bluuebunny/crossref_metadata_2025 huggingface dataset:
The Disability Rights Movement in Germany: History, development, present state
Authors: K Swantje
Published: March 2016

Having gradually emerged during the late 1970s the (West) German Disability Rights Movement was "born" with a big bang in 1981, the UN Year of the Disabled. This paper explores the background from which the movement emerged and describes its subsequent development. From the very beginning, the goals of the movement were the de-medicalization of disability, self-determination, anti-discrimination and equalization, securing disabled people's right to life, integration into the community, and as much control as possible over services for disabled people. After the action-packed year of 1981, the movement settled down to everyday business: A lot of groups started to organize practical help like counseling and assistance services, some individuals decided to get involved in politics, and even others did research on eugenics and bioethics. Quite early in the movement's history disabled women began to form their own "sub-movement," which was quite successful. Recently, Disability Studies and their implementation in the German academic field have become an issue. These "branches" of the movement have sometimes crossed and intertwined, thus forming a strong national Disability Rights Movement. After the reunification of East and West Germany in 1990, disabled people from the former German Democratic Republic (GDR) joined the already existing movement.
Self-Determination: The other side of the coin. Reflections on a central but ambiguous term of the German Disability Rights Movement
Authors: Maskos Rebecca , Siebert Birger
Published: March 2016

Since its beginning, independent living has been a crucial demand of the German Disability Rights Movement. The call for independent living and the refusal of its opposite, heteronomy, is the focal point of its critique. Disabled people realized that the way in which disabled people are treated in terms of social policy and of personal care is a form of discrimination and not a natural outcome of their "fate". This insight enabled people with disabilities to claim independent living as a form of liberation. This article sheds light on a critical maxim of the German Disability Rights Movement, its merits and shortcomings, and uses the example of labor and employment as a means for examining its significance.
The Exorcism of Emily Rose
Authors: Church David
Published: March 2016

No abstract available
Encyclopedia of Ageism
Authors: Cruse Michael R.
Published: March 2016

No abstract available
The Story of My Life: An Afghan Girl on the Other Side of the Sky
Authors: Knoll Kristina R.
Published: March 2016

No abstract available
Lest We Forget [CD]
Authors: Marchbank Paul
Published: March 2016

No abstract available
Blindsided. Lifting a Life Above Illness. A Reluctant Memoir
Authors: Nicholson C. Brid
Published: March 2016

No abstract available
Are Disability Images in Advertising Becoming Bold And Daring? An Analysis of Prominent Themes in US and UK Campaigns
Authors: Haller Beth A. , Ralph Sue
Published: March 2016

Advertisements featuring disabled people have become more noticeable in the United States (USA) and Great Britain/United Kingdom (UK) in the last decade. The focus of this article is to qualitatively analyze a selection of these advertisements since 1999 to understand how disability currently is being used within advertising messages. The goal of the analyses are to understand whether advertising images remained static in their messages or are expanding their messages to show a variety of disability images. The findings revealed that some improvements have occurred in advertising images of disability, such as the themes of empowerment (Cingular) and the themes of disability pride and inclusion (Doritos, Marks & Spencer, and HSBC). However, several ads still embrace antiquated themes that continue to stigmatize disabled people, such as the Nuveen, HealthExtras, and Bank of America ads. These themes convey underlying messages that disabled people are broken and in need of repair, are awash in tragedy, or are Supercrips, who are put on pedestals for just living their lives.
"One lady was so busy staring at me she walked into a wall": Interability Relations from the Perspective of Women with Disabilities
Authors: Ostrove Joan M. , Crawford Danette
Published: March 2016

Psychology research and intervention in intergroup relations has been largely influenced by Allport's (1954) contact theory. Intergroup attitudes in the domain of disability have also been well established. These research areas, however, tend not to take into account the perspective or experiences of target group members. The current research attempts to take such an insider's perspective (Oyserman & Swim, 2001). This study presents data from in-depth interviews with 19 women with disabilities who were asked to describe the qualities of negative and positive interactions and relationships with non-disabled people. The women reported being treated with condescension and pity in their general interactions with non-disabled people. While many of the interviewees had difficulty thinking of specific positive interactions with non-disabled people in their day-to-day lives, they could easily enumerate the qualities of such interactions: eye contact was made and maintained, tone of voice was not condescending, non-disabled people were respectful and knowledgeable.
Editors' Introduction
Authors: Hendershot Gerry E. , Eiesland Nancy L.
Published: March 2016

No abstract available
Saving the Wretched of the Earth
Authors: Betcher Sharon V.
Published: March 2016

In this essay, I consider biblical and theological representations of the physics of Spirit, including miracles, if also the politics of compassion, as related to bodies exhibiting disabilities. Christianity has shaped its understanding of divine power and, consequently, its social mission upon the dynamic trajectory it has read into miracle stories. And miracle stories, modern Christianity has assumed, obviously pivot upon the disabled body. I extend my range of concern to address how the modern template of normalcy and its contrary, degeneracy, have been deployed as maps of western Christianity's social mission. By concentrating on our reading of biblical theologies, especially our reading of Jesus as one with the monolithic power of Spirit to heal the blind, the cripple, the outcast, I attempt to deconstruct theology's psychic cathection to normalcy. I consider whether particular colonizing optics are still at work in today's most popular Christological proposals, the so-called "historical Jesus" portraits of Marcus Borg (1987) and John Dominic Crossan (1992). The essay concludes by suggesting another way of reading the miracle texts so as to disturb the optics of modern realism, especially their social effects
Body Invaluable
Authors: Smith Gena
Published: March 2016

No abstract available
The Social Medicine Reader
Authors: Ben-Moshe Liat
Published: March 2016

No abstract available
Disability Culture Poetry: The Sound of the Bones. A Literary Essay
Authors: Kuppers Petra
Published: March 2016

This essay looks for myths in disability culture poetry, and uses this lens, searching for different and welcoming spaces, countries, bodies and songs, to look at two questions: what does poetry do for crip culture? And what does crip culture do for poetry? Through close readings of poems by Jim Ferris and Philip Dowd, new lands emerge, and Neil Marcus's Disabled Country comes into view. The essay frames this discussion through a poetry banquet, held as part of a disability culture course at the Institute for Medical Humanities, UTMB, Galveston, Texas.
Hamlet
Authors: Kornhaber David
Published: March 2016

No abstract available
Radical History Review 94
Authors: May Martha
Published: March 2016

No abstract available
Too Late to Die Young and Accidents of Nature
Authors: Basas Carrie Griffin
Published: March 2016

No abstract available
Encounters with the Invisible. Unseen Illness, Controversy, and Chronic Fatigue Syndrome
Authors: Parry Manon S.
Published: March 2016

No abstract available
Community Disability Services: An Evidence-Based Approach to Practice
Authors: Subban Pearl
Published: March 2016

No abstract available
The Remains of War: Bodies, Politics, and the Search for American Soldiers Unaccounted For in Southeast Asia
Authors: Wu Cynthia
Published: March 2016

No abstract available
Review of Elegy for a Disease: A Personal and Cultural History of Polio
Authors: Smith Sarah
Published: March 2016

No abstract available
Get Around Guide
Authors: Hillock Darren
Published: March 2016

No abstract available
Making Connections: Linkages Through Disability Blogging
Authors: Olson/ Blue Kay
Published: March 2016

No abstract available
In Other Words: The radical nature of telling stories through blogging
Authors: Verlager Alicia "Kestrell"
Published: March 2016

No abstract available
Physical Disabilities and Food Access Among Limited Resource Households
Authors: Webber Caroline B. , Sobal Jeffery , Dollahite Jamie S.
Published: March 2016

Food is a basic need of all people. The degree to which people have access to food influences food choice, quality of life, health, and illness. We examined how physically impaired and disabled food shoppers from low-income households managed food provision for their families and the impact health and physical disabilities had on family food choice among those with limited resources. This qualitative study examined food access among 28 low-income rural, village, and inner city families in upstate New York selected by purposive and theoretical sampling. An unanticipated finding emerged that nearly one-half of participants, all primary grocery shoppers for their families, had a variety of health conditions and disabilities that limited food access and, in turn, healthy, affordable food. These findings suggest that physical abilities, agency, and context interact in food access.
Food and the Social Identities of People with Learning Disabilities
Authors: Davies Charlotte Aull
Published: March 2016

The behaviors surrounding food provision and consumption provide subtle, yet fundamental ways of defining social identities and structuring social relationships. The food consumption patterns of young adults with learning disabilities, and the control over their food consumption exercised by others, define them as 'children' even though they are physically and chronologically adults. These food-based behaviors contribute to the difficulties they face in achieving full social adulthood and thereby accentuate stigmatizing aspects of their social identities. Unsurprisingly, in some cases food becomes an area of conflict between these young people and their caregivers. Food provision also highlights a dilemma of the philosophy of care based on normalization theory, namely that actions taken to encourage age-appropriate behavior, and hence promote social adulthood in one sphere, may undermine adult identity in another. The paper is based on 18 months of participant observation and interviews with young adults with learning disabilities and their caregivers.
"Fat, Furious, and Forever Wanting Food": Prader-Willi Syndrome in Major Newspapers, 2000-2005
Authors: Jones Karyn Ogata , Smith Margaret R.
Published: March 2016

This study examines media representations of persons with Prader-Willi syndrome (PWS), a rare, complex condition caused by an error on Chromosome 15. Articles appearing in major U.S. and international newspapers from January, 2000 to December, 2005 were included in the study (N = 68). Findings show that while some stories portrayed the syndrome in a more positive light, most reports were overwhelmingly negative or mostly negative, focusing on severe issues related to food-seeking behaviors, obesity, cognition, and behavior. Common stereotypes used to portray persons with PWS aligned with those often used to describe persons with disabilities and obese persons, even in the stories coded as positive or mostly positive. In the more negative portrayals, the obesity or "eating disorder" of the person with PWS was often a focus, illustrating the stereotype of the fat person as deviant. Some overall trends and patterns in U.S. versus international news outlets were also observed.
Cultural Commentary: What is it With All the Napkins?
Authors: Finger Anne
Published: March 2016

No abstract available
Review of The Omnivore's Dilemma: A Natural History of Four Meals
Authors: Basas Carrie Griffin
Published: March 2016

No abstract available
Review of Petra Kuppers, Scar of Visibility: Medical Performances and Contemporary Art
Authors: Stuckey Zosha
Published: March 2016

No abstract available
Review of John Terpstra, The Boys: Or, Waiting for the Electrician's Daughter.
Authors: Miceli Michael G. , Steele Jason K.
Published: March 2016

No abstract available
The State of Disability in Israel/Palestine: An Introduction
Authors: Ben Moshe Liat , Colligan Sumi
Published: March 2016

No abstract available
'Tell My Sister to Come and Get Me Out of Here': A Reading of Ableism and Orientalism in Israel's Immigration Policy (The First Decade)
Authors: Mor Sagit
Published: March 2016

In this article, I suggest a new reading of Israeli immigration policy as it existed during its first decade, by highlighting the fundamental role that disability played in its formation. Despite the popular image of Israel as a state of refuge for all Jews, its history reveals that immigration of Jews to Israel was regulated through screening policies and rules. Economic and practical considerations were mixed with ideological biases in favor of productive immigrants that fit the goals of Zionism, and against the sick, the old, and the disabled who were assumed to be inherently unproductive and dependent. Disability was not only a reason to exclude some groups from the Zionist project, but also a justification for screening others — a metaphor through which other social groups were rendered useless and inferior. In Israel, it was used to restrict Mizrahi immigrants who arrived from Arab and Muslim countries, in particular, immigrants from Morocco. Through the case of Israeli immigration policy, the article highlights a hidden part of Israel's history and also explores the ways in which social groups are demeaned and ostracized through images of disability, and how these images have operated as badges of inferiority.
The Challenges and Rewards of Parenthood: Experiences of Disabled Parents in Israel
Authors: Gutman Carolyn
Published: March 2016

Research about disabled adults has tended to focus on the employment role as holding the promise for full integration. Moreover, when the discourse has addressed familial roles such as parenting, the extant literature has been grounded in a medical model of disability and highlights the perceived incompetence of disabled parents and their parenting practices. This article presents an overview of research about people with disabilities in their parenting role. It then addresses the cultural meaning of parenthood within the unique socio-political context that exists in Israel and reports on the major findings of a qualitative study that explored the parenting experiences of people with vision impairment. Important themes that resonated throughout the study interviews include the discriminatory attitudes and practices that these parents faced while navigating the parenting role as well as issues of independence and autonomy. These findings are discussed against a socio-political backdrop of disability that characterizes contemporary Israeli society.
Disability Politics in Israel: Civil Society, Advocacy, and Contentious Politics
Authors: Rimon-Greenspan Hila
Published: March 2016

Until the late 1990s, Israeli legislation had focused largely on the distribution of disability allowances and benefits, rather then on disability rights. Since then, owing largely to the efforts of the Bizchut organization and to two national disability protests in 1999 and 2001, Israeli disability policy and legislation have gradually shifted from a needs-based to a human rights and equality-based platform. Using Beck's (1994) theory of subpolitics, I analyze the emergence of disability rights advocacy and protestation, and their role in bringing about policy and legal changes in Israel. I argue four connected points: that Israeli disability politics demonstrate how civil society actors can advance change: that the activism of these actors, Bizchut and the two protests, is interconnected and mutually empowering; that these events represent the rise of the disability community as a legitimate and active social actor; and that these events constitute an Israeli visibility project and are crucial for advancing both disability rights and needs.
Reflections on an Effort to Develop a Cross-Disability Consciousness Inclusive of People with Psychiatric Disabilities
Authors: Sykes Israel , Menashe Eyal , Lazerwitz Elliot , Vlodavsky Ayala , Zaga-Shabbat Limor
Published: March 2016

While cross-disability consciousness developed in the United States and England in the 1970's, a similar consciousness failed to emerge in Israel until the late 1990s. Furthermore, even in countries with a long history of cross-disability collaboration, there is a tendency for people with psychiatric disabilities to remain excluded from the ensuing disability community. The present article had its origins in the course "From Personal Coping to Social Responsibility: Leadership Training for Social Change for People with Disability," initiated and funded by the Disability Rights Commission in Israel, and developed and implemented by Shatil, the Empowerment and Training Center for Social Change Organizations. An explicit goal of the course was the development in Israel of a cross-disability consciousness inclusive of people with psychiatric disabilities. In the present article, three course graduates and the course facilitators reflect upon the insights that emerged from the cross-disability discourse generated among participants, during the course and in the course, of joint writing about the course. Special emphasis is given to the dynamics and effects of the inclusion of a large sub-group of people with psychiatric disabilities in the cross-disability group.
"Environmental Justice" and Persons with Disabilities in Israel
Authors: Feldman Dina
Published: March 2016

The decades of unsuccessful efforts to legislate and implement legislation in the area of accessibility for persons with disabilities in Israel have shown that in order to promote a social, geographical, ecological revolution in the lives of persons with disabilities there is a need for a relevant, attractive conception and language that will enable the Israeli society to make a paradigm shift in this matter. This article introduces the concept of "environmental justice", which was defined in the 1998 Aarhus Convention, as a meta-conception that might be helpful to advance its three main components pertaining to disability: 1) the right to environmental accessibility; 2) the right to information about citizens' rights; and 3) the right to take part in the decision-making process. This article describes how the three components of the "environmental justice" concept are presented in the UN Convention on the Rights of Persons with Disabilities and in the local legislation and implementation thereof in Israel, with an emphasis on the decisive contribution of the Equal Rights of Persons with Disabilities Law, 5758 — 1998. This article shows that Israeli society has already acknowledged the importance of the concept in legislation and through active participation by policy makers, organizations, and planning professionals a new vision of an accessible reality is being formed. However, Israel is still in the initial stages of implementation. Key elements and factors that will increase the probability of making this environmental-justice revolution happen include: the existence of an international convention; relevant new and comprehensive legislation and conceptions; an Israeli Equal Rights Commission; and an active civil society and committed urban planners
An International Comparison of Pre-service Teacher Attitudes towards Inclusive Education
Authors: Forlin Chris , Sharma Umesh , Loreman Tim
Published: March 2016

education of pre-service teachers in teacher training institutions in four different countries: Australia, Canada, Hong Kong, and Singapore. Using the Attitudes Towards Inclusive Education Scale (Wilczenski, 1995) and a series of demographic variables, this study concludes that pre-service teachers' attitudes towards inclusive education differ between countries across three factors which have been labeled academic and physical, social, and behavioral. Pre-service teachers in this sample are most positive about including students with social concerns. An examination of the items in this factor revealed that these issues, such as shyness, would rarely require immediate intervention and large amounts of extra time and effort on the part of the teacher in the same way that the behavior factor would, which rated low in terms of positive attitudes internationally. Demographic variables which can be emphasized by teacher training institutions such as close contact with a person with a disability, training, teaching experience, knowledge of policy and law, and confidence levels, all had a significant impact on attitudes. This paper argues that teacher training institutions should consider for inclusion in their programs practical experiences with inclusive education in positive and supportive environments, opportunities for students to experience success and reflection, and academic content regarding knowledge of policy and law relating to inclusive education.
Defining Abuse: A Study of the Perceptions of People with Disabilities Regarding Abuse Directed at People with Disabilities
Authors: Gandhi Sampada , Palermo Denise Goobic , West Bernadette
Published: March 2016

While abuse in the literature has been defined by researchers and providers as physical, sexual, emotional, and financial abuse and neglect, it is not clear how persons with disabilities (PWD) define abuse and who they see as likely abusers. This paper explores the issue of abuse with PWD themselves. It asks about the types of behaviors identified as abusive and who PWD see as likely abusers. Six focus groups were conducted with members of NJ self-advocacy groups. While PWD defined abuse using traditional categories, they also provided examples of situations involving infringement of rights. Perpetrators were more likely to be known rather than unknown and, very often, were family members. Our findings suggest the importance of exploring critical issues such as abuse with affected populations themselves. The findings also suggest the need for self-advocacy training and training for family members, caregivers and criminal justice personnel. KEY WORDS: Disabilities, abuse.
Robert McRuer. Crip Theory: Cultural Signs of Queerness and Disability
Authors: Bennett Alina
Published: March 2016

No abstract available
Editors' Introduction
Authors: Danforth Scot , Brueggemann Brenda
Published: March 2016

No abstract available
'Mentally Defectives' Not Welcome: Mental Disability in Canadian Immigration Law, 1859-1927
Authors: Chadha Ena
Published: March 2016

This paper examines the history and language of Canadian immigration statues and House of Commons debates regarding immigrants with mental disabilities from the time of Confederation to the 1920s. This paper posits that a study of the historical language and legal frameworks regarding immigrants with mental "disorders" illuminates the myriad of social prejudices about mental disability that have persisted in Canada. The early 20th century laws and House of Commons debates indicate that the exclusion of immigrants with mental disabilities was a deliberate decision on the part of legislators to ensure the proper "character" of immigrants coming to Canada. This paper argues that the representation of mental disability in early immigration legislation, particularly in the context of the growing influence of the field of psychiatry, reveals the historical pervasiveness of social misunderstandings of mental disability.
The Legacy of a Story: Commemoration and the Double-Narrative of Jeffrey Arenburg and Brian Smith
Authors: Walker Jennifer
Published: March 2016

This article examines a recent amendment to Ontario's mental health legislation that was named "in memory" of Brian Smith, a local television personality killed by Jeffrey Arenburg, a person diagnosed with a mental illness. Rather than evaluating the socio-legal validity of "Brian's Law", it critically attends to the emergent "narrative of commemoration" that helped consolidate collective memory of the event. The genesis of the legislation is traced through public documents that support the "storying" of the murder, inquest, and legislative debate, including the "mythologizing" of Smith and the derisive story of Arenburg. Both representations are essential to the social and political efficacy of this "double-narrative" and the formal process of commemoration. The "legacy" of Brian Smith as exemplar of moral and social responsibility depends upon the alternative public conception of Arenburg, as mentally ill and morally ambiguous. Essentially, this narrative reaches beyond individual experience, and even social memory, and becomes enshrined in law as institutional memory.
Social Movement Diffusion? The Case of Disability Protests in the US and Canada
Authors: Barnartt Sharon N.
Published: March 2016

This paper asks if disability protests in Canada diffused from similar protests in the US or if they sprang up independently. It analyzes 1215 American protests and 177 Canadian protests which occurred between 1970 and 2005. It shows that Canadian protests began later than protests in the US, are more likely than American protests to be impairment-specific, are more likely to have demands in which focus on services as opposed to rights and are more likely to target provincial governments. Explanations include the effect of several notable protest successes and the development of multiple-impairment, single-issue organizations in the American context, and the social structure of disability services at the local or provincial levels in the Canadian context. The paper concludes that Canadian protests did not occur because of American protests or diffuse from them.
Collaboration in the Marriage Relationship among Persons with Disabilities
Authors: Schulz Celia H.
Published: March 2016

This study reports on a subset of data obtained from a larger study. A qualitative study of persons with disabilities was conducted to examine the phenomenon of collaboration with others in their lives. Participants were administered two semi-structured in-person interviews about their experiences with collaboration. Each of the participants were then observed as they collaborated with others in their lives in two participant observation sessions. Since not all participants were married, selected data relevant to the marriage collaboration from interviews and participant observation sessions of a subgroup of four married study participants were then isolated and coded using open coding analysis. Accuracy of data was insured through the use of triangulation via multiple coders and member checking. The analyzed data fell into five large categories: 1) Practical Considerations; 2) Collaboration on Occupation; 3) Structures and Patterns of Collaboration; 4) Social Considerations; and 5) The Qualities that Make the Marriage Collaboration Exceptional. Data indicated that study participants collaborated with their spouses in a variety of ways over time and that there were qualities in their collaborations with their spouses which indicated a high level of mutual respect and love. Some unique issues in the marriage collaboration for people with disabilities also emerged, such as feelings of imbalance in the contributions to the marriage regarding physical tasks, a need for alone time or -conversely- a fear of being alone.
Staff and Consumer Attitudes toward Integration of Persons with Psychiatric Disability into the Community
Authors: Duvdevany Ilana
Published: March 2016

In the last two decades, we have witnessed a significant change in the quality of life and social participation of people with psychiatric disabilities. This article examines staff's and consumers' attitudes toward inclusion of persons with psychiatric disabilities, to understand whether the two groups see eye to eye regarding this important goal. The sample included 88 persons with psychiatric disabilities living in six community settings in the north of Israel, and their 54 direct and supervising staff. The findings showed that the two groups had similar favorable attitudes toward inclusion, except in the empowerment factor, where consumers' attitudes were more favorable. In addition, professional staff showed more positive attitudes toward inclusion than non-professional direct staff.
Cultural Commentary: Framing Disability in Manhattan's Museum of Sex
Authors: Connor David J.
Published: March 2016

No abstract available
The Ins and Outs of Science (essay)
Authors: Chopan Jon
Published: March 2016

No abstract available
Savarese, Ralph James. Reasonable People: A Memoir of Autism and Adoption.
Authors: Gabbard Chris
Published: March 2016

No abstract available
Control
Authors: Saker Michael
Published: March 2016

No abstract available
Poems
Authors: Kafai Shayda
Published: March 2016

Title(s): Unremitting Behavior, Voice for the Body, Sin-eater

Shayda Kafai is completing her master's thesis at California State University Northridge, where she co-founded the Scribbling Poets, a group that brings nondisabled and disabled communities together through art (www.scribblingpoets.com). In the fall, she will begin doctoral work in cultural studies at Claremont Graduate University.
Poems
Authors: Kuppers Petra
Published: March 2016

Title(s): Crip Time, disabled lilacs

Petra Kuppers is a disability culture activist, community artist, and associate professor of English at the University of Michigan. A poetry collection co-written with Neil Marcus, Cripple Poetics: A Lovestory, with photos by Lisa Steichmann, is forthcoming from Homofactus Press in summer 2008. Kuppers is the author of Disability and Contemporary Performance: Bodies on Edge (Routledge, 2003), The Scar of Visibility: Medical Performances and Contemporary Art (University of Minnesota Press, 2007) and Community Performance: An Introduction (Routledge, 2007).
Poem
Authors: Moolman Kobus
Published: March 2016

Title(s): ANATOMY, a sequence containing The Hand, The Foot, The Foot (the other one), The Shoulder, The Foot Re-Visited, and The Wrist,

Kobus Moolman has published three collections of poetry and two plays. He has won numerous awards both locally and internationally for his work. He teaches creative writing at the University of KwaZulu-Natal in Durban, South Africa.
Poem
Authors: Price Margaret
Published: March 2016

Title(s): Glass

Margaret Price is assistant professor of writing at Spelman College. Her poetry, articles, and essays have appeared in Breath & Shadow, Wordgathering, College Composition and Communication, Across the Disciplines, and Bitch: Feminist Response to Pop Culture. She is at work on a book about psychosocial disability and academic discourse.
Poem
Authors: Wedge Philip
Published: March 2016

Title(s): Dandy-Walker Syndrome

Philip Wedge is assistant professor of English at the University of Kansas and poetry editor of Cottonwood Magazine and Press. His work has appeared in American Scholar, Stone Country, High Plains Literary Review, Amelia, and Aethlon: the Journal of Sport Literature, among others. His chapbook, Slowly Along the Riverbeds, was published in Coal City Review.
Spaced Out in the City: The Wrinkled World of Transit for Those with Limited Mobility
Authors: Koch Tom
Published: March 2016

The problem of urban accessibility for persons with mobility restrictions has been for some years a subject of discussion both within academic communities and communities of physically restricted transit users. Some have argued the issue lies within the spaces created by those whose experience of the city is dependent on transit rather than automobile use, or who use wheelchairs rather than walk. This paper attempts to advance what has been a largely experiential literature into a more sustained argument that develops a program to describe the altered spaces created by different transit modalities for users with different abilities. With a review of the literature it begins with the author's own experience and the means by which it led to a new transit initiative focused upon surface analytics in transit analysis rather than a more traditional mode of consideration.
Darwin's Use of Intellectual Disability in The Descent of Man
Authors: Gelb Steven A.
Published: March 2016

When Charles Darwin turned his attention to writing about human descent in 1871 he attempted to narrow the fossil gap between human beings and higher primates by presenting persons with intellectual disabilities — "idiots" in the language of the day — as evidence in support of the theory of evolution. This paper explores the four ways that Darwin used persons with intellectual disabilities in The Descent of Man: 1) as intermediate rung on the evolutionary ladder connecting humans and primates; 2) as exemplars of the inevitable waste and loss produced by natural selection acting upon variability; 3) as the floor of a scale representing the "lowest", most unfit variety of any species when individuals were rank ordered by intelligence; and 4) as atavistic reversions to extinct forms whose study would reveal the characteristics of earlier stages of human evolution. Darwin's strategic use of intellectual disability is brought to bear on the controversy regarding the mental state of Darwin's last child.
Calls and Announcements
Authors: Danforth Scot , Brueggemann Brenda
Published: March 2016

added to list of CFPs and upcoming special topics -- possibly publication as distinct item not needed?
Three Poems
Authors: Wolfe Kathi
Published: March 2016

Kathi Wolfe is a poet and writer. She was a finalist in the 2007 Pudding House Press Chapbook Competition. Her chapbook
Helen Takes the Stage: The Helen Keller Poems
was published in 2008 by Pudding House Press. Wolfe's poetry has appeared in
Wordgathering
,
Breath & Shadow
,
Gargoyle
,
Potomac Review
,
Beltway Poetry Quarterly
and other publications. She has read at the Library of Congress Poetry at Noon Series and appeared on the public radio show "The Poet and the Poem."
Introduction: Disability and History
Authors: Jennings Audra
Published: March 2016

No abstract available
Disability and the Academic Job Market
Authors: Rose Sarah F.
Published: March 2016

No abstract available
"I Don't Think I'm the Right Person For That": Theoretical and Institutional Questions about a Combined Credential Program
Authors: Young Kathryn
Published: March 2016

This qualitative study explores the relationship between state licensure and preservice teachers' pedagogical and theoretical boundaries pertaining to elementary education, mild/moderate disabilities, and moderate/severe disabilities. It uses data from interviews with 18 preservice teachers after one year in a combined (elementary and special education) credential program. Findings indicate views about the students preservice teachers are willing to teach relate to concerns about control over disabled bodies, pity about the perceived limitations of disabled students, and issues of teacher and student responsibility. These findings map onto state level divisions in teacher credentialing. The findings in this paper lead to implication for teacher preparation, policy development and hopes for inclusive practices.
Two
Authors: Cole Catherine
Published: March 2016

"Two" is a short tale about a big story, a creative answer to the well-worn question, "What happened to you?" It is also a poetic meditation on duplicity, loss, and discovery — discovery that one has a body just as it begins to disappear.
The Nature of Risk: HIV/AIDS and the Deaf Community in the United States
Authors: Moinester Margot , Gulley Steve , Watson Samantha
Published: March 2016

In this paper, a sociopolitical perspective is applied in order to explore why individuals in the U.S. who are Deaf are disproportionately vulnerable to HIV infection. An analysis of the social, political, and attitudinal environments surrounding people who are Deaf reveals numerous barriers that may hinder access to sexuality education and HIV prevention programs. Recommendations for policy and practice that are grounded in a well-informed understanding of the roots of Deaf oppression in American society are offered.
Disability and Gender in Ken Kesey's One Flew Over the Cuckoo's Nest
Authors: Leach Caroline , Murray Stuart
Published: March 2016

This essay explores the themes of disability and gender in Ken Kesey's One Flew Over the Cuckoo's Nest. The novel's portrayal of mental disability is found to be impressive in its avoidance of stereotypes through the representation of its characters as individuals, rather than merely characterizing symptoms of mental disorders. In exploring the novel's investment in individual characters, however, it becomes clear that within the novel, disability and emasculation are intrinsically linked. This creates something of a patriarchal undercurrent to the text: Nurse Ratched's control is a direct result of her continual emasculation and her de-feminized domination of the all-male patients. In contrast, McMurphy, the infamous anti-hero of the text, is celebrated as a liberator despite having been committed for rape. These portrayals of the main characters seem ultimately representative of a troubling message in the novel: that a matriarchy abolished can be a satisfactory conclusion to the plot, and further, is seen as a cure for the patients' mental illnesses.
Resistance Training: Re-reading Fat Embodiment at a Women's Gym
Authors: Shalma Margaret , Michalko Professor Rod
Published: March 2016

This paper uses feminist disability studies to explore the discursive production of fat embodiment within contemporary Western society. I examine beauty and medicine as fields of knowledge which create and sustain bodily norms, representations and practices. Specifically, I examine the representation of women's (fat) embodiment through an analysis of the promotional material at a well-known women's gym. I show that this gym implicitly references wider health discourses to characterize fatness as pathology, thereby requiring intervention through physical fitness to return the body to normality. Through this analysis, I demonstrate that fatness is not a value neutral embodiment but is socially produced. By bringing together disability studies and fat studies, I highlight the importance of interdisciplinary dialogue, and reveal how different forms of oppression and discourse interlock to create normative understandings of embodiment. I argue that by re-reading fatness we can resist these normative demands and begin to imagine ways of desiring embodied difference.
Tobin Siebers, Disability Theory
Authors: Davidson Michael
Published: March 2016

No abstract available
Carol Poore, Disability in Twentieth-Century German Culture
Authors: Powell Justin J.W.
Published: March 2016

No abstract available
Calls for Papers and Announcements
Authors: Brueggemann Brenda , Danforth Scot
Published: March 2016

No abstract available
Introduction
Authors: Lang Raymond , Kett Maria
Published: March 2016

No abstract available
The Contextual and Cultural Barriers to Equity and Full Inclusive Participation for People Labeled with Disabilities in Bangladesh
Authors: Foley Dermot
Published: March 2016

Reviewing scholarship on the complex relationships between disability and poverty present in Bangladesh’s economy, micro-finance industry, poverty reduction strategy papers (PRSP) and laws, I explore how perspectives about disability exacerbated the problems and further disadvantaged people labeled with disabilities. Bangladesh has undergone economic, political and infrastructural change resulting in growth, yet the disparity in wealth between rich and poor is growing. The economic opportunity of an increasing non-farm labor force in Asian countries is a reality but who gets those opportunities now is limited to those without disabilities and, in some cases, without family members with disabilities. Attempts to assist those in poverty and labeled with a disability or having a family member labeled with a disability through micro-credit programs are often mired because lenders do not factor the greater cultural mechanisms of discrimination and, hence, they are not being constructively dealt with. Community based rehabilitation began in Bangladesh in the late 1980s; it was largely disability focused, served urban areas, and its theoretical orientation limited insight and opportunities to more effectively serve people labeled with disabilities. Finally, Bangladesh’s poverty reduction strategy papers and anti-discrimination laws have ignored issues of discrimination and stigma while providing limited participation from the community.
A Teacher’s Deconstruction of Disability: A Discourse Analysis
Authors: Kang Jong-Gu
Published: March 2016

In this study I use critical discourse analysis to explore how one special education teacher who is informed by a sociocultural perspective of disability deconstructs disability in the way that she talks about her practice as a special educator and about her work with students who are labeled as having disabilities. By analyzing her discourse, I reveal the positioning of the teacher in relation to her school and show the importance that language plays in constructing and deconstructing disability, knowledge, and power.
Penny Amerena and Tanya Barron, eds. Disability and Inclusive Development
Authors: Dingo Rebecca
Published: March 2016

No abstract available
Tanya Titchkosky, Disability, Self, and Society
Authors: Hossein Sazzad
Published: March 2016

No abstract available
Women Wheelchair Athletes: Competing against Media Stereotypes
Authors: Hargreaves Jean Ann , Hardin Brent
Published: March 2016

This study explored the attitudes and perceptions of 10 women wheelchair athletes about sports media by soliciting their opinions and concerns using both mainstream and disability print and web-based sport media. Using the "auto drive" technique for qualitative data collections, the analysis revealed three themes: (a) the participants were consumers of both mainstream and disability print media; (b) they were tired of the media stereotypes; (c) they believed that the media is partially responsible for the lack of coverage of women and individuals with disabilities in sports media as a whole. Within each of these three themes, several sub-themes emerged. Although this study was limited to female wheelchair athletes analyzing web-based and print media, the themes can provide a basis for the analysis and future study in the rising area of sports media research as it relates to females and individuals with disabilities.
Services Requested and Received by Consumers with Chemical Sensitivities at the Centers for Independent Living
Authors: Gibson Pamela Reed , Suwal Sahisna , Sledd Lauren G.
Published: March 2016

This paper presents results from surveys of 41 persons with environmental sensitivities (ES) who requested help from Centers for Independent Living (CIL), primarily in the U.S. The most common requests were for help with safe housing, employment services, and application for SSDI. Consumers with ES encountered multiple problems not only with receiving services, but also simply with "getting in the door," as many centers were not equipped to understand or serve persons with chemical or electromagnetic sensitivities. We present suggestions from respondents for improved access and service for this population and for training of CIL advocates.
Say cheese
Authors: Pickens Ther
Published: March 2016

No abstract available
Diane Driedger and Michelle Owen (Eds.). Dissonant Disabilities: Women with Chronic Illnesses Explore Their Lives.
Authors: Vick Andrea
Published: March 2016

No abstract available
Paul Lombardo. Three Generations, No Imbeciles: Eugenics, The Supreme Court, and Buck V. Bell.
Authors: Burch Susan
Published: March 2016

No abstract available
Examining Types of Fatigue Among Individuals with ME/CFS
Authors: Jason Leonard , Jessen Tricia , Porter Nicole , Boulton Aaron , Gloria-Njoku Mary
Published: March 2016

Severe, persisting fatigue is a prominent symptom of Myalgic Encephalomyelitis/chronic fatigue syndrome (ME/CFS), but individuals with this illness frequently report the occurrence of unique fatigue states that might be different from conventional symptoms of fatigue. The present study attempted to assess a comprehensive set of fatigue symptoms that have been commonly reported among patients with ME/CFS. A 22-item fatigue questionnaire was developed and administered to 130 persons diagnosed with ME/CFS and 251 controls. Adequate scale reliability was found. Factor analyses revealed a five-factor structure for participants with ME/CFS but only a one factor solution for the control group. The new scale was also contrasted with other more traditional scales developed to measure fatigue. Findings suggest that individuals with ME/CFS experience different types of fatigue than what are reported in the general populations.
Multinational Review of English Language Disability Studies Degrees and Courses
Authors: Cushing Pamela , Smith Tyler
Published: March 2016

This article provides a longitudinal account of the growth of disability studies (DS) as an academic field, focusing on DS degrees and courses in the United States, Canada, the United Kingdom, Australia, and New Zealand. We discuss emerging patterns in the field including the disciplines where DS is commonly housed. The data tables can be revised as the field evolves. We found that the field is expanding at an exponential rate with three key dimensions of growth: independent DS departments, hybridization with applied disciplines, and integration within the liberal arts. In our analysis, we highlight various questions that call for further dialogue and debate.
Terry Galloway. Mean Little Deaf Queer: A Memoir. Boston: Beacon Press, 2009.
Authors: Killacky John R.
Published: March 2016

No abstract available
Paul Guest. My Index of Slightly Horrifying Knowledge. New York: Ecco Press, 2008.
Authors: Lambeth Laurie
Published: March 2016

No abstract available
Table 2: Schools with Disability Studies Degrees
Authors: Cushing Pamela , Smith Tyler
Published: March 2016

No abstract available
Review of Staring: How We Look
Authors: Kuusisto Stephen
Published: March 2016

no abstract available
“My Journey Across Ridges”: An Interview with Theodoto Ressa
Authors: Ressa Theodoto
Published: March 2016

no abstract available
Bringing Back the Baby Lion: Reflections on the Conference on Disability, Culture, and Human Rights
Authors: Lupo Marian E
Published: March 2016

no abstract available