No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .
Effects of risk counseling on interest in breast cancer genetic testing for lower risk women
Purpose : A r and omized trial was conducted to test the effects of two counseling methods ( genetic counseling and group counseling ) against a control no-intervention condition on interest in genetic testing in lower risk women . Methods : After completing baseline surveys , women ( N = 357 ) were r and omized to one of three conditions : to receive individual genetic risk counseling , to receive a group psychosocial group counseling , or to serve as a control group . Participants completed follow-up question naires 6 months after r and omization . Results : All participants had some familial history of breast cancer , but none had a family history indicative of autosomal dominant genetic mutation . At baseline over three fourths of the sample judged themselves to be appropriate c and i date s for testing . By the end of the survey , two thirds ( 70 % ) of the women in the counseling group still judged themselves to be appropriate c and i date s for testing . Findings were similar for interest in genetic testing . Changes in beliefs about genetic testing ( e.g. , beliefs about potential stigma associated with testing ) altered the effects of counseling . Conclusion : These results indicate that counseling can change interest in genetic testing only slightly and that changing women ’s beliefs about the properties of testing might be one mechanism of doing so
No single vali date d outcome measure encompassed all potential patient benefits from using a CGS .
A variety of different domains were identified , including anxiety and depression , coping , decision-making , distress , family environment , health status , knowledge , mood , perception of risk , perceived personal control , psychological impact , quality of life , satisfaction and expectations , self-esteem , spiritual well-being , and worry .
Some important aspects of patient benefit from CGS are not covered by existing outcome measures .
OBJECTIVE This systematic review aim ed to inform research ers and policymakers about what vali date d outcome measures are available to evaluate clinical genetics services ( CGS ) and the need for new measures .