Congenital Heart Futures Reauthorization Act of 2024

To amend the Public Health Service Act to reauthorize a national congenital heart disease research, surveillance, and awareness program, and for other purposes. 1. Short title This Act may be cited as the Congenital Heart Futures Reauthorization Act of 2024 2. Reauthorization of national congenital heart disease research, surveillance, and awareness program Section 399V–2 of the Public Health Service Act ( 42 U.S.C. 280g–13 (1) by redesignating subsections (f) and (g) as subsections (g) and (h), respectively; (2) by inserting after subsection (e) the following: (f) Report and strategy (1) Report Not later than 2 years after the date of enactment of the Congenital Heart Futures Reauthorization Act of 2024 (A) A description of past and present activities of the Department of Health and Human Services to increase awareness and knowledge of the public with respect to congenital heart disease, including efforts to address the lifelong needs of congenital heart disease patients. (B) An assessment of past and present activities of the Department of Health and Human Services to increase education and training of health care providers with respect to congenital heart disease, including efforts to address the lifelong needs of congenital heart disease patients. (C) A description of the current workforce capacity in the United States of health care providers who treat adult patients living with congenital heart disease. (2) Strategy (A) Development; submission to Congress Not later than 1 year after submitting the report required by paragraph (1), the Secretary shall develop and submit to Congress a strategy for improving efforts to increase awareness and knowledge of the public and education and training of health care providers with respect to congenital heart disease. Such strategy shall include findings and recommendations to— (i) address any public awareness and research gaps and opportunities related to the lifelong needs of congenital heart disease patients, including long-term health outcomes, quality of life, mental health, and health care utilization; (ii) address any shortages in the current workforce of health care providers who treat adult patients living with congenital heart disease, which may include strategies to enhance fellowship training programs or other continuing education programs; and (iii) foster collaboration and dissemination of information across Federal agencies, health care providers, researchers, and patient organizations. (B) Consultation In developing the strategy under subparagraph (A), the Secretary shall, as appropriate, consult with qualified stakeholder groups, including patient organizations, health care professionals, research entities, health insurance providers, accrediting organizations, and relevant Federal agencies, including the Centers for Disease Control and Prevention, the National Institutes of Health, and the Health Resources and Services Administration. ; and (3) in subsection (h), as so redesignated, by striking 2020 through 2024 2025 through 2029 May 22, 2024 Reported with an amendment, committed to the Committee of the Whole House on the State of the Union, and ordered to be printed

Summary: Congenital Heart Futures Reauthorization Act of 2024This bill reauthorizes through FY2029 the National Congenital Heart Disease Research, Surveillance, and Awareness Program, which is administered by the Centers for Disease Control and Prevention. The program supports data collection, educational campaigns, and other efforts to better understand the causes and effects of congenital heart disease across various demographics.The bill also requires the Department of Health and Human Services to (1) report on the awareness campaign and its efforts to support the health care workforce with respect to treating congenital heart disease, and (2) develop a strategy to improve these efforts.