No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .
An exploratory comparison of genetic counselling protocols for HNPCC predictive testing
Most UK genetics centres offering predictive testing for hereditary non‐polyposis colorectal cancer ( HNPCC ) use an extended counselling protocol originally developed for Huntington 's disease . Shortened counselling may be more appropriate in the context of treatable genetic conditions such as HNPCC . Twenty‐six high‐risk individuals were r and omized to extended genetic counselling ( two sessions of education and reflection held 1 month apart ) or shortened genetic counselling ( a single educational session ) prior to HNPCC testing . Prospect i ve question naires , interviews and transcripts of counselling sessions were analysed . Participants were unsure what to expect prior to genetic counselling and had already decided to undergo genetic testing . There was no evidence of psychological harm caused by shortened genetic counselling , with a high level of satisfaction with the counselling received in both groups . Reflective counselling occurred in both groups but was framed in terms of practical action and information . Participants expressed differing preferences for the level of information received . This exploratory study indicates that shortened genetic counselling may be an appropriate means of supporting decisions already made by individuals about HNPCC testing . However , participants would benefit from preparatory information to help them reflect on issues not previously considered , which can then be explored more fully as part of a tailored counselling approach
No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .