Conclusion : Systemic changes to academic and funding structures could better support eHealth tool availability and may reduce potential for research waste .
Abstract Introduction : Numerous eHealth tools for pain assessment and management have been developed and evaluated with promising results regarding psychometric properties , efficacy , and effectiveness .
Although considerable re sources are spent on developing and evaluating these tools with the aim of increasing access to care , current evidence suggests they are not made available to end users , reducing their impact and creating potential research waste .
Comparing patient and parent recall of 90-day and 30-day migraine disability using elements of the PedMIDAS and an Internet headache diary
Aim The aim of this article is to compare 90-day and 30-day recall of Pediatric Migraine Disability Assessment ( PedMIDAS ) elements and headache frequency against daily entries from an Internet headache diary among pediatric patients and their parents . Methods In a prospect i ve cohort study , patients aged 10–18 years with episodic migraine or probable migraine completed a 90-day Internet-based headache diary that incorporated PedMIDAS questions . Following the 90-day diary period , patients and parents completed modified PedMIDAS instruments to assess 90-day and 30-day recall . Intraclass correlation coefficients ( ICC ) were calculated to measure recall reliability . The Kruskal-Wallis and Jonckheere-Terpstra tests were used to explore recall accuracy as it relates to each participant ’s self-reported confidence in recall and to patient age . Results Fifty-two subjects completed 90 consecutive diary entries . Comparing 30-day to 90-day recall of PedMIDAS elements , ICC scores improved by 26.2 % ( patients ) and 17.5 % ( parents ) . Patients had better recall than their parents for all study measures . Self-reported confidence in recall and patient age had limited and inconsistent effects on recall accuracy . Conclusion The optimal recall interval to assess migraine disability must balance recall accuracy with generalizability across a range of headache frequencies . When compared to daily diary entries , recall accuracy of PedMIDAS elements and headache frequency improves at 30 days compared to 90 days . Parent report of migraine disability should not be used as a replacement for patient report
Conclusion : Systemic changes to academic and funding structures could better support eHealth tool availability and may reduce potential for research waste .
Abstract Introduction : Numerous eHealth tools for pain assessment and management have been developed and evaluated with promising results regarding psychometric properties , efficacy , and effectiveness .
Although considerable re sources are spent on developing and evaluating these tools with the aim of increasing access to care , current evidence suggests they are not made available to end users , reducing their impact and creating potential research waste .