S. 3036 

One Hundred Eleventh Congress 

of the 

United States of America 

AT THE SECOND SESSION 

Begun and held at the City of Washington on Tuesday, 

the fifth day of January, two thousand and ten 

An Act 

To establish the National Alzheimer’s Project. 

Be it enacted by the Senate and House of Representatives of 

the United States of America in Congress assembled, 

SECTION 1. SHORT TITLE. 

This Act may be cited as the ‘‘National Alzheimer’s Project 

Act’’. 

SEC. 2. THE NATIONAL ALZHEIMER’S PROJECT. 

(a) DEFINITION OF ALZHEIMER’S.—In this Act, the term 

‘‘Alzheimer’s’’ means Alzheimer’s disease and related dementias. 

(b) ESTABLISHMENT.—There is established in the Office of the 

Secretary of Health and Human Services the National Alzheimer’s 

Project (referred to in this Act as the ‘‘Project’’). 

(c) PURPOSE OF THE PROJECT.—The Secretary of Health and 

Human Services, or the Secretary’s designee, shall— 

(1) be responsible for the creation and maintenance of 

an integrated national plan to overcome Alzheimer’s; 

(2) provide information and coordination of Alzheimer’s 

research and services across all Federal agencies; 

(3) accelerate the development of treatments that would 

prevent, halt, or reverse the course of Alzheimer’s; 

(4) improve the— 

(A) early diagnosis of Alzheimer’s disease; and 

(B) coordination of the care and treatment of citizens 

with Alzheimer’s; 

(5) ensure the inclusion of ethnic and racial populations 

at higher risk for Alzheimer’s or least likely to receive care, 

in clinical, research, and service efforts with the purpose of 

decreasing health disparities in Alzheimer’s; and 

(6) coordinate with international bodies to integrate and 

inform the fight against Alzheimer’s globally. 

(d) DUTIES OF THE SECRETARY.— 

(1) IN GENERAL.—The Secretary of Health and Human 

Services, or the Secretary’s designee, shall— 

(A) oversee the creation and updating of the national 

plan described in paragraph (2); and 

(B) use discretionary authority to evaluate all Federal 

programs around Alzheimer’s, including budget requests 

and approvals. 

(2) NATIONAL PLAN.—The Secretary of Health and Human 

Services, or the Secretary’s designee, shall carry out an annual 

assessment of the Nation’s progress in preparing for the escalating burden of Alzheimer’s, including both implementation 
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steps and recommendations for priority actions based on the 

assessment. 

(e) ADVISORY COUNCIL.— 

(1) IN GENERAL.—There is established an Advisory Council 

on Alzheimer’s Research, Care, and Services (referred to in 

this Act as the ‘‘Advisory Council’’). 

(2) MEMBERSHIP.— 

(A) FEDERAL MEMBERS.—The Advisory Council shall 

be comprised of the following experts: 

(i) A designee of the Centers for Disease Control 

and Prevention. 

(ii) A designee of the Administration on Aging. 

(iii) A designee of the Centers for Medicare & 

Medicaid Services. 

(iv) A designee of the Indian Health Service. 

(v) A designee of the Office of the Director of 

the National Institutes of Health. 

(vi) The Surgeon General. 

(vii) A designee of the National Science Foundation. 

(viii) A designee of the Department of Veterans 

Affairs. 

(ix) A designee of the Food and Drug Administration. 

(x) A designee of the Agency for Healthcare 

Research and Quality. 

(B) NON-FEDERAL MEMBERS.—In addition to the members outlined in subparagraph (A), the Advisory Council 

shall include 12 expert members from outside the Federal 

Government, which shall include— 

(i) 2 Alzheimer’s patient advocates; 

(ii) 2 Alzheimer’s caregivers; 

(iii) 2 health care providers; 

(iv) 2 representatives of State health departments; 

(v) 2 researchers with Alzheimer’s-related expertise in basic, translational, clinical, or drug development science; and 

(vi) 2 voluntary health association representatives, 

including a national Alzheimer’s disease organization 

that has demonstrated experience in research, care, 

and patient services, and a State-based advocacy 

organization that provides services to families and 

professionals, including information and referral, support groups, care consultation, education, and safety 

services. 

(3) MEETINGS.—The Advisory Council shall meet quarterly 

and such meetings shall be open to the public. 

(4) ADVICE.—The Advisory Council shall advise the Secretary of Health and Human Services, or the Secretary’s designee. 

(5) ANNUAL REPORT.—The Advisory Council shall provide 

to the Secretary of Health and Human Services, or the Secretary’s designee and Congress— 

(A) an initial evaluation of all federally funded 

efforts in Alzheimer’s research, clinical care, and institutional-, home-, and community-based programs and their 

outcomes; 
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(B) initial recommendations for priority actions to 

expand, eliminate, coordinate, or condense programs based 

on the program’s performance, mission, and purpose; 

(C) initial recommendations to— 

(i) reduce the financial impact of Alzheimer’s on— 

(I) Medicare and other federally funded programs; and 

(II) families living with Alzheimer’s disease; 

and 

(ii) improve health outcomes; and 

(D) annually thereafter, an evaluation of the 

implementation, including outcomes, of the recommendations, including priorities if necessary, through an updated 

national plan under subsection (d)(2). 

(6) TERMINATION.—The Advisory Council shall terminate 

on December 31, 2025. 

(f) DATA SHARING.—Agencies both within the Department of 

Health and Human Services and outside of the Department that 

have data relating to Alzheimer’s shall share such data with the 

Secretary of Health and Human Services, or the Secretary’s designee, to enable the Secretary, or the Secretary’s designee, to complete the report described in subsection (g). 

(g) ANNUAL REPORT.—The Secretary of Health and Human 

Services, or the Secretary’s designee, shall submit to Congress— 

(1) an annual report that includes an evaluation of all 

federally funded efforts in Alzheimer’s research, clinical care, 

and institutional-, home-, and community-based programs and 

their outcomes; 

(2) an evaluation of all federally funded programs based 

on program performance, mission, and purpose related to 

Alzheimer’s disease; 

(3) recommendations for— 

(A) priority actions based on the evaluation conducted 

by the Secretary and the Advisory Council to— 

(i) reduce the financial impact of Alzheimer’s on— 

(I) Medicare and other federally funded programs; and 

(II) families living with Alzheimer’s disease; 

and 

(ii) improve health outcomes; 

(B) implementation steps; and 

(C) priority actions to improve the prevention, diagnosis, treatment, care, institutional-, home-, and community-based programs of Alzheimer’s disease for individuals 

with Alzheimer’s disease and their caregivers; and 

(4) an annually updated national plan. 
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(h) SUNSET.—The Project shall expire on December 31, 2025. 

Speaker of the House of Representatives. 

Vice President of the United States and

President of the Senate.