BACKGROUND: Domiciliary non-invasive ventilation may be used in palliative care of @entity1 with @entity1030 , although there is uncertainty regarding effect on quality of life. AIM: Explore experiences of domiciliary non-invasive ventilation in @entity1030 , to understand decision-making processes and improve future palliative care. DESIGN: Qualitative interview study, based on constructivist grounded theory, and using the framework method for data management and analysis. @entity1 : 20 @entity1030 @entity1 , 4 carers and 15 healthcare professionals. RESULTS: Most @entity1 had very severe @entity1030 . Data were categorised into four domains - clinical, technical, socio-economic and experiential. Healthcare professionals felt uncertain regarding clinical evidence, emphasising social support and tolerance as deciding factors in non-invasive ventilation use. Conversely, @entity1 reported symptomatic benefit, which generally outweighed negative experiences and led to continued use. Healthcare professionals felt that @entity1 chose to be on non-invasive ventilation; however, most @entity1 felt that they had no choice as healthcare professionals recommended non-invasive ventilation or their poor health mandated it. CONCLUSIONS: Our study identifies 'adapting to non-invasive ventilation' as the central process enabling long-term use in palliative care, although the way in which this is approached by healthcare professionals and @entity1 does not always converge. We present ideas emerging from the data on potential interventions to improve @entity1 experience and adaptation.

Adapting to domiciliary non-invasive ventilation in XXXX : A qualitative interview study.

@entity1 :: ('9606', 'Species') :: ['PARTICIPANTS', 'patients', 'patient'] @entity1030 :: ('MESH:D029424', 'Disease') :: ['chronic obstructive pulmonary disease']
@entity1030 :: (MESH:D029424,Disease) :: ['chronic obstructive pulmonary disease']
