bluuebunny/crossref_metadata_2025_split huggingface dataset:
EXPLORING AI FOR DEMENTIA CARE SUPPORT IN NORTHERN ONTARIO: A LITERATURE REVIEW
Authors: Shrestha Hom , Shrestha Lucy 
Published: January 2025

Abstract
Dementia is the seventh leading cause of death globally, significantly impairs cognitive abilities and memory loss. Artificial intelligence (AI) has the potential to revolutionize dementia care by assisting healthcare professionals in diagnosing, managing, and treating dementia worldwide. We conducted literature review using Google Scholar, PubMed, and Laurentian libraries (OMNI), focusing on key terms such as “dementia,” “Alzheimer’s disease,” “artificial intelligence,” and “healthcare.” This review covered peer-reviewed publications from 2014 to 2023, aiming to fill gaps in this research area. The search yielded five relevant articles, identifying three core themes: AI’s impact on Alzheimer’s disease and related dementias (ADRD), early detection and diagnosis of ADRD, and AI’s role in supporting healthcare professionals, caregivers, and patients. Zhang et al. (2023) emphasized AI’s role in diagnosing Alzheimer’s disease using MRI, PET scans, biomarkers, and advanced machine learning applications. Hane et al. (2020) highlighted the use of machine learning models for assessing ADRD risk by analyzing clinical notes to prevent nursing home admissions and reduce care costs. Xie et al. (2020) explored the use of assistive AI devices by caregivers to manage ADRD, reducing patient dependence. Li et al. (2020) focused on voice-activated AI tools that help caregivers manage nutrition and reduce their workload. Gustavsson, Svanberg, and Mullersdorf (2015) examined the benefits of the interactive robotic “Justo Cat” in enhancing communication in dementia care. This review suggests conducting ethnographic participatory focused-groups with thematic analysis to inform policymakers in developing specialized educational programs, integrating advanced AI, expanding digital health and telemedicine, and launching community-driven initiatives.
“[CERVICAL CANCER], NOT AT THIS AGE…”: TREATMENT EXPERIENCES OF OLDER WOMEN WITH ADVANCED CERVICAL CANCER
Authors: Chidebe Runcie , Okoye Ifeoma 
Published: January 2025

Abstract

Background
Cervical cancer (CC) is 90% preventable with the HPV vaccine against sub-types 16 and 18, yet an estimated 21 women die every day from CC, and 7,968 die annually in Nigeria. Most of the women diagnosed with CC are older women, yet the gerontological aspect of CC among this population is largely scarce. Older women living with CC are at risk of undertreatment and are most likely to report the worst prognosis. This phenomenological study is aimed at understanding the treatment experiences of older women living with stage IV CC and their meaning-making of this incurable disease.

Method
Using interpretive phenomenological analysis (IPA), 16 older women (50 – 85 years) with advanced CC were recruited. Data was collected through semi-structured interviews, and the six steps of IPA were used for analysis.

Results
Four identified themes: “[cervical cancer], not at this age, not at any age anyway but at this age to me is even worse”, “He [the doctor] talked about surgery but because of my age, surgery was moved out”, “There is a need for support and to be loved” and “When someone’s [cancer] is palliative, take it as palliative, when it is critical treat it as such. Don’t treat palliative and leave critical aside”.

Conclusion
This study provided a gerontological insight into the lived experiences of these older women. As the world is working to eliminate cervical cancer with the human papillomavirus vaccine, older women who already have advanced cervical cancer should not be forgotten.
EXPERIENCES WITH PARATRANSIT USE AMONG OLDER ADULTS LIVING WITH DISABILITY
Authors: Fique Morgan , Mathis Lindsey , Castilo Andrea Melgar , Twardzik Erica , Falvey Jason , Cooper-Williams Jasmine 
Published: January 2025

Abstract
Public transportation agencies are required to offer paratransit services to individuals near fixed routes, but structural barriers to use (e.g., delays in rides) may disproportionately impact older adults. This is important, as nearly 10% of urban-dwelling older adults use public transportation, many to get medical care. However, how older users interact with, benefit from, or experience barriers related to paratransit services is unclear. We completed 12 semi-structured interviews with paratransit users aged 55 and older in the Baltimore area and analyzed the transcripts using inductive thematic analysis. Two independent researchers coded each transcript. Six main themes emerged: 1) Paratransit services help older adults maintain independence and reduce social isolation by improving access to healthcare and social engagement; 2) Ableist interactions with paratransit staff and access to working equipment (e.g., wheelchair lifts) were negative determinants of paratransit use experiences; 3) Inefficiency of the service, eligibility process, and recertification process place high burdens on older riders; 4) Paratransit frequently fails to meet needs of older disabled riders who experience cognitive impairment, sensory impairment, and/or mobility device use; 5) Built and social environment factors such as sidewalk quality, weather, and crime exposure increase the burden on older riders; and 6) Formal and informal social supports are critical for older adult paratransit use. The themes identified revealed critical gaps in current paratransit systems. These findings are crucial for guiding efforts to reshape policies and practices. By addressing these barriers, we can work towards improving service inefficiencies, eliminating ableism, and better supporting older disabled riders.
SUPPORTING AGING THROUGH HOUSING CHOICE: A DISCUSSION TOOL FOR COLLABORATION TOWARD LOCAL SOLUTIONS
Authors: Berlinger Nancy 
Published: January 2025

Abstract
This abstract concerns applied research and new open-access publications that will include piloting data from late September 2024, hence its submission as late-breaking research. This paper will present a discussion tool to support local discussion and collaboration to meet the housing needs of moderate-income older Americans. It has been informed by insights from national and regional aging and policy audiences and reflects findings from a mixed-methods study presented at GSA in 2022 concerning pandemic-era innovations that held promise for policy and practice concerning housing equity for older adults. Research shows that the vast “missing middle” population of older adults who do not qualify for housing subsidies and cannot afford market solutions geared to wealthy individuals struggles to pay for both housing and care. Within the national shortage of affordable housing, there is a shortage of housing that meets the needs of this population: housing that is affordable, accessible or adaptable, and a good fit for an aging person’s needs. This paper will share a slide-deck format tool and other resources that offer ways to explain housing needs, clarify realistic options, anticipate challenges, analyze and share success stories, and encourage productive collaboration among local policymakers, community members, housing developers, service providers, and other participants.
THE GROWING DEMAND FOR AGE-FRIENDLY CARE AND UNDERSERVED OLDER ADULTS IN THE HEALTH CARE SYSTEM
Authors: Terveer Katy 
Published: January 2025

Abstract
This session will present on the challenges and opportunities to re-think our health care system based on the latest findings from “Meeting the Growing Demand for Age-Friendly Care: Health Care at a Crossroads,” a study released by Age Wave and The John A. Hartford Foundation. We will explore the experiences and pain points of older adults, particularly those underserved, in today’s health care system based on a recently conducted survey with over 2,500 older adults ages 65+. We will identify key findings for those who are the least satisfied with their health care, namely, those with low financial resources, women, rural older adults, and Black and Hispanic older adults. We’ll summarize the key recommendations from the report for transforming health care systems to support longer healthspans and greater well-being as we age.
IMPLEMENTATION STUDY OF THE USE OF A BLOOD BIOMARKER TEST IN ALZHEIMER’S DISEASE: CLINICIAN SURVEY FROM QUIP II STUDY
Authors: Monane Mark , Carlile Robert , Johnson Kim , Gitelman Darren , VandeVrede Lawren , Jacobs Leslie , Braunstein Joel 
Published: January 2025

Abstract
Recent studies have shown that commercially available, high-performing blood biomarkers (BBMs) for Alzheimer’s disease (AD) pathology represent accurate, accessible, acceptable, and equitable tools to aid health care providers (HCPs) in the evaluation of their patients with signs or symptoms of mild cognitive impairment (MCI) or dementia. However, implementation of AD BBM tests into the clinical care pathway has not been extensively evaluated. The objective of this study was to assess the incorporation of the multi-analyte blood biomarker PrecivityAD2™ test (C2N Diagnostics, LLC, St. Louis, MO) into the clinical workflow of specialty clinics. A total of 203 patients (average age 74 years) evaluated by 12 HCPs (neurologists, geriatricians, geriatric psychiatrists, and others) representing 8 outpatient sites were included as part of the real-world QUIP II Study (NCT06025877). A five-item, end-of-study survey was developed and conducted using The Technology Acceptance Model (David, 1989) and included two constructs: perceived usefulness and perceived ease of use of this BBM test. HCP-reported acceptance scores averaged 9.6 (median 10, range 7-10): contribution to clinical decision-making and ease of understanding test results received the highest ratings. The net promoter score was 75, above the benchmark of 50 associated with excellent customer satisfaction (Qualtrics, 2024). Given recent guidelines and workshop recommendations highlighting the use of AD BBM tests in clinical care, we believe these survey data provide evidence of robust usefulness and acceptance of this BBM test, supporting its incorporation into the clinical care pathway to help HCPs rule in and rule out AD in cognitively symptomatic patients.
IMPROVING CARE THROUGH IMPROV: RESULTS OF A PILOT TEST WITH FAMILY AND FRIENDS OF PERSONS LIVING WITH DEMENTIA
Authors: Kemp Candace , Morgan Jennifer , Anglin Emerald , Greene Celeste , Williams Crystal , Williams Amanda 
Published: January 2025

Abstract
Evidence suggests that the use of improvisational (improv) theatre techniques in the dementia care context can have positive outcomes for care partners, persons living with dementia, and care relationships. We refined and pilot tested the feasibility, acceptability, and preliminary efficacy of the training program, “Improving Care through Improv,” which incorporates improv fundamentals with practical dementia care knowledge, among family and friends of persons living with moderate dementia. We used multiple methods to assess the program, including a no-control pre-post design trial involving surveys and focus groups. Participants received in-person training co-designed and co-led by an improv educator and a gerontologist during weekly 2-hour group sessions held over a 4-week period. We assessed the primary outcome (caregiver mastery) and exploratory outcomes (perceived stress, anxiety, caregiver burden, perceived ability to manage behaviors, and care recipient’s quality of life) at baseline; upon program completion, and 3 months post baseline. Forty care partners participated in the intervention, completed all three surveys, and participated in focus groups. Recruitment, enrollment, and completion rates alongside quantitative and qualitative findings indicate high levels of feasibility and acceptability. Dependent sample t-tests between times 1 and 3 showed significant improvement in caregiver mastery and significant reductions in perceived stress and depression. Participants characterized the program as “needed” and “very helpful.” Three months post baseline, 100% reported using the skills taught, with most saying that they used them “frequently” or “nearly always.” Findings demonstrate improv’s promise for improving dementia care experiences, illuminate areas for refinement and application, and support further testing.
LIVE AND DIE WITH DIGNITY: ALASKA NATIVE PERSPECTIVES AND EXPERIENCES ON DEMENTIA CAREGIVING AND FAMILY STIGMA
Authors: Kim Steffi , Lewis Jordan , Rebadulla Hannah , Thompson Lena , Demir Murat , Alejo Prince Iverson , Hilderbrand Zoey 
Published: January 2025

Abstract
Family stigma (FS), referring to experiences of stigma by association, is the consequence of stigmatizing beliefs and attitudes. This study assessed FS among Alaska Native (AN) Alzheimer’s disease and related dementias (ADRD) caregivers spanning three domains: caregiver, layperson, and structural stigma. Stigma can prevent caregivers from seeking a diagnosis, treatment, or support services. Caregivers report limited knowledge of the disease, little engagement with support and resources, and social isolation. This pilot study used a mixed methods approach to outline ADRD-related stigma and its impact AN caregivers’ quality of life. Semi-structured 60-90-minute interviews guided by the adapted Family Stigma – Alzheimer’s Disease scale were conducted with thirteen female AN ADRD caregivers across Alaska. The caregiver’s mean age was 62, with an average of seven years of caregiving. Descriptive statistics were used to report the quantity and frequency of reported experiences of stigma. Qualitative inquiries allowed for the exploration of in-depth cultural context. Interviews were analyzed using deductive and inductive content analysis. Caregivers identified several sources of FS. Layperson and structural stigma items were endorsed most often. Caregiver stigma detailed that limited support results in high levels of distress and experiences of depression. Cultural values such as caring for the Elders were protective and led to family and community involvement in giving care. Stigma reduced AN ADRD caregiver’s quality of life in the areas of family cohesion, limited participation in social events, and impacted professional engagement negatively. This study can inform future work to decrease the stigma associated with AN ADRD.
DISCRIMINATION ACROSS THE LIFE COURSE OF OLDER LONG-TERM RESIDENTS IN KOREA
Authors: Kim Jasmyn , Heo Jinmoo 
Published: January 2025

Abstract
Despite being one of the world’s most homogenous nations, South Korea’s (hereafter Korea) international population has grown significantly over the past few decades. As of 2022, approximately 2.5 million foreign citizens reside in Korea, comprising 5% of the total population and contributing to its evolving identity as a multicultural society. This demographic shift parallels Korea’s rapid socio-economic growth. However, foreign residents often encounter substantial challenges due to the persistent notion of a unified racial, ethnic, and cultural identity in Korean society, which can lead to cultural differences, social exclusion, stereotypes, and discrimination against those considered ‘others.’ The current qualitative case study explores the experiences of older long-term foreign residents from Western countries, focusing on discrimination across the life course. In-depth interviews were conducted with older international adults (mean age: 64.5) who had resided in Korea for over 3 years. Key findings revealed that despite experiencing alienation and exclusion from mainstream society, participants highlighted the importance of establishing social connections within both expatriate and local communities and reported a sense of belonging fostered through intercultural exchange, personal relationships and professional achievements. Although there is a growing emphasis on multiculturalism, prevailing cultural norms often hinder the complete integration of foreign residents into Korean society. This research sheds light on the complex power dynamics of ethnicity, social status, and discrimination, highlighting the need for more inclusive policies to better incorporate foreign residents in an increasingly globalized society.
LGBTQ-RELATED NEGATIVE LIFE EVENTS AND COGNITION: THE ROLE OF SLEEP, MENTAL DISTRESS AND UNSUPPORTIVE FAMILY
Authors: McKay Tara , Prasad Anyah 
Published: January 2025

Abstract
LGBTQ+ older adults are at increased risk of poor cognition. Using data from the LGBTQ+ Social Networks, Aging and Policy Study (QSNAPS, N=1,202), a unique panel study of 50-76 year old LGBTQ+ adults, and employing Structural Equation Modelling (SEM), we examine the association of LGBTQ-related negative life events (NLEs) with cognitive difficulty. We test whether the effect of NLEs on cognition is mediated by sleep quality or mental distress and whether it is exacerbated by the presence of unsupportive family members. About 20% of respondents report past year experiences of discrimination, harassment and/or violence and 40% report any cognitive difficulty. The association of NLEs with cognitive difficulty (e.g., trouble remembering names) is fully mediated by trouble falling asleep and mental distress (OR=1.21); NLEs increased trouble falling asleep (OR=1.96, p&lt; 0.000), poorer sleep increased the likelihood of severe mental distress (OR=1.32, p&lt; 0.000) and cognitive difficulty (OR=1.09, p&lt;.001), and mental distress increased the odds of cognitive difficulty (OR=2.06, p&lt; 0.001). The presence of unsupportive family members moderates the effect of NLEs on mental distress (main effect: OR=1.15, p=0.67; interaction effect: OR=2.86, p=0.009). The mediation effect of mental distress for the association between NLEs and cognitive difficulty for those with unsupportive family (OR=2.36) is greater than for those with no unsupportive family (OR=1.11). LGBTQ+ adults, especially those with unsupportive family, are at increased risk of cognitive impairment in later life. Interventions to support mental wellbeing, sleep hygiene, and affirmation of LGBTQ+ family members across the life course are critical to achieving health equity in aging.
THE INFLUENCE OF DISCRIMINATION ON GAY AND LESBIAN SPOUSAL DEMENTIA CAREGIVERS
Authors: Calasanti Toni , de Vries Brian 
Published: January 2025

Abstract
Most research has speculated that discrimination would influence the experiences of gay and lesbian spousal caregivers (e.g., Fredriksen-Goldsen, et al, 2016), but to date little research has revealed the actual impacts of discrimination and where and how it matters. The present study of 13 gay and 16 lesbian spousal dementia caregivers finds that both past experiences and present discrimination influence how they give care. On the one hand, past experiences of discrimination have taught these caregivers to be cautious, even when they have been out for many years and even when they live in what are typically considered to be supportive areas. Further, and even though many respondents reported no accounts of discrimination presently, some reported discriminatory experiences with social service or medical providers; and one gay husband had experienced violence in a care setting. At the same time, and what is less documented, are the ways that our respondents feel that what they learned to do to respond to discrimination prepared them for the challenges of spousal dementia care. This included all that lesbians and gay men faced during the HIV/AIDs epidemic. Having been “othered,” they feel they are more empathetic and sensitive to the stigma that comes with cognitive decline; they have greater self-reliance borne of the struggle with HIV/AIDs or in the face of estrangement from families or broader society; and they rely upon the resources provided by their communities. These results highlight areas both for subsequent novel research and interventions to support same-sex spousal dementia caregivers.
INVESTIGATING HEALTHCARE ACCESS DISPARITIES IN MINNESOTA THROUGH GIS ANALYSIS
Authors: Jang Woo , Krull Drew , Lee Seonhwa , Silverstein Merril 
Published: January 2025

Abstract
According to the 2020 report on population projections from the Minnesota State Demographic Center, older residents aged 85 and above are expected to more than double within the next 35 years. The report also highlights that in 2033, 32% of rural counties will experience a higher proportion of residents aged 65 years and older than 19% for urban counties. With the expected increase in the older population, the demand for healthcare services in rural areas will substantially rise. However, healthcare facilities are more dispersed in rural areas. Despite several accounts pointing to healthcare-deprived areas or the differential geographic presence of healthcare resources in recent years, GIS-based analysis in this area remains limited. To address this gap, our study utilizes data from the 2020 Census to assess various socio-demographic and economic factors shaping healthcare access inequalities for individuals aged 65 years and older in Minnesota. Employing GIS techniques, we identify unique spatial patterns and associated social factors contributing to healthcare access disparities. Our results visualize detailed maps highlighting areas facing challenges in accessing healthcare services and low-access populations across Minnesota. This study provides insights into understanding the spatial and social determinants of healthcare disparities, which assist policymakers and healthcare professionals to allocate resources more efficiently and address the unique needs of the target group.
MARITAL STATUS AND VASCULAR EVENTS IN A DIVERSE NORTHERN MANHATTAN COHORT
Authors: Gao Courtney , Roberts Jackson , Rundek Tatjana , Elkind Mitchell , Gardener Hannah , Gutierrez Jose 
Published: January 2025

Abstract

Background
Studies have shown that marital status is related to vascular outcomes but with potential variation by race/ethnicity. It remains unclear whether these associations occur in predominantly Hispanic populations.

Methods
In the Northern Manhattan Study prospective cohort, we assessed participants ≥40 years and stroke-free at baseline. We categorized participants as married or unmarried, a group subdivided into divorced/separated, widowed, or single. We used adjusted hazard models to relate marital status to myocardial infarction (MI), stroke, vascular death, and all-cause death.

Results
Of 2865 participants (53% Hispanic, mean 69 ±10 years), 32% were married, 16% were single, 28% were widowed, and 25% were divorced/separated. During a mean follow-up time of 15 years (IQR 3-28),14% had a stroke, 8% had an MI, and 68% died. Unmarried participants had a higher risk of any vascular event (aHR, 1.20 [95% CI, 1.04-1.39]) and all-cause death (aHR, 1.14 [95% CI, 1.02-1.28]) compared to married participants. The direction of the hazard ratios for stroke (aHR, 1.06 [95% CI, 0.83-1.35]) and MI (aHR, 1.11 [95% CI, 0.81-1.51]) was consistent with an increased risk. Divorced/separated participants had a higher risk of vascular events (aHR, 1.35 [95% CI, 1.14-1.61], vascular death (aHR, 1.29 [95% CI, 1.05-1.59]), and all-cause death (aHR, 1.21 [1.06-1.39]) compared to married participants.

Conclusion
In a predominantly Hispanic cohort, unmarried participants had a higher risk of vascular events and all-cause death. Future studies should explore the impact of risk stratification of patients based on marital status and provision of support to patients undergoing marital transition.