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          Lupus Clinical Trials Unit
          DC Lupus Consortium








DC Lupus Consortium FacebookEmailPrintFacebookEmail     
    Lupus Clinical Research, 30th Anniversary Conference. Lipsett Auditorium, NIH Clinical Center, Building 10, May 31.
              In 2016, the NIAMS Lupus Clinical Trials Unit established The DC Lupus Consortium (DCLC), a collaborative network of rheumatologists, nephrologists, physiatrists, and other health care providers interested in lupus clinical research in the Metropolitan DC area. The purpose of the DCLC is to promote partnerships and referrals to the NIAMS Lupus Clinical Research Program and collaborations with local and regional clinicians caring for patients with lupus.The purpose of the DCLC is to promote partnerships and referrals to the NIAMS Lupus Clinical Trials Unit and collaborate with local and regional clinicians caring for patients with lupus.Join Us!NIH scientists, researchers, patients, patient advocacy groups, and physicians both within and outside of NIH are welcome.To learn more about upcoming DCLC news and events, join our mailing list. Please contact Elaine Poncio (elaine.poncio@nih.gov) or Isabel Ochoa (ochoai@mail.nih.gov).
              2024 DCLC - 30th Anniversary of Lupus Clinical Research

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              Poster for the 2024 DCLC annual event featuring illustrations of various butterflies.
**Friday, May 31st, 2024****National Institutes of Health, Lipsett Auditorium,****Building 10, 10 Center Drive, Bethesda, MD****9:15 AM - 1:15 PM***Light Refreshments at the FAES Terrace: 12:15 PM- 1:15 PM*Register to AttendEach individual attending the event should RSVP.This event will highlight the outstanding progress in lupus clinical research made by NIH over the last 30 years, featuring testimonials from research participants, updates on current lupus research activities at NIAMS, and discussions on the future direction of research at the NIH. The event seeks to build on the success of DC Lupus Consortium- a platform to collaborate between NIH scientists, physicians outside the NIH and patient advocacy groups interested in Lupus Clinical Research.Stakeholders that have a vested interest in lupus clinical research such as patients, NIH scientists, researchers, patient advocacy groups, and physicians both within and outside of NIH are welcome to join this consortium. Please register for this event to receive NIH campus visitor information and the most up to date information about event.Please send comments and questions to Elaine Poncio (elaine.poncio@nih.gov) or Isabel Ochoa (ochoai@mail.nih.gov).
              Past DCLC Events
      
  

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              Montage of photos from the conference and the illustrated poster showing a wolf.
DCLC and 25th Anniversary of Lupus Clinical Research on May 17, 2019DCLC and 25th anniversary of lupus clinical research was celebrated on May 17, 2019 at NIH. NIH has a storied history of lupus research, most notably with respect to lupus nephritis.  Further, the Lupus Natural History Protocol has been active for 25 years, developing one of the world’s largest databases of lupus clinical research.The Lupus Clinical Research team has worked busily over the last several years reinvigorating research into novel lupus therapies.  We remain committed to expanding our research efforts. We celebrated this incredible feat by inviting patients and their families, NIH scientists, researchers, patient advocacy groups, and physicians both within and outside of NIH. We closed out with a performance from the “The Affordable Rock’n’Roll Act” followed by light refreshments at the FAES terrace.

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              Group photo of attendees at the 2017 DCLC conference
DCLC on October 27, 2017The second DCLC meeting was held at NIH on October 27, 2017. Attendees included NIH scientists, lupus research and patient advocacy groups. Since 2016, 50% of patients referred by DCLC physicians have participated in clinical trials. Out of 48 new patients, 26 patients were screened for study enrollment and another 22 patients are under review for eligibility or were found to not be eligible for current clinical trials.  We introduced a new study investigating Aerobic Exercise in Women with Systemic Lupus Erythematosus at this consortium.24% of the patients enrolled in role of PPAR-gamma agonists in immunomodulation and vascular prevention in SLE study were from DCLC physician referrals.18% of the patients enrolled in the safety trial of the Janus kinase inhibitor tofacitinib in SLE study were from DCLC physician referrals.Image
              Group photo of attendees at the 2016 DCLC conference
DCLC on April 8, 2016The inaugural DCLC meeting was held at NIH on April 8, 2016. This was an introduction to inform the rheumatology community in the DMV area of our Lupus-related clinical research efforts.  Included mostly local rheumatologist in the area to generate interest in this consortium and was mostly physician focused.


Last Updated: April 2024


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