Age: 76.0
Sex: F
Vaccine: RSV
Symptoms: Activated partial thromboplastin time, Anti factor Xa assay, Antibody test, Antineutrophil cytoplasmic antibody, Antinuclear antibody
Clinical narrative: 10/12/23 ? Received the Abrysvo Bivalent RSV vaccine from Pfizer, HF5018 into left arm at pharmacy.   No symptoms to report after vaccine. 10/13/23 to 10/15/23 ? Sore left arm.  No other symptoms to report.   10/17/23 ? Complaint of Headache.  Feel ?off?. 10/18/23 ? Weird ?Buzzing or zinging? in head.  Feeling ?off?. 10/19/23 ? Feeling like I am getting the ?flu?.  No fever.  Temp is actually lower than normal for me at 97.2.  Normal is 98.4 to 98.6.  No diarrhea, no sore throat, no nausea or vomiting.  Behind my ears hurt on both sides.  Tested myself for covid.  Negative at this time. 10/20/23 ? Went to see Dr.  Saw PA vs Dr.  Told the PA that I was felt like I was getting the flu but also had a weird burning in my feet and going into my legs as well as breasts and sternum.  I was able to walk until today.  Today I asked my daughter to get me a cane.  Barely could walk from front door of office to appt.  Tested for covid, strep, and flu?all Negative.  Sent back home and said it was viral and will run its course. 10/21/23 ? Symptoms are getting much worse.  Burning is very uncomfortable to downright painful in my feet, legs, and now in my breasts, and sternum area.  Pain at an 8 to 9 out of 10.  My lips and gums in my mouth are getting numb.  I have numbness in my legs and it?s getting harder to walk.  Needed to use my mother?s old walker and have my daughter help me get to the bathroom.  I am so very weak and can?t feel my feet. Nose also feels numb on the tip.  Went to ER.  CT of head is normal except for chronic small vessel opacities.  Blood work done, supposedly all normal.  ER doctor said this is viral and wanted to send me home.  Daughter spoke up about the RSV vaccine and could this be Guillain-Barre Syndrome.  Doctor said he would consult with neurology and let us know.  Kept in ER for one night.  Sent to holding room from 9:30 AM on 10/22/23 to 5:30 PM the same evening.  Transferred to 5th floor on evening of 10/22/23.  No doctor in to see me.  No more tests done other than bloodwork.  Daughter or nurse has to help me to the bathroom.  Feeling unsteady and can?t feel my feet.  Legs also getting numb with tingling.  Burning starting to slow down but the numbness is getting worse.  Able to walk down to the bathroom with a walker and someone to steady me.  Getting weaker. 10/23/23 ? discharged from the hospital.  Said to ?follow-up with neurology department and my PCP.  PT Eval for home therapy prescribed.  Given Lyrica to see if this helps.  Was given two doses in the hospital..it helps with the burning.   10/23/23 ? filled Lyrica and took it at home this evening.  PT coming for eval on 10/27/23.  Feeling more numb but less pain except in upper thighs and sternum.  Breasts still very tender.   10/24/23 ? getting weaker.  Can?t lift my left leg on my own, especially the left.  Once standing, I can use the walker but need help ambulating to the bathroom.  I have nowhere to lay down.  Daughter renting a hospital bed for me as I cannot move let alone climb the stairs.   10/25/23 ? put mom?s old porta pot next to the hospital bed in the living room.  I cannot move far.  Need help to do so.  Very unsteady.  Left foot is getting worse.  Right foot also starting to be effected.  It?s like I am telling myself to walk but my body won?t listen.  Getting more numb and it is going into my groin and waist.  Hard to make myself have a bowel movement.  It?s like my body cannot push out the stool.  Taking benefiber and drinking water but not helping.   10/28/23 ? Daughter took me to hospital after speaking with the PA at Dr.s office.  Symptoms are worsening.  Still able to ambulate with a walker when I am helped to stand.  Left leg just doesn?t want to move easily.  But once up, I can ambulate, just not well.  My daughter has to help with toileting as I cannot stand and balance to pull pants up.  Neurology consulted.  Battery of tests completed.  Don?t think it is Guillain-Barre but not sure what it is.  Did CT scan of head and back.  I believe MRI done of spine, C1 to S1.  Nerve conduction studies done. 10/30/23 ? Been monitored the last few days in the ER.  Symptoms are stable.  PT came in to eval and saw that with help I can stand.  Ordered home PT again and said to continue Lyrica.  Sent home.  Took daughter and a whole lot of oomph to get me into the house.  Using hospital bed downstairs and daughter helping me to the bathroom.  Told to see home physician and call for appt to neurology.  Neurology department could not see me until May 2024.  Daughter pushed and got an appt for January 2024.   Blood work ordered by Dr.s PA.  PT to resume. 11/2/23 ? Symptoms are getting much worse.  No longer can lift my left leg.  Numbness is climbing to my mid-back.  Right leg works but getting weaker and I cannot stand easily on my own.  ER for the second time.  Neurology consult.   11/3/23 ? Admitted to 5th floor ? neuro unit.  MRI of brain ordered along with lumbar puncture.  Being seen by neurology department as well as orthopedics for my spine to rule out back issue causing this.  Daughter asked why if it was a lower back issue would there be a sudden onset of burning, tingling and numbness into the chest area and lips.  No answers given.  Some blood work sent to clinic for evaluation.  Every time neuro comes in to do a neuro check, they make me move the muscles in my legs and once they do, within minutes I can no longer lift my legs.  Barely able to wiggle my toes on the right.  Left leg, I cannot move the toes.  No feeling in my big toes at all.  CT done again also on the spine.  Numbness continues.  Nurses have to help me to bed side commode.  Talks of rehab at some point to get me stronger. 11/8/23 ? Numbness and inability to stand very prevalent.  No one has answers.  Ortho says there is severe stenosis at L3-L4 and that this ?may? be a secondary issue to whatever is going on.  Said to rehab and see how it goes then in 4 to 6 weeks go see my home orthopedic department.  With numb limps, numb sternum and now numbness around my thoracic spine area and sternum, how can this be an L3-L4 spinal stenosis issue.  There is more to this and no one wants to say that it potentially is a GBS type issue or CNS system issue from the vaccine.  Why can no one give me something as a precaution in case it is?  Frustrated.  Did hang a bag of plasma later today.  Wonder what this was for??  Another Nerve conduction study done as well as another MRI of lumbar spine. 11/9/23 ? After a battery of tests and no real answers, they are talking D/C to a rehab facility.  All of this started days after an RSV vaccine! I told the physicians that.  I had no acute illness/virus.  I have congestive heart failure, pace maker for A-fib and RA.  Was working three days a week, going to bingo once a week, driving, doing own groceries, taking care of my own house and animals before this.  I walked 4 steps into my house, 14 to my bedroom.  Now I cannot move my legs.   11/10/23 ? D/C?d and admitted to another hospital.  Transferred via ambulance as I cannot walk without two person assistance.  Seen by Dr., second Dr., PT, OT.  Therapy starts tomorrow. 11/11/23 ? Will have to look at their notes.  Plan is to be here for two weeks and then discharge to home with home PT and OT.  Plan is to build strength in arms until feeling comes back in the legs.   11/21/23 ? Still in rehab.  They extended the stay until 12/1/23.  Still no steps.  Can?t lift legs to ambulate on my own.  Starting to get a scratchy throat and feel off.  By evening, running a mild fever.   11/22/23 ? Feverish this morning.  Tested for covid and am positive.  Moved to isolation room.  Therapy done in the room.  I am regressing.  Took two to get me into a wheelchair.  I feel awful.  Night time I had wet the bed.  Have to use a bedpan now.  I cannot stand.   11/23/23 ? No therapy, it is holiday.  Still using bedpan.  Chest is worse.  Chest X-ray done.  Have not heard results so I guess no news is good news.  Having to cough yet my body can?t force the cough. Same with the bowels.  I feel like whatever is effecting me, is on the inside as well.  Its like my brain cannot fire the signals to my body.  Started on Mucinex.  Needed max assist of two to get me into the chair today to clean the bed.  Had to use a ?slider?.  I cannot move.   11/24/23 ? PT in room.  PT said I have regressed about 80%.  I am told to tell Dr. this when he comes in.  I told him.  He said they will see what insurance can do but discharge is still set for 12/1/23.  Had an appt with orthopedics set for 11/29/23 (Dr.) just to make sure that the back issue isn?t also adding to the lack of movement. Wouldn?t I have noticed a back issue if that was the case.  Prior to this I had no issues.  But, willing to rule it out.  Appt now moved to 12/5/23.  I have no idea how I will go home at this point when insurance kicks me out.   11/30/23 ? covid isolation almost over.  Been doing therapy in the hall.  Still no movement with the left leg.  I can walk about 10 steps but can?t get turned around as my leg won?t move.  Fell in the bathroom today while trying to go to the bathroom.  Legs just ?gave out?.  This appointment with Dr. cannot come soon enough.  I just need help and answers.  No one knows.  One nurse said she saw the same issue in the same hospital after the new RSV vaccine.  I still think this has been the issue all along.  Why is no one listening??