bluuebunny/crossref_metadata_2025 huggingface dataset:
Technology, Dementia and Ethics: Rethinking the Issues
Authors: Baldwin Clive
Published: March 2016

Although there has been a marked increase in interest in using and developing technology in dementia care, discussion regarding the ethical issues of that development and application is severely limited. Discussion is limited both in scope — the issues that are deemed suitable for ethical reflection — and in the paradigm within which those limited issues are discussed, namely the dominance of the principlist approach to bioethics. This paper offers a series of reflections on technology, dementia and ethics in an attempt to widen the debate and generate new ways of thinking about the issues involved in the development and application of technology in the field of disability generally.
In The Maim of the Father: The Discourse of Disability in French-Maghrebi Immigrant Texts
Authors: Hron Madelaine
Published: March 2016

This paper explores the "enfreakment" of the father in French-Maghrebian immigrant literature. The father, or the first-generation North African immigrant to France, is routinely depicted as disabled in literary texts. I account for various economic, medical, socio-cultural, and literary reasons for the figurative maim of the father and I examine the possibilities and limits of this disabled position. On one hand, disability seemingly enabled some first-generation immigrant workers, granting them voice and agency in the public forum. On other hand, in immigrant literature, this discourse of disability engenders a freakish form of identity politics; certain second-generation immigrant texts reify and re-appropriate the maim of the father, so as to further disable, and thus enable, the immigrant subject.
Lives of Dwarfs: Their Journey from Public Curiosity Toward Social Liberation
Authors: Chemers Michael M.
Published: March 2016

No abstract available
New Paradigms of Disability in Social Security Law and Policy in Australia: Implications for Exclusion or Participation
Authors: Parker Sarah , Cass Bettina
Published: March 2016

This paper explores transformations in the form, purpose and administration of income support law and policies for people with disabilities in the Australian social security system. It identifies a paradigm change which has reinforced a medicalized model of the concept and measurement of disability within social security law, effectively removing from policy discourse and practice recognition of the social and economic factors that influence the capacity for labor force participation. We examine the ways in which the current welfare reform agenda of the Federal Government has developed a disability discourse which constructs the individual as the 'problem' within the welfare system. Changes to eligibility criteria and assessment procedures for disability income support are increasingly based on conceptions of an impaired body, while, paradoxically, welfare reform is increasingly focused on the necessity to meet 'mutual obligation' through market participation (the key-words of the 'new welfare'). We explore the extent to which these policy transformations in Australia are likely to facilitate or impede market participation for people of working age with a disability. Wherever appropriate, comparisons are made with disability income support and employment programs in the USA.
A Study of the Accessibility of Ten States' Web Services and their Policies on Web Accessibility for People with Disabilities
Authors: Klein David W. , Kresowik Daniel , McCoy LeeAnn
Published: March 2016

Six Web-based services from 10 state websites were assessed for accessibility for people with disabilities. Five states with strong web accessibility policies and five with relatively weak accessibility policies were selected for comparison. Among a variety of measures for accessibility, including "Bobby," strong policy state websites were compared against weak policy state websites. Strong policy states showed a difference in the number of links on pages, their use of JavaScript, and a trend in how they passed Bobby priority 1. However, no other evidence of any apparent effect from strength of policy was found for accessibility on these websites. Overall, states showed similar levels of accessibility to other public websites in other similar studies. Issues and ways to improve state website accessibility are explored.
Editors' Preface and List of Reviewers
Authors: Haller Beth , Kirchner Corinne
Published: March 2016

No abstract available
News and Notes
Authors: Baglieri Susan
Published: March 2016

No abstract available
Of Miracles and Pedestals: Helen Keller in German Culture
Authors: Hamilton Elizabeth C.
Published: March 2016

This essay compares the cultural and historical factors that shape Helen Keller's life and legacy in the United States and Germany. Although Keller read and wrote in German, was well-versed in German literature, and even regarded Germany as her "spiritual home," she did not make substantive inroads into German culture. Instead, she garnered grandiloquent, yet ultimately superficial recognition. Scholars in the United States, on the other hand, are increasingly appreciative of her contributions to movements promoting rights for people with disabilities, women's rights, and progressive politics. Among people in the U.S., superficial adulation has slowly begun to give way to more rigorous scholarship, allowing Helen Keller to be regarded as a thinker worthy of serious consideration. What aspects of American culture, then, allow for her multifaceted resonance at home, and what in German culture keeps her high on a pedestal, largely out of reach of the very people she admired and wanted to know? Considering Helen Keller's status as an international icon of inspiration, this study sheds light on the cultural and historical parameters that define both humans and heroes.
What's at Stake in Fatness as a Disability?
Authors: Kirkland Anna
Published: March 2016

This essay takes up the suggestion that fatness might be (or become) a disability, and uses the observations it yields to propose a new account of a way American antidiscrimination law governs identity categories and manages individuals. It would seem to be an improvement from a fat-rights perspective to gain coverage under the Americans with Disabilities Act, and to be able to enjoy accommodations at work and in public places. This article offers an integrated alternative to the medical and social models of disability, using fat discrimination as a case study to illuminate its implications. Fat identity is likely to be absorbed into what I call managerial individualism, characterized by on-site regulation and negotiation of people's functional capacities in an indeterminate process. The study sets out a new concept of identity in the law–a managed process, not a status–and proposes to turn scholarly discussion about governance, resistance, and identity formation toward recognizing the full implications of such a concept. Identity as a managed process has very little leverage on politics, I conclude, and showcases a type of individualism that is very easily overwhelmed.
Breaking the Cycle of Poverty: Asset Accumulation by People with Disabilities.
Authors: Ball Phoebe , Morris Michael , Hartnette Johnette , Blanck Peter
Published: March 2016

In this article the authors argue that equality for people with disabilities is contingent on economic equality and financial independence. They discuss the use of asset accumulation strategies, such as Individual Development Accounts ("IDAs"), by people with disabilities who utilize Supplemental Security Income (SSI), Social Security Disability Insurance (SSDI), Temporary Assistance to Needy Families (TANF) and Medicaid. The major federal IDA programs, Assets for Independence (AFIA) IDAs and TANF IDAs, are compared in their use by people with disabilities. Further, the authors examine the income and resource limitations of SSI, SSDI, TANF and Medicaid and show how these often operate as barriers to asset accumulation by people with disabilities. Work incentives that operate within these programs are discussed in relation to asset development. Finally, the article concludes with proposals to encourage asset accumulation by people with disabilities.
Horace Parlan by Horace Parlan (film) and The Blind Orchestra (film)
Authors: Lubet Alex
Published: March 2016

No abstract available
Disability and the Media: Prescriptions for Change.
Authors: Levine Suzanne
Published: March 2016

No abstract available
Promoting Disability-Friendly Campuses to Prospective Students: An Analysis of University Recruitment Materials
Authors: Haller Beth A.
Published: March 2016

Estimates are that currently about 9 percent of students on college campuses have some form of disability. These students are all are supposed to receive accommodations on those college campuses based on Section 504 of the Rehabilitation Act and the Americans with Disabilities Act. The focus of this study is how these students receive information about these accommodations, their rights, the campus accessibility, and other issues related to them. The findings of this study show that university viewbooks and other materials sent to interested high school students are depicting disability. However, there does not appear to be much recruitment of prospective students with disabilities past the occasional picture in the viewbook. No cover letter made a mention of unique services for students with disabilities, and less than half of the university general materials mentioned campus disability services (40%). In addition, only 39 percent of the schools that sent any general materials sent Disabled Student Services (DSS) materials (N=85).
Joint Venture, Joint Resolution
Authors: Savarese Ralph James
Published: March 2016

No abstract available
An Unintended Consequence of IDEA: American Sign Language, the Deaf Community, and Deaf Culture into Mainstream Education
Authors: Rosen Russell S.
Published: March 2016

One goal of the Individuals with Disabilities Education Act (IDEA) is the integration of students who are deaf and hard of hearing into American society. Its original programmatic thrust, stated in the Education for All Handicapped Children Act (PL 94-142), is the fostering of speech and hearing skills and the placement of deaf and hard of hearing students in regular classrooms with hearing students. However, an analysis of historical and educational documents shows that IDEA unintentionally created the process for the inclusion of the language, community, and culture of signing deaf and hard of hearing students into the American education system. As IDEA integrates signing deaf and hard of hearing students into the American education system, American Sign Language (ASL) and the American Deaf community and culture are also mainstreamed into the system.
Rowley Reconsidered: The (Re)Constitution of Free Appropriate Public Education through Multiple Possible Discourses
Authors: Baglieri Susan
Published: March 2016

In this response to Rosen's article, "An unintended consequence of IDEA," I expand his argument to consider the multiple possible ways that everyday people interpret the law as practice. The dominance of the law arises in an interdependent relationship between the intent of the law-writers as expressed in text and the public discourses in which disability and education gain meaning. I present the 1982 case of the Board of Education v. Rowley as a backdrop to examine discourses in disability and education that may have informed the Supreme Court's ruling on "Free Appropriate Public Education," and further offer understanding into the school context that led to litigation at the outset. Finally, I propose the central roles of teachers, whose changes in classroom discourses are at the heart of the increasing prominence of Deaf culture and ASL in schools.
Infusing Disability in the Curriculum: The Case of Saramago's "Blindness"
Authors: Ben-Moshe Liat
Published: March 2016

What are the implications of teaching disability as a pure metaphor? Disability often has negative connotations when used metaphorically, while the lived experience of disability can be quite different. In order to demonstrate this contradiction, I discuss some pedagogical aspects of teaching the novel, Blindness, by Jose Saramago. First, I exhibit possible interpretations of the parable that are useful for teaching. Then, I demonstrate the ways blindness is constructed as Otherness and its possible implications for instruction. Finally, I offer several strategies by which Blindness, and other literary portrayals, can be used in the classroom in a critical manner, one that values human variation and diversity.
Normalcy, Bio-Politics and Disability: Some Remarks on the German Disability Discourse
Authors: Waldschmidt Anne
Published: March 2016

In Germany the perspectives of disabled people have a special weight in the public discourse on new genetics. This paper concentrates on the critique developed by activists of the disability rights movement. It focuses on the discourse's patterns and regularities which show a rough historical structure, and on the main and most influential arguments. As a first step, a theoretical framework is sketched. It draws on the work of French philosopher Michel Foucault as well as that of German literary scientist Jürgen Link. The concepts of "governmentality," "bio-power," and "normalism" help to understand that normalcy and eugenics are modern apparatuses of power/knowledge. In analyzing the discursive patterns of the German disability discourse on bioethics, in particular the "historical argument" and the "feminist argument," it can be shown that the disability rights discourse still considers power mainly as a disciplining, repressive force. The paper concludes with a plead for a renewal of the critique in order to better understand the bio-political matrix of neoliberal society which not only provides risk-oriented programs and policies, but also governs our subjective ways of thinking.
Recollections of the institution: Personal reflections from people who lived in institutions for persons with mental retardation [video]
Authors: Khailova Ladislava
Published: March 2016

No abstract available
Murderball
Authors: Lindemann Kurt
Published: March 2016

No abstract available
Out of joint: a private and public story of arthritis
Authors: Millett Ann
Published: March 2016

No abstract available
Faith in Access: Bridging Conversations between Religion and Disability
Authors: Anderson Robert C.
Published: March 2016

Disrupting barriers to access in the religious community may depend upon mutual engagement between the disability and religious communities. A respectful ambivalence between institutional religion and the disability community keeps this conversation at bay. Whether one is religious or not, engagement with the religious community is highly relevant to the disability community. The disability community's influence upon this large network of adherents could make a tremendous impact toward inclusion in society. This article provides an overview for disability scholars and advocates. The context for discussion is inclusion practices in the United States, with which the author is most familiar.
Between Myself and Them: Stories of Disability and Difference
Authors: Holland Suzann
Published: March 2016

No abstract available
Yellow Brick Road
Authors: Haller Beth
Published: March 2016

No abstract available
Living With Polio: The Epidemic and Its Survivors
Authors: Noll Steven
Published: March 2016

No abstract available
Judaism and Disability: Portrayals in Ancient Texts from the Tanach through the Bavli
Authors: Byzek Josie
Published: March 2016

No abstract available
'Welcome to the Atrocity Exhibition': Ian Curtis, Rock Death, and Disability
Authors: Church David
Published: March 2016

Since the 1960's, rock music's countercultural aesthetic has willingly and exploitatively appropriated images and cultural attitudes equating disability with freak show spectacle, linking the figure of the self-destructive rock star to the supposedly tragic and socially ostracized "freak." This tendency manifests itself in many forms, from "freakish" concert performances (e.g., heavy metal acts using persons with disabilities as part of their live stage show) to the excessive mythologizing of dead rock stars. The life of Ian Curtis, singer of the seminal post-punk band Joy Division, provides a useful case study for how ableist values have permeated rock music, metaphorically conflating rock stardom with freakery in potentially negative ways for actual persons with disabilities. There currently exists very little scholarship on disability in popular, non-classical music, but I hope this essay will encourage further work.
The Disabled Male Gaze: Expressions of Desire and Emotion in Rory O'Shea Was Here
Authors: Gill Michael
Published: March 2016

This essay examines Rory O'Shea Was Here as a male melodrama. Chiefly utilizing theories of narrative prosthesis, problem bodies, and melodrama, a discussion of the disabled male gaze is forwarded. The result is a conclusion that within the film the objectification of Siobhan and the sentimentality of Michael and Rory's lives combine to further damaging gender politics and static representations of disabled characters. Despite the rhetoric of independence and self-sufficiency, Rory O'Shea Was Here employs a narrative of disability that offers an ultimate option of death instead of living with impairment. Rory O'Shea also endorses the view that the only meaningful relationships are authorized via professional routes.
RECIPIENT OF THE 2005 IRVING K. ZOLA AWARD FOR EMERGING SCHOLARS IN DISABILITY STUDIES: 'It Is For The Mother': Feminists' Rhetorics of Disability During the American Eugenics Period
Authors: Lamp Sharon
Published: March 2016

Since the inception of the current U.S. disability rights movement, there has been tension between mainstream American feminists and disability rights activists over disabled women's right to control our bodies. While many nondisabled women now take such freedom for granted, disabled women continue to have decisions about our bodies determined by others who are part of the dominant culture. Why have mainstream feminists, who base their ideology upon the fallacy of a social construct of "inferiority," been unable to generalize their analysis to include disabled women?This essay contributes to women's and disability studies scholarship, exploring eugenic-period feminists' ideologies about disabled people to better understand the roots of the friction between these two movements. I compare the lives and work of two of the period's influential feminists: Charlotte Perkins-Gilman and Margaret Sanger, examining their use of eugenic language and ideology through close readings of papers, diaries and autobiographies in order to understand the formation of a movement to liberate non-disabled women at the expense of disabled people.
Review Essay: Educational Perspectives on the Encyclopedia of Disability, in Three Parts
Authors: Jordan Kathy-Anne , Oppenheim Rachel , Wong Jean Y. , Snow Carrie
Published: March 2016

No abstract available
Apologia for Comparative Culture: A Neophyte's Reflections on the Sixth Annual Multiple Perspectives on Access, Inclusion, and Disability Conference at OSU
Authors: Shapiro Jerome F.
Published: March 2016

Disability Studies is threatened by centrifugal forces that may pull it apart at the seams. As paradoxical as this may sound, the solution to maintaining Disability Studies as an independent and, indeed, coherent academic discipline is to re-contextualize Disability Studies within the broader trends in contemporary academe, the history of social movements in the USA, and the struggle for universal enfranchisement. To illustrate this point, I will: Draw connections between my own experiences with disabilities as a person, a student, an educator, and now a newcomer to Disability Studies; make comparisons to the now defunct Program in Comparative Culture at the University of California, Irvine; and, I will critique some presentations given at two recent Disability Studies conferences hosted by The Ohio State University (OSU). My purpose, however, is not to challenge these presenters' scholarship; rather, it is to illustrate the centrifugal forces that I see already at work within Disability Studies.
Theological Accessibility: The Contribution of Disability
Authors: Creamer Deborah
Published: March 2016

Religious institutions and communities that have embraced the cause of disability have invested a great deal of energy in struggles against architectural barriers, including the elevated pulpit. Valuing this engagement but also recognizing that access to physical space is only a first step in a project of accessibility, this paper claims that it is time to open the entire breadth of religious traditions to an "accessibility audit." Not only does such an examination highlight potential barriers — challenges of scripture and metaphor, for example — but it also suggests new theological possibilities in which disability is not simply a consumer or an evaluator of tradition but rather a constructive element that offers new options for theological reflection. This paper briefly reviews the disability theology models that have been offered to date (the Accessible God by Jennie Weiss Block, the Inclusive God by Kathy Black, and the Disabled God by Nancy Eiesland), highlighting ways in which these proposals make significant contributions to the breadth and depth of Christian theological reflection. This analysis shows that the value of disability theology is confined neither to people with disabilities nor to the arena of religion, but rather, as has been the case with other liberation theologies, has the potential to affect wider worlds and fields of study as well.
Reclaiming Agency, Ensuring Survival: Disabled Urban Ghanaian Women's Negotiations of Church and Family Belonging
Authors: Nepveux Denise M.
Published: March 2016

This paper draws from a narrative ethnography of women members of disabled people's organizations (DPOs) in Accra, Ghana. Through recounting their autobiographical stories, elicited in multiple interviews, it explores how they navigate tensions among disability status, material survival, family belonging and religious participation Finding themselves neither fully acknowledged in family roles nor as religious community members, disabled women struggle to carve out spaces of self-determination and well-being between families and religious institutions, and between their developing aspirations and the circumscribed options available to them at the intersections of poverty, gender and disability. Women draw from multiple experiences, communities and discourses to interpret disability in complex and varied ways, not solely within the "moral models" often attributed to African cultures. Utilizing three biographical narratives from a 2003-2004 qualitative study, this paper shows how urban Ghanaian women with disabilities work to redefine themselves as social participants, and indeed as fully human, through engagement with religion. Implications for disability activism are discussed in the paper's conclusion.
Little People, Big World
Authors: Adelson Betty M.
Published: March 2016

No abstract available
Recovered, Not Cured: A Journey through Schizophrenia
Authors: Anderson Hannah
Published: March 2016

No abstract available
Beyond Disability: The Fe Fe Stories
Authors: Boslaugh Sarah
Published: March 2016

No abstract available
Between Myself and Them: Stories of Disability and Difference
Authors: Hansen Nancy E.
Published: March 2016

No abstract available
The Rising of Lotus Flowers: Self Education by Deaf Children in Thai Boarding Schools
Authors: Kaplan Mitchell A.
Published: March 2016

No abstract available
The Prosthetic Impulse: From a Posthuman Present to a Biocultural Future
Authors: King C. Richard
Published: March 2016

No abstract available
Miracle Workers
Authors: Kumbier Alana
Published: March 2016

No abstract available
Crip Theory: Cultural Signs of Queerness and Disability
Authors: Nicholson C. Br
Published: March 2016

No abstract available
Surgically Shaping Children: Technology, Ethics, and the Pursuit of Normality
Authors: LeBesco Kathleen
Published: March 2016

No abstract available
Cultural Locations of Disability
Authors: Waldman Peter L.
Published: March 2016

No abstract available
Sprout Film Festival: John and Michael; Nothing to Fear — Behind the Scenes
Authors: Robinson MJ
Published: March 2016

No abstract available
Disability in Medieval Europe: Thinking about physical impairment during the high Middle Ages, c. 1100-1400
Authors: Wheatley Edward
Published: March 2016

No abstract available
Filthy Bodies, Porous Boundaries: The Politics of Shit in Disability Studies
Authors: LaCom Cindy
Published: March 2016

No abstract available
Night Vision: Blind Characters in John Gardner's Fiction
Authors: Sayers Edna Edith
Published: March 2016

American novelist and teacher John Gardner (1933-1982) grew up near the New York State School for the Blind in Batavia, a town that boasted a large and vibrant blind community up into the 1970s. This experience is surely why his novels include blind characters with fully imagined histories and inner lives, an extreme rarity in literary history. Esther Clumly in The Sunlight Dialogues, for example, is not only the presiding spirit of the novel but also a rounded and dynamic major character with a realistic blind-school background and a web of friends and community. What's remarkable is how Gardner controls the distance between his own views — that blind people are numerous, competent, interesting, and yet essentially ordinary — and those of his characters, some of whom find blind people frightening, pitiable, freakish, or stupid. This controlled distance creates tension, depth, and, sometimes, irony.
Disability and the Right to Have Rights
Authors: Siebers Tobin
Published: March 2016

A major debate over human rights discourse concerns whether human rights should be guaranteed by the nation-state based on citizenship or whether they should be guaranteed internationally on the basis of the status of the rights-bearing person as human. This essay intervenes in this debate, via an analysis of Hannah Arendt's idea of the right to have rights, to argue that disability, as a critical indicator of universal human frailty, should provide the basis for international human rights.
Wheelchair Princess
Authors: Crees Emma
Published: March 2016

No abstract available
Food Studies and Disability Studies: Introducing a Happy Marriage
Authors: Gerber Elaine
Published: March 2016

Food Studies scholarship has yet to make the notion of "disability" central to its analyses. At the same time, Disability Studies scholarship, with its long tradition of examining the social, cultural, and environmental nature of disability, and its emphasis on inclusion and exclusion, has yet to make food and eating a core focus for analysis. Articles in this volume address the site of intersection between these two fields, utilizing a variety of approaches and from a variety of disciplines.
Do the Hands that Feed Us Hold Us Back?: Implications of Assisted Eating
Authors: Lance G. Denise
Published: March 2016

The purpose of this article was to investigate the social implications of assisted eating. Email interviews were conducted with six people with disabilities who need eating assistance. The author also explored her own experiences as a person with cerebral palsy who must be fed. All the interviewees reported avoiding events which involved food at one time or another on the basis of having to be fed. Although many were uncomfortable being fed in public at the onset of disabilities, they used the strategies of: eating before or after an event, selecting foods they could feed themselves, or bringing an assistant. The interviews and author's experiences revealed several possible relationships between assisted eating and the building of social capital.
Cultural Commentary: Institutionalizing the De-Institutionalization of Food
Authors: Bail Margaret
Published: March 2016

No abstract available
"Heads, You Win": Newsletters and Magazines of the Polio Nation
Authors: Foertsch Jacqueline
Published: March 2016

This article examines a range of polio rehabilitation center newsletters and polio-related quarterly publications from the late 1930s to the late 1960s. Drawing on the writings of disability and textual scholars, it determines that these print materials enabled the formation of polio-affected communities, or even a politically motivated polio nation, whose shared interests, concerns, and newly formed identities were represented in these works. The more grassroots and somacentric the orientation of these periodicals, the more therapeutic they may have been.
Case History: Frankenstein's Lesions
Authors: Lambeth Laurie
Published: March 2016

No abstract available
Cultural Commentary: Go ahead and DisTHIS!
Authors: Mauldin Laura
Published: March 2016

No abstract available
Introductory Remarks
Authors: Lambeth Laurie
Published: March 2016

No abstract available
Editors' Preface
Authors: Brueggemann Brenda
Published: March 2016

No abstract available
Disablement, Gender, and Deafhood among the Negev Arab-Bedouin
Authors: Kisch Shifra
Published: March 2016

A high incidence of deafness occurs among the native Arab inhabitants of the Negev (the southern arid region of present-day Israel). Dynamics both within the Bedouin population, as well as Bedouin encounters with state services and the Israeli-Jewish deaf community, are leading to the gradual emergence of a new sense of Deafhood among the Negev Bedouin. This paper concerns the differential impact of these processes on deaf Bedouin women and men. The first aim of this paper is to consider the state of deaf people among the Negev Bedouin. The second is to provide an analysis of the intersection of deafness and gender, focusing on the way marriage and schooling inform the lives of deaf Bedouin women and men, and shape their different lived experience and structure of opportunities.
Disability Policies and Protests in Israel
Authors: Barnartt Sharon , Rotman Rachel
Published: March 2016

No abstract available
The Personal is Rhetorical: War, Protest, and Peace in Breast Cancer Narratives
Authors: Garrison Kristen
Published: March 2016

The language of war dominates breast cancer discourse, pervading every aspect of the experience, and determining how the patient and others understand the illness. Women are enlisted in a battle against the self, their bodies made war zones, with cancer as the enemy, medical professionals as infallible heroes, and treatments of search-and-destroy by any means possible. While this metaphor may serve to motivate some women, we should not accept it uncritically as the only and right way to make sense of this disease; furthermore, we should recognize how the war metaphor delimits the ways women can talk about breast cancer, potentially silencing women for whom a combat mode is inappropriate or ineffective. Drawing upon narrative theory and rhetorical analysis of disability memoirs, this article first examines breast cancer narratives characterized by sanctioned rhetorical frameworks then considers the potential of alternative discourses, such as those of protest and peace, to write a different kind of illness experience.
Thomas Fahy. Freak Shows and the Modern American Imagination: Constructing the Damaged Body from Willa Cather to Truman Capote
Authors: Kannen Victoria
Published: March 2016

No abstract available
Kurfustendam (poem)
Authors: Kuusisto Steve
Published: March 2016

No abstract available
Review of The Diving Bell and the Butterfly
Authors: Church David
Published: March 2016

No abstract available
Introduction
Authors: Ferris Jim
Published: March 2016

No abstract available
Poems
Authors: Hall Leilani R.
Published: March 2016

Title(s): Sappho's Last Dream, The Stroke and After Words

Leilani R. Hall is author of the poetry collection Swimming the Witch. Her poetry and essays have appeared in numerous journals, including the Laurel Review, the Cincinnati Review, North American Review, and the Mississippi Review. She teaches creative writing, poetics, and disability studies at California State University Northridge.
Poem
Authors: Kuusisto Stephen
Published: March 2016

Title(s): Turku, Finland

Stephen Kuusisto teaches in the graduate creative nonfiction writing program at the University of Iowa. His forthcoming book, Mornings With Borges will be published by Copper Canyon Press.
Disability in History
Authors: Baynton Douglas C.
Published: March 2016

No abstract available
The Revolving Ramp: Disability and the New Adjunct Economy
Authors: Adjunct Alice K.
Published: March 2016

No abstract available
The Continuation of Slavery: The Experience of Disabled Slaves during Emancipation
Authors: Downs James T.
Published: March 2016

No abstract available
Risk, Disability, and Citizenship: U. S. Railroaders and the Federal Employers' Liability Act
Authors: Williams-Searle John
Published: March 2016

This paper examines how a developing work culture shaped by death and disability created a distinct federal policy approach to workplace accidents in the U. S. railroad industry. Railroaders argued that only men willing to bravely confront risks as individuals would succeed in their occupation. As railroading's dangers increased at the end of the nineteenth century, this individualistic approach was replaced by cooperative efforts to campaign for railroad safety. Railroaders, however, were still able to make claims on the government based on their relationship with danger. They argued that since their work was similar to warfare, they should be awarded federal pensions. Although this did not happen, railroaders did successfully claim a privileged citizenship status through the passage of the Federal Employers Liability Act of 1908, which recognized their argument that the dangers with which they grappled and their resulting physical sacrifices made them more than mere wage workers.
"The Savage Heart beneath the Civilized Exterior": Race, Citizenship, and Mental Illness in Washington, D.C., 1900-1940
Authors: Gambino Matthew
Published: March 2016

During the early decades of the twentieth century, William Alanson White and the medical staff at St. Elizabeths Hospital in Washington, D.C. developed an ambitious program for U.S. psychiatry in which the profession would be dedicated to the reconstitution of mentally-fit and socially-productive American citizens. The racist assumptions beneath this program led most psychiatrists at the institution to expect little more than deference, dependence, and common labor from their black patients, preventing them from comprehending the impact of substandard and racially-segregated care. Black men and women were acutely aware of the injustices they faced. When they rejected elements of the hospital's medical regimen, these patients were also rejecting a social vision that consigned them to the margins of American civic life.
Review of Masahiro Morioka. Life Studies Approaches to Bioethics: A New Perspective on Brain Death, Feminism, and Disability.
Authors: Nozaki Yasunobu
Published: March 2016

No abstract available
Review of M. Shinohara. (1986). Ideological critiques of the mainstream special education discourse on "protecting the educational rights of children with disabilities": Focusing on human reciprocity, or ensuring development? ["Syogaiji-no-kyoiku-ken" shiso-hihan: Kankei-no-sozo-ka hattatu-no-hosyo-ka]
Authors: Suzuki Maho
Published: March 2016

No abstract available
English Language Resources Related to Disability and Disability Studies in Japan
Authors: Suzuki Maho
Published: March 2016

No abstract available
Zola Award Honorable Mention: Sculpting Body Ideals: Alison Lapper Pregnant and the Public Display of Disability
Authors: Millett Ann
Published: March 2016

British artist Marc Quinn's Alison Lapper Pregnant (2005) is a monumental marble statue in London's Trafalgar Square that displays a nude, full body portrait of British resident and artist, Alison Lapper. The work features Lapper, who was born without arms and with shortened legs, in all her glory — unclothed and seven months pregnant. The work has been highly criticized for capitalizing on the shock value of disability, as well as lauded for its progressive social values. Alison Lapper Pregnant and the controversy surrounding it showcase disability issues at the forefront of current debates in contemporary art. The work and Quinn's many previous marble sculptures of amputee models, in the series The Complete Marbles (2002), adopt the highly idealizing traditions and conventions of Neoclassicism, the art form characteristically employed for public statues, which idealize political figures and the often patriarchal and nationalistic social values such statues personify. In Quinn's piece and in Lapper's own self-portraits, Lapper's body on display makes a bold statement about representations of disability in the public realm. In this paper, I argue how Alison Lapper Pregnant disrupts artistic and social ideals for bodies, therefore becoming an anti-monument, and it simultaneously continues in traditions that purport public heroes. The work embodies the stereotypes of disability as heroic, tragic, and freakish and functions to make such stereotypes visible, part of public discourse, and open for debate. I underscore how artistic and historical contexts are crucial to interpreting the representation of the disabled body in art and public life. Lapper's own voice is a key component to these discussions of disability and artistic versus social representations, as are her self-portrait sculptures, photographs, and collages. By comparing Quinn's statue to Lapper's artwork, I illustrate the informative and beneficial results of viewing the work of non-disabled and disabled artists in dialogues.
Cultural Commentary: Reality, Disability, and Education
Authors: Smith Phil
Published: March 2016

No abstract available
Kathi Wolfe, Helen Takes the Stage
Authors: Lambeth Laurie
Published: March 2016

No abstract available
Michael Davidson. Concerto for the Left Hand: Disability and the Defamiliar Body
Authors: Siebers Tobin
Published: March 2016

No abstract available
The Mobius Strip: Team Teachers Reflecting on Disability Studies and Critical Thinking
Authors: Cypher Joy , Martin Deb
Published: March 2016

This essay combines personal and academic reflection on teaching critical thinking through a disability studies perspective, and is illustrated by our experiences and insights teaching an undergraduate, general education course. We began with the understanding that disability studies is itself a critical engagement with a dominant ideology of bodily normalcy, value, access and power. We perhaps assumed that to teach disability studies at all would already entail critical thinking. But our experiences teaching this class challenged our beginning assumptions and raised the following questions, which form the focus for this discussion: Do disability studies classes (or any classes for that matter) enact critical thinking agendas by their content alone? What is the role of DS pedagogy in the goal of teaching critical thinking, and how can the teaching itself work to facilitate this goal by all engaged parties? We suggest that teachers incorporating DS consider the concept of "critical progress" rather than assuming that critical thinking is an end goal.
Questioning Representations of Disability in Adolescent Literature: Reader Response Meets Disability Studies
Authors: Walker Valerie Struthers , Mileski Tara , Greaves Dana , Patterson Lisa
Published: March 2016

No abstract available
"Before and After," "Self Inventory," and "Self Reflection"
Authors: Lower Erin , Driedger Diane
Published: March 2016

No abstract available
Threads of Commonality in Transgender and Disability Studies
Authors: Mog Ashley , Lock Swarr Amanda
Published: March 2016

This paper draws together two fields of study and activism: disability studies and transgender studies. I analyze disability and transgender identifications and communities through a comparative and intersectional lens. From conceptual terminology, to societal oppression, to discrimination within medical interactions, disability studies and transgender studies share common themes that this article evaluates to facilitate a broader understanding of their complementary and innovative potential for social change.
Drawn Out of Dejection
Authors: Brown Timile , Price Margaret
Published: March 2016

No abstract available
Heading to the Big Show: The Story of a Disabled College Undergraduate
Authors: Jackson Anthony
Published: March 2016

No abstract available
Three Legs of a Bedroom Life
Authors: Samry Alan L.
Published: March 2016

No abstract available
Snapshots in Review
Authors: Kmetz Karla
Published: March 2016

During the Summer of 2006, Karla Kmetz and Professor Brenda Brueggemann created a multimedia web portfolio that captures pieces of disability history at The Ohio State University. This article documents the research experience, creation process, and revisions to the project.
Participatory Research on Universal Design and Accessible Space At the University of Arizona
Authors: Rattray Nicholas A. , Raskin Sarah , Cimino Jacklyn
Published: March 2016

The framework of Universal Design (UD) is one approach to improving access on university campuses. This paper reflects on a participatory research project on accessible space at the University of Arizona. Student-researchers from the Disability Resource Center conducted map-based qualitative research with members of the campus community to investigate perceptions of accessibility. Data analysis indicates the importance of hidden and invisible barriers, the attitudinal aspects of accessibility, and adaptive strategies of campus users. The paper contributes to investigation of spatial aspects and the lived experience of universal design in institutional contexts, while offering a model for involving students in applied research.
Fleshing out the Field: The University of Michigan's Corporealities Series
Authors: Paradiso Krista , Hetrick Nicholas , Bennett Alina , Anderson Tiffany
Published: March 2016

No abstract available
Agent Orange: A Personal Requiem
Authors: Boslaugh Sarah
Published: March 2016

No abstract available
Inclusive Information and Communication Technologies for People with Disabilities
Authors: Simpson Jenifer
Published: March 2016

Information and Communications Technology (ICT) has the potential both to enhance access for people with disabilities and to contribute to creating barriers.  What we now call the digital divide actually began long before the introduction of computers – barriers have existed and still exist today with telephones, television, the Internet and other information technology. It is important to remember that people with disabilities have many different accessibility needs and that there are different ways to make technology accessible and that new accessibility needs emerge as technology changes. This paper looks at the state of accessibility policy in the U.S. in several technology infrastructures that may provide some lessons and directions for increasing inclusive information and communication technologies worldwide. For instance, if the many provisions involving technology in the UN Convention on the Rights of Persons with Disabilities are to have real and substantive meaning, policy and implementation at the infrastructure level must occur.
Karen A. Brown, Prejudice in Harry Potter's World
Authors: Pickens Ther
Published: March 2016

No abstract available
Rabbi Judith Z. Abrams and William C. Gaventa, eds. Jewish Perspectives on Theology and the Human Experience of Disability
Authors: Sasso Michael
Published: March 2016

No abstract available
Gil Grissom and His Hidden Condition: Constructions of Hearing Loss and Deafness in CSI: Crime Scene Investigation
Authors: Foss Katherine
Published: March 2016

Even with the increasing rate of hearing loss in adults, stigmas about hearing loss and old age continue to prevail.  Film and television representations have traditionally ignored cases of hearing loss.  When representations of hearing loss have appeared, they have presented negative portrayals, reinforcing stigmas about hearing loss.  This study examines how CSI: Crime Scene Investigation portrays hearing loss and deafness. Through the main character, Gil Grissom, this program offers multiple understandings of hearing loss and deafness. Findings indicate that CSI presents hearing loss to be isolating and career damaging.  Yet, also presented through Grissom’s character, deafness is conveyed not always as a functional limitation, but as one characteristic of a rich cultural community.
Emerging from Emergence: Toward a Rethinking of the Recovery Story in Nine Contemporary Nonfiction Autism Narratives
Authors: Foss Chris
Published: March 2016

In this paper I trace a welcome new trajectory within one of the fastest-growing subsets of illness/disability narrative over the last three decades— book-length accounts of living with autism spectrum disorders.  My thesis is that one may observe a marked shift in how many of these writers now position themselves relative to the established pattern for such stories.  According to the earlier model, the narrative moves inevitably toward the autistic individual’s recovery, or at least emergence, from his/her disability.  More recently, most writers (from both first- and third-person points of view) have been rethinking the merits of such a teleology, often opting instead to insist upon their autism spectrum diagnoses as a fundamental aspect of their self-concept rather than as a hindrance to a more normal life and full self-realization.
Irreconcilable Differences? Tourette Syndrome, Disability, and Definition in Democratic Policy Debates
Authors: Newman Sara
Published: March 2016

This paper examines a recent policy debate by means of a particular rhetorical approach. That approach, based on the strategic use of word definitions and repetition, is applied to the deliberative process underlying attempts to provide appropriate special education accommodations for students with Tourette Syndrome (TS) in the U.S. public school system. Thus, this paper’s goals are threefold: to present and apply an explicit model for arguing and advocating with definitions; to examine how an advocacy organization has participated in civic deliberations about disability law in the public schools; and to offer this approach as a model for future advocacy work.
"There Are No Invalids in the USSR!" A Missing Soviet Chapter in the New Disability History
Authors: Phillips Sarah D.
Published: March 2016

This article presents an overview of disability rights issues in the context of state socialism in the former Soviet Union, especially the Russian and Ukrainian Soviet Socialist Republics. The Soviet state’s governmentality of disability, and the little-known history of Soviet-era disability rights movements, produced important legacies that shape disability policy and discourses, rights movements, and experiences of disability in the region today. By focusing on Soviet approaches to housing, education, rehabilitation, and work vis-à-vis people with disabilities, and documenting the varied responses of disability communities, this article contributes a missing Soviet chapter to the new disability history. This approach encourages readers to reconsider some assumptions about the evolution of disability rights outside the West. Especially, I interweave discussions of Soviet-era state policy with descriptions of people’s personal experiences to emphasize the ways that people with disabilities in the former Soviet Union have been active agents--if not organized advocates--across the 20th century.
Harm, Liberty, and Disability
Authors: Rosenberg Melinda
Published: March 2016

Among the works of man which human life is rightly employed in perfecting and beautifying, the first in importance surely is man himself...Human nature is not a machine to be built after a model, and set to do exactly the work prescribed for it, but a tree, which requires to grow and develop itself on all sides, according to the tendency of the inward forces which make it a living thing (Mill 1978, pp. 56-7).