argyrotsipi/train-dataset huggingface dataset:
Autism Community: Mental Health and Suicide — House of Commons, 2017-11-30
Topic: Health
Anne-Marie Belinda Trevelyan (Conservative, Centre-right): I absolutely agree. I work closely in my constituency with the families who are supporting their autistic children. Clearly, dealing with strangers, with the unfamiliar, and with group dynamics is possibly one of the most difficult things to ask an autistic young person—or indeed an older person—to take on We have for too long neglected the research into mental health therapies for our autistic community, even though that tops the list of research priorities if we ask those in that sector. I very much hope that the Government will look to support those who are doing this work. In our manifesto, we said that we "will address the need for better treatments across the whole spectrum of mental health conditions"— by— "making the UK the leading research and technology economy in the world for mental health, bringing together public, private and charitable investment." I support those words wholeheartedly and hope that the Minister will be encouraging and will help us to do much more Thirdly, let me mention NHS data gathering—this is an issue that comes up in any number of NHS-related debates, but it is critical in this one. GPs are so often the first port of call for those with mental ill health. Going to a GP can be really, really difficult for autistic people. It is an environment with unfamiliar lighting, sounds and rules that cannot be escaped. The hon. Lady’s example of a bell going off is a classic one. It is the unfamiliarity and the pitch of the unexpected sound. There is a lack of understanding by neuro-typicals about what certain pitches of sound can do to those who have hyper-sensitivities. To an autistic young boy or girl, it can be like a bomb going off. We need to consider the impact of such things on those with these heightened sensitivities, especially when they are in a strange place and already in a state of anxiety. Strip lighting in public spaces is another thing that creates enormous tension.
Autism Community: Mental Health and Suicide — House of Commons, 2017-11-30
Topic: Health
Anne-Marie Belinda Trevelyan (Conservative, Centre-right): The hon. Lady is exactly right. I have experienced many times the meltdown of a small child in a supermarket aisle and had people either offer a word of support or—usually—criticise me for being a bad parent. The line I always used was, "You tell me when you have an autistic child and take them shopping, and I’ll tell you what the problem is". It is very difficult to understand. We need to provide places of calm. Cinemas do it, and we can do it too. I ask that the Minister take this forward and take on the challenge of getting those quality and outcomes frameworks to work so that our GPs can provide the support that people need.
Autism Community: Mental Health and Suicide — House of Commons, 2017-11-30
Topic: Health
Eleanor Fulton Laing (Conservative, Centre-right): Happy St Andrew’s day. Question put and agreed to. Resolved, That this House has considered the support available for autistic people experiencing mental health problems; calls on the Government to ensure that the NICE-recommended indicator for autism in GP registers is included in the Quality and Outcomes Framework; and further calls on the Government to ensure NHS England works closely with the autism community to develop effective and research-based mental health pathways.
Public Sector Cyber-security — House of Commons, 2017-11-22
Topic: Defense
Damian Howard Green (Conservative, Centre-right): My hon. Friend is right that we need proper co-ordination. That co-ordination role falls to the Cabinet Office, but clearly there are important areas where the Home Office has direct responsibility for operational matters, and obviously the Ministry of Defence has responsibilities in purely military terms. I am happy to reassure him that the co-ordination comes through the Cabinet Office.
Topical Questions — House of Commons, 2017-11-22
Topic: Health
Damian Howard Green (Conservative, Centre-right): Following the Prime Minister’s July announcement that a public inquiry will be held into the contaminated blood scandal, the Government sought views from the affected community on how that should operate. I announced on 3 November that the inquiry will be statutory and sponsored by the Cabinet Office. My Department has now taken receipt of more than 800 consultation responses, which it is analysing thoroughly. I have agreed to meet the co-chairs of the all-party parliamentary group on haemophilia and contaminated blood and will make a further statement before the House rises for Christmas.
Topical Questions — House of Commons, 2017-11-22
Topic: Health
Questions: As we leave the European Union, public appointments will become more important than ever. What are the Government doing to make sure that we get a greater diversity of people appointed to public posts, especially from outside the south-east?; The Minister is in charge of cyber-security. He knows that the Prime Minister is worried about Russian interference in our political system, so could he assure the House that the Russians have not already seen the Budget secrets?; Cambridge Assessment, which manages the University of Cambridge’s three exam boards, is not-for-profit and world leading, yet it faces unfair competition from private exam boards that are not subject to freedom of information rules. Why will the Government not extend transparency to all providers of public services?
Damian Howard Green (Conservative, Centre-right): The hon. Lady raises a very serious point. The contaminated blood scandal of the ’70s and ’80s was an appalling tragedy that should not have happened. She will, I am sure, appreciate that not only did we receive 800 responses to the consultation but, at the request of the all-party parliamentary group on haemophilia and contaminated blood, the end of that consultation was delayed until the end of October. All the decisions on the chair and the other things that need to be determined will, as I have already committed, be set out to the House before the Christmas recess.
Raqqa and Daesh — House of Commons, 2017-10-24
Topic: Defense
Alistair James Hendrie Burt (Conservative, Centre-right): I thank the hon. Gentleman for his continued engagement on this important issue. Raqqa was officially liberated on 20 October. The Syrian Democratic Forces, supported by the global coalition against Daesh, began operations to liberate Raqqa in June 2017. Military operations are ongoing. My right hon. Friend the Secretary of State for Defence has highlighted the continued leading role that the UK is playing as part of the global coalition’s counter-Daesh campaign, and we in this House pay tribute to the courage, commitment and effectiveness of the British forces overseas. The United Kingdom is the second largest military contributor to the global coalition and plays a leading role in the humanitarian response The liberation of Raqqa this month follows significant Daesh territorial losses in Iraq, including Mosul in July. Daesh has now lost more than 90% of the territory it once occupied in Iraq and Syria. The Foreign Secretary will in due course provide a full update to the House on the counter-Daesh campaign, including the operation to liberate Raqqa. I look forward to providing the hon. Gentleman and other Members with further information in due course.
Raqqa and Daesh — House of Commons, 2017-10-24
Topic: Defense
Alistair James Hendrie Burt (Conservative, Centre-right): On the first part of the hon. Gentleman’s question, only 0.31% of coalition air strikes result in a credible report of civilian casualties, highlighting the care taken by the coalition to avoid such casualties. We have not seen any evidence that we have caused civilian casualties, but that is not the same as saying that we have not or will not, especially in close urban fighting against a ruthless terrorist enemy that uses civilians as human shields. Hopefully, the relief of Raqqa will make that likelihood still less The question about the other air strikes that have taken place and the use of other forces is one for others to answer, but the hon. Gentleman is correct about the care taken by the coalition, and particularly by the RAF. The RAF’s rules of engagement, avoiding strikes where it is known there are civilians, are very clear. Others must be responsible for their actions, but actions and air strikes that have unnecessarily taken civilian lives make the process of reconciliation afterwards so much harder and therefore fuel the causes of further conflict, which the UK has tried desperately hard not to do.
Raqqa and Daesh — House of Commons, 2017-10-24
Topic: Defense
Philip Thomas Hollobone (Conservative, Centre-right): My constituents in Kettering are increasingly alarmed about the number of British jihadists who have been fighting our armed forces personnel in Iraq and Syria. My understanding is that about 850 of them have been identified, of whom about 400 are already back in the UK. Please correct me if I am wrong but I do not believe that there has been a single prosecution for any offence. Will the Minister try to understand that if no effective action is taken against these people in this country, it will send a positive signal to potential jihadists to Syria to say, "We can go off and fight British services overseas because nothing will happen to us when we return."
Topical Questions — House of Commons, 2017-10-31
Topic: Health
Questions: As my hon. Friend the Minister is aware, Kirkham Prison is a category D open prison in my constituency that works to enable prisoners to make the transition to life outside. What steps are the Government are taking to support Kirkham and other prisons to rehabilitate offenders and to improve prisons’ ways of operating?; Why are the Government planning to give security companies and bailiffs the power of arrest, because that will be the result of privatising the collection of court fees? A petition opposing those plans has been signed by 16,000 people because they do not believe that either 150 jobs, or the safety and finances of vulnerable people, should be put at risk.; What steps are the Department taking to ensure that there is adequate funding for youth justice services in places such as Warwickshire, which has seen significant funding cuts?; Sixty-one per cent. of women who leave prison after a sentence of less than 12 months are reconvicted in the first year. In my recent Westminster Hall debate on women leaving prison, the Minister made various commitments about new interventions and various reviews to support women in prison and those leaving it. When will those reviews be complete? When will there be a better, fuller programme to support women in and leaving prison?; Some 54,000 women lose their jobs each year due to pregnancy and maternity discrimination. The Secretary of State may remember the chaos of the early weeks of caring for a newborn, but the time limit for bringing an employment tribunal claim is just three months, so will he look again at this issue, as recommended by the Women and Equalities Committee, the Justice Committee and the Equality and Human Rights Commission, and extend the time limit for claims related to pregnancy and maternity discrimination?; The Government have new proposals to limit legal costs and damages recovered in clinical negligence cases. Patient groups are extremely concerned this will mean serious cases involving older people, child deaths and stillbirths will be impossible to pursue. Will the Minister meet me and those groups to hear their concerns and to sort out the proposals?
David Roy Lidington (Conservative, Centre-right): Serious and sensitive though that matter undoubtedly is, it falls in large part to the Department of Health, but either myself or the Minister of State would be happy to discuss it further with the hon. Lady.
Gaming Machines and Social Responsibility — House of Commons, 2017-10-31
Topic: Culture
John Flasby Lawrance Whittingdale (Conservative, Centre-right): I welcome the announcement of the consultation, particularly as there is now information about the effect of category B2 machines that did not exist when the Culture, Media and Sport Committee looked into the matter around five years ago. Will the Minister confirm that the Government’s position remains that any future decisions will be evidence-based?
Gaming Machines and Social Responsibility — House of Commons, 2017-10-31
Topic: Health
Tracey Elizabeth Anne Crouch (Conservative, Centre-right): I am happy to commend the work being done in the hon. Lady’s constituency. There is a shortage of places dealing specifically with gambling addiction. We would like to see the situation vastly improved, and we are talking to colleagues in the Department of Health to ensure that that happens. I hope the hon. Lady heard my answer to the previous question, which was that the industry should contribute more on a voluntary basis, but if it does not, we will consider a mandatory levy.
Gaming Machines and Social Responsibility — House of Commons, 2017-10-31
Topic: Health
Tracey Elizabeth Anne Crouch (Conservative, Centre-right): That is exactly what we are doing. As part of the call for evidence, a lot of those issues came through. My hon. Friend is a member of the Health Committee, which took evidence from a professor with expertise in this issue, who, sadly, related some of the facts around suicides related to gambling. It is really important that we remember that it is not just the person who is gambling who faces the consequences of harm but the families and the communities they live in. That is why we are trying to take a balanced approach and having a full, open consultation about ensuring we have a socially responsible sector that protects those most at risk of harm.
Pompe Disease — House of Commons, 2017-10-31
Topic: Health
Stephen Charles Brine (Conservative, Centre-right): I congratulate the hon. Member for Torfaen (Nick Thomas-Symonds) on securing this debate. I often think this about Adjournment debates, but this shows how excellent the House of Commons is in that it can debate a Finance Bill and then discuss a condition like Pompe disease I read the hon. Gentleman’s article in The Times this morning. The article was well written, and it set out very clearly the heart-breaking impact that this disease has had on his constituent’s health. I am sure his constituent appreciates very much the way he has taken up the issue. Well done for getting an article in The Times I hope my response will go some way to reassuring the hon. Gentleman and his constituent that the importance of understanding how to recognise and treat rare diseases such as Pompe disease is increasingly recognised by policy makers and healthcare service providers, not just in England but across the UK and internationally The hon. Gentleman spoke movingly about the subject, and he is of course right to praise the army of carers in our country. Carers Week is a big deal in my constituency, as I am sure it is in his, and he is absolutely right to praise the work of Muscular Dystrophy UK. When I was a Back-Bench MP, I was a member of the all-party parliamentary group on muscular dystrophy, which was chaired by a now former Member. Having grown up with friends who suffered with muscular dystrophy, and who ultimately lost their fight, I have a lot of time and respect for Muscular Dystrophy UK The number of rare disease patients can be very small. For example, Pompe disease has an estimated prevalence of one in every 40,000 births, but collectively some 3.5 million people in the UK alone are affected by what we term, in policy terms, rare diseases. To put this in context, one in 17 people will therefore suffer from a rare disease at some point in their lives. As we have heard, patients with Pompe disease are deficient in or completely lacking the activity of an enzyme that affects the ability of cells to degrade glycogen, causing its build-up in the body cells, which impairs their ability to function normally. Pompe disease often affects neonates—newborn children—and becomes apparent from within a few days to a few months after they have been born. Sadly, affected infants often require long periods in paediatric intensive care units, with many going on to require long-term mechanical ventilation, as the hon. Gentleman said.
Pompe Disease — House of Commons, 2017-10-31
Topic: Health
Stephen Charles Brine (Conservative, Centre-right): The hon. Gentleman makes a good point, and I know my officials will be listening carefully to what he says. I may come to touch on that point, if I do not deal with it specifically, but I am sure he will remind me Some patients with Pompe disease are treated with an enzyme replacement therapy called Myozyme, which is a direct replacement of the missing enzyme via infusion therapy. Myozyme dramatically alters the natural history of the disease in infants, but many patients still require complex long-term follow-up, as the hon. Gentleman’s constituent does. NHS England commissions its service for patients with Pompe disease from eight national centres; five of these are for adults and three are for children. The centres provide an inclusive, holistic, multi-disciplinary service—the point the hon. Gentleman rightly makes—for patients with lysosomal storage disorders. That is the wider term for these conditions, including Pompe disease. The centres provide rapid diagnosis, an assessment of disease burden, provision of disease-specific therapy, advice on symptom control and palliative care, where this is, sadly, necessary for patients with untreatable disorders. In conjunction with patient advocacy groups, the centres also provide support for affected families. We of course support these centres utterly—that point was put on the record so well, as usual, by the hon. Member for Strangford (Jim Shannon) As the hon. Member for Torfaen says, late-onset Pompe disease may not become apparent until later in childhood, adolescence or most commonly, as in the case of his constituent, Mr Foxwell, in adulthood. Although late-onset Pompe disease is usually milder than the infant forms of the condition, patients can experience progressive muscle weakness in the legs and trunk—the main body—and it can affect the muscles that control breathing, which is why the mechanical ventilation becomes necessary. As we have heard, as the condition progresses, breathing problems can become more serious and often prove fatal We know more can be done to diagnose rare conditions earlier. Currently, the average rare-disease patient consults five doctors, can receive up to three misdiagnoses and waits four years before receiving their final diagnosis. These delays in diagnosis often mean that opportunities for timely interventions can be missed and/or that patients may be given unsuitable or harmful treatments to treat their misdiagnosed condition; more than half of patients wait for more than one year after the first symptoms and some have waited over 20 years. Although not a great term, I am reliably informed that this is called a "diagnostic odyssey", which causes uncertainty and distress for those affected, as well as considerable costs for health and social care budgets. We should remember that The 100,000 Genomes Project—
Pompe Disease — House of Commons, 2017-10-31
Topic: Health
Stephen Charles Brine (Conservative, Centre-right): I completely agree with the hon. Gentleman. That is why I said that research is absolutely central to this. Let us be honest: this country has led the world in this field. We have an absolutely fantastic record and long may that continue, because people’s lives benefit and depend on that. Once again, he is spot on. Let me conclude my point. In 2016-17, the NHIR research infrastructure supported studies into Pompe disease across nine of its centres and facilities The hon. Gentleman referred to national variations in access to Myozyme treatment for Pompe disease across the UK. In England, NHS England funds this treatment for all patients, regardless of age or the form of the disease. In Scotland, the Scottish Medicines Consortium does not accept Myozyme for routine use, but it is funded for children and adults by its ultra-orphan drugs risk scheme. NHS Scotland also provides any patients with particularly complex needs access to highly specialised services in England. In Wales, I understand that the treatment is funded for children and adults with late onset of the juvenile form of the disease, but not the adult form where the symptoms are less severe As the hon. Gentleman will be aware, healthcare in Wales is a devolved matter, but I am sure that he will raise any concerns with the Welsh Government. I was delighted to hear about the setting up of Pompe Wales, which he talked about in his speech. It sounds really interesting. Obviously, it is in Wales, so perhaps he could send me details of it when it becomes available.
Pompe Disease — House of Commons, 2017-10-31
Topic: Health
Stephen Charles Brine (Conservative, Centre-right): The hon. Gentleman has put that clearly on the record Finally, it is worth noting that the rare disease landscape has been greatly transformed since the UK strategy was published in 2013, especially considering Brexit, the evolving legacy of the 100,000 Genomes Project and new emerging technologies such as genome editing. The recent independent chief medical officer’s report "Generation Genome", which I said at Health questions was a landmark piece of work, and the "Life Sciences: Industrial Strategy" make it clear that genomics has an important role to play in future healthcare delivery, including the treatment of rare diseases. The House of Commons Science and Technology Committee is also currently engaged in an inquiry into genomics and genome editing in the NHS, and I look forward to seeing its report in due course. I can assure the hon. Gentleman that we will harness the remarkable prospects that these new developments present for the benefit of our rare diseases patients. The NHS has always harnessed new technology to lead the world, and it will continue to do so in this field I thank the hon. Gentleman once again for highlighting these issues in this debate and in today’s media for his constituent and for all those who suffer from Pompe disease and other rare diseases. I hope that I have helped to reassure them a little that the Government and the NHS are working hard to tackle these conditions and to help to improve the lives of people suffering from Pompe disease and other rare diseases because, ultimately, that is what we are here for Question put and agreed to.
Taylor Review — House of Commons, 2017-12-12
Topic: Health
Margot Cathleen James (Conservative, Centre-right): The hon. Lady puts her finger on precisely why the Prime Minister commissioned the Taylor review in the first place. When employers are indulging in practices such as those the hon. Lady outlines there will definitely be a deleterious effect on employees’ health, and they should be roundly condemned.