bluuebunny/crossref_metadata_2025_split huggingface dataset:
Electronic Video Consent to Power Precision Health Research: A Pilot Cohort Study
Authors: Naeim Arash , Dry Sarah , Elashoff David , Xie Zhuoer , Petruse Antonia , Magyar Clara , Johansen Liliana , Werre Gabriela , Lajonchere Clara , Wenger Neil 
Published: June 2021

Background
Developing innovative, efficient, and institutionally scalable biospecimen consent for remnant tissue that meets the National Institutes of Health consent guidelines for genomic and molecular analysis is essential for precision medicine efforts in cancer.

Objective
This study aims to pilot-test an electronic video consent that individuals could complete largely on their own.

Methods
The University of California, Los Angeles developed a video consenting approach designed to be comprehensive yet fast (around 5 minutes) for providing universal consent for remnant biospecimen collection for research. The approach was piloted in 175 patients who were coming in for routine services in laboratory medicine, radiology, oncology, and hospital admissions. The pilot yielded 164 completed postconsent surveys. The pilot assessed the usefulness, ease, and trustworthiness of the video consent. In addition, we explored drivers for opting in or opting out.

Results
The pilot demonstrated that the electronic video consent was well received by patients, with high scores for usefulness, ease, and trustworthiness even among patients that opted out of participation. The revised more animated video pilot test in phase 2 was better received in terms of ease of use (P=.005) and the ability to understand the information (P<.001). There were significant differences between those who opted in and opted out in their beliefs concerning the usefulness of tissue, trusting researchers, the importance of contributing to science, and privacy risk (P<.001). The results showed that “I trust researchers to use leftover biological specimens to promote the public’s health” and “Sharing a biological sample for research is safe because of the privacy protections in place” discriminated opt-in statuses were the strongest predictors (both areas under the curve were 0.88). Privacy concerns seemed universal in individuals who opted out.

Conclusions
Efforts to better educate the community may be needed to help overcome some of the barriers in engaging individuals to participate in precision health initiatives.
STATUS PEWARISAN TRANSEKSUAL DALAM PERSPEKTIF HUKUM WARIS ADAT MINANGKABAU
Authors: Dewi Judiasih Sonny , Feronia Salim Elycia , Putri Andany Hidayat Agitha , Kurniawan Cynthia , Meirizka Rifny , Anandini Firsty 
Published: May 2021

Abstrak
Seiring perkembangan zaman, dewasa ini terdapat orang yang berkeinginan mengubah jenis kelaminnya yang disebut sebagai transeksual. Faktor yang menyebabkan seseorang menjadi transeksual selain dari faktor hormonal dapat juga terjadi karena pengaruh faktor lingkungan. Dalam hal ini akan menimbulkan masalah dalam segala aspek hukum dan bidang kehidupan salah satunya terkait dengan pewarisan bagi transeksual. Di Indonesia, eksistensi hukum adat terutama dalam hal waris masih diakui. Masyarakat adat khususnya adat Minangkabau yang menjunjung tinggi nilai-nilai dan norma agama Islam tentunya menolak keberadaan transeksual di lingkungan mereka dan dengan ditolaknya keberadaan transeksual di Adat Minangkabau, transeksual tidak berhak dalam pewarisan dalam waris adat khususnya di Minangkabau. Tujuan dari penulisan ini adalah untuk mengetahui, menjelaskan dan menganalisis tentang pewarisan transeksual dalam Hukum Waris Adat Minangkabau.
Kata Kunci : agama, hukum adat, hukum waris, transeksual
Abstract
Along with the times, there are people who wants to change their sex, which is called transsexual. Factor that cause a person to become transsexual aside from hormonal factors can also occur due to the influence of environmental factors. On the other hand returning to norms and religion is considered to violate the norms and values of custom and religion, in this case, it will cause problems in all aspects of law and life, one of which is related to inheritance for transsexual. In Indonesia, the existence of Adat Law esspecialy in heir matter still recognized. Indigenous peoples especially Adat Minangkabau, who uphold Islamic religious values and norms naturally reject the existence of transsexual in their environment. There fore, transsexual are not entitled to inhertitance in Adat Minangkau in inheritance. The purpose in this paper is to find out, explain, and analyze abput transsexual inhertitance in Minangkabau Adat Law.
Keyword : adat law, inheritance adat law, religion, transsexual
Identidades y ensamblajes afectivos en juventudes de minorías sexuales y de género
Authors: Lozano-Verduzco Ignacio 
Published: June 2021

En este artículo se discuten algunos elementos teóricos y empíricos sobre la noción de identidad, juventudes y experiencia para problematizar la existencia de un sujeto epistemológico y político de juventudes de minorías sexuales y de género (JMSG) desde la articulación de las normas del género, sus discursos y sus fuerzas institucionales. Se discuten las posibilidades de existencia de este sujeto y se recupera la noción de ensamblajes afectivos, para trabajarla en su cruce con la vida en línea que nos proporcionan las tecnologías de la información y comunicación (TIC), para identificar una topografía y una estética específica de intervención psicosocial con grupos de estas minorías, bajo el afán de construir y de reconocer su sujeto epistemológico y político, y así proponer formas de acción política que atiendan sus necesidad y sus demandas.
Social inequality and youth: key trends of 2020
Authors: Osipova N. G. , Elishev S. O. 
Published: May 2021

The paper deals with the analysis of one of the most important and always relevant social phenomena called social inequality, which is viewed through the prism of youth ideas about the forms of its manifestation and features. The authors present the results of a sociological study aimed at identifying the attitude of modern Russian youth to the problem of social inequality in general, as well as the diversification of its forms in the modern world and in Russia. The study was conducted in 2020 by professors of the Sociological Faculty of Lomonosov Moscow State University under the direction of Doctor of Sociological Sciences Professor N.G. Osipova and Doctor of Sociological Sciences, Professor S.O. Elishev with the Financial support of the RFBR, within the framework of the project No. 18-011-01106 “New forms of social inequality and the peculiarities of their manifestation in modern Russia”.In the course of the study in the summer of 2020, 628 young people (aged 16 to 30) from different regions of Russia were interviewed using the online questionnaire survey method. The distribution of respondents by gender and occupation corresponds to the parameters of graduates of humanitarian universities. 28% of young people surveyed were males, and 72% were females. 9% of the respondents (that is, more than half of them) were young people aged 20 to 24 years, 24,84% — from 16 to 19 years old, 12,26% — from 25 to 30 years old.The research methodology (which is based on the questionnaire) was in many ways similar to the methodology used by the authors in 2019 to analyze the value orientations and perceptions of student youth in Moscow universities. This methodology was supplemented with new blocks of questions related to the peculiarities and specifics of the manifestation in Russia of such relatively new forms of social inequality as digital divide and inequality in health. The questions to which the answers were received were of both general and specific nature and, in general, reflected the key trends in the attitude of young people to the problem of social inequality in the conditions of the complex social situation that developed in 2020 in all respects. A detailed analysis of the answers to the questions presented in the questionnaire showed that, although social inequality is recognized by modern Russian youth as an urgent social problem, it does not occupy a key place among the topical problems for Russian youth.
Postmortem diagnoses of spinal ataxia in 316 horses in California
Authors: Hales Erin N. , Aleman Monica , Marquardt Sabin A. , Katzman Scott A. , Woolard Kevin D. , Miller Andrew D. , Finno Carrie J. 
Published: June 2021

Abstract

OBJECTIVE
To determine period prevalences of postmortem diagnoses for spinal cord or vertebral column lesions as underlying causes of ataxia (spinal ataxia) in horses.

ANIMALS
2,861 client-owned horses (316 with ataxia [ataxic group] and 2,545 without ataxia [control group]).

PROCEDURES
The medical records database of the University of California-Davis Veterinary Medical Teaching Hospital was searched to identify horses necropsied between January 1, 2005, and December 31, 2017. Results were compared between the ataxic and control groups and between various groups of horses in the ataxic group. Period prevalences were determined for the most common causes of ataxia.

RESULTS
2,861 horses underwent full necropsy, and the period prevalences for the most common definitive diagnoses for ataxia were 2.7% (77/2,861) for cervical vertebral compressive myelopathy (CVCM), 1.3% (38/2,861) for equine neuroaxonal dystrophy or equine degenerative myeloencephalopathy (eNAD-EDM), and 0.9% (25/2,861) for trauma; the period prevalence of ataxia of unknown origin was 2.0% (56/2,861). Horses in the ataxic group (vs the control group) were more likely to have been warmblood horses (OR, 2.70) and less likely to have been Arabian horses (OR, 0.53). In the ataxic group, horses < 5 (vs ≥ 5) years of age had greater odds of CVCM (OR, 2.82) or eNAD-EDM (OR, 6.17) versus trauma or ataxia of unknown origin. Horses in the ataxic group with CVCM were more likely Thoroughbreds (OR, 2.54), whereas horses with eNAD-EDM were more likely American Quarter Horses (OR, 2.95) and less likely Thoroughbreds (OR, 0.11).

CONCLUSIONS AND CLINICAL RELEVANCE
Results indicated that breed distributions differed for horses with CVCM versus eNAD-EDM; therefore, breed should be considered in the clinical evaluation of spinal ataxia in horses.
Hardware Implementation of a Takagi-Sugeno Neuro-Fuzzy System Optimized by a Population Algorithm
Authors: Dziwiński Piotr , Przybył Andrzej , Trippner Paweł , Paszkowski Józef , Hayashi Yoichi 
Published: June 2021

Abstract
Over the last several decades, neuro-fuzzy systems (NFS) have been widely analyzed and described in the literature because of their many advantages. They can model the uncertainty characteristic of human reasoning and the possibility of a universal approximation. These properties allow, for example, for the implementation of nonlinear control and modeling systems of better quality than would be possible with the use of classical methods. However, according to the authors, the number of NFS applications deployed so far is not large enough. This is because the implementation of NFS on typical digital platforms, such as, for example, microcontrollers, has not led to sufficiently high performance. On the other hand, the world literature describes many cases of NFS hardware implementation in programmable gate arrays (FPGAs) offering sufficiently high performance. Unfortunately, the complexity and cost of such systems were so high that the solutions were not very successful. This paper proposes a method of the hardware implementation of MRBF-TS systems. Such systems are created by modifying a subclass of Takagi-Sugeno (TS) fuzzy-neural structures, i.e. the NFS group functionally equivalent to networks with radial basis functions (RBF). The structure of the MRBF-TS is designed to be well suited to the implementation on an FPGA. Thanks to this, it is possible to obtain both very high computing efficiency and high accuracy with relatively low consumption of hardware resources. This paper describes both, the method of implementing MRBFTS type structures on the FPGA and the method of designing such structures based on the population algorithm. The described solution allows for the implementation of control or modeling systems, the implementation of which was impossible so far due to technical or economic reasons.
Bulk composition of a zoned rare-earth minerals-bearing pegmatite in the Pikes Peak granite batholith near Wellington Lake, central Colorado, U.S.A.
Authors: Raschke Markus B. , Stern Charles R. , Anderson Evan J. D. , Alexandra Skewes M. , Lang Farmer G. , Allaz Julien M. , Persson Philip M. 
Published: June 2021

ABSTRACT
A previously undescribed small lenticular (~5 × 5 × 5 m) pegmatite, located near Wellington Lake in the NW part of the 1.08 Ga ‘A-type’ (anorogenic) ferroan Pikes Peak granite batholith, ~15 km SW of the South Platte pegmatite district in central Colorado, is concentrically zoned around a mostly monomineralic quartz core with interconnected miarolitic cavities. Major constituents of the Wellington Lake pegmatite are quartz, perthitic microcline, albite (variety cleavelandite), hematite, and biotite. Accessory minerals include fluocerite, bastnäsite, columbite, zircon (var. ‘cyrtolite’), thorite, and secondary U phases. Fluorite is conspicuously absent, although it is a common phase in the South Platte district NYF-type pegmatites, which are rich in niobium (Nb), yttrium (Y), fluorine (F), and heavy rare-earth elements (HREE). Notable for the Wellington Lake pegmatite are a small quantity of well-developed tabular crystals of fluocerite that reach up to 4 cm in diameter, with sub-mm epitaxial bastnäsite overgrowths, suggesting formation from F- and CO2-bearing solutions rich in light rare-earth elements (LREE), with decreasing a(F-)/a(CO32-) during the last crystallization phase. An Nd-isotope value of εNd1.08Ga = -1.6 for the fluocerite is within the range of εNd1.08Ga = -0.2 to -2.7 of the host coarse-grained, pink K-series Pikes Peak Granite (PPG), indicating that REE and other pegmatite constituents derived from the parental PPG magma. A calculation of total pegmatite composition based on whole-rock chemistry and volume estimates of the different pegmatite zones reveals an overall composition similar to the PPG with respect to Si, Al, Na, and K. Yet the pegmatite is depleted in Fe, Mg, Ca, Ti, Mn, and P, the high-field-strength elements (HFSE; Zr, Hf, Nb, Y, Th), and, most significantly, total REE compared to the PPG. Despite containing the LREE minerals fluocerite and bastnäsite, the lack of a net overall REE enrichment of the pegmatite compared to the PPG reflects the large amount of REE-poor silicate minerals forming the wall, intermediate, and core zones of the pegmatite. The calculated total pegmatite composition suggests that the pegmatite formed by the separation from the PPG magma of an F-poor H2O-saturated silicate melt depleted in REE and HFSE compared to the F-rich melts, which formed the NYF-type HREE-rich (LaN/YbN &lt; 1) pegmatites in the South Platte district. Homogenization temperatures of &lt; 500°C for possibly primary fluid inclusions in large quartz crystals from the core of the Wellington Lake pegmatite are consistent with recent models of pegmatite petrogenesis leading to nucleation controlled mega-crystal growth resulting from supercooling.
Language education: communicative tolerance as a component of communicative competence
Authors: Baldanova Evgeniya Anatol'evna , Dondokova Nataliya Bal'zhinimaevna 
Published: May 2021

The subject of the study is language education as teaching a foreign language; the object of the study are the concepts of "competence" and "competence". The authors consider the views of foreign and domestic scientists and researchers on the content of the categories "competence" and "competence" and give their comparative analysis. Special attention is paid to the components of key competencies, namely communicative competence. Such aspects as "communicative competence" and "communicative tolerance" are analyzed. Communicative competence includes not only knowledge of languages, but also knowledge of various social roles in the team and the ability to communicate. The role of the discipline "Foreign languages" in the formation of communicative competence and communicative tolerance of students is emphasized. В The main conclusion of the study is that communicative tolerance is a component of communicative competence. It is necessary to purposefully educate students' communicative competence, as students' communicative readiness for tolerant communication with interaction partners. When teaching students a foreign language, a communicative competence is formed, aimed at mastering the ability of students to tolerant communication. The scientific novelty of the research lies in the fact that communicative competence includes not only knowledge of languages, but also possession of various social roles in the team and the ability to communicate tolerantly. The proposed analysis will be of interest to specialists in the field of scientific research of the nature of the categories "competence" and "competence".
Long-term prognosis and predictors of outcomes after childhood convulsive status epilepticus
Authors: Surana Snehal , Pujar Suresh 
Published: June 2021

Objective:Childhood convulsive status epilepticus (CSE) is widely known to be associated with short-term and long-term mortality and morbidity, but the role of CSE itself on adverse outcomes is debatable. The additional effect of CSE characteristics on outcomes after CSE and whether prolonged seizures cause any long-term hippocampal injury which leads to developmental or memory impairment is uncertain. This review provides an overview of long-term prognosis after childhood CSE, highlighting data from recent literature.Findings:In previously normal children, the long-term prognosis after childhood CSE is favorable, with low incidence of epilepsy, motor, and cognitive difficulties. Mesial temporal sclerosis is uncommon in children after prolonged febrile seizures. In children with symptomatic causes and those with pre-existing neurological abnormalities, there is substantial morbidity after childhood CSE. Etiology is the primary determinant of outcome after childhood CSE and the additional effect of CSE characteristics such as seizure duration seems to be less than previously believed.
Politique commerciale extérieure : quel rôle pour les assemblées parlementaires ? Le cas des États-Unis et de l’Union Européenne
Authors: Bricart Vincent 
Published: May 2021

Depuis le début des années 2010, une série de nouveaux accords ou de processus de négociations commerciaux entre de grands blocs géographiques ont émergé dans le monde. L’Union Européenne (UE) et les États-Unis ont à ce titre joué un rôle de premier plan dans ces initiatives et dans leurs proliférations. Face à l’impact grandissant de la globalisation sur le quotidien des citoyens, les assemblées législatives tendent à s’impliquer progressivement dans ces processus diplomatiques et à gagner en importance et en visibilité dans leur fonction vis-à-vis de ces accords. Si bien qu’aujourd’hui, toute personne s’intéressant de près ou de loin à l’étude des accords commerciaux ne peut plus ignorer le rôle qu’y jouent les parlements des États impliqués dans ces processus. Les négociations du Partenariat Transatlantique de Commerce et d’Investissement (TTIP), de l’Accord Économique et Commercial Global (CETA) et de l’Accord de Partenariat Transpacifique (TPP) représentent ainsi de bons indicateurs du rôle, des atouts et des limites que les interventions d’un parlement dans un processus de négociation peuvent rencontrer en fonction du contexte politique ou institutionnel et de l’appui de l’opinion publique. Le Parlement européen et le Congrès américain constituent respectivement des assemblées législatives relativement puissantes, représentant un nombre de citoyens conséquent et ayant d’importantes prérogatives constitutionnelles ou institutionnelles en matière commerciale, mais évoluant dans des cadres significativement différents. Via leurs outils institutionnels et à travers des pressions formelles et informelles de la part de ces deux pouvoirs législatifs, les exécutifs se retrouvent souvent contraints de prendre en compte certaines revendications des parlementaires faisant voix aux revendications d’une partie de la société civile. À défaut, le risque de voir une négociation échouer faute de ratification de l’accord par le pouvoir législatif est important. Néanmoins, l’influence du pouvoir législatif n’est pas la même pour chaque négociation et le contexte de celle-ci va dès lors jouer un rôle important pour en déterminer l’amplitude et la visibilité d’une assemblée dans ces différents processus.
« Tintin au Congo » devant les prétoires : Que peut signifier l’interdiction d’un héros de bande-dessinée belge ?
Authors: Vespa Vincent 
Published: May 2021

La bande dessinée « Tintin au Congo » a soulevé ces derniers temps de nombreuses critiques. Éditée en 1931 et rééditée en 1946, certains passages subissent aujourd’hui le courroux de personnes jugeant l’ouvrage raciste et xénophobe. Dès lors, on peut s’interroger sur les significations d’une interdiction de cette bande-dessinée en Belgique ? Tel est l’objectif du présent article. Après avoir précisé les faits ayant remis l’ouvrage au cœur de l’actualité belge et internationale, les enjeux politiques d’une telle interdiction sont exposés. La liberté d’expression, la concurrence mémorielle – et son pendant, l’oubli –, ainsi que la reconnaissance des torts commis au « Congo Belge » sont successivement passés en revue. Ensuite, trois enjeux mémoriels liés à cette interdiction sont présentés : la négation de la représentation coloniale, la position du gouvernement congolais et les effets d’une jurisprudence interdisant une telle bande-dessinée. Enfin, en précisant l’époque à laquelle a été conçu « Tintin au Congo », la conclusion revient sur les idées paternalistes des années 1930 tout en insistant sur l’intérêt d’un tel ouvrage, reflétant un imaginaire colonial et pouvant constituer un outil pédagogique pour les jeunes générations.
Reliability and Validity of the Functional Movement Screen™ with a Modified Scoring System for Young Adults with Low Back Pain
Authors: Alkhathami Khalid , Alshehre Yousef , Wang-Price Sharon , Brizzolara Kelli 
Published: June 2021

Background Low back pain (LBP) is one of the most common complaints in individuals who seek medical care and is a leading cause of movement impairments. The Functional Movement Screen (FMS™) was developed to evaluate neuromuscular impairments during movement. However, the reliability and validity of the FMS™ have not yet been established for the LBP population because of a limitation of its original scoring system. Purpose The purposes of this study were to determine the reliability and validity of the FMS™ with a modified scoring system in young adults with and without LBP. The FMS™ scores were modified by assigning a zero score only when there was an increase in LBP during the FMS™, not simply for the presence of pain, as in the original FMS™ scoring system. Study Design Reliability and validity study. Methods Twenty-two participants with LBP (8 males and 14 females, 26.7 ± 4.68 years old) and 22 age- and gender-matched participants without LBP (26.64 ± 4.20 years old) completed the study. Each participant performed the FMS™ once while being scored simultaneously and independently by two investigators. In addition, each participant’s FMS™ performance was video-recorded and then was scored by another two investigators separately. The video-recorded performance also was scored twice six weeks apart by the same investigator to determine intra-rater reliability. Results The results showed excellent inter-rater and intra-rater reliability of the FMS™ composite score with intraclass correlation coefficients ranging from 0.93 to 0.99 for both groups. In addition, the LBP group scored significantly lower than the group without LBP (p = 0.008). Conclusions The results indicate that the FMS™ is able to distinguish between individuals with and without LBP, and that it could be a useful test for clinicians to quantify movement quality and to assess movement restrictions in individuals with LBP. Levels of Evidence 2b.