bluuebunny/crossref_metadata_2025_split huggingface dataset:
PARTICIPANT ACCEPTABILITY OF THE DEPRESSION AND PAIN PERSEVERANCE THROUGH EMPOWERED RECOVERY PROGRAM
Authors: Clair Catherine , Taylor Janiece , Bhansali Rebekah , Harrison Tracie , Beeber Anna , Szanton Sarah L 
Published: December 2023

Abstract
Between 2019-2023, the Depression and Pain Perseverance through Empowered Recovery (DAPPER) program was implemented with older African American women living with pain and low mood (N=34) in Baltimore, MD. Of the 21 who completed the intervention, we interviewed 9 women to understand their experiences in the program, their successes, challenges, and areas to improve the program. The average age of the participants was 64.8 (SD: 10.5). Using a qualitative descriptive design, we analyzed the interviews using content analysis. Overall, the main themes related to 1) Changes in Pain Experiences; 2) Influence of Research Study Team; and 3) Value in Resources and Being Listened To. The women described their experience in the DAPPER program positively and the impact that it had on their pain experience. Additionally, participants mentioned how the qualities, knowledge, and perspectives of the study team impacted them: “Respectful,” “A good listener,” and “Caring.” Finally, several of the women mentioned the value of strategies learned, resources provided, and the impact that communicating with the nurses had on them. These findings demonstrate the acceptability of the DAPPER program and highlight the importance of innovative components of intervention and study development (e.g., qualities of team members, budget for purchasing items) that are often not intentionally considered during the research process. Suggestions include adding a group component to the intervention to increase social interactions.
A DISCUSSION ON THE STATE OF AFFAIRS ON DIRECT ACTION TO SUPPORT OLDER ADULTS DURING DISASTERS
Authors: Haverhals Leah , Dosa David 
Published: December 2023

Abstract
As the frequency and severity of disasters increases, supporting older adults before, during, and after disasters is paramount. Steps toward adequate disaster preparedness include ensuring older adults possess awareness of increased disaster and hazard events and understand their role in preparedness. This symposium will address the current state of affairs in the United States (US) on direct actions to support older adults before, during, and following major disasters. Additionally it will provide context on how continuing effects of climate change impact these efforts. Dr. Lisa Brown will share perspectives and describe efforts of the US National Advisory Committee on Seniors and Disasters. Dr. Sue Anne Bell will discuss the role of implementation science in improving the emergency preparedness in nursing homes. Dr. Lindsay Peterson will describe existing state policies around home and community-based service providers. Dr. Tamar Wyte-Lake will share directions the Department of Veterans Affairs is moving in to best support vulnerable populations, focusing on older Veterans. Dr. Karl Pillemer will address the role of older adults as active agents in climate change prevention and mediation. Dr. David Dosa will act as discussant. These presenters will provide important insights into ongoing efforts while highlighting areas in need of improvement and aligned action, with the hopes that this will generate important discussions well into the future. This is a Disasters and Older Adults Interest Group Sponsored Symposium.
CARING FOR PATIENTS IN ACUTE CARE LIVING WITH DEMENTIA: WHERE WE ARE AND WHERE WE NEED TO GO
Authors: Resnick Barbara 
Published: December 2023

Abstract
There are many challenges to caring for older adults living with dementia when hospitalized including medication management, pain identification and management, behavioral symptoms associated with dementia, and sedentary behavior. To help staff, particularly the nurses providing care to these patients, we developed Function Focused Care for Acute Care using the Evidence Integration Triangle (FFC-AC-EIT) to best address increasing physical activity, pain assessment and management, appropriate use of medications and management of behavioral symptoms associated with dementia. FFC-AC-EIT includes the implementation of four steps: (1) Environment and policy assessments; (2) Education of staff; (3) Establishing patient goals; and (4) Mentoring and motivating of staff, patients, and families. The testing of FFC-AC-EIT is ongoing as a cluster randomized controlled trial that to date has included 365 patients from 10 hospitals randomized to FFC-AC-EIT or FFC-AC-Education only. Eligibility of patients is based on being 55 years of age and older, admitted for a medical reason excluding COVID-19, and demonstrating evidence of dementia. This symposium will address the care and changes that occur during the hospital stay for these participants. Specifically, the following areas will be addressed: psychotropic medication use, participation in function focused care, the impact of physical activity on behavioral symptoms associated with dementia, and treatment of pain. The findings can be used to help guide researchers and clinicians in optimal ways to address the common challenges to care of hospitalized patients living with dementia. Presenters will provide information about future work needed to improve care across each of these areas.
SAN ANTONIO TRANSPORTATION PLANNING SYSTEM: MAPPING INFRASTRUCTURE CAPACITY AND COORDINATION
Authors: Keyes Laura , Balachandran Sowmya , Andrew Simon 
Published: December 2023

Abstract
Ride Connect Texas and its partnering agencies seek to develop an expanded senior mobility management system supported by a One Call One Click transportation planning system. Its purpose is to enhance on-demand transportation system coordination and the application of technology, providing consumers, service providers, and mobility managers with direct access to comprehensive transportation information. GIS mapping is used to help develop a spatial awareness of the transportation challenges among older people and individuals with a disability and the current system capacity. Interviews with transit, non-transit, and health and human service agencies will reveal factors that influence coordination among providers and opportunities for capacity expansion. Surveys and focus groups of older adults and individuals with disability will show differentiating characteristics of riders and transportation needs and challenges. GIS mapping will allow us to geocode these findings relative to the user’s street address and zip code, illustrating variations in specialized client needs, service availability, travel behavior, and available amenities for basic daily living. Mapping will identify gaps in transportation services, hot zones revealing high user demand and low system capacity, and the ability to reduce fragmentation of service through seamless technology-based coordination. The mapping element informs the measurement of a community’s transportation system capacity for this user group. The value proposition of this tool is its ability to help any community measure its readiness toward developing a comprehensive implementation strategy for coordinated demand response transportation, including resource mobilization strategies, capacity augmentation, phasing of the system, and implementation timeline.
PERCEIVED BARRIERS AND SOCIOCULTURAL FACTORS OF ADVANCE CARE PLANNING AMONG CHINESE AMERICAN OLDER ADULTS
Authors: Zhang Peiyuan , Sun Fei , Hirsch Jen 
Published: December 2023

Abstract
Despite documented benefits of advance care planning (ACP), persistent racial and ethnic disparities exist in ACP engagement. This study, guided by a social ecological model, examined perceived barriers and sociocultural factors associated with informal ACP conversations among Chinese American older adults. A purposive sample of 281 community-dwelling older Chinese Americans aged 55 years or older in Arizona and Maryland completed a survey in 2018. The average age of participants was 77.8 (SD = 9.4) and the average number of years living in the U.S. was 24.9 years (SD = 13.4). Most participants were first-generation immigrants (94.7%) and reported Chinese as their primary language (91.8%). About 26.5% of participants had ACP conversations with family. Hierarchical logistic regression results suggest that more perceived barriers were associated with lower odds of ACP conversations (OR = 0.87, p &lt; 0.01). Sociocultural factors were associated with greater odds of ACP conversations, including more years in the U.S. (OR = 1.04, p = 0.02) and English language proficiency (OR = 11.85, p = 0.02). Social support had a significant moderation effect (b = -.01, p &lt; 0.01), indicating a larger effect of perceived barriers on ACP conversations among those with lower social support. Findings highlighted the importance of language services, translated informational materials, and social support in facilitating ACP discussions among Chinese American older adults. Community-based ACP facilitators who have both language skills and cultural competence may be particularly beneficial in engaging this population. Effective ways to reduce barriers to ACP at various levels are needed.
HELPING KOREAN AMERICAN OLDER ADULTS THROUGH EDUCATION, RESOURCES, AND VOLUNTEERING: A CASE STUDY OF SOMANG SOCIETY
Authors: Cassidy Jessica , Shin Hye-Won , Lee Kathy 
Published: December 2023

Abstract
Many community organizations serving Korean Americans lack culturally or linguistically tailored services for end-of-life care. Subsequently, Korean American older adults often lack understanding of end-of-life care, particularly advance care planning and hospice. Somang Society is a nonprofit organization serving Korean American older adults and their family caregivers with a mission to promote healthy aging, dignity in later life, and a meaningful death. This study details how Somang Society utilizes education, resources, and volunteer programs to increase the awareness of end-of-life issues among Korean American older adults. The organization provides two distinct community education and volunteer trainings regarding (1) end-of-life care planning program and (2) older adults living with dementia and their family caregivers. They provide community education and volunteer trainings in Korean and expect the volunteers to educate others in the community about the importance of healthy aging, dementia, and advanced care planning. As a result, 15,717 Korean American seniors have filed a living will and advance healthcare directives as of February 2023. In addition, Somang Society emphasizes the importance of whole-body donation for training medical students and healthcare professionals. As a result, 2,134 Korean American seniors have donated or registered for the UCI Willed Body Program through Somang Society since 2008. To further disseminate their programming, the organization actively uses social media to educate Korean Americans on these issues. Their YouTube channel analytics indicate the viewers’ positive responses and the potential impact technology usage can have for sharing education with this hard-to-reach population.
TRANSITION AND STABILITY OF PLACE AND AGING IN LATER LIFE: HOUSING AND NEIGHBORHOOD CONTEXTS
Authors: Oswald Frank , Schmidt Steven , Cutchin Malcolm 
Published: December 2023

Abstract
Transition and stability in housing and neighborhood contexts reflect both, a central field of research and policies on place and aging for health and well-being in later life. Studies have demonstrated effects of improving the physical environment, particularly with respect to specific needs, such as for people living with dementia. Moreover, relationships between perceived housing and health and well-being on the one hand and life transitions and health and well-being on the other hand have been addressed. However, research on complex interactions of place and transitions in later life is scarce. This symposium aims to address the dynamic relationship between transition and stability of place and aging in later life in relation to indicators of good ageing. The first contribution by Eriksson and colleagues presents quantitative results on the relationships between perceived housing and changes in health and well-being over time among community-dwelling Swedish older adults. Second, Kylén and colleagues present quantitative data describing which housing preferences are most important when considering relocation in older age. The third contribution by Slaug and colleagues uses a quantitative approach to qualitative interview data from Sweden and Germany, analyzing sequences of and relationships between life transitions over 10 years. Fourth, Chaudhury and colleagues show data that aims to identify spatial and temporal patterns in activities undertaken outside home by people living with dementia, and ways in which the neighborhood-built environment affects their outdoor mobility and social participation. Finally, Malcom P. Cutchin will serve as the session’s discussant.
HOUSING ATTRIBUTE PREFERENCES WHEN CONSIDERING RELOCATION IN OLDER AGE
Authors: Kylén Maya , Slaug Björn , Iwarsson Susanne , Dahlgren David , Bjork Jonas , Zingmark Magnus 
Published: December 2023

Abstract
For the last decades, interdisciplinary researchers have studied housing preferences of various groups in the population. To contribute to knowledge on the needs and preferences of the aging population we have established a cohort (N=1,509) of adults, 55 years or older, who are considering relocation. The baseline survey included questions on the current housing situation and preferences regarding future housing alternatives. The aim was to investigate preferred housing attributes when considering relocation and whether such attributes differed depending on the type of housing participants wanted to move to. Preliminary results show that having a balcony/patio was rated as most important (84%), with significant differences between men and women. Leisure activities and/or social gatherings initiated by the landlord was the least important (1.5%). Differences in preferred attributes were found between those wanting to move to privately-owned housing (e.g., villa), where having a garden (81%) or a view (57%) were the most important attributes, and those wanting to move to an apartment, where having a balcony (86%) or lift (72.6%) were deemed most important. We expect that the longitudinal follow up of the cohort will contribute with new knowledge on housing preferences among people in later life. Such knowledge is important to inform and inspire planners and policymakers to develop more age-friendly communities, including housing options that better meet the needs of this segment of the population.
LEVERAGING THE COMMUNITY AS PARTNERS TO ADVANCE CANCER RESEARCH IN SOCIALLY DIVERSE OLDER ADULT POPULATIONS
Authors: Grant Shakira 
Published: December 2023

Abstract
Older Black adults with cancer suffer a “double disadvantage” to their health due to the compounding effects of ageism and racism. This “double disadvantage” further fuels the disparities in cancer-related mortality observed for this population. For example, multiple myeloma (MM) is an incurable and debilitating blood cancer that predominantly affects older Black adults. Despite overall improvements in MM-related survival observed following the introduction of novel therapies, older Black persons with MM continue to die at twice the rate of their White counterparts. This survival gap is largely driven by differential healthcare access and disappears when older Black adults are given equal access to care. Using MM as a chronic disease model, we are partnering with a community advisory board to design and pilot test a community lay navigator program that seeks to address some of the upstream determinants of healthcare access that limit how older Black adults newly diagnosed with MM perceive the need for, seek, reach and engage with the healthcare system. Through our foundational qualitative work focused on older North Carolinians (patients and caregivers) affected by MM, we have identified the following multilevel (individual, interpersonal, and community level) intervention targets: trust, knowledge and health beliefs, availability and adequacy of social support, and patient empowerment. In addition, we are leveraging the resources of an established core (Rapid Case Ascertainment) housed within our Comprehensive Cancer Center and linked to the statewide N.C. Central Cancer Registry to facilitate early identification of eligible participants (within 4-8 weeks of diagnosis) and patient outreach.
WHAT CAN OTHER DEMENTIA CARE SETTINGS LEARN FROM GREEN CARE FARMS? AN EXPLORATION OF THEIR FUNCTIONS AND FORMS
Authors: Rosteius Katharina , de Boer Bram , Steinmann Gijs , Verbeek Hilde 
Published: December 2023

Abstract
Green Care Farms (GCFs) are an innovative long-term care alternative in dementia. They aim to better meet residents’ needs by integrating nature and animals into daily life. This study explores the functions of GCFs and possible forms of realizing them in practice. A multiple case study using ethnographic methodology was conducted on two sites: one original GCF established for seven years and one regular nursing home redesigned and recently opened aiming to apply GCF characteristics. Participatory observations (n=58), interviews (n=64), a focus group, an environmental assessment and expert panels were conducted. Six functions of GCFs were identified, crucial for the successful execution of their innovative vision in practice: providing opportunities for purposeful activities, stimulating residents, creating a community, sharing responsibilities, integrating the vision in all actions and continuously transforming. These functions may take several forms, which could be implemented in regular care, taking into account the specific local context.
DIGITAL NARRATIVE GERONTOLOGY AS BRIDGES BETWEEN GENERATIONS TO IMPROVE WELL-BEING, LEARNING, AND SHARED EXPERIENCES
Authors: Pecorini Béatrice Crettenand , Duplàa Emmanuel 
Published: December 2023

Abstract
Elders are an essential society component for the collective success of the demographic transition, for social inclusion and the fight against ageism (Berrut, 2020). Ageism - discrimination by age, is a very present concern. One way to respond to this challenge is to build bridges between generations in society; intergenerational programs can reduce the perception of stereotypes about other generations (Barbosa et al., 2021; Pentecouteau & Eneau, 2017), strengthen intergenerational solidarity, and help develop capital and social cohesion (Topping, 2020). Based on the theories of lifelong learning and intergenerational learning, our research engages digital narrative gerontology (Crettenand Pecorini, 2019). We have organized several meetings in pairs (elder – young) where each pair created a digital narrative from the oral narration of the elder life story, supported by the multimedia skills that the young adult acquired during the workshop we have set up. From individual and pairs semi-directed interviews, logbooks, debriefings, and digital narrative, based on case study thematic analysis, our preliminary results confirm the results obtained in 2019: improved general well-being, reduction in the perception of generation stereotypes, reduction in feelings of loneliness and isolation, strengthening intergenerational solidarity, satisfaction to rediscover one’s life or the projection of one’s life stimulated by example, new knowledge acquisition, as well as the pride of artifact creation and its sharing. This innovative project can be applied in schools, colleges, and universities as well as in community centers and seniors’ residences.
DIGITAL STORIES FROM AN INTERGENERATIONAL, TELEPHONE-BASED REMINISCENCE PROGRAM
Authors: Fields Noelle , Xu Ling , Troutman Brooke , Daniel Kathryn , Westmore Megan , Cassidy Jessica 
Published: December 2023

Abstract
Reminiscence strategies combined with an intergenerational approach may yield social and mental health benefits for older adults with cognitive impairment. There is also evidence to support the use of digital storytelling (DST) with persons with cognitive impairment combined with intergenerational programs. DST typically involves the production of a two-to-five-minute audio-visual clip combining text, images, music, photographs, voice-over narration, and other audio. However, there are few studies that combine reminiscence, DST, and an intergenerational approach with persons with cognitive impairment. The current study is a thematic analysis of DST products created by university students in collaboration with older adults with cognitive impairment (N = 27) as part of a larger project examining how intergenerational reminiscence using DST may improve the social and emotional well-being of persons with memory loss. After the completion of a structured, six-week, telephone-based reminiscence, the younger and older adults co-created a storyboard and script as well as selected photos and music to accompany the narrative in the DST. An interactive team approach using the phases of thematic analysis of the DST products resulted in six themes: 1) family, 2) religion and purpose in life, 3) loves and hates, 4) career/work, 5) stress and coping, and 6) major life turning points. Sub-themes included childhood and early adulthood, family legacy, faith, volunteering, travel, music, and resilience. Findings from the study extend current research by examining intergenerational connections, reminiscence, and the use of DST with persons with memory impairment. We close with recommendations for practice and research.
MEASURING QUALITY IN LONG-TERM SERVICES AND SUPPORTS THROUGH PERSON-REPORTED OUTCOMES: VALUE OF NCI DATA
Authors: Shippee Tetyana , Giordano Stephanie 
Published: December 2023

Abstract
Long-Term Services and Supports (LTSS) include medical, social, and personal care services that people may need to perform activities of daily living due to physical or cognitive impairments. Measuring the quality of LTSS is essential for improving the care and outcomes of people with disabilities and older adults and ensuring that services meet consumer needs. Several frameworks have been developed to measure LTSS quality, including the National Quality Forum’s LTSS Framework. Yet, few data sources are available to measure person-reported quality in HCBS. This symposium will provide an overview of National Core Indicators (NCI) as a unique data source to address this gap. It also includes presentations from researchers from organizations in two states who utilize NCI data – Minnesota and Massachusetts – who will share their perspectives about the value of the data, results from empirical analyses, and how they use and plan to use the data to inform policy. Researchers from the Lurie Institute for Disability Policy will present findings on the association between person-centered planning and key person-reported outcomes in Medicaid HCBS. Researchers from the University of Minnesota School of Public Health and Brown University will share findings from national NCI data on unmet needs among older adults by dementia status and race/ethnicity. They will also share results of analyses in MN, linking person-reported HCBS plan quality and healthcare utilization, using claims data. Collectively, this symposium will address the gap in measurement of HCBS quality nationally and identify key directions for policy and future research.