# ICARE: Interagency Collaborative to Advance Research in Epilepsy

Epilepsy research needs reach across the missions of multiple NIH Institutes and Centers and across many organizations outside the NIH.  As the primary NIH Institute for epilepsy research, NINDS leads this working group, with broad representation from the NIH, other Federal agencies, and the research and patient advocacy communities. Annual meetings provide a forum for sharing information about ongoing and planned epilepsy research activities, highlighting advances and discussing needs and opportunities, and promoting increased collaboration toward common research goals.

## ICARE Meetings

              - May 26, 2022
              - May 21, 2021
              - April 26, 2019
              - April 12, 2018
              - April 14, 2016
              - April 13, 2015
              - March 24, 2014
              - June 27, 2012
              - June 27, 2011
              - March 23, 2010

View All ICARE Meetings

## ICARE Member Organizations and Primary Representatives

### National Institutes of Health (NIH)

**National Institute of Neurological Disorders and Stroke (NINDS)**Walter Koroshetz, MD, ICARE ChairDirector

Miriam Leenders, PhDProgram Director, Channels, Synapses, and Neural Circuits Cluster

Vicky Whittemore, PhDProgram Director, Channels, Synapses, and Neural Circuits Cluster

**National Institute on Aging (NIA)**Bradley C. Wise, PhDChief, Division of Neuroscience, Neurobiology of Aging Branch

**National Institute on Alcohol Abuse and Alcoholism (NIAAA)**Qi-Ying Liu, MD, MSciProgram Director, Division of Neuroscience and Behavior

**National Center for Advancing Translational Sciences (NCATS)**Philip J. (P.J.) Brooks, PhDActing Director, Division of Rare Diseases Research Innovation

**National Institute of Child Health and Human Development (NICHD)**Melissa Parisi, PhDBranch Chief, Intellectual and Developmental Disabilities Branch

Tracy King, MDMedical Officer, Intellectual and Developmental Disabilities Branch

**National Institute on Drug Abuse (NIDA)**Roger Sorensen, PhD, MPABranch Chief, Division of Neuroscience and Behavior, Integrative Neuroscience Branch

**National Human Genome Research Institute (NHGRI)**Allison McCagueScience Policy Analyst, Policy and Program Analysis Branch

**National Heart, Lung and Blood Institute (NHLBI)**Kristin Burns, MDMedical Officer, Division of Cardiovascular Sciences

Olga Tjurmina, PhDProgram Director, Division of Cardiovascular Sciences

**National Institute of Mental Health (NIMH)**Marjorie Garvey, MB, BChProgram Officer, Division of Translational Research

**National Institute of Nursing Research (NINR)**Rebecca Hawes, PhDChief (Acting), Data Analysis, Research, and Reporting BranchDivision of Science Policy and Public Liaison

**Fogarty International Center (FIC)**UnJa Hayes, PhDProgram Officer, Division of International Training and Research

### Other Federal Partners

**Centers for Disease Control and Prevention (CDC)**Rosemarie Kobau, MPH, MAPPEpilepsy Program Team Lead, CDC Epilepsy ProgramNational Center for Chronic Disease Preventionand Health Promotion (NCCDPHP)

Niu Tian, MD, PhDMedical Officer, National Center for Chronic Disease Preventionand Health Promotion (NCCDPHP)

**Department of Defense (DOD)**Melissa Miller, PhDProgram Manager, Epilepsy Research ProgramCongressionally Directed Medical Research Programs 

**Food and Drug Administration (FDA)**Phil Sheridan, MDMedical Officer, Division of Neurology Products Center for Drug Evaluation and Research (CDER)

**Health Resources and Services Administration (HRSA)**Donna Johnson, MHSPublic Health Analyst, Maternal and Child Health Bureau (MCHB)

**Department of Veterans Affairs (VA)**Alan Towne, MDActing National Director, Epilepsy Centers of Excellence

Glenn Graham, MDDeputy National Director, Neurology

Amanda Hunt, PhDProgram Manager, Office of Research and Development

### Nongovernmental Organizations

**American Epilepsy Society (AES)**Eileen Murray, MM, CAE Executive Director

Manisha Patel, PhDAES President

**AES/NINDS Epilepsy Research Benchmarks Stewards**Eric Marsh, MD, PhDBenchmark Stewards Committee Co-Chair

Lori Isom, PhDBenchmark Stewards Committee Co-Chair

**Citizens United for Research in Epilepsy (CURE)**Laura Lubbers, PhDChief Scientific Officer

Beth Lewin Dean, MPA, MBAChief Executive Officer

Susan Axelrod, MBAFounding Chair

**Dravet Syndrome Foundation**Mary Anne MeskisExecutive Director

Veronica Hood, PhDScientific Director

**Epilepsy Foundation (EF)**Jackie French, MDChief Medical and Innovation Officer

Caitlin Grzeskowiak, PhDSenior Director of Research & Innovation

**Epilepsy Leadership Council (ELC)**Gabi Connecker, MPHChair of ELC

Anne Gramiak, MPH, MSLOCSenior Manager, Epilepsy Leadership Council and Partner Program, AES

**Epilepsy Study Consortium**Jackie French, MDPresident and Director

Dennis Dlugos, MD, MSCEVice President

**Patient Centered Outcomes Research Institute (PCORI)**Nora McGhee, PhDSenior Program Officer, Clinical Effectiveness and Decision Science program

Jessica McCreary, MPHProject Manager, Portfolio Data and Analytics

**Pediatric Epilepsy Research Foundation (PERF)**Roy Elterman, MDPresident

Deborah Hirtz, MDBoard Member

**Tuberous Sclerosis Alliance (TS Alliance)**Kari Luther RosbeckPresident and Chief Executive Officer

Steve Roberds, PhDChief Scientific Officer