bluuebunny/crossref_metadata_2025_split huggingface dataset:
THE POWER OF EPHEMERAL GESTURES: THEORIES OF GENDER AND PERFORMANCE
Authors: Highberg Nels , Chamberlin Emma 
Published: January 2025

Abstract
Questions of what defines gender have long been central to theorists, activists, and artists who place gender and sexuality at the center of their work. This presentation provides an overview of feminist and queer theories that can deepen the thinking of those who engage with drag performers. We begin by providing a definition of cultural hegemony informed by the work of Antonio Gramsci and James Lull. Theorizing of power and ideology – including ageism, sexism, and homophobia – Gramsci and Lull argue that dominant ideologies result from intergroup interactions like those exemplified in the anti-drag legislation that dominates the United States. From there, we shift to feminist and queer theories of performativity and identity formation. We start with the foundational work of Judith Butler, whose “Gender Trouble: Feminism and the Subversion of Identity” in 1990 and “Who’s Afraid of Gender?” in 2024 ask how much of “gender” comes not from an essential, internal core but from repeated, unconscious actions enforced by external socio-political forces. That leads to the value of performance and gesture in the creation of a lasting queer legacy. José Esteban Muñoz theorized a queer ephemera that includes drag in his 2009 publication of Cruising Utopia: The Then and There of Queer Futurity, highlighting how gestures in drag aid in the creation of a culturally forbidden queer history, a history that becomes richer and more complex as these drag artists – along with theories about gender and sexual minorities in general – age.
IMPLEMENTATION OF COMMUNITY-BASED PALLIATIVE CARE: A SYSTEMATIC SCOPING REVIEW
Authors: Ho Dorian , Dissault Nicole , Vick Judith , Skalla Lesley , Dukkipati Haripriya , Ma Jessica , Kaufman Brystana 
Published: January 2025

Abstract
Community-based palliative care (CBPC) models, which include palliative care (PC) delivered in outpatient clinics and homes, improve quality of life for people living with serious illness and their care partners. CBPC access has been expanding across the United States, with the goal of delivering PC earlier in the trajectory of serious illness care. This systematic scoping review aimed to summarize provider perspectives regarding barriers and facilitators to CBPC program implementation. MEDLINE and CINAHL were searched for peer-reviewed qualitative research published between 1/1/2010 and 1/9/2024 that included provider perspectives on CBPC, excluding hospice or end-of-life care. Two reviewers screened articles and extracted themes. Framework synthesis was used to categorize themes into provider, organization, and environmental levels according to the PRISM (Practical, Robust Implementation and Sustainability Model) framework. Thirty-five articles were included, varying by providers (PC providers, referring providers, administrators) and practice settings (PC clinic, specialty-embedded PC clinic, home). At the provider level, misperceptions of PC by referring providers, poor inter-provider communication, and unclear roles were perceived barriers to CBPC. Conversely, multidisciplinary PC teams, referring provider PC education, and collaboration were perceived facilitators. At the organizational level, time constraints were perceived barriers while leadership buy-in, shared medical records, and colocation of PC into specialty clinics were perceived facilitators. At the environment level, limited PC workforce and PC reimbursement were perceived barriers. Few articles addressed cultural sensitivity; standardized performance data; and social needs resources. Successful CBPC implementation requires addressing factors at the provider, organizational, and environmental levels.
CHARACTERIZING CARE PARTNER INVOLVEMENT IN THE COMMUNITY AGING IN PLACE, ADVANCING BETTER LIVING FOR ELDERS PROGRAM
Authors: Perepezko Kate , Toto Pam , Fields Beth 
Published: January 2025

Abstract
A growing number of interventions exist to help older adults age safely and independently in their homes, however, many of these programs overlook care partners (i.e., family or friends who provide support). The purpose of the current study was to report on the types of care partner involvement in the Community Aging in Place-Advancing Better Living for Elders (CAPABLE) program. We characterize care partner involvement using multiple data sources: (1) Number of interventionist contacts, (2) Number of goals set, and (3) Quality of care partner interactions with the older adult. We used personas to represent the major types of care partner involvement observed (Miaskiewicz & Kozar, 2011). Preliminary analysis revealed three types of care partners, “Passive Peter,” “Collaborative Candice” and “Safety-Conscious Savannah.” Passive Peter had minimal communication throughout the program (n=1) and did not identify any goals. Collaborative Candice had some contact with interventionists (n=3) but couldn’t attend all visits because she worked full time. Interventionists described her as “working well” with the older adult. She identified two goals for herself. Finally, Safety-Conscious Savannah was involved in one intervention visit and spoke with interventionists on the phone (n=2). She provided support for the older adult’s goals and identified her own goal that was focused on the older adult’s safety. Interventionists described her as doing a lot of work for the older adult. These findings reveal different ways that care partners are involved in an aging in place intervention and can inform future interventions aiming to include care partners.
DO FAMILY CAREGIVERS MATTER FOR HEALTH CARE UTILIZATION? A STUDY OF MENTAL HEALTH SERVICES USE BY OLDER VETERANS
Authors: Wyman Mary , Jacobs Josephine , Stalter Lily , Ventakesh Manasa , Voils Corrine , Trivedi Ranak , Gleason Carey , Amy Byers 
Published: January 2025

Abstract
Mental health (MH) concerns are common in late life. Compared to younger adults, however, older adults are much less likely to use MH services. To guide efforts to increase appropriate utilization, it is important to understand factors impacting MH use. Family caregivers represent a novel, yet understudied, pathway. Using a unique data resource combining 2000-2012 U.S. Health and Retirement Study with Veterans Affairs administrative records, we used mixed effects logistic regression to examine the association between receiving assistance from a caregiver and the likelihood of MH utilization in a sample of community-dwelling, primarily male (96.5%) and non-Hispanic white (77.0%) older veterans. After accounting for demographics, caregiver availability, health factors, and socioeconomic status, caregiving receipt was associated with two-fold odds of MH utilization, compared to receiving no assistance (N=8839 person-observations; OR=2.02; 95% CI 1.54-2.65). The relationship between caregiving receipt and MH use was potentiated by the care recipient both being classified as having dementia and as having less severe MH symptoms. Subsequent logistic regression models examined the impact of multiple caregiver characteristics on utilization among veterans receiving assistance. Primary caregiver female gender was the only predictor which retained an independent, positive association with the outcome (N=764; OR=2.95, CI 1.45-6.00). Findings suggest that caregivers represent an underutilized resource to reduce age-related mental health access disparities, but that certain caregiver subgroups (e.g., male caregivers) may benefit from targeted education or support to help facilitate appropriate MH service use by older adults.
SUPPORTING FORTITUDE AMONG FAMILY CAREGIVERS: THE ROLE OF ADULT DAY SERVICES FOR PERSONS WITH DEMENTIA
Authors: Young Heather , Tonkikh Orly , Ogugu Everlyne , Famula Jessica , Bell Janice 
Published: January 2025

Abstract
Caring for a person with dementia requires family fortitude in terms of commitment, time, energy and ability to manage a trajectory of several years. Family caregivers provide the vast majority of care for over 7 million individuals living with dementia. Many are adult children who deal with competing demands of other family members and employment. Adult Day Services (ADS) offer respite for family caregivers and meaningful support for persons with dementia. This study presents caregiver perspectives from the California Community Program for Alzheimer’s Supports and Services Pilot Program that engaged seven sites in a learning community to develop care standards and advance equity. We conducted semi-structured interviews and thematic analysis of recorded transcripts. The sample included 24 caregivers aged 25 to over 85 (12 spouses, 10 adult children and 2 other relatives). Caregivers described ADS services as life sustaining, being a vital resource that enabled them to continue in their role, balancing other demands. ADS improved mental health and physical health, reduced strain, and fostered self-care and engagement in the broader social network. The services also provided education and enhanced their skills in caring, prolonging their ability to continue. ADS services benefit both persons with dementia and caregivers. Future research could illuminate the long-range health care and societal costs and benefits of ADS for both persons with dementia and caregivers. Sustainable solutions bolster fortitude and optimize person and family-centered care.
FAMILY CAREGIVING FOR INDIVIDUALS WITH PARKINSON’S DISEASE AND LEWY BODY DEMENTIA IN CALIFORNIA
Authors: Whitney Robin , Bell Janice , Link Benjamin , Bhurtel Shikha , Ogugu Everlyne , Tonkikh Orly , Kelly Kathleen , Young Heather 
Published: January 2025

Abstract
Parkinson’s Disease (PD) and Lewy Body Dementia (LBD) are related progressive neurodegenerative disorders that primarily affect older adults. Many individuals with PD/LBD require support from a family caregiver. However, caregivers of individuals with PD/LBD are infrequently studied. We extracted data from 2019-2022 in CareNavTM, a statewide electronic platform with data from caregivers served by the eleven California Caregiver Resource Centers, to compare caregiver sociodemographic characteristics, caregiving activities, and outcomes among caregivers of individuals with PD/LBD to those of individuals with Alzheimer’s Disease and related dementia (ADRD) and other chronic conditions (OCC). Care recipient condition was examined as a predictor of caregiving outcomes (e.g., loneliness, depressive symptoms, strain, and worsening health) using multivariable logistic regression models. There were a total of n=13,649 caregivers, with a majority caring for someone with ADRD (66%), followed by OCC (23%), and PD/LBD (10%). PD/LBD caregivers were more likely to be older, female, white, college-educated, and retired. PD/LBD caregivers were more likely to care for a spouse, spend &gt;40hrs/wk on caregiving, assist with more personal care, and experience problems with the care recipient waking others up at night. In multivariable models, PD/LBD caregiving was independently associated with caregiving strain (OR 1.2; 95% CI [1.0-1.4], p= 0.01) and worsening health (OR 1.2; 95% I [1.1-1.4], p&lt; 0.01), but not with depressive symptoms or loneliness. PD/LBD caregivers are a unique subset of family caregivers engaged in intense and complex care. Services and supports tailored to this condition and related needs may be warranted to optimize caregiver wellbeing.
INTERSECTION OF RACE/ETHNICITY, NATIVITY, AND EMPLOYMENT IN SLEEP QUALITY: A MULTILEVEL MODELING STUDY
Authors: Karakida Maki , Stokes Jeffrey 
Published: January 2025

Abstract
Sleep disorder is a common problem seen in middle-aged and older adults. Work-related stress can also impact people’s sleep quality, yet differences between working and retired older adults’ sleep is unclear. This study examines the relationships between work, retirement, and sleep health, including their intersection with race/ethnicity and nativity, among 31,868 Americans aged 50+. Using the Health and Retirement Study samples (2014 – 2020), we analyzed how diverse older workers and retirees experienced their sleep health differently. We used multilevel linear regression to examine the associations between working/retirement status, race/ethnicity, birthplace, and sleeplessness, controlling for age, gender, birthplace, assets, education, marital status, smoking, exercise, and self-reported health. The regression model without interaction terms demonstrated that compared to retirees, older workers have a significantly higher likelihood of sleep disorder. Black race, assets, education, and age had positive and significant relationships with sleep deprivation, whereas martial loss (divorced, widowed, and never-married) and female gender had significantly lower onsets of sleep disturbances. In the model examining the intersection of race/ethnicity and nativity - interacted with work status - revealed that, compared with US-born non-Hispanic White adults, US-born and foreign-born non-Hispanic Black adults had a significantly higher risk of insomnia. In contrast, non-native Hispanic workers and foreign-born non-Hispanic Other workers had a significantly higher prevalence of sleep difficulties than US-born non-Hispanic White workers. Multilevel findings suggest that the intersectionality of race/ethnicity and nativity plays a decisive role in the association of work status and sleep quality among midlife and older adults in the US.
EXAMINING THE IMPACT OF ADVERSE CHILDHOOD EXPERIENCES AND ACTIVE COPING ON COGNITION IN OLDER AFRICAN AMERICANS
Authors: Graham Karen , Steinman Audrey , Paun Olimpia , Barnes Lisa 
Published: January 2025

Abstract

Objective
To examine the association between Adverse Childhood Experiences (ACEs) and cognition in older African Americans and to determine whether active coping moderates the effects of ACEs on cognition later in life. Design: Secondary analysis of data from the Minority Aging Research Study (MARS), a longitudinal community-based study that examines cognitive health and aging in older African Americans.

Methods
Data from 756 MARS participants were analysed. Participants completed cognitive global functioning tests as well as questionnaires to evaluate exposure to ACEs (The First 18 Years Survey) and active coping (John Henryism Active Coping Scale). We used a correlational analysis (t-tests, ANOVA, linear regression) to examine the associations between ACEs and cognition. Additionally, active coping (an inner ability to address difficult experiences) was examined to determine if it moderated the impact of ACEs on cognition.

Results
ACES were not associated with global cognitive functioning. However, a negative relationship was found between active coping and global cognitive functioning, such that more active coping was associated with lower cognition. We did not find active coping to be a significant moderator of ACEs. Conclusions: High active coping scores were found to be correlated to impaired cognitive functioning. More research is needed to address this phenomenon as well as the impact of ACEs on older Black people.
CHILDHOOD PARENTAL RELATIONSHIP AND COGNITIVE HEALTH IN LATER LIFE: ASSOCIATIONS MEDIATED BY SELF-ESTEEM AND SENSE OF CONTROL
Authors: Zhu Xi 
Published: January 2025

Abstract
Life course researchers have found that early-life experiences are linked to later-life cognitive health. However, very few studies have paid specific attention to the parent-child relationship in childhood. This study extends the current literature by considering the relationship between childhood parental relationship and cognitive health in later life. Using data from the National Longitudinal Study of Youth (1979-2020), I looked at both positive and negative/dysfunctional parental relationships in childhood and examined whether they predicted older adults’ self-rated memory and objective cognitive function. To further understand the mechanisms behind the relationship, I also examined the mediation role of self-esteem and sense of control. Findings show that childhood parental love and affection are related to better self-rated memory in later life. Dysfunctional parental relationship is associated with worse self-rated memory. Childhood parental relationships show null association with objective cognitive function among older adults. In addition, KHB mediation tests suggest that self-esteem and sense of control significantly mediated the relationship between childhood parental relationships and later-life subjective cognition. This study contributes to a deeper understanding of the complex factors that influence cognitive health and self-perception of memory in older adults. It suggests that parent-child relationship from early life has a long-term impact on how individuals perceive their cognitive abilities. It also indicates that enhancing psychological resources might have a positive effect on self-perceived cognitive health in older adults. Furthermore, this study highlights the need for clinicians and researchers to distinguish between subjective self-assessments and objective cognitive tests in evaluating older adults’ cognitive health.
ABDOMINAL MYOSTEATOSIS IS ASSOCIATED WITH LOWER PROCESSING SPEED IN A MULTIETHNIC COHORT OF OLDER ADULTS
Authors: McNeish Brendan , Mijkovic Iva , Allison Matthew , Hughes Timothy , Nasrallah Ilya , Terkpertey Eric , Rosano Caterina 
Published: January 2025

Abstract
Prior research linking myosteatosis to cognition in older adults has been conducted in relatively homogenous populations with narrow age ranges. We evaluated if abdominal myosteatosis was associated with processing speed and general cognition in a multiethnic cohort of middle aged and older adults. The sample included 1,268 adults (45-84 years old, mean 63±9 years, 52% female of 41% White, 19% Black, 14% Chinese, and 26% Hispanic) a subset from the Multi-Ethnic Study of Atherosclerosis (MESA). Bivariate analyses were performed between abdominal computed tomography derived muscle densities (a myosteatosis measure) at year 3 with Digit Symbol Coding (DSC) and Cognitive Abilities Screening Instrument (CASI) at year 10. Multivariable models were first adjusted for demographics and education, and further adjusted for other known predictors of cognition: dementia risk factors (APOE-4, physical activity, diabetes, cholesterol, smoking, and hypertension), central adiposity, and cytokines. We tested two-way interactions by 1) race and 2) sex. Myosteatosis was significantly associated with worse DCS (B=0.333, 95% CI: 0.031,0.835) but not CASI (0.106, 95% CI: -0.089,0.300), independent of demographics or education. Results were similar after adjustment for dementia risk factors, central adiposity, and cytokines. Tests for interactions by sex and race were not statistically significant. Abdominal myosteatosis is associated with worse processing speed but not general cognition in this middle-aged and older multiethnic population of men and women, independent of other known predictors of cognition. Longitudinal studies should assess myosteatosis’ impact on cognition and its underlying mechanisms.
ABDOMINAL MYOSTEATOSIS AND COGNITIVE FUNCTION: INSIGHTS FROM CARDIA STUDY
Authors: Acevedo-Fontanez Adrianna , Rosano Caterina , Yaffe Kristine , Carr J Jeffrey , Terry James Greg , Nair Sangeeta , Cvejkus Ryan , Miljkovic Iva 
Published: January 2025

Abstract
The role of myosteatosis in cognitive decline is largely from cross-sectional studies in White populations. Longitudinal studies including Black populations, who have a higher risk of both myosteatosis and dementia than Whites, are warranted. We tested the association between abdominal myosteatosis with 5-year change in cognition in 2,501 White and Black American men (n=1,078; 42% Black) and women (n=1,423; 49% Black) from the Coronary Artery Risk Development in Young Adults (CARDIA), and whether associations vary after adjustment for demographics, center, education, muscle area, follow-up-time, baseline DSST score, smoking, physical activity, diabetes, hypertension, lipid-lowering medication, and BMI. IMAT was log-transformed, and results were standardized with effects shown per standard deviation (SD). Higher IMAT predicted a significant DSST decline in Whites (5-year decrease in DSST: b=-0.77 points for 1 SD of log IMAT, p-value=&lt;0.01) but not in Blacks (b=-0.03, p-value=0.910). By race, higher IMAT was associated with a significant decline in DSST score. We did not see a significant difference in a 5-year decrease in DSST by sex. Abdominal myosteatosis may be a novel risk factor for cognitive decline, especially in Whites. Future studies using an expanded battery of cognitive tests, longer follow-ups, and in other populations, as well as mechanistic studies, are warranted to further confirm and advance our understanding of the novel role of myosteatosis in dementia risk.
PROJECT RESPECT: EXPERIENCES OF SERIOUSLY ILL LGBTQ+ PATIENTS AND PARTNERS WITH THEIR HEALTH CARE PROVIDERS
Authors: Stein Gary , Berkman Cathy 
Published: January 2025

Abstract
Discrimination against LGBTQ+ persons in healthcare creates barriers to serious illness care, including patients avoiding or delaying necessary care, providers disrespecting wishes of surrogates, and adverse outcomes for patients and families. A cross-sectional mixed methods study using an online survey was used to determine the extent to which LGBTQ+ patients and spouses, partners, and widows experienced disrespectful or inadequate care due to sexual orientation or gender identity. A total of 290 LGBTQ+ patients and partners reported high levels of disrespectful and inadequate care. Patients reported these discriminatory actions from healthcare providers: insensitive to me as an LGBTQ+ person (35.2%); not aware of LGBTQ+ health needs (30%); made me feel judged for being LGBTQ+ (23.1%); were rude to me (20.7%); didn’t use my correct pronouns (20.3%); and disregarded my treatment decisions (19.7%). Partners reported they were denied access to their loved one in intensive care or emergency room (12.4%); were treated badly (12.1%); and that their decisions were not followed (10%). Black and Hispanic patients were two to four times more likely than non-Hispanic white patients to report discrimination. This study demonstrated high levels of disrespectful and inadequate care towards patients and partners due to being LGBTQ+, especially problematic for Black and Hispanic patients and those living in politically conservative regions. Recommendations include federal and state civil rights laws to prohibit LGBTQ+ discrimination, and institutional practices to address discrimination, including cultural sensitivity training for staff.