Toxic Exposure Research Act of 2016

To establish in the Department of Veterans Affairs a national center for research on the diagnosis and treatment of health conditions of the descendants of veterans exposed to toxic substances during service in the Armed Forces that are related to that exposure, to establish an advisory board on such health conditions, and for other purposes. 1. Short title This Act may be cited as the Toxic Exposure Research Act of 2016 2. Definitions In this Act: (1) Armed Force The term Armed Force (2) Descendant The term descendant (3) Exposed The term exposed (4) Exposure The term exposure (5) Toxic substance The term toxic substance (6) Veteran The term veteran 3. National center for research on the diagnosis and treatment of health conditions of the descendants of individuals exposed to toxic substances during service in the Armed Forces that are related to such service (a) National center (1) In general Not later than one year after the date of the enactment of this Act, the Secretary of Veterans Affairs shall, in consultation with the Advisory Board established under section 4, select a medical center of the Department of Veterans Affairs to serve as the national center for research on the diagnosis and treatment of health conditions of descendants of individuals exposed to toxic substances while serving as members of the Armed Forces that are related to such exposure (in this Act referred to as the National Center (2) Criteria for selection (A) In general The National Center shall be selected under paragraph (1) from among medical centers of the Department with expertise described in subparagraph (B), or that are affiliated with research medical centers or teaching hospitals with such expertise, that seek to be selected under this section. (B) Expertise described The expertise described in this subparagraph is— (i) expertise in diagnosing and treating functional and structural birth defects; or (ii) expertise in caring for individuals exposed to toxic substances and diagnosing and treating any health conditions resulting from such exposure. (C) Preference Preference for selection under paragraph (1) shall be given to medical centers of the Department with expertise described in clauses (i) and (ii) of subparagraph (B), or that are affiliated with research medical centers or teaching hospitals with such expertise. (b) Research (1) In general The National Center shall conduct research on the diagnosis and treatment of health conditions of descendants of individuals exposed to toxic substances while serving as members of the Armed Forces that are related to that exposure. (2) Studies In conducting research under paragraph (1), the National Center shall study individuals, at the election of the individual, for whom the Secretary has made one of the following determinations: (A) (i) The individual is a descendant of an individual who served as a member of the Armed Forces; (ii) such member was exposed to a toxic substance while serving as a member of the Armed Forces; and (iii) such descendant is afflicted with a health condition that is related to the exposure of such member to such toxic substance. (B) (i) The individual was exposed to a toxic substance while serving as a member of the Armed Forces; and (ii) such individual is afflicted with a health condition that is related to the exposure of such individual to such toxic substance. (3) Use of records (A) In general The Secretary of Defense or the head of a Federal agency shall make available to the Secretary of Veterans Affairs for review records held by the Department of Defense, an Armed Force, or that Federal agency, as appropriate, that might assist the Secretary of Veterans Affairs in making the determinations required by paragraph (2). (B) Mechanism The Secretary of Veterans Affairs and the Secretary of Defense or the head of the appropriate Federal agency shall jointly establish a mechanism for the availability and review of records by the Secretary of Veterans Affairs under subparagraph (A). (c) Social workers The National Center shall employ not less than one licensed clinical social worker to coordinate access of individuals to appropriate Federal, State, and local social and healthcare programs and to handle case management. (d) Reimbursement for necessary travel and room and board The National Center shall reimburse any individual participating in a study pursuant to subsection (b), and any parent, guardian, spouse, or sibling who accompanies such individual, for the reasonable cost of— (1) travel to the National Center for participation in such study; and (2) room and board during the period in which such individual is participating in such study at the National Center. (e) Reports (1) Annual report (A) In general Not less frequently than annually, the National Center shall submit to Congress and the Advisory Board established under section 4 a report on the functions of the National Center during the year preceding the submittal of the report that includes a summary of the research efforts of the National Center that have been completed during such year and that are ongoing as of the date of the submittal of the report. (B) Upon request Upon the request of any organization exempt from taxation under section 501(c)(19) (2) Quarterly report to Advisory Board Not less frequently than quarterly, the National Center shall submit to the Advisory Board a report on the functions of the National Center during the quarter preceding the submittal of the report that includes the following: (A) A summary of the research efforts of the National Center during such quarter. (B) A description of any determinations made by the National Center pursuant to such research efforts regarding whether health conditions of descendants of individuals exposed to toxic substances while serving as members of the Armed Forces are related to that exposure. 4. Advisory board (a) Establishment Not later than 180 days after the date of the enactment of this Act, the Secretary of Veterans Affairs shall establish an advisory board (in this section referred to as the Advisory Board (b) Membership (1) Composition Not later than 120 days after the date of the enactment of this Act, the Secretary of Veterans Affairs, in consultation with the Secretary of Health and Human Services, the Director of the National Institute of Environmental Health Sciences, and other heads of Federal agencies as the Secretary of Veterans Affairs determines appropriate— (A) shall select not less than 13 voting members of the Advisory Board, of whom— (i) not less than three shall be members of organizations exempt from taxation under section 501(c)(19) (ii) not less than one shall be— (I) a descendant of an individual who was exposed to toxic substances while serving as a member of the Armed Forces and the descendant has manifested a structural or functional birth defect or a health condition that is related to the exposure of such individual to such toxic substance; or (II) a parent or child of that descendant; (iii) not less than six shall be health professionals, scientists, or academics who are not employees of the Federal Government and have expertise in— (I) birth defects; (II) developmental disabilities; (III) epigenetics; (IV) public health; (V) the science of environmental exposure or environmental exposure assessment; (VI) the science of toxic substances; or (VII) medical and research ethics; and (iv) additional members may be selected from among social workers and advocates for veterans or members of the Armed Forces who are not employees of the Federal Government; and (B) may select nonvoting members from among individuals described in clause (iii) or (iv) of subparagraph (A) who are employees of the Federal Government. (2) Chairperson The Secretary shall select a Chairperson from among the members of the Advisory Board. (3) Terms (A) In general Each member of the Advisory Board shall serve a term of two or three years as determined by the Secretary. (B) Reappointment At the end of the term of a member of the Advisory Board, the Secretary may reselect the member for another term, except that no member may serve more than four consecutive terms. (c) Duties The Advisory Board shall— (1) oversee and assess the work of the National Center; (2) not less frequently than quarterly, meet with the director or another representative of the National Center on the work conducted at the National Center, including the research efforts of the National Center; (3) review the annual report submitted by the National Center to Congress and the Advisory Board under section 3(e)(1); and (4) advise the Secretary of Veterans Affairs on— (A) issues related to the research conducted at the National Center; (B) health conditions of descendants of individuals exposed to toxic substances while serving as members of the Armed Forces that are related to the exposure of such individual to such toxic substance; (C) health care services that are needed by the descendants of individuals exposed to toxic substances while serving as members of the Armed Forces for health conditions that are related to the exposure of such individual to such toxic substance; and (D) any determinations or recommendations that the Advisory Board may have with respect to the feasibility and advisability of the Department providing health care services described in subparagraph (C) to descendants described in such subparagraph, including a description of changes to existing policy. (d) Report (1) In general Not later than one year after the establishment of the Advisory Board under subsection (a), and not less frequently than once each year thereafter, the Advisory Board shall submit to the Committee on Veterans’ Affairs of the Senate, the Committee on Veterans’ Affairs of the House of Representatives, and the Secretary of Veterans Affairs a report on the recommendations of the Advisory Board. (2) Elements Each report submitted under paragraph (1) shall include recommendations for administrative or legislative action, including recommendations for further research by the National Center, with respect to each health condition of a descendant of an individual exposed to a toxic substance while serving as a member of the Armed Forces for which the National Center has made one of the following determinations in conducting research under section 3(b): (A) The health condition is related to the exposure of such individual to such toxic substance. (B) It is unclear whether the health condition is related to the exposure of such individual to such toxic substance. (C) The health condition is not related to the exposure of such individual to such toxic substance. (e) Meetings The Advisory Board shall meet at the call of the Chair, but not less frequently than quarterly. (f) Compensation The members of the Advisory Board shall serve without compensation. (g) Expenses The Secretary of Veterans Affairs shall determine the appropriate expenses of the Advisory Board. (h) Personnel (1) In general The Chairperson may, without regard to the civil service laws and regulations, appoint an executive director of the Advisory Board, who shall be a civilian employee of the Department of Veterans Affairs, and such other personnel as may be necessary to enable the Advisory Board to perform its duties. (2) Approval The appointment of an executive director under paragraph (1) shall be subject to approval by the Advisory Board. (3) Compensation The Chairperson may fix the compensation of the executive director and other personnel without regard to the provisions of chapter 51 and subchapter III of chapter 53 5. Declassification review by Department of Defense of certain incidents of exposure of members of the Armed Forces to toxic substances (a) Review The Secretary of Defense shall conduct a declassification review to determine what information may be made publicly available relating to any known incident in which not less than 100 members of the Armed Forces were exposed to a toxic substance that resulted in at least one case of a disability that a specialist in the field of occupational medicine has determined to be credibly associated with that toxic substance. (b) Release of declassified information To the extent practicable, and subject to subsection (c) and consistent with national security, the Secretary of Defense shall make publicly available information declassified following the review required by subsection (a). (c) Limitation Information made publicly available pursuant to subsection (b) shall be limited to information necessary for an individual who was potentially exposed to a toxic substance to determine the following: (1) Whether that individual was exposed to that toxic substance. (2) The potential severity of the exposure of that individual to that toxic substance. (3) Any potential health conditions that may have resulted from exposure to that toxic substance. 6. National outreach campaign on potential long-term health effects of exposure to toxic substances by members of the Armed Forces and their descendants (a) In general The Secretary of Veterans Affairs shall, in consultation with the Secretary of Health and Human Services and the Secretary of Defense, conduct a national outreach and education campaign directed toward members of the Armed Forces, veterans, and their family members to communicate the following information: (1) Information on— (A) incidents of exposure of members of the Armed Forces to toxic substances; (B) health conditions resulting from such exposure; and (C) the potential long-term effects of such exposure on the individuals exposed to those substances and the descendants of those individuals. (2) Information on the National Center established under section 3 for individuals eligible to participate in studies conducted at the National Center. (b) Department of Veterans Affairs In carrying out this section, the Secretary of Veterans Affairs shall design and implement the national outreach and education campaign conducted under subsection (a), including— (1) by distributing printed materials containing the information described in subsection (a) to veterans; (2) by publishing such information on an Internet website of the Department of Veterans Affairs that is available to the public; (3) by presenting such information in person at facilities that serve a large number of veterans or members of the Armed Forces; and (4) by educating employees of all medical facilities of the Department with respect to such information and providing such employees with printed materials containing such information. (c) Department of Defense The Secretary of Defense shall assist the Secretary of Veterans Affairs in implementing the national outreach and education campaign conducted under subsection (a)— (1) by making the information described in subsection (a) available to all members of the Armed Forces and their families; (2) by notifying all members of the Armed Forces of such information; and (3) by publishing such information on an Internet website of the Department of Defense that is available to the public. (d) Department of Health and Human Services The Secretary of Health and Human Services shall assist the Secretary of Veterans Affairs in implementing the national outreach and education campaign conducted under subsection (a)— (1) by making the information described in subsection (a) available to members of the health care profession; (2) by notifying such members of such information; and (3) by publishing such information on an Internet website of the Department of Health and Human Services that is available to the public. 7. Prohibition on new appropriations No additional funds are authorized to be appropriated to carry out this Act and this Act shall be carried out using amounts otherwise made available for the purposes of this Act. May 24, 2016 Reported from the Committee on Veterans’ Affairs May 24, 2016 The Committee on Armed Services

Summary: Toxic Exposure Research Act of 2016 (Sec. 3) This bill directs the Department of Veterans Affairs (VA) to select a VA medical center to serve as the national center for research on the diagnosis and treatment of health conditions of the biological children or grandchildren of individuals exposed to toxic substances while serving as members of the Armed Forces that are related to such exposure. The bill requires: (1) the Department of Defense (DOD) or the head of a federal agency to make available to the VA for review records held by DOD, an Armed Force, or that federal agency that might assist the VA in making determinations regarding individuals and descendents afflicted with an exposure-related health condition; (2) the VA and DOD or such agency head to jointly establish a mechanism for VA review of records; and (3) the national center to employ at least one licensed clinical social worker to coordinate access of individuals to appropriate social and health care programs and to handle case management. (Sec. 4) The VA shall establish an Advisory Board to oversee and assess the national center and to advise the VA regarding the center's work. The board shall report on its recommendations at least once a year. (Sec. 5) DOD shall: (1) conduct a declassification review to determine what information may be made publicly available related to any known incident in which at least 100 members of the Armed Forces were exposed to a toxic substance that resulted in at least one case of a disability that an occupational medicine specialist has determined to be credibly associated with such substance; and (2) make such information available consistent with national security and limited to information necessary for determining whether an individual was exposed to such substance, the severity of exposure, and any potential health conditions resulting from such exposure. (Sec. 6) The VA shall conduct a national outreach and education campaign directed toward members of the Armed Forces, veterans, and their family members to communicate information on: (1) incidents of exposure of members of the Armed Forces to toxic substances, health conditions resulting from such exposure, and potential long-term effects; and (2) the national center for individuals eligible to participate in national center studies. DOD and the Department of Health and Human Services shall assist the VA in implementing such campaign. (Sec. 7) No additional funds are authorized to carry out this bill.