bluuebunny/crossref_metadata_2025_split huggingface dataset:
Developing the "Choosing Health" Digital Weight Loss and Maintenance Intervention: Intervention Mapping Study
Authors: Palacz-Poborczyk Iga , Idziak Paulina , Januszewicz Anna , Luszczynska Aleksandra , Quested Eleanor , Naughton Felix , Hagger Martin S , Pagoto Sherry , Verboon Peter , Robinson Suzanne , Kwasnicka Dominika 
Published: May 2022

Background
Digital health promotion programs tailored to the individual are a potential cost-effective and scalable solution to enable self-management and provide support to people with excess body weight. However, solutions that are widely accessible, personalized, and theory- and evidence-based are still limited.

Objective
This study aimed to develop a digital behavior change program, Choosing Health, that could identify modifiable predictors of weight loss and maintenance for each individual and use these to provide tailored support.

Methods
We applied an Intervention Mapping protocol to design the program. This systematic approach to develop theory- and evidence-based health promotion programs consisted of 6 steps: development of a logic model of the problem, a model of change, intervention design and intervention production, the implementation plan, and the evaluation plan. The decisions made during the Intervention Mapping process were guided by theory, existing evidence, and our own research—including 4 focus groups (n=40), expert consultations (n=12), and interviews (n=11). The stakeholders included researchers, public representatives (including individuals with overweight and obesity), and experts from a variety of relevant backgrounds (including nutrition, physical activity, and the health care sector).

Results
Following a structured process, we developed a tailored intervention that has the potential to reduce excess body weight and support behavior changes in people with overweight and obesity. The Choosing Health intervention consists of tailored, personalized text messages and email support that correspond with theoretical domains potentially predictive of weight outcomes for each participant. The intervention content includes behavior change techniques to support motivation maintenance, self-regulation, habit formation, environmental restructuring, social support, and addressing physical and psychological resources.

Conclusions
The use of an Intervention Mapping protocol enabled the systematic development of the Choosing Health intervention and guided the implementation and evaluation of the program. Through the involvement of different stakeholders, including representatives of the general public, we were able to map out program facilitators and barriers while increasing the ecological validity of the program to ensure that we build an intervention that is useful, user-friendly, and informative. We also summarized the lessons learned for the Choosing Health intervention development and for other health promotion programs.

International Registered Report Identifier (IRRID)
RR2-10.1136/bmjopen-2020-040183
Effects of a Gamified, Behavior Change Technique–Based Mobile App on Increasing Physical Activity and Reducing Anxiety in Adults With Autism Spectrum Disorder: Feasibility Randomized Controlled Trial
Authors: Lee Daehyoung , Frey Georgia C , Cothran Donetta J , Harezlak Jaroslaw , Shih Patrick C 
Published: May 2022

Background
Physical activity (PA) has an impact on physical and mental health in neurotypical populations, and addressing these variables may improve the prevalent burden of anxiety in adults with autism spectrum disorder (ASD). Gamified mobile apps using behavior change techniques present a promising way of increasing PA and reducing sedentary time, thus reducing anxiety in adults with ASD.

Objective
This study aimed to compare the effectiveness of a gamified and behavior change technique–based mobile app, PuzzleWalk, versus a commercially available app, Google Fit, on increasing PA and reducing sedentary time as an adjunct anxiety treatment for this population.

Methods
A total of 24 adults with ASD were assigned to either the PuzzleWalk or Google Fit group for 5 weeks using a covariate-adaptive randomization design. PA and anxiety were assessed over 7 days at 3 different data collection periods (ie, baseline, intervention start, and intervention end) using triaxial accelerometers and the Beck Anxiety Inventory. Group differences in outcome variables were assessed using repeated-measures analysis of covariance, adjusting for age, sex, and BMI.

Results
The findings indicated that the PuzzleWalk group spent a significantly longer amount of time on app use compared with the Google Fit group (F2,38=5.07; P=.01; partial η2=0.21), whereas anxiety was unfavorably associated with increases in light PA and decreases in sedentary time after intervention (all P<.05).

Conclusions
Further research is needed to clarify the determinants of physical and mental health and their interrelationship in adults with ASD to identify the factors that facilitate the use and adoption of mobile health technologies in these individuals. Despite these mixed results, the small changes in PA or anxiety may be clinically significant for adults with ASD.

Trial Registration
ClinicalTrials.gov NCT05466617; https://clinicaltrials.gov/show/NCT05466617
Providing Care Beyond Therapy Sessions With a Natural Language Processing–Based Recommender System That Identifies Cancer Patients Who Experience Psychosocial Challenges and Provides Self-care Support: Pilot Study
Authors: Leung Yvonne W , Park Bomi , Heo Rachel , Adikari Achini , Chackochan Suja , Wong Jiahui , Alie Elyse , Gancarz Mathew , Kacala Martyna , Hirst Graeme , de Silva Daswin , French Leon , Bender Jacqueline , Mishna Faye , Gratzer David , Alahakoon Damminda , Esplen Mary Jane 
Published: May 2022

Background
The negative psychosocial impacts of cancer diagnoses and treatments are well documented. Virtual care has become an essential mode of care delivery during the COVID-19 pandemic, and online support groups (OSGs) have been shown to improve accessibility to psychosocial and supportive care. de Souza Institute offers CancerChatCanada, a therapist-led OSG service where sessions are monitored by an artificial intelligence–based co-facilitator (AICF). The AICF is equipped with a recommender system that uses natural language processing to tailor online resources to patients according to their psychosocial needs.

Objective
We aimed to outline the development protocol and evaluate the AICF on its precision and recall in recommending resources to cancer OSG members.

Methods
Human input informed the design and evaluation of the AICF on its ability to (1) appropriately identify keywords indicating a psychosocial concern and (2) recommend the most appropriate online resource to the OSG member expressing each concern. Three rounds of human evaluation and algorithm improvement were performed iteratively.

Results
We evaluated 7190 outputs and achieved a precision of 0.797, a recall of 0.981, and an F1 score of 0.880 by the third round of evaluation. Resources were recommended to 48 patients, and 25 (52%) accessed at least one resource. Of those who accessed the resources, 19 (75%) found them useful.

Conclusions
The preliminary findings suggest that the AICF can help provide tailored support for cancer OSG members with high precision, recall, and satisfaction. The AICF has undergone rigorous human evaluation, and the results provide much-needed evidence, while outlining potential strengths and weaknesses for future applications in supportive care.
Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review
Authors: Hagström Josefin , Blease Charlotte , Haage Barbara , Scandurra Isabella , Hansson Scharlett , Hägglund Maria 
Published: May 2022

Background
As patient online access to electronic health records becomes the standard, implementation of access for adolescents and parents varies across providers, regions, and countries. There is currently no international compilation of evidence to guide policy decisions in matters such as age limit for access and the extent of parent proxy access.

Objective
This paper presents the protocol for a scoping review of different stakeholders’ (including but not limited to end users) perspectives on use, opinions, and experiences pertaining to online access to electronic health records by parents, children, and adolescents.

Methods
This scoping review will be conducted according to the Arksey and O’Malley framework. Several databases will be used to conduct a literature search (PubMed, CINAHL, and PsycInfo), in addition to literature found outside of these databases. All authors will participate in screening identified papers, following the research question: How do different stakeholders experience parents’, children’s, and adolescents’ online access to the electronic health records of children and adolescents? Data abstraction will include but will not be limited to publication type, publication year, country, sample characteristics, setting, study aim, research question, and conclusions. The data to be analyzed are from publicly available secondary sources, so this study does not require an ethics review.

Results
The results from this scoping review will be presented in a narrative form, and additional data on study characteristics will be presented in diagrams or tabular format. This scoping review protocol was first initiated by Uppsala University in June 2021 as part of the NordForsk-funded research project NORDeHEALTH. The results are expected to be presented in a scoping review in June 2022. The results will be disseminated through stakeholder meetings, scientific conference presentations, oral presentations to the public, and publication in a peer-reviewed journal.

Conclusions
This is, to our knowledge, the first study to map the literature on the use and experiences of parents’ and adolescents’ online access to the electronic health records of children and adolescents. The findings will describe what benefits and risks have been experienced by different stakeholders so far in different countries. A mapping of studies could inform the design and implementation of future regulations around access to patient-accessible electronic health records.

International Registered Report Identifier (IRRID)
DERR1-10.2196/36158
Emotional and Physical Health Impact in Children and Adolescents and Their Caregivers Using Open-source Automated Insulin Delivery: Qualitative Analysis of Lived Experiences
Authors: Braune Katarina , Krug Niklas , Knoll Christine , Ballhausen Hanne , Thieffry Axel , Chen Yanbing , O'Donnell Shane , Raile Klemens , Cleal Bryan 
Published: May 2022

Background
Given the limitations in the access and license status of commercially developed automated insulin delivery (AID) systems, open-source AID systems are becoming increasingly popular among people with diabetes, including children and adolescents.

Objective
This study aimed to investigate the lived experiences and physical and emotional health implications of children and their caregivers following the initiation of open-source AID, their perceived challenges, and sources of support, which have not been explored in the existing literature.

Methods
Data were collected through 2 sets of open-ended questions from a web-based multinational survey of 60 families from 16 countries. The narratives were thematically analyzed, and a coding framework was identified through iterative alignment.

Results
A range of emotions and improvements in quality of life and physical health were reported, as open-source AID enabled families to shift their focus away from diabetes therapy. Caregivers were less worried about hypoglycemia at night and outside their family homes, leading to increased autonomy for the child. Simultaneously, the glycemic outcomes and sleep quality of both the children and caregivers improved. Nonetheless, the acquisition of suitable hardware and technical setup could be challenging. The #WeAreNotWaiting community was the primary source of practical and emotional support.

Conclusions
Our findings show the benefits and transformative impact of open-source AID and peer support on children with diabetes and their caregivers and families, where commercial AID systems are not available or suitable. Further efforts are required to improve the effectiveness and usability and facilitate access for children with diabetes, worldwide, to benefit from this innovative treatment.

International Registered Report Identifier (IRRID)
RR2-10.2196/15368
Design and Preliminary Findings of Adherence to the Self-Testing for Our Protection From COVID-19 (STOP COVID-19) Risk-Based Testing Protocol: Prospective Digital Study
Authors: Herbert Carly , Kheterpal Vik , Suvarna Thejas , Broach John , Marquez Juan Luis , Gerber Ben , Schrader Summer , Nowak Christopher , Harman Emma , Heetderks William , Fahey Nisha , Orvek Elizabeth , Lazar Peter , Ferranto Julia , Noorishirazi Kamran , Valpady Shivakumar , Shi Qiming , Lin Honghuang , Marvel Kathryn , Gibson Laura , Barton Bruce , Lemon Stephenie , Hafer Nathaniel , McManus David , Soni Apurv 
Published: May 2022

Background
Serial testing for SARS-CoV-2 is recommended to reduce spread of the virus; however, little is known about adherence to recommended testing schedules and reporting practices to health departments.

Objective
The Self-Testing for Our Protection from COVID-19 (STOP COVID-19) study aims to examine adherence to a risk-based COVID-19 testing strategy using rapid antigen tests and reporting of test results to health departments.

Methods
STOP COVID-19 is a 12-week digital study, facilitated using a smartphone app for testing assistance and reporting. We are recruiting 20,000 participants throughout the United States. Participants are stratified into high- and low-risk groups based on history of COVID-19 infection and vaccination status. High-risk participants are instructed to perform twice-weekly testing for COVID-19 using rapid antigen tests, while low-risk participants test only in the case of symptoms or exposure to COVID-19. All participants complete COVID-19 surveillance surveys, and rapid antigen results are recorded within the smartphone app. Primary outcomes include participant adherence to a risk-based serial testing protocol and percentage of rapid tests reported to health departments.

Results
As of February 2022, 3496 participants have enrolled, including 1083 high-risk participants. Out of 13,730 tests completed, participants have reported 13,480 (98.18%, 95% CI 97.9%-98.4%) results to state public health departments with full personal identifying information or anonymously. Among 622 high-risk participants who finished the study period, 35.9% showed high adherence to the study testing protocol. Participants with high adherence reported a higher percentage of test results to the state health department with full identifying information than those in the moderate- or low-adherence groups (high: 71.7%, 95% CI 70.3%-73.1%; moderate: 68.3%, 95% CI 66.0%-70.5%; low: 63.1%, 59.5%-66.6%).

Conclusions
Preliminary results from the STOP COVID-19 study provide important insights into rapid antigen test reporting and usage, and can thus inform the use of rapid testing interventions for COVID-19 surveillance.
Evaluation of a Digital Self-management Platform for Patients With Chronic Illness in Primary Care: Qualitative Study of Stakeholders’ Perspectives
Authors: van de Vijver Steven , Hummel Deirdre , van Dijk Annericht Hester , Cox Jan , van Dijk Oscar , Van den Broek Nicoline , Metting Esther 
Published: May 2022

Background
Population aging and multimorbidity has led to increasing chronic care needs associated with new challenges in managing growing costs, rising health care professional workloads, and the adoption of rigorous guidelines. These issues could all benefit from greater digitalization and a more patient-centered approach to chronic care, a situation brought to the fore by the COVID-19 pandemic. Little is known about real-life use in primary care.

Objective
This study aimed to explore the views, thoughts, usability, and experiences concerning a recently introduced digital self-care platform for chronic conditions in 3 Dutch primary care practices.

Methods
We conducted an explorative study combining questionnaires and interviews among patients and general practitioners from 3 general practices that used the digital platform. Questionnaires were sent to patients in each practice to seek the views and experiences of both patient nonusers (n=20) and patient users (n=58) of the platform, together with standardized questionnaires about illness perception and quality of life. In addition, patients (n=15) and general practitioners (n=4) who used the platform took part in semistructured interviews. We transcribed interviews verbatim and performed qualitative content analysis using a deductive approach. The results of the questionnaires were analyzed with descriptive analysis.

Results
Among patients who had not actively used the platform but had received an explanation, only 35% (7/20) would recommend its use due to concerns over communication and handling. However, this percentage increased to 76.3% (45/59) among the people who actively used the platform. Interviews with patients and general practitioners who used the platform uncovered several key benefits, including reduced time requirements, reduced workload, improved care quality, and improved accessibility due to the greater patient-centeredness and use of different communication tools. In addition, the self-management tool led to greater patient autonomy and empowerment. Although users considered the platform feasible, usable, and easy to use, some technical issues remained and some patients expressed concerns about the reduction in human contact and feedback.

Conclusions
The overall experience and usability of the platform was good. Support for the online self-management platform for chronic care increased when patients actively used the tool and could experience or identify important advantages. However, patients still noted several areas for improvement that need to be tackled in future iterations. To ensure benefit in the wider population, we must also evaluate this platform in cohorts with lower digital and health literacy.
The Variations in Care and Real-world Outcomes in Individuals With Rectal Cancer: Protocol for the Ontario Rectal Cancer Cohort
Authors: Patel Sunil , McClintock Chad , Booth Christopher , Merchant Shaila , Heneghan Carl , Bankhead Clare 
Published: May 2022

Background
Individuals with rectal cancer require a number of pretreatment investigations, often require multidisciplinary treatment, and require ongoing follow-ups after treatment is completed. Due to the complexity of treatments, large variations in practice patterns and outcomes have been identified. At present, few comprehensive, population-level data sets are available for assessing interventions and outcomes in this group.

Objective
Our study aims to create a comprehensive database of individuals with rectal cancer who have been treated in a single-payer, universal health care system. This database will provide an excellent resource that investigators can use to study variations in the delivery of care to and real-world outcomes of this population.

Methods
The Ontario Rectal Cancer Cohort database will include comprehensive details about the management and outcomes of individuals with rectal cancer who have been diagnosed in Ontario, Canada (population: 14.6 million), between 2010 and 2019. Linked administrative data sets will be used to construct this comprehensive database. Individual and care provider characteristics, investigations, treatments, follow-ups, and outcomes will be derived and linked. Surgical pathology details, including the stage of disease, histopathology characteristics, and the quality of surgical excision, will be included. Ethics approval for this study was obtained through the Queen’s University Health Sciences and Affiliated Teaching Hospitals Research Ethics Board.

Results
Approximately 20,000 individuals who meet the inclusion criteria for this study have been identified. Data analysis is ongoing, with an expected completion date of March 2023. This study was funded through the Canadian Institute of Health Research Operating Grant.

Conclusions
The Ontario Rectal Cancer Cohort will include a comprehensive data set of individuals with rectal cancer who received care within a single-payer, universal health care system. This cohort will be used to determine factors associated with regional variability and adherence to recommended care, and it will allow for an assessment of a number of understudied areas within the delivery of rectal cancer treatment.

International Registered Report Identifier (IRRID)
RR1-10.2196/38874
SEKILAS MENGENAL AT-TAFSIR AL-ADABI AL-IJTIMA'I
Authors: Ghafir Abd 
Published: May 2022

Kemu'jizatan dan keluarbiasaan al-Qur'an terletak bukan saja pada seluruh kandungan misinya, akan tetapi juga terletak pada seluruh gaya bahasa yang dimilikinya. Dari aspek seluruh kandungan misinya, al-Qur'an mengatur, memberi petunjuk dan memberikan solusi untuk semua problematika aspek kehidupan manusia, baik ketika manusia menjalani hidup di dunia maupun ketika bagaimana ia harus mempersiapkan kehidupan akhiratnya. Tidak ada satu aspekpun dari kehidupan manusia yang luput dari misi al-Qur'an.
Hanya saja fakta mujmalitas al-Qur'anlah ynag kadang-kadang menjadi hambatan untuk menggali dan memahaminya. Namun para Mufassirin paham benar bahwa al-Qur'an itu sendiri memberikan ruang yang sangat lebar untuk mencari jalan bagaimana seharusnya agar mereka dapat menggali dan memahaminya dengan baik, benar dan jelas. Dengan berbagai latar belakang kehidupan sosial dan kemampuan intelektual mereka, diupayakanlah cara-cara menggali dan memahaminya, sehingga lahirlah apa yang disebut dengan Mufassirin dan Tafsirnya.
At-Tafsir Al-Adabi Al-Ijtima'i adalah salah satu bentuk dari yang lahir tersebut, dan kelahirannya legitimit, sebab banyak ayat-ayat al-Qur'an yang menunut manusia agar mempergunakan akal-pikirannya untuk berfikir atas segala sesuatu, bahkan intuisipun dituntut hal yang sama. Tuntutan itulah sebenarnya yang menjadi dasar sebagian para ulama Mufassirin mengambil bentuk At-Tafsir Al-Adabi Al-Ijtima'i sebagai pilihan dalam upaya menggali dan memahami misi al-Qur'an.
Di sisi lain kemu'jizatan dan keluarbiasaan al-Qur'an dari segi gaya bahasa al-Qur'an yang memliki nilai sastra yang amat tinggi, sebenarnya sekaligus sebagai tandingan atas syair-syair bahasa Arab yang terdapat dalam masyarakat Arab, yang terkenal memiliki nilai sastra yang tinggi pada waktu itu. Sehingga wajarlah kalau dari segi gaya bahasanya saja, al-Qur'an sebagai mu'jizat yang luarbiasa Menyadari seluruh kandungan misi al-Qur'an dan keindahan gaya bahasa dalam al-Qur'an, maka para Mufassirin At-Tafsir Al-Adabi Al-Ijtima'i tergugah untuk mengembangkan penafsiran mereka dengan gaya bahasa yang indah, tanpa mengabaikan norma-norma yang dikendaki oleh misi al-Qurian itu sendiri