BACKGROUND: Prenatal screening tests for @entity1467 ( @entity1467 ) are routine in many developed countries and new tests are rapidly becoming available. Decisions about prenatal screening are increasingly complex with each successive test, and pregnant @entity1 need information about risks and benefits as well as clarity about their values. Decision aids (DAs) can help healthcare providers support @entity1 in this decision. Using an environmental scan, we aimed to identify publicly available DAs focusing on prenatal screening/diagnosis for @entity1467 that provide effective support for decision making. METHODS: Data sources searched were the Decision Aids Library Inventory (DALI) of the Ottawa @entity1 Decision Aids Research Group at the Ottawa Health Research Institute; Google searches on the internet; professional organizations, academic institutions and other experts in the field; and references in existing systematic reviews on DAs. Eligible DAs targeted pregnant @entity1 , focused on prenatal screening and/or diagnosis, applied to tests for fetal @entity2007 , and were in French, English, Spanish or Portuguese. Pairs of reviewers independently identified eligible DAs and extracted characteristics including the presence of practical decision support tools and features to aid comprehension. They then performed quality assessment using the 16 minimum standards established by the International @entity1 Decision Aids Standards (IPDASi v4.0). RESULTS: Of 543 potentially eligible DAs (512 in DALI, 27 from experts, and four on the internet), 23 were eligible and 20 were available for data extraction. DAs were developed from 1996 to 2013 in six countries (UK, USA, Canada, Australia, Sweden, and France). Five DAs were for prenatal screening, three for prenatal diagnosis and 12 for both). Eight contained values clarification methods (personal worksheets). The 20 DAs scored a median of 10/16 (range 6-15) on the 16 IPDAS minimum standards. DISCUSSION: None of the 20 included DAs met all 16 IPDAS minimum standards, and few included practical decision support tools or aids to comprehension. CONCLUSIONS: Our results indicate there is a need for DAs that effectively support decision making regarding prenatal testing for @entity1467 , especially in light of the recently available non-invasive prenatal screening tests.

Decision aids that support decisions about prenatal testing for XXXX : an environmental scan.

@entity1 :: ('9606', 'Species') :: ['women', 'Patient'] @entity2007 :: ('MESH:D000782', 'Disease') :: ['abnormalities or aneuploidies'] @entity1467 :: ('MESH:D004314', 'Disease') :: ['Down syndrome', 'DS']
@entity1467 :: (MESH:D004314,Disease) :: ['Down syndrome']
