UNASSIGNED: Many families experience difficulty in talking about an @entity74 that affects one or more of them. There have now been a number of studies identifying the issues in detail, however few have developed interventions to assist families. The SPRinG collaborative have used the UK Medical Research Council's guidance on Developing and Evaluating Complex Interventions, to work with families and genetic counsellors (GCs) to co-design a psycho-educational intervention to facilitate family communication and promote better coping and adaptation to living with an @entity74 for parents and their @entity1 (<18 years). The intervention is modelled on multi-family discussion groups (MFDGs) used in psychiatric settings. The MFDG was developed and tested over three phases. First focus groups with parents, young @entity1 , @entity1 and health professionals discussed whether MFDG was acceptable and proposed a suitable design. Using evidence and focus group data, the intervention and a training manual were developed and three GCs were trained in its delivery. Finally, a prototype MFDG was led by a family therapist and co-facilitated by the three GCs. Data analysis showed that families attending the focus groups and intervention thought MFDG highly beneficial, and the pilot sessions had a significant impact on their family' functioning. We also demonstrated that it is possible to train GCs to deliver the MFDG intervention. Further studies are now required to test the feasibility of undertaking a definitive randomised controlled trial to evaluate its effectiveness in improving family outcomes before implementing into genetic counselling practice.European Journal of @entity1 Genetics advance online publication, 7 October 2015; doi:10.1038/ejhg.2015.215.

Developing an intervention to facilitate family communication about XXXX , and training genetic counsellors in its delivery.

@entity1 :: ('9606', 'Species') :: ['people', 'children', 'Human'] @entity74 :: ('MESH:D030342', 'Disease') :: ['inherited genetic condition']
@entity74 :: (MESH:D030342,Disease) :: ['inherited genetic conditions']
