bluuebunny/crossref_metadata_2025_split huggingface dataset:
Predicting hospital transfers among nursing home residents in the last months of life
Authors: Krishnan Preetha , Thompson Genevieve , McClement Susan 
Published: November 2017

Background: Concerns have been raised over the practice of transferring nursing home residents to hospital at their end of life. Objective: To examine the family and facility factors that may influence the decision to transfer nursing home residents to hospital in the last month of life. Research design: Secondary data analysis includes a sample of 119 bereaved family members from 21 nursing homes located in Central Canada. Method: A binary logistic regression analysis was conducted to explore the predictors for hospital transfers. Results: Terminal hospital transfers were common: 70% of nursing home residents were sent to hospitals in the last month of their life, and the likelihood of terminal hospital transfers increased by having an adult child as decision-maker (odds ratio (OR) = 5.03; 95% confidence interval (CI) = 1.6, 16; significance level/probability value (p) = 0.007) or having a lower family income (OR = 2.9; 95% CI =1.1, 2.9; p = 0.027). Discussion and implications: The identified predictors for terminal hospital transfers are helpful in targeting and developing interventions to improve end-of-life care. Particular emphasis should therefore be placed on targeting families with low income and children of the nursing home residents for educational initiatives such as advance care planning awareness, in order to prevent terminal hospital transfers. It is hoped that policy-makers and practitioners can start addressing the findings of this study to reduce terminal hospital transfers at end of life and promote quality end-of-life care in nursing homes.
Communication disorders in palliative care: investigating the views, attitudes and beliefs of speech and language therapists
Authors: Hawksley Rosy , Ludlow Fiona , Buttimer Heather , Bloch Steven 
Published: November 2017

Aim: Speech and language therapists (SLTs) provide intervention for communication and swallowing to patients with life-limiting conditions, such as dementia and head and neck cancer. The role of the SLT in palliative care is difficult to define. Much is known about the clinical aspects of this role; however, little is known about the core values, beliefs and expectations of SLTs working in this sector, particularly with regard to their role in supporting patients' communication. Through a series of semi-structured interviews and a follow-up focus group, this report aimed to form a picture of the experiences and views of SLTs about their communication role in palliative care. Results suggest that SLTs are forging a self-identity in a sector that is itself constantly evolving, which causes difficulties in defining their role. Participants report that other health professionals have a poor understanding of the SLT's role. SLTs may benefit from palliative care-specific guidelines and increased interprofessional awareness of their role in order to become better integrated into the palliative care sector.
Challenges to advance care planning among multidisciplinary health professionals in China
Authors: Lee Mei Ching , Auth Roger , Hinderer Katherine A , Alexander Carla S 
Published: November 2017

Background: Advance care planning (ACP) is a critical component of quality end-of-life care. Little is known regarding the cultural influences on health professionals' attitudes toward the discussion of ACP in China. Objective: To better understand attitudes toward ACP among Chinese healthcare professionals in China and the influence of cultural factors such as filial piety, or xiào. Methods: A mixed methods study was used. This study reports the results of a descriptive cross-sectional survey of physicians, nurses and social workers with experience in palliative and end-of-life care. Results: Some 102 completed surveys were obtained. Most Chinese health professionals had an overall positive attitude toward ACP, acknowledging that these discussions should occur. However, there was a general lack of confidence and sense of reluctance among participants to engage in ACP discussions. Conclusion: The lack of statistical difference between the various health professionals suggests that they all faced challenges in participating in ACP discussions. Future research should focus on the influences of cultural factors such as xiào on ACP discussion, and develop culturally sensitive strategies to facilitate these discussions in the Chinese community.
Attitudes of nurses towards care of the dying patient in India
Authors: Lancaster Rachelle J , Kautzmann Cynthia , Micheal Jothi Clara J , Chandrasekaran Leena , Jambunathan Jayalakshmi , Chapin Tammy M 
Published: November 2017

Background: Worldwide, end-of-life care is coming under increasing scrutiny as nurses struggle to balance cultural norms and legal requirements with the desires of patients and families. The purpose of this descriptive pilot study was to examine and describe nurses' attitudes when caring for dying patients in India, and whether participation in an educational conference, which included two scenario-based, low-fidelity simulations increased knowledge of end-of-life care. Method: Participants' attitudes were measured with the 30-item Frommelt Attitudes Toward Care of the Dying (FATCOD–B) scale. Knowledge was measured with a researcher-developed 15-item content-focused test before and after the conference. Results: The mean attitude scores of nurses (n=101) were M=101.45 (range 65–143, SD=15.99). Participation in the educational conference and end-of-life care simulations increased the knowledge of most nurses (P<0.05). Conclusion: Conferences and low-fidelity simulation are effective methods for improving nurses' knowledge of end-of-life care in India. Improved education surrounding end of life may positively affect attitudes.
Conversations in the margins: Fannish paratexts and their premodern roots
Authors: Finn Kavita Mudan 
Published: November 2017

Abstract
This article considers fanfictional paratexts – including peritexts such as author’s notes, warnings, epigraphs and tags, as well as the related epitexts of comments, memes, recs and live blogs – in the context not only of the fanfiction they accompany but also of the critical conversations they generate and perpetuate within themselves. The parallels between premodern literature’s expansive paratextual spaces and the equally expansive – if virtual – spaces that frame contemporary fanworks, specifically fanfiction, point to similarly transactional qualities at work in both, balancing authorial intent, production/archival specifications and reader response. By considering these seemingly disparate literary worlds in conversation with one another, we can not only illuminate an antecedent for fanworks and fan community interactions but also offer medieval and early modern studies a potentially useful language for talking about premodern literary culture.
We’ll always have purgatory: Fan spaces in social media
Authors: Lowe J. S. A. 
Published: November 2017

Abstract
Certain groups within the fandom of the series Supernatural maintain that the network chronically fails to acknowledge or appreciate the support, discretionary income and above all unpaid affective labour of its young female audience – a viewership the series creators never anticipated. Such fans then create their own ways of engaging with both the show’s content and its public relations, using social media to craft personal spaces of both resistance and pleasure. This article examines three such creative efforts: a Twitter hashtag hijacking in 2015, when the CW perhaps unwisely invited viewers to ‘#AskSupernatural’; the fan-proposed spin-off Wayward Daughters (whose online petition has upwards of 3600 signatures) and fan-created YouTube series Kevin’s Continued Winchester Gospel (starring former guest actor Osric Chau). These labour-intensive spaces, created primarily by young women, speak to these fans’ perception of being disregarded by network public relations as well as the narrative of the series itself and its ongoing treatment of fan-favourite characters, particularly female ones, whether omitted from storylines or written violently off the show. In unprecedented volume, fans have merged creativity with collective action to craft playful yet highly publicized and efficient responses to the show’s public relations misattunement with its own audience.
Marc Bolan rock shrine: Pilgrimage, identity and ownership in a fan community
Authors: Bickerdike Jennifer Otter , Downing Niamh 
Published: November 2017

Abstract
Marc Bolan, lead singer of T-Rex and purveyor of the glam rock movement, died in 1977. The passenger of a Mini Cooper that crashed into a sycamore tree, Bolan was killed instantly from injuries sustained in the accident.
When reports began circulating in 1998 that the tree was in danger of being felled, fan Fee Mercury Moon formed the T-Rex Action Group (TAG) in an effort to save the tree and the site. The space has been preserved and embellished through TAG’s efforts and self-funded initiatives, transforming what was a space of grisly death into a location for worship, reflection and behaviours often echoing traditional religion.
While the shrine attracts pilgrims from around the world, a core Bolan contingent continues, almost 40 years since his death, to in-fight over who controls the right to the memory of Bolan, the place of his death and the rituals performed by visitors to the site. As ideas of heritage and history clash with rising property prices, fans face a battle in which they need to be united, instead of splintered over personal peccadilloes. This article will examine how a physical space, such as the shrine, allows for both the perpetuation of memory as well as the expunging of the icon from the importance of the place, as personal meaning and value become intrinsically tied into fan authenticity and religious rituals and behaviours.
The liminality of the line and the place of fans at Comic-Con
Authors: Hanna Erin 
Published: November 2017

Abstract
Focusing on the lines for the San Diego Comic-Con’s largest promotional space, Hall H, this article draws on participant observation and mediated discourses in order to locate the place of fans at an event that has long been shaped and influenced by the promotional presence of the media industries. At Comic-Con, waiting in line suggests a divide between inside and outside, both in the literal sense of gaining entry and as a signifier of the exclusivity of the event and its attendees. But the line itself is a liminal space, neither inside nor outside. This article argues that the Hall H line at Comic-Con operates as hierarchized space in which fans follow rules and self-regulate in order to maintain their position. But the act of waiting in line also constitutes a form of labour, producing a heightened aura of exclusivity, increased publicity and surplus value around Hollywood promotion at Comic-Con. While a quotidian activity like waiting in line might be viewed much in the same way as media consumption – something one does with their ‘free’ time – this article argues that the prominence and proliferation of lines at Comic-Con make the work of being a consumer significantly more visible.
Archive epidemic: Derrida, von Trier and the anarchivic disposition of cinema
Authors: Valsson Pétur 
Published: November 2017

Abstract
Danish director Lars von Trier has throughout his work explored the aesthetic possibility of the film medium by pushing its technology to the limit and foregrounding its materiality. Transferring filmed material between analogue video and film, he exaggerates deterioration and decay of the moving image in Medea (1988), Riget (The Kingdom) (1994–97) and Breaking the Waves (1996). Turning to digital technology in the late 1990s, von Trier explored the new means of generating data in Idioterne (The Idiots) (1998) and Dancer in the Dark (2000). In 1994, Jacques Derrida theorized the concept of Archive Fever, a feverish desire for origins, which ultimately leads to destruction of the archival object. Applying Derrida’s concept to von Trier’s filmmaking shows how his films reveal the inherent anarchivic nature of the medium of the moving image.
Useful cinema and the dynamic film history beyond the national archive: Locating municipally sponsored Swedish city films in local archives
Authors: Florin Persson Erik 
Published: November 2017

Abstract
Based on a case study of municipally sponsored films about the Swedish city of Gothenburg from the decades after World War II, this article contributes to the emerging scholarly field of ‘useful cinema’. It is argued that local archival materials are essential for studying this kind of useful cinema with its multiple uses, textual variations, screening contexts and both domestic and international circulation. Local archival materials are further essential for studying not only the local institutional use of cinema, but also the relationship between theatrical and non-theatrical exhibition. Moreover, the international circulation of useful cinema highlighted in the article cannot be studied solely with material from national archives. The conclusion calls for new types of digital archival milieus that capture the dynamics of this part of film history.
Disappearing act: The silent film career of Aud Egede-Nissen (1893–1974)
Authors: Fosheim Lund Maria 
Published: November 2017

Abstract
In 1916, Norwegian actress Aud Egede-Nissen established a film production company under her own name in Berlin: the Egede-Nissen-Film Compagnie GmbH. The company created approximately 30 star vehicles for Aud and her sisters Ada and Gerd, with Aud Egede-Nissen also working in the capacity of producer. The company existed until 1921, capitalizing on the German import ban on films during the years 1916–20. Until recently, the transnational career of Aud Egede-Nissen has left a void in the film archive and film documents collection held at the National Library of Norway, where very little material relating to the actress-producer’s success on the European continent is found. As Jane Gaines has demonstrated with the Women Film Pioneers Project, the careers of women working during the silent era have largely been left out of film histories. An important aspect of writing female film workers’ careers back into film history therefore also relies on creating archives and collecting material, ensuring that future researchers can piece the puzzle back together. This article presents the discovery of fan ephemera and promotional material sold on the online auction website eBay relating to the career of Aud Egede-Nissen.
The press cutting, film studies and the digital age
Authors: Bachmann Anne 
Published: November 2017

Abstract
Unlike the scrapbook, the humble press cutting has never quite broken the surface in the theoretical and methodological discourses of historiography, whether for film or other kinds of histories. In today’s radically changed archive-scape where old volumes of printed media are digitized by the shelf-load, the blessings and curses of the curated collection may rapidly fade from short-term memory. At the same time, this novel sense of distance towards them can prove useful for discussing the impact of the collections’ provenance and bias. In tracing the press-cuttings collection in Swedish press discourse during the twentieth century, the article argues that its meaning has shifted over time, most clearly signalling status, progress and knowledge optimism in the 1940s to 1960s. Lastly, the article maps the discourse and history of cuttings at the Swedish Film Institute and suggests that the press-cutting archive is now more interesting in its entirety as collection than by virtue of its individual scraps and pieces.
The cultural practice of minor cinema archiving: The case of immigrant filmmakers in Sweden
Authors: Andersson Lars Gustaf , Sundholm John 
Published: November 2017

Abstract
The aim of this article is to present the archival practice behind two extensive research projects that we have worked on during the last decade: the Stockholm Film Workshop and minor immigrant filmmaking in Sweden. Archive has become a general catchword in today’s academia that encompasses several practices of collecting, storing, distributing and displaying. We will stress in particular – partly against the idealism of digital activism – that the archive is a locus of power. The struggle for archival acknowledgement is a question of how to establish an archival artefact, an object that may be stored and repeated, and thus to affirm it as something that cannot be disregarded. This is a practice in the way that theory also constitutes a practice: a way of intervening that is case sensitive and that constantly cuts across those four principles that Giovanna Fossati famously coined as ‘film as original’, ‘film as art’, ‘film as dispositif’ and ‘film as state of the art’.
Documenting the present, processing the past, shaping future memory: The Face of AIDS Film Archive
Authors: Larsson Mariah , Rossholm Anna Sofia 
Published: November 2017

Abstract
The Face of AIDS Film Archive consists of documentation of the HIV/AIDS epidemic, shot all over the world beginning in 1988 by Swedish filmmaker and journalist Staffan Hildebrand. In this article, the archive’s particular characteristic of process is discussed and examined through four different perspectives: first, as an ongoing documentation of HIV/AIDS in the contemporaneous moments when it was filmed; second, as a commission of the Karolinska Institute in Stockholm; third, as the product of a director with a strong personal vision and authorial presence; and finally, as an expression of Hildebrand’s self-defined AIDS activism.
The archive, the auteur and the unfilmed film: Reflections on Dreyer’s and von Trier’s Medea
Authors: Thomson C. Claire 
Published: November 2017

Abstract
This article engages with Lars von Trier’s 1988 television adaptation of Carl Th. Dreyer’s screenplay Medea to explore the concept of the unfilmed film. Beginning with von Trier’s adoption of Dreyer’s tuxedo, the article asks how the notions of auteurship and the archive itself produce the unfilmed film as ‘unrealized’, and probes the concept of the ‘unfinished’ film. Some examples of unfilmed films, and documentaries about them, are discussed as examples of archival practices in the mediation of unfinished, unrealized and unfilmed films, sometimes by directors themselves and sometimes by their successors. Dreyer’s research materials and methodologies for his screenplay Medea, preserved in the Danish Film Institute, are discussed as an intertext to the later adaptation for Danish television by Lars von Trier.
Determination of age- and sex-specific 99th percentiles for high-sensitive troponin T from patients: an analytical imprecision- and partitioning-based approach
Authors: Monneret Denis , Gellerstedt Martin , Bonnefont-Rousselot Dominique 
Published: November 2017

Abstract

Background:
Detection of acute myocardial infarction (AMI) is mainly based on a rise of cardiac troponin with at least one value above the 99th percentile upper reference limit (99th URL). However, circulating high-sensitive cardiac troponin T (hs-cTnT) concentrations depend on age, sex and renal function. Using an analytical imprecision-based approach, we aimed to determine age- and sex-specific hs-cTnT 99th URLs for patients without chronic kidney disease (CKD).

Methods:
A 3.8-year retrospective analysis of a hospital laboratory database allowed the selection of adult patients with concomitant plasma hs-cTnT (<300 ng/L) and creatinine concentrations, both assayed twice within 72 h with at least 3 h between measurements. Absence of AMI was assumed when the variation between serial hs-cTnT values was below the adjusted-analytical change limit calculated according to the inverse polynomial regression of analytical imprecision. Specific URLs were determined using Clinical and Laboratory Standards Institute (CLSI) methods, and partitioning was tested using the proportion method, after adjustment for unequal prevalences.

Results:
After outlier removal (men: 8.7%; women: 6.6%), 1414 men and 1082 women with estimated glomerular filtration rate (eGFR) ≥60 mL/min/1.73 m2 were assumed as non-AMI. Partitioning into age groups of 18–50, 51–70 and 71–98 years, the hs-cTnT 99th URLs adjusted on French prevalence were 18, 33, 66 and 16, 30, 84 ng/L for men and women, respectively. Age-partitioning was clearly required. However, sex-partitioning was not justified for subjects aged 18–50 and 51–70 years for whom a common hs-cTnT 99th URLs of about 17 and 31 ng/L could be used.

Conclusions:
Based on a laboratory approach, this study supports the need for age-specific hs-cTnT 99th URLs.
Proficiency testing program for hemoglobin E, A2 and F analysis in Thailand using lyophilized hemoglobin control materials
Authors: Pornprasert Sakorn , Tookjai Monthathip , Punyamung Manoo , Pongpunyayuen Panida , Treesuwan Kallayanee 
Published: November 2017

Abstract

Background:
There is no external quality assessment (EQA) program for hemoglobin analysis that uses lyophilized hemoglobin control materials with HbA2/E in levels as high as those found in people with the β-thalassemia trait, HbE trait, β-thalassemia/HbE disease or homozygous HbE; these are all found frequently in the southeast Asian population. The aim of this study was to evaluate the efficiency of the control materials used in the established proficiency testing (PT) program at the Associated Medical Sciences-Clinical Service Center (AMC-CSC), Chiang Mai University, Chiang Mai, Thailand.

Methods:
The PT program for Hb analysis and the thalassemia interpretation was established in compliance with ISO/IEC17043:2010. Three cycles per year were performed in 2015 and 2016. In each cycle, three different types of control material were provided to the participants. Each participant analyzed the control materials in the same manner as in their routine practices. Hb analysis results and their thalassemia interpretation codes were entered into the report form and sent back to AMC-CSC.

Results:
The number of participants increased from 63 in 2015 to 76 in 2016. In addition, the number of participants who took part in all three cycles increased from 95.2% (60/63) in 2015 to 100% (76/76) in 2016. All participants reported the correct Hb measurement and type; however, misinterpretations in thalassemia diagnosis were noted.

Conclusions:
The lyophilized hemoglobin control materials prepared at AMC-CSC were used successfully in our PT program. However, the study results indicate the need for further improvement in thalassemia interpretation skills for laboratory staff.
EASI – European Autoimmunity Standardisation Initiative: facing the challenges of diagnostics in autoimmunity
Authors: Damoiseaux Jan , Olschowka Nina , Shoenfeld Yehuda 
Published: November 2017

Abstract
The European Autoimmunity Standardisation Initiative (EASI) has been founded in order to improve autoimmune diagnostics by stimulating the interaction between the clinicians and laboratory specialists, by standardization of autoantibody tests, and by harmonization of testing algorithms. The ultimate goal of EASI is to utilize autoimmune diagnostics in the best way in order to optimize patient care. This mini-review gives an overview of the historical perspective of EASI and summarizes the major achievements.