bluuebunny/crossref_metadata_2025_split huggingface dataset:
STATE OF HEALTH AND FUNCTIONAL AGING IN THE IMMIGRANTS AND MIGRANTS IN UKRAINE
Authors: Tomarevska Olena , Poliakov Oleksandr 
Published: January 2025

Abstract
The study of migration factors and the likelihood an impact on aging and health of respondents is important for the healthcare. This study is aimed to evaluate differences in the health of immigrants, migrants, and non-migrants among the 31-105 years. Online study will be perspectives to assess the health state and effectiveness of rehabilitation in migrant’s groups. Analysis of functional aging and health, sensory, cognition and physical capabilities of migrants and non-migrants in 31-105 years (1995-2023) offline and online study in Ukraine. For participants after 90, the impact of immigration processes of interstate and internal migration on health was determined. In persons 60-89 years old was relationship between functional aging and interstate immigration to Ukraine. Primary health assessment was analyzed the impact of outward migration and comparison with people who remained inside the country in Ukraine. In the results the trend are accelerator characters of functional aging. The leading indicators in monitoring health status and functional aging processes were the ability in centenarians to sit-to-stand up test (r=0.176, p&lt; 0.05), in the older adults (r=-0.210, p&lt; 0.05), in the online study (P=0.006) as well as the ability to remember three words after over time (r=0.174, p&lt; 0.05) in ninety-year-olds. We found changes in these parameters, characterized by better indicators for migrants who emigrated and immigrated to the territory of Ukraine. This fact shows that people migrate with better health indicators, and these relationships health status at older persons and centenarian require monitoring and for rehabilitation programs.
IDENTIFYING OPPORTUNITIES TO OPTIMIZE PERSON-CENTERED CARE IN LONG-TERM CARE
Authors: Roberts Tonya , Li Jingxi , Boutilier Justin , Mintz Yonatan 
Published: January 2025

Abstract
Person-centered care (PCC), or care consistent with preferences, improves long-term care (LTC) resident quality of life, family satisfaction, and staff job satisfaction. Despite benefits, PCC has not been fully adopted across homes. One barrier is a lack of knowledge regarding patterns in resident preferences that can meaningfully inform operational decision-making to improve PCC. This study aimed to take the first step toward filling that gap by: 1) describing LTC residents’ preferences; 2) describing the impact of aligning care with preferences, and 3) identifying gaps in care that could be improved with operational interventions. Preference surveys were administered, and audio recorded with 27 LTC residents, or family proxies, over the course of &gt;70 sessions. Descriptive analysis of survey and audio data was conducted. Residents/families rated the majority (84%) of preferences on daily routines, social relationships, caregiving, and leisure as important; however, specific preferences endorsed were highly unique. Residents/families reported nearly half (42%) of preferences were rarely or never met and nearly all (94%) of their current preferences were not the same as before admission. Residents/families described negative impacts on mental well-being, quality of life, or physical health when preferences were not met and engaging in a process of adapting preferences to what was available at the facility. Findings highlight that both idiosyncratic and common preferences and care gaps exist across residents, and different interventions may be needed to address PCC at individual and organizational levels. Possible targets for operational interventions to address these different needs and improve PCC will be discussed.
THE HEALTH OF DIVERSE CALIFORNIANS WITH NEEDS FOR LONG-TERM SERVICES AND SUPPORTS
Authors: Kietzman Kathryn , Chen Lei , Juturu Preeti 
Published: January 2025

Abstract
This study used data from the 2019-2020 California Long-Term Services and Supports (CA-LTSS) survey to identify differences in health outcomes within a population of older adults and adults with disabilities. Our study sample included 2030 adults who lived in home and community settings in California, and experienced at least one type of LTSS difficulty, including cognitive impairment and difficulties performing activities of daily living and/or instrumental activities of daily living. We conducted chi-square tests using weighted representative California population-level data. Among people with LTSS difficulties, we found significant racial/ethnic differences in health insurance coverage, usual source of care, and psychological distress. For example, a larger proportion of Asian adults with LTSS difficulties reported having no health insurance (9.0%), having no usual source of care (21.2%), and experiencing serious psychological distress (37.3%) compared to other racial/ethnic groups. We also found significant differences by employment status. Specifically, adults with LTSS difficulties who were in the labor market were more likely to experience serious psychological distress (28.8%), have no health insurance (11.3%), experience delays in receiving care or prescriptions (26.1%), have unmet needs (41.1%), and report financial worries (68.7%), compared to adults with LTSS difficulties who were not in the labor market. Income level was also significantly associated with health and well-being, health insurance coverage, usual source of care, and unmet needs. These results can be used to inform the development of programs and policies for diverse people with LTSS needs, and further suggest the need for innovative strategies to advance health equity.
TRENDS IN US NURSING HOMES RESIDENTS WITH LIMITED ENGLISH PROFICIENCY (LEP)
Authors: Mickus Maureen , Nguyen Jade 
Published: January 2025

Abstract
Ethnic elders residing in U.S. nursing homes experience significantly lower quality of life compared to their white counterparts. Among the most vulnerable are those with Limited English Proficiency (LEP) who may be unable to communicate even basic needs to staff. Based on the Minimum Data Set (MDS), this study examined the prevalence of LEP residents in the U.S. between 2020 and 2023 as defined by those needing language interpreter services. From 2020 to 2021, the number of LEP residents decreased by 25.3% from 46,877 to 35,021, in part due to the disproportionate rate of death from COVID-10 among minorities. After 2021 an increase was reported by an estimated 2,000 residents per year with an estimated 39,584 LEP residents recorded in 2023. The need for interpreter services in nursing homes varied significantly by state with 14.4% of California and 7.71% of New York residents as compared with 14 states reporting less than 1%. Not surprisingly, U.S. Census statewide data of individuals age 65+ in the general population reporting speaking English less than “very well” was positively correlated with the percentage of LEP residents in nursing facilities, r (47) =.91, p &lt;.001. Based on the unmet needs that are likely associated with LEP residents and the unavailability of interpreters 24/7 in facilities, increased cultural education and sensitivity is warranted for staff in long-term care facilities. Future research determining which specific languages are spoken in facilities in addition to ways to improve communication is needed.
DECODING DEMENTIA STIGMA THROUGH NETNOGRAPHY: LESSONS FROM THE DEMENTIA DIARIES
Authors: Marnfeldt Kelly 
Published: January 2025

Abstract
Worldwide, 10 million people are diagnosed with dementia each year. The experience of receiving a dementia diagnosis is commonly described in terms of lost identity and self-worth, with feelings of grief, fear of decline, and worries of becoming a burden. Such feelings are exacerbated by pervasive stigmatization and narratives that perpetuate the misconception that a diagnosis equals the end of a meaningful life. Moreover, people with dementia (PWD) are not only absent from stigma-reduction campaigns but they are underrepresented and overlooked across the research-practice-public health continuum. The present study aims to (1) explore perspectives and experiences of dementia-related stigma among PWD and (2) to examine how active participation in awareness and education campaigns by PWD influences their feelings/experiences of stigma. Netnographic methods were employed to analyze archived reflections (~3k) gathered from the UK-based Dementia Diaries—an online platform dedicated to fostering dialogue and combating stigma surrounding dementia. Between 2015 and 2023, 109 individuals contributed 2,946 diary entries to the platform, with 1 to 332 (M=64.04; SD=96.3) entries per person. This analysis identified themes of avoidance, abandonment, and invisibility in PWD’s encounters with stigma, and references to the transformative impact of self-advocacy efforts. PWD attest that involvement in awareness activities fosters humanization and shifts attitudes, promoting inclusion, empathy, and solidarity. Future research should examine the mechanisms underpinning these effects, with an emphasis on personal narratives, advocacy, and stigma-countering strategies. Policy interventions could have broader societal impact by prioritizing meaningful social interactions with PWD and harnessing positive representations in stigma-reduction campaigns.
PRELIMINARY RESEARCH ON TOUCHPOINT METHOD TO ENGAGE CHINESE OLDER ADULTS IN PARTICIPATORY DESIGN ACTIVITIES
Authors: Jiang Jiabei , Sun Tongxin , Yin Jianing , Liu Yuanyuan 
Published: January 2025

Abstract
Collaborative engagement with older adults in design research activities is an effective and beneficial method for researchers to understand the needs of this demographic. Participatory design, originally proposed within Western value systems, faces challenges in application across different regions and cultural contexts, particularly in participatory design activities targeting older adults within the Chinese societal context. However, limited literature focuses on the methodologies of participatory design practices with older adults in non-Western countries. This study views the organizational process of participatory design activities as a form of service design research involving older adults, where design researchers serve as providers and older adults as the recipients of the service. Drawing upon service design thinking, this paper introduces the concept of ‘participation touchpoints’—moments within activities that encourage active involvement of older adults—to explore the interactions between participants and the organizers, procedures, and environments of activities. This approach aims to optimize the experience of older participants and enhance their engagement. Furthermore, based on the Theory of Planned Behavior, we proposed a framework of participation touchpoints including attitude guidance, incentive motivation, and capability compensation. We evaluated this framework through a participatory design workshop with older adults and multiple stakeholders, focusing on the dynamic interactions among organizers, participants, and the activities themselves. This research endeavors to foster more effective collaboration with older adults in design research, aiming to develop a participatory design framework that ensures mutual empowerment for older adults and the research team.
SECONDARY EMOTIONAL DISTRESS: SUPPORTING YOUR RESEARCH TEAM THROUGH THE QUALITATIVE RESEARCH PROCESS
Authors: Coccia Kathryn , Hendricks-Ferguson Verna , Wladkowski Stephanie , Wallace Cara 
Published: January 2025

Abstract
Conducting qualitative interviews with older adults experiencing serious illness as a patient or caregiver may include distressing subject matter for researchers. A growing body of evidence shows researchers are at risk of developing secondary emotional distress from eliciting or processing participants’ distressing experiences. Novice researchers or graduate research assistants may be particularly vulnerable to developing secondary emotional distress. Many qualitative research plans include protocols for managing participant distress, but very few include formal considerations for mitigating psychological risk for members of the research team. Using a case study from an ongoing NIH-funded research study on live discharge from hospice, this presentation will focus a wider discussion of how difficult emotional experiences can occur both during the data collection process and again in analysis. This phenomenon will be discussed from the lens of a graduate research assistant, the primary investigator, and senior co-investigators. Presenters will share how these situations were processed, insights gleaned from these experiences, and considerations for developing protocols and cultivating resources to support team members in future studies.
THE OPPORTUNITIES AND CHALLENGES OF CONDUCTING OBSERVATIONAL RESEARCH IN LONG-TERM RESIDENTIAL CARE ENVIRONMENTS
Authors: Haunch Kirsty , Spilsbury Karen 
Published: January 2025

Abstract
Observational research has potential to offer new insights when addressing questions that matter for older people living in long term residential care settings (or care homes); moving beyond what people “say they do” to offer data of what is seen in every-day activities and interactions. However, there are challenges associated with why, how, where and in what context observations should be used in this setting. Care homes are dynamic care environments, and approximately 70% of older people living in care homes will live with dementia or cognitive impairment. These contextual and ‘people’ factors require careful consideration when choosing this method. Drawing on the experiences of two research teams, we share real world examples of the ethical, methodological, and practical concerns when using the observation method in the UK context. We offer examples from our work to guide researchers on: i) ‘making a case’ for observation; ii) the observational ‘gaze’ (or focus); iii) including people who lack capacity; iv) managing concerns about care or practices; v) the role of researcher; and vi) addressing observational sensitivities. As researchers, what we bring, what we do, and what we leave behind when using this method can have a significant impact on the lives (and work) of people in care homes. Our paper addresses a significant gap in the existing literature. It will be of interest to researchers world-wide and has the potential to benefit those living (and working) in care homes by enhancing the quality of research endeavours.
DEVELOPING THE CHINESE VERSION OF THE ASSESSMENT OF INTERPROFESSIONAL TEAM COLLABORATION SCALE IN TAIWAN
Authors: Yu Hsiao-Wei , Orchard Carole , Hu Yu-Ching 
Published: January 2025

Abstract
The delivery of long-term care reablement services emphasizes an interprofessional collaboration (IPC) approach. This study aims to use the existing Assessment of Interprofessional Team Collaboration Scale (AITCS) as an IPC measurement tool, assessing its alignment with Taiwan’s unique caring culture compared to its original use in Canada. Brislin’s Back-Translation Method was employed to create Chinese versions of the AITCS questionnaires, which were then administered to 201 professionals and paraprofessionals involved in reablement services in Taiwan to evaluate reliability and validity. Consistent with the original AITCS, the Chinese Version scale comprises three primary domains—partnership, cooperation, and coordination—with 23 question items. It demonstrates satisfactory reliability (Cronbach’s alpha=0.97 for total scale, ICC=0.91 for test-retest reliability) and acceptable convergent validity (AVE=0.68-0.80, CR&gt;0.90), along with discriminant validity (coefficients &lt; 0.80 between domains). Analysis of IPC performance among participants shows that collaboration (3.82 ± 0.75) and partnership (3.78 ± 0.77) exhibit more favorable scales compared to cooperation (3.56 ± 0.63) (p&lt;.001). This study has preliminarily developed a Chinese Version of the IPC measurement tool, suggesting the need for further investigation into strategies for enhancing cooperation in IPC performance within the context of reablement services in Taiwan.
EXPLORING CIND STABILITY ACROSS TIME: INSIGHTS FOR IMPROVING COGNITIVE IMPAIRMENT CLASSIFICATIONS
Authors: McDowell Cynthia , Tamburri Nicholas , Gawryluk Jodie , MacDonald Stuart 
Published: January 2025

Abstract

Objective
Cognitive impairment no dementia (CIND) classifications are susceptible to false positives and may not be indicative of progressive cognitive decline or dementia risk. The current project sought to investigate the dynamic nature of CIND across six years and to elucidate whether baseline impairment severity (single vs. multidomain impairment) predicts CIND stability patterns such as reversion and fluctuation between cognitive statuses. Method: Utilizing data from Project MIND, participants (N=259; 65-90 years) were classified as either Normal Cognition (NC) or CIND across five annual assessments using a battery of five cognitive tasks. Participants were classified as either Stable NC, Stable CIND, Progressors (NC—CIND), Reverters (CIND—NC) or Fluctuaters (CIND—NC—CIND) according to their across-time stability patterns. Participants initially classified as CIND were further subdivided based on impairment severity: single-task (CIND-S) or multiple-task (CIND-M) impairment. Multinomial logistic regression was utilized to explore whether baseline CIND severity differentiated Reverters and Fluctuaters from those who remained Stable CIND.

Results
Most individuals were unstable in their CIND status for several years following baseline assessment. Compared to those classified as Stable CIND, Fluctuaters (-1.52, p=.01) and Reverters (-1.68, p=.01) were more likely to be classified as CIND-S (72% and 74%, respectively). Conclusions: Reverting back to NC or fluctuating between cognitive statuses is partly a function of instability in CIND-S classifications. Moving forward, CIND classifications could be improved through careful consideration of CIND severity at initial assessment. In particular, those classified as CIND-M may represent an at-risk group most likely to exhibit progressive cognitive impairment.
FACTORS LEADING TO DISCONTINUOUS USE OF GOVERNMENT-SPONSORED LONG-TERM CARE 2.0 SERVICE PLAN IN TAIWAN
Authors: Chen Ya-Mei , Wu Shih-Cyuan 
Published: January 2025

Abstract
The Long-Term Care 2.0 (LTC 2.0) Plan, initiated in Taiwan in 2017, respectively, aimed to provide home- and community-based services (HCBS) for individuals in need. However, a significant proportion discontinued usage within six months, prompting an investigation into influencing factors. This study, analyzing LTC 2.0 data from 2018 to 2021 for older adults in two cities, tracked 59,151 service users for up to a year after their initial assessments through three application stages (assessment to service prescription, service utilization, and continuous service utilization for more than six months). Key factors affecting discontinuation included age, middle-low income family status, behavioral problems, informal caregivers, and foreign caregivers. Individuals with informal caregivers had a higher likelihood of obtaining service prescriptions (OR=1.82***) and utilizing LTC services (OR=1.33***), but were prone to discontinuing LTC 2.0 during continuous service utilization (OR=0.78***). Those with foreign caregivers were less likely to progress beyond the service utilization stage (OR=0.77***), but were inclined to maintain usage once started (OR=1.16***). Similarly, those aged over 85 and individuals with behavioral problems were less likely to progress beyond utilization but inclined to maintain usage (Age OR=1.22***; Behavioral problems OR= 1.14***). In contrast, individuals from middle-low income families were more likely to be prescribed and initiate usage but less likely to maintain it (OR= 0.77***). The presence of informal/foreign caregivers significantly influenced utilization status across these three stages, emphasizing the need for services development that address not only users’ needs but also the needs of both formal and informal caregivers.
INVESTIGATING WITHIN-PERSON MEDIATION OF GAIT-COGNITION ASSOCIATIONS IN A WALKING INTERVENTION FOR OLDER ADULTS
Authors: Tamburri Nicholas , McDowell Cynthia , Hundza Sandra , MacDonald Stuart 
Published: January 2025

Abstract

Objective
Between-person associations between gait and cognitive function are well-documented, with select interventions (e.g., exercise) known to benefit both physiological function and cognitive health. Comparatively few studies, however, have investigated links between within-person changes in gait and cognition in the context of exercise interventions, or the mechanisms that might underlie this relationship. Method: The current study employed data from the Healthy Bodies Healthy Minds study -- a longitudinal walking intervention for initially-sedentary older adults (N = 118, 65-87 years). The study employs an intensive repeated-measures design, with physiological and cognitive function indexed at 5 assessments: baseline, 6, 9, 12, and 16 weeks. Gait velocity was assessed using a GAITRite Computerized Walkway, executive functioning was measured via the Groton Maze Learning (GML) Test, with aerobic capacity indexed by converting performance on the Rockport 1-Mile Walk Test to a V02 max proxy.

Results
Employing longitudinal multilevel mediation (1-1-1) models, we explored the within-person relationship between gait velocity and executive functioning, with particular consideration of aerobic capacity as a mediator. The indirect effect (ab+σajbj=-0.25) was significant, with aerobic capacity mediating 14.5% of the within-person gait-cognition time-varying association. Consistent with hypotheses, increases in gait velocity were associated with increases in aerobic capacity, which, in turn, conferred downstream benefits on GML test performance. Conclusions: These results further our understanding of the gait-cognition relationship, identifying aerobic health as an important within-person mediator in the context of a walking intervention. Key implications include the potential benefits of simple lifestyle interventions for promoting cognitive health in older adults.
MEMORY ISSUES IN RETROSPECTIVE LIFE HISTORY SURVEYS: DO QUESTION TYPE AND TOPIC MATTER?
Authors: Qian Wenqing , Yu Wenshan , Ofstedal Mary Beth , Smith Jacqui , Larkina Marina , Sonnega Amanda 
Published: January 2025

Abstract
Collecting retrospective information from the older population is critical yet challenging, and especially in self-administered surveys. Older adults may have difficulty retrieving autobiographical memories, navigating skip patterns in mail surveys, or using the complex technology often required for web surveys. These factors may lead to potential data quality concerns. Our study investigates data quality in the Health and Retirement Study (HRS) Life History Mail Survey (LHMS: N = 14934), that asks people over age 50 about events and experiences during childhood and midlife. We investigate characteristics of survey items that are related to item-missingness. Items were coded on 4 dimensions: (1) format: whether it was part of a grid or not, (2) life period: childhood vs. midlife, (3) detail: semantic vs. episodic, and (4) topic: residence, education, work, partnership, health. Overall, the item missing rate (IMR) was low (7.8%). Grids had higher IMRs than non-grid items (14.2% vs 6.4%). Controlling for this, we found that the average IMR for midlife questions was higher than for those pertaining to childhood in non-grid formats (8.9% vs. 4.9%), but similar in grid formats (11.6% vs. 12.2%). Additionally, episodic questions had a higher IMR compared to semantic questions in grid formats (13.7% vs. 10.3%), but lower in non-grid formats (3.1% vs. 6.1%). Among the five sections, items related to work and health history exhibited higher IMRs for both grid and non-grid formats. We discuss the implications of these results for the design of self-administered surveys and for analyses based on data from the LHMS.