II 

108TH CONGRESS 

2D SESSION S. 2741

To amend the Public Health Service Act to reauthorize and extend the 

Fetal Alcohol Syndrome prevention and services program, and for other 

purposes. 

IN THE SENATE OF THE UNITED STATES 

JULY 22, 2004

Mr. DASCHLE introduced the following bill; which was read twice and referred 

to the Committee on Health, Education, Labor, and Pensions 

A BILL

To amend the Public Health Service Act to reauthorize and 

extend the Fetal Alcohol Syndrome prevention and services program, and for other purposes.

1 Be it enacted by the Senate and House of Representa2 tives of the United States of America in Congress assembled,

3 SECTION 1. SHORT TITLE. 

4 This Act may be cited as the ‘‘Advancing FASD Re5 search, Prevention, and Services Act’’. 

6 SEC. 2. FINDINGS. 

7 Congress makes the following findings: 

8 (1) Fetal Alcohol Spectrum Disorders are the 

9 spectrum of serious, life-long disorders caused by 
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1 prenatal exposure to alcohol, which include Fetal Al2 cohol Syndrome, Alcohol-Related Neurodevelop3 mental Disorder, and Alcohol-Related Birth Defects. 

4 (2) In the decades that have passed since Fetal 

5 Alcohol Syndrome was first recognized in the United 

6 States, this fully preventable condition has continued 

7 to affect American children and families. 

8 (3) Prenatal alcohol exposure can cause brain 

9 damage that produces cognitive and behavioral im10 pairments. Prenatal alcohol exposure can cause men11 tal retardation or low IQ and difficulties with learn12 ing, memory, attention, and problem-solving. It can 

13 also create problems with mental health and social 

14 interactions. 

15 (4) Prenatal alcohol exposure also can cause 

16 growth retardation, birth defects involving the heart, 

17 kidney, vision and hearing, and a characteristic pat18 tern of facial abnormalities. 

19 (5) About 13 percent of women report using al20 cohol during pregnancy even though there is no 

21 known safe level of alcohol consumption during preg22 nancy. 

23 (6) Estimates of individuals with Fetal Alcohol 

24 Syndrome vary but are estimated to be between 0.5 

25 and 2.0 per 1,000 births. The prevalence rate is con-
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1 siderably higher for all Fetal Alcohol Spectrum Dis2 orders: about 10 out of 1,000 births (1 percent of 

3 births). 

4 (7) Prevalence of Fetal Alcohol Spectrum Dis5 orders can be even higher in certain populations, 

6 such as Native Americans, and in certain areas, 

7 such as those characterized by low socioeconomic 

8 status. 

9 (8) Fetal Alcohol Spectrum Disorders pose ex10 traordinary financial costs to the Nation, including 

11 the cost of specialized health care, education, foster 

12 care, incarceration, job training, and general support 

13 services for individuals affected by Fetal Alcohol 

14 Spectrum Disorders. 

15 (9) Lifetime health costs for an individual with 

16 Fetal Alcohol Syndrome average $860,000, and can 

17 run as high as $4,200,000. The direct and indirect 

18 economic costs of Fetal Alcohol Syndrome in the 

19 United States were $5,400,000,000 in 2003. Total 

20 economic costs would be even higher for all Fetal Al21 cohol Spectrum Disorders. 

22 (10) There is a great need for research, surveil23 lance, prevention, treatment, and support services 

24 for individuals with Fetal Alcohol Spectrum Dis25 orders and their families. 
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1 SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DIS2 ORDERS. 

3 Section 399H of the Public Health Service Act (48 

4 U.S.C. 280f) is amended—

5 (1) by striking the section heading and insert6 ing the following: 

7 ‘‘SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM 

8 DISORDERS.’’; 

9 (2) by redesignating subsections (a) through (d) 

10 as subsections (h) through (k), respectively; 

11 (3) by inserting after the section heading, the 

12 following: 

13 ‘‘(a) RESEARCH ON FAS AND RELATED DIS14 ORDERS.—

15 ‘‘(1) IN GENERAL.—The Secretary, acting 

16 through the Director of the National Institutes of 

17 Health and in coordination with the Interagency Co18 ordinating Committee on Fetal Alcohol Syndrome, 

19 shall—

20 ‘‘(A) establish a research agenda for Fetal 

21 Alcohol Spectrum Disorders; and 

22 ‘‘(B) award grants, contracts, or coopera23 tive agreements to public or private nonprofit 

24 entities to pay all or part of carrying out re25 search under such agenda. 
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1 ‘‘(2) TYPES OF RESEARCH.—In carrying out 

2 paragraph (1), the Secretary, acting through the Di3 rector of the National Institute of Alcohol Abuse and 

4 Alcoholism, shall conduct national and international 

5 research in coordination with other Federal agencies 

6 that includes—

7 ‘‘(A) the identification of the mechanisms 

8 that produce the cognitive and behavioral prob9 lems associated with fetal alcohol exposure; 

10 ‘‘(B) the development of a neurocognitive 

11 phenotype for Fetal Alcohol Syndrome and Al12 cohol-Related Neurodevelopmental Disorder; 

13 ‘‘(C) the identification of biological mark14 ers that can be used to indicate fetal alcohol ex15 posure; 

16 ‘‘(D) the identification of fetal and mater17 nal risk factors that increase susceptibility to 

18 Fetal Alcohol Spectrum Disorders; 

19 ‘‘(E) the investigation of behavioral and 

20 pharmacotherapies for alcohol-dependent 

21 women to determine new approaches for sus22 taining recovery; 

23 ‘‘(F) the development of scientific-based 

24 therapeutic interventions for individuals with 

25 Fetal Alcohol Spectrum Disorders;
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1 ‘‘(G) the development of screening instru2 ments to identify women who consume alcohol 

3 during pregnancy and the development of 

4 standards for measuring, reporting, and ana5 lyzing alcohol consumption patterns in pregnant 

6 women; and 

7 ‘‘(H) other research that the Director de8 termines to be appropriate. 

9 ‘‘(3) STUDY.—The Secretary, acting through 

10 the Director of the National Institute of Mental 

11 Health, shall—

12 ‘‘(A) conduct a study on the behavioral 

13 disorders that may be associated with prenatal 

14 alcohol exposure; 

15 ‘‘(B) not later than 1 year after the date 

16 of enactment of the Advancing FASD Research, 

17 Prevention, and Services Act, submit to Con18 gress a report on the appropriateness of charac19 terizing Fetal Alcohol Spectrum Disorders and 

20 their secondary behavioral disorders as mental 

21 health disorders; and 

22 ‘‘(C) conduct additional research on the 

23 epidemiology of behavior disorders associated 

24 with Fetal Alcohol Spectrum Disorders in col-
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1 laboration with the Centers for Disease Control 

2 and Prevention. 

3 ‘‘(4) AUTHORIZATION OF APPROPRIATIONS.—

4 There are authorized to be appropriated to carry out 

5 this subsection, such sums as may be necessary for 

6 each of fiscal years 2005 through 2009. 

7 ‘‘(b) SURVEILLANCE, IDENTIFICATION, AND PRE8 VENTION ACTIVITIES.—

9 ‘‘(1) IN GENERAL.—The Secretary, acting 

10 through the Director of the National Center on 

11 Birth Defects and Developmental Disabilities, shall 

12 facilitate surveillance, identification, and prevention 

13 of Fetal Alcohol Spectrum Disorders as provided for 

14 in this subsection. 

15 ‘‘(2) SURVEILLANCE, IDENTIFICATION, AND

16 PREVENTION.—In carrying out this subsection, the 

17 Secretary shall—

18 ‘‘(A) develop and implement a uniform 

19 surveillance case definition for Fetal Alcohol 

20 Syndrome and a uniform surveillance case defi21 nition for Alcohol Related Neurodevelopmental 

22 Disorder; 

23 ‘‘(B) develop a comprehensive screening 

24 process for Fetal Alcohol Spectrum Disorders 

25 that covers different age, race, and ethnic 
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1 groups and is based on the uniform surveillance 

2 case definitions developed under subparagraph 

3 (A); 

4 ‘‘(C) disseminate and provide the necessary 

5 training and support for the screening process 

6 developed under subparagraph (B) to—

7 ‘‘(i) hospitals, community health cen8 ters, outpatient programs, and other ap9 propriate health care providers; 

10 ‘‘(ii) incarceration and detainment fa11 cilities; 

12 ‘‘(iii) primary and secondary schools; 

13 ‘‘(iv) social work and child welfare of14 fices; 

15 ‘‘(v) foster care providers and adop16 tion agencies; 

17 ‘‘(vi) State offices and others pro18 viding services to individuals with disabil19 ities; and 

20 ‘‘(vii) other entities that the Secretary 

21 determines to be appropriate; 

22 ‘‘(D) conduct activities related to risk fac23 tor surveillance including the annual monitoring 

24 and reporting of alcohol consumption among 
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1 pregnant women and women of child bearing 

2 age; and 

3 ‘‘(E) conduct applied public health preven4 tion research and implement strategies for re5 ducing alcohol-exposed pregnancies in women at 

6 high risk for alcohol-exposed pregnancies. 

7 ‘‘(3) AUTHORIZATION OF APPROPRIATION.—

8 There are authorized to be appropriated to carry out 

9 this subsection, such sums as may be necessary for 

10 each of fiscal years 2005 through 2009. 

11 ‘‘(c) BUILDING STATE FASD SYSTEMS.—

12 ‘‘(1) IN GENERAL.—The Secretary, acting 

13 through the Administrator of the Substance Abuse 

14 and Mental Health Services Administration, shall 

15 award grants, contracts, or cooperative agreements 

16 to States for the purpose of establishing or expand17 ing statewide programs of surveillance, prevention, 

18 and treatment of individuals with Fetal Alcohol 

19 Spectrum Disorders. 

20 ‘‘(2) ELIGIBILITY.—To be eligible to receive a 

21 grant, contract, or cooperative agreement under 

22 paragraph (1) a State shall—

23 ‘‘(A) prepare and submit to the Secretary 

24 an application at such time, in such manner, 
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1 and containing such information as the Sec2 retary may reasonably require; 

3 ‘‘(B) develop and implement a statewide 

4 strategic plan for preventing and treating Fetal 

5 Alcohol Spectrum Disorders; 

6 ‘‘(C) consult with public and private non7 profit entities with relevant expertise on Fetal 

8 Alcohol Spectrum Disorders within the State, 

9 including—

10 ‘‘(i) parent-led groups and other orga11 nizations that support and advocate for in12 dividuals with Fetal Alcohol Spectrum Dis13 orders; and 

14 ‘‘(ii) Indian tribes and tribal organiza15 tions; and 

16 ‘‘(D) designate an individual to serve as 

17 the coordinator of the State’s Fetal Alcohol 

18 Spectrum Disorders program. 

19 ‘‘(3) STRATEGIC PLAN.—The statewide stra20 tegic plan prepared under paragraph (2)(B) shall in21 clude—

22 ‘‘(A) the identification of existing State 

23 programs and systems that could be used to 

24 identify and treat individuals with Fetal Alcohol
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1 Spectrum Disorders and prevent alcohol con2 sumption during pregnancy, such as—

3 ‘‘(i) programs for the developmentally 

4 disabled, the mentally ill, and individuals 

5 with alcohol dependency; 

6 ‘‘(ii) primary and secondary edu7 cational systems; 

8 ‘‘(iii) judicial systems for juveniles 

9 and adults; 

10 ‘‘(iv) child welfare programs and so11 cial service programs; and 

12 ‘‘(v) other programs or systems the 

13 State determines to be appropriate; 

14 ‘‘(B) the identification of any barriers for 

15 individuals with Fetal Alcohol Spectrum Dis16 orders or women at risk for alcohol consump17 tion during pregnancy to access the programs 

18 identified under subparagraph (A); and 

19 ‘‘(C) proposals to eliminate barriers to pre20 vention and treatment programs and coordinate 

21 the activities of such programs. 

22 ‘‘(4) USE OF FUNDS.—Amounts received under 

23 a grant, contract, or cooperative agreement under 

24 paragraph (1) shall be used for one or more of the 

25 following activities: 
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1 ‘‘(A) Establishing a statewide surveillance 

2 system. 

3 ‘‘(B) Collecting, analyzing and interpreting 

4 data. 

5 ‘‘(C) Establishing a diagnostic center. 

6 ‘‘(D) Developing, implementing, and evalu7 ating population-based and targeted prevention 

8 programs for Fetal Alcohol Spectrum Dis9 orders, including public awareness campaigns. 

10 ‘‘(E) Referring individuals with Fetal Alco11 hol Spectrum Disorders to appropriate support 

12 services. 

13 ‘‘(F) Developing and sharing best practices 

14 for the prevention, identification, and treatment 

15 of Fetal Alcohol Spectrum Disorders. 

16 ‘‘(G) Providing training to health care pro17 viders on the prevention, identification, and 

18 treatment of Fetal Alcohol Spectrum Disorders. 

19 ‘‘(H) Disseminating information about 

20 Fetal Alcohol Spectrum Disorders and the 

21 availability of support services to families of in22 dividuals with Fetal Alcohol Spectrum Dis23 orders. 

24 ‘‘(I) Other activities determined appro25 priate by the Secretary. 
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1 ‘‘(5) MULTI-STATE PROGRAMS.—The Secretary 

2 shall permit the formation of multi-State Fetal Alco3 hol Spectrum Disorders programs under this sub4 section. 

5 ‘‘(6) OTHER CONTRACTS AND AGREEMENTS.—

6 A State may carry out activities under paragraph 

7 (4) through contacts or cooperative agreements with 

8 public and private non-profit entities with a dem9 onstrated expertise in Fetal Alcohol Spectrum Dis10 orders. 

11 ‘‘(7) AUTHORIZATION OF APPROPRIATIONS.—

12 There are authorized to be appropriated to carry out 

13 this subsection, such sums as may be necessary for 

14 fiscal years 2005 through 2009. 

15 ‘‘(d) PROMOTING COMMUNITY PARTNERSHIPS.—

16 ‘‘(1) IN GENERAL.—The Secretary shall award 

17 grants, contracts, or cooperative agreements to eligi18 ble entities to enable such entities to establish, en19 hance, or improve community partnerships for the 

20 purpose of collaborating on common objectives and 

21 integrating the services available to individuals with 

22 Fetal Alcohol Spectrum Disorders, such as surveil23 lance, prevention, treatment, and provision of sup24 port services. 
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1 ‘‘(2) ELIGIBLE ENTITIES.—To be eligible to re2 ceive a grant, contract, or cooperative agreement 

3 under paragraph (1), an entity shall—

4 ‘‘(A) be a public or private nonprofit enti5 ty, including—

6 ‘‘(i) a health care provider or health 

7 professional; 

8 ‘‘(ii) a primary or secondary school; 

9 ‘‘(iii) a social work or child welfare of10 fice; 

11 ‘‘(iv) an incarceration or detainment 

12 facility; 

13 ‘‘(v) a parent-led group or other orga14 nization that supports and advocates for 

15 individuals with Fetal Alcohol Spectrum 

16 Disorders; 

17 ‘‘(vi) an Indian tribe or tribal organi18 zation; 

19 ‘‘(vii) any other entity the Secretary 

20 determines to be appropriate; or 

21 ‘‘(viii) a consortium of any of the enti22 ties described in clauses (i) through (vii); 

23 and 

24 ‘‘(B) prepare and submit to the Secretary 

25 an application at such time, in such manner, 
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1 and containing such information as the Sec2 retary may reasonably require, including assur3 ances that the entity submitting the application 

4 does, at the time of application, or will, within 

5 a reasonable amount of time from the date of 

6 application, include substantive participation of 

7 a broad range of entities that work with or pro8 vide services for individuals with Fetal Alcohol 

9 Spectrum Disorders. 

10 ‘‘(3) ACTIVITIES.—An eligible entity shall use 

11 amounts received under a grant, contract, or cooper12 ative agreement under this subsection shall carry out 

13 1 or more of the following activities: 

14 ‘‘(A) Identifying and integrating existing 

15 programs and services available in the commu16 nity for individuals with Fetal Alcohol Spec17 trum Disorders. 

18 ‘‘(B) Conducting a needs assessment to 

19 identify services that are not available in a com20 munity. 

21 ‘‘(C) Developing and implementing com22 munity-based initiatives to prevent, diagnose, 

23 treat, and provide support services to individ24 uals with Fetal Alcohol Spectrum Disorders.
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1 ‘‘(D) Disseminating information about 

2 Fetal Alcohol Spectrum Disorders and the 

3 availability of support services. 

4 ‘‘(E) Developing and implementing a com5 munity-wide public awareness and outreach 

6 campaign focusing on the dangers of drinking 

7 alcohol while pregnant. 

8 ‘‘(F) Providing mentoring or other support 

9 to families of individuals with Fetal Alcohol 

10 Spectrum Disorders. 

11 ‘‘(G) Other activities determined appro12 priate by the Secretary. 

13 ‘‘(4) AUTHORIZATION OF APPROPRIATION.—

14 There are authorized to be appropriated to carry out 

15 this subsection, such sums as may be necessary for 

16 each of fiscal years 2005 through 2009. 

17 ‘‘(e) DEVELOPMENT OF BEST PRACTICES.—

18 ‘‘(1) IN GENERAL.—The Secretary, in coordina19 tion with the National Task Force on Fetal Alcohol 

20 Spectrum Disorders, shall award grants to States, 

21 Indian tribes and tribal organizations, and non22 governmental organizations for the establishment of 

23 pilot projects to identify and implement best prac24 tices for—
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1 ‘‘(A) educating children with fetal alcohol 

2 spectrum disorders, including—

3 ‘‘(i) activities and programs designed 

4 specifically for the identification, treat5 ment, and education of such children; and 

6 ‘‘(ii) curricula development and 

7 credentialing of teachers, administrators, 

8 and social workers who implement such 

9 programs; 

10 ‘‘(B) educating judges, attorneys, child ad11 vocates, law enforcement officers, prison war12 dens, alternative incarceration administrators, 

13 and incarceration officials on how to treat and 

14 support individuals suffering from Fetal Alcohol 

15 Spectrum Disorders within the criminal justice 

16 system, including—

17 ‘‘(i) programs designed specifically for 

18 the identification, treatment, and education 

19 of those with Fetal Alcohol Spectrum Dis20 orders; and 

21 ‘‘(ii) curricula development and 

22 credentialing within the justice system for 

23 individuals who implement such programs; 

24 and 
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1 ‘‘(C) educating adoption or foster care 

2 agency officials about available and necessary 

3 services for children with fetal alcohol spectrum 

4 disorders, including—

5 ‘‘(i) programs designed specifically for 

6 the identification, treatment, and education 

7 of those with Fetal Alcohol Spectrum Dis8 orders; and 

9 ‘‘(ii) education and training for poten10 tial parents of an adopted child with Fetal 

11 Alcohol Spectrum Disorders. 

12 ‘‘(2) APPLICATION.—To be eligible for a grant 

13 under paragraph (1), an entity shall prepare and 

14 submit to the Secretary an application at such time, 

15 in such manner, and containing such information as 

16 the Secretary may reasonably require. 

17 ‘‘(3) AUTHORIZATION OF APPROPRIATIONS.—

18 There are authorized to be appropriated to carry out 

19 this subsection, such sums as may be necessary for 

20 each of fiscal years 2005 through 2009. 

21 ‘‘(f) TRANSITIONAL SERVICES.—

22 ‘‘(1) IN GENERAL.—The Secretary shall award 

23 demonstration grants, contracts, and cooperative 

24 agreements to States, Indian tribes and tribal orga25 nizations, and nongovernmental organizations for 
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1 the purpose of establishing integrated systems for 

2 providing transitional services for those affected by 

3 prenatal alcohol exposure and evaluating their effec4 tiveness. 

5 ‘‘(2) APPLICATION.—To be eligible for a grant, 

6 contract, or cooperative agreement under paragraph 

7 (1), an entity shall prepare and submit to the Sec8 retary an application at such time, in such manner, 

9 and containing such information as the Secretary 

10 may reasonably require. 

11 ‘‘(3) ALLOWABLE USES.—An entity shall use 

12 amounts received under a grant, contract, or cooper13 ative agreement under paragraph (1) to—

14 ‘‘(A) provide housing assistance to adults 

15 with Fetal Alcohol Spectrum Disorders; 

16 ‘‘(B) provide vocational training and place17 ment services for adults with Fetal Alcohol 

18 Spectrum Disorders; 

19 ‘‘(C) provide medication monitoring serv20 ices for adults with Fetal Alcohol Spectrum 

21 Disorders; and 

22 ‘‘(D) provide training and support to orga23 nizations providing family services or mental 

24 health programs and other organizations that
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1 work with adults with Fetal Alcohol Spectrum 

2 Disorders. 

3 ‘‘(4) AUTHORIZATION OF APPROPRIATIONS.—

4 There are authorized to be appropriated to carry out 

5 this subsection, such sums as may be necessary for 

6 each of fiscal years 2005 through 2009. 

7 ‘‘(g) COMMUNITY HEALTH CENTER INITIATIVE.—

8 ‘‘(1) IN GENERAL.—The Secretary, acting 

9 through the Administrator of the Health Resources 

10 and Services Administration, shall award grants to 

11 community health centers acting in collaboration 

12 with States, Indian tribes, tribal organizations, and 

13 nongovernmental organizations, for the establish14 ment of a 5-year demonstration program under the 

15 direction of the Interagency Coordinating Committee 

16 on Fetal Alcohol Syndrome to implement and evalu17 ate a program to increase awareness and identifica18 tion of Fetal Alcohol Spectrum Disorders in commu19 nity health centers and to refer affected individuals 

20 to appropriate support services. 

21 ‘‘(2) APPLICATION.—To be eligible to receive a 

22 grant under paragraph (1), a community health cen23 ter shall prepare and submit to the Administrator an 

24 application at such time, in such manner, and con-
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1 taining such information as the Administrator may 

2 reasonably require. 

3 ‘‘(3) ACTIVITIES.—A community health center 

4 shall use amounts received under a grant under 

5 paragraph (1) to—

6 ‘‘(A) provide training for health care pro7 viders on identifying and educating women who 

8 are at risk for alcohol consumption during preg9 nancy; 

10 ‘‘(B) provide training for health care pro11 viders on screening children for Fetal Alcohol 

12 Spectrum Disorders; 

13 ‘‘(C) educate health care providers and 

14 other relevant community health center workers 

15 on the support services available for those with 

16 Fetal Alcohol Spectrum Disorders and treat17 ment services available for women at risk for al18 cohol consumption during pregnancy; and 

19 ‘‘(D) implement a tracking system that 

20 can identify the rates of Fetal Alcohol Spec21 trum Disorders by racial, ethnic, and economic 

22 backgrounds. 

23 ‘‘(4) SELECTION OF PARTICIPANTS.—The Ad24 ministrator shall determine the number of commu25 nity health centers that will participate in the dem-
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1 onstration program under this subsection and shall 

2 select participants, to the extent practicable, that are 

3 located in different regions of the United States and 

4 that serve a racially and ethnically diverse popu5 lation. 

6 ‘‘(5) AUTHORIZATION OF APPROPRIATIONS.—

7 There are authorized to be appropriated to carry out 

8 this subsection, such sums as may be necessary for 

9 each of fiscal years 2005 through 2009. 

10 ‘‘(6) REPORT TO CONGRESS.—Not later than 1 

11 year after completion of the demonstration program 

12 under this subsection, the Administrator shall pre13 pare and submit to Congress a report on the results 

14 of the demonstration program, including—

15 ‘‘(A) changes in the number of women 

16 screened for and identified as at risk for alcohol 

17 consumption during pregnancy; 

18 ‘‘(B) changes in the number of individuals 

19 identified as having a Fetal Alcohol Spectrum 

20 Disorder; and 

21 ‘‘(C) changes in the number of alcohol-con22 suming pregnant women and individuals with 

23 Fetal Alcohol Spectrum Disorders who were re24 ferred to appropriate services.’’; 

25 (4) in subsection (h)(1) (as so redesignated)—
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1 (A) in subparagraph (C), by striking 

2 ‘‘and’’ after the semicolon; 

3 (B) in subparagraph (D), by adding ‘‘and’’ 

4 after the semicolon; and 

5 (C) by adding at the end the following: 

6 ‘‘(E) national public service announce7 ments to raise public awareness of the risks as8 sociated with alcohol consumption during preg9 nancy with the purpose of reducing the preva10 lence of Fetal Alcohol Spectrum Disorders, that 

11 shall—

12 ‘‘(i) be conducted by relevant Federal 

13 agencies under the coordination of the 

14 Interagency Coordinating Committee on 

15 Fetal Alcohol Syndrome; 

16 ‘‘(ii) be developed by the appropriate 

17 Federal agencies, as determined by the 

18 Interagency Coordinating Committee on 

19 Fetal Alcohol Syndrome taking into consid20 eration the expertise and experience of 

21 other relevant Federal agencies, and shall 

22 test and evaluate the public service an23 nouncement’s effectiveness prior to broad24 casting the announcements nationally; 
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1 ‘‘(iii) be broadcast through appro2 priate media outlets, including television or 

3 radio, in a manner intended to reach 

4 women at risk of alcohol consumption dur5 ing pregnancy; and 

6 ‘‘(iv) be measured prior to broadcast 

7 of the national public service announce8 ments to provide baseline data that will be 

9 used to evaluate the effectiveness of the 

10 announcements.’’; and 

11 (5) in subsection (k) (as so redesignated)—

12 (A) in paragraph (1), by striking ‘‘Na13 tional Task Force on Fetal Alcohol Syndrome 

14 and Fetal Alcohol Effect’’ and inserting ‘‘Na15 tional Task Force on Fetal Alcohol Spectrum 

16 Disorders’’; 

17 (B) in paragraph (3)—

18 (i) in subparagraph (B), by striking 

19 ‘‘and’’ after the semicolon; 

20 (ii) in subparagraph (C), by adding 

21 ‘‘and’’ after the semicolon; and 

22 (iii) by adding at the end the fol23 lowing: 

24 ‘‘(D) develop, in collaboration with the 

25 Interagency Coordinating Committee on Fetal
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1 Alcohol Syndrome, a report that identifies and 

2 describes the 10 most important actions that 

3 must be taken to reduce prenatal alcohol expo4 sure and all its adverse outcomes, and that 

5 shall—

6 ‘‘(i) describe the state of the current 

7 epidemiology of Fetal Alcohol Spectrum 

8 Disorders, risk factors, and successful ap9 proaches in policy and services that have 

10 reduced alcohol-exposed pregnancies and 

11 outcomes; 

12 ‘‘(ii) identify innovative approaches 

13 that have worked in related areas such as 

14 tobacco control or HIV prevention that 

15 may provide models for Fetal Alcohol 

16 Spectrum Disorders prevention; 

17 ‘‘(iii) recommend short-term and long18 term action plans for achieving the 

19 Healthy 2010 Objectives for the United 

20 States, such as increasing abstinence from 

21 alcohol among pregnant women and reduc22 ing the occurrence of Fetal Alcohol Syn23 drome; and 

24 ‘‘(iv) recommend in coordination with 

25 the National Institute on Mental Health 
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1 whether Fetal Alcohol Syndrome and other 

2 prenatal alcohol disorders, or a subset of 

3 these disorders, should be included in the 

4 Diagnostic and Statistical Manual of Men5 tal Disorders.’’; and 

6 (C) by striking ‘‘Fetal Alcohol Syndrome 

7 and Fetal Alcohol Effect’’ each place that such 

8 appears and inserting ‘‘Fetal Alcohol Spectrum 

9 Disorders’’. 

10 SEC. 4. COORDINATION AMONG FEDERAL ENTITIES. 

11 Part O of title III of the Public Health Service Act 

12 (42 U.S.C. 280f et seq.) is amended by adding at the end 

13 the following: 

14 ‘‘SEC. 399K–1. COORDINATION AMONG FEDERAL ENTITIES. 

15 ‘‘(a) INTERAGENCY COORDINATING COMMITTEE ON

16 FETAL ALCOHOL SYNDROME.—The Secretary, acting 

17 through the Director of the National Institute on Alcohol 

18 Abuse and Alcoholism, shall provide for the continuation 

19 of the Interagency Coordinating Committee on Fetal Alco20 hol Syndrome so that such Committee may—

21 ‘‘(1) coordinate activities conducted by the Fed22 eral Government on Fetal Alcohol Spectrum Dis23 orders, including convening meetings, establishing 

24 work groups, sharing information, and facilitating 
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1 and promoting collaborative projects among Federal 

2 agencies; and 

3 ‘‘(2) develop, in consultation with the National 

4 Task Force on Fetal Alcohol Spectrum Disorders, 

5 priority areas for years 2006 through 2010 to guide 

6 Federal programs and activities related to Fetal Al7 cohol Spectrum Disorders. 

8 ‘‘(b) COORDINATION AMONG FEDERAL ENTITIES.—

9 ‘‘(1) IN GENERAL.—The Comptroller General of 

10 the United States shall evaluate and make rec11 ommendations regarding the appropriate roles and 

12 responsibilities of Federal entities with respect to 

13 programs and activities related to Fetal Alcohol 

14 Spectrum Disorders. 

15 ‘‘(2) COVERED ENTITIES.—The Federal entities 

16 under paragraph (1) shall include entities within the 

17 National Institutes of Health, the Centers for Dis18 ease Control and Prevention, the Substance Abuse 

19 and Mental Health Services Administration, the 

20 Health Resources and Services Administration, the 

21 Indian Health Service, the Agency for Healthcare 

22 Research and Quality, the Interagency Coordinating 

23 Committee on Fetal Alcohol Syndrome, the National 

24 Task Force on Fetal Alcohol Spectrum Disorders, as 

25 well as the Office of Special Education and Rehabili-
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1 tative Services in the Department of Education and 

2 the Office of Juvenile Justice and Delinquency Pre3 vention in the Department of Justice. 

4 ‘‘(3) EVALUATION.—The evaluation conducted 

5 by the Comptroller General under paragraph (1) 

6 shall include—

7 ‘‘(A) an assessment of the current roles 

8 and responsibilities of Federal entities with pro9 grams and activities related to Fetal Alcohol 

10 Spectrum Disorders; and 

11 ‘‘(B) an assessment of whether there is du12 plication in programs and activities, conflicting 

13 roles and responsibilities, or lack of coordina14 tion among Federal entities. 

15 ‘‘(4) RECOMMENDATION.—The Comptroller 

16 General shall provide recommendations on the ap17 propriate roles and responsibilities of the Federal 

18 entities described in paragraph (2) in order to maxi19 mize the effectiveness of Federal programs and ac20 tivities related to Fetal Alcohol Spectrum Disorders. 

21 ‘‘(5) COMPLETION.—Not later than 1 year after 

22 the date of enactment of the Advancing FASD Re23 search, Prevention, and Services Act, the Comp24 troller General shall complete the evaluation and 
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1 submit to Congress a report on the findings and rec2 ommendations made as a result of the evaluation.’’. 

3 SEC. 5. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL 

4 SYNDROME. 

5 Section 519C(b) of the Public Health Service Act (42 

6 U.S.C. 290bb–25c(b)) is amended—

7 (1) in paragraph (11), by striking ‘‘and’’ after 

8 the semicolon; 

9 (2) by redesignating paragraph (12) as para10 graph (15); and 

11 (3) by inserting after paragraph (11), the fol12 lowing: 

13 ‘‘(12) provide respite care for caretakers of in14 dividuals with Fetal Alcohol Syndrome and other 

15 prenatal alcohol-related disorders; 

16 ‘‘(13) recruit and train mentors for adolescents 

17 with Fetal Alcohol Syndrome and other prenatal al18 cohol-related disorders; 

19 ‘‘(14) provide educational and supportive serv20 ices to families of individuals with Fetal Alcohol 

21 Spectrum Disorders; and’’. 

22 SEC. 6. PREVENTION, INTERVENTION, AND SERVICES IN 

23 THE EDUCATION SYSTEM. 

24 The Secretary of Education shall direct the Office of 

25 Special Education and Rehabilitative Services to—
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1 (1) implement screening procedures and con2 duct training on a nationwide Fetal Alcohol Spec3 trum Disorders surveillance campaign for the edu4 cational system in collaboration with the efforts of 

5 the National Center on Birth Defects and Develop6 mental Disabilities under section 399H(b) of the 

7 Public Health Service Act (as added by this Act); 

8 (2) introduce curricula previously developed by 

9 the National Center on Birth Defects and Develop10 mental Disabilities and the Substance Abuse and 

11 Mental Health Services Administration on how to 

12 most effectively educate and support children with 

13 Fetal Alcohol Spectrum Disorders in both special 

14 education and traditional education settings, and in15 vestigate incorporating information about the identi16 fication, prevention, and treatment of the Disorders 

17 into teachers’ credentialing requirements; 

18 (3) integrate any special techniques on how to 

19 deal with Fetal Alcohol Spectrum Disorders children 

20 into parent-teacher or parent-administrator inter21 actions, including after-school programs, special 

22 school services, and family aid programs; 

23 (4) collaborate with other Federal agencies to 

24 introduce a standardized educational unit within 

25 schools’ existing sexual and health education cur-
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1 ricula, or create one if needed, on the deleterious ef2 fects of prenatal alcohol exposure; and 

3 (5) organize a peer advisory network of adoles4 cents in schools to discourage the use of alcohol 

5 while pregnant or considering getting pregnant. 

6 SEC. 7. PREVENTION, INTERVENTION, AND SERVICES IN 

7 THE JUSTICE SYSTEM. 

8 The Attorney General shall direct the Office of Juve9 nile Justice and Delinquency Prevention to—

10 (1) implement screening procedures and con11 duct training on a nationwide Fetal Alcohol Spec12 trum Disorders surveillance campaign for the justice 

13 system in collaboration with the efforts of the Na14 tional Center on Birth Defects and Developmental 

15 Disabilities under section 399H(b) of the Public 

16 Health Service Act (as added by this Act); 

17 (2) introduce training curricula, in collaboration 

18 with the National Center on Birth Defects and De19 velopmental Disabilities and the Substance Abuse 

20 and Mental Health Services Administration, on how 

21 to most effectively identify and interact with individ22 uals with Fetal Alcohol Spectrum Disorders in both 

23 the juvenile and adult justice systems, and inves24 tigate incorporating information about the identifica-
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1 tion, prevention, and treatment of the disorders into 

2 justice professionals’ credentialing requirements; 

3 (3) promote the tracking of individuals entering 

4 the juvenile justice system with at-risk backgrounds 

5 that indicates them as high probability for having a 

6 Fetal Alcohol Spectrum Disorder, especially those 

7 individuals whose mothers have a high record of 

8 drinking during pregnancy as reported by the appro9 priate child protection agency; 

10 (4) educate judges, attorneys, child advocates, 

11 law enforcement officers, prison wardens, alternative 

12 incarceration administrators, and incarceration offi13 cials on how to treat and support individuals suf14 fering from Fetal Alcohol Spectrum Disorders within 

15 the criminal justice system, including—

16 (A) programs designed specifically for the 

17 identification, treatment, and education of such 

18 children; and 

19 (B) curricula development and 

20 credentialing of teachers, administrators, and 

21 social workers who implement such programs; 

22 (5) conduct a study on the inadequacies of how 

23 the current system processes children with certain 

24 developmental delays and subsequently develop alter25 native methods of incarceration and treatment that 
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1 are more effective for youth offenders identified to 

2 have a Fetal Alcohol Spectrum Disorder; and 

3 (6) develop transition programs for individuals 

4 with Fetal Alcohol Spectrum Disorders who are re5 leased from incarceration. 

6 SEC. 8. MISCELLANEOUS PROVISIONS. 

7 (a) AUTHORIZATION OF APPROPRIATIONS.—Section 

8 399J of the Public Health Service Act (42 U.S.C. 280f–

9 2) is amended by striking ‘‘the part’’ and all that follows 

10 through the period and inserting ‘‘subsections (h) through 

11 (k) of section 399H, $27,000,000 for each of fiscal years 

12 2005 through 2009’’. 

13 (b) REPEAL OF SUNSET.—Section 399K of the Pub14 lic Health Service Act (42 U.S.C. 280f–3) is repealed.

Æ