bluuebunny/crossref_metadata_2025_split huggingface dataset:
Abstract A45: Informing community participants of research: Multiple strategies from Project HEAL
Authors: Santos Sherie Lou Zara , Holt Cheryl L. , Scheirer Mary Ann , Haider Muhiuddin , Slade Jimmie , Carter Roxanne 
Published: March 2017

Abstract
Project HEAL (Health through Early Awareness and Learning) is a community-based participatory research (CBPR) project utilizing a community health advisor (CHA) model that aims to improve cancer screening behaviors among African Americans in 14 churches throughout Prince George's County, Maryland. Participants attend a CHA-led 3-workshop series on cancer early detection that is based on three evidence-based interventions. Follow-up workshops are held at 12- and 24-months to assess project sustainability and health-related behavior change. The success of longitudinal CBPR and implementation studies such as Project HEAL rely heavily on relationship building in the early phases at all participant levels (e.g., pastor, CHA, workshop participant) and relationship maintenance throughout the study period. A key aspect of CBPR studies and maintaining rapport with participants and community members is reporting back findings in a lay accessible, health-literate fashion. Project HEAL utilized multiple strategies and channels to report data and research findings and share project-related news back to project participants: annual reports; PowerPoint presentations delivered at the 12- and 24- month follow-up workshops; and a final testimonial video featuring project pastors, CHAs, and workshop participants. Each piece was developed and implemented with health literacy, lay person accessibility, and various platform preferences (e.g., paper-based, audio [workshop presentation], video) in mind. These methods were successful in maintaining good relationships with workshop participants as shown by the 84% response rate achieved on the final participant survey 24 months after the workshop intervention. We present our experiences to provide guidance for future longitudinal implementation CBPR research in community- and faith-based contexts.
Citation Format: Sherie Lou Zara Santos, Cheryl L. Holt, Mary Ann Scheirer, Muhiuddin Haider, Jimmie Slade, Roxanne Carter. Informing community participants of research: Multiple strategies from Project HEAL. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A45.
Abstract A58: Cancer and Genetic Testing on Pinterest and Instagram: Who Posts What?
Authors: Miller Carrie , Jeanine Guidry 
Published: March 2017

Abstract
Social media plays a significant role in health information seeking behaviors, yet little is known about online social media discussions of cancer and genetic testing. Enhanced understanding of what cancer and genetic testing information is available and how it is spread on social media may inform strategies to communicate risk and improve cancer care, especially among the traditionally medically underserved, including racial minorities. This study will examine racial differences in the content of pins and posts related to cancer, including cancer risk awareness and genetic testing, among social media users.
Grounded in risk perception theories, this study focuses on how the public discusses cancer and genetic testing on social media. Race will be ascertained from available user data and in addition, a comparison between two visual social media platforms will be used to explore racial differences; specifically between Pinterest, with a predominantly White user base and the more racially diverse user base of the Instagram platform. In a quantitative content analysis, a random sample of 500 Pinterest pins and 500 Instagram posts using the keywords/hashtags “cancer” and “genetic testing” were collected. The analysis focuses on the type and source of information posted and presence of risk communication variables, as well as the frequency of repins, likes and comments. Analyses are ongoing and will be completed by August 15, 2016.
Study findings will provide insights for public health researchers about communication related to cancer and genetic testing on visual social platforms Pinterest and Instagram. Results will address a gap in the literature regarding the use and sources of posts and risk communication variables among racial minorities, and afford an imperative first step in informing the development of social media-based interventions to reduce cancer health disparities.
Citation Format: Carrie Miller, Guidry Jeanine. Cancer and Genetic Testing on Pinterest and Instagram: Who Posts What? [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A58.
Abstract A84: Perceived Social Support Moderates the Associations between Race-Based Medical Suspicion and Perceptions of Cancer Treatment
Authors: Stanton Sarah C. E. , Penner Louis A. , Eggly Susan , Harper Felicity W. K. , Hamel Lauren M. , Foster Tanina , Simon Michael S. , Barton Ellen , Chapman Robert A. , Albrecht Terrance L. 
Published: March 2017

Abstract
Background: Decades of research have demonstrated the salutary effects of higher perceived social support on thoughts and feelings about one's health. Separate work has shown that Black patients with higher race-based medical suspicion have more negative perceptions of their healthcare. Prior studies have not systematically investigated the extent to which perceived social support is related to medical suspicion in Black cancer populations. Purpose: We specifically explored whether larger social network size and higher social support satisfaction moderated negative perceptions and feelings typically experienced by Black patients scoring high on suspicion. Methods: 114 Black cancer patients reported their social support and suspicion at a baseline session. One week later, they interacted with their oncologist about initial treatment options during a clinic visit. Following the interaction, patients reported their uncertainty regarding the recommended treatment, perceived difficulty completing treatment, and distress. Results: Moderation results showed that larger social network size was related to less uncertainty and less perceived difficulty completing treatment for Black patients low in suspicion. However, larger social network size failed to reduce uncertainty and perceived difficulty and exacerbated distress for Black patients high in suspicion. Social support satisfaction moderated only the relation between medical suspicion and perceived difficulty. Conclusions: Social support is associated with distinct cancer treatment perceptions for Black cancer patients as a function of patients' suspicion, which may be explained by entrenchment in a social network that reinforces negative personal biases.
Citation Format: Sarah C. E. Stanton, Louis A. Penner, Susan Eggly, Felicity W. K. Harper, Lauren M. Hamel, Tanina Foster, Michael S. Simon, Ellen Barton, Robert A. Chapman, Terrance L. Albrecht. Perceived Social Support Moderates the Associations between Race-Based Medical Suspicion and Perceptions of Cancer Treatment. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A84.
Abstract A87: [Advocate Abstract:] Bridging the Gap Between Science and Patient Advocacy
Authors: Dornan Wayne 
Published: March 2017

Abstract
There are plenty of ways that scientific community and cancer advocacy community can partner. Both parties face the cancer priorities each day. It is imperative to advocate for the cancer drug parity act, advocate for better access to clinical trials, and educate survivors. It is understandable that researchers lose track of the bigger picture, however advocates can provide a cancer survivor's perspective to incredible talented group of scientist who are the front lines in the battle to cure cancer.
Citation Format: Wayne Dornan. [Advocate Abstract:] Bridging the Gap Between Science and Patient Advocacy. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A87.
Abstract B48: Cancer Stem Cells: characteristics, roles in metastatic disease and targeting therapy for the medically underserved
Authors: Morgatskaya Zhenya , Mokhtari Reza Bayat , Tyker Albina , Kazemi Parandis , Homayouni Tina , Baluch Narges , Dhalla Sara , Rekhi Shreya , Kumar Sushil , Yeger Herman 
Published: March 2017

Abstract
Cancer stem cells have been observed to lead to the proliferation and relapse of cancers. While they share many properties with normal stem cells, CSCs are distinguished by their incredibly high survivability, drug resistance, and the ability to facilitate tumor progression. In this review, we discuss the origin, major properties used to identify and characterize CSCs, and also how they behave and are regulated with tumor progression and metastasis. In addition, we discuss multiple therapeutic strategies that were developed to target CSCs. Amongst these we review several natural compounds that in recent studies have shown great potential for preventing tumorigenesis and in the treatment of cancer cells by interacting with CSCs. Natural compounds are being widely researched for efficacy as cancer and CSC targeting agents. Natural drugs consume much less funding to produce. Also, as dietary compounds, they are less stigmatized by patients than artificially synthesized drugs, and they are inexpensive and available to even the medically underserved. Finally, we discuss several strategies that are used to maximize the effect of therapeutic strategies on the CSC fraction and further directions for this field of tumor biology.
Note: This abstract was not presented at the conference.
Citation Format: Zhenya Morgatskaya, Reza Bayat Mokhtari, Albina Tyker, Parandis Kazemi, Tina Homayouni, Narges Baluch, Sara Dhalla, Shreya Rekhi, Sushil Kumar, Herman Yeger. Cancer Stem Cells: characteristics, roles in metastatic disease and targeting therapy for the medically underserved. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr B48.
Abstract B82: Provision of free breast and cervical cancer screening programs in medically underserved communities: Evidence from the screen, same-day results and treat model in Texas
Authors: Brown Jameisha B. 
Published: March 2017

Abstract
PURPOSE This evidenced-based community cancer screening model provides free breast and cervical cancer screenings with same-day results and health education consultations to women living in communities identified as medically underserved in Texas.
METHODS A volunteer-led collaboration comprised of a team of multidisciplinary healthcare professionals (i.e., pathologists, breast and gynecologic oncologists, radiologist, health educators, lay health advisors and doctoral students), organized a trademarked screening model that targeted medically underserved screening-eligible women between 21-65 years with: 1) clinical breast exams and mobile mammography unit with a radiologist on-board, 2) Papanicolaou (pap) test, 3) same-day pap results, 4) group health education consultations, and 5) navigation to treatment/follow-up care and medical home that accommodated fourteen languages.
RESULTS More than (N=750) women attended free one-day screening programs during a three-year period. Never or rarely been screened (N=673) women received breast exam, pelvic and pap tests. Women (N=55) had abnormal pap tests, of these (N=28) undertook same-day colposcopy, a visual inspection of cervix with biopsy, and (N=9) a Loop Electrosurgical Excision Procedure. Mammograms (N=76) and breast Fine Needle Aspirations (N=2) were provided for those with a palpable breast neoplasm. Breast abnormalities (N=15) and malignancies (N=4) were detected. Women received Human Papillomavirus (N=25), HIV (N=42), Syphilis (N=42) and Hepatitis C (N=107) testing based on availability. All women attended at least three of eight health education sessions on topics on risk-reduction behaviors and clinical research participation related to cancer and chronic diseases. Women were predominately Hispanic, low-income, uninsured or under-insured, and between ages 40-49.
CONCLUSIONS Barriers that impede medically underserved women from seeking cancer screenings are well-documented, including cost, health insurance and healthcare availability for vulnerable populations. Providing free cancer screening days with same-day results where the most vulnerable women live coupled with culturally-tailored health education content can encourage continued healthcare utilization and preventative screening seeking behavior.
Citation Format: Jameisha B. Brown. Provision of free breast and cervical cancer screening programs in medically underserved communities: Evidence from the screen, same-day results and treat model in Texas. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr B82.
Abstract C19: [Advocate Abstract:] The Buffalo/Niagara Witness Project: Saving Lives
Authors: Anderson Averl 
Published: March 2017

Abstract
The Buffalo/Niagara Witness Project educates participants on early cancer detection through stories told by breast and cervical cancer survivors in churches and community settings. My poster will show progress made with the project in the Western New York-region over the past five years regarding breast cancer awareness, screening, navigation, and treatment.
Citation Format: Averl Anderson. [Advocate Abstract:] The Buffalo/Niagara Witness Project: Saving Lives. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr C19.
Abstract IA18: Using mixed-methods to enhance culturally sensitive interventions
Authors: Lu Qian 
Published: March 2017

Abstract
The purpose of this presentation is to demonstrate the application of mixed methods research designs to generate and test culturally sensitive interventions. The presenter introduces mixed methods related to different phases of programmatic intervention studies, including development of the intervention, implementation of the intervention, testing the intervention, interpretation of the findings, and refining existing or developing new interventions. Qualitative methods are used before, during, or after the intervention to inform a better intervention design, to provide understandings of the implementation process, and to explore the in-depth explanation of quantitative results. Quantitative data are collected before, during, and after the intervention to test the effects and mechanisms of the intervention. The presenter uses examples from intervention studies conducted with the Chinese American cancer survivors in the U.S to illustrate the application of mixed methods designs and programmatic approaches to developing and evaluating culturally specific intervention programs.
Citation Format: Qian Lu. Using mixed-methods to enhance culturally sensitive interventions. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr IA18.
Abstract IA20: Cancer in Sexual and Gender Minority populations
Authors: Quinn Gwendolyn P. , Schabath Matthew B. 
Published: March 2017

Abstract
Introduction: The LGBTQ population, also known as sexual and gender minorities (SGM) has increased risks for some cancers, not because of sexual orientation or gender identity (SOGI), but due to risk behaviors more prevalent in this population. Risk factors include higher rates of obesity, smoking, and alcohol use. The conundrum of these risk behaviors is that they are likely to have developed as a result of perceptions of stigmatization, marginalization, and overt discrimination. Further, the oncology community may not be trained in the unique needs of this population and institutions may not be collecting sexual orientation and gender identity (SOGI) data appropriately or at all.
Methods: The presentation will focus on two areas: 1) An overview of the seven cancer sites disproportionately affecting LGBTQ populations, reviewing the current available literature on, primary prevention, secondary prevention and preclinical disease, tertiary prevention and late stage disease, clinical implications and psychosocial factors related to cancer survivorship and 2) Results from a 38 item, national survey of 500 oncologists knowledge, attitudes, and practice behaviors with LGBTQ cancer patients.
Results: Anal, Breast, Cervical, Colorectal, Endometrial, Lung, and Prostate cancer disproportionately affect the LGBTQ community. 153 oncologists (37% response rate) completed the survey. Results showed low rates of knowledge about LGBTQ health; high rates of comfort and confidence in caring for LGBTQ (95%); low rates of collecting SOGI data (11.4% collect sexual orientation; ~19% collect gender identity)
Conclusions: Greater acceptance of SGM in the healthcare setting is needed for disclosure to occur more routinely and health care providers to respond to SOGI disclosure in ways that address needs. A welcoming environment conducive to SOGI disclosure is a key element in improving the quality of care. The collection of SOGI and an accurate and thorough sexual history is necessary for LGBTQ patients to receive proper screening, diagnosis and treatment for their cancer healthcare needs. Equally important is ensuring healthcare providers and staff are properly educated on the increased prevalence of risk factors as well as the specific needs of the LGBTQ population in regards to cancer care.
Citation Format: Gwendolyn P. Quinn, Matthew B. Schabath, Miles For Moffitt Work Group. Cancer in Sexual and Gender Minority populations. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr IA20.
Abstract IA22: Cancer survivorship and sexual minorities
Authors: Boehmer Ulrike 
Published: March 2017

Abstract
Evidence shows that lesbian, gay, and bisexual individuals, defined as sexual minorities, have more cancer risk factors compared to heterosexual individuals. To date sexual minority cancer survivorship received some research attention, with a particular focus on breast cancer among sexual minority women. Cancer survivorship also extends beyond the sexual minority individual with the disease, affecting the spouse or partner, family members or friends. Moreover cancer is known to affect the informal caregiver, who provides unpaid help and support to an individual with cancer. To date, there is a dearth of information on the caregivers to sexual minority individuals with cancer. Comparative analyses of cancer survivors of different sexual orientations and their respective caregivers provide some of the necessary knowledge. A better understanding of sexual minorities with cancer and their caregivers can inform the later development of programs that are culturally appropriate and address the needs of sexual minority survivors and their caregivers.
Citation Format: Ulrike Boehmer. Cancer survivorship and sexual minorities. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr IA22.
Abstract IA27: Remote genetic services to increase access to genetic testing in low resource settings
Authors: Bradbury Angela R. 
Published: March 2017

Abstract
The hope for precision medicine is to tailor prevention, treatment or screening recommendations for individual patients based on their genotype, which will ultimately result in modified health behaviors (e.g. risk reducing behaviors or screening) and improved patient outcomes. For example, clinical testing for the BRCA1/2 mutations has become a standard-of-care practice as evidence-based cancer prevention strategies (e.g. prophylactic oophorectomy) have been shown to reduce cancer morbidity and mortality. Given the complexity of genetic information and potential for false reassurance and psychosocial distress, genetic counseling has traditionally been delivered in-person. Yet, there is a limited workforce of genetic providers who are generally located in academic and urban centers and this in-person delivery model often requires patients to travel to a potentially distant and unfamiliar medical setting to receive cancer genetic testing with a genetic provider. Some patients proceed with testing without a genetic provider (i.e. with their local physician) or they do not proceed with testing at all. Thus, there remain significant access, time, and patient cost barriers to in-person genetic services that could contribute to disparities in both uptake and outcomes of genetic services. Additionally, emerging obligations to return actionable genetic research findings and expansion of genetic tumor testing are introducing additional demands for genetic services. Thus, as clinically relevant genetic applications increase, innovative delivery models to promote access to cancer genetic education and services are needed both in the clinical and research setting. Alternative models include telephone counseling, real-time two way videoconferencing and utilizing web-based education and portals to increase access. This session will review ongoing and published studies evaluating remote genetic services, including the available evidence, advantages and limitations of phone, videoconference and web-based genetic services.
Citation Format: Angela R. Bradbury. Remote genetic services to increase access to genetic testing in low resource settings. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr IA27.