bluuebunny/crossref_metadata_2025 huggingface dataset:
Reflection of K.H. Ahmad Dahlan’s educational ideas for school development
Authors: Suripto S.
Published: July 2018

This research was aimed to reflect the form of K.H. Ahmad Dahlan’s educational ideas in schools. The kind of this reasearch was qualitative with multi sites approach. Reasearch was conducted at MTs Muhammadiyah 2 and Muhammadiyah 1 Vocational School – Trenggalek.The object of this research was the form of K.H. Ahmad Dahlan’s educational ideas whereas the subject was all the schools administrators. Data were collected through deep interview, documentation and observation techniques. Data validity was tested with; credibility, transferability, and confirmability. Data analysis model was interractionally each other; data reduction, data presentation, conclusion withdrawal, and verification. The research result were; first, at MTs Muhammadiyah 2, the form of K.H. Ahmad dahlan’s educational ideas covered: Muhammadiyah values, such as (a). TBC eradication, worry attitude towards the improvement of fundamentalist religious culture in the society (LDII), (b). Willingness to sacrifice attitude grown by the school founders’ core team, organizers, and administarators; (c). The spirit of dakwah and dedication for the nation and the religion. Second, at Muhammadiyah 1 Vocational School, it covered (a). Charity effort movement for all (rahmatan lilalamin); (b). Amar maruf nahy munkar was formed in the construction of all field of life, (c). Working was the spirit of movement organization.
Inculcating tolerance by multicultural based PPKn learning
Authors: Gunartati G. , Zamroni Z. , Gafur Abdul
Published: July 2018

This study aims to: (1) describe the teaching conditions of multicultural-based PPKn implemented by SMA in DIY, (2) produce a feasible model of teaching PPKn based on multi-culture for inculcating tolerance for senior high school students , (3) find out the effectiveness of developed teaching model. This research was research and development adopting the procedural model of Borg & Gall. The procedures were divided into four phases, namely: (1) the needs analysis phase (2) the development stage of models and expert judgment (3) testing and refining the model, and (4) dissemination phase. The experiment was conducted at SMA Jetis, SMA 2 Bantul, and SMA 2 Wates. The Subjects were teachers and students of XI class of those SMAs. The data analysis used the descriptive analysis and t-test to determine the effectiveness of the product. The results of the reaseach are as follow. First, the teaching of PPKn in SMA in DIY is still conventional and not yet exploring multicultural values. Second, teaching model of multicultural-based PPKn declared eligible by material experts, instructional experts and assessment of the teachers. And the third, the teaching model developed is effectively used in the teaching and learning. This is indicated by the significant differences in learning outcomes between the experimental and control groups. The effectiveness is proved by using t test that the result is significant (p <0.05), and the mean of experiment group is higher than the mean of the control group.
Indikator sekolah kreatif
Authors: Nurhayati Riana
Published: July 2018

Penelitian ini bertujuan untuk mengetahui indikator Sekolah Kreatif di Sekolah Dasar (SD). Penelitian ini menggunakan metode kualitatif. Subjek penelitian adalah kepala sekolah dan guru SD Muhammadiyah 16 Surabaya (Sekolah Kreatif). Analisa data dengan reduksi, kategorisasi dan intepretasi. Hasil penelitian menunjukkan bahwa indikator yang bisa dicapai oleh sekolah untuk membuat sekolah lebih kreatif adalah pengembangan sistem gagasan dan ide, pengembangan sistem sosial dalam aktivitas belajar, dan penciptaan sistem lingkungan sekolah yang sinergis antar unsur sekolahKata kunci: sekolah kreatif THE INDICATORS OF CREATIVE SCHOOLAbstractThis research is aimed at revealing the indicators of creative school in emelentary schools. The study employed qualitative method, and the subject of the research was the principal and teachers of Muhammadiyah 16 Surabaya Elementary School (a creative school). The data were analyzed by applying reduction, categorization, and interpretation. The result of the research shows that the indicators which can be attained by elementary school in order to contrive a creative school are developing the concept and idea systems, developing social system in learning activity, and creating synergetic school elements at the school environment system.Keywords: creative school
Smartphone-Delivered Peer Physical Activity Counseling Program for Individuals With Spinal Cord Injury: Protocol for Development and Pilot Evaluation (Preprint)
Authors: Best Krista L , Routhier François , Sweet Shane N , Lacroix Emilie , Arbour-Nicitopoulos Kelly P , Borisoff Jaimie F
Published: July 2018

BACKGROUND

Leisure-time physical activity (LTPA) is a critical component of a healthy lifestyle for individuals with spinal cord injury (SCI). However, most individuals are not sufficiently active to accrue health benefits. The Active Living Lifestyles program for individuals with SCI who use manual wheelchairs (ALLWheel) targets important psychological factors that are associated with LTPA uptake and adherence while overcoming some barriers associated with participation restrictions.

OBJECTIVE

The goal of the paper is to describe the protocol for the development and evaluation of the ALLWheel program for individuals with SCI who use manual wheelchairs.

METHODS

The first three stages of the Medical Research Council framework for developing and evaluating complex interventions (ie, preclinical, modeling, exploratory) are described. The preclinical phase will consist of scoping and systematic reviews and review of theory. The intervention will be modeled by expert opinions and consensus through focus groups and Delphi surveys with individuals with SCI, clinicians, and community partners. Finally, the feasibility and potential influence of the ALLWheel program on LTPA and psychological outcomes will be evaluated.

RESULTS

This project is funded by the Craig H Neilsen Foundation, the Fonds de Recherche du Québec–Santé, and the Canadian Disability Participation Project and is currently underway.

CONCLUSIONS

Using peer trainers and mobile phone technology may help to cultivate autonomy-supportive environments that also enhance self-efficacy. Following a framework for developing and evaluating a novel intervention that includes input from stakeholders at all stages will ensure the final product (ie, a replicable intervention) is desirable to knowledge users and ready for evaluation in a randomized controlled trial. If effective, the ALLWheel program has the potential to reach a large number of individuals with SCI to promote LTPA uptake and adherence.

INTERNATIONAL REGISTERED REPOR

RR1-10.2196/10798
Connecting Youth and Young Adults to Optimize ART Adherence (YouTHrive): Protocol for a Randomized Controlled Trial (Preprint)
Authors: Horvath K J Horvath , MacLehose R , Martinka A , Dewitt J , Hightow-Weidman L , Sullivan P , Aico K R
Published: July 2018

BACKGROUND

Youth account for a disproportionately high rates of new HIV infections in the United States (US). Despite intensive efforts to engage people living with HIV (PLWH) in the US, less than half of 13-24 years old achieve viral suppression. There is a clear and continued need for innovative behavioral programs that support optimizing adherence among young persons with HIV.

OBJECTIVE

There are three phases of this project. Phase 1 involves conducting focus groups in three cities (New York City, Chicago, and Houston) to obtain feedback from youth about an existing technology-based antiretroviral therapy (ART) adherence intervention. Phase 2 will be used to conduct beta testing with youth to refine and finalize the YouTHrive (YT) intervention. Phase 3 is a randomized controlled trial (RCT) to test the efficacy of the YouTHrive intervention among youth living with HIV (YLWH) in 6 US cities (Atlanta, New York City, Chicago, Houston, Philadelphia, and Tampa).

METHODS

In Phase 1, we will conduct six focus groups with approximately 8 youths (15-19 years old) and young adults (20-24 years old) each in three US cities to obtain: 1) feedback from YLWH about the “look and feel” and content of an existing adult-focused web-based ART adherence intervention; and 2) suggestions for adapting the intervention for YLWH similar to themselves. Phase 2 will involve collaboration with our technology development partner to update the existing intervention to include features and functionality recommended by YLWH in Phase 1. Phase 2 will conclude with beta testing with 12 participants to ensure that all features are working properly and function in a way that users can easily navigate. For Phase 3, we will enroll 300 YLWH in 6 US cities into a two-arm prospective randomized controlled trial (RCT). Participants randomized to the control condition will view a weekly newsletter for 20 weeks. The newsletter will be delivered via e-mail and will contain information on topics related to HIV, with the exception of ART adherence. Participants randomized to the YT intervention condition will be given access to the YT site for 20 weeks. Study assessments will occur at enrollment and 5, 8, and 11 months postenrollment.

RESULTS

Participant recruitment began in May 2017 for Phase 1 of the study. The data collection for Aim 3 is anticipated to end in April 2020.

CONCLUSIONS

The efficacy trial of the YT intervention will help to fill gaps in understanding about the efficacy of mobile interventions to improve ART adherence among at-risk populations. Other important questions remain to be addressed, including how best to incorporate virtual ART interventions into clinical care and when they are most effectively delivered.

CLINICALTRIAL

ClinicalTrials.gov (NCT03149757); University of North Carolina at Chapel Hill Institutional Review Board (16-3136).
Automatic Extraction of Mental Health Disorders From Domestic Violence Police Narratives: Text Mining Study (Preprint)
Authors: Karystianis George , Adily Armita , Schofield Peter , Knight Lee , Galdon Clara , Greenberg David , Jorm Louisa , Nenadic Goran , Butler Tony
Published: July 2018

BACKGROUND

Vast numbers of domestic violence (DV) incidents are attended by the New South Wales Police Force each year in New South Wales and recorded as both structured quantitative data and unstructured free text in the WebCOPS (Web-based interface for the Computerised Operational Policing System) database regarding the details of the incident, the victim, and person of interest (POI). Although the structured data are used for reporting purposes, the free text remains untapped for DV reporting and surveillance purposes.

OBJECTIVE

In this paper, we explore whether text mining can automatically identify mental health disorders from this unstructured text.

METHODS

We used a training set of 200 DV recorded events to design a knowledge-driven approach based on lexical patterns in text suggesting mental health disorders for POIs and victims.

RESULTS

The precision returned from an evaluation set of 100 DV events was 97.5% and 87.1% for mental health disorders related to POIs and victims, respectively. After applying our approach to a large-scale corpus of almost a half million DV events, we identified 77,995 events (15.83%) that mentioned mental health disorders, with 76.96% (60,032/77,995) of those linked to POIs versus 16.47% (12,852/77,995) for the victims and 6.55% (5111/77,995) for both. Depression was the most common mental health disorder mentioned in both victims (22.30%, 3258) and POIs (18.73%, 8918), followed by alcohol abuse for POIs (12.24%, 5829) and various anxiety disorders (eg, panic disorder, generalized anxiety disorder) for victims (11.43%, 1671).

CONCLUSIONS

The results suggest that text mining can automatically extract targeted information from police-recorded DV events to support further public health research into the nexus between mental health disorders and DV.
Exploring Users’ Experiences of the Uptake and Adoption of Physical Activity Apps: Longitudinal Qualitative Study (Preprint)
Authors: Baretta Dario , Perski Olga , Steca Patrizia
Published: July 2018

BACKGROUND

Although smartphone apps might support physical activity (PA), engagement with them tends to be low.

OBJECTIVE

This study aimed to examine potential users’ needs and preferences regarding their engagement with PA apps during a first exposure to a never-used PA app and after 2 weeks’ usage.

METHODS

A longitudinal, one-arm qualitative study was conducted with potential PA app users. At baseline, participants (N=20) were asked to explore 1 of 3 randomly allocated PA apps while thinking aloud. Semistructured interview techniques allowed participants to elaborate on their statements. After 2 weeks, follow-up interviews explored participants’ (n=17) lived experiences of real-world app use. Verbal reports from both time points were analyzed using inductive thematic analysis.

RESULTS

Features that promote a fair and simple user experience, support users’ self-regulation skills, and address users’ exercise motives were considered important for engagement both during a first exposure and after a 2-week use of PA apps. Features that support users’ need for relatedness as well as those that facilitate users to implement their intentions were expected to be important for engagement mainly during a first exposure to PA apps. Proactive and tailored features that integrate behavioral, psychological, and contextual information to provide adaptive exercise plans and just-in-time support were considered relevant to sustain engagement over time.

CONCLUSIONS

App features that address users’ exercise motives, promote self-regulation, and fulfill users’ need for relatedness might promote engagement with PA apps. Tailored and proactive features were expected to promote sustained engagement.
Happy, a Smartphone-based Intervention to Promote Cancer Prevention Behaviors: Usability and Feasibility Study (Preprint)
Authors: Ribeiro Nuno , Moreira Luís Miguel , Almeida Ana Margarida , Santos-Silva Filipe
Published: July 2018

BACKGROUND

Estimates predict that more than half of all cancers are due to inadequate lifestyle choices. Smartphones can be successfully used to support the behavior change needed to prevent cancer.

OBJECTIVE

The purpose of this study was to field-test Happy, a smartphone app designed to promote cancer prevention behaviors, based on tailored-messages deliver.

METHODS

Thirty-two participants downloaded and used the app for 28 consecutive days (4 weeks). At the end of this period, they all answered to an online questionnaire and ten of them were interviewed. Usability, feasibility, message receptivity, and perceived impact of the app were assessed.

RESULTS

Compliance with cancer prevention guidelines was lower than expected. Happy was considered simple, intuitive and easy to use. Messages sent by the app were considered easy to understand, providing good advices and meaningful information that grabbed reader’s attention. Participants also considered that Happy might be an effective way to promote cancer prevention. Behavioral data collected during the trial showed an increase in several cancer prevention behaviors and a significant increase in the overall cancer prevention level, 7 points in average (P=.031).

CONCLUSIONS

This study showed the viability of designing and implementing smartphone-based interventions to promote cancer prevention behaviors. The results suggest that Happy is usable and might help users change their behavior, making healthier choices, thus reducing their personal risk of developing cancer.
LGBT health-care disparities in Multiple Sclerosis: a cross-sectional web-based study in Italy (Preprint)
Authors: Lavorgna Luigi , Moccia Marcello , Russo Antonio , Palladino Raffaele , Riccio Lucia , Lanzillo Roberta , Brescia Morra Vincenzo , Tedeschi Gioacchino , Bonavita Simona
Published: July 2018

BACKGROUND

Lesbian, gay, bisexual and transgender (LGBT) patients might experience unique difficulties and barriers to treatment of chronic diseases related to their sexual orientation.

OBJECTIVE

To investigate health-care disparities experienced by LGBT patients with multiple sclerosis (MS).

METHODS

We conducted a survey on an Italian social-network (www.smsocialnetwork.com) for MS patients, by using standardized multiple-choice questions. The survey investigated: socio-demographic factors, lifestyle habits, MS-related health status and LGBT specific issues (e.g. friendliness to their sexual orientation or homophobic behaviors from the staff of their MS Center).

RESULTS

LGBT patients were associated with a smaller number of psychological consultations, compared to heterosexuals (Coeff.=-0.449; p<0.001; 95%CI=-0.682--0.217). LGBT patients were more likely to change MS Center, compared to heterosexuals (OR=2.064; p=0.046; 95%CI=1.011-4.212). The number of MS Center changes was associated with MS Center friendliness (p=0.037; rho=-0.229) and with the occurrence of homophobic behaviors (p=0.036; rho=0.234).

CONCLUSIONS

LGBT MS patients more frequently changed MS Center and had a reduced use of psychological services, compared to heterosexuals. The attitude towards LGBT MS patients might affect resource utilizations and, possibly, LGBTs’ health status.
Contextual Anonymization for Secondary Use of Big Data in Biomedical Research: Proposal for an Anonymization Matrix (Preprint)
Authors: Rumbold John , Pierscionek Barbara
Published: July 2018

BACKGROUND

The current law on anonymization sets the same standard across all situations, which poses a problem for biomedical research.

OBJECTIVE

We propose a matrix for setting different standards, which is responsive to context and public expectations.

METHODS

The law and ethics applicable to anonymization were reviewed in a scoping study. Social science on public attitudes and research on technical methods of anonymization were applied to formulate a matrix.

RESULTS

The matrix adjusts anonymization standards according to the sensitivity of the data and the safety of the place, people, and projects involved.

CONCLUSIONS

The matrix offers a tool with context-specific standards for anonymization in data research.
�A Phenomenal Person and Doctor�: Thank You Letters to Medical Care Providers (Preprint)
Authors: Miron-Shatz Talya , Becker Stefan , Zaromb Franklin , Mertens Alexander , Tsafrir Avi
Published: July 2018

BACKGROUND

Thank you letters to physicians and medical facilities are an untapped resource, providing an invaluable glimpse into what patients notice and appreciate in their care.

OBJECTIVE

The aim of this study was to analyze such thank you letters as posted on the Web by medical institutions to find what patients and families consider to be good care. In an age of patient-centered care, it is pivotal to see what metrics patients and families apply when assessing their care and whether they grasp specific versus general qualities in their care.

METHODS

Our exploratory inquiry covered 100 thank you letters posted on the Web by 26 medical facilities in the United States and the United Kingdom. We systematically coded and descriptively presented the aspects of care that patients and their families thanked doctors and medical facilities for. We relied on previous work outlining patient priorities and satisfaction (Anderson et al, 2007), to which we added a distinction between global and specific evaluations for each of the already existing categories with two additional categories: general praise and other, and several subcategories, such as treatment outcome, to the category of medical care.

RESULTS

In 73% of the letters (73/100), physicians were primarily thanked for their medical treatment. In 71% (71/100) of the letters, they were thanked for their personality and demeanor. In 52% cases (52/100), these two aspects were mentioned together, suggesting that from the perspective of patient as well as the family member, both are deemed necessary in positive evaluation of medical care. Only 8% (8/100) of the letters lacked reference to medical care, personality or demeanor, or communication. No statistically significant differences were observed in the number of letters that expressed gratitude for the personality or demeanor of medical care providers versus the quality of medical care (χ21, N=200=0.1, not statistically significant). Letters tended to express more specific praise for personality or demeanor, such as being supportive, understanding, humane and caring (48/71, 68%) but more general praise for medical care (χ21, N=424=63.9, P<.01). The most often mentioned specific quality of medical care were treatment outcomes (30/73, 41%), followed by technical competence (15/73, 21%) and treatment approach (14/73, 19%). A limitation of this inquiry is that we analyzed the letters that medical centers chose to post on the Web. These are not necessarily a representative sample of all thank you letters as are sent to health care institutions but are still indicative of what centers choose to showcase on the Web.

CONCLUSIONS

Physician demeanor and quality of interaction with patients are pivotal in how laymen perceive good care, no less so than medical care per se. This inquiry can inform care providers and medical curricula, leading to an improvement in the perceived quality of care.
Persuasive antismoking interventions: Promoting smoking reduction and cessation through Facebook, email-listserv, and MTurk (Preprint)
Authors: Kim Sunny Jung , Dallery Jesse , Brunette Mary F. , Hancock Jeffrey T. , Naslund John A. , Marsch Lisa A.
Published: July 2018

BACKGROUND

We employed persuasion strategies to develop and evaluate social media- and crowdsourcing-based interventions for smoking reduction and cessation.

OBJECTIVE

We delivered various levels of informational and social support to current smokers and pilot-tested the acceptability, feasibility and persuasion effects of three antismoking interventions, Facebook Group (information and social support), Email-Listserv (information), and MTurk (assessment only) interventions.

METHODS

We used Amazon Mechanical Turk (MTurk) to solicit potential participants (N=223). Among 173 applicants who confirmed their interest, 46 U.S.-based eligible smokers were randomly assigned to one of three conditions. During the 4-week intervention, participants in the Email-Listserv (n=15) and Facebook (n=16) conditions received 56 randomly-ordered antismoking information materials. The Facebook Group participants also had the opportunity to exchange social support with other group members. MTurk participants (n=15) did not receive these antismoking messages or social support. All participants completed a baseline survey, weekly surveys and a 2-week follow-up survey via MTurk.

RESULTS

We achieved 100% study retention: all participants engaged in their assigned intervention and completed final assessments. Intervention feasibility and acceptability scores were above average. Participants significantly reduced the number of weekly-smoked cigarettes measured at baseline and at follow-up, t(45)=9.51, p<.01, Md =80.91, SDd = 57.70, 95% CI=63.78-98.05, , and 12-18% quit smoking, with the Facebook group reporting the higher rate of quitting. Smoking reduction did not significantly differ across conditions, F(2,43)=1.56, p=.22. Perceived social support was significantly higher among Facebook Group participants (M=4.63, SD=.71), compared to Email-Listserv participants (M=3.64, SD=1.15) and MTurk participants (M=3.38, SD=1.32), F(2,43)= 5.79, p = .006, η²=.21. Sustained motivation to quit was a significant predictor of reduction in smoking when baseline smoking was adjusted, B=10.79, SE=5.27, F(1, 45)=4.18, p=.05, 95% CI=.12-21.47.

CONCLUSIONS

We leveraged strategic persuasion principles as well as features of Facebook, Email, and MTurk to disseminate antismoking content, achieve rapid outreach to smokers in the US and facilitate social support among current smokers. These social media and crowdsourcing platforms were acceptable and feasible in delivering antismoking interventions, maintaining motivation to quit, and promoting smoking reduction and cessation. Our findings suggest that all three intervention platforms may be beneficial, but the social support within Facebook user groups may be particularly promising and deserves further research.

CLINICALTRIAL

NA
Smartphone App Using Mindfulness Meditation for Women With Chronic Pelvic Pain (MEMPHIS): Protocol for a Randomized Feasibility Trial (Preprint)
Authors: Ball Elizabeth , Newton Sian , Kahan Brennan C , Forbes Gordon , Wright Neil , Cantalapiedra Calvete Clara , Gibson Harry A L , Rogozinska Ewelina , Rivas Carol , Taylor Stephanie J C , Birch Judy , Dodds Julie
Published: July 2018

BACKGROUND

Female chronic pelvic pain (CPP) is defined as intermittent or constant pelvic or lower abdominal pain occurring in a woman for at least 6 months. Up to a quarter of women are estimated to be affected by CPP worldwide and it is responsible for one fifth of specialist gynecological referrals in the United Kingdom. Psychological interventions are commonly utilized. As waiting times and funding capacity impede access to face-to-face consultations, supported self-management (SSM) has emerged as a viable alternative. Mindfulness meditation is a potentially valuable SSM tool, and in the era of mobile technology, this can be delivered to the individual user via a smartphone app.

OBJECTIVE

To assess the feasibility of conducting a trial of a mindfulness meditation intervention delivered by a mobile phone app for patients with CPP. The main feasibility objectives were to assess patient recruitment and app adherence, to obtain information to be used in the sample size estimate of a future trial, and to receive feedback on usability of the app.

METHODS

Mindfulness Meditation for Women With Chronic Pelvic Pain (MEMPHIS) is a three-arm feasibility trial, that took place in two hospitals in the United Kingdom. Eligible participants were randomized in a 1:1:1 ratio to one of three treatment arms: (1) the intervention arm, consisting of a guided, spoken mindfulness meditation app; (2) an active control arm, consisting of a progressive muscle relaxation app; and (3) usual care (no app). Participants were followed-up for 6 months. Key feasibility outcomes included the time taken to recruit all patients for the study, adherence, and estimates to be used in the sample size calculation for a subsequent full-scale trial. Upon completion of the feasibility trial we will conduct focus groups to explore app usability and reasons for noncompliance.

RESULTS

Recruitment for MEMPHIS took place between May 2016 and September 2016. The study was closed March 2017 and the report was submitted to the NIHR on October 26, 2017.

CONCLUSIONS

This feasibility trial will inform the design of a large multicentered trial to assess the clinical effectiveness of mindfulness meditation delivered via a smartphone app for the treatment of CPP.

CLINICALTRIAL

ClinicalTrials.gov: NCT02721108; https://clinicaltrials.gov/ct2/show/NCT02721108 (Archived by WebCite at http://www.webcitation.org/6wLMAkuaU); BioMed Central: ISRCTN10925965; https://www.isrctn.com/ISRCTN10925965 (Archived by WebCite at http://www.webcitation.org/6wLMVLuys)
Reliability of women epilepsy related information from main web search engines in China?deceitful web search environment and illumination (Preprint)
Authors: Zhu Xi , Qiu Xiangmiao , Wu Dingwang , Chen Shidong , Xiong Jiwen , Du Hongxuan , Dai Zihao , Hoang Jamy , Peng Anjiao , He Shixu , Duan Jianan , Chen Lei
Published: July 2018

BACKGROUND

All electronic health practices like app/software are involved in web search engine due to its convenience for receiving information. The success of electronic health has link with the success of web search engines in field of health. Yet information reliability from search engine results remains to be evaluated. A detail analysis can find out setbacks and bring inspiration.

OBJECTIVE

Find out reliability of women epilepsy related information from the searching results of main search engines in China.

METHODS

Six physicians conducted the search work every week. Search key words are one kind of AEDs (valproate acid/oxcarbazepine/levetiracetam/ lamotrigine) plus "huaiyun"/"renshen", both of which means pregnancy in Chinese. The search were conducted in different devices (computer/cellphone), different engines (Baidu/Sogou/360). Top ten results of every search result page were included. Two physicians classified every results into 9 categories according to their contents and also evaluated the reliability.

RESULTS

A total of 16411 searching results were included. 85.1% of web pages were with advertisement. 55% were categorized into question and answers according to their contents. Only 9% of the searching results are reliable, 50.7% are partly reliable, 40.3% unreliable. With the ranking of the searching results higher, advertisement up and the proportion of those unreliable increase. All contents from hospital websites are unreliable at all and all from academic publishing are reliable.

CONCLUSIONS

Several first principles must be emphasized to further the use of web search engines in field of healthcare. First, identification of registered physicians and development of an efficient system to guide the patients to physicians guarantee the quality of information provided. Second, corresponding department should restrict the excessive advertisement sale trades in healthcare area by specific regulations to avoid negative impact on patients. Third, information from hospital websites should be carefully judged before embracing them wholeheartedly.
Two Novel Cognitive Behavioral Therapy�Based Mobile Apps for Agoraphobia: Randomized Controlled Trial (Preprint)
Authors: Christoforou Marina , Sáez Fonseca José Andrés , Tsakanikos Elias
Published: July 2018

BACKGROUND

Despite the large body of literature demonstrating the effectiveness of cognitive behavioral treatments for agoraphobia, many patients remain untreated because of various barriers to treatment. Web-based and mobile-based interventions targeting agoraphobia may provide a solution to this problem, but there is a lack of research investigating the efficacy of such interventions.

OBJECTIVE

The objective of our study was to evaluate for the first time the effectiveness of a self-guided mobile-based intervention primarily targeting agoraphobic symptoms, with respect to a generic mobile app targeting anxiety.

METHODS

A Web-based randomized controlled trial (RCT) compared a novel mobile app designed to target agoraphobia (called Agoraphobia Free) with a mobile app designed to help with symptoms of anxiety in general (called Stress Free). Both interventions were based on established cognitive behavioral principles. We recruited participants (N=170) who self-identified as having agoraphobia and assessed them online at baseline, midpoint, and end point (posttreatment) over a period of 12 weeks. The primary outcome was symptom severity measured by the Panic and Agoraphobia Scale.

RESULTS

Both groups had statistically significant improvements in symptom severity over time (difference –5.97, 95% CI –8.49 to –3.44, P<.001 for Agoraphobia Free and –6.35, 95% CI –8.82 to –3.87, P<.001 for Stress Free), but there were no significant between-group differences on the primary outcome (difference 0.38, 95% CI –1.96 to 3.20, P=.64).

CONCLUSIONS

This is, to our knowledge, the first RCT to provide evidence that people who identify as having agoraphobia may equally benefit from a diagnosis-specific and a transdiagnostic mobile-based intervention. We also discuss clinical and research implications for the development and dissemination of mobile mental health apps.

CLINICALTRIAL

International Standard Randomized Controlled Trial Number (ISRCTN): 98453199; http://www.isrctn.com /ISRCTN98453199 (Archived by WebCite at http://www.webcitation.org/6uR5vsdZw)
A Strategy to Reduce Critical Cardiorespiratory Alarms due to Intermittent Enteral Feeding of Preterm Neonates in Intensive Care (Preprint)
Authors: Joshi Rohan , van Pul Carola , Sanders Anouk , Weda Hans , Bikker Jan Willem , Feijs Loe , Andriessen Peter
Published: July 2018

BACKGROUND

Many preterm infants require enteral feeding as they cannot coordinate sucking, swallowing, and breathing. In enteral feeding, milk feeds are delivered through a small feeding tube passed via the nose or mouth into the stomach. Intermittent milk feeds may either be administered using a syringe to gently push milk into the infant’s stomach (push feed) or milk can be poured into a syringe attached to the tube and allowed to drip in by gravity (gravity feed). This practice of enteral feeding is common in neonatal intensive care units. There is, however, no evidence in the literature to recommend the use of one method of feeding over the other.

OBJECTIVE

The aim of this study was to investigate which of the two methods of feeding is physiologically better tolerated by infants, as measured by the incidence of critical cardiorespiratory alarms during and immediately after feeding.

METHODS

We conducted a prospectively designed observational study with records of all feeding episodes in infants of gestational age less than 30 weeks at birth and with a minimum enteral intake of 100 mL/kg/day. In total, 2140 enteral feeding episodes were noted from 25 infants over 308 infant-days with records for several characteristics of the infants (eg, gestational age), feeding (eg, the position of infants), and of nursing-care events before feeding (eg, diapering). Logistic regression with mixed effects was used to model cardiorespiratory alarms for the push and gravity methods of feeding.

RESULTS

After adjustments were made for all confounding variables, the position of infants was found to be statistically significant in changing the outcome of critical alarms for the two methods of feeding (P=.02). For infants in the lateral position, push feeds led to 40% more instances of one or more critical cardiorespiratory alarms in comparison with the gravity method. Both methods of feeding created a statistically comparable number of alarms for infants in the prone position.

CONCLUSIONS

This study provides objective data that may assist in optimizing enteral feeding protocols for premature infants. The incidence of critical cardiorespiratory alarms for infants in the lateral position can be lowered by the use of gravity instead of push feeding. No differences were observed between the two types of feeding when infants were in the prone position.
Using Android and Open Data Kit Technology in Data Management for Research in Resource-Limited Settings in the Niger Delta Region of Nigeria: Cross-Sectional Household Survey (Preprint)
Authors: Maduka Omosivie , Akpan Godwin , Maleghemi Sylvester
Published: July 2018

BACKGROUND

Data collection in Sub-Saharan Africa has traditionally been paper-based. However, the popularization of Android mobile devices and data capture software has brought paperless data management within reach. We used Open Data Kit (ODK) technology on Android mobile devices during a household survey in the Niger Delta region of Nigeria.

OBJECTIVE

The aim of this study was to describe the pros and cons of deploying ODK for data management.

METHODS

A descriptive cross-sectional household survey was carried out by 6 data collectors between April and May 2016. Data were obtained from 1706 persons in 601 households across 6 communities in 3 states in the Niger Delta. The use of Android mobile devices and ODK technology involved form building, testing, collection, aggregation, and download for data analysis. The median duration for data collection per household and per individual was 25.7 and 9.3 min, respectively.

RESULTS

Data entries per device ranged from 33 (33/1706, 1.93%) to 482 (482/1706, 28.25%) individuals between 9 (9/601, 1.5%) and 122 (122/601, 20.3%) households. The most entries (470) were made by data collector 5. Only 2 respondents had data entry errors (2/1706, 0.12%). However, 73 (73/601, 12.1%) households had inaccurate date and time entries for when data collection started and ended. The cost of deploying ODK was estimated at US $206.7 in comparison with the estimated cost of US $466.7 for paper-based data management.

CONCLUSIONS

We found the use of mobile data capture technology to be efficient and cost-effective. As Internet services improve in Africa, we advocate their use as effective tools for health information management.
Predicting Consumer Effort in Finding and Paying for Health Care: Expert Interviews and Claims Data Analysis (Preprint)
Authors: Long Sandra , Monsen Karen A. , Pieczkiewicz David , Wolfson Julian , Khairat Saif
Published: July 2018

BACKGROUND

For consumers to accept and use a health care information system, it must be easy to use, and the consumer must perceive it as being free from effort. Finding health care providers and paying for care are tasks that must be done to access treatment. These tasks require effort on the part of the consumer and can be frustrating when the goal of the consumer is primarily to receive treatments for better health.

OBJECTIVE

The aim of this study was to determine the factors that result in consumer effort when finding accessible health care. Having an understanding of these factors will help define requirements when designing health information systems.

METHODS

A panel of 12 subject matter experts was consulted and the data from 60 million medical claims were used to determine the factors contributing to effort.

RESULTS

Approximately 60 million claims were processed by the health care insurance organization in a 12-month duration with the population defined. Over 292 million diagnoses from claims were used to validate the panel input. The results of the study showed that the number of people in the consumer’s household, number of visits to providers outside the consumer’s insurance network, number of adjusted and denied medical claims, and number of consumer inquiries are a proxy for the level of effort in finding and paying for care. The effort level, so measured and weighted per expert panel recommendations, differed by diagnosis.

CONCLUSIONS

This study provides an understanding of how consumers must put forth effort when engaging with a health care system to access care. For higher satisfaction and acceptance results, health care payers ideally will design and develop systems that facilitate an understanding of how to avoid denied claims, educate on the payment of claims to avoid adjustments, and quickly find providers of affordable care.
Multisite Semiautomated Clinical Data Repository for Duplication 15q Syndrome: Study Protocol and Early Uses (Preprint)
Authors: Ajayi Oluwaseun Jessica , Smith Ebony Jeannae , Viangteeravat Teeradache , Huang Eunice Y , Nagisetty Naga Satya V Rao , Urraca Nora , Lusk Laina , Finucane Brenda , Arkilo Dimitrios , Young Jennifer , Jeste Shafali , Thibert Ronald ,   The Dup15q Alliance, Reiter Lawrence T
Published: July 2018

BACKGROUND

Chromosome 15q11.2-q13.1 duplication syndrome (Dup15q syndrome) is a rare disorder caused by duplications of chromosome 15q11.2-q13.1, resulting in a wide range of developmental disabilities in affected individuals. The Dup15q Alliance is an organization that provides family support and promotes research to improve the quality of life of patients living with Dup15q syndrome. Because of the low prevalence of this condition, the establishment of a single research repository would have been difficult and more time consuming without collaboration across multiple institutions.

OBJECTIVE

The goal of this project is to establish a national deidentified database with clinical and survey information on individuals diagnosed with Dup15q syndrome.

METHODS

The development of a multiclinic site repository for clinical and survey data on individuals with Dup15q syndrome was initiated and supported by the Dup15q Alliance. Using collaborative workflows, communication protocols, and stakeholder engagement tools, a comprehensive database of patient-centered information was built.

RESULTS

We successfully established a self-report populating, centralized repository for Dup15q syndrome research. This repository also resulted in the development of standardized instruments that can be used for other studies relating to developmental disorders. By standardizing the data collection instruments, it allows us integrate our data with other national databases, such as the National Database for Autism Research. A substantial portion of the data collected from the questionnaires was facilitated through direct engagement of participants and their families. This allowed for a more complete set of information to be collected with a minimal turnaround time.

CONCLUSIONS

We developed a repository that can efficiently be mined for shared clinical phenotypes observed at multiple clinic sites and used as a springboard for future clinical and basic research studies.
The Effectiveness of Exercise Therapy on Scapular Position and Motion in Individuals With Scapular Dyskinesis: Systematic Review Protocol (Preprint)
Authors: Nodehi Moghadam Afsun , Abdi Kianoush , Shati Mohsen , Noorizadeh Dehkordi Shohreh , Keshtkar Abbas Ali , Mosallanezhad Zahra
Published: July 2018

BACKGROUND

Scapular dyskinesis is an alteration in normal scapular position and motion. Some researchers believe that altered kinematics of the scapula subsequent to dysfunction or weakness of scapular stabilizing muscles contributes to impingement syndrome. Scapular muscle exercises are included in the rehabilitation of patients with subacromial impingement syndrome and scapular dyskinesis because the muscular system is one of the major contributors of scapular positioning both at rest and during shoulder movement, but there is considerable uncertainty relating to the relative effectiveness of such approaches on changing scapular position and motion.

OBJECTIVE

The aim of this systematic review protocol is to evaluate the effectiveness of exercise therapy on scapular position and motion in individuals with scapular dyskinesis.

METHODS

A systematic review will be conducted using PubMed, Scopus, Web of Science, Elsevier, Ovid, ProQuest, Physiotherapy Evidence Database, and Cochrane Library. The reference lists of articles, other reviews, gray literature, and key journals will be searched for relevant articles. Clinical trials reporting the effect of therapeutic exercises (scapular strengthening exercise, scapular stabilization exercise, scapular muscle stretching) with the aims of changing scapular position and motion in individuals with scapular dyskinesis will be included. Two independent reviewers will select studies, extract data, and assess the quality of primary studies. Any disagreement during the selection of studies will be discussed and decided by the whole team.

RESULTS

This systematic review began in December 2016 and is currently in progress. The findings will be synthesized to determine the effectiveness of recommended therapeutic exercise on scapular position and motion in individuals with scapular dyskinesis.

CONCLUSIONS

This is the first systematic review protocol aiming to assess the effectiveness of exercise therapy in individuals with scapular dyskinesis. The systematic review doesn’t require ethics approval because all data used will be provided from published documents. The results of this study will be published in a peer-reviewed journal.

CLINICALTRIAL

PROSPERO CRD42017053923; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=53923 (Archived by WebCite at http://www.webcitation.org/6uzq32T02)
Using data cubes to construct a disease-gene-drug association network for diabetes mellitus (Preprint)
Authors: Wei Xing , Hu Dehua
Published: July 2018

BACKGROUND

In this post-genomic big-data era, genomic approaches are increasingly used to search for potential new drugs and treatments for diseases. Large-scale data mining of biomedical literature is an essential tool for investigating and predicting the relationships between causal genes and treatments of diabetes mellitus (DM).

OBJECTIVE

The objective of the study is to construct a disease-gene-drug association network for diabetes mellitus and predict some new associations.

METHODS

Based on textual data, we developed a novel, data cube–based approach for constructing a disease-gene-drug association network for DM. We used association rules to measure the associations between biological entities.

RESULTS

We obtained phenotypic, genotypic, and treatment drug data for DM from the PubMed database. After data preprocessing, we constructed the 0-D vertex cube, which we then filtered to construct three 1-D cubes consisting of 14 diseases, 23 genes, and 34 drugs. We found 194 associations between the 14 subclasses of DM and the 23 genes, 75 associations between 11 of the DM subclasses and 24 of the drugs, and 142 associations between 14 of the DM-related genes and 15 of the drugs. By applying association rules to quantify the correlation between the disease phenotypes, genes, and treatment drugs, we established three 2-D cubes and three relational networks. Finally, using the bottom-up computation algorithm, we constructed the 3-D disease-gene-drug network, which revealed 411 associations between 14 subclasses of DM, 23 genes, and 24 drugs. Based on this 3-D network, we constructed 8 optimal disease-gene-drug subnetworks of DM.

CONCLUSIONS

We have implemented and validated a network-based approach to identifying and ranking the hidden associations between diseases, genes, and drugs. Our results provide new potential pathways in the search for DM treatment drugs.
Utilizing Consumer Health Informatics to Support Management of Hypertension by Clinical Pharmacists in Primary Care: Study Protocol (Preprint)
Authors: Buis Lorraine R , Roberson Dana N , Kadri Reema , Rockey Nicole G , Plegue Melissa A , Choe Hae Mi , Richardson Caroline R
Published: July 2018

BACKGROUND

Hypertension (HTN) is a major public health concern in the United States given its wide prevalence, high cost, and poor rates of control. Multiple strategies to counter this growing epidemic have been studied, and home blood pressure (BP) monitoring, mobile health (mHealth) interventions, and referrals to clinical pharmacists for BP management have all shown potential to be effective intervention strategies.

OBJECTIVE

The purpose of this study is to establish feasibility and acceptability of BPTrack, a clinical pharmacist-led mHealth intervention that aims to improve BP control by supporting home BP monitoring and medication adherence among patients with uncontrolled HTN. BPTrack is an intervention that makes home-monitored BP data available to clinical pharmacists for use in HTN management. Secondarily, this study seeks to understand barriers to adoption of this intervention, as well as points of improvement among key stakeholders, so that larger scale dissemination of the intervention may be achieved and more rigorous research can be conducted.

METHODS

This study is recruiting up to 25 individuals who have poorly controlled HTN from a Family Medicine clinic affiliated with a large Midwestern academic medical center. Patient participants complete a baseline visit, including installation and instructions on how to use BPTrack. Patient participants are then asked to follow the BP monitoring protocol for a period of 12 weeks, and subsequently complete a follow-up visit at the conclusion of the study period.

RESULTS

The recruitment period for the pilot study began in November 2016, and data collection is expected to conclude in late-2017.

CONCLUSIONS

This pilot study seeks to document the feasibility and acceptability of a clinical pharmacist-led mHealth approach to managing HTN within a primary care setting. Through our 12-week pilot study, we expect to lend support for this approach, and lay the foundation for translating this approach into wider-scale implementation. This mHealth intervention seeks to leverage the multidisciplinary care team already in place within primary care, and to improve health outcomes for patients with uncontrolled HTN.

CLINICALTRIAL

Clinicaltrials.gov NCT02898584; https://clinicaltrials.gov/ct2/show/NCT02898584 (Archived by WebCite® at http://www.webcitation.org/6u3wTGbe6)