bluuebunny/crossref_metadata_2025_split huggingface dataset:
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Authors: Köhler M. 
Published: March 2018

ZusammenfassungAdoleszente und junge Erwachsene (Adolescents and Young Adults, AYA) mit Krebs stellen mit einer Inzidenz von 15 000 Fällen pro Jahr in ihrer Peer Group eine Ausnahme dar. Mittlerweile liegen eine Reihe forschungsbasierter Befunde vor, welche die klinische Bedeutsamkeit des umschriebenen Altersintervalls zwischen dem 15. und 39. Lebensjahr im Vergleich zu Kindern und älteren Erwachsenen kennzeichnen. Darüber hinaus stehen das körperliche und seelische Erleben sowie die individuelle Bewältigung der existenziellen Abhängigkeiten durch den Krebs und die Krebsbehandlung in einem deutlichen Gegensatz zum Charakter der Lebenssituation eines gesund aufwachsenden jungen Erwachsenen. Eine Evidenz zur forschungsbasierten Entwicklung geprüfter Beurteilungsverfahren, Erhebung psychosozialer Beanspruchungen und Wirksamkeitsprüfung personalisierter Interventionsansätze ist bislang allerdings kaum gegeben. Die Anwendung entwicklungspsychologischer Konzepte und familienbasierter Ansätze kann ein professionelles Verständnis im Umgang mit den AYAKrebspatienten und deren existenziell bedrohlichen Herausforderungen fördern.
Existenzielles Leiden und sinnbezogene Interventionen
Authors: Schulz-Kindermann F. 
Published: March 2018

ZusammenfassungDie Befindlichkeit Schwerstkranker wird üblicherweise im Rahmen der multidimensionalen gesundheitsbezogenen Lebensqualität beschrieben. Diese erfasst jedoch nicht Aspekte existenziellen Leidens, wie sie z. B. Eric Cassell definierte. In den vergangenen Jahren entstand eine Vielzahl empirischer Arbeiten zum Erleben von und zur Intervention bei umfassendem Leiden. Mittlerweile konnte überzeugende Evidenz sowohl zur Konzeption von “Leiden” als auch zu dessen Linderung mithilfe psychotherapeutischer Interventionen vorgelegt werden. Sinnorientierte Therapieverfahren liegen sowohl als Einzelals auch als Gruppeninterventionen vor. Ein besonders vielversprechender Ansatz ist die einzeltherapeutische Kurzzeitintervention “Managing Cancer And Living Meaningfully CALM”, deren Prüfung zurzeit in mehreren internationalen RCTs erfolgt.
Medical Informatics and Telemedicine at the Politecnico di Milano
Authors: Pinciroli F. 
Published: March 2018

AbstractResearch and training programs in Medical Informatics and Telemedicine offered at the Politecnico di Milano are summarized. The educational pathways refer to the programs of: the (5-years) Laurea Degree, the (3-years) Diploma Universitario Degree, the post-Laurea (3-years) Doctoral Degree, the (1-year) Master’s Degree, and a Continuing Education Program. The research programs focus on databases and extend to optimization of the ‘Visible Human Dataset-Milano Mirror Site’ services. Additional activities relate to standardization at both the Italian and European levels, and to cooperation with hospitals and manufacturers.
Biomedical Informatics for Sustainable Health Systems. Editorial
Authors: Geissbuhler A. , Haux R. , Kulikowski C. 
Published: March 2018

SummaryTo provide an editorial introduction to the 2007 IMIA Yearbook of Medical Informatics with an overview of its contents and contributors.A brief overview of the main theme of “Biomedical Informatics for Sustainable Health Systems”, and an outline of the purposes, contents, format, and acknowledgment of contributions for the 2007 IMIA Yearbook.In resonance with the MEDINFO 2007 conference theme “Building Sustainable Health Systems”, this issue of the Yearbook examines the role of healthcare informatics in helping face the challenge of sustainability for our health systems, through a number of original contributions, and selected papers published during the past 12 months.This timely topic, along with the review and surveys on the main streams of research in medical informatics, offer a complete overview of the development of our field. This current state of affairs is put in the perspective of the fortieth birthday of IMIA, reflecting on the past achievements of the Association, and outlining its potential to continue shaping the world of medical informatics.
Sustainable Health Care Systems
Authors: Lovis C. ,   Managing Editor for the IMIA Yearbook Section on Sustainable Health Care Systems
Published: March 2018

SummaryTo summarize major current trends and research in the field of sustainable health care systems.Synopsis of the articles selected for the IMIA Yearbook 2007.Four excellent articles, four nations and four international peer-reviewed journals representing some important aspects of the research in this field have been selected for the IMIA Yearbook 2007. The first paper focuses on health care spending and use of information technologies in OECD countries; the second paper presents an original model and framework to describe and evaluate the risks and safety of e-health systems; the third paper, a two-part paper, reviews several models to support lifetime personal health records and proposes some original approach to this problem. Finally, the last paper presents the evaluation of feasibility, potential, problems and risks of an Internet-based telemedicine network in developing countries of Africa and challenges and opportunities that IT can bring to developing countries.Sustainability in health care and information technologies is a young but fast growing domain. This new section of the yearbook is promised to a rich future as illustrated in the variety and the importance of the challenges addressed by this 2007 selection.
Section 4: Sensor, Signal and Imaging Informatics: An Overview of Wearable and Implantable Medical Sensors
Authors: Konstantas D. 
Published: March 2018

SummaryTo give a brief, introductory overview of current developments and trends in miniaturized medical sensors which will be informative to non-specialists in the field.Summary of the different types of wearable and implantable sensors with examples of current state-of-the-art devices and systems used in medical applications.After more than a decade of intensive research and development around the world, miniaturized medical sensors are becoming commercially available, allowing increasingly rapid collection of large-scale medical data and its wireless transmission to health care centers. However, most sensor systems are not yet in routine use and still restricted to specialized sites, undergoing validation trials, mostly within research laboratories.Challenges to routine adoption of medical sensor systems often arise from a combination of lack of awareness of the technology among many medical practitioners, technological limitations of the device systems (artifacts and noise resulting from problems in garment fit or device implantation), and open issues of evaluation and validation for the very broad scope of conditions in home-care and ambient environments over which medical sensors need to operate for routine, reliable, practical use.
Sensors, Medical Image and Signal Processing
Authors: Westphal R. ,   Managing Editor for the IMIA Yearbook Section on Sensor, Signal and Imaging Informatics
Published: March 2018

SummaryTo summarize current excellent research in the field of sensor, signal and imaging informatics.Synopsis of the articles selected for the IMIA Yearbook 2007.The selection process for this yearbook section “Sensor, signal and imaging informatics” results in five excellent articles, representing research in four different nations. Papers from the fields of brain machine interfaces, sound surveillance in telemonitoring, soft tissue modeling, and body sensors have been selected.The selection for this yearbook section can only reflect a small portion of the worldwide copious work in the field of sensors, signal and image processing with applications in medical informatics. However, the selected papers demonstrate, how advances in this field may positively affect future patient care.
Section 5: Decision Support, Knowledge Representation and Management: Free and Open Source Enabling Technologies for Patient-Centric, Guideline-Based Clinical Decision Support: A Survey
Authors: Leong T. Y. , Kaiser K. , Miksch S. 
Published: March 2018

SummaryGuideline-based clinical decision support is an emerging paradigm to help reduce error, lower cost, and improve quality in evidence-based medicine. The free and open source (FOS) approach is a promising alternative for delivering cost-effective information technology (IT) solutions in health care. In this paper, we survey the current FOS enabling technologies for patient-centric, guideline-based care, and discuss the current trends and future directions of their role in clinical decision support.We searched PubMed, major biomedical informatics websites, and the web in general for papers and links related to FOS health care IT systems. We also relied on our background and knowledge for specific subtopics. We focused on the functionalities of guideline modeling tools, and briefly examined the supporting technologies for terminology, data exchange and electronic health record (EHR) standards.To effectively support patient-centric, guideline-based care, the computerized guidelines and protocols need to be integrated with existing clinical information systems or EHRs. Technologies that enable such integration should be accessible, interoperable, and scalable. A plethora of FOS tools and techniques for supporting different knowledge management and quality assurance tasks involved are available. Many challenges, however, remain in their implementation.There are active and growing trends of deploying FOS enabling technologies for integrating clinical guidelines, protocols, and pathways into the main care processes. The continuing development and maturation of such technologies are likely to make increasingly significant contributions to patient-centric, guidelinebased clinical decision support.
Biomedical Informatics Training at the University of Wisconsin-Madison
Authors: Pape L. , Page C. D. , Shavlik J. W. , Phillips G. N. , Brennan P. , Severtson D. J. 
Published: March 2018

SummaryThe purpose of this paper is to describe biomedical informatics training at the University of Wisconsin-Madison (UW Madison).We reviewed biomedical informatics training, research, and faculty/trainee participation at UW-Madison.There are three primary approaches to training 1) The Computation & Informatics in Biology & Medicine Training Program, 2) formal biomedical informatics offered by various campus departments, and 3) individualized programs. Training at UW-Madison embodies the features of effective biomedical informatics training recommended by the American College of Medical Informatics that were delineated as: 1) curricula that integrate experiences among computational sciences and application domains, 2) individualized and interdisciplinary cross training among adiverse cadre of trainees to develop key competencies that he or she does not initially possess, 3) participation in research and development activities, and 4) exposure to a range of basic informational and computational sciences.The three biomedical informatics training approaches immerse students in multidisciplinary training and education that is supported by faculty trainers who participate in collaborative research across departments. Training is provided across a range of disciplines and available at different training stages. Biomedical informatics training at UW-Madison illustrates how a large research University, with multiple departments across biological, computational and health fields, can provide effective and productive biomedical informatics training via multiple bioinformatics training approaches.
IMIA Presidential Retrospectives on Medical Informatics
Authors: Ball M.J. , van Bemmel J.H. , Kaihara S. 
Published: March 2018

SummaryThe International Medical Informatics Association (IMIA) celebrates its 40th anniversary in 2007. Three IMIA Presidents from three continents were invited to give their personal retrospectives on the world’s largest organization in medical informatics.Reports, based on personal reminiscenses.IMIA was established in the 1970s by individuals already active in medical informatics in their home countries. It has evolved into a strong international organization based on the mutual trust and friendship of members throughout the world. IMIA serves as a ‘bridge’ organization both within an inter organizational context and within the broader context of IMIA’s professional aims. Being a driving motor for successive waves of change in the field, IMIA helps to significantly improve health care by building bridges across regions, disciplines, and professions, to bridge the distances around the globe.Geissbuhler A, Haux R, Kulikowski C, editors. IMIA Yearbook of Medical Informatics 2007.
IMIA: Coalescing Medical Informatics Worldwide for 40 Years
Authors: Kulikowski C. A. 
Published: March 2018

SummaryTo summarize and highlight the role of IMIA in the past 40 years in becoming the international professional organization that brings together researchers, practitioners, and educators in the field of medical informatics, and more broadly biomedical, nursing, and health informaticsOutlining developments of medical informatics related to IMIA from 1967 to 2007 in a time-line and comparative topic and geographical distribution analyses over selected MEDINFOs from 1980 and selected Yearbooks from 1992 onwards. This illustrates how IMIA, through the global reach of its activities, has helped advance the science and development of informatics across the entire spectrum of biomedical and health care research, education, and practice.The contribution of IMIA over the past 40 years has been to sponsor and coordinate international conferences and promote interchange and collaborations in biomedical and health informatics by linking national and regional societies, organizing meetings, high quality publications, and working groups. These have helped the coalescing of the discipline worldwide, promoting full participation and a broad interdisciplinary scope that fulfills the hopes of the pioneers in the field.
IMIA: The Global Informatics Perspective for Good Health
Authors: Haux Reinhold , Reichertz Peter ,   (President of IMIA 2007-2010)
Published: March 2018

Summary

Objective:
To report on IMIA, the International Medical Informatics Association, and on what has been achieved in the period 2007-2010.

Method:
Summarizing IMIA’s activities, discussions and decisions, in particular with respect to its Board and General Assembly meetings; looking at recent progress of biomedical and health informatics through IMIA’s Yearbook.

Results:
Over the last three years, decisions have been made and steps have been initiated which will lead to significant changes for IMIA. In addition to its continuing activities in being involved (1) in organizing conferences, with Medinfo 2010 as this year’s highlight, (2) in publication, and (3) in working/special interest group activities, new steps were (4) extending IMIA’s conference portfolio, leading to a biennial Medinfo cycle from 2015 on, (5) launching the journal Applied Clinical Informatics as a bridge from informatics theory to applications, (6) endorsing and publishing White Papers, such as the revised IMIA recommendations on education, (7) strengthening ties with WHO, and (8) establishing the Middle East Association of Health Informatics (MEAHI) as an IMIA region in order to start formalising regional organization and health and biomedical informatics activities in the Middle East. Last, but not least, IMIA’s internal organization is being adapted in order to better meet future demands.

Conclusions:
Finding the right balance between continuity and transition, in order to appropriately support, stimulate, and, to some extent, enable high-quality translational communication, research, education, and practice in biomedical and health informatics continues to be a key challenge of IMIA.
Health Informatics: Building Capacity Worldwide. Editorial
Authors: Kulikowski C. A. , Geissbuhler Antoine 
Published: March 2018

Summary

Objectives:
To provide an editorial introduction to the 2010 IMIA Yearbook of Medical Informatics with an overview of its contents and contributors.

Methods:
A brief overview of the main theme, and an outline of the purposes, contents, format, and acknowledgment of contributions for the 2010 IMIA Yearbook.

Results:
This 2010 issue of the IMIA Yearbook highlights important developments in the building of workforce capacity in medical informatics worldwide, covering activities in research, education and practice in this interdisciplinary field. Progress towards educating and keeping professionals in the field up-to-date is complemented by outreach to the wide range of disciplines and biomedical and health specialties that are covered by this very broad field, identified from the recent literature, illustrated by selected papers published during the past 12 months.xs

Conclusion:
Reviews and Surveys of the main research sub-fields in biomedical informatics in the Yearbook provide an overview of progress and current challenges across the spectrum of the discipline.
A Bio-medical Informatics Perspective on Human Factors
Authors: Meyer R. ,   Section Editor for the IMIA Yearbook Section on Human Factors
Published: March 2018

Summary

Objectives:
to select and summarize excellent research papers published in 2009 in the field of human factors in bio-medical informatics.

Methods:
we attempt to derive a synthetic overview of the activity and new trends in this field, from a selection of research papers published in 2009.

Results:
it is possible to identify commonalities in this diverse domain: healthcare information technologies (HIT) adoption still occupies a central role in the fieldwith research focused mainly on measuring impact and influence of this adoption.

Conclusion:
The HIT community is giving birth to interdisciplinary research and clear methods to optimize implementation and subsequent achievement of managerial objectives. It also tries to synthesize the major findings in workshops, meetings and networks. The best paper selection of articles on human factors shows examples of excellent research on methods concerning original options to assess the importance of healthcare personnel psycho-sociology when confronted to the adoption of new tools and process which still does not prevent failures but will help learning from them.
Distributed Biomedical Terminology Development: From Experiments to Open Process
Authors: Chute C. G. 
Published: March 2018

Summary

Objective:
Can social computing efforts materially alter the distributed creation and maintenance of complex biomedical terminologies and ontologies; a review of distributed authoring history and status.

Background:
Social computing projects, such as Wikipedia, have dramatically altered the perception and reality of large-scale content projects and the labor required to create and maintain them. Health terminologies have become large, complex, interdependent content artifacts of increasing importance to biomedical research and the communities understanding of biology, medicine, and optimal healthcare practices. The question naturally arises as to whether social computing models and distributed authoring platforms can be applied to the voluntary, distributed authoring of high-quality terminologies and ontologies.

Methods:
An historical review of distributed authoring developments.

Results:
The trajectory of description logic-driven authoring tools, group process, and web-based platforms suggests that public distributed authoring is likely feasible and practical; however, no compelling example on the order of Wikipedia is yet extant. Nevertheless, several projects, including the Gene Ontology and the new revision of the International Classification of Disease (ICD-11) hold promise.
Education and Consumer Informatics
Authors: Boyer C. ,   Section Editor for the IMIA Yearbook Section on Education and Consumer Informatics
Published: March 2018

Summary

Objectives:
To evaluate the extent to which the Internet is accessed for health information and perceived as useful to varying groups classified primarily according to age.

Method:
Synopsis of the articles on education and consumer health informatics selected for the IMIA Yearbook of Medical Informatics 2010.

Results:
A growing number of individuals are actively seeking health information through a varying selection of resources. The Internet is now seen as a major source of health information alongside with books and other means of paper-based literature. However, it is not clear how the Internet is perceived by varied groups such as those coming from differing age groups.

Conclusion:
The papers selected attempt to obtain a better understanding about how the public perceives and uses the Internet as an information gathering tool—especially for health information. The papers also explore into how the Internet is used by different groups of people. As all online health information is not of uniform quality, it is important to access and rely on quality medical information. This issue is also dealt with, where the popularity of Wikipedia is measured with the popularity of reliable web sources such as Medline Plus and NHS Direct.
Health Capacity Development Through Telemedicine in Africa
Authors: Mars M. 
Published: March 2018

Summary

Objective:
The aim of this paper is to identify and report the issues facing human capacity development through the use of telemedicine in Sub-Saharan Africa.

Methods:
Data were obtained through literature review and personal observation.

Results:
Sub-Saharan Africa has a great burden of disease and an extreme shortage of health workers. Its countries are poor and the majority of its population rural. Telemedicine for clinical practice and education of health workers is seen as a possible means of addressing some of the health problems of Africa. A number of factors have been identified that impede the use of telemedicine in sub-Saharan Africa. These include, poverty, shortage of human resources, very limited existing infrastructure, lack of connectivity, high connectivity costs, lack of capacity development and policy issues. Examples of successful use of telemedicine and tele-educational programmes in Africa to develop capacity in health are given.

Conclusions:
Initiatives to develop capacity through tele-education appear to have been well received and are more successful than clinical telemedicine. There is need to raise awareness of telemedicine if it is to assist in developing ehealth capacity in Africa.
mHealth - an Ultimate Platform to Serve the Unserved
Authors: Akter S. , Ray P. 
Published: March 2018

Summary

Objectives:
To summarize major current developments and research in the field of mobile health (mHealth) services.

Methods:
Reports on the unique characteristics of mHealth platform and its role in delivering health services to the resource poor settings. Also, it evaluates different mHealth applications and identifies key success factors and challenges.

Results and Conclusion:
mHealth, based on the most ubiquitous and widely accepted technology, offers an unprecedented opportunity to serve the unserved by right time medical information services. There is growing evidence that it has already transformed healthcare delivery in many resource poor settings through its low cost, high reach and versatile applications. However, challenges still remain with regard to the development of consumer centric solutions, and services quality in terms of knowledge and competence of the provider, integration of the information systems and interoperability of the information services. Additional problems arise from the collaboration, partnership and regulation perspectives. There are noticeable trends towards solutions for these problems.