bluuebunny/crossref_metadata_2025_split huggingface dataset:
FEASIBILITY OF AN AUTOMATED SELF-ADMINISTERED 24 HOUR (ASA-24) DIETARY ASSESSMENT TOOL IN OLDER ADULTS
Authors: Spangler Hillary , Driesse Tiffany , Fowler Michael , Lynch David , Gross Danae , Liang Xiaohui , Batsis John 
Published: December 2023

Abstract

Background
Certain dietary patterns impact trajectories of healthy aging. However, dietary assessment tools can be challenging to use. With the increased technology use in older adults, we aimed to explore the feasibility of completing an online, Automated Self-Administered 24-hour (ASA-24) dietary assessment tool.

Methods
We conducted a randomized, crossover study of n=20 community-dwelling older adults’ (&gt;65 years) preference for self-administered (SA) versus research assistant-administered (RAA) ASA-24. Participants were recruited via ResearchMatch.com and randomly allocated 1:1 to each group and completed either an SA or RAA ASA-24. One week later, the alternative sequence was completed. After each session, participants completed an online 11-item feasibility survey (Likert-scale;1-5, strongly disagree to strongly agree). Mean and standard deviations were reported for each question.

Results
Mean age was 69±3.5 years (90% females), and no differences were observed for sex, age, race, ethnicity, education, or income. Neither group felt a need for RA assistance (p=0.34). However, both groups felt the system was easier to follow with a research assistant (RAA 4.4±1.3 vs. SA 4.6±0.5, p=0.65), particularly when self-administered first (p=0.04). When conducting an SA ASA-24 first, there was less confidence the system could be learned quickly (SA 4.5±0.5 vs RAA 3.4 ±1.0, p=0.001).

Conclusion
Older adults can complete dietary recall using a self-administered online assessment; however, use of a research assistant led to better accessibility. Order of administration method may impact perceived ease of use. Next steps include increasing sample diversity and using an RAA ASA-24 platform to identify dietary patterns that impact aging.
INTERACTIVE VOICE ASSISTANT ROUTINES: A USABILITY STUDY
Authors: Shade Marcia , Yan Changmin , Boron Julie Blaskewicz , Jones Valerie 
Published: December 2023

Abstract
Musculoskeletal pain is prevalent among older adults and is associated with disability and social isolation. This study explored the feasibility of using conversational voice assistant (CVA) routines for proactive interaction and pain reduction with older adults. A 12-week randomized controlled pilot trial was conducted with adults aged 60 years and older who self-reported living alone and chronic musculoskeletal pain. Participants (N=37) were randomly assigned to a standard routine or an enhanced routine group. Data were collected on participants’ CVA engagement, self-reported pain, and system usability. Overall, older adults-initiated morning routines more frequently than the evening routines. The enhanced group initiated more morning routines (M=50.01; SD=33.07) than the standard group (M=16.11, Z= -1.70, p&lt;.05, r= -.28). Participants reported significant post-study pain reduction, t(35)=1.84, p&lt;.05, r= .30 (baseline mean=3.60, SD=1.93; post-study mean=3.19, SD=1.97); there were no significant group differences in amount of pain reduction. The enhanced group participants rated the system usability as good (Mean=74.81, SD=9.28); those in the standard condition reported a lower-tier rating of “OK” (Mean=65.88, SD=12.76), t(31)= -2.29, p&lt;.05, r=.37. System usability predicted pain reduction (B= -0.55, t(13)= -2.46, p&lt;.05) in the enhanced condition (R2=.30, F(1,14)=6.07, p&lt;.05), but the association was non-significant in the standard condition (R2=.14, F(1,15)=0.29, p=.60). These results show that the CVA routines were feasible to use with older adults, and resulted in perceived pain reduction. Future creation of tailored routines based on the older adults’ pain characteristics, personality, and interaction preferences when alone, may further increase engagement.
CONDUCTING A COUNTYWIDE ALZHEIMER’S DISEASE AND RELATED DEMENTIAS CAREGIVER LANDSCAPE ANALYSIS
Authors: Robinson D’Artagnan , Barragan Noel , Parrish Monique , Benton Donna , Reyes Mariana , Mage Susanna , Kuo Tony 
Published: December 2023

Abstract
In Los Angeles County (LAC), approximately 1 in 5 caregivers provide care to older adults with dementia and cognitive impairment. By 2040, a projected 1.5 million Californians will be living with Alzheimer’s disease and related dementias, foreshadowing an unprecedented need for family caregivers across the state. In 2021, the LAC Department of Public Health launched the Centers for Disease Control and Prevention-funded LA BOLD initiative with the intent of developing a strategic plan to address dementia awareness and care in LAC, including improving local infrastructure for supporting unpaid family caregivers. To support this effort, LA BOLD commissioned the University of Southern California Family Caregiver Support Center to conduct a landscape analysis of the caregiver population in LAC. The analysis used a multi-method approach that included: primary analysis of community-based organization surveys, stakeholder interviews, focus groups with family caregivers, and secondary analyses of California Health Interview Survey and California Caregiver Resource Center System CareNav™ data and an environmental scan of best-practice caregiving models in use in other states. Results informed the development of three functional recommendations specific to LAC caregivers: 1) Leverage existing infrastructure to strengthen and build family caregiver services and supports; 2) Promote health care payer, provider, and system recognition of and support for family caregivers; and 3) Increase respite services for caregivers. This presentation highlights the methods and the findings from the landscape analysis, providing insights into the barriers and opportunities that a growing caregiver population of persons with dementia may pose to LAC.
CONTACT: AN ONLINE COACHING TOOL TO EMPOWER CARE PARTNERS TO FACILITATE CONVERSATIONS IN NURSING HOMES
Authors: Towsley Gail , Terrill Alexandra , Bayles Gregory 
Published: December 2023

Abstract
In the post COVID-19 context, nursing homes struggle with staffing. The role of care partners (CPs; relative, friend) has never been more crucial, including the need to advocate for persons living with dementia (PLWD) and being an integral part of the care team. The online CONversaTion cAre Coaching Tool (CONTACT) empowers CPs of PLWD prepare for conversations that may include communicating what matters to the PLWD, need for a different type of care, or treatment decisions. We engaged CPs to complete and provide feedback on CONTACT, which includes four sections: 1) education about nursing homes to clarify key terms/processes 2) guidance on goal setting to identify what is important; 3) creation of action plan to achieve the goal; and 4) reflection on the impact of achieving the goal. CPs (n=8) completed a survey about using the tool (acceptability (4 items), appropriateness (4 items), feasibility (4 items); scale of 1=strongly disagree to 5=strongly agree), and participated in a focus group to discuss the tool’s content and function. CPs favorably rated the tool. Mean ratings for acceptability ranged from 4.13 – 4.25, appropriateness 3.88 – 4.43, and feasibility 4.13 – 4.57. CPs reported that the tool was clear, simple, logically organized, informative, and it provided direction for starting a conversation. They liked the definitions of terms, large response buttons and that instructions were provided via video and in writing. Recommendations included additional videos depicting conversation prompts and scenarios, and utilizing community-based programs such as the Ombudsman office to disseminate CONTACT.
FAMILY INVOLVEMENT IN BRITISH COLUMBIA LTC FACILITIES DURING A PANDEMIC: THE IMPACT OF COVID-19 RESTRICTIONS
Authors: Christianson Tracy , Appiah-Kusi Evans , Bremner Jordan , Filewich Andrew , Qazi Amna , Reid Colin 
Published: December 2023

Abstract
Family involvement in long-term care is linked directly to LTC resident quality of life and family satisfaction with care. The public health restrictions implemented to protect the vulnerable LTC population, the majority of whom have some type and level of dementia, represented a serious breach of families’ ability to visit and care for their institutionalized loved ones. While much of the early research on the impact of the restrictions focused on the LTC resident and the paid care staff, the purpose of this study was to explore what impacts COVID-19 restrictions had on family involvement and family well-being in LTC facilities across the province of British Columbia. A mixed-methods design using a survey, interviews, and arts-based focus groups was the approach implemented. Families (direct, friends, legal guardians) of residents living in long-term care settings were invited to participate. Using a nested approach, online and paper-based surveys (N=55) were distributed, one-to-one interviews conducted (N=19), ending with two arts-based focus groups (n=4 each focus group). Qualitative interview data revealed six different but interconnected themes through the thematic analysis of the data. The themes were: 1) Quality of life, 2) Quality of care, 3) Mental Health concerns, 4) Communication, 5) Communication Strategies, and 6) The Rules. Quantitative results indicated positive relationships between satisfaction with care and a series of variables that aligned with the qualitative themes (example: satisfaction and treatment of family by LTC staff). Strategies offered by family participants to improve public health policies for future outbreaks are reviewed.
ONLINE MEDICAL RECORD (OMR) USE IN CAREGIVERS OF PEOPLE WITH DEMENTIA IN THE UNITED STATES
Authors: Inoue Megumi , Oh Kyeung Mi , Beran Krista , Booker Emma , Koizumi Naoru 
Published: December 2023

Abstract

Objective
Studies have found that there are higher levels of stress among informal caregivers of individuals with dementia. As a result, it is important to seek ways to reduce their burden. Online Medical Records (OMRs), often referred to as patient portals, provide effective communication tools to caregivers and the use of OMRs have been found to have the potential to ease their stress levels. This study examined OMR usage in informal caregivers of people with dementia and identified factors that were associated with their usage.

Methods
Data came from the HINTS, a National Cancer Institute (NCI)-sponsored survey of American adults. We merged data from HINTS 5 cycles 2, 3, and 4 administered between 2018 and 2020 into 1 data set. Our analytical sample included a total of 304 informal caregivers of people with Alzheimer’s disease. The outcome variable was OMR use in the last 12 months, and independent variables included age, sex, race and ethnicity, education, household income, marital status, employment status, relationship to care recipient, and the number of chronic conditions. Data was analyzed using multivariate logistic regression.

Results
53% of caregivers have used OMRs at least once in the past 12 months. Caregivers with a higher level of education and greater number of chronic conditions are more likely to have used OMRs.

Conclusion
Being able to access OMRs could reduce caregiver stress. There are certain caregiver characteristics that increase the likelihood of them utilizing this resource. Targeted approaches may be necessary to increase the range of use.
SOCAL SAVVY CAREGIVER: FOCUS GROUP INSIGHTS
Authors: Aguilar Iris , Aranda Maria 
Published: December 2023

Abstract
Dementia due to Alzheimer’s disease (AD) is a public health crisis in our nation. More than 1.6 million Californians provide unpaid care for a person with AD. Qualitative data from focus group discussions were obtained from unpaid/informal/family caregivers in a clinical trial testing the efficacy-effectiveness of Savvy Caregiver Express compared to the Savvy Caregiver Program.
Objectives: 1) explore class participation motivations, 2) perceived class benefits, and 3) class improvement recommendations.
Methods: We randomly selected and invited participants who had completed the class intervention cycle. Focus group subsample (n=25) was 84% female, mean age 54.48 years (28 to 80 years); 36% non-Latino white, 20% Latino, 8% African American, 4% Asian and American/Pacific Islander. 60% cared for a parent (44% mother and 16% father), 16% cared for a spouse/partner, 20% other relatives, and 4% friends. Focus group were transcribed, coded, and themes were created using inductive analysis.
Findings: Themes identified for discussion topic #1: seeking to gain knowledge about AD and stages, peer support, and caregiver competence; #2 knowing AD stages, management of meaning, caregiving mastery, and self-care; and #3 audiovisuals improvements, class structure changes, printed materials, and ongoing virtual sessions.
Implications: Participation in caregiving classes are critical to the improvement of quality of life for the person with dementia and caregiver. These findings offer actionable changes to improve the transformation of classes and adjust future materials or provide additional resources to help participants fully understand the course and better understand the motivations for increasing engagement with caregivers.
“THERE’S A LOT OF FACTORS”: UTILIZING I-POETRY TO UNDERSTAND VACCINE-HESITANT DECISION MAKING
Authors: Van Vleet Bryce , Fuller Heather , Huseth-Zosel Andrea , Carson Paul 
Published: December 2023

Abstract
Despite higher vaccinations rates as compared to other age groups, many US older adults remain under-vaccinated against common, preventable diseases leaving them at increased risk of serious illness, hospitalization, or death posed from diseases including shingles, pneumonia, influenza, and novel coronavirus. This study investigates the underlying reasons older adults have for not getting vaccinated. Eight older adults (Mean Age = 73.86) selected from a larger interview study conducted in North Dakota were identified as being vaccine hesitant as indicated by receiving two or fewer vaccines from a list of five common vaccines including influenza, shingles, pneumococcal, and initial and booster doses of the COVID-19 vaccine. Participants were asked, “How do you decide about whether or not to get a specific vaccine?” Their open-ended responses were analyzed using the I-poetry qualitative methodology which combined participants’ “I” statements into a poem for all eight participants that reflected their underlying motivations of vaccine hesitancy. This poem was structured in stanzas to highlight and convey overarching themes including: practical barriers, vaccine-alternatives, and skepticism. Practical barriers included allergies and concerns about side effects. Vaccine-alternatives highlighted a belief in natural immunity, vitamins, and exercise. Skepticism was directed at government agencies and the efficacy of a vaccine. These findings highlight potential benefits to providing medical professionals with first-person narratives from vaccine hesitant older adults which could help clarify sources of unease. Implications can be drawn for better understanding this at-risk population and developing tailored and effective interventions to bolster older adults’ vaccine uptake.
COMPARISON OF SEDENTARY BEHAVIOR GUIDELINES FOR OLDER ADULTS: A REVIEW OF LITERATURE AND QUALITY APPRAISAL
Authors: Huang Amy , Wang Ellen , Sanger Stephanie , Papaioannou Alexandra , Rodrigues Isabel 
Published: December 2023

Abstract
Most older adults (≥65 years) accumulate &gt;8.5 hours/day of continuous sedentary time, which is associated with increased risk of metabolic syndromes and falls. The impact of increased sedentary time in older adults globally has prompted the development of national and international sedentary behaviour guidelines. The purpose of our review was to identify and compare national and international sedentary behaviour guidelines for older adults and appraise the quality of the guidelines to promote best practice in guideline development. We conducted our search in Medline, Embase, Global Health and relevant grey literature. We included the most updated guidelines for older adults written in English. AGREE II was used to assess the quality of the recommendations. We identified eight national and international sedentary behaviour guidelines for older adults. The guidelines were developed from reviews, cohort studies, knowledge user opinions, or other guidelines; all guidelines were based on low quality and certainty of evidence. The terms “sedentary behaviour” and “sedentary time” were used interchangeably, and the definitions of both terms were not consistent between guidelines. Six guidelines recommended a reduction in total time with one suggesting limiting sedentary time to &lt; 8 hours/day. Three guidelines suggested reallocating sedentary time to light activity, with one recommending to stand-and-stretch every hour for 5-minutes. Most sedentary behaviour guidelines for older adults are based on low quality and low certainty evidence. Terminology, definitions, and recommendations were not consistent between guidelines. Further work is needed to develop evidenced-based recommendations specific to older adults.
LONG-TERM CARE CONCERNS AMONG CHILDLESS OR SINGLE CAREGIVERS TO PEOPLE LIVING WITH DEMENTIA
Authors: Couch Elyse 
Published: December 2023

Abstract
It is estimated that 77% of people living with dementia receive help with self-care and household activities from informal caregivers (typically family members), meaning there is a significant proportion of the population not receiving informal support. In this qualitative study, we aimed to explore similarities and differences in family caregivers’ concerns about organizing their own care should they develop dementia in the future between those who were childless and/or single and those who had a current partner and children. We interviewed 12 British current and former dementia family caregivers, 5 of whom were childless and/or single, 9 were women and 3 were men, with a mean age of 61. All 5 childless and/or single participants were women. Participants perceived a caregiver as vital for ensuring the person with dementia received the care they needed from services. Caregivers who were childless and/or single expressed concern that by not having someone to be their caregiver should they develop dementia in the future, they would be vulnerable to receiving poor care. In these cases, childless and/or single caregivers described the possibility of exploring options for suicide or euthanasia should they be diagnosed with dementia in the future. Similar sentiments were not expressed by caregivers with current partners and children. While this study uses a small sample size, these findings highlight persons without children and/or a partner have serious concerns about their future care, should they develop dementia. More research is needed to understand how to better support people with dementia without caregivers.
ASSESSING THE NEEDS OF OLDER ADULTS IN RURAL WEST TEXAS
Authors: Macaluso Suzie , Free Julia 
Published: December 2023

Abstract
With 1 in 5 adults over the age of 65 living in rural areas, understanding their unique concerns and needs becomes increasingly important. This study was carried out in partnership with the West Central Texas Area Agency on Aging (WCT AAA) to identify the top concerns of older adults in rural West Texas. The survey was conducted in person at four locations across the region served by the WCT AAA. A total of 183 respondents completed the survey and their responses to the question “what are the biggest issues facing older adults today” along with demographic information were collected. Participants were between the ages of 56 and 95 years old with a mean age of 76 years old. 60% of the participants were female and 40% were male. Respondents were predominantly White, 80%, with 16% Hispanic or Latino, and 3% Black or African American. The most common concern among respondents was physical health and well being with the increasing cost of living being the second most frequent response. Additionally, residents from more rural counties reported social interaction as more important than either health or cost of living. These findings highlight the need for targeted interventions to address the concerns of older adults in rural areas, particularly related to healthcare access and social isolation. Strategies such as telemedicine and community-based programs to address transportation and social isolation may be particularly effective in addressing these concerns.
EFFECTS OF CIVIC BEHAVIOR AND DEPRESSION KNOWLEDGE ON DEPRESSION STIGMA AMONG OLDER CHINESE: A PATH ANALYSIS MODEL
Authors: Yau Jessie Ho-Yin , Liu Tianyin , Leung Dara Kiu Yi , Tang Jennifer Yee-man , Wong Gloria Hoi-Yan , Lum Terry 
Published: December 2023

Abstract
Older adults are at risk of experiencing depression personal stigma because of negative attitudes towards older persons and the creation of popular stereotypes, therefore reducing stigma becomes necessary. By receiving training and acquiring depression knowledge from engaging in civic behavior, such as providing voluntary services to peers in the community, these knowledge helps counter false assumptions and reduce personal stigma. However, previous stigma-related studies mainly conducted in Western countries and in relation to schizophrenia, research on depression stigma among older Chinese remain scarce. The goal of this study was to examine depression knowledge as a moderator to test its influence on the relationship between civic behavior and personal stigma. A cross sectional survey was conducted with 145 older adults in Hong Kong, they completed Older Adult Mental Health First Aid training and engaged in voluntary services related to mental health promotion after the training. Civic behavior, depression knowledge (symptoms, facts, myths), personal stigma (stereotype, prejudice, discrimination), and demographics were collected. Path analysis was performed to determine the structural relationship between the variables. Civic behavior positively affected symptoms (β=.089,p=.008) and facts (β=.088,p=.001). Symptoms negatively affected prejudice (β=-.627,p=.014). Facts negatively affected all dimensions of personal stigma while myths positively affected all dimensions of personal stigma. Results of the measurement showed an excellent fit (χ2 = 148, χ2 /df = 7.048, RMSEA = .029, SRMR = .023, CFI = 0.997, TLI = 0.98, p&lt;.001). Mediating effects were computed by bootstrap method; facts as a significant mediation was confirmed. Findings and implications were discussed.