bluuebunny/crossref_metadata_2025_split huggingface dataset:
PARTICIPANT EVALUATION OF A SOCIAL ENGAGEMENT PROGRAM FOR FAMILY CARE PARTNERS OF PERSONS WITH DEMENTIA
Authors: Baby Eliza , Lydon Elizabeth , Jones Sarah , Chen Xiayu , Mathias Vincent F , Rogers Wendy , Raj Minakshi , Mudar Raksha 
Published: January 2025

Abstract
Caregivers of persons with dementia (PwD) often experience increased social isolation, loneliness, and negative health outcomes. While support groups provide critical education and connection for care partners, there is less opportunity for engagement outside of the caregiving role. We developed and assessed the benefits of a technology-based social engagement program, CareEngage, designed to be convenient and accessible to older adult caregivers (60+ years) of a family member with dementia. Sixty-four older caregivers completed the intervention. Participants attended eight social engagement sessions over 4-6 weeks. During each session, participants met remotely via Zoom for casual, unmoderated conversations on various topics of interest. The topics were intentionally unrelated to caregiving and covered five categories: Arts and Culture; Life Experiences; Nature, Health, and Wellness; Recreation and Sports; and Science and Technology. Immediately following each session, participants completed a survey to assess self-reported enjoyment, engagement, and connection on a five-point scale in addition to providing an open-ended comment. Participants also completed a post-program survey to capture overall program satisfaction. A mixed methods approach was employed to assess post-session and post-program surveys. High scores were reported on enjoyment (mean = 4.41 ± 0.89), engagement (mean = 4.52 ± 0.78), and connection (mean = 4.44 ± 0.84). On the post-program survey, the majority reported they enjoyed the program (75%), and they would recommend it to others (72%). Findings suggest virtual social engagement opportunities may be beneficial for enhancing the social well-being of older care partners of PwD.
SEEKING SUPPORT FOR MENTAL HEALTH IN EAST ASIAN AMERICAN DEMENTIA CAREGIVERS: A GROUNDED THEORY STUDY
Authors: Ko Eunjung , Tate Judith , Wright Kathy , Rose Karen 
Published: January 2025

Abstract
Asian Americans in general are reluctant to seek mental health support. This can be detrimental to those who are also dementia caregivers. Unfortunately, Asian Americans and each subgroup in this population are underrepresented in dementia caregiving research. We explored help-seeking behaviors for mental health in East Asian American dementia caregivers using a qualitative analysis based on constructivist grounded theory. We conducted 60–90 minute interviews with each participant. Interviews were recorded and transcribed verbatim. To date, 16 participants have completed the interviews using purposive sampling. Thirteen were females, including 12 daughters and one daughter-in-law. Twelve were first-generation immigrants. The average caregiving duration was 40 months. We developed seven themes—“providing care,” “individual values,” “a need for support,” “seeking support,” “barriers to using support,” “benefits from support,” “living now and the future”—comprising 18 categories. While providing care, caregivers observed care recipient’s symptoms, experienced caregiving challenges, and encountered personal life events, leading them to need and seek help. Individual values of caregivers—cultural acceptance, faith, caregiving competence, dyadic connectedness—could influence how they perceive their situations. Caregivers then sought formal, informal, and self-support separately or in combination, albeit with several barriers to accessing support. Through the support, caregivers could achieve benefits (connecting, learning, relieving, reassuring). The benefits, along with individual values while providing care, could affect caregivers’ viewpoints on the present and future. These initial findings can provide researchers with valuable insights into the imperative need for focused research on Asian American communities and the development of strategies to bolster mental health support for this population.
SELF-CARE AND WELL-BEING INTERVENTIONS FOR FAMILY CAREGIVERS OF FRAIL OLDER ADULTS IN A RURAL CONTEXT
Authors: Yang Siqi , Cuevas Nicolas , Shelar Shatakshi , Lu Yu , Katare Bhagyashree , Lalani Nasreen 
Published: January 2025

Abstract
The rapid aging of the population and limited access to healthcare in rural communities pose significant challenges for caregivers caring for older family members suffering from serious chronic illnesses. The heavy burden of care and multiple responsibilities cause poor coping, self-care and wellbeing outcomes and therefore need interventions to promote their resilience and overall quality of life. Our systematic review aims to explore interventions available in the existing literature to promote the self-care and well-being of family caregivers of frail older adults residing in rural underserved areas. Arksey & O’Malley’s methodological framework of scoping studies was employed for the analysis. Databases such as PubMed and Scopus were used to search the articles. PRISMA and Covidence tools were followed to review and analyze the study. The CASP tool was used to examine the quality of the study and consensus was established among three research assistants and the advisor in the team. Our findings include 24 selected articles, with the majority of studies conducted in the U.S. (63%). Interventions were categorized into four groups as digital-web-based interventions (7), telehealth interventions (6), psychoeducational interventions (9), and other interventions (2). The most common outcomes observed across these interventions were increasing caregiver knowledge, self efficacy and reducing caregiver burden. Our review emphasizes the need for more research using community-engaged and culturally based approaches to promote the wellbeing and resilience of rural caregivers.
STRUCTURAL INFLUENCES ON WHY OLDER ASIAN IMMIGRANTS PROVIDE CARE FOR SPOUSES WITH DEMENTIA
Authors: Kim Julie , Lee Jung-Ah 
Published: January 2025

Abstract
Elder care and dementia caregiving studies on Asian immigrant families commonly cite cultural expectations, filial piety, and Confucianism as motivations for substantial reliance on informal caregivers such as adult children and children-in-law. Yet in Asian immigrant families of older adults with dementia, spouses assume primary caregiving roles as much as daughters and daughters-in-law do. This study moves beyond cultural arguments by exploring the influence of structural forces that leave caregiving responsibilities to spouses rather than adult children, or other caregivers, in Asian immigrant families of older adults with dementia. Data come from a larger dementia caregiver home-visit-based intervention study with bilingual and bicultural community health workers (CHW) visiting caregivers. The present study employs content analysis of CHW’s home visit logs with 14 Korean immigrant (10 wives) spousal caregivers and 18 Vietnamese immigrant (10 wives) spousal caregivers, both ethnic groups associated with strong cultural norms of filial piety. Detailed home visit logs contain observations of living arrangements and environments and recount conversations and events from each home visit, contextualizing the social and physical environments of caregivers and spouses with dementia. Findings show Asian immigrant spousal caregivers do not expect high levels of care support from their adult children, as assumed in cultural arguments. Instead, structural influences, such as ethnic enclaves and resources therein, the couples’ relative socioeconomic positions, access to institutional resources, and changing structures in family relationships, shape spousal caregiving arrangements and modify older immigrants’ expectations of adult children.
BLURRING BOUNDARIES: QUALITATIVE RESEARCH ON DIRECT CARE WORKERS’ EXPERIENCES
Authors: Pond Brittney 
Published: January 2025

Abstract
In the United States, there are 4.8 million direct care workers who provide care and services to older adults and people living with disabilities (PHI, 2023). Research suggests that direct care workers in home and community-based services occupy a unique role between family and non-family. In this poster, I discuss how direct care workers’ close relationships with their clients often led to blurring personal and professional boundaries that created challenges through semi-structured interviews with 43 (n=43) direct care workers providing care and services to older adults in the U.S. This research addresses two primary research questions: 1) what is the nature of work and relationships with clients for paid direct care workers? 2) how do direct care workers for non-family older adults navigate personal and professional boundaries? Through these interviews, I found that direct care workers unique roles within home care settings often caused challenges such as doing or feeling pressure to do additional labor on and off their shifts and hesitancy to be away from their clients. These findings support and expand upon existing literature that direct care workers often form close, reciprocal relationships with non-family clients and often participate in additional labor beyond their work requirements.
EXPLORING THE MEDIATION EFFECT OF SOCIAL SUPPORT ON CAREGIVERS’ PHYSICAL HEALTH FOR PERSONS WITH DEMENTIA
Authors: Cho Hannah , Huang Liming , Washington Karla , Oliver Debra Parker , Demiris George 
Published: January 2025

Abstract
In the U.S., over 11 million families provide 18 trillion hours of unpaid care yearly to Persons with Dementia (PwD). Families, often primary caregivers, face overwhelming stress and health decline due to caregiving demands and employment. This study examines how social support affects caregivers’ stress and physical health in hospice settings for caregivers of PwD. From September 2022 to February 2024 the parent study (n= 167) was assessed using the Medical Outcomes Survey and the Short-Form 12 Questionnaire. The correlation analysis revealed that social support is positively correlated with caregiving duration and negatively correlated with physical health in hospice care. Consequently, a path analysis was conducted to examine the impact of social support on the relationship between caregiving duration and physical health of caregivers of PwD during hospice care. We controlled for age and gender in regression. Preliminary results showed the mediation effect of social support is 0.12 (p =.12). The direct and total effects of caregiving duration on physical health are 0.04 (p = 0.9) and 0.16 (p =.58), respectively. The model is just identified with an RMSEA of 0 and a TLI and CFI of 1. Non-significant results imply that the mediation effect may not be a substantial component of the total effect or that with the sample size statistical power is not high enough to detect it. Given these findings, further investigation is needed, and the data should be re-run as the intervention is ongoing with the full dataset for more definitive insights.
EXPLORING USE OF COMMUNITY SUPPORT SERVICES BY BLACK FAMILY DEMENTIA CAREGIVERS: FACILITATORS AND BARRIERS
Authors: Johnson Florence , Robinson-Lane Sheria 
Published: January 2025

Abstract
In this qualitative study, we delve into the factors influencing community support services (CSS) utilization, including respite care and support groups. We conducted focus group discussions to uncover the barriers and facilitators that lead individuals to engage with or abstain from these services. Analyzing these factors will provide insights to enhance the effectiveness of CSS and its impact on the community. Our focus group involved six current or former Black family caregivers of persons with dementia (PWD). The virtual meeting, lasting approximately 1.5 hours, collected information on community support use, dementia care knowledge, and self-care practices. Transcriptions were thematically analyzed using the Rigorous and Accelerated Data Reduction (RaDAR) method—a team-based strategy to extract relevant data for specific project deliverables. Four key themes emerged to aid caregivers in managing their responsibilities: Education on Dementia Stages: Understanding different stages of dementia helps caregivers effectively manage challenging behaviors. Empowerment through Dementia Subtypes: Knowledge of various dementia subtypes enables caregivers to seek support groups for guidance. Respite Care Access: Learning about and accessing respite care prevents burnout and promotes well-being. Emotional Support: Addressing guilt provides emotional well-being for caregivers. As the older adult population grows, dementia caregiving becomes a critical public health issue. Family members caring for PWD in the community face significant challenges, emphasizing the importance of effective support services.
WHAT COMES AFTER BEING NAMED EMERGENCY CONTACT: EXPERIENCES OF CURRENT AND POTENTIAL SURROGATE DECISION-MAKERS
Authors: Berry-Stoelzle Maresi , Murray Sarah , Karr Daniel , Walkner Tammy , Alexander Bruce 
Published: January 2025

Abstract
Veterans have high rates of chronic health conditions than non-veterans. As their comorbidity progresses, recommended therapies are often more complex and may not contribute to the Veteran’s quality of life. During hospital admissions, a combination of medication and illness can result in the Veteran being unable to make decisions for themselves. Their designated Durable Power of Attorney (DPOA) or, if none is designated, the Emergency Contact/Next of Kin (EC/NoK) then makes these decisions. This mixed-methods study identified Veterans and their EC/NoK who had been hospitalized at a VAMC during the last year. Semi-structured interviews with EC/NoKs focused on identifying support needs, challenges of the health care system, perceptions of “goals of care” conversations, and the responsibilities of being a medical decision-maker. Questions were determined from prior literature on 1) experience of caregivers and 2) medical decision making for others. Four themes were identified via Consolidated Framework for Implementation Research: 1) when EC/NoK have higher social connections with the Veteran’s healthcare team, they report higher confidence and preparedness for their role; 2) most preparation consisted of conversations with the Veteran about terminal decisions, 3) EC/NoK with the highest self-report of preparedness reported previous experience with medical decision-making; 4) those whose self-reported lower confidence also reported higher levels of isolation and a lack of support in their caregiver role. These interviews with EC/NoK demonstrate opportunities to increase knowledge of medical decision-making and the opportunities to support EC/NoK’s in their role as DPOA’s within a healthcare system.
THE RELATIONSHIP BETWEEN DYADIC COPING AND INTIMACY OF PATIENTS WITH STROKE AND SPOUSES: A DYADIC APPROACH
Authors: Liu Xiaohui , Liang Nana , Du Xuan , Gao Haihua , Yang Xiaoping , Wang Huijuan , Yuan Jialin 
Published: January 2025

Abstract
Most studies have focused on coping in middle-aged and elderly stroke patients and spouses in isolation. However, marital intimacy is more prominent when middle-aged and elderly stroke patients and spouses are coping with the disease together. This study conducted from December 2020 to July 2021,included 203 stroke patients and their spousal caregivers. They completed the General Data Questionnaire, Dyadic Coping Inventory, the Quality of Relationship Index. Data was analyzed using SPSS 26.0 and Amos 22.0, including descriptive statistics, paired t test, Pearson correlation analysis. And this research used actor-partner interdependence mediation model to explore the relationship of intimacy, among stroke patients and their spousal caregivers.The actor-partner interdependence model revealed actor effects of stress communication, supportive coping, delegated coping.and common coping on intimacy for both patients and their spouses(β =0.572; β = 0.500; β=1.283; β = 0.665, p &lt; 0.05). There were no similar partner effects (p &gt; 0.05). Although patients’ stress communication had a partner effect on spouses intimacy (β = 0.221, p &lt; 0.05), spouses had no similar partner intimacy effect (p &gt;0.05). There were actor and partner effects of negative dyadic coping on intimacy for both patients and their spouses(β = -0.587; β = -0.206, p &lt; 0.05).Our results describe the middle-aged and elderly patients and their spouses as an interactional unit in which positive dyadic coping supports a satisfactory relationship. This study highlights the need for couple-based interventions, including strategies combined with individual and dyadic therapy for both partners.
LONGITUDINAL CHANGES IN ALCOHOL USE ACROSS 20 YEARS: A DAILY DIARY STUDY
Authors: Miller Sara , Almeida David 
Published: January 2025

Abstract
Longitudinal studies often identify declines in alcohol consumption with aging. However, drinking trajectories may vary across alcohol use indicators and person-level characteristics. The current study utilized three bursts of daily diary surveys from the National Study of Daily Experiences to examine changes in alcohol consumption across 20 years among a sample of adults aged 24 to 81. Participants (N=1,429; Mage=49.9) completed 2+ bursts of 8-day telephone diary interviews. Outcome measures included burst-level abstaining, drinking frequency, frequency of exceeding guidelines of the National Institute on Alcohol Abuse and Alcoholism (1+/2+ drinks for females/males), and average drinking quantity (i.e., number of drinks on drinking days). Moderating variables included baseline age, biological sex (1=Male), education (1=Less than high school to 5=Graduate school), and perceived physical health (1=Poor to 5=Excellent). Multilevel linear and logistic regression analyses revealed that alcohol use quantity declined over time, while frequency of drinking, frequency of exceeding guidelines, and likelihood of alcohol abstention were stable, adjusting for baseline sociodemographic, health behavior, psychosocial, and health characteristics. There were also individual differences in drinking trajectories. Older age was associated with drinking more frequently and consuming fewer drinks per occasion at baseline as well as stronger declines in most alcohol use indicators across time. Furthermore, graduate education was linked with increasing drinking frequency, while male sex and poorer physical health were associated with stronger declines in drinking quantity. Future studies should evaluate mechanisms of age-related declines in alcohol use and examine contributing factors of individual differences in alcohol use trajectories across adulthood.
ANALYSIS OF DIFFERENCE OF FOOT PLANTAR PRESSURE IN OLDER WOMEN WITH DIFFERENT BONE MINERAL DENSITY LEVELS
Authors: Liu Min , Chen Gong , Wang Dongmin , Kang Ning 
Published: January 2025

Abstract

Objectives
To explore the characteristics of foot plantar pressures in the older women with different bone mineral density levels.

Methods
50 older women (68.84 ± 3.73 yr) were recruited from one community in Beijing, China. T value of the bone mineral density and average force of 10 plantar partitions (toe 1, toe 2-5, metatarsal 1, metatarsal 2 and metatarsal 3, metatarsal 4, metatarsal 5, midfoot, medial heel, and lateral heel) in two feet were tested. Taking the median of T value, the participants were divided into low and high bone mineral density group (L group: N = 27, T = -3.43 ± 0.80, 68.62 ± 3.42 yr; H group: N = 23, T = -1.37 ± 0.68, 69.09 ± 4.12 yr). Independent T test was used to analyze the difference of foot plantar pressures between two groups.

Results
(1) The average force of toe 1 on the dominant side in the L group was significantly lower than that in the H group (t = -2.161, p = 0.036). (2) The average force of metatarsal 5 on the dominant side and that of metatarsal 1 on the non-dominant side were significantly higher than that in the H group (t = 2.413, p = 0.020; t = 2.182, p = 0.034). Conclusions: The difference of average force in the older women with different bone mineral density levels was greater on the dominant side than that on the non-dominant side, and greater on the forefoot than that on the arch and heel.
APPLYING A SALUTOGENIC MODEL TO EXPLORE RESOURCES UTILIZATION IN OLDER ADULTS WITH PREDIABETES: A QUALITATIVE STUDY
Authors: Liu Yaqian , Leung Angela , Montayre Jed 
Published: January 2025

Abstract

Background
Older adults with pre-diabetes face unique health challenges, including limited awareness and resources for disease management. The Salutogenic model of Health focuses on identifying and utilising available resistance resources surrounding people to cope with tension created by stressors. This approach is crucial for this vulnerable population addressing both prevention and effective management of pre-diabetes.

Objectives
To explore pre-diabetes population’s experience towards receiving diabetes risk information, and what available resources employed to cope with stressful pre-diabetes situation.

Methods
This descriptive phenomenological qualitative study using six-step inductive thematic analysis was conducted in Hong Kong. Individual in-depth semi-structured interview guided by Salutogenic model were conducted to explore the experience of coping with prediabetes through the lens of sense of coherence (comprehensibility, manageability, meaningfulness), available resources and their utilization. Purposive sampling was used to select adults above 65 years diagnosed with pre-diabetes.

Results
The study revealed that older adults with pre-diabetes primarily leverage personal resilience, community support, and healthcare guidance as coping resources. Comprehensibility was enhanced through tailored health education, enabling participants to grasp their condition’s implications. Manageability was facilitated by accessible healthcare services and social support networks, aiding in lifestyle adjustments. Meaningfulness emerged as participants perceived their proactive health behaviors as future investments. Despite varying levels of resource accessibility, a common thread was the pursuit of a balanced, informed approach to pre-diabetes management.

Conclusion
This study provided resource map and coping mechanisms of pre-diabetic population in Hong Kong. This informs the development of a Resources-Oriented Salutogenic intervention tailored to prediabetes population.