bluuebunny/crossref_metadata_2025_split huggingface dataset:
PRELIMINARY FEASIBILITY, UTILITY, AND ACCEPTABILITY OF THE TBI-AD/ADRD CAREGIVER SUPPORT INTERVENTION (TACSI)
Authors: Birkeland Robyn , Albers Elizabeth , Louwagie Katie , Ratner Edward , Finn Jacob , Chesak Sherry , Gaugler Joseph 
Published: December 2023

Abstract
Research has established that dementia care partners may encounter socio-emotional and physical health concerns as a consequence of providing dementia care. Similarly, care partners for people living with Traumatic Brain Injury (TBI) often experience a range of stressors and negative mental health outcomes due to their care demands. This study aims to support the unique subset of family care partners facing the challenge of caring for relatives who have both diseases, Alzheimer’s Disease/Alzheimer’s Disease related dementia (AD/ADRD) and a history of TBI. Phase I of this study focused on the design and subsequent refinement of the TBI-AD/ADRD Caregiver Support Intervention (TACSI). TACSI is a six-session telehealth intervention providing tailored psychosocial and psychoeducational coaching. Session topics include education on TBI and dementia, stress management, lifestyle planning, and communication skills. In partnership with the Minneapolis VA and the Mayo Clinic-Rochester, we enrolled 15 care partners for Phase I. Mixed methods data from 3-month follow-up surveys and qualitative data from post-intervention interviews established the feasibility, utility, and acceptance of TACSI. Care partners found the program valuable and would recommend it to others. They reported that TACSI helped with their stress management. Some participants shared that TACSI would provide greater benefit to newer caregivers needing more education on the diseases and/or caregiving. Phase I feedback will be applied to improve TACSI content and delivery for the Phase II randomized controlled trial evaluation. TACSI Phase I utility, acceptance, and feasibility outcomes will be highlighted as well as next steps for evaluation.
QUALITY-OF-LIFE INDICATORS IN CAREGIVERS OF OLDER ADULTS WITH DEMENTIA: CATEGORIZATION USING THE WHO-ICF
Authors: Udoh Idorenyin , Mpofu Elias 
Published: December 2023

Abstract
The quality of life of caregivers of persons with dementia greatly influences their health, physical, psychological, and emotional wellbeing. This in turn influences the quality of care they deliver to persons with dementia. This scoping review aimed to map emerging evidence on the quality of life indicators using service and environmental support factors and a subsequent characterization using the WHO-ICF. The WHO-ICF provides a platform for the understanding of this factors and how it influences the overall wellbeing of caregivers. Using a systematic scoping review approach, we identified 14 studies on service and environmental support influencing quality of life of caregivers of persons with dementia. The search included EMBASE, CINAHL, the Cochrane Database of Systematic Reviews, JBI Evidence Synthesis, and Epistemonicos. A narrative synthesis of the data revealed that the quality of life of caregivers is greatly influenced by service and environmental support factors which in turn influences their activities of daily living and that of persons with dementia. The service and environmental services factors include services from government, family, community, healthcare professionals, peer groups, and activities available, Attitudes from individuals especially family, spouse and others , environmental support and support relationships improving quality of life of caregivers of persons with dementia requires an understanding of the prevailing service and environmental support which drive their commitment to quality care for older adults with dementia especially in a pandemic environment. Keywords: Caregiver, dementia, service, environmental support, quality of life.
RUNNING AND WALKING IN DEMENTIA AND MILD COGNITIVE IMPAIRMENT: A SCOPING REVIEW
Authors: Mast Benjamin , Gaballa Fairouz , Gillespie Dylan , Graves Kaitlyn , Simon Darby , Ertle Emilee , Sanfilippo Nina , Babazadeh Romina 
Published: December 2023

Abstract
Growing evidence suggests physical exercise may reduce dementia risk, but there has been little investigation of specific forms of exercise for people living with dementia and cognitive impairment. Prior reviews show running and walking have mental health benefits in the general adult population, but no reviews of walking and running among people living with dementia and mild cognitive impairment have been published. A scoping review was conducted to identify and evaluate evidence concerning whether running and walking affect dementia risk, improve/maintain cognitive functioning, and improve quality of life and psychological well-being. PsycInfo, Medline, CINAHL, and SPORTDiscus were searched to identify studies with the target population (people living with dementia or mild cognitive impairment) and target activities (running, jogging, walking). 1153 records were uploaded into Covidence and 821 studies were excluded based on abstract reviews. Full text review yielded 49 papers. Forty-seven studies examined walking and a broad range of outcomes: cognition, ADL functioning, quality of life, behavioral expressions of distress, social participation, and identity. The remaining two studies examined (1) a combination of running and walking among people with mild cognitive impairment and (2) the link between cognitive decline and a history of running, jogging, and walking (past ten years). This review shows growing interest in walking as an intervention with many possible benefits for people living with dementia or mild cognitive impairment. Studies of jogging and running are still relatively rare in this population. Additional contributing authors: Hannah Gardner, Clarissa Geibel, Katherine King, Jessica Strong, Travis Saunders, Christine Wise.
IDENTIFYING RESILIENT PERSONALITY THROUGH LATENT PROFILE ANALYSIS IN SEXUAL MINORITY MIDDLE-AGED AND OLDER ADULTS
Authors: Nelson Christi 
Published: December 2023

Abstract
Research has found evidence of resilience in sexual minority (i.e., lesbian, gay, bisexual) adults, despite experiencing higher rates of poorer health and facing additional stressors such as discrimination and victimization. Yet, very limited research has been conducted on resilience in this marginalized group. Utilizing data from the Midlife in the United States study, this study conducted latent profile analysis (LPA) using the Big Five personality traits (i.e., openness, conscientiousness, extraversion, agreeableness, neuroticism) to identify distinct personality profiles in a sample of sexual minority and propensity-score matched heterosexual middle-aged and older adults (n=477, mean age= 57.3, SD= 10.9 years, age range= 40-83 years). Additionally, the associations between the personality profiles and health-risk/promoting behaviors were assessed. Four profiles were identified: Average (35.2%), Resilient (47%), Overcontrolled (7.3%), and Undercontrolled (10.5%). The results found that Resilient sexual minority participants were significantly more likely to engage in problematic drinking but were also more likely to have a routine physical exam than Resilient heterosexual participants. Both sexual minority and heterosexual participants with a Resilient personality profile were more likely to engage in moderate physical activity than their counterparts with other personality profiles. These results suggest that sexual minority adults have the potential for resilience which is often overlooked in research. This is one of the first studies to use LPA to identify personality profiles in a sample with a focus on sexual minority participants. Most previous research using LPA to identify personality profiles did not include data on sexual orientation.
RECRUITING AND RETAINING RESIDENTIAL CARE COMMUNITIES DURING THE COVID-19 PANDEMIC: LESSONS LEARNED
Authors: Orsulic-Jeras Silvia , Cordell Ashlee , Powers Sara , Ejaz Farida , Sanders Lisbeth 
Published: December 2023

Abstract
Demands within residential care communities have escalated throughout the Covid-19 pandemic as meeting basic care needs has become more critical. Non-pharmacological interventions that aim to alleviate care strain and promote person-centered care are even more important now, as residents have been significantly impacted by social isolation and loss. This presentation highlights successes and challenges faced by researchers and residential care communities related to study recruitment and retainment efforts during the Covid-19 pandemic while conducting a fidelity trial of LifeBio MemoryTM: a novel app-based product designed to collect life story information from persons living with dementia (PLWD). The target sample is comprised of residential care staff (n=60) and PLWD (n=242) across ten residential care communities in the state of Ohio. Successes presented include: 1) high enthusiasm for the study and 2) strong relationships built between researchers and site liaisons. Significant challenges faced include: 1) organization-wide staff shortages, 2) low overall resident census, and 3) Covid-19 outbreaks and quarantines. Key lessons learned include: 1) researchers and residential care communities face competing demands as a result of the Covid-19 pandemic and 2) the Covid-19 pandemic has changed the landscape of residential care and research. The importance of efficient field operations, supportive training resources, and contingency plans when conducting studies in residential care will be discussed.
“WE DON’T TAKE CARE OF OURSELVES AS WELL AS WE NEED TO.” A QUALITATIVE STUDY OF FAMILY CAREGIVERS’ SELF-MANAGEMENT
Authors: Baik Dawon 
Published: December 2023

Abstract
Despite the importance of enhancing family caregivers’ (FCGs) physical and mental health to prevent FCGs from becoming care recipients themselves and provide a better quality of care to their care recipients, FCGs are not likely to take care of themselves. In this study, we examined the physical and mental health status and challenges in self-management among older FCGs of persons with heart failure (HF-FCGs). We administered to 15 older HF-FCGs, a demographic survey, the Charlson Comorbidity Index, a health-related quality of life (HRQoL) instrument (SF-36) and conducted semi-structured interviews. Mean age was 65.9±4.4 years, eleven were female, and thirteen were spouses. Chronic diseases were reported among HF-FCGs as; 47% arthritis, 33% obesity, hearing impairment, and visual impairment, and 20% depression and anxiety. HRQoL ranged from 52.3 (±18.8) to 84.3 (±10.8) across the eight subscales. The Energy/Fatigue subscale had the lowest (poorest) score on the SF-36. The challenges in their own health care management were a lack of time and concerns related to symptoms worsening of persons with HF. Most participants were struggling to manage their mental health. They reported stress, anxiety, difficulty staying positive and balancing their mood. Other challenges included managing pain from surgeries (e.g., hip replacement). Many participants felt that they did not take care of themselves as much as they needed, and should receive education to improve their own mental, physical, and social health. Future studies should design and test tailored, caregiver-centered support interventions that enhance health and quality of life in the older caregiver population.
ENGAGEMENT DURING POST–ACUTE CARE TRANSITION: PERCEPTIONS AND EXPERIENCES OF DEMENTIA FAMILY CAREGIVERS
Authors: Tadesse Ruth , Lyons Karen , McKenzie Glenise , Hart Sara , Ellington Lee , Cloyes Kristin 
Published: December 2023

Abstract
Hospitalized persons with dementia (PwD) are three times more likely to discharge to skilled nursing facilities (SNF) than those without dementia, and family caregivers are essential during post-acute care transitions (PACT). Descriptions of caregiver engagement are largely provider-centric, derived from either acute or residential settings. Little is known about PACT experiences of family caregivers. This study explored meaning, barriers, and facilitators of engagement for family caregivers navigating PACT, and elucidated caregiver support needs. An interpretive descriptive approach, using Meleis’s Middle Range Transition Theory was used to interview family caregivers during a PACT. Data were inductively coded and thematically analyzed. A conceptual framework illustrating caregivers’ meaning of engagement was developed, and facilitators, barriers, and needs were described. Participants (n=15), mostly white (n=12, 80%), female (n=13, 87%), married (n=7, 47%), adult children (n=11, 73%), average age of 63 (range: 38-81, SD=12.9). The core concept was advocacy. Key related themes were caregivers’ sense of being present, communication with providers, and meaningful connections with the PwD. Barriers to engagement centered on poor communication from professional caregivers and being isolated from the PwD. A facilitator to engagement was effective communication with professional caregivers. Similarly, caregivers’ support needs included receiving information related to the transition, and the health status of the PwD. Communication was central to both caregiver engagement and advocacy of PACT. Future policy/practice recommendations should include communication training for both providers and caregivers. Interventions that facilitate caregivers’ shared access and input into health information during PACT will promote integral roles on the care team.
EXPLORING THE IMPACT OF CHORAL SINGING ON CHANGE IN PERCEIVED DISTRESS FOR CARE PARTNERS OF PERSONS WITH DEMENTIA
Authors: MacDonald Stuart , Tamburri Nicholas , McDowell Cynthia , Smith Andre , Dujela Carren , Sheets Debra 
Published: December 2023

Abstract
Family care partners (CP) of persons with dementia (PwD) report high levels of psychological distress that impact many facets of their lives. Arts-based interventions have shown promise for improving psychological health. Here, we describe findings from the Voices in Motion (ViM) study, a weekly lifestyle intervention for CP-PwD dyads, with specific emphasis on examining the impact of choral singing on level and change in perceived distress for CP. Data from n=29 CP (Mage=67.7 years, 80% female) were used to examine change in caregiver distress, indexed using the Zarit Caregiver Burden Interview (ZBI). ViM employed an intensive longitudinal design characterized by monthly retests embedded within 3.5-month choral seasons (up to 7 assessments per person). Choral seasons were separated by a 4-month summer break, yielding a naturalistic ABA experimental design optimal for evaluating the impact of choral singing on caregiver distress. Multilevel models of change with piecewise splines were fit; REML was employed due to its advantageous properties for small samples. A significant reduction in caregiver distress (-1.14 units per month, p&lt;.01) was observed across the 3.3-month span of season 1. Following the 4-month summer break, level of caregiver distress at the outset of season 2 had increased back to initial baseline levels (ZBI =19.9 units – a moderate to borderline-high level), thereby underscoring the importance of the choir intervention. These findings suggest that lifestyle engagement may offer an effective complement for lessening the impact of caregiver distress for CP, with implications for the development of dementia care plans.
HOW CAREGIVERS DIVIDE RESPONSIBILITIES: A LATENT CLASS ANALYSIS OF US CAREGIVING ARRANGEMENTS
Authors: Ice Erin 
Published: December 2023

Abstract
Family and other unpaid caregivers provide the bulk of caregiving for older adults, but we know little about how kin divide responsibilities amongst themselves, and how they share tasks with paid caregivers. This study identifies the common “care configurations” that emerge to support older adults with functional limitations. Studying older adults (age 65+) who received assistance from a caregiver in the National Health and Aging Trends Study Wave 5 (n = 4,182), I generate an extensive battery of caregiving arrangement indicators, including household, physical care, transportation, and administrative assistance provided by spouses, children, other unpaid kin, or paid caregivers. I use latent class analysis and adjust for survey design to identify common configurations. I find four primary care configurations. In the most common configuration (42%), partners provided all assistance and most often helped with household chores. Conversely, children often assisted with transportation while sharing other responsibilities with paid caregivers. Older adults with limited physical capacity, probable dementia, and Medicaid were most likely to belong to the only configuration featuring paid caregiving. By studying the full population of older adults who receive care assistance, this study provides a broad perspective on how older adults rely on unpaid kin caregivers and when they rely on paid caregiving. In particular, it identifies transportation assistance as an overlooked form of caregiving and demonstrates that children are most frequently dividing responsibilities with other kin or paid caregivers.
ARTIFICIAL INTELLIGENCE IN MENTAL HEALTH FOR THE AGING POPULATION: A SCOPING REVIEW
Authors: Wei Duo Helen , Hernandez Bianca , Burdick David 
Published: December 2023

Abstract
Artificial intelligence (AI) has significant potential in mental health research and service delivery for the aging population. This poster provides an overview of its evolving utilization, including research methods, data sources, and predictors of mental health. The review of 26 articles from 2015 to 2023 found that surveys/questionnaires, clinical data, non-clinical data, and electronic health records are the most commonly used data sources, with clinical data being the most common, accounting for more than 50% of the articles. The frequently utilized AI techniques in mental health research for older adults were supervised learning (65.4%), deep learning (42.3%), unsupervised learning (7.7%), NLP (7.7%), and semi-supervised learning (3.8%). Mental health factors that received the most attention in the research were anxiety/depression (65.4%), dementia (Alzheimer’s) (38.5%), mild cognitive impairment (23.1%), suicidal ideation (15.4%), and trajectory of cognitive decline (7.7%). AI is currently employed in various aspects of mental health research for older adults, including identifying and diagnosing mental health conditions at an early stage, monitoring mental well-being, assessing the severity of mental health conditions, predicting cognitive trajectories, and providing assistance in treatment. The recent application of generative language models, such as ChatGPT, has further advanced the field of AI in mental health research. However, ethical concerns such as bias, privacy, and transparency must be addressed before widespread implementation. In conclusion, AI has great potential as well as risks and ethical concerns for mental health research and service delivery to aging populations, but further research is needed.
DEVELOPING AND IMPLEMENTING A NATIONWIDE CURRICULUM FOR AGING STUDIES. WHAT ARE THE KEY CONSIDERATIONS FOR GHANA?
Authors: Karikari Grace , Asante Samuel 
Published: December 2023

Abstract
In 2019, Ghana reported the implementation of a Geriatric Medicine Fellowship Program within the Faculty of Family Medicine at the Ghana College of Physicians and Surgeons (GCPS). Though this is a laudable effort to address the specialized workforce shortage the country is facing, the GCPS program is meant to provide an in-country specialization path for physicians desiring to become geriatricians. There are currently no national standardized aging studies, training programs or curricula available to other students in disciplines such as nursing, psychology, public health, and social work. Students in the public, government-owned tertiary institutions are offered isolated courses related to aging and the needs of older adults. To effectively address the workforce shortage issue and improve the overall health and wellbeing of older adults in Ghana, it is imperative to train students in diverse fields and disciplines with the needed knowledge and skills to provide the various specialized services for the aging population. This presentation highlights a proposal to the government of Ghana to consider some key issues and recommendations related to developing and implementing a nation-wide aging studies programs in the public higher institutions. Five key evidence-based areas are extensively discussed: (1) Aging studies in Ghana should be culturally relevant. (2) Aging studies in Ghana should address the needs of older Ghanaians. (3) Aging studies in Ghana should be competency-based. (4) Aging studies in Ghana should be implemented and evaluated by expert-educators. (5) Aging studies in Ghana should be attractive to potential service providers.
PERSPECTIVES OF SPEECH LANGUAGE PATHOLOGISTS AND STUDENTS ON PROVIDING CARE TO PEOPLE WITH DEMENTIA
Authors: Green Makenna , Mayer Jamie , White Laura 
Published: December 2023

Abstract
This scoping review aimed to explore the extant literature on the experiences and views of speech-language pathologists (SLPs) and SLP students regarding the provision of care to people living with dementia (PLWD). A systematic search was conducted using 10 databases. Sources were included if participants were practicing SLPs and/or students enrolled in undergraduate communicative disorders or graduate SLP programs, and if the concepts of experiences or views on the provision of SLP services to PLWD were explored in the context of any clinical or educational setting. Included sources were systematically extracted for pertinent study characteristics, including SLP roles and settings, concept domains, measures utilized, and facilitators/barriers to effective dementia care. The majority of the 29 included sources were published in either academic journals (n=20) or professional organization publications (n=5) and used a cross-sectional study design (n=19). Participants included SLPs (n=22), and masters (n=6), undergraduate (n=3 studies), and doctoral students (n=1). The included studies addressed five primary conceptual domains: experiences, attitudes, roles, knowledge, and confidence. The most commonly addressed barriers and facilitators of effective dementia care were education and training. Mapping and analysis of the current body of knowledge within this scoping review illuminated several knowledge gaps that we propose need to be addressed to meet the education and training needs of SLPs to provide optimal care to PLWD. These include addressing core competencies, systematically measuring educational intervention outcomes, and developing more evidence-based education and training programs both within and outside of an interprofessional collaborative context.