bluuebunny/crossref_metadata_2025_split huggingface dataset:
Gaining knowledge of Ontario’s community mental health and addictions system: linking community-based health services data with administrative health data in Toronto, Ontario, Canada
Authors: Kurdyak Paul , Amartey Abigail , Yang Julie , Liadsky Daniel , Solomon Rachel , Carter Stephanie 
Published: September 2018

IntroductionIn most developed countries, a significant amount of mental health and addictions care occurs in community settings. Data reflecting populations served by community-based mental health and addictions providers and the types of services provided are not available, resulting in an incomplete reflection of the entire mental health and addictions system within existing administrative data.
Objectives and ApproachThe Community Business Intelligence (CBI) initiative is a data collection project that captures information on adults receiving community-based mental health, addictions, and support services in Toronto Central Local Health Integration Network (LHIN), located in Ontario, Canada. Leveraging administrative health data and data linkage capacity at the Institute for Clinical Evaluative Sciences (ICES), along with engagement of external stakeholders knowledgeable of CBI and the community health sector, we linked the 2015/16 CBI dataset to administrative health data. Demographic characteristics, health-service utilization, primary care attachment, and 30-day emergency department (ED) revisits were calculated for individuals accessing community health services.
ResultsThere was an 80.8% linkage rate, of which 36.9% linked deterministically via health card number, while 43.9% linked probabilistically. After study exclusions, 37,688 individuals in the CBI dataset used community health services between April 2015 and March 2016. Compared to Toronto Central LHIN, a greater proportion in the CBI dataset were female, older than 65 years of age, and living in a low income neighbourhood. Furthermore, 95.5%of individuals had at least one outpatient physician visit, 51.3%had at least one ED visit, and 21.7%had at least one hospitalization in the past year. Few individuals in the CBI dataset were without primary care attachment (4.5%); however, a larger proportion had a 30-day ED revisit, particularly those receiving community addictions services (19%).
Conclusion/ImplicationsThe availability of community health services data in the CBI dataset and its successful linkage to the administrative health data held at ICES identified health service intersections and outcomes that were previously unknown. This linkage project demonstrates a successful framework for sector-wide performance measurement to address a critical infrastructure gap.
SAGE: supporting secondary data analysis and expediting knowledge mobilization with linked administrative, service delivery, and research data
Authors: Zhang Yunqi , Lloyd-Jones Hannah , Jagodzinski Robert , Barbosa Poliana , Lau Jason , Cui Xinjie 
Published: September 2018

IntroductionThe cultural revolution of data sharing is becoming a global movement. It allows for scientific replication and verification of research results, avoiding research duplication, and enabling greater transparency and knowledge mobilization with a relatively low cost. However, privacy protection and data security are critical concerns for human-subject related data sharing.
Objectives and ApproachIn order to facilitate data sharing and engage various stakeholders to better inform policy and practice while protecting privacy, SAGE (Secondary Analysis to Generate Evidence) was established by PolicyWise for Children and Families. It is a collaborative data repository platform that connects stakeholders through secondary use of data. SAGE was built to link, manage, and share research data, community service data, and administrative data related to health and social well-being. Governance and technical processes are in place to ensure that data depositors are involved in decision-making, and data accessed by collaborators are secured and re-identification risks assessed.
ResultsSAGE has been in operation for over a year. Through engagement with the research and non-profit communities, SAGE now offers ten data assets. Discovery is facilitated through well-documented metadata through NADA and Dataverse. Six new collaborative projects have been initiated through SAGE. SAGE is working actively with local non-profits to liberate data to generate evidence and collaborate with each other on common goals. SAGE has helped these organizations understand the legal and legislative barriers to data sharing, and build the technical capacity to further this goal. Discussions are underway with Alberta public entities on how SAGE can support the linkage and governance processes in the use of administrative data.
Conclusion/ImplicationsSAGE is putting the governance processes and security practices in place to fill a need for a facilitated data sharing model for sensitive data. SAGE is supporting the cultural shift towards data sharing and reuse by fostering trust and collaboration among researchers, non-profit and government ministries.
Education and social service use patterns of children and youth with neurodevelopmental disorders
Authors: Jia Ruiting , Werk Christine , O'Brien Daniel , Jagodzinski Robert , Piatt Carley 
Published: September 2018

IntroductionThis study uses linked administrative data to identify Albertan children and youth (aged 0 to 25 years) with Autism Spectrum Disorder (ASD), Cerebral Palsy (CP) or Fetal Alcohol Spectrum Disorder (FASD), and to examine their government service use patterns from 2005/06 to 2010/11.
Objectives and ApproachThe analysis looks at whether children with ASD, CP and FASD have similar government service use patterns and how their service use patterns changed over time. Six Government of Alberta ministries’ data were linked (Health, Justice, Education, Advanced Education, Children’s Services and Community and Social Services). Individuals were defined as having ASD, CP or FASD if, at any point during the study period, they had a diagnostic code for one of three conditions (ASD, CP or FASD) from a health service (i.e., physician visits, or emergency room visits, or hospitalizations), or accessed disability support programs for ASD, CP or FASD.
ResultsThe results showed different service use patterns for the three conditions: (1) a higher proportion of children with ASD were students with special needs compared to children with FASD and CP; (2) a lower proportion of children with FASD received FSCD services compared to children with ASD and CP; (3) a higher proportion of children with FASD were involved in the Child Intervention system and were Income Support recipients compared to children with ASD and CP. Moreover, the study showed that there was a decrease in accessing services and programming from Persons with Development Disabilities (PDD) for young Albertans with ASD, CP and FASD from 2005/06 to 2010/11. In contrast, the use of another adult disability program that provides only financial assistance, Assured Income for Severely Handicapped, increased over time.
Conclusion/ImplicationsThe use of population-based linked administrative data allows a comprehensive and comparative study for government service use patterns. The findings have implications for cross-ministry policy and program development, resource allocation, and service coordination and delivery to young Albertans with ASD, CP and FASD.
Duration of maternal mental health-related outcomes after an infant’s death: A retrospective matched-cohort study using linkable administrative data
Authors: Wall-Wieler Elizabeth , Roos Leslie , Bolton James 
Published: September 2018

IntroductionMothers have increased mental illness such as anxiety and depression after the death of a child.
Objectives and ApproachThe mental health of all mothers who experience the death of an infant (< 1 years old) in Manitoba, Canada between April 1, 1999, and March 31, 2011 (n = 534) is examined in the four years leading up to, and the four years following, the death of their child to determine how long increased levels of mental-health realted outcomes remain elevated after the death of an infant. Mental
health-related outcomes of these mothers are compared with a matched (3:1) cohort of mothers who did not experience the death of a child (n = 1,602).
ResultsCompared with mothers who did not experience the death of a child, mothers experiencing this event had higher rates of anxiety diagnoses and psychotropic prescriptions starting 6 months before the death. Elevated rates of anxiety continued for the first year and elevated rates of psychotropic prescriptions continued for six months after the death of the child. Mothers who experienced the death of a child had higher rates of depression diagnoses in the year after the death. Relative rates (RR) of depression (RR = 4.94), anxiety (RR = 2.21), and psychotropic medication use (RR = 3.18) were highest in the six months after the child’s death.
Conclusion/ImplicationsElevated rates of depression, anxiety, and psychotropic medication use after the death of a child end within one year of the child’s death.
The Cycle of Child Protection Services Involvement: A Cohort Study of Adolescent Mothers
Authors: Wall-Wieler Elizabeth , Brownell Marni , Singal Deepa , Nickel Nathan , Roos Leslie 
Published: September 2018

IntroductionAdolescent girls in care of child protection services are more likely to become pregnant than adolescent girls not in care, and mothers who were in care are more likely to have their children placed in care.
Objectives and ApproachLinkable administrative data were used to determine whether adolescent mothers in care are at greater risk of having their child placed in care before age two. A population-based cohort of adolescent mothers whose first child was born in Manitoba, Canada between April 1, 1998, and March 31, 2013 (n = 5,942) was used. Adjusted odds ratios (AOR) of having that first child taken into care before their second birthday were compared between mothers who were in care (n = 576) and mothers who were not in care (n = 5, 366) at the birth of their child using logistic regression models.
ResultsAdolescent mothers who were in care had greater odds of having their child taken into care before the child’s second birthday (AOR = 7.53; 95% CI = 6.19-9.14). Specifically, their children had higher odds of being taken into care in their first week of life (AOR = 11.64; 95% CI = 8.83-15.34), between one week and their first birthday (AOR = 3.63; 95% CI = 2.79-4.71)., and between their first and second birthday (AOR = 2.21; 95% CI = 1.53-3.19).
Conclusion/ImplicationsFindings support an intergenerational cycle of involvement with child protection services. More and better services are required for adolescent mothers who give birth while in care of child protection services.
International Journal Population Data Science: development and future directions
Authors: Jones Kerina , McGrail Kim , Schnell Rainer , Coeli Claudia , Lee Stephanie 
Published: September 2018

Background and rationaleThe International Journal of Population Data Science (IJPDS) was launched in April 2017. It is an electronic, open-access, peer reviewed journal, publishing articles on all aspects of research, development and evaluation connected with about people and populations. It represents an internationally unique vehicle for publishing a broader range of articles than most journals in related fields by including in scope: working papers, methodological developments, informative reports, and other pieces of interest, in addition to more traditional manuscripts. As such, it provides a focal point (and a home) for all areas of Population Data Science. The creation of the IJPDS was inspired by the IPDLN, and places great importance on the viewpoints and activities of Network members to guide the development of the journal.
ObjectiveInformation dissemination – stakeholder consultation – informing future directionsThe main objective of this collaborative session is to present the audience with an up-to-date summary of journal strategy and progress to date, and to use this forum to gain further viewpoints to better target future directions of the journal to meet the needs of those working in Population Data Science.
PlanThe session will comprise 5 sections:

A short presentation overviewing the journal, its historical origins, its remit and relationship to the IPDLN and Network members. Primary objectives of the journal and performance metrics from the first 18 months of operation will be presented.
Gauging audience opinion on:

What they like/dislike about the journal
What is working well/not so well

Feedback and discussion on the survey results
Discussions with audience in groups, each focusing on some/all of the following questions, and a question of their own choice if something arises:

How can we make IJPDS articles more accessible to the general reader/non-specialist researcher?Example options: short video/audio; general reader summaries; infographics; other
How can we increase the reach of, and interest in, the journal?
Open answers
What would you suggest as a special issue?These topics for group discussion will be posed to the session audience with the aim of using the feedback in defining our priorities for the coming year.

Feedback and summing up

The groups will be asked to give their feedback.
Feedback from the discussions and voting will be used to inform the next steps for IJPDS.
Facilitators
Kerina Jones, Founding Editor-in-Chief, Swansea University, Wales
Kim McGrail, Deputy Editor, University of British Columbia, Canada
Claudia Medina Coeli, Editorial Board member, Rio de Janeiro Federal University, Brazil
Rainer Schnell, Editorial Board member, University of Duisburg-Essen, Germany
Stephanie Lee, Journal Director of Operations, Swansea University, Wales
Is Participation in Out-of-School Programs Linked to Students’ Health, Educational and Social Outcomes?
Authors: Enns Jennifer , Brownell Marni , Katz Alan , Nickel Nathan , Nie Yao 
Published: September 2018

IntroductionOut-of-school programs for grade K-12 students support healthy behaviours, boost academic achievement, and strengthen social networks. The Boys and Girls Clubs of Winnipeg (BGCW) have been active for 40+ years; however, little is known about how participating in their programs influences students’ short- and long-term health, educational and social outcomes.
Objectives and ApproachWe are investigating the association between participation in BGCW out-of-school programs using the individual-level data held in the population-based Manitoba Population Research Data Repository at the Manitoba Centre for Health Policy (MCHP). Data on BGCW program participation for children born 1987-2010 was linked with administrative records from the healthcare system, education system, and social services. The comparison group of non-participants was matched on age, sex, 3-digit postal code and school division. Outcomes of interest include health services use, teen pregnancy, grade repetition, high school graduation, enrollment in post-secondary institutions, receipt of income assistance, and involvement with the justice system.
ResultsWe conducted analyses of children (K-8) attending the Community Schools Investigator (CSI) summer enrichment program, an academic and recreational program that aims to combat learning loss for children in low-income neighbourhoods. After one summer of CSI, participants (n=970) were significantly more likely to repeat a grade than the matched comparison group (n=783) (5.4% CSI students repeated a grade [95% CI 3.9, 6.8] vs 2.76% comparison students [95% CI 2.20, 3.32]). However, the likelihood of CSI students repeating a grade dropped to the level of the comparison group after two or more years of participation in CSI (2.91% CSI students repeated a grade [95% CI 1.26, 4.56]). Ongoing analyses are examining how participating in CSI and other BGCW programs is linked to health and social outcomes.
Conclusion/ImplicationsOur findings suggest that engagement in a BGCW out-of-school summer program contributes to better educational outcomes for low-income students. Using the information-rich Data Repository at MCHP, we can examine additional outcomes across multiple sectors to demonstrate how out-of-school programs help young people achieve their full developmental potential.
Repeat pregnancy during adolescence and educational level in Brazil.
Authors: Domenico Juliana , Guimarães Patricia , Guillen Luis Carlos , Camargo Kenneth , Sobrino Rejane , Coeli Claudia 
Published: September 2018

IntroductionRepeat pregnancy among adolescents is associated with preexisting disadvantages related to the adolescent’s social and cultural background. In Brazil, there is a lack of studies that evaluate repeat pregnancy during the entire adolescence period. Record linkage is a useful tool for following adolescents after the birth of their first child.
Objectives and ApproachTo estimate pregnancy repetition during adolescence and to evaluate the effect of inadequate schooling during the first pregnancy on repetition in a cohort of adolescents in Rio de Janeiro City who had their first live-born child between the ages of 15 and 18. We carried out a non-concurrent cohort study using probabilistic record linkage techniques. The association between mother’s schooling and at least one repeat pregnancy during adolescence was evaluated through risk ratios adjusted for mother’s age, estimated using generalized linear models with binomial distribution and Neperian logarithm function. We also evaluated the interdelivery interval.
Results9,285 adolescents were included in the study. Of these, 29.4% had inadequate schooling at the time their first child was born and 9.9% had at least on repeat pregnancy during adolescence. The risk of repeat pregnancy was significantly higher in the group with inadequate schooling (adjusted RR=1.19; 95% CI= 1.05-1.34), when compared with the group with adequate schooling. Half of the teenage mothers had an interval between the first and the second pregnancy of less than 24 months, with data showing no statistically significant difference between the two groups with respect to adequacy of mother’s schooling. Adolescents with more than one repeat pregnancy had the worst prenatal and labor care indicators, as well as the highest incidence of premature births.
Conclusion/ImplicationsInadequate schooling at the time of the first child’s birth increases the risk of repeat pregnancies during adolescence. Additionally, inadequate schooling and a history of repeat pregnancies during adolescence are markers of populations that accumulate disadvantages in access to care and in pregnancy outcomes.
Early Childhood Respiratory Morbidity and Health Services Utilization in Children Born Preterm or Small and Large for Gestational Age
Authors: Serrano-Lomelin Jesus , Chari Radha , Hicks Anne , Johnson David , Crawford Susan , Bakal Jeff , Osornio-Vargas Alvaro , Ospina Maria 
Published: September 2018

IntroductionAlterations in duration of gestation and fetal growth such as preterm birth (PTB) or small and large for gestational age (SGA, LGA) have long-term consequences on respiratory health. The risk of health services use for respiratory conditions in infants born PTB, SGA or LGA in Canada needs to be evaluated.
Objectives and ApproachWe evaluated the association between PTB, SGA and LGA and health services utilization for respiratory diseases in early childhood. We linked three administrative health databases to identify all singleton live births in Alberta between 2005-2010. We obtained data on the number of hospital admissions and emergency department (ED) visits in the first five years of life for acute upper respiratory infections, acute lower respiratory infections, wheezing disorders, bronchopulmonary dysplasia, and influenza and pneumonia. Odds ratios (OR) of health services use for PTB, SGA, LGA were calculated adjusting for important covariates (e.g., maternal age, sex, socioeconomic status, total antepartum risk score).
ResultsThe cohort contained 206,994 infants of whom 9.1% were PTB, 8.5% were SGA and 9.4% were LGA. Babies born prematurely (PTB) were more likely to have a respiratory disease in the first five years of life than babies experienced fetal growth alterations (SGA or LGA). PTB increased significantly the odds of acute lower respiratory infections by 30 to 90%, of wheezing disorders by 40 to 70%, of influenza and pneumonia by 30 to 60%, and of acute upper respiratory infections by 10 to 50%. By contrast, SGA increased the odds of bronchopulmonary dysplasia by 3 to 300%, and LGA increased the odds of acute upper respiratory infections by 11 to 18% and of acute lower respiratory infections by 8 to 11%.
Conclusion/ImplicationsPrematurity and alterations in fetal growth are associated with increased hospital and ED admissions in early childhood. The patterns differ for PTB, SGA, and LGA. Linkage of administrative health data provides useful epidemiological evidence to inform the burden of early childhood respiratory diseases resulting from adverse birth outcomes.
Use of cross-sectoral data linkage to predict high-rate offenders in Western Australia
Authors: Ferrante Anna , Randall Sean , Boyd James , Tubex Hilde , Morgan Frank 
Published: September 2018

IntroductionStudies have repeatedly found that a small number of offenders account for a disproportionate amount of crime. High-rate, persistent offenders (so-called ‘prolific’ offenders) have a major impact on local crime rates and public perceptions of safety, and place a substantial financial and social burden on communities.
Objectives and ApproachUsing population-level administrative data, our study identifies ‘prolific’ offenders in WA and describes their demographic and crime profiles. The official criminal records of all offenders born in WA between 1980 and 1995 were linked to administrative records from health, education and child protection databases (followed to 2005). Linked data on families (parents and siblings) were also included. Using this information, the study identified factors that distinguish between prolific and non-prolific offenders. The study also examined whether correlates of prolific offending were similar between a) male and female offenders, and b) Indigenous and non-Indigenous offenders.
ResultsClusters of offenders exhibiting a high-rate and persistent pattern of offending over the life-course were identified. These ‘prolific’ offenders accounted for a disproportionate amount of crime and criminal justice contacts:

8\% of female offenders accounted for 41% of female contacts;
3\% of male offenders made up 21% of male contacts;
9\% of Indigenous offenders made up 37% of Indigenous contacts;
7\% of non-Indigenous offenders made up 36% of non-Indigenous contacts.

Being the subject of a maltreatment allegation, being placed in out-of-home care, and having a serious mental health condition before the age of 18 increased the odds of being a prolific offender. Two criminogenic factors - early onset of offending (contact before age 12) and early violence - emerged as the most significant predictors.
Conclusion/ImplicationsChild protection and mental health services have much of the information needed to target early prevention, while criminal justice agencies are well-placed to apply crime reduction strategies through the targeting of early-onset/early-violent offenders. A combined approach is likely to have the greatest effect on reducing impact of prolific offending.