bluuebunny/crossref_metadata_2025_split huggingface dataset:
Ensuring the right to health care for detained adolescents: cross-sectoral strategies and policy innovations
Authors: Alves da Costa Filipa 
Published: October 2024

Abstract
This presentation will draw attention to the health concerns of adolescents deprived of liberty, stressing that incarceration of minors should be a last resort. Notwithstanding, when governments allow for incarceration of minors, they must guarantee this does not translate into deprivation of basic human rights and that international treaties are respected, including access to high quality healthcare. This talk outlines the development of a policy brief based on data from the UN global study, which identifies essential health interventions for minors in various forms of detention-migration, youth detention, and adult detention where children reside with their parents. Using case studies from Greece, India, and the United States, shortcomings in existing health systems in detention contexts are stressed. A more recent policy brief focusing exclusively on children detained in the context of migration will be used to provide good practice case studies, where appropriate actions such as changes in legislation were put in place, namely in Canada, South Africa, Ukraine and Ireland. A key focus of the presentation will be the importance of cross-ministerial collaboration, as healthcare in the criminal justice system frequently falls under the jurisdiction of ministries other than health, complicating health policy implementation. The speaker will discuss integrated approaches that involve various sectors to ensure the health rights of detained youth are addressed. The presentation aims to illuminate the systemic changes needed to protect the health of detained adolescents, urging policymakers, healthcare providers, and advocates to adopt holistic and inter-sectoral strategies. The talk will also refer to policy actions and recommendations for Member States to support them in addressing challenges so they may achieve the principles of equivalent care and continuity of care that reflects the recommendations of the United Nations Global Study on Children Deprived of Liberty.
9.P. Scientific session: National perspective on knowledge translation to bridge the gap between research and policy
Authors:   Organised by: Sciensano (Belgium),   Chair persons: Robby De Pauw (Belgium), Brecht Devleesschauwer (Belgium)
Published: October 2024

Abstract

National and international public health institutions play a crucial role in guiding public health policies. However, a key challenge in this process is to bridge the gap between the data collected and the insights required to guide decision-makers, commonly referred to as knowledge translation (KT). Various models have been proposed to facilitate the KT process in public health, and one of the widely recognized models is the Data-Information-Knowledge-Wisdom (DIKW) model, also known as the knowledge pyramid or information hierarchy. In this workshop, we provide insight into the Belgian perspective on the implementation of the DIKW pyramid, using the Belgian health status website as an example https://www.healthybelgium.be. The workshop will tackle the four distinct layers of KT, including data, information, knowledge, and wisdom. The first one involves the data collection process, and the importance of considering potential biases that may arise during this process. Information revolves around the data analysis and the translation of data into meaningful information. Knowledge builds on data-driven information by contextualizing public health analysis results. Finally, wisdom reflects the end-result of the DIKW model, highlighting the need to utilize knowledge for action and achieving results based on the analysis performed. The DIKW model provides a valuable platform by delineating the different layers required to move from raw data to knowledge and wisdom. This process is crucial in achieving an impact on public health, where the data analyzed by public health researchers informs the end-users, including policymakers and the public. Nonetheless, the DIKW model and its applicability to knowledge translation are the subjects of many debates. Within this workshop, the national perspective of the national public health institute in Belgium, Sciensano, on each level of the DIKW pyramid will offer participants concrete examples that might spark an initial step towards their nationwide implementation of the DIKW pyramid for KT. The workshop will offer a step-by-step presentation on the different KT layers, whereby the attendees will gain unique insights into the system implemented in Belgium. This presentation will foster a discussion for generating ideas and stimulating other countries to implement the DIKW pyramid.

Key messages
• The DIKW pyramid offers a valuable framework to guide knowledge translation in public health, which is a key task for public health institutes.
• Attendees will receive an overview and a practical example of how the DIKW-model could be applied in a national context, including a discussion of the strengths and weaknesses of the pyramid.
The knowledge layer: the role of key messages for translating data into meaning
Authors: Scohy A , Gorasso V , Van den Borre L , Schmidt M , Devleesschauwer B , De Pauw R 
Published: October 2024

Abstract
The large volume of data generated by health information systems often remains siloed within the institutions that produce it, posing significant challenges to its reuse and interpretation. This fragmentation can result in conflicting information on critical health topics, complicating the decision-making process for policymakers. To address this issue, Belgium has initiated the ‘Health Status Report’ website, hosted at healthybelgium.be. This website aims to synthesize and present health data in a manner that supports evidence-based policy formulation. The website adopts a structured approach to data integration and interpretation: initially, we identify and prioritize key health topics based on their relevance and the quality of available data. Subsequently, we merge and analyze data from diverse sources to discern patterns and trends that are crucial for public health monitoring. The insights gained are then presented through both narrative texts and interactive visualizations, facilitating access and understanding for a broad audience. Crucial to this process is ongoing communication with experts and stakeholders, ensuring that the data is not only accurately interpreted but also aligns with the needs and expectations of its users. We also aim to translate the raw data into meaningful key messages by consulting with internal and external experts. This interactive platform thus serves as a critical tool for translating complex health data into actionable knowledge, enabling informed public health strategies and interventions.
10.A. Round table: Transforming public health systems at large scale: no pain, no gain
Authors:   Organised by: WHO/Europe,   Chair persons: Natasha Azzopardi Muscat (WHO/Europe), Emilia Aragon De Leon (WHO/Europe)
Published: October 2024

Abstract

The COVID-19 pandemic, acceleration of climate change, and geopolitical turmoil have triggered discussions about how public health systems in Europe need to transform to be adequately equipped for the so-called “permacrisis”. The challenges to policy makers, health institutions and health services have become so multifaceted, that single solutions from the health sector alone no longer work. Yet, despite the complexity, countries seek to get its own house in order whilst building on inter-sectoral and European approaches in parallel. Germany, Ireland, and Ukraine have all embarked upon ambitious public health services and institutional reforms, leading to transformative change in public health systems. WHO has been accompanying these reforms. The workshop will provide a platform to draw insights and lessons on transforming public health systems from all three countries, although their population size, their socioeconomic and political situation and their public health system design is so different. As the smallest of the three countries in population, Ireland created coherence and is aligning public health actors within “Healthy Ireland” and the Sláintecaire and the Crowe Horwath public health reforms. Germany’s “Pact for the Public Health Services” has been one of the greatest public health investment programs in Europe that was initiated following lessons from the COVID-19 pandemic. And Ukraine has undertaken important legal steps to adopt a Public Health System Law, in the middle of a war of aggression on its territory. The workshop will exhibit the process of large-scale public health system transformation in each of the three countries. The purpose is to identify the enablers that make large scale system transformation possible and addressing some of the pains and gains. The workshop will have three parts. Part one consists of three presentations on large scale system reforms from each of the participating countries. Part two consists of a moderated Q&A session. Part three will focus on the synthesis of enablers for large scale public health system reforms through interaction with the workshop participants, using a digital white board.

Key messages
• Disruptive times can create enabling conditions for large scale public health system transformation.
• Designing and implementing large scale public health system reforms is complex, requiring passion, resilience, and collaborative leadership.
Targeted initiatives to tackle health inequalities, integrating the Leeds Health and Care Workforce
Authors: Gates C 
Published: October 2024

Abstract

Deprivation and poor health are significant challenges in Leeds, with the poverty gap growing in parts of the city. The Leeds One Workforce approach to narrowing inequalities (NI) was co-designed in 2021 building on the innovative partnership approach already visible in the city. Its phased approach has seen interventions put in place to boost the opportunities for people from marginalised communities to develop their skills and remove barriers to careers in health and care and has global relevance for other localities experiencing high deprivation. The overall NI approach is supported by a long-term and wide-reaching evaluation plan which mobilises our partner organisations and intends to amplify best practice in getting people into careers and supporting this group to develop within the health and care workforce. We will present findings from embedded evaluations of initiatives across the city, and individual case studies, from those who have accessed NI interventions in Leeds. These will explore the relationships and contributions of partnership organisations and presence of any unexpected barriers or facilitators to these interventions. Linking with third-sector organisations and creating accessible pre-employment opportunities to develop core working skills is a vital part of the Leeds approach to recruiting people from priority wards. Additionally, supporting people into careers in health and care which suit their values, interests and personal circumstances, in addition to employing organisations with flexibility and openness towards their employees at their core is a strong factor in recruiting and retaining from areas of deprivation. Partnership working is essential to tackling health inequalities in places of high deprivation to address individual and systemic barriers to securing employment, ensure the best chance of success for community outreach programmes, and maximise efficiencies by combining the efforts of local organisations.

Key messages
• Leeds, UK is transforming approaches to narrowing health inequalities through partnership working across health and social care education and employment.
• Current and future best practice will be explored to demonstrate transferable NI approaches.
A school-based intervention to foster adherence to the Mediterranean diet in adolescents: the PROMEDLIFE project
Authors: Franchini C , Degli Innocenti P , Biasini B , Fontana L , Endrizzi I , Gasperi F , Bontempo L , Rosi A , Scazzina F 
Published: October 2024

Abstract
The need to maintain the production of local foods characterized by a high nutritional index, update traditional food production methodologies by developing attractive tech-based approaches, promote healthy eating habits that meet consumers’ preferences and acceptability, as well as reducing the complexity of supply chains (Farm to Fork) must be addressed to ensure food and nutrition security. This is especially true in Mediterranean countries undergoing dietary and nutritional changes that affect their inhabitants’ health while creating many socio-economic and environmental challenges. PROMEDLIFE aims to increase adherence to the Mediterranean diet through a multi-actor approach by encouraging the adoption of a healthy eating lifestyle while decreasing the environmental and economic impact of food production and processing. It also aims to attain optimal food communication and education through training programs that target primary and secondary students as well as their families, from children to older adults. A 4-week nutritional and sensory educational intervention in high school students involves frontal lessons, a web-app for families enrolled, and games on nutrients, food groups, balanced meals and various eating occasions, healthy and sustainable diets. In addition, adherence to the Mediterranean diet, nutritional knowledge, sociodemographic and lifestyle data, picky eating, and food neophobia are investigated. Including nutritional lectures in the school curriculum of high schools promotes knowledge acquisition about healthy diet. However, a period longer than 4 weeks may be necessary to translate this knowledge into improved eating habits. The project is still ongoing, and follow-up data collection will be performed. Final analysis, including data on picky eating and food neophobia, as well as overall eating behavior at follow-up, will allow an evaluation of possible long-term changes.
10.K. Skills building seminar: Practical and methodological guidance for conducting online qualitative surveys in public health
Authors:   Organised by: Institute for Health Transformation Deakin University (Australia), Health Promotion International,   Chair persons: Samantha Thomas (Australia)
Published: October 2024

Abstract

Online qualitative surveys are surveys which prioritise qualitative (open text) questions in data collection. Researchers have stated that these types surveys have rich potential for qualitative researchers. They are able to collect rapid insights into new or emerging areas of health, and are an effective way of reaching populations who may not otherwise engage in qualitative interview studies or focus groups. Although these types of surveys are increasingly used by public health and health promotion researchers, there is very limited discussion in the research literature to guide researchers about the practical and methodological aspects of such surveys. This creates some challenges for qualitative researchers - as well as funders, and peer reviewers - in assessing the rigour and robustness of these studies. Using data from a range of online qualitative surveys that we have conducted with youth and adults relating to gambling, alcohol, climate change, and the commercial determinants of health, we describe the processes associated with developing, implementing, interpreting, and writing up online qualitative survey data. In this practical and interactive multimedia workshop and developing on the work of Braun, Clarke and colleagues, with a focus on Big Q interpretivist qualitative approaches. We will provide:
1. Practical examples, and lessons learned from our own studies about survey design, question development, the importance of rigorous piloting strategies, the use of novel techniques to prompt detailed responses from participants, and the decisions that are made about data cleaning.
2. Examples of the types of responses that can be expected in different types of surveys, and how decisions are made about the quality of responses to questions.
3. Guidance about how to analyse the volume of qualitative data that is generated from such surveys, including developing robust mechanisms to ensure trustworthiness of decision making and data interpretation.
4. Tips based on our role as journal editors about how to present qualitative survey data, and how to respond to challenging reviewer comments.
Participants will be provided with a booklet containing survey templates, question examples, tips and examples of how to respond to reviewer comments.

Key messages
• Online qualitative surveys have rich potential for collecting insights about emerging public health issues.
• This workshop will provide practical and methodological guidance for researchers who are interested in using these surveys.

Speakers/Panelists
Hannah Pitt
Deakin University, Burwood, Australia
Simone McCarthy
Deakin University, Armadale, Australia
Samantha Thomas
Deakin University, Geelong, Australia
JA ImpleMENTAL Implementing the Belgian Best Practice on Community Mental Health system Reform
Authors: Konte V , Peppou L E , Stamou M , Belorgey N , Lora A , Štimac Grbić D , Lindert J , Bolinski F , Bulyovszky B ,   JA ImpleMENTAL
Published: October 2024

Abstract
Mental health challenges affect more than one in six people across the EU. In order to support Member States to proceed with mental health care system transformation and suicide prevention JA ImpleMENTAL, was initiated on the request of Member States, on October 2021 under the European Union 3rd Health Program. The JA consists of 39 organizations from 21 countries, more than 180 persons are working. Two advisory bodies support the consortium and provide their insights and expertise, a stakeholder forum with 10 key European Organizations in Mental Health including EUPHA Mental Health Section and WHO Europe and OECD, and the Member State Policy Committee which ensures the involvement of ministries and enables the practices to be embedded in health systems. Within the 11 countries implementing pilots under the Belgium model using a common Implementation Strategy, a total 163 activities are implemented under the 5 following key areas: 62 on structural measures needed for the establishment of local networks promoting a user’s centered, human’s right based recovery approach, 43 for the development and/or transformation of mental health services, 22 on training & capacity building in support of the reform and cultural change, 22 on continuous communication, information and awareness raising, and 13 on data collection, monitoring and evaluation. An analysis of MS pilot action plans shows that most service transformation efforts have concentrated on: defining care pathways for people at risk and for those with mild to severe mental health conditions including smooth transition from child and adolescent to Adult Mental Health services, as well as from inpatient to community services, the nomination of case managers for assisting individuals to their recovery process the development of individual service plans, the Involvement of users in various layers of service delivery including peer support and the provision of assertive treatment through mobile units.
Integrity and accountability in academic publishing: trends and implications of paper retractions and journal delistings
Authors: Valz Gris A , Cristiano A , Pezzullo A M 
Published: October 2024

Abstract
In the context of academic publishing, ‘retraction’ refers to the withdrawal of a published article from the scientific record due to issues such as significant errors, plagiarism, fraudulent data, or unethical research practices. Retractions play a critical role in maintaining the integrity of scientific literature. Retraction Watch, a blog that tracks retractions of scientific papers, lists more than 48,000 retractions in its database, with increasing trend over time (from 450 reported retractions in 2008 to a staggering 7327 retractions in 2023). The extent to which this indicates a heightened vigilance in identifying problematic research or an increased tendency in committing research misconduct or errors is unclear. Retractions can have lasting consequences beyond the retracted paper itself for authors, editors, publishers and the scientific community at large. However, not all retractions are the same, and self-reporting errors might come with minimal effects, suggesting a recognition of accountability and corrective actions. Delisting of a journal from a scientific database such as Scopus and Web of Science refers to the removal of the journal from the database’s index. This can happen for various reasons, including quality concerns and ethical issues. Although this phenomenon is not necessarily correlated with the quality, integrity, or reliability of individual papers published in the delisted journal, it might still have significant impacts on the work and careers of researchers. For instance, articles in delisted journals might suffer from decreased visibility or authors might not be able to use it for promotions. The curated list of sources from Scopus is publicly available and lists around 800 discountinued sources due to quality concerns, while Web of Science made the news in 2023 for the delisting of several journals for editorial reasons, including the MDPI’s giant, International Journal of Environmental Research and Public Health.
Effect on comprehension of an AI patient-friendly hospital discharge letter: a quasi-RCT
Authors: Conrado F , Rosset L , Lo Moro G , Scaioli G , Consoli D , Bert F , Siliquini R 
Published: October 2024

Abstract

Background
During transition from hospital to home care, discharge letters serve as a bridge of information between hospital physicians, general practitioners, and patients. However, the complexity of these letters often hinders patient comprehension, leading to medication errors and adverse outcomes. We assessed the effect on patients’ comprehension and satisfaction of using AI to transform discharge letters into patient-friendly versions.

Methods
An online quasi-randomized controlled parallel-group trial was conducted in Italy. A synthetic discharge letter for a chronic obstructive pulmonary disease patient was drafted. GPT-4 rephrased the letter into an easier-to-understand version. Participants were assigned to receive either the original or AI-generated letter and completed comprehension assessments and satisfaction survey.

Results
Out of 460, 166 participants received the original letter, and 175 the AI version. The AI group showed significantly higher comprehension scores (median 4;IQR 2-4 vs. 2; IQR1-2, p &lt; 0.001) and outperformed the control group in understanding diagnosis, medications, and antibiotic instructions. Perceived satisfaction was higher in the AI group across all measures (p &lt; 0.001). Health literacy was a good predictor of comprehension in both arms (p = 0.013; p = 0.015). Subgroup analysis revealed the AI letter nearly bridged the comprehension gap between non-healthcare individuals and healthcare professionals receiving the original letter.

Conclusions
AI-optimized discharge letters improved patient understanding, and satisfaction compared to traditional letters. The study underscores the influence of sociodemographic factors like healthcare experience and health literacy on comprehension, advocating for adaptive communication strategies. These findings contribute to discussions about integrating AI in healthcare to develop patient-centered communication approaches.

Key messages
• AI-generated patient-friendly discharge letters significantly improved comprehension and satisfaction compared to traditional letters.
• Integrating AI in healthcare communication can help bridge comprehension gaps and promote patient-centered care.