Investıgatıon Of The Awareness Of The Parents Of Cerebral Palsy Children
Condition: Cerebral Palsy; Parents; Awareness; Physical Disability; Parenting
MeSH terms: Paralysis; Cerebral Palsy
Study type: Observational

Summary: 
      Parents of Cerebral Palsy (CP) children participate in treatments, education services and
      general medical check-ups; They have many responsibilities such as the use of drugs, devices,
      educational materials. Therefore, involving parents of CP children in the rehabilitation
      process provides a stronger rehabilitation service for their children. In the studies, it was
      stated that the active participation of the parents in the physiotherapy and rehabilitation
      process increases the success rate of the treatment and the participation of the parents
      plays a key role for the success of the physiotherapy and rehabilitation.
    

Detailed description: 
      Cerebral Palsy (CP) children have a different clinical picture that includes many diseases.
      Abnormal muscle tone, insufficiency of postural control, weakness of muscle strength,
      abnormal behavior patterns and sensory problems are common symptoms, especially motor
      impairment can be in these children. These symptoms cause orthopedic problems, deformity and
      developmental delay over time. Motor disorders may be accompanied by various problems such as
      cognitive disorders, sensory, speech, cognitive, communication and behavioral problems,
      epilepsy and secondary musculoskeletal system problems. Functional skills such as independent
      sitting, standing, walking, balance, coordination, and fine motor skills are affected in
      these children due to different damage of neuronal system. This negatively affects the
      independence of activity in the child's daily life. CP children's treatment; It is carried
      out by a multidisciplinary team of specialists, such as specialist physicians,
      physiotherapists, psychologists, social counselors, child neurologists, orthopedists,
      vision-hearing specialists, pediatricians, occupational therapists, special educators,
      orthotics technicians, and with the participation of parents. The most important element of
      the rehabilitation team is the parents. In the postnatal period, parents are the primary
      responsible persons for the care of the child. This responsibility increases even more in the
      child with CP. The motor activity loss and movement disorder that develops in a child
      increase the functional dependency of the child in his daily life and cause him to need more
      support. All family members are somehow involved in the health services provided to these
      children. Parents are constantly involved in the life of the CP children and become aware of
      their child's abilities and needs. Parents of children participate in treatments, education
      services and general medical check-ups; They have many responsibilities such as the use of
      drugs, devices, educational materials. Therefore, involving parents of children in the
      rehabilitation process provides a stronger rehabilitation service for their children. In the
      studies, it was stated that the active participation of the parents in the physiotherapy and
      rehabilitation process increases the success rate of the treatment and the participation of
      the parents plays a key role for the success of the physiotherapy and rehabilitation.
      Parental support contributes to health and well-being and influences the success of long-term
      rehabilitation. With the increasing importance of family-centered practices in recent years,
      parents have started to take an active part in rehabilitation studies by continuing the
      practices in the clinic at home and in the community. It is an increasingly important view
      that parents play an important role in the lives of CP children. The acceptance of
      family-oriented care and the emergence of new theories on motor development have affected the
      treatment approach to these children, and the practices have become more family and
      function-centered rather than child-centered. The aim of this study is to investigate the
      awareness of parents of CP children about the disease, sports and physiotherapy and
      rehabilitation.
    

Intervention name(s): assessment
Intervention type(s): Other
Intervention description(s): To examine the awareness of parents of Cerebral Palsy children about the disease, physiotherapy and rehabilitation.
Observational model: Family-Based
Time perspective: Prospective
Sampling method: Probability Sample
Study population: 
        The universe of the research will consist of the parents of children with cerebral palsy
        who can be reached, who receive active treatment in special education and rehabilitation
        centers.
      
Keywords: parents; Awareness; physiotherapy and rehabilitation; cerebral palsy