Sex: M
Vaccine: HEP
Symptoms: Ear tube insertion, Ehlers-Danlos syndrome, Fall, Head injury, Immune system disorder
Clinical narrative: Vaers,   I wanted to let you know more in depth why we are not proceeding forward with anymore vaccines, and the injuries to report, below are just a few examples. This will be in regards to patient.    Background info. Patient's brother and patient had a titer for chicken pox neither showed immunity. Patient's sister had a titer for MMR no immunity. Patient has known immune system dysfunction in the form of IgA and CD8(+cytotoxic T cell). His immunologist thought bc of his ASD and immune system issues he has 22q11.2 deletion syndrome. She called me after an appt to tell me to come back and have labs drawn for it, to stop vaccines. We went back and did labs. It took months to hear anything. Something happened and insurance wouldnt cover the labs. I asked for a medical exemption form to bring to his PCP and she changed her tune and said vaccinate. I have researched and with titers showing they arent working and patient's known issues, we are no longer vaccinating. We stopped in 2016 (with no longer getting flu vaccines) and have been healthier these last few years than ever before, I know you might not agree with our decision but this is what is working for us. Patient and brother were not on medication that would effect them/their reaction to a vaccine when they had vaccines, so that didnt effect the results. Patient wasnt on medication that would effect his levels when his labs were drawn to check his immune system so this is not why its low. Patient's sister wasnt on medication that would effect her levels when her vaccines were done again not a reason to have no titer levels. I have had shingles multiple times from 2014-2016 (once I stopped vaccines I stopped getting it). My immune system is low for me to get shingles more than once.  The other kids nor I or even patient have had a work up to find the underlying cause. Patient isnt due for his 4-6 year vaccines till hes actually 6 years old but I know you want to talk about this and I need to be honest. We will not be vaccinating any longer because for us its what makes us healthier. With patient's autism diagnosis from Dr (their neurologist who has seen them for many years now several times a year and per the CDC a neurologist can very much dx ASD), I would also like genetic testing because I know vaccines and such can flip the switch and boom ASD. Im not saying that ASD is my only concern with vaccinating, there are many concerns but the fact my boys have ASD and we have many red flags for not vaccinating (contraindications), injury and death do occur, vaccines are not a one size fits all, for healthy people sure its ok but for medically fragile and immune compromised individuals its dangerous.   We have a STRONG family history (with just our immediate family but also my siblings and their kids and so on) of Autism, Ehlers Danlos Syndrome, immune system dysfunction, vascular malformations, stroke, MTHFR/COMT and other methylation pathway issues, autoimmune issues, thyroid issues, cancer, seizure disorders, febrile seizures, cerebral palsy, dermagraphism, many sensitivities and allergies, turners Syndrome, suspected MITO dysfunction and MCAS and more. There are MANY red flags.   I refuse to harm my family anymore. The risks are greater than any benefits. Im not worried about viruses or VPD. We are taking preventative measures to keep ourselves healthy daily. However I am worried about harming my children and grandchildren with vaccines because they are the ones who shouldnt be vaccinated. I have talked to the CDC. Per them they say the family medical history and vaccines are contraindicated. Im not just going off of mommy blogs I would never do that. I went to the CDC the big guys. I went to reputable sources and articles. I did not do this on a whim or without greatly researching it. I have 4 medically fragile children (and myself too) I have always took great care in finding them the best sources and resources to manage these conditions and read up on their conditions so I am knowledgeable. Im sure with our crazy family medical history my grandchild would also have similar conditions because of genetics. So we have decided no vaccines for her as well. I even found out our big mystery and self diagnosed then presented it to our doctors, our EDS. Again I know you might laugh or think it is anecdotal, but we have been the healthiest we have ever been since we stopped. I hope I can still find doctors to care for my children considering our choice to no longer vaccinate, but if not I understand because these days its turning to mandatory/forced vaccination in many areas but we are still free to choose. My kids also have a religious exemption because I do not agree with the way vaccines are manufactured. But the point is we will no longer receive vaccines.   Info on patient   So I didnt put this together when it was going on, I just knew something was wrong and we went to the doctor way too much.  Just some back ground...he did have the cord around his neck at birth, he did have an episode of back arching, vomiting (could have been a seizure- but they had to resuscitate him with a bag and mask). But he also had the VIT K and Hep B around birth before this episode so who knows...But he didnt have seizures noticeable till I got concerned and PUSHED the dr to refer us to a neurologist around age 3, but he did have a scary episode one holiday and had several of those breathe holding spells (too many).  Looking back patient was injured REPEATEDLY!!! (and probably the others -his siblings- I cant get into Dr one of his doctors records so the last 15 years of info is gone, I asked for it once a few Decembers ago and was told giving me my medical info could be bad bc others could obtain my info so Im going to try again in a few months once I have some spare time I know itll probably cost me per record too so thats why Ive held out on really pushing getting them. This isnt all the doctor appts either for patient since I dont have his from A previous dr.)  Ok so patient receives the vaccines on the days it says...  So 10-14-15 he received a set (DTaP-Hib-IPV, pneumococcal(PCV13)) and on 10-19-15 (went to quick care and ER visit), he was very sick...   12-3-15 ER- sick possible strep  12-25-15 ER- I was in out of town with patient's his sister we were returning and I couldnt get home fast enough when I got to airport and my mom and uncle picked me up and said my husband had rushed patient to the ER. I was 30 miles away and broken hearted that I wasnt with my baby while he was in trouble....patient was at home with his dad and my family, my husband left him at my moms and sisters, he came back and patient was in his play pen looking like he was choking. He rushed him to the ER bc he thought he was choking, they ran x-rays found nothing said it was nothing. We now know it was a seizure per his neurologist reviewing the records. He had many episodes after where hed pass out too when hed cry, but he outgrew it. (I dont know if he would of had this anyway).   10-29-15 another Set of shots (Hep B, influenza virus vaccine)  11-27-15- quick care- possible strep  1-26-16 quick care- I took him from daycare bc he had a rash. Quick care said to start with it may of been scarlet fever but bc he was under 1 they said no it was a viral rash. Looking at rashes of kids after vaccines due to reactions I wonder if this was related to vaccines.   12-2-16 ER- he fell and hit his head, knowing now that he was having seizures they think he had a seizure and fell.  He was repeatedly sick. This isnt all of his records. He eventually had to have his adenoids and tonsils removed (tonsils were a 4+ and his adenoids were bigger Dr said- he quit breathing at night. I stopped sleeping. We were miserable. I was terrified. He also had tubes placed bc he repeatedly got ear infections.)   An immunologist dx immune issues. We now know he has low IgA levels, low CD8+(cytotoxic T cells) your immune system fighter cells. They think he has 22q11.2 deletion syndrome (a contraindications to vaccines per the CDC.) Also crazy thing is vaccines and low T cells theres a correlation so looks like vaccines could be responsible for that.  Above isnt everything its just the little portion I can remember. Looking back though I remember he was repeatedly sick after every vaccine I just didnt know then that vaccines could come with side effects, injury or even death so I never kept track of it all.   Since patient hasnt had vaccines hes slowly gotten better, his speech, his health...it takes awhile to detox the vaccines. He will always have ASD and always have immune system dysfunction etc so the damage is done but I refuse to cause further damage by injecting the vaccines that caused damage.  Patient has MTHFR mutations, My husband (his dad), his brother and I all have the same MTHFR mutations, this mutation has to do with the way your body detoxes. It also has to do with your mitochondrial function (Dr - said vaccines can cause autism in a subset of children. Autism and MITO dysfunction correlate, patient is dx with ASD. We all have hEDS (hypermobile Ehlers Danlos syndrome) its a connective tissue or collagen disorder depending on what doctor you ask. Collagen/connective tissue is ALL throughout your body, those with Ehlers Danlos Syndrome  have faulty collagen/connective tissue. It is a systemic disorder you are more fragile. Mito dysfunction, immune system dysfunction and MCAS all go hand in hand with EDS. The kids and I all react to bandaids and have multiple other sensitives.   Im sure my other children had similar experiences but I just cant remember bc at the time I didnt think it would be relevant to keep track of all of it. I will NEVER fail my kids (or grandkids) again I will advocate and fight for them and with them. I will not be someone who says I lost my baby (OR grand baby) to vaccines.  We also wont do vaccines because of religious reasons due to aborted fetal cells in vaccines, but above is why a medical exemption fits us. I pray mandatory vaccines do not come because I can not stand the idea of having to give my child a vaccine that I know has caused harm in the past and will again! However due to no doctor wanting to even talk about options if you don?t vaccinate let alone dig and give a medical exemption I?m very scared that I will be forced to.    Thanks Patient's mom