Federal Register / Vol. 79, No. 202 / Monday, October 20, 2014 / Notices 62637 

amended (5 U.S.C. App.), which sets 

forth standards for the formation and 

use of advisory committees. The 

purpose of the Committee is to provide 

the Secretary with recommendations, 

advice, and technical information 

regarding the most appropriate 

application of technologies, policies, 

guidelines, and standards for: (a) 

Effectively reducing morbidity and 

mortality in newborns and children 

having, or at risk for, heritable 

disorders; and (b) enhancing the ability 

of state and local health agencies to 

provide for newborn and child 

screening, counseling, and health care 

services for newborns and children 

having, or at risk for, heritable 

disorders. Specifically, the Committee 

makes systematic evidence-based 

recommendations on newborn screening 

for conditions that have the potential to 

change the health outcomes for 

newborns. 

The Committee tasks an external 

workgroup to conduct systematic 

evidence based reviews. The reviews are 

of rare, genetic conditions and their 

corresponding newborn screening 

test(s), confirmatory test(s), and 

treatment(s). Reviews also include an 

analysis of the benefits and harms of 

newborn screening for a selected 

condition at a population level and an 

assessment of state public health 

newborn screening programs’ ability to 

implement the screening of a new 

condition. 

Need and Proposed Use of the 

Information: HRSA proposes that the 

data collection surveys be administered 

by the Committee’s external Condition 

Review Workgroup to all state newborn 

screening programs in the United States. 

The surveys were developed to capture 

the following: (1) The readiness of state 

public health newborn screening 

programs to expand newborn screening 

to include the target condition; (2) 

specific requirements of screening for 

the condition would hinder or facilitate 

its implementation in each state; and (3) 

estimated timeframes needed for each 

state to complete major milestones 

toward full newborn screening of the 

condition. 

The data gathered will inform the 

Committee on the following: (1) 

Feasibility of implementing populationbased screening for the target condition; 

(2) readiness of state newborn screening 

programs to adopt screening for the 

condition; (3) identify gaps in feasibility 

or readiness to screen for the condition; 

and (4) identify areas of technical 

assistance and resources needed to 

facilitate screening for conditions with 

low feasibility or readiness. 

Likely Respondents: The respondents 

to the survey will be state newborn 

screening programs. 

Burden Statement: Burden in this 

context means the time expended by 

persons to generate, maintain, retain, 

disclose or provide the information 

requested. This includes the time 

needed to review instructions; to 

develop, acquire, install and utilize 

technology and systems for the purpose 

of collecting, validating and verifying 

information, processing and 

maintaining information, and disclosing 

and providing information; to train 

personnel and to be able to respond to 

a collection of information; to search 

data sources; to complete and review 

the collection of information; and to 

transmit or otherwise disclose the 

information. The total annual burden 

hours estimated for this Information 

Collection Request are summarized in 

the table below. 

Total Estimated Annualized burden 

hours: 

Form name Number of 

respondents 

Number of 

responses per 

respondent 

Total 

responses 

Average 

burden per 

response 

(in hours) 

Total burden 

hours 

INITIAL Survey ..................................................................... 59 1 59 10.0 590 

FOLLOW-UP Survey ........................................................... 1 30 1 30 2.0 60 

Total .............................................................................. 59 ........................ 89 ........................ 650 

1 Up to 30 states and/or territories will be asked to complete a follow-up survey. 

HRSA specifically requests comments 

on (1) the necessity and utility of the 

proposed information collection for the 

proper performance of the agency’s 

functions, (2) the accuracy of the 

estimated burden, (3) ways to enhance 

the quality, utility, and clarity of the 

information to be collected, and (4) the 

use of automated collection techniques 

or other forms of information 

technology to minimize the information 

collection burden. 

Dated: October 10, 2014. 

Jackie Painter, 

Acting Director, Division of Policy and 

Information Coordination. 

[FR Doc. 2014–24870 Filed 10–17–14; 8:45 am] 

BILLING CODE 4165–15–P 

DEPARTMENT OF HEALTH AND 

HUMAN SERVICES 

Health Resources and Services 

Administration 

Agency Information Collection 

Activities: Submission to OMB for 

Review and Approval; Public Comment 

Request 

AGENCY: Health Resources and Services 

Administration, HHS. 

ACTION: Notice. 

SUMMARY: In compliance with Section 

3507(a)(1)(D) of the Paperwork 

Reduction Act of 1995, the Health 

Resources and Services Administration 

(HRSA) has submitted an Information 

Collection Request (ICR) to the Office of 

Management and Budget (OMB) for 

review and approval. Comments 

submitted during the first public review 

of this ICR will be provided to OMB. 

OMB will accept further comments from 

the public during the review and 

approval period. 

DATES: Comments on this ICR should be 

received no later than November 19, 

2014. 

ADDRESSES: Submit your comments, 

including the Information Collection 

Request Title, to the desk officer for 

HRSA, either by email to OIRA_

submission@omb.eop.gov or by fax to 

202–395–5806. 

FOR FURTHER INFORMATION CONTACT: To 

request a copy of the clearance requests 

submitted to OMB for review, email the 

HRSA Information Collection Clearance 

Officer at paperwork@hrsa.gov or call 

(301) 443–1984. 

SUPPLEMENTARY INFORMATION: When 

submitting comments or requesting 

information, please include the 


tkelley on DSK3SPTVN1PROD with NOTICES
62638 Federal Register / Vol. 79, No. 202 / Monday, October 20, 2014 / Notices 

information request collection title for 

reference. 

Information Collection Request Title: 

Be The Match® Patient Services Survey 

OMB No. 0915–xxxx—NEW 

Abstract: National Marrow Donor 

Program®/Be The Match® is dedicated 

to helping patients and families get the 

support and information they need to 

learn about their disease and treatment 

options, prepare for transplant, and 

thrive after transplant. The information 

and resources provided are intended to 

help navigate the bone marrow or cord 

blood transplant (transplant) process. 

Participant feedback is essential to 

understand the needs for transplant 

support services and educational 

information across a diverse population. 

This information will be used to 

determine helpfulness of existing 

services and resources. Feedback is also 

used to identify areas for improvement 

and to develop future programs. 

Need and Proposed Use of the 

Information: Barriers restricting access 

to bone marrow or cord blood transplant 

(transplant) related care and educational 

information are multi-factorial. 

Feedback from participants is essential 

to better understand the changing needs 

for services and information as well as 

to demonstrate the effectiveness of 

existing services. The primary use for 

information gathered through the survey 

is to determine helpfulness of 

participants’ initial contact with Be The 

Match® Patient Services Coordinators 

(PSC) and to identify areas for 

improvement in the delivery of services. 

The survey will include these items to 

measure: (1) Reason for contacting Be 

The Match®; (2) if the PSC was able to 

answer questions and easy to 

understand; (3) if the contact helped the 

participant to feel better prepared to 

discuss transplant with their care team; 

(4) increase in awareness of available 

resources; (5) timeliness of response; 

and (6) overall satisfaction. Stakeholders 

utilize this evaluation data to make 

program and resource allocation 

decisions. 

Likely Respondents: Respondents will 

include patients, caregivers, and family 

members contacting Be The Match®

Patient Services Coordinators. 

Respondents will include all patients, 

caregivers, and family members who 

have contact with Be The Match®

Patient Services Coordinators via phone 

or email for transplant navigation 

services and support (advocacy). The 

decision to survey all participants was 

made based on historic evidence of 

patients’ unavailability due to frequent 

transitions in health status as well as 

between home and the hospital for 

initial treatment and care for 

complications. 

Burden Statement: Burden in this 

context means the time expended by 

persons to generate, maintain, retain, 

disclose, or provide the information 

requested. This includes the time 

needed to review instructions; to 

develop, acquire, install and utilize 

technology and systems for the purpose 

of collecting, validating and verifying 

information, processing and 

maintaining information, and disclosing 

and providing information; to train 

personnel and to be able to respond to 

a collection of information; to search 

data sources; to complete and review 

the collection of information; and to 

transmit or otherwise disclose the 

information. The total annual burden 

hours estimated for this ICR are 

summarized in the table below. 

TOTAL ESTIMATED ANNUALIZED BURDEN—HOURS

Form name Number of 

respondents 

Number of 

responses per 

respondent 

Total 

responses 

Average 

burden per 

response 

(in hours) 

Total burden 

hours 

Be The Match® Patient Services Survey ............................ 420 1 420 0.25 105 

Total .............................................................................. 420 1 420 0.25 105 

The total respondent burden for the 

satisfaction survey is estimated to be 

105 hours. We expect a total of 420 

respondents (33% response rate) to 

complete the Be The Match® Patient 

Services Survey. 

Dated: October 10, 2014. 

Jackie Painter, 

Acting Director, Division of Policy and 

Information Coordination. 

[FR Doc. 2014–24872 Filed 10–17–14; 8:45 am] 

BILLING CODE 4165–15–P 

DEPARTMENT OF HEALTH AND 

HUMAN SERVICES 

Health Resources and Services 

Administration 

Privacy Act of 1974; Deletion of an 

Existing System of Records 

AGENCY: Health Resources and Services 

Administration (HRSA), Department of 

Health and Human Services (HHS). 

ACTION: Notice to delete an obsolete 

system of records. 

SUMMARY: In accordance with the 

requirements of the Privacy Act of 1974, 

HRSA is deleting an obsolete system of 

records titled the Information Center 

(IC) Integrated Clearinghouse System 

(ICS), HRSA 09–15–0067, established in 

2007 at 72 FR 34018 and 72 FR 44846. 

DATES: Effective Date: The deletion will 

be effective upon publication of this 

Notice. 

ADDRESSES: The public should address 

any comments to: David Bowman, 

Office of Communications, HRSA, RM 

16–70, 5600 Fishers Lane, Rockville, 

Maryland, and 301–443–3376. 

Comments received will be available for 

review at this location, by appointment, 

during regular business hours, Monday 

through Friday from 9 a.m.–3 p.m., 

Eastern Time Zone. 

SUPPLEMENTARY INFORMATION: HRSA’s 

Office of Communications operated the 

IC/ICS system as part of the larger HRSA 

Information Center, which provided 

information on HRSA’s many programs 

in response to public inquiries. The 

purpose of the IC/ICS system of records 

was to provide for the safekeeping of 

customers’ personally identifiable 

information captured and retained by 

the system for the period of 1 year for 

quality assurance purposes associated 

with voluntary requests for publications 

and other information. On September 2, 

2014, the HRSA IC closed and ceased 

operations and all personallyidentifiable records were deleted from 

the system; therefore this system of 

records is no longer maintained. 

Accordingly, the Information Center 

(IC) Integrated Clearinghouse System 

(ICS), HRSA 09–15–0067, is hereby 

deleted as obsolete. 


tkelley on DSK3SPTVN1PROD with NOTICES