Effect of a Family Empowerment Program on Coping, Problem Solving in Parents, and Quality of Life in Children With Cystic Fibrosis
Condition: Cystic Fibrosis
MeSH terms: Cystic Fibrosis; Fibrosis
Study type: Interventional

Summary: 
      Parents of children with cystic fibrosis (CF) experience high levels of stress and problems.
      Family empowerment interventions provide important support for many patients with CF and
      their families. However,there is a lack of research exploring the effects of such empowerment
      programs on coping, and Problem Solving among parents, and Quality of Life in Children with
      CF.

      The present study aimed to assess the effect of a family empowerment program-based nursing
      intervention on parents coping with stress and problem solving, and quality of life children
      with CF.
    

Detailed description: 
      Parents of children with cystic fibrosis (CF) experience high levels of stress and problems.
      Family empowerment interventions provide important support for many patients with CF and
      their families. However,there is a lack of research exploring the effects of such empowerment
      programs on coping, and Problem Solving among parents, and Quality of Life in Children with
      CF. The present study aimed to assess the effect of a family empowerment program-based
      nursing intervention on parents coping with stress and problem solving, and quality of life
      children with CF.

      A single-blinded, parallel group pretest and posttest design randomized controlled trial was
      used.

      Data were collected over 5 months (January 2017-May 2017) from 48 participants in a medical
      faculty hospital. They were randomly assigned to the experimental (n = 24) and control (n =
      24) groups. Nursing interventions applied to the experimental group for ten weeks with the
      intent of strengthening families consist of; providing individualized training and booklet
      concerning disease management and providing phone calls and consultancy services for the
      purpose of reinforcing the training and increasing the motivation. A routine polyclinic
      follow-up was applied to the control group. Problem Solving Inventory (PSI), Scale of Ways of
      Coping with Stress (SWCS), and The Cystic Fibrosis Questionnaire-Revised scale (CFQ-R) were
      used reliable and valid instruments. The data were evaluated using the Wilcoxon Signed Ranks
      test in evaluating dependent groups and the Mann-Whitney U test in independent groups.
    

Intervention name(s): family empowerment program
Intervention type(s): Behavioral
Intervention description(s): The empowerment program-nursing interventions were given in 6 sessions in the experimental group Session 1: Individualized training: General information about CF, respiratory system involvement and treatment process, airway cleaning in CF, drug applications (45-50 min) Session 2:Phone calls: Motivational and reminder interviews were carried out in order to reinforce the content of the first individual training (15 min).Session 3:Phone calls:Motivational and reminder interviews were carried out in order to reinforce the content of the first individual training (15 min) Session 4:Individualized training:protection from infections, nutrition and psychosocial support (45 min) Session 5:Phone calls: Motivational and reminder interviews were carried out in order to reinforce the content of the second individual training. (10 min) Session 6:Phone calls: Motivational and reminder interviews were carried out in order to reinforce the content of the second individual training. (10 min)
Allocation: Randomized
Intervention model: Parallel Assignment
Masking: Single (Outcomes Assessor)
Primary purpose: Supportive Care
Keywords: Children with Cystic Fibrosis; Parents; Quality of Life; Coping with Stress; Problem Solving; family empowerment program; Nursing