bluuebunny/crossref_metadata_2025_split huggingface dataset:
Use and Effects of Patient Access to Medical Records in General Practice Through a Personal Health Record in the Netherlands: Protocol for a Mixed-Methods Study
Authors: Vreugdenhil Maria MT , Kool Rudolf B , van Boven Kees , Assendelft Willem JJ , Kremer Jan AM 
Published: June 2018

Background
In the Dutch health care system, general practitioners hold a central position. They store information from all health care providers who are involved with their patients in their electronic health records. Web-based access to the summary record in general practice through a personal health record (PHR) may increase patients’ insight into their medical conditions and help them to be involved in their care.

Objective
We describe the protocol that we will use to investigate the utilization of patients’ digital access to the summary of their medical records in general practice through a PHR and its effects on the involvement of patients in their care.

Methods
We will conduct a multilevel mixed-methods study in which the PHR and Web-based access to the summary record will be offered for 6 months to a random sample of 500 polypharmacy patients, 500 parents of children aged <4 years, and 500 adults who do not belong to the former two groups. At the patient level, a controlled before-after study will be conducted using surveys, and concurrently, qualitative data will be collected from focus group discussions, think-aloud observations, and semistructured interviews. At the general practice staff (GP staff) level, focus group discussions will be conducted at baseline and Q-methodology inquiries at the end of the study period. The primary outcomes at the patient level are barriers and facilitators for using the PHR and summary records and changes in taking an active role in decision making and care management and medication adherence. Outcomes at the GP staff level are attitudes before and opinions after the implementation of the intervention. Patient characteristics and changes in outcomes related to patient involvement during the study period will be compared between the users and nonusers of the intervention using chi-square tests and t tests. A thematic content analysis of the qualitative data will be performed, and the results will be used to interpret quantitative findings.

Results
Enrollment was completed in May 2017 and the possibility to view GP records through the PHR was implemented in December 2017. Data analysis is currently underway and the first results are expected to be submitted for publication in autumn 2019.

Conclusions
We expect that the findings of this study will be useful to health care providers and health care organizations that consider introducing the use of PHR and Web-based access to records and to those who have recently started using these.

Trial Registration
Netherlands Trial Registry NTR6395; http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=6395 (Archived by WebCite at http://www.webcitation.org/71nc8jzwM)

Registered Report Identifier
RR1-10.2196/10193
Cancer Related Fatigue and Upper Limb Disabilities Cannot Improve after 6 Weeks Resistance Training with Thera-Band in Breast Cancer Survivors
Authors: Nouri Reza , Braumann Klaus Michaeil , Mahmoudieh ChamPiri Bahareh , Schröder Jan , Akochakian Mahdieh 
Published: June 2018

Aim. Breast cancer and its treatments lead to cancer related fatigue and upper limb disabilities. On the other hand, resistance training has positive benefits for breast cancer survivors. Thus, the aim of present study was to clarify the effect of resistance training with Thera – Band on CRF and upper limb disabilities in breast cancer survivors. Methods. Fifty women with breast cancer aged 29-65 were divided in to 2 groups: 1) resistance training with Thera- Band group (n=25) and 2) control group (n=25). Resistance training with Thera- Band group, after 5 minutes warm up, were performed the 9 resistance training with Thera – Band, from 8 to 12 repetitions and 2 sets in the first two weeks, 8 to 12 repetitions and 3 sets in the second two weeks and 8 to 12 repetitions and 4 sets in the third two weeks. The rest between each set was started from 90 seconds in the first week and was decreased to 45 seconds in the sixth week. Control group didn’t have any supervised or regular physical activity. Cancer related fatigue (CRF) and upper limb disabilities were surveyed by Piper Fatigue Scale and DASH questionnaire, respectively. Data were analyzed using by 2-way ANOVA (p≤0.05). Statistical Results. The findings of this study demonstrated that 6 weeks resistance training by Thera – Band has no significant effect on CRF and upper limb disabilities (p≥0.05). Conclusion. It can be concluded that exercise training with Thera- Band for 6 weeks cannot improve CRF and upper limb disabilities in breast cancer survivors. Future studies with large sample size and long period of intervention is suggested.
Detecting Care Homes: Using Residential Anonymous Linking Fields to Identify Care Homes in Administrative Data
Authors: Hollinghurst Joe , Akbari Ashley , Fry Richard , Rodgers Sarah 
Published: June 2018

BackgroundDemographic profiling is an important aspect of anonymised healthcare research used to identify populations of interest. Typically, administrative data is used in conjunction with patient registers to create cohorts, but it can be a time consuming process.
ObjectivesWe aim to create and apply a method of identifying care homes using existing administrative data. We also aim to test the accuracy of our method by comparing the results to a pseudonymised national care home registry. This will allow us to prove whether proxy methods may be of sufficient accuracy for data linkage research in the future.
Methods (including data)Our method uses quantifiable characteristics from longitudinal data to identify potential care homes. This includes the number and age of occupants, current residence and rate of change of occupancy.
ConclusionsThis method is a reproducible process that would be of particular benefit for projects where a registry is not available, or where time or cost would limit the availability. This method can also be generalised to any communal establishment, where often the identification of vulnerable populations (antibiotic resistance, infectious disease etc.) is particularly beneficial.
Permanently Progressing? Building Secure Futures for Children in Scotland: Pathways and outcomes for looked after children
Authors: Cusworth Linda , Hooper Jade , Biehal Nina , Shapira Marina , Whincup Helen 
Published: June 2018

BackgroundEach year many children in Scotland who cannot be cared for by their birth parents become looked after by Local Authorities. Where reunification is not an option, children need to be settled as soon as possible in safe and secure alternative homes. However, more research evidence is needed to guide the placement decisions that are so crucial to children’s wellbeing.
ObjectivesThe Permanently Progressing? study aims to help identify factors that are associated with children achieving a permanent home. The study hopes to inform policy, planning and practice in relation to young children who cannot live with a birth parent.
MethodsUsing the Children Looked After Statistics that are collected by the Scottish Government from all 32 Local Authorities, the study followed a group of children who became ‘looked after and accommodated’ at age five or under (n=1355) in 2012-13. Children’s pathways through the system over a four-year period were investigated and compared to another group of children aged five or under who became ‘looked after’ in the same year but remained with their birth parent(s) at this time (n=481).
FindingsThe paper discusses children’s pathways through the looked after system, together with factors which may influence these pathways, such as age when becoming looked after, number and type of placements, and types of permanence achieved 3-4 years after becoming looked after.
ConclusionsThis longitudinal analysis of administrative data offers unique insights into factors that may influence child welfare system responses to vulnerable children, which will be discussed, along with issues surrounding the difficulties associated with the definition and measurement of outcomes using these data.
Is the Prevention Paradox Useful in Suicide Prevention Theory and Strategies?
Authors: Christoffersen Mogens 
Published: June 2018

BackgroundLittle progress has been made in the areas of suicide prediction, explanation, and prevention mainly because of the difficulty inherent in examining a low base-rate behavior such as suicidal behavior.
ObjectivesGeoffrey Rose’s prevention paradox occurs when the majority of cases with an adverse outcome come from a population of low or moderate risk, and only a few from a ‘high risk’ group. The present study intends to test whether the prevention paradox applies to the initiation of suicide attempts.
MethodsChildren born 1980-1985 were followed from age 15 to 29 (N=300,000). Data was analyzed using a discrete-time Cox model to allow for changing covariates over time. From administrative registers a number of variables correlated with suicidal behavior based on suicide prevention theories were collected, and thereby identify a high-risk group. These variables were individual risk factors such as living in a disadvantaged area, parental circumstances and behavior, and individual resource deficits recorded on yearly basis. An event history from birth to adulthood is used to estimate hazards at ages 15 to 29 years. The inclusion of event history information in the statistical model refines the research question: Can we identify a high risk group (<5%) in the population from whom the suicide attempts exclusively recruited?
FindingsFamily background and parental factors such as mental illness, suicidal behavior, violence, unemployment and family separation all contributed independent information to prediction of adolescent’s suicide attempts. The young person’s hospitalization for psychiatric disorder (ADHD, anxiety, depression, severe stress reaction and adjustment disorders) contributed to the explanation model.
Discussion and ConclusionThere are many factors contributing to suicide risk therefore it is challenging to identify a high risk group (<5%) in the population. These findings illustrate that population-based rather than targeted strategies may be more beneficial for suicide prevention.
Influences of cycle facilities on cycling to work
Authors: Feng Zhiqiang , Dibben Chris 
Published: June 2018

BackgroundIn recent years, promoting cycling as a means of transport has been put on multiple policy agendas, including health, transport and climate change. Provision of cycling facilities is important in promotion of bicycle use. However, there are no conclusive findings in terms of what cycling facilities are associated with higher levels of bicycle use.
ObjectivesIn this paper we aim to assess the influence of off-road cycle paths and on-road lanes, by examining whether proximity to two types of cycle route is associated to the level of cycling to work. The research findings has potential to provide further evidence on policy interventions in promoting cycling to work through development of new cycling infrastructures.
MethodsThe cycling to work data are from the 2001 and 2011 censuses at the output area level. Proximity to cycling facilities is defined for output areas if they are within 400 metres from their centroid to a cycle route. We fit regression models to examine the association of cycle paths and cycle lanes with levels of cycling to work adjusting for a number of socioeconomic factors.
FindingsThe modelling results show that proximity to off-road paths is associated with increased levels of cycling to work but proximity to on-road lanes shows no effect.
ConclusionsAlthough this is by no means indicative of a causal relationship, this research provides further evidence on the effects of cycle facilities on cycling behaviour, lending support on policy interventions that cycle facilities can be built to promote cycling to work. We will extend this research using the individual level census data which will give us opportunity to overcome the ecological fallacy. In addition we will use coarsened exact matching to identify a control group in order to make causal inference on the effect of cycle paths.
Indicators of adversity recorded in hospitalisation records of children aged less than 5 years or their mothers: a record linkage study of children born in England in 2011
Authors: Mukhtar Toqir , Wijlaars Linda , McGrath-Lone Louise , Gilbert Ruth 
Published: June 2018

BackgroundEarly identification of child adversity (comprising abuse, neglect, social or material adversity) is essential to target early interventions to safeguard children, and support vulnerable families. We determined the prevalence of indicators of adversity recorded in diagnostic codes in child and/or maternal hospital admissions in England.
Data SourceAll birth admissions recorded in the NHS in England in 2011, and subsequent admissions up to 5 years old, linked to maternal records from 1 year before to up to 5 years after delivery.
MethodsPrevalence of adversity indicators in child and/or maternal admission records that reflect adversity-related injury (ARI), or social or material adversity (SMA).
ResultsAmong 646,956 live born children, 2.6% (95% CI: 2.6 to 2.7) had at least one adversity indicator by <5 years (0.8% ARI, 2.6% SMA). Cumulative prevalence was 1.1% in children aged <6 months, 1.2% in children aged <1 year, 2.1% by <=2 years, and 2.6% up to 5 years old. Combined prevalence in maternal and/or child records will be presented.
ConclusionTo inform health policy, clinical and prognostic significance of adversity indicators requires evaluation through linkage to health and welfare outcomes.
Tautua a le Niu'
Authors: Filisi Fritz 
Published: June 2018

“O le ala i le pule o le tautua” (the pathway to leadership and authority is through service). Tavale (2013, pp. 6-12) referred to this alagaupu (proverb) as the guiding principle that serves our social, political and spiritual structure that is the aiga (family), nu’u (village), creator (Atua) and country.
‘Tautua a le Niu’ is the metaphoric expression of serving our aiga, our nu’u , our creator and country. This service endeavours to illuminate how Indigenous Samoa live in harmony with self and surroundings. My practice is informed by my life experience growing up in Samoa within my Tofaeono Saofa’imatumua aiga, as expressed in the work of Tavale’s (2013) description of tautua and Efi (2007) discussion on harmony in indigenous Samoan aspirations to have harmony with: the cosmos, between man and the environment, between man and fellow men and between man and self.
A Unique Common Fixed Point for an Infinity of Set-Valued Maps
Authors: Bouhadjera Hakima 
Published: June 2018

Abstract
The main purpose of this paper is to establish some common fixed point theorems for single and set-valued maps in complete metric spaces, under contractive conditions by using minimal type commutativity and without continuity. These theorems generalize, extend and improve the result due to Elamrani and Mehdaoui ([2]) and others. Also, common fixed point theorems in metric spaces under strict contractive conditions are given.
Servicios de oncología pediátrica en Colombia
Authors: Suarez Mattos Amaranto , Aguilera Jairo , Salguero Edgar Augusto , Wiesner Carolina 
Published: June 2018

Antecedentes: En los países de bajos ingresos un niño diagnosticado con cáncer tiene un 80% de probabilidad de morir mientras que en los países de ingresos altos más del 80% sobrevive a la enfermedad. En Colombia, un país de ingresos medios, el gobierno expidió una nueva legislación que promueve la generación de unidades de atención integral; sin embargo, siete años después de su expedición, ninguna Institución ha sido reconocida como tal por el Ministerio de Salud.Objetivo: Caracterizar la actual oferta de servicios oncológicos para atención de cáncer en niños e identificar las instituciones que podrían ser constituirse en Unidades de Atención Integral de Cáncer Infantil en Colombia.Métodos: estudio descriptivo de fuente secundaria, se consultó el Registro Especial de Prestadores de Salud del Ministerio de Salud y Protección Social; identificando las instituciones que tenían habilitados servicio de hospitalización de mediana o alta complejidad, quimioterapia, consulta especializada, urgencias, cirugía oncológica, radioterapia o medicina nuclear. Se reporta la información en frecuencias absolutas.Resultados: Setenta y una instituciones cuentan con consulta de hemato-Oncología, 39 instituciones tienen servicios de quimioterapia y hospitalización de mediana o alta complejidad y 18 tienen habilitada radioterapia. Solo nueve de las instituciones incluyen la totalidad de los servicios necesarios para la atención integral.Conclusión: Colombia cuenta con una oferta suficiente de servicios para atención de niños con cáncer. Solo una minoría se encuentra en Instituciones que tienen la capacidad de garantizar la integralidad de la atención.
Información fiable para el control del cáncer en Cali, Colombia
Authors: Bravo Luis Eduardo , García Luz Stella , Collazos Paola , Carrascal Edwin , Ramírez Oscar , Cortés Armando , Nuñez Marcela , Millán Erquinovaldo 
Published: June 2018

Antecedentes: El Registro Poblacional de Cáncer de Cali (RPCC) está en operación continua desde 1962 con el objetivo de producir estadísticas válidas sobre la incidencia de cáncer, sus patrones, tendencias y supervivencia.Métodos: Durante el periodo 2008-2012, se registraron 23,046 casos nuevos y durante 2011-2015 se registraron 12,761 defunciones por cáncer. La tendencia de las tasas se describió con el porcentaje de cambio medio anual APC y con el análisis de Joinpoint. Se analizaron los datos individuales de 38,671 adultos (15-99 años) con diagnóstico de cáncer entre 1995-2009, y se calculó la supervivencia neta estandarizada por edad para las 14 localizaciones más comunes de cáncer, con el método de Pohar-Perme.Resultados: Próstata y mama fueron la primera causa de morbilidad por cáncer. Las tasas de incidencia en estos tumores susceptibles de detección temprana se estabilizaron tras décadas de crecimiento, mientras que se observó un incremento de la incidencia de cáncer de colon y carcinoma papilar de tiroides. Las tasas de incidencia de cáncer de cuello uterino y estómago, afecciones relacionados con agentes infecciosos, disminuyeron, aunque el número de los casos absolutos aumentó, debido al crecimiento y envejecimiento de la población. El cáncer gástrico fue responsable del mayor número de muertes por cáncer. Los tipos de cáncer relacionados con el consumo de tabaco (pulmón, cavidad oral, esófago, páncreas, vejiga urinaria) mostraron cifras bajas y con tendencia al descenso. Durante el periodo 2000-2004, la supervivencia neta a 5 años mejoró para los cánceres de mama, cuello uterino, próstata, melanoma y tiroides, aunque en el periodo 2005-2009 se observó un estancamiento. En cáncer de estómago, hígado y pulmón, la supervivencia neta a 5 años fue inferior al 15%. La supervivencia global a 5 años en niños fue de 51.0% (IC 95%: 47.5, 54.3) y en adolescentes de 44.6% (IC 95%: 36.0, 52.8).Comentario: RPCC ha sido asesor del gobierno colombiano en la evaluación de RPCs en el país y sus datos han contribuido significativamente a diferentes aspectos del control del cáncer en Colombia.
Cali Cancer Registry Methods
Authors: Garcia Luz Stella , Bravo Luis Eduardo , Collazos Paola , Ramirez Oscar , Carrascal Edwin , Nuñez Marcela , Portilla Nelson , Millan Erquinovaldo 
Published: June 2018

El Registro Poblacional de Cáncer de Cali (RPCC) opera de manera continua desde 1962 divulgando información de calidad para proporcionar un marco para valorar y controlar el impacto del cáncer en Cali. Métodos: La recolección de los casos nuevos de cáncer en residentes permanentes de Cali se hace mediante búsqueda activa y por notificación en los hospitales y laboratorios públicos y privados. La Secretaria de Salud Pública Municipal proporciona la información individual de mortalidad general y por cáncer. Los tumores se codifican con la CIO-3 y la mortalidad con la CIE-10. Las tasas se estandarizan por edad y la tendencia se estudia con el porcentaje de cambio anual y con la regresión de JoinPoint. La supervivencia neta a 5 años se analizó con el estimador de Pohar-Perme. Resultados: El 88.5% de los canceres tuvieron verificación morfológica (VM). La proporción de los casos codificada como de sitio mal definido representó el 5% y el certificado de defunción como única evidencia del diagnóstico de cáncer (DCO) varió entre 0-3% dependiendo de la localización. Todas las defunciones fueron certificadas por un médico, el 94.2% de las muertes por cáncer fueron bien certificadas. La proporción de sitio mal definido fue 5.3% y la de cáncer de útero no especificado (C55) fue 0.5%. En todos los casos de supervivencia fue posible el seguimiento y la proporción de censuras fue 13.2% Comentario: La información ha sido publicada en los once volúmenes de “Cancer Incidence in Five Continents”. El RPCC participó en el Estudio Concord y está participando en SURVCAN-3.
Epidemiology of cancer in Colombia
Authors: Bravo Luis Eduardo , Muñoz Nubia 
Published: June 2018

En este número especial dedicado al cáncer, Colombia Médica divulga un análisis de la situación de cáncer en Colombia y Ecuador.
El Registro Poblacional de Cancer de Cali (RPC-Cali) describe los principios y métodos utilizados para analizar 50 años de incidencia (1962-2012), 30 años de mortalidad (1984-2014) y 15 años de supervivencia (1995-2009). Seis registros RPC colombianos y uno ecuatoriano, muestran la recopilación, clasificación y análisis de todos los casos nuevos y las defunciones por cáncer ocurridas entre 2008-2012en Quito, Cali, Pasto, Bucaramanga, Manizales. Barranquilla y Medellín divulgan por primera vez datos sobre incidencia de cáncer. Los registros de cáncer de Cali, Quito y Pasto disponen de al menos 15 años de información de buena calidad y presentan resultados válidos de la tendencia de la incidencia y mortalidad por cáncer en sus respectivas poblaciones
Los RPC-Cali, RPC-Manizales y el Registro Hospitalario de Cáncer del Instituto Nacional de Cancerología de Colombia, único RHC del país, presentan datos de supervivencia para los tipos de cáncer de mayor morbilidad en Colombia: próstata, mama, cuello uterino, colon y estómago.
El Instituto Nacional de Cancerología de Colombia (INC-Col) caracteriza la situación actual de la oferta de servicios oncológicos en Colombia y demuestra que la certificación de las defunciones por cáncer en Colombia es de buena calidad. El INC-Col utiliza la información de cuatro registros de cáncer y las cifras oficiales de mortalidad, para hacer estimaciones válidas de la incidencia de cáncer para todo el país y para cada uno de los departamentos de Colombia.
#NotDomestication #NotIndigenisation: Decoloniality in Social Work Education
Authors: Harms Smith Linda , Nathane Motlalepule 
Published: June 2018

This article argues that South African social work education, situated in Western modernism and broadly within the ideological project of colonialism and racist capitalism, should move from knowledge and discourses which are domesticating and oppressive, and do essential decolonising work. It explores colonialism and post-colonialism and the politics of social work knowledge, it describes the processes of the #RhodesMustFall and #FeesMustFall movements, and then it describes the work of decolonisation. In order to move from coloniality and domestication, which means neither indigenisation nor Africanisation, social work education must 1)Â reclaim and repossess truths and narratives about the history of social work in South Africa, 2)Â explore ideology underlying its knowledge and discourses, 3)Â facilitate critical conscientisation and cultivate a critical and anti-colonial approach, and 4)Â include anti-colonial theorists in the curriculum. It provides two examples of courses which facilitate such a process.