bluuebunny/crossref_metadata_2025_split huggingface dataset:
ASSESSMENT OF CAREGIVER REPORTED VISIT-ASSOCIATED LOGISTICAL CHALLENGES FOR CLINICAL VISIT COORDINATION
Authors: Ngo Victoria , Marfeo Elizabeth , Shirk Steven , Chamberlin Elizabeth , Moo Lauren 
Published: January 2025

Abstract
Family caregivers (FCG) of persons living with dementia face high care burden as the care recipient ages, especially with care coordination of in-person healthcare visits. As FCG burden increases, there is an increased likelihood of missed appointments and negative health outcomes for both the FCG and the care recipient. Limited evidence exists describing the impact of managing complex visit-associated logistical challenges FCGs face when coordinating appointments. To address this gap, this study uses a care coordination framework to develop a new assessment—the Visit-Associated Logistics Assessment (VALA). We adopted a three-phased approach: (1) multidisciplinary expert feedback to establish content coverage; (2) cognitive interviews to refine item wording; and (3) field testing to establish the feasibility and usability of the VALA among a clinical sample of FCG of persons living with dementia (n = 20). Results from the first two development phases yielded six functional domains: (1) scheduling, (2) visit preparation, (3) time/travel, (4) occupational impact, (5) routine disruption, and (6) psychosocial well-being. Initial end-user feasibility was established. The VALA had a low respondent burden, shown by minimal missing data, and appropriate content coverage, as indicated by an acceptable distribution of responses across items and response categories. The VALA represents the first FCG-focused assessment characterizing logistical factors for helping older persons attend medical visits. Initial phases of content validation and usability testing support the use the VALA within clinical and community-based settings to better support management and care coordination of in-person clinical visits for FCGs of persons living with dementia.
EFFECT OF AN AI-BASED NEGOTIATION TRAINING FOR FAMILY CAREGIVERS OF OLDER ADULTS WITH ALZHEIMER’S DISEASE
Authors: Murawski Alaine , Joblin Celie , Tschoe Marianne , Ramirez-Zohfeld Vanessa , Olvera Charlie , Mell Johnathan , Brett Jeanne , Lindquist Lee 
Published: January 2025

Abstract
Family caregivers (CGs) of older adults with ADRD (OADRD) may experience conflicts when providing care, yet are often ill-equipped to handle these challenges. We evaluated NegotiAge (NA), a web-based intervention leveraging artificial intelligence (AI) to teach CGs negotiation skills, and assessed the impact that NA had on how CGs resolve conflicts and retain negotiation knowledge. CGs of OADRD were recruited nationally and enrolled in a randomized controlled trial. CGs accessed negotiation training resources through NA and were randomized to negotiate conflict scenarios in real-time, with AI-powered avatars exhibiting emotions and behaviors simulating real-life interactions. CGs were assessed at baseline (T1) and 1-week post-intervention (T2) with the Dutch Test for Conflict Handling (which examines yielding, compromising, forcing, problem-solving, and avoiding conflict domains) and with a 15-item panel consisting of negotiation terminology and conflict statement (interests, rights, power) identification. Matched pair t-tests were performed between T1-T2. 119 CGs (mean age 53.5, 75.6% female, 32.8% Black) completed both surveys. CGs receiving more negotiation exercises scored lower in avoiding (Δ=-0.97, t=-2.2, p=0.03) and compromising (Δ=-0.53, t=-3.5, p=0.0006) at T2. Mean total negotiation knowledge score increased between T1-T2 (Δ= 2.07, t=1.18, p = 0.07), as did identification of interests-based conflict statements (Δ=4.49, t= 4.48, p = 0.01). NA positively impacted CG conflict resolution skills: CGs improved both in avoiding and compromising during conflict, and in identifying common interests, essential to determining root causes of conflicts. Future research will examine NA’s impact on long-term CG outcomes (e.g. well-being, stress, burden) and care of the OADRD.
EXAMINING THE FEASIBILITY AND BENEFITS OF SELF-QUANTIFICATION FOR FAMILY CAREGIVERS: A MIXED-METHOD APPROACH
Authors: Wakui Tomoko , Okubo Suguru , Fujihara Satoko , Moriyama Yoko , Nakagawa Takeshi , Obuchi Shuichi , Awata Shuichi , Kai Ichiro 
Published: January 2025

Abstract
Supporting family caregivers poses significant challenges because of their inability to seek assistance amid limited time and burden. This study aimed to explore the feasibility of implementing a self-quantification program for family caregivers of community-dwelling older adults. We developed the Caregiving Visualization Program (Care-VIP) allowing family caregivers to document their daily caregiving and life activities and emotional well-being. Initially, an online survey was conducted with 3,256 family caregivers, who were proportionately distributed based on the percentage of the nation’s older population requiring care, to investigate their caregiving situations. Subsequently, 201 participants, who requested the program participated, engaged in the self-quantification program for 60 days and provided feedback in a follow-up survey. Feasibility was evaluated based on participant characteristics, completion rates, and the qualitative benefits of self-quantification. Logistic regression analysis revealed that participants were more likely to be fully employed (OR:1.79; p&lt;.01) and experience higher levels of burden (OR:1.01; p&lt;.01) and daily caregiving demands (OR:1.50; p&lt;.01). The completion rate after 60 days was 87.9%, with a 90% completion rate at 98.5%. The content analysis of open-ended responses identified several benefits, including “purposeful and attentive care”, “identifying improvements”, “establishing daily routines”, and “enhancing emotional and self-awareness” derived from “systematic care analysis” facilitated by “reflection”. Furthermore, self-quantification led to “instrumental record-keeping”, encouraging “articulated insight,” fostering “information sharing”. This study discusses the significance and limitations of reflective practices and documentation activities with Care-VIP in supporting more frequent and heavily burdened family caregivers.
EXPLORING THE HEALTH CARE UTILIZATIONS AND OUTCOMES OF FAMILY CAREGIVERS FOR OLDER ADULTS WITH DEMENTIA
Authors: Cheng Yu-Qi , Li Ying-Chun 
Published: January 2025

Abstract
Family caregivers of older adults with dementia usually face more negative issues, such as family relationships, personal career, financial status, and mental and physical problems. Therefore, family caregivers could increase healthcare utilizations and worsen healthcare outcomes. Nevertheless, previous studies results were inconsistent, which could be due to different health policies or healthcare systems in the studied countries. Whether family caregivers receive better care and reduce their burdens under Taiwan’s universal healthcare system with free access to healthcare. This is a very important policy research question. We linked outpatient data, inpatient records, medical care facility factors, and registration files from the National Health Insurance Program Data to form the analyzed datasets. Family caregivers for people over 65 with dementia were identified in 2008 and followed for five years. As a result, Family caregivers of older persons with dementia faced long time pressure which led to an increased probability of diseases, such as depression, anxiety, and chronic diseases (all were p&lt; 0.01). These caregivers with disease disorders also significantly consumed more total, outpatient, inpatient, and emergency expenditures (all were p&lt; 0.01). In addition, caregivers for those with dementia who had low and middle-income status used more medical resources (OR=2.16, p&lt; 0.01) and had worse mental health outcome (OR=1.11, p&lt; 0.01). In summary, the empirical results indicated that family caregivers who stay in high stress for a longer time are more likely to cause physical and mental health problems. These family caregivers will use more healthcare resources and experience poorer healthcare outcomes.
PREVALENCE OF FIREARM OWNERSHIP AND MENTAL HEALTH CHALLENGES AMONG CAREGIVERS: INSIGHTS FROM A NATIONAL STUDY
Authors: Dayrit Jessika , Islaya Cesz , Medcalf Robyn , Charitou Lauren , Alladi Renuka 
Published: January 2025

Abstract
Despite studies on the association between firearm accessibility and suicide, there is a gap in understanding the prevalence of firearm ownership among caregivers. This study aims to analyze the prevalence of firearm ownership and mental health challenges among civilian and U.S. military veteran caregivers using data from CDC Behavioral Risk Factor Surveillance System (BRFSS) 2021. Employing a cross-sectional study design, with a total sample size of N=17,625, data analysis was conducted using Stata 17, incorporating appropriate weighting and 95% confidence intervals for demographic variables. Binary logistic regression was employed to analyze the data. Findings suggest that both civilian caregivers (OR=1.17, 95% CI=1.07-1.29) and U.S. military veteran caregivers (OR=1.98, 95% CI=1.55-2.54) were more likely to own a firearm at home compared to non-caregivers. Furthermore, civilian caregivers (OR=1.26, 95% CI=1.14-1.40) and U.S. military veteran caregivers (OR=2.14, 95% CI=1.64-2.78) exhibited higher odds of experiencing depression rates, along with an increased likelihood of serious difficulties in concentrating, remembering, or making decisions due to depression (civilian caregivers: OR=1.40, 95% CI=1.23-1.59; U.S. military veteran caregivers: OR=1.65, 95% CI=1.18-2.30). This nationally representative survey highlights critical insights into firearm accessibility, mental health challenges, and safety among caregivers, emphasizing the importance of interventions to prevent unintentional death and suicide. Firearm safety discussions with patients and caregivers help reduce the risk of accidental death or suicidal behavior. Assessment of firearm ownership and safety, as part of the practitioner-patient-caregiver relationship, is as crucial as evaluating chronic illnesses. Promoting comprehensive approaches to addressing firearm safety in clinical practice ensures patient-caregiver well-being.
PRIORITIES TO IMPROVE DEMENTIA CAREGIVING IN CHINESE IMMIGRANT FAMILIES: REPORT OF A CAREGIVER WORKSHOP
Authors: Ma Kris (Pui Kwan) , Saw Anne , Cheng Joyce 
Published: January 2025

Abstract
Linguistically diverse caregivers of people with dementia represent a growing but under-recognized segment of the dementia care workforce in the U.S. There is a continued shortage of culturally and linguistically responsive dementia caregiving interventions for older U.S. Chinese immigrants with limited English proficiency. To address the unmet needs of Chinese-speaking caregivers, integrating caregivers’ input is vital to studies to ensure that research aligns with their experiences. This was a focus group study of 10 Chinese-speaking caregivers (mean age 73.7, eight women) conducted during a dementia caregiving workshop, in partnership with a community health resource center in California. During the in-language workshop, caregivers identified their needs in surveys, then discussed with one another in the focus group. Consensus was built to establish priority areas of research and clinical practice to address caregivers’ experiences and needs. We used descriptive and thematic analyses to summarize caregivers’ priorities. Caregiver-identified priorities included information and practical support in a) management of behavioral and psychological symptoms of dementia (BPSD), b) communication with care recipients and other family members, c) care for caregivers’ physical and mental health, and d) assistance to connect to in-language community resources. We identified ways in which these priorities can inform dementia caregiving research and practice for Chinese-speaking caregivers and immigrant families in the U.S. It is recommended that future research and interventions for Chinese-speaking immigrant caregivers in the U.S. prioritize BPSD management skills training, adopt a family-centered approach and include family outcomes, and address service barriers via community-clinic partnerships and outreach.
PUTTING NEGOTIAGE IN ACTION: APPLYING SKILLS FROM AN AI-BASED NEGOTIATION TRAINING FOR CAREGIVERS OF OLDER ADULTS
Authors: Joblin Celie , Murawski Alaine , Tschoe Marianne , Ramirez-Zohfeld Vanessa , Mell Johnathan , Brett Jeanne , Lindquist Lee 
Published: January 2025

Abstract
Family caregivers provide crucial support for older adults, yet this can sometimes lead to conflict. We created NegotiAge, an online AI-based negotiation training to help caregivers resolve conflicts. Through instructional resources and practice with AI-based avatars, caregivers learn to navigate conflicts. We characterized how family caregivers utilized NegotiAge in addressing real-life conflicts with their older adults. Family caregivers participated in a randomized controlled trial of the NegotiAge intervention. A month later, they were surveyed with open-ended questions about their use of knowledge and skills gained with NegotiAge with the older adult they support. Two coders analyzed the data using constant comparative thematic analysis. 119 caregivers (mean age 53.5 yrs, 75.6% female, 32.8% Black) completed the training and the one-month survey. 73% (n=119) of participants managed conflicts related to caregiving in the month following NegotiAge. Conflict themes involved: 1) health-related concerns, 2) daily living tasks, 3) finances, 4) acceptance of assistance, and 5) familial duties. 86% (n=119) of participants reported handling conflicts differently because of the NegotiAge training. Themes that surfaced included: 1) changing behaviors away from power dynamics to shared interests, 2) uncovering the causes of conflict, and 3) enhancing communication. Participants utilized their negotiation skills in various contexts, including professional environments, retail, real estate, and other relationships. NegotiAge positively influenced how family caregivers manage conflicts. They applied skills acquired from NegotiAge to manage conflicts with older adults, family, and others. Subsequent research will explore NegotiAge’s impact on caregiver burden, stress, and the care of older adults.
SANDWICH GENERATION CAREGIVING: NEGATIVE RELATIONSHIP QUALITY AND BURNOUT
Authors: Lohmar Sabine , Fenstermacher Erika , Owsiany Montgomery , Ju Catherine , Edelstein Barry 
Published: January 2025

Abstract
The sandwich generation provides caregiving for both their children and their aging parents. These caregivers often experience low satisfaction, depression, and burnout, yet little is known about their contributing factors. For example, researchers have not investigated the role of relationship quality among sandwich generation caregivers, who face unique challenges. This study is the first to investigate relationship quality as a moderator between informal caregiver burnout and depression. Regression analyses included measures of positive and negative relationship quality and informal caregiver burnout as predictors and depressive symptoms as the criterion. Correlational analyses indicated that positive relationship quality (r = -.414, p &lt;.001; r = -.274, p =.005) and negative relationship quality (r =.721, p &lt;.001; r =.467, p &lt;.001) were significantly associated with informal caregiver burnout and depression, respectively. Positive relationship quality significantly moderated the association between caregiver burnout and depression for sandwich generation caregivers only (R² =.323, F[3, 99] = 15.741, p &lt;.001, β =.019, p =.006), as did negative relationship quality (R² =.307, F[3, 96] = 14.184, p &lt;.001, β = -.016, p =.046). Among sandwich caregivers, positive relationship quality buffered the relation between caregiver burnout and depression, while negative relationship quality enhanced this relation. Positive and negative relationship quality were not significant moderators among individuals who care for parents only or children only. These results suggest that, for sandwich generation caregivers, relationship quality is an important contributing factor for caregiver burnout and depression.
MEDICAL FINANCIAL HARDSHIP AND EMOTIONAL WELL-BEING AMONG US OLDER ADULTS WITH AND WITHOUT ALZHEIMER’S DISEASE
Authors: Choi Shinae , Pisu Maria 
Published: January 2025

Abstract
This study investigated the impact of medical financial hardship (MFH), specifically the inability to make medical payments, on various dimensions of emotional well-being (EWB), including positive and negative affect, life satisfaction, and sense of meaning and purpose in life, among U.S. older adults with and without Alzheimer’s disease and related dementias (ADRD). Data were from the 2016-2020 waves of the Health and Retirement Study (N=12,904). Multivariate regression analyses were computed adjusting for health and sociodemographic factors. Overall, 884 respondents faced MFH, and 352 self-reported a physician diagnosis of ADRD. In people without ADRD, 6.7% faced MFH, while among those with ADRD, the percentage rose to 12.2% (χ2(1)=16.324, p&lt; 0.001). In people without ADRD, MFH was significantly associated with lower life satisfaction (b=-1.195, p&lt; 0.001), positive affect (b=-0.301, p&lt; 0.001), sense of meaning and purpose in life (b=-0.417, p&lt; 0.001), and with higher negative affect (b=0.454, p&lt; 0.001). In those with ADRD, MFH was significantly associated with lower life satisfaction (b=-1.193, p&lt; 0.01) and higher negative affect (b=0.661, p&lt; 0.01); associations with positive affect (b=-0.459) and sense of meaning and purpose in life (b=-0.315) were nonsignificant at the p&lt; 0.05 level. Findings suggest that MFH is twice as likely in people with ADRD, potentially impacting several aspects of their EWB, including life satisfaction and negative affect. The impact is broader for older adults without ADRD, where MFH may also affect their evaluation of meaning and purpose in life. We discuss implications for further research and interventions to improve EWB of older adults facing MFH, both with and without ADRD.
UNVEILING THE AGING EXPERIENCES OF CHINESE IMMIGRANTS WITH SOCIAL MEDIA POSTS
Authors: Chen Xiayu , Wen Wan 
Published: January 2025

Abstract
Chinese immigrants are among the largest immigrant groups worldwide. As they age, they may encounter a complex array of cultural and social challenges, striving to find a balance between maintaining their cultural values and adapting to the social norms of the migrated countries. With the aim of understanding the community integration and well-being of the aging Chinese immigrants, this study analyzed social media data to uncover topics that reflect their daily living experience. We collected 3,756 posts from January 1, 2013, to January 1, 2024, from the “Evergreen Life” subforum on Wenxuecity.com, a leading Chinese-language BBS forum catering to the overseas Chinese community. Using Latent Dirichlet Allocation topic modeling approach, this study identified five key topics reflecting their aging experiences, including (1) society and life, focusing on navigating societal norms and healthcare systems in migrated countries and life comparisons between China and abroad; (2) overseas cultural experiences, emphasizing personal adaptation stories; (3) family daily life, highlighting intergenerational dynamics and the importance of family support in aging life; (4) physical activities and personal growth, showing efforts towards well-being improvement through exercise and hobbies; (5) religion and spiritual life, demonstrating the role of spirituality in community connection. These findings offer a comprehensive view of the social, cultural, familial, physical, and spiritual aspects of aging among Chinese immigrants, emphasizing the need for culturally sensitive support services to foster a more inclusive environment for this population.
DEVELOPMENT OF A MEASURE OF ALF RESIDENTS’ ACTIVITY PREFERENCES AND REINFORCERS
Authors: Praska Nicole , Houlihan Daniel , Buchanan Jeff , Weiskittle Rachel 
Published: January 2025

Abstract
The population of individuals aged 65 and older has grown steadily since the 1990s, consequating a corresponding rise in the resident population of Assisted Living Facilities (ALFs). This significant increase has highlighted the importance of monitoring residents’ quality of life and reinforcers of enjoyable activity engagement. However, the resident preference assessments currently used for this purpose are outdated and lack specificity. To address this limitation, this study aimed to create an updated measure of ALF residents’ activity engagement reinforcers. The study involved a two-step process. First, 10 subject matter experts in the geriatric field compiled a list of 107 potential reinforcers. This list was then refined into a likert-scale survey of 60 selected items and administered to 612 older adults. Exploratory factor analysis identified five factors (social, traditions, food and activities, family and friends, and outings), and resulted in a 33-item survey. Results of this study provide an effective tool for ALF activity directors and staff to accurately assess ALF residents’ interests and motivators for activity engagement. Clinical implications include connecting at risk ALF residents with individualized program scheduling that may improve their quality of life. This poster reviews the methodology and further results of this survey development.
INDIVIDUAL AND ORGANIZATIONAL BENEFITS OF CO-LOCATING NURSING HOME AND CHILD CARE SERVICES
Authors: Wang Helen , Jarrott Shannon , Ma Mengyao 
Published: January 2025

Abstract
Co-location nursing homes with childcare services has gained recognition for fostering positive intergenerational relationships. Researchers have identified benefits to individual participants, but little attention has been paid to organizational outcomes. Using econometrics methods, we analyzed historical data of all 19,641 unique US nursing homes from 2015Q1 to 2020Q1 to assess the association between co-location and nursing home quality measures, including deficiency reports and resident performance measures. Leveraging Centers for Medicare & Medicaid Services (CMS) and Data Axle data, our empirical model tested the association between on-site childcare and nursing home quality. We controlled for potential confounds, including nursing home characteristics (e.g., capacity and ownership), regional socioeconomic status, and year and zip code fixed effects. Combining business location data and public information sources, we identified 139 nursing homes with on-site childcare services operating in our sample period. Regression analyses indicated that nursing homes with on-site childcare had 9.94% lower yearly deficiency case reports than homes without childcare (p &lt; 0.01) due to lower health deficiency rates but not fire safety deficiencies. Considering quarterly resident and institution measures, nursing homes with on-site childcare centers demonstrated 1.1% to 5.8% higher resident vaccination rates (p &lt; 0.01) and significantly lower psychotropic medication use (p &lt; 0.001) than those without childcare. Our study highlights that co-locating childcare and nursing homes is associated with better nursing home performance, benefiting residents and organizations. Further research should address mechanisms by which outcomes are achieved. Intergenerational program co-location may support benefits beyond those experienced by younger and older participants.