BACKGROUND: In 2010 a retrospective audit was undertaken to assess the viability of using PROMs in @entity1 with symptomatic @entity943 having undergone percutaneous @entity943 ablation. A response rate of 74  % was achieved, with finding suggesting that @entity943 @entity1 reported a significant impact on their work, social and family life. AIMS: To conduct a qualitative cross sectional survey to understand @entity1 ' perspectives of how @entity943 affect their daily lives, as part of a program to develop a @entity1 Reported Outcome Measure (PROM). METHOD: Twenty five @entity1 aged 18 or over, diagnosed with a variety of symptomatic @entity943 referred for a cardiac ablation procedure took part in cognitive interviews. These aimed to inform the development of a @entity1 reported outcome measure and to determine factors important to this @entity1 group. Common themes were identified using content analysis. RESULTS: @entity1 reported that symptoms of their @entity943 caused them considerable problems and impacted adversely on their quality of life in many ways. This extended through daily routine, work and social activities and also to friends and family, with fear and @entity148 being significant factors for most responders. @entity1 felt their illness was poorly understood, even by health professionals, and often reported that they felt isolated, lacking support and information. CONCLUSION: Symptomatic @entity943 are a source of debilitating and life limiting symptoms, having a negative impact on quality of life. Symptoms and related complications are relevant across different @entity943 substrates and @entity1 groups. TRIAL REGISTRATION: The study is registered on the Clinical Trials website, Identifier NCT01672528.

Living on a knife edge-the daily struggle of coping with symptomatic XXXX .

@entity1 :: ('9606', 'Species') :: ['Patients', 'patients', 'patient', 'Patient', 'Participants'] @entity943 :: ('MESH:D001145', 'Disease') :: ['cardiac arrhythmias', 'arrhythmia'] @entity148 :: ('MESH:D001008', 'Disease') :: ['anxiety']
@entity943 :: (MESH:D001145,Disease) :: ['cardiac arrhythmias']
