European Health Information Portal: a one-stop shop for health information
Authors: Tolonen Hanna , Saso Miriam , Unim Brigid , Palmieri Luigi , Schutte Nienke , Peyroteo Mariana , Lapão Luís Velez , Habl Claudia , Bogaert Petronille ,   Population Health Information Research Infrastructure and the Health Information Portal, Habl Claudia , Pries Cara , Pentz Richard , Mathis-Edenhofer Stefan , Schmidt Andrea , Grabenhofer-Eggerth Alexander , Weiss Johannes , Sagerschnig Sophie , Gottlob Anita , Dolanski Lorenz , Degelsegger-Marquez Alexander , Gruber Beate , Habimana Katharana , Bogaert Petronille , Delnord Marie , Schutte Nienke , Vyncke Kim , Krzywania Tadek , Abboud Linda , Saso Miriam , Devleesschauwer Brecht , de Lizoreux Barthélémy Moreau , Derycke Pascal , Daubresse Pierre , Milbeck Sasha , De Ridder Karin , Van de Catsyne Charles-Andrew , Lagarija Sejla Cilovic , Chileva Anina , Dimnjakovic Jelena , Vukovic Jakov , Dankova Sarka , Májek Ondrej , Vorobjov Sigrid , Idavain Jane , Rätsep Merika , Tolonen Hanna , Mäkinen Mari , Gissler Mika , Zeitlin Jennifer , Philibert Marianne , Carcaillon-Bentata Laure , Haneef Romana , Makovski Tatjana , Thißen Martin , Seeling Stefanie , Fehr Angela , Ziese Thomas , Georgakopoulou Christina , Petelos Elena , Lionis Christog , Lingri Dimitra , Kornél Tóth , Töll Ágnes , Bezzegh Peter , Csizmadia István , Láng Róbert , Csaba Kiss , Cahill Alan , Courtney Michael , White Pauline , Ailish Kelly , Clarke Patricia , Kappala Sharon , Smyth Breda , Palmieri Luigi , Unim Brigid , Faragalli Andrea , Misins Janis , Zile Irisa , Zelviene Ausra , Astrauskiené Audronè , Weber Guy , Buttigieg Dorita , Calleja Neville , Lozan Oleg , Gramme Rodica , Tijhuis Mariken , Holz Daniela Moye , Hilderink Henk , Berger-Symons Linda , de Vries Marit , Haaheim Håkon , Forland Frode , Nordeng Zuzana , Larose Tricia , Strozyk Malgorzata , Maryniak Pawel , Drogon Krystyna , WęGrzyn Karolina , Wisniewski Tomasz , Paciorek Kinga , Nogueira Paulo , Bacelar-Nicolau Leonor , Santos Rodrigo Feteira , Lapão Luís , Peyroteo Mariana , Paulo Marília Silva , Montez Teresa , Dias Carlos , Gomez Veronica , Neves Lucinda Oliveira das , Peralta-Santos Andre , Sandu Petru , Gaftonie Elena Gabriela , Fekete Edit , Brinduse Lacramioara , Radulescu Silviu , Krstic Maja , Medaveric Aleksandar , Cap Jan , Zaletel Metka , Vinko Matej , Bric Tatjana Kofol , Gómez Inmaculada León , Rodriguez-Blazquez Carmen , João Forjaz M , Marin Marta , Larrauri Amparo , Ramis Rebeca , Diaz Asuncion , Angulo-Pueyo Ester , Garriga Cesar , Valero Teresa , Estupiñán Francisco , Garcia-Armesto Sandra , Bernal-Delgado Enrique , García Juan González , Azpiazu Javier Gómez-Arrue , Garces Ramon Launa , López-Cuadrado Teresa , Launag Ramón , Telleria Carlos , Seral Meriam , Angulo-Pueyo Ester , Syden Lovisa , Akbari Ashley , Lyons Ronan , Aldridge Sarag 
Published: July 2024

Background

Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access.

Methods

Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information.

Results

The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section.

Conclusions

The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.