11.A. Scientific session: Overcoming Real-World Challenges in Setting up Health Data Linkages for Public Health Policy
Authors:   Organised by: Sciensano (Belgium), Université Catholique de Louvain (Belgium), Universiteit Gent (Belgium),   Chair persons: Eduardo Bracho Montes de Oca (Belgium), Laura Int Panis (Belgium)
Published: October 2024

Background

Linking available administrative data has gained momentum in the last years to enhance public health research and public health formulation. Linkage of diverse data sources can be leveraged to understand social-determinants of health, the cost-effectiveness of an intervention, and to evaluate impact of policies. For instance, data linkage has been proven to be a powerful approach to periodically analyze real-world progress of the COVID-19 pandemic. Today, we are witnessing an unparalleled increase in electronic health data stemming from citizens who interact with services such as healthcare providers, employers, sick funds, and other governmental structures. This enormous amount of data opens many innovative possibilities in epidemiological research. The main advantages of the secondary use of data are the following: 1) it is enriching for new collected data (e.g. survey study), 2) it provides comprehensive information of the target population, and 3) it is cheaper than new data collection. Data linkage between data sources is, however, often a herculean task, and it comes with considerable challenges such as: 1) juridical complexity related to intra-national and cross-border data governance procedures, 2) fragmented data integration, 3) data delivery delays. Addressing these challenges is essential to unlocking the true potential of data linkages for timely responses to emerging public health questions, thereby contributing to evidence-based policy and care and transforming our health research into a One Health approach.

Objectives

The workshop’s main aim is to present the researcher’s lessons-learned and approaches in applying data linkage from an European, and a country-level perspective through case-studies while creating a space for the public to share their own view. In this workshop we aim to 1) provide a helicopter overview of current data linkages approaches in Europe, 2) illustrate this with case studies from an international, and a country-level perspective, and 3) emphasize the challenges and disadvantages of those data linkages, while sharing potential solutions.

Workshop outline

The workshop is divided into a knowledge translation, and an interactive part. In the first part of the workshop, three speakers will give a presentation of each 10 minutes with a Q&A of 5 minutes between each presentation where data linkage will be introduced, and three case studies on how data linkage can be used will be presented. The first presentation will introduce approaches to data linkages in Europe, and will delve into how AI can be used during routine data linkage. The second presentation will show a case-study on how an international data linkages can be done in an European federated manner. The third presentation will further illustrate how nationally data can be linked to investigate health inequalities. In the second part of the workshop, the audience will be invited to interact with the speakers and share their experiences.

Key messages

• A comprehensive overview of different current data linkages approaches are provided, setting the stage for discussions on methods and best practices.

• Administrative data linkages are a powerful tool to answer important public health challenges, but important challenges related to data governance need to be addressed to realize the full potential.