bluuebunny/crossref_metadata_2025_split huggingface dataset:
Reform of palliative care as a model of integrated care
Authors: Craps Anneleen 
Published: January 2024

The Flemish Government wants to reform the functioning, organization and financing of palliative care, with the aim of making palliative care the leading example of integrated care.
The reform process is a highly participatory process that has to lead to a wide support from all actors involved and consists of 3 parts:
1.Through a participatory process with all actors involved (citizens, first and second line care, palliative care sector, welfare,...) the Flemish government is creating a common vision on the future of palliative care in Flanders.
2.Based on this vision, a concrete action and transition plan will be drawn up to evolve from the current to the future organization of palliative care.
3.The effective reform of the functioning, organization and financing of palliative care.
Ultimately, every citizen in Flanders will benefit from the reform of palliative care. The palliative care will focus, even more than it does now, on multidisciplinarity, targeting and quality.
The primary target of this reform are the organizations that provide and coordinate palliative care. These organizations are mostly the competence of the Flemish Government. The secondary target group is primary care and welfare providers. The reform will involve them even more in the adapted organization, functioning and financing of palliative care. The goal is for every care and welfare provider to do their part to ensure integrated and goal-oriented palliative care.
Citizens and their loved ones will also be given a full and prominent place in the reform process. They will be involved as much as possible in shaping the vision but will also form a separate sounding board for the Flemish Government. Through this sounding board, citizens, informal caregivers, difficult to reach target groups, etc. will be questioned about the vision on the future of palliative care that has been developed. The central question to them will be: does the new vision (and thus organization of palliative care) answer their questions and needs?
During the presentation, interim findings will be shared about the participatory process.
A community health literacy Hub
Authors: Van Pelt Patricia 
Published: January 2024

Introduction: Being health literate is important to get sufficient health information, to navigate the health system, to access appropriate care and to be able to self-manage health. As such it is a key determinant of health. There is a need for innovative measures to improve health literacy among people living in socioeconomically vulnerable circumstances. In response to this need, a low treshold community health literacy hub was developed and implemented in a vulnerable neighbourhood in the city of Antwerp, within a broader project on the prevention of cardiovascular diseases (H2020 SPICES project)
The health kiosk provides information on a healthy lifestyle and disease prevention in a low-threshold manner to people and groups in a socially vulnerable situation. These are the people for whom the current preventive offer is insufficiently accessible; because it is not sufficiently attuned to diversity in language and culture, it is insufficiently accessible or available, or because people have so many other concerns on their minds that they have less mental space to actively engage with health.
Who is involved? The Health Kiosk is a partnership between Logo Antwerp, University of Antwerp, Antwerp District. Another important collaboration is with the Community Health Workers. These are people from the communities involved who direct people, often non-native speakers, to care. They speak to people in their own language, thus removing an important barrier. This cooperation also allows us to make good links between the preventive offer and primary care. To further operationalise the operation of the kiosk, ELZ Oost will also be involved. The focus will also be on first-line professionals.
Results: The health kiosk grew out of the need to increase health literacy among vulnerable target groups, those who live under the radar. Yet the effect of the kiosk appears to go much further. The whole community gets involved: not just residents, but also organisations from different sectors, as well as the working population. Over the past year, the kiosk has become well embedded in the neighbourhood. A broad base of support has been created.
Outreach work presupposes a lifeworld perspective. You can only succeed if you really connect with the living environment of local residents. Participative work is therefore indispensable when doing outreach work. It is crucial to involve people from the community right from the start of the project.
Next steps: Now we need to take a step further. Looking to the future, it is important to link up even more with first-line professionals such as GPs, pharmacists, home nursing, etc. The pressure on first-line professionals, especially GPs, is high.
Developing a Patient-Focused Integrated Data Dictionary and Repository
Authors: Spiro Grace 
Published: January 2024

Ontario Health Teams (OHTs) are a newer model of intersectoral health care in Ontario, Canada designed to provide integrated care across a variety of sectors and organizations to a large attributed population. With the first cohort of OHTs being approved in 2019 and 4 cohorts being approved thereafter, each existing OHT is in a varying degree of maturity. Under the OHT model, community organizations coordinate with OHTs as a unified team to provide integrated and cohesive care with a focus on population health. This type of coordination invites the challenge of organizing and sharing data across organizational partners in a stream-lined way to deliver timely and evidence-based care. Two OHTs addressed this challenge by developing a data dictionary and repository to better integrate data flow and identify gaps in services to better serve all members of the communities.
Based on the collective insights drawn from two OHTs, we present the results of a population health-based data development initiative. This process began with extensive engagement with partner organizations within each OHT and the collective governance teams, including patient and family advisory members. We then developed frameworks to begin asset mapping for data dictionary indicators to develop an understanding of what the current state was in the OHTs. After the indicator mapping was completed, key indicators that were relevant for the current priorities of the OHT as determined in a collective stakeholder process were identified to develop a dynamic and timely data repository within the OHTs.
Significant learning has occurred with the development of the data dictionary and repository with the process encountering unexpected needs for education around data literacy and strategies to engage patients and collective governance structures. Because these projects were being engaged simultaneously in two different OHTs that varied by cohort and attributed population demographics, a comparison to identify common and differing enablers and challenges will be undertaken. Next steps once the data dictionary and repositories have been completed will be to evaluate the process and identify educational modules and frameworks that can be developed to promote data development and capacity within the OHTs in order to help them provide evidence-based integrated care to their communities. These resources will enable future collaboration, inform planning and decision-making, and identify existing and potential data gaps within the OHTs. Beyond the OHTs, understanding this process with the resulting frameworks and modules will be applicable across integrated care models of care that desire to build data literacy and capacity and engage in population health.
Reimagined day care for older people - supporting older people and caregivers to age in place.
Authors: Bennett Laura , Cameron Ailsa , Patsios Demi , Thorn Joanna , Willis Paul , West Karen , Hankins Simon , Green Ruth , Davies Sonia 
Published: January 2024

There is a widespread view amongst policy makers, as well as some senior managers and commissioners in local authorities, that collective forms of day care for older people are outdated and not aligned with wider policy ambitions. However, there is also growing recognition, amongst advocacy organisations such as Carers UK and Age UK, that many older people and their caregivers would welcome the opportunity to attend collective day care services, as well as growing interest amongst providers of services and older people themselves about the need to transform provision.
As health and social care commissioners in England develop Integrated Care Systems, there is potential for reimagined day care for older people to play an important role in delivering person-centred, preventative and place-based care for older people and their caregivers, including enabling older people to live at home for longer as well as addressing wellbeing, loneliness and social isolation.
The presentation will outline findings from case studies visited as part of a National Institute for Health Research, School for Social Care Research study exploring the experiences of and aspirations for collective day care in England, from the perspectives of older people, their carers, those who work in or manage services, as well as local stakeholders from the health and care system. For this research, day care is defined as community building-based services that provide care and/or health related services and/or clubs and activities specifically for older people (65+) with care and support needs.
Case studies visited included a range of models of day care for older people including day centres for people living with dementia, small-scale day care based in a hosts home, to large-scale preventative provision for older people. The study explored: peoples experiences of attending; impact on wellbeing and health of older people and their caregivers; what an ideal model of day care would look like; experiences of day care through the COVID-19 pandemic; and relationships with local health and community partners.
Our findings highlight the role day care can play in providing opportunities for connection and friendship for older people who attend, supporting caregivers to sustain their caring role, and supporting physical and mental wellbeing and health of older people and their caregivers. Highlighting the importance of personal connections, joy and purposeful activity, design of the physical space and connections with local place, the presentation will discuss innovations in practice that may support a ‘reimagining of day care’, ensuring it meets the aspirations of older people and their caregivers, as well as supporting wider policy ambitions including how social care services can contribute to the wider preventative health agenda.
Interdisciplinary collaboration in the diagnostic practice of the Integrated Youth Care in Flanders: A focus group study
Authors: Van Gampelaere Cynthia , Vannieuwenhove Kimberly , El Kaddouri Rachida , De Ganck Julie 
Published: January 2024

Background: In 2020, the Flemish Centre of Excellence in Diagnostics (Kwaliteitscentrum voor Diagnostiek vzw) published the General Intersectoral Guidelines for Diagnostics (GIGD). The goal of the GIGD is to aid professionals working in different (mental) health care sectors in Flanders to implement high-quality diagnostic processes. The GIGD defines high-quality diagnostic processes by naming and explaining seven important practices. It is unclear, however, how the GIGD impacted the diagnostic field since its publication and to what extent the practices are implemented. Therefore, this study examined how one of those practices, namely interdisciplinary collaboration, is used in the Integrated Youth Care in Flanders and what the needs are to strengthen this practice further.
Methods: Focus groups were organized with professionals in diagnostics working in nine organisations of the Integrated Youth Care in Flanders, among which centers of mental health care, rehabilitation, developmental disability, student guidance, pediatric psychiatry, etc. The number of participants of each organisation ranged from 1 to 15, with no participants from the centers of pediatric psychiatry. In total, 65 professionals participated. In each focus group, an introduction in the GIGD was followed by a structured discussion about the way in which diagnostic processes are carried out in each organisation and how interdisciplinary collaboration is present and which difficulties are met during the process.
Results: Participants from all organisations agree that interdisciplinary collaboration is at the heart of good diagnostic trajectories within their own organisation. Important features concern the inclusion of multiple and diverse viewpoints in an interdisciplinary team with members from different backgrounds and levels of experience; a trusting atmosphere to discuss and promote different opinions; time and resources to allow an in-depth discussion; an (external) supervisor to moderate and guide group processes. Participants further highlight the importance of continuous and joint care across organisations in Child- and Youth care. However, several pitfalls were addressed, which seem hard to overcome, such as a lack of trust due to incomplete and erroneous knowledge about each other's professional operations, endless waiting lists thwarting appropriate continuation of care, and rigid policy requirements and restrictions.
Conclusion: All participating organisations understand the importance of interdisciplinary collaboration as a prerequisite for high-quality diagnostic processes and integrated care and long for more collaboration. However, several pitfalls and obstacles complicate matters. There is need for practical guidelines, information dissemination, workshops and intervisions, financial aid and more leeway in intersectoral endeavors to help professionals overcome these obstacles.
No compassion, together in action!
Authors: Pitteljon Grietje 
Published: January 2024

Start a caring neighborhood from the direction of people with a specific vulnerability (autism) with the support of very diverse actors, it is possible!
De Vijver (organization that supports people with disabilities) went in search of interesting places in the neighborhood with people with autism and connects them to a short walk. Around those places we went together with schools in the neighborhood, the art academy, service centers for the elderly, to make texts, images, works of art and videos. These were canned and put behind a QR code. Anyone who takes the walk in the area can discover the many stories via the QR code at each spot. To launch the walking route, a work of art was made with neighbours at the starting point of the route for 4 weeks.
The objective of this approach was, on the one hand, to see vulnerable people not always as people seeking for help, but as a very valuable actor in a neighbourhood. On the other hand, we also wanted to create the first basic condition for strengthening living together and caring for each other in a neighbourhood, namely getting to know each other organically by building something for the neighborhood together.
In this workshop we will show you how we succeeded.
We also zoom in on the difficulties we encountered and the keys to success. We let you enjoy live images of how everything came about.
Then we want to confront our approach with your experiences.
We end with some take home messages.
LGBTQ+ persons access to (person-centred) care according to posts on Twitter.
Authors: Van Diepen Cornelia , Rosales Diego 
Published: January 2024

This project follows the premise of person-centred care (PCC) as a holistic model of care in which all persons are included, and their preference and needs are incorporated in the care process. A group for which this is particularly important are lesbian, gay, bisexual, transgender, queer, and others (LGBTQ+) healthcare seekers. They are often discriminated against and occasionally refused treatment because the healthcare system does not recognise their needs. This project aims to see their unique perspective on their healthcare treatment and the need for PCC. The study presented here is displaying voices that would otherwise go unheard and social media is a place where these marginalised groups interact express their opinions and experiences.
This study focuses on access to healthcare and what barriers and facilitators are present in the tweets on this subject. This study’s data are gathered through tweets as, although somewhat widespread in a population, the LGBTQ+ community comes together on social network platforms. For this study, both English and Spanish tweets are sought to investigate this issue as this is a trending topic in both the USA and Latin-America.
Public and Patient involvement was applied in this study so that a LGBTQ+ individual could help with the search terms and interpretation of the results. Another public partner was added for the translation of the Spanish tweets to ensure that the meaning behind the tweets was preserved. This last partner cowrote a pilot paper and was involved in writing this study too.
The results showed that most of the barriers can be found in society outside of healthcare. Political agendas, religious beliefs and xenophobia were at the forefront of the barriers. LGBTQ+ persons experience challenges with opposing legislation as well as stigma and misunderstandings. With the political debate the distance to receiving quality care increased. Most facilitators were only accessible when the person receives care. The healthcare providers were clear that societal opposition would not affect the hypocritic oath.
This study confirms that for this marginalised group, researching them once they are in healthcare is too late as much of the barriers are presented before. Research should be more inventive and finding different ways (such as through tweets) to reach these groups that need PCC but have difficulty getting there.
The next step is a larger project in which not only the tweets are analysed but the LGBTQ+ Twitter users are asked for interviews to uncover the context of the tweet and the entire experience of barriers and facilitators to healthcare.
"More than a visitor: Family participation in the hospitalized patient’s care process, as a partner in care."
Authors: Ameye Phoebe 
Published: January 2024

Family participation is gaining importance as part of the Patient-Centered Care principle. Therefore, as part of the 'more than a visitor' project, family participation in taking care of the hospitalized patient is being explored.
The focus target group in this policy is mainly the patient and his family, (can also be the family caregiver) but should also relieve the workload on the nurses.
In response to the need to integrate this policy within the hospital, we started by creating a steering committee consisting of people from multidisciplinary branches. After concretizing the policy, it was implemented in our hospital starting with a pilot department. Through our website, newspaper and other social media accounts, the new policy was brought to the attention of the larger public and announced to patients and their families.
The entire procedure was carried out according to the principles of the PDCA (Plan Do Check Act) quality cycle. A literature study was conducted on family participation through Dutch- and English-language scientific articles. Based on this, a questionnaire was prepared for patients, relatives and nurses. From these data, a prototype was developed, with an implementation and communication plan.
The literature study showed that everyone sees advantages and disadvantages in designating a partner in care. Further analysis in practice confirmed this result. In general, what emerges strongly during these observations is that family participation can be a valuable addition in guaranteeing continuity of care and thereby increasing the quality of care and reducing the length of hospitalization by average of 1 day since the start of integration. (data obtained in AZ Groeninge from 2017-2022)
The partner in care policy has shown to be effective if it is correctly applied on a multidisciplinary level within the departments.
While analyzing how the policy is understood within the wards, we noted that several factors need improvement. These include focusing on nurse knowledge of the policy through physical training, testimonials from patients and their families (whether partner in care or not), improved patient and family information resources on the topic. Further follow-up will be necessary to complete the policy in the long term.
Employment of working-age adults (18-65 year old) with a visual impairment at an ambulatory visual rehabilitation centre (de Markgrave) in Belgium
Authors: De Veuster Ilse , Bastiaens Caroline 
Published: January 2024

Aim of the study: determining the rate of employment in adult people with a visual impairment who are using the services of de Markgrave. Examining associated characteristics and gathering data to better understand the problems (and improve our support to enhance their chances on the labour market. )
Methods: we review the records of adults between 18 and 65 years of age who consulted our visual rehabilitation centre between September the first 2020 and October the first 2022. Separate attention is given to the records of people who seek our support in case of a work-related care demand. The studied population is divided into three different age groups : 18 to 35 years of age, a second group of people between 36 and 50 years and the last group of 51 up to 65 years.
Results: we look at the type of work, previous work experiences and employment status defined as paid work ( including self employment ) versus not employed ( no paid work including retirement, student, active work seeker, disability benefits, volunteered work, ..).
Barriers to work or to continue working together with facilitators ( like social benefits for the employer) are being analyzed. We look separately at personal factors and work related issues. Visual problems are divided according to age of onset, stable or progressive, degree ( mild, moderate, severe) and associated with additional health problems. For the work related items architectural issues and mobility problems together with social difficulties ( conflicts with colleagues and leading ) and adaptation of the working place will be listed.
Conclusion: the results of our study will give us insight in the problems visually impaired people encounter during their working age. The gathered / collected knowledge wil help us to improve/ ameliorate our support in their quest for more suitable working environments.