Conclusion : Systemic changes to academic and funding structures could better support eHealth tool availability and may reduce potential for research waste .
Abstract Introduction : Numerous eHealth tools for pain assessment and management have been developed and evaluated with promising results regarding psychometric properties , efficacy , and effectiveness .
Although considerable re sources are spent on developing and evaluating these tools with the aim of increasing access to care , current evidence suggests they are not made available to end users , reducing their impact and creating potential research waste .
Promising insights into the health related quality of life for children with severe obesity
Background Childhood obesity is a growing health concern known to adversely affect quality of life in children and adolescents . The Patient Reported Outcomes Measurement Information System ( PROMIS ) pediatric measures were developed to capture child self-reports across a variety of health conditions experienced by children and adolescents . The purpose of this study is to begin the process of validation of the PROMIS pediatric measures in children and adolescents affected by obesity . Methods The pediatric PROMIS instruments were administered to 138 children and adolescents in a cross-sectional study of patient reported outcomes in children aged 8–17 years with age-adjusted body mass index ( BMI ) greater than the 85th percentile in a design to establish known-group validity . The children completed the  depressive symptoms , anxiety , anger , peer relationships , pain interference , fatigue , upper extremity , and mobility PROMIS domains utilizing a computer interface . PROMIS domains and individual items were administered in r and om order and included a total of 95 items . Patient responses were compared between patients with BMI 85 to < 99th percentile versus ≥ 99th percentile . Results 136 participants were recruited and had all necessary clinical data for analysis . Of the 136 participants , 5 % ended the survey early result ing in missing domain scores at the end of survey administration . In multivariate analysis , patients with BMI ≥ 99th percentile had worse scores for depressive symptoms , anger , fatigue , and mobility ( p < 0.05 ) . Parent-reported exercise was associated with better scores for depressive symptoms , anxiety , and fatigue ( p < 0.05 ) . Conclusions Children and adolescents ranging from overweight to severely obese can complete multiple PROMIS pediatric measures using a computer interface in the outpatient setting . In the 5 % with missing domain scores , the missing scores were consistently found in the domains administered last , suggesting the length of the assessment is important . The differences in domain scores found in this study are consistent with previous reports investigating the quality of life in children and adolescents with obesity . We show that the PROMIS instrument represents a feasible and potentially valuable instrument for the future study of the effect of pediatric obesity on quality of life
Conclusion : Systemic changes to academic and funding structures could better support eHealth tool availability and may reduce potential for research waste .
Abstract Introduction : Numerous eHealth tools for pain assessment and management have been developed and evaluated with promising results regarding psychometric properties , efficacy , and effectiveness .
Although considerable re sources are spent on developing and evaluating these tools with the aim of increasing access to care , current evidence suggests they are not made available to end users , reducing their impact and creating potential research waste .