BACKGROUND: @entity1442 ( @entity1442 ) is a process of discussing and recording @entity1 ' preferences for future care, aiming to guide healthcare decisions at the end of life (EOL). AIM: To explore nuances in the long-term impact of @entity1442 by studying @entity1 and relative experiences. DESIGN: A qualitative follow-up interview study. Interviews were recorded, transcribed and analysed using thematic synthesis. SETTING/ @entity1 : 3 @entity1 with a life-limiting disease (lung or @entity299 ), affiliated with a major Danish hospital, and 7 relatives were interviewed 1   year after participating in an @entity1442 discussion. RESULTS: The experiences were diverse. Some @entity1 and relatives felt 'relieved', 'more secure' and more in control due to @entity1442 . To some, @entity1442 had led to open communication rather than 'beating around the bush', and to spending more quality time together. However, others perceived @entity1442 as irrelevant. Some stated that the @entity1 's wishes had not been met regardless of @entity1442 . Others felt that EOL questions cannot be realistically considered until 'you're in the middle of it', because many factors are involved. In one case, participating in @entity1442 led to a @entity1 -relative conflict, resulting in EOL issues being 'tucked away'. CONCLUSIONS: The study reveals great diversity in @entity1 and relative experiences of @entity1442 . The study challenges previous research which mainly emphasises @entity1442 as a valuable tool to optimise EOL care. This study stresses the importance of awareness of the highly individual nature of preferences and needs of @entity1 and relatives regarding information, involvement and communication about EOL care.

The diverse impact of advance care planning: a long-term follow-up study on XXXX ' and relatives' experiences.

@entity1 :: ('9606', 'Species') :: ['patients', 'patient', 'PARTICIPANTS'] @entity1442 :: ('MESH:D020178', 'Disease') :: ['ACP', 'Advance care planning'] @entity299 :: ('MESH:D006331', 'Disease') :: ['heart disease']
@entity1 :: (9606,Species) :: ['patients']
