Contaminated Blood — House of Commons, 2016-04-12
Topic: Health
Elizabeth Anne McInnes (Labour, Centre-left): First, I pay tribute to my predecessor, Jim Dobbin, who worked tirelessly on this issue on behalf of his and my constituents in Heywood and Middleton As many Members have already identified, this scandal has affected thousands of people who were infected with hepatitis C and HIV through NHS blood products in the 1970s and 1980s. It has been described as "the worst treatment disaster in the history of the NHS", and was responsible for the deaths of thousands of haemophilia patients. It has, quite simply, been a nightmare for sufferers and their families. It is a nightmare that continues. It has taken away the careers, hopes, dreams and aspirations of thousands of people, including constituents of mine, just because they needed blood I thank my hon. Friend the Member for Kingston upon Hull North (Diana Johnson) and the hon. Member for Colne Valley (Jason McCartney), the co-chairs of the all-party group on haemophilia and contaminated blood. Their inquiry into current support for those affected by the contaminated blood scandal in the UK is a superb analysis. The current system for administering compensation is a nightmare and a scandal in itself. We are still in the absurd position of having five trusts, two private companies and three registered charities which give various kinds of assistance to the people affected. The people who should be helped most, the victims, are very far from happy with the present situation The all-party group’s report highlights that many beneficiaries are in poverty. At present, the widows and widowers of hepatitis C infectees receive no ongoing financial support whatever. The majority of people with hepatitis C—namely, those with chronic stage 1 hepatitis C—also receive no ongoing payments. People can apply for discretionary payments for all manner of items through the three charities, but, as has already been highlighted, many find the process of having to provide evidence of need for help deeply frustrating. They feel as though they are begging. Registrants report being left completely in the dark about what discretionary support is available to them. This has meant that some people have not received payments they were entitled to. Many more people with hepatitis C are aware of the trusts’ existence, with considerable issues of low take-up. Many people with hepatitis C are unable to obtain payments from their trusts because the NHS has lost their hospital records, or because the trust has denied they are at the sufficient stage of hepatitis C infection to warrant support, even though their own hepatologists have insisted that they are The report recommends that the Government second a public health doctor to the five trusts to ascertain the needs of beneficiaries and set Government funding at the level commensurate with need. This also means extending some form of ongoing payments to those with stage 1 hepatitis C and giving the widows of hepatitis C infectees entitlement to the same payments as those of HIV infectees. The trust system has to be reformed and nobody should be left in the dark: they should be told precisely what support is available to them. Those facing difficulties providing proof that they were infected should also be able to get help with their applications During the Westminster Hall debate on contaminated blood on 9 September 2015, the Minister was questioned on the commencement date of the public consultation on support for those affected by infected blood. She stated it would occur before the end of the year. It was announced on 21 January 2016. The statement on the launch of the public consultation announced funding of £100 million for the proposals set out in the consultation. That is in addition to the current spend and the £25 million already announced in 2015. The Department of Health previously estimated £455 million as the future cost of meeting payments for the assorted schemes. It is not clear whether the £125 million is in addition to that, or represents projected funding being brought forward We wish to know how the Department of Health intends to distribute the £125 million. I appreciate that the consultation has not concluded yet, but a rough outline would be appreciated. Is it intended to end all discretionary or top-up payments to those who receive ongoing payments? Are there plans to allow special discretionary payments for dependants—either partners or children? Will there be a review mechanism regarding the freezing of the level of payments at £15,000, or will the sum remain at £15,000 regardless?