bluuebunny/crossref_metadata_2025_split huggingface dataset:
H - 14 Psychometric Properties of the Clinical Dementia Rating (CDR) Scale in Hispanic-Latinx Communities: a Systematic Review
Authors: Monserratt Lorena H , Morales Jessica A , Ovalle-Eliseo Stephanie , Mohammed Aisha , Islas-Huerta Gabriela , Díaz-Santos Mirella 
Published: October 2023

Abstract

Objective
To systematically review the literature on the psychometric properties of the Clinical Dementia Rating (CDR) scale among Hispanic-Latinx communities.

Data Selection
We searched multiple cross-disciplinary databases from January 1970 until April 2023 for relevant papers written in English and Spanish. We used the following terms: (1) Clinical Dementia Rating, (2) validity, (3) reliability, (4) psychometric, (5) Hispanic, (6) Latinos or Latinx, (7) outcome measures, (8) Spanish language, and (9) Alzheimer’s disease.

Data Synthesis
We found 609 studies with 56 eligible studies. Only 5 studies examined psychometric properties of the CDR in Hispanic-Latinx communities. Each study implemented divergent study designs. Of the 5 selected studies, one study evaluated the validity of the CDR Sum of Boxes among 1073 Mexican Americans. A second study evaluated the CDR’s test–retest reliability and internal consistency among 94 Spanish speaking participants from the United States. The third study examined the validity of the CDR Sum of Boxes among 343 Brazilians living in Brazil. A fourth study assessed the CDR Sum of Boxes sensitivity and specificity among 407 Brazilians living in Brazil, whereas a fifth study evaluated the validity of a Portuguese CDR version on 424 Brazilians living in Brazil.

Conclusions
Our systematic review revealed limited studies examining the validation of the CDR in the Hispanic-Latinx communities. The limited number of studies raises concerns about versions of the CDR scale implemented in ad clinical trials, and its implications to study results, interpretation, and generalizability of findings.
H - 16 Providing Care to Spanish-Speaking Families in an Autism Clinic: Insights from Bilingual Spanish-English Speaking Trainees
Authors: Cabrales Adriana , Saenz Monica Garza , Cartwright Julia E 
Published: October 2023

Abstract

Objective
Bilingual trainees at the Center for Autism Care (CAC) present insights from working with Spanish-speaking families with the integration of an interpreter during an autism evaluation.

Method
Two Spanish-English speaking clinical psychology trainees observed evaluations conducted by the supervising psychologist via Spanish-English interpreters. Trainees gathered observational data through a frequency count of interpretation difficulties within the course of six evaluations for autism spectrum disorder (ASD) thus far. The observations included an interpreter who frequently works at CAC and other professional interpreters who serve Children’s Health clinics. A frequency count for type of error and content of error was collected within evaluations supported by various interpreters.

Results
A total of 41 errors in interpretation were observed across six autism evaluations during consent, interview, and feedback. Errors were categorized into types of errors (e.g., truncated message, incorrect interpretation, direct question from family, and direct clarification from interpreter) and content of errors (e.g., routines, restricted and repetitive behaviors, social communication, and comorbid diagnoses). 68.3% of interpretation errors included semantic content specific to ASD or discussion of comorbid diagnoses. 44% of interpretation errors consisted of a message being truncated.

Conclusion(s)
Findings indicate that the bulk of interpretation errors occurred when interpreting autism-specific terms. Despite limited encounters, our observations indicate that interpretation of patient-specific information, including specialized diagnostic details of ASD, is most susceptible to misinterpretation. Future directions may include exploring the utility of a handout to support interpreter knowledge of specialized terms to ensure Spanish-speaking families receive optimal care.
H - 17 Neuropsychological Assessment in Rare Pediatric Neurogenetic Disorders: Considerations for Clinical Research
Authors: Dorsman Karen A , MacDonald Beatriz , Messahel Souad , Horton Daniel , Edgar Veronica Bordes 
Published: October 2023

Abstract

Objective
Approximately 80% of rare diseases in childhood have a genetic cause. Neuropsychological assessments offer a greater understanding of the clinical presentation and trajectory of neurogenetic disorders. Given the rarity of the conditions, the limited funding allocated to study psychosocial factors, the diversity within the patient populations (e.g., country of origin, clinical phenotypes), and the limitations of our tools, there are no clear guidelines for evaluations. We aim to present a systematic approach to create assessment protocols that track disease progression and/or efficacy of therapeutic interventions.

Method
Our gene therapy program has created nine assessment protocols to evaluate conditions ranging from epileptic encephalopathies, lysosomal storage, neuromuscular, and mitochondrial diseases. Through review of past protocols, we created a neuropsychological assessment selection checklist (NASC) and standard operating procedure (SOP) checklist.

Results
The NASC systematizes updated multidisciplinary disease knowledge and relevant desirable outcomes (e.g., cognitive, motor, quality of life). Cultural elements (e.g., beliefs around health, disease, testing) and necessary accommodations (e.g., interpreters, sensory impairments) must be considered. Additional sociocultural and socioeconomic information of the sample is germane not only to contextualize results but also to help narrow possible tools. The SOP aims to increase standardization (e.g., starting points) and maximize use of the data collected (e.g., deferment reasons.)

Conclusions
Neuropsychological assessments offer a wealth of cognitive, behavioral, emotional, and adaptive functioning data that is crucial to better understand the progression and treatment of rare neurogenetic diseases. Cultural considerations and in-depth clinical and assessment skills are essential to creating evaluation protocols that are valid, useful, and comprehensive.
H - 18 Mindfulness-Based Interventions for ADHD in Latinx Children: Opportunities for Culturally Informed Treatment
Authors: Saenz Monica Garza , Wer Beatriz MacDonald , Bar Sari , Greenwald Ellen , El-Behadli Ana , Adams Richard , Edgar Veronica Bordes 
Published: October 2023

Abstract

Objective
This literature review examines the current understanding of mindfulness-based interventions (MBIs) as treatment for attention deficit hyperactivity disorder (ADHD) in children residing in United States (U.S), with a particular focus on research available for Latinx children.

Data Selection
A comprehensive literature search was conducted in February 2023 using four databases (PubMed, PsychINFO, OVID, and Scopus) to identify studies conducted in the U.S. that investigated the use of MBIs for the treatment of ADHD symptoms in school-aged children. The search was limited to studies conducted within the U.S., included participants aged 8 to 12, and specified ADHD as the primary diagnosis. The search terms used included mindfulness, meditation, MBSR, MBCT, children, school-aged, child, ADHD, and attention deficit disorder. The search yielded 155 studies, of which, five were included in the final review.

Data Synthesis
The reviewed studies suggest that MBIs have the potential to improve attention span, reduce ADHD symptoms, and address associated problems such as reducing stress in children with ADHD. However, the number of studies conducted in the U.S. is limited, with none delivered in Spanish.

Conclusions
MBIs show promise for managing ADHD symptoms in children. However, limited research on MBIs with Latinx populations in the US highlights a significant gap in the literature. There is a crucial need for more studies investigating the efficacy of MBIs with diverse populations, especially Spanish-speaking Latinx children who are underrepresented. Researchers must prioritize developing culturally-sensitive MBIs that can be adapted and delivered in Spanish to reduce disparities in access to evidence-based treatments for ADHD.
H - 20 Barreras En El Diagnóstico Temprano Del Trastorno Del Espectro Autista En Féminas De 2 a 17 Años. Una Revisión Sistemática.
Authors: Lassalle-Pérez Awilda , Guzmán-Millán Rebeca , Ocasio-Quiñonez Idanara T 
Published: October 2023

Abstract

Objetivo
Estudio dirigido a identificar las posibles diferencias de sexo en la presentación y diagnóstico del Trastorno Del Espectro Autista (TEA). El TEA es un desorden del neurodesarrollo, con el cual uno de cada 44 niños/as es diagnosticado en Estados Unidos. Se estima que los niños presentan una probabilidad mayor de ser diagnosticados que las niñas.

Selección de Data
Se realizó una revisión sistemática para conocer las barreras en el diagnóstico temprano del TEA en féminas de 2 a 17 años. Ésta se limitó a revisiones de literatura, estudios descriptivos y transeccionales, entre los años 2019–2023. Se realizó una búsqueda en las bases de datos de PubMed, ResearchGate, y Google Scholar, para los meses de enero a abril del 2023. Se utilizaron los siguientes términos “autismo, féminas, señales tempranas, niñez temprana”. Se identificaron 93,516 artículos, luego del proceso de filtración se evaluaron 20 y 4 cumplieron con los criterios de inclusión. Se analizaron los detalles de publicación, constructo, muestra, medidas de análisis y diagnóstico. El avalúo de calidad se realizó utilizando las guías de QUADAS-2.

Síntesis de Data
La búsqueda arrojó una muestra de 4 artículos sobre las barreras y diferencias de sexo en el TEA y diagnóstico temprano. Se identificaron 4 temas principales basados en la neurociencia, como atención social, percepción táctil y funcionamiento cerebral.

Conclusión
Se evidenciaron diferencias significativas por sexo en síntomas y procesos cerebrales, que aportan a la teoría de un fenotipo femenino del TEA. Estos estudios son de carácter exploratorio y se requiere investigación empírica representativa para lograr conclusiones significativas.
H - 22 Misdiagnosing Conduct Disorder in Hispanic and Latino Populations
Authors: Rios Guevara Linda V , Alcina Jorge , Villafana Mei-Ling , Duarte Andres , Perez-Haddock Yanelee , Gonzalez Dayron 
Published: October 2023

Abstract

Objective
The systematic review aimed to understand and provide insight into the misdiagnosis of conduct disorder (CD) among Hispanic and Latino populations.

Method
A systematic review of current literature on Hispanic or Latino children diagnosed with CD was conducted from 2019 to 2023. Peer-reviewed empirical studies in English and Spanish were obtained through Google Scholar, PubMed, PsyArticles, Semantic Scholar, and PsychInfo, using keywords conduct disorder, Latinos, Hispanics, and ethnic minorities. The initial search yielded 50 articles, of which 8 were retained.

Results
The literature presented a combination of 3488 participants aged between 5 and 18 years of age originating from various Hispanic and Latin American countries who participated in multimodal intervention approaches following psychodiagnostics testing, followed by a CD diagnosis. Such interventions included cognitive testing, computer or web-based testing, parental reports, and clinical interviews. While the sex of participants was not recorded throughout all studies, one study reported a higher prevalence of boys diagnosed with CD compared to girls, with 136 boys and 76 girls. Overall, mixed rates of prevalence and misdiagnoses of CD were found for Hispanic children in the literature.

Conclusions
While the literature has demonstrated that many Hispanic and Latino children have been diagnosed with CD, it fails to address the implementation of cultural implications prior to making the diagnosis. Limitations of the present review include that children diagnosed with CD were tested in English rather than their native tongue, leaving room for inadequate test interpretation and diagnosis.
H - 23 Post-Concussive Symptom Severity and Mental Health Status in Hispanic or Latine Youth: Implications for Generalizability
Authors: Winstone-Weide Laura K , Gettig Kelly , Mooney Kimberly , Austin Cynthia A 
Published: October 2023

Abstract

Objective
Previous analysis in a pediatric sample demonstrated that pre-injury anxiety/depression significantly predicted post-concussive symptom severity and longer time to recovery. The current study investigated the reproducibility of results using a sample who identified as Hispanic or Latine (H/L).

Method
Participants were a subsample of H/L youths (n = 443) from an outpatient mild traumatic brain injury (mTBI)/concussion program (June 2017 – present). Eligibility criteria included: 1) mTBI (GCS ≥ 13) and 2) 5–17 years of age. Families self-reported on youth’s pre-injury anxiety/depression symptoms and history of psychotherapy. Concussion symptoms were measured via the Post-Concussive Symptom Inventory (PCSI) at each visit. Regression analysis controlled for baseline symptoms, days since injury, and age.

Results
Youths (M age = 13.13; SD = 3.21) with pre-injury anxiety/depression reported significantly higher PCSI scores at baseline (t(98) = −6.90, p &lt; 0.001) and visit 1 (t(123) = −6.39, p = 0.002). They also took significantly longer to receive clearance for high risk activities (t(85) = −3.71, p &lt; 0.001) than those without pre-injury anxiety/depression. Results of multiple regression analyses indicated that history of psychotherapy significantly predicted higher PCSI scores at visit 1 after controlling for aforementioned covariates (ꞵ = 9.95, S.E. = 3.25, p = 0.002).

Conclusions
Consistent with previous findings, H/L youth with pre-concussion anxiety/depression reported higher symptoms and longer recovery time. However, the strongest predictor of symptoms for H/L youth was history of therapy, instead of anxiety/depression in the general sample. Variability in the strength of predictors warrants additional investigation and clinical attention to race/ethnicity to avoid overgeneralization.
H - 25 A Pilot Study of Coping and Cognition: Examining the Influence of Executive Functioning on Coping Strategies among Diverse Persons Living with Multiple Sclerosis
Authors: Arbelaez Odalys , Román Cristina A F 
Published: October 2023

Abstract

Objective
Coping style has been identified as a potential strategy to lessen the impact of negative symptoms in persons with MS (pwMS). Prior work demonstrates that individuals with executive dysfunction are less likely to use effective coping strategies. Much remains unknown about the relationship between executive functioning (EF) and coping style, however, especially in diverse pwMS. The current pilot study aims to examine this relationship further.

Methods
Eighteen middle aged pwMS (10 = Latino/a, 6 = African American, 1 = Asian, 1 = Biracial) underwent evaluations for EF and coping styles. EF was assessed using the Stroop Color-Word (SCW), Oral Trail Making Test B, and Controlled Oral Word Association Test. Coping was assessed using the three subscales of the Brief-COPE: problem-focused, positive emotion-focused, and avoidant coping.

Results
Given the small sample size, data were interpreted in terms of effect size rather than p-values. Bivariate correlations were conducted between each EF test and coping subscale. Results demonstrated a medium-high effect size (r = 0.447) between SCW and problem-focused coping, such that better performance on the SCW was associated with greater problem-focused coping. Similarly, there was a moderate effect size (r = 0.326) between SCW and positive emotion-focused coping, with better performance on SCW related to greater positive emotion-focused coping. There were no notable relationships between EF and avoidant coping.

Conclusions
This study is among the first to demonstrate a relationship between EF and coping style in a sample of diverse pwMS. These results have implications for interventions that may improve coping, particularly among diverse groups who face unique challenges in coping with their disease.
H - 26 Cognitive Functioning Following Bariatric Surgery in a Bilingual, Spanish, and English – Speaking, Patient: a Case Study
Authors: Picanso Nicholas , Arias Franchesca 
Published: October 2023

Abstract

Objective
Overall, 256,000 bariatric surgeries were completed in the United States in 2019 (ASMBS, 2023). Bariatric surgeries are effective in reducing morbidity, prolonging life, and improving cognition, particularly among patients with BMI &gt;40 and those with BMI &gt;35 and obesity-related complications (Handley et al., 2016; Cornejo-Pareja et al., 2021). Nevertheless, up to 16% of patients undergoing bariatric procedures experience neurological sequelae (Thaisetthawatku et al., 2004) that is likely secondary to surgery-related nutritional deficiencies (Gasmi et al., 2022). Although neuropsychological assessments may help to identify postsurgical cognitive changes, cultural and linguistic differences may preclude reliable and valid assessment of non-native English-speaking persons.

Method
A Spanish-dominant 38-year-old, right-handed, female reported diminished attention, reduced thinking speed, and memory difficulties that were interfering with her daily functioning. She completed a thorough Clinical Interview (both individually and with collaterals), Record Review, and a comprehensive neuropsychological workup.

Results
She demonstrated multi-domain impairment (&gt;1.5 S.D. below the normative mean), suggesting a possible dementia or encephalopathy. When her cognitive profile was interpreted in the context of her medical history, further testing was recommended to rule out reversible etiologies. Interdisciplinary collaborations with primary care and gastroenterology revealed nutritional deficiencies that had persisted for over 18 months after bariatric surgery and that were not fully resolved with regular oral vitamin consumption.

Conclusions
Cultural and linguistic differences were relevant when assessing cognitive changes in non-native English-speaking persons, and in helping to determine whether pharmacological and behavioral interventions are ameliorating these complications. Practical considerations of these high-stakes assessments will be discussed from neuropsychological, psychosocial, and ethical perspectives.
H - 28 Assessment Following Acquired Injury to the Bilingual Brain: La Importancia De Los Determinantes Sociales De La Salud
Authors: Chiang Jenna A , Winstone-Weide Laura K , DeLeon Rosario C , Ball Kayleen S 
Published: October 2023

Abstract

Objective
Given the growth of Latine populations in the U.S., variations in language fluency, educational attainment, quality of academic exposure, and access to medical care are essential social determinants of health to consider when assessing language in first generation immigrants, as illustrated through the following case study.

Method
A 17-year-old, Spanish-dominant, right-handed, Latina female with right frontoparietal stroke in the setting of arteriovenous malformation (AVM) was referred for neuropsychological evaluation one year following two consecutive gamma knife procedures. Complications included seizures (well-managed with Vimpat) and cerebral edema (treated with prolonged, high-dose Dexamethasone) followed by iatrogenic Cushing’s syndrome. Brain MRI/CT were consistent with ruptured right frontoparietal AVM and vasogenic edema. Patient was a sequential language learner; education was received in Spanish until immigration from Colombia to the U.S. two years prior to injury. Parents completed higher education in Colombia.

Results
Consistent with stroke location/associated treatments, results indicated a mild neurocognitive disorder with deficits in cognitive efficiency, executive functioning (particularly on visual-based tasks), and memory. Academic skills also aligned with AVM (word reading: high average; reading comprehension: average; calculation: below average). Interestingly, even in the context of high parental education and dual language learner status, personal weaknesses in native language were identified (one-word expression: low average; semantic verbal fluency: below average).

Conclusions
Integrating sociocultural demographic factors into the neuropsychological evaluation process supports a culturally-informed assessment approach and is imperative for practice with multilingual speakers. In this case, language concerns may have indicated premorbid weakness or right-sided/bilateral hemispheric language involvement, warranting follow-up fMRI/language mapping prior to further intervention.
H - 29 Delivering Culturally Sensitive Neuropsychological Assessment Feedback: a Case Study of Atypical Neurosyphilis
Authors: Grant Jeremy , Hamlet Kristin , Hu Calvin , Montalvo Mayra 
Published: October 2023

Abstract

Objective
To demonstrate the neuropsychological correlates of atypical neurosyphilis and the importance of delivering assessment results in a culturally sensitive manner.

Method
The patient was a 52-year-old African American male with 12 years of education who was raised in a rural, southern town and worked as a delivery driver. He was hospitalized after three weeks of altered mental status, memory loss, and seizures. Electroencephalography (EEG) showed left lateralized periodic discharges. Magnetic resonance imaging (MRI) showed hyperintensities in the left hippocampus and amygdala consistent with limbic encephalitis. Cerebrospinal fluid studies revealed lymphocytic pleocytosis and hypoglycorrhachia. Rapid plasma regain and venereal disease tests were positive for syphilis in serum and CSF. He was initially treated with empiric antibiotics and antiseizures medications with modest improvement. His mental status improved after penicillin treatment, and he was discharged after 14 days. Repeat MRI showed cortical atrophy in the left medial frontal lobe and left hippocampus.

Results
The patient demonstrated executive dysfunction (e.g., set-loss and source memory errors) and poor performance across verbal and visual memory tasks. He also demonstrated an inaccurate understanding of the possible causes of his illness. Feedback was delivered across two sessions: one session to discuss test results and a second session with the patient and his wife to discuss syphilis as a sexually transmitted infection and address the historical context of syphilis among African American men.

Conclusions
Neurosyphilis can present as limbic encephalitis and can mimic autoimmune encephalitis and other infectious diseases. Tailoring assessment feedback to a patient’s sociocultural context is vital for encouraging continued treatment.