bluuebunny/crossref_metadata_2025_split huggingface dataset:
Dermatologic Data From the Global Burden of Disease Study 2019 and the PatientsLikeMe Online Support Community: Comparative Analysis
Authors: Szeto Mindy D , Alhanshali Lina , Rundle Chandler W , Adelman Madeline , Hook Sobotka Michelle , Woolhiser Emily , Wu Jieying , Presley Colby L , Maghfour Jalal , Meisenheimer John , Anderson Jaclyn B , Dellavalle Robert P 
Published: December 2024

Abstract
The Global Burden of Disease (GBD) study aims to characterize the worldwide prevalence and morbidity of major diseases, while PatientsLikeMe (PLM) is an online community providing patient-generated insights into lived experiences; for dermatologic conditions, quantitative comparisons of GBD and PLM data revealed expected demographic differences but also notable correlations, highlighting their potential as complementary data sources elucidating unmet patient needs and priorities.
Combining Topic Modeling, Sentiment Analysis, and Corpus Linguistics to Analyze Unstructured Web-Based Patient Experience Data: Case Study of Modafinil Experiences
Authors: Walsh Julia , Cave Jonathan , Griffiths Frances 
Published: December 2024

Background
Patient experience data from social media offer patient-centered perspectives on disease, treatments, and health service delivery. Current guidelines typically rely on systematic reviews, while qualitative health studies are often seen as anecdotal and nongeneralizable. This study explores combining personal health experiences from multiple sources to create generalizable evidence.

Objective
The study aims to (1) investigate how combining unsupervised natural language processing (NLP) and corpus linguistics can explore patient perspectives from a large unstructured dataset of modafinil experiences, (2) compare findings with Cochrane meta-analyses on modafinil’s effectiveness, and (3) develop a methodology for analyzing such data.

Methods
Using 69,022 posts from 790 sources, we used a variety of NLP and corpus techniques to analyze the data, including data cleaning techniques to maximize post context, Python for NLP techniques, and Sketch Engine for linguistic analysis. We used multiple topic mining approaches, such as latent Dirichlet allocation, nonnegative matrix factorization, and word-embedding methods. Sentiment analysis used TextBlob and Valence Aware Dictionary and Sentiment Reasoner, while corpus methods including collocation, concordance, and n-gram generation. Previous work had mapped topic mining to themes, such as health conditions, reasons for taking modafinil, symptom impacts, dosage, side effects, effectiveness, and treatment comparisons.

Results
Key findings of the study included modafinil use across 166 health conditions, most frequently narcolepsy, multiple sclerosis, attention-deficit disorder, anxiety, sleep apnea, depression, bipolar disorder, chronic fatigue syndrome, fibromyalgia, and chronic disease. Word-embedding topic modeling mapped 70% of posts to predefined themes, while sentiment analysis revealed 65% positive responses, 6% neutral responses, and 28% negative responses. Notably, the perceived effectiveness of modafinil for various conditions strongly contrasts with the findings of existing randomized controlled trials and systematic reviews, which conclude insufficient or low-quality evidence of effectiveness.

Conclusions
This study demonstrated the value of combining NLP with linguistic techniques for analyzing large unstructured text datasets. Despite varying opinions, findings were methodologically consistent and challenged existing clinical evidence. This suggests that patient-generated data could potentially provide valuable insights into treatment outcomes, potentially improving clinical understanding and patient care.
Validation of a Wearable Sensor Prototype for Measuring Heart Rate to Prescribe Physical Activity: Cross-Sectional Exploratory Study
Authors: Loro Fernanda Laís , Martins Riane , Ferreira Janaína Barcellos , de Araujo Cintia Laura Pereira , Prade Lucio Rene , Both Cristiano Bonato , Nobre Jéferson Campos Nobre , Monteiro Mariane Borba , Dal Lago Pedro 
Published: December 2024

Background
Wearable sensors are rapidly evolving, particularly in health care, due to their ability to facilitate continuous or on-demand physiological monitoring.

Objective
This study aimed to design and validate a wearable sensor prototype incorporating photoplethysmography (PPG) and long-range wide area network technology for heart rate (HR) measurement during a functional test.

Methods
We conducted a transversal exploratory study involving 20 healthy participants aged between 20 and 30 years without contraindications for physical exercise. Initially, our laboratory developed a pulse wearable sensor prototype for HR monitoring. Following this, the participants were instructed to perform the Incremental Shuttle Walk Test while wearing the Polar H10 HR chest strap sensor (the reference for HR measurement) and the wearable sensor. This test allowed for real-time comparison of HR responses between the 2 devices. Agreement between these measurements was determined using the intraclass correlation coefficient (ICC3.1) and Lin concordance correlation coefficient. The mean absolute percentage error was calculated to evaluate reliability or validity. Cohen d was used to calculate the agreement’s effect size.

Results
The mean differences between the Polar H10 and the wearable sensor during the test were –2.6 (95% CI –3.5 to –1.8) for rest HR, –4.1 (95% CI –5.3 to –3) for maximum HR, –2.4 (95% CI –3.5 to –1.4) for mean test HR, and –2.5 (95% CI –3.6 to –1.5) for mean recovery HR. The mean absolute percentage errors were –3% for rest HR, –2.2% for maximum HR, –1.8% for mean test HR, and –1.6% for recovery HR. Excellent agreement was observed between the Polar H10 and the wearable sensor for rest HR (ICC3.1=0.96), mean test HR (ICC3.1=0.92), and mean recovery HR (ICC3.1=0.96). The agreement for maximum HR (ICC3.1=0.78) was considered good. By the Lin concordance correlation coefficient, the agreement was found to be substantial for rest HR (rc=0.96) and recovery HR (rc=0.96), moderate for mean test HR (rc=0.92), and poor for maximum HR (rc=0.78). The power of agreement between the Polar H10 and the wearable sensor prototype was large for baseline HR (Cohen d=0.97), maximum HR (Cohen d=1.18), and mean recovery HR (Cohen d=0.8) and medium for mean test HR (Cohen d= 0.76).

Conclusions
The pulse-wearable sensor prototype tested in this study proves to be a valid tool for monitoring HR at rest, during functional tests, and during recovery compared with the Polar H10 reference device used in the laboratory setting.
Topics and Trends of Health Informatics Education Research: Scientometric Analysis
Authors: Han Qing 
Published: December 2024

Background
Academic and educational institutions are making significant contributions toward training health informatics professionals. As research in health informatics education (HIE) continues to grow, it is useful to have a clearer understanding of this research field.

Objective
This study aims to comprehensively explore the research topics and trends of HIE from 2014 to 2023. Specifically, it aims to explore (1) the trends of annual articles, (2) the prolific countries/regions, institutions, and publication sources, (3) the scientific collaborations of countries/regions and institutions, and (4) the major research themes and their developmental tendencies.

Methods
Using publications in Web of Science Core Collection, a scientometric analysis of 575 articles related to the field of HIE was conducted. The structural topic model was used to identify topics discussed in the literature and to reveal the topic structure and evolutionary trends of HIE research.

Results
Research interest in HIE has clearly increased from 2014 to 2023, and is continually expanding. The United States was found to be the most prolific country in this field. Harvard University was found to be the leading institution with the highest publication productivity. Journal of Medical Internet Research, Journal of The American Medical Informatics Association, and Applied Clinical Informatics were the top 3 journals with the highest articles in this field. Countries/regions and institutions having higher levels of international collaboration were more impactful. Research on HIE could be modeled into 7 topics related to the following areas: clinical (130/575, 22.6%), mobile application (123/575, 21.4%), consumer (99/575, 17.2%), teaching (61/575, 10.6%), public health (56/575, 9.7%), discipline (55/575, 9.6%), and nursing (51/575, 8.9%). The results clearly indicate the unique foci for each year, depicting the process of development for health informatics research.

Conclusions
This is believed to be the first scientometric analysis exploring the research topics and trends in HIE. This study provides useful insights and implications, and the findings could be used as a guide for HIE contributors.
Effects of Bifidobacterium longum longum 35624® on the Symptoms and Quality of Life in Patients with Irritable Bowel Syndrome: Results of the Multicenter Observational Program SAGA
Authors: Ivashkin V. T. , Poluektova E. A. , Mamieva Z. A. 
Published: December 2024

Aim: to evaluate the effects of the probiotic Symbiosys Alflorex (Bifidobacterium longum longum 35624®) on the symptoms and quality of life in patients with irritable bowel syndrome (IBS).Materials and methods. A multicenter, observational program (SAGA) was conducted to evaluate the effects of Symbiosys Alflorex on symptoms and quality of life in patients with IBS, which enrolled 3,116 patients and 246 physicians from 48 cities of Russia. Eligible patients were diagnosed with IBS according to the Rome IV Criteria and clinical guidelines of the Russian Association of Gastroenterology and the Association of Colorectal Surgeons of Russia. Patients received standard-of-care treatment and add-on therapy with Symbiosys Alflorex 1 capsule once daily for 28 days, followed by Symbiosys Alflorex alone for 2 months. The intensity of symptoms and severity of IBS were assessed using the 7 Symptoms in 7 Days (“7 × 7”) and the Irritable Bowel Syndrome Severity Scoring System (IBS-SSS) questionnaires, respectively. The Irritable Bowel Syndrome Quality of Life (IBS-QоL) questionnaire was used to assess the quality of life. Stool abnormalities were assessed using the Bristol Stool Scale.Results. After the course of standard-of-care treatment and add-on therapy with Symbiosys Alflorex, 25.8 % of patients achieved clinical remission. After 3 months of probiotic treatment, 76.9 % of patients achieved clinical remission. A significant decrease in the “7 × 7” score was observed, with the mean total score decreasing from 15.8 to 9.77 after the main treatment course and to 3.44 by the end of the study. Stool consistency became normal in 40.1 % of patients by the end of the first month and in 76.8 % after 3 months of follow-up. Changes in the IBS-QoL score showed a significant improvement in the quality of life.Conclusions. Add-on treatment with Symbiosys Alflorex 1 capsule once daily for 3 months helps to improve IBS symptoms and quality of life of patients. Symbiosys Alflorex has a favorable safety profile.
Functions of the Educational Researcher at Present: Acting as an Entrepreneur and Knowledge Worker
Authors: Perea Ma. Dolores García , Toledo Rafael Juárez , Rodríguez Leticia del Carmen Ríos 
Published: December 2024

Objective: Reflect on the actions of the entrepreneur and the actions of the knowledge worker as functions of the educational researcher according to the current historical epoch.

Theoretical Framework: Both functions have as main support the theory 'Knowledge Society'. They are also implicit in the theories 'Post-industrial society' and 'Information society'.

Method: The content of the work is part of the results of the qualitative research 'The educational researcher in the knowledge and information societies'. Based on the sources of consultation is theoretical, interpretative analysis, descriptive approach and oriented to the professional practices of the educational researcher.

Results and Discussion: The main result revolves around the differences on the functions specified in the contract and employment appointment whose characteristic is that they are carried out within the contracting institution, in relation to acting as an entrepreneur and knowledge worker, which, in addition to being freely chosen, are developed by conviction, professional ethics and social commitment, without omitting that they develop outside the labor institution.

Implications of the research: The professional practices of the educational researcher are not reduced or restricted to the functions specified in the contract and employment appointment. For this reason, acting as an entrepreneur and knowledge worker are functions that must, have and can be developed by the educational researcher and by other educational actors of the Mexican educational system. Regardless of the fact that few researchers carry out both functions, the results benefit the educational researcher, the formation of human capital, the labor institution and society. Most of the obstacles to developing them are found in the regulations of the administrative bureaucracy.

Originality/Value: This work contributes to the literature on the educational researcher and aims to invite the educational and institutional authorities, educational actors and mainly the educational researcher to incorporate the functions as part of the professional practices that correspond to them because both are in accordance with the current historical era and the benefits and advantages they offer to society.
A Contribution to Define Indicators to Assess Sustainability
Authors: Mata-Lima Herlander , Sacht Helenice Maria , Ayala Jazmin Lopez , Duarte Maria Soledad Colman 
Published: December 2024

Objective: The work proposes a procedure to assess indicators related to key aspects of sustainability of organizations through an integrated procedure that includes the comparison of results and policies of various organizations to contribute to meeting the desired international requirements for sustainability.

Theoretical benchmark: The literature review emphasizes that the contribution of organizations is fundamental to achieving the regional objectives of territorial development with regard to territorial planning and socio-environmental management towards sustainability.

Method: The methodology used is based on bibliographic review to diagnose the current situation of organizational sustainability, characterize the models adopted by different organizations, performing benchmarking based on the results and processes to identify good sustainability practices.

Results and conclusion: Based on the results of benchmarking the organization can set the methodological approach to quantify the sustainability indicators, which is best suited to their profile in relation to their activities, products and services.

Implications of the research: Critical factors for organizational sustainability were identified, and one proposes a systematic approach to assess the indicators and make recommendations for corrective action and continuous improvement regarding reference condition (starting condition).

Originality/value: The work contributes to clarifying what organizations need to do in practice to contribute to sustainable development.
Evaluation of the Quality and Transversal Competences of University Students in an Andean region, Perú
Authors: Lipa Rocio Cahuana , Mamani Julio Cesar Machaca , Torres Sabino Pichihua , Oblitas Yuliza Francesca Anchari , Cano Angela Fiorella Sota , Morante Francisco Javier Yarleque 
Published: December 2024

Objective: The objective of the study was to determine the relationship between the perception of the quality of the educational service and transversal competencies in university students from the Andean region of Peru.

Theoretical Framework: The study is based on the Tuning theory and the Servperf pattern.
Method: The methodology used was quantitative, the study data collection was carried out through geolocation, the sample was made up of 263 university students from an Andean region of Peru.

Results and Conclusions: The results show that quality was perceived by 5.7% as never before; 18.3% almost never, 43.3% sometimes, 27.8% almost always and 4.9% always and with respect to transversal skills it was revealed that 5.7% have never developed them ; 38.4% occasionally, 35.7% almost always and 20.2% always. Therefore, it is contextualized that the quality of university education transcends the excellence of the teacher in which transversal skills are integrated, strengthening the comprehensive development of university students.

Research Implications: In the end it is intended to reaffirm that the basic quality conditions remain intact and unchanged since the license was obtained at said university and allows immediate attention for its relicensing.

Originality/Value: The research makes a comprehensive and innovative contribution to self-assessment and reference within the university apparatus and even more so when transversal competencies are emphasized, especially in Andean regions.
Artisanal Fishing and Fish Farming Networks in Colombia: Social and Solidarity Economy Contribution
Authors: Basso Dirceu , Rodríguez Juan Fernando Álvarez , Feiden Aldi 
Published: December 2024

Objective: To analyze social and solidarity economy (SSE) contribution aiming on associations and cooperatives, concerning dynamics of artisanal fishing and fish farming in Colombia.

Theoretical Framework: This study values the contributions of New Economic Sociology (NES) and Convention Theory (French), based on analytical concepts of social networks, embeddedness, conventions and social construction of markets. Approaches to markets and the social and solidarity economy are connected to the theoretical framework.

Method: This research is characterized as descriptive, exploratory and typological, therefore, with a qualitative emphasis. The typological construction of social networks considered eight qualitative variables that allow us to understand the nature of social networks in their interactions with markets, and associations and cooperativism contribution in the outlined social networks

Results and Discussion: Four social networks were identified: one of them is related to artisanal fishing (artisanal fishing net) and three belong to fish farming, namely: fish farming network; fish farming in network “transition” and; commodity fish farming network. Social and solidarity economy is present in artisanal fishing networks, fish farming networks, and fish farming networks in “transition”, while associations are the most predominant manifestation, with practices that aim at improving productive processes and quality of life.

Research Implications: To understand the contribution of social and solidarity economy of the artisanal fishing network and the three Colombian fish farming networks, regarding the strong spirit of fishermen and fish farmers for the practices of solidarity cooperation and to observe the limits and perspectives that can contribute to cooperative entrepreneurship.

Originality/Value: Analyze the contribution of social and solidarity economy in artisanal fishing and fish farming context, based on the notion of social networks, which allow us to observe different patterns present on fishermen and fish farmers’ behaviors in their fishing enterprises and the role played by both Associativism and Cooperativism in different described and analyzed networks.
Validación del inventario de personalidad del DSM 5 en una muestra de profesores universitarios colombianos
Authors: Berrío García Nathaly , Vieco Gómez German Fernando , Londoño Arredondo Nora Helena 
Published: December 2024

El modelo dimensional de personalidad del DSM 5, comprobado reiteradamente, postula una teoría que establece la existencia de cinco dominios como variantes desadaptativas de los cinco grandes de personalidad, desde el punto de vista psicopatológico. Para continuar con la comprensión de las diferentes asociaciones entre los rasgos de la personalidad derivados del modelo de los cinco grandes y diversas variables, se requiere disponer de instrumentos con adecuadas propiedades psicométricas y adaptados lingüística y culturalmente a las poblaciones de interés. El objetivo del estudio actual es medir las propiedades psicométricas para la versión breve del Inventario de Personalidad del DSM 5. Se desarrolló una investigación con diseño metodológico de tipo psicométrico. Participaron 286 profesores de 29 universidades de Colombia, con mediana de edad de 43 años (RIC 15). El análisis factorial corroboró la estructura de cinco factores que explicaron el 39,6 % de la varianza total. La evaluación de la relevancia, claridad, precisión y comprensión de los reactivos fluctuó entre 0,90 y 0,99. La consistencia interna para la escala total fue de ω = 0,86 y osciló entre 0,68 y 0,77 para las cinco dimensiones del inventario. Las evidencias de validez de contenido y confiabilidad sugieren que el instrumento es adecuado para la medición de la personalidad en profesores universitarios.
Uganda's Media Landscape
Authors: Tian Jiahuang , Nikonov Sergey Borisovich , Gurushkin Pavel Yurievich , Melnik Galina Sergeevna 
Published: December 2024

This study analyzes the evolution of the Ugandan media landscape and its interaction with the political environment. The media in Uganda has historically undergone a transformation from external control in the colonial era to local development after independence and the transition to the digital age. Despite the constitutional guarantee of freedom of the media in Uganda, they continue to be subject to strict government censorship and control, especially in the field of regulation of social networks and online platforms. This phenomenon shows the contradictions and complexities between media freedom and government control in Uganda. About 98% of Ugandan households have access to radio via traditional radio, telephone or Internet. Radio has a wide reach in Uganda, especially in remote areas, where it has become the main source of information for the population. Compared to television and print media, radio has more influence, and people generally trust radio and find its content more direct, reliable and easy to understand. The study uses a qualitative research approach combining documentary analysis, case studies and comparative analysis. To do this, it was necessary, first, to trace the historical background and evolution of media policy in Uganda. Secondly, to select typical public and private media for case studies and examine their social functions under government control. The relevance of this work lies in the fact that, analyzing the historical development of the Ugandan media, their current state and connection with politics, it is possible to present a specific example for studying African media systems. The object of research in this work is the Ugandan media landscape, and the subject is the peculiarities of the development process and characteristics of Ugandan media. The novelty of the research lies in the combination of multidimensional perspectives of the historical, political and media environment of Uganda for a systematic analysis of the evolution of the Ugandan media landscape and its interaction with the political system. In addition, the study provides a unique perspective on the challenges faced by Ugandan media in the context of globalization, in particular the struggle between the growth of social media and government regulation, which offers new insights into the relationship between media and politics in other African countries.