No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .
The Genetic Knowledge Index: developing a standard measure of genetic knowledge.
This paper reports on the development of a unidimensional genetic knowledge index that has been tested and vali date d in a general population sample . The Index is intended to provide the basis for a st and ard measure of basic genetic knowledge that can be applied across diverse population s and research setting s. The study group was composed of 330 European Americans selected r and omly in the Louisville , KY , metropolitan area . The final version of the  Genetic Knowledge Index ( GKI ) consisted of five items identified by principle components analysis , correlation coefficients , and the alpha measure of internal consistency . Construct validity of the GKI was determined by appropriate statistical correlations with educational attainment and attitudes toward genetic discrimination . The Index provides a numerical ranking of subjects ' knowledge of practical genetics . Implication s for research are discussed
No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .