BACKGROUND _ AIMS: Home @entity3147 ( @entity3147 ) is an established therapy in @entity1 with intestinal failure. @entity3147 management allows most paediatric @entity1 to participate in age appropriate activities; however home @entity3147 may lead to significant restrictions, particularly going on holiday. We aimed to identify socio-demographic and illness-specific variables which influence if and how families with @entity1 on home @entity3147 travel. METHODS: A standardised questionnaire was sent to all 40 @entity1 on home @entity3147 within a large tertiary intestinal failure centre in the UK. Depending on whether the family had/had not been on holiday since their @entity1 had started home @entity3147 , questions were asked to understand the reasons for not travelling or to gather information about individual travel experiences. RESULTS: Thirty @entity1 were enrolled, 20/30 went at least once on holiday and 5/30 travelled more than once per year, 70% travelled outside Britain. Going on vacation was more common the longer the @entity1 had been on home @entity3147 (p 0.022); hours spent on @entity3147 , tolerance of enteral feeds or @entity1 's age did not influence travel behaviour; 80% of parents who went on vacation had a good/worthy experience, 95% would travel again. The biggest reported obstacle was the transportation of @entity3147 bags. Ten families sacrificed a holiday over fear it might be difficult to arrange or due to the @entity1 's unstable medical condition. CONCLUSIONS: A significant proportion of families chose to go on holiday away from home despite their @entity1 being on home @entity3147 . The experience is considered good by most.

Travelling with XXXX on Home Parenteral Nutrition.

@entity1 :: ('9606', 'Species') :: ['children', 'patients', 'child'] @entity3147 :: ('MESH:D044342', 'Disease') :: ['parenteral nutrition', 'PN']
@entity1 :: (9606,Species) :: ['Children']
