bluuebunny/crossref_metadata_2025_split huggingface dataset:
Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences
Authors: Perkins Victoria , Coulson Neil S , Davies E Bethan 
Published: May 2020

Background
People living with a tic disorder (TD)—such as Tourette syndrome (TS)—experience many negative psychological and social challenges arising from chronic tics, such as stigmatization from peers and poorer quality of life, and these can impact upon their families too. It can be difficult for this population to access face-to-face support for tics, and so online support communities offer one avenue for support from peers facing similar experiences. However, little is known about how online support communities may be used by people with TS and other TDs, and by others (eg, parents, caregivers) supporting a person with TS/TD.

Objective
This study aimed to explore users’ experiences of participation in online support communities for TS and TDs.

Methods
In total, 90 respondents (aged 13-62 years; 62% [56/90] female) from 13 countries completed an online survey exploring their experiences of using online support communities for TS and TDs. Respondents were people living with TS/TD themselves (n=68) or supportive others of someone with TS/TD (eg, parent, sibling, spouse; n=14), or both (n=8). The online survey contained open-ended questions eliciting their self-reported motivations for using online communities, their benefits and drawbacks of participation, and whether online support communities affected offline management of tics. Responses were analyzed using thematic analysis.

Results
Seven overarching themes captured experiences of using online support communities for TS/TDs. The overwhelming reason for their use was to find accessible support due to a lack of offline face-to-face support. Online support communities were valued sources of informational and emotional support, and also had a positive impact upon helping users’ psychological well-being. Online communities helped provide a space where people with TS/TDs could feel accepted and reduce the social isolation they felt offline. The suggestible nature of tics and being reminded of the challenging nature of TDs were main disadvantages arising from using online support communities, alongside conflict arising within online communities.

Conclusions
The findings suggest that online support communities appear to offer valuable informational and emotional support to those living with TS/TD and their families too, especially given the lack of locally available support. This facilitates a sense of community online, which can help users in overcoming long-standing social isolation and aid self-reported improvements in psychosocial well-being. Users reported some drawbacks in engaging with online support communities, such as conflict between different types of users and triggering content, which negatively affected experiences of community participation.
Artificial Intelligence in Health Care: Bibliometric Analysis
Authors: Guo Yuqi , Hao Zhichao , Zhao Shichong , Gong Jiaqi , Yang Fan 
Published: May 2020

Background
As a critical driving power to promote health care, the health care–related artificial intelligence (AI) literature is growing rapidly.

Objective
The purpose of this analysis is to provide a dynamic and longitudinal bibliometric analysis of health care–related AI publications.

Methods
The Web of Science (Clarivate PLC) was searched to retrieve all existing and highly cited AI-related health care research papers published in English up to December 2019. Based on bibliometric indicators, a search strategy was developed to screen the title for eligibility, using the abstract and full text where needed. The growth rate of publications, characteristics of research activities, publication patterns, and research hotspot tendencies were computed using the HistCite software.

Results
The search identified 5235 hits, of which 1473 publications were included in the analyses. Publication output increased an average of 17.02% per year since 1995, but the growth rate of research papers significantly increased to 45.15% from 2014 to 2019. The major health problems studied in AI research are cancer, depression, Alzheimer disease, heart failure, and diabetes. Artificial neural networks, support vector machines, and convolutional neural networks have the highest impact on health care. Nucleosides, convolutional neural networks, and tumor markers have remained research hotspots through 2019.

Conclusions
This analysis provides a comprehensive overview of the AI-related research conducted in the field of health care, which helps researchers, policy makers, and practitioners better understand the development of health care–related AI research and possible practice implications. Future AI research should be dedicated to filling in the gaps between AI health care research and clinical applications.
An Untapped Potential in Primary Care: Semi-Structured Interviews with Clinicians on How Patient Portals Will Work for Caregivers in the Safety Net
Authors: Casillas Alejandra , Cemballi Anupama Gunshekar , Abhat Anshu , Lemberg Miya , Portz Jennifer D , Sadasivaiah Shobha , Ratanawongsa Neda , Semere Wagahta , Brown Arleen , Lyles Courtney Rees 
Published: May 2020

Background
Patients within safety-net settings are less likely to access health information on patient portals, despite expressed interest. Family and friends are important resources to assist these patients (ie, Medicaid recipients, older patients, patients with limited English proficiency) in navigating health systems, and provider support of the use of patient portals among these groups may also facilitate caregivers’ use of their patients’ portal.

Objective
Because safety net providers work closely with caregivers to care for their patients, we used qualitative methods to explore safety net providers’ perspectives on portal use among caregivers for their patients, especially as there is limited literature about caregivers’ use of portals in the safety net.

Methods
We conducted 45- to 60-min semistructured telephone interviews with providers from three large California safety-net health systems. The interviews focused on providers’ experiences with caregivers, caregiver roles, and how the portal could be leveraged as a tool to support caregivers in their responsibilities. A total of three coders analyzed the interview transcripts using both deductive and inductive approaches and established a consensus regarding major themes.

Results
Of the 16 participants interviewed, 4 specialized in geriatrics, and all held a leadership or administrative role. We described themes highlighting providers’ recognition of potential benefits associated with caregiver portal use and specific challenges to caregiver engagement.

Conclusions
Providers recognized the potential for portals to improve information delivery and communication by helping caregivers assist socially and medically complex patients in the safety net. Providers in safety net sites also discussed a clear need for better ways to keep in touch with patients and connect with caregivers, yet security and privacy are perhaps of higher importance in these settings and may pose challenges to portal adoption. They noted that caregivers of patients in the safety net likely face similar communication barriers as patients, especially with respect to digital literacy, health literacy, and English proficiency. Further research is needed to assess and support caregivers’ interest and ability to access portals across barriers in health and digital literacy, and English proficiency. Portal platforms and health systems must also address specific strategies to uphold patient preferences while maintaining privacy and security.
Mobile Health App (AGRIPPA) to Prevent Relapse After Successful Interdisciplinary Treatment for Patients With Chronic Pain: Protocol for a Randomized Controlled Trial
Authors: Elbers Stefan , Pool Jan , Wittink Harriët , Köke Albère , Scheffer Else , Smeets Rob 
Published: May 2020

BackgroundTo facilitate adherence to adaptive pain management behaviors after interdisciplinary multimodal pain treatment, we developed a mobile health app (AGRIPPA app) that contains two behavior regulation strategies.ObjectiveThe aims of this project are (1) to test the effectiveness of the AGRIPPA app on pain disability; (2) to determine the cost-effectiveness; and (3) to explore the levels of engagement and usability of app users.MethodsWe will perform a multicenter randomized controlled trial with two parallel groups. Within the 12-month inclusion period, we plan to recruit 158 adult patients with chronic pain during the initial stage of their interdisciplinary treatment program in one of the 6 participating centers. Participants will be randomly assigned to the standard treatment condition or to the enhanced treatment condition in which they will receive the AGRIPPA app. Patients will be monitored from the start of the treatment program until 12 months posttreatment. In our primary analysis, we will evaluate the difference over time of pain-related disability between the two conditions. Other outcome measures will include health-related quality of life, illness perceptions, pain self-efficacy, app system usage data, productivity loss, and health care expenses.ResultsThe study was approved by the local Medical Research Ethics Committee in October 2019. As of March 20, 2020, we have recruited 88 patients.ConclusionsThis study will be the first step in systematically evaluating the effectiveness and efficiency of the AGRIPPA app. After 3 years of development and feasibility testing, this formal evaluation will help determine to what extent the app will influence the maintenance of treatment gains over time. The outcomes of this trial will guide future decisions regarding uptake in clinical practice.Trial RegistrationNetherlands Trial Register NL8076; https://www.trialregister.nl/trial/8076International Registered Report Identifier (IRRID)DERR1-10.2196/18632
Assessing Patient Experience and Healthcare Quality of Dental Care Using Patient Online Reviews in the United States: Mixed Methods Study
Authors: Lin Ye , Hong Y Alicia , Henson Bradley S , Stevenson Robert D , Hong Simon , Lyu Tianchu , Liang Chen 
Published: May 2020

Background
Over the last two decades, patient review websites have emerged as an essential online platform for doctor ratings and reviews. Recent studies suggested the significance of such websites as a data source for patients to choose doctors for healthcare providers to learn and improve from patient feedback and to foster a culture of trust and transparency between patients and healthcare providers. However, as compared to other medical specialties, studies of online patient reviews that focus on dentists in the United States remain absent.

Objective
This study sought to understand to what extent online patient reviews can provide performance feedbacks that reflect dental care quality and patient experience.

Methods
Using mixed informatics methods incorporating statistics, natural language processing, and domain expert evaluation, we analyzed the online patient reviews of 204,751 dentists extracted from HealthGrades with two specific aims. First, we examined the associations between patient ratings and a variety of dentist characteristics. Second, we identified topics from patient reviews that can be mapped to the national assessment of dental patient experience measured by the Patient Experience Measures from the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Dental Plan Survey.

Results
Higher ratings were associated with female dentists (t71881=2.45, P<.01, g=0.01), dentists at a younger age (F7, 107128=246.97, P<.001, g=0.11), and those whose patients experienced a short wait time (F4, 150055=10417.77, P<0.001, g=0.18). We also identified several topics that corresponded to CAHPS measures, including discomfort (eg, painful/painless root canal or deep cleaning), and ethics (eg, high-pressure sales, and unnecessary dental work).

Conclusions
These findings suggest that online patient reviews could be used as a data source for understanding the patient experience and healthcare quality in dentistry.
Apresentação Volume Temático II Bilinguismo para surdos: Um olhar histórico, social, educacional e linguístico
Authors: Silva Kleber Aparecido da , Guedes Sônia Margarida Ribeiros , Dias Tatiana Rosa Nogueira , Tuxi Patrícia , Tanzi Neto Adolfo 
Published: May 2020

O segundo volume do dossiê temático: Bilinguismo para surdos: um olhar histórico, social, educacional e linguístico da Revista The Especialist é uma nova possibilidade para leituras de grande importância na área do Bilinguismo das línguas de sinais. Por meio desse número é possível compreender a vastidão que esse conceito hoje abarca nas mais diversas áreas do conhecimento e como ainda há muito a ser explorado, como os próprios autores afirmam. Apesar de ser uma coletânea escrita por várias mãos apresenta, na verdade, um único objetivo: oportunizar a leitura de novos autores e suas respectivas pesquisas que trazem um olhar contemporâneo sobre o bilinguismo no universo das línguas de sinais (GESSER, 2009; QUADRO, 2019).
Desdobramentos da organização curricular linguística de uma escola bilíngue para surdos no Distrito Federal
Authors: Bueno Milene Galvão , Silva Kleber Aparecido da 
Published: May 2020

A educação bilíngue para surdos vem conquistando as atenções públicas, políticas e educacionais no Brasil atualmente. Marcos históricos na educação de surdos revelam os rumos que esse modelo educacional está tomando. A exemplo disso, temos políticas linguísticas como a Lei da Libras nº 10.436/02 e o Decreto nº 5.626/05, que foram criadas com o intuito de nortear caminhos para um possível bilinguismo para surdos. Posto isso, como aporte metodológico da análise documental à luz da Linguística Aplicada Crítica (LAC), este artigo trata criticamente do perfil institucional e da organização linguística do currículo de acordo com o Projeto Político-Pedagógico da Escola Bilíngue de Libras e Português Escrito, em Brasília, evidenciando, assim, que um modelo de educação bilíngue para surdos deva compreender bem mais do que uma adaptação curricular. Para além disso, que seja pensado e adequado para e por surdos.
PENGUATAN KELEMBAGAAN RUKUN TETANGGA DAN RUKUN WARGA (RT/RW) DI KELURAHAN RINTIS KECAMATAN LIMA PULUH KOTA PEKAN BARU
Authors: Zuhdi Sulaiman , Ferizko Adia , Melinda Pebriana 
Published: May 2020

PENGUATAN KELEMBAGAAN RUKUN TETANGGA DAN RUKUN WARGA (RT/RW) DI KELURAHAN RINTIS KECAMATAN LIMA PULUH KOTA PEKANBARU Salah satu mitra pemerintah kelurahan adalah organisasi Rukun Tetangga (RT) dan Rukun Warga (RW). RT/RW mempunyai fungsi sebagai pengkoordinasi antar warga, jembatan aspirasi antar sesama masyarakat dengan pemerintah daerah, menjadi penengah penyelesaian masalah-masalah kemasyarakatan yang dihadapi warga, sedangkan tugas-tugasnya antara lain membantu menjalankan tugas pelayanan kepada masyarakat yang menjadi tanggung jawab pemerintah kota, memelihara kerukunan hidup warga, menyusun rencana dan melaksanakan pembangunan dengan mengembangkan aspirasi dan swadaya murni masyarakat.Dari tugas dan fungsi RT/RW diatas dapat diketahui amatlah vital. RT/RW adalah lembaga kemasyarakatan yang berhubungan langsung dengan masyarakat, mereka adalah mulut dan telinga pemerintah yang memiliki fungsi sebagai penyampai kebijakan-kebijakan pemerintah dan sebagai penerima aspirasi pertama masyarakat.Pemerintah Daerah Kota Pekanbaru telah mengeluarkan Peraturan Daerah Kota Nomor 12 Tahun 2002 tentang RT/RW. Namun jika dilihat dari keberadaan kelembagaan RT/RW di kelurahan Rintis dalam menjalankan tugas dan fungsinya belum maksimal. Indikator yang terlihat adalah belum sepenuhnya ketua RT/RW mengetahui dan memahami akan tugas, fungsi dan tanggungjawabnya, struktur organisasi RT/RW yang belum berfungsi dengan baik, kurangnya koordinasi dan kerjasama pengurus RT/RW dan pemerintah kelurahan serta kurangnya pembinaan dari pemerintah seperti pelatihan yang berhubungan dengan birokrasi, tata kelola dan administrasi pemerintahan. Dengan kondisi yang demikian sangat berpengaruh terhadap kinerja kelembagaan RT/RW. Kata Kunci : Penguatan, Kelembagaan, Pemerintah, RT/RW
Espaço público de propriedade privada em Curitiba (Brasil): o Boulevard da Neo Superquadra | Privately ownead public space in Curitiba (Brazil): the Neo Superquadra Boulevard
Authors: Meiners Wilhelm Eduard Milward de Azevedo , Garbossa Silva Renata Adriana , Rosaneli Alessandro Filla 
Published: May 2020

O espaço público contemporâneo assume diferentes formas, usos e domínios, importando hoje mais sua apropriação do que sua propriedade. Em oposição ao espaço público tradicional, surgem novos espaços que mesclam o público e o privado. Para perceber as formas que o espaço público assume na contemporaneidade, destaca-se um espaço de fruição pública e de propriedade privada, localizado no Centro Cívico, bairro de Curitiba (Brasil) que representa a reconquista da significação do espaço público para expressão da cidadania e manifestação política. O espaço analisado é um pequeno boulevard de passagem e conexão junto ao empreendimento imobiliário da Neo Superquadra, um conjunto de torres de uso misto — comercial, corporativo e residencial interligando importantes vias locais. O artigo elabora, nos limites de uma pesquisa realizada em um espaço público de propriedade privada, com o método da trialética lefebvriana, as análises da dimensão simbólica do espaço concebido, da dimensão física e sensorial do espaço percebido e da dimensão social do espaço vivido, conformando uma crítica aos espaços públicos contemporâneos, de subsunção das coisas públicas aos interesses privados.
Efeitos da música clássica aplicada em crianças hospitalizadas
Authors: Silva Ana Célia Pereira da , Oliveira Marcelo Lima de , Carvalho Leonardo Cesar , Lima Ciderleia Castro de 
Published: May 2020

Objetivo: Verificar os efeitos da música clássica em crianças hospitalizadas em Unidade de Terapia Intensiva e Enfermaria de Pediatria. Métodos: É um estudo quase experimental, abordagem quantitativa. Participaram quatro crianças menores de 36 meses, expostas a 40 minutos diários por cinco dias ao repertório Mozart baby, respeitando a altura de som de 45 decibéis (dB). Utilizou um formulário estruturado para registros de frequência cardíaca, frequência respiratória, saturação, temperatura, escala de dor. Os critérios de inclusão foram a exposição a procedimentos invasivos nas últimas seis horas, frequência inspiratória de oxigênio (FiO2) menor ou igual a 21% e ventilação não assistida. Aplicado no músculo bíceps braquial um eletrodo e analisado a tensão muscular no primeiro e quinto dia. O registro feito pelo eletromiografo Trigno 8 Channel Wireless. A exposição ao estresse foi avaliado pela saliva em fita teste no primeiro e quinto dia, no aparelho Coroco Meter (Nipro Corporation – Japão). Resultados: Houve redução nos valores hemodinâmicos com p-valor menor que 0,01, a dor com p-valor menor que 0,001. A eletromiografia verificou redução dos impulsos elétricos influenciando na taxa do disparo para as fibras musculares com relaxamento muscular. Conclusão: A música estimula diferentes áreas cerebrais e pode ser utilizada para auxiliar segmentos terapêuticos.
Covid-19: Digital Signature Impact on Higher Education Motivation Performance
Authors: Rahardja Untung , Sudaryono Sudaryono , Santoso Nuke Puji Lestari , Faturahman Adam , Aini Qurotul 
Published: May 2020

At present, the process of validating documents for certain purposes cannot be done face-to-face because of the Covid-19 pandemic. Therefore, this research aims to maximize the existence of smart digital signature technology that guarantees its safety and validity without having to meet face to face. Encrypted digital signatures with RSA-SHA256 with cloud storage features that can share documents. The waterfall method for building systems, the collection of data generated for analysis by observation, and online questionnaires using Google Form. Based on the characteristics of the system, the satisfaction factor analysis of the system with the Slovin formula processed by the SUS score resulted in a score of 95 > 70. The final result of this study is that the digital signature system has a significant impact on increasing motivation to facilitate authorization and secure documents.
PENGARUH TINGKAT PELAYANAN, CITRA KAMPUS, DAN KEPUASAN TERHADAP MOTIVASI MAHASISWA: STUDI KASUS MAHASISWA FAKULTAS EKONOMI UNIVERSITAS SRIWIJAYA
Authors: Eka Dian , Putri Yulia Hamdaini 
Published: May 2020

Tujuan Penelitian: memahami pengaruh kualitas layanan, motivasi mahasiswa dan citra merek terhadap kepuasan mahasiswaDesain/Metodologi Penelitian : Teknik yang digunakan dalam penelitian ini yaitu pengujian hipotesis dengan menggunakan teknik model persamaan struktural.Temuan: Kualitas pelayanan tidak berpengaruh terhadap kepuasan mahasiswa, kualitas pelayanan tidak berpengaruh terhadap motivasi mahasiswa, Citra merk berpengaruh terhadap kepuasan mahasiswa, Citra merk berpengaruh terhadap motivasi mahasiswa, Kepuasan tidak berpengaruh terhadap motivasi mahasiswa, Citra merk memiliki pengaruh yang kuat secara langsung terhadap motivasi mahasiswa dibandingkan dengan pengaruh tidak langsung melalui variable kepuasan.Keterbatasan : penelitian ini berfokus pada penilaian kualitas pelayanan, citra merek, kepuasan dan motivasi dalam satu universitas.Originality/Value : artikel ini meneliti pengaruh tingkat pelayanan, citra merek dan kepuasan terhadap motivasi. Keyword. tingkat pelayanan, citra merek , kepuasan, motivasi.
Properties of Binary Mixture of Cetyl Diphenyl Ether Disulfonate and Linear Alkylbenzene Sulfonate
Authors: Wang Xiaopeng , Liu Xiaochen , Huo Yueqing , Niu Jinping 
Published: May 2020

Abstract
The surface properties of the binary mixture of cetyl diphenyl ether disulfonate (C16-MADS) and linear alkylbenzene sulfonate (LAS) have been investigated by salinity and hardness tolerance, equilibrium surface tension, wettability, foam and emulsification measurements. The results show that with increasing mass ratio of LAS in the C16-MADS/LAS mixed system, the ability to reduce the surface tension of the solution is improved. The wetting performance is also improved. The critical micelle concentration (CMC) values are increased first, then decreased, and are higher than the ideal CMC values, which indicates that there is an antagonistic effect that is not conducive to the formation of mixed micelles between C16-MADS and LAS. In addition, the C16-MADS/LAS system improves the hard water resistance of LAS and reduces the foam properties of LAS.
Study on the Oxidation Products of Hemp Seed Oil and its Application in Cosmetics
Authors: Huang Yawei , Pei Liujun , Gu Xiaomin , Wang Jiping 
Published: May 2020

Abstract
Hemp seed oil has a very better effect of sunscreen, repair, anti-allergy and anti-aging, as a result of which it is a high-quality raw material for skin care products. In this study, the oxidation degree of hot-pressed and cold-pressed hemp seed oil which was stored in five different environments, was evaluated. The results showed that the long-chain unsaturated fatty acids were oxidized. The oxidation products of hemp seed oil were analyzed by headspace solid-phase microextraction gas chromatography-mass spectrometry (HS-SPME-GC/MS) and high performance liquid chromatography (HPLC). All hemp seed oils which were stored at low-temperature protected from light and outdoor environment contained aldehydes, ketones, and alcohols, which have a negative impact on the health of consumers. Furthermore, hemp seed emulsion was prepared with different HLB values. After the 2nd month, hemp seed oil emulsion exhibited a good stability without stratification.