Paediatric Cancers of the Central Nervous System — House of Commons, 2018-10-22
Topic: Health
Christopher Philip James Elmore (Labour, Centre-left): I entirely agree with my hon. Friend. I will move on to the big B and the big C shortly Many of the children Cian was in hospital with had previously been sent abroad to participate in medical trials, including proton therapy. Will the Minister please look at what more we can do to collaborate with international drug trials and trials of new therapies to ensure that we have the most up-to-date treatments available here in the UK? Just as cancer affects so many people, so our efforts to counter it must include as many people as possible. This is simply not something that we can tackle alone Sadly, while the majority of my remarks have been about the big C, I must, as ever, touch on the big B. As we leave the European Union, it cannot be stressed enough how important it is for us to continue to work with our European partners to fund research, and indeed to undertake research ourselves into rare cancers. It is vital that we continue to play our part in EU research and development projects of genuine international importance. We must also continue to work with the European Association for Cancer Research, because we simply cannot sacrifice the potential new cancer treatments we will uncover in the name of, in my view, a misguided sense of regaining sovereignty. Indeed, the current treatment is agreed at EU level. Having first been established in 2002, the treatment was last fully reviewed in 2009. The drugs being used to treat this type of cancer are old in relative terms, showing what a vital role international governance can and will play in helping to improve outcomes in the future. Overall, the message I want to get across today is clear. So many cancers rightly receive a great deal of attention and research funding. I would argue that, just because rarer cancers, such as the one Cian suffered from, affect fewer people, that does not mean that we should not be as targeted or as innovative in our efforts to fight them If you will allow me, Madam Deputy Speaker, I would like to mention briefly the brilliant and selfless work Cian’s family have been doing to raise awareness of this particular type of cancer, and their work in fighting for new research and treatments for such paediatric cancers. Cian’s father, Richard, is in the Gallery today. I pay tribute to him and Cian’s mum, Lorraine, and his siblings Dillan aged 11 and Bethan aged 9, for their bravery. [Hon. Members: "Hear, hear."] From when Cian was first diagnosed in November 2015, to when he was told in June 2016 that the tumours had gone, through to when he sadly relapsed in November 2017, his family have tirelessly raised awareness. His community have fundraised and, since his passing, they have continued their efforts I pay tribute to Cian’s family for all their efforts in the most difficult of circumstances. I would like to thank the whole community of Llanharan, the surrounding villages and far beyond, whose support for Cian has been unwavering. The online funding page set up following Cian’s death raised in excess of £6,000, which is going to help the charities who supported Cian and his family throughout his treatment. I am sure you will agree, Madam Deputy Speaker, that this shows what a mark this little boy has made on his local community. Likewise, I am so proud of all the staff, pupils and parents at Llanharan primary school, the school Cian attended, who were so supportive to Cian throughout his journey and who have been there for his parents and friends since. I was privileged to attend the memorial event they held shortly after Cian died. I am always proud to serve my constituents from the many communities across Ogmore, but I have to say that being part of this outpouring of love in the most tragic of circumstances was truly a privilege. I would like to put on record my thanks to Cian’s headteacher, Mrs Price, his class teacher, Mr Arthur, and all his school friends and the wider school community for the support and generosity they have shown Cian and his family. They planted bulbs which will bloom every year in his memory, so that Cian can never be forgotten I admit that there is no easy answer to the issues I have raised today. It will not be solved overnight simply by throwing money at it. The sad reality is that while we seek to meet some of the challenges, other families like Cian’s will sadly suffer the same anguish in the future. It is therefore essential that we raise awareness of the symptoms to look out for to ensure that this disease can be caught early, giving those unlucky few the best chance of survival. The National Cancer Institute finds that children who have developed AT/RT may experience the following: headaches, particularly in the morning; nausea or vomiting; fatigue or lethargy; difficulty with balance and co-ordination; and an increase in the size of their head. Because AT/RT develops so quickly, these symptoms can onset incredibly quickly over a matter of days or weeks. The symptoms can also vary depending on their age and the precise location of the tumour It is only right that I highlight the fact that many of these symptoms represent common medical conditions in both children and adults and, in the majority of instances, will not mean that a child has developed a brain tumour. If a parent ever has any doubt in their mind, however, I would always encourage them to seek medical advice. In Cian’s instance, he began experiencing stomach pains that were originally thought to have been abdominal migraines. In reality, it was the pressure of the tumour restricting the spinal cord that transmitted the nerve pain on to his torso Cian touched the hearts of all those around him. He was a warm, fun-loving and generous boy. While tragedies like this thankfully do not happen every day, when they do happen, it is only right that we reflect, pay tribute and act to help to ensure that we prevent such instances happening again. Cian was delighted to have met the Speaker during his visit to Parliament and No. 10 Downing Street back in 2016. While I would have liked him to have had the opportunity to return to this House, sadly this will now not be possible. Instead, we must ensure that the House comes together to support those affected by cancer and send a message that our determination to beat it—across all parties—is utterly unwavering I thank Members from across the House who have remained in the Chamber to hear Cian’s story and I thank the Minister for taking the time to consider what more we can do about this important issue. The key point I have stressed today is not party political; it is that we must continue to advance our knowledge base across the UK and, most importantly, internationally. By steadfastly supporting the Eliminate Cancer Initiative and redoubling our efforts to find new treatments, and, hopefully one day, a cure for cancers of the central nervous system, we can ensure that Cian’s legacy lives on Cian was a young boy with his whole life ahead of him. I appeal to the Minister and every Member: let us help to ensure that more children survive such cancers in his memory.