bluuebunny/crossref_metadata_2025_split huggingface dataset:
Patterns of the Health and Economic Burden of 33 Rare Diseases in China: Nationwide Web-Based Study
Authors: Yu Jiazhou , Chen Shanquan , Zhang Huanyu , Zhang Shuyang , Dong Dong 
Published: August 2024

Background
Rare diseases (RDs) affect millions of individuals collectively worldwide, contributing to significant burdens on patients and families in various aspects. However, there is a lack of evidence on the underlying patterns of burdens among diverse RDs for informing targeted social and health policies to address the unmet needs of this vulnerable population.

Objective
This study aimed to examine the underlying patterns of the health and economic burden of 33 different RDs in China and identify the potential determinants.

Methods
A nationwide internet-based cross-sectional survey was conducted in China between 2019 and 2020. Physical and mental health burden was measured by health-related quality of life. Economic burden was evaluated based on the proportions of direct medical, direct nonmedical, and indirect costs relative to household income. We used cluster analysis to identify patterns of health and economic burdens and conducted multinomial logistic regression to explore potential predictors of cluster membership.

Results
The study included 8454 adults and 8491 children affected by 33 RDs. The following 3 clusters were identified: “extremely high burden” (representing 92/8454, 1.1% and 19/8491, 0.2% of adult and pediatric patients, respectively), “overall high burden” (5933/8454, 70.2% and 4864/8491, 57.3%, respectively), and “overall low burden” (2429/8454, 28.7% and 3608/8491, 42.5%, respectively). Wilson disease, Marfan syndrome, and Langerhans cell histiocytosis more likely resulted in an “extremely high burden” than others. Poverty was significantly associated with being in this extremely high burden group. Diseases causing neuromuscular symptoms and requiring long-term treatment (eg, amyotrophic lateral sclerosis, spinocerebellar ataxia, and Dravet syndrome) were prevalent in the “overall high burden” group. Key predictors of this group included older age, lower socioeconomic status, diagnostic delay, and comorbidity.

Conclusions
This study provides novel and valuable evidence on the burden of RDs in developing regions like China. The findings reveal significant disparities in the impact of RDs, emphasizing the need for targeted health care interventions and policies.
Exploring Machine Learning Applications in Pediatric Asthma Management: Scoping Review
Authors: Ojha Tanvi , Patel Atushi , Sivapragasam Krishihan , Sharma Radha , Vosoughi Tina , Skidmore Becky , Pinto Andrew D , Hosseini Banafshe 
Published: August 2024

Background
The integration of machine learning (ML) in predicting asthma-related outcomes in children presents a novel approach in pediatric health care.

Objective
This scoping review aims to analyze studies published since 2019, focusing on ML algorithms, their applications, and predictive performances.

Methods
We searched Ovid MEDLINE ALL and Embase on Ovid, the Cochrane Library (Wiley), CINAHL (EBSCO), and Web of Science (core collection). The search covered the period from January 1, 2019, to July 18, 2023. Studies applying ML models in predicting asthma-related outcomes in children aged <18 years were included. Covidence was used for citation management, and the risk of bias was assessed using the Prediction Model Risk of Bias Assessment Tool.

Results
From 1231 initial articles, 15 met our inclusion criteria. The sample size ranged from 74 to 87,413 patients. Most studies used multiple ML techniques, with logistic regression (n=7, 47%) and random forests (n=6, 40%) being the most common. Key outcomes included predicting asthma exacerbations, classifying asthma phenotypes, predicting asthma diagnoses, and identifying potential risk factors. For predicting exacerbations, recurrent neural networks and XGBoost showed high performance, with XGBoost achieving an area under the receiver operating characteristic curve (AUROC) of 0.76. In classifying asthma phenotypes, support vector machines were highly effective, achieving an AUROC of 0.79. For diagnosis prediction, artificial neural networks outperformed logistic regression, with an AUROC of 0.63. To identify risk factors focused on symptom severity and lung function, random forests achieved an AUROC of 0.88. Sound-based studies distinguished wheezing from nonwheezing and asthmatic from normal coughs. The risk of bias assessment revealed that most studies (n=8, 53%) exhibited low to moderate risk, ensuring a reasonable level of confidence in the findings. Common limitations across studies included data quality issues, sample size constraints, and interpretability concerns.

Conclusions
This review highlights the diverse application of ML in predicting pediatric asthma outcomes, with each model offering unique strengths and challenges. Future research should address data quality, increase sample sizes, and enhance model interpretability to optimize ML utility in clinical settings for pediatric asthma management.
Pengembangan Video Pembelajaran Pendidikan Jasmani Olahraga dan Kesehatan pada materi Pencak Silat
Authors: Sutrisno Sutrisno , Nugraha Ugi , Diana Fitri 
Published: August 2024

Penelitian pengembangan yang dilaksanakan bertujuan untuk menghasilkan dan melihat kelayakan produk berupa video pembelajaran berbasis Audio visual pada materi pencak silat pada pembelajaran pendidikan jasmani dan olahraga disekolah dasar negeri 160 simpang tuan. Jenis penelitian yang dilaksanakan adalah penelitian pengembangan (research and development) dengan model pengembangan 4D. Prosedur yang dilakukan dalam penelitian meliputi tahap define (pendefenisian), design (perencanaan) dan develop (pengembangan). Hasil dari penelitian dan pengembangan produk berupa video pembelajaran berbasis Audio Visual pada pembelajaran PJOK Tingkat Sekolah Dasar. Adalah layak digunakan hal ini dapat dilihat dari hasil penelitian dari ahli materi tahab I 92% dan ahli materi tahap II 100% ahli media tahap I 91% serta uji coba kelompok kecil siswa siswi kelas VI (enam) 93% dengan keterangan setuju. Dapat disimpulkan bahwa produk pengembangan media pembelajaran berbasis audio visual pada pembelajaran PJOK materi pencak silat tingkat sekolah dasar dinyatakan baik dan dapat digunakan untuk media pembelajaran
Minat Siswa Sekolah Dasar Islam Terpadu Terhadap Praktik Pembelajaran Olahraga Tenis Meja
Authors: Irlanda Aldi , Hadinata Reza , Murniati Sri 
Published: August 2024

Tujuan penelitian ini yaitu untuk mengetahui minat Siswa Sekolah Dasar dalam mengikuti pembelajaran praktik Tenis Meja. Penelitian ini dilakukan di SD Islam Terpadu Nurul Balad Desa Mentawak Kecamatan Nalotantan Kabupaten Merangin dengan jenis penelitian deskriptif kuantitatif. Sampel diambil menggunakan total sampling dengan responden sebanyak 18 siswa dari populasi. Hasil penelitian berdasarkan penentuan kategori penilaian dari skor angket, Pada dimensi Intrinsik kategori sangat setuju sebanyak 11 orang dengan persentase 61%, kategori setuju sebanyak 7 orang dengan persentase 39%. Pada dimensi Ekstrinsik kategori sangat setuju sebanyak 10 orang dengan persentase 56%, kategori setuju sebanyak 8 orang dengan persentase 44%. Minat Praktik Pembelajaran Olahraga Tenis Meja Terhadap Siswa sebanyak 7 orang dengan persentase 39%. Kesimpulan dalam penelitian ini adalah minat praktik pembelajaran olahraga tenis meja terhadap siswa SD Kelas VI Islam Terpadu Nurul Balad Desa Mentawak Kecamatan Nalotantan Kabupaten termasuk dalam kategori baik.
The Influence of Tourist Satisfaction against the Intention to Revisit of the Indonesian Tourist to Malaysia
Authors: Siregar Suadhe Rahmat , Tresnasari Rini 
Published: August 2024

Objective: The objective of this study is to examine the destination image and return intention perceived value directly and indirectly through the Indonesian tourist satisfaction in Malaysia.Methodology: This study is using survey research tools and a quantitative research methodology. A multivariate technique for comparing exogenous and endogenous variables is SmartPls 4.1.0.1. Indonesian visitors participated in the survey, of which 136 respondents used travel services in Malaysia.Findings: The first hypothesis (H1) is accepted since the path coefficient value (β) = 0.424, the significance value (-0.000) is less than 0.05, and the t value is 2.289 < t table = 1.97. Similarly, as the ∆ value of 0.00 is less than 0.05, the hypothesis tests H2, H3, and H4 are approved. However, hypothesis H5 is not significant. The mediation hypothesis (H6) is supported by a
Community Participation in Reducing Flood Disaster Risk in Boyantongo Village, South Parigi Sub-district, Parigi Moutong District
Authors: Rahmat  , Novarita Amalia , Arsy Risma Fadhilla 
Published: August 2024

Boyantongo Village is one of the villages in the South Parigi Sub-district, Parigi Moutong Regency, which has experienced flooding several times during the rainy season. Flash floods that hit Boyantongo Village occurred on August 25, 2012, causing 142 residents of Boyantongo Village to flee Flash floods in Boyantongo Village occurred again on July 11-13, 2020 flash floods occurred at 21.00 WITA causing 18 Boyantongo Village residents to flee. The purpose of this study was to determine the level of community participation in reducing the risk of flood disasters in Boyantongo Village. The study used a sample survey method, survey research is one research approach that is generally used for extensive data collection. At the same time, the data collection techniques used in this study used instruments in the form of questionnaires. The research was conducted by distributing questionnaires to 67 households. The results showed that the potential for flooding is in Hamlet I, Hamlet III, and Hamlet IV. Aspects of community understanding of basic disaster knowledge, from Hamlet I is categorized as quite good, Hamlet III is categorized as good and Hamlet is categorized as quite good. Community knowledge in disaster mitigation during floods is categorized as low. It shows that the community's knowledge of disasters is not good, as seen from the parameters of knowledge and attitudes towards disaster risk. This is because the community has not participated in socialization and training on community participation in reducing the risk of flooding in the village.
Characterization of higher education spatial injustices: Cases of selected Sub-Saharan universities
Authors: Khumalo Shuti Steph 
Published: August 2024

The primary focus of this study was to explore the experiences of academics in relation to the challenges they face regarding office space. This paper was underpinned by the qualitative exploratory research design within the interpretivist philosophy. This paper explores the varied expressions of participants (three lecturers, two senior lecturers, three associate professors, four full professors, and three managers) through semi-structured interviews on how they characterize spatial challenges in their selected universities. In its examination, I undergirded the thesis of this paper on the social justice theory and on the concept of space as espoused by Lefebre (2004). In addition, extant literature on the epistemology of academic space and academic performance was intensively evaluated. The result of this study provides a glimpse of the socially just challenges academics face regarding office space. This study is of significance because there is scarcity of research on the comparison of office space provision in relation to selected universities in the Sub-Saharan region. In addressing this scholarly gap, the paper provides insights in the epistemology of space, social justice, and academic performance and how space can disrupt the academic agenda.
Cross-cultural adaptation of the Arabic version of the oral health values scale
Authors: Traina Salema , McNeil Daniel W. , Tantawi Maha El , Arheiam Arheiam 
Published: August 2024

Aims: The study aimed to adapt the original English-language oral health values scale (OHVS) to the Arabic culture and to test its psychometric properties.
Methods: The original OHVS was translated into Arabic language and pre-tested using cognitive interviewing. The psychometric properties of Arabic OHVS were examined in a sample comprising 416 Libyan adults aged 18–70 years, recruited from the main public and private dental clinics in Benghazi. The participants’ demographic information, oral health behaviour, perceived oral health, the Arabic version of the OHVS (A-OHVS), dental neglect scale, oral health-related quality of life, oral health literacy, simplified oral hygiene index (OHI-S), and decayed, missing, and filled teeth index (DMFT) were collected. Psychometric properties were tested using content validity, construct validity, discriminating validity, internal consistency, test–retest reliability, and floor as well as ceiling effects were examined.
Results: The Arabic OHVS was successfully and smoothly developed. It showed an acceptable level of equivalence to the original version, The A-OHVS presented an overall Cronbach’s Alpha of 0.74 and the average score was 40.02, ranging between 26 and 54. All hypotheses predefined to test construct validity were confirmed. The bivariate correlation between A-OHVS and other health indicators shows a significant positive correlation between A-OHVS and oral health literacy (p = 0.000). On the other hand, statistically significant negative correlations were observed between A-OHVS and dental neglect and quality of life (p ≤ 0.001) as well as DMFT and OHI-S (p ≤ 0.001). Floor or ceiling effects were not observed.
Conclusions: The A-OHVS was shown to be a valid and reliable tool for assessing oral health values in the Arabic-speaking population.
Examining The Impact of Socioeconomic Status Factors on Happiness Levels in Indonesia
Authors: Indriana Intan Solikhah , Hartarto Romi Bhakti , Putri Ananda Raissa 
Published: August 2024

This research aims to investigate the impact of socioeconomic status factors on individual happiness in Indonesia. Happiness is a multifaceted phenomenon arising from both internal and external sources. While conventional measures often reduce it to mere absolute income, a comprehensive understanding necessitates the incorporation of subjective perspectives. Our study unveils compelling insights into the impact of socioeconomic status on happiness. In doing so, this research contributes valuable insights to the field of happiness economics. It informs policy initiatives to enhance the well-being of individuals in Indonesia and similar contexts. Drawing upon cross-sectional data from the Indonesian Family Life Survey, Wave 5 (2014), encompassing a substantial sample of 29,018 respondents, we employ the ordered probit method. This statistical choice is motivated by the ordinal nature of the response variable and its alignment with normality assumptions in error distribution. The research findings reveal several socioeconomic status factors that significantly influence happiness. Wealth level, education, urban residence, and religion correlate positively with individual happiness, while age and employment status show a negative correlation. Conclusion: These findings underscore the importance of socioeconomic policies to enhance the happiness of Indonesian society.
Pengembangan Media Pembelajaran Video Animasi Pada Materi Larutan Penyangga Terintegrsi Nilai Islam
Authors: Gustianty Sri 
Published: August 2024

This research was instigated by the lack of animation video learning media that integrated Buffer Solution lesson with Islamic values. This research aimed at developing animation video learning media on Islamic values and knowing validity and practicality levels. It was Research and Development (R&D) with 4-D (Define, Design, Develop, and Disseminate) model which is limited to the Develop stage. This research was administered at State Senior High School 12 Pekanbaru. The object of this research was animation video learning media on Islamic values integrated Buffer Solution lesson. The subjects were material experts, media experts, Islamic integration experts, Chemistry subject teachers, the twelfth-grade students of MIPA 1. This research produced three animation video soft files with a duration of 13 minutes 05 seconds and a file size of 27,78 MB on the first video; 24 minutes 45 seconds and a file size 44,03 MB on the second video; and 11 minutes 53 seconds and a file size of 24.37 MB on the third video. The percentages of validation result were 95% by material experts with very valid criterion, 92.86% by media experts with very valid criterion, and 90% by Islamic integration experts with very valid criterion. The percentage of practicality test result by Chemistry subject teachers was 94.74% with very practical criterion, and the percentage of student response test result was 92.36% with very good criterion.
Perbandingan Kemaslahatan Pernikahan Akibat Zina dalam Kitab Undang-Undang Hukum Perdata dengan Kompilasi Hukum Islam
Authors: Agustian Tomi , Setiawati Dinda , Amelia Wulan Dwi , Padilah Padilah 
Published: August 2024

Abstrak: Ada kesenjangan aturan dimana ketentuan Kitab Undang-Undang Hukum Perdata (KUH Perdata)tidak membolehkan adanya pernikahan bagi pasangan zina, namun di sisi lain Kompilasi Hukum Islam (KHI) membolehkan berlangsungnya pernikahan antara pasangan yang berzina. Penelitian ini fokus mengkaji perbandingan kemaslahatan larangan dan kebolehan pernikahan sebagai diatur dalam KUH Perdata dan KHI. Penelitian ini menggunakan metode penelitian kepustakaan (library research). Sumber data utama penelitian adalah KUH Perdata dan KHI. Adapun hasil penelitian ini adalah dalam Hukum Perdata Indonesia yaitu terdapat larangan pernikahan pelaku zina dalam pasal 32 KUH Perdata yang larangan ini bertujuan supaya bermaksud untuk meminimalisir kasus perzinaan yang terjadi dalam pergaulan masyarakat. Sedangkan ketentuan KHI memboleh pernikahan dalam rangka menjaga kehormatan nasab. Maka, untuk memelihara nasab dianjurkannya pernikahan, sehingga pernikahan sesama pelaku zina dibolehkan. Hal ini berdasarkan kesepakatan para ulama dan sesuai dengan surat an-Nur ayat 3 serta sejalan dengan pasal 53 KHI. Kebolehan pernikahan zina ini secara keseluruhan dilihat dari segi kemaslahatan dan kekhawatiran dari kemudharatan yang akan ditimbulkan. Kesimpulan penelitian ini adalah bahwa KUHPerdata melarang adanya pernikahan zina dikarenakan supaya masyarakat tidak terjerumus ke dalam zina dan tidak merugikan kepentingan masyarakat luas. Sedangkan KHI membolehkan pernikahan zina karena melihat kemaslahatan yang akan ditimbulkan yaitu terpeliharanya kehormatan nasab.
MEKANISME PENGHIMPUNAN DAN PENYALURAN DANA ZAKAT TERHADAP OPERASIONAL BIAYA PENDIDIKAN DI LAZISMU SULAWESI SELATAN
Authors: Supriadi Supriadi , Cahyani A. Intan 
Published: August 2024

AbstrakMasalah kesenjangan sosial antar masyarakat dan beberapa pihak sebenarnya sedikit demi sedikit sudah dapat teratasi melalui penyaluran dana zakat fitrah ini. Dana yang dihimpun dari masyarakat yang membayar zakat ke lembaga LAZISMU sudah dikelola dan disalurkan dengan baik dengan melihat kondisi masyarakat setempat terbukti dengan adanya peningkatan taraf kesejahteraan masyarakat khususnya di Daerah Batulabbu Kel. Lembang Gantarangkeke Kab. Bantaeng. Namun inilah yang menjadi permasalahannya, yakni masyarakat Batulabbu belum sepenuhnya memahami mekanisme penyaluran zakat fitrah di LAZISMU Batulabbu Kel. Lembang Gantarangkeke Kab. Bantaeng. Masyarakat setempat masih beranggapan bahwa penyaluran dana zakat fitrah ini belum maksimal seperti yang dilakukan oleh LAZISMU Batulabbu. Padahal dari pihak LAZISMU sendiri sudah cukup maksimal dalam penyalurannya, walaupun tidak bisa dipungkiri bahwa masih terdapat kekurangan di dalamnya. Tapi dengan adanya kesalahpahaman di masyarakat Batulabbu terhadap penyaluran dana zakat fitrah yang dilakukan LAZISMU Batulabbu, maka sudah seharusnya ada yang mampu meluruskan dan memberikan pemahaman terhadap masyarakat khususnya di Batulabbu Kel. Lembang Gantarangkeke Kab. Bantaeng bahwa penyaluran dana zakat fitrah yang dilakukan oleh LAZISMU Batulabbu sudah merata dan tepat sasaran.Kata Kunci : LAZISMU, Penghimpunan, Penyaluran, dan Zakat AbstractThe problem of social inequality between communities and several parties has actually been gradually resolved through the distribution of zakat fitrah funds. The funds collected from the community who pay zakat to the LAZISMU institution have been managed and distributed properly by looking at the condition of the local community as evidenced by the increase in the level of community welfare, especially in the Batulabbu area, Kel. Lembang Gantarangkeke Kab. bantaeng. However, this is the problem, namely the Batulabbu people do not fully understand the mechanism for distributing zakat fitrah at LAZISMU Batulabbu Kel. Lembang Gantarangkeke Kab. bantaeng. The local community still thinks that the distribution of zakat fitrah funds has not been maximized as was done by LAZISMU Batulabbu. In fact, from LAZISMU's side, the distribution itself has been quite maximal in its distribution, although it cannot be denied that there are still shortcomings in it. But with the misunderstanding in the Batulabbu community regarding the distribution of zakat fitrah funds carried out by LAZISMU Batulabbu, then there should be someone who is able to straighten and provide understanding to the community, especially in Batulabbu Kel. Lembang Gantarangkeke Kab. Bantaeng said that the distribution of zakat fitrah funds carried out by LAZISMU Batulabbu was evenly distributed and on target.Keywords: Collection, Distribution, LAZISMU, and Zakat