111TH CONGRESS 

2D SESSION S. 3036 

AN ACT 

To establish the National Alzheimer’s Project. 

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled, 
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1 SECTION 1. SHORT TITLE. 

2 This Act may be cited as the ‘‘National Alzheimer’s 

3 Project Act’’. 

4 SEC. 2. THE NATIONAL ALZHEIMER’S PROJECT. 

5 (a) DEFINITION OF ALZHEIMER’S.—In this Act, the 

6 term ‘‘Alzheimer’s’’ means Alzheimer’s disease and related 

7 dementias. 

8 (b) ESTABLISHMENT.—There is established in the 

9 Office of the Secretary of Health and Human Services the 

10 National Alzheimer’s Project (referred to in this Act as 

11 the ‘‘Project’’). 

12 (c) PURPOSE OF THE PROJECT.—The Secretary of 

13 Health and Human Services, or the Secretary’s designee, 

14 shall— 

15 (1) be responsible for the creation and mainte16 nance of an integrated national plan to overcome 

17 Alzheimer’s; 

18 (2) provide information and coordination of Alz19 heimer’s research and services across all Federal 

20 agencies; 

21 (3) accelerate the development of treatments 

22 that would prevent, halt, or reverse the course of 

23 Alzheimer’s; 

24 (4) improve the— 

25 (A) early diagnosis of Alzheimer’s disease; 

26 and 
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1 (B) coordination of the care and treatment 

2 of citizens with Alzheimer’s; 

3 (5) ensure the inclusion of ethnic and racial 

4 populations at higher risk for Alzheimer’s or least 

5 likely to receive care, in clinical, research, and serv6 ice efforts with the purpose of decreasing health dis7 parities in Alzheimer’s; and 

8 (6) coordinate with international bodies to inte9 grate and inform the fight against Alzheimer’s glob10 ally. 

11 (d) DUTIES OF THE SECRETARY.— 

12 (1) IN GENERAL.—The Secretary of Health and 

13 Human Services, or the Secretary’s designee, shall— 

14 (A) oversee the creation and updating of 

15 the national plan described in paragraph (2); 

16 and 

17 (B) use discretionary authority to evaluate 

18 all Federal programs around Alzheimer’s, in19 cluding budget requests and approvals. 

20 (2) NATIONAL PLAN.—The Secretary of Health 

21 and Human Services, or the Secretary’s designee, 

22 shall carry out an annual assessment of the Nation’s 

23 progress in preparing for the escalating burden of 

24 Alzheimer’s, including both implementation steps 
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1 and recommendations for priority actions based on 

2 the assessment. 

3 (e) ADVISORY COUNCIL.— 

4 (1) IN GENERAL.—There is established an Ad5 visory Council on Alzheimer’s Research, Care, and 

6 Services (referred to in this Act as the ‘‘Advisory 

7 Council’’). 

8 (2) MEMBERSHIP.— 

9 (A) FEDERAL MEMBERS.—The Advisory 

10 Council shall be comprised of the following ex11 perts: 

12 (i) A designee of the Centers for Dis13 ease Control and Prevention. 

14 (ii) A designee of the Administration 

15 on Aging. 

16 (iii) A designee of the Centers for 

17 Medicare & Medicaid Services. 

18 (iv) A designee of the Indian Health 

19 Service. 

20 (v) A designee of the Office of the Di21 rector of the National Institutes of Health. 

22 (vi) The Surgeon General. 

23 (vii) A designee of the National 

24 Science Foundation. 
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1 (viii) A designee of the Department of 

2 Veterans Affairs. 

3 (ix) A designee of the Food and Drug 

4 Administration. 

5 (x) A designee of the Agency for 

6 Healthcare Research and Quality. 

7 (B) NON-FEDERAL MEMBERS.—In addi8 tion to the members outlined in subparagraph 

9 (A), the Advisory Council shall include 12 ex10 pert members from outside the Federal Govern11 ment, which shall include— 

12 (i) 2 Alzheimer’s patient advocates; 

13 (ii) 2 Alzheimer’s caregivers; 

14 (iii) 2 health care providers; 

15 (iv) 2 representatives of State health 

16 departments; 

17 (v) 2 researchers with Alzheimer’s-re18 lated expertise in basic, translational, clin19 ical, or drug development science; and 

20 (vi) 2 voluntary health association 

21 representatives, including a national Alz22 heimer’s disease organization that has 

23 demonstrated experience in research, care, 

24 and patient services, and a State-based ad25 vocacy organization that provides services 
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1 to families and professionals, including in2 formation and referral, support groups, 

3 care consultation, education, and safety 

4 services. 

5 (3) MEETINGS.—The Advisory Council shall 

6 meet quarterly and such meetings shall be open to 

7 the public. 

8 (4) ADVICE.—The Advisory Council shall advise 

9 the Secretary of Health and Human Services, or the 

10 Secretary’s designee. 

11 (5) ANNUAL REPORT.—The Advisory Council 

12 shall provide to the Secretary of Health and Human 

13 Services, or the Secretary’s designee and Congress— 

14 (A) an initial evaluation of all federally 

15 funded efforts in Alzheimer’s research, clinical 

16 care, and institutional-, home-, and community17 based programs and their outcomes; 

18 (B) initial recommendations for priority 

19 actions to expand, eliminate, coordinate, or con20 dense programs based on the program’s per21 formance, mission, and purpose; 

22 (C) initial recommendations to— 

23 (i) reduce the financial impact of Alz24 heimer’s on— 
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1 (I) Medicare and other federally 

2 funded programs; and 

3 (II) families living with Alz4 heimer’s disease; and 

5 (ii) improve health outcomes; and 

6 (D) annually thereafter, an evaluation of 

7 the implementation, including outcomes, of the 

8 recommendations, including priorities if nec9 essary, through an updated national plan under 

10 subsection (d)(2). 

11 (6) TERMINATION.—The Advisory Council shall 

12 terminate on December 31, 2025. 

13 (f) DATA SHARING.—Agencies both within the De14 partment of Health and Human Services and outside of 

15 the Department that have data relating to Alzheimer’s 

16 shall share such data with the Secretary of Health and 

17 Human Services, or the Secretary’s designee, to enable the 

18 Secretary, or the Secretary’s designee, to complete the re19 port described in subsection (g). 

20 (g) ANNUAL REPORT.—The Secretary of Health and 

21 Human Services, or the Secretary’s designee, shall submit 

22 to Congress— 

23 (1) an annual report that includes an evalua24 tion of all federally funded efforts in Alzheimer’s re-
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1 search, clinical care, and institutional-, home-, and 

2 community-based programs and their outcomes; 

3 (2) an evaluation of all federally funded pro4 grams based on program performance, mission, and 

5 purpose related to Alzheimer’s disease; 

6 (3) recommendations for— 

7 (A) priority actions based on the evalua8 tion conducted by the Secretary and the Advi9 sory Council to— 

10 (i) reduce the financial impact of Alz11 heimer’s on— 

12 (I) Medicare and other federally 

13 funded programs; and 

14 (II) families living with Alz15 heimer’s disease; and 

16 (ii) improve health outcomes; 

17 (B) implementation steps; and 

18 (C) priority actions to improve the preven19 tion, diagnosis, treatment, care, institutional-, 

20 home-, and community-based programs of Alz21 heimer’s disease for individuals with Alz22 heimer’s disease and their caregivers; and 

23 (4) an annually updated national plan. 

24 (h) SUNSET.—The Project shall expire on December 

25 31, 2025. 
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Passed the Senate December 8, 2010. 

Attest: 

Secretary. 
111TH CONGRESS 

2D SESSION S. 3036 

AN ACT 

To establish the National Alzheimer’s Project.