Abstract B025: Assessing the content and quality of online patient education material on clinical trials from NCI-designated comprehensive cancer centers
Authors: Beard Trista , Morales Diana , Sanogo Fatimata , Halbert Chanita Hughes 
Published: September 2024

Background: Online patient educational material on cancer clinical trials is available on NCI- designated comprehensive cancer center websites and official YouTube channels. Online health information is an important resource for patients seeking to learn more about treatment options. Objective: Examine the quality and content themes in online patient educational material (PEM) related to cancer clinical trials published by comprehensive cancer centers. Methods: A random sample of comprehensive cancer centers (21) was chosen to represent the national network of cancer centers. Each website was searched for webpages containing patient-oriented clinical trial information. Official YouTube channels were also searched for relevant video material. Each webpage and video (N=196) were assessed for quality and content themes. Quality was measured using an abbreviated Patient Education Materials Assessment Tool which scores understandability and actionability of text and audio-visual materials, and content themes were assessed by the use of a content characteristic codebook. Results: Common content themes in the sample (N=196) of online PEM from comprehensive cancer centers were defines purpose of trials, physician speaker, animated or illustrated elements, and defines phases of trials. Online PEM had an average score of 83 for understandability and 26 for actionability, an area for improvement. Only 10% of materials reviewed scored high for understandability (&gt;90) and for actionability (&gt;70). Online webpages that mixed text and video scored highest on the quality assessment. Video-only content scored lowest on the quality assessment. Only a small percentage of PEM included FAQs (10%), instructions on how to find a trial (16%), mentioned consent (14%) or costs associated with trials (12%). Mentions or depictions of minority populations were not commonly observed in the material (11%). Conclusions: Online PEM published by comprehensive cancer centers is an important and easily accessible resource for patients looking to learn more about clinical trials. Cancer centers should add various audio-visual formats and interactive tools to their webpages to increase the quality of the clinical trial resources. Including representation of historically underserved populations and adding actionable advice for patients has the potential to engage patients’ interest and increase enrollment in cancer clinical trials.

Citation Format: Trista Beard, Diana Morales, Fatimata Sanogo, Chanita Hughes Halbert. Assessing the content and quality of online patient education material on clinical trials from NCI-designated comprehensive cancer centers [abstract]. In: Proceedings of the 17th AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2024 Sep 21-24; Los Angeles, CA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2024;33(9 Suppl):Abstract nr B025.