No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .
Women's knowledge, concerns and psychological reactions before undergoing an invasive procedure for prenatal karyotyping.
OBJECTIVES To evaluate women 's reasons for having an invasive procedure , their knowledge , how information was obtained , their satisfaction with this information , their concerns about complications and psychological reactions and distress evoked by the procedure . METHODS Ninety-four pregnant women undergoing early amniocentesis or chorionic villus sampling ( CVS ) at 10 - 13 weeks ' gestation participated in a question naire study . The women could choose between early amniocentesis ( n = 38 ) and CVS ( n = 31 ) , or to be r and omized to either of them ( n = 25 ) . RESULTS Apart from two items , no differences were found between the groups . Age was the main reason for testing , and anxiety was stated as a reason by 38.3 % . The women knew more about methods for fetal karyotyping , what the tests can reveal and how they are performed , than about the risks and reliability of the tests . The main source of information had been doctors and midwives at the antenatal care center . For a majority of women ( 64.9 % ) the decision to have the test was made together with their partner . The women 's concerns were focused on worry about fetal injury , miscarriage and waiting for the result . The test did not have a major psychological impact on the women in general , but a substantial minority reacted with anxiety and distress . CONCLUSIONS Knowledge of factors important to women and their concerns is essential for professionals working with genetic counselling and performance of invasive procedures
No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .