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		Search Text: Home/< Back ToEducation and Awareness/Sickle Cell Disease: Research, Programs, and Progress

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        Sickle Cell Disease: Research, Programs, and Progress
                                                                Sickle cell disease affects approximately 100,000 Americans, many of whom are African American, and more than 20 million people worldwide.
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                    Highlights
                        
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                                        Sickle cell disease research nationwide
                                                    Discover how the Division of Blood Diseases and Resources supports sickle cell disease research and clinical centers across the nation.
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                                        Adopting a healthy lifestyle has helped many people with SCD manage their pain
                                                    Find tips for managing and living with sickle cell disease (SCD) in these fact sheets available in English & Spanish.
              head shot images of Dr. Gibbons and Dr. Panepinto
                                        The FDA approves two new gene therapies for SCD
                                                    Read the Q&A from NHLBI leaders, Dr. Gary Gibbons & Dr. Julie Panepinto, to help explain the historic importance of this medical milestone.
                Tools and Materials
                        The Blood Diseases & Disorders Education Program offers a variety of educational resources to help increase awareness and understanding about sickle cell disease.
                    Learn About Sickle Cell Disease
              Learn About Genetic Therapies
              Resources for Patients
              Social Media Resources
              Sickle Cell Awareness Month Resources
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              Publications for Health Professionals
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            Image of Caesar Sant. Images says: Today’s Faces of sickle cell disease.
                Today’s Faces of Sickle Cell Disease
                                        Read inspiring stories of people living with sickle cell disease, their loved ones, clinicians, and the researchers whose work offers hope for a cure.
                                        
            Meet these inspiring faces of sickle cell disease
                                                                    Health Professionals
                        
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                Leading the Cure Sickle Cell Initiative
                                        See how NHLBI-led research is paving the way to a cure for sickle cell disease.
                                        
            Cure Sickle Cell Initiative
                                    Related Initiatives
                        
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                                        Blood Diseases & Disorders Education Program
                                                                A national health education program that aims to bring greater visibility to blood diseases and disorders like anemia, sickle cell disease and others, their diagnosis, treatment and management, and blood safety by translating research for patients and professionals.
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                                        Blood Disorders and Blood Safety
                                                                The NHLBI is a global leader in blood-related research. Learn about NHLBI-supported research on blood disorders, including sickle cell disease, blood safety, transfusion medicine, and more.
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                                        Joining an NHLBI Sickle Cell Clinical Trial
                                                                Find out if you or someone you love is eligible to participate in an NHLBI clinical trial for sickle cell disease.
              SCD Research
                                        Sickle Cell Research at the NHLBI
                                                                Learn about ongoing research from NHLBI labs in the Sickle Cell Branch.
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                                        Funding Opportunities for Sickle Cell Disease Research
                                                                Learn more about active NHLBI-funding opportunity announcements for sickle cell disease.
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                                        Advancing Sickle Cell Treatments from Lab to Clinical Practice
                                                                Read how the NHLBI Implementation Science Branch helps translate genomic research and therapies into real-world practices.
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                                        COVID-19 and the Blood
                                                                Learn how COVID-19 affect the blood.
                                    Related News
                                            scientific illustration - sickle cell blood cell
              December 08, 2023|
						
            Statement
                                    	
	NIH statement on new FDA-approved gene therapies for sickle cell disease
	

        
        Today, the U.S. Food and Drug Administration (FDA) approved two gene therapies for the treatment of sickle cell disease in patients 12 years and older. About 100,000 Americans and millions of people around the...
                                    Related Events
                                            three dimensional illustration of sickle cell anemia disease blood cells
              Annual Sickle Cell Disease Research Meeting
	

        
                						August
						14
													-
												16
						,
						2023

				Hybrid Workshop
9 am - 5 pm EDT daily

                                    Join the NHLBI August 14-16, 2023, at the NIH Natcher Conference Center in Bethesda, MD, or virtually to hear about the progress of resea...
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