OBJECTIVE: @entity4681 ( @entity4681 ) is an incurable progressive illness, characterized by incessant deterioration of neuromuscular function. Timely commencement of @entity1442 ( @entity1442 ) may enable @entity1 to participate in future care choices. The present systematic review aimed to summarize what is known about the prevalence, content, @entity1 /caregiver benefits, healthcare professional (HCP) awareness/support, and healthcare outcomes associated with @entity1442 in the @entity4681 setting. METHOD: Quantitative and qualitative studies were identified through database searches and eligibility assessed by one author and verified by her coauthor. Data extraction and quality assessments against standardized criteria were completed by the two authors. RESULTS: Of the 422 studies identified, 16 were included. The research methods generally lacked rigor. @entity1442 ( @entity1442 ) prevalence varied considerably across studies. Disease progression was the strongest predictor of @entity1442 completion. @entity1442 processes may clarify @entity1 ' wishes and promote communication. HCP attitudes or lack of awareness may limit @entity1442 processes. Varying @entity1 preferences may make flexible approaches and timing necessary. SIGNIFICANCE OF RESULTS: Important benefits may be associated with @entity1442 in the context of a @entity4681 (e.g., feelings of control/relief and refusal of unwanted treatments). However, further evidence is required to verify findings and identify optimal streamlined approaches (e.g., use of decision aids) consistent with @entity1 ' (and caregivers') needs over time.

Advance care planning in XXXX : A systematic review.

@entity1 :: ('9606', 'Species') :: ['patients', 'patient'] @entity1442 :: ('MESH:D020178', 'Disease') :: ['AD', 'Advance directive', 'advance care planning', 'ACP'] @entity4681 :: ('MESH:D016472', 'Disease') :: ['MND', 'motor neuron disease', 'Motor neuron disease']
@entity4681 :: (MESH:D016472,Disease) :: ['motor neuron disease']
