bluuebunny/crossref_metadata_2025_split huggingface dataset:
PROMOTING THE LIVED EXPERIENCE OF OLDER ADULTS USING APPLIED QUALITATIVE METHODS: LESSONS LEARNED
Authors: Neller Sarah 
Published: January 2025

Abstract
This symposium brings together five complementary papers focused on promoting the perspectives of older adults using applied methods in qualitative research. It underscores the importance of embedding the lived experiences and unique perspectives of older adults into the fabric of research processes and outcomes. Neller et al. present a six-step process for framing, critically evaluating, and revising prior knowledge within qualitative research. They discuss the development and advancement of a conceptual framework from their study exploring older adults’ experiences creating a legacy of values. Canham et al. present a case example of a community-based participatory knowledge mobilization project across Canada. They report lessons learned from their lived experience advisory board members as they implemented community-engaged initiatives to reduce the stigma experienced by older adults experiencing homelessness. Mahmood et al. discuss digital storytelling as a method of co-creating narratives with older adults experiencing homelessness as a powerful tool to advocate for policy change and address the needs of marginalized older adults. Grittner and Walsh explored the needs of older adults who have experienced homelessness using a trauma-informed design. They present design strategies to foster supportive housing for older adults. Ketcher et al. describe how they developed a qualitative analytic framework to incorporate researcher and community members’ perspectives in the analysis process. This process contributes to the methodological rigor of conducting qualitative analysis with a community-based participatory research design by reflecting community and cultural values. Presenters will emphasize innovative methods and lessons learned when conducting person-centered qualitative research across diverse demographic groups. Qualitative Research Interest Group Sponsored Symposium
ADVANCING AN APPLIED THEORETICAL FRAMEWORK OF CREATING A LEGACY OF VALUES: A HOW-TO GUIDE
Authors: Neller Sarah , Cloyes Kristin , Towsley Gail 
Published: January 2025

Abstract
Applied qualitative researchers are charged with critically reviewing what is currently known about a topic and moving beyond this initial knowledge as data analysis progresses to develop a useful and relevant final product by connecting the data with theory. However, little practical guidance exists for how to use research findings to develop and advance prior knowledge or theory, which can be especially challenging for novice researchers. The purpose of this presentation is to provide a practical guide for researchers to transparently report their prior knowledge and assumptions and how their thinking evolved throughout the study based on the analysis. We used an interpretive descriptive approach, which recognizes that researchers bring prior knowledge, including clinical experience or theoretical knowledge, to their research as a basis of inquiry. We will present an example of a recent study we conducted to explore the experiences of older adults who had created their legacy of values, a document communicating emotional and supportive instruction to others, and will explain our process of creating a conceptual framework and refining it through analysis using interpretive description. We will describe six steps we developed to frame, critically evaluate, and revise our prior knowledge and present how we applied each step in our legacy of values study. By clearly communicating the process of examining and refining prior assumptions, applied qualitative researchers can connect data with theory to explain and address clinically relevant problems in more systematic, effective ways thus adding transparency, rigor, and credibility to their research.
CREATING DESIGN CONNECTIONS: ARTS-BASED METHODS AS A PATHWAY INTO TRAUMA-INFORMED DESIGN FOR OLDER HOMELESS ADULTS
Authors: Grittner Alison , Walsh Christine 
Published: January 2025

Abstract
Older adults who have experienced homelessness are more likely to live with trauma than their continually housed counterparts. Trauma-informed design (TID) recognizes that the built environment – defined as all physical elements that are human-made or curated to respond to human needs, desires, or purposes – impacts the physical, psychological, and emotional effects of trauma. TID seeks to positively shape this trauma-built environment connection through intentional design. While environmental gerontology has long understood the connection between aging well and the built environment, understanding trauma-informed design for aging adults is a new perspective. In this presentation, we explore the importance of collaborative and artful methodological strategies for understanding the TID needs of older adults with experiences of homelessness, generated by a secondary data analysis of 35 arts-based interviews with older adults (ages 50-71) living in four supportive housing sites in Calgary, Canada. We share our methods (photovoice and arts-based elicitation), examples of artful knowledge concerning the built environment created by research participants, and insights for translating art-based findings into design strategies, using our own research project as an exemplar. Overall, we demonstrate the possibilities of arts-based methods to understand, design, and create trauma-informed supportive housing for older adults with experiences of homelessness that fosters wellness, slows aging, and promotes healing from trauma.
SOCIAL INVISIBILITY OF ELDER ABUSE IN FAMILIES: A PHENOMENON IN PHILIPPINE SOCIETY
Authors: Oyales Carmelina , Apuan Victoria 
Published: January 2025

Abstract

In a country where the prevailing culture is to give respect and care for the older persons, elder abuse is an interesting phenomenon. The study focuses on elder abuse and the different forms of abuse occurring in Filipino communities. The authors undertook a qualitative study composed of individual interviews of ten victims of elderly abuse. The aim was to explore the thoughts, feelings, sense of self, family dynamics and coping strategies of the abused. Further, data on the socio-cultural and economic risk and protective factors in the community and local government, the perspectives of thirty two members of local government and social welfare institutions were gathered through focus group discussions in five localities. Narrative and content analysis yielded the following

results
that elder abuse is a multifaceted and complex experience for the victims. The research study shows that the victims suffered initial shock, indignation, depression and learned helplessness. The most frequent forms of abuse were emotional and psychological abuse, neglect, abandonment and financial exploitation. Poverty and ageism were an exacerbating factor. Actions to access local support mechanisms and interventions were absent or delayed due to the secrecy of the families regarding the phenomenon, as well as the lack of reporting and monitoring mechanisms on the community level. The invisibility of older adults abuse in families needs attention and plans for action to help elder abuse victims. Keywords: elder abuse, aging population, ageism, poverty, senior citizens human rights
RISK FACTORS AND PROTECTIVE FACTORS OF VICTIMS OF ELDER ABUSE IN THE PHILIPPINES
Authors: Apuan Victoria , Oyales Carmelina 
Published: January 2025

Abstract
In a country where the prevailing culture puts a premium on respect and care for the elderly, elder abuse is an interesting phenomenon. The study focuses on elder abuse and the different forms of abuse occurring in Filipino communities. Following recommendations of previous studies, the authors undertook a qualitative study composed of individual interviews of ten victims of elderly abuse and focus group discussions with thirty two local government officials. Ageism and lack of awareness of the human rights of elders were identified as deterrents to the prevention of abuse of elders within families and blocked their access to socio-psychological and economic help. Aside from ageism and the social isolation of the victims of elder abuse, risk factors also included material poverty, problematic family dynamics such as children’s lack of attachment to parents, lack of support of extended family members, and the lack of awareness that the elderly have human rights. Protective factors needing to be established and strengthened were community-based monitoring and reporting system of elder abuse, a current survey of household with senior citizens, more stringent enforcement of existing laws protecting the elderly human rights education in schools, more frequent visits of social workers to communities, especially those in the hard to reach areas. Keywords: elder abuse, aging population, ageism, poverty, senior citizens human rights.
CO-DESIGN OF A MOBILE APP FOR CARE PARTNERS WHO MANAGE MEDICATIONS FOR PEOPLE LIVING WITH DEMENTIA
Authors: Werner Nicole , Ganci Aaron , Patel Himalaya , Thuemling Teresa , Holden Richard 
Published: January 2025

Abstract
For unpaid care partners of community-dwelling people living with Alzheimer’s disease and related dementias (ADRD), medication management is effortful and time-consuming work that often continues over several years. Although this work may be eased by mobile application software (apps), current consumer apps underserve care partners’ needs. Through co-design workshops, our objective was to identify the user requirements for a mobile app supporting at-home medication management for people with ADRD. We conducted five 1-hour virtual co-design workshops with current and recent ADRD care partners. Care partners described their difficulties with medication management, then proposed ideal end-states by hand-drawing storyboards. We co-reflected on care partners’ descriptions and proposals, chose the app’s necessary functions, and digitally sketched corresponding user-facing features. After reviewing the sketches, care partners self-reported attitudes toward the proposed features. We ranked features by desirability, then created a digital user interface prototype. Care partners reviewed the prototype and self-reported adoption intent on a scale from 1 to 5. Seven care partners participated, ages 56-75 (Mdn=63), with 3-14 years’ care-partner experience (Mdn=5.5). Elicited requirements included tracking medication administration, recording behavioral changes, instructing other care partners, and briefing healthcare professionals. The user interface prototype included a medication checklist, observation journal, and contacts management. Care partners self-reported moderately high adoption intent (M=4.2, SD=0.9). By supporting both short- and long-term information needs, the proposed mobile app promotes shared awareness among ADRD care partners and healthcare professionals. This work is foundational to developing the app and assessing usability and utility in situ.
ACCEPTABILITY AND PRELIMINARY EFFICACY OF BE EPIC-VR TRAINING ON FRONTLINE HEALTH CARE WORKERS
Authors: Savundranayagam Marie , Norris Grace , Schumann Annette , Sarma Anya , Campos Jennifer , Orange Joseph 
Published: January 2025

Abstract
Be EPIC-VR is a person-centered communication (PCC) training program designed for healthcare providers working in dementia care. It is the first virtual reality (VR) program to use conversational artificial intelligence to train users to communicate with avatars depicting persons living with dementia (PLWD). The current study examined the acceptability and preliminary efficacy of Be EPIC-VR training. Participants included eight personal support workers from four home care and long-term care settings. Focus groups were conducted both immediately after VR sessions and after completing the Be EPIC-VR training program. Data analyses used framework analysis. The theme, relevant training supporting learning, reflected the acceptability of Be EPIC-VR. Be EPIC-VR’s innovative design facilitated significant learning gains, highlighting the benefits of experiential design, accessibility of training components, relevance regardless of career level, and group feedback on learning outcomes. The theme supporting preliminary efficacy was applying newly learned knowledge and skills with PLWD. Four subthemes emerged that mapped onto Be EPIC-VR’s foci. First, participants used the cues from the environment when interacting with PLWD. Second, participants, including those with English as a second language, reported applying PCC strategies which helped in understanding PLWD’s needs and addressing care refusal. Third, they noted an increase in self-efficacy in dementia care, which strengthened relationships with PLWD. Finally, they reported incorporating the preferences of PLWD during care interactions. Be EPIC-VR training emerges as a promising tool for enhancing skills of personal support workers, suggesting that immersive, VR-based training programs can foster empathetic, knowledgeable, and person-centered care approaches.
RECRUITMENT AND RETENTION STRATEGIES FOR BLACK AMERICAN DEMENTIA CAREGIVER PEER SUPPORT
Authors: Moss Karen , Wright Kathy , Happ Mary Beth , Brody Abraham , Wills Celia , Brill Seuli Bose , Bullock Karen 
Published: January 2025

Abstract
Black American caregivers of older adults living with dementia are at high risk for caregiving-related physical, emotional, spiritual, and psychosocial challenges. Culturally responsive interventions are needed to improve caregiving outcomes. Peer mentorship, a relationship-centered person-to-person approach may support caregiving mastery via culturally-tailored, flexible, non-judgmental peer support, including storytelling about caregiving experiences. The purpose of this presentation is to describe the recruitment and retention processes used for a pilot feasibility/acceptability study to test a co-created virtual intervention, called Peer Support for Caregivers of Black Americans Living with Dementia (Pair 2 Care). Community engagement strategies were used in Pair 2 Care such as: 1) use of co-design process to develop and improve the intervention, including community advisory board engagement, 2) individual and community-based organization relationship building over time, 3) principal investigator and research team in-person and virtual attendance at community health and caregiving events, 4) principal investigator contributions to community-based education programs, 5) reconnecting with previous research participants, 6) cultural preparation of research team members, and, 7) frequent contact with enrolled participants. A total of N=26 former caregivers (mentors) and current caregivers (mentees) were enrolled, mentors trained, and 1:1 dyads paired within 10 weeks for six months of peer support. Currently, retention is at 100% and early feedback from dyads is favorable. Recruitment and retention strategies outlined for this pilot study assisted the research team with successful study execution of an innovative culturally-tailored caregiver support intervention intended to build caregiving mastery and contribute to health equity by improving caregiver health outcomes.
YOUNG CAREGIVERS: ENGAGING FAMILIES AND BUILDING TRUST IN RESEARCH FOR CAREGIVERS OF ALL AGES
Authors: Kalvesmaki Andrea , Kavanaugh Melinda 
Published: January 2025

Abstract
The common definition of who is a “caregiver”, especially for older adults, is typically an adult family member, most likely a wife of an aging spouse or a daughter of an aging parent. However, estimates of 2022 Census data indicate that over 5 million young people under the age of 18 (young caregivers) may be caring for an aging adult, or an adult with a disability. The RAISE care act, while acknowledging children may be supporting care for other family members, does not outline strategies to work with these children or their families, or build the research infrastructure to identify unmet needs of families with young caregivers. Research on young caregivers in the US is a relatively new, emerging field. Here we present what is currently known about young caregivers in the US, including findings on the impacts of caregiving on youth outcomes, and important gaps in our knowledge base. Our work has identified key barriers to engaging these family members in research and family services, including state laws that prevent parents from disclosing the important roles these young people play in supporting aging family members. As researchers in the field, we also describe strategies we are using to connect with young caregivers to identify unmet needs, and build capacity to support these families, young caregivers, and their care recipients.
ENGAGING YOUTH AND HEALTH CARE PROFESSIONALS: DEVELOPING THE YCARE PROGRAM FOR YOUNG CARERS
Authors: Kavanaugh Melinda 
Published: January 2025

Abstract
Children and youth ages 8-19 who provide care, “young carers,” are tasked with the same caregiving as adults, including bathing, feeding, toileting, and managing complex assistive devices. Yet, young carers receive little to no caregiving guidance or training in community or health care settings, leaving them isolated not only from peers but from health care professionals. Indeed, over 70% of young caregivers for people living with complex neurological disorders (Huntington’s disease and ALS) reported no education or training in care provision, leaving them to “wing it”, or rely on “common sense,” while stating they have few peers or professionals with whom they can share experiences and build support. Health care professionals who provide guidance and training to adult caregivers, also have little understanding of young carers, and how best to engage and support them. The lack of connections between young carers and health care professionals limits the opportunity to build support and trust between young carers and the health care system. This presentation details the iterative, multidisciplinary development of the YCare program, a peer-engaged, training, skill, and support program for young carers. We will also discuss how multidisciplinary health care professionals, including OT, PT, Social work, respiratory and speech therapies were recruited and trained to deliver the YCare program - connected young carers and much needed care skills and support.
WEALTH DISPARITIES IN LATER LIFE: INSIGHTS AND IMPLICATIONS
Authors: Miller Julie 
Published: January 2025

Abstract
In the United States, wealth inequality is a stubborn and growing social and economic issue. Disparities in wealth are both products of, and contributors to, a range of pressing issues that directly impact financial wellbeing of individuals, households, and economies at large. By the time individuals reach older age, an individual’s financial wellbeing has generally compounded, making disparities in wealth experienced across sub-groups of older adults that much clearer. Considered in contexts of wealth transfer and financial capacity-building across generations, we also recognize that the implications of wealth disparities often reach across generations.
This symposium brings together leading scholars to share insights about wealth disparities in older age based on a range of identities and experiences. The first presentation focuses on wealth disparities among older LGBTQ+ adults, centering generational and social forces in the life events and experiences of their interactions with financial wellbeing. The second presentation focuses on the intersection of wills, wealth, and race, introducing context about estate planning and disparities in wealth transfer. The third and fourth presentations connect corollary issues with wealth disparities in later life. One presentation evaluates whether the sense of meaning and purpose in life mitigates these existing wealth disparities in later life, and the other presentation investigates how health and marital status shocks related to wealth disparities among older adults. Together, the four presentations introduce new perspectives about wealth inequality and wealth disparities in older age, and suggest implications for research, policy, and practice. Economics of Aging Interest Group Sponsored Symposium
BALANCING THE SCALES: ADDRESSING WEALTH DISPARITIES AMONG SEXUAL AND GENDER MINORITY (SGM) OLDER ADULTS
Authors: Hoy-Ellis Charles , Fredriksen-Goldsen Karen 
Published: January 2025

Abstract
While the National Institutes of Health, and National Academies of Science, Engineering, and Medicine have recognized LGBTQ+ populations as experiencing significant health disparities, they remain understudied and underserved. Decades of research highlights socioeconomic positionality as a significant driver of health disparities. Our team was the first document extensive health disparities among LGBTQ+ older adults. More recently, we are documenting significant economic disparities, including higher rates of poverty – mediated and moderated by lower rates of marriage and living alone, currently, and historically. It has been less than 10 years since LGBTQ+ people have been afforded the economic privileges and benefits that are inherent to state-sanctioned marriage (more than 1,100 according to the General Accounting Office), which are cumulative over time. Utilizing data from Aging with Pride: National, Health, Aging and Sexuality/Gender Study, the first and largest national longitudinal study of LGBTQ+ older adults (N = 2,450), we identify disparities in wealth and financial resources that function as risk and protective factors predicting economic outcomes among this historically marginalized population. Our findings indicate that despite significantly higher educational achievement compared to their heterosexual age-peers, LGBTQ+ older adults are disadvantaged economically, due in large part to historical sociocultural factors. More research is needed to understand underlying mechanisms of risk and protective factors that influence the unique economic and wealth disparities among LGBTQ+ and other diverse communities to inform the development of targeted interventions to address the unique economic challenges impacting their health and well-being across the life course.
HOW DO HEALTH AND MARITAL STATUS SHOCKS AFFECT DISPARITIES AT OLDER AGES?
Authors: Johnson Richard 
Published: January 2025

Abstract
This paper measures the incidence of health and marital shocks after age 65, assesses their impact on household wealth, and compares outcomes by race/ethnicity and other characteristics. The study focuses on the need for long-term services and support (LTSS), help with everyday activities that can be provided at home by unpaid family caregivers or paid helpers, or in residential care settings or nursing homes. Using data from the Health and Retirement Study spanning 1995 to 2020, the analysis measures how substantial LTSS needs, chronic health conditions, LTSS use, widowhood, and divorce affect the level of and changes in household wealth and the probability that older adults exhaust most of their resources. We find that health and marital shocks are common at older ages. After age 65, 70 percent of adults develop substantial LTSS needs, 28 percent enter a nursing home, 51 percent develop a major medical condition, and 29 percent become widowed. The lifetime risk of developing substantial LTSS needs or a major medical condition does not vary much by race/ethnicity. However, Black and Hispanic adults generally experience these shocks at younger ages than non-Hispanic white adults. Black adults are more likely to become widowed than others. Older adults who develop substantial LTSS needs, and especially those who enter a nursing home, experience much sharper declines in household wealth than other older adults. The financial impact of the onset of LTSS needs does not appear to vary much by race/ethnicity. Other shocks have smaller financial impacts.