STUDY DESIGN: Postal survey. SETTING: A total of 19 countries in Europe. OBJECTIVES: Firstly, to collect information about incidence and systems of care for pediatric @entity1566 (pedSCI); including prevention, initial care and follow-up in a subset of European countries. Secondly, to initiate a network of involved professionals for exchange of information and development of research and care programs. METHODS: A short semi-structured questionnaire was sent to respondents working with @entity1566 ( @entity1566 ) in 19 countries in Europe. RESULTS: Only in Portugal and Sweden, is the incidence of pedSCI (fatal injuries included) established, that is 27 @entity1 /million @entity1 /year and 4.6 @entity1 /million @entity1 /year, respectively. For the other countries, the estimated incidence of pedSCI (nonfatal injuries) varied from 0.9 to 21.2 @entity1 /million @entity1 /year in the age group of 0-14 years. Although the incidence varies considerably, pedSCI is rare throughout Europe. The management differs between the countries depending on the age of the @entity1 and the local organization of health care. CONCLUSIONS: The survey confirms that pedSCI is rare. In order to establish high-quality standardized care, further integration of knowledge in this area is needed throughout Europe. The contacts initiated by this survey may be used to create an international network serving as a reference for health professionals, researchers and families, thereby possibly alleviating some of the unwanted variations of care identified in this study.

Pediatric XXXX in a subset of European countries.

@entity1566 :: ('MESH:D013119', 'Disease') :: ['spinal cord injury', 'SCI'] @entity1 :: ('9606', 'Species') :: ['child', 'children']
@entity1566 :: (MESH:D013119,Disease) :: ['spinal cord injury']
