bluuebunny/crossref_metadata_2025_split huggingface dataset:
The Transfer Patterns of Vulnerable Populations with Acute Cardio-Cerebrovascular Diseases
Authors: Choi E H , Jo J Y , Cho J H , Kwon K J , Yuk H S , Yeob K E , Park J H , Kim S Y 
Published: October 2023

Abstract

Background
In Korea, cardio-cerebrovascular diseases (CCDs) are the second leading cause of death. As providing appropriate treatment within the golden hour is crucial for managing acute onset CCDs, health outcomes vary depending on the accessibility of hospital. This study aimed to investigate the healthcare accessibility of vulnerable populations based on the transfer patterns with acute CCDs.

Methods
We analyzed the transfer times to final treatment hospital using the Korean National Health Insurance claim database from 2016 to 2021. We used multivariate logistic regression analysis on whether patients were transferred between hospitals after adjusting for age, gender, income level, and residence.

Results
The risk of transfer between hospitals was lower in socially vulnerable groups (elderly, low-income groups, and people with disabilities) compared to other groups (adjusted Odds Ratio [aOR]=0.65; 95% Confidence Interval [CI] 0.64-0.67 for people with disabilities vs people without disabilities), while it was higher in geographically vulnerable groups (rural) compared to other groups (aOR=2.05; [CI] 2.01-2.09 for rural vs metropolitan). Additionally, people with mild disabilities and those with visual, hearing, language, or physical disabilities showed higher transfer risk compared to other groups.

Conclusions
The risk of transfer showed opposite patterns between the two vulnerable groups with high mortality rates. The geographically vulnerable group had a higher risk due to absence treatable hospitals, while the socially vulnerable group might not have transferred even when it was necessary due to economic and physical constraints. The possibility of transfer was higher among the high-income group, which was assumed to be transferred to hospitals with better medical services. In fact, among patients hospitalized at teaching hospitals, 40% belong to the top 20% of income level. Efforts to improve accessibility for all in medical services should be continued.

Key messages
• The risk of being transferred between hospitals showed opposite patterns between socially vulnerable and geographically vulnerable groups with high mortality rates.
• Measures are needed to improve access to quality hospitals, and monitoring is necessary for situations where necessary transfers are not carried out.
Families’ social security and benefit needs when a child is diagnosed with cancer
Authors: Näsi E 
Published: October 2023

Abstract

When a child is diagnosed with cancer, the need for health and social services and benefits increases significantly within the family. Illness changes everyday life due to medical treatments, worry and financial challenges due to parents’ absence from work. Previous research shows that higher socioeconomic status correlates with better survival for cancer patients in Finland and abroad. The purpose of the study is to reveal the factors behind the disparate cancer outcomes among children from different backgrounds. Our aim is to build a comprehensive understanding of how families utilize services and mobilize their own social capital. The research approach is qualitative. Parents, whose child was diagnosed with cancer within 4 years, were interviewed. The interviews were analyzed with a narrative approach. The interview data was utilised in conjubction with participants’ data from the benefit register of the Social Insurance Institution of Finland (KELA). Thus, both subjective experiences and register data provide a holistic picture of families’ needs and benefit use. All families utilized more than one social benefit provided by KELA. In addition, families utilized social services and benefits provided by the municipality and patient organizations. Parents reported advice received from hospital social workers and rehabilitation counsellors very important. Social benefits and services cover only part of the families’ needs. In addition, parents reported need for concrete support such as help in household duties. The results allow for comparison among families and their social capital, e.g. the support they received from their relatives and friends. The study shows that families have a wide array of service and benefit needs when a child is diagnosed with cancer. The study helps benefit and service providers understand how families differ in their service and benefit needs and in their ability to mobilize support from their own network.

Key messages
• Families have a wide array of service and benefit needs when a child gets cancer.
• Families differ in how they mobilize support from relatives and friends during child's illness.
Being a woman or being a youth: what matters for young adults with chronic diseases?
Authors: Dauvrin M , Lenoble T , Samain T 
Published: October 2023

Abstract

Background
as the prevalence of chronic diseases increases with age, most interventions focus on ‘adults’ and neglect the growing proportion of chronically ill young people aged 15-24. Although they are no longer children, they are still in a period of transition towards autonomy and independence, particularly in industrialised countries. Moreover, health care for chronic patients is criticised for neglecting gender-specific needs. This exploratory collaborative study identified needs and preferences of youths living with a chronic disease with a gender lens.

Methods
we conducted 24 semi-directive interviews: 12 university students living with rare or chronic diseases; 12 health care professionals (doctors, nurses and allied health professionals). We conducted a group interview with an interdisciplinary staff in hospital and a group interview in an integrated primary care centre in 2022 in Brussels, Belgium. Alongside thematic analysis of the content of the interviews, we used the group analysis method with youths and professionals to co-construct recommendations: data were analysed and discussed in several collaborative meetings.

Results
youths insisted that professionals should listen more to youths and be more flexible. Youths stressed the need for psychological support currently absent, support regarding educational trajectory and warm environment of care similar to paediatric settings. Professionals expressed their concerns about being more gender-friendly and their lack of training regarding gender issues and other non-medical aspects of chronic diseases. Both youths and professionals consider gender-specific needs in a larger frame of patient-centred care focusing on the integration of patient preferences in a co-constructed dialogue.

Conclusions
to be youth-friendly, health services should better embrace the personalised health care planning, allowing for a better inclusion of what really matters for youths, be their age or their gender.

Key messages
• Personnalised health care planning supports gender-friendly health services.
• Personnalised health care planning supports youth-friendly health services.
Suicidal ideation in coronary heart disease patients: the role of ethnicity and lifestyle factors
Authors: Timková V , Husivargova A , Kundratova L , Nagyova I 
Published: October 2023

Abstract

Background
Suicidal ideation (SI) is more prevalent in people with coronary heart disease (CHD) when compared to the general population. However, studies on protective factors against SI in people with cardiovascular diseases are still lacking. Moreover, there is less known about risk factors, such as ethnicity or lifestyle factors in SI and suicidal behavior. Thus, we aimed to examine the associations between ethnicity, lifestyle factors and SI in people with CHD when controlled for sociodemographic and clinical variables.

Methods
We included 878 patients (60.0% male; 86.0% non-Roma; mean age 57.81±7.59 years; BMI 29.78±10.39 kg/m2) with CHD. All participants completed the 36-Item Short Form Survey, Food Frequency Questionnaire, Physical Activity Scale, and the General Health Questionnaire-28. Correlation analyses and multiple linear regressions were used to analyze the data.

Results
The prevalence of SI was higher in Roma people with CHD (12%) when compared to non-Roma (2.9%). Bivariate analyses showed significant associations between lower age, Roma ethnicity, lower education, lower income, poor mental health, consumption of smoked food, low consumption of fruit and vegetables, smoking, physical inactivity and SI. No association between functional status, physical quality of life and SI was identified. Multivariate analyses showed that lower age (β=-.06; p&lt;.05), poor mental health (β=-.39; p&lt;.001), smoking (β=.09; p&lt;.05), and physical inactivity (β=.10; p&lt;.01) were associated with higher SI in CHD, with an explained variance of 21.0% in SI.

Conclusions
A better quality diet and physical activity may have a positive effect on diminishing SI in CHD. A thorough understanding of the protective lifestyle factors, including physical activity, dietary habits, and being a non-smoker could facilitate the development of tailored intervention programs to improve mental health in people with CHD (Grant support: VEGA: 1/0748/22)

Key messages
• Interventions aimed at a healthy lifestyle may diminish the psychological burden in CHD patients.
• Ethnic disparities in mental health should be considered when designing public health interventions.
2.K. Skills building seminar: Nutrition: A Challenge For The Intervention Research And Health Promotion
Authors:   Organised by: French National Cancer Institute (France),   Chair persons: Jérôme Foucaud (France), Florence Cousson-Gélie (France)
Published: October 2023

Abstract

Cancer is the leading cause of death in Europe, the second in North America and it's estimated that 40% of cancers are preventable. Among these cancers, it's estimated that 10,8% are attributable to unbalanced diet (5.4%) and overweight (5,4%), and in addition, a smaller proportion is attributable to lack of physical activity (0,9%). In France, it's estimated that one in two people is overweight and particular attention is paid to young people. It's recognised that the risk of cancer can be reduced when the risk factor is known and acted upon: experience has shown that this knowledge is necessary but insufficient to know how to act. Population health intervention research (PHIR), a “solutions” science, fills this gap. It's concerned with the design, implementation, evaluation, adaptation, transferability and sustainability of interventions aimed at improving the health of populations, in order to produce valid knowledge with high potential for social and health impacts. This scientific approach apprehends interventions as “events in systems” and challenges the methodological hegemony imposed for many years by the biomedical sciences and especially epidemiology approach. Finally, this approach follows to act and intervene with and for the targeted populations, particularly people in vulnerable situations.
Today, the development of PHIR in health promotion and in the field of cancer on the topic of nutrition, faces three major challenges:
- Political;
- Methodology;
- Transferability.
It's therefore proposed to give three complementary presentations directly addressing these issues on the topic of nutrition, each based on concrete examples of implementation in health promotion and in the field of cancer. The aim of this workshop is to offer a time for exchange and discussion on the challenges to be met in developing PHIR in health promotion - on the topic of nutrition - as an innovative model of research within an innovative paradigm shift. It will enable participants to clarify their conceptions of PHIR for the advancement of health promotion in oncology and to evolve these concepts in relation to these three key issues. An interactive format is proposed, including time for discussion based on participants’ perceptions and time for presentations.

Key messages
• PHIR: an effective scientific approach and a relevant tool for thinking about and developing health promotion policies on the topic of nutrition.
• New research paradigm in health promotion and the fight against cancers, particularly linked to unbalanced diet and overweight, based on intervention with populations to act on the determinants of health.
Sustaining health and well-being in the built environment
Authors: Kacel S , Altomonte S 
Published: October 2023

Abstract

Public health is strongly interconnected with the physical, social, and economic environment, and with people's needs, preferences, and behaviours. Physical factors affect human health and well-being (e.g., temperature, light, sound, air), as much as spatial qualities (e.g., physical activity, active communities), and feelings of safety and security (e.g., mental health, restoration). The design, operation and maintenance of the built environment can reduce health threats to inhabitants, allowing them to flourish and thrive. Yet, although human factors are starting to be implemented in building criteria and rating tools (e.g., Flourish Wheel, WELL Building Standard, etc.), comprehensive frameworks are needed to combine metrics and methods, and systematically evaluate health and well-being in buildings. This can allow to recommend guidelines and interventions that policy-makers can adopt to improve standards in the building stock, including housing that is today a crucial public health priority. This research critically consolidates existing metrics and methods to benchmark health and well-being in built spaces and proposes, through a wide interdisciplinary perspective, a robust and practical set of tools to support human experience and outcomes within the built environment. The study first elaborates on the common definitions of health and well-being in buildings. Through a systematic review, using the PRISMA and PICOC approaches, health and well-being metrics and methods are then identified. A framework and post-occupancy evaluation protocol are then developed, to be implemented within an interactive tool. The protocol can be used as a toolkit to, holistically, measure and benchmark health and well-being in buildings in use. The tool brings the evaluation toolkit together and provides recommendations. This study wishes to offer a valuable contribution towards securing public health, improving the qualities of the habitats that sustain a large part of our daily life.

Key messages
• Physical environment affect human health and well-being through physical factors, spatial qualities, and feelings of safety and security.
• Measuring and benchmarking health and well-being in buildings and providing recommendations contribute to securing public health of the inhabitants, and improving the qualities of the habitats.
After the 2021 Air Quality Guidelines (AQGs): a scoping review study protocol on air pollution
Authors: Monti M , Broccoli S , Angelini P , Giorgi Rossi P , Ranzi A 
Published: October 2023

Abstract

Background
Outdoor air pollution is a known risk factor for human health. In 2021, the World Health Organization (WHO) updated its former guidelines on air quality, considering the latest body of evidence (up to 2018) about health impact of different air pollutants. Yet, according to the WHO, some issues are well-covered, while others need further investigation. This scoping review is part of the “Air and Health” monitoring and research project promoted by Emilia-Romagna, a region of Italy located in the Po valley, the area with the highest concentration of air pollutants in Western Europe. It will summarize the literature produced after 2018 regarding long-term (LT) health effects of outdoor air pollution, describing whether recent studies are focused on reinforcing established results or on emerging topics.

Methods
The review follows the PRISMA extended for Scoping Reviews (PRISMA-ScR). We will conduct an online search on databases (Pubmed, EMBASE), reviewing the strings against the PRESS 2015 Evidence-Based Checklist. The eligibility criteria are: relation to outdoor air pollution and its LT effects on human health (excluding occupational setting), original research, any language (abstract in English), date of publication between 2019/01/01 and 2023/04/30. Further studies may be identified through reference crosscheck. Two authors will independently conduct the title/abstract screening, excluding the non-eligible reports via reference management software. In case of disagreement, a decision will be taken through consensus. Included articles will be summarized according to pollutant-outcome pairs investigated: confirmatory (pairs included in AQGs) or innovative (pairs not included in AQGs).

Results
The preliminary search string identified more than 1000 papers to be screened.

Conclusions
The review will provide an insight in recent literature directions, whether it is confirmatory or innovative, to find possible gaps in the light of research needs identified by AQGs.

Key messages
• Outdoor air pollution is a risk factor for human health, but uncertainties still remain.
• A review of the literature after the 2021 WHO global AQGs can orient future investigations.
Refreshed academic viewpoint on patient data ownership in digital health context
Authors: Mirchev M 
Published: October 2023

Abstract

Background
Digital health involves generating and communicating large sensitive patient data sets. There is significant potential in its applications, but also some impediments. Our previous study showed that ownership of patient data is a problem in digital health context, not fully understood and often neglected. However, in the last two years, increased attention to this issue is observed and we aim to find if the medical academic community changed its viewpoint on patient data ownership in the context of digital health.

Methods
Our previous study (2014-2020) identified 27 relevant to the problem articles. A comprehensive search of PubMed, ScienceDirect and Scopus, performed between January 2021 and April 2023, identified 21 appropriate full-text publications focused on patient data ownership (problem) in digital health (context). Research questions included scientific area of publication, perception and aspects of ownership, possible solutions.

Results
The publications are in medical and public health (43%), digital health and medical informatics (29%), technical (19%), law and ethics (9%) journals; 71% with impact factor; authored by 38% EU, 24% USA, 9% UK, 9% Brazilian academicians. The majority (86%) are in the area of medical research - access, control, patient data sharing and use, secondary and passive data use, registries, AI, wearables, sensors; ethical challenges to digital health; 90% still perceive ownership as a challenge, arising in relation to medical research and data generated from the IoT, wearables, sensors, apps and social media. All publications discuss ownership in ethical and legal aspects and find the solution in proper legislation.

Conclusions
Digital health with its huge amounts of generated data brings forward the overlooked issue of patient data ownership as a challenge to medical research. Academic attention is rising, and addressing this challenge requires the combined efforts of all stakeholders for suitable amendments in the legislation.

Key messages
• Ownership of patient data in the context of digital health is a problem, especially for medical research, that should not be neglected and needs a comprehensive attitude from all stakeholders.
• Proper legislation concerning patient data ownership may help in improving international academic medical and public health research, healthcare services, and the health of the population as a whole.
FeMFit: Feasibility of tracking the menstrual cycle using digital questionnaires and wearable devices
Authors: Lang A , Bruhn R , Fehling M , Heidenreich A , Khanyaree I , Henningsen M , Remschmidt C 
Published: October 2023

Abstract

Introduction
Despite its importance to female reproductive health and its impact on women's daily lives, the menstrual cycle and its effects on health remain poorly studied. Conventional clinical trials rely on infrequent in-person assessments. The aim of this study was to explore the technical feasibility of collecting longitudinal wearable and digital questionnaire data and its potential for gaining biological insights on the menstrual cycle.

Methods
This prospective observational cohort study was conducted online over twelve weeks using a digital study app and Fitbit inspire 2 devices. 42 individuals were recruited by their gynecologist in a practice in Berlin, Germany. Statistical analysis included descriptive statistics of user behavior and retention and comparative analyses of symptoms and sensor metrics at different phases of the menstrual cycle.

Results
We collected data of 114 ovulatory cycles from 33 participants, with nine out of 42 individuals dropping out within two weeks of study start. Participants reported a total of 2,468 symptoms during the luteal phase and menses. Despite difficulties with data completeness due to retention problems and drop-outs, the combined questionnaire and sensor data collection was technically feasible and produced interesting biological insights. Preliminary analysis of questionnaire and wearable data showed an increased heart rate in the mid and end luteal phase compared to menses and lower step count (mean 10,283 ±6,277) with strong symptoms of premenstrual syndrome (PMS, no/low PMS 11,694 ±6,458).

Conclusions
We demonstrate the feasibility of using an app-based approach for collecting combined wearable and questionnaire data on menstrual cycles. Dropouts showed that engagement efforts would need to be improved for larger studies. Despite the challenges faced in collecting wearable data on consecutive days, the collected data provided valuable biological insights that should motivate further research at large scale.

Key messages
• Using an app-based approach for collecting combined wearable and questionnaire data on menstrual cycles was technically feasible and delivered interesting biological insights.
• User engagement efforts need to be improved to reduce drop-outs and ensure consecutive data collection.