Down Syndrome Bill — House of Commons, 2021-11-26
Topic: Mixed Topics
Felicia Jane Beatrix Drummond (Conservative, Centre-right): My neighbour Matilda has Down’s syndrome. She is now 14, and I have watched her grow, develop and participate fully in family life. I have seen her going to school, running, cycling—occasionally somewhat precariously—and playing tennis, as well as being part of a street dance team. Life seems pretty typical for her. She goes to a mainstream school, Admiral Lord Nelson School in Portsmouth, where she is very much part of school life Yet I am aware of the barriers placed in the way of Matilda’s development, from accessing the school of her choice to having the right healthcare and, particularly, appropriate speech and language provision. Some of the simplest decisions are made very tricky because, although the decision of the parents and the individual is often taken into account, they have to interact with many Government agencies, as others have mentioned, which takes time. They sometimes have to fight for provision, which takes time. All of this is happening when they are just trying to enjoy family life From early on, I became acquainted with an incredible organisation in my then constituency called Portsmouth Down Syndrome Association, which has paved the way for many children in Portsmouth and the surrounding area, including Meon Valley and beyond, to be properly supported in education and to be given better access to healthcare; their needs are better met because the charity provides training to the health professionals involved. It is a place where new parents can meet others straightaway and have a wonderful support network around them, but perhaps most importantly, because the charity is involved in so many areas of day-to-day life, the support can be taken for granted The celebration of inclusion means that Portsmouth and Meon Valley see these children everywhere. The awareness that has been raised by this charity through clubs, societies, nurseries and schools has meant that the path for children with Down’s syndrome has got a lot better than at any time I have known As the MP for Meon Valley, I now have the founders of Portsmouth Down Syndrome Association, Rachael Ross MBE and Ken Ross, as my constituents. I cannot see them in the Public Gallery, but I know they are listening because they have been on the radio and various other media over the past few days. They have been instrumental in helping with this Bill. Many hon. Members will have met their son Max at the drop-in event on Tuesday, and I have followed his progress through school and into college. I have seen what he has managed to achieve through properly adapted processes delivered by this charity, and I am excited for his future However, from speaking to many colleagues, I know these stories are not typical of the outcomes, or at least of the outcomes they are aware of in their constituencies: families with little support from external bodies and children who are faced with struggle at all stages of their childhood, with very little prospect of employment as adults Mencap and NHS England reported in 2018 that only 6% of adults with a learning disability who are known to local authorities had a job. It is fundamentally not right that, due to a lack of awareness, in many parts of the country people with Down’s syndrome do not have the same opportunities that I see supported and delivered where I live by Portsmouth Down Syndrome Association It is also not right that these services have to be delivered by charities, when the state, with specialist advice, is capable of stepping in to support in these areas. As a consequence, when my good friend and colleague, my right hon. Friend the Member for North Somerset (Dr Fox), tabled the Down Syndrome Bill, I jumped at the chance to support him. I am honoured to be a sponsor of this Bill The framework delivered through this Bill will have lasting and far-reaching benefits for people with Down’s syndrome in England. I pay tribute to Ken and Rachael Ross and to Annabel Tall for all their work on this landmark Bill. I am extremely grateful that the Government have agreed to back the Bill, and I look forward to ensuring it becomes an Act that will help to transform lives.