bluuebunny/crossref_metadata_2025_split huggingface dataset:
Healthcare spaces for autism spectrum disorder - removing barriers for mental disability
Authors: Morganti A 
Published: October 2020

Abstract
Mental impairments diagnoses are increasing, due to changes in incidence and prevalence and increased changes in diagnostic methods. Among them, Autism Spectrum Disorder (ASD) is now diagnosed in one child on fifty- nine during scholar and pre-scholar age: this will make them frequently visitors of healthcare and therapeutic structures since childhood.
Sensorial hypo- or hyper-activation is one of the principal features that can affect the wellbeing of people with ASD, causing discomfort. Sounds, lights, colours, smells, shapes and surfaces should be carefully chosen in order to design as much as possible an “Autism-friendly space”, that could be also a healing space that helps handling sensorial stimuli inside stressful healthcare environments.
At the moment, among literature there are just few contributions that analyse the impact of built environment on ASD users, and there are no insights about healthcare spaces. Despite these gaps, there are still no guidelines provided by institutions to set design standards and guide designers, architects or caregivers in the project phase.
The goal of the research is to provide a specific evaluation tool for healthcare spaces and best practices formulation, validated in collaboration with stakeholders and ASD users through a co-design approach. These design strategies will be subsequently applied, improving two study-case environments, in order to compare the different outcomes on user's wellbeing and compliance.
Optimizing a stroke caregiver support programme in practice with Participatory Action Research
Authors: Krieger T , Feron F , Dorant E 
Published: October 2020

Abstract
Family caregivers (FCG) play a key role in the day-to-day care of stroke survivors. Most FCG support programmes are complex public health interventions. Often, they are designed top-down without key stakeholder participation. Hence, when implementing these programmes in real world settings, they may experience “teething problems”. Optimization in practice and actively engaging its stakeholders to accurately fit the programme to the needs in practice may enhance the programmés chance of success.
The Participatory Action Research (PAR) strategy was chosen for the optimization of a German primary prevention programme for stroke FCGs. Immediately after the development of the preliminary support concept (5 Conceptual Building Blocks - CBB), conducted top-down by the academic research team, iterative PAR-cycles (observe - reflect - plan - act) were applied. Together with the stakeholders (service providers and FCG), three steps were taken: (1) verifying and fitting the preliminary CBBs, (2) detecting, developing, verifying and fitting new blocks, and (3) prioritizing all blocks. For data collection a multi-methodological design was chosen.
Through PAR, a matured FCG support concept was obtained, containing eight CBBs. The five preliminary CBBs: ‘Content’, ‘Human resources’, ‘Personalized approach’, ‘Timing’, and ‘Setting’, were optimized and prioritized as core blocks, providing the base for individual caregiver support. Three new CBBs: ‘Network building’, ‘Communication’, and ‘Social safety-net’ were assigned as facilitating blocks, interlinking and securing the programme within the existing support system.
PAR was found to be essential for both systematically detecting conceptual weaknesses of the preliminary concept and adjusting its components to the needs of the key stakeholders, before full-scale implementation. Involvement of stakeholders, with high levels of participation, will enhance the acceptance of the matured concept and its feasibility in practice.
31.F. Workshop: Health system (performance) assessment: working towards a common approach
Authors:   Organised by: European Observatory on Health Systems and Policies, WHO,   Chair persons: Jonathan Cylus - UK
Published: October 2020

Abstract
Since the publication of the World Health Report 2000, which aimed at assessing health systems performance globally, a number of health systems performance assessment (HSPA) frameworks and tools, designed for various purposes, have emerged. In 2017, the joint Universal Health Coverage 2030 Technical Working Group on Health Systems Assessment (TWG), consisting of health policy makers and global actors, such as the WHO, World Bank, USAID, Unicef, European Commission, OECD, etc., was formed with the aim to align the existing tools and develop a common approach to understanding and measuring health systems performance globally.
As part of this work, the European Observatory on Health Systems and Policies (OBS) has developed a Health Systems Performance Assessment framework for Universal Health Coverage (HSPA Framework for UHC), that allows to evaluate health system performance, largely by drawing on the information available in the existing tools or through global data collection initiatives. Suggested approach is based on the detailed assessment of the four health system functions (governance, financing, resource generation and service delivery) and their sub-functions, the interaction of which jointly leads to the successes and failures in the achievement of health system goals. We propose distinct assessment areas for specific functions and sub-functions as a way to identify potential strengths and weaknesses, which can then be related to actions or responsibilities of specific actors within a health system, or linkages to other sectors.
The objective of the workshop is to introduce the background, rationale, methods and process of developing of the HSPA framework for UHC; present a systematic approach to assessing various functions of health system and their interactions; relate the assessment areas of specific functions and sub-functions to the final health system goals; and, finally, to test the use of the framework in practice.
The workshop is structured as follows: the workshop will start from the four 10-minute presentations (outlined below), followed by an interactive session with the audience to discuss the content of the framework and elaborate on its potential use for HSPA and applications globally.

Key messages
The HSPA framework for UHC is an approach that allows to bring together existing HSPA efforts and moves towards a more systematic and universally applicable health system performance assessment. The approach assesses performance through attribution of various health system outcomes to specific functions and sub-functions, allowing to identify strengths and weaknesses that affect performance.
Trends in mortality and heart failure after acute myocardial infarction in Italy from 2007 to 2017
Authors: Rosato S , D'Errigo P , Manno V , Maraschini A , Cerza F , Cicala S D , Forti M , Mureddu G F , Badoni G , Sferrazza A 
Published: October 2020

Abstract

Background
Uncertainties on long-term outcomes after acute myocardial infarction (AMI) still exist, despite the ongoing progresses in the management of patients with AMI. This study aims to appraise early and 1-year outcome of patients hospitalized due to AMI and to describe the role of heart failure (HF) as complication affecting prognoses.

Methods
Retrospective nationwide cohort study based on administrative data on patients with AMI admitted in all Italian hospitals from 2007 to 2017. Index admission mortality rate (I-MR), 30-day and 1-year post-discharge mortality rate (PD-MR), and 30-day and 1-year total mortality rate (T-MR) were analysed; mortality average annual changes (AC) and their 95% CI were calculated; the Cox model, adjusting for age, sex, comorbidities and length of stay, was used to analyse 1-year PD-MR

Results
1,148,820 patients were considered. From 2007 to 2017, both I-MR and T-MR up to 1 year decreased significantly (from 10.9 to 8.4%; AC: -0.28%; CI: -0.31 to -0.25 and from 20.2% to 17.1%: AC: -0.33%; CI: -0.39 to -0.28, respectively). From 2010, also the rate of PD-MR decreased significantly from 11.7% to 10.4%, with such favourable trend confirmed at multivariable analyses. The HF diagnosis at the index admission is always associated with a significant increase in the risk of death (1-year T-MR average: 43% and 12% in patients with or without HF, respectively; both patients with and without HF show a constant improvement in I-MR, T-MR and PD-MR over time.

Conclusions
In the last decade, the remarkable improvements in the in-hospital treatment of patients with AMI and in the overall prognosis up to 1 year are confirmed by a constant decrease in both early and long-term mortality. Since complication from HF remains a dangerous condition that significantly worsens the prognosis of the AMI patient, appropriate management strategies must be identified and implemented to guarantee best results from both clinic and public health perspective.

Key messages
Remarkable improvements achieved in overall prognosis after AMI over the past 10 years. HF confirms to be a condition able to worsen AMI patients’ prognosis.
Comparing European guidelines for medical student education focusing on emergency preparedness
Authors: Holm S , Ghazal Asswad A , Fundano N , Khan H , Petráková A 
Published: October 2020

Abstract
A review of a variety of European guidelines for the assessment of medical students and their education, progression and preparedness for practise post-medical school. The various approaches were compared and contrasted with the advantages and disadvantages of each being evaluated. Their approaches towards emergency situation preparedness, or lack thereof, were also assessed.
Bridging the implementation and information gap on cancer prevention and survivorship in Europe: results from the iPAAC Joint Action
Authors: De Angelis R , Lipponen S 
Published: October 2020

Abstract

Background
About 40% of cancers are preventable and of those cancers about 50% are due to tobacco. Cancer prevention and early detection can reduce remarkably cancer burden and inequalities with effective strategies from the European Code Against Cancer. A better use of registries data can help to bridge the existing information gaps on cancer survivors, a dramatically growing population challenging the sustainability of public health systems in Europe.

Methods
Policy implementation through collaborative efforts based on cancer registry data, comprehensive policies and innovations. Promotion of standards and methods to facilitate systematic delivery of comparable indicators on cancer survivors by country in Europe.

Results
In cancer prevention known effective measures require European-wide comprehensive action. Population-based cancer screening programmes need continuous quality assurance and follow-up. Prevalence of short- and long-term survivors derived from a joint European dataset (EUROCARE-6, 29 countries) show that differences in survivorship are wide, consistently with demography, incidence and survival patterns. Breast, colorectal and prostatic cancers are the most frequent among all cancer survivors.

Conclusions
Collaboration across fields of science and policy sectors is needed to boost cancer prevention. Cancer survivors are a growing heterogeneous population to be monitored in public health to support Health Technology Assessment and survivors' care planning.

Key messages
Priority actions are developed within iPAAC Joint Action to encourage effective policies and implementation. Joint analysis of standardised European datasets strengthens the impact of cancer registries information. Indicators on cancer prevalence should be systematically integrated in the European Cancer Information System (ECIS).
Implementing precision genomics and innovative immunotherapies in oncology at healthcare level
Authors: Van den Bulcke M , Negellen S 
Published: October 2020

Abstract

Background
Precision genomics through integrating broad information on the genome has proven to be very promising in some tumors and the advent of specific immunotherapies looks to even strengthen this new paradigm. WP6 and WP9 of Joint Action on cancer control have the role of supporting the development of a Roadmap to facilitate the implementation of innovative cancer control actions in EU Member States.

Results
The following actions have been identified: to cover ethical, legal and privacy issues on the use of genome information, the societal debate must be organized,stratified screening by genetic testing of high-risk cancer patients may replace population-wide screening,implementing precision genomics requires careful HCS planning,we need jointly to deal with 'Direct to Consumer',education and training on genomics of health professionals, policy makers and citizens,identification of solutions and remaining challenges to optimize the integration of innovative immunotherapies into clinical practice guidelines,description of early access programs and innovative reimbursement modelsdescription of Horizon scanning systems, to anticipate emerging drugs and address specificities for anticancer drugs and biomarkersdefine the needs and describe optimal programs of real-life monitoring of patients treated with CAR-T cells

Conclusions
Many countries face similar challenges but a number among them developed innovative approaches to overcome these barriers. There is need for capacity building, training and harmonization on the application of genomics and immunotherapies in many countries.

Key message
Providing examples on how to approach implementation of these innovations into the healthcare system through a 'mutual learning' initiative could be a very useful initiative.
The impact of end-userś participation (cancer patients) during the optimization process
Authors: Houwaart S 
Published: October 2020

Abstract
End-user (e.g. patients or the public) testing of information material is becoming more common in the German public health care system. However, including the end-user (in this case patients) in an optimisation process and thus enabling a close collaboration while developing PIMs is still rare. This is surprising, given the fact that patients provide the exact perspective one is trying to address.
Within the isPO project, a patient organization is included as a legal project partner to act as the patient representative and provide the patient's perspective. As such, the patient organization was included in the PHR approach as part of the PIM-optimisation team. During the optimisation process, the patients gave practical insights into the procedures of diagnosing and treating different types of cancer as well as into the patient's changing priorities and challenges at different time points. This was crucial information for the envisioned application of the individual PIMs and their hierarchical overview. Moreover, the developed PIM-checklist enabled the patients to give detailed feedback to the PIMs. With their experience of being in the exact situation in which the PIMs will be applied, their recommendations, especially on the wording and layout of the materials, have been a valuable contribution to the PIM optimisation process.
In this part of the seminar, we will take a closer look at the following skill building aspects: What is gained from including patients as end-users in the development and optimization of PIM?How can we reach patients to contribute to a PIM optimization process? Which requirements and prerequisites do patients have to provide to successfully work on an optimisation team?How to compromise and weigh opinions when different ideas occur?
Altogether, this part will construct a structured path of productive patient involvement and help to overcome uncertainties regarding a collaboration with patient organizations.
Guiding the development of community-based services for vulnerable migrants and refugees in Europe
Authors: Karnaki P , Zota K , Riza E , Gil-Salmerón A , Garcés-Ferrer J , Linos A 
Published: October 2020

Abstract
The Mig-HealthCare roadmap & toolbox emphasize an approach that can be implemented at a local community level by local health professionals. The roadmap and toolbox were the main outcome of the project which combines evidence from original research and other information to present concrete steps in the provision of care to migrants and refugees at a community level. The vision of Mig-HealthCare for this roadmap & toolbox is to (1) Help the health professionals working primarily at the community health care level to familiarize themselves with the key areas of importance in refugee/migrant health (2) Provide health professionals with a valuable set of best practices and handy tools to facilitate their work and to increase their efficiency in delivering appropriate care to migrants/refugees (3) Create a network of professionals experienced in refugee/migrant health who through using this roadmap & toolbox will improve their related knowledge and experience. The roadmap & toolbox is a user-friendly online application which focuses on the key steps for optimal health care delivery to migrants & refugees. It comprises: (1) The necessary actions a health professional needs to engage in during delivery of care to migrants & refugees namely issues related to continuity of information and language, culture & communication issues (2) Health issues of particular importance for migrants & refugees that will pose challenges to health care services especially at the community level including Mental Health, Vaccinations, Maternal/ child health, Health promotion, Oral Health/ Dental Care, Non-Communicable Diseases (NCDs) & chronic conditions (3) an algorithm. Both the roadmap and the toolbox are connected to a toolbox comprising tools in various languages for health professionals or migrants/refugees.
Pilot action within the framework of the Mig-HealthCare project - implementation of community-based pilot studies addressing health inequalities of migrants and refugees
Authors: Zota K , Karnaki P , Gil-Salmerón A , Riza E , Garcés-Ferrer J , Linos A 
Published: October 2020

Abstract
In the framework of the Mig-HealthCare project, a roadmap to community-based health care was developed including a toolbox and an algorithm. The Mig-HealthCare partners piloted parts of the roadmap in 8 EU countries. Piloting included actions on health promotion issues for migrants/refugees, mental health issues, non-communicable diseases, screening for breast and cervical cancer and vaccination issues. Two recommended practices were also piloted among migrants/refugees namely the 'circle of health' and health mentors while the Greek partner tested the developed algorithm in various health settings. All pilots were evaluated using common and pilot specific indicators for (a) appropriateness: the extent to which the piloted interventions were suitable for the target groups (service providers and/or migrants/refugees) (b) effectiveness: the extent to which the pilots' objectives were achieved, or are expected to be achieved, taking into account their relative importance (c) satisfaction: the extent to which pilots meet or surpass target groups and stakeholders (refugee/migrants, service providers and local population) expectation and needs (d) sustainability: the continuation of benefits from the pilot. Sustainability in the pilot implementation context is the ability of key target groups to sustain pilot benefits. Moreover, the impact of the interventions and their results should be sustainable in time. The impact of the pilots on the study population as well as implications for community-level health services are discussed.
Community-based intervention to prevent the incidence of Non-Communicable Diseases in the migrant population: Pilot study in Valencia (Spain)
Authors: Gil-Salmerón A 
Published: October 2020

Abstract
Non-Communicable Diseases (NCDs) are prevalent in the migrant population with increased years of residency in the host country. In this regard, health education and lifestyle interventions have proven to be cost-effective modifying risk factors. The Spanish pilot of the Mig-HealthCare project directly aims to reduce the prevalence of NCDs reducing the well-known “healthy migrant effect” by increasing the levels of health literacy and also turning the lifestyles of the participants into healthier habits in the host country.
The Mig-HealthCare pilot in Spain is a one-month group-based Health Education and Lifestyle Intervention to prevent the incidence of non-communicable diseases in Migrant and refugee populations addressing their Acculturation Process (HELP-MAP). Consequently, the pilot intervention addressing 4 topics: health literacy, physical activity, dietary patterns and strategies for coping with stress.
The implementation of the pilot will be carried out in two different community services (i) one NGO providing care and accommodation for asylum seekers and (ii) three social care units within primary health care centres. Furthermore, following the Mig-Healthcare study protocol evaluation will focus on acculturation strategies, level of health literacy, physical exercise, change in diet, use of health care access and Quality-Adjusted life-years (QALY)
WHO European Health Literacy Action Plan
Authors: Sørensen K , Koylyu A , Mikkelsen B 
Published: October 2020

Abstract

Background
Grounded in the last decade's health literacy developments; the work of the European health literacy action networks on measurement and NCDs as well as the newly adopted European Health Literacy Roadmap and resolution agreed upon by their 53 Member States in 2019, the WHO European Region continues its investment in health literacy. A WHO European health literacy action plan is under development to be launched in 2021. The action plan implies concrete actions for Member States on how to develop health literate populations and societies.

Methods
Based on co-creation principles, the development of the action plan is conducted by stakeholders from a wide range of fields and disciplines. Lead by the WHO European Regional Office, the process includes an initial stakeholder meeting, iterative technical consultations with experts and the wider stakeholder community and Member State consultations. The analytical methods integrate a SWOT-analysis, future scenario thinking and long-sight action planning approaches as well as application of health literacy analytics.

Results
The results of the initial analytical steps will be presented such as the SWOT analysis, the future scenarios and associated recommendations on how to create health literate populations and societies in Europe. Additionally, the outline of the draft of the European health literacy action plan will be open for discussion and input.

Conclusions
Through an iterative process, the European health literacy action plan is co-produced by multiple actors through a series of consultations facilitating ownership and accountability. The European health literacy action plan can be an inspiration and a model for other world regions.
From value-based pricing to fair pricing: the role of HTA for UHC
Authors: Garner S 
Published: October 2020

Abstract
The UHC key concepts and relevant UN resolutions recommending transparency, including in relation to HTA and pricing. The role of innovation and intellectual property frameworks will be discussed, including financing and co-ordination of R&D for health technologies. Examples on the importance information exchange can play to improve negotiations will also be discussed, along with key considerations, commonalities and differences for for developed and developing countries.
Patient participation and representativeness in HTA processes
Authors: Apostolidis K 
Published: October 2020

Abstract
The final speaker will discuss the participation of patients in deliberative processes and HTA, along with what patients, their carers, but also survivors, envision in terms what constitutes a fair process, equitable access and fair pricing, at a time when out-of-pocket catastrophic payments are on the rise across developed nations, whereas access to innovative treatments is seriously hindered by the forbidding price they carry.