BACKGROUND: Survival from @entity3969 ( @entity3969 ) in sub-Saharan Africa remains dismal as a result of on-therapy mortality and treatment abandonment. Review of @entity1 diagnosed from 2008 to 2011 in our Kenyan @entity3969 Registry showed a loss to follow up (LTFU) rate approaching 50%. The purpose of this study was to trace those LTFU, estimate the survival rate, and identify risk factors for treatment abandonment. PROCEDURE: We administered a comprehensive survey to parents of @entity1 with @entity3969 at the two largest referral hospitals in Kenya to identify barriers to care. We also telephoned families who had abandoned care to determine vital status and identify risk factors for treatment abandonment. RESULTS: Of 136 registered @entity1 , 77 were confirmed dead (56.7%), 38 remained alive (27.9%), and the vital status of 21 @entity1 remains unknown (15.4%). After contacting 33 of the @entity1 who either abandoned curative treatment (n   =   34) or did not attend off-therapy visits (n   =   20), the best estimate of 2-year overall survival of @entity1 with @entity3969 in Kenya approaches 36%. Sixty-three percent of parents misunderstood treatment plans and 55% encountered financial barriers. When asked how to increase comfort with the @entity1 's treatment, 27% of parents volunteered improving inefficient services and 26% volunteered reducing drug-unavailability. CONCLUSIONS: Treatment abandonment remains a significant problem contributing to increased mortality from @entity3969 in developing countries. This multi-center survey identified the barriers to treatment completion from the parental perspective to be lack of education about @entity3969 and treatment, financial constraints, need for quality improvement, and drug-unavailability. Pediatr @entity5    2014 Wiley Periodicals, Inc.

Risk factors for abandonment of XXXX therapy in Kenya.

@entity3969 :: ('MESH:D009396', 'Disease') :: ['Wilms Tumor', 'Wilms tumor', 'WT'] @entity1 :: ('9606', 'Species') :: ['child', 'patients'] @entity5 :: ('MESH:D009369', 'Disease') :: ['Blood Cancer']
@entity3969 :: (MESH:D009396,Disease) :: ['Wilms tumor']
