bluuebunny/crossref_metadata_2025_split huggingface dataset:
NIH: THE SIMPLIFYING REVIEW FRAMEWORK
Authors: Ortenberg Elia 
Published: January 2025

Abstract
This presentation will discuss NIH’s current initiative, which will be implemented for applications submitted after January 25, 2025, to simplify the peer review framework for most research project grant applications. NIH’s ultimate goal through this effort is to identify the best, most innovative science with the potential to improve human health or advance our scientific understanding. The initiative involves reorganizing the existing review criteria in a way that will help reviewers focus on the key questions needed to assess scientific merit of applications: Can and should the proposed research be conducted? We will present a brief history that drove the changes and provide an overview of the new review criteria as well as the impact on the scoring method and arrangement of the summary statement that applicants will receive.
PAIN MANAGEMENT FOR OLDER ADULTS LIVING WITH DEMENTIA IN NURSING HOME COMMUNITIES
Authors: Resnick Barbara 
Published: January 2025

Abstract
Pain is a commonly reported symptom among older adults living with dementia with 30 to 80% of those in nursing homes experiencing pain. For over 50% of these individuals the pain is moderate to severe. Pain often results in a decline in function and quality of life, exacerbates behavioral symptoms associated with dementia, contributes to delirium and increases the risk of emergency room visits. For those with moderate to severe dementia verbal reporting of pain may not be reliable. Multiple systematic reviews concluded that self-report tools should be used when possible and observational measures used for supplementation of self-report. Other challenges associated with pain assessment, diagnosis and management among residents living with dementia include: (1) variations in pain with pain being more intense some days and during certain activities; (2) acceptance of pain as normal; (3) fear of pharmacological interventions; (4) lack of belief in nonpharmacological approaches; (5) lack of knowledge; (6) communication challenges between providers; and (7) desensitization to pain as experienced by residents and observed by staff. The State Operations Manual for Long Term Care, specifically F-Tag F697, requires that nursing homes must ensure that pain management is provided to residents who require such services. This symposium provides an overview of the Pain Management Clinical Practice Guideline (CPG) for nursing homes residents, results from pilot testing of a pragmatic implementation approach to help integrate use of the CPG into the community, and a review of the facility factors associated with pain among nursing home residents living with dementia.
ARE FEDERAL GUIDELINES HELPING TO IMPROVE PAIN ASSESSMENT, DIAGNOSIS, AND MANAGEMENT IN NURSING HOMES
Authors: Levy Sorah 
Published: January 2025

Abstract
The State Operations Manual for Long Term Care, specifically F-Tag F697, requires that nursing homes must ensure that pain management is provided to residents. The management should be consistent with professional standards of practice, the person-centered care plan, and the residents’ goals and preferences. Although these regulations are required there are many pain related issues not well addressed in the guidance such as recognition of the challenges to pain assessment and management, ways to overcome challenges, how the community incorporates assessment, diagnosis and management of pain using professional standards of practice, the most current standards of practice for long-term care residents, the best ways to manage different types of pain (e.g., neuropathic, chronic), and how to make decisions about changing, adding or stopping an analgesic among others. Further, there are no processes by which the communities or regulatory agencies evaluate if there is a person-centered care plan and if the plan matches the resident’s pain goals. In our pilot work implementing the Pain Management CPG we noted that the majority of the care plans related to pain were generic and not personalized and we were able to help staff make pain care plans more personalized care. The purpose of this paper is to address the mismatch between the requirements and measures within the Minimum Data Set around pain assessment, diagnosis and management and issues and concerns with this approach. We will describe how the Pain Management CPG can help guide communities to overcome these issues and adhere to F-Tag F697.
THE LONG-TERM EFFECTS OF EARLY SENSORY IMPAIRMENTS ON LATER-LIFE DISABILITY AND LONELINESS
Authors: Kim Eunbea , Lee Gina , Martin Peter , Lee JeongEun 
Published: January 2025

Abstract
We focus on the long-term consequences of childhood sensory impairments on physical disability and loneliness in later life, examining the mediating roles of childhood parental relationships in the association between childhood sensory impairments and later life sensory difficulties. We further investigated whether childhood socioeconomic factors (i.e., family income and parents’ educational attainment) moderate these relationships. Data from the Health and Retirement Study (HRS; 2012 and 2016; n = 2,116, Mage = 71.47), combined with the HRS Life History data, was utilized. Using path analyses in R, the analysis revealed that childhood vision impairment was related to higher late-life physical disability and loneliness through higher vision difficulties in late adulthood. These relationships were not influenced by the moderators (family income and parents’ educational attainment). Conversely, early hearing impairment was linked to greater older adulthood loneliness, mediated by poor childhood parental relationships. The negative impact of poor parental relationships on loneliness was lessened with a higher childhood family income and parental education for those with childhood hearing problems. Notably, mothers’ higher education level significantly alleviates the risk of later-life hearing difficulties for those with childhood hearing problems. This research underlines the lasting effects of childhood experiences and parents’ background on well-being in later life as well as the different consequences of vision and hearing difficulties. These findings shed light on the understanding of how childhood experiences can shape disability and loneliness later in life, underscoring important implications for prevention efforts in public health and policy.
RE-EXAMINING THE ISSUE OF FALSE POSITIVES IN THE ERA OF BIG DATA AND HIGH-FREQUENCY HEALTH MEASUREMENT TECHNOLOGIES
Authors: Haines Terry , Beare Richard , Srikanth Velandai 
Published: January 2025

Abstract
Technologies that monitor patient health parameters create abundance of data, enabling multiple comparisons to be easily undertaken within the same dataset. This increases the risk of spurious significant findings being reported (type 1 error). Previous work has identified this problem for situations where there is i) one explanatory and multiple outcome variables, 2) multiple explanatory and one outcome variable, and 3) multiple explanatory and multiple outcome variables. We introduce discussions of where there is one explanatory and one outcome variable, but multiple measurement points permitting multiple ways to “slice” data for analysis. We conducted 1,000 Monte Carlo simulations of a pre-post intervention study with additional parallel control site, with each phase having 24 data points per site. We analysed the data as runs of a pre-post study (period), a post-only parallel control (site) and as the full design examining a period-by-site interaction effect. We analysed the full 24 data points per period / site, then 20, 16, 12 using data adjacent to the pre-post transition time point within each run. We then repeated this procedure with 1000x these numbers of data points. We calculated the family-wise type 1 error rate for each analysis run. The cumulative type 1 error rate across all runs based on the 24 data point set was 26.8%, while the rate was 21.9% for runs based on the 24,000 data point set. This means an analyst with enough data can spuriously manufacture a significant finding for one in four to five studies.
RACIAL/ETHNIC GROUP DIFFERENCES IN REPORTED SELF-NEGLECT AMONG OLDER ADULTS
Authors: Steinman Kenneth , Pellerin Jim , Shi Yang 
Published: January 2025

Abstract
Self-neglect is a pernicious problem and represents the most common type of report investigated by adult protective services (APS). Calls for culturally competent approaches to addressing self-neglect in older adults have been undermined by the lack of research on racial/ethnic group differences and how they may vary across communities. Analyses of 101,015 reports of self-neglect among people 65+ years old validated by the Texas APS system from 2021 through 2023 found the incidence was nearly twice as high for (non-Hispanic) African Americans as for other older adults (IRR=1.91, 95%CI: 1.88, 1.94), whereas the difference for Hispanics was modest (IRR=0.95, 95%CI: 0.93, 0.96). Stratified analyses, however, found marked variation across the state’s 11 regions. In rural regions of West Texas, the higher reporting rates for African Americans were especially pronounced: three to four times the rates for other older adults. And in rural regions of East Texas, reporting rates for Hispanics were only one half to one third those of other older adults. Less variation was observed across major metropolitan regions. Further analyses assessed how regional population demographics and the racial/ethnic composition of APS staff may explain these divergent results. Efforts to understand and address racial/ethnic group differences in self-neglect should reconsider the propriety of describing groups as “underserved” when they may be disproportionately more likely to be investigated by APS. When addressing self-neglect in a diverse client population, agencies should consider the background of staff and whether distinct approaches for are needed in rural areas.
CHANGE IN UNMET NEEDS STATUS FOR DAILY MOBILITY AND SELF-CARE ACTIVITIES
Authors: Sands Laura , Zhu Xiaofan , Khan Maham , Du Pang 
Published: January 2025

Abstract
Unmet need occurs when older adults with difficulties completing daily activities cannot complete an activity because no one is available to help. Prior research has not considered whether unmet need status changes over time, nor assessed characteristics of older adults whose unmet needs worsen or resolve. Changes in unmet needs status across three pairs of consecutive annual interviews were assessed using 2011-2014 data from the National Health and Aging Trends Study. Findings revealed that that 57% of older adults who needed help with mobility activities and 62% of older adults who needed help with self-care activities did not experience unmet needs across the three consecutive pairs of occasions. Only 3% who needed help with mobility activities and 1% who needed help with self-care activities consistently reported unmet needs. Worsening of mobility unmet needs occurred for 25% and 16% resolved their mobility unmet needs. Worsening of self-care unmet needs occurred for 25% and 11% resolved their self-care unmet needs. Those who experienced worsening of mobility and/or self-care unmet needs were more likely to be female and have multiple chronic conditions. Those who experienced resolution of mobility unmet needs were more likely to be female and have multiple mobility difficulties and chronic conditions. Those who experienced resolution of self-care unmet needs were more likely to be white race, have zero or one self-care difficulties, and have multiple chronic conditions. The findings inform the need for frequent assessment of unmet needs to identify opportunities to reduce worsening and increase resolution of unmet needs.
SLEEP CONCORDANCE AMONG CARE DYADS OVER TIME: DOES IT VARY BY CAREGIVING CONTEXTS?
Authors: Kong Dexia , Li Chihua , Xiang Xiaoling , Lu Peiyi 
Published: January 2025

Abstract
The well-being of care recipients (CR) and informal caregivers (CG) is intricately interconnected. However, research on sleep concordance among caregiving dyads is scarce. Leveraging longitudinal dyadic data and a cross-lagged panel design, this study aims to investigate whether: 1) sleep patterns are concordant among caregiving dyads over time; and 2) the extent of sleep concordance differs by caregiving contexts (i.e., dementia caregiving versus non-dementia caregiving) or by living arrangements (i.e., living together versus living apart). Longitudinal data from the National Health and Aging Trends Study (NHATS) and the National Study of Caregiving (NSOC) were included (N = 2,204 care dyads). Cross-lagged panel models and multiple group analysis were used. Sleep problems of CR and CG in 2015 were significantly associated with their own sleep problems in 2017. The partner effects were statistically insignificant (P&gt;0.05). However, CR sleep problems in 2015 were associated with more CG sleep problems in 2015 (β=0.141, 95% CI=0.015, 0.268), which were further linked to more CG sleep problems in 2017 (β=0.504, 95% CI=0.431, 0.577). Furthermore, these relationship patterns remained significant among dementia care or co-residing dyads, but not among non-dementia or living apart care dyads. CR sleep problems could affect CG sleep synchronously, potentially leading to long-term deterioration of CG sleep. This can be attributed to the cumulative physical exhaustion and psychological strain associated with caregiving. Our findings highlight the importance of early intervention in mitigating CR sleep problems and targeted assistance to CG of persons with dementia and those co-residing with their CR.
THE PROMISE AND CHALLENGES OF DIGITAL INNOVATIONS TO SUPPORT OLDER ADULTS AND CAREGIVERS
Authors: Gitlin Laura , Boot Walter 
Published: January 2025

Abstract
Online platforms are promising scalable approaches for delivering interventions addressing critical public health needs. As most older adults and caregivers utilize smartphones, tablets or computers, this approach can improve access to on-demand support. However, there are numerous challenges for advancing digital innovations. This symposium showcases five digital platforms that target different populations (caregivers, socially isolated, individuals with emotional needs); address different needs (monitoring, support, care strategies); have different developmental approaches, and are in different testing phases (feasibility, usability, acceptability, efficacy). Ms. Webster first presents national recruitment efforts to enroll 262 caregivers to evaluate an online platform, WeCareAdvisor, that provides strategies to manage dementia-related behavioral symptoms. She illustrates the volume needed for enrollment and biases of recruitment approaches. Next, Dr. Czaja discusses processes for developing PRISM, an effective online program addressing social isolation. Highlighted is the importance of end-user engagement throughout development and testing. Dr. Sadarangani presents CareMobi, which enables families using adult day services to track their relatives care in that setting. She highlights the feasibility of staff and families to use the app to improve communications. Dr. Jain next presents on adapting late-life psychotherapies for delivery via mobile devices. His study demonstrates the effectiveness of adapting approaches for delivery in this modality and opportunities for symptom monitoring. Finally, Dr. Stevens, presents utilization patterns of his online platform, GamePlan4Care, which adapts the NIH REACH caregiver intervention for delivery online. Our nationally recognized expert on technology and aging, Dr. Walter Boot, will discuss the promises and challenges of digital solutions. Behavioral Interventions for Older Adults Interest Group Sponsored Symposium
CHALLENGES AND OPPORTUNITIES BRINGING DIGITAL INNOVATION TO ADULT DAY CENTERS: FEASIBILITY TESTING WITH CAREMOBI
Authors: Sadarangani Tina 
Published: January 2025

Abstract
CareMobi is an mhealth application that allows adult day services centers to exchange information with their clients’ family caregivers and health care providers. CareMobi enables adult day center staff, who possesses in-depth knowledge of clients based on their day-to-day observations, to be active members of the care team. The application was developed using a user-centered design thinking approach that prioritized the needs of end-users. Initial prototype testing, which combined qualitative interviews followed by individual completion of the Technology Acceptance Model questionnaire, showed that likelihood of adopting CareMobi was high among adult day center staff (n=31). CareMobi was also perceived as having significant clinical value. We now present the results of preliminary feasibility and acceptability testing with the app itself in a rural Tennessee adult day center (n=9). We also identify factors that support successful implementation of technology within ADCs, including comprehensive support and education, as well as challenges to widespread adoption.
VOLUNTEERING AMONG ECONOMICALLY MARGINALIZED OLDER ADULTS IN THE US: A SCOPING REVIEW
Authors: Ryu Byeongju , Matz Christina , Halvorsen Cal , Baek Jihye 
Published: January 2025

Abstract
The 2015 White House Conference on Aging highlighted civic and volunteer activities for healthy aging. While the benefits of volunteering in later life are well-documented, the experiences of economically marginalized older adults are less understood. This study systematically reviewed evidence on volunteering among this group in the U.S., focusing on their factors and outcomes. The study reviewed empirical research published since 2015, obtained from five electronic databases, selecting 11 studies focusing on older volunteers with low income or assets. The selection was based on 1) Samples predominantly aged 50+ or defined as older adults and 2) A focus on volunteering among low-income or asset older people. Reported facilitators included personal values, perceived technology utility and accessibility, linguistic and cultural adaptations in program designs, skill acquisition opportunities, post-retirement work, and living in senior housing. Barriers encompassed low technological and English proficiency, limited resources, and social distancing policies. Outcomes involved enhanced purpose and engagement in life, skill development, expanded social networks and community connectedness, improved self-reported health, and fewer depressive symptoms. This scoping review focuses on an under-researched group: economically marginalized older volunteers—underscoring the need to encourage their volunteerism. Volunteering could improve their health and well-being, potentially reducing dependence on social insurance, boosting the gross domestic product, and strengthening the nonprofit sector. Given the primary focus on formal volunteering and cross-sectional study designs in the reviewed literature, future investigations may examine informal volunteering and utilize longitudinal or experimental methodologies to examine the causal relationships of their volunteering with factors and outcomes.
PERSON-CENTERED CARE PLANNING FOR PERSONS WITH MCC: LESSONS FROM LEARNING COLLABORATIVE DISCUSSIONS
Authors: Miller Lyndsey , DeMarchis Emilia , Michaels LeAnn , Jaskson Christie , Dorr David 
Published: January 2025

Abstract
The Learning Collaborative invites person-centered care planning (PCCP) innovators, implementation experts, and front-line providers to share and discuss successes and challenges they have experienced in PCCP with the goal of generating a framework for increasing the uptake of and scaling PCCP as an integral component of routine practice. The Learning Collaborative reviews promising models of PCCP and describes feasible solutions to common implementation barriers. Participants engage in deliberative dialogue based on the collective experiences of the group to generate new knowledge and identify best practices and strategies to deliver high-quality PCCP for persons with MCCs. This task involves a series of 5 Learning Collaborative sessions to review and discuss case studies of PCCP. The Learning Collaborative includes 25-30 participants affiliated with partner Practice-Based Research Networks (PBRNs), recommended from the Technical Expert Panel, and identified by AHRQ. Learning Collaborative participants include individuals with front-line experience implementing PCCP; health system or practice clinicians preparing to implement PCCP; and implementation science researchers with experience implementing PCCP. Gathering all these partners will permit shared learning to accelerate progress, iterative, collective discussions to develop a framework for successful implementation of PCCP for people living with or at risk for MCC. The synthesis of learnings and reporting from the Learning Collaborative will provide key information for change agents, such as policymakers, clinical teams, and health care system leaders wishing to implement and research PCCP.
BEST PRACTICES AND DATA EXEMPLARS IN DESIGN AND EVALUATION OF EARLY-PHASE DYADIC INTERVENTIONS
Authors: Lyons Karen , Monin Joan , Zarit Steven 
Published: January 2025

Abstract
Despite growing numbers of early-phase dyadic interventions, few move beyond early-phase and often lack intentional plans for development and evaluation to optimize success. This session includes four data-based papers that will discuss essential elements of design and evaluation of early-phase dyadic interventions with older adults and their care partners in both cognitive impairment and chronic illness contexts. First, Dr. Joan Monin and colleagues will describe the advantages of, and phases involved in, using an Appreciative Inquiry Workshop approach to develop an attachment-based communication intervention with dyads living with dementia. Second, Dr. Kalisha Bonds Johnson and colleagues will present phase I data from a study to develop and test a formal care decision-making intervention for African-American parent-adult child dyads living with dementia. The paper will discuss the importance of intentional community engagement, use of theory, and type of dyad (e.g., mother-daughter) when designing dyadic interventions. Third, Dr. Michael McCarthy and colleagues will use data from several studies to exemplify the advantages of mixed-methods designs in developing dyadic interventions, particularly in rural samples (e.g., strengthening participant engagement, maximizing resources, surfacing new questions). Finally, Dr. Karen Lyons and colleagues will present two approaches to evaluating dyadic benefits of interventions in small samples, the importance of assessing pre-test risk status within care dyads, and the need to assess relational impact of behavioral interventions. Speakers will share best-practices in developing, designing and evaluating early-phase dyadic interventions followed by a discussion of key take-homes by Dr. Steve Zarit.