bluuebunny/crossref_metadata_2025_split huggingface dataset:
MAPPING BARRIERS AND FACILITATORS OF ACCESS TO HEARING HEALTHCARE RESOURCES TO THE COM-B FRAMEWORK
Authors: Schutte Debra , Templin Thomas , Schutte Brian 
Published: December 2022

Abstract
Age-related hearing impairment (ARHI) affects 20-40% of older adults. However, many people with hearing impairment fail to seek professional evaluation and treatment, delay seeking treatment, or abandon treatment. The purpose of this study was to identify barriers and facilitators of access to hearing healthcare resources in a rural setting and to characterize these barriers within the COM-B (capability, motivation, and opportunity) framework. Survey packets were handed out following services at a rural community church; 72 completed surveys were returned. The mean age of participants was 54.4 years. Thirty-one percent of respondents reported moderate to severe hearing impairment; of these individuals, 7 (31%) were currently using a hearing aid. Rates of hearing protection use fell below the Healthy People 2020 target of 53% across occupational and leisure noise exposure. Forty-eight percent (N=34) of participants had never had their hearing tested as an adult. Overall perceived barriers were significantly correlated with age (r= .260, P = .034) and perceived hearing loss (r=-.277, P= .025). Barriers were identified across all domains and subdomains of the COM-B framework. Barriers clustered in the reflective motivation domain, in which participants undervalue the significance of hearing loss. Barriers also clustered within the social and physical opportunity domains, suggesting a lack of access to providers and an undervaluation of hearing loss by others (family and health care providers). These findings provide evidence regarding the accessibility of hearing healthcare services in rural settings and will serve as a foundation for the design of a community-tailored hearing health intervention.
UNEQUAL LOSS: DISPARITIES IN RELATIONAL PROXIMITY TO A COVID-19 DEATH AMONG US OLDER ADULTS
Authors: Riley Alicia 
Published: December 2022

Abstract
The COVID-19 pandemic has devastated communities of color in the U.S. at disproportionate rates. Racial-ethnic and language disparities in COVID grief may be even more extreme than those in individual mortality. We drew on the National Social Health and Aging Project (NSHAP) COVID Study, a supplement to the nationally-representative longitudinal survey. The analytic sample consisted of 2,554 community-dwelling older adults in the U.S. interviewed between September 2020 and January 2021. We used descriptive analysis to evaluate disparities by race/ethnicity/language subgroups in relational proximity to a COVID-19 death (aquaintaince &lt; friend/family member &lt; household member &lt; spouse) and multiple logistic regression to evaluate disparities in experiencing at least one COVID-19 death in one’s social network. English-speaking, Non-Hispanic Black and Latino older adults were over-represented in every category of proximity to a COVID-19 death, but overrepresentation in proximity to a COVID-19 death was greatest among Spanish-speakers of any race. Although Spanish-speaking respondents were only 4.6% of the full sample, half of the respondents who lost a spouse to COVID-19 were Spanish-speakers. Disparities by language and race/ethnicity persisted even with the inclusion of controls for age, sex, marital status, education, and nativity. The most extreme disparities in closeness to COVID-19 death were experienced by Spanish-speakers of any race/ethnicity. It is unclear if this disparity is driven by language alone or the intersection of language and nativity and associated systemic vulnerabilities. Observed disparities could also reflect variation by language and immigrant identity in network size and structure, including connections to relatives in other countries.
SURVIVAL AFTER DEMENTIA DIAGNOSIS: VARIATION BY RACE/ETHNICITY AND GEOGRAPHIC FACTORS
Authors: Lin Haiqun , Jarrín Olga , Wu Bei , Duberstein Paul , Zafar Anum , Lopez Maria 
Published: December 2022

Abstract
This study describes racial and ethnic variation in dementia diagnosis and survival time between diagnosis and death for Medicare beneficiaries aged 50 years and older who died in 2018 (n=1,998,282). The prevalence of diagnosed dementia was higher among non-Hispanic white (45.7%), Black (45.5%), and American Indian/Alaska Native (44.1%) decedents compared to Asian American/Pacific Islander (42.7%), and Hispanic (38.5%) decedents. Median survival time in years was shorter for American Indian/Alaska Native (2.51, IQR 0.7-6.0) and white (2.85, IQR 0.8-6.3) beneficiaries, and longer for Asian American/Pacific Islander (3.36, IQR 1.0-7.3), Black (3.38, IQR 0.9-7.4), and Hispanic (3.83, IQR 1-8.2) beneficiaries. Median survival time also varied by geography and was shortest for Hispanic decedents in Arizona (2.37, IQR 0.6-6.0) and New Mexico (2.92, IQR 0.8-7.0) compared to New Jersey (4.85, IQR 1.5-8.9) and Puerto Rico (5.45, IQR 1.1-12.8). Among Black decedents, survival was longest in New Jersey (3.80, 1.1-7.9) and Arkansas (4.22, 1.0-8.5).
END-OF-LIFE CARE PLANNING AND SATISFACTION AMONG THE HEALTH AND RETIREMENT STUDY DECEDENTS
Authors: Rahemi Zahra , Malatyali Ayse , Cidav Tom , Jarrín Olga , Dye Cheryl , McMahan Christopher 
Published: December 2022

Abstract
The frequency and timing of advance care planning among individuals living with cognitive impairments vary by race/ethnicity and other sociodemographic factors. This study examined relationships between advance care planning and end-of-life care satisfaction among participants in the Health and Retirement Study (Exit files 2002-2018). Among decedents with cognitive impairment (n=3,102), Black and Hispanic participants were less likely to have a living will (OR=0.22, 0.19) and less likely to discuss end-of-life care (OR=0.422, 0.544) compared to White and non-Hispanic participants, respectively. Black and Hispanic participants were more likely to prefer all possible end-of-life care (OR=3.29, 3.34) and less likely to refuse extensive-care measures (OR=0.34, 0.48) compared to White and non-Hispanic participants. Participants dissatisfied with end-of-life care were 48% less likely to have a living will. End-of-life care planning disparities among racial/ethnic groups can inform interventional and educational programs to improve equity in end-of-life care.
FINANCIAL DISTRESS OF ADULT CHILDREN TAKING CARE OF AGING PARENTS
Authors: Wang Mengya , Bartholomae Suzanne 
Published: December 2022

Abstract
Providing care to parents is often a rewarding experience for adult children, however, one trade-off is the toll it takes on the caregiver's own financial security. Using the framework of life course theory, the current research examines the sources of support (family, community and the government) that may reduce parental caregivers' financial distress. In this study, we examine whether intensive parental caregivers are experiencing financial distress and whether the association between caregiving and financial distress is ameliorated by the presence of having siblings, community support, and government policy supportive of caregiving. This study utilizes data provided by the fifth wave of the survey of health and retirement in Europe (SHARE). Preliminary analyses are consistent with previous studies, that providing intensive care to parents is associated with an increased risk of experiencing healthcare hardship. Moreover, the findings align with life course theory as having support from family members and the government is associated with lower levels of financial distress. However, the effect of community support is not significant. This study suggests that adult children, especially adult daughters, sacrifice their own financial security for the benefit of caring for their parents. In addition, having a broad support network, such as caregiving support groups and caregiving educational programs, can reduce adult children’s financial distress, and enable them to provide care longer, which avoids or delays the need for costly institutional care. Ongoing analyses examine the potential long-term consequences of caregiving.
INVOLVING PEOPLE WITH A FRONTOTEMPORAL DEMENTIA DIAGNOSIS IN DEMENTIA RESEARCH
Authors: Roes Martina , Heppner Marie-Marleen , Teupen Sonja , Oyebode Jan , Heislbetz Claus , Goetz Vanaditz , Pivodic Lara , Massimo Lauren 
Published: December 2022

Abstract
Frontotemporal Lobar Degeneration (FTLD) is a form of dementia that is characterized by prominent and gradual changes in behavior and language, whereas memory is relatively preserved (therefore different from Alzheimer dementia). In our FTD project we analyze care services for people with FTLD in Germany and we are working together with persons with FTLD and their partners as patient advisors. Our presentation will reflect on how we communicate (e.g. easy Language), how we communicate with the dyads (e.g. balance within the dyads), how we prepare for and engage during meetings as well as how this influences our research project. In summary, building trust and staying connected between meetings, being transparent about expectations and applying a narrative approach seems to be a way to successfully involve people with FTLD and their partners as advisors in dementia research.
EXISTING DATA SETS FOR FAMILY CAREGIVING AND BEREAVEMENT RESEARCH: HIGH-VALUE APPLICATIONS AND KEY CONSIDERATIONS
Authors: Tay Djin , Goodwin Rebecca 
Published: December 2022

Abstract
Aging and the end of life is marked by greater reliance on others to address increasingly complex care needs. At the end of life, nine in 10 caregivers are family members. Reliance on family caregivers will continue to increase as the home outpaces hospitals and nursing facilities as place of death. As the population ages and dependence on family caregivers increases, it is critical to examine the impact of family on aging and end-of-life experiences and conversely, the impact of end-of-life caregiving and bereavement on families’ health and well-being. Population-based data, such as registries that link administrative, health and vital records or nationally representative datasets, minimize the challenges of selection bias, low response rates, and underrepresentation of racial and ethnic minority groups that are common in prospective clinical research. However, few population-based datasets exist that can facilitate research on family caregiving. This symposium includes five presentations focused on the use of population-based data for family caregiving research-- the first examines the social and caregiving network of adults who age solo using the National Health and Aging Trends Study data. The next two presentations examine how family characteristics are associated with place of death and end of life treatment utilization among nursing home decedents using linked statewide data. The final two examine how family caregivers are impacted by different death and dying experiences in Utah and Denmark. Leveraging population-based data to understand the end-of-life dynamics within a family system has the potential to advance family caregiving research, clinical practice, and policy.
INFORMAL CARE NETWORKS AMONG ADULTS AGING SOLO
Authors: Lowers Jane , Zhao Duzhi , Bollens-Lund Evan , Kavalieratos Dio , Ornstein Katherine 
Published: December 2022

Abstract
More than 20% of older adults lacks proximal family caregivers. Yet is it unclear who provides support for this growing population. Using 2015 National Health and Aging Trends Study data for 2,998 community-dwelling Medicare beneficiaries who received help with at least one task (e.g., bathing, shopping, insurance help) in the past month, we identified individuals aging solo (no spouse/partner or children residing in the same state) and determined social and caregiving network size and composition. Compared to married peers with nearby children, adults aging solo (7.6% of sample) had social networks of similar size but greater diversity (i.e., more friends, neighbors). Adults aging solo were significantly more likely to rely on paid help and a wider network of informal caregivers, including distal family, and friends. Social networks can anchor interventions to help adults aging solo prepare for future care needs and inform policies to support informal caregiving.
FAMILIAL AND SOCIODEMOGRAPHIC DETERMINANTS OF PLACE OF DEATH: A RETROSPECTIVE STUDY OF THE UTAH POPULATION DATABASE
Authors: Kelly Brenna , Hanson Heidi , Meeks Huong , Hollingshaus Michael , Tay Djin , Ellington Lee , Stephens Caroline , Ornstein Katherine 
Published: December 2022

Abstract
Consistent with preferences, home deaths in the US increasing — yet most Americans still die in hospitals or other healthcare facilities. Although declining health has been considered the primary factor influencing place of death, few studies have examined how family support and sociodemographic factors influence place of death. This study examined a population-based cohort of 205,932 decedents aged 50+ who died in Utah between 1998 and 2016. Using multivariate logistic regression models, we found that having a living spouse or child was associated with decreased odds of a healthcare facility death (spouse: AOR= 0.62, CI 0.65-0.59; child: AOR = 0.80, CI 0.79-0.82). Additionally, educational attainment (graduate degree: AOR = 0.95, CI 0.91-0.99) and non-Hispanic/Latinx ethnicity (AOR = 0.81, CI 0.79-0.85) were associated with decreased odds of a home death. Our findings highlight the importance of families in place of death and suggest that sociodemographic and economic disparities persist even in death.
HEALTH AND WELL-BEING OF FAMILY CAREGIVERS FOLLOWING HOSPICE USE
Authors: Utz Rebecca , Hollingshaus Michael , Ornstein Katherine , Tay Djin , Stephens Caroline , Smith Ken 
Published: December 2022

Abstract
Some patterns of hospice use are potentially disruptive and stressful for both patient and family. Using a decedent sample of 17,320 hospice users from the Utah Population Database, linked to the health records of spouse and first-degree relatives (child, parent, sibling, Mean=3.36 per decedent). Stroke decedents had higher odds of delayed admission (i.e., &lt;7 days of hospice), while those with dementia and COPD had higher odds of extended use (i.e., &gt;6 months of hospice), compared to cancer decedents. Family members, especially spouses, who experienced delayed admission or extended use had higher odds of hospitalization and increased use of antidepressants, both prior to and following the death, compared to those with more normative hospice use (6 months or less, typical of cancer patients). The hospice experience has both immediate and lasting consequences on the family; eligibility criteria for the hospice benefit may need to be modified by admitting diagnosis.
SERIOUS MENTAL ILLNESS EXACERBATION POST-BEREAVEMENT: A POPULATION-BASED STUDY OF PARTNERS AND ADULT CHILDREN
Authors: Tay Djin , Thygesen Lau , Ornstein Katherine 
Published: December 2022

Abstract
The death of a family member may trigger exacerbations among individuals with serious mental illness (SMI). We hypothesized that bereavement would be associated with SMI exacerbations among bereaved partners and adult children diagnosed with SMI. Using linked population-based registries in Denmark, we identified partners and adult children diagnosed with schizophrenia, schizoaffective disorder, bipolar disorder, and major depression in the five years preceding the family member’s death. Generalized estimating equations were used to estimate the odds of SMI exacerbation two years after decedent death. Partners had increased odds of SMI exacerbation at 3 months into bereavement compared to 9-12 months prior to partners’ death (AOR=1.43, [1.13-1.81]). Children with a history of SMI had lower odds of SMI exacerbation in the second year of bereavement. Sociodemographic characteristics and co-occurring alcohol and substance abuse disorders were associated with higher odds of SMI exacerbations. These findings have implications for targeted bereavement support.
CHRONIC PAIN AND CIRCUMSTANCES OF FALLS IN COMMUNITY-LIVING OLDER ADULTS
Authors: Cai Yurun , Leveille Suzanne , Shi Ling , Chen Ping , You Tongjian 
Published: December 2022

Abstract
Chronic pain is a risk factor contributing to mobility impairment and falls in older adults. Little is known about the patterns of fall circumstances among older adults with pain. This prospective cohort study described frequencies of fall circumstances (i.e., location, activities, and self-reported causes of falls) and examined the relationship between chronic pain and fall circumstances among 765 community-dwelling older adults (mean age=78.1, 63.9% women) in the MOBILIZE Boston Study. Pain severity, fall occurrence, and fall circumstances were recorded using monthly calendar postcards and fall follow-up interviews during a 4-year follow-up. Descriptive analyses summarized frequencies of fall circumstances. Generalized estimating equation (GEE) models examined the relation between monthly pain ratings and circumstances of the first fall in the subsequent month. Among 1,829 falls, 965 (52.8%) falls occurred indoors and 804 (44.0%) falls occurred outdoors, 60 (3.2%) falls with missing location information. Commonly reported activities and causes of falls were walking (915, 50.0%), slips/trips (943, 51.6%), and inappropriate footwear (444, 24.3%). GEE models suggested that compared to fallers without pain, fallers with moderate-to-severe pain had around twice the likelihood of reporting indoor falls (adj.OR=1.93, 95%CI:1.32-2.83), falls in living/dining rooms (adj.OR=2.06, 95%CI:1.27-3.36), and falls due to health problems (adj.OR=2.08, 95%CI:1.16-3.74) or feeling dizzy/faint (adj.OR=2.10, 95%CI:1.08-4.11), but they were less likely to report falls while going down stairs (adj.OR=0.48, 95%CI:0.27-0.87) or falls due to slips/trips (adj.OR=0.67, 95%CI:0.47-0.95) in the subsequent month. Future studies may investigate whether better pain management and tailored fall prevention in elders with chronic pain could lead to fewer falls.
A NEW NORMAL: EXAMINING THE LINKAGES BETWEEN SOCIAL TECHNOLOGY AND LONELINESS
Authors: Ryou Yeon Ji , Peterson Natasha , Wang Mengya , Svec Joseph 
Published: December 2022

Abstract
As the COVID-19 pandemic continues to shape social landscapes, social isolation and loneliness are major issues with mental and physical ramifications. In recent years, individuals of all ages are turning to social technology (ST) to communicate with loved ones. However, the viability of ST as a substitute to in-person interaction remains hotly debated. Moreover, few studies examined how psychosocial factors interact with ST in mental health outcomes. Using the 2020 survey data (N = 1,969) from Health and Retirement Study (HRS), this research examines whether and to what extent ST ameliorates loneliness among 65+ individuals. We identify which personality dimensions moderate the relationship between ST and loneliness using the conceptual framework of the five-factor and the unified theory of acceptance and use of technology model. Linear regression analyses are conducted to determine direct and interaction effects. Results indicate that greater ST use corresponds negatively with loneliness. We also observe that particular personality traits (e.g. extraversion) are negatively associated with loneliness, while neuroticism corresponds positively with loneliness. In the interaction between neuroticism and ST, neuroticism mitigates the association between social technology and loneliness. These findings indicate that ST can be a positive source of social connectivity but the extent may be conditioned on personality profiles. Plausibly, neurotic individuals may exacerbate behavioral propensities by technology use. As evidenced by the robust independent effects of ST and conditional nature of technology connections with neurotic profiles. These findings imply that future intervention should consider individual differences when developing mental health programs using ST.
SOCIAL DISPARITIES IN INFLAMMATORY BIOMARKERS MEDIATED BY POOR SLEEP QUALITY
Authors: Obiagwu Joseph , Mu Christina , Lee Soomi 
Published: December 2022

Abstract
This study investigated whether sleep quality mediates the relationship between race/SES and biomarkers (CRP, IL6, IL10, TNF-α). Participants in the Midlife in the United States Study (n=1,689; Mage=53.02) completed the Pittsburgh Sleep Quality Index and provided information on eight life-course indicators to measure SES. Black individuals and those with lower SES had poorer sleep quality and higher inflammation compared to their counterparts. Poorer sleep quality mediated the relationship between being Black and higher CRP (β=0.02, 95%CI [0.002, 0.04]), IL6 (β=0.008, 95%CI [0.0002, 0.02]), IL10 (β=0.008, 95%CI [0.0004, 0.02]), and TNF-α (β=0.004, 95%CI [0.0002, 0.01]). Poorer sleep quality also mediated the relationship between lower SES and higher CRP (β=-0.01, 95%CI [-0.01, -0.001]), IL6 (β=-0.003, 95%CI [-0.007, -0.00]), IL10 (β=-0.003, 95%CI [-0.01, - 0.0003]), and TNF-α (β=-0.002, 95%CI [-0.004, -0.0002]). Improving sleep quality may help reduce the risk of inflammation in at-risk groups and subsequently reduce health disparities.
DAYTIME SLEEPINESS AND WEIGHT CHANGE AMONG ADULTS: FINDINGS FROM THE WISCONSIN SLEEP COHORT STUDY
Authors: Liu Yin , Barnet Jodi , Hagen Erika , Peppard Paul , Reither Eric , Mignot Emmanuel , Plante David 
Published: December 2022

Abstract
BMI trajectories are associated with nighttime sleep, but it is less clear how they relate to daytime sleepiness. We examined the association between levels and changes in daytime sleepiness and BMI among men and women using growth curve models among 1047 participants in the Wisconsin Sleep Cohort Study (mean [sd] age = 51.1 [8.0] years at baseline). The outcome variable was BMI (kg/m2). Key predictors were self-reported sleepiness measured by the Epworth Sleepiness Scale (ESS), and the objective Multiple Sleep Latency Test (MSLT) scores at each data collection wave. Men, but not women, who were sleepier had higher BMI levels. Age moderated the association between changes in ESS and MSLT sleepiness and BMI trajectories. The association was weaker for older men, but stronger for younger men; such effect was the opposite for women. The MSLT models further suggested that women who were sleepier had steeper increases in BMI over time.
ALL YOU NEED IS LOVE? SPOUSES' AFFECTION ACROSS MARITAL INTERACTION CONTEXTS
Authors: Haase Claudia , Stephens Jacquelyn , Meier Tabea 
Published: December 2022

Abstract
Affection is a positive emotion that plays an important role in intimate relationships. In a laboratory-based dyadic study of 52 middle-aged married couples (104 individuals) from highly diverse socioeconomic backgrounds, we examined spouses’ subjective experience of affection across different marital interaction contexts, correlates, and specificity. Results showed that (1) wives and husbands experienced lower affection in a conflict conversation compared to a positive conversation. Moreover, (2) for wives, higher affection in the conflict conversation was associated with lower physiological reactivity (i.e., less heart rate acceleration from baseline to conflict discussion). For wives, higher affection was also associated with higher marital satisfaction for themselves and their husbands. These findings were specific to affection and did not robustly emerge for other positive emotions. These findings support views of affection as a positive, context-sensitive emotion that may become particularly important in intimate relationship conflict. Directions for future research are discussed.