PURPOSE: The main objective of this study was to assess quality of life (QoL) and treatment satisfaction in a group of @entity1 with @entity1723 ( @entity1723 ) and explore their needs regarding and their perception of QoL living with @entity6 . MATERIALS AND METHODS: @entity1 with @entity1723 attending the outpatient endocrinology clinics of a reference hospital were invited to participate in a cross-sectional study. Clinical and sociodemographic data were obtained (interview and clinical records), and @entity6 -related QoL was assessed using a standardized questionnaire. In 67 @entity1 , satisfaction with treatment was also assessed, and an open interview was performed, assessing the impact of @entity6 , long-term worries, flexibility, restrictions, and self-perception of QoL. Descriptive statistical analysis, bivariate analysis, and multivariate analysis were performed in order to find factors associated with QoL. Interviews were analyzed and summarized questionwise. RESULTS: Mean @entity1 age was 31.4  11.6 years, @entity6 duration 14.2  9.3 years, and glycated hemoglobin (HbA1c) 8.5%  1.9% (69  20.8 mmol/mol International Federation of Clinical Chemistry [IFCC]). The questionnaires showed good average QoL scores (94.6+22.9) and treatment satisfaction scores (25.7  6.7). QoL worsened with increasing HbA1c, female sex, severity of complications, and lower education (r (2)=0.283, P<0.005). In the open interview, 68.5% of the @entity1 reported that @entity6 had changed their lives, 83.5% identified complications as their most important long-term concern, and 59.7% said that they needed more training to manage the disease. CONCLUSION: Poor glycemic control, lower education, complications, and female sex are associated with worse QoL. Semi-structured interviews identified aspects not included in the standardized questionnaires.

Quality of life and @entity1723 : a study assessing XXXX ' perceptions and self-management needs.

@entity1 :: ('9606', 'Species') :: ['participants', 'Patients', 'patients', 'patient'] @entity1723 :: ('MESH:D003922', 'Disease') :: ['T1D', 'type 1 diabetes'] @entity6 :: ('MESH:D003920', 'Disease') :: ['diabetes']
@entity1 :: (9606,Species) :: ['patients']
