bluuebunny/crossref_metadata_2025_split huggingface dataset:
Impact of Pediatric Intensive Care Unit Admission on Family Financial Status and Productivity: A Pilot Study
Authors: Clark Maureen E. , Cummings Brian M. , Kuhlthau Karen , Frassica Natalie , Noviski Natan 
Published: August 2017

Objective: A child’s pediatric intensive care unit (PICU) admission may have wide-ranging family implications. We assessed nonmedical out-of-pocket expenses (NMOOPEs) and disruptions in work and normal life for parents with a child admitted to the PICU for at least 2 days with acute, new onset, or exacerbation of a critical condition. Design: We conducted a prospective, single-center study; administered a daily verbal response survey on NMOOPEs; stratified families by annual income (<$50 999, $51-99 000, >$100 000); and calculated daily expenditures (DEs), estimated daily budgets (DBs), and percentage of NMOOPEs (%DE/DB). We used a modified caregiver version of the Work Productivity and Activity Impairment Scale to assess the impact of PICU admission on work-related and normal life activities. Setting: The PICU in an academic, tertiary medical center in the United States. Patients: Patients admitted to PICU. Interventions: None. Measurements and Main Results: The study included 38 families, with median length of PICU stay of 3 days (range 3-13). The mean total NMOOPE was $127 ± $107 (range $5-$511). Financial impact of DB in the 3 annual income groups ranged from 0% to 136% (median 36%), 5% to 18% (median 10%), and 4% to 39% (median 16%), respectively. Total work absenteeism for cohort was 78 days. High levels of distraction were reported in working families, and normal daily activities were interrupted or suspended. Conclusions: PICU hospitalization results in a range of direct NMOOPEs of varying burden on families and additional work productivity impact. Further research to understand the array of financial implications on families and additional mitigation strategies are needed.
The MSOAC approach to developing performance outcomes to measure and monitor multiple sclerosis disability
Authors: LaRocca Nicholas G , Hudson Lynn D , Rudick Richard , Amtmann Dagmar , Balcer Laura , Benedict Ralph , Bermel Robert , Chang Ih , Chiaravalloti Nancy D , Chin Peter , Cohen Jeffrey A , Cutter Gary R , Davis Mat D , DeLuca John , Feys Peter , Francis Gordon , Goldman Myla D , Hartley Emily , Kapoor Raj , Lublin Fred , Lundstrom Gary , Matthews Paul M , Mayo Nancy , Meibach Richard , Miller Deborah M , Motl Robert W , Mowry Ellen M , Naismith Rob , Neville Jon , Panagoulias Jennifer , Panzara Michael , Phillips Glenn , Robbins Ann , Sidovar Matthew F , Smith Kathryn E , Sperling Bjorn , Uitdehaag Bernard MJ , Weaver Jerry ,   for the Multiple Sclerosis Outcome Assessments Consortium (MSOAC)
Published: August 2017

Background: The Multiple Sclerosis Outcome Assessments Consortium (MSOAC) was formed by the National MS Society to develop improved measures of multiple sclerosis (MS)-related disability. Objectives: (1) To assess the current literature and available data on functional performance outcome measures (PerfOs) and (2) to determine suitability of using PerfOs to quantify MS disability in MS clinical trials. Methods: (1) Identify disability dimensions common in MS; (2) conduct a comprehensive literature review of measures for those dimensions; (3) develop an MS Clinical Data Interchange Standards Consortium (CDISC) data standard; (4) create a database of standardized, pooled clinical trial data; (5) analyze the pooled data to assess psychometric properties of candidate measures; and (6) work with regulatory agencies to use the measures as primary or secondary outcomes in MS clinical trials. Conclusion: Considerable data exist supporting measures of the functional domains ambulation, manual dexterity, vision, and cognition. A CDISC standard for MS ( http://www.cdisc.org/therapeutic#MS ) was published, allowing pooling of clinical trial data. MSOAC member organizations contributed clinical data from 16 trials, including 14,370 subjects. Data from placebo-arm subjects are available to qualified researchers. This integrated, standardized dataset is being analyzed to support qualification of disability endpoints by regulatory agencies.
High usability of a smartphone application for reporting symptoms in adults with cystic fibrosis
Authors: Wood Jamie , Jenkins Sue , Putrino David , Mulrennan Siobhain , Morey Sue , Cecins Nola , Hill Kylie 
Published: August 2017

Introduction In cystic fibrosis, exacerbations impair lung function and health-related quality of life, increase healthcare costs and reduce survival. Delayed reporting of worsening symptoms can result in more severe exacerbations and worse clinical outcomes; therefore there is a need for a novel approach to facilitate the early identification and treatment of exacerbations in this population. This study investigated the usability of a smartphone application to report symptoms in adults with cystic fibrosis, and the observer agreement in clinical decision-making between senior clinicians interpreting smartphone application responses. Methods Adults with cystic fibrosis used the smartphone application weekly for four weeks. The application comprised 10 yes/no questions regarding respiratory symptoms and two regarding emotional well-being. Usability was measured with the System Usability Scale; Observer agreement was tested by providing a cystic fibrosis physician and a nurse practitioner with 45 clinical scenarios. For each scenario the clinicians, who were blinded to each other's responses, were asked to indicate whether or not they would: (i) initiate telephone contact, and/or (ii) request a clinic visit for the individual. Results Ten participants (five female), aged mean (SD) 33 (11) years, FEV1 49 (27)% predicted completed the study. The mean (SD) System Usability Scale score was 94 (6). There was perfect agreement between clinicians for initiating contact with the participant ( κ = 1.0, p < 0.001), and near-perfect for requesting a clinic visit ( κ = 0.86, p < 0.001). Discussion The use of a smartphone application for reporting symptoms in adults with cystic fibrosis has excellent usability and near-perfect agreement between senior clinicians when interpreting the application responses.
Effect of continuous positive airway pressure on blood pressure and metabolic profile in women with sleep apnoea
Authors: Campos-Rodriguez Francisco , Gonzalez-Martinez Monica , Sanchez-Armengol Angeles , Jurado-Gamez Bernabe , Cordero-Guevara Jose , Reyes-Nuñez Nuria , Troncoso Maria F. , Abad-Fernandez Araceli , Teran-Santos Joaquin , Caballero-Rodriguez Julian , Martin-Romero Mercedes , Encabo-Motiño Ana , Sacristan-Bou Lirios , Navarro-Esteva Javier , Somoza-Gonzalez Maria , Masa Juan F. , Sanchez-Quiroga Maria A. , Jara-Chinarro Beatriz , Orosa-Bertol Belen , Martinez-Garcia Miguel A. 
Published: August 2017

Continuous positive airway pressure (CPAP) reduces blood pressure levels in hypertensive patients with obstructive sleep apnoea (OSA). However, the role of CPAP in blood pressure and the metabolic profile in women has not yet been assessed. In this study we investigated the effect of CPAP on blood pressure levels and the glucose and lipid profile in women with moderate-to-severe OSA.A multicentre, open-label, randomised controlled trial was conducted in 307 women diagnosed with moderate-to-severe OSA (apnoea–hypopnoea index ≥15 events·h–1) in 19 Spanish Sleep Units. Women were randomised to CPAP (n=151) or conservative treatment (n=156) for 12 weeks. Changes in office blood pressure measures as well as in the glucose and lipid profile were assessed in both groups.Compared with the control group, the CPAP group achieved a significantly greater decrease in diastolic blood pressure (−2.04 mmHg, 95% CI −4.02– −0.05; p=0.045), and a nonsignificantly greater decrease in systolic blood pressure (−1.54 mmHg, 95% CI −4.58–1.51; p=0.32) and mean blood pressure (−1.90 mmHg, 95% CI −4.0–0.31; p=0.084). CPAP therapy did not change any of the metabolic variables assessed.In women with moderate-to-severe OSA, 12 weeks of CPAP therapy improved blood pressure, especially diastolic blood pressure, but did not change the metabolic profile, compared with conservative treatment.
Implementación de un dispositivo basado en Bluetooth y RFID para guía y posicionamiento en interiores de personas con incapacidad visual usando una APP en su dispositivo móvil.
Authors: González Gómez Arnaldo Andrés , Pallares M. Luis Eduardo , Ferro Escobar Roberto 
Published: August 2017

Este artículo, se realiza con el fin de presentar los resultados obtenidos a la aplicación de una solución viable a un problema de ubicación dentro de recintos cerrados, para personas discapacitadas de forma visual, (parcial o totalmente).Se presenta el diseño e implementación de una aplicación para dispositivos Android conectada de forma inalámbrica a través de Bluetooth con un bastón (prototipo) el cual permite la transmisión de información capturada por medio de la tecnología de Radio Frecuencia de Identificación RFID y una cinta magnética que se utilizó como guía, dicha información será presentada en forma de voz sintetizada al usuario (invidente); tecnología que está presente en gran parte de los dispositivos móviles, lo que facilita la implementación de diversas aplicaciones que conllevan a optimizar tareas de la vida cotidiana y mejorar su calidad de vida. En este caso se utilizará la tecnología RFID para ubicación de los sitios de interés, y la cinta magnética como guía para desplazarse dentro de un recinto cerrado, para esto se implementó la lectura de los Tags RFID (uso de sensores).Se utilizó un microcontrolador que procesa la información de los sensores y la envía utilizando la comunicación inalámbrica Bluetooth a un dispositivo móvil con una aplicación Android especialmente diseñada que utiliza las bondades de la programación en lenguaje java (JDK) facilitando la compatibilidad con diferentes sistemas operativos, aprovechando la herramienta del texto al habla para que los usuarios discapacitados puedan entender y comprender el contenido y las instrucciones de la misma.
PROPUESTA METODOLÓGICA PARA LA PLANIFICACIÓN Y EJECUCIÓN DE PRUEBAS FUNCIONALES EN EL GRUPO TESTING ANALYST DE SABMILLER – BAVARIA
Authors: Uribe Peñaloza Sandra Milena , Cárdenas Quintero Beitmantt , Abuchar Porras Alexandra 
Published: August 2017

La planificación y ejecución de las pruebas no se detiene en la organización de los archivos y documentos necesarios para administrar exitosamente el testeo, va más allá al pretender que el contenido de este sea accesible a todos los usuarios del grupo de Testers del área “Testing and Deployment” de Bavaria- SABMiller, permitiendo que estos de manera ordenada adicionen, sustraigan, modifiquen y/o eliminen información de los documentos.La metodología a utilizar esta representada mediante el modelo V, el cual requiere que cada entregable sea verificado y validado desde el primera fase de pruebas en que se está ejecutando, además de identificar problemas tan pronto como sea posible y asegurarse que las especificaciones están completas, correctas y estén alineados a los estándares relevantes.
EVALUACIÓN DE TECNOLOGÍAS DE COMUNICACIÓN PARA REDES VEHICULARES DE ÚLTIMA GENERACIÓN
Authors: Florez Jorge , Rojas José , López Danilo 
Published: August 2017

El incremento del número de vehículos terrestres particulares, de carga y transporte masivo, y la ausencia de planificación y proyección de las vías en el pasado, han generado graves problemas de congestión, aumento de la accidentalidad, inseguridad y desinformación de los usuarios de este tipo de transporte. Los gobiernos y las entidades descentralizadas han venido diseñando sistemas de comunicación entre vehículos con acceso a redes Wan o Internet, que permiten a conductores y pasajeros obtener información en tiempo real acerca del estado de las vías, peajes, rutas optimas e incluso acceso a material informativo de la zona por la que se transita, para hacer el viaje mas seguro y placentero. En este trabajo se describe el estado actual de las tecnologías inalámbricas para la comunicación de las redes vehiculares de última generación, haciendo comparativos entre las tecnologías empleadas a bordo del vehículo y fuera de este. También se muestra el estado del arte en las principales arquitecturas diseñadas en Europa y Estados unidos, que se encuentran en fase de estudio e implementación.
LOS SISTEMAS BIOINSPIRADOS Y SU ENFOQUE EN LA SOLUCIÓN DE NECESIDADES EN LA INGENIERÍA
Authors: Rocha Diego , López Sarmiento Danilo Alfonso , Gómez Vargas Ernesto 
Published: August 2017

El presente artículo hace una breve recuento de cómo se han hallado múltiples estrategias para aprovechar los recursos físicos y atender diversas demandas sociales, hasta llegar a soluciones novedosas basadas en el comportamiento de los sistemas biológicos, estos se fundamentan en la emulación de dinámicas o conductas efectuadas por determinados sistemas biológicos, por ende, centran su eficiencia en la evolución alcanzada por dichos organismos.
OPTIMIZACIÓN DEL PRE-PROCESAMIENTO DE LECTURAS DE SECUENCIACIÓN DE NUEVA GENERACIÓN
Authors: Pérez Castillo José Nelson , Vera Parra Nelson Enrique , Gutierrez Ramirez Luis Miguel 
Published: August 2017

En este documento se presenta una herramienta bioinformática que integra y facilita el uso de utilidades de pre-procesamiento de lecturas de secuenciación de nueva generación por medio de una interfaz web, ayudando a los investigadores a enfocarse en el procesamiento y análisis de secuencias sin necesidad del manejo de las herramientas por medio de la consola. La herramienta es evaluada en funcionalidad y comparada con otras herramientas similares llegando a la conclusión que el aporte generado por este desarrollo es la integración de todas las etapas necesarias en el pre-procesamiento y la facilidad de manejo por parte del usuario.
PREDICCIÓN ESPECTRAL EN REDES INALÁMBRICAS DE RADIO COGNITIVA
Authors: López Danilo A. , Trujillo Edwin R. , Gualdron Oscar E. 
Published: August 2017

Uno de los grandes desafíos de la radio cognitiva es establecer la forma adecuada para realizar predicciones futuras en las diferentes fases que componen un radio cognitivo. A partir de las estimaciones se puede determinar el estado y características de los canales, la actividad de los usuarios primarios y secundarios, la movilidad espectral; todo ello con el fin de que los nodos no licenciados puedan aprovechar adecuadamente y de manera oportunista las bandas subutilizadas. En este artículo se presenta una revisión de algunas de las técnicas más relevantes que han sido aplicadas en la predicción espectral en la Radio Cognitiva.
Reflexões sobre a utilização de dinâmicas no desenvolvimento de habilidades socioemocionais
Authors: Paranhos Márcia Cristina Rocha , Santana Aline Mendonça , Araujo Yzila Liziane Farias Maia de , Pagan Alice Alexandre 
Published: August 2017

A formação de professores reflexivos tem se constituído objeto de pesquisas científicas e ocupado papel de destaque nas políticas educacionais no cenário brasileiro. Esse modelo de formação exige o desenvolvimento de habilidades que busquem formar a identidade profissional dos professores, bem como, motivá-los a pensar em suas práticas e potencialidades. Buscamos nesse trabalho, descrever algumas dinâmicas utilizadas durante um minicurso e refletir no uso destas como promissoras no desenvolvimento de habilidades socioemocionais. Os dados foram coletados mediante observação de casos episódicos, durante um minicurso oferecido por Programadores Neurolinguísticos (PNL), que utilizaram dinâmicas na tentativa de explorar as habilidades socioemocionais, participaram do minicurso, dez alunos da licenciatura em Ciências Biológicas da Universidade Federal de Sergipe (UFS). Percebemos que essa prática vislumbra possibilidades de romper barreiras e permite que os indivíduos exponham suas potencialidades, de maneira a sentirem-se capazes de construir, expor, dialogar e expressar novas propostas que os possibilitem a permanecer com êxito no mundo acadêmico.
“And You Purchased [Whom?]”: Reconsidering the Text of Rev 5,9
Authors: Malik Peter 
Published: August 2017

Abstract:
Ever since Tischendorf, the majority of text-critics and exegetes have regarded omission of ἡμᾶς at Rev 5,9 as part of the initial text. The sole support for this reading is furnished by Codex Alexandrinus. The present article argues that, conversely, it is in fact the longer reading, ἠγόρασας ἡμᾶς τῷ θεῷ, attested in the majority of manuscripts, that is to be preferred and the omission in Alexandrinus is more likely to have originated by assimilation to the context or as a mere scribal error.
Structural Learning in a Visuomotor Adaptation Task Is Explicitly Accessible
Authors: Bond Krista M. , Taylor Jordan A. 
Published: August 2017

AbstractStructural learning is a phenomenon characterized by faster learning in a new situation that shares features of previously experienced situations. One prominent example within the sensorimotor domain is that human participants are faster to counter a novel rotation following experience with a set of variable visuomotor rotations. This form of learning is thought to occur implicitly through the updating of an internal forward model, which predicts the sensory consequences of motor commands. However, recent work has shown that much of rotation learning occurs through an explicitly accessible process, such as movement re-aiming. We sought to determine if structural learning in a visuomotor rotation task is purely implicit (e.g., driven by an internal model) or explicitly accessible (i.e., re-aiming). We found that participants exhibited structural learning: following training with a variable set of rotations, they more quickly learned a novel rotation. This benefit was entirely conferred by the explicit re-aiming of movements. Implicit learning offered little to no contribution. Next, we investigated the specificity of this learning benefit by exposing participants to a novel perturbation drawn from a statistical structure either congruent or incongruent with their prior experience. We found that participants who experienced congruent training and test phase structure (i.e., rotations to rotation) learned more quickly than participants exposed to incongruent training and test phase structure (i.e., gains to rotation) and a control group. These results suggest that structural learning in a visuomotor rotation task is specific to previously experienced statistical structure and expressed via explicit re-aiming of movements.
Ativação popular do patrimônio-territorial na América Latina: teoria e metodología
Authors: Da Costa Everaldo Batista 
Published: August 2017

Los graves problemas de orden social en América Latina -desde la intolerancia etnocultural hasta la precariedad laboral e indigencia- producen ‘territorios de excepción’ como locus de la vida, paradójicamente, segmentada y pujante, de los subalternizados por la modernidad/colonialidad del poder. En este sentido, el objetivo del artículo es escribir notas teóricas y metodológicas para la activación popular del denominado ‘patrimonio-territorial’ situado en territorios de excepción latinoamericanos. Se adoptaron dos procedimientos analíticos principales: a) el patrimonio territorial se aborda como resistencia, en la lógica de la división social y espacial del trabajo latinoamericano; b) la activación popular del patrimonio-territorial se discute con propuestas metodológicas en términos de niveles, escalas y temporalidades, para la elaboración de ‘itinerarios patrimoniales utópicos’. Datos recientes de la Cepal sobre la urbanización, trabajo, pobreza y turismo en América Latina, acompañan y justifican la propuesta.
Práticas discursivas religiosas na esfera pública: exame de um “manual de bioética” e seus enunciados sobre a “teoria de gênero” através do pensamento de Habermas
Authors: Horacio Heiberle Hirsgberg 
Published: August 2017

Este artigo pretende apresentar apontamentos e questionamentos que possam permitir reflexões sobre os modos de operar da religião na esfera pública. Para tanto, examinará as possíveis estratégias enunciativas e práticas discursivas mobilizadas por um produto informativo construído por uma religião para ser executado na esfera pública. Designadamente, este artigo utilizará como elemento fomentador os debates em torno da “distribuição” de um “Manual de Bioética” católico no X Fórum de Ensino Religioso do Estado do Rio de Janeiro, bem como o exame dos enunciados relacionados à “Teoria de Gênero” presentes nesse “Manual”. Os exames de ambas as práticas, a da distribuição e a prática discursiva, serão feitos sob a perspectiva habermasiana. Palavras-chave: religião; teoria de gênero; esfera pública
General Perceptions and Awareness Level among Local Residents in Penang Island toward Bats Conservation Efforts
Authors: Nur Juliani Shafie  , Shahrul Anuar Mohd Sah  , Aini Hasanah Abdul Mutalib  , Nik Fadzly  
Published: August 2017

The population of bats has declined from year to year caused by human activities such as logging and hunting activities. Since the human factor is linked to the issues of population decline in many animal species, a community-based conservation strategy that involved local communities is needed. We conducted face-to-face surveys among residents in Penang Island to assess knowledge and awareness level toward bats conservation efforts. We collected demographic values such as age, gender, level of education, length of residency as well as their monthly income, since different group in these variable might have different perception. We found that age groups, level of education and monthly income have shown significant differences among the respondents. However, no other significant differences were indicated for by gender and length of residency. Respondent’s knowledge of bats showed that the majority of the respondents were less likely to value the importance of bats in the ecosystem. We recommended stronger legal system, earlier exposure towards environmental education, well-planned urbanisation implementation and long-term monitoring programs to strengthen efforts in conserving bats in Malaysia.

Populasi kelawar telah berkurangan dari tahun ke tahun disebabkan oleh aktiviti manusia seperti aktiviti pembalakan dan pemburuan. Oleh kerana faktor manusia dikaitkan dengan isu penurunan populasi dalam banyak spesies haiwan, strategi pemuliharaan berasaskan komuniti yang melibatkan masyarakat setempat diperlukan. Satu tinjauan secara bersemuka telah dibuat dalam kalangan penduduk di Pulau Pinang untuk menilai tahap pengetahuan dan kesedaran terhadap usaha pemuliharaan kelawar. Nilai-nilai demografi seperti umur, jantina, tahap pendidikan, tempoh masa pemastautin serta pendapatan bulanan mereka dikumpul, kerana kumpulan yang berbeza dalam pemboleh ubah ini mungkin mempunyai persepsi yang berbeza. Kajian mendapati bahawa kumpulan umur, tahap pendidikan dan pendapatan bulanan menunjukkan perbezaan yang ketara di kalangan responden. Walau bagaimanapun, tiada perbezaan penting lain yang ditunjukkan oleh jantina dan tempoh masa pemastautin. Pengetahuan tentang responden kelawar menunjukkan bahawa majoriti responden kurang mengutamakan pentingnya kelawar dalam ekosistem. Kajain mengesyorkan sistem perundangan yang lebih kuat, pendedahan terdahulu terhadap pendidikan alam sekitar, pelaksanaan perbandaran yang dirancang dengan baik dan program pemantauan jangka panjang untuk menguatkan usaha memelihara kelawar di Malaysia.