bluuebunny/crossref_metadata_2025_split huggingface dataset:
TRENDS IN MENTAL ILLNESS ACROSS ASSISTED LIVING SETTINGS: RESIDENT AND COMMUNITY FACTORS
Authors: Carlson Bryant , Dys Sarah , Tunalilar Ozcan , Carder Paula 
Published: December 2022

Abstract
Although rates of serious mental illness (SMI), depression, and anxiety are becoming more common among assisted living (AL) and residential care (RC) residents, few studies have investigated resident and community-level factors to ensure that the settings and resources are adequate to meet residents’ mental health needs. Using a representative sample of Oregon AL/RC residents (n = 1,013), this study uses descriptive cross-sectional analysis to examine intrastate variation in the prevalence of SMI, depression, and anxiety related to: (1) resident-level characteristics (e.g., mental illness comorbidity, psychotropic medication use, and Medicaid status); (2) community-level characteristics (e.g., facility type and urban/rural geographic designation); and (3) health services utilization (e.g., emergency room visits and hospital admission). Results indicate that 12% of AL/RC residents had an SMI diagnosis, nearly half of whom also had depression and anxiety, and 80% were Medicaid eligible. One in six residents with SMI received at least three psychotropic medications in the last week. Residents with SMI were also more likely to live in RC facilities than AL facilities, in facilities with Medicaid contracts, and in urban rather than rural settings. Compared to residents without SMI, a larger share of residents with SMI utilized hospital emergency rooms (32% vs. 18%) and were admitted to the hospital overnight (15% vs. 9%). Findings underscore characteristics associated with potentially higher needs among AL/RC residents with SMI compared to their counterparts, with implications for the high quality provision of mental health services and quality of life and care in these settings.
LOVE OR OBLIGATION TO “SEE THEM THROUGH:” BURDENS AND GAINS IN CAREGIVING FOR CENTENARIANS
Authors: Shum Eric Ngai Yin , Lau Bobo Hi Po , Martin Peter , Siu Joey Chung Yue , Cheung Karen Siu Lan , Chan Cecilia Lai Wan , Chan Grace Man Yee , Luk James Ka Hay 
Published: December 2022

Abstract
In Hong Kong, the population of centenarians increased from about 3,000 in 2011 to over 10,000 in 2021. The growth of this population has led to challenges concerning how far family caregivers, who are usually older adults themselves, could care for their spouse or parents. In 2021, we launched the 2nd Hong Kong Centenarian Study and included the voices of family caregivers. Notwithstanding the increased difficulties of caregiving during COVID outbreaks, our interviews with 120 caregivers revealed low to moderate scores of caregiving burden and gains (measured by 4-items from the Zarit Burden Scale and 5-items from the Positive Aspects of Caregiving Scale). Female and older (aged 70 or above) caregivers reported more emotional distress, burden, and poorer self-rated health, while younger caregivers (less than 70 years old) sustained a wider social network. Financial stress was related to smaller social network size and more emotional distress. When being asked what sustained their motivation to care for their spouse or for their parents, “filial obligation to see them through” and “repaying for love” were answered as key motivators. Caregivers also derived pride and satisfaction from contributing to the remarkable longevity of their loved ones or from witnessing their loved ones recovering from life-threatening traumas (e.g., falls, hospitalization), but felt helpless when faced with escalating care needs due to their own deteriorating physical health and capacities. “Double-old caregiving” will become more common, and society will need to overhaul the care system to support these motivated families who have escalated care needs.
IT’S A FAMILY AFFAIR: COMMUNITY-BASED RESEARCH PARTNERSHIP TO CREATE A FAMILY-CENTERED DEMENTIA CAREGIVER PROGRAM
Authors: O’Conor Rachel , Oladejo Dianne , Filec Sarah , Knox Janice , Griffin Angel , Chapman Joyce , Roberson Tonya 
Published: December 2022

Abstract
People in the Black community are two times more likely to develop dementia than white people. This racial disparity is due to both social and structural factors which shape access to power, resources and exposure to health-damaging conditions by race. Due to the significant cognitive changes that occur, Black families assume substantial caregiving responsibilities to support family members, yet few caregiving programs offer culturally tailored support and training to the preferences and familial care norms of Black caregivers. In response, individuals from two community-based organizations (CBOs) and an academic medical center partnered to develop a culturally tailored, community-based, family-centered dementia caregiving research program for individuals living in far south Chicago. A team of stakeholders identified by the CBOs convened in the Fall 2021 to discuss the need for the proposed program, and together a key informant interview guide was designed. We have conducted 16 of 30 interviews and preliminary analyses of the interviews has revealed that caregivers are largely caring for parents or grandparents and are sharing caregiving responsibilities with other family members. Caregivers endorsed a need for the program; preferred a hybrid format and the need to include content related to 1) education on dementia, 2) emotional coping, and 3) linkage to medical and community-based resources. Anticipated barriers to participation included, time, location, and care for their family member while they participated. Our stakeholder team will continue to conduct key informant interviews, review and interpret data findings, and collectively develop a community-based family-centered caregiving program.
THE DETERMINANTS OF LIFE SATISFACTION AMONG MONGOLIAN OLDER ADULTS
Authors: Otgon Saranchuluun , Lkhagvasuren Khorolsuren , Mukhtar Yerkebulan , Baatar Anujin , Fabio Casati , Czajka Agnieszka , Myagmarjav Sugarmaa 
Published: December 2022

Abstract

Background
As the average life expectancy and the proportion of the elderly population increases, approaches that limit their policies, programs, and activities to health issues are changing worldwide. International organizations, such as the WHO, United Nations, have pledged their member countries to update their policies on the elderly population and increase their psychological and social participation over the next 20 years. We determined social demographic factors of life satisfaction among Mongolian older adults.

Methods
A cross-sectional study recruited three hundred four older adults recruited by geriatric doctors and seniors’ association units in urban and rural areas of Mongolia. The questionnaire included life satisfaction, social network, loneliness, social participation, self-rated health, and demographics. We used multiple linear regression analyses. Result: Life Satisfaction of the older adults living in urban is higher than those living in rural area (β = 0.954, p = 0.001). Good self-rate of health (β = 1.013 p = 0.001), voluntary work (β = 0.847 p = 0.001), and employment increase life satisfaction levels. Life satisfaction scores increased by 0.3 points for male older adults with a 1-point increase in education, 0.9 points for women living in cities (β = 0.929 p = 0.002), and 0.8 points for volunteering (β=0.790 p=0.006) respectively. However, when the loneliness score increases by one, the satisfaction score decreases by 0.3 points (β = -0.353 p = 0.013). Conclusions: The level of satisfaction of the Mongolian older adults is associated with self-rate of health, education level, loneliness, social activities, and living areas.
REFRAMING STUDENT EXPERIENCES AND ATTITUDES TOWARDS WORKING WITH OLDER ADULTS
Authors: Martinez Iveris 
Published: December 2022

Abstract
We are experiencing a shortage of trained health and social service providers to meet the needs of an aging society. However, few students have positive opportunities to work with older adults in their training. If they interact with older adults it is usually in end-of-life and nursing home care settings. We therefore need to find creative ways to motivate students in these fields to choose to work with older adults. We recruited students from health and social services programs to implement four health promotion projects at an older adult low-income residential community. We asked students (Nf22) to reflect on their experiences, and analyzed responses using a grounded theory approach. Myths regarding working with older adults included that they were mean, difficult, not technologically savvy, nor physically active. Initially nervous and uncertain about working with older adult prior to their experience, students gained confidence and had fun. They reported rewarding experiences, built relationships, and learned the benefits of prevention programs for older adults, and reconsidering their career trajectories to focus on working with older adults. Encouraging positive student experiences working with older adults can help prepare to develop the health and human services workforce for an aging society.
YOU DON’T KNOW WHAT YOU DON’T KNOW: BLACK/LATINX CANCER SURVIVORS’ KNOWLEDGE AND USE OF SURVIVORSHIP CARE PLAN
Authors: Nwakasi Candidus , Romero Cristy , Sinkler Kateri , Pawlowicz Abigail 
Published: December 2022

Abstract
Compared to Whites, Black and Latinx cancer survivors and their families experience disproportionate adverse effects of cancer and cancer therapy. This is due to extreme psychosocial, physical, emotional, and financial challenges they experience, thus, highlighting racial/ethnic disparity in cancer survivorship. A cancer survivorship care plan (SCP) is important for improving cancer health and quality of life, but the effectiveness of SCP as a tool to address the disproportionately persistent poor health and quality of life of Blacks/Latinx compared to Whites deserve critical attention. This study is part of a larger study on evaluating cancer survivorship in Rhode Island. We explored knowledge and use of SCP among Blacks and Latinx cancer survivors in Rhode Island. The study employed a qualitative descriptive method. Semi-structured interviews in English and Spanish were conducted with a purposive sample of 12 cancer survivors, 8 Latinx and 3 Blacks (Mage = 62 years). Their responses were transcribed and analyzed for themes. The 3 major themes identified were: 1) invisibility of survivors; 2) understanding the needs of cancer survivors; and 3) issues of empowerment. Our findings draw attention to the need for tailored interventions targeting Black/Latinx cancer survivors. One of such interventions include designing programs to increase the accessibility of SCP to help improve quality of life of cancer survivors from disadvantaged population groups.
MEASURING AGE-FRIENDLINESS OF TRANSPORTATION, MOBILITY COMMUNITY CHARACTERISTICS: A SCOPING REVIEW
Authors: Hansmann Kellia , Deemer David , McAndrews Carolyn , Robert Stephanie 
Published: December 2022

Abstract
Age-friendly community initiatives seek to identify and develop infrastructure and services that promote active aging. Inclusive characteristics of transportation and outdoor spaces can improve everyone’s mobility around their communities but are particularly important to adults who are transitioning to non-driving. In this study, we aimed to identify and describe age-friendly community indicators that evaluate characteristics most associated with community-level mobility, specifically transportation and outdoor spaces. We conducted a scoping review of peer-reviewed and gray literature to find records describing the development of age-friendly community indicators and then to identify indices with measures of transportation and outdoor spaces resources. We searched PubMed, Scopus, Ebsco, and Web of Science in August 2022 for literature published since 2005. Our search resulted in 1,012 unique records; screening for relevance by title and abstract resulted in 33 records that received full text reviews. We identified 9 final indicators for inclusion and reviewed records to describe the source of the indices, development methodology, and specific indicators used to measure transportation and outdoor spaces. Included indicators were sponsored by governmental or non-profit public health organizations (n=4) and academic researchers (n=5), including one academic partnership with a for-profit insurance company. Most indices (n=6) described measures drawn from subjective data collected during community assessments. Age-friendly indicators were not developed specifically for investigating older adults’ transition to non-driving, a missing focus that represents a significant gap. Aligning indicators with this common life transition will facilitate research into the interventions promoting mobility at the community level for all.
SUPPORTING DEMENTIA CAREGIVERS: THE PUBLIC HEALTH CENTER OF EXCELLENCE ON DEMENTIA CAREGIVING
Authors: Gaugler Joseph 
Published: December 2022

Abstract
The Public Health Center of Excellence on Dementia Caregiving has established a robust, national network of 17 organizations to jointly develop and disseminate information, tools, and resources to support families, friends, and other unpaid caregivers of people living with dementia. The Center is establishing partnerships with local, state, tribal, and other public health organizations throughout the United States to provide technical assistance on the sustainability of dementia caregiving support programs as well as the cultural adaptation of messaging and tools to best meet the needs of diverse communities The Center also has a robust stakeholder engagement process so that the voices of caregivers and public health providers are incorporated in all Center efforts. The Center also collaborates with the Public Health Centers of Excellence on Risk Reduction and Early Detection to develop and refine cross-cutting resources and tools to further meet the complex public health challenges of dementia.
THE EFFECTS OF NEIGHBORHOOD DEPRIVATION AND PERCEIVED NEIGHBORHOOD PROBLEMS ON DEPRESSIVE SYMPTOMS
Authors: Choi Jean , Muñoz Elizabeth , Corley Robin , Wadsworth Sally , Reynolds Chandra 
Published: December 2022

Abstract
The progression of detrimental mental health outcomes may begin before old age, and investigating correlates earlier in the lifespan may provide insights into prevention efforts. Neighborhoods have been linked with mental health in adulthood, but there is variation in measurement across studies. Studies have examined the independent associations between either of objective or subjective measures of neighborhoods, but few to none have examined both of these in one study. We assessed the effects of both objective (Area Deprivation Index; ADI) and subjective, or perceived, neighborhood characteristics on depressive symptoms among early midlife adults, using data from the Colorado Adoption/Twin Study of Lifespan behavioral development and cognitive aging (Nf1166, Mage=33.51 (5.07)). Participants completed self-report assessments of perceptions of their neighborhoods (e.g., perceived safety, disorder). Addresses were geocoded and linked with 2010 Census data, and we created a standardized ADI composite. To account for subject non-independence, we fitted multilevel linear regressions, controlling for relevant confounding variables. Results showed that higher ADI was linked with greater depressive symptoms (d = .04), but the effect of ADI was no longer significant and was reduced by about 30% after accounting for subjective neighborhood domains. Perceived neighborhood disorder had the largest effect (d = .19) and remained the sole predictor of depressive symptoms when all perceived domains were included in one model. Findings suggest that residents’ subjective interpretations of their neighborhood surroundings may be shaped by the broader structural contexts in which they live in, revealing a potential pathway through which objective neighborhoods affect depression.
SUBSIDIZED SENIOR HOUSINGS (SSH) FOR LOW-INCOME OLDER ADULTS IN THE U.S.: A SCOPING REVIEW
Authors: Park Sojung , Park Soobin , Amano Takashi , Baek Jihye , Kim BoRin , Ryu Byeongju 
Published: December 2022

Abstract
Subsidized senior housing (SSH) has been advocated as a key component of a community-based, long-term care policy for low-income older adults that links housing with health and social services to support aging-in-place (AIP). Relative to the accumulating evidence on for-profit housing models, SSH remained understudied. Guided by the Person-Environmental fit perspective, this scoping review described and synthesized existing literature on SSH to identify strengths and gaps in the literature. With a five-step scoping review method, we focused on the empirical studies published from 2010 in the U.S using four electronic databases and additional manual searching. Sixty-six articles met the inclusion criteria. Study participants were predominantly non-Hispanic White and female; most studies were quantitative surveys with a cross-sectional design. Five areas of outcomes emerged: (1) Health and well-being (45%), (2) Healthcare use and health behavior (24%), (3) Social Relations (11%), (4) Housing Relocation (12%), and (5) Technology (8%). In examining the study outcomes, the existing articles primarily focus on the personal (29%) and environmental (71%) dimensions, including 9% of the articles investigating both dimensions. For each dimension, the majority of the research tends to highlight residents’ health conditions and characteristics of supports and service programs in the housing. The largest proportion of the literature studied the relationship between residents’ health and the outcomes related to health and well-being. Future research needs to examine subpopulations of older residents in SSH (e.g., racial/ethnic minority, LGBTQIA, and others) as well as the current and future role of technology in SSH and community partnership.
AI-ASSISTED METHODS FOR ASSESSING AFFECT AND BEHAVIORAL SYMPTOMS IN DEMENTIA: A SYSTEMATIC REVIEW
Authors: Jao Ying-Ling , Liao Yo-Jen , Yuan Fengpei , Liu Ziming , Zhao Xiaopeng , Liu Wen , Berish Diane , Wang James 
Published: December 2022

Abstract
Negative affect and neurobehavioral symptoms occur in most people with dementia and significantly impact their health outcomes and sense of wellbeing. Detecting these symptoms in this population is challenging due to associated cognitive impairment and communication difficulties. Innovative technology and artificial intelligence (AI)-assisted tools are emerging for assessing affect and neurobehavioral symptoms in individuals with dementia. This review synthesizes research evidence to identify existing AI-assisted measurement tools and evaluate their accuracy in assessing affect and symptoms in people with mild cognitive impairment and dementia. PubMed, CINAHL, Scopus, and Web of Science databases were searched. Eight articles were identified. Multiple machine learning (ML) models were developed to assess affect, apathy, anxiety, depression, agitation, and wandering. One ML model detected positive and negative affect via facial expression with an overall accuracy of 86%. One ML model detected apathy based on speech and achieved an area under curve (AUC) accuracy of 0.77–0.88. Another speech-based ML model, based on paralinguistic markers, predicted apathy, anxiety, and depression by ≥0.3 points. Another model detected wandering based on activity monitoring data and showed 98% sensitivity and specificity. Furthermore, multiple ML models were developed to detect agitation using multi-modal sensors with AUC ranging from 0.50–0.82. Findings suggest that AI-assisted tools are a promising approach to detecting affect and neurobehavioral symptoms, yet the evidence is limited. More research is needed to develop comprehensive, accurate models to detect neurobehavior symptoms. The results have significant implications for supporting research and clinical practice to promote quality of care for people with dementia.
WHAT MOTIVATES PARTICIPATION IN ALZHEIMER’S PREVENTION RESEARCH: A MIXED-METHODS STUDY
Authors: Murillo Lizbeth Vera , Meulen Maria Vander , Villamor Monique , Collie Angel , Cline Sarah , Nicholson Jody , Edwards Jerri 
Published: December 2022

Abstract
6.5 million Americans aged 65 and older are currently living with Alzheimer’s disease or related dementias (ADRD; Alzheimer’s Association, 2022). By 2060, it is estimated that this number will increase to 13.9 million (Matthews et al., 2018). Therefore, it is imperative to gain insight into participants’ personal motivations and expectations of research to advance community participation. The Preventing Alzheimer’s with Cognitive Training (PACT) study is a National Institute of Health, National Institute on Aging-funded, multi-site clinical trial examining the prevention of mild cognitive impairment and ADRD through computer-based cognitive training. Across 5 locations, data were collected from 2,360 cognitively normal participants (M=73.03 years, range=65–97, SD=5.04). The current project explores individuals’ motivations and expectations of cognitive training (CT) utilizing a mixed-method approach by coding qualitative open-ended questions about motivation to participate and comparing how motivational themes aligned with expectations about CT from the Expectations Assessment Scale (EAS; Rabipour et al., 2018). Six themes for participant motivation emerged: direct experience with the disease (26.9%), concern about brain health and aging (23.9%), general personal interest (17.9%), general interest in research (20.1%), referral to the study (5.8%), and altruism (5.4%). After completing the initial training session, motivation themes did not differentiate satisfaction with (p=.06) or perceived success of (p=.11) the CT program. Understanding participants’ motivations can further expand and optimize recruitment and retention strategies in AD prevention research. Future research will focus on how these themes influence adherence and retention and relate to participant demographic characteristics (i.e., education, gender, race, and ethnicity).
THE RELATIONSHIP BETWEEN SOCIOECONOMIC DISADVANTAGE AND DEMENTIA CAREGIVER BURDEN
Authors: Beverly Alexis , Baucco Christina , Park Seho , Schroeder Matthew , Johns Shelley , Judge Katherine , Fowler Nicole 
Published: December 2022

Abstract
More than 16 million people provide unpaid care to someone with Alzheimer’s disease or a related dementia (ADRD) in the United States. These caregivers frequently report experiencing psychological and physical burden. Prior research shows that socioeconomic disadvantaged neighborhoods have higher rates of ADRD, but little is known about caregiver burden. We hypothesized more socioeconomic disadvantage is associated with higher caregiver burden. We performed a secondary analysis using baseline data on dementia caregivers (n=132) enrolled in the Indiana University Telephone Acceptance and Commitment Therapy for Caregivers (TACTICs) pilot trials. Mean (SD) caregiver age was 61.6 (11.6) years; 83.3% women; 78.8% white; 19.7% black. Seventy-two percent of the caregivers lived with the care recipient and 50.8% reported moderate dementia severity. A linear regression model examined the relationship between caregiver’s national Area Deprivation Index (ADI) score (ranging from 1–100 with higher scores indicating greater socioeconomic disadvantage) and caregiver burden. The following covariates were included: age, sex, race, education, shared residence with care-recipient, health status, anxiety, depression, and dementia severity of care recipient. Higher ADI was associated with lower caregiver burden (β=-0.222, p &lt; 0.001). Caregiver burden has a significant negative relationship with ADI and dementia severity (p&lt;-.001 and 0.046, respectively) and positive relationship with anxiety (p=0.014) controlling other covariates in the model. Although we found no support for the hypothesis, further research should examine these factors with how caregiver’s ADI may impact other psychosocial wellbeing outcomes. Discussion will highlight the need for caregivers to have access to resources that can aid them through their experience.