bluuebunny/crossref_metadata_2025_split huggingface dataset:
STORY CIRCLES AS A METHODOLOGY: A PILOT STUDY EXPLORING COGNITIVE PROBLEMS IN AGING
Authors: Sweeder Logan A , Hill Nikki , Whitaker Emily , Tiwari Anushka , Doan William 
Published: November 2019

Abstract
A Story Circle refers to a group of individuals in a comfortable social environment sharing personal experiences through stories to explore problems shared by a community and facilitate artistic representation of experiences of interest. In this pilot study, we examined the feasibility of Story Circles to facilitate qualitative inquiry of the experience of cognitive problems among older adults. A convenience sample of six cognitively intact, community-dwelling older adults (M=72.5; SD=5.09 years; 83% female) with self-reported cognitive complaints participated in a 90-minute Story Circle as well as a follow-up phone call. Each shared a personal story of experiencing a cognitive complaint and related these experiences to those shared by others in relation to a prompt provided by the group facilitator. Participants reported enjoying the Story Circle experience (M=8.5/10; 10 = extremely positive) and interest in participating in future Story Circles (M=9.3/10; 10 = extremely likely). Common themes included a sense of community established during the group that persisted after its conclusion as well as a normalization of the experience of occasional cognitive problems. Story Circles may be a useful data collection method to enhance understanding of complex phenomena within a social context.
THE IMPACT OF PARTICIPATION IN SOCIAL HEALTH NETWORKS
Authors: Faul Anna , Huff Mona , Cotton Samantha G , Yankeelov Pamela , D’Ambrosio Joe , Austin Megan 
Published: November 2019

Abstract
Stress and compassionate fatigue are common among graduate level students working in healthcare professions, however, few studies focus on preventative self-care and its’ impact on these learners. As part the University of Louisville’s Behavioral Health Workforce Enhancement Training Program (BHWET), graduate students are trained to work with older adults in rural communities. The focus of our BHWET program is to provide holistic, behavioral health care through our FlourishCare Network. As part of the student’s weekly curriculum, an interdisciplinary group of learners from counseling psychology, social work and psychiatric nursing were invited to the attend the sessions were invited to participate in a 2-semester Microclinics and Health Matters course that was designed to promote self-care and harness the power of social networks to promote health. A total of 15 students completed the program. Biomarkers including BMI, Cholesterol, A1C, Blood Pressure were taken every week time the course was offered. Cortisol levels were taken every 4 months to measure stress levels. Across the initial 12 weeks of programming, there were positive outcomes for the participants in terms of either maintenance of healthy goals or biomarkers. Additionally, the program had an impact on the older adult clients that were being served by the students compared to students that did not participant. In a review of the plan of care items, which is central to our work with FlourishCare clients, plan of care items showed a stronger focus on connecting clients to social health interventions and a stronger connection to education about health-related content.
IS ME IMPORTANT TO US? ACTOR AND PARTNER EFFECTS OF SELF-ACCEPTANCE ON SPOUSAL SUPPORT
Authors: Lee Kyuho 
Published: November 2019

Abstract
Marital relationship is influenced by substantial and perceived support exchange. Therefore, it is important to find predictors of support-giving and support-receiving. However, very few studies attempted to do so. As some previous studies reported, individuals’ personality-related characteristics seem to play a significant role in the support exchange within couples. This study aimed to assess the effect of individuals’ self-acceptance on support exchange within older couples. Data of 2,082 heterosexual older couples aged between 50 and 85 in 2006 from the Health and Retirement Study were assessed utilizing an actor-partner inter-dependence model and growth curve model. For the actor effects, both husbands’ and wives’ higher levels of self-acceptance predicted their own perception of the support from a spouse. For the partner effects as well, individuals’ self-acceptance positively predicted their spouse’s perception of the received support. Husbands’ self-acceptance, however, was associated with a decrease in wives’ perceived support. We discuss the possible mechanism with regard to older adults’ self-acceptance and marital support. The findings of the current study contribute to the theories of spousal support and personality as well as in the practical settings of couple therapy and education.
INCREASING THE POWER OF INTERGENERATIONAL NETWORKS: ADVANCING A NEW EVALUATION TOOL
Authors: Jarrott Shannon , Juckett Lisa A , Naar Jill Juris 
Published: November 2019

Abstract
According to a 2018 national survey of intergenerational (IG) care providers, practitioners identified as their number one concern a need for evidence-informed evaluation tools to demonstrate their impact on older and younger participants. The Best Practices Checklist is a 14-item (yes/no) measure grounded in evidence of effective intergenerational strategies. Trained evaluators complete the checklist based on their observations of facilitators’ behaviors during IG activities. Exploratory factor analysis (promax rotation) of the Checklist for 132 IG activities offers insight to factor structure and item construction. An adequate two-factor structure was achieved; seven Checklist items were retained with factor loadings greater than .39. Seven items were deleted due to non-variance, high missing data, or double loading across factors. Factors reflect dimensions of: (a) person-centered strategies (e.g. selecting activities based on participants’ interests) and (b) creating a positive physical environment (e.g., grouping participants into intergenerational pairs or small groups). Findings indicate that a Best Practices Checklist with fewer items may offer a suitable tool for assessing the utilization of Best Practices during IG activities. Given the demand for IG evaluation tools, the 7-item BP Checklist can be a brief, easy-to-use measure that documents IG facilitators’ implementation of evidence-informed practices. Its use could be especially helpful if connected to varied indicators of program effectiveness and participant outcomes.
SERVING UNDERSERVED VETERANS AND THEIR CAREGIVER: DEVELOPING TAILORED CULTURALLY RELEVANT INTERVENTIONS
Authors: Freytes I Magaly , Magda Schmitzberger , Naiomi Rivera-Rivera , Janet Lopez , Daniela Mylott , Keryl Motta-Valencia , Uphold Constance R 
Published: November 2019

Abstract
Family members of stroke survivors experience high rates of depression and burden. The majority of stroke survivors return to their homes and need assistance to perform activities of daily living. These demands coupled with the lack of preparedness for their new roles lead to a high risk for developing depression and other negative outcomes among caregivers. Studies indicate that Hispanic caregivers report higher levels of depression compared to others. However, no interventions have focused on this population. Our objective is to develop culturally-relevant interventions to help reduce disparities Hispanic Veterans post-stroke and their caregivers. We tailored our Spanish RESCUE intervention for the Puerto Rican population. The goal of the problem-solving telephone support & educational intervention is to reduce caregiver burden and depressive symptoms by teaching them a creative and optimistic approach to solving caregiving related problems. The intervention was developed to reflect specific characteristics of the target population. To enhance the cultural relevance of the intervention, we used recommendations from Key Stakeholders and guidelines from authoritative sources such as: 1) involving persons from the target population in all phases of the project; 2) emphasizing themes valued by the PR culture; 3) assuring that the language and wording of the materials is at appropriate reading level; 4) using certified translators and Spanish-speaking experts, and 5) having Hispanic research members, fluent in Spanish, and knowledgeable about the PR culture conduct the intervention and assessments. The intervention is currently been tested in a RCT.
A DECADE OF STROKE CAREGIVER RESEARCH: THE RESCUE CREST STUDY
Authors: Uphold Constance R , Freytes I Magaly , Jennifer LeLaurin , Magda Schmitzberger , Eliazar-Macke Nathaniel , Orozco Tatiana , Klanchar S Angelina , Dang Stuti 
Published: November 2019

Abstract
Stroke caregivers need education and support to care for suddenly disabled family members. To address this need, we are conducting a nurse-led intervention, called RESCUE CREST, to teach caregivers problem-solving skills using an educational website and an online messaging center. In our first, preliminary study, we pre-tested an investigator-created, senior-friendly website called RESCUE (Resources and Education for Stroke Caregivers’ Understanding and Empowerment) using focus groups and interviews with clinicians and caregivers. We refined the website based on additional surveys, a cognitive usability study, and Webtrends analysis. In the second study, we used a single-group pre- and post-test design to evaluate the content and outcomes of the problem-solving intervention. Third, we conducted a four-arm RCT (4-week intervention, 8-week intervention, attention control, standard care) to refine our methods. We will describe the lessons learned and results of our 10 years of stroke caregiver research that provide background for the RESCUE CREST study.
SOCIAL ENGAGEMENT MEDIATES THE ASSOCIATION BETWEEN ROLE OVERLOAD AND NIGHTTIME AWAKENING OF DEMENTIA CAREGIVERS
Authors: Liang Jiaming , Aranda Maria P , Lloyd Donald 
Published: November 2019

Abstract
Caregivers tend to report role overload and nighttime awakening given the burden of caregiving. Previous research has not explored the association between role overload and nighttime awakening among dementia caregivers. Social engagement has been found to be associated with physical and psychological health outcomes of caregivers. Thus, the present study aims to examine whether role overload is associated with nighttime awakening of dementia caregivers and whether social engagement will mediate the association. We conducted a cross-sectional study by using the 2015 National Health and Aging Trends Study (NHATS) and National Study of Caregiving (NSOC). Six-hundred-and-sixty-nine dementia caregivers were included in the analysis. Relevant factors were controlled as covariates including age, gender, race/ethnicity, etc. Nearly 45% of participants reported suffering from nighttime awakening at “some” or “more” nights within one month, among which half of them reported “almost” or “every” night. Role overload was found associated with caregivers’ nighttime awakening (β=.135, 95%CI: .094 to.176, p&lt;.001). The mediated model shows 7.4% of association between role overload and nighttime awakening could be explained by the mediation of social engagement (β= .010, 95%CI: 0.99x10-2 to 1.01x10-2, p&lt;.05). The study suggests that dementia caregivers with high levels of role overload tend to experience nighttime awakening more than those who reported low role overload. A modest mediated effect indicates that role overload of dementia caregivers can predict their nighttime awakening partly through decreasing their social engagement. Other factors and longitudinal models shall be discussed to further explore the theoretical mechanisms of caregiver stress.
PATH ANALYSIS OF EDUCATION AND DISEASE BURDEN IN DEMENTIA VULNERABILITY
Authors: Hubner Sarah B , Kim Hyeon Jung , Boron Julie Blaskewicz 
Published: November 2019

Abstract
When considering the various extrinsic variables that may affect disease vulnerability, it is valuable to study temporal ordering of factors to identify areas for disease intervention efforts. This study sought to inform improvement of networks for the purposes of education and health by attempting to better define the causal ordering of ethnicity, age, gender, education, disease burden, and dementia diagnosis with the Aging, Demographics, and Memory Study, a sub-study of the Health and Retirement Study. Participants and/or proxies self-reported total number of chronic conditions, subsequently regarded as disease burden. Assessments occurred over four waves; participants were not reassessed after dementia diagnosis. The current study categorized participants as demented (n=414), identified in any wave, or normal (n=117), identified in the final wave. Cognitively-impaired-not-demented and deceased participants were not considered due to lack of diagnosis. Cross-sectional weighting was used. A path model was developed; ethnicity, age, and gender were antecedent to education, and education was casually ordered before disease burden, which was antecedent to dementia diagnosis. A series of logistic and linear regression analyses were conducted. Results revealed that being non-white (Σβ=0.643, all p’s&lt;.001), of older age (Σβ=0.250, all p’s&lt;.001), female (Σβ=0.180, all p’s&lt;.001), and having increased disease burden (Σβ=0.118, p&lt;.001) all demonstrated a positive total effect on dementia diagnosis. Conversely, more years of education (Σβ=-0.245, p&lt;.001) had a negative total effect on diagnosis. The education to disease burden pathway was non-significant. Ultimately, these results may indicate a need for dementia interventions that target those with low education or high disease burden.
IDENTIFY THE BARRIERS THAT FAMILY CAREGIVERS FACE IN MANAGING PATIENTS’ PAIN: A LITERATURE REVIEW
Authors: Chi Nai-Ching , Fu Ying-Kai , Barani Emelia , Summerson Elizabeth 
Published: November 2019

Abstract
Most Americans enrolled in palliative and hospice care receive care at home and thus rely on their family caregivers (FCs) to manage their pain. However, FCs encounter many barriers to pain management. Previous studies focused on barriers faced by FCs of cancer patients. However, as palliative and hospice care evolves, the populations and diagnoses become diverse, and more barriers have been identified. Hence, the purpose of this study is to comprehensively investigate FCs’ barriers to pain management. A literature review was conducted to search available articles published before June 2018 in databases including PubMed, CINAHL, PsycINFO, and Scopus. Search strategies used index and keyword methods. The inclusion criteria were peer-reviewed, research studies published in English that explored barriers that FCs faced in managing pain. Eighty-six studied were identified: 76% of the studies focused on cancer pain and 6% focused on dementia pain. The identified barriers included: (1) caregivers’ limited knowledge in drug/non-drug pain management and verbal/non-verbal pain assessment; (2) caregivers’ issues (e.g. function, fear of analgesic, misbeliefs in pain management); (c) caregivers’ organizational skills (treatment recording and tracking); (d) patients’ issues (e.g. inability to verbalize pain); (e) communication issues with care teams. This is one of the few literature reviews that comprehensively investigate the barriers that family caregivers experience beyond cancer pain management. The results can be used to develop a screening questionnaire for palliative and hospice providers to assess and resolve FCs’ barriers to pain management, thereby improving the quality of pain management and patients’ and FCs’ outcomes.
BURDEN OF POTENTIALLY INAPPROPRIATE MEDICATIONS AMONG OLDER VETERANS WITH PAIN AND DEMENTIA
Authors: Allore Heather , Gnjidic Danijela , Han Ling 
Published: November 2019

Abstract
Among 115,869 Veterans ≥65 years old with a history of moderate to severe musculoskeletal pain (numerical pain intensity rating ≥4) admitted to Veterans Health Administration hospitals in fiscal year 2013, we tested whether medication use is potentially inappropriate (defined using the 2015 Beers Criteria; categorized as central nervous system (CNS) or other drugs) according to Alzheimer’s Disease and Related Dementias (ADRD) status based on ICD-9 codes. We used Poisson regression to estimate the association of the number of CNS Beers Criteria drugs (anticholinergics, antidepressants, antipsychotics, benzodiazepines, sedative hypnotics, pain medications, and opioids) and other Beers Criteria drugs according to ADRD status. The mean age of the cohort at the index hospital admission was 74.5 (SD 8.2), with 19.0% having ADRD and a Charlson comorbidity index of 3.9±3.0. After adjusting for age, sex, race/ethnicity, marital status, body mass index, 16 diagnostic criteria for pain and chronic conditions, mental health conditions and use of other system Beers Criteria drugs, we found that the mean number of CNS Beers Criteria drugs were 25% higher among Veterans with ADRD, with an adjusted risk ratio (aRR) of 1.25 (95% CI 1.23, 1.27; P &lt;.0001). On the other hand, the mean number of other Beers Criteria drugs appeared to be 2% lower among ADRD group compared with inpatients without ADRD (aRR: 0.98 (95% CI: 0.97, 0.99), p&lt;0.004). Clinicians need to be aware of potential side effects of using CNS Beers drugs in people with ADRD and whether there are alternatives to their use.
PAIN, AFFECT, AND OBJECTIVE ACTIVITY LEVELS IN OLDER ADULTS WITH OSTEOARTHRITIS
Authors: Behrens Emily A , DeCaro Jason A , Smith Dylan M , Parmelee Patricia A 
Published: November 2019

Abstract
This research examined the relation between physical activity, pain, and mood among older adults with osteoarthritis (OA). Physical activity is associated with long-term maintenance of function in persons with chronic pain (Dunlop et al., 2014), but less is known about the association between objective measures of activity and transient mood states. Therefore, we captured the activity and mood levels of 218 older adults with knee OA over a seven-day period. Wrist and waist accelerometers captured small and large motor movements. Self-reported momentary pain and affect were collected through phone calls four times daily. We examined average and peak activity levels over the 4-hour windows between self-reports. Cross-sectionally, there was no association between momentary pain and activity. Average large motor movement was positively associated with positive affect and negatively associated with negative affect. Analyses revealed one association between affect and average previous activity; small motor movements predicted greater positive affect. Peak levels of both movements predicted greater positive affect, but only peak wrist activity predicted negative affect. Peak small motor movement at the previous call was associated with both positive and negative affect. These results provide insight into the unique contributions of small and large motor activity to mood and pain states. It appears that average large motor movements and prior small motor activity may have the greatest impact on momentary affect. Further study of distinct activity types and mood will be important for understanding and improving the quality of life among individuals diagnosed with OA (Supported by R01-AG041655).
CAN HEART DISEASE SELF-MANAGEMENT EDUCATION ALSO REDUCE PAIN INTERFERENCE IN AFRICAN AMERICAN OLDER ADULTS?
Authors: Janevic Mary R , Allgood Kristi , Ramsay Jessica , Hogan Cainnear , Courser Rebecca , Connell Cathleen M 
Published: November 2019

Abstract
Many older adults with heart disease, especially those from vulnerable populations, live with chronic pain. Self-management strategies for reducing cardiovascular risk (e.g., physical activity, stress reduction) are also recommended for management of chronic pain. It is not known, however, whether self-management education focused on heart health has a beneficial “side effect” on pain-related outcomes. We explored this possibility using data from a randomized controlled trial (n=405) of Take Heart, a group intervention adapted for low-income, African American adults 50 and over with heart disease or significant risk factors. We first assessed the sample prevalence of high-impact chronic pain; i.e., substantial pain-related disability in one or more life domains (National Pain Strategy, 2016). Next, we assessed whether participation in Take Heart resulted in decreased pain interference (PROMIS-29). One-third of participants (n=131) met criteria for high impact chronic pain. Mean pain interference T-score in the entire sample at baseline was 58.1 (SD=9.9), indicating a score one standard deviation greater than population average. Compared to controls, intervention participants had a greater, but non-significant, improvement in pain interference (0.7 vs. -0.8; p=.11). Overall, findings demonstrate that African American adults with cardiovascular conditions have a high burden of comorbid pain. This pain was not greatly improved by an intervention that taught key chronic disease self-management skills but did not address pain specifically. Future research can test whether incorporating pain-management content into heart disease education has a stronger impact on improving pain outcomes -- which may, in turn, promote adherence to behaviors to reduce cardiovascular risk.
IS THERE A RELATIONSHIP BETWEEN PAIN AND FEAR OF FALLING IN OLDER ADULTS LIVING IN LONG-TERM CARE FACILITIES?
Authors: Vieira Edgar R , Tavares Diego , Nobrega Particia , Maciel Alvaro 
Published: November 2019

Abstract
Fear of falling is common in older adults and it is associated with multiple factors such as gait and balance issues, difficulties in activities of daily living, visual impairment, and frailty. Unfortunately, fear of falls increases the risk of falls as opposed to protect from falls. Pain can impair mobility, affects activities of daily living, and may also be associated with fear of falling but no studies have evaluated this potential association. The objectives of this study were to evaluate if there was an association between pain and fear of falling in older adults living in long-term care facilities. One hundred and eight older adults living in long-term care facilities participated in the study. The mean age was 79±7 years, and 65% of the participants were women. The participants completed the Geriatric Pain Measure (GPM) questionnaire for multidimensional pain assessment (scores range from 0 to 42), and the Falls Efficacy Scale International (FES-I) for fear of falling assessment (scores range from 16 to 64). The data was analyzed using multiple linear regression. Forty-five percent of the participants had chronic pain (≥3 months) and 18% had acute pain (&lt;3 months). Pain scores were 29±31. Pain was associated with an increase of 3 to 7 points (out of 64 max) in the FES-I. The prevalence of pain in long-term care residents was high, and pain was associated with increased fear of falling.