bluuebunny/crossref_metadata_2025_split huggingface dataset:
The innovative use of health information in public health policy across EU-Member States
Authors: Haneef R , Oyen H Van , Gaidelyte R , Zeynep O , Pérez-Gomez B , Haaheim H , Palmieri L , Mathis-Edenhofer S , Majek O , Gallay A 
Published: November 2019

Abstract

Background
Health information systems both at the national and international level play a key role in ensuring that timely and reliable evidence is used for operational and strategic decision making inside and outside the health sector. The availability of data generated from different sources is increasing with the possibility to link these data sources together. However, more efficient data generation processes are required to use data collected for different purposes initially, as well as advanced statistical techniques to generate comparable and timely health information. The main objective is to explore the innovative use of health information for better public health policy across the Member States.

Methods
As part of InfAct, we have conducted as survey among EU-MS to describe the innovative use of data sources. We are collecting inspiring examples on the innovative use of health information based on national or European data networks involved with health policy-making at national, regional or local level. We are further developing generic methods to estimate health indicators using machine learning techniques and mathematical modelling.

Results
These approaches will generate a roadmap on the innovative use of health information across Member States, enlarge the existing list of health indicators estimated from linked data and/or advanced statistical techniques, inform on the implications of these indicators in health policy with inspiring examples from Member States, and provide methodological guidelines for using linked data and advanced statistics to estimate health indicators, and composite outcome measures.

Conclusions
This work will highlight the gaps in the innovative use of data sources, and improve the comparability of health indicators and the capacity of EU-Member states to apply innovation for increased relevance and timeliness of health information for public health policy-making.
The Health-Information Impact Index: a tool to monitor the uptake of evidence in policy and practice
Authors: Delnord M , Tille F , Abboud L A , Ivanković D , Van Oyen H 
Published: November 2019

Abstract

Background
The optimal use of data and evidence from national health information systems is paramount in public health. However, current tools to evaluate health information systems focus on data quality and availability rather than measuring how data are used by key stakeholders. This limits capacity to monitor the impact of evidence on health care management and health policy making.

Methods
Based on an extensive literature review we developed a new model, the Health Information (HI)-Impact framework, to monitor the impact of health information in health policy and practice. We further conducted a web-based Delphi survey between February and April 2019 among European public health professionals working in health policy, health care, research, and health monitoring to develop the HI-Impact Index.

Results
In the HI-Impact framework, four domains are essential for mapping public health data availability, dissemination, and use: (1) Health Information and Evidence Quality, (2) Health Information System Responsiveness, (3) Stakeholder Engagement, and (4) Knowledge Integration. This last domain has a broader reach on the determinants of health and reflects the use of evidence by community partners and across sectors. In the DELPHI survey, 127 experts from 38 European countries selected 30 criteria to integrate in the HI-Impact Index. This tool could be used by European public health agencies to monitor the impact of their information products, and inform national strategies for evidence-based public health.

Conclusions
It is crucial for routine health information systems to create a culture of accountability in the use of evidence. Data on the determinants and consequences of ill-health as well as stakeholder engagement in leveraging evidence for intervention are explicit points to consider for a full quality assessment of national health information systems, and a sustainable impact on health outcomes.
Co-designing a virtual reality game for alcohol prevention
Authors: Stock C , Vallentin-Holbech L , Dietrich T , Majgaard G 
Published: November 2019

Abstract

Issue/problem
Health promotion programmes that train social competencies in situations adolescents commonly encounter are likely to minimise the social influence and social pressure to drink or use other substances. In the Virtual Reality (VR) TestLab project, an innovative VR learning tool is developed that shows a typical party situation for young people. The game user can navigate through the party making their own choices, which result in different outcomes.

Description of the problem
The Living Lab method guided the development of the VR learning tool. During the four phases of the Living Lab process three groups of 16-25-year-old students were involved, as well as two prevention practitioners, three prevention scientists, three VR game designers and one film production expert.

Results
At the initial exploration stage of the Living Lab framework a list of key concepts/scenes were co-created with all stakeholders. At the concept stage students were invited to co-create a film script for the VR game. The prototype stage involved students as actors for the scenes, which were then finally recorded in technical collaboration with game developers and the film production expert. Post production, the finalised scenes were integrated into a game engine to develop the interactive branching narrative. At the innovation stage the group was invited to examine, explore and test its usability and share their experiences, thoughts, and attitudes.

Lessons
The Living Lab framework was useful in order to structure the co-creation process into meaningful phases and to ensure that all stakeholders were consulted throughout the development of the VR game. The Living lab framework gave ‘voice’ for the end-users (young people and practitioners) to actively engage in the co-creation process.

Main message
This first Living Lab application in drug prevention contributes to a better understanding of the importance of involving users of health promotion products and services through co-creation.
Developing international inter hospital cooperation to reach the SDGs
Authors: Rossinot H , Brucker G , Veber F 
Published: November 2019

Abstract

Background
The current epidemiological transition creates news issues to address (NCD as oncology, cardiovascular, diabetes, road accidents...) and causes an important increase of skills transfer needs in resource-poor/intermediate countries. Hospital cooperation is an efficient way to help the partner country/city adapt and increase their quality of care.

Objectives
The aims were multiple: set up transfer skills programs, but also understand both obstacles and success factors of such projects over the long term. AP-HP’s (Greater Paris University Hospitals) Department of International Relations, has developed 3 year-long projects (financed in majority by public funders) which link one or more hospitals of our group to a southern hospital, on a precise topic. Our multidisciplinary teams then support the local professionals either by training them or assessing their current situation and proposing an action plan.

Results
Over those last 4 years, we built more than 50 cooperations, most of them being successful and still active today. 20 of our hospitals have been involved in at least one project. In 2018, we were working with more than 30 different countries. We noticed a growing interest both from our teams and new partners, over the years. In 2018, around 150 healthcare professionals from AP-HP took part in at least one mission abroad and more than 3 000 foreign professionals have been trained in various ways (from conferences to technical surgical skill transfer), including about 50 trained on site in Paris. These trainings are intended not only to physicians but also for midwives, nurses and managers.

Conclusions
Those projects have a good efficiency in a short term. Therefore, the risk of unsustainability is quite important. For the programs to be effective in the long run, there needs to be a collective involvement both from institutions and healthcare teams in the project on both sides.

Key messages
European hospitals should develop a strong international cooperation policy. AP-HP intends to intensify its work, being an efficient way of contributing to reach both SDG 3 and 9.
Burnout and quality of life among masseurs with visual impairment - Polish cross-sectional study
Authors: Binder K , Wrzesińska M , Tabała K , Lipert A , Miller E 
Published: November 2019

Abstract

Background
Although there are about 1.3 billion people affected by visual impairment (VI), they do not have equal access to social activities, i.e. they are very often unemployed. The authors hypothesized that being job active plays crucial role for their well-being. The aim of the study was to evaluate the level of burnout and quality of life (QoL) among Polish massage therapists with VI and to determine their relationship with sociodemographic and work-related variables.

Methods
43 participants aged 28-63, blind or poor-sighted were surveyed with sociodemographic data questionnaire and Polish versions of the Maslach Burnout Inventory-General Survey to measure burnout and World Health Organization Quality of Life Questionnaire (WHOQOL-BREF) to evaluate quality of life.

Results
Low level of burnout was indicated: 6.79 ± 4.45 in the exhaustion, 7.30 ± 3.43 in cynicism and 23.3 ± 5.44 in professional efficacy. Among domains of QoL the psychological one was the highest (73.6 ± 10.0). Professional efficacy correlated with the social QOL domain (ρ = 0.306; t = 2.056; p = 0.046). Among significant socio-demographic determinants of QOL marital status and working conditions were found. The most general explanation is that job activity gives feeling of self-realization, independence and enhance social functioning which has important meaning for QOL and can be a protective factor for burnout among workers with disability (according to researches among healthy professionals they are at high risk of burnout).

Conclusions
Job activity is essential for psychosocial rehabilitation in VI. That is why we recommend education tailored to the needs and capabilities of persons with VI to prepare them for work as well as supporting employers in creating jobs opportunities for people with disabilities.

Key messages
Job opportunities for people with disabilities mean higher level of psychosocial functioning. Workers with disabilities present lower risk of burnout than professionals without impairment.
Health promoting ideas and actions generated by community engagement in an underserved Swedish area
Authors: Magnusson M , Forslund H B , Berg C , Wretlind K , Hallmyr M , Hedström C , Vaughn L M 
Published: November 2019

Abstract

Background
For an intervention to contribute to decreased health gaps, people living in underserved areas must participate in the research-to-action process during the development of the intervention.
Methods for increased engagement and participation have been developed within the community-based participatory research (CBPR) paradigm. Group Level Assessment (GLA) is a qualitative, participatory methodology that is designed for a large group to generate and evaluate relevant needs and priorities within a lens of action for positive social change. Influence of researchers is tuned down in favour of partnership and impact from the community. Ideally, the process results in participant-driven data and relevant action plans. The aim was to apply GLA to generate reflections on the situation in the community, aligning towards action for change.

Methods
We applied GLA together with people living in Gårdsten, an underserved Swedish suburb where obesity, caries and other illnesses are prevalent. Residents were recruited by posters and post cards at a community center and by snowball sampling. In total, 47 residents attended at least one of eight GLA sessions held over a five-month time period. The majority were women. Outcomes were reflections, suggestions and actions for change.

Results
Themes were: resident pride of the area, the importance of communication and of places to meet, a feeling of being abandoned by society, and a desire for more collaboration between schools and parents. Immediate results were a language café and inquiries from the community about information regarding teeth, food and health. When the results were presented for stakeholders in a report and an exhibition, new collaborations were founded and old were refreshed.

Conclusions
GLA helped residents identify what they thought valuable and relevant concerning health issues and supported them in taking actions to achieve change.

Key messages
Participatory processes that directly engage community residents can result in fruitful discussions and actions. Methodologies like GLA that support such processes may contribute to closing the health gap.
Public Health and Communication: closing the health gap depending on each other
Authors: Magnusson M , Bertolino C , Hallmyr M , Landmér R , Neselrot J 
Published: November 2019

Abstract

Issue
At the center of the concept “Health” is self efficacy. Communication has potential to increase or decrease individuals/groups conception of themselves as valuable beings. In communities haunted by territorial stigmatization this aspect is crucial. Respectful communication, building on a true belief that competencies and resources dwell in every human being, evoke trust which is an important aspect of public health. Angered Hospital is situated in an area with high prevalence of illness. To allow for residents to exert influence over interventions and programs, the Public Health Unit of the hospital need access to skills not only in the area of public health but also in communication design.

Description of the problem
The aim was to develop a trusting cooperation between the Public Health and Communication Units in a hospital, building on adherence to the Declaration on Human Rights and on expert knowledge. Focus is on increased health equity. Given barriers of spoken language and different perspectives, how can we set the scene for merging lay and expert knowledge on conditions for healthy habits and prerequisites for change, on individual and structural levels? How can residents be encouraged to seek help when needed? During two years, collaboration developed by intertwining theory and practice in continous discussions on planned and produced objects. Knowledge in communication design and in determinants of health equity, respectively, enriched both parties.

Changes
A trusting relationship developed, resulting in the objects “Heroes of Awngaryd”. The Heroes appear in many contexts; transfering knowledge, encouraging residents to use their competencies, inviting them to participate, and guiding to adequate care.

Lessons
Sharing of the vision of health equity, active embracing of the Declaration of Human Rights and mutual respect for each others expert knowledge form the base for a successful and transparent cooperation between Public Health and Communication.

Key messages
In this setting, expert knowledge in both communication design and public health are needed to contribute to increased health equity. Common values, trust and specific skills optimize the work.
Hospital “Outside the walls” against HIV and other Sexually Transmitted Infections (STIs) in Russia
Authors: Bouchet-Mayer C , Le Nogue D , Henry-Kagan V , Maric M , Segouin C , Shelly M 
Published: November 2019

Abstract

Background
Though sponsored by UNAIDS support program, Russia struggles to curb its soaring HIV epidemic. French authorities invited Russian leaders of the HIV strategy, medical institutions or civil society in December 2018, to discover the practices of their French peers. A bridging process designed by the Public Health association AREMEDIA and developed in partnership with Fernand-Widal Hospital’s testing center, to reach underserved populations, was shown. Merging associative and medical cultures, they created bonds with community associations to efficiently export free prevention, treatments and care for HIV and STIs, “outside the walls” of hospital facilities. In March 2019, they were mandated to detect dependable partners to transpose this method in the high-HIV burden Ural region.

Objectives
Selecting local political leaders, field associations and public health structures, jointly designing a project to adapt AREMEDIA’s model in Perm. Developing a training to implement locally outreach program in 2020.

Results
Contractual partnership with 4 entities in Perm and educational program. Presenting the interventional methodology at Perm University Conference on “World AIDS day”, 1st December 2019. Theoretical and field trainings of Russian stakeholders to outreach sexual health interventions towards key populations, by associative and medical staff from AREMEDIA and the testing center in Paris. Practical support to implement outreach actions in urban areas of Perm from March to December 2020. Valorization of scientific results in Saint Petersburg International Conference, July 2020.

Conclusions
Consensus found on a pilot training and research-action outreach program, approved by authorities. Advancing access to local key populations should foster switching the Russian strategy against HIV towards a comprehensive sexual health promotion paradigm, resulting among others in destigmatization.

Key messages
Support local stakeholders to promote equitable management of HIV and overall sexual health. Enhance socio-medical interface to reduce the hidden epidemic through reaching HIV key populations.
Migrants in Austria and their understanding of mental health issues
Authors: Weigl M , Gaiswinkler S , Wolf H , Haider H 
Published: November 2019

Abstract

Psychosocial needs are common among migrants but their use of mental health services is not. Little is known about the understanding of mental health issues by migrants and their perception of mental health services. The study aims to provide a basis for further developments of the mental health system to contribute to health equity in the long term.
Qualitative research: literature review, semi-structured interviews and focus groups. 54 migrants from Afghanistan, Somalia, arabic-speaking countries and Turkey and 16 experts were involved. Access was gained through cooperating with an institution offering various health services in different languages and well-known by migrant communities. Migrants from Turkey with long residence in Austria and linked to psychosocial services were chosen as reference group.
There are many similarities among socio-economically disadvantaged people in terms of their understanding of mental health and their willingness to seek and accept support. However, differences can also be observed which are related to country of origin or gender, but also to acculturation status, current life situation or previous experiences within the home or the receiving country. The Turkish reference group shows, that mental health issues are given higher priority in the course of time. To quicken this process, targeted measures for the promotion of health literacy are decisive, but also integration possibilities and the social climate. With a wide range of access and psychosocial support options, attitudes like openness, impartiality and flexibility among health professionals, it is possible to reach migrants with psychosocial needs.
A stronger exchange on how people with a migration background and psychosocial needs are perceived and reached is needed. But also activities to increase the diversity of support services and to carry information about mental health issues as well as the existing services into the migrant communities

Key messages
Specific activities can improve the knowledge about mental health issues within migrant communities. A wide range of access and psychosocial support services is needed to address the diversity.
Health promotion for unaccompanied minor asylum seekers – a qualitative evaluation
Authors: Kasztura M , Zumstein-Shaha M , Ninane F , Bodenmann P , Soom Ammann E 
Published: November 2019

Abstract

Background
We evaluated a health promotion program (HPP) for unaccompanied minor asylum seekers (UMA) in the canton of Vaud, Switzerland. UMA are particularly vulnerable to a range of health issues, due to their age and migration experiences. Effective health promotion programs are key to empower them to overcome these challenges and to improve their health.

Methods
We adopted a qualitative design with ethnographic and participatory elements to identify strengths, opportunities for improvement and appropriateness as perceived by UMA, educators and nurses responsible for UMA health care and the HPP. Data collection included observation of HPP courses, focus group discussions with UMA and interviews with educators. Analysis was based on a grounded theory in ethnography approach.

Results
Finding include three main themes: 1) UMA’s perceived low power and control, due to predominant rules and regulations and uncertainty about the future; 2) A need for health promotion in this population, due to UMA’s risk behaviours and the educators’ perceived discomfort with health-related issues and health promotion; 3) Practical feedback regarding topics, teaching methods and HPP organisation. Main recommendations include using effective adolescent health education methods to improve the appropriateness to age and context, enhancing participation of educators in health promotion and improving practical aspects of the HPP.

Conclusions
We evaluated and documented health promotion practice in the hard to reach population of UMA. Feasible changes in teaching methods and multidisciplinary collaboration may improve the HPP. However, UMA’s social environment needs to be taken into consideration to provide effective health promotion programs.

Key messages
Unaccompanied minor asylum seeker and educators perceive the health promotion program as useful and important. To address the health promotion needs of UMA, any program must be adaptive to the contextual complexity of UMA lives.