No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .
Mid-pregnancy genetic terminations of pregnancy--postnatal assessment and management.
STUDY OBJECTIVE To assess the need for and ability to apply a  postnatal assessment protocol ( PNAP ) , consisting of clinical examination , photographs , radiographs , chromosomal analysis and postmortems , of fetuses from mid-pregnancy genetic terminations of pregnancy . DESIGN Prospect i ve hospital-based study . SETTING The maternity unit at the Pretoria Academic Hospital . MAIN RESULTS Fifty consecutively delivered fetuses were assessed by means of the PNAP  after genetic termination of pregnancy . A definitive prenatal diagnosis was available in 17 ( 34 % ) cases . In 33 ( 66 % ) cases the termination was undertaken on the basis of a provisional prenatal diagnosis which was confirmed postnatally in 12 ( 24 % ) cases ; a definitive postnatal diagnosis could not be confirmed in 5 ( 10 % ) cases . In the remaining 16 ( 32 % ) cases a totally different postnatal diagnosis was obtained . The definitive postnatal diagnoses in the 28 cases with provisional prenatal diagnoses were confirmed by clinical examination in 13 ( 26 % ) , by chromosomal analysis in 7 ( 14 % ) , by postmortem in 5 ( 10 % ) and with radiographs in 3 ( 6 % ) . On retrospective analysis , 22 of the 33 provisional prenatal diagnoses could have been confirmed using available radiographs , chromosome results and photographs only . CONCLUSIONS Genetic terminations of pregnancy are a subgroup of stillbirths for which a PNAP is essential to ensure that appropriate postnatal genetic counselling can be given to the parent(s )
No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .