bluuebunny/crossref_metadata_2025_split huggingface dataset:
National nodes: a tool to enable efficient work of Distributed Infrastructure on Population Health
Authors: Zaletel M , Bogaert P , Abboud L A , Palmieri L , Van Oyen H , Tolonen H 
Published: October 2020

Abstract

The European framework of health information (HI) consists - besides the supra-national framework - of national frameworks of health infrastructures. It is therefore essential to strengthening capacities to provide HI and carry out research in countries.
Nowadays, one can experience lack of coordination, communication and cooperation between stakeholders in a country, leading to overlap or duplication of research and field-work. InfAct proposes a tool to overcome a majority of these difficulties by encouraging MSs to establish national nodes (NN) as a national focal point for DIPoH. A NN is a building block of DIPoH often coordinated by a national institution or governmental unit that functions as a NN and brings together relevant national stakeholders in an organised way. Researchers from public health institutes and research groups constitute the NN to share expertise and updated knowledge on HI with each other.
Currently, there are some active NN in the EU, with differences in scope, scale and initial purpose, due to different organisation of HI systems in countries. Such heterogeneity can also be found in national eHealth strategies. Diverse organizational arrangements exist which has proven to influence collaborative activities. At the same time new needs are arising, such as to better bridge the digital HI between research and health care, so that our health care systems can faster contribute to integrated data driven insights. This also relates to the debate on the Health Data Space, which creation is stated in the mission letter to the new European Commissioner for Health. For example, the eHealth Network has been discussing policy documents targeted at national level policy with regard to the organization of National eHealth Networks.
In this pitch presentation, an overview of different practices will be presented with proposals for future work in this area, including the role of NN in DIPoH and proposals for their sustainability.

Panelists:
H Van Oyen
Epidemiology and Public Health, Sciensano, Brussels, Belgium Department of Public Health, Ghent University, Ghent, Belgium
Contact: herman.vanoyen@sciensano.be
S Montante
Brussels Liaison Office, National Institute of Health of Italy (ISS), Brussels, Belgium
Contact: sabrina.montante@iss.it
E Bacry
Health Data Hub, Santś publique France, Paris, France
E Bernal-Delgado
Health Services and Policy Research Group, Institute for Health Sciences in Aragon, Zaragoza, Spain
Contact: ebernal.iacs@aragon.es
C Sousa Pinto
Advanced Analytics and Intelligence, Shared Services In Ministry Of Health, Lisbon, Portugal
Contact: catiasousapinto@gmail.com
The tool for mutual learning in cancer control: the iPAAC Roadmap
Authors: Kiasuwa-Mbengi R 
Published: October 2020

Abstract

Background
The last decade has seen great improvements in cancer care and prevention. A lot of initiatives followed in order to provide policy recommendations to manage these changes and implement the advances. These recommendations do not allow to solve practical implementation issues. In the framework of the third Joint Action on cancer control, iPAAC, the Roadmap is intended to facilitate the implementation of cancer control actions in European Member States (EU MS). As the identification of best practices in the field of cancer control implementation is challenged by country-specific contexts, the Roadmap will provide with options for the implementation. These examples were collected through interviews held in EU MS to collect practice and experience and by 6 work packages, which delivered thematic results regarding the specific cancer control domain.

Results
The iPAAC Roadmap has been developed to be a mutual learning tool. It is foreseen as a web-based tool and presented as a searchable repository of examples of implemented actions. The Roadmap gathers all results from EU Joint Actions on cancer control as well as the evidence, background documents and legal frameworks related to the implementation of the examples provided.

Conclusions
Many EU MS do face similar implementation challenges and some of them developed innovative approaches to overcome these barriers. An organized and facilitated mutual learning was therefore needed to gather knowledge and experience, leading to the improvement of cancer control among EU MS. It allows the identification of remaining gaps, providing with key information on additional efforts needed at the EU level, especially in terms of research.

Key message
Roadmap will bring a solution that can help EU MS address the challenges in cancer control through mutual learning and/or by research efforts at the EU level.
Introducing the integrated, cross-sectional psycho-oncology intervention programme and PIM
Authors: Krieger T 
Published: October 2020

Abstract
From the literature and experience, we know that the quality of patient information material (PIM) has a direct impact on its utilization and therefore also on the acceptance and success of an intervention. In this brief introduction session (10 minutes), the innovative “integrated, cross-sectional psycho-oncology” (isPO) programme and the context of its implementation will be sketched. In the programmés development phase, isPO specific-PIM was developed and utilized in its early implementation phase. This will be presented to the audience. Next, an overview regarding the general PIM quality criteria: correctness of content, legibility, comprehensibility and usability in detail will be given. Finally, common guidelines, checklists and quality assessment instruments will be presented, and the role of the target group (participation degree) in the development or examination process will be critically worked out.
Data inputs and assumptions in calculating the fatal burden in burden of disease studies
Authors: von der Lippe E , Grant I , Devleesschauwer B 
Published: October 2020

Abstract
Years of Life Lost (YLL) is a measure of premature mortality used in the calculation of the Disability-Adjusted Life Year (DALY), as well as stand-alone measure in itself. The concept of years of life lost is to estimate the length of time a person is expected to have lived had they not died prematurely. The YLL is based on comparing the age of death to an external standard life expectancy curve, and can incorporate time discounting and age weighting. Furthermore, YLL can be calculated for specific causes of death. In this way the indicator can be used to compare the relative importance of different causes of premature death within a particular population. Thus, it can be used by health planners to define priorities for the prevention interventions.
The process of calculating a YLL involves several components and this presentation will provide a sequential walk through each step in the YLL calculation, including causes of death statisticsdefinition of ill-defined deathsmethods of redistribution of ill-defined deathsthe use of life tablessocial weighting
The aim of this presentation is to outline a simple step by step guide on the key components in the YLL calculation. Using the real-life example of cerebrovascular disease, the presentation will outline the key choices and assumptions that underline each data inputs in the YLL calculation. Participants in this session will also be provided with links to resources to help facilitate this decision making process. The workshop will end with an interactive session where the presenters will discuss the implications of the different methodological choices with the audience.
Discrimination accessing to health care services: Feelings of migrants and misunderstandings of professionals
Authors: Gil-Salmerón A , Karnaki P , Zota K , Riza E , Linos A 
Published: October 2020

Abstract
Discrimination against migrants in healthcare settings and also the negative impact of this discrimination on their health are well documented. These experiences of discrimination may present a barrier to accessing or seeking appropriate health care. For this reason, the Mig-HealthCare project aimed to study the perceived feeling of discrimination against migrants and explore the perception of community members regarding health-related issues about migrants. In order to answer both questions, based on a mix-methods design, the Mig-Healthcare consortium collected data from 1,286 questionnaires completed by migrants/refugees in 10 EU countries and carried out 6 focus groups and 5 individual interviews in 7 countries.
Quantitative results show increased levels of mental health-related symptoms among migrants/refugees as well as dental health problems. The majority of respondents in all countries of the interview, needed more information about their rights and the way to use the health care services, while in Greece migrants showed the biggest need for more information about several health topics.
Moreover, qualitative results pointed out the presence of deeply rooted misconceptions towards migrants and refugees that span across different thematic areas: migrants and refugees represent a vector for the transmission of new or eradicated diseases and a burden for the already overstretched welfare system since they often demand preferential pathways to health or social services at the expenses of the local population.
Implications for the quality of healthcare services available for migrants/refugees are discussed as well as health issues which are of particular importance to this population. Feelings of discrimination and the extent to which they influence the quality of care received are analysed in combination with health being a basic human right to which need to all people have equal rights.
WHO Working Group on Health Literacy in Schools
Authors: Paakkari L , Okan O , Aagaard-Hansen J , Barnekow V , Weber M W , Sørensen K 
Published: October 2020

Abstract

Background
Addressing children`s and adolescents` health literacy is a bedrock for personal and societal growth, health and wellbeing over the life-course, and sustainable development in the WHO European Region and beyond. Promoting health literacy competencies should already be addressed in schools. To outline a strategy for the national education sectors, WHO Europe has launched a working group on health literacy in schools, which aims to develop a conceptual framework for decision makers within the educational and health sector to advocate for health literacy, facilitate the implementation process, and support the uptake on the national level.

Methods
Based on expert workshops and meetings, literature and document analyses and discussions, this working group has developed a concept note on health literacy addressing the education sector of the WHO member states.

Results
This work is linking health literacy in schools with the wider WHO health literacy strategy. Emphasis is placed on the critical role of the education sector and the necessary resources to implement action in schools. In addition, this report provides curriculum examples from Member States and key health literacy learning objectives. This includes an action agenda in order to implement monitoring and surveillance of health literacy in schools. The concept paper acknowledges the large variation in the level and organizational structure of the school health services among the 53 regional Member States.

Conclusions
This report highlights the reason why health literacy of children and adolescents should be addressed as early as in schools. It outlines the available evidence on children and adolescent`s health literacy and the challenges the Member States might face when they aim at addressing health literacy in the education sector and schools. The report should help policy and decision makers to implement health literacy in their countries taking into consideration the importance of adapting to local contexts.
Self-learning Courses EaD to qualify clinical practice
Authors: Fassa A , Fantinel E J , Soares D C , Carret M L V , Linhares R , Maagh S , Pinto L R , Fassa M E G , Facchini L A 
Published: October 2020

Abstract

Background
Health service evaluation studies point to the low quality of care, however the permanent education of health professionals is a major challenge. Within the scope of the Open University for the Unified Health System (SUS), the Department of Social Medicine of the Federal University of Pelotas produced open access self-learning courses, for primary health care, based on interactive clinical cases, through distance learning.

Methods
The courses, with 45 hours, provides interactive clinical cases, medical calculators and textual materials for use by the professional or with the community. The cases are presented and followed by multiple choice questions, focusing diagnosis and treatment. The feedback is automatic. An expanded theoretical content ('learn more') that privileges the use of illustrations, images, infographics and flowcharts useful for professional practice can be accessed. Bibliographical references on the subject are also available. The courses are available in a responsive web client app, for various types of devices, providing control of progress and automatic certification. The app allows the work offline, enabling the permanent education of professionals working in remote areas.

Results
Six courses were produced for doctors, nurses and dentists, more than 30,000 users were certified.

Conclusions
This problem-based learning initiative allows the student to have a menu of cases, providing a choice of the subject, decision on the time allocated to the activity, repetition according to its need, access to a large bibliography and reading in the quantity and depth chosen by the student. In addition, the format is challenging and develops clinical reasoning. The proposition of questions promotes the reflection of the student in relation to his knowledge on the subject. Automatic feedback, 'learn more' and selected bibliographies provide formative assessment and subsidize students to define their study needs in each subject.

Key messages
Distance learning expands the possibility of qualifying the clinical practice of health professionals, especially those in remote areas. Interactive clinical cases provide the development of clinical reasoning, content review and promote formative assessment.
Deporting immigrant parents: Impact on the health and well-being of their citizen children
Authors: Martinez-Donate A , Tellez Lieberman J , Bakely L , Correa C , Valdez C , McGhee Hassrick E , Gonzalez-Fagoaga E , Asadi Gonzalez A , Rangel Gomez G 
Published: October 2020

Abstract

Background
In the United States (U.S.), over 4 million citizen children live with an unauthorized immigrant parent who is at risk of deportation. Children of Mexican immigrants are disproportionately represented among this population, as 1 out of 3 deported immigrants are from Mexico. Parental deportation can have profound and long-lasting consequences for children, yet research on this topic is sparse. We present preliminary findings from an ongoing, longitudinal study examining changes in health, well-being, behavior, and environmental factors among U.S. citizen children of recently deported Mexican immigrants.

Methods
Forty-eight deported Mexican parents were recruited from deportation processing stations on the Mexican border region. We completed phone interviews with one of their U.S.-based, citizen children and an adult caregiver, collecting retrospective information on health, health behavior, household, academics, and socio-ecological health determinants from a year earlier, as well as shortly after deportation of their parent. Pre-post analyses of caregivers' survey data were conducted to assess changes in outcomes associated with parental deportation.

Results
Following deportation of their parents, children were reported to have more frequent health problems (p=.008), including mental health problems (p=.002), externalizing (p=.040) and internalizing (p=.011) behaviors, school absences (p=.092), and experiences of food insecurity (p=.007) than a year before. Academic expectations were also significantly worse (p=.006) than those prior to parental deportation.

Conclusions
Children are the unintended victims of indiscriminate immigration enforcement. Deportation of parents is associated with significant deterioration of physical and mental health, behavior, academics, and home environment for their U.S. citizen children. Our results call for immigration policy reform and interventions to support families affected by the deportation of a parent.

Key messages
Immigration policies that separate families can have significant detrimental impacts on the health and well-being of U.S. citizen children. Policies must be revised to keep families together and protect children in mixed-legal status families.
Healthcare systems strategies to manage pandemics transition phases: a systematic review
Authors: Cascini F , Hoxhaj I , Zaçe D , Ferranti M , Ricciardi W , Boccia S 
Published: October 2020

Abstract

Background
Several countries facing the COVID-19 pandemic were not prepared to manage it. Public health mitigation strategies, ranging from isolation of infected cases to implementation of national lockdowns, proved their effectiveness for the outbreaks control. However, the adjustment of public health measures is crucial during transition phases to avoid new outbreaks. To address the need for designing evidence-based strategies, we performed a systematic review, identifying healthcare systems approaches, experiences and recommendations used to manage COVID-19 and other epidemics.

Methods
PubMed, Web of Science, Scopus and Cochrane were searched to retrieve eligible studies of any study design, published in English until April 17th, 2020. Double-blinded screening process was conducted by titles/abstracts and subsequently eligible full-texts were read and pertinent data were extracted. We performed a narrative analysis of each implemented strategy.

Results
We included a total of 24 articles addressing the public health strategies implemented for respiratory viral infections outbreaks as COVID-19, influenza A H1N1, MERS and SARS. The identified strategies are ascribable to two main categories: healthcare systems management at a national level and healthcare providers strategies at a local level. The key components of the transition strategies regarded the implementation of evidence-based contextual policies, intrahospital management approaches, community healthcare facilities, non-pharmaceutical interventions, enhanced surveillance, workplace preventive measures, mental health interventions and communication plans.

Conclusions
The identified healthcare systems strategies applied worldwide to face epidemics or pandemics, are a useful knowledge base to inform decision-makers about control measures to be used in the transition phases of COVID-19 and beyond.

Key messages
Healthcare systems strategies that can be implemented to manage pandemics/epidemics transition phases are a useful knowledge base to inform policy makers about the most effective solutions to adopt. The evidence reporting the healthcare systems management of respiratory viruses epidemics/pandemics, show the lack of a common and shared approach and more evidence-based research is needed.
Computerized prescription order entry and adverse drug events in pediatrics: a systematic review
Authors: Lambert Passos S , Barbosa N O , Mayon Neves L A A , Motta P A , dos Santos J L B , de Sousa F M , Cavalini L T 
Published: October 2020

Abstract

Background
Potentially harmful errors occur in pediatric patients at a rate three times higher than in adults, mainly due to dosage calculations. Objective. To evaluate the effect of Computerized Prescription Order Entry (CPOE) and Decision Support Systems (DSS) on Adverse Drug Events (ADE) in pediatrics. Method. Systematic review updated up to December 2019 in the PubMed, Scopus, Web of Science and Embase, Lilacs and cross-references, recorded in Prospero CRD 42019126590. Observational and pre- and post-implementation CPOE studies were included. in any language. A scale was used for methodological evaluation of the studies. Relative risk (RR), attributable risk (AR) or number needed to treat (NNT) with 95% CIs were computed for comparing the incidence of total, actual, preventable and potentially harmful ADE.

Results
Starting with 203 retrieved abstracts, 12 articles were included - eight interventional and four observational studies. Five articles evaluated CPOE and seven CPOE plus DSS. Settings for eleven studies were hospitals and one an outpatient facility. Sample sizes ranged from 514 to 45,615 totaling 112,187 patients. The number of prescriptions ranged from 724 to 92,398, totaling 182,803. A reduction in total ADE was observed in two studies. The risk reduction of preventable ADE ranged from 24% RR 0.76 (0.59 - 0.97) to 47% RR 0.53 (0.29-0.91) in four articles. Potentially harmful ADE (ADE ph) in five studies were reduced from 76% RR = 0.24 (0.09-0.68) to 44% (RR 0.56 (0.46 - 0.70), with an AR variyng from 1.8 to 0.9%. One of the articles stated that 64 (95% CI 25-100) patients would need to be using CPOE in order to avoid one potentially harmful ADE. Studies identified reductions in ADE in various settings- two in wards, one in wards and Pediatric Intensive Care Unit (PICU), the others in PICU and Neonatal Intensive Care Units.

Conclusions
Implementation of CPOE plus DSS reduces EADs in pediatric settings.

Key messages
Accumulated evidence favors implementation of CPOE plus DSS as important for prevention of ADE in pediatric settings. Potentially harmful and preventable errors can be avoided by implementing electronic prescribing systems in pediatrics. Its use should be encouraged in countries in low-income countries.