UNASSIGNED: 90 Background: Bladder @entity5 @entity1 who are treated with cystectomy (bladder removal) and urinary diversion (bladder replacement) experience high rates of complications and hospital readmissions, and have substantial supportive care needs. @entity1 -reported priorities for improving early-phase survivorship care are lacking. METHODS: On the basis of focus groups and in-depth interviews with 32 @entity150 survivors about post-operative challenges, we developed a structured question listing 16 early survivorship challenges. We asked respondents to indicate which challenges had been difficult to manage at home. The item was part of a survey mailed to members of three Kaiser Permanente regions who had undergone cystectomy and urinary diversion for @entity150 approximately 6 months previously (N = 197). Eligible @entity1 were identified through health plan databases and chart review. RESULTS: The response rate to the survey was 65%. Respondents reported an average of 3 challenges. The most commonly reported challenges pertained to coordination of medical care (69%), such as @entity911 about follow-up care, problems obtaining medical and ostomy supplies, knowing what complications to look for and who to notify if they occur, receiving home health care, or obtaining prompt medical advice. Other problems were caring for the urinary diversion (53%); dealing with urine leaks and @entity322 (49%); problems with balance, vision, and dexterity (32%); difficulty managing emotions (23%); and management of @entity4269 (11%) or incisional or @entity547 (7%). CONCLUSIONS: More than two thirds of @entity150 survivors who had recently undergone cystectomy and urinary diversion struggled with medical care coordination. Managing self-care, complications, and emotional well-being after this major surgery can be difficult for @entity1 , who must also navigate a variety of supportive services, such as medical follow-up with multiple departments and providers, home health services, and wound or ostomy care. A more formal approach to discharge and better communication among @entity1 and providers will help improve early survivorship care for this group.

Recovery challenges faced by XXXX survivors after recent cystectomy and urinary diversion.

@entity1 :: ('9606', 'Species') :: ['patients', 'Patient'] @entity322 :: ('MESH:D014549', 'Disease') :: ['incontinence'] @entity5 :: ('MESH:D009369', 'Disease') :: ['cancer'] @entity4269 :: ('MESH:D008209', 'Disease') :: ['lymphedema'] @entity150 :: ('MESH:D001749', 'Disease') :: ['bladder cancer'] @entity911 :: ('MESH:D003221', 'Disease') :: ['confusion'] @entity547 :: ('MESH:D006547', 'Disease') :: ['parastomal hernias']
@entity150 :: (MESH:D001749,Disease) :: ['bladder cancer']
