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Republic of the Philippines
HOUSE OF REPRESENTATIVES
Quezon City, Metro Manila _

SIXTEENTH CONGRESS
Second Regular Session

House Bit no,_5700

Introduced by Honorable Mark A. Villar

AN ACT
TO ASSIST PERSONS WITH HEMOPHILIA AND OTHER BLEEDING
DISORDERS, ESTABLISHING FOR THE PURPOSE FOUR (4) TREATMENT
CENTERS IN METRO MANILA, LUZON, VISAY AS AND MINDANAO,
PROVIDING FUNDS THEREOF, AND FOR OTHER PURPOSES

EXPLANATORY NOTE

The 1987 Constitution states that: “The State shall protect and promote the
right to health of the people and instill health consciousness among them.” (Section
15, Article II!)

Hemophilia is a rare bleeding disorder in which the blood doesn't clot
normally. If one has hemophilia, he may bleed for a longer time than others after an
injury. He may also bleed inside his body (internally), especially in knees, ankles,
and elbows. This bleeding can damage one's organs and tissues and may be life
threatening

Hemophilia usually is inherited. “Inherited” means that the disorder is passed

from parents to children through genes, People born with hemophilia have little or no
clotting factor. Clotting factor is a protein needed for normal blood clotting,"

"What is Hemophitia? http://www.nhlbi.nih. gow/health/health-topies/topies/hemophilia


According to the World Hemophilia Foundation, there could be some 10,000
Filipinos affected with hemophilia and around one million others with von Willebrand
Disease and other clotting factor deficiency disorders’ and only about 1,200 Filipinos
were diagnosed of these disorders.

Hemophilia is a lifelong condition with no cure other than liver transplantation,
a procedure that can sometimes cause health problems more serious than
hemophilia itself. But hemophilia can be successfully managed by knowing when
and how to treat a bleeding episode, and getting regular treatments that replace the
missing clotting factor. In other words, persons with hemophilia can still lead full and
normal lives.

This Bill seeks to address the plight of hemophilia patients for the purpose of
providing adequate and easy access to treatment and to raise public awareness
regarding these bleeding disorders.

Specifically, the bill provides for the establishment of treatment centers for the
early detection of Hemophilia and other bleeding disorders and the treatment
thereof, and for continuing studies and researches for various treatments, detection,
approaches to deal with Hemophilia and other bleeding disorders

This bill was originally filed by Senator Grace Poe in the Senate. In view of the
foregoing reasons, the passage of this bill is earnestly sought.

MARK A. VILLAR

? Many Pinoys with Hemophilia Can't Get Treatment, Andrea Trinidad Echaves, Phil. Daily Inquirer, Page
AI, April 20, 2015


Republic of the Philippines
HOUSE OF REPRESENTATIVES
Quezon City, Metro Manila

SIXTEENTH CONGRESS
Second Regular Session

5700

HOUSE BILL NO.

Introduced by Honorable MARK A. VILLAR

AN ACT
TO ASSIST PERSONS WITH HEMOPHILIA AND OTHER BLEEDING
DISORDERS, ESTABLISHING FOR THE PURPOSE FOUR (4) TREATMENT
CENTERS IN METRO MANILA, LUZON, VISAYAS AND MINDANAO, PROVIDING
FUNDS THEREOF, AND FOR OTHER PURPOSES

Be it enacted by the Senate and House of Representatives of the Philippines
in Congress assembled.

SECTION 1. Establishment of Treatment Centers for Persons with
Hemophilia and Other Bleeding Disorders. There shall be four (4) treatment
centers to be established for persons with Hemophilia and other bleeding disorders -
one in the Philippine General Hospital (PGH) for Metro Manila, one each in a public-
or state-owned hospital in Luzon, Visayas and Mindanao.

SEC. 2. Establishment of a Small Council to Implement the Provisions of
this Act. A small council shall be established to implement the provisions of this Act
Said small council shall be composed of the following:

a) A representative from the Department of Health (DOH) to be designated by,
and shall be acting as the representative of, the Secretary of DOH;

b) One medical practitioner or a representative from the academe specializing in
Hemophilia and other bleeding disorders; and

c) One representative from an organization of patients or persons suffering from
Hemophilia and other bleeding disorders.


SEC. 3. Appropriation. The amount of One Hundred Million Pesos
(Php100,000,000.00) shall be initially appropriated for the implementation of
the provisions of this Act.

SEC. 4. Continuing Studies and Researches. The small council shall
cause continuing studies and researches for various treatments, detection,
approaches to deal with Hemophilia and other bleeding disorders.

SEC. 5. Effectivity. This Act shall take effect after fifteen (15) days following
its publication in the Official Gazette or in at least two newspapers of general
circulation.

Approved,