The Relationship Between Parents' Fatigue and Quality of Life
Condition: Autism Spectrum Disorder
MeSH terms: Autistic Disorder; Autism Spectrum Disorder; Child Development Disorders, Pervasive
Study type: Observational

Summary: 
      By comparing them to a healthy control group, this study aims to investigate the relationship
      between the participation of children with autism spectrum disorder (ASD) in home, school,
      and community environments and their parents' fatigue, depression, and quality of life, as
      well as the child's quality of life. There is no study that investigators are aware of that
      looks into the relationship between the fatigue and quality of life of parents of children
      with ASD and the quality of life and participation of children with ASD. This study
      hypothesizes that parents of children with ASD experience more fatigue and have a lower
      health-related quality of life than parents of healthy children.
    

Detailed description: 
      ASD is a neurodevelopmental disorder characterized by difficulties with social communication,
      limited and repetitive activities, and sensory sensitivity. The social, emotional, and
      behavioral issues that children with ASD face are a source of concern for their parents.
      Mental health issues such as stress, depression, and anxiety are common in these households.
      According to studies, mothers of children with ASD experience more stress and depression than
      mothers of children without ASD or mothers of children with other chronic disorders. Another
      aspect of having an ASD child that has an influence on health is fatigue. In terms of the
      health of parents of children with ASD, fatigue is often overlooked in study and practice.
      One of the study was investigated at the fatigue levels of 50 mothers of children with ASD
      who were between the ages of 2 and 5. Compared to mothers of healthy children, mothers of
      children with ASD reported higher fatigue, stress, worry, and depressive symptoms.

      Participation in daily activities is critical for all children's healthy development, whether
      or not they have a disability. Participating in activities allows children to express
      themselves, find purpose, and improve their health. Exclusion and loneliness can arise from a
      child's inability to participate in normal childhood activities. This circumstance has a
      number of harmful consequences for the child. According to research, children with ASD
      participate in their home, school, and community surroundings at a considerably lower rate
      than their healthy peers, and this difference grows over time.

      There is no study in the literature that examines the association between children with ASD's
      participation in home, school, and community environments, their parents' fatigue level, and
      the child's quality of life. As a result, the purpose of this research is to look at the
      relationship between ASD children's participation in home, school, and community settings and
      their parents' fatigue, depression, and quality of life, as well as the child's quality of
      life, by comparing them to a healthy control group.
    

Observational model: Case-Control
Time perspective: Cross-Sectional
Sampling method: Probability Sample
Study population: 
        Children with diagnosed Autism Spectrum Disorder and their health peers and their families
      
Keywords: Autism Spectrum Disorder; Quality of life; Participation; Depression