bluuebunny/crossref_metadata_2025_split huggingface dataset:
Association of Health Literacy and Numeracy With Lupus Knowledge and the Creation of the Lupus Knowledge Assessment Test
Authors: Maheswaranathan Mithu , Eudy Amanda M. , Barr Ann Cameron , Howe Catherine , Doss Jayanth , Sadun Rebecca E. , Criscione-Schreiber Lisa G. , Sun Kai , Perrin Eliana M. , Bailey Stacy C. , Hastings Susan N. , Clowse Megan E.B. , Rogers Jennifer L. 
Published: March 2022

Objective.Limited health literacy and numeracy are associated with worse patient-reported outcomes and higher disease activity in systemic lupus erythematosus (SLE), but which factors may mediate this association is unknown. We sought to determine the association of health literacy and numeracy with SLE knowledge.Methods.Patients with SLE were recruited from an academic center clinic. Participants completed validated assessments of health literacy (Newest Vital Sign [NVS]; n = 96) and numeracy (Numeracy Understanding in Medicine Instrument, Short Version [S-NUMI]; n = 85). They also completed the Lupus Knowledge Assessment Test (LKAT), which consists of 4 questions assessing SLE knowledge that were determined through consensus expert opinion for their wide applicability and importance related to self-management of the disease. Descriptive statistics and multivariable logistic regression modeling were used to analyze the results.Results.In our SLE cohort (n = 125), 33% (32/96) had limited health literacy and 76% (65/85) had limited numeracy. The majority correctly identified that hydroxychloroquine prevented SLE flares (91%); however, only 23% of participants correctly answered a numeracy question assessing which urine protein to creatinine (UPC) ratio was > 1000 mg/g. The mean LKAT score was 2.7 out of 4.0. Limited health literacy, but not numeracy, was associated with lower knowledge about SLE as measured by the LKAT, even after adjusting for education.Conclusion.Patients with SLE with limited health literacy had lower knowledge about SLE. The LKAT could be further refined and/or used as a screening tool to identify patients with knowledge gaps. Further work is needed to improve patients’ understanding of proteinuria and investigate whether literacy-sensitive education can improve care.
Central Obesity in Axial Spondyloarthritis: The Missing Link to Understanding Worse Outcomes in Women?
Authors: Maguire Sinead , Wilson Fiona , Gallagher Phil , O’Shea Finbar 
Published: March 2022

Objective.To determine (1) the prevalence of central obesity in axial spondyloarthritis (axSpA) and its effect on disease-related outcomes and (2) how this differs between sexes.Methods.Data were extracted from the Ankylosing Spondylitis Registry of Ireland. Patients with physical measurements for the calculation of anthropometric measures were included. BMI and waist-to-hip ratio (WHR) were used to compare classifications of obesity. Comparison analyses based on sex and central obesity were carried out. Multivariate analysis examined the effects of these factors on the following patient-reported outcomes: the Bath Ankylosing Spondylitis Disease Activity Index (BASDAI), the Bath Ankylosing Spondylitis Functional Index (BASFI), the Ankylosing Spondylitis Quality of Life (ASQoL) questionnaire, and the Health Assessment Questionnaire (HAQ).Results.In total, 753 patients were included in the analysis. Of these patients, 29.6% (n = 223) were classified as obese based on their BMI, and 41.3% (n = 311) were classified as centrally obese according to the WHR. The prevalence of central obesity was significantly higher among women with axSpA compared to men (71.6% vs 29.9%, P < 0.01). Central obesity had a clear effect on patient outcomes, regardless of sex. Presence of central obesity was associated with significantly worse BASFI scores (P < 0.01), HAQ scores (P < 0.01), and ASQoL questionnaire scores (P = 0.01), with a nonsignificant trend toward worse BASDAI scores (P = 0.07).Conclusion.There was a high prevalence of central obesity as assessed by the WHR in axSpA, most notably among women with axSpA. This modifiable comorbidity was significantly associated with worse quality of life, greater impairment of functional ability, and a trend toward worse disease activity. Regular use of the WHR to screen for central obesity as part of an axSpA assessment would provide an opportunity for prompt identification and intervention for at-risk patients.
Measurement Properties of the Polymyalgia Rheumatica Activity Score: A Systematic Literature Review
Authors: Bolhuis Thomas E. , Nizet Lizanne E.A. , Owen Claire , den Broeder Alfons A. , van den Ende Cornelia H.M. , van der Maas Aatke 
Published: March 2022

Objective.To perform a COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN)-based systematic literature review of measurement properties of the Polymyalgia Rheumatica Activity Score (PMR-AS).Methods.PubMed, EMBASE, and CINAHL were broadly searched. English full-text articles, with (quantitative) data on ≥ 5 patients with PMR using the PMR-AS were selected. Seven hypotheses for construct validity and 3 for responsiveness, concerning associations with erythrocyte sedimentation rate, physical function, quality of life, clinical disease states, ultrasound, and treatment response, were formulated. We assessed the structural validity, internal consistency, reliability, and measurement error, or the hypotheses on construct validity or responsiveness of the PMR-AS based on COSMIN criteria.Results.Out of the identified 26 articles that used the PMR-AS, we were able to use 12 articles. Structural validity, internal consistency, construct validity, and responsiveness were assessed in 1, 2, 8, and 3 articles, respectively. Insufficient evidence was found to confirm structural validity and internal consistency. No data were found on reliability or measurement error. Although 60% and 67% of hypotheses tested for construct validity and responsiveness, respectively, were confirmed, there was insufficient evidence to meet criteria for good measurement properties.Conclusion.While there is some promising evidence for construct validity and responsiveness of the PMR-AS, it is lacking for other properties and, overall, falls short of criteria for good measurement properties. Therefore, further research is needed to assess its role in clinical research and care.
Le droit de l’enfant à ses attachements
Authors: Rosenczveig Jean-Pierre 
Published: March 2022

Tout enfant est copropriétaire de sa filiation et doit voir ses affiliations prises en compte, ses attachements respectés. Quand consacrera-t-on le droit de l’enfant à son histoire ? Quand en arrivera-t-on à consacrer les responsabilités à l’égard de l’enfant plutôt que d’exercer le pouvoir sur l’enfant ? Répondre à ces questions suppose qu’enfin on considère véritablement l’enfant comme une personne
L’Allemagne après les élections de 2021
Authors: Stark Hans 
Published: March 2022

Les élections législatives allemandes de l’an dernier marquent une rupture de grande ampleur. Le recul des chrétiens-démocrates est historique et la coalition qui s’est mise en place, inédite. Dans quelle mesure les compromis entre les trois partis qui la composent seront-ils durables ? Du fait d’une divergence de vues sur l’Europe, dans quelle mesure la relation franco-allemande sera-t-elle affectée ?
La figure de l’homme providentiel
Authors: Garrigues Jean , Roussellier Nicolas 
Published: March 2022

L’histoire de France est riche d’« hommes providentiels » comme Napoléon Bonaparte ou Charles de Gaulle, qui se présentent comme extérieurs au « système ». C’est en partie la nostalgie d’un pouvoir exécutif fort. La présidentialisation du système politique, associée à l’affaiblissement des partis, conduit à valoriser une telle figure. Mais cette tendance est contrebalancée par l’aspiration croissante à une démocratie plus directe.
L’Église réformée par ses « périphéries »
Authors: Odinet François 
Published: March 2022

La prise de conscience de l’ampleur des abus de tous ordres commis au sein de l’Église catholique conduit à envisager une profonde réforme de celle-ci. Le processus synodal en cours peut y aider. À l’encontre de l’« entre soi », le pape François propose une « Église en sortie ». Cela ne fait que reprendre la manière de faire de Jésus qui va à la rencontre des « périphéries » de son peuple. Plusieurs lieux d’Église se mettent désormais à l’écoute de la voix des victimes, des plus pauvres ou des plus oubliés. Cela conduit à repenser l’organisation ministérielle de l’Église.
Une anthropologie de la figuration
Authors: Descola Philippe , Anger Violaine , Damour Franck 
Published: March 2022

Dans un nouveau livre majeur sur Les formes du visible , Philippe Descola propose différentes manières de figurer et d’habiter le monde à partir d’une approche classificatoire rigoureuse qui fait suite à son exposition « La fabrique des images » et qui constitue comme un prolongement de Par-delà nature et culture . Au cours de cet entretien, il s’explique sur son projet et notamment sur l’apport du christianisme au « naturalisme ».
The Scandal of Violent Death: Science, the State, and the War of Justifications in Coronavirus Public Policy
Authors: O’Connor Martin 
Published: March 2022

Sur la base d’un suivi d’articles d’actualité de janvier 2020 à novembre 2021, cet article propose une analyse des controverses autour des réponses des politiques publiques à la pandémie de SRAS-CoV-2. Il examine, principalement dans le contexte européen (et en s’appuyant sur The Irish Times et Le Monde comme sources d’information quotidiennes), les perceptions des vulnérabilités induites par le COVID-19 depuis le « confinement » de mars 2020, les rôles préconisés pour la science et la technologie (y compris les vaccins et la transformation numérique), la nature des dilemmes qui se posent dans différentes sphères, et la crise de légitimité de l’État moderne par rapport aux différentes notions de droits et libertés économiques, religieuses et civiles. Les sociétés européennes sont fracturées par un ensemble de lignes de faille qui séparent les formes consolidées et émergentes de « superpouvoirs » (l’État, Big Pharma, Big Data) des besoins et des désirs exprimés, à travers les protestations et les populismes, pour une myriade de « petites » libertés. Des suggestions sont formulées sur la manière dont les « déficits d’être » exprimés peuvent être interprétés en termes sociologiques, et abordés dans la politique de la « nouvelle normalité » de la vie avec le coronavirus. Note : Comme contribution au numéro thématique « Crise COVID-19 et démocratie en Europe » de L’Europe en formation, cet article aborde notamment les thèmes suivants signalés dans l’appel : la résilience des démocraties européennes face à la crise du COVID-19 ; la séparation des pouvoirs en circonstances de crise ; les mouvements populistes et la crise du COVID-19 ; l’impact de l’expertise scientifique sur l’élaboration des politiques.
Les Trois Mousquetaires ou le don réitéré du plaisir
Authors: Anselmini Julie , Schopp Claude 
Published: March 2022

Les Trois Mousquetaires – cette histoire de dons – est présenté par Dumas et donné aux lecteurs comme offrande . Mais celle-ci se réitère aussi et se rejoue chaque fois que l’œuvre, sous une forme ou sous une autre, est adaptée, retransmise, réactualisée et intégrée dans un nouveau circuit de sens. Dumas lui-même, en promouvant une vision de la littérature comme création collective et comme mythe, a relégué au second plan des notions littéraires telles que l’auteur unique, le génie, le caractère intouchable du texte. Ses conceptions et sa pratique généreuse proposent une autre approche de la littérature, offerte à tous les vents de la postérité et ouverte à des appropriations multiples, l’auteur premier (existe-t-il en définitive ?) dût-il se trouver dépossédé.
« Cette Estelle dont je vous parlerai peu était l’héroïne du roman dont je ne vous parlerai pas »
Authors: Solomon Nathalie 
Published: March 2022

Les réflexions contemporaines sur le programme narratif présentent le récit comme une promesse qui doit s’accomplir sous peine de décevoir un lecteur amené à formuler des hypothèses sur ce qu’il est en droit d’attendre. Les travaux sur la réception décrivent le processus narratif comme une forme de contrat plus ou moins respecté. Ce qui pose la question de la déception de celui à qui un récit promis est refusé, et celle du don – est-il ou non possible de raconter hors de cet accord tacite, le texte peut-il être pure gratuité, sans nécessité ni détermination ? La période romantique abonde en textes virtuels en marge de récits fondés et nécessaires.
« L’hôtesse parfaite » : Mrs Dalloway, le don et la fin du laissez-faire
Authors: Colesworthy Rebecca 
Published: March 2022

Cet article propose, en partant de la publication contemporaine en 1925 du célèbre roman de Viriginia Woolf, Mrs. Dalloway, et du texte phare de Marcel Mauss, L’Essai sur le don , de repenser les intersections historiques et conceptuelles entre la littérature moderniste anglo-américaine, le discours économique et les théories du vingtième siècle sur l'échange de dons. Il soutient que Mauss a conçu de manière unique ce que John Maynard Keynes a appelé la « fin du laissez-faire » en termes de changement dans notre pensée collective sur les dons et les échanges. Par sa caractérisation à la fois sympathique et critique de Clarissa Dalloway, Woolf ﬁgure ce changement en termes d'émergence d'une éthique féminine de l'hospitalité. En établissant en outre le rôle central de la littérature dans la promotion de cet ethos, elle anticipe également, tout en l'historicisant et en le genrant, le structuralisme de Lévi-Strauss, l'un des principaux héritiers de Mauss.
Comment les récits tissent nos vies
Authors: Robertson Fabien 
Published: March 2022

Pourquoi raconter des histoires ? Pourquoi relever certains événements plutôt que d’autres ? Et comment ? Le principe des récits les plus ordinaires et de révéler et de produire des liens, entre le présent et le passé, entre l’actuel et le possible, entre les vivants et les morts. Ainsi les histoires s’efforcent-elles de reprendre ce qui fut pour retisser l’expérience humaine. Mais si elles paraissent travailler à rebours, leur objet premier est de trouver les éléments nouveaux et imprévisibles de l’action humaine. Aussi sont-elles autant de dons, par lesquels la vie sociale se reprend et se relance.
Measuring Acuity and Pediatric Critical Care Nursing Workload by Using ICU CAMEO III
Authors: Connor Jean Anne , LaGrasta Christine , Cerrato Benjamin , Porter Courtney , Gauvreau Kimberly , Morrill Diana , Fortkiewicz Justine , Mechler Mallory , Donnellan Amy , Kaduc Alexandra , Whalen Ruby , Shields Ashlee , Bruno Michelle , Jarden Angela , Dey Anne , Hickey Patricia A. 
Published: March 2022

BackgroundThe Intensive Care Unit Complexity Assessment and Monitoring to Ensure Optimal Outcomes (ICU CAMEO III) acuity tool measures patient acuity in terms of the complexity of nursing cognitive workload.ObjectiveTo validate the ICU CAMEO III acuity tool in US children’s hospitals.MethodsUsing a convenience sample, 9 sites enrolled children admitted to pediatric intensive care units (ICUs). Descriptive statistics were used to summarize patient, nursing, and unit characteristics. Concurrent validity was evaluated by correlating the ICU CAMEO III with the Therapeutic Intervention Scoring System-Children (TISS-C) and the Pediatric Risk of Mortality III (PRISM III).ResultsPatients (N = 840) were enrolled from 15 units (7 cardiac and 8 mixed pediatric ICUs). The mean number of ICU beds was 23 (range, 12-34). Among the patients, 512 (61%) were diagnosed with cardiac and 328 (39%) with noncardiac conditions; 463 patients (55.1%) were admitted for medical reasons, and 377 patients (44.9%) were surgical. The ICU CAMEO III median score was 99 (range, 59-163). The ICU CAMEO complexity classification was determined for all 840 patients: 60 (7.1%) with level I complexity; 183 (21.8%) with level II; 201 (23.9%), level III; 267 (31.8%), level IV; and 129 (15.4%), level V. Strong correlation was found between ICU CAMEO III and both TISS-C (ρ = .822, P &lt; .001) and PRISM III (ρ = .607, P &lt; .001) scores, and between the CAMEO complexity classifications and the PRISM III categories (ρ = .575, P = .001).ConclusionThe ICU CAMEO III acuity tool and CAMEO complexity classifications are valid measures of patient acuity and nursing cognitive workload compared with PRISM III and TISS-C in academic children’s hospitals.
Relative Risk of Gastrointestinal Cancers in Isfahan County, Iran, 2005–2010
Authors: Ahmadipanah Vahid , Mahaki Behzad , Nasirian Maryam , Zamani Maryam , Hassanzadeh Akbar 
Published: March 2022

Background:
Spatial disease mapping is a widespread tool in ecological analysis to obtain accurate estimates for incidence, relative risks (RRs), prevalence, or mortality rates regarding to increase the incidence of gastrointestinal (GI) cancer in Isfahan in recent years. This study aimed to inspect the RR of GI cancer in Isfahan counties using empirical and full Bayesian model.

Materials and Methods:
Data of this ecological study were GI cancer cases which registered in health-care system of Isfahan University of Sciences during 2005–2010. We applied shared component model to model the spatial variation incidence rates of the GI cancers. We compared three models such as Gamma–Poisson, lognormal, and Besag, York, and Mollie (BYM) Bayesian. WinBUGS and GIS 10.1 software were used.

Results:
According to the fitted model, BYM model had best fit to the data. However, in general, ranks of RRs in most counties are identical; counties with higher RR in one map have higher RR in other maps. Geographical maps for three cancers in women were smoother than men. Isfahan has high RR in women, whereas this point is slightly different in men. Daran, FreidoonShahr, and Isfahan are cities which have high RR in esophagus, stomach, and colon cancer, respectively.

Conclusions:
Lognormal and BYM maps had very similar results. Despite some differences in estimation values, in nearly all maps arias Isfahan had high RR in GI cancer. It is recommended to promote the use of screening programs and increase awareness of people in high RR areas to reduce the incidence of GI cancer.
Comparison of Disease Profiles and Three-Month Outcomes of Patients with Neurological Disorders with and without COVID-19
Authors: Pillai Kanchana S. , Vibha Deepti , Gupta Pranjal , Sudheer Pachipala , Mishra Biswamohan , Oinam Rahul S. , Mohan Ayush , Tayade Kamalesh , Srivastava Padma , Tripathi Manjari , Srivastava Achal K. , Bhatia Rohit , Rajan Roopa , Pandit Awadh K. , Singh Rajesh K. , Elavarasi Arunmozhimaran , Agarwal Ayush , Gupta Anu , Das Animesh , Radhakrishnan Divya M. , Ramanujam Bhargavi , Soni Kapil D. , Aggarwal Richa , Wig Naveet , Trikha Anjan 
Published: March 2022

Objective:
Neurological emergencies saw a paradigm shift in approach during the coronavirus disease-2019 (COVID-19) pandemic with the challenge to manage patients with and without COVID-19. We aimed to compare the various neurological disorders and 3 months outcome in patients with and without SARS-CoV-2 infection.

Methods:
In an ambispective cohort study design, we enrolled patients with and without SARS CoV-2 infection coming to a medical emergency with neurological disorders between April 2020 and September 2020. Demographic, clinical, biochemical, and treatment details of these patients were collected and compared. Their outcomes, both in-hospital and at 3 months were assessed by the modified Rankin Scale (mRS).

Results:
Two thirty-five patients (235) were enrolled from emergency services with neurological disorders. Of them, 81 (34.5%) were COVID-19 positive. The mean (SD) age was 49.5 (17.3) years, and the majority of the patients were male (63.0%). The commonest neurological diagnosis was acute ischemic stroke (AIS) (43.0%). The in-hospital mortality was higher in the patients who were COVID-19 positive (COVID-19 positive: 29 (35.8%) versus COVID-19 negative: 12 (7.8%), P value: <0.001). The 3 months telephonic follow-up could be completed in 73.2% of the patients (142/194). Four (12.1%) deaths occurred on follow-up in the COVID-19 positive versus fifteen (13.8%) in the COVID-19 negative patients (P value: 1.00). The 3-month mRS was worse in the COVID-19 positive group (P value <0.001). However, this was driven by higher in-hospital morbidity and mortality in COVID-19 positive patients.

Conclusion:
Patients with neurological disorders presenting with COVID-19 infection had worse outcomes, including in-hospital and 3 months disability.
A Study on Physicians' Adherence to Joint National Committee Guidelines for Hypertension
Authors: Bhaskara Nagavaishnavi Venkata , Andra Ravi Kiran , Bhat Medha , Mithun Reddy K. K. , Shankar Ravi , Diwakar Amogh , Nadig Pratibha D. 
Published: March 2022

Background:
Increased blood pressure (BP) is the second leading risk factor for death and disability globally according to the Global Burden of Disease Study. Therefore, various guidelines have been issued. The American College of Cardiology/American Heart Association issued guidelines and Joint National Committee (JNC) 7 and JNC 8 guidelines, which were laid down by the JNC are a few guidelines for hypertension (HTN) management. Many countries have not implemented effective public policies to prevent and control HTN.

Objective:
The objective of this study was to assess the number of physicians' adherent to JNC 7, JNC 8, and AHA guidelines when prescribing medications to patients. In addition, the efficacy of the medications, trends in prescribing medications, and adverse drug reactions that a few patients presented with were assessed.

Materials and Methods:
A cross-sectional, questionnaire-based observational study was conducted on hospitalized hypertensive patients in a tertiary care hospital in South India. Data were collected on a detailed interview basis after receiving an informed consent based on a specific set of preformulated questions. The sample size was met, and the obtained data were analyzed appropriately using the SPSS software version 21. Results: Seventy two patients had diabetes and/or CKD along with hypertension out of 198 patients who participated in the study. Maximum number of prescriptions were adherant to JNC 8 and the least were observed with AHA guidelines. The blood pressure was more controlled in those patients where physicians were adherant to guidelines. The most commonly prescribed drugs were Calcium channel blockers followed by Angiotensin receptor blockers, beta blockers and ACEinhibitors. Adverse drug reactions were seen in only 5 patients

Conclusion:
The overall adherence to antihypertensive medications guidelines by physicians in India is only modest and much lesser when comorbidities are associated. There is a need to build awareness. Further the antihypertensive classes of medications currently recommended appear to be efficacious and safe.