num_pages: 304
description: Ian Browns son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndromean extremely rare genetic mutation that results in unusual facial appearance the inability to speak and a compulsion to hit himself constantly. At age thirteen he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe meeting with genetic scientists and neurologists as well as parents to solve the questions Walkers doctors cant answer. In his journey he offers an insightful critique of societys assumptions about the disabled and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure he learns to accept the Walker he loves just as he is. Honest intelligent and deeply moving The Boy in the Moon explores the value of a single human life.
language: English
title: The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
publisher: St. Martin's Press