Intervention Development for Newly Diagnosed Youth With HIV
Condition: HIV
Study type: Observational

Summary: 
      This study is an exploratory qualitative investigation of the challenges, strengths, and
      needed areas of support associated with receiving an HIV diagnosis among youth living with
      HIV. Qualitative interviews will be conducted with health care providers who work with
      adolescents living with HIV and focus groups will be conducted with adolescents who are
      living with HIV (ages 16-24). One third of the focus groups will be conducted in Spanish.
      Findings from this study will be used to create an outline and development plan for a
      culturally-sensitive and developmentally appropriate intervention (or set of interventions)
      for youth recently diagnosed with HIV.
    

Detailed description: 
      Providers will participate in one interview of approximately one-hour duration; these
      interviews are expected to occur over a 2 month period. Following the completion of the
      provider interviews, participants will participate in one 2-hour focus group. A total of 6
      focus groups (2 at each of the 3 study sites) are anticipated to occur over a 6-8 week
      period. The complete study duration is expected to take 12 months.

      Part A - Provider interviews - 15 clinical providers, 15 mental health providers, 15 case
      managers (1 provider from each category per ATN site resulting in a total of 45 interviews).

      Part B - Focus groups - 36-48 youth living with HIV. It is estimated there will be 6-8
      participants per group and we will conduct two groups at each of three different sites (one
      male specific group and one female specific group) for a total of six focus groups. One third
      of the focus groups will be conducted in Spanish.

      The provider interviews will be comprised of participants who are clinical providers, mental
      health providers, and case managers with at least 1 year of experience working with HIV+
      youth; one from each category will be interviewed from all 15 ATN sites.

      The focus groups will be comprised of participants who are between the ages of 16 and 24,
      diagnosed HIV+ and aware of their HIV diagnosis for between 12-24 months, and receive
      services at three selected ATN sites or their community partner.

      Focus group participants will be balanced to reflect the diversity (i.e., age, pregnant and
      parenting women, MSM, mono-lingual Spanish-speaking, etc.) of the clinic populations.
    

Observational model: Case-Control
Time perspective: Cross-Sectional
Sampling method: Non-Probability Sample
Study population: 
        The provider interviews will be comprised of participants who are clinical providers,
        mental health providers, and case managers with at least 1 year of experience working with
        HIV+ youth; a target number of one from each category will be interviewed from all 15 ATN
        sites.

        The focus groups will be comprised of participants who are between the ages of 16 and 24,
        diagnosed HIV+ and aware of their HIV diagnosis for between 12-24 months, and receive
        services at one of the three selected ATN sites or their community partner.

        Focus group participants will be balanced to reflect the diversity (i.e., age, pregnant and
        parenting women, men who have sex with men (MSM), mono-lingual Spanish-speaking, etc.) of
        the clinic populations.
      
Keywords: HIV