bluuebunny/crossref_metadata_2025_split huggingface dataset:
Developing Country-Specific Question Prompt Lists About Dementia Palliative Care for Family Caregivers
Authors: Bavelaar Laura , van der Steen Jenny , Nicula Maria , Morris Sophie , Kaasalainen Sharon , Achterberg Wilco , Brazil Kevin 
Published: December 2020

Abstract
We aimed to develop question prompt lists for family caregivers of nursing home residents with advanced dementia to augment advance care planning conversations. In the context of a joint European-Canadian study, we used standardized nominal group methods to create country-specific lists of questions. (Bereaved) family caregivers of persons with dementia read an information booklet about end-of-life care for people with dementia, and generated questions to ask healthcare professionals. They also marked the most important questions from pre-selected questions from other lists. In the Netherlands, 20 participants contributed to a question prompt list of 24 questions that gravitated towards questions about terminating life and the responsibilities of physicians and family involved in decision making. In Canada, 4 participants came up with a question prompt list of 15 questions, related mostly to staff-family communication, with some the same as selected in the Netherlands. Data from the other countries will be presented too.
Profile of Older Adults Who Received Wound Care by a Family Caregiver: The NHATS-NSOC 2017
Authors: Hathaway Zachary , Granche Janeway , Coates Martha , Sefcik Justine , Neidrauer Michael , Lewin Peter , DiMaria-Ghalili Rose Ann 
Published: December 2020

Abstract
A gap in knowledge exists related to the socio-demographic and health characteristics of older adults receiving wound care from a family caregiver in the home. We created a cohort (N=992) of older adults from NHATS who lived in the community or residential care (non-nursing home) and had a family caregiver complete the NSOC question “provides help with skin care related to wounds or sores”. Approximately one third (32%) of these older adults received wound care from a family caregiver. These older adults were more likely to be men, live with others, have lower levels of physical function, be malnourished (OR = 1.63 [95% CI = 1.02-2.60]), and have inflammation (hsCRP &gt; median 1.89), P &lt; .05. These findings can inform the needs of older adults receiving wound care from a family caregiver and lead to development of additional supports for caregivers (e.g., multi-component interventions).
Medical Student’s Perception of Dementia Assessment and Management Among Rural Veterans
Authors: Padala Prasad , Stovall Jessica , Kern Matthew , Curtis Jeremy , Boozer Eugenia , Lensing Shelly , Padala Kalpana 
Published: December 2020

Abstract
Background: Rural Veterans rely on their caregivers, case managers and primary care providers for dementia management. Providers of such patients need to work closely with caregivers, know the local dementia resources and be comfortable with the multiple facets of dementia assessment and management. Unfortunately, medical students are not particularly well trained in these aspects and huge knowledge gaps exist. The goal was to study the impact of a multi-component, experiential, brief curriculum on attitudes of dementia care. Methods: 108 medical students participated in a curriculum including didactics, clinical, and team-based learning followed by pre-post assessments. Results: Student’s perception of their ability to assess multiple facets of dementia such as behaviors, caregiver burden, and cognition improved significantly (p&lt;0.001). Students’ perception of the role of social worker improved significantly (p=0.002). Conclusion: An interdisciplinary curriculum, improved medical students’ perception of their ability to assess for dementia in a cohort of predominantly rural Veterans.
Smart Wearables in the Lens of Aging: Results From the ROAMM Study
Authors: Mardini Mamoun , Manini Todd , Schrack Jennifer 
Published: December 2020

Abstract
Continuous, long-term monitoring with remote capabilities using wearable technology is ideal for capturing information about patient/participant symptoms synced to sensor-based information. The Real-time Online Assessment and Mobility Monitor (ROAMM) is a smartwatch framework configured to collect data in free-living settings from both sensor-based (location and movement) and responses to symptom notifications through a visual display. The symposium presents the overall framework and preliminary findings from a demonstration study in older adults with knee osteoarthritis. Karnati will present the general framework of ROAMM explaining the data flow from the smartwatch to end users (clinicians and research). He will highlight components in the design that makes the framework unique and highly flexible to serve different studies with different research questions. Rouzaud evaluated satisfaction, usability and compliance wearing a smartwatch and using the ROAMM app. Participants were compliant to ecological prompts about pain, fatigue and mood three times a day (82.5% compliance rate). Additionally, &gt; 70% reported being satisfied with the function/usability and comfort with using ROAMM and wearing the smartwatch. Mardini examined the temporal relationship between ecological pain and derived life-space mobility features from Global Positioning System coordinates. Results suggested that higher level of knee pain in older adults was associated with lower life-space mobility. Manini examined physician perception towards an electronic health record (EHR) graphical interface of top ranked patient attributes of pain, falls, hydration and mobility patterns. Results indicated a relatively high level of usability of the EHR interface depicting smartwatch data.
Older Adults' Satisfaction and Compliance of Smartwatches Providing Ecological Momentary
Authors: Laborde Charlotte , Cenko Erta , Mardini Mamoun , Ranka Sanjay , Rashidi Parisa , Manini Todd 
Published: December 2020

Abstract
The objective of this study was to evaluate satisfaction, usability and compliance using the Real-Time, Online Assessment and Mobility Monitor (ROAMM) application designed for smartwatches. Twenty-eight older adults with knee osteoarthritis (66-88 years old) wore a Samsung Gear S3 smartwatch with ROAMM. While wearing the watch for 13.16 (±2.94) days, participants gave ecological momentary assessments (EMA) of pain intensity, mood and fatigue at random times in the morning, afternoon and evening. EMA compliance rate was 82.5%. Satisfaction ratings were high with 73% reporting being satisfied with the function, 78% reported being satisfied with the comfort and 73% reported as likely to use ROAMM on a daily basis for a one-year research study. Participants reported to reduce watch size and weight, style and increase battery life. Older adults were compliant to ecological assessment of their symptoms and reported positive usability and satisfaction of wearing a smartwatch and ROAMM app.
ActiviDaily: Turning Apathy Into Action in Neurodegenerative Disease
Authors: Massimo Lauren , Lydon Sean , Miller Alexander , Rascovsky Katya , Mechanic-Hamilton Dawn 
Published: December 2020

Abstract
Impairment of goal-directed behavior (GDB), often labeled apathy, is a common behavioral symptom in dementia. ActiviDaily is a novel mobile app that engages both patients and caregivers to increase GDB to improve everyday function. ActiviDaily targets key components of GDB (motivation, planning and initiation) and individualizes patient goals. Pilot testing in twelve patient/caregiver dyads occurred over 4 weeks of app use. Measures of behavior, everyday functioning, and psychological distress were assessed in a pre-post design. Goal Attainment Scaling (GAS) was used to establish individualized goals and measure progress on a standard scale. GAS showed that 79% of participants’ goals were met at or above expectations. Caregiver depression and stress were significantly reduced. There was also a reduction in ratings of patient apathy. ActiviDaily is an innovative intervention that individualizes treatment of apathy and has the potential to increase independence in day-to-day life and decrease caregiver burden.
WHO World Report on Hearing: Implications for the United States and the WHO Decade of Healthy Aging
Authors: Nieman Carrie 
Published: December 2020

Abstract
The past 5 years have seen incredible advances in approaching hearing loss as a major public health issue. National efforts include the 2015 President’ Council of Advisors on Science and Technology and the National Academies of Science, Engineering, & Medicine’s 2016 Commission on Hearing Health Care for Adults, which led to the 2017 OTC hearing aid legislation and the expected debut of OTC hearing aids in 2020-2021. The World Report on Hearing amplifies these efforts. This presentation will cover the role of the Report in the context of the rapidly evolving hearing care landscape in the US and how the Report’s call for affordable, accessible hearing care fit within current national efforts focused on older adults. Finally, the WHO recognized 2020-2030 as the Decade of Healthy Aging. We will discuss how the World Report on Hearing integrates with broader efforts to support healthy aging locally and globally.
World Health Report on Vision: Aging Implications for Global Vision and Eye Health
Authors: Swenor Bonnielin , Varadaraj Varshini , Lee Moon Jeong , Whitson Heather , Ramulu Pradeep 
Published: December 2020

Abstract
In 2019, the World Health Organization World Report on Vision estimated that that 2.2 billion people have a vision impairment, of which almost half could have been prevented or is yet to be addressed. As the global population ages and the prevalence of visual impairment increases, inequities in eye care and the downstream health and aging consequences of vision loss will become magnified. This session will: (1) provide key information regarding the burden of eye disease and visual impairment among older adults worldwide; (2) outline a framework created to conceptualize the aging and long-term health implications of vision loss, and (3) discuss the global public health challenges to eye care and to maximizing health for older adults with visual impairments.
Why Retirement and Age Discrimination Policies Need to Consider the Intersectional Experiences of Older Women
Authors: Button Patrick , Figinski Theodore , McLaughlin Joanne Song , Burn Ian 
Published: December 2020

Abstract
We summarize how older women face intersectional experiences that affect their retirement security. These include differential trends in aging, life expectancy, labor supply, work history, retirement savings, and poverty at old age. We also highlight research showing that older women experience significantly more age discrimination than older men. affecting the ability for older women to improve their retirement security by working longer. We demonstrate through examples that these differential trends and intersectional experiences of older women have important policy implications. We provide examples of how Social Security policies, such as increases in the full benefit retirement age and changes to the retirement earnings test, have differential effects on older women. We also discuss how age and gender employment discrimination law fails to protect older women from intersectional sex-plus-age discrimination. We conclude by urging policymakers to consider how older women experience different challenges and how policy should consider their unique experiences.
Responding to the Pandemic: An Update From the GSA COVID-19 Task Force
Authors: Hyer Kathryn , Sobczyk Elizabeth 
Published: December 2020

Abstract
The GSA COVID-19 Task Force was convened in March 2020 to address the needs of GSA members and older adults related to the COVID-19 pandemic. This interdisciplinary group of members represents physicians, nurses, social workers, psychologists, educators, and researchers with expertise in disaster preparedness, caregiving, trauma, HIV, vaccination, home health, long-term care, social isolation, motivation, and risk communication with older adults. In this symposium, Task Force members will share how they have advanced the areas of research, education, and practice related to the pandemic. Speakers will discuss the process of developing a COVID-19 research agenda and how that is moving forward. They will also share how Task Force members representing AGHE have been supporting members through listening sessions and the development of materials to assist with the transition to online teaching. Finally, speakers will provide updates on the several fact sheets, webinars, and a decision aid that have been developed to support GSA members and their work with older adults.
Sex Differences in Genetic Effects Using Two Gene Aggregation Techniques: Depression and Cognition
Authors: Ware Erin , Schmitz Lauren , Gard Arianna 
Published: December 2020

Abstract
The state of science has increasingly valued interdisciplinary training and research. As an early-stage investigator, interdisciplinary research, such as that supported by the Research Centers Collaborative Network through the National Institute on Aging, provides valuable opportunities to connect researchers across disciplinary boundaries. This program encourages researchers use their diverse training experiences to tackle difficult questions in aging research and forge scholarly relationship that advance the state of science through creative problem-solving and a spectrum of interdisciplinary perspectives. This presentation describes a recently funded project to examine sex differences in aging outcomes using genetics, depression, and impaired cognition with polygenic and gene-region aggregation techniques. We will highlight the benefits and opportunities of the Research Centers Collaborative Network pilot grant to this highly interdisciplinary work, co-lead by early-stage investigators.
Why Age and Aging Research Matters: A Chat With NIA Senior Leadership
Authors: Bernard Marie 
Published: December 2020

Abstract
The National Institute on Aging (NIA) at the National Institutes of Health, Department of Health and Human Services, is the federally designated lead agency on aging research, and has supported significant research on aging as a life-long process. In the last five years, NIA experienced a tripling of its budget. Although much of this funding is targeted to Alzheimer’s disease (AD) and AD related dementias (ADRD) research, there was an increase in funds allocated to non-AD research in keeping with the overall growth of NIH. This symposium will provide a forum for exploration of the implications of the budget increases for the general research community. It will involve NIA’s senior staff discussing research priorities and programs supported by the Institute. A question-and-answer session will follow brief introductory remarks on current funding and future priorities and research directions of NIA.
The Translational Geroscience Network: Supporting a New Paradigm to Alleviate Age-Related Chronic Disease
Authors: Justice Jamie , Kritchevsky Stephen , Kuchel George , Kirkland James 
Published: December 2020

Abstract
Aging is the leading risk factor for many chronic diseases. Through traditional approaches to drug development and treatment focus on treating one disease at a time, the geroscience hypothesis posits that by targeting fundamental aging processes one could alleviate multiple age-related diseases. Now several geroscience-guided interventions are at the point of entering human clinical trials. To accelerate testing of this important hypothesis, an interdisciplinary Translational Geroscience Network (TGN; R33 AG061456) has recently been established. The TGN is a new national resource of aging research centers committed to working together toward complementary, small-scale, proof-of-concept “use case” clinical studies. One such pilot will be highlighted: a translational trial of senolytics, or drugs targeting the biological aging process cellular senescence in patients with idiopathic pulmonary fibrosis. The promise of geroscience provides another reason “why age matters”: by studying the basic biology of aging, we may open novel therapeutic opportunities for challenging age-related diseases.
The Intersectionality of Ageism
Authors: Nash Paul , Taylor Tonya , Levy Becca 
Published: December 2020

Abstract
Ageism is unlike any other form of prejudice in that, all things being equal, we are all at risk of experiencing it as we age. Whilst this stands true, many communities experience discrimination in other domains such as gender, race, sexuality and disability. As these communities age they are likely to experience cumulative or intersectional disadvantage due to multiple stigmatized group memberships. Where it is understood that there are negative health (cognition, gait speed, longevity, cardiovascular) and psychological (depression, stress, anxiety) outcomes associated with each form of discrimination, the often focused research is less than conclusive regarding the consequences of intersectional discrimination. Using both qualitative and quantitative methodologies from across the US, this symposium explores the impacts of ageism with regard to HIV status, disability status, race/ethnicity and LGBT identification. Exploring the intersections of ageism, each paper will highlight the challenges faced by the respective communities as well as some of the ways to address this using policy, practice and highlighting where additional research would be needed to fully understand the phenomena. Finally the discussant will summarise and collate ideas for a concluding panel discussion.
Lessons Learned From Nonsignificant Findings in Exercise With Individuals With Dementia
Authors: Dawson Nicole , Menne Heather 
Published: December 2020

Abstract
The National Institute on Aging recognizes the importance of identifying promising non-pharmacological interventions (NPI) to promote health in individuals with Alzheimer’s disease and related dementias. Several systematic reviews have been completed investigating exercise in this population resulting in mixed evidence regarding efficacy across functional domains. It is critical to investigate the methodological factors from the original interventions for a true understanding of these findings as to not outright dismiss exercise as beneficial. One example is Ohio’s replication of Reducing Disability in Alzheimer’s Disease (n=508), which resulted in no significant improvements in physical performance for individuals with dementia ((gait speed (p=.81), balance (p=.82), functional reach (p=.58)). In this investigation, along with many others, researchers were not guided by key principles of exercise science leading to critical intervention design and methodological flaws. Thus, exercise interventions for individuals with dementia need to include interpretations of non-findings and report key factors affecting the outcomes.
Behavioral Health Screening in Geriatric Primary Care in the Deep South
Authors: Allen Rebecca , Halli-Tierney Anne , Carroll Dana , Albright Amy , Dragan Deanna , Bell Gregg , Cox Brian 
Published: December 2020

Abstract
Behavioral health screening by interprofessional teams practicing in outpatient geriatric primary care improves identification of patient cognitive functioning and emotional needs. On average, geriatrics clinic patients who consented to participate in research (N = 209; 74% women; 16.6% African American) were 76.7 years old. Patients had an average of 5.83 medical diagnoses. Only 26.2% of patients had scores indicating cognitive functioning within normal limits; 32.6% had scores indicative of mild neurocognitive disorder, and 41.2% had scores indicative of dementia at their baseline visit. Over 30% of patients reported clinically significant levels of depression or anxiety, and 16.5% of patients reported at least one indicator of hazardous alcohol use. Five-year longitudinal data analysis reveals multiple patient profiles. Behavioral health screening in primary geriatrics clinic care may help identify patient cognitive and emotional needs across time. Part of a symposium sponsored by the Mental Health Practice and Aging Interest Group.
Population and Health Policy Considerations
Authors: Robison Julie 
Published: December 2020

Abstract
The risk of death, disease, disability, hospitalization, institutionalization and high health care costs varies among individuals with increasing heterogeneity associated with aging. Frailty, physical performance measures, self-reported measures and multimorbidity all represent measures that are useful in helping to better define such heterogeneity at the level of populations and to ultimately define such risk in individuals. These higher risk individuals account for a growing proportion of this nation’s health care costs, with continued increases over time that appear unsustainable in the long term. Therefore, efforts to better define the nature of such heterogeneity of risk and improved targeting, with the goals of improving outcomes and reducing costs, are essential. A closely related challenge is to effectively translate proven clinical and health system interventions from the world of research to that of health policy and real-world clinical practice via pragmatic trials.
Design of REGARDS: A National Cohort of Black and White Adults to Study Disparities in Stroke and Cognitive Function
Authors: Howard Virginia , Cushman Mary , Wadley Virginia , Manly Jennifer , Judd Suzanne , Howard George 
Published: December 2020

Abstract
The REGARDS study enrolled 30,239 whites and blacks aged &gt;45 from 2003 – 2007, with oversampling of blacks and residents of the Stroke Belt. Potential participants were mailed a letter/brochure followed by telephone call. After verbal consent, telephone interview assessed cardiovascular health and cognitive function. In a home visit, measurements of risk factors, biological samples, EKG, written consent were obtained; during the in-home visit, self-administrated questionnaires were left to be completed and returned. Participants are followed for hospitalizations via telephone at 6-month intervals. Annually and biennially, brief and more comprehensive assessments of global cognitive function are conducted. Medical records for suspected strokes are collected with adjudication by stroke experts. A 2nd in-home and telephone assessment was conducted 2013-2016, approximately 10 years after baseline. This presentation will describe the methodological details of REGARDS, progress on the specific aims of the current grant, and establish the context for the remaining presentations.
How To Publish: Preparing Manuscripts for Clarity, Transparency, Scholarly Integrity, and Success
Authors: Meeks Suzanne 
Published: December 2020

Abstract
The GSA publications team sponsors this annual symposium to assist prospective authors to successfully publish their gerontological scholarship in GSA’s high impact and influential journals. The first part of the session will include five brief presentations from the Editors-in-chief of Journals of Gerontology-Series B, Social and Psychological Sciences, The Gerontologist, and Innovation in Aging, plus one of GSA’s managing editors. We will integrate practical tips with principles of publication ethics and scholarly integrity. The topics will be as follows: (1) preparing your manuscript, including how to choose the right journal; (2) strong and ethical scholarly writing for multidisciplinary audiences; (3) transparency, documentation, and Open Science; (4) successfully responding to reviews; and (5) working with Scholar One. Following these presentations, we will hold round table discussions with editors from the GSA journals portfolio. At these roundtables, editors will answer questions related to the podium presentations and other questions specific to each journal. Intended audiences include emerging and international scholars, and authors interested in learning more about best practices and tips for getting their scholarly work published.