BACKGROUND: In Denmark, all pregnant @entity1 are offered screening in early pregnancy to estimate the risk of having a fetus with Down syndrome. Pregnant @entity1 participating in the screening program should be provided with information and support to allow them to make an informed choice. There is increasing interest in the use of Web-based technology to provide information and digital solutions for the delivery of health care. OBJECTIVE: The aim of this study was to develop an eHealth tool that contained accurate and relevant information to allow pregnant @entity1 to make an informed choice about whether to accept or reject participation in screening for Down syndrome. METHODS: The development of the eHealth tool involved the cooperation of researchers, technology experts, clinicians, and users. The underlying theoretical framework was based on participatory design, the International @entity1 Decision @entity3224 Standards (IPDAS) Collaboration guide to develop a @entity1 decision @entity3224 , and the roadmap for developing eHealth technologies from the Center for eHealth Research and Disease Management (CeHRes). The methods employed were a systematic literature search, focus group interviews with 3 care providers and 14 pregnant @entity1 , and 2 weeks of field observations. A qualitative descriptive approach was used in this study. RESULTS: Relevant themes from pregnant @entity1 and care providers with respect to information about Down syndrome screening were identified. Based on formalized processes for developing @entity1 decision aids and eHealth technologies, an interactive website containing information about Down syndrome, methods of screening, and consequences of the test was developed. The intervention was based on user requests and needs, and reflected the current hospital practice and national guidelines. CONCLUSIONS: This paper describes the development and content of an interactive website to support pregnant @entity1 in making informed choices about Down syndrome screening. To develop the website, we used a well-structured process based on scientific evidence and involved pregnant @entity1 , care providers, and technology experts as stakeholders. To our knowledge, there has been no research on the combination of IPDAS standards and the CeHRes roadmap to develop an eHealth tool to target information about screening for Down syndrome.

Informed Choice for Participation in Down Syndrome Screening: Development and Content of a Web-Based Decision XXXX .

@entity1 :: ('9606', 'Species') :: ['women', 'patient', 'Patient'] @entity3224 :: ('57379', 'Gene') :: ['Aid', 'aid']
@entity3224 :: (57379,Gene) :: ['Aid']
