P0882 Quality of care in Inflammatory Bowel Disease from Patient’s perspective with QUOTE-IBD: a Greek multicenter prospective study
Authors: Mantaka A , Psistakis A , Anagnostopoulou E , Karmiris K , Theodoropoulou A , Koutroubakis I , Apostolakis I , Domeyer P R , Sarafis P 
Published: January 2025

Background

High quality of care (QoC) in Inflammatory Bowel Disease (IBD) has been associated with better disease outcomes. Most of the existing instruments assessing QoC are based on the perception of healthcare provider that may be different from that of healthcare user. The aim of the present study is a) to measure QoC. Through the Patient’s Eyes using the questionnaire GR QUOTE-IBD in IBD clinics in Crete and investigate any associations with patient’s demographics, disease characteristics, current or previous treatments and b) to compare QoC in Crete from IBD patient’s perspective with previous studies.

Methods

GR QUOTE-IBD questionnaire was completed by 150 consecutive IBD patients followed at 3 outpatient IBD clinics (93 NC), mean age (±SD) 47.36 ± 15.54 years, median disease duration 10years (0.6-43), 8.67% with IBD related surgery, 60% on biologics or small molecules. Study protocol was approved by Ethics Committee of the University Hospital of Heraklion and the Institutional Review Board of the three participating hospitals. All patients provided written informed consent prior to study enrollment. Statistical analysis was performed with SPSS (version 29, SPSS Inc. Chicago, IL, USA).

Results

The Quality Index (QI) for total care was &gt;9 in all hospitals in Crete. The lowest dimensional QI scores were related to accessibility for the University Hospital of Heraklion (QI= 8.94 ± 1.17) similarly to the previous Greek study, and for the General Hospital of Chania (QI= 8.73 ± 1.48). Autonomy in decision making was rated as the less important dimension of QoC from patients’ perspective, similarly to the previous study in Crete.

Crohn’s disease (p=0.013) and steroid treatment over two times lifetime (p=0.019) were significantly associated with QI scores for total care in IBD patients in Crete.

Conclusion

Total QoC from the patients’ perspective is high in all IBD clinics in Crete. Crohn’s disease and disease severity seem to affect patients’ perceptions for IBD care in Crete. Gastroenterologists in Crete should improve accessibility in IBD care, empower participation and patient’s involvement in shared decision-making, in order to achieve better compliance and improved therapeutic outcomes for their patients.

References

1.Elkjaer M, Moser G, Reinisch W, et al. IBD patients need in health quality of care ECCO consensus. J Crohns Colitis. 2008;2:181–8.

2.Hanefeld J, Powell-Jackson T, Balabanova D. Understanding and measuring quality of care: dealing with complexity. Bull World Health Organ. 2017;95:368–74.

3.van der Eijk I, Sixma H, Smeets T, et al. Quality of health care in inflammatory bowel disease: development of a reliable questionnaire (QUOTE-IBD) and first results. Am J Gastroenterol 2000;96: 3329–36.

4.Pallis AG, Kostagiolas PA, Mouzas IA, Niakas D. Patients' perceptions as an indicator of quality of care, in Greek patients with inflammatory bowel disease. Scand J Caring Sci. 2009;23(1):93-9.