She cannot exercise and release those happy endorphins to help with the depression. She s missed so much school for this sudden onset chronic illness (mainly migraines, nausea, extreme weakness, and vertigo) and doctor appointments. She doesn t want to do online high school. She wants to go to a real high school in person but we have run out of options. Most days all she can do is lay in bed with headaches, nausea, and weakness. Its incredibly difficult to get ready, get dressed, do anything. She might be able to leave the house once or twice a week but it makes her overstimulated and so exhausted she won t be able to do much the next day or two. We are going to try virtual high school in January 2025. This has ruined her life. She was a healthy, smart, self-motivated athlete before the HPV vaccines.                                                                                                            HPV Vaccines - Suspicious that these affected her. We did not have this before the HPV vaccines. 11-21-22 Shot 1 1-23-23 Shot 2 - Suddenly developed Raynaud's after this one 8-3-23 Shot 3  Symptoms from September 2023 that continue: Lightheadedness Little fainting spells, was fainting in her desk at school Bad and increasingly worse blood circulation, blood wants to pool in her lower legs and feet. Heart issues: Heartbeat flutters, heart feeling weird, pressure on chest Cannot stand for long periods, too lightheaded  Excessive brain fog Chronic fatigue Weakness Odd blood pressure problems when standing up from lying or sitting, she has blacked out from this Shortness of breath difficulty breathing with any physical exertion.   Additional Symptoms she picked up since the fall of 2023 and everything has gradually gotten worse.  Random joint pain, musculoskeletal pain in hips, neck, elbows, back, feet, hands, and stomach, every day. Random pain and aches in her major arteries, thighs, arms, etc. every day Tremors in hands randomly  Losing dexterity in her fingers and having increased difficulty with fine motor skills Increased difficulty in gross motor skills Increased clumsiness and difficulty with spacial awareness, she runs into things more frequently, and people at her dance classes (again she had to quit) Knees give out randomly Falling from lightheadedness More difficult to form complete thoughts and sentences. Some days are worse than others.  Sudden gluten sensitivity since early January 2024. Gluten triggers nausea, fatigue, and migraines. Tinnitus ringing in ears that is worse some days than others. Eyes are becoming increasingly sensitive to light. Ears are increasingly sensitive to sound. Sometimes her ears just hurt for no reason. Increased short-term memory loss  She struggles to remember school lessons and her dance choreography, which used to come easily. Random chest pain and chest tightness. Headaches EVERY DAY that vary from mild to migraine Lives with daily nausea any time she eats, it varies from mild to throwing up Now her skin is getting loose. She can pinch an inch and a half of skin on her arms. She can pull her cheeks out and neck with loose skin. It never did that before. Zones out completely Crazy heart rate every day - when sitting it can get as low as 40 and when exercising 190 and this is daily If she crosses her legs or any part of her body the legs hurt or that body part hurts Blood continues to pool in legs and hands Increased weird sweats. She never used to sweat much but now armpit sweat will drip down and drench her.  Hot and cold flashes. Difficulty controlling her body temperature. She has to layer clothes for cold and hot flashes.If she eats anything cold now she will have full-body shivers and chattering teeth.  Increased paleness and clamminess. Vertigo randomly but especially when trying to dance or exercise. The room spins. Out-of-control cystic acne ever since she was on Metoprolol this spring 2024. Nothing we do gets rid of the acne.  Medications from Dr. for POTS that did not work. Florinef - horrible side effects  Midodeine - horrible side effects (acted drunk, could not walk a straight line or talk coherently) Metoprolol Succ ER 25 mg - at bedtime each day (beta-blocker) We took this for 4 weeks. It noticeably helped keep her heartbeat become more regular and helped the brain fog a little. They would not increase it because it would be too dangerous.  Side effects: sensitive skin, horrible uncontrollable acne, dry skin, excessive hair loss, and depression. When she started the beta blocker at the end of January, her skin changed completely from oily teenaged skin to dry, and extremely sensitive with excessive acne. Before this medicine, her acne was under control. Now she can barely wash her face or wear makeup because it makes her face burn. 9/6/24 and her acne is still out of control and is the cystic hormone scarring acne The hair loss was too much so we took her off of it on Thursday, February 28th, 2024. She?s lost about half her hair and I had to cut 6? off.