bluuebunny/crossref_metadata_2025_split huggingface dataset:
The Family Perspective on Hospital to Home Transitions: A Qualitative Study
Authors: Solan Lauren G. , Beck Andrew F. , Brunswick Stephanie A. , Sauers Hadley S. , Wade-Murphy Susan , Simmons Jeffrey M. , Shah Samir S. , Sherman Susan N. ,   on behalf of the H2O Study Group
Published: December 2015

BACKGROUND AND OBJECTIVE:
Transitions from the hospital to home can be difficult for patients and families. Family-informed characterization of this vulnerable period may facilitate the identification of interventions to improve transitions home. Our objective was to develop a comprehensive understanding of hospital-to-home transitions from the family perspective.

METHODS:
Using qualitative methods, focus groups and individual interviews were held with caregivers of children discharged from the hospital in the preceding 30 days. Focus groups were stratified based upon socioeconomic status. The open-ended, semistructured question guide included questions about communication and understanding of care plans, transition home, and postdischarge events. Using inductive thematic analysis, investigators coded the transcripts, resolving differences through consensus.

RESULTS:
Sixty-one caregivers participated across 11 focus groups and 4 individual interviews. Participants were 87% female and 46% nonwhite; 38% were the only adult in their household, and 56% resided in census tracts with ≥15% of residents living in poverty. Responses from participants yielded a conceptual model depicting key elements of families’ experiences with hospital-to-home transitions. Four main concepts resulted: (1) “In a fog” (barriers to processing and acting on information), (2) “What I wish I had” (desired information and suggestions for improvement), (3) “Am I ready to go home?” (discharge readiness), and (4) “I’m home, now what?” (confidence and postdischarge care).

CONCLUSIONS:
Transitions from hospital to home affect the lives of families in ways that may affect patient outcomes postdischarge. The caregiver is key to successful transitions, and the family perspective can inform interventions that support families and facilitate an easier re-entry to the home.
The Individuals With Disabilities Education Act (IDEA) for Children With Special Educational Needs
Authors: Lipkin Paul H. , Okamoto Jeffrey ,   the COUNCIL ON CHILDREN WITH DISABILITIES and COUNCIL ON SCHOOL HEALTH, Norwood Kenneth W. , Adams Richard C. , Brei Timothy J. , Burke Robert T. , Davis Beth Ellen , Friedman Sandra L. , Houtrow Amy J. , Hyman Susan L. , Kuo Dennis Z. , Noritz Garey H. , Turchi Renee M. , Murphy Nancy A. , Allison Mandy , Ancona Richard , Attisha Elliott , De Pinto Cheryl , Holmes Breena , Kjolhede Chris , Lerner Marc , Minier Mark , Weiss-Harrison Adrienne , Young Thomas 
Published: December 2015

This Clinical Report was reaffirmed October 2019.
The pediatric health care provider has a critical role in supporting the health and well-being of children and adolescents in all settings, including early intervention (EI), preschool, and school environments. It is estimated that 15% of children in the United States have a disability. The Individuals with Disabilities Education Act entitles every affected child in the United States from infancy to young adulthood to a free appropriate public education through EI and special education services. These services bolster development and learning of children with various disabilities. This clinical report provides the pediatric health care provider with a summary of key components of the most recent version of this law. Guidance is also provided to ensure that every child in need receives the EI and special education services to which he or she is entitled.
Approaches to Assessing Student Writing and Writing Programs in the Age of Accountability
Authors: Melzer Dan 
Published: December 2015

Reviews of: Very like a whale: The assessment of writing programs Edward M. White, Norbert Elliot, and Irvin Peckham (2015) ISBN-13: 978-0-87421-985-2. Pp. 202. Assessing and improving student writing in college Barbara E. Walvoord (2014) ISBN-13: 978-1-118-55736-5. Pp. xiii + 119.
Delayed Efficacy After Treatment With Lenalidomide or Thalidomide in Patients With Mucosa-Associated Lymphoid Tissue Lymphoma
Authors: Kiesewetter Barbara , Troch Marlene , Mayerhoefer Marius E. , Dolak Werner , Simonitsch-Klupp Ingrid , Raderer Markus 
Published: December 2015

Abstract

Background.
The immunomodulatory drugs (IMiDs) thalidomide and lenalidomide have both been tested for treatment of mucosa-associated lymphoid tissue (MALT) lymphoma, with lenalidomide, in particular, showing promising activity. However, long-term results are missing. Because of the late-onset remissions registered in individual patients, we have systemically analyzed the patients treated with IMiDs at our institution for long-term results.

Methods.
Within the present retrospective analysis, we identified 25 patients who had been treated with lenalidomide (n = 18) or thalidomide (n = 7) and were available for long-term assessments of outcome. All patients were followed up according to a standardized follow-up protocol.

Results.
Of the 25 patients, 7 (28%) experienced delayed-onset responses without further treatment (thalidomide, n = 2; lenalidomide, n = 5). In 4 patients (16%), the initial outcome switched to a better result (partial remission [PR] to complete remission [CR], n = 1; stable disease [SD] to PR, n = 1; SD to CR, n = 1; and PD to CR, n = 1) after a median time of 19.5 months (range, 10.9–32.0). Furthermore, 2 patients showed ongoing shrinkage of the target lesion for 47.4+ and 43.5+ months, respectively, and 1 patient had durable disease stabilization for 16.2+ months. The median time to the best response for all responding patients (13 of 25; 53%) was 7.3 months (interquartile range [IQR], 5.6–22.5). After a median follow-up of 46 months (IQR, 32.0–58.5), 23 of 25 patients (92%) were alive.

Conclusion.
Our findings suggest that late-onset remissions might be a common phenomenon in the use of IMiDs for the treatment of MALT lymphoma. Thus, sufficient follow-up time after treatment before the initiation of further therapy appears crucial to assess the full effect of therapy and avoid unnecessary overtreatment.
The European Medicines Agency Review of Brentuximab Vedotin (Adcetris) for the Treatment of Adult Patients With Relapsed or Refractory CD30+ Hodgkin Lymphoma or Systemic Anaplastic Large Cell Lymphoma: Summary of the Scientific Assessment of the Committee for Medicinal Products for Human Use
Authors: Gravanis Iordanis , Tzogani Kyriaki , Hennik Paula , Graeff Pieter , Schmitt Petra , Mueller-Berghaus Jan , Salmonson Tomas , Gisselbrecht Christian , Laane Edward , Bergmann Lothar , Pignatti Francesco 
Published: December 2015

Abstract

Background.
On October 25, 2012, a conditional marketing authorization valid throughout the European Union (EU) was issued for brentuximab vedotin for the treatment of adult patients with relapsed or refractory CD30+ Hodgkin lymphoma (HL) and for the treatment of adult patients with relapsed or refractory systemic anaplastic large cell lymphoma (sALCL). For HL, the indication is restricted to treatment after autologous stem cell transplantation (ASCT) or after at least two previous therapies when ASCT or multiagent chemotherapy is not a treatment option.

Materials and Methods.
Brentuximab vedotin is an antibody-drug conjugate (ADC) composed of a CD30-directed monoclonal antibody (recombinant chimeric IgG1) that is covalently linked to the antimicrotubule agent monomethyl auristatin E (MMAE). Binding of the ADC to CD30 on the cell surface initiates internalization of the MMAE-CD30 complex, followed by proteolytic cleavage that releases MMAE. The recommended dose is 1.8 mg/kg administered as an intravenous infusion over 30 minutes every 3 weeks.

Results.
Brentuximab vedotin as a single agent was evaluated in two single-arm studies. Study SG035-003 included 102 patients with relapsed or refractory HL. An objective response was observed in 76 patients (75%), with complete remission in 34 (33%). Study SG035-004 included 58 patients with relapsed or refractory sALCL. An objective response was observed in 50 patients (86%), with complete remission in 34 (59%). The most frequently observed toxicities were peripheral sensory neuropathy, fatigue, nausea, diarrhea, neutropenia, vomiting, pyrexia, and upper respiratory tract infection.

Conclusion.
The present report summarizes the scientific review of the application leading to approval in the EU. The detailed scientific assessment report and product information, including the summary of the product characteristics, are available on the European Medicines Agency website (http://www.ema.europa.eu).
Povezanost zdravstvenega absentizma in temperamenta zaposlenih v javni upravi [Correlation between Sickness Absenteeism and Temperament of Employees in the Public Administration]
Authors: Buzeti Jernej , Bilban Marjan , Stare Janez 
Published: December 2015

Vzroki za nastanek zdravstvenega absentizma so številni in med eno od skupin vzrokov uvrščamo tudi skupino dejavnikov, ki so vezani na posameznika oziroma njegove osebnostne lastnosti. Članek se osredotoča na vidik povezanosti zdravstvenega absentizma s temperamentom in predstavlja rezultate raziskave v slovenski javni upravi. Rezultati raziskave (februar 2015) kažejo, da so bili v povprečju najmanj dni začasno odsotni z dela zaposleni, katerih prevladujoči temperament je kolerik (8,6 dni) in flegmatik (8,7 dni), ki jih je sicer tudi največ med zaposlenimi v javni upravi; nekoliko več dni so bili začasno odsotni zaposleni s temperamentom sangvinika (10,8 dni), največ pa melanholiki (15,8 dni). Na podlagi rezultatov raziskave ugotavljamo, da v skupnem številu dni zdravstvenega absentizma statistično značilnih razlik med posameznimi zaposlenimi glede na njihov temperament ne moremo potrditi. Lahko pa potrdimo statistično značilno povezanost v skupnem povprečnem številu pogostosti zdravstvenega absentizma med zaposlenimi glede na njihov temperament.The causes that lead to sickness absenteeism are numerous. Among the groups of the causes there is a set of factors tied to the individual or his/her personality traits. The article focuses on the aspect of the correlation between sickness absenteeism and temperament and presents the results of the research carried out in the public administration in Slovenia. The results of the research (February 2015) show that on average the employees who were temporarily absent from work for the fewest days were those with dominant temperament choleric (8.6 days) or phlegmatic (8.7 days), who also account for the largest number of employees in the public administration; those with a sanguine temperament were temporarily absent for slightly more days (10.8 days), while melancholics were absent for the largest number of days (15.8 days). On the basis of the results of the research, we find that in the total number of days of sickness absence we are unable to confirm statistically significant differences between individual employees with regard to their temperament. We can, however, confirm a statistically significant correlation in the overall average number of frequencies of sickness absenteeism among employees with regard to their temperament.
Environmental Taxation: New Evidence for Energy Taxes
Authors: Grdinić Maja , Klun Maja , Kotnik Žiga 
Published: December 2015

The intensity of exploitation of natural resources has increased over the past decades, making environmental protection policy one of the most important priorities of government institutions. Various economic instruments, including taxation, may help policy makers in the EU meet environmental targets, among them a more secure and competitive green economy in Europe. The focus of this paper is on empirically investigating the direct effect of environmental taxes and the indirect effect of environmental expenditures sourced from environmental taxes on greenhouse gas (GHG) emissions in the energy sector. The research applied the panel data analysis method to selected EU member states for the 1995–2010 period. The results show that the direct effect of environmental taxes on GHG emissions in the sector energy is statistically significant and negative. The indirect effects of environmental taxes resulting from environmental expenditures in the industrial and governmental sectors were found to be even stronger than the direct effect of taxes alone.
Coordination for Policy in Transition Countries: Case of Croatia
Authors: Musa Anamarija , Petak Zdravko 
Published: December 2015

The formulation and implementation of public policy depends on the coordination capacities. In recent decades the need for coordination has increased due to the fragmentation caused by NPM reforms, decentralisation processes, the proliferation of the cross-cutting issues, as well as increased globalisation, Europeanisation, and professionalization. The coordination problem in Croatian administration, similarly to other transition countries, is critically important but understudied. This paper is based on a preliminary research on coordination in Croatian public administration with regard to policy formulation and implementation of three policies – regional development policy, anticorruption policy and e-government policy, based on the interviews conducted with higher civil servants and public officials. A special emphasis is given to the role which various actors play in coordination, as well as the structures Government employs in order to coordinate. The research shows that the development of coordination instruments in Croatia suffers from inefficiencies and is greatly influenced by politically driven considerations.
The Refugee in Europe
Authors: Mautz Christoph 
Published: December 2015

<p>This paper suggests a theoretical and methodological heuristics for the analysis of the specific situation of asylum seekers in Europe with the focus on reception centers in Germany. It should be shown that the situation of asylum seekers in Europe can be conceived as a result from translation relations between global and local political and juridical targets of the European refugee regime, the organization reception centers and formations of groups between the asylum seekers. </p>
Síndrome X fráxil, os inicios da comunicación e a linguaxe
Authors: López-González Beatriz , Pernas-Cortiñas María Lorena 
Published: December 2015

A síndrome X fráxil é un trastorno xenético debido á mutación dun xen que produce unha proteína necesaria para o desenvolvemento cerebral. Pola súa incidencia considérase a primeira causa de diversidade funcional mental hereditaria. Algunhas das característas que poden presentar as persoas que presenta esta síndrome son: afectación intelectual, falta de atención, hiperactividade, ansiedade e humor inestable... As persoas con Síndrome X fráxil acostuman a presentar dificultades na adquisición da linguaxe e fala. No presente traballo exponse unha intervención logopédica realizada cun cativo de seis anos con Síndrome X fráxil que carece de linguaxe e estratexias de comunicación o cal fai que presente un gran número de problemas de comportamento en diferentes ámbitos. O obxetivo xeral deste traballo é coñecer a repercusión do emprego destas estratexias na comunicación do cativo. Os obxectivos específicos son : Coñecer os beneficios que se poden acadar ao longo do tempo coa combinación deste tipo de intervencións, identificar as repercusións no desenvolvemento xeral do suxeito e dilucidar a influencia destas intervencións no comportamento. Pártese dunha avaliación inicial na que se recolle o estado de desenvolvemento do neno facendo especial fincapé nos aspectos relativos à comunicación, socialización, comportamento... A continuación deséñase e impleméntase un programa de intervención ao longo de doce meses empregando diferentes tipos de extratexias para facilitar a adquisición da comunicación e linguaxe. Este programa conta con diferentes vías de intervención motivadoras con signos e pictogramas apoiadas en estratexias desenroladas en contorna natural. Para rematar cunha avaliación final na que se identifican os avances acadados ao longo deste período. Os resultados sinalan que este tipo de intervencións aumentan as posibilidades de comprensión da contorna mellorando a adquisición de habilidades comunicativas. Pódese concluir dicindo que este tipo de metodoloxía permiten unha aprendizaxe funcional moito mais áxil e significativa nunha contorna menos estructurada e máis motivante.
Avaliação das aprendizagens – conceções e práticas seguidas por professores de matemática
Authors: Fahe Adelaide , Pires Manuel Vara 
Published: December 2015

Os discursos e os debates sobre a avaliação das aprendizagens no ensino superior em São Tomé e Príncipe ainda não constituem um fenómeno de atualidade educativa, contrariamente ao que se vive nos ensinos básico e secundário do país e em todos os níveis de ensino em outros cantos do mundo. O trabalho que se apresenta, constituindo um estudo pioneiro sobre a temática realizado no âmbito de uma dissertação do mestrado em ensino das ciências, procura identificar e analisar conceções e práticas de avaliação das aprendizagens de dois professores de matemática do ensino superior. Para isso, elegeram-se questões norteadoras da investigação em três dimensões principais: (i) Que conceções revelam os professores de matemática sobre a avaliação? Quais as perceções que estes professores apresentam sobre as formas de avaliar a aprendizagem de seus alunos na disciplina de matemática?; (ii) Que práticas de avaliação esses professores seguem na sala de aulas? Que estratégias, técnicas e instrumentos de avaliação usam?; e (iii) Que fatores condicionam as suas práticas avaliativas? Que fatores incidem positiva ou negativamente na ação ao elaborar, organizar e desenvolver a sua atividade avaliativa?. Almejando contribuir para a reflexão sobre as práticas de avaliação desenvolvidas no ensino superior, este estudo decorre da convicção de que as mudanças nas práticas pedagógicas ocorrem sustentadas na reflexão crítica dos professores sobre as mesmas e sobre os contextos em que interagem, conduzindo-os a um melhor entendimento das suas ações e das teorias que lhes estão subjacentes. Neste sentido, discute-se, então, o conceito de avaliação e destaca-se a evolução das conceções e práticas avaliativas, passando-se de uma avaliação predominantemente classificatória para práticas avaliativas integradas no processo de ensino e aprendizagem, assumindo uma natureza formativa e reguladora, tanto para o professor, como para o aluno. Para uma melhor compreensão da temática, segue-se uma abordagem metodológica de natureza qualitativa através de dois estudos de casos. A triangulação dos dados recolhidos através de questionários, entrevistas e análise de instrumentos de avaliação, revela que os professores refletem, nos seus discursos, conceções quase idênticas e associadas a uma avaliação para a aprendizagem. Na análise dos seus discursos sobre os conceitos, finalidades e os principais papéis desempenhados no processo de ensino e aprendizagem, a avaliação é vista como reguladora deste processo. Mas, atendendo aos instrumentos de avaliação mais utilizados (teste escrito), aos momentos em que são realizados e ao tratamento dado aos resultados obtidos pelos alunos, as práticas dos participantes estão mais próximas de uma avaliação da aprendizagem, reforçando a sua função classificativa. Como principais fatores condicionantes das práticas avaliativas, os professores participantes destacam os alunos, as condições de trabalho e o próprio professor.
Analysis on Effect of Jinshuibao Capsule Combined Treatment on Newly Diagnosed Pulmonary Tuberculosis
Authors: Yu Xinmin 
Published: December 2015

<strong>Objective:</strong> To discuss the clinical effect of jinshuibao capsule combined treatment on newly diagnosed pulmonary tuberculosis. <strong>Method</strong>: 62 cases of newly diagnosed pulmonary tuberculosis patients, who were treated in our hospital from January 2011 to January 2012, were served as the object of study. They were randomly divided into control group and treatment group. Patients in the control group received a single 2SHRZ/4HR chemotherapy, while the treatment group received jinshuibao capsule combined treatment on the base of control group. The improvement of clinical symptoms, chest X-ray film and laboratory examination results of both groups were compared and analysed. <strong>Results</strong>: The total effective rate of clinical treatment, lesion absorption, sputum negative conversion and improvement rate of clinical symptom of treatment group was obviously better than the control group. The difference of clinical effect between two groups was statistically significant <em>(p &lt; </em>0.05). <strong>Conclusion</strong>: Jinshuibao capsule combined treatment has satisfactory clinical effect on newly diagnosed pulmonary tuberculosis.
Morphologic evaluation of the incisive canal and its proximity to the maxillary central incisors using computed tomography images
Authors: Cho Eun-Ae , Kim Sung-Jin , Choi Yoon Jeong , Kim Kyung-Ho , Chung Chooryung J. 
Published: December 2015

ABSTRACT

Objective:
To evaluate the morphologic features and the relative position of the incisive canal with regard to the maxillary incisor roots using computed tomography (CT).

Materials and Methods:
Morphologic evaluation of the incisive canal and its proximity to the maxillary central incisors were measured using CT images of 38 adults with skeletal and dental class I normal occlusion. Linear measurements were performed on the axial cross-sectional images corresponding to three vertical levels, the palatal opening of the incisive canal (L1), midlevel between the opening level and the root apex of the maxillary central incisors (L2), and the root apex of the maxillary central incisors (L3).

Results:
The percentage of subjects with an incisive canal width greater than the interroot distance of the central incisors was 86.8% and 63.2% at levels L1 and L2, respectively. The anteroposterior distance between the maxillary incisor roots and the boarder of the incisive canal was approximately 5–6 mm at levels L1 and L2.

Conclusion:
The anteroposterior distance between the maxillary central incisor roots and the incisive canal was approximately 5–6 mm. More than 60% of the subjects had an incisive canal width greater than the interroot distance. Evaluation of the proximity of the incisive canal to the maxillary incisors, along with its dimensional characteristics, may be helpful when a considerable amount of maxillary retraction is planned.