bluuebunny/crossref_metadata_2025_split huggingface dataset:
UNPACKING MILD COGNITIVE IMPAIRMENT/YOUNG ONSET DEMENTIA IN THE WORKPLACE: EMPLOYER VERSUS EMPLOYEE
Authors: Taylor Philip , Levy AnneMarie , Gibson Allison 
Published: December 2022

Abstract
The symposium includes four studies exploring the impact of mild cognitive impairment and/or young onset dementia on the workplace, and area of increasing interest due to the aging workforce and government interest in prolonging work life. The papers adopt a rare, multi-level approach by examining both employee and employer perspectives, and how the interaction of both individual and organizational factors impact their self-reported outcomes. Following the paper presentations, Dr. Allison Gibson will lead a paper discussion. The goal of the symposium is to foster a research conversation amongst the presenters and symposium participants interested in exploring overlaps, potential for multi-disciplinary collaboration and future research into resolution of workplace and workforce optimization with worker satisfaction that are identified with progressive cognitive impairment.
THE DIMENSIONS OF YOUNG ONSET DEMENTIA (YOD) AND WHAT THESE MEAN FOR EXTENDED WORKING LIVES
Authors: Taylor Philip 
Published: December 2022

Abstract
Drawing from a review of the literature and international statistical sources, this paper identifies the global prevalence of young onset dementia (YOD), its complex aetiology and its social and economic costs. YOD is often defined as dementia affecting those aged 65 or under, although definitions vary. Prevalence estimates also vary but recent evidence suggests a rate in the region of 119.0 per 100,000 population for those aged 30-64, and this is expected to increase markedly in the coming decades. Research identifies that the causes of YOD vary greatly among younger people. Individuals experiencing YOD face a complex range of psychological, familial, and socioeconomic challenges, while often being active in the labour market at the time of diagnosis. Costs of YOD cannot be easily disentangled from those for dementia generally but include: the direct costs of the ‘resources’ drawn on by the person with dementia; indirect costs, usually considered in terms of the value of lost productivity by the person with dementia or their carer, and less tangible costs, such as in terms of psychological wellbeing, social exclusion and time costs. The paper concludes by considering the potential significance of YOD for the future labour market in the context of ongoing efforts to prolong working lives.
TRANSITIONS EXPERIENCED BY PEOPLE DIAGNOSED WITH DEMENTIA WHILE IN THE WORKFORCE
Authors: Boger Jennifer , Marashi Sheida , Mäki-Petäjä-Leinonen Anna , Issakainen Mervi , Nedlund Ann-Charlotte , Ryd Charlotta , Nygard Louise , Astell Arlene 
Published: December 2022

Abstract
Dementia is a progressive, irreversible neurological disorder that causes changes in cognitive function and behaviour. While at least 5% of people who develop dementia every year are under the age of 65, dementia in the workplace is currently not well recognised or supported. The changes associated with dementia present multiple challenges for individuals who wish to continue with their employment. Many lose their positions before receiving a diagnosis, whilst others take sick or disability leave or early retirement. The process of understanding what is happening and coping with this new situation is highly individualistic and involves several transitions. The MCI@work project is an international initiative taking place in Canada, Finland, and Sweden where we examine these transitions through the personal narratives of individuals who have either currently or recently gone through the experience of developing dementia whilst in the workforce. From these data, we have developed a framework for understanding the transitions experienced by people who develop dementia whilst in the workforce. The aim is to assist individuals and their employers to better understand the needs of people living and working dementia as well as engage in appropriate actions that support choices and dignified transitions either within the context of employment or out of the workforce.
RELEVANT YET UNCONTROLLABLE: PERCEIVED CONTROL AS A MEDIATOR OF CROSS-CULTURAL DIFFERENCES IN OLD-AGE PREPARATION
Authors: Fung Helene , Fung Nicole Long Ki , Tse Dwight Cheuk Kit 
Published: December 2022

Abstract
Previous studies have shown that there are cross-cultural differences in old-age preparation rate (e.g. Kornadt et al., 2019). Drawing from the transactional stress-and-coping model (Lazarus & Folkman, 1984), we proposed that perceived control, self-relevance and responsibility for old-age preparation could mediate the cultural differences in old-age preparation. We recruited a sample aged 18 to 96 from Germany (N=366, Mage=52.63) and Hong Kong (N=252, Mage=57.47) to complete two online questionnaires across two years. Compared with German adults, Hong Kong adults prepared less (b=-2.159, p&lt;.001), had lower perceived control (b=-0.899, p&lt;.001) and responsibility (b=-0.713, p&lt;.001), yet similar level of self-relevance over preparation. Preparation at time2 was related to self-relevance (b=1.004, p&lt;.001) and control (b=0.785, p&lt;.001) at time1. The cultural differences in preparation at time2 were only mediated by perceived control at time1 (indirect effect=0.706, p&lt;.001). Findings highlight the importance to enhance individual perceived control over old age in promoting society-wide old-age preparation.
PUBLIC HEALTH PRIORITIES AND FUTURE DIRECTIONS FOR ALZHEIMER'S DISEASE RISK REDUCTION
Authors: Baumgart Matthew 
Published: December 2022

Abstract
Reducing risk for diseases and chronic conditions is a fundamental priority of public health. Since 2007, the Alzheimer’s Association has partnered with the CDC on the development of a series of Public Health Road Maps to guide the public health community in addressing cognitive health. In addition, the Alzheimer’s Association’s Public Health Center of Excellence on Dementia Risk Reduction, funded by the CDC, provides guidance on how public health can address the risk factors for cognitive decline and dementia. With recent advancements in the science on dementia risk factors, we can now identify targets for public health action. The addition of a national goal to address dementia risk factors underscores the urgency to act. This presentation will offer a perspective on how public health can move forward, through prioritization and action, in addressing risk factors for cognitive decline and dementia, including by addressing social determinants of health and health equity.
ACCELERATED AGING AMONG ADULTS LIVING WITH CEREBRAL PALSY
Authors: Peterson Mark , Dayanidhi Sudarshan , McPhee Patrick , Haapala Heidi 
Published: December 2022

Abstract
Cerebral Palsy (CP) is the most common pediatric-onset physical disability, with an estimated prevalence ranging from 2.6-3.1 cases per 1,000 live births in the United States. There is a lack of clinical follow-up for individuals with CP after they transition from pediatric to adult primary care, and insufficient surveillance to track patients with CP longitudinally. Despite the shortage of research to examine the natural history of CP and chronic disease trajectories in this population, a range of secondary conditions arise at an accelerated rate as compared to the adult population without CP, prompting the widespread notion and clinical hypothesis that patients with CP are prone to accelerated aging. These factors further worsen functional status and quality of life, as well as lead to decreased independence. Despite the well-established interrelationships between physical and mental health disorders in the non-CP older adult population, the extent to which, mechanisms underlying, and time course associated with the development of these chronic conditions among adults living with CP has received little empirical attention. The proposed course will build upon our ongoing work by highlighting new findings from three centers doing research pertaining to aging with CP, and will cover novel mechanisms of musculoskeletal pathophysiology in CP, risk factors of and unique CVD profiles among adults with CP, and new findings related to health trajectory differences of adults with CP from clinical and population-representative cohorts. We will also provide insights into the pathophysiologic mechanisms linking early frailty and long-term health outcomes among persons with CP.
NAVIGATING THE PATHWAY TO CARE IN ADULTS WITH CEREBRAL PALSY
Authors: Haapala Heidi 
Published: December 2022

Abstract
As individuals with CP age, they face unique challenges which complicate their ability to access and receive appropriate health care. These problems exist at the level of the health care system, the clinician, and the individual. At the system level, there is an inadequate number of professionals who are informed of and interested in the care of adults with CP. Adult caregivers are often not knowledgeable about and may feel less competent about patients with CP. Differences in the physiologic development of individuals with CP render well-established clinical protocols for risk screening of chronic diseases less effective. Dr. Haapala runs an adult CP clinic and will present her clinical experience with treating complex patients with CP. She will present specific information pertaining to her work in studying and treating chronic overlapping pain in adults with CP, as well as her efforts to reduce polypharmacy and opioid dependence in her patients.
MOSAIC CHROMOSOMAL ALTERATIONS AND LONGEVITY
Authors: Leshchyk Anastasia , Xiang Qingyan , Monti Stefano , Perls Thomas , Andersen Stacy , Gurinovich Anastasia , Song Zeyuan , Sebastiani Paola 
Published: December 2022

Abstract
Mosaic chromosomal alterations (mCAs) are structural alterations that are associated with mortality, age, cancer, cardiovascular disease, and diverse infections. The distribution of mCAs in long-lived subjects and individuals with familial longevity is not well described. We applied MOsaic CHromosomal Alteration (MoChA) caller on genome-wide genotype samples of 2025 centenarians, their siblings, and offspring and 273 unrelated controls from the New England Centenarian Study (NECS) and 3642 subjects with familial longevity and 920 controls from the Long-Life Family Study (LLFS). MoChA utilizes a Hidden Markov Model to detect mCA-induced deviations in allelic balance at heterozygous sites with Log R Ratio and B-allele frequency (BAF) with phased genotype information. We analyzed somatic mCAs in samples with genome-wide BAF phase concordance less than 0.51, LOD score greater than 10, and estimated cell fraction less than 50%. The results in the two studies showed that autosomal mCAs spanning over 100 kbase pairs increase with older age until approximately 102 years. However, the prevalence of the subjects with mCAs tends to plateau after that age, suggesting that the accumulation of mCAs is less prevalent in long-lived subjects. We also found that offspring and siblings of centenarians accumulate less autosomal mCAs (fixed-effect meta-analysis for NECS and LLFS: RR=0.78, p=0.033) compared to unrelated controls. In addition, consistent with results from other studies, mCAs are associated with increased risk for mortality (HR=1.08, p=0.02) and sex (Male RR=1.37, p=4.15e-05), and impact incident events of cancer, dementia, diabetes, and cardiovascular diseases even at extreme old ages.
ARE RECENTLY INCARCERATED OLDER ADULTS MORE LIKELY TO DEVELOP DEMENTIA THAN THE NEVER INCARCERATED?
Authors: Byers Amy , Fortinsky Richard , Williams Brie , Boscardin W John , Li Yixia , Barry Lisa 
Published: December 2022

Abstract
Increasing numbers of older adults are reentering the community following incarceration (i.e., reentry). Yet, their risk of developing dementia and mild cognitive impairment (MCI) is unknown. We leveraged a national cohort of veterans who experienced reentry at age ≥ 65 years (N=5,920) and compared their risk of dementia or MCI to an age- and sex-matched never incarcerated sample (N=29,600). Those in the reentry sample were incarcerated for ≤10 consecutive years, experienced reentry between 10/01/2012 and 9/30/2018, and did not have a pre-incarceration MCI or dementia diagnosis per VA and CMS healthcare records (N=5,920). Fine-Gray models, controlling for race and pre-incarceration chronic conditions, serious mental illness, traumatic brain injury, and posttraumatic stress disorder, derived hazard ratios (HRs) and 95% Confidence Intervals (CIs). Samples were 99% male with average age 70 (±4.3) years. Reentry adults had a higher proportion of non-Whites (29% vs. 17%; p&lt; 0.001) and more chronic conditions (2.1[±1.8] vs. 1.6[±1.6] p&lt; 0.001). MCI incidence did not differ between reentry and never incarcerated groups (3.1% vs. 2.6%; HR=1.03; 95%CI 0.86-1.24). However, risk of any dementia was higher in reentry older adults (7.2% vs. 5.0%; HR=1.27; 95%CI 1.12, 1.44), as was risk of specific subtypes, e.g., vascular dementia (1.9% vs. 1.2%; HR=1.37; 95% CI 1.06-1.75) and frontotemporal dementia (0.2% vs. 0.1%; HR=2.3; 95% CI 1.2, 4.3). Those reentering the community in late life following incarceration may be a group that is especially at risk of developing dementia. These findings raise awareness of the need for appropriate transition planning for this vulnerable group.
FOOD INSECURITY AND COGNITIVE TRAJECTORIES IN COMMUNITY-DWELLING OLDER ADULTS
Authors: Kim Boeun , Szanton Sarah , Thorpe, Jr. Roland J , Crews Deidra , Samuel Laura 
Published: December 2022

Abstract
Food insecurity, defined as limited access to nutritionally adequate and safe foods due to social and economic conditions, has adverse effects on physical health and well-being. However, it remains unclear whether food insecurity accelerates cognitive decline in older adults. This study examined the association of food insecurity with cognitive decline. We analyzed data from 4,508 community-dwelling participants in the National Health and Aging Trends Study (NHATS) collected from 2011 to 2020, a prospective cohort study of a nationally representative sample of Medicare beneficiaries ages 65 years and older. Food insecurity was measured using 5 items within functional, social support, and financial limitations domains. Immediate and delayed recall were assessed by a 10-item word-list memory task (range: 0—10). Executive function was evaluated by the Clock Drawing Test (range: 0—5). Each year’s cognitive functions were linked to the prior year’s food insecurity values. Weighted linear mixed effect models were fitted. Prevalence of food insecurity at baseline was 3.5% (95% CI: 2.9 — 4.3). Persons with food insecurity were more likely to have Black race or Hispanic ethnicity, low income, and less than high school education. Food insecurity was associated with faster decline in executive function accounting for demographic and socioeconomic characteristics: the average difference, over 1-year, in executive function score between people exposed to and not exposed to food insecurity was 0.038 points (95% CI: -0.072 — -0.003). Food assistance programs or increasing healthy food access may reduce food insecurity and delay cognitive aging in community-dwelling older adults.
RESPONSES OF PERSONS LIVING WITH DEMENTIA TO VALIDATING COMMUNICATION BY FAMILY CAREGIVERS: A SECONDARY ANALYSIS
Authors: Campbell Kaitlyn , Coleman Carissa , Williams Kristine 
Published: December 2022

Abstract
Validation is a person-centered approach for communicating with people living with dementia (PLWD). This study evaluated how PLWD respond to caregiver communication that includes or fails to include validation. This secondary analysis of homecare videos (N=41) of family caregivers interacting with a PLWD during daily care used behavioral coding of validating communication (affirmation, acknowledging emotions, encouraging emotional expression, verbalizing understanding) in relation to responses of PLWD (resistiveness to care, apathy, or cooperation). A 10 second time-lag sequential analysis identified an 11% probability of a cooperative response when caregivers communicated using affirmations. Caregiver verbalizations of understanding resulted in a 6% probability and silence had an 8% probability of cooperative responses. Use of validating communication did not result in a significant probability of negative PLWD responses (apathy or resistiveness to care). Use of validating communication strategies may assist caregivers to achieve goals of care without negative responses from PLWD.
TEMPORAL RELATIONSHIPS OF PERSON- AND TASK-CENTERED DEMENTIA CARE AND MEALTIME BEHAVIORS: SEQUENTIAL ANALYSIS
Authors: Liu Wen , Perkhounkova Yelena , Hein Maria , Bakeman Roger 
Published: December 2022

Abstract
Person-centered mealtime care is highly recommended in dementia care. While current research examined associative relationships between person- and task-centered care and resident mealtime behaviors, few studies evaluated their temporal associations. Videotaped mealtime observations (N=160) involving 36 staff and 27 residents (53 staff-resident dyads) in 9 nursing homes were coded. Staff person-centered and task-centered approaches were conceptualized as antecedents of resident positive behaviors, functional impairments, and resistive behaviors using 5-, 10-, and 15-second time windows. Immediately after staff person-centered approaches, resident positive and resistive behaviors were more likely (p range=&lt;.001–.29) and functional impairments less likely (p range=&lt;.001–.62) with diminished effects in time. Immediately after staff task-centered approaches, resident positive behaviors were less likely (p range=&lt;.001–.09). Person-centered mealtime care should be individualized, context-based, and resident-oriented. Resident resistiveness to care may be behavioral responses to person-centered care indicating mismatch to individual preferences and needs, warranting adequate awareness and appropriate assessment.
IMPLICATIONS FOR MORTALITY RISK: CONSEQUENCES OF SURVEY NONRESPONSE IN HOME-DWELLING OLDER ADULTS
Authors: Razavi Marianne , Dale William , O'Muircheartaigh Colm , Schumm L Philip , Kotwal Ashwin , Waite Linda 
Published: December 2022

Abstract
Nonrespondents generally suffer from worse health outcomes than respondents. Are they unwilling or unable to respond? Our aim was to address this issue. Data (N=3,130) from 2010-2015 waves of National Social Life Health and Aging Project (NSHAP, W2, W3) was used. Four groups of participants were considered based on their response status at W3: alive, incapacitated, deceased, and nonrespondents. Nonrespondents represented cases with no information at W3, beyond their disability and death information. General linear models were used to compare group means at baseline (W2) in terms of mortality risk (Lee index) or cognitive impairment (MOCA), adjusted for demographic variables. Like the deceased or incapacitated groups, the nonrespondent group displayed significantly worse outcomes (Least Squares Means) than the alive group: Lee index alive=5.82, deceased=9.66, incapacitated=8.29 and nonrespondents=7.80; MOCA alive=21.57, deceased=19.79, incapacitated=19.19 and nonrespondents=19.84. Being a nonrespondent likely indicates incapacity, not reluctance to responding. Earlier follow-up surveys could optimize response rates.
EMBRACING DIVERSITY BY FOSTERING STRONG COMMUNITY CONNECTIONS
Authors: Golden Robyn , Emery-Tiburcio Erin , Snyder Rani 
Published: December 2022

Abstract
Age-Friendly Health Systems are essential; however, most health and healing take place outside of the walls of a hospital or physician’s office. Thus, it is imperative that health systems foster strong community connections, in particular with older adults from underserved communities who experience multiple barriers to quality, age-friendly health care. At Rush, there are several interdisciplinary initiatives designed to ensure that the 4Ms reach beyond the medical center and impact historically marginalized communities. In this symposium, we present three of these innovative approaches to bringing the 4Ms to into the community. Each presentation will describe the program and community served, explore how the 4Ms concepts are integrated, and present outcomes data on the program impact to date. Facilitating Caregiver Health and Wellness: Age-Friendly Health System Caring for Caregivers (AFHS-C4C) is an initiative to expand the age friendly health system to include caregivers. CATCH-ON Connect enables older adults to do What Matters to them by expanding virtual access to older adults, often from underserved communities. Finally, Rush@Home addresses the 4Ms by removing barriers to care and enabling older adults with medically complex needs to receive care in their home. The interactions of these programs will be discussed briefly by the session chair, along with service and policy implications of multiple programs addressing the 4Ms of an Age-Friendly Health System within one community.
ESPO AND SOCIAL RESEARCH, POLICY, AND PRACTICE SECTION SYMPOSIUM: WHAT AROUND THE PERSON MATTERS: REIMAGINING ENVIRONMENTAL JUSTICE AND AGING
Authors: Yu Kexin , Dys Sarah 
Published: December 2022

Abstract
From Lawton’s seminal Ecological Theory of Aging (ETA) to the recent development of Wahl’s COntext Dynamics of Aging (CODA), conceptual and empirical work has repeatedly shown that the living environments fundamentally influence health and wellbeing in later life. The CODA framework posits five correlated contexts that can predict developmental outcomes in aging: physical, social, service, socioeconomic, and technological contexts. The ongoing COVID-19 pandemic further manifested the lack of environmental justice for marginalized and minoritized older adults, calling for reflection on the paradigm for ecological aging research, practice, and actionable policymaking. This SRPP/ESPO symposium featured emerging and established scholars’ work that shed light on reimagining environmental justice for older adults with diverse abilities, backgrounds, and resources. Panelists will share stories of their professional development journeys, highlighting empirical evidence with under-researched, systematically excluded populations and examining new directions in aging and environment research. Topics include accessible and affordable housing, built environment, neighborhood contexts, conceptualizing the community, and the experiences of those most likely to bear the burden of precarious housing in later life. This symposium will hold the space for emerging scholars to learn and discuss short- and long-term practice and policy priorities for promoting environmental justice for older adults and provide tools to conceptualize their research informed through ecological and equity-centered perspectives.