Support for informal caregivers
Authors: Anthierens Sibyl , Willemse Evi , Remmen Roy , Schmitz Olivier , Macq Jean , Declercq Anja , Arnaut Catarina , Forest Maxime , Denis Alain , Vinck Imgard , Defourny Noémie , Farfan-Portet Maria-Isabel 
Published: January 2025

APPENDIX REPORT 1 -- TABLE OF CONTENTS 1 -- LIST OF TABLES 6 -- APPENDIX 1. STUDIES ON BELGIAN INFORMAL CAREGIVERS 7 -- APPENDIX 2. OVERVIEW OF THE BELGIAN HOME CARE SYSTEM 12 -- APPENDIX 2.1. THE ORGANISATION OF HOME CARE SERVICES: A FRAGMENTED PICTURE 12 -- APPENDIX 2.2. POLICIES AND SERVICES PARTICULARLY TARGETING/SUPPORTING CAREGIVERS 22 -- APPENDIX 2.3. FINANCIAL CONTRIBUTION FOR CARE GIVERS 23 -- APPENDIX 2.4. FINANCIAL CONTRIBUTION TO DEPENDENT ELDERLY FOR NON-MEDICAL COSTS: -- ZORGVERZEKERING 23 -- APPENDIX 3. INTERNATIONAL COMPARISON 24 -- APPENDIX 3.1. EUROPEAN PROJECTS ON INFORMAL CARE 24 -- APPENDIX 3.2. SCOPING REVIEW OF THE LITERATURE 26 -- APPENDIX 3.3. NATIONAL VALIDATORS 27 -- APPENDIX 4. FLANDERS 28 -- APPENDIX 4.1. INTRODUCTION 31 -- APPENDIX 4.2. PART 1  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE ICG AND RELATION WITH THE DEP 31 -- APPENDIX 4.3. PART 2  CODING OF DATA RELATED TO THE HEALTH STATUS AND OCCUPATION OF THE DEP (2 A OR B) 34 -- APPENDIX 4.4. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) THAT THE ICG AND THE DEP RECEIVE36 -- APPENDIX 4.5. PART 4  CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 36 -- APPENDIX 4.6. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES RECEIVED AT HOME AND OUTSIDE THE HOME FOR THE DEP. 37 -- APPENDIX 4.7. PART 6  CODING OF DATA RELATED TO FORMAL SERVICES USED TO RELIEVE SUPPORT THE ICG 38 -- APPENDIX 4.8. PART 7  CODING OF DATA RELATED TO THE FINANCIAL SUPPORT OF THE ICG 39 -- APPENDIX 5. WALLONIA 42 -- APPENDIX 5.1. INTRODUCTION 42 -- APPENDIX 5.2. PART 1  CODING OF DATA RELATED TO THE HEALTH CONDITIONS OF THE DEP 45 -- APPENDIX 5.3. PART 2  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE -- ICG AND RELATION WITH THE DEP 46 -- APPENDIX 5.4. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) 49 -- APPENDIX 5.5. PART 4  CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 50 -- APPENDIX 5.6. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES RECEIVED BY THE DEP. 54 -- APPENDIX 5.7. PART 6  CODING OF DATA RELATED TO THE FINANCIAL SUPPORT OF THE ICG 57 -- APPENDIX 5.8. PART 7  CODING OF DATA RELATED TO AWARENESS OF THE EXISTING POLICY MEASURES 58 APPENDIX 5.9. PART 8  CODING OF DATA RELATED TO THE WAY THE DEP/ICG BENEFIT FROM EXISTING FINANCIAL MEASURES. 60 -- APPENDIX 5.10. PART 9  CODING OF DATA RELATED TO THE IMPACT/EFFECT OF THESE POLICY MEASURES 61 -- APPENDIX 6. BRUSSELS 63 -- APPENDIX 6.1. INTRODUCTION 63 -- APPENDIX 6.2. PART 2  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE ICG AND RELATION WITH THE DEP 68 -- APPENDIX 6.3. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) THAT THE ICG AND THE DEP RECEIVE 75 -- APPENDIX 6.4. PART 4  CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 75 -- APPENDIX 6.5. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES USED BY THE DEP 79 -- APPENDIX 6.6. PART 6  CODING OF DATA RELATED TO AWARENESS OF THE EXISTING POLICY MEASURES 81 -- APPENDIX 6.7. PART 7  CODING OF DATA RELATED TO THE WAY THE DEP/ICG BENEFIT FROM EXISTING FINANCIAL MEASURES. 83 -- APPENDIX 6.8. PART 9  CODING OF DATA RELATED TO THE IMPACT/EFFECT OF THESE POLICY MEASURES 84 -- APPENDIX 7. FRANCE 87 -- APPENDIX 7.1. INTRODUCTION 87 -- APPENDIX 7.2. PART 1  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE ICG AND RELATION WITH THE DEP 89 -- APPENDIX 7.3. PART 2  CODING OF DATA RELATED TO THE HEALTH STATUS AND OCCUPATION OF THE DEP (2 A OR B) 93 -- APPENDIX 7.4. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) THAT THE ICG AND THE DEP RECEIVE 95 -- APPENDIX 7.5. PART 4 - CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 96 -- APPENDIX 7.6. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES RECEIVED AT HOME AND OUTSIDE THE HOME FOR THE DEP. 98 -- APPENDIX 7.7. PART 6  CODING OF DATA RELATED TO FORMAL SERVICES USED TO RELIEVE SUPPORT THE ICG 102 -- APPENDIX 7.8. PART 7  CODING OF DATA RELATED TO THE FINANCIAL SUPPORT OF THE ICG 104 -- APPENDIX 7.9. CONCLUSIONS 106 -- APPENDIX 8. THE NETHERLANDS 108 -- APPENDIX 8.1. INTRODUCTION 110 -- APPENDIX 8.2. PART 1  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE ICG AND RELATION WITH THE DEP 110 -- APPENDIX 8.3. PART 2  CODING OF DATA RELATED TO THE HEALTH STATUS AND OCCUPATION OF THE DEP (2 A OR B) 115 -- APPENDIX 8.4. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) THAT THE ICG AND THE DEP RECEIVE 116 -- APPENDIX 8.5. PART 4  CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 117 -- APPENDIX 8.6. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES RECEIVED AT HOME AND OUTSIDE THE HOME FOR THE DEP. 118 -- APPENDIX 8.7. PART 6  CODING OF DATA RELATED TO FORMAL SERVICES USED TO RELIEVE SUPPORT THE ICG 120 -- APPENDIX 8.8. PART 7  CODING OF DATA RELATED TO THE FINANCIAL SUPPORT OF THE ICG 121 -- APPENDIX 9. GERMANY 125 -- APPENDIX 9.1. INTRODUCTION 125 -- APPENDIX 9.2. PART 1  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE ICG AND RELATION WITH THE DEP 128 -- APPENDIX 9.3. PART 2  CODING OF DATA RELATED TO THE HEALTH STATUS AND OCCUPATION OF THE DEP (2 A OR B) 133 -- APPENDIX 9.4. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) THAT THE ICG AND THE DEP -- RECEIVE 134 -- APPENDIX 9.5. PART 4  CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 136 -- APPENDIX 9.6. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES RECEIVED AT HOME AND OUTSIDE THE HOME FOR THE DEP. 140 -- APPENDIX 9.7. PART 6  CODING OF DATA RELATED TO FORMAL SERVICES USED TO RELIEVE SUPPORT THE ICG 146 -- APPENDIX 9.8. PART 7  CODING OF DATA RELATED TO THE FINANCIAL SUPPORT OF THE ICG 148 -- APPENDIX 10. LUXEMBOURG 153 -- APPENDIX 10.1. INTRODUCTION 153 -- APPENDIX 10.2. PART 1  CODING OF DATA RELATED TO THE ROLE, EXPERIENCES OF THE ICG AND RELATION WITH THE DEP 155 -- APPENDIX 10.3. PART 2  CODING OF DATA RELATED TO THE HEALTH STATUS AND OCCUPATION OF THE DEP (2 A OR B) 158 -- APPENDIX 10.4. PART 3  CODING OF DATA RELATED TO SUPPORT FROM NON-PROFESSIONAL INDIVIDUALS (FROM FAMILY MEMBERS, FRIENDS) THAT THE ICG AND THE DEP RECEIVE . 159 -- APPENDIX 10.5. PART 4  CODING OF DATA RELATED TO TASKS PERFORMED BY THE ICG 159 -- APPENDIX 10.6. PART 5  CODING OF DATA RELATED TO FORMAL SERVICES RECEIVED AT HOME AND OUTSIDE THE HOME FOR THE DEP 160 -- APPENDIX 10.7. PART 6  CODING OF DATA RELATED TO FORMAL SERVICES USED TO RELIEVE SUPPORT THE ICG 162 -- APPENDIX 10.8. PART 7  CODING OF DATA RELATED TO THE FINANCIAL SUPPORT OF THE ICG 162 -- APPENDIX 11. CASE-TUDY ANALYSIS QUESTIONNAIRES 164 -- APPENDIX 11.1. BASIC QUESTIONNAIRE THE INFORMAL CAREGIVER 164 -- APPENDIX 11.2. BASIC QUESTIONNAIRE ABOUT THE DEPENDENT ELDERLY 166 -- APPENDIX 11.3. SEMI-STRUCTURED INTERVIEW GUIDE FOR INFORMAL CAREGIVER (ICG) LOOKING AFTER A DEPENDENT ELDERLY (DEP) LIVING IN THE COMMUNITY (VERSION 1A) 167 -- APPENDIX 11.4. SEMI-STRUCTURED INTERVIEW GUIDE FOR INFORMAL CAREGIVER LOOKING AFTER A DEPENDANT ELDERLY INSTITUTIONALIZED (1B) 176 -- APPENDIX 11.5. SEMI-STRUCTURED INTERVIEW GUIDE FOR DEPENDANT ELDERLY (DEP) LIVING IN THE COMMUNITY (VERSION 2A) 186 -- APPENDIX 11.6. SEMI-STRUCTURED INTERVIEW GUIDE FOR DEPENDANT ELDERLY (DEP) LIVING IN INSTITUTION (VERSION 2B) 191