bluuebunny/crossref_metadata_2025_split huggingface dataset:
Community-Based Chronic Disease Prevention and Management for Aboriginal People in New South Wales, Australia: Mixed Methods Evaluation of the 1 Deadly Step Program
Authors: Peiris David , Wright Lachlan , News Madeline , Corcoran Katherine 
Published: August 2019

Background
Chronic diseases account for over 70% of health gaps between Aboriginal people and the rest of the Australian population. The 1 Deadly Step program involves community-based events that use a sporting platform and cultural ambassadors to improve chronic disease prevention and management in New South Wales (NSW).

Objective
This study aimed to evaluate the feasibility and acceptability of a community-based chronic disease screening program for Aboriginal people.

Methods
In 2015, the program was enhanced to include an iPad app for screening assessments, a results portal for nominated care providers, and a reporting portal for program administrators and implemented in 9 NSW community events. A mixed methods evaluation comprising survey data, analytics obtained from iPad and Web portal usage, and key informant interviews was conducted.

Results
Overall, 1046 people were screened between April 2015 and April 2016 (mean age 40.3 years, 640 (61.19%) female, 957 (91.49%) Aboriginal or Torres Strait Islander). High chronic disease rates were observed (231 [22.08%] participants at high cardiovascular disease (CVD) risk, 173 [16.54%] with diabetes, and 181 [17.30%] with albuminuria). A minority at high risk of CVD (99/231 [42.9%]) and with diabetes (73/173 [42.2%]) were meeting guideline-recommended management goals. Overall, 297 participants completed surveys (response rate 37.4%) with 85.1% reporting satisfaction with event organization and information gained and 6.1% experiencing problems with certain screening activities. Furthermore, 21 interviews were conducted. A strong local working group and processes that harnessed community social networks were key to implementation success. Although software enhancements facilitated screening and data management, some technical difficulties (eg, time delays in processing blood test results) impeded smooth processing of information. Only 51.43% of participants had a medical review recorded postevent with wide intersite variability (10.5%-85.6%). Factors associated with successful follow-up included clinic managers with overall program responsibility and availability of medical staff for immediate discussion of results on event day. The program was considered highly resource intensive to implement and support from a central coordinating body and integration with existing operational processes was essential.

Conclusions
1 Deadly Step offers an effective and acceptable strategy to engage Aboriginal communities in chronic disease screening. High rates of risk factors and management gaps were encountered, including people with no previous knowledge of these issues. Strategies to improve linkage to primary care could enhance the program’s impact on reducing chronic disease burden.
Investigating the Use of Mobile Health Interventions in Vulnerable Populations for Cardiovascular Disease Management: Scoping Review
Authors: Wali Sahr , Hussain-Shamsy Neesha , Ross Heather , Cafazzo Joseph 
Published: August 2019

Background
Cardiovascular disease (CVD) has grown to become one of the leading causes of mortality worldwide. The advancements of CVD-related treatments have led to a decline in CVD prevalence among individuals in high-income countries (HICs). However, these improvements do not reflect the state of individuals in low- and middle-income countries (LMICs) and vulnerable subgroup populations in HICs, such as the Indigenous. To help minimize the health disparities in these populations, technology-based interventions have been offered as a potential solution, but there is concern regarding if they will be effective, or even needed, as these tools have been designed for use in HICs.

Objective
The objective of this study was to explore how mobile health (mHealth) interventions currently assist individuals in Indigenous communities and LMICs with CVD management.

Methods
A scoping review guided by the methods outlined by Arksey and O’Malley was conducted. A comprehensive search was completed by 2 reviewers in 5 electronic databases using keywords related to mobile health, cardiovascular disease, self-care, Indigenous communities, and LMICs. Studies were screened over 2 rounds and critically reviewed using a descriptive-analytical narrative method. Descriptive data were categorized into thematic groups reflecting the major findings related to the study objective.

Results
We identified a total of 11 original articles and 11 review papers that met the criteria for this scoping review. The majority of the studies included a telemonitoring- and text messaging (short message service, SMS)–related feature associated with the intervention. The use of SMS was the most common approach to effectively promote disease management among individuals in both LMICs and Indigenous communities. However, customizing for cultural considerations within the design of the intervention was highlighted as a pivotal component to encourage CVD management. Specifically, individuals emphasized that the inclusion of collaborative partnerships with community members would strengthen the effectiveness of the intervention by ensuring it was designed with the appropriate context.

Conclusions
Technology-based interventions used within Indigenous communities and LMICs have shown their potential to assist individuals with managing their condition. Although the literature available regarding this topic is limited, this review outlines key components to promote the effective use of these tools in the context of these vulnerable populations.
The Extent and Coverage of Current Knowledge of Connected Health: Systematic Mapping Study
Authors: Karampela Maria , Isomursu Minna , Porat Talya , Maramis Christos , Mountford Nicola , Giunti Guido , Chouvarda Ioanna , Lehocki Fedor 
Published: August 2019

Background
This study examines the development of the connected health (CH) research landscape with a view to providing an overview of the existing CH research. The research field of CH has experienced rapid growth coinciding with increasing pressure on health care systems to become more proactive and patient centered.

Objective
This study aimed to assess the extent and coverage of the current body of knowledge in CH. In doing so, we sought to identify specific topics that have drawn the attention of CH researchers and to identify research gaps, in particular those offering opportunities for further interdisciplinary research.

Methods
A systematic mapping study that combined scientific contributions from research in the disciplines of medicine, business, computer science, and engineering was used. Overall, seven classification criteria were used to analyze the papers, including publication source, publication year, research type, empirical type, contribution type, research topic, and the medical condition studied.

Results
The search resulted in 208 papers that were analyzed by a multidisciplinary group of researchers. The results indicated a slow start for CH research but showed a more recent steady upswing since 2013. The majority of papers proposed health care solutions (77/208, 37.0%) or evaluated CH approaches (49/208, 23.5%). Case studies (59/208, 28.3%) and experiments (55/208, 26.4%) were the most popular forms of scientific validation used. Diabetes, cancer, multiple sclerosis, and heart conditions were among the most prevalent medical conditions studied.

Conclusions
We conclude that CH research has become an established field of research that has grown over the last five years. The results of this study indicate a focus on technology-driven research with a strong contribution from medicine, whereas the business aspects of CH have received less research attention.
Comparing Characteristics of Patients Who Connect Their iPhones to an Electronic Health Records System Versus Patients Who Connect Without Personal Devices: Cohort Study
Authors: Gordon William J , Bates David W , Fuchs Daniel , Pappas John , Silacci Sara , Landman Adam 
Published: August 2019

Background
While individual access to health records has traditionally been through paper and other physical media, there has been a recent push toward digitizing this process. Direct patient access to health data through application programming interfaces (APIs) is an important part of current United States policy initiatives, and Apple has created the product “Health Records on iPhone” to leverage APIs for this purpose.

Objective
The objective of this study was to examine the characteristics of patients at our institution who connected their personal iPhone devices to our electronic health records (EHRs) system through “Health Records on iPhone”, as compared to patients at our institution who used our patient portal but did not connect a personal device to our system.

Methods
We examined adult patients at our institution who had authorized an iPhone device to download their health data from the Partners HealthCare EHR via APIs through “Health Records on iPhone” from February 18, 2018 (the date this feature was enabled at our health system) until February 17, 2019. We compared these patients to adult patients who used our portal at least once during this period but did not authorize an iPhone device to download their data via APIs.

Results
Variables associated with an increased likelihood of using “Health Records on iPhone” included male gender (adjusted OR 3.36; 95% CI 3.11-3.62; P<.001) and younger age, particularly below 50 years of age. With each decade of age over 50, people were less likely to be “Health Records on iPhone” product users. Asian patients were more likely to use the product than Caucasian patients (adjusted OR 1.32; 95% CI 1.16-1.51; P<.001), though there was no significant difference between African Americans and Caucasians (adjusted OR 1.15; 95% CI 0.94-1.41; P=.17). Patients who resided in higher ZIP code income quartiles were more likely to be users than those in the lowest quartile.

Conclusions
Early results from the implementation of patient-facing APIs at a single institution suggest that there are opportunities for expanding these technologies to ensure all patients are aware of, and have access to, their health data on their personal devices. More work is needed on expanding these technologies to different patient populations.
Development and Implementation of a Nurse-Led Model of Care Coordination to Provide Health-Sector Continuity of Care for People With Multimorbidity: Protocol for a Mixed Methods Study
Authors: Davis Kate M , Eckert Marion C , Shakib Sepehr , Harmon Joanne , Hutchinson Amanda D , Sharplin Greg , Caughey Gillian E 
Published: August 2019

Background
Innovative strategies are required to reduce care fragmentation for people with multimorbidity. Coordinated models of health care delivery need to be adopted to deliver consumer-centered continuity of care. Nurse-led services have emerged over the past 20 years as evidence-based structured models of care delivery, providing a range of positive and coordinated health care outcomes. Although nurse-led services are effective in a range of clinical settings, strategies to improve continuity of care across the secondary and primary health care sectors for people with multimorbidity have not been examined.

Objective
To implement a nurse-led model of care coordination from a multidisciplinary outpatient setting and provide continuity of care between the secondary and primary health care sectors for people with multimorbidity.

Methods
This action research mixed methods study will have two phases. Phase 1 includes a systematic review, stakeholder forums, and validation workshop to collaboratively develop a model of care for a nurse-led care coordination service. Phase 2, through a series of iterative action research cycles, will implement a nurse-led model of care coordination in a multidisciplinary outpatient setting. Three to five iterative action research cycles will allow the model to be refined and further developed with multiple data collection points throughout.

Results
Pilot implementation of the model of care coordination commenced in October 2018. Formal study recruitment commenced in May 2019 and the intervention and follow-up phases are ongoing. The results of the data analysis are expected to be available by March 2020.

Conclusions
Nursing, clinician, and patient outcomes and experiences with the nurse-led model of care coordination will provide a template to improve continuity of care between the secondary and primary health care systems. The model template may provide a future pathway for implementation of nurse-led services both nationally and internationally.

International Registered Report Identifier (IRRID)
DERR1-10.2196/15006
Psychiatric Illness and Mortality in Hospitalized ESKD Dialysis Patients
Authors: Kimmel Paul L. , Fwu Chyng-Wen , Abbott Kevin C. , Moxey-Mims Marva M. , Mendley Susan , Norton Jenna M. , Eggers Paul W. 
Published: August 2019

Background and objectives
Limited existing data on psychiatric illness in ESKD patients suggest these diseases are common and burdensome, but under-recognized in clinical practice.

Design, setting, participants, & measurements
We examined hospitalizations with psychiatric diagnoses using inpatient claims from the first year of ESKD in adult and pediatric Medicare recipients who initiated treatment from 1996 to 2013. We assessed associations between hospitalizations with psychiatric diagnoses and all-cause death after discharge in adult dialysis patients using multivariable-adjusted Cox proportional hazards regression models.

Results
In the first ESKD year, 72% of elderly adults, 66% of adults and 64% of children had at least one hospitalization. Approximately 2% of adults and 1% of children were hospitalized with a primary psychiatric diagnosis. The most common primary psychiatric diagnoses were depression/affective disorder in adults and children, and organic disorders/dementias in elderly adults. Prevalence of hospitalizations with psychiatric diagnoses increased over time across groups, primarily from secondary diagnoses. 19% of elderly adults, 25% of adults and 15% of children were hospitalized with a secondary psychiatric diagnosis. Hazards ratios of all-cause death were higher in all dialysis adults hospitalized with either primary (1.29; 1.26 to 1.32) or secondary (1.11; 1.10 to 1.12) psychiatric diagnoses than in those hospitalized without psychiatric diagnoses.

Conclusions
Hospitalizations with psychiatric diagnoses are common in pediatric and adult ESKD patients, and are associated with subsequent higher mortality, compared with hospitalizations without psychiatric diagnoses. The prevalence of hospitalizations with psychiatric diagnoses likely underestimates the burden of mental illness in the population.
THE ROLE OF LOCAL GOVERNMENT IN REALIZING SUSTAINABLE MARINE TOURISM IN PEMUTERAN VILLAGE GEROKGAK SUB DISTRICT BULELENG BALI PROVINCE
Authors: Sanjiwani Ni Made Gandhi 
Published: August 2019

This paper aims to study the role of local government in realizing sustainable marine tourism. Pemuteran Village is one of the best practices of sustainable marine tourism in the developing world. Three types of government roles were studied, namely: regulator, facilitator, and of executor.. These roles were positioned as exogenous latent variables in a causal relationship with sustainable marine tourism in the village. Sustainability is measured through reflective constructs, i.e. economic benefit, socio-cultural benefit, and environmental benefit felt by the local community of Pemuteran Village. The data were collected from 60 respondents, consisting of community leaders, non-governmental organizations, and tourism industry stakeholders in Pemuteran Village. Then, questionnaires were analyzed by structural equation modelling—partial least square (path modelling). The results show that the government roles did not have a significant effect on marine tourism sustainability. However, the role of local government and the existence of marine tourism sustainability were reflected significantly in its three constructs where the most represented construct in this relationship respectively are the role of facilitator and the environmental benefit. The most important finding in this research is that the role of local government was not only measured by regulator and facilitator roles, as in previous research, but includes analysis of the executor role. which proved significant in structural model evaluationone of the best practices of sustainable marine tourism — – partial least square (path modelling). The results show that the government roles did not have aprove significantly aeffect on marine tourism sustainability. However, the role of local government and the existence of marine tourism sustainability were reflected significantly in its three constructs where the most represented construct in this relationship respectively are the role of facilitator and the environmental benefit. The most important finding in this research is that the role of local government waswere not only measured throughtby regulator and facilitator roles, as inthe previous research did, but includes analysisalso of the by executor role. which is proved significantly in its structural model evaluation
Entrevistarte: experiência, arte e contemporaneidade
Authors: Hack Lilian , Raniere Édio , Maraschin Cleci 
Published: August 2019

O artigo explora ressonâncias entre arte e psicologia. Em métodos tradicionais de pesquisa a entrevista com artistas aparece, quase sempre, como fonte primária de informação. Nesses a explicação da obra torna-se o grande objetivo do pesquisador. Ao artista restaria um saber implícito, desgovernado, e por vezes incoerente sobre aquilo que ele mesmo criou. Saber que seria desvelado, explicitado, revelado pelo crítico/pesquisador. A aposta deste trabalho é de que a Entrevista de Explicitação, técnica desenvolvida pelo psicólogo francês Pierre Vermesch, seja uma importante contribuição, nesse sentido, às pesquisas em arte. Afinal, o que aconteceria se à entrevista coubesse cartografar o processo de criação, ou se, em meio às investigações, o crítico mantivesse sua escuta atenta ao Know How – saber como – enunciado pelo artista? Numa tentativa de aprofundar a problematização recorre-se a conceitos de Thierry De Duve, Varela, Thompson e Rosch, bem como dos artistas Allan Kaprow e Robert Smithson.
تاثير زيادة ارتفاع بدن السيارة على القوى الديناهوائية المتولدة
Authors: صادق عزيز حسين  , عادل كاظم ماشاف  
Published: August 2019

في هذا البحث تم دراسة تغيير ارتفاع بدن السيارة نسبة الى مستوى الطريق والذي يتم فعلهُ من قبل بعض الاشخاص بصورة غير مدروسة في كثير من الاحيان. ان أسباب إجراء هذا التغيير قد تكون مختلفة لكن من دون وعي بالاثار السلبية الناتجة من هكذا تغيير خصوصا تلك التي لها علاقة بالقوى الديناهوائية المتولدة. لاجراء الدراسة, تم استخدام نفق هوائي مثبت في داخله موديل لسيارة سيدان Sedan يوفر قابلية لتغيير مستوى ارتفاع بدنهُ بسهولة لعدة قيم. كـما تم استخدام سرع خطية مختلفة للهواء. وقد استخدمت بعض الطرق الاحصائية مثل طريقة تحليل العاملية العامة General Full Factorial Method وتحليل التباين Analysis of Variance تم استخدامهما لاستقراء النتائج بصورة واضحة. اثبتت النتائج ان قوة الكبح تزداد بصورة كبيرة عند زيادة ارتفاع المركبة بالاخص في النقطة الامامية الا وهي نقطة الركود, مما قد يؤشر لتاثير سلبي على عمليات صرف الوقود والتلوث البيئي المصاحب.
Sick building syndrome (SBS)دراﺴﺔ اﻟﺘﺄﺜﯿر اﻟﺤﻀري ﻋﻠﻰ ظﻬور اﻋراض ﻤﺘﻼزﻤﺔ اﻟﻤﺒﺎﻨﻲ اﻟﻤرﯿﻀﺔ في محافظة ديالى
Authors: عامر محمد ابراهيم  , عدنان نعمة عبد الرضا  , سرمد قاسم محمد  
Published: August 2019

اُجريت هذه الدراسة في محافظة ديالى للفترة بين 1/10/2014 ولغاية 1/3/ 2015، شملت مناطق حضرية ومناطق ريفية واخرى في طور التحول، بهدف التعرف على تأثير البيئة الحضرية في اعراض متلازمة المباني المريضةSick building syndrome (SBS). تضمنت الدراسة توزيع 150 استمارة استبيان وبصورة عشوائية تحتوي على الجنس ومجموعة من الأعراض المرضية والتي تشير الى وجود بيئة مريضة ، بواقع 50 استمارة لكل منطقة.
بينت نتائج الدراسة الحالية إن اعراض SBSكانت اكثر وضوحاً واكثر شيوعاً لدى غالبية سكان المنطقة الحضرية في حين كانت اقل لدى سكان المنطقة الوسطية وكانت قليلة جداً لدى سكان المنطقة الريفية. واشارت الدراسة ان اسباب تأثر الحضر بأعراض الــSBS يعود الى ارتفاع نسب الملوثات الغازية الناتجة عن حركة وسائط النقل والمنشآت الصناعية والاستعمال الواسع للمنظفات والمطهرات و المبيدات في الاماكن المغلقة و التصميم المعماري للمبنى الذي لا يراعي شروط التهوية الكافية و مواد البناء ذات التأثير السلبي على البيئة. فضلاً عن قلة وجود الغطاء الخضري . واشارت الدراسة الى تأثر الجنس الانثوي بأعراض SBS بصورة اكبر وهذا يعود لأسباب فسيولوجية ، ويمكن أن يكون بسبب ميل النساء الى البقاء دائماً في الاماكن المغلقة بسبب طبيعة العمل والواجبات المنزلية .
Echocardiographic score for prediction of pulmonary hypertension at catheterization: the Daunia Heart Failure Registry
Authors: Correale Michele , Tricarico Lucia , Padovano Giuseppina , Ferraretti Armando , Monaco Ilenia , Musci Rita L. , Galgano Giuseppe , Di Biase Matteo , Brunetti Natale D. 
Published: August 2019

Background
Right heart catheterization (RHC) is recommended by guidelines for the diagnosis of pulmonary hypertension, the definition of hemodynamic impairment and responsiveness to drug therapy. However, RHC is an invasive test with associated risk of complications. Noninvasive echocardiographic tools, possibly predictive of pulmonary hypertension at RHC, could be therefore extremely useful.

Methods
Sixty-four consecutive patients with suspected pulmonary hypertension were enrolled in the study and assessed by echocardiography and RHC. Diagnosis of pulmonary hypertension was based on mean pulmonary artery pressure (≥25 mmHg) at RHC.

Results
Of 64 consecutive patients enrolled, 77% were diagnosed as having pulmonary hypertension after RHC. On the basis of significant differences between patients with pulmonary hypertension at RHC and those without on echocardiographic assessment, a multiple logistic regression model was constructed to predict the presence of pulmonary hypertension at RHC. The score was calculated using right atrium and ventricular diastolic area, tricuspid regurgitation V
max, tricuspid regurgitation severity degree and left ventricular ejection fraction. The score area under the curve was therefore 0.786 (P = 0.0001), higher than for tricuspid regurgitation V
max (P = 0.06). A score value more than 57 was associated with a 93% sensitivity, a 67% specificity, a 91% positive predictive power, a 73% negative predictive power, and an odds ratio 27 (P < 0.001) of pulmonary hypertension at RHC, significant even after correction at multivariable analysis. Accuracy of the prediction model was assessed in a validation cohort with comparable results (P = n.s.).

Conclusion
A simple noninvasive echocardiographic score can be useful in predicting the diagnosis of pulmonary hypertension at RHC and may be considered for the selection of patients who should undergo or could avoid RHC.