Validity and Reliability of "Shriners Hospital Upper Extremity Evaluation" in Children With Rheumatic Disease
Condition: Arm; Rheumatic Diseases; Child, Only
MeSH terms: Rheumatic Diseases; Collagen Diseases
Study type: Observational

Summary: 
      The most commonly used performance tests to evaluate upper extremity function in children
      diagnosed with rheumatic disease are the 9-hole peg test and Jebsen Taylor hand function
      tests. Although these tests have advantages such as being able to be applied in a short time,
      providing objective data, being easily applicable in the clinical environment, and being
      cost-effective, these tests are non-specific performance tests. Fine motor skills specific to
      rheumatic diseases, planned for children; There is no test battery that examines the mobility
      and position of each segment of the upper extremity during a function in detail.

      The Shriners Hospital for Children Upper Extremity Evaluation (SHUEE) is a video-based
      assessment approved for use in children with hemiplegic cerebral palsy. In addition to
      spontaneous functional movement, it also evaluates the dynamical position, grip, and release
      movements of the upper extremity segments. Approved with a total of 22 questions/tasks
      observed for children aged 3-18. While the evaluation takes about 15 minutes, it takes about
      15-30 minutes for the participant to score after the evaluation. The test battery can be
      created with the materials found in the physiotherapy clinic and is therefore very practical
      in terms of cost. In addition, due to the video recording of the evaluation, it provides a
      detailed examination opportunity to the evaluator both during and after the evaluation.
      However, it is superior to other tests in terms of creating a patient archive due to video
      recording.

      This study aimed to introduce SHUEE to the literature as a new assessment tool to be used in
      pediatric rheumatic pathologies.

      It is planned to include 25 volunteer pediatric patients diagnosed with rheumatic diseases in
      the study. Intra-observer and inter-observer reliability of SHUEE in children with a
      rheumatic diagnosis will be evaluated. For validity, the Jebsen-Taylor Hand Function test and
      Childhood Health Assessment Questionnaire will be used.
    

Detailed description: 
      Various questionnaires and test batteries are available to evaluate the functional activities
      of the upper extremities in children with upper extremity involvement. Among these
      questionnaires and test batteries, there are different performance tests evaluating the grip,
      wrist, and elbow movements in the upper extremity due to rheumatic disease. In the
      literature, the most common performance tests used in children diagnosed with rheumatic
      disease are the 9-hole peg test and the Jebsen Taylor hand function tests. Although these
      tests have advantages such as being able to be applied in a short time, providing objective
      data, being easily applicable in the clinical environment, and being accessible in terms of
      cost, these tests are non-specific performance tests. There is no test battery that examines
      the mobility and position of each segment of the upper extremity during a function in detail
      for motor skills specific to children with rheumatic diseases.

      The Shriners Hospital for Children Upper Extremity Evaluation (SHUEE) is a video-based
      assessment validated for use in children with hemiplegic cerebral palsy. In addition to
      spontaneous functional movement, it also evaluates the dynamical position, grip, and release
      movements of the upper extremity segments. Approved with a total of 22 questions/tasks
      observed for children aged 3-18. While the evaluation takes about 15 minutes, it takes about
      15-30 minutes for the participant to score after the evaluation. The test battery can be
      created with the materials found in the physiotherapy clinic and is therefore very practical
      in terms of cost.

      SHUEE provides detailed information about the location of the upper extremity segments during
      the function. In addition, due to the video recording of the evaluation, it provides a
      detailed examination opportunity to the evaluator after the evaluation. However, it is
      superior to other tests in terms of creating a patient archive due to video recording.

      This study aimed to introduce SHUEE to the literature as a new assessment tool to be used in
      pediatric rheumatic pathologies.
    

Intervention name(s): Shriners Hospital for Children Upper Extremity Evaluation
Intervention type(s): Other
Intervention description(s): The interventions are evaluating tools for the functional performance of the upper extremity.
Other intervention name(s): Jebsen-Taylor Hand Function Test; Childhood Health Assessment Questionnaire
Observational model: Other
Time perspective: Prospective
Sampling method: Probability Sample
Study population: 
        the patients who applied to the pediatric rheumatology clinic in the university hospital
      
Keywords: rheumatic diseases; children; function