bluuebunny/crossref_metadata_2025_split huggingface dataset:
Applied Open Science for Secondary Data Analysis and Meta-Analysis
Authors: Lodi-Smith Jennifer 
Published: December 2020

Abstract
This talk will provide guidance on the practicalities of open science for secondary data analysis and meta-analyses. Example studies will provide practical considerations for preregistering complex projects, insights into strategies for transparently reporting deviations from preregistrations, advice on deciding when and how to share sensitive data, and tips on transparent documentation of analysis code. Examples will be drawn from an ongoing meta-analysis of the relationship between self-concept clarity and self-esteem (https://osf.io/sa2bx/), the Rochester Adult Longitudinal Study (https://osf.io/ya4ph/), and the Aging and Autism Study (https://osf.io/g9c3e/). The pedagogical value of preregistration will be emphasized throughout the talk.
Housing and Life Course Transitions in Later Life: The Role of Housing, Place, and Sense of Home in Periods of Uncertainty
Authors: Wanka Anna , Schmidt Steven , Settersten Richard 
Published: December 2020

Abstract
Housing is central factor for health and well-being in later life. Many countries have implemented ageing in place policies, but they tend to neglect the dynamic nature and heterogeneity of the ageing process. Housing needs change as people grow older, and experience different transitions across their life courses. Studies have demonstrated relationships between housing and health and wellbeing in later life on the one hand and life transitions and health and wellbeing in later life on the other hand. However, research on life transitions in combination with objective and perceived housing in relation to indicators of good ageing is scarce. Hence, the symposium aims to explore the dynamic relationship between housing and life transitions and how this relationship impacts health, well-being, functioning, and social/neighborhood participation along the process of ageing. First, Anna Wanka and Frank Oswald investigate how older adults’ relationship to their home is interlinked with life-course transitions and social exclusion, presenting case studies from three countries. Maya Kylén explores the meaning of home and health dynamics throughout the retirement transition among the ‘younger old’ in Sweden. Kieran Walsh asks how ‘sense of home’ interrelates with risks entailed in the transitions of bereavement, dementia on-set and forced migration. Finally, Helen Barrie discusses the transition to homelessness based on the HILDA survey to identify the profile(s) of older people at risk of homelessness in Australia. Finally, Richard A. Settersten will discuss the four contributions.
Adult Day Service Use Decreases Likelihood of Depressive Symptoms Among Black Dementia Caregivers
Authors: Parker Lauren , Gitlin Laura 
Published: December 2020

Abstract
Black Americans are more likely than others to age with Alzheimer’s Disease (AD) in the community and rely on family members for support. Despite reported positive aspects of caregiving, Black caregivers report greater need for daytime respite and caregiving support. Little is known regarding the health-promoting benefits of daytime respite, like adult day services (ADS), among Black caregivers. Using a sample of 190 Philadelphia-area Black caregivers for community-living persons with dementia, pooled from two behavioral intervention trials: Advancing Caregiver Training and Care of Persons with Dementia in their Environments, the study examined the association between ADS use and depressive symptoms. About 36% of the caregivers used adult day services for their family member with AD. Controlling for demographic variables, social support, self-rated health, religious coping, caregiver burden, and number of years caregiving Black caregivers who utilized ADS had lower depressive symptoms (β= -1.60, p&lt;.05) relative not using ADS.
Sleep Characteristics, Neighborhood Factors, Function, Mood, and Well-Being in Older Adults With Dementia
Authors: McPhillips Miranda , Hodgson Nancy 
Published: December 2020

Abstract
The number of people with dementia is increasing worldwide. Circadian rhythm disorders and sleep problems are very common in this population and can have profound effects on well-being. Healthy Patterns Clinical Trial (NCT03682185) is a home-based activity intervention designed to improve circadian rhythm disorders and quality of life in people with dementia and their family caregivers. This symposium is designed to discuss the relationship between sleep characteristics and neighborhood environment, function, and psychological well-being in people with dementia. All analyses in this session were conducted on baseline data from participants enrolled in the Healthy Patterns Clinical Trial. We enrolled 170 individuals (67% female), aged (73.35 ± 8.74) with mean Clinical Dementia Rating (CDR) scores of (0.74 ± 0.51). Session 1 describes the role of neighborhood factors as influencing factors affecting sleep. Session 2 focuses on the relationship between sleep and mood. Session 3 focuses on the relationship between sleep and function. Session 4 focuses on the relationship between sleep and quality of life. Implications for future research and intervention development for people with dementia will be discussed.
Workshops to Teach State-Tested Nursing Assistants About End-of-Life Care
Authors: Ogle Kimberly 
Published: December 2020

Abstract
Given that almost 25 percent of U.S. deaths occur annually in long-term care facilities (U.S. Census Bureau, 2017), it’s imperative that frontline workers are given training and support they need to deliver good, person-centered care at the end of life. Inadequate end-of-life (EOL) care may lead to unrelieved suffering and undignified deaths (Bukki, Neuhaus, Paa, 2016). Furthermore, nursing staffs have knowledge gaps and low confidence regarding end-of-life care and they may underestimate its complexity (Pfister, Markett & Muller, 2013). With the growing population of older adults, improving end-of-life care in long- term care facilities needs to be a priority. This research explored the needs of State Tested Nursing Assistants (STNAs) working in long-term care and their knowledge regarding EOL care. Based on the findings of this research, workshops were developed to better educate the STNAs regarding care of the dying and to enhance the EOL care for long term residents.
Health, Quality of Life, and Economic Impacts of Home Care Vouchers for Middle-Income Adults With Disabilities
Authors: Spetz Joanne , Miller Jacqueline , Kwong Connie , Wagner Laura 
Published: December 2020

Abstract
The Support at Home pilot program provided financial support for the purchase of home care services by middle-income adults with disabilities in San Francisco to support aging in place. Enrollees had income below the area median and made copayments based on household income. The mixed-methods evaluation of the program incorporated administrative records, surveys of clients and comparison group members, surveys of unpaid caregivers, surveys of paid care providers, and focus groups with clients and unpaid caregivers. Outcome measures included the Older People’s Quality of Life Questionnaire, Patient Health Questionnaire-2, an adapted Burden Scale for Family Caregivers, and self-reported falls, emergency department visits, and hospitalizations. Analyses included pre-post chi-squared and t-test comparisons between client and comparison groups and multivariate regressions. An economic analysis was conducted to learn whether changes in costs associated with reduced health care utilization were greater than the costs of the program. Results indicated statistically significant positive changes in client ratings of personal and financial stress, but not in the composite quality of life score. There were statistically significant reductions in attendance at medical appointments, falls, emergency department visits, and hospitalizations. Similar changes were not found in the comparison group. The focus group data supported the findings regarding personal and financial stress and indicated that clients and their caregivers perceived quality of life benefits. The economic analysis indicated substantial cost savings from the program due to reduced use of medical services. Due to its positive impacts, San Francisco has made Support at Home a permanent program.
Oral Health Disparities Among Chinese Older Adults: Evidence From CHARLS
Authors: Han Chengming 
Published: December 2020

Abstract
This paper explored the effect of the type of health insurance on dentist visits among older adults in China. The data were drawn from the CHARLS-II (2013). The sample included older adults aged 60 and older (N= 6767, n(urban)=3272, n(rural)=3495). Multivariate logistic regression models indicated that in urban and rural places, respondents with a governmental/civil servants’ insurance and those with an urban-employee insurance are more likely to visit a dentist in the survey year. Household registration status (hukou) does not play a significant role in dentist visits when insurance types are adjusted for. In other words, employment status, and the coverage of health insurance presented more significant effects on dentist visits. Differing from previous studies about urban-rural health disparities, this study disclosed substantial institutional influences on dental care access among older adults.
Sex-specific BDNF and APOE ε4 genotype interactions on white matter hyperintensity volume
Authors: Pitts Brandon 
Published: December 2020

Abstract
The apolipoprotein E (APOE) gene is the strongest genetic risk factor for late-onset Alzheimer’s disease (AD). One variant of the brain-derived neurotrophic factor (BDNF) gene also confers higher risk of AD. APOE and BDNF genotypes may have interactive effects on AD pathology. The aim of this study was to determine whether APOE and BDNF genotype differentially impact white matter hyperintensity volume (WMHV). We used data from 212 cognitively unimpaired individuals from the Alzheimer’s Disease Neuroimaging Initiative (ADNI) We used generalized linear models to predict WMHV from BDNF genotype and an interaction with APOE. Sex, age, education, vascular risk, and imaging-based amyloid load (Florbetapir SUVR) were used as covariates. . WMHV was derived by using the Lesion Segmentation Toolbox (LST) in SPM12 with a threshold of k = 0.15. We used the Hachinski Ischemic Scale to measure for vascular risk. We found no significant interaction of BDNF-APOE on WMHV (β = 0.40, 95% CI: (-0.39, 1.20), p = 0.32). In sex-stratified analyses the BNDF-APOE interaction was significantly associated with WMHV in males (β = 1.14, 95% CI:(0.17, 2.11), p = 0.02), but not in females (β = -0.37, 95% CI: (-1.47, 0.76), p = 0.50). For males, carriers of both BDNF Met and APOE ε4 alleles had the highest WMHV. Sex-specific differences in BDNF expression may be related to hormonal differences, and BDNF genotype might underlie these differences. Given the continued interest in using BDNF as a treatment target for AD, understanding complex genotype interactions may aid in future therapeutic studies.
An International Environmental Scan of Social Housing for Older Adults
Authors: Hitzig Sander , Sheppard Christine , Holt Ariana , Austen Andrea , Glenn Miller 
Published: December 2020

Abstract
The City of Toronto is creating a standalone housing corporation to focus on the specific needs of low-income older adults living in social housing. A key focus of this new corporation will be to provide housing, health and community support services needed to optimize older adult tenants’ ability to maintain their tenancy and age in place with dignity and in comfort. To support this work, we conducted an environmental scan of service delivery models that connect low-income older adults living in social housing with health and support services. Desktop research was undertaken to identify relevant programs. For each model, key details were extracted including housing type, services offered, provider information, rent structure and funding sources. The scan identified 34 examples of social housing programs for older adults run by public, private and non-profit agencies across Canada, the United States and Europe that integrated health and supportive services. Successful models were those that understood the needs of tenants and developed collaborative partnerships with health and social service providers to create flexible place-based programs. A common challenge across jurisdictions was privacy legislation that made it difficult to share health and tenancy data with program partners. The presence of on-site staff that focused on building trust and community among tenants was considered key for identifying tenants requiring additional supports in order to age in place. These insights offer important considerations on how integrated supportive housing service models promote housing stability and support better health and wellbeing among older adults residing in social housing.
Effects of COVID-19 Pandemic on the Lived Experience of Diverse Older Adults Living Alone With Cognitive Impairment
Authors: Portacolone Elena , Chodos Anna , Halpern Jodi , Covinsky Kenneth , Keiser Sahru , Fung Jennifer , Rivera Elizabeth , Johnson Julene K 
Published: December 2020

Abstract
Background and Objectives: Even before the COVID-19 pandemic, older adults with cognitive impairment living alone (an estimated 4,3 million individuals in the United States) were at high risk for negative health outcomes. There is an urgent need to learn how this population is managing during the pandemic. Research Design and Methods: This is a qualitative study of 24 adults aged 55 and over living alone with cognitive impairment from diverse racial/ethnic backgrounds. Participants’ lived experiences during the pandemic were elicited via 59 ethnographic interviews conducted over the phone either in English, Spanish, or Cantonese. Using a qualitative content analysis approach, interview transcripts and fieldnotes were analyzed to identify codes and themes. Results: Qualitative analysis of transcripts revealed five themes: 1) fear generated by the pandemic; 2) distress stemming from feeling extremely isolated; 3) belief in misinformation, 4) strategies for coping during the pandemic; and 5) the importance of access to essential services. Discussion and Implications: This pandemic put a spotlight on the precarity and unmet needs of older adults living alone with cognitive impairment living. Findings underscore the need to expand access to home care aides and mental health services for this population.
Everyday Remembering During a Global Pandemic in Caring Dyads
Authors: Lustig Emily , Naran Alysha , Pearman Ann , Hertzog Christopher 
Published: December 2020

Abstract
During the COVID-19 global pandemic people’s lived experiences and day-to-day lives have been tremendously impacted. This impact is believed to be more severe in people with a memory-impaired partner at home. As part of an ongoing cognitive intervention project with the Emory-Georgia Tech Cognitive Empowerment Program (CEP), we conducted interviews with dyads (one person with diagnosed amnestic mild cognitive impairment (aMCI) and one person, in this case, a spouse who is an identified care partner). To address the COVID-19 pandemic, we supplemented the existing interview about everyday cognition with several questions about the dyadic experience during the pandemic. To date, we have conducted 5 qualitative interviews with dyads. Preliminary results indicate that the COVID-19 pandemic has created additional everyday challenges and cognitive burden for care partners of people diagnosed with aMCI. Some of these challenges include the need to manage pandemic precautionary behaviors, such as mask wearing and maintaining social distancing, for both themselves and the care recipient. In contrast, some aspects of everyday remembering among these dyads have improved (e.g. more advance planning of things like grocery shopping and outings). The results of these interviews will provide additional unique insights into the everyday cognitive challenges of the pandemic on caregivers and persons with aMCI.
Front-line Experiences and Perspectives of Older and Younger Registered Nurses during the COVID-19 Pandemic
Authors: Raveis Victoria , VanDevanter Nancy , Kovner Christine , Yu Gary , Ridge Laura Jean , Glassman Kimberly 
Published: December 2020

Abstract
Having an experienced and trained healthcare workforce available during public health emergencies, such as the COVID-19 pandemic, is critical. While all healthcare workers are at risk of contracting COVID-19, older workers are at increased risk of serious or fatal illness. This investigation explores the front-line experiences and perspectives of registered nurses (RNs) at a major New York City medical center during the COVID-19 pandemic, focusing on two age cohorts: older (50+) and younger (20-49) RNs. An anonymous internet-based survey was sent to all RN’s employed at the center. Data collection was initiated in May 2020, following the initial surge in NYC’s COVID-19 related hospitalizations and deaths; 1,483 surveys were completed. This investigation found that in comparison to younger RNs (n=1,067), older RNs’ (n=416) psychosocial well-being was significantly better -- fewer depression, anxiety, and PTSD symptoms (p&lt;.001). They were less stressed caring for COVID-19 patients (p &lt;.001) and less worried about work-related exposure risk (p&lt;.001). They also reported higher job satisfaction (p&lt;.001), less work-home stress (p&lt;.001), a higher commitment to choosing the nursing profession (p&lt;.001), were more confident in the profession (p&lt;.001) and to meeting its’ expectations (p&lt;.001). Overall, although older RNs represent a smaller proportion of the nursing workforce, their collective expertise and clinical experience in healthcare delivery are significant. The older RN workforce is a seasoned resource to draw upon during public health emergencies and a valuable role model for younger RNs, particularly given their continued adherence to nursing, during this COVID-19 time of uncertainty and personal health risk.
Resilience to Loneliness Amongst Older Adults Living in the Bronx, NY, During the COVID-19 Pandemic
Authors: Harrington Karra , Zhaoyang Ruixue , Scott Stacey , Graham-Engeland Jennifer , Sliwinski Martin 
Published: December 2020

Abstract
Older adults may be particularly vulnerable to experiencing loneliness as a result of stay-at-home and social distancing orders during the COVID-19 pandemic. This study evaluated change in loneliness following the COVID-19 outbreak, using a longitudinal design and a validated loneliness measure, in a well-characterized sample who are at heightened risk for COVID-19 due to both age and location. The study included n = 226 older adults aged 70-90 years old, living in the Bronx, New York City, who had completed the 3-item Loneliness Scale prior to and during the peak of the COVID-19 outbreak in New York City. There was no evidence of significant increases in mean loneliness from pre- to post-COVID-19 outbreak. Multiple regression analyses were used to identify risk and protective factors for change in loneliness during the COVID-19 outbreak, adjusting for pre-outbreak loneliness. Living alone, higher levels of education, greater worry about contracting the coronavirus, and limiting of daily exercise activities were risk factors for greater loneliness after the outbreak. In contrast, Black race, older age, greater social support and frequent social interactions via video call, all related to lower levels of loneliness after the outbreak.The outcomes of this study demonstrate substantial resilience among older adults to loneliness in response to the COVID-19 pandemic, and highlight key risk and protective factors that may play an important role in individual differences in loneliness as pandemic-driven isolation continues.
Assessing Housing Accessibility for Older Adults in Japan: A Content Validity Study
Authors: Tsuchiya-Ito Rumiko , Slaug Björn , Sano Tomonori , Tajima Miki , Itoh Sakiko , Uda Kazuaki , Yamanaka Takashi , Iwarsson Susanne 
Published: December 2020

Abstract
Scientifically validated tools to assess housing accessibility for older adults in Japan have been lacking. To address this, a rigorous procedure of adapting an existing housing assessment tool—the Housing Enabler, developed in Sweden—for valid use in Japan was conducted. The original tool was translated into the Japanese language, using established translation procedures. In the process, researchers checked the appropriateness of technical terms and adjusted specifications to be in accordance with Japanese standards. An expert panel approach was used to validate the content of the Japanese Housing Enabler. Thirteen certified occupational therapists, architects and care-managers (average experience=14.5 years) participated as experts in the content validity study. They rated each item with regard to relevance for assessing housing accessibility in Japan, on a scale from 1(=Not relevant) to 4(= Highly relevant). They suggested adjustments and additions that they found to be relevant to capture particularities of Japanese housing and building design. After individual ratings, the experts gathered for consensus discussions on suggested revisions of the item list. As a result, the number of items was substantially increased (from 161 to 283). A content validity index (CVI) was calculated for each item (i.e., the proportion of experts rating the relevance as at least 3). Using a recommended threshold of CVI ≥0.78, more than 90% of the items were considered relevant, thus supporting the content validity. However, the large amount of items might jeopardize the feasibility of the instrument. Further studies are needed to evaluate feasibility, criterion-related validity and aspects of reliability.
Becoming an Autologous Stem Cell Transplant Patient
Authors: Halpin Sean , Konomos Michael , Jowers Ivey 
Published: December 2020

Abstract
In the current study, we sought to examine how older patients incorporate the identity of a patient receiving autologous stem cell transplant (ASCT) for multiple myeloma (MM) into their daily lives. In this ethnographic study using interpretative phenomenological analysis, we observed pre-transplant education visits with 30 MM patients, followed by semi-structured interviews in their hospital rooms during transplant. The experience of receiving ASCT for MM required effort by patients to not only maintain their past identity but also establish a new patient identity. Reconciling these two identities required deliberate and emotionally draining effort from the patient. Results were organized into two overarching themes of social relationships and aesthetics with subthemes for each. Patients experienced challenges reconceptualizing their social support network to meet their changing needs; often with a spouse or child taking on a caregiving role. In regard to aesthetics, patients contended with the physical reminders of their new diseased identity, adopting various aesthetic strategies to either embrace or conceal bodily changes. Understanding methods MM patients who are receiving ASCT use to negotiate normalcy during treatment may be helpful for developing interventions for alleviating distress during this difficult time.