bluuebunny/crossref_metadata_2025_split huggingface dataset:
La confrontation au deuil d’un pair chez une AJA atteinte de cancer. Une analyse phénoménologique interprétative
Authors: Phan J. , Laurence V. , Marec-Berard P. , Cordero C. , Riberon C. , Flahault C. 
Published: June 2022

Objectif : Les adolescents et jeunes adultes (AJA) atteints de cancer faisant face à la perte d’un autre AJA malade peuvent être confrontés à une « triple tâche » : le processus d’adolescence, l’ajustement psychologique au cancer et la mort d’un pair malade. L’objectif de l’étude a été d’explorer les processus sous-jacents à la perte d’un pair malade chez les AJA atteints de cancer.
Matériel et méthodes : Un entretien unique a été soumis à une Analyse phénoménologique interprétative (IPA), conçu pour comprendre le système de significations attaché à un phénomène subjectif et intime tel que le deuil.
Résultats : L’IPA a fait émerger six thèmes majeurs : le parcours de vie ; le parcours de soins ; les représentations du cancer, de soi et du monde ; l’ajustement psychologique au cancer ; les relations interpersonnelles ainsi que la perte d’un pair AJA malade. Le récit interprétatif montre la place centrale du processus d’identification aux pairs malades, notamment au défunt, dans la mise en sens du cancer et du deuil. Cette expérience du deuil d’un pair comporte des aspects négatifs (e.g., perspective de sa propre mort, perte de repère, peur de la rechute) et positifs (e.g., sentiment de continuité avec le défunt, changement de perception de soi et du monde).
Conclusion : L’étude montre l’importance de considérer ces processus dans l’accompagnement des AJA atteints de cancer confrontés à la mort d’un pair malade et de proposer des interventions adaptées à cette tranche d’âge.
Chiari malformation type I surgery in children: French multicenter 10-year cohort
Authors: Mazerand Edouard , Benichi Sandro , Taverne Maxime , Paternoster Giovanna , Rolland Alice , Antherieu Pierre , Todeschi Julien , Kamdem Noumoye Lawrence , Gilard Vianney , Bretonnier Maxime , Fournier Luc Le , Jecko Vincent , Gimbert Edouard , Proust François , Boetto Sergio , Roujeau Thomas , James Syril , Khonsari Roman H. , Riffaud Laurent , Delion Matthieu , Zerah Michel , Scavarda Didier 
Published: June 2022

OBJECTIVE
Chiari malformation type I (CM-I) is frequent in children and remains a surgical challenge. Several techniques have been described for posterior fossa decompression. No decision algorithm has been validated, and strategies are highly variable between institutions. The goal of this study was to define therapeutic guidelines that take into consideration patient specificities.

METHODS
The authors retrospectively collected data from patients who were < 18 years of age, were diagnosed with CM-I, and were treated surgically between 2008 and 2018 in 8 French pediatric neurosurgical centers. Data on clinical features, morphological parameters, and surgical techniques were collected. Clinical outcomes at 3 and 12 months after surgery were assessed by the Chicago Chiari Outcome Scale. The authors used a hierarchical clustering method to define clusters of patients by considering their anatomical similarities, and then compared outcomes between surgical strategies in each of these clusters.

RESULTS
Data from 255 patients were collected. The mean age at surgery was 9.6 ± 5.0 years, syringomyelia was reported in 60.2% of patients, the dura mater was opened in 65.0% of patients, and 17.3% of patients underwent a redo surgery for additional treatment. The mean Chicago Chiari Outcome Scale score was 14.4 ± 1.5 at 3 months (n = 211) and 14.6 ± 1.9 at 12 months (n = 157). The hierarchical clustering method identified three subgroups with potentially distinct mechanisms underlying tonsillar herniation: bony compression, basilar invagination, and foramen magnum obstruction. Each cluster matched with specific outcomes.

CONCLUSIONS
This French multicenter retrospective cohort study enabled the identification of three subgroups among pediatric patients who underwent surgery for CM-I, each of which was associated with specific outcomes. This morphological classification of patients might help in understanding the underlying mechanisms and providing personalized treatment.
АНАЛІЗ ВИКОНАННЯ МІСЦЕВОГО БЮДЖЕТУ: ЦИФРОВА ДОСТУПНІСТЬ ІНФОРМАЦІЇ (НА ПРИКЛАДІ РІВНЕНСЬКОЇ ОБЛАСТІ)
Authors: Mikluha O. L. , Pozniakovska N. M. 
Published: June 2022

У статті здійснено дослідження доступності даних для аналізу стану виконання місцевого бюджету, що дозволяє застосувати запропоновану методику аналізу у розрізі завдань: оцінка структури місцевих бюджетів; аналіз виконання дохідної частини місцевих бюджетів; аналіз виконання видаткової частини місцевих бюджетів. Проведено моніторинг якості, доступності, прозорості і відкритості даних щодо стану виконання місцевих бюджетів, представлених на Державному веб-порталі бюджету для громадян Єдиному державному порталі відкритих даних, вебпорталах казначейства, органів місцевого самоврядування. Запропоновано удосконалення інформаційного середовища щодо застосування та візуалізації системи показників ефективності використання коштів бюджетів для прийняття відповідних управлінських рішень.
URGENSI DAN METODE PENDIDIKAN TOLERANSI BERAGAMA
Authors: Nuryadin Rochmad 
Published: June 2022

Tujuan dari penelitian ini adalah memberikan gambaran urgensi tentang pendidikan toleransi beragama Untuk mencegah sikap intoleran serta sikap radikalisme serta memaparkan metode pendidikan toleransi. Menengok konflik polarisasi umat beragama yang terdapat di negara Indonesia pada akhir-akhir ini terutama perihal yang berkaitan dengan perbedaan pemahaman serta keyakinan. Perbedaan tersebut menyebabkan konflik yang didasari kurangnya sikap dan sifat toleransi.. Penelitian ini menggunakan metode library research dimana penelitian kepustakaan dengan pengambilan data melalui tulisan, dokumentasi, artikel maupun jurnal. Hasil penelitian pendidikan toleransi beragama sangat penting untuk mewujudkan tatanan kehidupan yang aman, damai tentram, dan sejahtera. Pendidikan toleransi beragama jika diterapkan sejak dini, maka akan terbentuk karakter yang mengedepankan sikap toleransi atau tenggang rasa. Sedangkan metode pendidikan toleransi beragama bisa dilakukan melalui metode keteladanan, nasehat dan pembiasaan.
Urethral Melanoma – Clinical, Pathological and Molecular Characteristics
Authors: Mano Roy , Hoeh Benedikt , DiNatale Renzo G. , Sanchez Alejandro , Benfante Nicole E. , Reznik Ed , Leitao Mario M. , Shoushtari Alexander N. , Goh Alvin , Donat S. Machele , Herr Harry W. , Bochner Bernard H. , Dalbagni Guido , Donahue Timothy F. 
Published: June 2022

BACKGROUND: Mucosal melanoma involving the urethra is a rare disease with distinct clinical and molecular characteristics and poor outcomes. Our current knowledge is limited by the small number of reports regarding this disease. OBJECTIVE: To describe the clinical, pathological, and molecular characteristics of urethral melanoma. METHODS: We summarized the clinicopathologic data for 31 patients treated for urethral melanoma from 1986–2017 at our institution. Genomic data from our institutional sequencing platform MSK-IMPACT ( n = 5) and gene-specific PCR data on BRAF, KIT, and/or NRAS ( n = 8) were compared to genomic data of cutaneous melanomas ( n = 143), vulvar/vaginal melanomas ( n = 24), and primary non-melanoma urethral tumors ( n = 5) from our institutional database. RESULTS: Twenty-three patients were diagnosed with localized disease, 7 had regional/nodal involvement and one had metastases. Initial treatment included surgery in 25 patients; seven had multimodal treatment. Median follow-up was 46 months (IQR 33–123). Estimated 5-year cancer-specific survival was 45%. No significant change in survival was observed based on a year of treatment. Primary urethral melanomas showed a higher frequency of TP53 mutations compared to cutaneous (80.0% vs. 18.2%, p = 0.006) and vulvar/vaginal melanomas (80.0 vs. 25.0%, p = 0.04). BRAF mutations were absent in urethral primaries (0% vs. 46% in cutaneous melanoma, p = 0.02). Tumor mutation burden was higher in cutaneous than urethral melanomas ( p = 0.04). Urethral melanomas had a higher number of somatic alterations compared to non-melanoma urethral tumors (median 11 vs. 5, p = 0.03). CONCLUSIONS: Our findings support a unique mutational landscape of urethral melanoma compared to cutaneous melanoma. Survival remains poor and is unchanged over the time studied.
Understanding the Quality of Life Impacts of Providing Informal Care to People with Dementia: A Systematic Review of Qualitative Studies
Authors: Mohamad Asfia Siti Khadijah Binti , Bucholc Jessica , McCaffrey Nikki , Mihalopoulos Cathrine , Muldowney Anne , Engel Lidia 
Published: June 2022

Background: There is currently a lack of a comprehensive review identifying the broad scope of factors that impact quality of life (QoL) of informal carers of people with dementia in order to validate existing measures and inform the provision of support services for carers of people with dementia that impact QoL domains important to them. Objective: To explore and identify QoL impacts on informal carers from providing care to people with dementia. Methods: A systematic review was conducted across four databases: EMBASE, CINAHL, PsychINFO, and Medline. Eligible studies consisted of published, peer-reviewed, qualitative studies focusing on lived experiences of informal carers of people with dementia. Non-English studies and quantitative studies were excluded. Screening of included studies was conducted independently by three reviewers. A “best-fit” framework synthesis was used to combine the qualitative data, applying deductive and inductive analysis techniques. Quality assessment was conducted using the Critical Appraisal Skills Programme. Results: Of the 4,251 articles identified, 59 articles were included. Five main themes pertaining to QoL aspects were identified that included coping (emotion-coping and problem-coping), relationship with the person with dementia (sense of loss and change in relationship), support (formal support and informal support), interference with life (control over caring situation, and freedom and independence), and health (physical health, emotional and mental health, and social health). Conclusion: This study identified domains of QoL that are impacted by providing informal care to people living with dementia, offering a conceptual framework for instrument validation and development as well as guidance for service provision.
Proechimys e Trinomys (Rodentia: Echimyidae)
Authors: Iaeger Chaiane Teila , Maestri Renan , Fornel Rodrigo 
Published: June 2022

As coleções científicas têm um papel muito importante em salvaguardar registro da biodiversidade. Neste estudo, utilizamos crânios e mandíbulas de roedores obtidos em três museus e uma Universidade do Brasil. O nosso objetivo foi descrever as diferenças morfológicas entre os dois gêneros de ratos de espinho Proechimys e Trinomys. Para isso, foram fotografados um total de 612 indivíduos de ambos os gêneros. Utilizamos métodos de morfometria geométrica com a plotagem de marcos anatômicos bidimensionais para descrever a forma e tamanho do sincrânio. Nossos resultados demonstraram que não há diferença estatística de tamanho do sincrânio entre os gêneros Proechimys e Trinomys. Porém, há diferença de forma: as espécies de Trinomys apresentaram bulas auditivas proporcionalmente menores, um processo jugal relativamente mais proeminente e um crânio relativamente mais robusto do que as espécies de Proechimys, enquanto as espécies de Proechimys apresentam um crânio relativamente mais delgado e afilado do que as espécies de Trinomys. Este trabalho adiciona informações referentes às diferenças já estabelecidas para os gêneros Proechimys e Trinomys. Além disso, demonstra a importância das coleções científicas para a descrição da biodiversidade.
Recensioni
Authors: Guerra Alessandro , Meriggi Marco , Calefati Christopher , Brice Catherine , Conte Paolo , Casalena Maria Pia , Visconti Agnese 
Published: June 2022

- Francesco Benigno e Daniele Di Bartolomeo, Napoleone deve morire. L'idea di ripetizione storica nella Rivoluzione francese, Roma, Salerno, 2020, 194 p. br/> - Salvatore Santuccio, Uno stato nello stato. Sette segrete, complotti e rivolte nella Sicilia di primo Ottocento, Acireale, Bonanno, 2020, 301 p.- Enrico Francia, Oggetti risorgimentali. Una storia materiale della politica nel primo Ottocento, Roma, Carocci, 2021, 180 p.- Jacopo De Santis, Tra altari e barricate. La vita religiosa a Roma durante la Repubblica romana del 1849, Firenze, Firenze University Press, 2021, 282 p.- Giampaolo Conte, Il credito di una nazione. Politica, diplomazia e società di fronte al problema del debito pubblico italiano. 1861-1876, Roma, Edizioni di Storia e Letteratura, 2021, 114 p. - Massimo Baioni, Vedere per credere. Il racconto museale dell'Italia unita, Roma, Viella, 2020, 266 p.- Gabriele B. Clemens, Geschichte des Risorgimento. Italiens Weg in die Moderne (1770-1870), Wien-Köln, Böhlau, 2021, 264 p.- Du "Grand Tour" au Traité de Rome: l'Europe au bout du voyage, sous la direction de Francis Démier et Elena Musiani, Rennes, Presses universitaires, 2021, 186 p.
Variasi Metodologi Ilmu Tarannum: Suatu Perbincangan Kritis
Authors: Muhammad Lukman b. Ibrahim  , Anuar b. Hasin  , Zainora b. Daud  , Mohd Azhar Abdullah  
Published: June 2022

Al-Quran is the highest miracle of the Prophet Muhammad saw, which includes various disciplines of knowledge including the knowledge of Qiraat, tafsir and tarannum. In accordance with its meaning, this discipline of tarannum emphasizes the processing of sound and beautifying the sound according to the process of certain tones, beats and rhythms. Although it is generally understood that knowledge in this discipline is applied to appreciate the uslub of al-Quran, but wihin the public society, they are not clear about the differences in the variation of knowledge methodology in this field. Therefore, this article aims to analyze some methodologies of tarannum science that should be followed by every reciter of the Qur'an. This study applies qualitative research methods with inductive and deductive methodologies, to identify the best methodological variations available in the science of tarannum. The results of the study found that there is a great importance in the implementation and use of the right methodology in the science of tarannum, this is because without it, it will inhibit the method of proper reading presentation. Even these methods must be diversified without running away from the methods that are imposed on the limits of recitation advocated by the Qurra.
منهج ابن باديس في تنزيل آيات الدعوة على الواقع من خلال تفسيره "مجالس التذكير": الآية 125 من سورة النحل أنموذجاً
Authors: Mahyuddin Hashim  , Samia Baggash Al Hammadi  
Published: June 2022

Algeria witnessed a very critical time during the French colonial period, which prompted Ibn Badis, the one called as revivifier and reformer of his era, to look for solutions to the issues of his period. Ibn Badis resorted to the holy Qurʾān and designated his life to serve the book of Allah, interpreting and contemplating it, as well as extracting and deducing all regulations and provisions, applying them to his daily life. He also ensured proper installation of verses of the Qurʾān to act as a solution to various issues, including spreading the message of Allah and informing people about Him. This article introduces Ibn Badis and shines a light on how he implemented and used his understanding of Qurʾānic verses to solve his daily life issues, specifically his journey of advocating and guiding people towards getting to know Allah. The paper employed inductive and descriptive analysis to achieve this goal and concluded that Ibn Badis is a pioneer of reform and uplifted his society using Qurʾānic verses. He was greatly interested in the advocacy aspect (getting people to know Allah) of interpreting the Qurʾān verses, where he extracted the advocacy rules, etiquettes of the advocator and then implemented them in his everyday life.
TUBUH, HABITUS, DAN NGENG DALANG DAN PENGRAWIT WAYANG
Authors: Prasetya St. Hanggar Budi 
Published: June 2022

Body, Habitus, and Bourdieuâ€™s theory have long been a topic of research in sociol- ogy of art. Â Pierre Bourdieuâ€™s work is widely viewed as a fruitful approach to both theory and Â research on the body as Bourdieu links agency with structure through the process of habitus. Â Bourdieuâ€™s concept of habitus illuminates the circular pro- cess whereby practices are incorporated within the body, only then to be regener- ated through the embodied Â work and competence of the body.Â Â This research explores the process embodiment on puppet master and gamelan musicians. Â NgengÂ is the most important concept for gamelan musician to play and appreciate gamelan music.Â Â The disciplined and rehearsed body of Â the puppet master and gamelan musician is one of the most significant resources in the conduct of gamelan music. In this paper I explore some of these issues to make sense of Â embodied work orÂ ngengÂ of gamelan music performance drawing on my ethnography of Â the shadow puppet theatre.Â Key words:Â ngeng, habitus, mlÃ¨sÃ¨d, nggandhul.
TARI JANGKRIK NGENTHIR DALAM UPACARA BERSIH DESA DI DESA JRAKAH KECAMATAN SELO KABUPATEN BOYOLALI
Authors: Haryadi Rochmad 
Published: June 2022

JangkrikÂ solar paradeÂ NgenthirÂ grows up and amends at environmentally Jrakahâ€™s Silvan Â society as ceremony of executed silvan clear exactly with breakfast tradi- tion.Â Â Clear Â ceremony tradition life dea is done up to fifty years hand in glove relationship it with Â social cultural its supporting.Â Â How forms parade dance in ritualâ€™s ceremony clean Â slate Â village at Silvan Jrakah, Cello district, Boyolaliâ€™s regency Are solar fashioned meaning Jangkrik Ngenthir in that ritualâ€™s ceremony? That phenomenon, having energy Â draw for observed in a research.Â Â Therefore problem formulation is proposed to Â work Â through about problem utilized by kualitatif â€™s description method with tech Â studiâ€™s Â data collecting library, observa- tion and interview.Silvan clear ceremony one demonstrates toÂ Jangkrik NgenthirÂ dance that did by religious full magis to look after silvan society viability Jrakah as prop it.Form ofÂ Jangkrik NgenthirÂ comprises one of supported group type four dancer rides Â on Â horseback kepang, one Penthulâ€™s dancer, one Tembemâ€™s dancer, one Bel- lyband dancer, four Pengrawit, meanwhile property that is utilized which is horse kepang.Â Â Meaning that consists in to paradeJangkrik NgenthirÂ dance constitute fecundity and Â safety ceremony for Jrakahâ€™s Village society.Â Keywords:Â Jangkrik Ngenthir, ritualâ€™s ceremony
OPTIMALISASI PARIWISATA KAWASAN SUKUH DAN CETO KABUPATEN KARANGANYAR DENGAN MENGGALI POTENSI SENI TRADISI
Authors: - Santosa , Purnomo Muh. Arif Jati , Budiwiyanto Joko , - Sriharta 
Published: June 2022

The article is the result of the research entitled â€œThe optimalization of tourism in Sukuh and Ceto areas, Kabupaten Karanganyar by increasing the potency of traditional art as a means of creative economic developmentâ€. The research aimed at making a model for developing an integrated tourism in Sukuh and Ceto areas which could be empowered as a an effort at increasing public economy and at strengthening local culture. A two-year research was carried out to attain the goal. The results of the first stage research are as follows: many kinds of art have been identified completely and comprehensively; a plan of developing art for tourism which can have an effect on economic development of the local society has been known; the model of art created is based on the approach of art for tourism with the following characteristics: an imitation of the original, compressedor short, the primary values are put aside, full of variation, attractive, and low in price. The conception of art for tourism is developed in accordance with the condition of the local society, culture, and the environment in order to create a specific art for tourism.Â The conception of art for tourism has the following characteristics. First, the art for tourism has a specific characteristic. Second, the art is specially designed considering the character of the area. Third, the art should have a contextual feature, meaning it is created by considering the natural elements, belief, customs, and local wisdom and it should not destroy the nature. Fourth, the art should pay attention to visual elements. Key words: traditional art, creative economy, art for tourism, model formulation.
Proses Penciptaan Film Pendek "PeNSiunan"
Authors: - RB. Armantono 
Published: June 2022

Hubungan manusia dan pekerjaannya selalu menjadi masalah aktual dan sering menimbulkan persoalan yang kompleks. Ironisnya,Â tema ini nyaris tak tersentuh dalam produksi film nasional. Pekerjaan dianggap sebatas sebagai bagian dari karakterisasi tetapi bukan sebagai fokus utama cerita. Film pendek â€˜PeNSiunâ€™ mengisi celah ini dengan mengangkat kisah tokoh yang baru saja memasuki masa pensiun sehingga kehilangan pekerjaan dan jabatan karena dianggap sudah tidak produktif lagi. Berlandaskan pemikiran Horkheimer bahwa pengertian produktif sesungguhnya tidak bebas nilai, â€˜PeNSiunâ€™ menafsir ulang makna produktif itu sendiri. Dengan pendekatan realisme dan disajikan dalam struktur dramatik tiga babak, film pendek â€˜PeNSiunâ€™ mengajukan perenungan bahwa pekerjaan dan produktivitas harus dimaknai dalam konteks kerendahan hati manusia terhadap sesama, alam sekitar dan sebagai bentuk tanggung-jawab manusia kepada Tuhannya.Kata kunci: pensiun, produktif, realisme, struktur dramatik tiga babak.
Koneiden tulevaisuus haastaa filosofisiin pohdintoihin
Authors: Huhtasalo Jenni 
Published: June 2022

Teos tarttuu tekoälyn, ihmisen ja yhteiskunnan välisiin kysymyksiin usean suomalaisen eturivin tutkijan voimin. Se kattaa laajasti näkemyksiä ihmisen ja teknologian suhteeseen esimerkiksi tieteenfilosofian, yhteiskuntafilosofian, tekniikan filosofian ja kognitiivisen psykologian tulokulmista. Ihmisen, koneen ja yhteiskuntasuhteen tutkimukseen perehtynyt lukija odottaa teokselta uusia avauksia ja näkökulmia. Aihetta tuntematon taas kaipaa kattavaa esitystä aiheesta. Teos täyttää molempien odotukset.