bluuebunny/crossref_metadata_2025_split huggingface dataset:
Cervical lymphatic malformations: Prenatal characteristics and ex utero intrapartum treatment
Authors: Shamshirsaz Alireza A. , Stewart Kelsey A. , Erfani Hadi , Nassr Ahmed A. , Sundgren Nathan C. , Mehollin‐Ray Amy R. , Morris Shaine A. , Espinoza Jimmy , Sanz Cortes Magdalena , Cassady Christopher , Lee Timothy C. , Castro Eumenia C. , Olutoye Olutoyin A. , Mehta Deepak K. , Cass Darrell , Olutoye Oluyinka O. , Belfort Michael A. 
Published: February 2019

AbstractBackgroundThe ex utero intrapartum treatment (EXIT) is utilized to transition fetuses with prenatally diagnosed airway obstruction to postnatal life. We describe the unique clinical course, diagnosis, treatment, and outcomes of patients with cervical lymphatic malformation (CLM) managed with EXIT.MethodsReview of fetuses with diagnosed CLM was delivered by EXIT (2001‐2018) in a tertiary referral fetal center. Outcomes included survival, tracheostomy at discharge, neonatal course after delivery, and pulmonary hypoplasia. Data are reported as median [range] and rate (%).ResultsOut of 45 patients delivered by EXIT, 10 were delivered for CLM: seven had polyhydramnios, one had nonimmune hydrops, five delivered preterm, and three were emergency EXITs. The EXIT time and estimated blood loss were 125 minutes (95, 158) and 900 mL (500, 1500), respectively. Airway was secured in all. There was one neonatal death (day 8) with prematurity, sepsis, and pulmonary hypoplasia. Three out of nine were discharged with a tracheostomy.ConclusionIn CLM, close monitoring for structural neck involvement and development of polyhydramnios are important and may be an indication for EXIT as the optimal delivery mode. An experienced multidisciplinary team is a key factor for an effective approach to the obstructed airway in CLM.
Preparation of pH and temperature dual‐sensitive molecularly imprinted polymers based on chitosan and N‐isopropylacrylamide for recognition of bovine serum albumin
Authors: Dong Xiangzhi , Ma Yong , Hou Chunping , Zhang Baoliang , Zhang Hepeng , Zhang Qiuyu 
Published: February 2019

AbstractpH and temperature dual‐sensitive protein imprinted microspheres with high absorption capacity have been successfully synthesized on the surface of SiO2 using chitosan grafted N‐isopropylacrylamide (CS‐g‐NIPAM) as the pH and temperature sensitive monomer, with acrylamide as comonomer, N,N′‐methylenebisacrylamide as the crosslinking agent and bovine serum albumin (BSA) as the template protein. The pH and temperature dual‐sensitivity was also investigated. The results showed that the adsorption capacity and imprinting factor improved slowly with increasing incubation pH from 4.6 to 7.0, and then decreased sharply in alkaline conditions due to the reduction of non‐specific binding from electrostatic and hydrogen bonding interactions. Fourier transform infrared spectroscopy, thermogravimetric analysis and transmission electron microscopy were used to characterize the polymers. The as‐prepared SiO2@BSA molecularly imprinted polymers were also found to have high adsorption capacity (119.88 mg g−1) within 2 h, an excellent imprinting factor (α = 2.25), specific selectivity and good reusability. © 2019 Society of Chemical Industry
Synthesis of photocaged diamines and their application in photoinduced self‐assembly
Authors: Barra Tomas , Arrue Lily , Urzúa Esteban , Ratjen Lars 
Published: February 2019

AbstractThe photochemical cleavage of covalent bonds is an important strategy in protection group chemistry, as well as for the triggering of chemical events posterior to the application of the physicochemical stimulus. Photocages allow the arresting and traceless liberation of a chemical entity, which can be broadly applied as a functional control element in materials chemistry and the life sciences in general. Among the best studied and most versatile light‐sensitive protecting groups known to date rank the o‐nitrobenzyl derivatives, entities which are easily introduced to amines, thiols, and alcohols. Their photolability relies on a phototautomerisation‐induced cleavage mechanism, a phenomenon largely dependent on the substitution pattern of the aromatic ring in the o‐nitrophenyl‐moiety. Although well described and studied in detail for the protection of amino groups of different nature, the photocaging of aliphatic diamines has not been described in detail to date. Because of their interesting properties as synthons in supramolecular and polymer chemistry alike, we wish to describe the efficient photocaging of diamines with o‐nitrobenzyl derivatives, their photocleavage behavior over time, as well as their application in a photoinduced templated self‐assembly reaction towards cyclic imines.
Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data
Authors: Reifegerste Doreen , Czerwinski Fabian , Rosset Magdalena , Baumann Eva , Kludt Evelyn , Weg‐Remers Susanne 
Published: February 2019

AbstractObjectiveSurrogate information seeking is quite common, and several studies have presented data on caregivers, family members, and friends who seek health information on the Internet or from a cancer‐information service (CIS) on behalf of cancer patients. However, these studies provide little information about the patients who are supported by surrogate seekers. Therefore, this study analyzed demographic and cancer‐related differences, including diverse informational needs, between self‐seeking patients and patients who benefited from surrogate seekers (ie, caregivers, family, or friends) requesting information on their behalf.MethodsWe conducted a retrospective audit of phone and e‐mail inquiries to a German CIS between January and December 2016 from self‐seeking patients (n = 13 723) and surrogate information seekers, as well as the corresponding supported patients (n = 6696).ResultsSupported patients were more likely to be males (P < 0.001), older than self‐seeking patients (P < 0.001), and older than the corresponding surrogate seekers (P < 0.001). They were also more likely to be in the diagnostic or palliative stage (P < 0.001) and were less likely to suffer from breast cancer or prostate cancer (P < 0.001) than self‐seeking patients. There were significant differences in the CIS requests of self‐seekers and surrogate seekers.ConclusionsThe results point to different support needs of self‐seekers and surrogate seekers. Thus, surrogate seekers and their corresponding supported patients should be seen as a separate target group to self‐seeking patients, with the former requiring informational and emotional support on diverging topics and at different disease stages.
Macrophage activation syndrome due to Nocardia spp in a pediatric patient with cystic fibrosis
Authors: Şişmanlar Eyüboğlu Tuğba , Aslan Ayşe T. , Ramaslı Gursoy Tugba , Onay Zeynep R. , Kocak Ulker , Aktas Tapısız Anıl 
Published: February 2019

AbstractNocardia spp is a gram‐positive aerobic filamentous bacteria that causes pulmonary and systemic infections, especially in patients with immunosuppression or chronic lung diseases. It is rarely reported in children with cystic fibrosis. Macrophage activation syndrome is a life‐threatening disease with an excessive inflammatory response usually triggered by infections. There are few reports in cystic fibrosis related to macrophage activation syndrome. Herein we report a child with cystic fibrosis who had macrophage activation syndrome due to Nocardia infection.
Leader of the pack: On plagiarism prevention through research group enculturation
Authors: Buchanan George , McKay Dana 
Published: February 2019

ABSTRACTMispractice by researchers—plagiarism in particular—is, according to the research evidence enculturated within research groups. We interview a small sample of senior academics with a clean record regarding plagiarism, to investigate what has influenced their practice, and how they in turn influence the research groups and research students that they oversee. Our aim is to understand what strategies enculturate good practice. We point to surprisingly complex interactions between technology and culture.
Modeling social support scores using phone use patterns
Authors: Ghosh Isha , Singh Vivek K. 
Published: February 2019

ABSTRACTSocial support is a fundamental concept of interactional behavior and has been consistently linked with higher levels of emotional and physical well‐being. Social support has been shown to be an effective coping mechanism in managing stress and depression and to provide positive experiences that directly enhance overall well‐being and quality of life. The measurement and quantification of social support has generated a great deal of interest in the behavioral science community over the past 10 years. The dominant approach for quantifying individual social support remains self‐reported surveys and generator‐methods, which are costly, attention‐consuming, and fraught with biases. Given the important role played by mobile phones in mediating human social lives, this study explores the use of phone metadata (call and SMS logs) to automatically infer an individual's social support. Based on Sherbourne and Stewart's Modified Social Support survey (MSSS) as ground truth and ten‐week phone data collection for 55 participants, we report that multiple call and SMS based social features are intrinsically associated with social support and perform better than DEMOGRAPHY‐BASED models.
UNIX time, UTC, and datetime: Jussivity, prolepsis, and incorrigibility in modern timekeeping
Authors: Hauser Elliott 
Published: February 2019

ABSTRACTThis paper examines the three entangled systems of the UNIX time data format, the UTC time standard, and the various administratively defined datetimes used to give specific moments in time names. Due to the increasing prevalence of Linux and Unix‐based systems, a large majority of computing devices, from phones to Web servers, utilize these interlocking systems to structure time. The assemblage as a whole is briefly described, from UNIX time integers to the empirical measurements of atomic vibrations and the earth's rotation within its celestial frame, to the open source Internet Assigned Numbers Authority (IANA) maintained time zone database, which declares a distinct name for each instant within the hundreds of administrative time zones world wide. Three theoretical concepts of jussivity, prolepsis and incorrigibility are operationalized to distinguish each system's contribution to the computational assemblage of modern timekeeping. Bowker's conception of the jussive Archive is used to frame the inquiry, foregrounding the things that these timekeeping practices help us exclude and forget. Calendrical prolepsis is examined as what Siegert calls a cultural technique, one that enables each of these systems to extend its reach into the past and condition our conception of any possible future. Each of these systems utilizes the unique and under‐appreciated abilities of digital systems to enact a kind of incorrigibility, which I argue is inextricably linked with what Hayles has called the cognitive nonconscious. By better understanding the jussive, proleptic, and incorrigible powers deployed in the massive cognitive assemblage that arrays vibrations of atoms alongside celestial mechanics to locate our present, past and future, we open up new possibilities for intervening in these technics. Understanding these dynamics may allow future temporal information systems to therapeutically influence our cognition and our consciousness of time. This paper is intended to provide theoretical support for such efforts.
Characterizing transgender health issues in Twitter
Authors: Karami Amir , Webb Frank , Kitzie Vanessa L. 
Published: February 2019

ABSTRACTAlthough there are millions of transgender people in the world, a lack of information exists about their health issues. This issue has consequences for the medical field, which only has a nascent understanding of how to identify and meet this population's health‐related needs. Social media sites like Twitter provide new opportunities for transgender people to overcome these barriers by sharing their personal health experiences. Our research employs a computational framework to collect tweets from self‐identified transgender users, detect those that are health‐related, and identify their information needs. This framework is significant because it provides a macro‐scale perspective on an issue that lacks investigation at national or demographic levels. Our findings identified 54 distinct health‐related topics that we grouped into 7 broader categories. Further, we found both linguistic and topical differences in the health‐related information shared by transgender men (TM) as compared to transgender women (TW). These findings can help inform medical and policy‐based strategies for health interventions within transgender communities. Also, our proposed approach can inform the development of computational strategies to identify the health‐related information needs of other marginalized populations.
Reconceptualizing superwork for improved access to popular cultural objects
Authors: Lee Jin Ha , Jett Jacob , Cho Hyerim , Windleharth Travis , Disher Thomas , Kiryakos Senan , Sugimoto Shigeo 
Published: February 2019

ABSTRACTIn the context of popular culture, a successful work or a work with broad cultural or scientific impact often prompts the publication of many derivative works across multiple formats and by multiple creators, works that share elements with the original work such as topics, characters or universes. We argue for reconceputalization of the “Superwork” entity to aggregate these relevant works into a single bibliographic entity about which facts in the form of metadata, exploitable by library users, can be recorded. In this paper, we aim to conduct a deeper investigation of the superwork concept and establish an initial definition for and some boundaries of the concept. In order to further develop the idea of superwork, we provide a prominent example and explain different characteristics of superwork identified via entity analysis. We conclude by discussing examples showcasing the multiple challenges for conceptualizing and representing superwork.
Are there different types of online research impact?
Authors: Lemke Steffen , Mehrazar Maryam , Mazarakis Athanasios , Peters Isabella 
Published: February 2019

ABSTRACTWhile web‐based indicators for scientific impact – so‐called altmetrics – have an increasing uptake as means for research evaluation, many questions regarding their actual meanings remain unanswered. In this article we analyse the data from a survey about researchers' use of 107 online actions that underlie potential altmetrics to discover whether certain types of altmetrics (1) better reflect the judgments of researchers from certain career stages and (2) more reliably capture positive judgments than others. We apply variance analyses to reveal significant differences between the frequencies with which early‐stage researchers and professors perform various actions whose occurrences are counted as impact metrics (e.g., downloading, liking, or sharing of scientific publications). The findings imply varying degrees of representation of these groups in respective altmetrics. Moreover, by investigating how commonly various types of actions are used to express positive judgments, we disclose how reliably metrics can be used as proxies for positive impact. Our findings contribute to a more comprehensive understanding of the meaning of different web‐based metrics for scholarly impact and provide a basis for evidence‐based guidelines on how to use and interpret them.
Chinese collective trolling
Authors: Sun Honglei , Fichman Pnina 
Published: February 2019

ABSTRACTThe vast majority of research on online trolling focused on Western cultures. Given the role context plays in shaping online interactions, it is important to take into account its socio‐cultural context and investigate the role of national culture, by conducting research into trolling in Eastern cultures. In this paper, we attempt to begin addressing this gap by focusing on Chinese collective trolling, looking at Sina Weibo's PG One case. Specifically, we aim to identify who are the major players, what are the metaphors they use, and what are the major trolling tactics employed in Chinese collective trolling event. Using a mixed‐method approach, we analyzed 2,004 posts and 9,967 comments on Sina Weibo's PG One case, of which 480 were sampled for thematic content analysis. Major contributions of this study include an account of collective trolling in Chinese cultural context that is characterized by role switching between trolls, bystanders, and victims during the various stages of the event. We conclude with suggestion for future research directions.
Cultivating data expertise: Learning strategies & conditions for research institutions
Authors: Thompson Cheryl A. 
Published: February 2019

ABSTRACTData management has been identified as an emerging area of practice for science and scholarship. Research institutions are faced with the need for well‐trained staff with the expertise and competence to manage and share high‐quality research data products. This paper reports the results of a study into how a large geoscience research center with mature data services and systems developed and cultivated data expertise. Employing a case study approach and qualitative methodology, the study investigates the learning process for preparing workers for new data management responsibilities. Key outcomes include a set of learning strategies and conditions that support data expertise development that may be applied in other contexts. This paper shifts the conversation from ‘what’ data skills to ‘how’ to cultivate these skills in an organization.
Decolonizing archival description: Can linked data help?
Authors: Douglas Jennifer , Bak Greg , McLellan Evelyn , van Hooland Seth , Frogner Raymond 
Published: February 2019

ABSTRACTArchival description documents the provenance of records, their interrelationships, and the processes of their creation. The concept of archival provenance was first elaborated in the context of 19th‐century European archival institutions and reflects particular socio‐historical perspectives on the nature of records and recordkeeping. Decolonizing archival description is a necessity, not only because it contributes to the discoverability of Indigenous knowledge woven into records of shared provenance, but also because it disrupts traditional concepts of singular provenance, calls attention to complex processes of records creation, and permits more expansive understanding of record contexts. Linked data appears to (1) promise the ability to represent complex multiple provenances, (2) promote multiple perspectives on the creation of records and (3) allow archives and Indigenous communities to work together to implement what the First Nations Information Governance Centre has characterized as Indigenous ownership, control, access and possession of records of shared provenance. From a variety of perspectives, this panel provides a critical analysis of linked data as a candidate solution for decolonizing archival description.
What do we do about “fake news” and other forms of false information: The roles of the organization of false information, professional ethics and information literacy?
Authors: Oltmann Shannon M. , Froehlich Thomas J. , Agosto Denise E. 
Published: February 2019

ABSTRACTFalse information, of which the most dominant types in the current disinformation marketplace are fake news or disinformation, seems to be ubiquitous these days, with little certainty about how to solve the problems they bring. In this panel, we discuss a taxonomy of types of false information, which will help us better understand the phenomenon and how to address it. We note that simply restricting access to or censoring false information will likely be ineffective and counter to professional information ethics. Instead, the way forward is to promote and practice meaningful information literacy.
Infrastructural justice and the social consequences of occupational classifications
Authors: Smiraglia Richard P. , Day Ronald E. , Jansen Eva Hourihan , Barre Kathryn La 
Published: February 2019

ABSTRACTThis panel builds on the momentum of previous SIG/CR workshops towards examining the framing and scaffolding of knowledge in order to understand its bearing on seeking, reception, circulation and use of knowledge in research and knowledge organization systems. It features reports of research undertaken in North America and Europe relating to social and economic classifications of the International Labour Organization of the United Nations. It considers how the narrative arc of the field of information science exists in relation to social divisions of labour represented in occupational classification. Panelists will present new research and engage participants in discussion about trajectories for future research in knowledge organization.
The values and design of emerging medical biotechnologies: A grounded theory analysis of TED talks
Authors: Bloch Beth Strickland 
Published: February 2019

ABSTRACTThe nonprofit TED organization currently hosts over 2800 videos on their website about topics related to Technology, Entertainment, and Design. The average video receives over one million views and serves as an influential tool for how the public thinks about the role of technology in their daily lives. In this work in progress, a values and design approach is used to consider what values are indicated by TED speakers when they present emerging medical biotechnologies to the general viewing public. Over 50 TED talks are identified as discussing these technologies at various stages of design: theoretically, in development, and currently tested. The transcripts of these videos are coded using a grounded theory approach to identify how values are used to present these emerging technologies. Preliminary results suggest that theoretical biotechnologies are discussed in more extreme utopian and dystopian views, but that the intensity of these views lessen when the technologies presented are further along in the development process. Biotechnologies currently tested on humans are more likely to be described using standard social values like privacy, sustainability, and human welfare. The values used to discuss these technologies suggests important ethical implications regarding the role they should occupy in society.
Collaboration makes global digital libraries sustainable and ethical
Authors: Chou Charlene 
Published: February 2019

ABSTRACTWith swiftly increasing projects of digital scholarship and digital libraries in recent years, many project leaders have shared concerns about the long‐term financial sustainability of their platforms. The lack of a long term plan of system maintenance and funding will undermine the richness and functionalities of a digital library. Project leaders express their concerns and needs about effectively allocating financial resources and subject expertise. Without strong collaborations and communications between scholars and cultural institutions, we risk duplicating efforts for similar research projects or creating gaps between the knowledge and expertise in different communities. Shareable across multilingual or multicultural communities, open access digital resources have increasing impact. However, sharing at a large scale is not without issues and challenges. This poster will present a framework to keep global digital libraries sustainable and ethical. The author proposes a workflow to create and maintain digital libraries as ecosystems, and includes a flowchart for visual presentation. Collaboration, interoperability and sustainability are key to the vision of digital libraries able to communicate with each other. When a digital library infrastructure anchors digital scholarly methods in the workflows, digital libraries will truly become a scholarly cyberspace and provide added‐value services to global users in future.