bluuebunny/crossref_metadata_2025_split huggingface dataset:
Caregiver Health and Well-Being, and Financial Strain
Authors: Reinhard Susan , Feinberg Lynn 
Published: December 2020

Abstract
Family caregivers often face key challenges when caring for a relative or close friend with health or functional needs. This paper presents findings from Caregiving in the U.S. 2020 on the impact of caregiving on the physical health and well-being of family caregivers and the financial impacts of family care. The data suggest that the caregiver’s own health has declined, with 1 in 5 (21%) saying they are in fair to poor health themselves, up from 17 percent in 2015. Nearly 1 in 4 (23%) feel caregiving has made their health worse. Nearly 4 in 10 (38%) family caregivers of adults experience a moderate to a high degree of financial strain from providing care. Forty-five percent have experienced at least one financial impact (e.g., stopped savings, debt, ability to pay bills, and ability to afford necessary expenses, like food). These findings reveal that because family caregiving today is more complex, costly, and stressful than in the past, action is needed to recognize and support family caregivers in the U.S adequately.
Policy-Relevant Research and Media Communication
Authors: Herd Pamela 
Published: December 2020

Abstract
The second speaker is Dr. Pamela Herd, Professor of Public Policy at Georgetown University. Dr. Herd will discuss her approach to conducting innovative and impactful policy-relevant research, as well as her experience communicating research to policymakers and the public through op-eds and other forms of media. Dr. Herd’s research focuses on inequality and how it intersects with health, aging, and policy. She also has expertise in survey methods and administration. Her most recent book, Administrative Burden, was reviewed in the New York Review of Books. She has also published editorials in venues such as the New York Times and the Washington Post, as well as podcasts, including the Weeds, produced by Vox media.
Shining Light and Creating Solutions: Health and Social Needs of Older Affordable Housing Residents
Authors: Simon-Rusinowitz Lori , Mullins C Daniel , Morales Karen , Elliott Rodney , Raab Constance 
Published: December 2020

Abstract
Aging within a community requires access to health and social services. This project lays the groundwork for an innovative, three-part health and social services intervention intended to improve the health and well-being of older affordable housing residents in a low-income, vulnerable Baltimore neighborhood. We will report on the first part, an assessment of residents’ unmet health and social service needs and their ideas for meeting these needs. With guidance from a community advisory group of older residents (a key program component), we are conducting structured interviews with 50 elders to identify residents’ needs and interests. These findings will inform the next project segments: Part 2- exploring how the Village model (in which neighbors identify and offer needed services to help their neighbors age within a community) can be adapted for an affordable housing setting, and Part 3- adapting an evidence-based housing-plus-services model to meet older residents’ unmet needs.
Developing a Volunteer Education Initiative for Older Adults’ Health
Authors: Seidel Liz , Cortes Tara , John Cinnamon St 
Published: December 2020

Abstract
Older adults need sufficient information to make healthy decisions and be active participants in their healthcare. Yet there is often a lack of information available. The Bronx Health Corps (BHC) was created to meet this need by providing older adults with usable knowledge on managing health conditions and promoting healthy behaviors in community-based settings. The BHC trained 175 volunteers, educated 2,065 older adults, with a total attendance of &gt;5,000. Steps of creating a volunteer education initiative will be presented with qualitative and quantitative data utilization in implementation of the program. Focus groups with older adults noted challenges in addressing community health needs and the importance of reaching outside of healthcare settings to address the health of the community. Focus groups with Spanish speaking older adults and caregivers expanded knowledge on their attitudes toward the 4Ms and their ability to use that knowledge in interacting with their providers.
Triangulating Qualitative Methods to Evaluate Survivorship Care
Authors: Seaman Aaron , Saeidzadeh Seyedehtanaz , Chasco Emily , Lee Sangil , Kendell Nicholas , Reisinger Heather , Pagedar Nitin 
Published: December 2020

Abstract
With 16.9 million survivors in the US, survivorship is an increasingly important aspect of oncologic care. As the number increases, we need to provide evidence-based, standardized survivorship care, yet the evidence base is lacking and guidelines are variably implemented. This multi-sited study documented the survivorship care practices of five head and neck cancer (HNC) programs in order to identify survivorship care practices, provider preferences, practice variability, and the facilitators and barriers to effective survivorship care implementation. To ensure rich, contextual data, the study utilized multiple qualitative methods: 1) program characteristics questionnaire; 2) semi-structured interviews with providers involved in treatment and survivorship care, 3) on-site observation and clinic workflow mapping, and 4) collection of survivorship materials. Triangulating data collection provided evidence of potentially promising HNC survivorship care practices, aligned with the vision of comprehensive survivorship care, that can be used to evaluate practices and develop interventions on a larger scale.
Barriers and Facilitators to Integrating Family Caregivers Into the Healthcare Team
Authors: Friedman Esther , Tong Patricia 
Published: December 2020

Abstract
Recent changes in health care practices - shorter hospital stays, increased complexity of disease management, and greater management of chronic illnesses at home - have left family members increasingly responsible for medical tasks. Although these family caregivers represent the vital front line of care, they remain mostly excluded from the formal health care team. Based on interviews with multi-sector stakeholders representing patients/caregivers, providers, and payers, we identified several barriers to fully incorporating family caregivers into the health care team. They fall under five key themes: identification of caregivers; communication and information; time and resources; trust and cultural barriers; and Medicaid coverage. We discuss these barriers and potential solutions that could be undertaken by different stakeholder groups to improve family caregiver integration into the care team.
Implementing Non-Pharmacologic Interventions for People Living with Dementia in Long-Term Care Settings
Authors: Ihara Emily 
Published: December 2020

Abstract
Person-centered dementia care is a best practice recommendation by the Alzheimer’s Association, and non-pharmacologic interventions that emphasize well-being and quality of life as defined by the individual are important to preserve personhood. Non-pharmacologic, person-centered interventions have been shown to effectively address various neuropsychiatric symptoms, commonly known as behavioral and psychological symptoms in dementia (BPSD), which include a wide range of behaviors such as verbal or physical aggression, agitation, wandering, and pacing. Interventions that are focused on an individual’s holistic needs and preferences can stimulate positive emotions and behavior regardless of the stage of dementia. Person-centered care emphasizes a social model of care, rather than a medical model, by focusing on an individual’s emotional needs and care preferences that are consistent with their previous lifestyle. This symposium explores four different non-pharmacologic interventions for individuals living with dementia and discusses challenges and best practices for implementation in long-term care settings. For example, a best practice includes “buy-in” from facility staff who ultimately are responsible for implementing interventions that follow a social care model. A challenge found includes creating consistency and adherence to non-pharmacologic interventions so they are sustained over time, potentially replacing additional doses of medication. Symposium presenters will discuss the Mason Music & Memory Initiative (M3I), the Alzheimer’s Poetry Project, Birdsong, and TimeSlips, which are all interventions that are relatively low-cost and easy to implement by non-specialists. Strategies for intergenerational programming and adaptability of these programs to different contexts will also be discussed.
Evacuation or Shelter in Place in Assisted Living: Adherence to Emergency Evacuation Orders for Hurricane Dorian
Authors: Peterson Lindsay , June Joseph , Sakib Nazmus , Hyer Kathryn 
Published: December 2020

Abstract
Hurricane Dorian devastated parts of the Bahamas in 2019 with 185-mph winds. As it moved toward Florida, the state went on alert. This paper examines whether assisted living communities (ALCs) in affected counties evacuated or sheltered in place in the context of emergency management communications concerning evacuation. In 16 coastal counties, 66 ALCs were under mandatory evacuation orders, but 12 sheltered in place. Of 603 ALCs not under orders, 17 evacuated. Seven ALCs evacuated contrary to orders in one county, which issued a mandatory order Sept. 1, delayed it to Sept. 2 as Dorian weakened, and lifted it Sept. 4. Interviews with ALC administrators and emergency managers will be used to understand more about their decisions. Given prior findings that evacuation (versus sheltering in place) increases the mortality and morbidity risk of long-term care (LTC) residents, this research suggests a need for clearer LTC evacuation standards and communication. Part of a symposium sponsored by Disasters and Older Adults Interest Group.
Emerging Retirement Crisis: When Social Security Is Not Enough
Authors: Miller David 
Published: December 2020

Abstract
Evidence suggests a growing retirement crisis in the United States among older adults placing many of them at risk of falling into poverty. While Social Security provides income assistance to retirees, the average monthly benefit is $1,300. Among older adults nearing or in retirement, the use of public assistance programs is increasing. Using data collected by the Associated Press-NORC Center for Public Affairs Research we examine retirement preparedness, borrowing from retirement plans, and use of social welfare programs. Findings indicate increased borrowing from retirement plans due to debt, significant differences in racial and gender groups accessing and receiving services among those 75 and older. Increasing rates of unpreparedness for retirement exist among older Americans, particularly among adults of color. An increase in the use of safety net services among older adults is occurring concurrently with severe funding reductions in social welfare programming.
A Direct Reporting Platform for Financial Exploitation: From Banks to APS
Authors: Burnett Jason , Reisch Sally , Rogers Geoffrey 
Published: December 2020

Abstract
Despite encouraging changes in regulations and practices, opportunities remain to strengthen the collaboration between Financial Services Institutions (FSI) and Financial Exploitation (FE) investigative agencies such as Adult Protective Services (APS). A major barrier to these collaborations is timely and effective information exchange, between the agencies, for maximizing client protection. Often times, the need for more information from the agencies involved delays or mitigates the provision of financial protection to the client/victim. Through the U.S. Office for Victims of Crime, funding has been provided to develop a single reporting platform for enhancing communication and collaboration between FSI and APS. The helpful platform provides an innovative conduit for providing timely and effective information exchange between FSI and APS agencies to better serve and protect older adults against FE. This presentation will discuss the platform development, the lessons learned, preliminary data and future research. Part of a symposium sponsored by Abuse, Neglect and Exploitation of Elderly People Interest Group.
Cognitive Function in Sexual and Gender Minority Older Adults
Authors: Flatt Jason , John Samantha , Frew Paula 
Published: December 2020

Abstract
Nearly 3.5 million sexual and gender minority (SGM) adults aged 60+ in the U.S. identify as lesbian, gay, bisexual, transgender, and/or queer. We recruited over 50 diverse SGM older adults from the community to better understand correlates of their cognitive function. The Telephone Interview for Cognitive Status, an 11-item screening test of global cognition was used over the phone or in-person. We will describe relationships among cognition and several sociodemographic and health variables (age, sex assigned at birth, SGM identities, race/ethnicity, and health). Past research has highlighted higher rates of perceived memory problems among lesbian, bisexual and transgender adults compared to both gay men and heterosexual men and women. These rates were also higher among those who identify as women. We highlight implications for researching gender identity and cognition in late life, such as the influence of gender roles on cognition and the assessment of gender expression and related constructs.
Learning While Doing: Community-Engaged Action Research With Age-Friendly Community Leaders
Authors: Pestine-Stevens Althea , Greenfield Emily , Firestone Stephanie 
Published: December 2020

Abstract
Age-Friendly Community Initiatives (AFCIs) are expanding throughout the United States to make social and built environments within local communities more responsive to population aging. With over 450 initiatives affiliated with the AARP Network of Age-Friendly Communities, Cities, and States (125 of which began in 2019-early 2020), rapid growth on the ground necessitates that theory and research develop alongside practice innovations. This symposium showcases the intersection of cutting-edge scholarship with community-based efforts to generate knowledge of community change processes that is immediately actionable by community leaders. Collectively, these papers emphasize the benefits of action research and developmental evaluation in community gerontology towards building the theories of age-friendly change that will set the stage for outcomes research. The first paper will present on work with 83 AFCIs in rural Maine involving interviews with organizational leaders to inform which types of supports could stimulate age-friendly changes to communities’ built and social environments. The second paper will share a mixed-methods approach used to develop a global toolkit for dementia-friendly communities. The third presenter will describe the collaborative development and utilization of social network analysis to help age-friendly leaders plan their work, while simultaneously advancing research on variation in AFCI implementation. The final paper will present an evaluative framework that identifies roles and outcome measures for collective impact at the intersection of public health and age-friendly communities.
Building Sustainable Rural Age-Friendly Communities: Grassroots Perspectives
Authors: Oh Patricia 
Published: December 2020

Abstract
Joining the AARP Network of Age-Friendly States and Communities does not make a community age-friendly; the age-friendly team must cultivate community engagement, develop collaborations with diverse stakeholders, mobilize resources, and document achievements. Little research describes the tools age-friendly rural communities use to effect change and develop sustainability. Thematic content analysis of 67 interviews conducted between December 09, 2018 and January 24, 2020 with age-friendly leaders in rural Maine communities suggested that peer-to-peer networking, privileging local knowledge, engaging local and regional partners, technical advice from a trusted source, and fun were among the tools used to move age-friendly rural work forward.
Evaluating Collective Impact for Healthy Aging at the Intersection of Public Health and Age-Friendly Communities
Authors: Black Kathy , Hyer Kathryn 
Published: December 2020

Abstract
There is mounting interest in promoting - and evaluating efforts that improve healthy aging in age-friendly communities. Additionally, there is increasing recognition that multi-sectoral engagement beyond the aging network is needed to maximize impact and sustainability. Within the context of collective impact, this paper reviews a framework that explicates public health activities in collaboration across a range of stakeholders in age-friendly communities. Metrics demonstrating evidence of five categorical roles, processes and outcomes will be presented including: 1) Connecting and Convening; 2) Coordinating; 3) Collecting and Disseminating Data; 4) Communicating; and 5) Complementing and Supplementing. Examples that illustrate evidence vis-à-vis the components and phases of collective impact will be presented.
Let’s Stop Spinning Our Wheels: Strengthening the Case for Community-Engaged Transportation Solutions
Authors: Dabelko-Schoeny Holly , Fields Noelle , Silverstein Nina 
Published: December 2020

Abstract
On average in the United States, older adults outlive their ability to drive by seven years. Having safe, affordable and accessible alternative transportation options is critical to supporting the well-being of older adults and their ability to age in community. This symposium will provide evidence for utilizing community-engaged research strategies with diverse populations to identify the opportunities and barriers for the development and utilization of alternative transportation. The presentations will include up-to-date examples of innovative alternative transportation solutions and evaluation data. The first presentation will illustrate how community-based participatory research (CBPR) strategies were used to develop, use and evaluate alternative transportation options including walking, biking, fixed route busing, senior circulator, ride sharing and transit training in an age-friendly community. Data were collected through mapping the built environment, an electronic daily transportation diary app called “MyAmble” on tablets, walk audits and focus groups. The second presentation uses an environmental justice (EJ) framework to present the findings of a qualitative interpretive meta-synthesis (QIMS) about older adults’ experiences with outdoor spaces and buildings and transportation as part of the World Health Organization’s age-friendly network assessment. The third paper explores the barriers and facilitators of transportation among diverse older adults (English, Nepali, Khmer, Somali, Russian and Mandarin Chinese) using Rapid and Rigorous Qualitative Data Analysis (RADaR) technique. The final paper examines the challenges of rural transportation services supported by senior centers. The symposium will conclude with a critical reflection on the empirical contributions needed to advance scholarship on alternative transportation for older adults.
Using Community-Based Research Strategies in Age-Friendly Communities to Solve Mobility Challenges
Authors: Dabelko-Schoeny Holly , Fields Noelle , White Katie , Sheldon Marisa , Robinson Sarah , Murphy Ian , Jennings Claire 
Published: December 2020

Abstract
Aging is linked to an increased risk of disability. Disabilities that limit major life activities such as seeing, walking, and motor skills impact a person’s ability to drive a car. Low utilization of alternative transportation by older adults may put them at risk for social isolation. The purpose of this paper is to illustrate how community-based participatory research (CBPR) was used to engage older residents in the development of alternative transportation options in a metropolitan county in the Midwestern U.S. Older residents worked as co-investigators to develop, use and evaluate alternative transportation options including walking, biking, fixed route busing, senior circulator, ride sharing, and transit training. Data were collected through mapping the built environment, an electronic daily transportation diary app called “MyAmble” on tablets, walk audits and focus groups. CBPR approaches led by interdisciplinary teams resulted in community engagement and more equitable strategies for transportation planning and utilization.
Outdoor Spaces, Transportation, and Environmental Justice: A Qualitative Interpretive Meta-Synthesis
Authors: Fields Noelle , Ravi Kristen , Dabelko-Schoeny Holly 
Published: December 2020

Abstract
Age-friendly environments aim to promote healthy and active aging by building and maintaining capacity across the life course and allow people who have a loss of capacity to continue engaging in activities that they value. Age-friendly community assessments are being conducted worldwide. This qualitative interpretive meta-synthesis (QIMS) aims to create a rich description of older adults’ experiences with outdoor spaces and buildings as well as transportation as part of an age-friendly assessment. The themes that emerged regarding older adults’ experiences with outdoor space and buildings included 1) accessibility and 2) appropriate infrastructure. Regarding transportation, the theme of accessibility included subthemes of 1) availability and 2) affordability. Further reduction indicated that age-friendliness can be conceptualized as environmental justice (EJ). The three areas of EJ including distributional justice, procedural justice, and recognition provide a helpful framework for social workers and their interdisciplinary partners to systematically document and evaluate their age-friendly community efforts.
Black-White Inequities in Perception of Access to Neighborhood Resources Among Older Adults
Authors: Esposito Michael , Sylvers Dominique , Clarke Philippa , Finlay Jessica , Jang Joy Bohyun , Tang Sandra 
Published: December 2020

Abstract
Drawing on insights from critical race scholarship, this study examines how access to neighborhood resources varies among black and white older adults. Using Bayesian multilevel models, we estimate how evaluations of one’s neighborhood environment (e.g., perceived access to parks) varies by race, conditional on objective environmental measures (e.g., park area in one’s neighborhood). Results suggest that within the same spatial areas, individuals occupying marginalized statuses are less likely to perceive their neighborhoods as providing sufficient/accessible collective goods. Conditional on living in tracts with equal public park infrastructure, for instance, black respondents are 15% [95-CI: 8%, 22%] more likely to describe their neighborhoods as “lacking accessible parks.” Results suggest that these inequities are further exacerbated by race-related structural features (e.g., residential segregation) and other markers of welfare and marginalization (e.g., cognitive function). Overall, findings suggest that access to neighborhood-resources—and the benefits they confer—are fashioned by broader systems of power and inequality.