The Effect of Mucositis Care Training Given to Caregivers in Pediatric Leukemia Cases on Mucosal Barrier Damage
Condition: Leukemia; Mucositis; Nursing Care; Pediatric ALL
MeSH terms: Leukemia; Mucositis
Study type: Observational

Summary: 
      There are studies in the literature that include parent training for the prevention and care
      of mucositis.

      Many national and international organizations have emphasized the responsibility of the nurse
      in patient education and stated it in the relevant laws and regulations.

      The regulations focus on the educative role of the nurse for patients. In pediatric oncology
      clinics where leukaemia treatment and care is provided, the educational role of the nurse is
      directed towards the child individual and their family, and determining and meeting the
      educational needs of the whole family is vital in the nursing management of the child with
      cancer.

      In this context, this study aims to examine the effect of mucositis care training to
      caregivers of pediatric patients aged 2 to 18 years, on the development of mucositis and the
      clinic's "mucosal barrier damage, laboratory-confirmed bloodstream infections".
    

Detailed description: 
      Children who are treated for leukaemia are exposed to a wide variety of chemotherapeutic
      agents and immunosuppressive treatments during the treatment, therefore they are at high risk
      of complications. Gastrointestinal mucositis is the leading factor affecting the quality of
      life of the child among the chemotherapy-related complications.

      Gastrointestinal mucositis (GM) can be defined as inflammation or ulceration in the
      gastrointestinal organs due to chemotherapy treatment. Symptoms of GM include abdominal pain,
      diarrhoea, bleeding, fatigue, malnutrition, dehydration, electrolyte imbalance, and secondary
      infections. GM can present in two forms as oral and anal mucositis. Both oral and anal all
      GMs have negative effects on growth and development in children. One of the main issues of
      the remedial approach in this regard is the provision of qualified mucositis care. There are
      studies in the literature that include parent training for the prevention and care of
      mucositis.

      Many national and international organizations have emphasized the responsibility of the nurse
      in patient education and stated it in the relevant laws and regulations. The regulations
      focus on the educative role of the nurse for patients. In pediatric oncology clinics where
      leukaemia treatment and care is provided, the educational role of the nurse is directed
      towards the child individual and their family, and determining and meeting the educational
      needs of the whole family is vital in the nursing management of the child with cancer.

      In this context, this study aims to examine the effect of mucositis care training to
      caregivers of pediatric patients aged 2 to 18 years, on the development of mucositis and the
      clinic's "mucosal barrier damage, laboratory-confirmed bloodstream infections".
    

Intervention name(s): Mucositis care training to be given in line with MASCC / ISOO 2019
Intervention type(s): Other
Intervention description(s): Mucositis care training to be given in line with MASCC / ISOO 2019
Observational model: Case-Control
Time perspective: Prospective
Sampling method: Non-Probability Sample
Study population: 
        The population of the study will be the cases in the 2-18 age group followed in the Ege
        University Faculty of Medicine Children's Hospital Pediatric Hematology Clinic and their
        primary caregiver parents.