bluuebunny/crossref_metadata_2025 huggingface dataset:
Rare diseases and mental health in the UK - a quantitative survey and multi-stakeholder workshop
Authors: Spencer-Tansley Rosa , Meade Nick , Ali Farhana , Simpson Amy , Hunter Amy
Published: December 2019

Background: Rare disease patients and carers report significant impacts on mental health but this has not been extensively studied. We explored the experiences of UK-based individuals through an online survey, and offer recommendations for policy and practice developed with a multi-stakeholder workshop.Results: In total 1,355 patients and 571 carers responded to the survey. Due to their rare condition, the majority of respondents had felt worried/anxious (95%); stressed (93%); low/depressed (90%); emotionally exhausted (88%). Thirty-six percent of patients and 19% of carers had had suicidal thoughts. Challenges that are particular to rare conditions and which negatively affect mental health included low knowledge of the condition amongst healthcare professionals (88%), not being believed or taken seriously by healthcare professionals (80%), and lack of available information about the condition (76%). Only 23% of respondents felt mental health was considered by healthcare professionals as equally important as physical health. Almost half of patients (46%) and carers (48%) reported never having been asked about their mental health, or that of the person they care for, by healthcare professionals. Forty-six percent of respondents had received professional psychological support; the most common reason for not having accessed professional psychological support was that it had not been suggested (41%). Fifty-nine percent of respondents had accessed sources of additional emotional support, such as patient groups, with the majority (75%) having found this support themselves. With input from our multi-stakeholder workshop we developed recommendations for healthcare professionals to be supported to effectively and sensitively recognise and address patients’ and carers’ mental health needs; and for service level coordination of care to integrate professional psychological support with rare disease services.Conclusions: Living with a rare disease can substantially impact mental health. Many of the drivers of poor mental health reflect issues specific to managing rare conditions. To meet existing UK government commitments, there should be a focus on empowering healthcare professionals who treat rare disease patients and on integration of mental health support with rare disease services.
Ethno-medicinal knowledge of a marginal hill community of Central Himalayas: Diversity, usage pattern and conservation concerns
Authors: Ojha Saraswati Nandan , Tiwari Deepti , Anand Aryan , Sundriyal R.C.
Published: December 2019

Background Human beings have been dependent on surrounding resources for their survival since time immemorial. Medicinal plants have been an important resource to cure various diseases and ailments. Unfortunately, the knowledge is depleting fast thus deserves to be documented for its proper use. The present study reports ethnomedicinal know-how of a mountain community from central Himalayas of India. Methodology Extensive field visits were made to gather information on ethnomedicinal use of plant species in Bageshwar district of Uttarakhand, central Himalayas. Initial survey was done in 73 villages to assess the key persons engaged in herbal healing practices as well as its usage. A total of 100 such persons were identified (70 non-healers/natives and 30 vaidyas ) and finally interviewed using semi-structured questionnaires, target interviews and group discussion. Various indices were also used to evaluate the ethno-medicinal data. Result This study revealed the ethno-medicinal plant diversity, traditional medicinal practices of local herbal practitioners and past and present scenario of ethno-medicinal cure system. A total of 70 medicinal plants used to cure diseases varying from general health care to a few complex ailments with a documented use-report ranging from 03 to 94 and their cultural importance as high as 0.97 within different taxon. A total of 35 families of such medicinal plants were recorded from traditional healers, vaidyas and marginal hill community. This type of knowledge being passed on verbally to generations needs to be preserved for the future bio-prospecting of plants that could be a potential cure to any future disease. Further ethno-botanical indices were employed in the study to analyze the relevance of the study. Conclusion The present study examines the medicinal plants that are available in the vicinity of the community or sometimes grown as daily edible food, providing an effective and affordable treatment to the marginal class of hill community. Such traditional knowledge of the community has enough relevance to provide with them, a sustainable approach which otherwise may create a disarray in conservation efforts leading to human induced intervention efforts in future.
Predictors of catheter-related bladder discomfort after gynaecological surgery
Authors: Li Shuying , Song Liping , Ma Yushan , Lin Xuemei
Published: December 2019

Background: Urinary catheterization is universally used during surgery, and the incidence of postoperative catheter-related bladder discomfort (CRBD) is very high during recovery. We conducted this study to identify the incidence and predictors of postoperative CRBD after gynaecological surgery in the post-anesthesia care unit (PACU). Methods: This was a prospective observational study. Patients undergoing gynaecological surgery under general anesthesia with intra-operative urinary catheterization were enrolled. We collected the clinical data, incidence and severity of CRBD, and postoperative pain for the patients. Predictive factors of CRBD were analysed by univariate and multivariate analysis. Results: A total of 407 patients were included in this study. The incidence of CRBD after gynaecological surgery was 64.6% (mild CRBD: 22.8%; moderate CRBD: 34.2%; and severe CRBD: 7.6%). Univariate analysis showed that age, type of surgery, type of laparoscopic surgery, additional analgesics, and postoperative pain were influencing factors for CRBD. Based on multivariate logistic regression analysis, age ≥50 years, uterus-related laparoscopic surgery, and lack of additional analgesics were independent predictors of moderate or severe CRBD. Conclusions: This observational study revealed that the incidence of CRBD after gynaecological surgery in PACU was very high. Age ≥50 years, uterus-related laparoscopic surgery, and lack of additional analgesics were independent predictors of CRBD.
Evaluación de las propiedades mecánicas de concretos modificados con microesferas de vidrio y residuos de llantas
Authors: Valencia Villegas Juan Pablo , González Mesa Ana María , Arbelaez Perez Oscar Felipe
Published: December 2019

El efecto combinado de residuos de llantas y microesferas como sustitutos de la materia prima utilizada en la elaboración convencional de concretos fue explorada en este trabajo. Se diseñaron y prepararon mezclas de concreto tradicional, con modificaciones del 15% en masa de los agregados finos con relaciones de residuos de llantas, microesferas de vidrio de 0:1, 1:1, 1:3, 3:1 y 1:0. A partir de las mezclas preparadas se elaboraron especímenes cilíndricos de 150 mm x 300 mm. La evaluación de las propiedades mecánicas y físicas de los especímenes cilíndricos mostró que los materiales con mayor contenido de residuos de llantas presentaron una menor densidad, mientras que los de mayor contenido de microesferas presentaron la mayor resistencia a la compresión; de hecho, las mezclas 0:1 y 1:3 presentaron resistencias a la compresión de 22.4 y 19.1 MPa, respectivamente. Los resultados encontrados muestran que la adición conjunta de microesferas y residuos de llantas presentan un efecto sinérgico combinado entre los dos materiales con potencial uso en la industria de la construcción, en reemplazo de los materiales tradicionales utilizados en la elaboración de concretos, en particular, se espera que el uso de estos materiales se convierta en una alternativa para la utilización de estos residuos, los cuales no cuentan actualmente con un plan de disposición.
ANÁLISE DE VIABILIDADE DO TRANSPORTE ESCOLAR EM MUNICÍPIO DA REGIÃO CENTRAL DO RIO GRANDE DO SUL
Authors: Schuh Clari , Sousa Marco Aurélio Batista de , Ribeiro Silvio Paula , Freitag Viviane Da Costa
Published: December 2019

A educação é um direito garantido pela Constituição Federal do Brasil, no entanto, para muitos residentes na área rural, o acesso a esse direito acaba prejudicado, devido à distância da escola. Pensando em minimizar esses problemas, o Governo Federal criou o Programa Nacional de Apoio ao Transporte Escolar e o Caminho da Escola, programas coordenados pelo Fundo Nacional de Desenvolvimento da Educação, com o objetivo de garantir a oferta do transporte escolar para a educação básica da zona rural. Por se tratar de um sistema que exige grande quantidade de recursos, seus custos merecem destaque. Nesse contexto, o presente estudo visou quantificá-los, bem como compará-los com outros custos gerados por essa prestação de serviços de terceiros. O estudo tem abordagem qualitativa, de natureza aplicada, com finalidade descritiva, que utilizou como estratégia, o método documental realizado no Setor de Transporte Escolar de um município do Rio Grande do Sul que se utiliza, em sua maioria, do transporte escolar de forma terceirizada, os cálculos possibilitaram comparações sobre as duas modalidades de transporte, chegando-se à conclusão de que, para uma das rotas selecionadas, a municipalização do transporte escolar é mais vantajosa, mas para a outra, a terceirização é a opção mais viável
Impact of projected 21st century climate change on basin hydrology and runoff in the Delaware River Basin, USA
Authors: Hawkins Timothy W. , Woltemade Christopher J.
Published: December 2019

A gridded hydrologic model was developed to assess the impact of projected climate change on future Delaware River Basin (DRB) hydrology. The DRB serves as a water supply resource to over 15 million people. Model evaluation statistics for both water year and monthly runoff projections indicate that the model is able to capture well the hydrologic conditions of the DRB. Basinwide, annual temperature is projected to increase from 2.0 to 5.5 °C by 2080–2099. Correspondingly, potential and actual evapotranspiration, precipitation, rainfall, and runoff are all projected to increase, while snowfall, snow water storage, snowmelt, and subsurface moisture are all projected to decrease. By 2080–2099, basinwide summer subsurface moisture is projected to decrease 7–18% due to increased evapotranspiration, while winter runoff is projected to increase 15–43% due to increased precipitation and snowmelt and a conversion of snowfall to rainfall. Significant spatial variability in future changes to hydrologic parameters exists across the DRB. Changes in the timing and amount of future runoff and other hydrologic conditions need to be considered for future water resource management.
Investigation of the Association Between Carotid Artery Intima-Media Thickness (IMT) and Cardiac Risk Factors in Patients with Systemic Lupus Erythematosus
Authors: Rezaieyazdi Zahra , Sedighi Sima , Salari Masoumeh , Fard Mohammadreza H. , Azarpazhooh Mahmoud R. , Tabrizi Peyman S. , Afshari Jalil T. , Saghafi Masoud
Published: December 2019

Background:

The relationship between SLE and traditional risk factors for cardiovascular
events was evaluated.

Methods:

The data regarding sixty patients with SLE and 30 healthy controls (age and sex
matched) were gathered using SLEDAI forms. Venous blood (10mL) from all the participants was
examined for hs-CRP, homocysteine, VCAM1, CBC, anti-DNA antibody, C3, C4, low-density
lipoprotein (LDL), cholesterol, FBS and triglyceride.

:

The IMT of carotid arteries was determined bilaterally by ultrasound. Other measurements included
insulin levels via Elisa (Linco/Millipore Corp) and the HOMA-IR index for insulin resistance.
Results: The mean age (in years) in the test and control groups was 28.8±10.3 (18-52) and
33.8±9.13 (18-48), respectively.

Results:

The mean age (in years) in the test and control groups was 28.8±10.3 (18-52) and
33.8±9.13 (18-48), respectively.

:

The average IMT in the test group was directly related to serum levels of VCAM1 (p<0.001), homocysteine
(p<0.001), cholesterol (p<0.009), LDL (p<0.001), TG (p<0.001), and FPG (p=0.004).
The association between other risk factors, insulin resistance, carotid IMT and SLEDAI, was nonexistent.
Mean insulin and insulin resistance levels in all the participants were 0.43±2.06 µU/mL
and 0.09±0.44, respectively. There was no significant difference between the test and control
groups regarding serum insulin and insulin resistance levels (p=0.42 and p=0.9, respectively). None
of the risk factors, such as hsCRP, VCAM1, or homocysteine, were shown to be related to insulin
resistance (p=0.6, p=0.6, p=0.09, respectively).

Conclusion::

Our findings did not show an increase in the prevalence of atherosclerosis in patients
with SLE. There was no association between IMT and insulin resistance. However, the former was
associated with FPG, total cholesterol, LDL, TG, homocystein and VCAM1.
Brain-Computer Interface for Persons with Motor Disabilities - A Review
Authors: Anitha T. , Shanthi N. , Sathiyasheelan R. , Emayavaramban G. , Rajendran T.
Published: December 2019

Aim /Objective:

A Brain-Computer Interface (BCI) is a communication medium, which restructures brain signals into respective commands for an external device.

Methodology:

A BCI allows its target users like persons with motor disabilities to act on their environment using brain signals without using peripheral nerves or muscles. In this review article, we have presented a view on different BCIs for humans with motor disabilities.

Results & Conclusion:

From the study, it is clear that the P300 based Electroencephalography (EEG)BCIs with Steady-State Visually Evoked Potential (SSVEP) non-parametric feature extraction techniques work with high efficiency in the major parameters like Information Bit Transfer Rate (ITR), Mutual Information (MI) rate and Low Signal to Noise Ratio (SNR) and achieve a maximum classification accuracy using Self Organized Fuzzy Neural Network (SOFNN).
Enacting Open Scholarship in Transnational Contexts
Authors: Wrisley David Joseph
Published: December 2019

This essay addresses emerging open scholarly practices in transnational contexts, in particular in the Eastern Arab countries. It also describes some of the larger contours of the globalization in higher education in the regions of Middle East/North Africa (MENA) and Asia. Drawing upon work in the field in Lebanon and the Gulf States, it discusses some of the opportunities and challenges for open scholarship in the region, notably a gap in knowledge infrastructure. Finally, it argues that an important opportunity has emerged for the region’s globally connected institutions of higher education to shape and enact new knowledge environments.
Who's There? Developing a Toolkit to Model People, Places, and Concepts in the Rijeka in Flux Map
Authors: Crompton Constance , Lamonica Tristan
Published: December 2019

Imagine yourself standing on the Trsat hill in the Croatian coastal town of Rijeka, facing the ocean. This article explores the tools and resources that make it possible to aggregate data about the entities (people, places, things, and concepts) that make up the history of the place where you imagine yourself standing. Working with the concept of deep mapping, the article outlines how the techniques are being used to enrich a digital map that captures the history of Rijeka, one of the European Union’s 2020 cultural capitals.
MMOmuseums: A Proposal for the Creation of Experiential Memory Archives
Authors: Saklofske Jon
Published: December 2019

The visibility and longevity of popular and well-known massively multiplayer online (MMO) communities (World of Warcraft, Second Life) eclipse a greater number of virtual worlds that have been abandoned. While hundreds of inactive and closed-down massively multiplayer online role playing games (MMORPGs) have been documented, most online virtual worlds are not included in archival and preservation initiatives due to issues relating to intellectual property and proprietary technologies, and most MMORPG ghost towns are not even accessible online. Their evaporated geographies live on only in the memories and stories posted by players to archived message forums. What if these worlds could be booted up once again, not to play in, but to explore as virtual archaeology sites, sites redesigned to host stories and memories from the players that once inhabited and originally populated these architectures with action, conflict, cooperation, and event? Such virtual archive spaces would feature player experiences and emergent narratives, represented as embedded narratives in a simulated recreation of the computer-generated geographies that they took place in, so that visitors to such sites experience a sense of presence as they receive a combination of both experience and story that preserves these spaces as lived worlds. Using the now-defunct City of Heroes MMO as an example, this paper discusses ways of directly involving diasporic communities of players in the memorialization of virtual spaces that they once inhabited.
Knowledge Organization For Open Scholarship
Authors: Bullard Julia
Published: December 2019

This introductory piece explores the role that subject description—the work of determining an object’s aboutness and assigning relevant terms—has in creating infrastructures for open scholarship. Of particular concern is the potential to adopt the dominant, universalist systems common across North American libraries and databases, or to shift to situated and accountable systems that take care to describe objects consistent with the values of local communities of creators and readers.
Social Media Engine: Extending our Methodology into other Objects of Scholarship
Authors: Meneses Luis , Arbuckle Alyssa , Lopez Hector , Moa Belaid , Siemens Ray , Furuta Richard
Published: December 2019

In this paper we describe our efforts towards building a framework that extends the functionality of an Open Access Repository by implementing processes that integrate the ongoing trends in social media into the context of a digital collection—while taking into account the potential of social media, the relevance of open infrastructures and the accessibility of open knowledge. We refer to these processes collectively as the Social Media Engine. The purpose of this paper is twofold: first, we propose to challenge some of the preconceived notions of digital libraries by making repositories more dynamic; and second, by challenging this notion we want to promote public engagement and open scholarship. As a work in progress, we believe that a real challenge lies in emphasizing the connections between documents that can be treated as objects of study as well.
Breaking SFU Aldines Out of the Vaults: Aldus Manutius and Open Social Scholarship in the Sixteenth Century
Authors: Bordini Alessandra , Maxwell John
Published: December 2019

Aldus@SFU is the digital home of Simon Fraser University Library’s Wosk–McDonald Aldine Collection, making widely available selected volumes from the press of Renaissance Italy’s leading publisher, Aldus Manutius (ca. 1451–1515). The project aims to connect these important materials to wider, multiple audiences in an effort to turn the collection into a truly open resource for the public good. In pursuing this goal, a number of lessons about the practice of open social scholarship have become apparent, inspired by Aldus’s work and his long-lasting contribution to humanist learning. In this article, while avoiding overly simplistic historical parallels, we identify various points of alignment between today’s digital humanities projects and Aldus’s own ambitious “knowledge project”: the production and circulation of the major works of classical antiquity.
Dispersed/Networked Open Social Discovery Research: Applications for Humanistic Machine Learning & Topic Modelling
Authors: Lane Richard J.
Published: December 2019

One of the benefits of open social scholarship also presents researchers with a challenge: the dispersed nature of the knowledge breakthroughs presented by a diverse network of scholars inside and outside of the academy. Accessibility enhances the broad reach of open social scholarship, leading to a democratic engagement across a culturally rich spectrum of participants. But such processes do not necessarily provide coherent critical constellations or knowledge clusters from the perspective of the broad audience. Further, due to the positive benefits of functioning as a group, open social scholarship groups may ignore or simply not register potential discovery research breakthroughs that do not meet the criteria for the groups’ success. In all three instances (knowledge dispersal; lack of knowledge development coherence for all of the community and non-community members across a network; parallel knowledge breakthroughs that remain dispersed/unrecognized), machine learning and topic modelling can provide a methodology for recognizing and understanding open social knowledge creation.
Building and Supporting Humanities-Based University–industry Partnerships: View from the Academics
Authors: Siemens Lynne
Published: December 2019

University–industry partnerships are rare on the humanities side of campus in contrast to the sciences. As a result, little is known about these partnerships, which tend to be with libraries and other not-for-profit organizations. Using the Implementing New Knowledge Environments: Network Open Social Scholarship (INKE:NOSS) as a case study, this research examines a humanities-based university–industry partnership from the academics’ perspective. It explores the nature of the collaboration, associated benefits and challenges, and measures of success and desired outcomes. Overall, building upon several years of working with the partners, the interviewed researchers found that the benefits of collaborating outweighed the challenges. The benefits included the potential to move research towards production-orientated results. Among the many challenges, there was some hesitation about the ability to achieve publications and presentations needed for tenure and promotion. The academics contributed students, and in-kind and cash resources from their own research funds and those of the university to the partnership. At this point, the measures of success and desirable outcomes have not been quantified and instead focus on policy intervention and movement towards open social scholarship. These understandings about the nature of such a university–industry collaboration should provide a good foundation if partnership is funded.
Efecto Pass-Through en México en condiciones de alta y baja volatilidad
Authors: Rodríguez Carranza Jorge Ignacio , Hernández Bielma Leticia , Vásquez Galán Belem Iliana
Published: December 2019

El objetivo de este trabajo es medir el efecto Pass-Through en condiciones de alta y baja volatilidad cambiaria del peso-dólar sobre los precios de la Cadena Distributiva de Bienes en México. Se estimaron dos vectores autorregresivos con corrección de error y funciones de impulso-respuesta con datos mensuales de 2000 a 2017. Los resultados de las elasticidades de traspaso acumuladas indican qué, el Pass-Through genera un mayor cambio porcentual en los precios del productor, consumidor e importador en condiciones de alta volatilidad. Esto implica que el Banco de México podría instrumentar algunas medidas atenuantes a través de la política monetaria y cambiaria. Falta profundizar en las diferencias en velocidad y magnitud de traspaso a la CDB, lo que implica analizar la influencia de condiciones estructurales. Este trabajo destaca que el impacto en el traspaso del tipo de cambio ha sido substancialmente mayor para los precios al productor, quienes en un segundo orden lo traspasan a los precios del consumidor. Se puede concluir que el grado de volatilidad tiene un papel prominente sobre el nivel de traspaso.
Linear and nonlinear causality between marriages, births, and economic growth
Authors: Borrego-Salcido Carmen , Juárez-Del-Toro Raymundo , Cruz.Aké Salvador
Published: December 2019

Este artículo representa el objetivo de identificar el número de nacimientos como indicador adelantado respecto a períodos de crisis para México y otros países con diferentes niveles de desarrollo económico. Para establecer el supuesto comportamiento del número de nacimientos, se utlizó evidencia gráfica simple, análisis de causalidad de Granger y sincronización de fase entre un conjunto de variables económicas y de decisiones de vida, tales como tener un bebé y matrimonio. Resultados para todos los países estudiados mostraron un comportamiento anticipado del número de nacimientos respecto a variables económicas importantes y algunas relaciones causales. La sincronización de fase mostró ausencia de sincronización durante períodos de crisis, coincidiendo con la evidencia gráfica. Estudios similares pudieran considerar otras variables demográficas como divoricio y suicidio. A pesar de que la disponibilidad y periodicidad de los datos fueron las principales limitaciones de este estudio y condujeron la selección de las economías estudiadas, la sincronización de fase nunca antes había utilizada con variables demográficas. Matrimonios resultó no relevante para determinar el número de nacimientos mientras que éste resultó ser una variable que impulsa el PIB.
Forecasting Mood in Bipolar Disorder From Smartphone Self-assessments: Hierarchical Bayesian Approach
Authors: Busk Jonas , Faurholt-Jepsen Maria , Frost Mads , Bardram Jakob E , Vedel Kessing Lars , Winther Ole
Published: December 2019

Background

Bipolar disorder is a prevalent mental health condition that is imposing significant burden on society. Accurate forecasting of symptom scores can be used to improve disease monitoring, enable early intervention, and eventually help prevent costly hospitalizations. Although several studies have examined the use of smartphone data to detect mood, only few studies deal with forecasting mood for one or more days.

Objective

This study aimed to examine the feasibility of forecasting daily subjective mood scores based on daily self-assessments collected from patients with bipolar disorder via a smartphone-based system in a randomized clinical trial.

Methods

We applied hierarchical Bayesian regression models, a multi-task learning method, to account for individual differences and forecast mood for up to seven days based on 15,975 smartphone self-assessments from 84 patients with bipolar disorder participating in a randomized clinical trial. We reported the results of two time-series cross-validation 1-day forecast experiments corresponding to two different real-world scenarios and compared the outcomes with commonly used baseline methods. We then applied the best model to evaluate a 7-day forecast.

Results

The best performing model used a history of 4 days of self-assessment to predict future mood scores with historical mood being the most important predictor variable. The proposed hierarchical Bayesian regression model outperformed pooled and separate models in a 1-day forecast time-series cross-validation experiment and achieved the predicted metrics, R2=0.51 and root mean squared error of 0.32, for mood scores on a scale of −3 to 3. When increasing the forecast horizon, forecast errors also increased and the forecast regressed toward the mean of data distribution.

Conclusions

Our proposed method can forecast mood for several days with low error compared with common baseline methods. The applicability of a mood forecast in the clinical treatment of bipolar disorder has also been discussed.
Active Surveillance of Adverse Events Following Human Papillomavirus Vaccination: Feasibility Pilot Study Based on the Regional Health Care Information Platform in the City of Ningbo, China (Preprint)
Authors: Liu Zhike , Zhang Liang , Yang Yu , Meng Ruogu , Fang Ting , Dong Ying , Li Ning , Xu Guozhang , Zhan Siyan
Published: December 2019

BACKGROUND

Comprehensive safety data for vaccines from post-licensure surveillance, especially active surveillance, could guide administrations and individuals to make reasonable decisions on vaccination. Therefore, we designed a pilot study to assess the capability of a regional health care information platform to actively monitor the safety of a newly licensed vaccine.

OBJECTIVE

This study aimed to conduct active surveillance of human papillomavirus (HPV) vaccine safety based on this information platform.

METHODS

In 2017, one of China’s most mature information platforms with superior data linkage was selected. A structured questionnaire and open-ended interview guidelines were developed to investigate the feasibility of active surveillance following HPV vaccination using the regional health care information platform in Ningbo. The questionnaire was sent to participants via email, and a face-to-face interview was conducted to confirm details or resolve discrepancies.

RESULTS

Five databases that could be considered essential to active surveillance of vaccine safety were integrated into the platform starting in 2015. Except for residents' health records, which had a coverage rate of 87%, the data sources covered more than 95% of the records that were documented in Ningbo. All the data could be inherently linked using the national identity card. There were 19,328 women who received the HPV vaccine, and 37,988 doses were administered in 2017 and 2018. Women aged 30-40 years accounted for the largest proportion. Quadrivalent vaccination accounted for 73.1% of total vaccination, a much higher proportion than that of bivalent vaccination. Of the first doses, 60 (60/19,328, 0.31%) occurred outside Ningbo. There were no missing data for vaccination-relevant variables, such as identity card, vaccine name, vaccination doses, vaccination date, and manufacturer. ICD-10 coding could be used to identify 9,180 cases using a predefined list of the outcomes of interest, and 1.88% of these cases were missing the identity card. During the 90 days following HPV vaccination, 4 incident cases were found through the linked vaccination history and electronic medical records. The combined incident rate of rheumatoid arthritis, optic neuritis, and Henoch-Schonlein purpura was 8.84/100,000 doses of bivalent HPV, and the incidence rate of rheumatoid arthritis was 3.75/100,000 doses of quadrivalent HPV.

CONCLUSIONS

This study presents an available approach to initiate an active surveillance system for adverse events following HPV vaccination, based on a regional health care information platform in China. An extended observation period or the inclusion of additional functional sites is warranted to conduct future hypothesis-generating and hypothesis-confirming studies for vaccine safety concerns.
The Perceptions of and Factors Associated With the Adoption of the Electronic Health Record Sharing System Among Patients and Physicians: Cross-Sectional Survey (Preprint)
Authors: Wong Martin CS , Huang Junjie , Chan Paul SF , Lok Veeleah , Leung Colette , Wang Jingxuan , Cheung Clement SK , Wong Wing Nam , Cheung Ngai Tseung , Ho Chung Ping , Yeoh Eng Kiong
Published: December 2019

BACKGROUND

The electronic health record sharing system (eHRSS) was implemented as a new health care delivery platform to facilitate two-way communication between the public and private sectors in Hong Kong.

OBJECTIVE

This study aimed to investigate the perceptions of and factors associated with the adoption of eHRSS among patients, the general public, and private physicians.

METHODS

Telephone interviews were conducted in 2018 by using a simple random sampling strategy from a list of patients who had enrolled in the eHRSS and a territory-wide telephone directory for nonenrolled residents. We completed 2000 surveys (1000 each for enrolled and nonenrolled individuals). Private physicians completed self-administered questionnaires, including 762 valid questionnaires from 454 enrolled physicians and 308 nonenrolled physicians.

RESULTS

Most participants (707/1000, 70.70%) were satisfied with the overall performance of the eHRSS. Regarding registration status, most nonenrolled patients (647/1000, 64.70%) reported that “no recommendation from their physicians and family members” was the major barrier, whereas more than half of the physicians (536/1000, 53.60%) expressed concerns on “additional workload due to use of eHRSS.” A multivariate regression analysis showed that patients were more likely to register when they reported “other service providers could view the medical records” (adjusted odds ratio [aOR] 6.09, 95% CI 4.87-7.63; P<.001) and “friends’ or family’s recommendation or assistance in registration” (aOR 3.51, 95% CI 2.04-6.03; P=.001). Physicians were more likely to register when they believed that the eHRSS could improve the quality of health care service (aOR 4.70, 95% CI 1.77-12.51; P=.002) and were aware that the eHRSS could reduce duplicated tests and treatments (aOR 4.16, 95% CI 1.73-9.97; P=.001).

CONCLUSIONS

Increasing the possibility of viewing patients' personal medical record, expanding the sharable data scope for patients, and highlighting the benefits of the system for physicians could be effective to enhance the adoption of the eHRSS.
Method development and validation for simultaneous estimation of methotrexate and curcumin in Bulk Drug by using RP-HPLC
Authors: Ankalgi Amar Deep , Chaudhary Nitin Kumar , Kaushal Pooja , Ashawat Mahendra Singh
Published: December 2019

Curcumin is the natural herb that shows effect in the treatment of cancer and rheumatoid arthritis and methotrexate is well known anticancer and anti-rheumatoid drug. Literature survey reveals that there was no method available for the selected drug combination. So, here an attempt has been made to develop simple, rapid and economic method for simultaneous estimation of methotrexate and curcumin in bulk drug by using RP-HPLC method. The percentage assay from optimized method was found to be 99.68% and 99.76% for methotrexate and curcumin respectively.  The proposed method was validated for  linearity, accuracy, precision and robustness according to ICH guidelines and were found to be   within the standard range.

Keywords: RP- HPLC, methotrexate, Linearity, anticancer
Os Magistrados e as Monarquias Ibéricas no século XVIII
Authors: Conti Paulo Fillipy de Souza
Published: December 2019

A historiografia brasileira e estrangeira tem dado destaque cada vez maior aos estudos comparativos. E, no que diz respeito aos reinos de Portugal e Castela, as aproximações e diferenças podem avançar pelas mais diversas áreas. O compartilhamento de uma cultura letrada entre os reinos ou a existência de uma cultura letrada propriamente ibérica caracterizam, por exemplo, as leis e agentes de justiça para ambos os contextos. No entanto, ao longo do século XVIII pode-se observar mudanças na relação que tinham os profissionais da justiça com as casas reinantes. Enquanto assistimos em Portugal ao avanço dos magistrados sobre os cargos mais altos do serviço régio, por outro lado, os castelhanos passaram a afastar e diminuir irreversivelmente a nomeação dos chamados "colegiales mayores". O espaço deixado vago pela elite econômica e letrada espanhola foi sendo rapidamente ocupado por outra categoria profissional: os advogados. O que pretendemos oferecer como contribuição para essa discussão historiográfica é uma tentativa de observar esses dois fenômenos em paralelo. Ao fazer apontamentos que vão desde refletir o que aproxima e o que afasta as Coroas de determinadas categorias profissionais até o papel das universidades nesse jogo.
Implementasi Pendidikan Literasi Intrakurikuler Pada Mata Pelajaran Sosiologi SMA Negeri 1 Linggo Sari Baganti Kabupaten Pesisir Selatan
Authors: Yulinda Vera , Fernandes Reno
Published: December 2019

Pada artikel ini akan dibahas bagaimana implementasi pendidikan literasi intrakurikuler pada mata pelajaran sosiologi SMA N 1 Linggo Sari Baganti Kabupaten Pesisir selatan. Hasil penelitian ini dikaji dengan menggunakan teori difusi inovasi yang dikemukakan oleh Rogers dan Kanuk. Penelitian ini dilakukan dengan pendekatan kualitatif tipe deskriptif. Dalam penelitian ini teknik pengumpulan data yang digunakan adalah observasi dan wawancara, pengumpulan dokumen yang berhubungan dengan topik penelitian dan studi kepustakaan. Setelah data terkumpul dikaji dengan teknik analisis data dari Miles dan Huberman. Hasil penelitian menunjukkan yang pertama, bahwa Gerakan Literasi Sekolah (GLS) telah diterapkan di SMA Negeri 1 Linggo Sari Baganti secara prosedur sudah berjalan tapi secara subtansi belum berjalan dengan baik, seharusnya pihak sekolah harus menyediakan seperti perpustakaan mini di kelas dan melengkapi gerakan literasi yang ada,namun dalam pelaksanaanya ada beberapa hal yang dirasa belum optimal seperti sarana dan prasarana sekolah yang belum mencukupi dan kendala guru dalam pembuatan RPP k13. Kedua, integrasi literasi dengan mata pelajaran belum berjalan dengan baik seperti didalam RPP guru memebuat kegiatan literasi tapi di dalam proses pembelajaran tidak diterapkan. Pihak sekolah SMA N 1 Linggo Sari Baganti berupaya menumbuhkan kegiatan literasi dan melengkapi sarana dan  prasarana sekolah agar budaya literasi berjalan secara maksimal
Reverse meridional cyclodialysis ab interno in management of open angle glaucoma — a preliminary report
Authors: Kumar V. , Frolov M.A. , Dushina G.N. , Shradqa A.S. , Bezzabotnov A.I. , Abu Zaalan K.A.
Published: December 2019

The uveoscleral outflow as an alternate route of aqueous drainage is of great interest in glaucoma surgical treatment. A cyclodialysis cleft allows one to create a direct connection between the anterior chamber (AC) and the suprachoroidal space (SCS) which is the key element of uveoscleral outflow. The purpose of the study was to evaluate the safety and effectiveness of reverse meridional cyclodialysis ab interno (RMCai) in decreasing intraocular pressure (IOP) in patients with primary open-angle glaucoma (POAG) and refractory glaucoma (RG). Fourteen patients who exhibited POAG and RG (11 men and 3 women, age 77.3 ± 7.8 years) were included in the study. All patients underwent RMCai with the help of custom-designed spatula. The spatula, inserted through a clear corneal incision, was used to detach the ciliary body from the scleral spur to create a 2.0–2.5 mm wide and 6.0–6.5 mm deep cleft. Outcome measures were IOP change, use of hypotensive medication(s), complications, and need for a second surgery. Decrease in IOP by more than 20% and IOP between 6 and 21 mmHg without hypotensive medication constituted complete success. Similar changes in IOP with medication constituted partial success. Need for second surgery constituted failure. The follow-up period was >3 months. Baseline IOP and hypotensive medication use were 22.0 ± 8.5 mmHg (95% confidence interval (CI), 17.6–26.4) and 2.6 ± 0.9 (95% CI, 2.2–3.1). At 3, 6, 12, 18, and 24 months, complete success was achieved in 64.3%, 77.8%, 55.6%, 37.5%, and 40% of patients respectively; partial success — in 14.3%, 22.2%, 44.4%, 50.0%, and 60.0%. Four patients required a second surgery. Failure occurred because of cleft closure by fibrosis. It was concluded that RMCai is safe and effective in decreasing IOP in POAG and RG patients.
Place and role of fishery complex in food security system of Russia
Authors: Karlina Elena Prokofievna , Arslanova Elvira Revovna
Published: December 2019

The paper discusses the problem of ensuring food security as one of the key tasks

of the modern economic policy of the state, the solution of which will help to achieve food inde-pendence of the country and improve the quality of life of the population. Fishery, as a manufacturer and supplier of food products with a high content of easily digestible proteins of animal origin, fat-soluble vitamins and minerals, occupies the leading position in the food security system of the Russian Federation. Based on the study of modern approaches to the content and monitoring the level of food security, the indicators of assessing the level of food security for fisheries in the sphere of production and consumption of fish products are refined. The food security in the area

of fish production, dynamics of production volumes of fish and aquatic biological resources, amounts and structure of the domestic production of fish products, import and export helped to evaluate the high potential of the fisheries complex of the Russian Federation in achieving the in-crease of self-sufficiency in fishery products up to 85%. It has been stated that in the field of fish product consumption reflecting the degree of economic accessibility of the population there are the problems: the prevalence of fish products with low depth of processing in the structure of average per capita consumption, low consumption of animal proteins, high dependence of consumption

of fish and fish products by households on the level of available resources and consumer prices for fish products. The conclusions are formulated about modernizing fish processing facilities, adjust-ing the rational consumption of fish products, creating a unified logistics infrastructure of fisheries, working out marketing strategies for the development of fisheri
Judeus do Egito:
Authors: Egler Tamara Tania Cohen
Published: December 2019

In Egypt there were 90,000 jews, I was nine years old when the Suez Canal war broke out in 1957, my community was forced to migrate to different countries of the world. This diaspora left me many questions, it was necessary to understand how this community managed to keep its culture accumulated over many generations, and how this social body is displaced, and the construction of its conditions of existence here in Brazil. The departure from Egypt produced an uprooting and the welcome in Brazil allows the displacement of its habitus, when reproducing their practices read in the same business, language, housing in the neighborhood of Higienópolis, in São Paulo, around their synagogues and the under their community organizations.
Narrativa testemunhal:
Authors: Ramalho Laís
Published: December 2019

Testimonial narrative keeps reaching a wider space in the context of refuge. It happens, in the first place, because this practice of storytelling is indispensable for those who wish to achieve the proper legal protection. Secondly, it is through the narrative that the refugee frequently speaks the unspeakable, tells their personal experience even if it means that they need to deal with a traumatic memory. This narrative, otherwise, is constantly tested, measured, verified in a context in which the borders of truth and lie are blurred. This paper seeks to explore the refugee’s testimonial narrative as a pathway to discuss individual memory and subjectivity.
THE INFLUENCE OF SELF-EFFICACY, MOTIVATION, AND INDEPENDENCE ON STUDENTS’ ENTREPRENEURIAL INTENTIONS
Authors: Omar Nor Asiah , Ullah Shah Najeeb , Abu Hasan Norhafizah , Ali Mohd Helmi
Published: December 2019

Entrepreneurship education has been implemented in higher institutions in order to give exposure and develop students’ skills and interest in business. Although entrepreneurship course is taught in many universities, researchers are still arguing whether entrepreneurship education is related to the intention to start a business. This study investigated the impact of self-efficacy, independence, and motivation on entrepreneurial intentions among university students. A total of 496 questionnaires were completed by students of Universiti Kebangsaan Malaysia (UKM) who attended Fundamental of Entrepreneurship and Innovation during the academic year 2017/2018 as their compulsory subject. Using PLS-SEM, a two-step approach was used to analyze the data. Self-efficacy, independence, and motivation were found to significantly influence the students’ intention to become entrepreneur, explaining 52% of the variance in intention to become entrepreneur. Additionally, the findings indicate that motivation is the key factor in the entrepreneurial intent of the students. These findings contribute to a better understanding of students’ intention to become an entrepreneur, which is a necessary step to increase more university students to become job creators rather than job seekers. Thus, higher education institutions should revise the curriculum and establish measures to incorporate these three factors for enhancing entrepreneurship education programs at the university.
 
Keywords: Entrepreneurial education, entrepreneurial intention, independence, motivation, self-efficacy
 
Cite as: Omar, N. A., Shah, N. U., Abu Hasan, N., & Ali, M. H. (2019). The influence of self-efficacy, motivation, and independence on students’ entrepreneurial intention. Journal of Nusantara Studies, 4(2), 1-28. http://dx.doi.org/10.24200/jonus.vol4iss2pp1-28
PERFORMANCE OF SHARIAH VERSUS CONVENTIONAL FUNDS: LESSONS FROM EMERGING MARKETS
Authors: Abdul-Rahim Ruzita , Abdul-Rahman Aisyah , Ling Pick-Soon
Published: December 2019

This study compares the performance of Shariah and conventional mutual funds in emerging markets. The performance of 833 Shariah and conventional funds in 6 emerging markets from 2000 to 2015 was analyzed. We analyzed the Sharpe index, Treynor index, and Jensen’s alpha to compare the performance of Shariah and conventional funds. Jensen's alpha results conform to those of Sharpe’s in indicating that Shariah funds slightly outperform their conventional counterparts particularly in the case of Malaysia, Pakistan, and South Africa. Conventional funds perform exceptionally well in Egypt. Further investigation using the Henriksson–Merton model shows that fund managers’ performance relies nearly completely on their stock selection skills because they have either inferior or ineffective ability in timing the market. This study is the first cross-country attempt to compare the performance of Shariah and conventional funds in emerging markets in terms of risk-adjusted returns, security selectivity, and market timing capability.
 
Keywords: Emerging markets, Jensen’s alpha, mutual funds, risk-adjusted performances, Shariah mutual funds
 
Cite as:   Abdul-Rahim, R. Abdul-Rahman, A., & Ling, P-S. (2019). Performance of Shariah versus conventional funds: Lessons from emerging markets.  Journal of Nusantara Studies, 4(2), 193-218. http://dx.doi.org/10.24200/jonus.vol4iss2pp193-218