Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study
Authors: Benmessaoud Camila , Pfisterer Kaylen J , De Leon Anjelica , Saragadam Ashish , El-Dassouki Noor , Young Karen G M , Lohani Raima , Xiong Ting , Pham Quynh 
Published: November 2023

Background

The COVID-19 pandemic forced the spread of digital health tools to address limited clinical resources for chronic health management. It also illuminated a population of older patients requiring an informal caregiver (IC) to access this care due to accessibility, technological literacy, or English proficiency concerns. For patients with heart failure (HF), this rapid transition exacerbated the demand on ICs and pushed Canadians toward a dyadic care model where patients and ICs comanage care. Our previous work identified an opportunity to improve this dyadic HF experience through a shared model of dyadic digital health. We call this alternative model of care “Caretown for Medly,” which empowers ICs to concurrently expand patients’ self-care abilities while acknowledging ICs’ eagerness to provide greater support.

Objective

We present the systematic design and development of the Caretown for Medly dyadic management module. While HF is the outlined use case, we outline our design methodology and report on 6 core disease-invariant features applied to dyadic shared care for HF management. This work lays the foundation for future usability assessments of Caretown for Medly.

Methods

We conducted a qualitative, human-centered design study based on 25 semistructured interviews with self-identified ICs of loved ones living with HF. Interviews underwent thematic content analysis by 2 coders independently for themes derived deductively (eg, based on the interview guide) and inductively refined. To build the Caretown for Medly model, we (1) leveraged the Knowledge to Action (KTA) framework to translate knowledge into action and (2) borrowed Google Sprint’s ability to quickly “solve big problems and test new ideas,” which has been effective in the medical and digital health spaces. Specifically, we blended these 2 concepts into a new framework called the “KTA Sprint.”

Results

We identified 6 core disease-invariant features to support ICs in care dyads to provide more effective care while capitalizing on dyadic care’s synergistic benefits. Features were designed for customizability to suit the patient’s condition, informed by stakeholder analysis, corroborated with literature, and vetted through user needs assessments. These features include (1) live reports to enhance data sharing and facilitate appropriate IC support, (2) care cards to enhance guidance on the caregiving role, (3) direct messaging to dissolve the disconnect across the circle of care, (4) medication wallet to improve guidance on managing complex medication regimens, (5) medical events timeline to improve and consolidate management and organization, and (6) caregiver resources to provide disease-specific education and support their self-care.

Conclusions

These disease-invariant features were designed to address ICs’ needs in supporting their care partner. We anticipate that the implementation of these features will empower a shared model of care for chronic disease management through digital health and will improve outcomes for care dyads.