bluuebunny/crossref_metadata_2025_split huggingface dataset:
Which Educational Topics and Smartphone App Functions Are Prioritized by US Patients With Rheumatic and Musculoskeletal Diseases? A Mixed-Methods Study
Authors: Nowell William B. , Gavigan Kelly , Garza Kimberly , O’Beirne Ronan , Safford Monika , George Michael , Ogdie Alexis , Walsh Jessica A. , Danila Maria I. , Venkatachalam Shilpa , Stradford Laura , Rivera Esteban , Curtis Jeffrey R. 
Published: May 2024

ObjectiveWe sought to identify (1) what types of information US adults with rheumatic and musculoskeletal diseases (RMD) perceive as most important to know about their disease, and (2) what functions they would use in an RMD-specific smartphone app.MethodsNominal groups with patients with RMD were conducted using online tools to generate a list of needed educational topics. Based on nominal group results, a survey with final educational items was administered online, along with questions about desired functions of a smartphone app for RMD and wearable use, to patients within a large community rheumatology practice–based research network and the PatientSpot registry. Chi-square tests and multivariate regression models were used to determine differences in priorities between groups of respondents with rheumatic inflammatory conditions (RICs) and osteoarthritis (OA), and possible associations.ResultsAt least 80% of respondents considered finding a rheumatologist, understanding tests and medications, and quickly recognizing and communicating symptoms to doctors as extremely important educational topics. The highest-ranked topic for both RIC and OA groups was “knowing when the medication is not working.” The app functions that most respondents considered useful were viewing laboratory results, recording symptoms to share with their rheumatology provider, and recording symptoms (eg, pain, fatigue) or disease flares for health tracking over time. Approximately one-third of respondents owned and regularly used a wearable activity tracker.ConclusionPeople with RMD prioritized information about laboratory test results, medications, and disease and symptom monitoring, which can be used to create educational and digital tools that support patients during their disease journey.
Patient Perspectives on a Decision Aid for Systemic Lupus Erythematosus: Insights and Future Considerations
Authors: Karabukayeva Aizhan , Hearld Larry R. , Choi Seongwon , Singh Jasvinder A. 
Published: May 2024

ObjectiveSystemic lupus erythematosus (SLE) is a chronic autoimmune disease with a wide spectrum of clinical manifestations. A decision aid (DA) for SLE was developed and implemented in 15 rheumatology clinics throughout the United States. This study explored the experiences of patients who viewed the DA to understand how patients engage with and respond to the SLE DA.MethodsWe conducted a qualitative descriptive study using semistructured interviews with a convenience sample of 24 patients during May to July 2022.ResultsPatients recognized the value of the SLE DA in providing general knowledge about SLE and different treatment options. However, patients expressed a desire for more comprehensive lifestyle information to better manage their condition. Another theme was the importance of having multiple formats available to cater to their different needs, as well as tailoring the DA to different stages of SLE.ConclusionThis study contributes to a broader understanding of how to provide patient-centered care for patients with SLE by offering practical insights that can inform the development of more effective, patient-centric health information technologies for managing chronic diseases, ultimately improving patient outcomes. Overall, this study underscores the significance of optimizing both the information content and determining the appropriate delivery of the tool for its future sustainability.
Evaluating Factors Associated With Telehealth Appropriateness in Outpatient Rheumatoid Arthritis Encounters Using the Encounter Appropriateness Score for You (EASY)
Authors: Smith Isaac D. , Solomon Mary J. , Mulder Hillary , Sims Catherine , Coles Theresa M. , Overton Robert , Economou-Zavlanos Nicoleta , Zhao Rong , Adagarla Bhargav , Doss Jayanth , Henao Ricardo , Clowse Megan E.B. , Bosworth Hayden , Leverenz David L. 
Published: May 2024

ObjectiveTelehealth has been proposed as a safe and effective alternative to in-person care for rheumatoid arthritis (RA). The purpose of this study was to evaluate factors associated with telehealth appropriateness in outpatient RA encounters.MethodsA prospective cohort study (January 1, 2021, to August 31, 2021) was conducted using electronic health record data from outpatient RA encounters in a single academic rheumatology practice. Rheumatology providers rated the telehealth appropriateness of their own encounters using the Encounter Appropriateness Score for You (EASY) immediately following each encounter. Robust Poisson regression with generalized estimating equations modeling was used to evaluate the association of telehealth appropriateness with patient demographics, RA clinical characteristics, comorbid noninflammatory causes of joint pain, previous and current encounter characteristics, and provider characteristics.ResultsDuring the study period, 1823 outpatient encounters with 1177 unique patients with RA received an EASY score from 25 rheumatology providers. In the final multivariate model, factors associated with increased telehealth appropriateness included higher average provider preference for telehealth in prior encounters (relative risk [RR] 1.26, 95% CI 1.21-1.31), telehealth as the current encounter modality (RR 2.27, 95% CI 1.95-2.64), and increased patient age (RR 1.05, 95% CI 1.01-1.09). Factors associated with decreased telehealth appropriateness included moderate (RR 0.81, 95% CI 0.68-0.96) and high (RR 0.57, 95% CI 0.46-0.70) RA disease activity and if the previous encounters were conducted by telehealth (RR 0.83, 95% CI 0.73-0.95).ConclusionIn this study, telehealth appropriateness was most associated with provider preference, the current and previous encounter modality, and RA disease activity. Other factors like patient demographics, RA medications, and comorbid noninflammatory causes of joint pain were not associated with telehealth appropriateness.
The Burden of Spine Structural Damage on Function in Patients With Axial Spondyloarthritis: Adaptation-Mediated Uncoupling?
Authors: Penteado Marcela Paula Santos , Resende Gustavo Gomes , da Cruz Lage Ricardo , Tavares Wilson Campos , de Souza Bueno Filho Júlio Silvio , Ferreira Gilda Aparecida 
Published: May 2024

ObjectiveTo investigate the association between spinal damage and functional capacity in patients with axial spondyloarthritis (axSpA) and to compare the performance of 2 radiographic scores (modified Stoke Ankylosing Spondylitis Spine Score [mSASSS] and Combined Ankylosing Spondylitis Spine Score [CASSS]).MethodsRadiographs from 101 patients with axSpA were scored for cervical facet joints (CFJ) and mSASSS for vertebral bodies. CASSS was calculated as the sum of both scores. Physical function was assessed by Bath Ankylosing Spondylitis Functional Index (BASFI); disease activity by Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) and Ankylosing Spondylitis Disease Activity Score (ASDAS); mobility by Bath Ankylosing Spondylitis Metrology Index (BASMI); and quality of life by Ankylosing Spondylitis Quality of Life (ASQOL). Univariate and multivariate analyses were performed to investigate the association between possible explanatory variables and outcomes.ResultsBASFI correlated strongly with ASQOL (Spearman ρ 0.66) and BASDAI (ρ 0.70), moderately with BASMI (ρ 0.46) and ASDAS (ρ 0.59), and weakly with mSASSS (ρ 0.29) and CASSS (ρ 0.28). A best-fit multivariate model for BASFI, adjusted for symptom duration, age, sex, and smoking status, included BASDAI (B0.76,P< 0.001), BASMI (B0.62,P< 0.001), and history of total hip arthroplasty (B1.22,P= 0.05). Radiographic scores were predictors of BASFI only when BASMI was removed from the model (mSASSS:B0.03,P= 0.01; CASSS:B0.02,P= 0.01).ConclusionSpinal damage was independently associated with physical function in axSpA, but to a lesser extent than disease activity and mobility. Moreover, incorporating CFJ assessment in the mSASSS did not improve the ability to predict function.
A COMPREHENSIVE REVIEW OF LIFE CYCLE ASSESSMENT AND ENERGY EFFICIENCY IN 3D PRINTING FOR CONSTRUCTION: CURRENT STATE, BENEFITS, LIMITATIONS, AND FUTURE OUTLOOK
Authors: Top Semahat Merve , Cudzik Jan , İlerisoy Zeynep Yeşim 
Published: May 2024

ABSTRACT
The agenda of Industry 4.0 strongly affects design and construction at all its phases, and three-Dimensional Printing (3DP) is an essential part of it. The emerging technology has the potential to become a more valid and accepted form of construction. This research is based on a literature review regarding the relationships between the concepts of Life Cycle Assessment (LCA) and energy efficiency for 3DP in construction research to understand the developments. Systematic bibliometric and scientometric analyses are used as data analysis techniques to make a detailed comparison. The comparison allowed for assessing and determining the current state, benefits, limitations, and future outlook. Current research is based on insights examining materials first (80%), followed by walls (15%), buildings (11%), and 3DP technology (6%). The findings highlight that 3DP technology offers significant advantages in terms of time efficiency, reliability, ecological impact, and sustainability within the construction industry. However, several challenges, such as the complexity of material mixture content design, the lack of standardized 3DP materials and codes, and the limited availability of experts in the field, prevent its widespread adoption. Further advancement of 3DP requires the development of standards, policies, training and materials for its full implementation in the construction industry.
SM-BIM: A NEW CONCEPTUAL FRAMEWORK FOR MULTI-CRITERIA DECISION-MAKING PROCESS BASED ON SMART MATERIALS AND BUILDING INFORMATION MODELING
Authors: Mohamed Menna-Allah T. , Megahed Naglaa A. , Eltarabily Sara , Shahda Merhan M. 
Published: May 2024

ABSTRACT
Because the construction sector exerts a considerable environmental effect, especially on building materials, a growing interest in environmental design and construction has emerged. The United Nations has set sustainable development goals (SDGs) for 2030 to protect the environment, including energy conservation and doubling the global rate of improving energy efficiency, because building materials significantly affect energy consumption. Thus, building-material selection at the initial design phase is critical, and random selection of building materials often involves subjectivity, uncertainty, and ambiguity. This process costs time and resources while resulting in the inefficient environmental performance of buildings. Therefore, this study proposes the use of building-information modeling (BIM) as a tool because of its importance in attaining sustainability to aid in the selection process of smart materials (SMs) based on specified criteria and make the selection process faster and more accurate. This method is accomplished through a theoretical study of SMs and using a conceptual framework through four phases for multicriteria decision-making to improve energy efficiency and reduce the energy consumption of buildings. To pursue SDG 7, a theoretical and deductive approach is used.
PRODUCTION OF MYCELIUM-BASED COMPOSITE MATERIALS AND EVALUATION OF THERMAL INSULATION PERFORMANCE
Authors: Sağlam Sebahat Sevde , Özgünler Seden Acun 
Published: May 2024

ABSTRACT
Increasing awareness of the adverse effects of materials used in the construction industry on the environment and health increases the tendency towards bio-based products based on principles such as circular economy and sustainability. Meanwhile, there is a tendency to solve the post-use waste problem and reduce carbon emissions by extending the service life of building materials or making recyclable materials widespread. Mycelium-based composites (MBC) constitute an innovative natural building material interface with the potential to be used as building insulation material. In producing MBC, a substrate is used because of the significant growth provided by lignocellulosic biomass. In this study, MBCs were produced by growing Pleurotus ostreatus on 16 substrates during a 28-day incubation period. Consequently, two composites with the best performance were selected from the preliminary research on the produced samples. It was aimed to determine the thermal, mechanical, physical properties, microstructure characterization and longterm performance of the selected composites. For this reason, thermal conductivity coefficient measurement, water absorption values, water vapor permeability, ultrasound velocity determination, mechanical strength tests and durability tests were carried out. The findings showed that composites containing beech sawdust and pulp paper had better properties than other substrates. Advanced research results showed that MBCs are promising as thermal insulation materials.
HOW TO REDUCE TRANSMISSION OF RESPIRATORY INFECTIOUS DISEASE IN INTERIOR SPACES: AN EMPIRICAL STUDY WITH INTERIOR DESIGN PROFESSIONALS
Authors: Kim Suk-Kyung , Han Juyeon 
Published: May 2024

ABSTRACT
This study was motivated by the need for empirical evidence to inform design guidelines for interior workspaces during the COVID-19 pandemic. This research had two goals: to identify the features of interior spaces and behaviors in Korea where many confirmed cases of COVID-19 were found; and to examine design professionals’ opinions on workplace management and operation to reduce transmission of respiratory infectious disease.
A content analysis of newspaper articles on confirmed cases was conducted and a survey was administered to design professionals. The analysis identified common features of the interior spaces with confirmed cases of COVID-19. Based on the analysis of the article contents, a questionnaire was constructed. The questionnaire asked design professionals to suggest interior design considerations that could prevent the spread of the virus in interior spaces.
They emphasized the separation of individual spaces from shared spaces; installing partitions in rooms that could not be divided; ending two-way traffic in narrow hallways; reducing room density and avoiding crowding; adopting touchless technologies and no-touch access to interior spaces; automating interior equipment and facilities; and encouraging office users to work from home if possible. These findings should be factored into interior space planning and management to reduce the risk of exposing future users of these spaces to infectious respiratory diseases.
LIFECYCLE MAINTENANCE PRACTICES OF VERTICAL GREENERY SYSTEMS IN TROPICAL CLIMATES: A CASE STUDY OF KUALA LUMPUR
Authors: Shuhaimi Nur Dinie Afiqah Mohammad , Zaid Suzaini Mohamed , Mat Nik Elyna Myeda Nik , Zainon Nurshuhada , Zyed Zafirah Al Sadat , Harumain Yong Adilah Shamsul , Kamaruzzaman Syahrul Nizam , Manickam Sugumaran , Hassan Norsiah , Halim Jamilah Halina Abdul , Aziz Azlina , Wajid Norhayati Mat 
Published: May 2024

ABSTRACT
A vertical green system (VGS) proposes numerous benefits, expanding from the principles of sustainable social, environmental and economic development, such as aesthetics, health and ecology. While extensive research exists on VGS in terms of benefits, application, plant selection and design, limited attention has been given to the operational and long-term lifecycle maintenance of VGS, particularly in tropical climates such as Malaysia. Therefore, this paper aims to explore current VGS maintenance practices and issues in the tropical climate of Malaysia. Qualitative analysis was employed to study maintenance practices in commercial and institutional buildings in Malaysia. The qualitative data was then compared with international green wall guidelines to benchmark with current maintenance practices in Malaysia. The study revealed that the absence of a green wall guideline in Malaysia has resulted in a reliance on a limited number of competent experts on green walls, potentially contributing to higher installation and maintenance costs. These findings provide valuable insights into the impact of national guidelines on green wall maintenance practices in Malaysia, assisting building managers and policymakers in formulating appropriate maintenance practices and guidelines.
L’éducation au développement durable au Burkina Faso : orientations et contraintes
Authors: Yogo Evariste Magloire 
Published: May 2024

La nécessité de construire un monde plus responsable mobilise de plus en plus la communauté internationale et le Burkina Faso n’est pas en reste. Ce pays sahélo-saharien s’évertue à intégrer les principes, les valeurs et les pratiques du développement durable dans son système d’éducation et de formation. La prise en compte des préconisations de la communauté internationale et celle des orientations propres à la situation géo-climatique que connaît le Burkina Faso se côtoient et sont portées par des acteurs divers. La dynamique enclenchée ces dernières années permet d’entrevoir la co-construction d’un curriculum plus formel d’éducation au développement durable, en dépit du contexte de crise sécuritaire et humanitaire qui affecte l’éducation.
Le programme École verte au centre de l’éducation au développement durable en Slovaquie
Authors: Gallayová Zuzana , Trochanová Klaudia 
Published: May 2024

Dans la pratique pédagogique slovaque, le terme d’éducation à l’environnement est préféré à celui d’éducation au développement durable (EDD) et fait partie du curriculum en tant que thème transversal. Cette approche offre la possibilité d’étudier la complexité des problèmes environnementaux et de trouver des solutions sous différentes perspectives. Cela est bénéfique pour les élèves, mais exigeant pour les enseignants, en matière de connaissances, de compétences et de pratiques méthodologiques. Les objectifs de l’École verte sont définis ainsi : « nous faisons ce que nous enseignons », « nous enseignons différemment » et « nous faisons le changement ensemble ». L’article décrit les principes du programme de l’École verte en Slovaquie et fournit des exemples de bonnes pratiques pédagogiques.
Territorialisation de la plateforme Airbnb
Authors: Grondeau Alexandre , Dourthe Gwenaëlle 
Published: May 2024

Au cours de la dernière décennie, les plateformes numériques ont eu un impact significatif sur la manière dont nous percevons et pratiquons les villes. Airbnb est l'une de ces plateformes. Dans cet article, nous verrons comment l’expansion de la plateforme Airbnb impacte-t-elle d’un point de vue socio-économique les villes où elle s’implante, et comment les institutions et les populations locales s’organisent-elles pour encadrer ce développement ? Pour ce faire, nous proposons de nous concentrer sur la territorialisation des logements disponibles sur la plateforme Airbnb ainsi que sur les enjeux socio-économiques et politiques induits dans deux villes méditerranéennes touristiques emblématiques : Barcelone et Lisbonne. Nous analyserons la distribution spatiale des logements proposés sur Airbnb, leurs caractéristiques et nous les croiserons avec les diverses données sociodémographiques de ces villes afin de mesurer l’impact de l’émergence et du développement international de la plateforme créée dans la Silicon Valley. Puis, nous nous intéresserons aux conséquences de ce processus d’appropriation territorial par divers groupes sociaux et par les acteurs politiques en responsabilité, en tenant compte d’un contexte touristique massif de nos terrains d'étude. Nous examinerons ensuite le positionnement des habitants en tant qu’utilisateurs ou fournisseurs de la plateforme Airbnb, et les oppositions que celle-ci peut rencontrer. Pour finir, nous étudierons l’encadrement progressif et les règlementations municipales mises en place pour limiter les impacts négatifs du développement de la multinationale américaine.
Covoiturage au Grand-Nokoué et plateformes numériques de mobilité partagée en Afrique de l'Ouest
Authors: Ballo Raynald 
Published: May 2024

Les mobilités partagées, notamment le covoiturage, nourrissent un paradoxe en Afrique. Alors que les taxis-brousse connaissent un succès historique depuis 50 ans du fait de pratiques traditionnelles de partage transposées dans le transport collectif, la modernisation via les plateformes numériques peine à s'implanter durablement. Ce constat mis en évidence grâce à des cartes souligne les échecs récurrents des initiatives prises en Afrique de l'Ouest. En effet, ces 15 dernières années, plus de la moitié des entreprises créées dans ce secteur ont été abandonnées. Dans le Grand-Nokoué au Bénin, une enquête qualitative et quantitative auprès de 230 usagers combinée au niveau de l’Afrique de l’Ouest à une analyse documentaire, permet de comprendre leurs difficultés. Des données tirées d’une immersion sur le terrain, trois facteurs majeurs se dégagent : un rapport au temps plus flexible sans culture de la planification rigoureuse décalé de la logique rationnelle des plateformes ; une conception communautaire ancrée des déplacements basés sur la proximité sociale à rebours du partage avec des inconnus ; un sentiment d'insécurité vis-à-vis des étrangers et une primauté au confort individuel contraires à l'esprit du covoiturage. Les classes populaires rompues aux pratiques ancestrales d'entraide dans les transports pourraient jouer un rôle clé dans l'ancrage territorial durable des nouveaux services. Or, les initiatives innovantes dans le domaine des plates-formes nécessitent un fort portage politique ici non acquis et, concomitamment, une familiarisation ici encore très « progressive ».
Apolipoprotein E Gene Polymorphism, Serum Lipids, and Risk of Superficial Fungal Infections in Egyptian Patients – A Preliminary Case-Controlled Study
Authors: Mustafa Amany I. , Shams Ghada M. , Fawzy Eman M. , Alhusseini Naglaa F. , Khashaba Rana A. , EL-Shimi Ola S. 
Published: May 2024

Background:
Apolipoprotein E (APOE) gene isoforms have been found to affect the risk of superficial fungal infections (SFIs). However, the data only cover a few ethnicities.

Aims:
The present work intended to investigate the association of APOE gene polymorphism and serum lipids with the susceptibility of SFIs among a group of Egyptian patients.

Materials and Methods:
Standard laboratory methods were used to estimate the serum lipid profile, and polymerase chain reaction–restriction fragment length polymorphism was used to detect APOE gene polymorphism in deoxyribonucleic acid extracted from 150 SFI patients and an equal number of apparently healthy matched controls.

Results:
Serum total cholesterol, triglycerides, and low-density lipoprotein cholesterol were significantly higher in the studied patients than in controls. The APOE gene ε2, ε4 alleles, and ε3/4 and ε3/2 genotypes were significantly distributed in the patients than in the controls. APOE ε3/3 genotype was predominant in dermatophytosis and tinea versicolour patients, and ε3/4 genotype was predominant in candidiasis.

Conclusions:
ApoE alleles ε2 and ε4, and genotypes ε2/3 and ε3/4 are linked to SFI and may be risk factors, whereas allele ε3 and genotype ε3/3 may be protective for SFI in the Egyptian population studied. The lipid profile results suggest that hyperlipidemia may provide evidence for SFI pathogenesis. However; further large-scale studies are still needed to validate our results.