bluuebunny/crossref_metadata_2025_split huggingface dataset:
Future Finland – A nationwide Finnish multidisciplinary birth cohort initiative
Authors: Simell B , Lonna M , Valtokari M , Kajantie E , Lundqvist A 
Published: October 2024

Abstract

Increasing evidence suggests that early-life conditions may have substantial consequences on individual health and wellbeing throughout the lifecycle. Development of complex social and health issues may be best understood through longitudinal studies that combine the perspectives of social and health sciences. Future Finland aims to collect a nationwide lifelong data resource that through collaborative multidisciplinary research will strengthen future population welfare. Future Finland will be based on index children born in Finland (43.000/year) during a specific time period. National registers and other administrative data sources will provide data for the age cohort (children), their parents and siblings, with special effort on data from more rarely used sources (e.g., electronic health records, school records). Subsets of cohort members will be recruited in early pregnancy (consent) to undergo deeper data collection through questionnaires, biological and environmental samples and measurements, and digital monitoring data (e.g., physical activity, citizens digital footprint). The Future Finland preparatory phase started in 2023 at the Finnish Institute for Health and Welfare (THL). The Future Finland design and focus areas are currently being planned based on identified information gaps and with consultations of experts from other birth cohort studies. Data collection is planned to start in 2025 by piloting and foreseen to expand to full-scale in 2027-2028. The Future Finland data resource will be made available for the entire research community as openly as possible, at the same time maintaining the highest possible data security standards to protect privacy now and in the future. Future Finland enables novel interdisciplinary research and intervention setups, which will strengthen the knowledge base for societal decision-making and promote the future population welfare. Future Finland is funded by the Finnish Cultural Foundation.

Key messages
• Future Finland initiative will collect a nationwide lifelong data resource enabling novel cross-disciplinary research designs to produce groundbreaking and impactful scientific results.
• A larger-scale use of data enables novel interdisciplinary research and intervention setups strengthening the knowledge base for societal decision-making and promoting the future population welfare.
Co-planning as a public health tool: the Milan Health Protection Agencies’s Local Gambling Plan
Authors: Farchi E , Calloni L , Capriulo A P , Carraro S , Dodaro G , Albani R , Lamberti A , Celata C 
Published: October 2024

Abstract

Issue/problem
Gambling represents a public health, social, and economic problem. Lombardy Region, according with national and regional law, has approved the Regional Plan for the prevention and contrast of Pathological Gambling. The Health Protection Agencies (HPA) of the Metropolitan City of Milan, as the other HPAs, implemented the Local Gambling Plan, based on a context analysis and in synergy with all the actors involved.

Description of the problem
Since 2019, the Milan HPA’s Local Gambling Plan has been implemented through collaboration with non-profit entities (TSEs), which are involved via public tendering. The implementation of the new Italian ‘Code of the Third Sector’ changed the TSEs engagement modalities. For this reason, a complex co-planning process has been initiated in order to increase the level of active citizenship and to enhance public health, in line with horizontal subsidiarity principle.

Results
The Co-planning procedure promoted the integration among local health services, non-profit entities and municipalities with the aim of gambling prevention and contrast, ensuring the continuity of prevention programs and the involvement of local stakeholders in addressing a public health issue. During the co-planning, 9 working groups were established to define objectives, project actions, monitoring and evaluation methods, ensuring the common interest of all actors involved.

Lessons
For the health and social system, the co-planning procedure becomes an opportunity to translate what is foreseen by the regulations into local actions. It allow the active participation of local stakeholders involved into the co-construction and achievement of public health objectives and the promotion of communities’ empowerment.

Key messages
• Co-planning is both a process and a tool for local welfare.
• Co-planning involved multiple actors, among which the public institution that ensures satisfaction of health needs through governance actions.
Study tours as strategy in building multi-level public health system transformation in Ukraine (UA)
Authors: Levkovich N , Lasky C , Lieberman L , Melnyk M , Kolker J , Aaronson W 
Published: October 2024

Abstract

With 14 million Ukrainians in need of psychological aid (UNDP) and a strained health system, UA urgently requires mental health and psychological support services (MHPSS). As a TA partner on the USAID funded Public Health System Recovery and Resilience project in UA, the Philadelphia (PHL) team supports capacity building for population-based MHPSS at the community level with a study tour strategy. Such approaches apply to other countries interested in remodeling public health systems. The strategy aims to advance community based MHPSS through in person tours in PHL with remote follow up to stimulate vision, exchange ideas and accelerate action among governmental, community, and academic partners. The study tours presented overviews on health policy, system development, program services delivered to children and adults, community interventions, and workforce development of professionals and paraprofessionals. All included the foundational principles of trauma-informed practice. The June 2023 tour hosted 11 decision makers and regional officials who embraced the vision for system development and endorsed further engagement. The December 2023 tour hosted 13 practitioners and coordinators of health and social services to observe community programs. Results include development of PHL NGOs and UA social service hub partnerships to implement train the trainer programs for peers/people with lived experience and for mural arts programs to promote community engagement and empowerment. The September 2024 tour involves university partners from nursing, social work and psychology and PHL counterparts to strengthen curricula to include mental health competencies, support faculty development with potential for collaborative research and student exchange, and design post-graduate continuing education courses for upskilling the incumbent workforce. Study tours and direct exchange are an effective strategy for capacity building for MHPSS in Ukraine to address population health needs.

Key messages
• The sequenced study tour strategy affects distinct levels of change makers in UA. The results are governmental buy-in, partnerships for programmatic development, and academic advancement.
• The study tour model promotes systematic change and offers solutions to MHPSS workforce shortages through information exchange, relationship building, and capacity development.
Navigating complexity: an evaluation framework for assessing co-creation in public health
Authors: Agnello D M , Smith N , Steiner A , Vogelsang M , Chastin S 
Published: October 2024

Abstract

Background
Co-creation aims to democratize research and bridge the gap between research and practice. Key characteristics like empowerment and meaningful participation shape sustainable outcomes. However, existing frameworks like Arnstein’s Ladder of Citizen Participation broadly overlook individual method contributions. This study aims to address this gap by creating and validating a framework for intrinsic evaluation, guiding stakeholders and researchers in genuine co-creation of public health interventions.

Methods
We systematically screened and extracted frameworks aligned with five key co-creation characteristics to identify and evaluate methods. Through iterative testing, we identified key features for distinguishing methods and integrated them into a novel framework. Co-creation experts validated and refined this framework using the closed card sort method, qualitative assessment, and group discussions.

Results
The Co-Creation Rainbow framework includes key features from 20 existing frameworks, with an Individual-to-Collective Continuum, five sections (Informing, Understanding, Stimulating, Collaborating, and Collective Decision-making), and three overarching themes (Engage, Participate, and Empower). Analysis showed successful categorization of 436 methods and revealed a significant disparity in co-creation practices between researchers and practitioners.

Conclusions
The Co-Creation Rainbow framework provides a structured approach to evaluating and reporting co-creation processes. Acknowledging co-creation’s diversity, the framework aids in tailoring approaches for meaningful participation. By offering a unified language for diverse co-creation methods, the framework also facilitates transparent evaluation, enhancing the reliability and reproducibility of co-created public health interventions.

Key messages
• Employing a universal language across diverse co-creation methods is pivotal in fostering transparent evaluation, thereby bolstering the reliability of co-created public health interventions.
• Effective collaboration of key stakeholders necessitates the use of suitable methods. By integrating diverse perspectives, public health interventions gain relevance, efficacy, and sustainability.
Validated translation of telehealth and health app usability questionnaires to 8 European languages
Authors: Burski M , Castaldo V , Romano O , Kiricsi D , Genre F , Vandamme T , Holeva V , Grašič Kuhar C , Turlinskienė M , Rosińska M 
Published: October 2024

Abstract

International projects such as the Joint Action on strengthening eHealth including telemedicine and remote monitoring for health care systems for cancer prevention and care (eCAN) are implemented in countries with different languages, requiring validation of translations of standardized tools. Evaluation frameworks for telemedicine services necessarily include the patient’s perspective, i.a. on the service usability. Due to the lack of validated questionnaires in multiple European languages we sought to develop translation for the languages of the eCAN pilot countries. Based on literature review, we selected mHealth App Usability Questionnaire (MAUQ) and Telehealth Usability Questionnaire (TUQ) and developed a conceptual definition for each item. Next, we performed forward and back translation from English into the target languages, expert review, cognitive interview (CI) with 5-10 cancer or chronic disease patients per language/per questionnaire. Qualitative CI results were scored by 2 independent researchers for consistence of each item with conceptual definitions for final review by native speaker expert. We chose 8 languages (ES, GR, HU, IT, LT, NL, PT, SI) for validation. CI involved 48 respondents (29 females, 60%; 18 aged&gt;60, 38%;23 higher education, 48%) for TUQ and 48 (22 females, 46%; 16 aged&gt;60, 33%; 23 higher education, 48%) for MAUQ. Overall 872 (87%) of TUQ and 728 (84%) of MAUQ item answers were classified as consistent. In more than one language we identified concepts difficult to understand: consistent navigation when moving between screens, distinction between easy to use/learn, social settings. The validation process allowed us to identify opportunities to improve translation and highlighted concepts generally more difficult to understand. We provided validated translation of MAUQ and TUQ in 8 European languages for use in eCAN pilots and future telemedicine evaluation studies.

Key messages
• eCAN successfully validated translations of telemedicine usability questionnaires for 8 languages.
• Multilingual translation validation can provide insights into concepts difficult across languages.
Syndemic vulnerability in Dutch urban cities: investigating health disparities and intersectionality
Authors: Dubbeldeman E M , Vos HMM , Bussemaker M , Slagboom M N , Mook-Kanamori D O , Crone M R 
Published: October 2024

Abstract

Background
Syndemics, the clustering of health and social issues, disproportionately affect marginalized communities. While prior research indicates sex-specific variations in syndemic vulnerability, current research often overlooks other sociodemographic characteristics and their interaction. An intersectionality-informed syndemic approach could offer more insights into the mechanisms in syndemic suffering, providing a deeper understanding and identifying groups most affected by structural inequalities.

Methods
Our study focused on adult residents in Leiden and The Hague, the Netherlands, registered at different general practices. Using existing routine health data linked with Central Bureau for Statistics information, we included adults who were registered with a general practitioner in 2018 and 2019, had a minimum of two registered health conditions documented by their general practitioner, lived in Leiden or The Hague, and were at least 18 years old in 2018.

Results
A total of 43340 adults were included for analyses. Distinct health condition clusters were observed within sex and age groups. Women experiences a broader range of health issues, often characterized by mental and psychosomatic symptoms like mood/anxiety disorders and abdominal complaints. Conversely, men exhibited a higher prevalence of specific physical conditions, including hypertension, diabetes, and cardiovascular diseases.

Conclusions
The findings align with previous research, suggesting the importance of further exploration into the role of intersectionality in syndemics. Currently, we are investigating the foundations of these disparities, including interaction analyses and Multilevel Analysis of Individual Heterogeneity and Discriminatory Accuracy (MAIHDA). Using MAIHDA, we will examine the relationship between intersectionality and syndemic vulnerability, quantifying intersecting factors (sex, ethnicity, SES) and exploring their impact at individual and group levels.

Key messages
• Understanding intersectionality in health disparities is crucial for addressing syndemic vulnerabilities.
• Tailored interventions informed by intersectionality may promote equitable health outcomes.
Cross-cutting integration of equity and diversity lens in public health: a novel approach of JACARDI
Authors: Armocida B , Spadea T , Formenti B , Osborne R , Zaletel J , Di Girolamo C , Musta L , Onder G , Skogberg N 
Published: October 2024

Abstract

Issue/Problem
Health inequities persist across European countries, impacting the distribution, prevention, and management of non-communicable diseases. With increasing population diversity and improved understanding of the intersectional nature of drivers of health inequities, narrowing inequities calls for systematic integration of diversity perspectives into equity-driven policy and practice.

Description of the problem
The EU-co-funded Joint Action on CVDs and diabetes (JACARDI, 11/2023-10/2027) project with 76 partners from 21 countries and 142 national-level projects (later pilots), applies a structured approach for integrating equity and diversity perspectives within all project structures. This is achieved through design of a common methodological framework and terminology glossary for all thematic work packages (WPs) and their pilots, which are further supported through capacity building sessions and consultations.

Results
The “4Cs” framework (Critical reflection; Context and data; Co-design; and inclusive and accessible Communications) for integrating equity and diversity principles in JACARDI was developed based on results of focus group interviews with WP leaders (n = 24) and review of previous literature. This framework was applied as a lens to be applied in the planned activities by WPs and pilots, elaborated in an equity and diversity maturity matrix aligned with the XV methodological steps for pilot implementation. Additionally, equity and diversity indicators were integrated into harmonized context analysis questionnaires for national focal points of each partner country, as well as into the methodology for pilot assessment and reporting.

Lessons
Equity and diversity perspectives should be integrated into the core structures of project implementation, supported by practical tools, trainings and practical consultations to improve adherence and collaborative understanding across project partners.

Key messages
• Equity and diversity integration into core structures are essential for tackling health inequities and the NCD-related social gradient in Europe.
• Encouraging critical reflection among JACARDI partners is pivotal for initiating a paradigm shift towards equity and diversity inclusion.
Pediatric tonsilitis: modern tactics against an old foe
Authors: Cachim A , Santos M M , Luz Fortes A , Paixão M M 
Published: October 2024

Abstract

Background
Pediatric tonsillitis (PT) impacts public health due to its widespread incidence and the prevalent overprescription of antibiotics driven by concerns over Group A β-hemolytic streptococcus (SGA) complications. Rapid antigen diagnostic tests (RADT) serve as vital tools for promptly identifying SGA infections in PT cases. However, despite their widespread availability, healthcare professionals often underutilize RADT, leading to inappropriate antibiotic prescriptions. Clinical audits and feedback to professionals emerge as solutions to this issue.

Methods
An audit was conducted on clinical cases of PT during 2023 to evaluate the correct usage of RADT and subsequent antibiotic prescription across various primary care practices in Lisbon, Portugal. Afterwards, a pilot practice was selected to assess the feasibility and utility of an online tool designed specifically to report RADT results and create a real-time surveillance system of incidence of SGA with feedback to prescribing clinicians. Following the revision of the reporting tool after the pilot, its implementation was extended to multiple practices across the Lisbon region.

Results
From the 1050 clinical cases analyzed, 992 had an indication to do a RADT according to the Portuguese guidelines, however only 282 (28.4%) tests were done. Overall, only 19.6% of PT cases were considered fully compliant. During the pilot, the introduction of the online tool led to a 3.259 increase in reporting (from 0.574 RADT/day to 1.872 RADT/day) for the same time period between February and March.

Conclusions
The implementation of an online reporting tool represents a significant advancement in SGA surveillance efforts, detecting cases promptly for public health interventions. This initiative underscores the importance of continuous quality improvement in diagnostics and shows digital tools’ potential for better disease surveillance in clinical settings.

Key messages
• Underutilization of RADT in PT cases contributes to inappropriate antibiotic prescriptions, compromising patient care.
• Introduction of an online reporting tool significantly enhances RADT usage, aiding prompt SGA detection for improved public health interventions.
Needs Assessment for Primary Care for Best Practice Implementation: The CIRCE Joint Action
Authors: Papadakis S , Petelos E , Angelaki A , Anastasaki M , Vafeiadi M , Magkanaraki E , Tornero Patricio S , Carriazo A , Lionis C 
Published: October 2024

Abstract

Introduction
CIRCE is a Joint Action (JA) supporting the transfer of six best practices (BPs) to new primary care settings in Europe. High-quality needs assessment can set the foundation for strong planning and implementation of the CIRCE-JA best practices in these new primary care settings.

Methods
A needs assessment tool was developed based on the TO-REACH knowledge transfer framework and learnings from a scoping review of international knowledge transfer frameworks. The needs assessment provides structured tool for local sites to self-assess the alignment of the BP with local priorities, readiness of the local site to successfully implement the BP, the availability of necessary leadership, resources and partnerships, and an examination of barriers to local BP implementation and mitigation strategies.

Results
Twenty-six CIRCE-JA teams completed the needs assessments. Local teams identified the CIRCE-JA BPs were value-adding and aligned with local priorities. Cross-cutting barriers were identified which were common among the six CIRCE-JA best practices across five thematic areas: (1) provider level, (2) intervention level, (3) health system/policy level, (4) partnership and physical resources and (5) information technology. The needs assessment supported primary care sites with a structured approach to planning for transfer of BPs to their local setting that is based on established international best practices and knowledge transfer frameworks including early identification of barriers and mitigating strategies.

Conclusions
The needs assessment has supported teams with conducting a self-assessment and informing initial planning for adoption of the BP in their local primary care practice. Given the importance of the local needs assessment to high quality implementation of BP the CIRCE-JA experience with local needs assessment may provide learnings for future BP transfer initiatives.

Key messages
• Local needs assessment supports the transfer of best practices to primary care settings, which is a critical component of service transformation during the post-COVID-19 period.
• For successful transfer of best practices in primary care, it is vital to give to examine such as provider capacity, available human resources, health policy, and information technology.