Republic of the Philippines
HOUSE OF REPRESENTATIVES
Quezon City

SEVENTEENTH CONGRESS
Third Regular Session

House Bill No, 8333

Introduced by Representative John Marvin “Yul Servo” Nieto

EXPLANATORY NOTE:

As a manifestation of support to this timely piece of legislation, this
representation respectfully refiles this bill, which has constantly been receiving
support from the past (Rep. Villar’s HB 5700) and present Congress.

Hemophilia is a rare bleeding disorder in which the blood doesn’t clot normally
because it lacks the sufficient blood-clotting proteins. It is a inherited genetic
disorder meaning that it is passed from parents to children through genes.

Hemophilia is a lifelong condition with no cure aside from undergoing a liver
transplantation which may pose more health problems and complications than
hemophilia itself. Despite the lack of cure, it can be managed by knowing when
and how to treat a bleeding episode, and getting regular treatments that
replace the missing clotting factor.

This measure seeks to address the need for adequate and accessible treatment
for Hemophilia patients and at the same time, raise public awareness regarding
these bleeding disorders. Also, this measure seeks to provide for the
establishment of treatment centers for the early detection of Hemophilia and
other bleeding disorders.

In view of the foregoing, the passage of this measure is earnestly sought.

,

JOHN IN YYUL SERVO” NIETO


Republic of the Philippines :
HOUSE OF REPRESENTATIVES
Quezon City

SEVENTEENTH CONGRESS
Third Regular Session

House Bill No. 8333

Introduced by Representative John Marvin “Yul Servo” Nieto

AN ACT
TO ASSIST PERSONS WITH HEMOPHILIA AND OTHER BLEEDING
DISORDERS, ESTABLISHING FOR THE PURPOSE FOUR (4) TREATMENT
CENTERS IN METRO MANILA, LUZON, VISAYAS AND MINDANAO,
PROVIDING FUNDS THEREOF, AND FOR OTHER PURPOSES

Be it enacted by the Senate and House of Representatives of the Philippines in
Congress assembled:

SECTION 1. Establishment of Treatment Centers for Persons with
Hemophilia and Other Bleeding Disorders. - There shall be four (4)
treatment centers to be established for persons with Hemophilia and other
bleeding disorders - one in the Philippine General Hospital (PGH) for Metro
Manila, one each in a public or state-owned hospital in Luzon, Visayas and
Mindanao.

SEC. 2. Establishment of a Small Council to Implement the Provisions of
this Act. - A small council shall be established to implement the provisions of
this Act. Said small council shall be composed of the following:

a. A representative from the Department of Health (DOH) to be
designated by, and shall be acting as the representative of the Secretary
of DOH;

b. One medical practitioner or a representative from the academe
specializing in Hemophilia and other bleeding disorders, and

c. One representative from an organization of patients or persons
suffering from Hemophilia and other bleeding disorders.


SEC. 3. Appropriation. - The amount of One Hundred Million Pesos
(Php100,000,000.00) shall be initially appropriated for the implementation of
the provisions of this Act.

SEC. 4. Continuing Studies and Researches. - The small council shall cause
continuing studies and researches for various treatments, detection, approaches
to deal with Hemophilia and other bleeding disorders.

SEC. 5. Effectivity. - This Act shall take effect after fifteen (15) days following
its publication in the Official Gazette or in at least two newspapers of general
circulation.

Approved,