The Individual and Family Self Management Theory Based Epilepsy Education Program's Effectiveness
Condition: Self Management; Epilepsy; Seizure; Quality of Life
MeSH terms: Epilepsy; Seizures
Study type: Interventional

Summary: 
      The aim of the study; to determine the effect of education program given to adolescents
      diagnosed with epilepsy and their parents based on Ryan and Sawin's individual and family
      self-management theory, on adolescents 'attitudes towards disease, self-efficacy, quality of
      life and parents' nurse-parent support levels.
    

Detailed description: 
      In addition to the expected effects of epilepsy on children, the course of the disease and
      the course of the child's life will change as the duration of life with the disease
      increases. In epilepsy, it is necessary to develop self-management behaviors in order to
      facilitate adaptation to the disease, to encourage seizure control and to increase the
      quality of life. Regular repetition of the trainings created within the framework of a
      certain plan to improve self-management behaviors is one of the recommended steps to
      strengthen the individual with chronic disease in the disease process. This randomized
      controlled study including aged 12-18 adolescents with a diagnosis of epilepsy, monotherapy,
      mental retardation without cerebral palsy, and no secondary disease and their parents.
      However, there isn't enough published research examining the effect of education program
      given to adolescents diagnosed with epilepsy and their parents based on Ryan and Sawin's
      individual and family self-management theory, on adolescents 'attitudes towards disease,
      self-efficacy, quality of life and parents' nurse-parent support levels.
    

Intervention name(s): Epilepsy Education Programme
Intervention type(s): Behavioral
Intervention description(s): Firstly the Child Introduction Form and Parent Information Form were applied. Then the Child's Attitude Towards Self-Disease Scale, Seizure Self-Efficacy Scale for Children, Quality of Life Scale for Children were filled to children. Nurse-Parent Support Scale were applied to the parents in the Pretest and Post Test data.
Allocation: Randomized
Intervention model: Parallel Assignment
Intervention model description: In this study, stratified sampling was employed based on age and sex. Two strata, [12-14 age, girl] and [15-18 age, boy], were generated to ensure even distribution in terms of age and sex in each group. First, thirty-six adolescent were stratified into two groups (A and B), which were then stratified again into two: [12-14 age, girl] and [15-18 age, boy]. A scheme was developed to randomize the age and sex of [12-14, girl] and [15-18 age, boy] into two groups (A and B), resulting in the experimental and control groups stratified by the age and sex and blocked into paired-groups of (2:2/[12-14 age, girl]:[15-18 age, boy]). Permutation was also used to strike a balance between the strata. Block sets were generated for each combination of the prognostic factors (age and sex). The experimental and control groups were then randomized into the strata using a random numbers table.
Masking: Single (Participant)
Primary purpose: Supportive Care
Keywords: Epilepsy; Self-Management; Chronic Disease; Adolescent; Education