bluuebunny/crossref_metadata_2025 huggingface dataset:
A Disability Awareness Poster Contest at Bronx Community College of The City University of New York (CUNY)
Authors: Caraballo Carmen , Miele Rodas Julia
Published: March 2016

The student art presented here (including detailed verbal descriptions) grows out of a disability awareness poster contest held at Bronx Community College of the City University of New York in the spring semester of 2008. Including a reproduction of a poster by student Carmen Caraballo, this brief article provides a description of the project and discusses the ways in which it offered enrichment at many levels. Specifically, by involving students, faculty, and administration in its process, the contest successfully supported an expansive awareness mission in a community which does not outwardly embrace visible disability.
Usage of quotas in the state budget: A case study of Karnataka in India
Authors: Kumar Pradeep
Published: March 2016

Persons with disabilities constitute nearly ten percent of the population of India, and the Persons with Disabilities Act of 1995 allocates 3% quota in all poverty alleviation programmes and schemes of the government. Though the system of quota has a legislative mandate to be used as a safety net, many studies have indicated that the state governments have failed in implementing the same in the case of people with disabilities. Karnataka has been one of the most progressive states in mainstreaming disability into the development agenda of the state, and through a democratic process of "participatory governance" it has ensured that the allocation of 3% quota is successfully implemented in all the poverty eradication programmes of the state.
Access Imagined: The Construction of Disability in Conference Policy Documents
Authors: Price Margaret
Published: March 2016

Conferences are a crucial area of professional development for persons with disabilities, but they are also among the most least accessible spaces that disabled persons may encounter. I argue that we need further research into these highly charged spaces, and I contribute to this agenda by analyzing 17 accessibility policy documents produced by 8 different professional organizations. Using critical discourse analysis, I examine the choices these documents have made, both verbal and visual, as well as possible outcomes of these choices for various audiences. In closing, I offer a list of generative questions that the authors of such documents should consider. It is impossible for a policy document to “imagine” access perfectly ahead of time; rather, we should understand and treat policy documents as part of a continually evolving dialogue.
From Superman to Super Jesus: Constructions of Masculinity and Disability on the Silver Screen
Authors: Schumm Darla , Koosed Jennifer L.
Published: March 2016

One of the dominant images of Jesus emerging in the late twentieth and early twenty-first centuries is that of the Super Jesus.  Building on the hyper-masculinity of the American superhero, the recent portrayals of Jesus in Mel Gibson’s The Passion of the Christ and Philip Saville’s The Gospel of John demonstrate how the figure of Jesus is often represented as a Super Jesus – strong, impervious to pain, ultimately triumphant.  In these movies, Jesus' body is subjected to extreme violence and yet he is able to control and transcend his broken body both before and after death.  Drawing on the work of disability scholars both in and outside of religious studies, this paper argues that the model of the Super Jesus constructs an ideal of masculinity that prevents the exploration of alternative theologies of disability, alternatives that present different understandings of Incarnation, resurrection, and heaven.
Bridging the Deficiency Divide: Expressions of Non-deficiency Models of Disability in Health Care
Authors: Baker Dana Lee
Published: March 2016

Modern disability theory is based on non-deficiency based models of disability. However, progress in the construction of disability theory outside medicine may have outpaced the uptake of new paradigms of disability by health care professionals. Incomplete rejection of deficiency models of disability is expected by disability scholars and activists to routinely occur in health care scholarship and settings, thereby curtailing the influence of disability studies on the daily lives of individuals both with and without disabilities.  Although this anticipated theoretical gap is frequently noted, it has been less often empirically examined. Using data collected from a survey of parents and primary caregivers with autism, this article employs the case of autism to examine the manifestation of non-deficiency based models of disability in health care settings and interactions. The results of the study indicate some uptake of non-deficiency based models of disability.
Shana's Story: The Struggles, Quandaries and Pitfalls Surrounding Self-determination
Authors: Petersen Amy J.
Published: March 2016

This qualitative research study explores the concept of self-determination as experienced by an African American woman labeled with a disability in an educational setting. When articulated as a particular set of skills to be acquired, this study found that the democratic intent of self-determination was undermined.  In this case, self-determination became the antithesis of the movement's intent, instead resembling a process of normalization. Employing poetry to illuminate the participant’s experiences, this research draws attention to the quandaries that arise when self-determination is enacted via a technical-rational instructional paradigm.
Gabe’s Stories: Intersecting Spirituality with Speech-Related (Dis)ability
Authors: Norton Nadjwa
Published: March 2016

This one-year multicultural feminist critical narrative inquiry focuses on how one Puerto Rican/Black working class male draws on his spirituality to negotiate his speech-related (dis)ability. By utilizing multiple qualitative methods, the researcher and child-co-researcher illuminate how he draws on his agencies and intersecting identities to negotiate teaching people lessons, teasing, and language differences. This paper highlights the abilities of children to name their spiritualities and to tell stories that clearly illustrate the intersections of spiritualities and (dis)abilities. It serves to expand constructions of children as knowledge producers, agents, teachers, justice seekers, and shapers of learning environments. Understanding children’s negotiations of interpersonal school structures has the potential to create more equitable structures that affirm the identities, increase academic success, and support the agencies of children who are marginalized across the intersecting identities.Key Words: Speech-Related Disabilities, Urban, Spirituality, Education, Narrative Inquiry
Commentary 4
Authors: Matthews Brian
Published: March 2016

No abstract available
Table 1: Overview of All Offerings
Authors: Cushing Pamela , Smith Tyler
Published: March 2016

No abstract available
Review of Synechdoche, New York
Authors: Church David
Published: March 2016

no abstract available
Review of Staging Stigma
Authors: Fox Ann
Published: March 2016

no abstract available
Introduction
Authors: Armstrong Philip , Berman Nina , Njogu Kimani , Wa-Mungai Mbugua
Published: March 2016

no abstract available
Negotiating Local Knowledge: Networking Disability on the Community Level
Authors: Berman Nina
Published: March 2016

Networking on the community level, pooling resources, avoiding the duplication of services, education, and cooperation with community leaders are crucial for a broadly based disability network to emerge. This essay presents two models that might serve as inspiration for the creation of community-focused initiatives in the field of disability, namely Kwale Health Forum and Kwale District Eye Centre. Both models address the need to connect with the grassroots community, a relationship that is acknowledged as currently lacking in the “Strategic Plan” of Kenya’s National Council for Persons with Disabilities. The discussion shows that a community-based network for disability-related needs has the potential to allow for the identification of disabled individuals; facilitate their access to medical services; provide access to education; and, last but not least, assist in educating caregivers and the larger community, an aspect that is crucial to improving the situations of persons with disabilities.
Disability and Identity
Authors: Murugami Margaret Wangui
Published: March 2016

no abstract available
Cultural Perspectives in Language and Speech Disorders
Authors: Ndung'u Ruth , Kinyua Mathew
Published: March 2016

Culture has a heavy overlay on the perceptions and the subsequent handling of persons with language and speech disorders. This article reviews the cultural perspectives of language and speech disorders as portrayed by persons with language and speech disorders, parents, teachers, and language and speech pathologists. The information on cultural perspectives was collected between November 2006 and August 2007 during Operation Smile, Kenya Chapter Missions. 20 persons, aged between 8 and 53 years, were interviewed. The research objective was to establish the cultural perspective that determines the interpretations of language and speech disorders and their subsequent management. The finding of the study is that there is a notable cultural association or correlation between cultural beliefs and language and speech disorders. There is also ignorance of the causes and management procedures of language and speech disorders. We conclude that there is a need to provide assessment and treatment protocols that are culturally fair, effective, and acceptable. Such protocols include taking into account gender preferences, adhering to culturally relevant communication patterns, and using collaborative therapy.
Beyond (Human) Rights?
Authors: Armstrong Philip
Published: March 2016

The essay responds to the pervasive appeals to rights discourse during the 2007 Nairobi workshop on "Disability, Culture, and Human Rights." Taking its point of departure from Wendy Brown's rethinking of rights discourse in States of Injury, as well as from a range of recent texts that seek to reopen the presuppositions informing the role of rights in relation to concepts of state sovereignty and contemporary globalization, the essay seeks to outline a number of questions and problems concerning rights in contexts of disability. In addressing the conflicts and paradoxes opened up between rights as human and universal and rights as geopolitically circumscribed and historically contingent, the essay argues that it is these same conflicts and paradoxes that shape and even over-determine the workshop’s initiative to reconfigure the 2003 Disability Act in Kenya.
Caesar Hath the Falling Sickness: The Legibility of Early Modern Disability in Shakespearean Drama
Authors: Hobgood Allison P.
Published: March 2016

This essay investigates William Shakespeare’s The Tragedy of Julius Caesar as a disability narrative. In doing so, it reveals that “disabled” was an operational identity category in the early modern period and argues that the play’s treatment of epilepsy illustrates and confounds early modern articulations of disability as wondrous, monstrous, deviant, and pathological. It also suggests that Julius Caesar performs epilepsy as a disability that, in its veritable invisibility, undoes the disciplining of bodily variation these discourses each undertake. In its exploration of epilepsy, Julius Caesar interrogates the idea of early modern disability as a visible, physical phenomenon, instead positing a more complex notion of disability as less overt, decipherable, or legible. Ultimately, this essay introduces disability to Julius Caesar to complicate existing early modern scholarly engagement with difference and presents “Shakespearean” disability studies as a productive critical approach by which to both reanimate dialogue about Renaissance subjectivities and motivate a more politically invested classroom pedagogy. Keywords: disability, Shakespeare, epilepsy, falling sickness, Julius Caesar, visibility, passing, ableism
Enabling Richard: The Rhetoric of Disability in Richard III
Authors: Williams Katherine Schaap
Published: March 2016

This article examines Shakespeare’s Richard III as an important example of staging disability in early modern drama. Although Richard’s character is taken by theorists as emblematic of premodern notions of disability, this article reads Richard instead as a “dismodern” subject who employs rhetorical power and performative ability to compensate for a bodily form marked with negative associations. Richard foregrounds his deformed figure in ways that advance his political power, appealing to bodily deformity and the impotence he claims it entails to obscure his shrewd political maneuvers. Understanding the powerful ends to which Richard uses his disability allows us to think about disabled identity in the Renaissance as a complex negotiation of discourses of deformity and monstrosity as well as a relation to bodily contingency that reveals the instability of all bodies.   Keywords: deformity, disability, dismodern, drama, Shakespeare, Richard III.
Transition Failure: The Cultural Bias of Self-Determination and the Journey to Adulthood for People with Disabilities
Authors: Smith Phil , Routel Christine
Published: March 2016

Like other social service and educational industry processes, the transition from special education services to supports received in community settings has been commodified and reified, controlled by educational and human service professionals, meeting the needs of the industries that they represent and capitalism in general, and serving to keep people with disabilities and their families segregated and isolated. Using critical theory and disability studies approaches, this paper explores ways in which the concept of  self-determination, as normatively constructed by Anglo-European professional bureaucratic structures, fails to meet the needs and rights of marginalized, culturally diverse students with disabilities and their families. Policy, funding, and practice implications for schools are explored.
The Silence Between: An Autoethnographic Examination of the Language Prejudice and its Impact on the Assessment of Autistic and Animal Intelligence
Authors: Prince Dawn
Published: March 2016

No abstract available
The Future (and the Past) of Autism Advocacy, Or Why the ASA’s Magazine, The Advocate, Wouldn't Publish This Piece
Authors: Ne'eman Ari
Published: March 2016

No abstract available
"The Superior Half of Speaking": An Introduction
Authors: Savarese Emily Thornton , Savarese Ralph James
Published: March 2016

No abstract available
No Life Lessons Here: Comics, Autism, and Empathetic Scholarship
Authors: Birge Sarah
Published: March 2016

Comics, a relatively understudied medium for representations of disability, have enormous potential for providing important critical perspectives in disability studies. This article examines two recent comics that portray individuals with autism: The Ride Together by Paul and Judy Karasik and Circling Normal, a compilation of the comic strip Clear Blue Water by Karen Montague-Reyes. I argue that these comics’ unique narrative geometries make them ideally suited for depicting cognitive disabilities in the nuanced context of embodied life. Through their reworking of stereotypes and their unique portrayals of autism, Circling Normal and The Ride Together demonstrate the power of comics to rewrite (and redraw) traditional scripts of cognitive disability and break the confining cultural framework through which some people are seen and others overlooked.Keywordsautism, comics, representation, cognitive disability, empathy
Autism and Representation, edited by Mark Osteen
Authors: Gabbard Chris
Published: March 2016

No abstract available
Ideology, Institutions, and Equity: Comments on Christine Sleeter's Why Is There Learning Disabilities?
Authors: Skrtic Thomas M , McCall Zach
Published: March 2016

Our commentary on Christine Sleeter’s landmark work, Why Is There Learning Disabilities? A Critical Analysis of the Birth of the Field in Its Social Context, is presented in four sections. Each of the first three sections addresses one of the foci of her conflict analysis—ideology, institutions, and differentiated education—by summarizing her argument with respect to that aspect of her analysis, historicizing her line of argument in Foucault's sense of recontextualization or rereading a text in terms of categories and problems unavailable to its author, and assessing the social, historical and theoretical value of her analysis in general and with respect to the categories and problems of our recontextualization.  In the first section we draw upon democratic theory to differentiate three strains of American liberalism—market, developmental, and managerial—which we use to extend Sleeter's argument regarding the ideology behind the creation of the learning disabilities category. In the second section we use institutional theory to reread her argument regarding schools as social institutions and what they had to gain from the creation of the learning disabilities category.  For the third aspect of her analysis, we use the institutional history of public education to trace the roots of the discursive practice of differentiated education and to characterize the system that existed in the 1950s that the Brown decision, the Elementary and Secondary Education Act of 1965, and the Education of All Handicapped Children Act of 1975 tried to change.  In our concluding section we bring Sleeter's analysis forward in time to consider the new push for higher standards that she speculates about at the end of her paper. What she was referring to turned out to be the start of the neoliberal standards-based reform movement, which we review and relate to Sleeter's analysis and our recontextualization, as well as to her most recent work that addresses the intersection of accountability, equity, and democracy.
States of Exception: Learning Disability and Democracy in New Times
Authors: Baker Bernadette
Published: March 2016

No abstract available
The Social Distribution of Moxie: The Legacy of Christine Sleeter
Authors: Ginsburg Faye , Rapp Rayna
Published: March 2016

As anthropologists studying the current landscape of learning disabilities in New York City, we are deeply indebted to Sleeter's critical insights into both the contemporary moment and the highly stratified historical conditions that produced the intense concern with literacy and academic achievement in a post-war labor market that required escalating white-collar skills.  The map of the LD world has become more complex since 1987 due to a number of developments: (1) the increased survival rate of medically challenged infants and children who remain with their families rather than being removed to institutions, eventually requiring a "free and appropriate education"; (2) the wide acceptance of new scientific explanations provided by neuroscience and genetics with attendant notions of intervention; (3) the expanding coverage providing by legislation concerning the educational rights of those with disabilities from the periodic renewals of the IDEA, the passage of the ADA, followed by a series of groundbreaking Supreme Court cases notably Nickerson  and Carter; and (4)  the growth of curricular innovation to address different learning styles in both the public and private sectors, in an effort to address and destigmatize the presence of  "all kinds of minds" in American classrooms. While Sleeter identified the role of family activists in stratifying the kinds of categories assigned to children's learning differences, our research with NYC parents of children with IEPs in the 21st century highlights the immense amount of social labor required to stabilize and utilize the category across class and race lines. Notably, this work is carried out by mothers who often become advocates for their children in order to get the services to which they are entitled, but which often disappear unless a parent secures them.
Brad Gooch. Flannery: A Life of Flannery O’Connor. New York: Little, Brown, 2009.
Authors: Scheer Kodi
Published: March 2016

No abstract available
Review of Arguing About Disability
Authors: Smith Stephanie
Published: March 2016

No abstract available
“So this is my new life”: A Qualitative Examination of Women Living with Multiple Sclerosis and the Coping Strategies They Use When Accessing Physical Activity
Authors: Schneider Margaret , Young Nadine
Published: March 2016

The purpose of this study was to explore the lived experiences of women living with multiple sclerosis and their perceived barriers to accessing physical activity. Seven women were invited to complete a background questionnaire and a semi-structured interview to discuss these experiences, and to examine any perceived barriers (i.e., internal and external) that they encountered in relation to physical activity. The key themes that emerged from the interpretive analysis were the apparent importance of: 1) self-management; 2) treatments; and 3) attitude, when accessing such opportunities. The findings suggest that it is important for physicians to understand the patient’s experience of living with multiple sclerosis and the impact of the disease can have on other aspects of their life (e.g., access to physical activity). Acknowledgement of this experience and the issues that these women struggle with on a daily basis could enhance the physician/patient relationship, and encourage a more collaborative effort in terms of establishing an illness management plan for navigating the illness journey.
Roosevelt's Sister: Why We Need Disability Studies in the Humanities
Authors: Garland Thomson Rosemarie
Published: March 2016

No abstract available
Old, New, Borrowed and Blue: Compulsory Able-bodiedness and Whiteness in Avatar
Authors: Palmer Sara
Published: March 2016

No abstract available
Review of Anne Finger, Call Me Ahab: A Short Story Collection
Authors: Knadler Stephen
Published: March 2016

No abstract available
In this dark alley, my knee locks
Authors: Kuppers Petra
Published: March 2016

No abstract available
Review of Pineda's Sleep in Me
Authors: Lambeth Laurie
Published: March 2016

No abstract available
Review of Haller's Disability in an Ableist World: Essays on Mass Media
Authors: Martin Celest
Published: March 2016

No abstract available
What Can Disability Learn from the Breastfeeding Wars?
Authors: Nemecek Angela Lea
Published: March 2016

This paper uses disability and feminist perspectives to argue that the construction of breastfeeding in the workplace illuminates fundamental aspects of the construction of disability.  Breastfeeding workers parallel disabled workers in many ways: both require accommodations, both often rely on prosthetic devices, and both have difficult achieving the kind of worker “independence” that contemporary workplaces value.  By examining these parallels, and considering the subordinate status of interdependent bodies, this paper explores the implications of the feminist movement’s hesitation to rally behind breastfeeding rights.  It also offers a new way of looking at the social model of disability as one that is capable of constructing disability even in the absence of impairment.
Corrected Tables for Fatigue Scales and Chronic Fatigue Syndrome: Issues of Sensitivity and Specificity, DSQ v.31 no.1 (Winter 2011)
Authors: Jason Leonard , Evans Meredyth , Brown Molly , Porter Nicole , Brown Abigail , Hunnell Jessica , Anderson Valerie , Lerch Athena
Published: March 2016

These tables correct formatting errors that appeared in the previous version of this article.   These tables are authoritative and supercede those in the previous issue of DSQ.
Review of Bost, Encarnación: Illness and Body Politics in Chicana Feminist Literature
Authors: Hames-Garc Michael
Published: March 2016

No abstract available
The Rhetoric of Ableism
Authors: Cherney James L.
Published: March 2016

This essay argues that rhetoric is both the means by which ableist culture perpetuates itself and the basis of successful strategies for challenging its practices. Public demonstrations, countercultural performances, autobiography, transformative histories, and critiques of ableist films and novels all apply rhetorical solutions to the problem of ableism. The study employs Kenneth Burke's theory of identification and Stuart Hall's configuration of ideology to uncover those commonplace "languages of practical thought" that generate and sustain ableist perspectives and ideas. Focusing on the rhetoric of ableism at the level of the warrants used to interpret disability, this article closely examines the way Aristotle's Generation of Animals relies on the equivocation "normal is natural."
Which Sounds are Significant? Towards a Rhetoric of Closed Captioning
Authors: Zdenek Sean
Published: March 2016

This article offers a way of thinking about closed captioning that goes beyond quality (narrowly defined in current style guides in terms of visual design) to consider captioning as a rhetorical and interpretative practice that warrants further analysis and criticism from scholars in the humanities and social sciences. A rhetorical perspective recasts quality in terms of how genre, audience, context, and purpose shape the captioning act. Drawing on a range of Hollywood movies and television shows, this article addresses a set of topics that are central to an understanding of the effectiveness, significance, and reception of captions: overcaptioning, undercaptioning, subtitles vs. captions, the manipulation of time, non-speech information, series awareness, and the backchannel.
"What Has Become of Jimmy Thornton?": The Rhetoric(s) of Letter-Writing at The New York State Asylum for Idiots, 1855-1866
Authors: Stuckey Zosha
Published: March 2016

This article looks to the genre of letter-writing and to epistolary rhetoric in order to recover perspectives seemingly lost amongst the medicalized discourse of asylum histories. These hard-to-find letters written in the nineteenth century by pupils, family members, and teachers open us up to new perspectives not available in other archival documents. I give a brief introduction to the history and theory of epistolary rhetoric, delimit a disability epistolary, and then consider a group of letters in terms of the rhetorical action they perform. I conclude by emphasizing the significance of this cross-disciplinary work for both rhetoric and disability studies.
"The Extreme Male Brain?" Incrementum and the Rhetorical Gendering of Autism
Authors: Jack Jordynn
Published: March 2016

The rhetorical figure of the incrementum, or scale, can help to account for how autism spectrum disorders (ASD) have been gendered as male, especially in Simon Baron-Cohen’s "Extreme Male Brain" theory. The incrementum occurs when female, male, and autistic brains are placed along a scale according to systemizing and empathizing abilities. This double hierarchy reinforces popular beliefs about sex and gender, drawing on the cultural resources of hi-tech culture, the service economy, and geekiness. In so doing, these theories overlook other important aspects of ASD, including alternative theories, the presence of autistic women and girls, and the needs and interests of autistic people themselves.
Infantilizing Autism
Authors: Stevenson Jennifer L. , Harp Bev , Gernsbacher Morton Ann
Published: March 2016

When members of the public envision the disability of autism, they most likely envision a child, rather than an adult. In this empirically based essay, three authors, one of whom is an autistic self-advocate, analyzed the role played by parents, charitable organizations, the popular media, and the news industry in infantilizing autism. Parents portrayed the face of autism to be that of a child 95% of the time on the homepages of regional and local support organizations. Nine of the top 12 autism charitable organizations restricted descriptions of autism to child-referential discourse. Characters depicted as autistic were children in 90% of fictional books and 68% of narrative films and television programs. The news industry featured autistic children four times as often as they featured autistic adults in contemporary news articles. The cyclical interaction between parent-driven autism societies, autism fundraising charities, popular media, and contemporary news silences adult self-advocates by denying their very existence. Society's overwhelming proclivity for depicting autism as a disability of childhood poses a formidable barrier to the dignity and well-being of autistic people of all ages.
Review of DePoy and Gilson, Studying Disability: Multiple Theories and Responses
Authors: Campbell Tom
Published: March 2016

No abstract available
Review of Sandell, Dodd and Garland-Thomson, Re-Presenting Disability and of Chivers and Markotić, The Problem Body
Authors: Gilman Sander L.
Published: March 2016

No abstract available
Can there be a Disability Studies Theory of "End-of-Life Autonomy?"
Authors: Braswell Harold
Published: March 2016

KeywordsADA, autonomy, bioethics, end-of-life, euthanasia, terminal illnessAbstractIn this article, I examine the possibility of a disability studies theory of "end-of-life autonomy." I define "end-of-life autonomy" as an individual's legally protected and medically enacted decision to die in response to a serious incurable medical condition. Disability studies scholars criticize such autonomy when it is exercised by persons with disabilities, but are divided on its application to the terminally ill. But the problem with end-of-life autonomy is not determining the correct population to which it applies; it is the ableism underlying the concept of "autonomy" itself. I redefine "autonomy" as a relational process of self-development that is oriented toward a greater recognition of dependence. This rethinking can make the ADA more responsive to terminally ill individuals, and helps lay the foundation for a disability studies theory of end-of-life autonomy.
Interrogating Transability: A Catalyst to View Disability as Body Art
Authors: Stevens Bethany
Published: March 2016

Keywordsbody modification, ableism, pathogolizing disability, transability, transitionAbstractThis paper interrogates transability – the need or desire to transition from supposed binary states of physical ability to physical disability - by positioning it within the boundaries of acceptable body modification. The pathology of this bodily transition, noted in the literature, is dissected to inquire how compulsory able-bodiedness and ableism enable the pathologization of transabled people. Transabled people depart from ableist compulsions "to never want to be disabled" but needing it to feel "whole" or who they really are. A key informant interview with a transabled man, who has lived as a paraplegic for a decade, provides a humanizing account of this often problematic identity from the standpoint of the disability community. Instead of concluding with resolution about the meaning of transability or disability as body art – the piece closes with several questions to promote a dialog on the boundaries of transition.
Cochlear Implants & the Mediated Classroom-Clinic: Communication Technologies and Co-operations Across Multiple Industries
Authors: Mauldin Laura
Published: March 2016

Keywordsdeaf education, cochlear implant, technology, medicine, controversyAbstractThis article considers the ways in which cochlear implantation, as a form of mediated communication, is altering deaf education classrooms and programs. Based on ethnographic fieldwork and interviews, I use a case study of a "model program" to illustrate how one deaf education program integrates implant technology and the regimens of healthcare systems into day-to-day school life. Data show the constellation of multi-institutional co-operations in deaf educational programs that have occurred with the routinization of pediatric cochlear implants (CIs) and concurrent technological developments in assistive listening devices. In the analysis, I propose new questions that should be asked as this highly sophisticated iteration in the history of auditory training continues to grow.
Mediated Communication in Context: Narrative Approaches to Understanding Encounters Between Health Care Providers and Deaf People
Authors: DeVault Marjorie , Garden Rebecca , Schwartz Michael A.
Published: March 2016

KeywordsDeaf/hard-of-hearing, Health-care communication, Narrative, Effective communication access, Cultural competency, Social model of deafnessAbstractDeaf people experience disparities in health care that are often the result of (or exacerbated by) difficulties of communication. Health care providers often lack cultural understandings of Deaf communication and culture and thus do not provide effective communication access. U.S. disability law is meant to guarantee communication access, but deaf people's stories of access indicate that they may still encounter barriers to effective access. We report on an action research project designed to enhance communication among deaf people, health care professionals, and sign-language interpreters. We draw upon a social model of disability, which locates barriers to inclusion in society and the environment rather than the embodied difference or impairment, and extend that to the condition of deafness. We argue that narrative and dialogue that develops cultural understandings of Deaf communication and culture can offer a means of facilitating mutual understanding among the parties involved. Our hope is that interventions based on this approach will contribute to greater health-care access for deaf people.
RETRACTED: The Role of Communication in Thought
Authors: Johnson DMan
Published: March 2016

Retraction Notice:The Editors-in-Chief retract the article entitled "The Role of Communication in Thought" published in Disability Studies Quarterly, 2011, 31 (4), http://dx.doi.org/10.18061/dsq.v31i4.1717.Our decision to retract is due to major overlap with a previously published work: Johnson, DMan (2011). "The Role of Communication in Thought." The Communicator 20(1): 4-5. http://www.autcom.org/pdf/AutcomNLWinter2011.pdfThe original article was published on October 25, 2011, and was retracted on April 18, 2017.The retracted article will remain online to maintain the scholarly record, and will be marked as retracted. Keywordsfacilitated communication, literacy, Pinker, PiagetAbstractIf people believe that people who do not talk do not think, they will believe that they have nothing to contribute. People look at facilitated communication users and think that they learned to think only after getting the means to communicate. They are working under the assumption that the only way to learn language is through interaction. I use ideas from Harvard neurologist Steven Pinker, studies of gifted children, and other evidence to demonstrate that people likely use language from the earliest moments of infancy, even before they can talk.
Whose Voice is That?: Issues of Identity, Voice and Representation Arising in an Ethnographic Study of the Lives of Disabled Teenagers who use Augmentative and Alternative Communication (AAC)
Authors: Wickenden Mary
Published: March 2016

KeywordsAlternative and augmentative communication (AAC), authorship, ethnography, co-constructed conversations, identity, representation, teenagers, voiceAbstractThis paper presents findings about identity, voice and representation arising from a broader ethnographic study with disabled teenagers who use AAC. This was informed by theory from childhood studies, disability studies and anthropology. The author spent 18 months carrying out qualitative, predominantly ethnographic, research with teenagers aged 10-19 years who use AAC. Participant observation and extended narrative conversations with 9 key young people, in a variety of contexts yielded rich data about how they see themselves and how they are seen by others. Additional input from other teenage AAC users, parents and school staff contextualize this. Three adult AAC users were research advisors, and their commentary at many stages of the study was helpful. This paper focuses more narrowly on specific aspects of aided communication, how the teenagers perceive that their use of AAC impacts on their identities, how individuals' voices emerge in co-constructed conversations and issues around representation.
Sound and Fury: When Opposition to Facilitated Communication Functions as Hate Speech
Authors: Stubblefield Anna
Published: March 2016

Keywordsfacilitated communication, hate speech, freedom of expression, human rights, civil rights, oppressionAbstractThe focus of this paper is the political aspects of the controversy over the use of FC as a communication tool and the ways in which anti-FC rhetoric oppresses FC users. In the face of studies that have validated the authorship of FC users, and given the growing number of former FC users who now type independently, continued anti-FC expression functions as hate speech when it calls into question, without substantiation, the intellectual competence of FC users, thereby undermining their opportunity to exercise their right to freedom of expression.
Poems
Authors: Whiteacre Liz
Published: March 2016

No abstract available
The Rise of Neoliberal Rhetoric and the Intersection of Modern Day Medicaid Priority: A Population Study of Young People in Nursing Homes
Authors: Kawam Elisa
Published: March 2016

This exploratory study aims to examine the present state of young people (<65 years of age) who reside in nursing homes due to traumatic and permanent injury. Due to the gap in the literature, this population is underrepresented in professional development training as well as service provision. This lack of appropriate and affordable care has severe consequences for nursing home residents on all domains: biological, psychological, social and spiritual. This population is expected to grow dramatically over the coming years and there is little to no advocacy for those residents. Furthermore, this paper discusses the effect of neoliberalism economic ideology in the United States and its effect on Medicaid spending priority, service allocation and overall quality of life for young people in nursing homes. Every level of society must act to reform healthcare priorities and advocate for this hidden and very vulnerable population.Keywords: Nursing homes, young people, Medicaid
Female, Black, and Able: Representations of Sojourner Truth and Theories of Embodiment
Authors: Minister Meredith
Published: March 2016

Sojourner Truth exists in American popular culture as a strong contributor to the movements for abolition and women’s rights. In order to maintain this image of strength and make the case that black women are just as capable as white men, Truth intentionally elided her disabled right hand. This article explores representations of Sojourner Truth in relation to her nineteenth century context and, in particular, social stigmas regarding race, gender and disability. The interpretations of pictures, a painting, and two events contained in Truth's Narrative suggest that Truth argued against gender and racial oppression by operating with an ideology of ability that suggested that both women and African-Americans are strong, powerful, and able. As Truth maintained an ideology of ability in order to subvert gender and racial hierarchies, she offers a case study into the benefits of intersectional approaches to historical studies.Key WordsSojourner Truth, disability, race, gender, feminism, nineteenth century
Equality & Disability – A Charter Analysis
Authors: Riddle Christopher A.
Published: March 2016

This article attempts to trace how the infuriatingly elusive concept of equality has been applied in the context of the Canadian Charter of Rights and Freedoms and more specifically, Section 15, commonly referred to as the equality provision. It suggests that a critical analysis of the historical application of this concept across various social groups of individuals (race, gender, disability) can bring to the forefront essential aspects of a notion of equality designed to promote justice for not only, but principally, people with disabilities. More pointedly, by distinguishing the differences in the application of the principle of equality in reference to the treatment of marginalized social groups, it argues that we might better uncover precisely what it is that is required of the institution of law when applying the equality provision. Ultimately, it arrives at the conclusion that decisions concerning people with disabilities tend to promote a lesser form of flourishing than those concerned with race or gender. This is the case for at least the two following omissions in disability-related judgments: (i) the recognition of the intrinsic worth of functionings; (ii) the recognition of historically situated prejudices and norm-constructed social arrangements.Keywordsdisability, charter, equality, race, gender
Review of Hall, Feminist Disability Studies
Authors: Knoll Kristina
Published: March 2016

No abstract available
Review of Ferris, Slouching Toward Guantanamo and Bartlett, Black & Northen, Beauty Is a Verb
Authors: Schalk Sami
Published: March 2016

No abstract available
True Story Project: I Am Heard: Empowering Female Adolescents with Physical Disabilities through Creative Expression
Authors: Xenakis Nancy , Goldberg Judith , Treston Elizabeth
Published: March 2016

This article introduces the creative writing component of the Young Women's Program (YWP), a comprehensive health and wellness program that serves young women, ages 14-21, with physical disabilities. The YWP is a part of the Initiative for Women with Disabilities (IWD), a hospital-based center in New York City serving women across the life span with physical disabilities/conditions. The goal of the YWP, established in 2006, is to help young women develop a better sense of self and respect and honor their bodies by adopting healthy lifestyles. The creative writing workshop of the YWP, True Story Project: I Am Heard (TSP) focuses on helping select program participants find their voices and share their stories through writing. This article describes the design, content and purpose of TSP, shares several of the young women's narratives, and includes a reflective analysis by the young women and facilitators of their experiences in the program and its impact on their lives.Keywords: physical disabilities; young women; creative writing; self-expression; empowerment; self-esteem
Practice, practice: notions of adaptation and normality among adults with Asperger Syndrome
Authors: Rosqvist Hanna Bertilsdotter
Published: March 2016

People with autism are objects of interventions, such as social training, that construct a normate (i.e., neurotypical) subject position. The emerging neurodiverse movements are reconceptualizing the meaning of autism. This paper examines expressions of an emerging counter-hegemonic discourse of Asperger subjectivity in the Swedish neurodiverse movement by exploring an ambivalent discourse of adaptation among adults with autism. The material was gathered during three months of ethnographic fieldwork in an educational setting in Sweden among adults diagnosed with Asperger syndrome. The key meanings linked to the discourse of adaptation concern meaningful versus meaningless training, adaptation to an NT environment or to the person with autism, the meaning of affirmation, and the possibility of understanding the experience of autism. An understanding of adaptation is treated as integral to producing a counter-hegemonic discourse of "normal for an Asperger" and alternative forms of autistic normalcy formulated by adults with autism.Keywords: adults with autism, training, adaptation, identity, normality, neurotypicals
Welfare Reform and Disability in Slovakia: exploring neoliberalism, social justice and employment policy
Authors: Gould Robert , Parker Harris Sarah
Published: March 2016

There is growing concern from disability activists that welfare–to-work (workfare) policies present substantial barriers to participation in the open labor market for people with disabilities. Perceived success of the U.S. workfare policy in reducing government expenditures, however, sparked the Slovak Republic to adopt similar policy. The article explores how the recently implemented workfare system created because of the Slovak National Action Plan on Social Inclusion (NAPS) affects the open labor market participation of people with disabilities. It draws on Nancy Fraser’s theory of social justice to frame injustices in the policies and practices surrounding the Slovak workfare system for people with disabilities. It examines five key areas outlined in the NAPS that directly impact the participation of people with disabilities in the labor market in Slovakia: stigma, accessibility, training, legislation, and supported employment.Keywords: Disability, Slovakia, Workfare, Nancy Fraser, Human Rights
What Wounds Enable: The Politics of Disability and Violence in Chicago
Authors: Ralph Laurence
Published: March 2016

This paper is about what wounds reveal about the diversity among stigmatized groups. My argument is that the focus on mitigating social difference within the disability rights movement has inadvertently served to obscure key distinctions among disabled populations. As evidence for my thesis, I focus this paper on anti-gang forums hosted by disabled ex-gang members. Examining these forums ethnographically—and investigating the argument made by disabled, ex-gang members that their wounds enable them to save lives—allows me to describe some of the contexts in which it becomes politically strategic to inhabit the role of a "defective body" in order to make claims about a violent society.
An Issue of Occupational (In)justice: A Case Study
Authors: Gupta Jyothi
Published: March 2016

Work as in paid employment is a social expectation and brings the benefits of social inclusion, acceptance, and identity. For individuals with disabilities procuring and retaining paid employment is challenging despite progressive legislation such as the Americans with Disabilities Act (ADA). This case study describes the experiences of a person who acquired a disability and its impact on her sense of self, and her place in her social environment. Her experiences are framed using a bio-psychosocial paradigm, and analyzed using the conceptual lens of occupational justice. The centrality of work to one's identity is discussed in the light of challenges to the  implementation of the ADA and employers' attitudes to legislation and individuals with disabilities. A human rights approach to work is needed to identity individual, interpersonal, and organizational strategies to better integrate individuals with disabilities in workplaces. Key Words: Occupational justice; identity; marginalization; attitudinal barriers
University Graduates with a Disability: The Transition to the Workforce
Authors: Gillies Jennifer
Published: March 2016

Critical disability theory asserts that persons with disabilities ought to have equal access to all aspects of social life and key sites of power, including education and employment. Although provincial and federal laws have resulted in increased numbers of persons with disabilities attending university, many of these students will not obtain the jobs they desire upon graduation, nor feel truly accepted and included within the workforce. This exclusion limits their ability to fully participate in society and adds to the perceived ‘burden’ of disability. This study, which involves interviews with 10 university graduates with disabilities as they made the transition from university to employment, examines: (a) their search for meaningful employment, (b) their experience of discrimination, (c) their concerns about disclosing a disability, and (d) how the transition influenced the construction of their identity. Findings suggest that the state of the employment market does not meet the tenets of the critical disability movement. Key Words: Disability; Persons with disabilities; school to work transition; post-secondary education; employment; critical disability theory