bluuebunny/crossref_metadata_2025_split huggingface dataset:
A Chinese version of the Patient Perceptions of Patient‐Empowering Nurse Behaviours Scale: Reliability and validity assessment in chronically ill patients
Authors: Zhou Chun‐Lan , Wang Si‐Qi , Wang Yan‐Fang , Ou Jie‐Xia , Wu Yan‐Ni 
Published: July 2018

AbstractAims and objectivesTo translate the Patient Perceptions of Patient‐Empowering Nurse Behaviours Scale (PPPNBS) into Chinese and to psychometrically test the Chinese version of PPPNBS (PPPNBS‐C) in chronically ill patients.BackgroundThe growing prevalence and burden of chronic illnesses became the driving force for the need of empowerment as an approach to engage patients in self‐management. The PPPNBS was developed to assess patient perceptions of the process of empowerment during hospitalisation. Extending its application to different clinical context and ethnicities is worth pursuing.DesignA cross‐sectional survey.MethodsThe PPPNBS was translated according to Brislin's translation guidelines and was culturally adapted. A questionnaire survey was carried out to determine the reliability and validity of the PPPNBS‐C among a total of 517 hospitalised patients with chronic illnesses.ResultsThe content validity was found to be good with a content validity index of 0.94. Exploratory factor analysis identified six factors explaining 68.56% of the total variance and confirmatory factor analysis confirmed this six‐factor structure. The hypothesised differences were demonstrated through contrasted group comparisons by time since diagnosis and length of hospital stay. The score of the PPPNBS‐C was significantly and positively associated with that of the Client Satisfaction Questionnaire, as was the Self‐Efficacy for Managing Chronic Disease 6‐Item Scale score, providing evidence of convergent validity. The Cronbach's alpha coefficient was 0.960 and the intraclass correlation coefficient was 0.86 for the total scale, explaining good internal consistency and time stability.ConclusionsThe PPPNBS‐C has preliminary verification of the validity and reliability and could be useful in measuring patient perceptions of patient‐empowering nurse behaviours.Relevance to clinical practiceThe PPPNBS‐C can be applied to chronically ill patients as a metric of the implementation status of patient‐empowering nurse behaviours and can be used as a guide to encourage nurse's intentional utilisation of empowering behaviours.
“But this is a good cancer:” Patient perceptions of endometrial cancer in Denmark
Authors: Sidenius Anne , Manderson Lenore , Mogensen Ole , Rudnicki Martin , Møller Lars Mikael Alling , Hansen Helle Ploug 
Published: July 2018

AbstractAims and objectivesTo explore endometrial cancer patients’ perceptions of the disease and the influence of favourable prognoses on their experiences.BackgroundEndometrial cancer is associated with favourable prognoses, which may imply that patients experience distress to a lesser extent than other cancer patients with less positive treatment outcomes. However, most people with cancer report reduced quality of life and, despite endometrial cancer being prevalent worldwide, experiences of the disease have been little explored.DesignEthnographic fieldwork with participant observations and interviews.MethodsObservations during clinical consultations at two Danish hospitals and interviews with women with endometrial cancer (n = 18) over a period of 6 months. The article adheres to the COREQ guidelines for reporting qualitative research.ResultsWe identify how patients consider cancer in general very likely to be fatal, while clinicians in contrast characterise endometrial cancer specifically as “good” because of favourable prognoses. We employ the concept of bricolage to illustrate how bits and pieces of biomedical knowledge and statistical evidence become intertwined with patients’ past experiences and subjective ways of knowing, suggesting that patients’ perceptions of endometrial cancer as a disease are somewhat dynamic.ConclusionsPublic stories and everyday life experiences of cancer provide a central framework for illness perceptions. As a result, patients retain the idea of a close connection between cancer and death, while also adopting the notion of endometrial cancer as “good”. This influenced how women responded to treatment and care. Framing endometrial cancer as “good” is not always helpful, as the impact of a cancer diagnosis per se is rarely favourable.Relevance to clinical practiceIn providing women with endometrial cancer with optimal support through diagnosis and treatment, clinicians should attend to the complexity of patients’ illness understandings and be aware that assuring patients of a good prognosis not always has the expected impact.
Living with my small stomach: The experiences of post‐bariatric surgery patients within 1 year after discharge
Authors: Lin Hsiu‐Chin , Tsao Lee‐Ing 
Published: July 2018

Aims and objectivesTo explore how patients adapt to their changed body and life within the first year of receiving bariatric surgery.BackgroundBariatric surgery is used to treat severely obese patients. Most studies investigating the postsurgery period are about weight loss related issues. However, few studies have investigated these patients’ subjective live experiences within the first year after discharge.DesignA qualitative research using grounded theory method was applied.MethodsIn‐depth interviews were conducted with 17 participants with a mean age of 34.5 years. The constant comparative method was used to analyse the interview data.FindingsThe core concept of “living with my small stomach” indicates that postbariatric patients are confronted with multidimensional challenges over time in their live experiences. Post‐bariatric surgery patients felt “unexpected body discomforts” in the initial period after discharge. Qualitative analysis generated two different types of living processes—either in the “life modification” process or a “suffering” process. The associated categories and subcategories delineated the living process after discharge. In the life modification process, five categories were identified: “being forced to change meal habits,” “bad feelings due to unsatisfied eating desires,” “choosing food for quality rather than quantity,” “persisting and confronting” and “getting support from family members.” In the suffering process, three categories were identified: “health becoming worse due to loss of albumin,” “suffering from bad health” and “emotional disturbances.” Finally, most participants would engage in “valuing my changed body” by “doing the right things and maintaining my new life.”ConclusionsHow to modify one's life is the main concern of postbariatric patients. These patients need to either engage in the process of making life modifications or suffer from complications.Relevance to clinical practicePatients need support and health education regarding living with their small stomach. In addition, we should be more sensitive about the need to detect malabsorption early.
Functional recovery of older stroke patients discharged from hospital to home: The effects of cognitive status and different levels of therapy intensity
Authors: Liu Huiying , Lou Vivian W. Q. 
Published: July 2018

Aims and objectivesTo determine whether and how cognitive impairment interacts with therapy intensity to affect functional improvements in older stroke patients over an 8‐week postdischarge intervention delivered in a community setting.BackgroundCognitive status is an important predictor of success of community‐based rehabilitation, but little has been known as to how cognitive impairment may affect outcomes through its interaction with the rehabilitation process.DesignA prospective follow‐up evaluation was conducted in Hong Kong of older stroke patients (n = 384) who were admitted to an 8‐week home‐based rehabilitation intervention after discharge in Hong Kong between 2012–2014.MethodsCognitive screening was conducted among patients at the time of discharge from hospital. The intervention process was monitored, and individuals’ therapy intensity was assessed and recorded by physical or occupational therapists independently in each therapy session. Outcomes were measured using the 10‐item Barthel ADL index at discharge and after the intervention.ResultsTherapy intensity significantly moderated the relationship between cognitive impairment and functional recovery. Cognitively impaired stroke patients with moderate‐intensity rehabilitation reported significantly higher increase in functional performance than that of patients with low‐ and high‐intensity rehabilitation. In patients with no cognitive impairment, those who received high‐intensity treatment showed significantly more functional gains than that of patients being treated with less intensive rehabilitation.ConclusionCognitive impairment affected functional outcomes through its interaction with different levels of therapy intensity among poststroke older patients.Relevance to clinical practiceIncreasing therapy intensity from moderate to high benefitted cognitively intact but not cognitively impaired patients. These results should inform decisions about community‐based rehabilitation and be used to identify the most cost‐effective service delivery model.
Caring Interaction with stroke survivors' family members—Family members' and nurses' perspectives
Authors: Lehto Birgitta , Kylmä Jari , Åstedt‐Kurki Päivi 
Published: July 2018

AbstractAims and objectivesTo examine emotional support given by nurses to family members in the acute phase after a working‐aged patient's stroke based on nurses’ and family members’ experiences.BackgroundThe number of patients with stroke is increasing globally. There is a lack of knowledge about the emotional support of family members during the acute phase of working‐aged stroke victims. To be able to provide high‐quality nursing care during this phase, we need information about emotional support from family members’ and nurses’ perspective.MethodUsing a Glaserian grounded theory approach, the study was conducted using open interviews with family members and group interviews with nurses. Data were collected between 2012–2013.ResultsIn this study, emotional support is identified as Caring Interaction. The changed life situation and diverse feelings aroused by the stroke are the starting point of providing emotional support to family members. It is important that the nurses notice family members’ need for support at the right time, use their intuition and respond appropriately.ConclusionsThe patient's family members are important when providing holistic nursing care for the whole family. As well as providing emotional support, high‐quality nursing interventions enhance the care of family members. This study provides an explanation of the interaction process between family members and nurses. It helps family members and nurses to better understand each other. Although the data were collected 5 years ago, it is assumed that the interaction between family members and nurses has not changed during these years remarkably.Relevance to clinical practiceAccording to the experiences of family members and nurses who participated in this research, emotional support manifests in Caring Interaction. Being aware of body language and behaviour of family members, nurses can better interact with them.
Health‐promoting leadership: A qualitative study from experienced nurses’ perspective
Authors: Furunes Trude , Kaltveit Anita , Akerjordet Kristin 
Published: July 2018

Aims and objectivesTo increase knowledge about experienced nurses’ understanding of a health‐promoting work environment, health‐promoting leadership and its role in retention of staff in the nursing workplace.BackgroundThe quality of leadership is imperative in creating supportive and health‐promoting work environments to ensure workforce productivity and ethically sustainable caring cultures. More knowledge on how leaders can promote health and sustainable careers among nurses is needed. At a time of current and projected nursing shortage, it is important to understand the reasons why nurses intend to remain in their jobs.DesignQualitative descriptive.MethodTwelve experienced registered nurses participated in an individual, digitally recorded, semi‐structured interview. Data were transcribed verbatim and subjected to qualitative content analysis of manifest and latent content.ResultsA health‐promoting work environment should provide autonomy, participation in decision‐making, skills development and social support. Health‐promoting leaders should be attentive and take action.ConclusionHealth‐promoting work environments enable nurses to flourish. Having ample autonomy is therefore important to nurses so that when they face new challenges, they see them as a way of using and developing their competencies. Although most nurses claim their own leaders are not health promoting, they have a clear understanding of how a health‐promoting leader should act. The health‐promoting leader should not only be attentive and promote skills development, but also cater for nurses’ meaningfulness.Relevance to clinical practiceNurses in primary health care understand a health‐promoting work environment to be a workplace where they can develop, not only clinical skills, but also flourish as human beings. Further, nurses find it health promoting to have a meaningful job, using their competence to make a difference for patients and their families. Nurse Managers have an important role in facilitating meaningfulness in nurses’ jobs to retain nurses as a valuable asset for the organisation.
Expert in nursing care but sometimes disrespected—Telenurses’ reflections on their work environment and nursing care
Authors: Wahlberg Anna Carin , Bjorkman Annica 
Published: July 2018

Aims and objectivesTo describe telenurses’ reflections on their work environment and how it impacts on their nursing care.BackgroundTelenursing is one of the largest healthcare settings in Sweden today; approximately 5.5 million care‐seekers call the designated number—1177—each year. Telenursing is regarded as highly qualified nursing care, and providing care over the telephone is considered a complex form of nursing. Within other fields of nursing, the work environment has been shown to affect the outcome of care, patient safety, nurse job satisfaction and burnout.DesignThe study used a descriptive design and followed the COREQ checklist.MethodsTwenty‐four interviews were performed and analysed using qualitative content analysis.ResultsThe main theme concerned “feeling like a nursing care expert but sometimes being disrespected.” The telenurses reported that their work environment supported their work as nursing care experts via the telephone in some respects, but also hindered them. Appreciation and respect they received from the vast majority of callers positively impacted the work environment and contributed to work satisfaction. However, they also felt disrespected by both their employers and healthcare staff; they sometimes felt like a dumping ground. Receiving support from colleagues seemed invaluable in helping them feel like and be a nursing care expert.ConclusionWork was perceived as cognitively demanding and sometimes exhausting, but appreciation from care‐seekers and the feeling of being able to provide qualified nursing care made working as a telenurse worthwhile.Relevance to clinical practiceIf telenurses are to perform good nursing care over the telephone, managers must provide them with resources, for example, support, education and opportunities for recovery during shifts. It seems that the role of the 1177 service has not been properly implemented and accepted within the healthcare system, and politicians need to anchor its mission within the healthcare organisation.
The psychic readiness for destruction among contemporary adolescents
Authors: Sitnik‐Warchulska Katarzyna , Izydorczyk Bernadetta 
Published: July 2018

Aims and objectivesTo verify the existence of psychic readiness for destruction among adolescent girls and to determine how psychic readiness for destruction is related to suicidal or violent behaviour in adolescence.BackgroundThe psychic readiness for destruction can be treated as a generalised tendency (personality disposition) to behave in a way that increases the probability of negative consequences which directly and indirectly threaten one's life, health and its quality.DesignA retrospective cross‐sectional study.MethodsThe study involved 140 participants, aged 13–17, including 40 girls after suicide attempts (GS group), 40 girls using violence against others (GA group) and 60 girls without destructive behaviour at all (CG group). To measure psychic readiness for destruction, the polish adaptation of the Chronic Self‐Destructiveness Scale (CS‐DS) by Kelly was used.ResultsNo significant differences were found between the GS group and GA group. A significant difference was found between the girls who engage in interpersonal violence (GA) and the control group (CG). In this case, the results showed a significantly higher score among those participants who were involved in extremely aggressive behaviours. A similar trend was also observed when comparing the group of girls who attempted suicide (GS) with the CG.ConclusionsBased on the conducted analyses, a clear trend was observed in consistency of destructive behaviours (tendency for destruction)—both active (seeking to violate norms, risky behaviours) and passive (omission, neglect) among the girls from both groups indicating even a single act of this kind (no significant differences between the groups).Relevance to clinical practiceDue to the complex nature of readiness for destruction and its negative consequences on health, it is imperative to investigate the risk factors for the tendency for destruction and to conduct health education among adolescents.
FDG‐PET/CT in the management of lymphomas: current status and future directions
Authors: El‐Galaly T. C. , Villa D. , Gormsen L. C. , Baech J. , Lo A. , Cheah C. Y. 
Published: July 2018

AbstractFDG‐PET/CT is the current state‐of‐the‐art imaging in lymphoma and plays a central role in treatment decisions. At diagnosis, accurate staging is crucial for appropriate therapy selection: FDG‐PET/CT can identify areas of lymphoma missed by CT alone and avoid under‐treatment of patients with advanced disease stage who would have been misclassified as having limited stage disease by CT. Particularly in Hodgkin lymphoma, positive interim FDG‐PET/CT scans are adversely prognostic for clinical outcomes and can inform PET‐adapted treatment strategies, but such data are less consistent in diffuse large B‐cell lymphoma. The use of quantitative FDG‐PET/CT metrics using metabolic tumour volume, possibly in combination with other biomarkers, may better define prognostic subgroups and thus facilitate better treatment selection. After chemotherapy, FDG‐PET/CT response is predictive of outcome and may identify a subgroup who benefit from consolidative radiotherapy. Novel therapies, in particular immunotherapies, exhibit different response patterns than conventional chemotherapy, which has led to modified response criteria that take into account the risk of transient pseudo‐progression. In relapsed lymphoma, FDG‐PET/CT after second‐line therapy and prior to high‐dose therapy is also strongly associated with outcome and may be used to guide intensity of salvage therapy in relapsed Hodgkin lymphoma. Currently, FDG‐PET/CT has no role in the routine follow‐up after complete metabolic response to therapy, but it remains a powerful tool for excluding relapse if patients develop clinical features suggestive of disease relapse. In conclusion, FDG‐PET/CT plays major roles in the various phases of management of lymphoma and constitutes a step towards the pursuit of personalized treatment.
Organellar genomics: a useful tool to study evolutionary relationships and molecular evolution in Gracilariaceae (Rhodophyta)
Authors: Iha Cintia , Grassa Christopher J. , Lyra Goia de M. , Davis Charles C. , Verbruggen Heroen , Oliveira Mariana C. 
Published: July 2018

Gracilariaceae has a worldwide distribution including numerous economically important species. We applied high‐throughput sequencing to obtain organellar genomes (mitochondria and chloroplast) from 10 species of Gracilariaceae and, combined with published genomes, to infer phylogenies and compare genome architecture among species representing main lineages. We obtained similar topologies between chloroplast and mitochondrial genomes phylogenies. However, the chloroplast phylogeny was better resolved with full support. In this phylogeny, Melanthalia intermedia is sister to a monophyletic clade including Gracilaria and Gracilariopsis, which were both resolved as monophyletic genera. Mitochondrial and chloroplast genomes were highly conserved in gene synteny, and variation mainly occurred in regions where insertions of plasmid‐derived sequences (PDS) were found. In mitochondrial genomes, PDS insertions were observed in two regions where the transcription direction changes: between the genes cob and trnL, and trnA and trnN. In chloroplast genomes, PDS insertions were in different positions, but generally found between psdD and rrs genes. Gracilariaceae is a good model system to study the impact of PDS in genome evolution due to the frequent presence of these insertions in organellar genomes. Furthermore, the bacterial leuC/leuD operon was found in chloroplast genomes of Gracilaria tenuistipitata, G. chilensis, and M. intermedia, and in extrachromosomal plasmid of G. vermiculophylla. Phylogenetic trees show two different origins of leuC/leuD: genes found in chloroplast and plasmid were placed with proteobacteria, and genes encoded in the nucleus were close to Viridiplantae and cyanobacteria.
Sham sleep feedback delivered via actigraphy biases daytime symptom reports in people with insomnia: Implications for insomnia disorder and wearable devices
Authors: Gavriloff Dimitri , Sheaves Bryony , Juss Amender , Espie Colin A. , Miller Christopher B. , Kyle Simon D. 
Published: July 2018

AbstractThis study investigated whether providing sham feedback about sleep to individuals with insomnia influenced daytime symptom reports, sleep‐related attentional bias and psychomotor vigilance. Sixty‐three participants meeting DSM‐5 criteria for insomnia disorder were recruited from the community. Following baseline assessments and actigraphy briefing, participants were randomised to receive next‐day sham feedback on sleep quality (“positive” vs. “negative” sleep efficiency condition). Feedback was delivered at habitual rise‐time using an integrated actigraphy‐diary watch to simulate wearable device behaviour. Participants completed symptom reports immediately before receiving feedback, and at 12:00 and 15:00 hr, using the experience sampling method. Following this they returned to the laboratory in the evening to complete symptom reports and computerised tests of sleep‐related attentional bias and basic psychomotor vigilance. Participants randomised to negative feedback (n = 32) evidenced impaired daytime function (decreased alert cognition [d = 0.79], increased sleepiness/fatigue [d = 0.55]) in the evening compared with those given positive feedback (n = 31). Within‐day trajectories revealed that the positive‐feedback group, relative to the negative‐feedback group, displayed a significantly greater increase in positive mood and alert cognition (from rise‐time to 12:00 hr), and significantly greater decrease in sleepiness/fatigue. There were no significant between‐group differences on measures of sleep‐related attentional bias [d = 0.20] or psychomotor vigilance [d = 0.12]. This controlled experiment shows that sham feedback about sleep biases appraisal of daytime symptoms, highlighting a pathway connecting sleep misperception with daytime features of insomnia. Findings have important implications for wearable devices that claim to measure “objective” sleep yet may provide inaccurate data relative to gold‐standard measurement.