Age: 0.5
Sex: M
Vaccine: HEP, PNC13
Symptoms: Screaming, Skin discolouration, Surgery, Ultrasound scan abnormal
Clinical narrative: I'm writing on behalf of my son. Even before he was born, my husband and I knew he was going to have to fight hard and we were going to have to fight for him. We did what all slightly older parents do (if you call 35 old), we had the 10 week genetic screening for our son and it came back completely normal? No extra chromosomes and we were having another boy! We were thrilled. So, when we walked into the anatomy ultrasound at 19 weeks, we were just expected to see a cute picture of our baby. We never expected to walk out with a prognosis of may not be compatible with life and sent to a specialist. He was diagnosed with CPAMS, Congenital pulmonary airway malformation, which are cysts in his lungs, as well as a PDA in his heart. He was monitored every week to ensure he didn't develop hydrops in utero congestive heart failure. When I went into perterm labor at 35 weeks, they gave me (and baby) steroid shots to help fast mature his lungs and then here he was, perfect, breathing well and placed into my arms instead of rushed off to emergency surgery. He monitored carefully for the next 3 months, dutifully getting the required vaccines, discussing the RSV vaccine, as he was at higher risk for respiratory infections. At 3 months, he had what was scheduled as a laproscopic right lower lobectomy to remove the cystic tumors, but the had to open to a full thoracotomy due to complications. He spent 5 days in the cardiovascular intensive care unit (CVICU) recovering and then we were sent home, but not before they reminded us that he was supposed to continue to receive vaccines. At 6 months, I decided to continue spreading the vaccines apart, as I had done for his earlier vaccines, as well as his older brothers vaccines. On July 26, 2018 I took patient in for his last set of 6 month vaccines 13 days he turned 6 months. This is a day that will be forever seared into my brain. This is the day my sons right arm swelled, monstrously, within 5 hours of receiving the vaccines. 5 hours where I went from planning a camping trip with my family to rushing my son to urgent care and then the emergency room, being told at first it must be abuse, then compartment syndrome at urgent care to a no big deal bug bite at the emergency room. We were told to watch it and if it got worse, to go the pediatric clinic, but not to worry. They didn't even do an xray or ultrasound. We went on that camping trip, as we believed the doctors when they said no big deal. The first day was great, but the arm and swelling started turning a little blue and we swore it was getting bigger. We didn't like it, but hey, bug bites swell. On the second day of our camping trip, he began to scream in pain, cry loudly and was inconsolable. We rocked and shushed him, talking desperately about whether we should leave right now or if it was just teething. I made an emergency appointment for the next afternoon at the pediatric clinic, just to make sure it was nothing more that a bug bite. My husband even rolled his eyes a little - I mean the doctors did say it was nothing. The next day, at the pediatric clinic, I was offered the choice of ambulance or to drive my son down to Emergency Room. I drove, with the doctor calling ahead to warn them that I was coming all because of his arm. You NEVER want to be first in line in the emergency room. You want to be the last in line. First in line means an emergency. First in line means you are on your knees praying that it isn't what you are afraid it is and worrying that your child might be rushed into surgery. First in line means emergency ultrasound, where you see what you KNOW are tumors, but no one will confirm. First in lines means waiting hours for an anesthesiologist, so an emergency MRI can be completed, to get a better look at what they are now calling the mass. First in line means you get an emergency hospitalization where they cannot tell you when you will be released  because they don't even know all the tests yet. First in lines mean more anesthesia and a needle biopsy, with the oncological radiologist admitting it was a sarcoma, but that they didn't know which one it is. First in line means praying for the good sarcoma. First in line means you leave the hospital knowing you child has cancer and will need surgery. First in line made me wonder if the vaccines we did only a few days before, the ones we did 5 hours before the arm swelling, could have caused my sons cancer. This was July 30, when we were admitted. We were released August 2. On August 13 they called with the news it was Infantile Fibrosarcoma and they called an emergency meeting with the whole team, who decided quick and immediate surgery would be needed. More scans, tests, medical appointments and then on August 16, 2018 my son lost the majority of his right tricep and some functionality. We continued to follow up and during the November scan, it showed that there was recurrence of the tumor. We changed teams, did a PET scan, another MRI and then on Jan. 31, 2019, his arm had to be reopened, he lost more tricep, a little bicep and part of his latissimus dorsi.  He left the hospital with radial palsy and even more limited functionality from the surgery. We are left praying it will not reoccur. We stand by our beliefs that the vaccines pt received on July 26, 2019 caused the emergency of the infantile sarcoma tumor. After thorough research, we found that there are numerous studies in cats that show the growth of sarcomas after vaccines, as well as mice. There was even a meeting of an Advisory Committee to determine if tumor growth should be included in the vaccine warning pamphlet because of these very studies, in which the decision was that they wouldn't include the warning. That warning could have saved my son from a lifetime of struggle. He will most likely never be able to use his arm normally throw a ball, pull down. This limits his opportunities in life, as well. My husband, as well as his father, proudly served in the military and we were hoping one of our sons would continue with that tradition as a military family. Patient will not be afforded that option, because he received a mandated vaccine at 6 months that took away many options in life. When he was 6 months old, he received the HepB Vaccine from GlaxoSmithKline lot number F32XZ and Prevnar 13 from Wyeth-Ayerst Laboratory lot number W09943.  I wish, with all my heart that I could go back to that day, only 6 short months ago and not give him those vaccines. Then my son would be whole. He would not have had options taken away from him. He would still be healthy. I wouldn't have had to learn the horrors and fear of being first in an emergency room. How deep I could pray and how much strength it takes to fight back cancer, fear and pretend that waiting for the 10th time in a doctors office in just a few months in normal. Wait, it is. Vaccines made cancer and doctors our normal.  We added the name so that he would have the extra fight he needed to battle CPAMS. We never expected vaccines to make us also battle cancer. Luckily, we are strong but we shouldn't have to be we should have had the choice and full knowledge of what was being injected into our son and allowed to choose if we want to accept those risks.