bluuebunny/crossref_metadata_2025_split huggingface dataset:
Parkinson AKTIV - Non-pharmacological Treatments in an Innovative Parkinson's Network
Authors: Huchtemann Tessa , Achtert Katharina , Warnecke Tobias 
Published: January 2024

Introduction: Chronic progressive neurodegenerative diseases severely impact the quality of life of affected patients. Due to the progressive nature of Parkinson’s disease as well as the complex motor- und non-motor symptoms, individual treatment plans need to be adjusted frequently. This requires mutual communication between various health care providers that also takes into account the growing evidence-based expertise, especially on non-pharmacological treatment options. In order to facilitate regular interdisciplinary communication multiple Parkinson’s disease networks were established in various regions. Here we describe the development, implementation and evaluation of a digital platform that allows easy and quick exchange of standardised treatment recommendations between health care providers.
Methods: In this quasi-experimental study with control group, 185 patients are recruited in both groups. Patients in the intervention group are enrolled from the Westphalian region Münsterland, whereby the control group consists of patients outside this region and receive treatment as usual and as prescribed by their neurologists. For the intervention group participating health care providers are recruited in our region and received 4 hours of specialised training. The patients receive therapies planned and coordinated through the digital platform for 12 months. The evaluation is conducted in a mixed-methods approach. Primary outcome for the effectiveness evaluation is quality of life (PDQ-39), further outcomes are UPDRS, H&Y as well as Schwab & England. The process evaluation consists of a social network analysis and team effectiveness analysis to assess the degree of networking between healthcare providers. Further, an economic evaluation is conducted.
Conclusion: So far, 26 neurologists, 42 physical therapists, 47 occupational therapists and 31 speech therapists and 120 patients could be included in the study. Recruitment will continue until March 2023 and we expect first results in February/March 2023. We expect the intervention to have a significant impact on improving disease-related symptoms and communication between practitioners.
Sexual Health and Sexual Expression in Women Transitioning to Long Term Residential Settings: Challenges and Individual Rights
Authors: Parejo Valeria 
Published: January 2024

Sexual health and sexual expression can be controversial topics at any age. Ageism in Western society makes this discussion, as it pertains to the elderly, even more taboo because sexual health is not usually a focus for healthcare providers serving the geriatric population (Bauer et al., 2015). However, sexual rights are human rights fully acknowledged by the World Health Organization, through its Department of Sexual and Reproductive Health (2021). The ability to fully express one’s sexuality is part of the human experience across the lifespan and any barrier to this expression will have an impact in one’s quality of life.
Considering this, how do elderly women transitioning to long-term residential facilities (assisted living or nursing homes) rate their sexual health and their opportunities to express their sexuality? This presentation will describe the current state of affairs in these facilities as it pertains to services and supports related to sexual health, how residents rate the current sexual health related services and support, and current barriers to services that are more person-centered, dignified, and respectful of older people’s sexual expression, with specific emphasis on the LGBTQIA+ aging population.
Amplifying the perspectives and insights of Lived Experience – Learning from ALLIANCE lived experience networks.
Authors: Ritchie Kerry , Andrew Mandy 
Published: January 2024

Introduction: Person centred care is vital to ensure we improve access to the right care, treatment and support for all people. Meaningful engagement with people with lived experience is essential in the design of this and can also have direct benefits for people as a consequence.
The ALLIANCE coordinates a number of networks for people with lived experience This includes a heart disease network that has been established to directly influence the Scottish Government’s Heart Disease Action Plan to ensure we can improve access to the right care, treatment, and support, and minimise preventable heart disease.
This interactive workshop we will share insights we have gathered and the learning to date as well as the methods we have embedded to ensure structures are in place to allow people to share their experience, and turn these experiences into meaningful action through our direct link into policy.
This session will be useful for all health and social care stakeholders as through this discussion we will explore the importance of ensuring lived experience is at the heart of planning and decision making
Purpose: To share learning, insights and generate discussion on how we can amplify the perspectives and insights a of lived experience
Outcomes:

Participants will feel more knowledgeable having reflected on the the session’s learning through discussion and presentation and potential to translate this into actions.
Participants will build connections and relationships across countries based on a shared goal.
Participants are more likely to incorporate the voice of lived experience through their own practice.

Session Plan:

Welcome and introduction the session highlighting the purpose asking participant’s if they can commit to the purpose of the session.
Icebreaker – what/who inspires you most to do what you do?

Presentation by the ALLIANCE sharing the learning from our lived experience networking, focusing on the Heart Disease Networking as a case study.
Feedback, questions and reflections on what has been shared
Facilitated small group discussions on individual learning

oWhen people with lived experience are active and equal partners, what does that look like?
oHow do we incorporate the principles of person centre care into our own practice

Feedback from each group with key themes being captured live through flipchart

At the end of the session we will capture the key themes to develop a summary report of the discussion that can be shared with all participants taking part in the conference and promoted via the ALLIANCE website, newsletter and bulletins.
Integrating health promotion and palliative care: improving determinants of health and well-being in the context of serious illness and the end of life
Authors: Matthys Marjolein , Scherrens Anne-Lore , Van Brussel Leen 
Published: January 2024

Background: Growing evidence shows that using a health promotion approach in palliative care can have a positive impact on health outcomes in patients, their families and communities, yet, the relevance and importance of stimulating health and well-being in the context of serious illness and the end of life is often still not understood or recognized.
Objectives: With this workshop we aim to 1) provide more knowledge on the integrated approach of health promotion and palliative care, focusing on its practical applications and the partnerships it entails, 2) reflect with the participants about the added value of this integration throughout individual life courses, within communities and society as a whole, 3) discuss if and how this approach could be applied in the work or organization of the participants.
Format: The speakers will first give a brief overview of the conceptual overlap between health promotion and palliative care, their integration and the professional developments that have resulted from this. After, three short presentations on concrete examples of this integration in practice will be given with an emphasis on the different types of partnerships involved. To stimulate the group discussion on the added value of integrating health promotion and palliative care, we follow with a fictional life story of a person who at different times of her life is confronted with serious illness, loss and the end of life. Afterwards, participants are invited to reflect and debate on the relevance and potential of this approach in their own line of work. We end with a short summary of key messages and offering participants the chance to give final reflections and feedback on the subject as well as structure of the workshop.
For whom?: Anyone active in the policy, practice, advocacy or research surrounding palliative and end-of-life care and/or health promotion.
Time schedule (90’ duration):
- part 1 (5'): 'Introduction' by Anne-Lore Scherrens
- part 2 (5'): 'Integrating health promotion and palliative care: from conceptual overlap towards new partnerships and promising applications in practice' by Marjolein Matthys
- part 3 (15'): 'Three short (3x5’) presentations offering concrete examples (the Belgian ‘My Care My Voice’ intervention, the Swedish DöBra cards and the development of a public awareness campaign on palliative care in Flanders, Belgium)' by Anne-Lore Scherrens, Marjolein Matthys and Leen Van Brussel
- part 4 (25'): Departing from a fictional life story and applying a socio-ecological lens, group discussion on the added value of the integrated approach of health promotion and palliative care
- part 5 (25'): Group discussion on the relevance and potential of the integrated approach in the context of the participants’ work
- part 6 (10’): Closing reflections (participants and speakers)
(5' extra)
How do I roll out a digital collaboration tool?
Authors: Taelman Bert 
Published: January 2024

In 2023, the Flemish government will start developing a digital care and support plan. With this shared support plan, we want care providers, informal caregivers and citizens to collaborate digitally in a goal-oriented care plan.
The digital care and support plan is being built by an external IT partner in co-creation with stakeholders and citizens. In a first test version, 5 modules are offered:
* Communication
* Life goals
* Care and support goals
* Care and support tasks
* Care team
After a test phase at the end of 2023 this digital collaboration tool will be rolled out across Flanders in two pilot projects.
The rollout will be planned on 3 axes (possibly in parallel):
* geographical extension: step by step connecting a number of new zones
* multidisciplinary expansion: integrate new sectors step by step
* substantive expansion: develop additional modules
In this workshop we will bring policy makers and network organizations from different regions together to share best practices.
* What good practices are available?
* What is needed to successfully address the 3 axes?
* What are the pros and cons of expanding on any of the 3 axes?
* What is the impact of each extension on the success of the full rollout?
* What is the impact on support and adoption in the field?
This session primarily aims to share experiences and bring together knowledge.

The workshop will be composed of:
* 15 minutes introduction and context
* 3 x 10 minutes working around 3 different axes and their impact (sharing experiences and good practices). Naming pros and cons of each axis.
* 15 minutes: Distill best approach per group - what order, possibly parallel rollout is preferable?
* 15 minutes: combine results into a global best practice
Workshop: Research on integrated and personalized care, sharing values and perspectives; a world café method
Authors: Pluck Ferdy , Van Kerkvoorden Dennis , Ettema Roelof , Van Zelm Ruben 
Published: January 2024

Introduction/Background: PhD research is one of the directions to contribute to the development of integrated care and contribute to international conferences such as ICIC in. Contributions are made towards the nine pillars of integrated care. Results are added, mostly as part of an individual PhD study, in a wide array of subjects which fits the nine pillars of integrated care. Doing PhD research brings difficulties but also successes. This also applies to PhD researchers and lecturers of the research and education group PIC’T&Re Personalized Integrated Care Teaching & Research of the University of Applied Sciences Utrecht in the Netherlands. The research group aims to contribute to integration knowledge which can facilitate changes towards the customization of integrated healthcare service delivery in the Netherlands on micro, meso and macro level of health and social care.
Why a workshop? Using a workshop as a method to share values and perspectives in doing PhD research amongst the diversity of PhD researchers within the integrated care community. Also, to exchange experiences which are of value to all researchers in integrated care. Exchange of knowledge, expertise and experiences of all attendees is central in this workshop.
Who is it for? The target audience for this workshop consists of (PhD) students, researchers, educators and professionals in integrated health and social care.
Facilitators / speakers
Dennis van Kerkvoorden MSc, PhD candidate
Ferdy Pluck RN MSc, PhD candidate
Dr Roelof Ettema, co-supervisor
Dr Ruben van Zelm, co-supervisor
What are we going to do? – Workshop 90’
a.Introduction and background of the world café method and themes – (15’)
b.World cafe: in three rounds of discussion and 5 table discussions based on the themes of the 2023 conference on Integrated care – (3 x 20’):
1.Change management implementation: macro, meso and micro level
2.Person-centered care: focus on integration of goals and needs
3.Collaboration: factor for successful implementation of integrated care
4.Engaging everybody: caring neighborhoods and compassionate communities
5.Population health approach: leverage for integrated care
c.Pitches and Conclusions and general reflections (15’)
How are you going to engage with the audience? Everybody is an expert in her or his own research, education or practice. In small groups of 5-10 persons, we will discuss one of the five themes mentioned above. We challenge everyone to share their own experiences and ideas.
How are you going to summarize the take home messages? All collected results will be summarized by the organizing committee of this workshop. These results will be shared with the participants and IFIC Academy with the intension of a yearly follow-up.
Keywords: research, integrated and personalized care, world café
What is the Role of the Third Sector in Integrated Care - Provider, Partner or Both?
Authors: Nelson Michelle , Saragosa Marianne , Miller Robin , Lewanczuk Richard 
Published: January 2024

To date, much of the integrated care literature and discourse regarding the Third Sector (e.g. community based nongovernmental, charitable, or voluntary agencies) have positioned the sector as service providers and/or system partners. We would argue that while these organizations are undoubtedly equipped to effectively respond to community’s needs, the sector and these agencies are often been characterized as lesser partners and viewed as 'nice to have' rather than core players within integrated health systems.
Optimizing their engagement requires a more nuanced understanding of the nature, feasibility, and high value models of collaboration between public and third sectors in order to to design and deliver integrated care systems. The purpose of this interactive workshop is to discuss the current role of third sector organizations in integrated care and debate the merit and/or limitations of being seen as a system partner or a service provider; is there a value proposition for both positions? The session will be structured to enable both large and small group structured conversations through deliberative dialogue and table debates. Attendees can expect to be engaged in a provocative dialogue that aims to push our understanding of how we can achieve truly integrated health care with local voluntary and community organizations. Our exchange will likely produce diverse opinions that will be synthesized according to common themes across and within the group and serve as the basis of potential future SIG activities and academic research.
This 90 minute session is designed for any academic, policy maker or practitioner interested in intersectoral partnerships and integration across health, social and voluntary sectors.
Format:
The time will be divided between an introductory overview, a teams of thought leaders will identify and raise key topic concepts followed by a series of table discussions, debates with time to share and synthesize.
Holding still, together - Parkinson's care Portrayed
Authors: Stap Thieme , Grol Richard , Laan Roland , Munneke Marten , Bloem Bastiaan R. , Koskma Jur 
Published: January 2024

Complexity within the healthcare setting grows rapidly, and person-centered care takes on center stage. This begs for a mind- and skillset change in health professionals, because most current education equips them poorly to deal with this. Last year at ICIC22, we presented our innovative arts-based research project, focusing on a combination of narrative accounts and photographs of 21 people with Parkinson’s and 22 different practitioners. The research project was co-developed with people with Parkinson’s and professionals. Now, this project has evolved into an workshop that aims to develop healthcare practitioners in becoming reflective practitioners. Reflecting on deeper beliefs and observation skills are vital for future healthcare professionals in a complex world.
This workshop aspires to develop these skills and has been piloted three times in the last year with different target groups: people with Parkinson’s, nurse practitioners, and university - & art academy students. The workshop itself holds three phases. First, the workshop intents to put participants in a beginner’s frame of mind. The focus of the first exercises lie with judgement free observations. Secondly, the workshop focuses on judgment: what do you think you see, and what words will you give the description? Thirdly, we delve deeper in those judgements. Helping participants search effectively for often latent, but crucial normative convictions. All in all, the workshop is about slowing down and providing space and tools for a mindset evaluation.
What do healthcare providers and organizations need to enable integrated care - palliative care as a case study.
Authors: Craps Anneleen 
Published: January 2024

When we talk about integrated care, it refers to all facets of care and support, from birth to death. The central question for this workshop is: What do care providers and organizations need to help enable this integrated care?
A palliative care reform project is currently being developed in Flanders, therefore we will use palliative care as an example during the workshop. However, it is much broader than palliative care because the same questions and challenges arise, for example, in the area of well-being and prevention.
In the palliative care reform process, we are working very closely with the sector and together with them we are defining a vision for the future of palliative care. Based on this shared vision, an action- and transition plan will be developed by mid-2023. The transition plan can look very technical: how do we go from as-is to to-be? But, that is not what the Flemish Government is aiming for; we want to know what is needed to make goal-oriented palliative care a fully-fledged part of the people’s care and support plan.
In the workshop we want to engage a dialogue with policy makers, coordinators of organizations in care and welfare, researchers and care providers who are daily involved in the care and support of a person (linked with or independently of the palliative sector) in order to formulate an answer to the following challenges:
- Incentives: What is needed for health care providers, organizations and structures in both care and well-being to effectively do their part to provide integrated care.
- Change-management: How do we get current organizations active in (palliative) care to disengage from their current organization, funding, missions,.... in function of integrated care.
- Shared ownership: How to make palliative care more prominent in a person's care and support.
The session will be structured as follows:
- 10 minutes presentation reform process + interim results vision and action plan
- 30 minutes: the audience is divided into 3 groups. Each group indicates what is needed around the 3 central challenges (incentives; change management; shared ownership)
- 3x5 minutes plenary feedback from the 3 groups - 5 minutes summary and conclusion
PENJATUHAN SANKSI KORUPSI DAN PERTANGGUNGJAWABAN TINDAK PIDANA KORPORASI DALAM TINDAK PIDANA KORUPSI
Authors: Hasbullah Ghufron 
Published: January 2024

Abstrack
Currently, corporations have a very important role for society, both positive and negative sides. The negative side of the large role of corporations is committing acts of corruption. In many cases of corruption, corporations are often caught and punished. The same thing happened to Decision No. 3/Pid.Sus-TPK/2018/PT.DKI which dropped the Main Director as the party responsible for corrupt behavior by corporations. The main focus of this research lies in criminal liability and the imposition of sanctions given to corporations. To make it easier to analyze the decision, researchers used normative legal research methods with a conceptual approach and statutory regulations. Based on the research results, it can be concluded that corporate criminal liability applied to Indonesian laws and regulations is mixed. On this basis, the judge imposed a sanction on the director of the corporation with imprisonment. In addition, the judge also imposed fines on corporations.

Abstrak
Saat ini, korporasi memiliki peran yang sangat penting bagi masyarakat, baik itu sisi positif maupun negative. Sisi negative dari begitu besarnya peran korporasi adalah melakukan tindak pidana korupsi. Pada banyak kasus korupsi, sering kali korporasi terjerat dan dijatuhkan hukuman. Hal yang sama terjadi pada Putusan No. 3/Pid.Sus- TPK/2018/PT.DKI yang menjatuhkan Direktur Utama sebagai pihak yang bertanggungjawab atas perilaku korupsi yang dilakukan oleh korporasi. Fokus utama pada penelitian ini terletak pada pertanggungjawaban pidana dan penjatuhan sanksi yang diberikan kepada korporasi. Untuk memudahkan menganalisis putusan tersebut, peneliti menggunakan metode penelitian hukum normative dengan pendekatan konseptual dan peraturan perundang-undangan. Berdasarkan hasil penelitian, dapat disimpulkan bahwa pertanggungjawaban pidana korporasi yang diterapkan pada peraturan perundang-undangan Indonesia bersifat campuran. Dengan dasar tersebut, hakim menjatuhkan sanksi kepada Direktur korporasi dengan pidana penjara. Selain itu, hakim juga menjatuhkan sanksi pidana denda kepada korporasi.