Age: 46.0
Sex: F
Vaccine: COVID19
Symptoms: Impaired work ability, Infusion, Lip swelling, Loss of personal independence in daily activities, Magnetic resonance imaging spinal normal
Clinical narrative: She got her vaccine, then after a couple of days she noticed her hand was swelling, her lips were swelling, was tired and thought it was her back.  She went to surgeon and did MRI of her back and it was normal  Went to pain doctor did not know why her arm was swelling and why she was tired.  She did PT and after that she went for an EMG, which was fibromyalgia.  They told her they did not know, pushed medicine, Lyrica and whatever for pain and it did not work.  Sent her to neurologist, they do not know what is going on with her, why her lips are swelling, why she has arm pain.  In March of 2022 they did blood work and found out that she has small fiber neuropathy.  After this her neurologist decided that she had to have infusions.  She left her job, she applied for disability as she cannot stand, cannot take care of her kids and cannot step on stairs.  They did PT, water therapy, floor therapy.  Now she takes an infusion every month.  She goes to the place and then they give it to her 2 days, and now the nurse comes to her house.  They do not know if she is going to be good or not.  They found that she has high protein in her blood.   She cannot cook for her kids, cannot take for her kids.  Now with the IV therapy it is helping her some, but it makes her system sick and she cannot be by somebody who is sick as her immune system is not good.  Yesterday she had the IV therapy and every-time she gets the IV therapy she gets a reaction and has to take Steroids, which she states is too much.  The nurse stayed with her yesterday and she took care of her.  She feels this is not fair that she has these symptoms as she had taken the shots for her kids and she has a 20 year old and is informed that she has lupus.  She pushed her kids to take the vaccine, and now she feels this is from the vaccine.   The infusion takes many hours to finish and she is a caregiver and at 49 now she has to be taken care of.  She took 2 vaccines and did not get the 3rd one.  She was 100% in favor the vaccines, and took the Pfizer and is now against the vaccines 100% due to her reaction.  The problem even when she talks to her doctor after 1 month she got the COVID then she got the vaccine, which put move of the virus in her body and was informed that she could get the vaccine within 2 weeks of getting over COVID.  She went to many hospitals to seek treatment and many different specialists and had therapy in 2021.  She has had problems with her back and they felt that she may have had herniation in her back.  She had to take the infusions as the small fiber neuropathy was going to attack all her joints.  She was also found to have sleep apnea.  She goes every 3 months to see neurologist, her pain doctor and other doctors.  Her condition has not improved, and she continues to see her doctors at Hospital.  She is improving, but still not her normal.    She sees a psychiatrist as now she has depresion and anxiety and takes Cymbalta as this is too much what she has been through.  She was a very active person and now a nurse has to come to her house to help her.