bluuebunny/crossref_metadata_2025_split huggingface dataset:
Electronic Communication Between Children’s Caregivers and Health Care Teams: Scoping Review on Parental Caregiver’s Perceptions and Experience
Authors: Gamper Mary Jo , Singer Cohen Rebecca , Esperanza Razaz Maryam , Parrillo Elaina , Thornton Clifton P , Wec Aleksandra , McDonald Kathryn , Gleason Kelly T 
Published: October 2024

Abstract

Background
Asynchronous communication via electronic modes (e-communication), including patient portals, secure messaging services, SMS text messaging, and email, is increasingly used to supplement synchronous face-to-face medical visits; however, little is known about its quality in pediatric settings.

Objective
This review aimed to summarize contemporary literature on pediatric caregivers’ experiences with and perspectives of e-communication with their child’s health care team to identify how e-communication has been optimized to improve patient care.

Methods
A scoping review following the Arksey and O’Malley methodological framework searched PubMed, CINAHL, Embase, and Web of Science using terms such as “Electronic Health Records” and “Communication” from 2013 to 2023 that discussed caregiver experiences and perspectives of e-communication with their child’s health care provider. Studies were excluded if they were abstracts, non-English papers, nonscientific papers, systematic reviews, or quality improvement initiatives, or pertained to synchronous telemedicine. We conducted a two-step screening process by scanning the title and abstract and reviewing the full text by two independent screeners to confirm eligibility. From an initial 903 articles identified via the database search, 23 articles fulfilled all the inclusion criteria and are included in this review.

Results
Of the 23 articles meeting the inclusion criteria, 11 used quantitative methods, 7 used qualitative methods, and 5 used mixed methods. The caregiver sample sizes ranged from 51 to 3339 in the quantitative studies and 8 to 36 in the qualitative and mixed methods studies. A majority (n=17) used the patient portal that was self-categorized by the study. Secure messaging through a portal or other mobile health app was used in 26% (n=6) of the studies, while nonsecure messaging outside of the portal was used 17% (n=4) of the time and email was used 33.3% (n=8) of the time. In 19 of the studies, parents reported positive experiences with and a desire for e-communication methods.

Conclusions
The literature overwhelmingly supported caregiver satisfaction with and desire for e-communication in health care, but no literature intentionally studied how to improve the quality of e-communication, which is a critical gap to address.
Developing an Evidence- and Theory-Informed Mother-Daughter mHealth Intervention Prototype Targeting Physical Activity in Preteen Girls of Low Socioeconomic Position: Multiphase Co-Design Study
Authors: Brennan Carol , ODonoghue Grainne , Keogh Alison , Rhodes Ryan E , Matthews James 
Published: October 2024

Background
Preteen girls of lower socioeconomic position are at increased risk of physical inactivity. Parental support, particularly from mothers, is positively correlated with girls’ physical activity levels. Consequently, family-based interventions are recognized as a promising approach to improve young people’s physical activity. However, the effects of these interventions on girls’ physical activity are often inconsistent, with calls for more rigorous, theory-informed, and co-designed family-based interventions to promote physical activity in this cohort.

Objective
This study aimed to use co-design methods to develop an evidence- and theory-informed mother-daughter mobile health intervention prototype targeting physical activity in preteen girls.

Methods
The intervention prototype was developed in accordance with the United Kingdom Medical Research Council framework, the Behaviour Change Wheel, the Theoretical Domains Framework, and the Behaviour Change Techniques Ontology. The Behaviour Change Intervention Ontology was also used to annotate the intervention characteristics. The co-design process incorporated three phases: (1) behavioral analysis, (2) the selection of intervention components, and (3) refinement of the intervention prototype. Throughout these phases, workshops were conducted with preteen girls (n=10), mothers of preteen girls (n=9), and primary school teachers (n=6), with additional input from an academic advisory panel.

Results
This 3-phase co-design process resulted in the development of a theory-informed intervention that targeted two behaviors: (1) mothers’ engagement in a range of supportive behaviors for their daughters’ physical activity and (2) daughters’ physical activity behavior. Formative research identified 11 theoretical domains to be targeted as part of the intervention (eg, knowledge, skills, and beliefs about capabilities). These were to be targeted by 6 intervention functions (eg, education, persuasion, and modeling) and 27 behavior change techniques (eg, goal setting and self-monitoring). The co-design process resulted in a mobile app being chosen as the mode of delivery for the intervention.

Conclusions
This paper offers a comprehensive description and analysis of using co-design methods to develop a mother-daughter mobile health intervention prototype that is ready for feasibility and acceptability testing. The Behaviour Change Wheel, Theoretical Domains Framework, and Behaviour Change Techniques Ontology provided a systematic and transparent theoretical foundation for developing the prototype by enabling the identification of potential pathways for behavior change. Annotating the Behaviour Change Intervention Ontology entities represents the intervention characteristics in a detailed and structured way that supports improved communication, replication, and implementation of interventions.
Mixed Comparative Evaluation of a Training Program Dedicated to Cystic Fibrosis Reference Centers: Protocol for the Pilot Implementation of Shared Decision-Making in the Treatment of Diabetes in Adult Patients With Cystic Fibrosis
Authors: Moumjid Nora , Gotte Constance , Hommey Sophie , Poupon Bourdy Stéphanie , Haesebaert Julie , Durieu Isabelle , Reynaud Quitterie 
Published: October 2024

Background
Diabetes affects half of the patients with cystic fibrosis who are aged 30 years and older. Diabetes progresses asymptomatically over a long period of time. Two treatment options are possible: start insulin as soon as cystic fibrosis diagnosis is made with the additional constraints of cystic fibrosis or wait while monitoring the patient’s clinical condition and start insulin when diabetes symptoms develop and therefore later. This situation is particularly well suited to shared decision-making (SDM) between the physician (health care team) and patient/relatives.

Objective
The aim of this study was to perform qualitative and quantitative analyses for evaluating the outcomes and experience of SDM implementation between the physician/health care team trained for SDM and patients/their relatives for cystic fibrosis–related diabetes.

Methods
A quasi-experimental with a comparison study will be developed. Three cystic fibrosis reference centers (CFRCs) will be trained in SDM by using a web-based training, including a validated decision aid and coaching for physicians and the medical team. Two control CFRCs will maintain their usual practices. A qualitative analysis through observation of consultations, individual semistructured interviews with patients, and focus groups in CFRCs will be conducted based on a thematic content analysis. Questionnaires related to decision-making and experience of decision-making with and without SDM implementation will be administered to patients and physicians.

Results
Forty patients will be included (8 patients in each center), that is, 60 consultation observations (2 consultations per patient in the intervention groups given the modalities of the SDM process) will be conducted in 2025. Eight focus groups will be conducted in the 5 centers (2 groups in each intervention CFRC and 1 group in each control CFRC). This qualitative corpus plus responses to the patient and physician questionnaires will make it possible to know whether the practice of SDM in CFRCs is increased by an implementation strategy and to analyze the experience of patients and their relatives regarding decision-making modalities. Analysis of the outcomes and experience of the implementation of SDM are of importance to identify the facilitators and barriers to SDM from patients’ and CFRCs’ point of views.

Conclusions
Our study will give us keys to adapt, improve, and disseminate SDM more widely in the context of cystic fibrosis therapy. SDM could thus be used in routine clinical practice in CFRCs at the national level.

Trial Registration
ClinicalTrials.gov NCT04891159; https://clinicaltrials.gov/study/NCT04891159?id=NCT04891159

International Registered Report Identifier (IRRID)
PRR1-10.2196/62931
Analisis Penerapan JKN Mobile bagi Pengguna Lansia di Rumah Sakit Harapan dan Doa (RSHD) Kota Bengkulu
Authors: Purba Krisda Vanitri Purba , Adityo Pratikno Ramadhan  , Anita Marianata  
Published: October 2024

The JKN Mobile application has purposed to facilitate BPJS Health participants in employing JKN-KIS services without the need to come directly to the BPJS office. The aim of this research is to determine how JKN Mobile is employed by senior citizens at Bengkulu City's Harapan and Doa Hospitals, as well as to outline the services provided to JKN Mobile senior citizens at RSHD Bengkulu City.The research method employed in this study is the qualitative research method. Data collections were carried out through observation, interviews, and documentation. Informant selection technique using accidental sampling. The stages of data analysis used are data reduction, data presentation, and conclusion drawing. The results of this study indicate the application of JKN Mobile for older people users at Harapan and Doa Hospital, Bengkulu City, found problems with older people users who claimed to be quite difficult in using the JKN Mobile application to get services at the hospital such as not having a smartphone that supports it, not understanding how to use the JKN Mobile application, to difficulties due to not having a family companion as a source of information supporting the older people.
Rasionalitas Pemilih Muhammadiyah Menjelang Pemilihan Presiden Indonesia Tahun 2024
Authors: Fatah Rahmat Abdul 
Published: October 2024

Penelitian ini bertujuan menemukan rasionalitas pemilih Muhammadiyah. Penelitian ini sangat penting untuk diteliti karena masih jarang yang mengangkat topik tersebut. Selain itu yang membedakan penelitian ini dengan yang lain ialah terletak pada pendekatan sosiologis yang digunakan yaitu teori tindakan sosial Max Weber sebagai alat ukur rasionalitas pemilih Muhammadiyah. Sementara metodologi Kualitatif dan jenis deskriptif digunakan untuk mengungkapkan motif dan makna para pemilih, dimana data primer diperoleh melalui pertanyaan terbuka kepada subjek penelitian melalui Google formulir yang didukung oleh data sekunder berupa dokumen resmi Muhammadiyah, pernyataan sikap pimpinan Muhammadiyah dan pimpinan Orgnisasi Otonom Muhammadiyah tingkat Pusat. Dari keterpilihan tersebut ditemukan tiga (3) rasionalitas nilai yang menjadi motif dan pemaknaan pemilih dalam memberikan pilihan tersebut yaitu Aspek kepemimpinan, ideologi dan kebijakan yang bermuara pada tiga nilai utama yaitu persatuan keadilan dan kesejahteraan. Pada penelitian ini juga ditemukan motif Non-rasional yaitu motif tradisional dan afeksi/perasaan) atau emosi keagamaan serta motif eksistensi kelompok yang kesemuanya pada pemilih yang memberikan dukungan kepada Anis Rasyid Baswedan. Sementara aspek rasionalitas instrumental tidak ditemukan pada pemilih yang memberikan dukungan kepada ketiga calon presiden tersebut.
Women's Communication Strategy for Women's Islamic Organizations in Overcoming Radicalism
Authors: Hardyanti Winda 
Published: October 2024

Women's involvement in radicalism and their role in addressing the issue are important considerations. Islamic organizations, such as Nahdlatul Ulama (NU) and Muhammadiyah in Indonesia, have played a significant role in combating radicalism. NU has developed the concept of Islam Nusantara as an antidote, while Muhammadiyah focuses on Progressive Islam as a counter-discourse. This research aims to explore the communication strategies used by women activists in Islamic organizations to address radicalism. The study will employ a descriptive qualitative method, focusing on Nasyiatul Aisyiyah and Fatayat NU as mass organizations representing young women. This research have a finding that the women activists in Islamic organizations employ distinct communication strategies to address radicalism, with Muhammadiyah emphasizing moderation and inclusivity, and NU focusing on identifying radicalism within groups. Effective communicators and targeted communication media are prioritized, despite the differing approaches between the two organizations.
Strategi Advokasi Anti Kekerasan Berbasis Gender Online pada Akun @AwasKBGO Sebagai Upaya Meningkatkan Kesadaran Publik
Authors: Fitrah Gandya , Sutanto M. Himawan 
Published: October 2024

Tujuan dari penelitian ini adalah untuk menganalisis dan mengidentifikasi bentuk-bentuk strategi advokasi apa saja yang digunakan @AwasKBGO—Akun lembaga advokat di bawah inisiatif SAFEnet—di berbagai platform media sosialnya dalam mengedukasi guna meningkatkan kepedulian dan kesadaran masyarakat atas bahayanya fenomena Kekerasan berbasis gender online di media sosial. Kekerasan digital berkembang mengikuti dinamika teknologi informasi pada era digital ini. salah satu jenis kekerasan digital yang sedang marak di ranah media sosial adalah kekerasan berbasis gender online atau disingkat KBGO. Contoh paling nyata dan kerap terjadi adalah mengakses, menggunakan, memanipulasi, dan menyebarkan data pribadi, foto atau video, serta informasi dan konten pribadi tanpa persetujuan. Penelitian ini menggunakan metode pendekatanakualitatif dengan teknik pengumpulan data wawancara mendalam ini diharapkan mendapatkan penjabaran strategi-strategi advokasi komunikasi yang pihak @AwasKBGO gunakan dalam melakukan kampanye edukasi dan aksi melawan terhadap kejahatan Kekerasan berbasis gender online. Hasil penelitian menunjukkan bahwa @AwasKBGO sebagai satu-satunya Lembaga advokat yang berfokus pada Kekerasan Berbasis Gender Online (KBGO) telah menjalankan strategi advokasi komunikasi yang meliputi analisis, strategi, mobilitass, aksi, evaluasi, dan kesinambungan.
Islam and Pancasila: Perspective of Indonesian Postgraduate Muslim Students
Authors: Manik Toba Sastrawan , Murdiono Mukhamad , Andhika Muhammad 
Published: October 2024

Pancasila as the basis of the state faces debates from nationalists and Islamic ideology followers in Indonesia. This is influenced by the development of theorizing about secularism, nationalism and theocracy. Considering the threat to the rise of communism and radicalism, this study aims to analyze the attitudes of Indonesian Moslem postgraduate students towards the principles of Pancasila. The number of samples in this study were 122 people from various Indonesian universities who were determined by random sampling. The data was distributed via Google Form and processed qualitatively descriptively. This study found that the majority of postgraduate Moslem students accepted affection, cognition and conation of each Pancasila precept. The level of respondent acceptance of Pancasila was 70-90%. There were some people who still do not accept Pancasila as an ideology but it was only in small number, 2.45% for those who strongly disagree and 7.42% who disagree. Pancasila is accepted by most Indonesian Moslem postgraduate students. The results of the research contribute in providing a new understanding of Pancasila as well as the young generation of Moslem. However, there is many limitation in this research in reaching bigger and wider respondents. Further research on this topic is very welcomed.
Integritas Badan Pemeriksa Keuangan Sebagai Supreme Audit Institution
Authors: Prabhawa Wisnhu , Prasojo Eko 
Published: October 2024

The Supreme Audit Agency (SAI) is a vital element in ensuring financial accountability in many countries. In Indonesia, BPK is the Supreme Audit Agency which has integrity in fighting corruption, maintaining transparency and financial accountability, and strengthened democratic institutions. Unfortunately, the BPK faces a number of challenges in the issue of buying and selling opinions, tax audit limitations, and foreign debt, as well as limited institutional authority. This study applies a qualitative method that aims to evaluate the integrity of the BPK based on the dimensions of sound governance. Collecting data through literature studies and in-depth interviews. Data analysis through the stages of data reduction, data display and reference based on understanding the theoretical framework. It examines the integrity of BPK influenced by chellenges in quality and consistency of its actions. Dimensional processes still need to be optimized, such as the settlement of compensation by the treasurer, the use of SIPTL, the BPK Hearing Care Forum, and openness support from APIP. The dimensions of cognition and value have the similar challenges with ethical dimensions, namely integrity and transparency. The management and performance dimensions have challenges with the constitutional dimension of the word 'expected' which slightly hinders the fulfillment of the ideal quantity of quality human resources as BPK's backbone, a solution strategy to overcome the Minister of Finance's license, socialization and monitoring of BPK's opinion, as well as education on misperceptions regarding the assumption that WTP is clean from corruption and information technology. Financial Audit Examination with Financial Audit Examination.
Yield variation and yield potential of organic arable crops in Finland derived from statistical data
Authors: Iivonen Sari , Niemeläinen Oiva , Kokkinen Mirva , Jauhiainen Lauri 
Published: October 2024

This study aims to expand and diversify the analysis of crop yields in organic production by utilising the long-term statistical data reported by farmers. We examined the variation of the harvested yields of organic arable crops (season’s ad hoc harvest) on Finnish organic farms and determined the yield potential for different organic crops and in comparison, with conventional counterparts. When comparing median yields per ha, organic yields were on average 65% of conventional yields. The mean yield difference significantly differed between plant species. Among the analysed crops, faba bean performed best, gaining on average 84% of conventional yields, while organic cereals attained an average of 54–68% of conventional yields. The ratio of organic and conventional median yields was compared between geographical regions, and significant regional differences were found. The performance of organic cereals remained stable over the years, but the relative performance of the organic grain legumes, pea and faba bean, depended more on growing conditions. An average yield gap between the best-performing and medianfarms was 38% for organic farms and 28% for conventional farms. This indicates that Finnish organic farms have greater potential to improve the yield level than conventional farms.
Sustainable Cultivation of Ascomycete Fungi on Wheat Bran for Hydrolytic Enzyme Production
Authors: Pilz Melania , Castellan Nicolò , Conti Fosca , Qoura Farah , Brück Thomas 
Published: October 2024

Abstract
To increase its product sustainability portfolio the detergent and personal care industry seeks bio-based alternatives to chemical performance additives in their products. Currently, enzymatic systems for these applications are mainly obtained from genetically modified organisms (GMO). However, these GMO products cannot be included in eco-certified household care formulations. Hence, this study evaluates alternative non-GMO enzymes systems that could be sustainable performance additives. Seven strain variants of Ceratocystis paradoxa and one strain of Aspergillus niger van Tieghem were cultivated in different liquid media with 3 % glucose (0.3 L cultivation volume, 120 rpm, 28 °C, pH 5.5, 336 hours). Specifically, the enzymatic activities were assessed initially qualitatively via 24 chromogenically labeled sugar polymer-substrates targeting various cellulolytic and hemicellulolytic activities. Quantitative assessment via spectrophotometric based on the same set of chromogenic substrates, was limited to cellulose, xylan, mannan, starch, galactan, rhamnogalacturonan and casein substrates. Using these assays, the C. paradoxa strains showed dominant cellulase, xylanase, amylase and galactanase activities, while the A. niger strain showed amylase and protease activities among other minor hydrolytic enzyme activities. To evaluate the efficiency of the respective hydrolase enzyme systems were concentrated and applied in the hydrolysis of wheat bran. Wheat bran a cereal milling by-product, which is available at low cost in high quantities, provides an ecologically and economically relevant carbon source for fungal cultivation. Hence, the ability of the new enzyme systems to liberate fermentable sugars was identified as a measure of efficiency. The best performing enzyme systems were identified in terms of total sugar released.
Boosting of Dissipated Renewable Energy Systems Towards Sustainability in Kazakhstan
Authors: Khabdullina Guldana , Paule Dace , Pakere Ieva , Khabdullin Asset , Blumberga Dagnija 
Published: October 2024

Abstract
The study aims to develop a methodology for selecting and justifying a multi-energy hub based on renewable energy sources for agricultural complex. The methodology has an international dimension and was tested for the pilot case of the study in an agricultural site in Kazakhstan. The methodology consists of two parts. With the help of the EnergyPro software package, simulation of technical and economic analysis and optimization of energy hub operation for several different energy generation units was carried out. During the simulation, four different scenarios of an energy hub based on solar and wind energy, biomass and heat pump as well as coal-based fossil energy sources were considered. The second part of the methodology was based on the economic justification of climate-neutral technological solutions using multi-energy hubs in the agriculture sector. Climate neutrality diagram was created by use of GHG emission trading experience for a detailed technical and economic analysis and selection of the best renewable sources from various installation sites. Results show that the most promising and cost-effective option is the scenario with an integrated wind park, heat pump and biomass boiler.