#6055 PATIENT REPORTED OUTCOMES AMONG DIALYSIS POPULATION IN STATE OF QATAR
Authors: Fouda Tarek Ahmed , Hamad Abdullah , Yasin Fadumo , Aly Sahar , Elesnawi Mohamed , Mohammed Mohammed Ezzat Hussain , Eljaali Musab , Almalki Hassan 
Published: June 2023

Background

Patients with (ESKD) undergoing dialysis, experience large burden of the disease and suffer variable symptoms that impact their health-related quality of life (HRQL). However, their symptoms are often under-recognized and under treated by their health care providers because they depend on objective measures such as physical examination and lab results. These examinations mostly don't reflect patients’ symptoms and the impact on health-related quality of life. Therefore, standardized subjective measures are important for symptoms screening and may improve symptom detection and treatment. Patient-Reported Outcome Measures (PROMs) are example of these measures and it capture patients’ symptom burden, level of functioning, and HRQL. PROMs can be used to evaluate and monitor aspects of patients’ health that may otherwise be overlooked, inform care planning, and facilitate the introduction of treatments.

Aims

To capture patients perceptions of their health and to address the HRQL symptoms in haemodialysis,to capture patients perception of their health and address the HRQL symptoms in chronic haemodialysis patients. To find the tools for follow up those HRQL symptoms. To encourage and promote patients patriation in care plan.

Method

Sample of 94 haemodialysis patients were included. We used two validated questionnaires to assess patients reported outcome (IPOS & EQ-5D) because there is no single instrument has established itself as the gold standard for measuring patient status. The (IPOS) captures symptoms such as, diarrhea, changes in skin color, restlessness, difficulty to sleep,itching,poor mobility, drowsiness, mouth sore, constipation, poor appetite,vomiting,nausea,weakness and renal scale. The (EQ-5D) is a standardized measure of health-related quality of life from five dimensions (Mobility, self-care, usual activities, pain, depression and anxiety).

Results

Majority of participants in this survey were male (n = 56; 60%). Middle eastern (67%), between the age of 19 to 77 (Mean = 53; STD =14). In the IPOS 50% of the patients reported the presence of symptoms such as difficulty of sleeping, itching, poor mobility, and general weakness. However, the severity of these symptoms varied from zero severity to overwhelming, 16% of patients were bothered by severe difficulties to sleep and poor mobility,15% had severe lack of energy,13% severe shortness of breath and 11% reported poor appetite. Pain was reported by 44% of patients out of which 33% expressed it as slight to moderate and 11% reported severe pain. The EQ-5D revealed that 47% have problem in walking, 41% of patients found to have difficulties in performing their usual activities, 27% of patients expressed feelings of depression and anxiety (22% mild to moderate and 5% severe).In addition 17% reported difficulties to perform self-care activities such as washing and dressing themselves.

Conclusion

Patients reported outcome is an important approach that captures patients’ perspectives of health and disease. PROM could result in improvement of health care delivery because it is a way to evaluate health care interventions effectiveness in a reliable and acceptable way that value patient's feedback. clinicians can utilize treatment aids to manage symptoms. Treatment aids are actionable assessment and treatment resources developed by expert clinicians and patient partners for the management of certain symptoms using these aids will help in tailoring patients therapy to improve outcome. And patients physician communication and improve quality performance.